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168 Breaking Taboos: Talking About Death with Gabby Jimenez In this episode of Hospice Explained, host Marie Betcher RN, a registered nurse and former hospice nurse, interviews Gabrielle Jimenez, a hospice and palliative care nurse, end-of-life doula, grief educator, and author. Gabby shares her journey from commercial real estate to nursing, witnessing nearly 2000 last breaths, and discusses the importance of human-centered care in hospice. The episode also covers the challenges and rewards of starting a nursing career later in life, the need for earlier hospice care, and supporting parents losing a child. Highlighting Gabby's intention to create a safe place through her Facebook community 'The Hospice Heart,' this episode emphasizes the critical role of compassion and education in end-of-life care. 00:00 Introduction to Hospice Explained 00:46 Meet Gabrielle Jimenez: Hospice Nurse and Doula 02:01 Gabrielle's Journey to Hospice Care 10:12 The Role of a Doula in End-of-Life Care 17:01 Challenges and Changes in Hospice Care 21:38 The Importance of Discussing Death and Dying 24:04 Celebrating Life and Death in New Orleans 24:37 Organizing Funeral Food 25:51 A Funny Story About My Dad's Funeral 27:20 Reflecting on My Mother's Death 29:13 Dealing with Family Drama During Funerals 32:12 Advice for Handling Grief and Family Dynamics 39:08 Supporting Parents Losing a Child 43:46 Conclusion and Final Thoughts https://www.thehospiceheart.net/ If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast. Maire introduces a partnership with Suzanne Mayer RN inventor of the cloud9caresystem.com, When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.
As we close out this Best of 2025, these episodes represent far more than download numbers or chart positions. They reflect the conversations that resonated most with you, the ones that challenged practice, reinforced fundamentals, and reminded us why this work matters.From Prehospital Resuscitative Thoracotomy for Traumatic Cardiac Arrest with Mike Christian, to The Evolving Nature of Major Incidents with Adam Desmond, Paediatric Assessment in Critical Care with Anna Dobbie, Frailty in Geriatric Patients with Iain Wilkinson and James Adams, and The Last Year of Life focusing on Palliative and End of Life Care; each episode speaks to a different phase of life, a different clinical challenge, and a different kind of responsibility. Together, they capture the full spectrum of pre-hospital and emergency care: from critical care decisions to thoughtful, values-based care at the end of life.They remind us that excellence in practice is not just about technical skill or clinical algorithms, but about clear communication, teamwork, and compassion, whether we are managing traumatic cardiac arrest, supporting families during major incidents, caring for critically unwell children, advocating for frail older adults, or walking alongside patients in their final year of life.Thank you for being part of our podcast community throughout 2025. Your engagement is what makes these conversations possible, and it is a privilege to continue them with you into the year ahead. Finally, thank you to PAX bags for their continued support of the podcast. You can find the best-in-class medical bags here: https://www.pax-bags.com/en/
This episode features Professor Nancy Preston (International Observatory on End of Life Care, Lancaster University, Lancaster, UK) and Professor James Downar (Division of Palliative Care, Department of Medicine, University of Ottawa, Ottawa, ON, Canada) This podcast summarises a editorial which describes the critical intersection of palliative care and assisted dying where legalization has occurred. The authors address how palliative providers are likely to encounter requests for assisted dying, as currently 75–90% of requests come from people who are being treated by palliative care providers or who are admitted to palliative care facilities. The episode challenges the argument for separating these practices, suggesting that integration better supports patient values. It also explores the emotional impact on healthcare workers and the spectrum of their involvement. Full paper available from: https://journals.sagepub.com/doi/10.1177/02692163251365440 If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu: a.nwosu@lancaster.ac.uk
EVEN MORE about this episode!Step into a world where intuitive healing meets real-life transformation on the Ask Julie Ryan Show. In this episode, Julie tackles everything from mysterious respiratory reflux through energetic healing to communicating with Maggie, a cherished senior cat preparing for her transition. These powerful moments reveal how intention, compassion, and spiritual connection can bring clarity and comfort to both humans and animals.Discover the astonishing potential of past-life insights and energetic organ regeneration as Julie works with callers to uncover how previous experiences may influence current health challenges. Witness the remarkable possibility of regenerating a kidney with stem-cell energy and learn how to strengthen your connection with loved ones on the Other Side through signs, impressions, and intuitive practices.This episode also offers grounded, actionable support for osteoarthritis, emotional healing, and navigating everyday struggles with a spiritual lens. Julie invites you into an engaged, heart-centered community where you can ask questions, receive guidance, and grow your intuitive gifts. If you're ready for healing, insight, and connection, this episode opens the door to profound transformation.Episode Chapters:(0:11:26) - Elderly Cat End of Life Care(0:18:31) - Healing Past Lives and Regenerating Organs(0:33:30) - Loved Ones in Spirit Comfort(0:49:53) - Healing Arthritis With Stem Cells➡️Subscribe to Ask Julie Ryan YouTube➡️Subscribe to Ask Julie Ryan Español YouTube➡️Subscribe to Ask Julie Ryan Português YouTube➡️Subscribe to Ask Julie Ryan Deutsch YouTube➡️Subscribe to Ask Julie Ryan Français YouTube✏️Ask Julie a Question!
In the hospital setting, neurologists may be responsible for managing common end-of-life symptoms. Comprehensive end-of-life care integrates knowledge of the biomedical aspects of disease with patients' values and preferences for care; psychosocial, cultural, and spiritual needs; and support for patients and their families. In this episode, Teshamae Monteith, MD, FAAN, speaks with Claudia Z. Chou, MD, author of the article "End-of-Life Care and Hospice" in the Continuum® December 2025 Neuropalliative Care issue. Dr. Monteith is the associate editor of Continuum® Audio and an associate professor of clinical neurology at the University of Miami Miller School of Medicine in Miami, Florida. Dr. Knox is an assistant professor of neurology and a consultant in the Division of Community Internal Medicine, Geriatrics and Palliative Care at Mayo Clinic in Rochester, Minnesota. Additional Resources Read the article: End-of-Life Care and Hospice Subscribe to Continuum®: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the American Academy of Neurology: aan.com Social Media facebook.com/continuumcme @ContinuumAAN Host: @headacheMD Full episode transcript available here Dr Jones: This is Dr Lyell Jones, Editor-in-Chief of Continuum. Thank you for listening to Continuum Audio. Be sure to visit the links in the episode notes for information about earning CME, subscribing to the journal, and exclusive access to interviews not featured on the podcast. Dr Monteith: This is Dr Teshamae Monteith. Today I'm interviewing Dr Claudia Chou about her article on end-of-life care and hospice, which is found in the December 2025 Continuum issue on neuropalliative care. Welcome to our podcast. How are you? Dr Chou: I'm doing well. Thank you for having me. This is really exciting to be here. Dr Monteith: Absolutely. So, why don't you introduce yourself to our audience? Dr Chou: Sure. My name is Claudia Chou. I am a full time hospice and palliative medicine physician at Mayo Clinic in Rochester. I'm trained in neurology, movement disorders, and hospice and palliative medicine. I'm also passionate about education, and I'm the program director for the Hospice and Palliative Medicine fellowship here. Dr Monteith: Cool. So just learning about your training, I kind of have an idea of how you got into this work, but why don't you tell me what inspired you to get into this area? Dr Chou: It was chance, actually. And really just good luck, being in the right place at the right time. I was in my residency and felt like I was missing something in my training. I was seeing these patients who were suffering strokes and had acute decline in functional status. We were seeing patients with new diagnosis of glioblastoma and knowing what that future looked like for them. And while I went into neurology because of a love of neuroscience, localizing the lesion, all of those things that we all love about neurology, I still felt like I didn't have the skill set to serve patients where they perhaps needed me the most in those difficult times where they were dealing with serious illness and functional decline. And so, the serendipitous thing was that I saw a grand rounds presentation by someone who works in neurology and palliative care for people with Parkinson's disease. And truly, it's not an exaggeration to say that by the end of that lecture, I said, I need to do palliative care, I need to rotate in this, I need to learn more. I think this is what I've been missing. And I had plans to practice both movement disorders neurology and palliative care, but I finished training in 2020… and that was not a long time ago. We can think of all the things that were going on, all the different global forces that were influencing our day-to-day decisions. And the way things worked out, staying in palliative care was really what my family and I needed. Dr Monteith: Wow, so that's really interesting. Must have been a great lecturer. Dr Chou: Yes, like one of the best. Dr Monteith: So why don't you tell me about the objectives of your article? Dr Chou: The objectives may be to fill in some of the gaps in knowledge that may be present for the general neurologist. We learn so much in neurology training, so much about how to diagnose and treat diseases, and I think I would argue that this really is part and parcel of all we should be doing. We are the experts in these diseases, and just because we're shifting to end-of-life or transitioning to a different type of care doesn't mean that we back out of someone's care entirely or transition over to a hospice or palliative care expert. It is part of our job to be there and guide patients and their care partners through this next phase. You know, I'm not saying we all need to be hospice and palliative care experts, but we need to be able to take those first steps with patients and their care partners. And so, I think objectives are really to focus in on, what are those core pieces of knowledge for end-of-life care and understanding hospice so we can take those first steps with patients and their care partners? Dr Monteith: So, why don't you give us some of those essential points in your article? Dr Chou: Yeah. In one section of the article, I talk about common symptoms that someone might experience at the end of life and how we might manage those. These days, a lot of hospitals have order sets that talk us through those symptoms. We can check things off of a drop-down menu. And yet I think there's a little bit more nuance to that. There may be situations in which we would choose one medication over another. There may be medications that we've never really thought of in terms of symptom management before. Something that I learned in my hospice and palliative medicine fellowship was that haloperidol can be helpful for nausea. I know that's usually not one of our go-tos in neurology for any number of reasons. So, I think that extra knowledge can take us pretty far when we're managing end of life symptoms, particularly in the hospital setting. And then I think the other component is the hospice component. A lot of us may have not had experience talking about hospice, talking about what hospice can provide, and again, knowing how to take those first steps with patients. We may be referring to social work or palliative medicine to start those conversations. But again, I think this is something that's definitely learnable and something that should be part of our skill set in neurology. Dr Monteith: Great. And so, when you speak about symptom management and being more comfortable with the tools that we have, how can we be more efficient and more effective at that? Dr Chou: Think about what the common symptoms are at end of life. We may know this kind of intuitively, but what we commonly see are things like pain, nausea, dyspnea, anxiety, delirium or agitation. And so, I think having a little bit of a checklist in mind can be helpful. You know, how can I systematically think through a differential, almost, for why my patient might be uncomfortable? Why they might be restless? Have I thought through these different symptoms? Can I try a medication from my tool kit? See if that works, and if it does, we can continue on. If not, what's the next thing that I can pivot to? So, I think these are common skills for a little bit of a differential diagnosis, if you will, and how to work through these problems just with the end-of-life lens on it. Dr Monteith: So, are there any, like, validated tools or checklists that are freely available? Dr Chou: I don't think there's been anything particularly validated for end-of-life care in neurologic disease. And so, a lot of our treatments and our approaches are empiric, but I don't think there's been anything validated, per se. Dr Monteith: Great. So, why don't we talk a little bit about the approach to discussions on hospice? We all, as you kind of alluded to, want to be effective neurologists, care for our patients, but we sometimes deal with very debilitating diseases. And so, when we think that or suspect that our patient is kind of terminally ill, how do we approach that to our patients? Of course, our patients come from different backgrounds, different experiences. So, what is your approach? Dr Chou: So, when we talk about hospice and when a patient may be appropriate for hospice, we have to acknowledge that we think that they may be in the last six months of their disease. We as the neurologist are the experts in their disease and the best ones to weigh in on that prognosis. The patient and their care partners then have to accept that the type of care that hospice provides is what makes sense for them. Hospice focuses on comfort and treating a patient's comfort as the primary goal. Hospice is not as interested in treating cancer, say, to prolong life. Hospice is not as interested in life-prolonging measures and treatments that are not focused at comfort and quality of life. And so, when we have that alignment between our understanding of a patient's disease and their prognosis and the patient care partner's goal is to focus on comfort and quality of life above all else, that's when we have a patient who might be appropriate for hospice and ready to hear more about what that actually entails. Dr Monteith: And what are some, maybe, myths that neurologist healthcare professionals may have about hospice that you really want us to kind of have some clarity on? Dr Chou: That's a great question. What we often tell patients is that hospice's goal is to help patients live as well as possible in the time that they have left. Again, our primary objective is not life prolongation, but quality of life. Hospice's goal is also not to speed up or slow down the natural dying process. Sometimes we do get questions about that: can't you make this go faster or we're ready for the end. But really, we are there to help patients along the natural journey that their body is taking them on. And I think hospice care can actually be complex. In the inpatient setting, in particular in neurology, we may be seeing patients who have