Podcasts about cmta

Founded in 1918, the California Manufacturers and Technology Association promotes policies designed to stimulate economic growth and create jobs. Today, CMTA represents 400 manufacturing businesses in California, which is the largest manufacturing state in the country. Heading up that operation is Lance Hastings, who began his career as a capitol staffer and has a long history with California trade associations. Hastings probably thought that the COVID pandemic would be the biggest disruptor of the state's manufacturing industry in his time, but President Trump's 'on again, off again' tariff policy may give COVID a run for its money. He joins us to talk about the state of California's manufacturing industry, tariffs, and just how long it might take to reshore production.Plus, Who Had the Worst Week in California Politics?1:50 A change in senate leadership3:12 Trump vs. Musk poll4:08 Budget funds private foster agencies4:42 The Top 100 is coming9:53 Matt Rexroad10:45 Lance Hastings12:01 California: largest manufacturing state in the country13:21 Workforce17:39 Tariffs24:52 it took 40 years to lose manufacturing - it will take at least that long to bring it back25:31 Impact of retaliatory tariffs27:47 Finding common ground with environmental advocates33:45 Cap and invest36:42 California Lowrider Holiday38:46 #WWCAWant to support the Capitol Weekly Podcast? Make your tax deductible donation here: capitolweekly.net/donations/Capitol Weekly Podcast theme is "Pickin' My Way" by Eddie Lang"#WorstWeekCA" Beat provided by freebeats.io    

Jon prides himself in sharing his vast engineering knowledge with owners and young engineers. He enjoys educating owners on how to properly update their spaces and systems with cost-effective and energy-efficient strategies to their benefit. With five perfect Energy Star rated buildings under his belt, he also leads a mentorship group within CMTA to achieve the same. Jon also mentors students and young engineers to explore career opportunities in STEM or engineering. And after all of this, he enjoys getting out into nature and spending time with his family.Our services for both our clients and candidates can be found below✔️For Employers: https://www.nenniandassoc.com/for-employers/✔️For Candidates: https://www.nenniandassoc.com/career-opportunities/✔️Consulting: https://www.nenniandassoc.com/consulting-services/✔️Executive Search: https://www.nenniandassoc.com/executive-search/Nenni and Associates on Social Media:► Follow on LinkedIn: https://www.linkedin.com/company/nenni-and-associates/► Like on Facebook: https://www.facebook.com/nenniandassoc/► Email Listing: https://www.nenniandassoc.com/join-email-list/► Subscribe to our YouTube channel: https://www.youtube.com/c/NenniAssociates

On this episode of The Medical Alley Podcast, host Ben Wagner sits down with two experts in the sustainability field from long-time industry leader CMTA. Brent Wavra (Principal & Director of Business Development) and Stephen Westerback (Mechanical Engineer) shed light on sustainability and decarbonization in healthcare facilities, the main drivers pushing the industry toward sustainability, and how these changes are impacting operational efficiency and patient care.Send us a message! Follow Medical Alley on social media on LinkedIn, Facebook, X and Instagram.

Gov. Moore claims a strong Baltimore leads to a strong Maryland. Now transportation advocates want him to commit to his word. Nearly 700 million dollars in transit maintenance and repair hangs in the balance … will MTA get what it needs?  Brian O'Malley, president and CEO of Central Maryland Transportation Alliance sifts through the details of this complicated, ongoing challenge for Baltimore. Links: CMTA letter to Gov. Wes Moore, transportation reporting by Baltimore Banner, Draft Consolidated Transportation Program Budget, CMTA response to CTP budget.Do you have a question or comment about a show or a story idea to pitch? Contact On the Record at: Senior Supervising Producer, Maureen Harvie she/her/hers mharvie@wypr.org 410-235-1903 Senior Producer, Melissa Gerr she/her/hers mgerr@wypr.org 410-235-1157 Producer Sam Bermas-Dawes he/him/his sbdawes@wypr.org 410-235-1472

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In this special replay, we revisit the riveting conversation with Dr. Stephan Züchner, a beacon of hope in the realm of genetic research for Charcot-Marie-Tooth (CMT) disease. As the chair of the Department of Human Genetics at the University of Miami Miller School of Medicine, Dr. Züchner has been at the forefront of groundbreaking discoveries that have the potential to transform the lives of those affected by CMT.This episode sheds light on Dr. Züchner's journey from the vibrant streets of Berlin to the cutting-edge labs of Duke University and beyond. His relentless pursuit of understanding the genetic underpinnings of CMT has led to the identification of critical mutations, opening new avenues for targeted therapies.Dive into an engaging discussion that spans the discovery of the SORD gene mutation, offering a glimmer of hope for a significant subset of CMT patients, to the innovative approaches in gene therapy that are on the horizon. Dr. Züchner's work not only illuminates the complex genetic landscape of CMT but also underscores the power of collaboration and data sharing in the scientific community.As we re-examine this enlightening dialogue, join us in celebrating the strides made in genetic research and the ongoing quest to unravel the mysteries of CMT. For those who wish to support this vital research and the broader CMT community, please consider visiting CMTA USA.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Charcot-Marie-Tooth (CMT) disease comes with its set of daily mobility challenges, intensified by the search for comfortable and supportive footwear amidst nerve damage, foot weakness, and deformities. In this episode of the official podcast of the CMTA, we explore adaptive solutions that bring hope and enhanced mobility to those living with CMT.  Hosts Chris and Liz O. welcome Tom DuPont for a heartfelt discussion about his life with CMT. Tom opens up about his battle with the disease, from initial diagnosis to finding innovative footwear and support devices that have significantly improved his mobility and quality of life.  Episode Highlights: Tom DuPont's CMT Journey: A look into Tom's early symptoms, the diagnosis process, and how he successfully manages his CMT with adaptive devices and footwear. Innovative Solutions for Better Mobility: Tom showcases the external braces and neoprene silicon boots that have been transformative in his fight for comfort and stability, shedding light on the importance of innovative mobility solutions. The Power of Determination: Highlighting Tom's philosophy of "move it or lose it," this segment emphasizes the importance of staying active to slow CMT progression, inspired by Tom's unwavering determination. A Peek into Future Innovations: Tom discusses the exciting potential of 3D-printing technology in creating personalized mobility solutions for those with CMT, pointing to a future of even greater adaptability and support.  Stay Engaged with "CMT 4 Me" - The CMTA's Official Podcast Join us as we explore personal stories, breakthroughs, and insights within our CMT community. As the official podcast of the CMTA, "CMT 4 Me" is your monthly source of inspiration, information, and community connection. Don't miss out on this empowering experience—join our journey to navigate and improve life with CMT together.  We Want to Hear from You! Your story is powerful. If you're living with CMT and wish to share your experience on "CMT 4 Me," please let us know through our interest form. By joining the conversation, you offer hope and inspire countless others in our community. If you found the information above informative and want to stay up-to-date with topics related to accessibility and disability rights, please follow CMT 4 Me podcast on your favorite platform and our social media channels:   - Instagram: @CMT4Me  - Facebook: CMT 4 Me  - TikTok: @CMT 4 Me  -Join our email list at www.podpage.com/CMT4Me  By following us on these platforms, you'll receive regular updates on news, events, and resources related to Charcot-Marie-Tooth disease and disability inclusion. And if you have a moment, we would greatly appreciate it if you could leave us a rating and review on your favorite podcast platform.   Please note that the transcript provided by Apple Podcasts for the CMT 4 Me podcast is generated using AI models, which may result in inaccuracies or errors in the transcript. If you prefer to consume the podcast with human-generated captions, we invite you to check out our "Raw & Unedited" series on YouTube. Thank you for your understanding and support. CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, incluFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

