Podcasts about Porphyria

Group of inherited metabolic disorders

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Best podcasts about Porphyria

Latest podcast episodes about Porphyria

The Metal Maniacs Podcast
7 New Metal Bands to Check out : The Metal Maniacs Podcast-98

The Metal Maniacs Podcast

Play Episode Listen Later May 20, 2025 95:27


Buckle up and crank the gain to 11—it's time for the 98th episode of *The Metal Maniacs Podcast, and we're coming in hot with Reaction Series #16, where we dissect, analyze, and thrash along with some of the most devastating tracks from up-and-coming underground metal acts.In this installment, Jay and Modd return to the war room with fresh ears and heavier opinions, reacting in real time to a batch of listener-submitted bands, genre-bending newcomers, and pit-ready anthems that demand your full attention. From Michigan to Massachusetts to the infernal corners of YouTube, this episode has it all—death metal, alternative metal, deathcore, and instrumental madness.

MonsterTalk
S04E01 Vampires: Dead Paole

MonsterTalk

Play Episode Listen Later Oct 7, 2024 40:22


We kick off our Vampire October with the story of Arnold Paole and we're joined by Matt Baxter. This story appeared in the 1979 edition of Usborne's Haunted Houses, Ghosts, and Spectors. Arnold PaoleLee Illis 1964 - Porphyria and Werewolves1985 - David Dolphin - NYT article on Porphyria and VampiresPenanggal ManananggalBecome a supporter of this podcast: https://www.spreaker.com/podcast/monstertalk--6267523/support.

Voices of Today
Dramatic Romances sample

Voices of Today

Play Episode Listen Later Jul 6, 2024 3:30


The complete audiobook is available for purchase at Audible.com: voicesoftoday.net/browning Dramatic Romances By Robert Browning With introduction and notes by Charlotte Porter and Helen A. Clarke Narrated by Denis Daly The dramatic romance was a poetic form particularly favored by Robert Browning. This collection of 25 poems includes many of the poet's most celebrated efforts in this genre. Each of these poems is essentially a monologue or imagined conversation by a character recalling a life-changing event. The particular occurrence may be related to war (Incident of the French Camp), love (The Last Ride Together), murder (Porphyria's Lover), or even a humorous fable (The Pied Piper of Hamelin.) In each case the narrative is delivered in Browning's characteristically bumpy versification, leading to the delineation of powerfully evocative pictures and the creation of some of the most memorable lines in English poetry.

Living Full Out Show
Discover How When you see Things Differently you are Free to Live Full Out (1)

Living Full Out Show

Play Episode Listen Later May 11, 2024 52:52


Show Theme: See Things DifferentlyShow Title: Discover How When you see Things Differently you are Free to Live Full OutEpisode: 2024.10.19The Living Full Out show with Nancy Solari encourages you to see things differently. Life can throw curve balls in your direction. Instead of getting discouraged, use these setbacks as opportunities for growth and a lesson. By shifting your perspective, you begin to see the bright side of every situation. Our first caller, Janae, is wondering how to foster connections with new people as she is graduating college and moving to a new place. Nancy advises her to be herself. By owning your individuality you will begin to meet people in a way that is natural to you. Our inspirational guest, Emily Graham was able to see things differently in order to move forward in her own life. Emily lost her seven year old son Cameron to a hereditary blood disorder on Christmas of 2015. Emily struggled to navigate life after losing him and thought about ending it all. Through reworking the way she saw life, she was able to build a future for herself that felt good. When it comes to the trials and tribulations life might throw, try to take a step back and realize that everything always works out in the end. See what you could learn from it and examine what other doors might have opened because of it. By focusing on the positive side of things, you allow yourself to begin living full out! Become a supporter of this podcast: https://www.spreaker.com/podcast/living-full-out-show--1474350/support.