suffered large strokes and have perhaps only days to a few weeks of life left. But in the outpatient setting and in the home hospice setting, patients can be on hospice for many months, and so they will have new care needs, new urinary tract infections, sometimes new rashes, the need to change their insulin regimens around to avoid extremes of hyperglycemia or hypoglycemia. So, there is a lot of complexity in that care and a lot that can be wrapped up under that quality-of-life and comfort umbrella. Dr Monteith: And to get someone to hospice requires a bit of prognostication, right? Six months of prediction in terms of a terminal illness. I know there's some nuances to that. So how can you make us feel more comfortable about making the recommendations for hospice? Dr Chou: I think this is a big challenge in the field. We're normally guided by Medicare guidelines that say when a patient might be hospice-appropriate. And so, for a neurologic disease, this really only encompasses four conditions: ALS, stroke, coma, and Alzheimer's dementia. And we can think of all the other diseases that are not encompassed in those four. And so, I think we say that we paint the picture of what it means to have a prognosis of six months or less. So, from the neurologic side, that can be, what do you know about this disease and what end-stage might look like? What is the pattern of the patient's functional decline? What are they needing more help with? Are there other factors at play such as heart failure or COPD that may in and of themselves not be a qualifying diagnosis for hospice, but when it's taken together in the whole clinical picture, you have a patient who's very ill and one that you're worried may die in the next six months or less? Dr Monteith: Then you also had some nice charts on kind of disease-specific guidelines. Can you take us a little bit through that? Dr Chou: The article does contain tables about specific criteria that may qualify someone for hospice with these neurologic conditions. And they are pretty dense. I know they're a checklist of a lot of different things. And so, how we practice is by trying to refer patients to hospice based on those guidelines as much as possible and then using our own clinical judgment as well, what we have seen through taking care of patients through the years. So, again, really going back to that decline. What is making you feel uncomfortable about this patient's prognosis? What is making you feel like, gosh, this patient could be well supported by hospice, and they could have six months or less? So, all of that should go into your decision as well. And all of that should go into your discussion with the patient and their care partners. Dr Monteith: Yeah. And reading your article, what stood out was all the services that patients can receive under hospice. So, I think sometimes people think, okay, this is terminal illness, let's get to hospice for whatever reasons, but not necessarily all the lists and lists and lists of benefits of hospice. So, I don't know that everyone's aware of all those benefits. So, can you talk to us a little bit about that? Dr Chou: Yeah, I like that you brought that up because that's also something that I often say to patients and their care partners when we're talking about hospice. When the time is right for a patient to enroll in hospice, they should not feel like they're giving anything up. There should be no more clinical trial that they're hoping to chase down, and so they should just feel like they're gaining all of those good supports: care that comes to their home, a team that knows them well, someone that's available twenty-four hours a day by phone and can actually even come into the home setting if needed to help with symptom management. Hospice comes as well with the psychosocial supports for just coping with what dying looks like. We know that's not easy to be thinking about dying for oneself, or for a family member or care partner to be losing their loved one. So, all of those supports are built into hospice. I did want to make a distinction, too, that hospice does not provide custodial care, which I explain to patients as care of the body, those daily needs for bathing, dressing, eating, etc. Sometimes patients are interested in hospice because they're needing more help at home, and I have to tell them that unfortunately, our healthcare system is not built for that. And if that's the sole reason that someone is interested in hospice, we have to think about a different approach, because that is not part of the hospice benefit. Dr Monteith: Thank you for that. And then I learned about concurrent care. So why don't you tell us a little bit about that? That's a little bit of a nuance, right? Dr Chou: Yeah, that is a little bit of a nuance. And so, typically when patients are enrolling in hospice, they are transitioning from care the way that it's normally conducted in our healthcare system. So, outpatient visits to all of the specialists and to their primary care providers, the chance to go to the ER or the ICU for higher levels of care. And yet there are a subset of patients who can still have all of those cares alongside hospice care. That really applies to two specific populations: veterans who are receiving care through the Veterans Administration, and then younger patients, so twenty six years old and less, can receive that care through, essentially, a pediatric carve out. Dr Monteith: Great. Well, I mean, you gave so much information in your article, so our listeners are going to have to read it. I don't want you to spill everything, but if you can just kind of give me a sense what you want a neurologist to take away from your article, I think that would be helpful. Dr Chou: I think what I want neurologist to take away is that, again, this is something that is part of what we do as neurologists. This is part of our skill set, and this is part of what it means to take good care of patients. I think what we do in this transition period from kind of usual cares, diagnosis, full treatment to end of life, really can have impact on patients and their care partners. It's not uncommon for me to hear from family members who have had another loved one go through hospice about how that experience was positive or negative. And so, we can think about the influence for years to come, even, because of how well we can handle these transitions. That really can be more than the patient in front of us in their journey. That is really important, but it can also have wide-reaching implications beyond that. Dr Monteith: Excellent. And I know we were talking earlier a little bit about your excitement with the field and where it's going. So why don't you share some of that excitement? Dr Chou: Yeah. And so, I think there is a lot still to come in the field of neuropalliative care, particularly from an evidence base. I know we talked a lot about the soft skills, about presence and communication, but we are clinicians at heart, and we need to practice from an evidence base. I know that's been harder in palliative care, but we have some international work groups that really are trying to come together, see what our approaches look like, see where standardization may need to happen or where our differences are actually our strength. I think there can be a lot of variability in what palliative care looks like. So, my hope is that evidence base is coming through these collaborations. I know it's hard to have a conversation these days without talking about artificial intelligence, but that is certainly a hope. When you look at morbidity, when you look at patients with these complicated disease courses, what is pointing you in the direction of, again, a prognosis of six months or less or a patient who may do better with this disease versus not? And so, I think there's a lot to come from the artificial intelligence and big data realm. For the trainees listening out there, there is no better time to be excited about neuropalliative care and to be thinking about neuropalliative care. I said that I stumbled upon this field, and hopefully someone is inspired as well by listening to these podcasts and reading Continuum to know what this field is really about. And so, it's been exponential growth since I joined this field. We have medical students now who want to come into neuropalliative care as a profession. We have clinicians who are directors of neuropalliative care at their institutions. We have an international neuropalliative care society and neuropalliative care at AAN. And I think we are moving closer to that dream for all of us, which is that patients living with serious neurologic illness can be supported throughout that journey. High-quality, evidence-based palliative care. We're not there yet, but I think it is a possibility that we reach that in my lifetime. Dr Monteith: Well, excellent. I look forward to maybe another revision of this article with some of that work incorporated. And it's been wonderful to talk to you and to reflect on how better to approach patients that are towards the end of life and to help them with that decision-making process. Thank you so much. Dr Chou: Yeah, thank you for having me. And we're very excited about this issue. Dr Monteith: Today. I've been interviewing Dr Claudia Chou about her article on end-of-life care and hospice, which is found in the December 2025 Continuum issue on neuropalliative care. Be sure to check out Continuum Audio episodes from this and other issues, and thank you to our listeners for joining today. Dr Monteith: This is Dr Teshamae Monteith, Associate Editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use the link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at continpub.com/audioCME. Thank you for listening to Continuum Audio.
In this week's podcast, we sit down with Drs. Sarguni Singh, Christian Furman, and Lynn Flint, three authors of the recent Journal of the American Geriatrics Society article, "Rehab and Death: Improving End-of-Life Care for Medicare Skilled Nursing Facility Beneficiaries." The authors dive into the challenges facing seriously ill older adults discharged to Skilled Nursing Facilities (SNFs), where fragmented care transitions, misaligned Medicare policies, and inadequate access to palliative care often result in burdensome hospitalizations and goal-discordant care. The discussion highlights key barriers in Medicare's SNF and hospice benefits, including the inability to access concurrent hospice and SNF care, and explores solutions to improve care. Among the recommendations is leveraging Medicare's Patient Driven Payment Model (PDPM) to reimburse SNFs for providing palliative care, commissioning a Government Accountability Office (GAO) report on SNF utilization at the end of life, and piloting a model that allows time-limited concurrent hospice and rehabilitation care. Also, check out these two resources if you want a deeper dive: Our past podcast we did, now nearly 6 years ago, on the original NEJM paper, Rehabbed to Death. Joan Carpenter's article titled "Forced to Choose: When Medicare Policy Disrupts End-of-Life Care" in the Journal of Aging & Social Policy
Oral Arguments for the Court of Appeals for the D.C. Circuit
Gina Latture v. Priority Life Care, LLC
THE GOOD DEATH VIRTUAL BOOK TOUR: Suzanne B. O'Brien RN in Conversation with Michelle Donaldson. Michelle Donaldson, a certified end-of-life doula from Doulagivers Institute, joins this episode of "Ask a Death Doula" to share her profound insights into hospice care. Her journey from advanced EMT and pharmacy technician to end-of-life doula reflects her deep commitment to holistic, dignified support. Inspired by her own parents' hospice experiences, she now works with a dedicated hospice team in Las Vegas to blend non-medical guidance with traditional care, creating a more personal and transformative experience for patients and their families. Education and empathy shine throughout our conversation as Michelle highlights the gaps families often face within the hospice system. She emphasizes the importance of preparing and supporting family caregivers—those who carry much of the emotional and physical load. Through her compassionate training, real-life stories, and collaboration with the hospice team, Michelle helps families navigate end-of-life challenges with confidence, connection, and cultural sensitivity. Her work shows the invaluable impact doulas can have in turning overwhelming moments into peaceful, meaningful memories—and she invites anyone drawn to this mission to join the growing movement of compassionate end-of-life support. (00:02) The Role of End-of-Life Doulas (05:20) Improving End-of-Life Care Through Education (13:48) Making an Impact in End-of-Life Care (20:11) Navigating End-of-Life Care Conversations (24:07) Transforming End-of-Life Care Together (37:00) Join the Death Doula Movement Join the upcoming FREE Doulagivers Level 1 End of Life Doula and Family Caregiver Training Webinar here Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE Or visit our website here! GET THE GOOD DEATH BOOK Here Meet our guest: Michelle Donaldson Website: Open Arms Doula Please Share! Know someone who is a caregiver, healthcare worker, or spiritual seeker? Share this episode and invite them to join this sacred and supportive experience. Listen & Subscribe: Available on Apple Podcasts • Spotify • Google Podcasts • YouTube JOIN MY FREE TRAINING AND MEMBERSHIP SITE This is a community-supported group hosted by Suzanne B. O'Brien RN, founder of the International Doulagivers Institute for training those who want to be professional End of Life Doulas, Doulagiver Practitioners and for anyone wanting more EOL education Join Here: 4491664174178077 ⚑ SUBSCRIBE TO MY CHANNEL ⚑ If you want to do great things you need to have a great environment. Create the life you want by surrounding yourself with positivity and watching daily. Click here to subscribe! ツ CONNECT WITH ME ツ Leave a comment on this video and it'll get a response. Or you can connect with me on different social platforms too: Instagram Facebook TikTok Website Podcast #deathdoula #deathdoultraining #dyingwell #death #life #deatheducation #doulagivers #hospice #hospicecare #hospicenurse #deathdoula #soulmidwife #deathmidwife #endoflifeplanning #healthcareproxy #funerals #fearofdeath #endoflifedoula #thegooddeath #hospice #grief #deathawareness #birth #endoflife #deathpositivity #consciousdying #dying #advanceplanning #deathpositive #gooddeath #consciousliving #endoflifedirective #palliativecare #advancedirective #livefully #suzannebobrien. #lifecafe #consciousness #awarenes
Chris Palmer, author of "Achieving a Good Death: A Practical Guide to the End of Life, gave a wellness talk on Swedish death cleaning, or "döstädning" during the GW Office of Integrative Medicine & Health's A Mindfulness Experience. Swedish death cleaning is a trend resulting from the Swedish cultural tradition of decluttering and organizing one's life before passing away. Chris is also an activist, wildlife filmmaker, conservationist, retired American University professor, and grandfather. He is a hospice volunteer, runs an aging, death, and dying group for the Bethesda Metro Area Village, and is obtaining a certificate in End-of-Life Care. ◘ Related Links: Chris Palmer's website: chrispalmeronline.com; Chris' handouts, including a free copy of his book and info on decluttering your home, how to write an ethical will (legacy letter), and more: bit.ly/4poQ4iT. ◘ Transcript bit.ly/3JoA2mz ◘ This podcast features the song “Follow Your Dreams” (freemusicarchive.org/music/Scott_Ho…ur_Dreams_1918) by Scott Holmes, available under a Creative Commons Attribution-Noncommercial (01https://creativecommons.org/licenses/by-nc/4.0/) license. ◘ Disclaimer: The content and information shared in GW Integrative Medicine is for educational purposes only and should not be taken as medical advice. The views and opinions expressed in GW Integrative Medicine represent the opinions of the host(s) and their guest(s). For medical advice, diagnosis, and/or treatment, please consult a medical professional.