Finding the right shoes when you have CMT can be a major challenge. The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they share a conversation with podiatrist Dr. Greg Stilwell and his intern Brandin Irwin about how to navigate footwear choices with CMT and innovations that could change the game. When nerve damage in your feet causes weakness and deformities, comfort is elusive and stability hard to come by. Dr. Stilwell shares his expertise on managing CMT complications and demonstrates his innovative “Stand Strong Arch Support” designed to redistribute pressure points and provide a custom fit. Stay tuned for personal stories and a look into emerging 3D printing technology that may provide customized orthotics adapted to each person's CMT progression.Highlights:Dr. Stilwell explains how growing up with family members with CMT led him to become a podiatrist. He provides an overview of CMT foot deformities.He demonstrates his innovative "Stand Strong Arch Support" product designed to redistribute pressure points on the foot.The conversation explores using 3D scanning and printing technology to create customized orthotics that adapt as CMT progresses.They share personal stories about the challenges of finding proper footwear with CMT and other nerve diseases.Dr. Stilwell expresses his dedication to continuing research and helping bring emerging technology to improve quality of life for the CMT community.Stay connected with us! Follow CMT 4 Me to keep up with our monthly episodes spotlighting stories and advancements important to our community.Join Our Conversation: We want to hear from you! If you're interested in sharing your CMT journey on the podcast, please fill out our interest form. You could be the voice that inspires others.Explore More: Check out CMT 4 Me Raw and Unedited on YouTube for more in-depth conversations.For more on CMT and the CMTA, please visit www.cmtausa.org and sign up for emails on our website.CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you'd like to share? Fill out our CMT 4 Me Podcast Interest Form: cmtausa.org/cmt4me. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.orgFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

The Central Maryland Transportation Alliance released its transit report card for the region. Spoiler alert -- it's a D+. We ask executive director Brian O'Malley how they measure success and how might things improve. Plus, we hear from Baltimore transit riders about their experiences. Links: Central Maryland Transportation Alliance, CMTA Report Card, Get Maryland MovingDo you have a question or comment about a show or a story idea to pitch? Contact On the Record at: Senior Supervising Producer, Maureen Harvie she/her/hers mharvie@wypr.org 410-235-1903 Senior Producer, Melissa Gerr she/her/hers mgerr@wypr.org 410-235-1157 Producer Sam Bermas-Dawes he/him/his sbdawes@wypr.org 410-235-1472

The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they pull up a chair with three passionate CMTA advocates: Gilles Bouchard, Jeana Sweeney, and Laurel Richardson. In an honest, free-flowing panel conversation, this group shares their wisdom about life with CMT.  From the frontiers of science to profoundly personal stories of family unity, they offer rare insight into the challenges and indestructible solidarity of the CMT community. Highlights:Gilles Bouchard shares updates on CMT research and the impact of the STAR program.Jeana Sweeney shares her personal journey with the CMTA.  With 20 plus years of raising awareness and funds.  She's a fierce advocate for the CMTA.  Laurel Richardson emphasizes the strength of the CMTA community in overcoming challenges.Stay connected with us. Follow CMT 4 Me  to keep up with our monthly episodes, where we explore the stories and advancements that are important to our community.Join Our Conversation: Your experiences and stories are what make our community strong. If you're interested in sharing your journey with CMT, please fill out our interest form. You could be the voice that inspires others in our next episode.Explore More: For more in-depth conversations and insights, check out CMT 4 Me Raw and Unedited on YouTube. It's a space where we share openly and connect more deeply with our CMT family.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Join us in this episode of Manufacturing an American Century, as host Matt Bogoshian welcomes Lance Hastings, President & CEO of the California Manufacturers & Technology Association (CMTA), to discuss the intricate fabric of California's manufacturing community ecosystem and its vital role in America's manufacturing renaissance.

Join us for a heartwarming chat with 10-year-old Hazel and the Coldiron family on CMT 4 Me!

There's no better place to talk about MTA's Red Line, Resilience 2050, the state of good repair, and urban planning than right here in the heart of Downtown Baltimore. Sponsors, members, and friends of WDCSITE joined us at the Hotel Revival for a rooftop live session of The Sectional. Brian O'Malley, President and CEO of the Central Maryland Transportation Alliance (CMTA), intrigued us with the past, present, and future of Central Maryland's transportation system. Sarah and Eric engage with Brian and his stories that have us meander around topics such as Light Rail and the Orioles, the irony of a Bus Rapid Transit ribbon cutting, and the Highway to Nowhere.Date of Recording: Thursday, September 7, 2023https://www.cmtalliance.org/https://www.linkedin.com/in/brian-o-malley-b3886219/

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

In honor of CMT Awareness Month, this episode is dedicated to helping listeners navigate the vast seas of Charcot-Marie-Tooth disease. As we sail through September, dubbed #CMTAM23, we're amplifying voices that echo the experiences, challenges, and hopes of over 3 million individuals affected by CMT worldwide. In this special compilation, we weave together the best of 'CMT 4 Me' to highlight both the scientific strides and the deeply personal tales of acceptance and resilience. It's more than just individual stories; it's a collective testament to the spirit of a community striving to spread awareness. So, whether you're familiar with CMT or hearing about this commonly inherited neurological disease for the first time, join us in making waves of change. And while you're at it, consider honoring a CMT star in your life by adding their name to the CMTA's virtual Sky of Fame, a luminous tribute to those navigating the challenges of CMT.Guests Featured:Dr. ZuchnerDavid TannanbaumArda OzdemirCamilla StivinsonBev and Frank WurzelAron TaylorAshley McLeroyDan and John MorganYohan BouchardDr. Glenn PfeifferAnd More!Episode Highlights:The promising landscape of gene therapies and what the future holds.Embracing and navigating the emotional journey post-CMT diagnosis.The importance and strength of community in the face of CMT.Stories of hope, acceptance, and the lessons life with CMT teaches us.The tireless advocacy efforts shaping a brighter future for those with CMT.As we reflect on the stories and insights shared, it's evident that the CMT journey is one of challenges met with determination, heartaches soothed by community, and a collective drive to push forward. Together, we're not just raising awareness; we're building a brighter, more informed future.Want to Share Your Story? Inspired by today's conversations? If you have your own CMT story to share please complete our interest form here to be considered to be a guest on CMT 4 MeStay Connected: To dive deeper into the world of CMT and stay updated on future episodes, join our email community.Behind-the-Scenes: For those curious about the candid moments and raw conversations behind each episode, don't miss our "Raw and Unedited" series on youtube here Tell Us How You Navigate CMT!Within the CMT community, every individual's journey is a testament to resilience and strength. How does one navigate the ups and downs of Charcot-Marie-Tooth disease? The podcast encourages listeners to dial in at (941) 233-5172 and share their strategies, experiences, and stories of navigating CMT. These shared moments have the potential to inspire, bring comfort, and foster deeper connections. Selected stories might even find their way into upcoming episodes, offering insights and encouragement to others. It's a collective effort, weaving together the voices of many into a tapestry of support and understanding. Share your voice and be part of this narrative. #CMT4Me #ShareYourStoryFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

Prepare to Embark on an Inspirational Journey!Meet Kenneth Hill Jr., a man whose life is a testament to determination, growth, and the transformative power of martial arts. From various martial arts  to self-discovery, from despair to triumph, Kenneth's story is a journey we all can learn from.What's Inside This Episode:Kenneth's Path Through Martial Arts: From discipline to healing, discover how martial arts shaped Kenneth's life.Strength in the Face of Struggles: Hear Kenneth's open sharing of his dark moments and the hope they bring.Living Life with Positivity: Learn about Kenneth's philosophy of "good days and better days."Before You Go, Don't Miss This:Don't miss this opportunity to connect with Kenneth Hill Jr. and plunge  into a story that transcends martial arts and adversity. Join us on "CMT 4 Me" as we explore stories like Kenneth's that enrich, inspire, and unite our community. Together, we're spreading awareness about Charcot-Marie-Tooth disease (CMT) and building connections that last. Follow "CMT 4 Me" wherever you get your podcasts, and help us spread the word. Your support takes us one step closer to a world where voices like Kenneth's are heard, celebrated, and embraced.Your Guide to the Episode:Introduction - Meet Kenneth: (00:00)A Journey Through Martial Arts: Exploration of disciplines (05:00)Finding Strength in Struggles: Kenneth's resilience and healing (10:00)Embracing a Positive Outlook: Kenneth's view on life (15:00)Kenneth and CMT - A Connection: Alignment with our mission (20:00)Want to be part of this CMT family? Here's how:Follow Us wherever you listen to podcasts: Never miss an episode that resonates.Leave a Review:Share what CMT 4 Me means to you. Your words deeply inspire us.Dive into Our YouTube Channel-Want to go deeper with CMT 4 Me? Head over to our YouTube channel for extra content that informs, inspires, and connects.Together, we walk as advocates, friends, and family - on a journey of compassion, triumphs, and hope. Follow CMT 4 Me today and join a community always here for you. Let's continue this beautiful journey, hand in hand, heart to heart.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