BetterHealthGuy Blogcasts
Episode #200: The Sensitive Patient's Healing Guide with Dr. Neil Nathan, MD

BetterHealthGuy Blogcasts

Play Episode Listen Later May 2, 2024 134:10


Why You Should Listen:  In this episode, you will learn about a healing guide to support sensitive patients in restoring health. About My Guest: My guest for this episode is Dr. Neil Nathan.  Neil Nathan, MD has been practicing medicine for 50 years.  He has written several books including: "Healing is Possible: New Hope for Chronic Fatigue, Fibromyalgia, Persistent Pain, and Other Chronic Illnesses" and "On Hope and Healing: For Those Who Have Fallen Through the Medical Cracks".   He has been working to bring an awareness that mold toxicity is a major contributing factor for patients with chronic illness and lectures internationally on this subject which led to the publication of his eBook "Mold and Mycotoxins: Current Evaluation and Treatment", and then to his best-selling book "Toxic: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness".   His 2021 book "Energetic Diagnosis" is a discussion of the value of intuition and energetic devices as an aid to both diagnosis and treatment of medical illness. His new book "The Sensitive Patient's Healing Guide" was released in early 2024.  He is currently providing mentorship in the treatment of chronic inflammatory illness to approximately 150 physicians, with Jill Crista, ND.  Key Takeaways: What is the difference between sensitivity and toxicity? What is the limbic, vagal, mast cell triad? What tools can be used to support the limbic system and vagus nerve? How might structure be supported without exogenous collagen supplementation? What are the many roles of Epsom Salt baths in working with sensitive patients? What are some potential triggers of Spiky-Leaky Syndrome? What is a Homeostasis Associated Molecular Pattern (HAMP)? Is urine mycotoxin testing a clinically helpful tool? Are there any tests for exploring fungal colonization? What tools have emerged in the treatment of Lyme disease? Is 5G really a problem when it comes to EMF sensitivity? Does working in the mental/emotional, limbic, and vagal realm support detoxification? Is the concern about oxalates more about dietary exposure or fungal colonization? How might salicylate intolerance be approached? What role do structural issues play in sensitive patients? Can benzodiazepine withdrawal be another contributor in sensitization? What are some of the factors that may impact thiamine? What is the role of RANTES as a marker of inflammation? Can people be allergic to their own hormones? Is carbon monoxide a sensitizing agent? Does treating Bartonella potentially serve as a trigger for secondary porphyria? What interventions may support those dealing with spikeopathies? What are some of the many beneficial properties of ketamine in working with sensitive patients? Connect With My Guest:  http://NeilNathanMD.com Related Resources:  Book: The Sensitive Patient's Healing Guide Interview Date: April 25, 2024 Transcript: To review a transcript of this show, visit https://BetterHealthGuy.com/Episode200. Additional Information: To learn more, visit https://BetterHealthGuy.com. Disclaimer:  The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority. 

JIMD Podcasts
Comorbidity In acute porphyria

JIMD Podcasts

Play Episode Listen Later Oct 27, 2023 19:02


It's a 2-for-1 podcast as Dr Mattias Lissing of the Karolinska Institute joins us to discuss two recent papers looking at cancer risk, comorbidity and mortality in the acute porphyrias. Risk for incident comorbidities, nonhepatic cancer and mortality in acute hepatic porphyria: A matched cohort study in 1244 individuals Mattias Lissing, et al https://doi.org/10.1002/jimd.12583 Porphyrin precursors and risk of primary liver cancer in acute intermittent porphyria: A case–control study of 188 patients Mattias Lissing, et al https://doi.org/10.1002/jimd.12676