In this episode of the Medical Support to Irregular Warfare podcast, the hosts discuss the importance of Missy Givens' new book, 'A Lay Person's Guide for Prolonged Casualty Care.' The conversation covers the necessity of the book, its development process, and how it aims to empower laypersons with medical knowledge in emergency situations. The discussion also touches on the challenges of translating medical information for non-professionals, the importance of community preparedness, and the role of telemedicine in providing support during crises. The episode concludes with reflections on the need for end-of-life care considerations and the importance of building networks within communities.TakeawaysThe book addresses a gap in prolonged casualty care education.Missy Givens emphasizes the need for accessible medical knowledge.The development process involved collaboration with non-medical individuals.Translating medical knowledge for laypersons is challenging but essential.The book is intended for those cut off from medical help.Wound care and alternative treatments are key topics in the book.Community preparedness is crucial for emergency situations.End-of-life care considerations are included in the book.Telemedicine can enhance support in prolonged care scenarios.Building networks within communities is vital for effective emergency response.Chapters00:00 Introduction to Medical Support in Irregular Warfare02:46 Missy's New Book: A Necessity in Prolonged Casualty Care06:02 The Development Process of the Book08:49 Translating Medical Knowledge for Laypersons11:46 The Book's Target Audience and Purpose14:55 Addressing Trauma and Non-Trauma Care17:48 Wound Care and Alternative Treatments20:56 Empowering Communities Through Medical Knowledge23:56 End-of-Life Care and Palliative Considerations26:42 The Role of Telemedicine in Prolonged Care29:58 Technical Aspects and Accessibility of the Book32:53 Closing Thoughts and Community EngagementFor more content, go to www.prolongedfieldcare.orgConsider supporting us: patreon.com/ProlongedFieldCareCollective or www.lobocoffeeco.com/product-page/prolonged-field-care
In a world where aging brings complex challenges—from health shifts to family dynamics—professional guidance can transform overwhelm into empowerment. On November 5, 2025, Positive Aging host Steve Gurney led a lively roundtable with three seasoned Aging Life Care Managers®: Mindy Lee of ElderTree Care Management (Northern Virginia), Teresa Boring of Aging Well Eldercare (Maryland), and Jennifer T. Szakaly of Caregiving Corner (Charlotte, NC). These pros, representing larger practices with teams of 10-21, shared how they orchestrate seamless aging journeys. If you're caring for a loved one or planning your own later years, this discussion offers practical wisdom.Aging Life Care Management isn't new—it's thrived since the 1980s as a holistic field blending social work, gerontology, and problem-solving. "We're experts in aging well," Szakaly explained. They partner with older adults to craft personalized plans, pivoting as needs evolve, to sidestep crises and amplify joy. The Aging Life Care Association® boasts over 2,000 members nationwide; find one at aginglifecare.org by zip code—urban areas yield dozens, rural spots may need broader searches.Panelists drew vivid analogies: Mindy as the "orchestra conductor," harmonizing doctors, caregivers, families, and housing for safety and delight. Teresa likened it to "wedding planners for aging"—universal elements like care and finances, but tailored details, since no two strokes (or life stages) are identical. Jennifer emphasized their tagline: bridging today to aspirational tomorrows, whether independence or community living.All three entered via social work or gerontology, drawn to its impact. Mindy shifted from child welfare to nursing homes and home health, finding her passion in "what I couldn't envision doing anything else." Teresa's grad specialization in aging launched her dream role, starting Debbie's Angels program. Szakaly grew her solo gig into a 21-person team over 20 years, loving the "rewarding problem-solving."At the core? "What does living well look like for you?" Mindy urged. It's subjective—independence for some (like chat participant Irene), connections for others. They dive deep: initial visits uncover joys from lifelong hobbies, even in dementia, via art or music therapy. "We build plans around what brings joy," Mindy said, adapting if home isn't viable.Transitions to senior living demand nuance. Families often arrive mid-crisis—"five-alarm blaze," per Mindy—resistant to losing autonomy. Experts assess clinically (care levels), personally (preferences like quiet vs. vibrant), and financially (private pay, LTC insurance, Medicaid). Crucially, no kickbacks from communities ensure objectivity. "We tour with clients, spotting nuances like an introvert needing an 8-bed unit," Mindy noted. Teresa scouts under-the-radar gems with "fantastic care for decades." Jennifer stresses resident connections: "Pair Mom with a beanie baby collector buddy—game-changer."Home alternatives shine too. They vet co-housing, multigenerational setups, or modifications—handymen for grab bars, contractors for ramps—balancing sustainability against caregiver costs, which can soar regionally.Beyond housing, they advocate fiercely. Accompanying to doctors (scheduling, transport, notes) fills gaps in brief visits. "We've noticed unsteady gait—PT orders?" Mindy prompts. For Ed's mom with knee issues and walker reliance, home-visit docs vary by area, but managers facilitate everything: rides, in-car help, follow-ups.Therapies (OT, PT, speech) integrate seamlessly, in-home or community-based, per insurance. "We ensure what's needed, no matter the setting," Jennifer affirmed. Chatters like Leslie (therapist) and Melinda (community staff) praised this: managers enhance lifestyles, not compete.
THE GOOD DEATH VIRTUAL BOOK TOUR: Suzanne B. O'Brien RN in Conversation with Lee Webster. Have you ever considered the lost art of caring for our deceased loved ones personally? Lee Webster, a pioneer in end-of-life care, shares her profound insights into how society has shifted away from hands-on death care, and what we can do to reclaim these sacred practices. With her journey from a hospice volunteer to a leader in national end-of-life organizations, Lee unravels the layers of fear and distance created by modern funeral industry practices and public health concerns, encouraging us to rediscover the empowering aspects of home funerals and personalized rituals. Journey with us as we explore the historical transformation of our approach to death and mourning, and how societal norms have distanced us from the deceased. Lee Webster argues that by reclaiming intimate acts, such as bathing our deceased, we not only honor them but also provide ourselves with an essential, cathartic outlet for grief. Discover how slowing down and creating meaningful rituals can lead to healthier mourning, turning a potentially traumatic period into one of emotional and spiritual reflection. As we wrap up our conversation with Lee, the focus turns to the financial and environmental implications of modern funeral practices. By highlighting the benefits of natural burials, Lee emphasizes the importance of making informed, cost-effective choices that honor our loved ones while considering the planet's well-being. Through personal anecdotes and insights, we explore how families can create lasting memories with small, meaningful gestures, transforming the end-of-life process into an authentic, healing experience. (00:02) Empowering Choices in End-of-Life Care (07:41) The Sacred Practice of Caring (12:39) Creating Meaningful End-of-Life Rituals (21:43) Practical Aspects of End-of-Life Care (27:56) Reclaiming Authentic End-of-Life Practices (37:40) Revolutionizing End-of-Life Choices ⚡ Lifting The Lid Festival of Death and Dying (November 14-16, 2025) — Grab your tickets here: https://www.tickettailor.com/events/liftingthelid/1853754 Join the upcoming FREE Doulagivers Level 1 End of Life Doula and Family Caregiver Training Webinar here Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE Or visit our website here! GET THE GOOD DEATH BOOK Here Links mentioned in this episode: National Home Funeral Alliance End of Life Doula Alliance Green Burial Council Conservation Burial Alliance Funeral Consumers Alliance Please Share! Know someone who is a caregiver, healthcare worker, or spiritual seeker? Share this episode and invite them to join this sacred and supportive experience. Listen & Subscribe: Available on Apple Podcasts • Spotify • Google Podcasts • YouTube JOIN MY FREE TRAINING AND MEMBERSHIP SITE This is a community-supported group hosted by Suzanne B. O'Brien RN, founder of the International Doulagivers Institute for training those who want to be professional End of Life Doulas, Doulagiver Practitioners and for anyone wanting more EOL education Join Here: 4491664174178077 ⚑ SUBSCRIBE TO MY CHANNEL ⚑ If you want to do great things you need to have a great environment. Create the life you want by surrounding yourself with positivity and watching daily. Click here to subscribe! ツ CONNECT WITH ME ツ Leave a comment on this video and it'll get a response. Or you can connect with me on different social platforms too: Instagram Facebook TikTok Website Podcast #deathdoula #deathdoultraining #dyingwell #death #life #deatheducation #doulagivers #hospice #hospicecare #hospicenurse #deathdoula #soulmidwife #deathmidwife #endoflifeplanning #healthcareproxy #funerals #fearofdeath #endoflifedoula #thegooddeath #hospice #grief #deathawareness #birth #endoflife #deathpositivity #consciousdying #dying #advanceplanning #deathpositive #gooddeath #consciousliving #endoflifedirective #palliativecare #advancedirective #livefully #suzannebobrien. #lifecafe #consciousness #awarenes
With Sotiria Liori, Attikon University Hospital, National and Kapodistrian University of Athens - Greece and Julie De Backer, Ghent University Hospital - Belgium. In this episode, Sotiria Liori and Julie De Backer discuss heart failure in adult congenital heart disease patients — covering how congenital lesions and prior repairs shape epidemiology and mechanisms (ventricular remodeling, valvular and conduit dysfunction, arrhythmias), as well as clinical assessment with imaging, biomarkers, and hemodynamics. They outline management with guideline-directed therapy, rhythm considerations, indications for advanced therapies (MCS and transplant), and pregnancy counseling. The episode also highlights multidisciplinary care models and key evidence gaps. Proposed reading: General Principles of Heart Failure Management in Adult Congenital Heart Disease. Tompkins R, Romfh A. Heart Failure Reviews. 2020;25(4):555-567. doi:10.1007/s10741-019-09895-x Chronic Heart Failure in Congenital Heart Disease: A Scientific Statement From the American Heart Association. Stout KK, Broberg CS, Book WM, et al. Circulation. 2016;133(8):770-801. doi:10.1161/CIR.0000000000000352. Relation Between New York Heart Association Functional Class and Objective Measures of Cardiopulmonary Exercise in Adults With Congenital Heart Disease. Das BB, Young ML, Niu J, et al. The American Journal of Cardiology. 2019;123(11):1868-1873. doi:10.1016/j.amjcard.2019.02.053. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. Lu CW, Wang JK, Yang HL, Kovacs AH, et al; APPROACH‐IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.J Am Heart Assoc. 2022 May 3;11(9):e024993. doi: 10.1161/JAHA.121.024993. Epub 2022 Apr 26. Pharmacological Therapy in Adult Congenital Heart Disease: Growing Need, Yet Limited Evidence. Brida M, Diller GP, Nashat H, et al. European Heart Journal. 2019;40(13):1049-1056. doi:10.1093/eurheartj/ehy480. Advanced Heart Failure Therapies For Adults With Congenital Heart Disease: JACC State-of-the-Art Review. Givertz MM, DeFilippis EM, Landzberg MJ, et al. Journal of the American College of Cardiology. 2019;74(18):2295-2312.doi:10.1016/j.jacc.2019.09.004. A Review of Heart Transplantation for Adults With Congenital Heart Disease. McMahon A, McNamara J, Griffin M. Journal of Cardiothoracic and Vascular Anesthesia. 2021;35(3):752-762. doi:10.1053/j.jvca.2020.07.027. Heart Failure in Adult Congenital Heart Disease: From Advanced Therapies to End-of-Life Care. Crossland DS, Van De Bruaene A, Silversides CK, Hickey EJ, Roche SL. The Canadian Journal of Cardiology. 2019;35(12):1723-1739. doi:10.1016/j.cjca.2019.07.626. This 2025 HFA Cardio Talk podcast series is supported by Bayer AG in the form of an unrestricted financial support. The discussion has not been influenced in any way by its sponsor.