In this moving episode of the CMT 4 Me podcast, your hosts Liz O. and Chris, a dynamic brother-sister duo, welcome a special guest, Camilla Stivenson, who shares her unique journey with CMT Dominant Intermediate E (CMT-DIE) which is one of the rarest types of CMT. Born in Uzbekistan and raised in Sweden, Camilla's story is one of tragic loss but highlights her positive spirit and her deep desire to live life to the fullest.  She opens up about her diagnosis with CMT-DIE and the challenges she faced growing up. From frequent falls to progressing to a kidney transplant, Camilla's experiences shed light on the realities of living with this rare type of CMT.Despite the struggles, Camilla's optimism shines through as she shares her story with the hope of inspiring others. This episode is a testament to the human spirit's ability to persevere, even in the face of adversity.Join us as we explore Camilla's story, discover more about CMT, and raise awareness about CMT.  Let's listen, learn, and make a difference together.Highlights:Camilla's personal journey from childhood in Uzbekistan and Sweden to her diagnosis with a rare type of Charcot-Marie-Tooth diseaseA look into the characteristics of CMT-DIE, a rare form of CMT that can cause not only mobility issues but also kidney failure. Learn about Camilla's resilience and her aspiration to motivate others. Explore her journey of overcoming challenges, with specific examples that showcase the strength of the human spirit to endure during the most challenging times. This is an enlightening episode illustrating Camilla's journey. Listen, learn, and share her story of resilience with your community. 0:00 - Introduction and lighthearted banter among hosts LizO. Chris, and guest Camilla.0:05 - Discussion about travel plans and the hosts' desire to visit Nordic countries.0:10 - Camilla shares her background, being born in Uzbekistan and moving to Sweden at age 11.0:15 - Camilla opens up about her mother's passing due to kidney failure and being raised by her father's parents.0:20 - Revelation of Camilla's rare type of Charcot-Marie-Tooth disease (CMT-DIE) and the onset of symptoms around age 12.0:25 - Camilla's diagnosis with CMT-DIE at age 14 or 15 and the emotional impact it had on her.0:30 - Discussion about the challenges Camilla faced, including the lack of support and complicated family dynamics.0:35 - Camilla's positive outlook and her hope to inspire others through her story.0:40 - Closing remarks, encouraging listeners to tune in, share the episode, and raise awareness about CMT-DIE.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

In this enlightening episode of "CMT 4 Me," hosts Chris and Elizabeth welcome Arda Ozdemir, a spiritual mentor, executive life coach, and author. Arda shares his transformative journey from a finance executive to a life coach, and how understanding and managing stress can lead to better health and wellbeing. This episode is a must-listen for anyone seeking to navigate the emotional challenges of living with Charcot-Marie-Tooth disease.Key TakeawaysUnderstanding your stress and the role of repressed feelings in our reactions to life situations can lead to better health and wellbeing.The grieving process is a crucial part of coming to terms with a diagnosis like CMT. Acknowledging one's emotions and feelings is an important step towards acceptance and new beginnings.Arda's journey from a finance executive to a life coach demonstrates the power of personal transformation and the potential to find new purpose in life.This episode is a testament to the power of personal transformation and the importance of emotional wellbeing. Whether you're living with CMT or know someone who is, Arda's insights offer a fresh perspective on navigating life's challenges. Don't forget to share this episode with your community and help spread the message of hope.Timeline Summary 00:00 - 02:30: Introduction of hosts Chris and Elizabeth and guest Arda Ozdemir.02:30 - 10:00: Arda shares his personal journey from being a finance executive to becoming a life coach.10:00 - 25:00: Discussion on understanding stress and the role of repressed feelings in our reactions to life situations.25:00 - 40:00: Arda talks about the grieving process when diagnosed with a disease like CMT and the importance of acknowledging one's emotions and feelings.40:00 - 52:25: Closing remarks, Arda's final thoughts, and outro.ResourcesLearn more about Arda and his work at Rise 2 RealizeCheck out Arda's books, including "The Art of Becoming Unstuck," available on AmazonRead more about Arda's journey and his approach to coaching on his About pageFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

On this episode of the CMT 4 Me, Chris and Liz O introduce Edmonton CMTA Branch leader Victoria Berezovich. Victoria is known as CMT Barbie because she is a model with Kello Inclusive. She's also one of the stars of the docu-series Push which takes place in Canada and gives viewers an inside look at a diverse group of people living with physical disabilities. Are you ready to be moved by Victoria's story? Here are three impactful moments you won't want to miss:- Finding a supportive community: Victoria emphasizes the importance of having a supportive community while living with a progressive disease like CMT. She shares her experiences with the CMT community and her advocacy work, which have helped her find support and strength.- Advocacy work: Victoria is a passionate advocate for people with disabilities, and her work has made a significant impact in the CMT community. She has been actively involved in advocacy work and has raised her hand to be a CMTA branch leader in Edmonton, Canada. She encourages others to get involved in advocacy work as well.- “Push”-ing boundaries Victoria talks about her experience on the docu-series "Push," available on the GEM Network in Canada, which takes you inside and intimately with a very special disabled group in Edmonton, coined the “Wheelie Peeps.” The show follows people with disabilities as they navigate life through good times and bad. Victoria shares how the show has helped her push boundaries and break stereotypes, and how she found support through acceptance, knowledge, and one big ambition - to live life to the fullest.Don't miss this inspiring conversation with Victoria Berezovich! Listen to the full episode of the CMT 4 Me podcast to learn more about her experiences and advocacy work. And if you want to get involved in the CMT community, consider participating in the Cycle 4 CMT event or other advocacy work. Together, we can make a difference!For more information about CMT and to support the CMTA, please visit www.cmtausa.org

In this episode, we hear from Jeff Seitzer, a stay-at-home dad, and author of "The Fun Master," who was diagnosed with CMT at a young age. Despite facing incredible challenges, Jeff has shown remarkable resilience and positivity. He shares his story of how he learned to find joy in the face of hardship and triumph over tragedy.Jeff discusses his journey of finding what works best for him when it comes to managing CMT. He emphasizes the importance of discovering what works best for each individual, which may require some experimentation, but the effort is worth it in the end.Jeff also shares his deeply personal journey of coping with loss after losing his young son Ethan while trying to save their lives while swimming in the powerful currents of Lake Michigan. He talks about how he and his family have been coping with grief and how it has affected his life with CMT.Despite the challenges he faced when his son Ethan was born with special needs, including surgeries, hospitalizations, breathing and swallowing problems, hearing loss, and a difficult social environment, Ethan thrived and taught Jeff to take things as they come. Later, Jeff and his family adopted Penelope from China, and Jeff learned that true happiness comes from putting others first and living in the moment.Jeff's journey of resilience and positivity is chronicled in his book, "The Fun Master," where he shares valuable insights and lessons he learned through his experiences.Jeff's story is a reminder that even in the darkest of times, there is light at the end of the tunnel. With a positive attitude, determination, and the support of loved ones, anyone can overcome any obstacle.Jeff Seitzer is a finalist in the 2022 Best Book Award and is serving as a distinguished reader in the Do the Write Thing Challenge in Chicago, a program that encourages kids to write essays about how violence affects their lives. Winners of the challenge will travel to DC to speak with leaders about reducing violence that affects their futures.You can learn more about Jeff and his work by visiting his website at jeffreyseitzer.com. His book, "The Fun Master," is available at major online retailers such as Amazon, Barnes and Noble, and Target, as well as local bookstores.Don't forget to follow the CMT 4 Me Podcast for more inspiring stories like Jeff's and to stay up to date on the latest developments in the CMT community. You can follow us on Instagram @CMT4Me and on Facebook at https://www.facebook.com/profile.php?id=100087317297516.Please leave us a positive review on your favorite podcast platform, as this really helps spread awareness about CMT. For more information about CMT and to support the CMTA, visit their website at www.cmtausa.org. You can also join the CMTA Emotional Support group at https://www.cmtausa.org/emotional-support-group/, read Liz O's Blog at https://bestfoot4wardblog.com/tag/elizabeth-ouellette/, donate to the CMTA at https://www.cmtausa.org/ways-to-give/imagine-whats-next/, and check out Camp Footprint if you have children with CMT at https://www.cmtausa.org/get-involved/camp-footprint/.CMT 4 Me is hosted by Chris Ouellette and Elizabeth Ouellette, produced by iRonick MediaFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