Rooted
Vampiric Vulgarities & Wicked Worms- Garlic

Rooted

Play Episode Listen Later Oct 25, 2023 22:50


This week we continue our potion mini-series with everyone's favorite Allium- Garlic! We'll dig in to all of the history you're hoping for and then some...everything from real-life vampires, piggish party crashers, and anti-parasitic palate cleansers. If you like episodes heavy on history AND science, this one is for you! Links:  Leek Episode Snowdrop Episode Annihilation Episode Frenndiagram  Tea Time Oddities  Sources:  https://nutritionalgeography.faculty.ucdavis.edu/garlic/#:~:text=the%20construction%20overseers.-,Garlic%20has%20been%20symbolic%20of%20courage%20and%20strength%20since%20remote,in%20order%20to%20feed%20Hecate. GARLIC ESCAPES BLOG-https://garlicescapes.wordpress.com/2013/09/12/a-greek-mythology-lesson/ https://en.wikipedia.org/wiki/Moly_(herb) https://carnegiemnh.org/booseum-vampires/#:~:text=Garlic%2C%20specifically%20the%20chemical%20compound,would%20“kill”%20a%20vampire. https://torontogarlicfestival.ca/vampires-hate-garlic/ https://en.wikipedia.org/wiki/Ungnyeo https://en.wikipedia.org/wiki/Garlic https://www.ncbi.nlm.nih.gov/books/NBK24649/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6023319/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4468812/ https://www.mayoclinic.org/diseases-conditions/porphyria/symptoms-causes/syc-20356066#:~:text=Porphyria%20(por%2DFEAR%2De,the%20body%27s%20organs%20and%20tissues. https://www.mayoclinic.org/diseases-conditions/porphyria/symptoms-causes/syc-20356066#:~:text=Porphyria%20(por%2DFEAR%2De,the%20body%27s%20organs%20and%20tissues. https://nyamcenterforhistory.org/2017/05/31/the-history-of-garlic-from-medicine-to-marinara/#:~:text=Since%20we%20now%20know%20bubonic,most%20of%20the%2019th%20century. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3954349/ https://www.americastestkitchen.com/cooksillustrated/how_tos/5668-why-acid-turns-garlic-blue#:~:text=Blue%20garlic%20may%20look%20off,are%20responsible%20for%20garlic's%20flavor). Looking for more Rooted Content? ⁠⁠Check out our corner of the internet⁠⁠! You'll find our transcripts, show notes, and so much more. *Disclaimer- This content is for entertainment purposes only. I am just a lady who likes plants, which in no way qualifies me to give you advice on well...anything, really. As always, please consult with your medical care team before making any changes to your diet or medications. * --- Support this podcast: https://podcasters.spotify.com/pod/show/rooted-podcast/support

The Medbullets Step 2 & 3 Podcast
Heme | Acute Intermittent Porphyria

The Medbullets Step 2 & 3 Podcast

Play Episode Listen Later Sep 18, 2023 5:40


In this episode, we review the high-yield topic of ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Acute Intermittent Porphyria⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠from the Heme section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets

Sorry If We Made It Weird
Po-tay-toe Pah-tah-toe, Tomato Grape

Sorry If We Made It Weird

Play Episode Listen Later Sep 11, 2023 44:25


In this weeks episode Nicole covers the El Tomatino festival that takes place in Spain every year and we've determined it's on our Weirdo Bucketlist. Liv covers the diseases and illnesses that many scholars believe could have contributed to the vampire panic of the 17th and 18th centuries. Sources:https://www.ticketstomatina.com/i/tomatina/334/tomatina-ticket-2023--paella--drink---partyhttps://wtop.com/trending-now/2023/08/revelers-hurl-tomatoes-at-each-other-and-streets-awash-in-red-pulp-in-spanish-towns-tomatina-party/https://www.passporthealthusa.com/2022/03/disease-and-dracula-origins-of-the-vampire-myth/https://blog.bloodworksnw.org/the-science-behind-vampires/#:~:text=Porphyria&text=Known%20as%20%E2%80%9Cthe%20vampire%20disease,sensitivity%20to%20sun%20and%20light.Thank you so much for showing up and listening each week, we couldn't put out the content we do without the support of our audience. Be sure to follow us on our social media:Instagram and Facebook: SorryIfWeMadeItWeirdTwitter: @WeMadeItWeirdYouTube: SorryIfWeMadeItWeirdTiktok: siwmiw_podRep your favorite weirdos and get your SIWMIW merch here: https://www.sorryifwemadeitweird.com/If you'd like to make a recurring monthly donation AND get access to exclusive bonus content you can join us on Patreon here: https://www.patreon.com/sorryifwemadeitweird?fan_landing=true&view_as=publicHave a weird personal story you'd like to share? Or perhaps a topic recommendation or drink recipe you'd like us to try? Or maybe you just want to ask us a question or comment on a previous episode? Either way we love hearing from you! Send us an email at: sorryifwemadeitweird@gmail.com.Intro and outro music by: cascreativearts on Fiverr