Navigating Autism and End of Life: A Conversation with Dr. Caroline EltonIn this episode of The Girl Doc Survival Guide, host Christine invites back psychologist Dr. Caroline Elton, who has extensive experience supporting doctors' emotional wellbeing. Dr. Elton discusses her new book, Looking After: A Portrait of My Autistic Brother, and touches on end-of-life care.00:00 Introduction and Guest Welcome00:59 Discussing 'Looking After: Portrait of My Autistic Brother'01:22 Lionel's Early Life and Autism Diagnosis02:51 Mother Blaming and Historical Context05:09 Lionel's Leukemia Diagnosis and End of Life Care05:57 Challenges of Communicating About Death11:42 Autism Hospital Passport and Caregiving13:03 Reflections on Lionel's Life and Impact16:42 Final Thoughts on End of Life Care for Autistic Individuals
Andrea Deerheart, PhD—affectionately known as Deerheart—is a deeply compassionate visionary, healer, and advocate for conscious living and dying. As the founder of The HeartWay, a nonprofit foundation dedicated to embracing life by honoring death, she has devoted her life's work to easing the fear, suffering, and isolation that often accompany life's final transitions for the person and their families. As an author, teacher, life and death doula, and healer, Deerheart has dedicated her life to illuminating the path of conscious living and dying. Her writings, including Yoga Nidra: Graceful Transitions, Elli's Ride: Death Beyond Imagination, My Life My Death: My Life, My Death: A Sacred Guide to Planning, Legacy, and Peace, and the essential textbooks Principles of End-of-Life Care and Clinical Skills for End-of-Life, serve as beacons of knowledge and support for those on this sacred journey. You can find her and all the offerings of The Heartway here: www.theheartway.org Website: www.heatherthomson.com Social Media: IG: https://www.instagram.com/iamheathert/ You Tube: https://youtube.com/@iamheathert?si=ZvI9l0bhLfTR-qdo SPONSOR: MIMIO - Go to www.mimiohealth.com and use code HEATHER for 20% off your first order. Trust me, your future self will thank you. Learn more about your ad choices. Visit megaphone.fm/adchoices
Learn about a new book that addresses challenges faced by patients, providers, and caregivers at the end of life. My guest Cathy Yuhas is an RN and certified end-of-life doula who founded Dying Matters, LLC to advocate for conscious, compassionate end-of-life care. She is also the author of a new book: Walking Each Other Home:… Continue reading Ep. 524 Meeting the Challenges of End-of-Life Care with Cathy Yuhas RN
This week on Money Box Live we're looking at a topic that's very difficult but very important. What happens to your finances when the worst happens? How do you plan for your financial future when you've been diagnosed with a life-limiting or terminal illness? It's a question a group of MPs have been asking too. The All Party Parliamentary Group for Hospice and End of Life Care has found that people can face real hardship because they often have extra costs combined with a loss of earnings.Felicity Hannah is joined by Jamie Thunder, senior policy manager for financial security at the end of life charity Marie Curie and Nina Sperring, partner at Price, Slater, Gawne solicitors. She's also a member of STEP, the Society of Trust and Estate Practitioners which specialises in estates and wills. We also hear from Nathaniel Dye, a music teacher who was diagnosed with incurable bowel cancer at 36.Presenter: Felicity Hannah Producers: James Graham and Helen Ledwick Editor: Jess Quayle Senior News Editor: Sara Wadeson(First broadcast at 3pm Wednesday 17th September 2025)
This episode features Professor Sheila Payne (International Observatory on End of Life Care, Health Innovation One, Lancaster University, Lancaster, UK). What is already known about the topic? Advance care planning is considered good practice in palliative and end of life care and is promoted in health policy. There is no standardised approach to advance care planning in practice. There is recent debate about the utility and effectiveness of advance care planning in palliative care contexts. What this paper adds Most patients did not recognise the concept of advance care planning and did not welcome conversations with health care providers about future planning despite many participants having done this prior to interview. Patients with treatable but not curable cancer live with uncertainty of prognosis in the context of ongoing and new treatment options, making advance care planning problematic. Most patients preferred to discuss future care, social and funeral arrangements within families, if at all. Implications for practice, theory or policy The principles of future care planning can be introduced early in treatment without making them specifically about planning for the last days of life. Healthcare professionals in cancer and palliative care may need to ensure that future care planning discussions evolve over time, with decisions made being routinely revisited in light of changes in disease progression, treatment options and prognosis. Future policy guidance on advance care planning needs to take account of the changing treatment landscape for those with treatable but not curable cancer. Full paper available from: https://journals.sagepub.com/doi/full/10.1177/02692163251363752 If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu: a.nwosu@lancaster.ac.uk
Leah Adams currently serves as Vice President of Engagement at Houston’s Institute for Spirituality and Health. Her path to the Institute began decades ago and her journey is one of resilience and connection—turning grief into a mission to help others heal. Since 1955, the Institute has brought spirituality into healthcare, education, and community programs, offering support groups, professional training, and resources that nurture mind, body, and spirit. In this episode, Dorothy Gibbons and Leah explore the power of compassionate care and belonging in times of need. Learn more about The Institute for Spirituality and Health here. Support The Rose HERE. Subscribe to Let’s Talk About Your Breasts on Apple Podcasts, Spotify, iHeart, and wherever you get your podcasts. Key Questions Answered 1. What is the Institute for Spirituality and Health, and what is Leah Adams’s role there? 2. How long has the Institute for Spirituality and Health been around, and how did it get started? 3. How did the Institute innovate chaplaincy in healthcare? 4. How did Leah Adams’s personal journey lead her to the Institute? 5. How did Leah process her brother’s tragic death, and how did it influence her spiritual journey? 6. What’s the difference between spirituality and religion, according to the Institute? 7. Why is a spiritual practice or community important, especially in unsettled times? 8. What kinds of support groups and programs does the Institute offer, and who are they for? 9. How does the Institute promote spiritual presence and connection in healthcare education? 10. What are the main centers of excellence within the Institute and what do they focus on? Timestamped Overview 00:00 Journey from Tragedy to Private Equity 03:48 Finding Unity in Global Diversity 09:48 Embracing Spirituality at Work 11:21 Spiritual Community for Resilience 15:23 Promoting Spirituality in Medicine 16:51 The Power of Presence 21:33 Community and Belonging in Houston 24:40 End-of-Life Care and Support 29:21 Connecting Through Mission-Driven Leadership 31:18 Weekly Support & Wellness GroupsSee omnystudio.com/listener for privacy information.
THE GOOD DEATH VIRTUAL BOOK TOUR: Suzanne B. O'Brien RN in Conversation with Darren Evans What if technology could help us preserve the true essence of a life well-lived? In this episode, Darren Evans, creator of After Cloud, shares how his digital platform captures personal histories and legacies, especially in end-of-life care. Through powerful stories, like a hospice patient leaving video messages, Darren shows how digital storytelling bridges generations, deepens compassion, and empowers families to carry forward wisdom and traditions. We also explore After Cloud's unique approach to transforming memorial spaces into interactive experiences, allowing visitors to engage with the rich narratives of the deceased. From glow-in-the-dark QR codes on headstones to memorial benches that speak of lives once lived. Darren illustrates how technology can aid in grief transition and preserve legacies. This conversation invites us to reflect on what it means to have a “good death,” reminding us of the importance of cherishing everyday moments, being prepared, and leaving behind a legacy that continues to inspire. (00:04) Digital Life Storytelling for End-of-Life Care (14:08) Connecting Generations Through Digital Storytelling (21:35) The Future of Legacy Storytelling (27:49) Exploring a Good Death Through Legacy Join the waitlist for our Fall Live Semester Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE Or visit our website here! GET THE GOOD DEATH BOOK Here Meet our guest: Darren Evans CEO & Founder, After Cloud LinkedIn: Darren Evans Website: www.aftercloud.co.uk Please Share! Know someone who is a caregiver, healthcare worker, or spiritual seeker? Share this episode and invite them to join this sacred and supportive experience. Listen & Subscribe: Available on Apple Podcasts • Spotify • Google Podcasts • YouTube JOIN MY FREE TRAINING AND MEMBERSHIP SITE This is a community-supported group hosted by Suzanne B. O'Brien RN, founder of the International Doulagivers Institute for training those who want to be professional End of Life Doulas, Doulagiver Practitioners and for anyone wanting more EOL education Join Here: 4491664174178077 ⚑ SUBSCRIBE TO MY CHANNEL ⚑ If you want to do great things you need to have a great environment. Create the life you want by surrounding yourself with positivity and watching daily. Click here to subscribe! ツ CONNECT WITH ME ツ Leave a comment on this video and it'll get a response. Or you can connect with me on different social platforms too: Instagram Facebook TikTok Website Podcast ELEpisode List #deathdoula #deathdoultraining #dyingwell #death #life #deatheducation #doulagivers #hospice #hospicecare #hospicenurse #deathdoula #soulmidwife #deathmidwife #endoflifeplanning #healthcareproxy #funerals #fearofdeath #endoflifedoula #thegooddeath #hospice #grief #deathawareness #birth #endoflife #deathpositivity #consciousdying #dying #advanceplanning #deathpositive #gooddeath #consciousliving #endoflifedirective #palliativecare #advancedirective #livefully #suzannebobrien. #lifecafe #consciousness #awarenes
In a compelling virtual roundtable hosted by Steve Gurney on the Positive Aging Community platform, three seasoned Aging Life Care Managers (ALCMs) shared their expertise and personal journeys on September 10, 2025. Featuring Samantha McDaniel of Aging Individualized (Maryland), Leslie Mason of Seabury Care Management (DC metro area), and Annette Murphy of Spring Point at Home (New Jersey), the discussion offered a deep dive into the holistic role of ALCMs, addressing real-world challenges like dementia care, emergency preparedness, and family dynamics. Spanning 14 pages of transcribed insights, this session provided actionable strategies for families and professionals alike.The panelists' diverse backgrounds underscored the adaptability of ALCMs. Samantha McDaniel, a solo practitioner with over 10 years in senior living, founded Aging Individualized to deliver personalized care across Maryland and virtually. Her shift from community roles to home-based support was driven by a desire to "impact change" directly where clients live. Leslie Mason, a clinical manager at Seabury since 2004, transitioned from teaching and pediatric social work after a chance hospital encounter with a care manager, now serving older and disabled adults in the DC region. Annette Murphy, leading Spring Point's home division, brought a geriatrics-focused career from therapy and social work, joining the field after mentorship from a national ALCM, seeking freedom to follow clients' needs.Annette Murphy clarified the ALCM role, noting that the term “Aging Life Care” is trademarked by the Aging Life Care Association (ALCA), requiring vetted members to adhere to a strict code of ethics. With backgrounds in social work, nursing, gerontology, or recreation therapy, ALCMs assess the “whole person”—physical, emotional, social, and environmental needs—crafting tailored care plans. Gurney likened them to “wedding planners,” “quarterbacks,” or “wing people” for aging, emphasizing their role in resource navigation and mediation. Leslie Mason added that ALCMs are “big thinkers” who dive into details to enhance quality of life, while the ALCA's eight knowledge areas (e.g., health, housing, legal) guide their practice. Families can find local ALCMs via the ALCA website by zip code.Dementia Care and Initiating Change (Samantha McDaniel): McDaniel noted a rise in calls from families struggling to start conversations with loved ones with dementia. In one case, a woman with mid-stage dementia, isolated and calling ambulances frequently, shifted to assisted living after McDaniel's questions about quality of life—“What do you wake up for?”—led to a self-initiated respite stay where she thrived. She emphasized ALCMs as mediators, helping families navigate resistance objectively.Young Onset Dementia and Dual Needs (Leslie Mason): Mason highlighted the growing challenge of young onset dementia (e.g., Alzheimer's under 65), where resources for older or middle-aged adults fall short. Seabury's information line addresses this “heartbreaking” gap, while she also supports parents of adult children with disabilities facing physical limits, requiring dual-age management.Emergency Preparedness as a Gift (Annette Murphy): Murphy introduced a crisis planning kit, mandated for Spring Point clients, covering evacuation plans, water shutoffs, and “go bags” with emergency contacts. Inspired by her FEMA experience, she framed it as a “roadmap” for solo elders and out-of-state families, addressing power outages and snowstorms. This initiative, expandable to all ALCMs, offers peace of mind.Handling Complex Family Dynamics (Tina's Case): Tina's question about a verbally threatening mother, despite a social worker's involvement, led to suggestions: home-visiting physicians for documentation, psychiatric crisis intervention if needed, and building a professional network. The panel urged assessing competence and risk, offering post-call consultations.