In this episode of CMT 4 Me, Chris and Liz O. meet with Dan and John Morgan, two brothers with CMT to discuss their experiences living with the disease.  As brothers, Dan and John have a unique bond and understanding of each other's struggles with CMT despite having contrasting daily lives. Main Takeaways:-Life is full of challenges that will test your limits and it's important to accept that and focus on what you can do to achieve better outcomes.-Dan and John also share their experiences with Cycle 4 CMT, an annual fundraiser with the goal of raising funds to find a cure for CMT. -The brothers offer different perspectives on dating, fashion, and the differences between city and country living.Get ready to be inspired as you listen in on the lives of two remarkable brothers, Dan and John Morgan, living with CMT. In this episode, they offer candid insights on their journey, highlighting the importance of resilience, adaptability, and positivity when faced with adversity. Their message is one that encourages us all to take life head-on, no matter what it throws at us, and to embrace the power of a positive mindset in the face of challenges. In their honest and uplifting conversation, Dan and John provide valuable insights on how to adapt and thrive in life, both personally and professionally, despite living with CMT. They invite listeners to gain a newfound appreciation for the strength of the human spirit in the face of adversity.New episodes featuring inspiring people from the CMT community drop every third Thursday of the month.Follow us on Socials!Instagram @CMT4MeFacebook https://www.facebook.com/profile.php?id=100087317297516Please leave us a positive review on your favorite podcast platform! This really helps spread awareness about CMT!Our Official Website https://www.podpage.com/cmt4me/ Don't forget to join our email list for updates!Visit the Charcot-Marie-Tooth Association official website www.cmtausa.orgJoin the CMTA Emotional Support group https://www.cmtausa.org/emotional-support-group/Read Liz O's Blog https://bestfoot4wardblog.com/tag/elizabeth-ouellette/You can make a difference! Donate to the CMTA https://www.cmtausa.org/ways-to-give/imagine-whats-next/Have children with CMT? Check out Camp Footprint!  https://www.cmtausa.org/get-involved/camp-footprint/CMT 4 Me is Hosted by Chris Ouellette and Elizabeth OuelletteAn iRonick Media Production Released March  16th  2023For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Central Maryland Transportation Alliance is an advocacy group working to improve and expand transportation options in the Baltimore region. Using data and storytelling, CMTA has forefronted how unreliability and breakdown issues on buses and trains have negatively impacted workers and students throughout the region. In this episode, I interview Brian O'Malley, President & CEO at CMTA, to discuss how his organization built a winning coalition to secure state funding for the state of good repair needs of Baltimore's transit system to address the breakdowns. Their advocacy led to the passage of the Transit Safety and Investment Act in 2021, which requires the state of Maryland to provide minimum annual funding for maintenance of the system. CMTA's efforts demonstrate the power of organizing legislators and community groups to challenge the entrenched political prioritization of car infrastructure in transportation funding. “It was compelling when we were able to find data that said that our light rail breaks down the most in the country. That helped us win bipartisan support because legislators view themselves as stewards of taxpayer dollars and public assets and didn't like it one bit that we had let this asset fall into such disrepair that it was breaking down more than any similar system in the country.” - Brian O'MalleyFor more on Central Maryland Transportation Alliance, click here. For more on TransitCenter, click here. Hosted by Kapish SinglaEdited by Kapish SinglaProduced by TransitCenterMusic: “Comma” - Blue Dot SessionsDisclaimer: Political views raised by guests on the podcast do not reflect the views of TransitCenter.

In this episode of the CMT 4 Me podcast, we are joined by Ashley, a rehabilitation engineer with CMT. Ashley shares with us what a typical day looks like for her and what her focus is, which is to use her engineering background to improve people's lives. Ashley works with individuals to modify their homes and work sites to make them more accessible, as well as helps students with technology to complete their assignments.During the conversation, Ashley shares some of the amazing projects she has worked on, including creating a device to help someone roll napkins around silverware in a restaurant, and an assistive technology system for a woman to play with her dog. Ashley explains that she and other rehab engineers work one-on-one with individuals, customizing products for each person's unique needs, and building them in the local technology lab.  As a person living with CMT, Ashley has plenty of advice for fellow CMT community members on how to adjust their surroundings to make them more CMT-friendly. We were impressed with Ashley's creativity and dedication to helping others and we hope you enjoy this episode as much as we did! Here are five takeaways from our conversation with Ashley:Ashley is a rehabilitation engineer who uses her skills to make people's lives better.Ashley works with individuals to modify their homes and work sites to make them more accessible, as well as helps students with technology.Ashley has worked on some amazing projects, including a device to roll napkins around silverware and an assistive technology system for a woman to play with her dog.Ashley and other rehab engineers work one-on-one with individuals, customizing products for each person's unique needs.Ashley and her team build the products they design in the local technology lab.Tune in to hear Ashley's  inspiring journey and the valuable advice she offers to those living with CMT.New episodes featuring inspiring people from the CMT community drop every third Thursday of the month.Follow us on Socials!Instagram @CMT4MeFacebook https://www.facebook.com/profile.php?id=100087317297516Follow Ashley on socials! Ashley Farr McLeroy on Facebook LifeWithALimp on Instagram Please leave us a positive review on your favorite podcast platform! This really helps spread awareness about CMT!Our Official Website https://www.podpage.com/cmt4me/ Don't forget to join our email list for updates!Visit the Charcot-Marie-Tooth Association official website www.cmtausa.orgJoin the CMTA Emotional Support group https://www.cmtausa.org/emotional-support-group/Read Liz O's Blog https://bestfoot4wardblog.com/tag/elizabeth-ouellette/You can make a difference! Donate to the CMTA https://www.cmtausa.org/ways-to-give/imagine-whats-next/Have children with CMT? Check out Camp Footprint!  https://www.cmtausa.org/get-involved/camp-footprint/CMT 4 Me is Hosted by Chris Ouellette and Elizabeth OuelletteAn iRonick Media Production Released February 16th 2023For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Happy New Year! Thank you for tuning into the first CMT 4 Me episode of 2023! We are excited to kick off the year by sharing the story of Maddie, a young woman in grad school at the University of Virginia who was diagnosed with Charcot-Marie-Tooth Disease at age 12. In this episode, Maddie shares:Insight into how she copes with CMT and deals with inner dialoguesTips for newly diagnosed individualsStrategies for introducing herself as a person with CMT to the worldThe importance of support systems in navigating life with CMTTune in to hear Maddie's inspiring journey and the valuable advice she offers to those living with CMT.New episodes featuring inspiring people from the CMT community drop every third Thursday of the month. Follow us on Socials! Instagram @CMT4MeFacebook https://www.facebook.com/profile.php?id=100087317297516Follow Maddie on Socials FacebookInstagramPlease leave us a positive review on your favorite podcast platform! This really helps spread awareness about CMT!Our Official Website https://www.podpage.com/cmt4me/ Don't forget to join our email list for updates! Visit the Charcot-Marie-Tooth Association official website www.cmtausa.orgJoin the CMTA Emotional Support group https://www.cmtausa.org/emotional-support-group/Read Liz O's Blog https://bestfoot4wardblog.com/tag/elizabeth-ouellette/You can make a difference! Donate to the CMTA https://www.cmtausa.org/ways-to-give/imagine-whats-next/Have children with CMT? Check out Camp Footprint!  https://www.cmtausa.org/get-involved/camp-footprint/CMT 4 Me is Hosted by Chris Ouellette and Elizabeth OuelletteAn iRonick Media Production Released January 19th 2023For more information about CMT and to support the CMTA, please visit www.cmtausa.org

This episode features Clay Nesler, Founder and CEO of The Nesler Group, LLC, Rune Stene, Managing Director at Powerhouse and Business Developer at Skanska Norway, and Tony Hans, Vice President at CMTA.Each guest offers their perspective on how currently available resources and technologies can be important assets to save energy and decarbonize the built environment.- Clay describes what he calls the “Four Good Deeds” of building that can carve a path toward net-zero carbon by 2050.- Rune explains how a common goal of decarbonization may require a unique approach for each individual building project.- Tony notes how new legislation and changes in building codes are making sustainable building more financially feasible.Listen and subscribe to the podcast.Learn more at Foresight. Skanska is providing this podcast as a public service. Reference to any specific product or entity does not constitute an endorsement or recommendation by Skanska. The views expressed by guests and hosts are their own and their appearance on the program does not imply an endorsement of them or any entity they represent. Views and opinions expressed by Skanska employees are those of the employees and do not necessarily reflect the view of Skanska or any of its officials. While Skanska endeavors to keep the information up to date and correct, Skanska makes no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the podcast or the information, products or services mentioned in the podcast for any purpose. Any reliance you place on such information is therefore strictly at your own risk.#EnergySavings #EnergyEfficiency #SustainableBuildings #ShapingSustainablePlaces #Foresight