JIMD Podcasts
Pregnancy in acute porphyria

JIMD Podcasts

Play Episode Listen Later Jul 21, 2023 24:41


Dr Daphne Vassiliou joins the podcast to discuss past concerns about pregnancy in porphyria and how more data has reassured regarding safety and hi-lighted areas for increased vigilance. Maternal and fetal outcomes in acute hepatic porphyria: A Swedish National Cohort Study Ängla Mantel, et al https://doi.org/10.1002/jimd.12616

JIMD Podcasts
Key terms and definitions In porphyria

JIMD Podcasts

Play Episode Listen Later May 26, 2023 18:05


Professor Sverre Sandberg joins the podcast to discuss recent work looking to establish key terms and definitions in the acute porphyrias, and explains how this will ultimately help bring forward treatment and research. EPNet website: http://porphyria.eu Key Terms and Definitions in Acute Porphyrias: Results of an International Delphi Consensus Led by the European Porphyria Network Penelope E. Stein, et al https://doi.org/10.1002/jimd.12612

radYU
Korkunun Anatomisi #7 - Gecenin Cocukları: Vampirler

radYU

Play Episode Listen Later Mar 29, 2023 18:12


Bu bölümde vampirlerin izini sürüyor, vampir inanışlarının ilk nerede, nasıl ve neden ortaya çıktığını öğreniyoruz. Lamaştu ve Vlad Dracula bu bölümde sizleri bekliyor. Görüş, öneri, ekstra içerikler ve anketler için Instagram'da "@korkununanatomisi" sayfasına gelin! Dinlemek istediğiniz başka korku yazarları veya konular için de yazabilirsiniz. İçerik uyarısı: ölüm, kan, hastalık. Kaynak: Barb Karg, Arjean Spaite, Rick Sutherland, “Her Yönüyle Vampir”, 2011, Arkadaş Yayınevi. Gülay Er Pasin, “Vampirin Kültür Tarihi”, 2013, Ayrıntı Yayınevi. Matthew Beresford “İfritlerden Dracula'ya Modern Vampir Mitinin Doğuşu”, 2008, Doğan Kitap. Porfiri hastalığı https://www.queensu.ca/gazette/stories/vampire-myths-originated-real-blood-disorder#:~:text=Porphyria%20is%20an%20inherited%20blood,origin%20of%20the%20vampire%20myth Brooklyn Museum, "Alukah". https://www.brooklynmuseum.org/eascfa/dinner_party/heritage_floor/alukah Matthew Wills, “Do Vampires Really Exist?”, JStor, 2021. https://daily.jstor.org/do-vampires-really-exist/#:~:text=Jean%2DJacques%20Rousseau%20wrote%2C%20%E2%80%9C,superiors%20to%20investigate%20the%20rumors⁠ Jure Grando https://en.wikipedia.org/wiki/Jure_Grando#:~:text=Jure%20Grando%20Alilovi%C4%87%20or%20Giure,a%20vampire%20and%20a%20warlock⁠ FlutTV, “VAMPİR - Böyle Buyurdu Kültür - Prof. Nevzat Kaya - B08” https://www.youtube.com/watch?v=O_10GSjKDOY SonGulyabani-MehmetBerkYaltırık, “Dracula Efsanesi 1: Vlad'ın Kökleri ve Eflak'ta Türkler #tarih” https://www.youtube.com/watch?v=9axbwmzy7cE&t=159s⁠ ⁠https://radyu.yasar.edu.tr

The Seen and the Unseen - hosted by Amit Varma
Ep 314: The Life and Times of Jerry Pinto