Send us a text! We love hearing from listeners. If you'd like a response, please include your email. Join Jennie and Dianne on The Ordinary Extraordinary Cemetery podcast as they welcome Amy Shea, author of the groundbreaking book 'Too Poor to Die: The Hidden Realities of Dying in the Margins.' Amy's work sheds light on the often-hidden truths of death and dying among those experiencing chronic homelessness or who end up indigent or unclaimed at the end of life.In this powerful conversation, Amy shares her insights on the intersection of poverty, dignity, and death, drawing on her research and personal experiences. From the importance of witnessing and activism to the need for greater awareness and advocacy, Amy's book reminds us all that "Death may be the great equalizer, but not all deaths are created equal."'Too Poor to Die: The Hidden Realities of Dying in the Margins' will be available for purchase nearly everywhere books are sold beginning Tuesday, September 9, 2025, but you can pre-order it here: https://amysshea.com/book-ordering/To learn more about The INN Between: End-of-Life Care for the Homeless, visit their website: https://tibhospice.org/Need an Ordinary Extraordinary Cemetery Podcast tee, hoodie or mug? Find all our taphophile-fun much here: https://oecemetery.etsy.com
An engaging and informative live & interactive session where Aging Life Care Managers® come together to share their knowledge and best practices. Marie Woodard (Marie@independentyou.net)Megan Descutner (megan@goldenpondvirginia.com)Soni Pahade (soni@agingadvisors.com)Summary of the Chat Transcript (see full transcript here):The discussion centers around Aging Life Care™ (also known as geriatric care management), its role, certifications, and practical considerations for families and professionals caring for aging adults or those with disabilities. Key themes include:Resources MentionedInternational Commission on Health Care Certification (ICHCC)Website: www.ichcc.orgProvides Certified Geriatric Care Manager (CGCM) credential, though not ALCA-recognized.Booklet by Soni PahadeDetails and questions for interviewing Aging Life Care Managers (available through Soni—no direct upload provided in chat).Retirement Living Sourcebook ArticleUnderstand Aging Life Care™ – Guides and advocates for familiesWebsite: www.retirementlivingsourcebook.com (link noted as non-functional in chat).Legal Advice:Any qualified estate planning attorney can update wills and POAs, no need to return to the original drafting attorney.The importance of elder law attorneys for legal matters related to aging.HandyPro (Ali Soltani contact)Website: handyprowdc.comOffers free consultation services in VA, MD, and DC area.
THE GOOD DEATH VIRTUAL BOOK TOUR: Suzanne B. O'Brien RN in Conversation with Dr. Karen Wyatt. Renowned expert Dr. Karen Wyatt joins us for a profound conversation on end-of-life care, sharing lessons learned from her work with hospice patients and urging us to embrace the inevitability of death with awareness and gratitude. We delve into the missed opportunities for meaningful dialogue within medical systems, the tension between profit-driven hospice models and the deeply personal nature of dying, and the need for better community training to prepare families for what hospice truly provides. Drawing on Dr. Ira Byock's white paper, we examine solutions to systemic issues like fraud, inadequate staffing, and the disconnect between corporate priorities and compassionate care. Together, we explore how compassion, forgiveness, and holistic practices can transform how we care for the dying, reminding us that presence, understanding, and the body's natural capacity to heal deserve a central place in healthcare's future. (00:02) Transforming End-of-Life Care in America (10:03) Revamping End-of-Life Care System (13:57) Improving End-of-Life Care System (24:55) Embracing Healing Through Compassion and Forgiveness (35:31) Exploring End-of-Life Care Perspectives Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE Or visit our website here! GET THE GOOD DEATH BOOK Here Meet our guest: Dr. Karen Wyatt Founder, End-of-Life University Best-selling Author Website: eulopodcast.com FB: End-of-Life University Please Share! Know someone who is a caregiver, healthcare worker, or spiritual seeker? Share this episode and invite them to join this sacred and supportive experience. Listen & Subscribe: Available on Apple Podcasts • Spotify • Google Podcasts • YouTube JOIN MY FREE TRAINING AND MEMBERSHIP SITE This is a community-supported group hosted by Suzanne B. O'Brien RN, founder of the International Doulagivers Institute for training those who want to be professional End of Life Doulas, Doulagiver Practitioners and for anyone wanting more EOL education Join Here: 4491664174178077 ⚑ SUBSCRIBE TO MY CHANNEL ⚑ If you want to do great things you need to have a great environment. Create the life you want by surrounding yourself with positivity and watching daily. Click here to subscribe! ツ CONNECT WITH ME ツ Leave a comment on this video and it'll get a response. Or you can connect with me on different social platforms too: Instagram Facebook TikTok Website Podcast #deathdoula #deathdoultraining #dyingwell #death #life #deatheducation #doulagivers #hospice #hospicecare #hospicenurse #deathdoula #soulmidwife #deathmidwife #endoflifeplanning #healthcareproxy #funerals #fearofdeath #endoflifedoula #thegooddeath #hospice #grief #deathawareness #birth #endoflife #deathpositivity #consciousdying #dying #advanceplanning #deathpositive #gooddeath #consciousliving #endoflifedirective #palliativecare #advancedirective #livefully #suzannebobrien. #lifecafe #consciousness #awarenes
The conversation delves into the complexities of end of life care in combat settings, emphasizing the need for palliative care discussions among military medical personnel. It highlights the challenges faced in recognizing non-survivable injuries, the decision-making process in resuscitation efforts, and the importance of compassionate care for both patients and their loved ones. The discussion also touches on the role of opioids in managing pain and anxiety during end of life care, advocating for a shift in focus from aggressive treatment to comfort and dignity for the patient.TakeawaysEnd of life care is a critical conversation in military medicine.Palliative care is often overlooked in combat settings.Recognizing non-survivable injuries is essential for effective care.Decision-making in resuscitation requires courage and leadership.Compassionate care benefits both the patient and their loved ones.Opioids play a significant role in managing pain in palliative care.Transitioning to palliative care is a necessary step in certain cases.Medical providers must educate themselves on end of life care.Patient autonomy should be respected in decision-making.Compassionate care can alleviate the emotional burden on medical providers.Chapters00:00 Introduction to End of Life Care in Combat02:34 The Challenges of Palliative Care in Military Settings09:57 Recognizing Non-Survivable Injuries19:08 Decision-Making in Resuscitation Efforts35:49 Transitioning to Palliative Care43:03 The Role of Opioids in Palliative Care53:18 Compassionate Care and Patient AutonomyThank you to Delta Development Team for in part, sponsoring this podcast.deltadevteam.comFor more content, go to www.prolongedfieldcare.orgConsider supporting us: patreon.com/ProlongedFieldCareCollective or www.lobocoffeeco.com/product-page/prolonged-field-care
In Part 3 of The Dying Patient: Palliative and End of Life Care, we delve into the complexities ambulance clinicians face when supporting patients in their final days and hours. Often the first to recognise when someone is dying, paramedics work within a system where community engagement may be limited, making their role crucial in identifying signs such as terminal agitation, unconsciousness, and other common symptoms. The episode discusses the importance of anticipatory medications and proactive advance care planning , especially in situations involving carer breakdown or when patients change their minds about where they wish to die.We explore why ambulance services are frequently called during end-of-life stages, whether due to uncontrolled symptoms, sudden deterioration, or emotional distress within families. Paramedics not only offer symptom relief, both pharmacological and non-pharmacological, but also provide vital emotional support to those navigating grief, denial, or fear. Challenges include differentiating between reversible conditions and active dying, managing care when anticipatory medications are unavailable, and coordinating with wider healthcare teams.Breaking bad news is another critical area discussed, with a focus on using frameworks such as Ask-Tell-Ask and adapting communication to the emotional needs of the moment. Lastly, the episode reflects on cultural considerations in a city as diverse as London. From language barriers and different expressions of grief to religious rituals and care after death, ambulance clinicians must remain adaptable and compassionate, ensuring that care is respectful, inclusive, and sensitive to the needs of every individual and their family. Some of the links to information mentioned in the episode can be found here: These are some of the resources mentioned in the episode:Breaking Bad News: https://www.sth.nhs.uk/clientfiles/File/Breaking%20bad%20news%20Reflection%20on%20the%20process.pdfGood Grief - understanding the grief journey in more detail: https://good-grief.org/resources/Hospice UK, an excellent place for further resources: https://www.hospiceuk.org/our-campaigns/dying-matters/dying-matters-awareness-weekUK National Guidelines on Diabetes and End of Life Care: https://www.diabetes.org.uk/sites/default/files/2025-03/EoL_TREND_2024_v11-1.pdfThis episode is sponsored by PAX: The gold standard in emergency response bags.When you're working under pressure, your kit needs to be dependable, tough, and intuitive. That's exactly what you get with PAX. Every bag is handcrafted by expert tailors who understand the demands of pre-hospital care. From the high-tech, skin-friendly, and environmentally responsible materials to the cutting-edge welding process that reduces seams and makes cleaning easier, PAX puts performance first. They've partnered with 3M to perfect reflective surfaces for better visibility, and the bright grey interior makes finding gear fast and effortless, even in low light. With over 200 designs, PAX bags are made to suit your role, needs, and environment. And thanks to their modular system, many bags work seamlessly together, no matter the setup.PAX doesn't chase trends. Their designs stay consistent, so once you know one, you know them all. And if your bag ever takes a beating? Their in-house repair team will bring it back to life.PAX – built to perform, made to last.Learn more at pax-bags.com
EVEN MORE about this episode!What if facing death could actually teach us how to live more fully? In this powerful episode, we dive into the heartbreaking yet inspiring story of Andreas, a young boy battling terminal cancer—and the legal, medical, and spiritual obstacles his family endured while honoring his end-of-life wishes.Together with spiritual advocate Donna Corso, we expose the cold realities many parents face when choosing alternative or holistic treatments, and how compassion often gets lost in the clinical system. From international medical journeys to legal showdowns, Andreas' story shines a light on the deep flaws—and surprising beauty—of how we approach death.We also explore the spiritual side of dying: grief rituals from around the world, lessons from the Tibetan Book of the Dead, and how love, not fear, can guide us through the unknown. Whether you're navigating loss or simply curious about what lies beyond, this episode is a moving exploration of life, death, and the soul's eternal journey.Guest Biography:Donna Corso is an author, public speaker, interfaith/metaphysical minister, Reiki healer and Dream Builder life coach. Her book, When the Wind Chimes Chime: Ending the Greatest Fear of All, encourages us to release our fear of death/dying. She lives in Waynesville, NC and has been personal assistant to Neale Donald Walsch, best-selling author of Conversations with God, for 23 years.Episode Chapters:(0:00:00) - Conversations on Death and Healing(0:10:45) - Controversy in End-of-Life Care(0:26:10) - Grief Rituals and Acceptance of Death(0:37:20) - Spiritual Perspectives on Death and Transition(0:51:05) - Ascension and Fifth Dimension Explanations(0:59:06) - Sending Love and Gratitude➡️Subscribe to Ask Julie Ryan YouTube➡️Subscribe to Ask Julie Ryan Español YouTube➡️Subscribe to Ask Julie Ryan Português YouTube➡️Subscribe to Ask Julie Ryan Deutsch YouTube➡️Subscribe to Ask Julie Ryan Français YouTube✏️Ask Julie a Question!