Do you try to ignore your CMT? Do you keep those feelings bottled up inside because you don't have anyone with whom you can relate? Do you think no one will understand? Maybe you feel like it is nobody's business but your own...Psychotherapist David Tannenbaum felt the same way until he connected with the CMTA community, where he found freedom, acceptance, and unconditional love. Attending CMTA-led support groups, branches, and patient conferences, David met many people from all walks of life and his apprehension and fears faded into the background.Today, David is an integral part of the CMTA, where he helps those with CMT find joy and fulfillment through mindfulness, meditation, and gratitude. Listen. Learn. Love.David has been practicing psychotherapy for over 30 years (http://davidtannenbaumtherapy.com). David also volunteers for CMTA where he sits on the Advisory Board, runs the online Emotional Support Group (https://www.cmtausa.org/emotional-support-group/), and writes the “Ask David” column in the quarterly CMTA Report.His areas of specialty are:~ Finding meaning and purpose.~ Stress-related issues, incorporating relaxation techniques into daily life.~Developing the practice of mindfulness.~Helping to live and thrive with a physical disability.~Teaching to live in a more heart-centered way and experience a simple and profound intimacy that we all long for.~Dealing with grief and loss and learning to find joy once again.~Healthy aging.~Understanding and exploring the particular concerns of the LGBT community.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

An old soul with a big heart, Jonah Berger brings wisdom and youthful energy to every moment of every day. In this episode of CMT 4 Me, Jonah gets personal about his upbringing, family life, the Pickle Witch (yes, the Pickle Witch!), the CMTA's future leaders, and Camp Footprint – camp for kids with CMT. Explaining the success of Camp Footprint, Jonah points out, "This one-week sleepaway camp for kids with CMT is truly unique. Every camper fits in, feels free to let their guard down, and is given space to be vulnerable, real, and relaxed without the fear of being judged or perceived as different. There is no doubt in my mind – Camp changes lives." Jonah's spirit and uplifting energy are not only contagious but also motivating. His talent for storytelling and insightful personality will inspire you to move mountains.  Bio: Jonah has CMT 1X and joined the CMTA staff full-time in early 2020 as the National Youth Programs Manager and is thrilled to be serving the CMTA community by working to celebrate and engage the youth. Jonah has written two books: He Walks like a Cowboy: One Man's Journey Through Life With a Disability and The Strangest of Places, both available on Amazon for purchase. Jonah also has a website where you can find his He Walk Like a Cowboy podcast as well as his blog:  HeWalksLikeACowboy.comFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

The CMTA has evolved and grown exponentially over the past 20 years, and if you have not been around to witness the transformation, you need to listen to the voices of longtime CMTA volunteers and branch leaders Beverly and Frank Wurzel. Beverly and Frank Wurzel have spent the past 20 years of their lives spreading CMT awareness and raising funds for CMTA STAR research. Their raw determination, motivation and never-say-never attitudes are not only commendable but also incredibly awe-inspiring.  As Beverly walks you through her time at CMTA, Frank keeps everyone on their toes and in stitches. Married for 65 years, these two longtime CMTA advocates truly care about the people they serve, so much so, they consider their fellow CMTA members as second family. Bev is a connector of people; Frank is a committed supporter. Together, they are leaving a legacy of love, philanthropy and caring.  

Julia and Herb Beron share a moving story of courage, resilience, and autonomy.  Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her family's unconditional support, keeps moving forward with grace, independence, and self-confidence. Hear her story. Learn her secrets. Watch her future.  It's going to be amazing!HighlightsWho is Sally and how did she give Julia so much freedom?The best day of her life – where's the cat?Julia gives dating advice. You are going to love it!Rachael's  Practicality + Herb's Emotional Intelligence = Julia's BrillianceIf you had one wish? You won't believe their answers.*Herb Beron is a member of the CMTA Board of Directors and a  long-time supporter of CMTA.*Julia Beron is a previous member of the Youth Council, Co-Illustrator of the book, Walk A Mile In My Braces, and Co-Leader of the CMTA COMPASS Group for Young Adults with CMT.

How does having muscular dystrophy actually improve a sexual maneuver? How did eating a stick of butter inspire a man to make the move that would change his life? We find out the answers and much more from the hilarious, candid, and inspiring Jonah Berger as we hear about his lifelong journey to learn how to embrace his disability with humor and gratitude and to ultimately help kids struggling with their own.For more info on Jonah Berger:Jonah's Podcast: hewalkslikeacowboy.comJonah's Books:amazon.com/Strangest-Places-Jonah-Berger/dp/B08X65NLGR/amazon.com/He-Walks-Like-Cowboy-Disability/dp/0595471684/For more info on the CMTA:cmtausa.orgDo you have feedback about this episode that you'd like to share?  Do you know of a good guest for the show?  Drop Justy Jones an email at imnoheropodcast@gmail.com

Listen to a new episode of PIVOT, a show brought to you by YNS Live with NFL Thread recorded live on Fireside with hosts Juliet Hahn and Cynthia Zordich featuring special guests Kurt Coleman.   Kurt Coleman is a 10-year NFL veteran. He was drafted by the Philadelphia Eagles in the 7th round of the 2010 NFL Draft. He continued his career in Kansas City, Carolina, New Orleans, and Buffalo Bills. In 2011, Kurt intercepted quarterback Rex Grossman three times in the Eagles' 20-13 win at the Washington Redskins. He was the first Eagles player since 1966 to have 3 interceptions in one game.     The 2015 season was a special season for Kurt and the Carolina Panthers.  Kurt recorded a career-high 9 interceptions and helped the Panthers solidify their spot in Super Bowl 50.     He played collegiate football at The Ohio State University, where he earned first-team All-American honors, All-Big Ten Honors, and earned Team Captain honors in 2009. In 2007, Kurt co-founded the Ohio States chapter of Uplifting Athletes, a charity dedicated to raising awareness for rare diseases.    Throughout college and his NFL career, Kurt has always been called to help those around him and give back to the community. He has worked with various charities, such as Muggsy Bogues Family Foundation, ACS, CMTA, Carolina Breast Friends, and many more.  In 2006, breast cancer hit close to the Coleman family.  His father Ron was diagnosed with breast cancer and underwent chemotherapy and a mastectomy. Kurt and his family saw the damage and strain that cancer can wreak on a family.  Ron and Kurt went on to fund Coleman4aCure, their family charity that focuses on helping families battling cancer. Coleman4acure focuses on spreading awareness of male breast cancer. They have impacted families in Ohio, Philadelphia, and North Carolina.    Kurt and his wife Laura along with their four kids are especially passionate about making a difference in the Charlotte community. They are partnering with the American Cancer Society - Making Strides and The Pink House.    In 2018, the Colemans officially made Charlotte home and they look forward to serving the Charlotte community for years to come. Kurt likes to live his life similar to his father's slogan during his battle with cancer  “don't have a bad day, just bad moments”.    Presently, Kurt is working as the Stewardship and Scholarship Administrator at Charlotte Latin creating programs for underprivileged families and serving as the Carolina Panthers Color Commentator.  Follow Kurt on Instagram.     Remarkable Quotes   “I admire my dad for his willingness to talk about his cancer. It takes a lot of courage and strength to actually be vulnerable, to talk about some of our real issues. I mean, there's a reason why the suicide rates of men are seventy-five percent more likely to commit.    “I believe we internalize issues as men because we have ‘masculinity.' Well, what is that?”   “I learned to mix vulnerability with strength from my father, and I continue to lean on him and his mantra, which is, ‘Have a bad day tomorrow.'”    “Through all the chemo treatments he had to go through - it was, ‘Have a bad day tomorrow. Have a bad moment. Don't have a bad day.'”   “Take these gems throughout life that people are giving you and hold on to them because you're going to go through things in life and these lessons are invaluable.”   “I realize that I have a lot of life to live, and I'm going to go through things. And when I do go through things, I'm gonna lean on the experiences of others - that I love - to help me get through.”   Sponsor   The YNS Live With NFL Thread Super Bowl Experience is sponsored by Shutterstock Editorial.  Wherever you go - Shutterstock is there to capture it!   Contact Shutterstock at assigments@shutterstock.com and take the field with Shutterstock's award-winning photography superstars.       Find Us Online! Fireside: Juliet Hahn | Cynthia Zordich Instagram: Juliet Hahn | Cynthia Zordich | NFL Thread LinkedIn: Juliet Hahn | Cynthia Zordich FB: Juliet Hahn | NFL Thread Clubhouse: Juliet Hahn YouTube: Juliet Hahn Twitter: Juliet Hahn | Cynthia Zordich | NFL Thread