Join us for an engaging and informative live & interactive session where Aging Life Care Managers® come together to share their knowledge and best practices.Elyse Weber-SacksConnie Rosenberg & AssociatesCatherine VergaraCareForHeidi L. GarvisCaring ConsiderationsWatch the video recording and review chat, etc. https://www.retirementlivingsourcebook.com/videos/aging-life-care-manager-roundtable-discussion-8041
156 Understanding Hospice Care with Hospital Chaplain Janice Willett In this episode of Hospice Explained, host Marie Betcher, RN, interviews Janice Willett, a hospital spiritual care chaplain and author of several books on grief and end-of-life preparation. They discuss the role of chaplains in providing emotional and spiritual support to patients and families, the importance of creating a sacred space for sharing emotions, and common challenges faced by caregivers. Janice shares personal stories of her experiences in hospital chaplaincy, including the significance of spiritual guidance during end-of-life care, patients' varied responses to dying, and inspirational stories that highlight the human spirit's capacity for acceptance and peace. The episode concludes with information on Janice's works and upcoming book signings. 00:00 Introduction to Hospice Explained 00:49 Understanding Pressure Injuries and Cloud 9 Care 01:25 Interview with Janice Willett: Spiritual Care and Hospice 02:13 Role and Responsibilities of a Hospital Chaplain 03:37 Navigating Family Dynamics in Hospice Care 04:58 Personal Stories and Experiences 08:26 The Importance of Comfort and Acceptance in End-of-Life Care 14:41 Inspirational Stories and Final Thoughts 20:22 Conclusion and How to Connect with Janice Willett https://jiwillett.com/meet-j-i-willett/ Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast. Maire introduces a partnership with Suzanne Mayer RN inventor of the cloud9caresystem.com, When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.
With the cost of care continuing to rise, we learn more about how much you should save, and the huge discrepancy in prices across the UK.In this episode we also hear how you can plan your finances with care in mind, and the things you can do to maximise your savings plan.Read more about care home costs & sign up to our free weekly Money newsletter Click here to send us an email Become a Which? Money member Get 50% off a Which? membership
A comprehensive, personalized life care plan can be a game-changer in the courtroom, whether you are advocating for fair compensation or challenging excessive claims. Senior Client Success Advisor Adam Bloomberg sits down with Certified Life Care Planner and burn injury specialist Jennifer Wall, PA-C, CLCP, to discuss effective strategies for presenting a life care plan or challenging one. They explore how life care plans can enhance credibility, drive optimal case outcomes, and elevate your trial strategy. With more than 20 years of experience in catastrophic burn injury and trauma care, Jennifer has worked extensively with both plaintiff and defense attorneys, developing personalized, evidence-based life care plans that address the full spectrum of a client's long-term needs. IMS has delivered strategic litigation consulting and expert witness services to leading global law firms and Fortune 500 companies for more than 30 years, in more than 45,000 cases. IMS consultants become an extension of your legal team from pre-suit investigation services to discovery and then on to arbitration and trial. Learn more at imslegal.com.
Learn why it’s important to be aware of the needs of people with disabilities (and their families) when providing end-of-life and bereavement care. My guest Carrie Batt is an end-of-life doula and the founder of SEOL Care which offers disability-competent end-of-life care, support and planning for people with a disability and their families. She advocates… Continue reading Ep. 501 Disability-Informed End-of-Life Care with Carrie Batt
As a bonus episode, to coincide with Dying Matters Week we bring you an insightful conversation with Dr Tim Wright (GP), and Lucy (Paediatric Sister), members of Rachel's family who both work in the local children's hospice. This beautiful, tender and raw conversation has the reality of both sides of the bed. Providing care for families of children who have life-limiting conditions and at end of life, as well as loving someone with a life-limiting condition. Dying Matters is a campaign run by the charity, Hospice UK. Hospice UK work with organisations, decision makers and the public to make things better for people who are dying or grieving. The hardest conversations are often the most important and here we talk about some of the jargon you might come across, having a take-away at a hospice and the ‘brutiful' (beautiful and brutal) reality of fighting for a good death. The tech wasn't to the standard we would typically aim for but the conversation was real and raw. CONTENT WARNING We realise that these will be tricky topics for some, so please be aware this episode will contain discussions around Death, Dying, End of Life Care and DNACPR. You can find further support and help at: Hospice UK; and Together for Short Lives Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We'd love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick', then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We're so happy that The Skies We're Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here… Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
Lynn Monet is a world-renowned author, paranormal consultant, and lecturer specializing in hauntings, dying, death, and the afterlife. An empath with the ability to perceive interdimensional frequencies, she has been a nurse for over 20 years, focusing on end-of-life care, management, and geriatrics. Lynn holds a degree in biological science and has authored several books, including Omnipresent, Omnipresent: What Happened Next, and Colors of Heaven: Beginnings Never End. Her work offers profound insights into the spiritual dimensions of our existence.
Learn how doulas and chaplains collaborate to provide end-of-life care in a skilled nursing facility. My guests for this episode are Jane Whitlock and Liza Neal who both work with the Full Circle Care Program in a skilled nursing facility to support residents and their loved ones during end-of-life journeys. Jane is an end-of-life doula… Continue reading Ep. 497 Integrating Doulas and Chaplains in End-of-Life Care with Jane Whitlock and Liza Neal
Understanding Hospice Care: An Interview with Scott Zimmerman In episode 144 of 'Hospice Explained,' host Marie Betcher BSN, RN a former hospice nurse, interviews Scott Zimmerman, a trusted advisor in life insurance and long-term care. Scott shares his personal experience with hospice care for his father, who had COPD, and discusses the importance of hospice in providing comfort during the end-of-life season. The episode delves into Scott's background, his professional insights, and his positive views on the significance of hospice care. Scott also shares his mother's perspective and talks about his work in life insurance and long-term care, offering his contact information for those interested. 00:00 Introduction to Hospice Explained 00:49 Meet Scott Zimmerman: Life Insurance and Long-Term Care Expert 02:32 Scott's Personal Hospice Experience 06:46 Understanding Hospice Care and Medications 08:20 Reflections on Hospice and End-of-Life Care 15:33 Scott's Professional Insights and Contact Information 19:39 Conclusion and Call to Action https://linktr.ee/scottzimmerman Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one. Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast. In addition you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/ Affilitate for the Caregiving Years Training Academy: https://www.careyearsacademy.com/ref/1096/ Affiliate for DNA is Love listeners also get a 5% discount!! https://dnaislove.com/?coupon=hospiceexplained5 The Death Deck and the E*O*L deck: https://thedeathdeck.goaffpro.com/ Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com
Understanding End-of-Life Care with Barbara Karnes RN In episode 142 of Hospice Explained, host Marie Betcher, RN, discusses crucial aspects of end-of-life care with renowned hospice educator Barbara Karnes RN. The conversation covers Barbara's background, her influential booklet 'Gone From My Sight,' and the importance of end-of-life education. They address common misconceptions about the dying process perpetuated by media, emphasizing the need for accurate knowledge to transform a potentially frightening experience into a sacred memory. Barbara also delves into practical topics such as the appropriate use of food and fluids at the end of life, the natural stages of dying, terminal agitation, and the critical role of comfort in hospice care. This episode provides valuable insights for caregivers, healthcare professionals, and anyone seeking a deeper understanding of the end-of-life journey. 00:00 Introduction to Hospice Explained 00:50 Meet Barbara Karnes: End of Life Educator 02:53 Understanding End of Life Education 05:24 Personal Experiences with End of Life 07:19 Discussing Barbara's Book: Always Offer, Never Force 11:43 The Role of IV Fluids at End of Life 12:59 The Importance of Comfort in End of Life Care 14:53 Feeding Tubes and End of Life Nutrition 18:07 Barbara's Booklets: A Guide for Caregivers 23:21 Terminal Agitation and Restlessness 27:08 Conclusion and Resources https://bkbooks.com/ Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one. Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast. In addition you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/ Affilitate for the Caregiving Years Training Academy: https://www.careyearsacademy.com/ref/1096/ Affiliate for DNA is Love listeners also get a 5% discount!! https://dnaislove.com/?coupon=hospiceexplained5 The Death Deck and the E*O*L deck: https://thedeathdeck.goaffpro.com/ Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com
141 Navigating Hospice Care: Insights from Helen Bauer BSN, RN CHPN In this episode of 'Hospice Explained,' host Marie Betcher RN interviews Helen Bauer BSN, RN, CHPN an experienced hospice nurse and founder of Hospice Navigation Services. Together, they explore the critical perspectives caregivers gain through personal experience, the importance of interdisciplinary hospice teams, and demystify underutilized services like chaplains and social workers. Helen also shares details about her business, offering educational sessions to navigate end-of-life care, and provides a poignant story illustrating the value of open conversations about death. Lastly, Helen discusses the human side of hospice care, emphasizing the need for understanding and support for both caregivers and patients. https://podcasts.apple.com/us/podcast/episode-000-introduction-to-the-heart-of-hospice/id1139992713?i=1000373575739 https://thewholecarenetwork.com/heart-of-hospice/ 00:00 Introduction to Hospice Explained 00:47 Meet Helen Bower: A Passion for Hospice Care 02:07 The Caregiver's Perspective 03:34 Navigating Family Dynamics in Caregiving 07:41 The Challenges of Solo Caregiving 09:06 Helen's Hospice Navigation Services 13:11 The Role of Chaplains and Social Workers in Hospice 16:31 Changing Perspectives on End-of-Life Care 19:32 Inspirational Stories from Hospice Care 21:50 How to Reach Helen Bower 22:44 Conclusion and Call to Action Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one. Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast. In addition you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/ Affilitate for the Caregiving Years Training Academy: https://www.careyearsacademy.com/ref/1096/ Affiliate for DNA is Love listeners also get a 5% discount!! https://dnaislove.com/?coupon=hospiceexplained5 The Death Deck and the E*O*L deck: https://thedeathdeck.goaffpro.com/ Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com
Dr. Lorrie Hale was raised in the Chicago area as well as Kentucky. She earned her veterinary degree from the University of Illinois in 1995. Afterwards, she worked in two practices in the Chicago area.She then worked for twelve years in general practice in Louisiana before returning to teach clinical veterinary skills at the University of Illinois. She started her holistic education by completing her acupuncture training at Chi University in 2012.In 2016 she joined the faculty at Louisiana State University, starting a clinical skills program and expanding the Integrative Medicine and Rehabilitation Service in the Teaching Hospital. She completed her Master's in TCVM from Chi University in 2020, and also has certifications in Chinese Herbal Medicine, Food Therapy, Tui-Na, and Palliative and End of Life Care from Chi.In 2019, she became Service Chief at LSU. Dr. Hale is also a Charter Fellow of the American College of Veterinary Botanical Medicine and serves on the Board of Directors.Please enjoy this conversation with Dr. Lorrie Hale as we discuss her education, holistic training, and work as an Academic Integrative Educator and Practitioner.