Maddie has said that she doesn't remember a time when she did not have CMT. She was diagnosed with Charcot-Marie-Tooth disease in the fifth grade and in middle school, lost her ability to run. It wasn't until years later that Maddie would find herself utilizing mobility aids to assist her in walking with less pain. In this week's episode, Maddie shares her journey living with CMT and coming to a place of healing within her own means. Follow Maddie: https://www.instagram.com/the_homecoming_/ CMTA: https://www.cmta.com/ Camp Footprint: https://www.cmtausa.org/get-involved/camp-footprint/ Follow Still Positive: https://www.instagram.com/stillPositivePodcast/ https://www.youtube.com/channel/UC13NJpipstz343VhDw0nmYQ spoti.fi/3rMHbVe Wanna chat on Still Positive? Email: stillpositivepodcast@gmail.com Follow Dayna: https://www.instagram.com/_____DaynaMarie https://twitter.com/runnnDMC/ MUSIC: Laces Out Follow Laces Out: https://www.instagram.com/lacesOutTheBand https://open.spotify.com/artist/6t0pK...

Psychotherapist turned coach, author, and NeuroChangeSolutions trainer Abby Havermann, mom of a child with CMT 2A, focuses on taking charge of her life by consciously choosing who she wants to be every day. Incorporating the teachings of researcher Dr. Joe Dispenza, Abby is raising her son, Jaden, to connect with his emotions, find his inner power, and tap into his limitless potential. Abby has created a unique platform for Jaden to master his thoughts and move beyond perceived limitations using conversation, thought-provoking questions, breathwork, and meditation.Abby explains how your mindset and belief system affect everything in life, from what you think and feel to how you react to the external world. Learn, listen and share these empowering tools with your children, so they too will be able to move beyond personal limits with conscious decision-making and insight.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Kenny's heart-felt narrative reveals the life of the man with a wicked sense of humor and a wealth of CMT knowledge. Despite his CMT-related breathing issues, upcoming foot surgeries, and chronic pain, his deep laughter defines a go-forward and don't look back kind of attitude.  Kenny Raymond is an author, blogger, podcast host, genetic whiz, CMTA Advisory Board member and Facebook moderator. His website, the Criptid Sloth (thecryptidsloth.com), is a go-to resource for those seeking easy-to-understand explanations of a wide range of CMT topics.Kenny makes it his business to advocate for people with CMT every single day. Kenny spends free time sharing his knowledge and enlightening the non-initiate in tangible and meaningful ways. An autodidact at heart, Kenny learned all he could about his own CMT to help others understand the intricacies of a CMT diagnosis while busting myths and disarming misinformation. He's a gift to the CMTA and an invaluable resource for the CMTA community.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Stringing words together in captivating rhyme, CMTA Branch Leader and passionate volunteer Aron Taylor, mesmerizes with his stories of facing the challenges imposed by CMT from a very young age. Aron produced and released several hip-hop albums over the past 15 years, including CMT-related songs such as “The Life You Love” and “Supergimpin. Aron's energy, inspiration, and enthusiasm will make your day shine. Listen, Learn, and Love!  Watch Aron in Action: https://www.youtube.com/watch?v=M2DNzRdBAPsFor more information about CMT and to support the CMTA, please visit www.cmtausa.org

CMTA CEO Amy Grey and CMTA Chairman Gilles Bouchard get real and personal as they discuss the CMTA's ongoing success as the #1 CMT organization globally. This multi-dimensional dynamic duo, with deep roots in the charitable foundation profession and tech industry, sheds light on how the CMTA, a small but efficient organization, is setting standards of excellence in the non-profit sector. With the backing of our community, CMT clinicians, world-renowned scientists, researchers, and an increasing number of pharma partners, the CMTA is changing the world at an accelerated pace. Listen and learn how our CMT patient community has inspired, motivated, and influenced the growth of the CMTA and its mission - to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. Our vision … a world without CMT. For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Today, Jeana Sweeney is the CMTA's Director of Development. When her daughter, Rylee, was diagnosed at a young age with CMT, her world shattered into tiny shards of grief. With the support of a loving husband, family, and friends, Jeana picked up the pieces and chose to fight with all her might to guarantee a promising future for her daughter, grandchildren, and the CMTA community. A lover, a fighter, and a mother on a mission, Jeana is one of the most passionate and influential spokespersons the CMT community has ever known.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Genetic genius Stephan Züchner, M.D., Ph.D., is a professor and chair of the Dr. John T. Macdonald Foundation Department of Human Genetics at the University of Miami Miller School of Medicine. His work focuses on identifying new disease-causing mutations in CMT patients. Dr. Züchner and colleagues recently discovered that mutations in the sorbitol dehydrogenase gene (SORD) causes a recessive, axonal form of CMT that may be treatable.  Learn all about his exciting research pointing to possible CMT treatments.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Erin Black and Emmily Stufflet share their unique perspectives on staying positive with CMT. With an emphasis on friendships and community, these insightful young women show how their own personal resilience is interlaced into the resilience of the communities to which they belong. Drawing strength from one another and their CMTA family, their connections and bonds give them the strength and determination to meet life challenges head-on. For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Yohan Bouchard was diagnosed with CMT (Charcot-Marie-Tooth disease) at age 7, resulting from a new, spontaneous mutation. With the mind of a warrior and the support of family, friends and the CMT community, Yohan deals with CMT using integrity, compassion, and insight. Living in the now, Yohan willingly accepts the challenges of CMT, skilfully redirects its forces and creates positivity and hopefulness for all.For more information about CMT and to support the CMTA, please visit www.cmtausa.org

CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members.  Have a story you'd like to share? Write to info@cmtausa.org You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org

The human tornado, Jeana Sweeney is our guest on this intimate conversation with a true Rockstar. Jeana has Charcot Marie Tooth and has devoted her career to the CMTA. She is on a mission to fund the cure and she doesn’t take no for an answer. Join us as we discuss CMT, parenting, the strength in weakness, Bon Jovi and more! An episode to learn from. www.cmtausa.org/donate

I have known Bethany Meloche for many years and I would best describe her as a lion with sheep's feet. There is a power about this soft spoken woman that is amazing to participate in. We cover her disability, her wisdom, her humor, and her magic. She has always been one of my favorite people and soon she will be yours too. Don’t miss this overseas chat with an inspirational rockstar. Bethany's book, 'How a Body Should Be': https://amzn.to/2TZMUW9 Bethany's Website: bethanymeloche.com Donations to CMTA: cmtausa.org/donate

Florian Ducommun is a founding partner at the law firm HDC legal in Lausanne and founder of the legal factory a platform for streamlining legals process. Apart from being a member of Crypto Valley Association, and CMTA, he is head of the working group at CVA on asset tokenisation. We will see that Florian has interest in music, intellectuel property rights and open source software. Florian has recently written an article on the legal aspects of the proof of stake protocol, and he will explain why the transition to staking might not be as easy as some people imagine. He also has suggestions to improve legal enforcement of smart contracts and suggestions for tokenisation of IP. Open an account at Blockfi ans claim your free BTC - click link below https://try.blockfi.com/partners-promo/?irclickid=yEXzTYXqfxyOT9N0WlXSvXJOUkEzxKzueQTxw40&irgwc=1&utm_source=Impact&utm_medium=2458178&utm_campaign=10568&utm_term=907782&utm_content=TEXT_LINK This podcast is edited by Mikhael Junod and produced by Mikhael Junod and Didier Borel. Copyright © *2020* *The Swiss Road to Crypto*, All rights reserved.