Bernadette and Marie are thrilled to have Koshin Paley Ellison join us on the show. He is an author, Zen teacher, Jungian psychotherapist, leader in contemplative care, and co-founder of an educational non-profit called the New York Zen Center for Contemplative Care. Through its numerous educational programs, contemplative retreats, and Soto Zen Buddhist practices, the New York Zen Center touches thousands of lives every year. Koshin has appeared on dozens of podcasts and his work has been featured in the New York Times, PBS, CBS Sunday Morning and other media outlets. His books grounded in Buddhist wisdom and practice have all gained national attention including “Whole-hearted: Slow Down, Help Out, Wake Up”, “Untangled: Walking the Eightfold Path to Clarity, Courage and Compassion,” and “Awake at the Bedside: Contemplative Teachings on Palliative and End-of-Life Care”. You find all of Koshin's books on amazon.com.Learn more about Koshin at ZenCare.org and follow him on Instagram @KoshinPaleyEllison.Here are some other resources to learn more about Koshin and his work: Koshin's Books Foundations in Contemplative Care Contemplative Medicine Fellowship An Introduction to Zen Meditation (video series)
Unlock the secrets to navigating end-of-life care with empathy and clarity in our latest episode of the Ask a Death Doula podcast. Suzanne O'Brien invites you to explore the profound yet practical aspects of caring for loved ones in their final stages of life. From understanding advanced directives and dementia-specific care planning to addressing the emotional labyrinth of family dynamics, this episode is packed with insights to help you honor your loved ones' wishes and navigate these challenging conversations with confidence. Join us as we share heartfelt stories from caregivers and hospice professionals around the globe, highlighting the universal challenges and emotional tolls of end-of-life care. Discover strategies to prevent caregiver burnout and learn how to support both yourself and your loved ones through this journey. We'll guide you through practical self-care techniques and emphasize the importance of community and open communication in reducing family conflicts and ensuring everyone's needs are met. Through poignant storytelling and expert guidance, this episode offers a compassionate approach to understanding death as a sacred and natural part of life. We delve into the increasing prevalence of dementia and the vital importance of proactive care planning to prepare for an aging population. Whether you're a caregiver, family member, or simply curious about end-of-life care, this episode promises to empower you with the knowledge and support needed to embrace a "good death" for yourself and those you love. Join us, and transform your perspective on life and death with kindness, education, and support. Mark your calendars! On March 22nd, I'm hosting a private virtual event to celebrate "THE GOOD DEATH," and I want YOU to join me. Pre-order the book today, and you'll get exclusive access to a full day of training, conversation about what makes life an AMAZING journey. I will share my 5 pillar framework that I use every day, to create a life of fulfillment, joy and service- and you can too! I can't wait to share this journey with you. Grab your ticket here! We dive into: (00:01) End of Life Care and Decisions (06:17) Understanding Advanced Directives and Dementia (20:32) Family Caregiving for Elderly Relatives (24:25) Preventing Caregiver Burnout (36:52) Caregiver Self-Care and Regrets (50:36) Child Hospice Care and Burnout Prevention (59:01) Navigating Family Conflict in End-of-Life Care (01:08:23) Planning for End-of-Life Care (01:13:38) Navigating End-of-Life Care Challenges We want to hear from you!!! If you found this podcast helpful, Please Rate, Review, & Follow so we can reach more people. Links mentioned in this episode: Doulagivers Institute The NEXT Free Level 1 End of Life Doula Training Registration LINK Buy The Good Death Book 80-90% of a positive end of life depends on these two things: Knowing the basic skills on how to care for someone at the end of life and planning ahead - and BOTH Doulagivers Institute is giving you for FREE! Access them Below! Making your wishes known is one of the greatest gifts you can give to your loved ones. Download The Doulagivers 9 Choice Advance Directive now! It's FREE! More about what we do at Doulagivers Institute - Click here!
What does it take to ensure a "good death"? Join us as we explore this profound question with our esteemed guest, Susanna Bryan, a transformative figure in end-of-life care. Drawing from her rich experiences as a former hospice and oncology nurse, and founder of the Doula Givers Institute, Susanna offers enlightening insights into making the end-of-life experience more human-centered. Inspired by her volunteer work in Zimbabwe, she advocates for changes in the American system to focus on clarity, comfort, and dignity, and shares the nine essential questions that guide this process. Her journey underscores the importance of presence and a supportive community for those nearing life's end and provides a roadmap to align end-of-life experiences with personal values. This episode delves into the delicate task of discussing end-of-life wishes with loved ones, focusing on maintaining quality of life and ensuring wishes are respected. We recount the heartfelt story of Mary, who faced terminal cancer with grace and celebrated her life through a living funeral. Mary's journey is a testament to the power of prioritizing personal comfort and symptom management over medical interventions. We also explore the role of palliative care in enhancing quality of life, encouraging listeners to consider practical, physical, and emotional preparations for future decisions. Listeners are invited to consider their own end-of-life care preferences, from choosing a healthcare proxy to exploring environmentally friendly body disposition options. We highlight the significance of legal documents like the POLST form in ensuring wishes are followed and emphasize the value of clear communication with family. As we explore alternative end-of-life celebrations, such as body donation and living funerals, we encourage embracing personal choice to honor life and death. By empowering you with knowledge and confidence, this episode aims to make end-of-life planning a meaningful and sacred gift for both you and your loved ones. SIGN UP FOR THE "GOOD DEATH" SEMINAR SERIES on March 12th at 7pm ET - Click here The Good Death Seminar Series will be hosted LIVE on Zoom! Space is limited! Save your seat now! Mark your calendars! On March 22nd, I'm hosting a private virtual event to celebrate "THE GOOD DEATH," and I want YOU to join me. Pre-order the book today, and you'll get exclusive access to a full day of training, conversation about what makes life an AMAZING journey. I will share my 5 pillar framework that I use every day, to create a life of fulfillment, joy and service- and you can too! I can't wait to share this journey with you. Grab your ticket here! We dive into: (00:00) - Good Death Seminar Series (10:00) - End-of-Life Care and Planning Discussion" (20:11) - Quality of Life and Care Planning (25:48) - Personalized End-of-Life Care Preferences (36:23) - End-of-Life Care Planning Choices (46:52) - Home Funeral and Disposition Options (52:32) - Body Donation and End-of-Life Celebrations (59:50) - Ensuring Legal Medical Preferences We want to hear from you!!! If you found this podcast helpful, Please Rate, Review, & Follow so we can reach more people. Links mentioned in this episode: Doulagivers Institute The NEXT Free Level 1 End of Life Doula Training Registration LINK Buy The Good Death Book 80-90% of a positive end of life depends on these two things: Knowing the basic skills on how to care for someone at the end of life and planning ahead - and BOTH Doulagivers Institute is giving you for FREE! Access them Below! Making your wishes known is one of the greatest gifts you can give to your loved ones. Download The Doulagivers 9 Choice Advance Directive now! It's FREE! More about what we do at Doulagivers Institute - Click here!
ShownotesWhen we lose a loved one, it is often thought of as the end of their life and, therefore, the end of them being present in our lives. The pain and suffering that come along with the grief and sorrow tend to make us feel as though they are gone forever. But what if we changed the way we look at death? What if we take a different perspective by looking at it as a new beginning rather than the end? After all, if we truly believe death does not get the final word, we must maintain hope that in dying, our loved ones will be restored to their glory in Heaven, right?Our GuestSr. Maria of the Trinity was born in Oklahoma and grew up in Minnesota. Blessed with a wonderful Catholic family, she responded to God's call to consecrated life. She has degrees in Philosophy from the University of Dallas, Nursing from the University of San Francisco, and Hospice and Palliative Care from the University of Paris. Responding to a call within her call 12 years ago, she began the Gospel of Life Dwellings in Oklahoma and Texas to care for those in need at the end of their life. Now, as an emerging Franciscan ecclesial family, the Gospel of Life Disciples are beginning dwellings in Georgia and Guatemala. The members seek a deep prayer life and live the corporal and spiritual works of mercy with the elderly and terminally ill on their journey home to God.Links from the show A Birth Unto Hope: Reflections on the Gospel of Life at Death The nun who left France to create special homes for the elderly poor in the U.S. Gospel of Life Dwellings (GOLD) Intensive Caring: A Practical Handbook for Catholics about Serious Illness and End-of-Life Care by Natalie King, MDScripture The Gospel of the Good Shepherd, Matthew 18:12 Deuteronomy 26:55Prayer for :The deceased residents of G.O.L.D. and Brett**Since the recording of this episode, Brett has since passed. Our deepest condolences his beloved friends and family.Journaling Questions What touched you the most from this week's episode? Have you ever spent time with someone through their journey at the end of their life? How did it impact you? Have you ever experienced anticipatory grief? What is your mourning Glory?Be sure to check out our website, www.mourningglorypodcast.com. There you will find links to all of our episodes as well as resources to help you on your journey.
135 Death Essentials: Education and Empowerment for End-of-Life Care, Featuring Amy Hensley MSN, RN and Erin Putney MSN, RN In episode 135 of 'Hospice Explained,' host Marie Betcher RN continues her discussion with returning guests Amy Hensley and Erin Putney, both master's prepared end-of-life educators. They stress the importance of communicating end-of-life choices and normalizing conversations about death. They discuss their 'Death Essentials' workshop for nurses and 'Sips and Wishes' workshop for the general public, emphasizing education, emotional intelligence, and practical decision-making. They share personal and professional insights to highlight the emotional challenges families face during critical care situations and the importance of making informed, evidence-based decisions. The episode aims to provide valuable tools and resources for both healthcare professionals and individuals confronting end-of-life issues. 00:00 Introduction to Hospice Explained 00:39 Meet the Guests: Amy Hensley MSN, RN and Erin Putney MSN, RN 01:12 The Importance of End-of-Life Conversations 02:09 Understanding the Emotional Challenges 03:45 The Role of Nurses in End-of-Life Care 07:06 Personal Stories and Emotional Anchors 11:36 Educational Workshops and Resources 14:56 Contact Information and Future Plans 19:39 Conclusion and Final Thoughts https://beforethecasket.com/en-us/ https://www.sipsandwishesparty.com/ Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one. Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast. In addition you can donate to help support Hospice Explained at the Buy me a Coffee link https://www.buymeacoffee.com/Hospice Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/ Affilitate for the Caregiving Years Training Academy: https://www.careyearsacademy.com/ref/1096/ Affiliate for DNA is Love listeners also get a 5% discount!! https://dnaislove.com/?coupon=hospiceexplained5 The Death Deck and the E*O*L deck: https://thedeathdeck.goaffpro.com/ Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com
Unlock the secrets to a more peaceful and prepared end-of-life experience with insights from our latest session in the Good Death Seminar series. As a hospice and oncology nurse, I draw from my extensive experience to transform the fear and chaos surrounding death into an opportunity for growth and understanding. You'll learn how to have essential end-of-life conversations that not only honor loved ones but also teach us valuable lessons about truly living. Discover how the Good Death Movement is reshaping societal perceptions and inspiring a more meaningful appreciation for life. Our discussion delves into the importance of having advanced directive conversations with family and friends, ensuring that end-of-life wishes are respected and documented. Through poignant stories, such as that of Mrs. Murphy, we highlight the potential heartbreak and conflict that arise from avoiding these critical discussions. Learn about the role of certified end-of-life doulas and the significance of legal documents like advanced directives and the POLST form in making your wishes known and legally recognized. Join us as we explore advanced directives' profound impact on families and medical professionals, offering peace of mind and clear guidance for those difficult decisions. We emphasize the need for proactive communication and preparation to bridge gaps in care and prevent misunderstandings. By participating in our movement, you contribute to a cultural shift in how society views death, fostering conversations that lead to a more serene and dignified end-of-life journey for all. SIGN UP FOR THE "GOOD DEATH" SEMINAR SERIES on February 12th at 7pm ET - Click here The Good Death Seminar Series will be hosted LIVE on Zoom! Space is limited! Save your seat now! We dive into: (00:00) Good Death Seminar Series Introduction (06:22) The Importance of End-of-Life Planning (20:07) Family Advanced Directive Discussion Comfort Level (25:12) Advance Directive Importance and Preparation (31:06) Advanced Directive Benefits and Challenges (35:47) Advanced Directives and Legal Considerations (45:06) The Importance of the Pulse Form (57:04) Good Death Book Purchase Instructions (01:10:51) Good Death Book Bonuses and Certification (01:23:43) Initiating Conversations on End-of-Life Care (01:32:28) The Good Death Movement Conclusion We want to hear from you!!! If you found this podcast helpful, Please Rate, Review, & Follow so we can reach more people. Links mentioned in this episode: Doulagivers Institute The NEXT Free Level 1 End of Life Doula Training Registration LINK The NEXT Free Doulagivers Discovery Webinar Buy The Good Death Book 80-90% of a positive end of life depends on these two things: Knowing the basic skills on how to care for someone at the end of life and planning ahead - and BOTH Doulagivers Institute is giving you for FREE! Access them Below! Making your wishes known is one of the greatest gifts you can give to your loved ones. Download The Doulagivers 9 Choice Advance Directive now! It's FREE! More about what we do at Doulagivers Institute - Click here!