Florian Ducommun is a founding partner at the law firm HDC legal in Lausanne and founder of the legal factory a platform for streamlining legals process. Apart from being a member of Crypto Valley Association, and CMTA, he is head of the working group at CVA on asset tokenisation. We will see that Florian has interest in music, intellectuel property rights and open source software. Florian has recently written an article on the legal aspects of the proof of stake protocol, and he will explain why the transition to staking might not be as easy as some people imagine. He also has suggestions to improve legal enforcement of smart contracts and suggestions for tokenisation of IP. Open an account at Blockfi ans claim your free BTC - click link below https://try.blockfi.com/partners-promo/?irclickid=yEXzTYXqfxyOT9N0WlXSvXJOUkEzxKzueQTxw40&irgwc=1&utm_source=Impact&utm_medium=2458178&utm_campaign=10568&utm_term=907782&utm_content=TEXT_LINK This podcast is edited by Mikhael Junod and produced by Mikhael Junod and Didier Borel. Copyright © *2020* *The Swiss Road to Crypto*, All rights reserved.

Today our interview is with Lance Hasting of the California Manufacturers and Technology Association. The conversation begins with his background in the legislature and trade associations, and the history of the CMTA. Then the conversation turned to manufacturing in CA, focusing initially on safelymade.org, which organized PPE supplies and distributors across CA. He then discusses the impact of covid on manufacturing, regulation in CA, and how we need to adapt for climate change. Finally he discusses the upcoming election, and how CMTA  companies are all technology companies.  Follow us on Twitter and Facebook

Additional Show Notes and Transcript Coming Soon Tony Hans Email CMTA Website

Muaythai speciál s těmi nejpovolanějšími.

MentionsALinkerCMT Awareness MonthWebsite/Blog, Twitter, & Instagram HandleFacebook, @gayleweenie on InstagramName *Lisa WeinerDisorder InfoWhat is your disorder? *Charcot-Marie-Tooth diseaseHow To Vote By Mail In California: 2020 General Election: August 25, 2020 (full article detailed below).https://patch.com/california/across-ca/how-vote-mail-california-2020-general-election“Once your mailed-in ballot is completed, it can be inserted into the provided envelope and sent to your local county elections office.You can also return your ballot by:Bringing it in-person to any nearby polling place or elections office before 8 p.m. on Election Day, November 3.Dropping it into one of your county's ballot drop boxes before 8 p.m. on Election Day.Authorizing someone else to return the ballot on your behalf. (If you do this, you must fill out the authorization form on the back of the ballot envelope you receive.)If you are not yet registered to vote, you can register online here, up until October 19. California also offers same-day registration, which can be done on Election Day at your local polling place.If you need to change your address to vote by mail, you can:Write to your local county elections officialFill out this online application, print, sign, and date it, and then mail it to your county elections office. (Also available in Spanish, Chinese, Hindi, Japanese, Khmer, Korean, Tagalog, Thai, and Vietnamese)Or, fill out the application printed on the voter information guide, which is mailed to every voter by their county elections office before the electionVisit the California Secretary of State's website for more information about how to vote in this fall's General Election.”CA 2020 Election: Voting In Person; What To Know: September 30, 2020 (click link below for full article)https://patch.com/california/across-ca/ca-2020-election-voting-person-what-knowMain points:*Governor Gavin Newsom made an executive order to mail absentee ballots to every registered voter in California.Though everyone will get a ballot in the mail, some will inevitably need to visit a polling place for many reasons — for lost or damaged ballots or for language or disability assistance. Some will need to register last minute on Election Day, which state law allows at polling sites.In person voting: begins as early as October 31 and ends on election day, Tuesday, November 3, at 8 PM. There will be fewer polling places per county than usual, so as to limit spiraling lines/congestion and mitigate spread of COVID-19. Also, due to pandemic, many usual polling locations i.e., retirement homes, community centers and churches are closed.Find your polling place by using this form on the California Secretary of State's website. California Secretary of State, Elections Division, 1500 11th St., 5th Floor, Sacramento, CA 95814 Phone: (916) 657-2166, (800) 345-VOTE (8683), (800) 833-8683 (TTY/TDD) Website: www.sos.ca.gov/elections/Register to vote or check if your registration status is active here.If voting in person, you should bring your mailed ballot with you to your nearest polling place. Since all CA voters were mailed ballots this year, this is proof that you didn't already mail your ballot and vote twice.However, if you forget to bring your ballot to polling place, or it became lost in the mail, you may need to vote provisionally. This means that your vote may be subject to a screening. Officials may want to verify your registration status or confirm that it wasn't already mailed. With these extra steps, a vote may not be counted on Nov. 3, but it will eventually.Also, voters should arrive with the proper COVID-19 protective gear. Poll workers are instructed to keep their distance and wear masks. They will provide face coverings to voters who need them.Voting with a Disability: Federal law requires that people with disabilities have access to vote on Election Day.Federal law requires at least one accessible voting system in every in-person voting center. However, it's best to connect with your local election officials to confirm an accessible polling location in your area.If your assigned polling location is not accessible, you have the right to be reassigned to an accessible polling place or to be provided an alternative method of voting.If you encounter a barrier when you arrive, talk with a poll worker or election judge present to make accommodations.A person has the right to ask to vote curbside, in a car/vehicle if the polling place is not accessible.A person has the right to have a friend, family member, or polling staff help them to vote. The Voting Rights Act of 1964 states that any voter requiring assistance to vote because of a disability will have the ability to bring a person of their choice to assist them in casting their ballot. Though polling staff should be trained in accessible voting, that may not be reality at your polling location.A person also has the right to refuse help with voting if they don't need it.Other voting resources: For general and accurate voting information: https://vote.gov/ and https://www.healthyvoting.org/You can track your ballot on California's ballot tracker: https://california.ballottrax.net/voter/American Association of People with Disabilities; https://www.aapd.com/wp-content/uploads/2020/10/State-Voting-Guide-California.pdf (this is a thorough guide of voting resources including ones detailed below).To request remote accessible vote by mail, need to request by October 27. https://www.sos.ca.gov/elections/voting-resources/remote-accessible-vote-mailNational Association of the Deaf (NAD); American sign language (ASL) voting hotline: 301-818-VOTE or 301-818-8683; https://www.nad.org/asl-voter-hotline/National Federation of the Blind (NFB): they have voting information you can download in Word, braille, Word in Spanish, braille in Spanish, and a specific guide for young people, also in braille. They also have voter guide videos in English and Spanish. https://www.nfb.org/programs-services/center-excellence-nonvisual-access/national-center-nonvisual-election-3.Self advocates becoming empowered for voting and guardianship. Website includes informative videos on how to deal with potential voting problems at polling location. https://www.sabeusa.org/govoter/voting-info/voting-and-guardianship/.Autistic Self Advocacy Network (ASAN): A Self-Advocate's Guide to Voting in the U.S. https://autisticadvocacy.org/policy/toolkits/voting/California easy voter guide; https://easyvoterguide.org/Voter's Edge California: https://votersedge.org/caDisability Vote California: https://disabilityvoteca.org/Disability Rights California: for voting publications https://www.disabilityrightsca.org/resources/voting. Disability Rights California: 1831 K Street, Sacramento, CA 95811; Phone: 916-504-5800, 800-719-5798 (TTY), 800-776-5746 (Toll Free); info@disabilityrightsca.org; www.disabilityrightsca.org/Election protection hotline: 866-OUR-VOTE (866-687-8683); https://866ourvote.org/The Muscular Dystrophy Association (MDA), recently sat down with Pennsylvania Senator Bob Casey, about accessible voting and what he's doing in Congress to make voting more accessible for individuals living with disabilities. Click here to watch video: https://youtu.be/9e4w6bc5lkg . And, link for MDA‘s Advocacy Institute on accessible voting: https://strongly.mda.org/know-your-voting-rights-on-election-day-2020/.National conference on state legislators: voting info by state and how to restore voting right after a felony conviction. In 2016, California passed legislation allowing those in county jails to vote while incarcerated, but not those in state or federal prison. https://www.ncsl.org/research/elections-and-campaigns/felon-voting-rights.aspx.Attachments areaPreview YouTube video MDA Advocacy Institute Session 4: Accessible VotingMDA Advocacy Institute Session 4: Accessible VotingAt what age did your disorder become a daily issue? *29Who were you before your illness became debilitating? *I was a happy, healthy, young adult, recently moved in with my then-boyfriend, working full-time at a healthcare consulting company. Also, I had recently applied to masters public health program.(MPH) programs though was rejected from all 3 programs, where I applied. Though disappointed, I was still optimistic, and certain I'd find another way for career advancement or development.What would you do if you were not dealing with your disorder and/or disability? *Writing more, dancing, graduate school, traveling, volunteering in person, socializing a lot more with friends and family, having children (though can't anymore at age 49)... I did want to be a mother/have children.What would you like people to know about your daily life? *This is probably TMI, too much information but here's my answer:-): My daily life varies tremendously, depending on previous days activities, sleep, and the priorities to accomplish for the day. I frequently feel like a young person in an older person's body. Therefore, everyday tasks/activities often take longer for me, and utilize spoons, like taking a bath, getting dressed, putting shoes and braces on, etc. I often arrange MD or other health-related appointments, and sometimes transportation. I manage a multitude of healthcare paperwork, and receipts for medical deductions. Also, I usually stretch and do some movement each day. And like most people, I check and answer email, as well as read, research, shop and/or connect online. Though admittedly, I tend to find social media overwhelming and fatiguing, So, social media is usually my last priority. I'm definitely open to suggestions for mitigating social media fatigue. Typically, I prefer to text, email, call, FaceTime or zoom with close friends and family. Additionally, a couple of days a week I play mah-jongg with friends, and a couple of days a week I go to the local Peninsula Jewish Community Center (PJCC) for Pilates exercise or community events/activities, pre-COVID-19. I love to write, and free-write mostly for myself. I especially like writing personal essays and articles. I've written an article on caring for hands with CMT published on cmtausa.org, and CMTA's spring 2020 magazine. Despite hand challenges, I enjoy various arts and crafts. Before COVID-19, attended a few free adult arts and crafts classes/workshops. I've participated in a variety of volunteer projects over the years including, tutoring primary school-age kids, reading stories to preschoolers, participating in various consumer/market research studies and usability focus groups. I've organized and participated in many CMTA fundraising efforts, and in 2019, was a top individual fundraiser of all the annual CMTA walks across the country. Our annual SF/Bay Area September walk for CMT, usually located in Palo Alto, California, won't be taking place this year due to COVID-19. However, we will still fundraise online, and friends and family do their own walks. Last year, with the recommendation of San Mateo‘s Center For Independence and Disabled, Assistive Technology Coordinator, I worked with a local private high school for their Project Invent program. Along with other high schools across the country, each student group developed their technology device innovation for someone in the disabled community. Students interviewed and videotaped me for a couple of hours, as I told my story living with Charcot-Marie-Tooth disease. Then, I corresponded with their teacher via emails, as well as a couple Zoom calls with teacher and students. They developed a technology called Ruby, to automatically tie shoelaces through a click of the heel and/or handheld device/remote control. Because of COVID-19, students didn't have an opportunity to work with me after the prototype complete and test it. But, I saw a 3-D model they developed on the computer, during the virtual Project Invent Demo Day presentation. There were nine student teams. They had five judges from big tech companies around the country (i.e. Amazon) as well as the founder of Project Invent. Team Ruby were one of three runner up teams, winning a $500 prize to further test their product and try and bring to the marketplace. It was amazing seeing these brilliant and innovative kids! It was truly an honor to participate. Eventually, assuming we're able to be together in groups again, goal is to meet with high school student team, to test the prototype. The following link explains and shows a 3-D model of project: https://www.csus.org/news-detail?pk=1102892What would make living and moving in the world easier for you? *Packaging not so difficult to open on everyday items! I have heard you say on this podcast, that Uber and Lyft should offer reduced prices for disabled customers. I would broaden that to other company services, as well as movie theaters, live theater productions, and concerts, and sporting events. If had more energy, I'd like to aggressively advocate for increased opportunities for low-income housing, especially for young adults to middle-age, with physical disabilities, and include such offerings as rehabilitation pool, group activities, etc. One other thing is new innovations/technology for mobility...ways to be more mobile and active. Have you heard of the Alinker, https://www.thealinker.com/? It's not right for everyone, but a fabulous mobility aid developed by an engineer in the Netherlands.. It's somewhat pricey, and not covered by Medicare or most insurance plans. However, it's extremely well-made, and I'd love to have one

Safely Making California – that’s what we’re talking about in this episode of Made in California. During this virtual road trip we've visited small businesses across our state, learning what they're doing to keep not only their customers safe, but also their employees as they work to reopen. A main part of that conversation is an acronym that has come to mean so much to ALL Californians. PPE, or personal protective equipment, is a vital part of our reopening process and that’s why today’s episode is a conversation around a new initiative announced by Governor Newsom. A new partnership between the State of California, the California Manufacturers & Technology Association (CMTA), and Autodesk has created the "Safely Making California” Marketplace to help fill a critical gap for all sectors during the COVID-19 pandemic. The program will connect CMTA member manufacturers and other manufacturers to employers who have the need to purchase non-medical grade PPE.

Life insurance can have far more benefits than covering the cost of your departure. It also has living benefits and independent insurance agent Jamarr John Johnson stopped by to share some of them with us.

Can California lead a US manufacturing renaissance? Dorothy Rothrock believes we can, learn why in Episode 6 of the manufacturing advocates podcast.Click to view: show page on Awesound

Why does it take so long to drive to work? When is that next bus coming? These are the questions Baltimoreans ask themselves daily as they deal with one of the most snarled transportation situations in the nation. Join us on March 21, when we’ll sit down with Central Maryland Transportation Alliance’s Brian O’Malley to discuss why CMTA graded Baltimore and Central Maryland’s transportation a “D”, and what key issues in the state legislature could change your commute next year. After 10 minutes of overview, we’ll take your questions.

 The Soy Deception is a book that will show you how the soy industry has used half-truths and deceptive advertising in order to promote soy as a healthy food.  Soy ingestion can cause a myriad of severe health issues such as cancer and thyroid disorders as well as other endocrine problems.  Read this book to understand why you should avoid soy in your diet and find out which forms of soy are the most dangerous.   The authors of this book: David Brownstein, M.D. and Sheryl Shenefelt, C.N. CMTA are my honored guests for this segment of InTouch Interviews with Annette Rochelle Aben.  David Brownstein, M.D. is a Board Certified family practitioner who utilizes the best of conventional as well as holistic medicine.  Dr. Brownstein has authored ten books including: Drugs That Don't Work and Natural Therapies That Do – Iodine: Why You Need It, Why You Can't Live Without it – Overcoming Arthritis – Overcoming Thyroid Disorders – Salt Your Way To Health – The Guide to a Dairy-Free Diet – The Guide to a Gluten-Free Diet, The Guide to Healthy Eating – The Miracle of Natural Hormones.   Dr. Brownstein is the Medical Director of the Center for Holistic Medicine in West Bloomfield, MI.  www.drbrownstein.com  Sheryl Shenefelt, C.N., CMTA is a Certified Nutritionist, Certified Metabolic Typing Advisor and the co-author to The Guide to a Dairy_free Diet, The Guide to a Gluten-Free Diet and The Guide to Healthy Eating with Dr. Brownstein.  She has a passion for studying and researching about food and nutrition, as well as teaching those desiring to implement a more natural and organic lifestyle. Sheryl's website is aplacetobe.com call in your questions and comments during this show is 646-378-0378.

What is your knowledge of your business as an Indie Artist. Tonight we will Focus "Rural Rhythm Records Christian Country Gospel. Our music will come from Two CO's "Sounds like Heaven To Me" By Lou Reid And Carolina" and "Looking TO The Light "Song Of Faith' by Rick Lang. Join us for powerful Blue Grass Gospel Music. Who is the RIAA, GMA, GMC, SAGMA, RAC, CMTA, IMMERCE, How much do you know about Social Networks? How many social networks Are you on today. What is a music trade association? Let's talk and Listen call in 1-619-639-4634 and learn about the your business of gospel music. You have made that new CD. How to Distribute a Gospel CD what are the 12 steps.to success?

Gospel Music and The Media Today. Genres/Styles History. What Gospel Music Associations have to do with Genres/Styles?. What about membership in a music associations what do you get for being a member? Call 1-619-639-4634 and tell us about what music association your are a member and how has it help you as a music artist or records company or studio how has it help you in any way. The business of gospel music. Selling the word The Bible Book Store How often do you go to a gospel Music Store to buy your music Bible Sunday School Books and all the tools for learing about God. How big a Business The CBA and Christian Business. What is the Real Truth about Gospel Music and The Media Today. How Well do you know the Gospel Music Business? Listen to Howcee Music Powerful Gospel Music from Indie Artist.