Today, Casey Stumpf, a NAMS certified nurse practitioner and dietitian, shares her journey into the world of hormonal health, particularly focusing on menopause and hormone replacement therapy. She discusses the misconceptions surrounding hormone therapy, the importance of understanding hormonal changes in women, and the benefits of testosterone therapy. Casey emphasizes the need for specialized care in managing menopause symptoms and the significance of early intervention with hormone therapy. The conversation also touches on the interconnectedness of diet, exercise, and hormonal balance, providing listeners with actionable insights to improve their health and well-being. As both a registered dietitian and a nurse practitioner, Casey offers a unique, integrative approach to healthcare that combines her expertise in nutrition with advanced clinical knowledge, allowing her to provide personalized care that addresses both the body and mind. Over the past 20 years, she's had the privilege of working in diverse healthcare settings, from the Emergency Department and Family Practice to End-of-Life Care. Her time as an end-of-life provider was especially formative, as it highlighted the critical importance of being proactive in our health and wellness long before we face serious illness or decline. It became clear to her how essential it is to prevent a "bad death" by investing in our health now—making the right choices, optimizing our well-being, and extending our healthspan, rather than merely focusing on lifespan. Her background as a dietitian has also given her a deep understanding of the powerful role nutrition plays in long-term health. She is passionate about helping her patients achieve sustainable weight loss, focusing on life-sustaining, nutrient-dense approaches rather than quick fixes or restrictive diets. This emphasis on balanced, mindful eating not only supports healthy weight management but also promotes overall vitality and helps to balance hormones, especially during life stages like menopause. Driven by her desire to help women live their best lives at every stage, she has pursued advanced education in menopause care, earning her Menopause Society Certification. This allows her to offer targeted care that integrates bioidentical hormone therapy with nutrition and lifestyle changes to help women navigate hormonal shifts, reclaim their energy, and feel their best. Ultimately, her goal is to bring her patients' spark back—to optimize their health, support their weight goals in a sustainable way, and empower them to live a vibrant, fulfilling life. She believes that true wellness is about being proactive today to prevent illness tomorrow, and she is dedicated to guiding her patients on this path every step of the way. Find Casey: website: www.theradiantwelltality.com Instagram: https://www.instagram.com/casey.stumpf.fnp/ *Please reach out to Casey for a copy of the Perimenopause Symptom Tracker Learn more about your ad choices. Visit megaphone.fm/adchoices
Today, Casey Stumpf, a NAMS certified nurse practitioner and dietitian, shares her journey into the world of hormonal health, particularly focusing on menopause and hormone replacement therapy. She discusses the misconceptions surrounding hormone therapy, the importance of understanding hormonal changes in women, and the benefits of testosterone therapy. Casey emphasizes the need for specialized care in managing menopause symptoms and the significance of early intervention with hormone therapy. The conversation also touches on the interconnectedness of diet, exercise, and hormonal balance, providing listeners with actionable insights to improve their health and well-being. As both a registered dietitian and a nurse practitioner, Casey offers a unique, integrative approach to healthcare that combines her expertise in nutrition with advanced clinical knowledge, allowing her to provide personalized care that addresses both the body and mind. Over the past 20 years, she's had the privilege of working in diverse healthcare settings, from the Emergency Department and Family Practice to End-of-Life Care. Her time as an end-of-life provider was especially formative, as it highlighted the critical importance of being proactive in our health and wellness long before we face serious illness or decline. It became clear to her how essential it is to prevent a "bad death" by investing in our health now—making the right choices, optimizing our well-being, and extending our healthspan, rather than merely focusing on lifespan. Her background as a dietitian has also given her a deep understanding of the powerful role nutrition plays in long-term health. She is passionate about helping her patients achieve sustainable weight loss, focusing on life-sustaining, nutrient-dense approaches rather than quick fixes or restrictive diets. This emphasis on balanced, mindful eating not only supports healthy weight management but also promotes overall vitality and helps to balance hormones, especially during life stages like menopause. Driven by her desire to help women live their best lives at every stage, she has pursued advanced education in menopause care, earning her Menopause Society Certification. This allows her to offer targeted care that integrates bioidentical hormone therapy with nutrition and lifestyle changes to help women navigate hormonal shifts, reclaim their energy, and feel their best. Ultimately, her goal is to bring her patients' spark back—to optimize their health, support their weight goals in a sustainable way, and empower them to live a vibrant, fulfilling life. She believes that true wellness is about being proactive today to prevent illness tomorrow, and she is dedicated to guiding her patients on this path every step of the way. Find Casey: website: www.theradiantwelltality.com Instagram: https://www.instagram.com/casey.stumpf.fnp/ *Please reach out to Casey for a copy of the Perimenopause Symptom Tracker Learn more about your ad choices. Visit megaphone.fm/adchoices
How prepared are you to support a loved one at the end of life? This is a question many avoid but is crucial for everyone to consider. In the Good Death Seminar Series, we equip you with the knowledge and confidence to navigate the journey of end-of-life care. We begin by sharing personal stories that illustrate the transformative power of being educated and empowered in this role. Together, we'll explore the history and purpose of hospice care, the impact of Medicare, and critical questions you should ask when selecting a hospice provider. Our goal is to make a meaningful difference, even if it helps just one person find peace and positivity in challenging times. As we continue, we confront the challenges posed by the rising number of for-profit hospices, questioning how profit-driven motives might affect the quality of care. Through poignant narratives like Mr. Penn's, we expose systemic gaps and the urgent need for patient-centered care. By reflecting on the invaluable contributions of hospice workers, we advocate for a renewed focus on collaboration to ensure dignified and supportive end-of-life experiences. With discussions on pain management, advanced directive documents, and the essential role families play, we aim to empower you with the tools needed for informed decision-making. Finally, we underscore the importance of seeing death not just as a medical event but as a profound human experience. Inspired by the wisdom of Cicely Saunders, we discuss how education, kindness, and support can restore the sacredness of both life and death. You'll discover resources like the Good Death, Good Life Masterclass and the Confident Caregiver Course, designed to equip you with essential skills for compassionate care. By preparing for the end of life, we not only enhance our daily experiences and relationships but also empower ourselves to live fully and without regrets. SIGN UP FOR THE "GOOD DEATH" SEMINAR SERIES on January 29th at 7pm ET - Click here The Good Death Seminar Series will be hosted LIVE on Zoom! Space is limited! Save your seat now! We dive into: (00:01) - Understanding Hospice Care Seminar Series (11:49) - Challenges of for-Profit Hospice Care (20:25) - Addressing Gaps in End-of-Life Care (27:29) - Enhancing End-of-Life Care Support (40:27) - Empowering Families in End-of-Life Care (43:45) - Key Questions for Hospice Care (47:50) - The Good Death Movement Opportunity (52:52) - Promoting End-of-Life Care Movement We want to hear from you!!! If you found this podcast helpful, Please Rate, Review, & Follow so we can reach more people. Links mentioned in this episode: Doulagivers Institute The NEXT Free Level 1 End of Life Doula Training Registration LINK The NEXT Free Doulagivers Discovery Webinar Buy The Good Death Book 80-90% of a positive end of life depends on these two things: Knowing the basic skills on how to care for someone at the end of life and planning ahead - and BOTH Doulagivers Institute is giving you for FREE! Access them Below! Making your wishes known is one of the greatest gifts you can give to your loved ones. Download The Doulagivers 9 Choice Advance Directive now! It's FREE! More about what we do at Doulagivers Institute - Click here!
This week on the Patreon Teaser! My dad jumps on to talk about Mushroom/Ketamine Tea and a new article about how in Oregon people take it at the end of their lives! Then we read a bunch of emails before we have Teddy from Hell Has An Exit who talks about the first time he ever does cocaine! Plus much much more on a brand new teaser for that old time Dopey Show! Dopey Patreon: https://www.patreon.com/dopeypodcast DOPEYWOOD TICKETS: https://www.tickettailor.com/events/thedopeyfoundation/1484803 WHAT CHAT GPT SAYS:
The Rwandan Genocide, occurring between April-July 1994, was a devastating episode of mass violence in which nearly 1 million people were killed over a period of 100 days. Fueled by longstanding ethnic tensions, political power struggles, and a deep seated history of discrimination, the genocide saw members of the Tutsi ethnic group slaughtered indiscriminately by extremists of the Hutu ethnic group. Growing up amid this chaos, Christian Ntizimira, MD witnessed some of humanity's most horrific atrocities. Instead of turning away, however, he chose to enter medicine, a profession that would allow him to address the immense suffering he saw. Today, Dr. Ntizimira is a palliative care physician and the founder and executive director of the African Center for Research on End of Life Care. In this episode, Dr. Ntizimira joins us to share his personal experiences with the Rwandan Genocide, his journey to palliative medicine after initially exploring a career in surgery, what palliative care means to him, what it looks like to honor the dignity of a patient, how he advocates better access to palliative care and chronic illness care, and his unique approach to medicine rooted in “ubuntu,” a philosophy emphasizing the universal bond that connects all humanity that is best summarized by the phrase “I am because you are.”In this episode, you'll hear about: 2:45 - How Dr. Ntizimira's experience as a young person during the Rwandan Genocide inspired him to become a physician, and how he eventually found himself drawn to palliative care 14:25 - Dr. Ntizimira's distinction between “treating the disease” and “treating the person”20:22 - How Dr. Ntizimira teaches doctors to fully conceptualize patients as people instead of focusing only on their medical ailments 25:50 - The heart of palliative care that transcends cultures30:54 - The importance of presence in palliative care38:27 - What “reconciliation” means in Dr. Ntizimira's approach to palliative care 47:17 - “Ubuntu,” an African philosophy emphasizing a shared connection among humans, and how it can revolutionize how we care for patients Dr. Christian Ntizimira is the author of The Safari Concept: An African Framework for End of Life Care.Dr. Christian Ntizimira can be found on Twitter/X at @ntizimira.Visit our website www.TheDoctorsArt.com where you can find transcripts of all episodes.If you enjoyed this episode, please subscribe, rate, and review our show, available for free on Spotify, Apple Podcasts, or wherever you get your podcasts. If you know of a doctor, patient, or anyone working in health care who would love to explore meaning in medicine with us on the show, feel free to leave a suggestion in the comments or send an email to info@thedoctorsart.com.Copyright The Doctor's Art Podcast 2024