The Seen and the Unseen - hosted by Amit Varma

Play Episode Listen Later Jan 30, 2023 484:32


Poet, novelist, translator, journalist, crime fiction writer, children's book author, teacher, math tutor: now here is a man who contains multitudes. Jerry Pinto joins Amit Varma in episode 314 of The Seen and the Unseen to talk about his life and learnings. (FOR FULL LINKED SHOW NOTES, GO TO SEENUNSEEN.IN.) Also check out: 1. Jerry Pinto on Instagram, Amazon and his own website. 2. Em and the Big Hoom -- Jerry Pinto. 3. The Education of Yuri -- Jerry Pinto. 4. Murder in Mahim -- Jerry Pinto. 5. A Book of Light -- Edited by Jerry Pinto. 6. Baluta -- Daya Pawar (translated by Jerry Pinto). 7. I Have Not Seen Mandu -- Swadesh Deepak (translated by Jerry Pinto). 8. Cobalt Blue -- Sachin Kundalkar (translated by Jerry Pinto). 9. The Life and Times of Shanta Gokhale -- Episode 311 of The Seen and the Unseen. 10. ‘Sometimes I feel I have to be completely invisible as a poet' -- Jerry Pinto's interview of Adil Jussawalla. 11. A Godless Congregation — Amit Varma. 12. The Rooted Cosmopolitanism of Sugata Srinivasaraju — Episode 277 of The Seen and the Unseen. 13. The Big Questions — Steven E Landsburg. 14. Unlikely is Inevitable — Amit Varma. 15. The Law of Truly Large Numbers. 16. The Gentle Wisdom of Pratap Bhanu Mehta — Episode 300 of The Seen and the Unseen. 17. Young India — Episode 83 of The Seen and the Unseen (w Snigdha Poonam). 18. Dreamers — Snigdha Poonam. 19. The Loneliness of the Indian Man — Episode 303 of The Seen and the Unseen (w Nikhil Taneja). 20. The History Boys -- Alan Bennett. 21. The Connell Guide to How to Write Well -- Tim de Lisle. 22. Thinking Better: The Art of the Shortcut -- Marcus Du Sautoy. 23. Dead Poet's Society -- Peter Weir. 24. A Mathematician's Apology -- GH Hardy. 25. The Man Who Knew Infinity -- Robert Kanigel. 26. David Berlinski and Martin Gardner on Amazon, and Mukul Sharma on Wikipedia.. 27. Range Rover -- The archives of Amit Varma's column on poker for The Economic Times. 28. Luck is All Around -- Amit Varma. 29. Stoicism on Wikipedia, Stanford Encyclopedia of Philosophy and Britannica. 30. House of the Dead —  Fyodor Dostoevsky. 31. Black Beauty -- Anna Sewell. 32. Lady Chatterley's Lover -- DH Lawrence. 33. Mr Norris Changes Trains -- Chistopher Isherwood. 34. Sigrid Undset on Amazon and Wikipedia. 35. Some Prefer Nettles -- Junichiro Tanizaki. 36. Things Fall Apart — Chinua Achebe. 37. Jane Austen and Thomas Hardy on Amazon. 38. Orientalism -- Edward Said. 39. Edgar Allan Poe, Nathaniel Hawthorne and Kurt Vonnegut on Amazon. 40. Johnny Got His Gun -- Dalton Trumbo. 41. Selected Poems -- Kamala Das. 42. Collected Poems -- Kamala Das. 43. In Which Annie Gives It Those Ones — Pradip Krishen. 44. Dance Dance For the Halva Waala — Episode 294 of The Seen and the Unseen (w Jai Arjun Singh and Subrat Mohanty). 45. Tosca -- Giacomo Puccini. 46. Civilisation by Kenneth Clark on YouTube and Wikipedia. 47. Archives of The World This Week. 48. Dardi Rab Rab Kardi -- Daler Mehndi. 49. Is Old Music Killing New Music? — Ted Gioia. 50. Mother India (Mehboob Khan) and Mughal-E-Azam (K Asif). 51. A Meditation on Form — Amit Varma. 52. Sara Rai Inhales Literature — Episode 255 of The Seen and the Unseen. 53. Collected Poems — Mark Strand. 54. Forgive Me, Mother -- Eunice de Souza. 55. Porphyria's Lover -- Robert Browning. 56. Island -- Nissim Ezekiel. 57. Paper Menagerie — Ken Liu. 58. Jhumpa Lahiri on Writing, Translation, and Crossing Between Cultures — Episode 17 of Conversations With Tyler. 59. The Notebook Trilogy — Agota Kristof. 60. Amitava Kumar Finds the Breath of Life — Episode 265 of The Seen and the Unseen. 61. The Blue Book: A Writer's Journal — Amitava Kumar. 62. Nissim Ezekiel on Amazon, Wikipedia and All Poetry. 63. Adil Jussawalla on Amazon, Wikipedia and Poetry International. 64. Eunice de Souza on Amazon, Wikipedia and Poetry International. 65. Dom Moraes on Amazon, Wikipedia and Poem Hunter. 66. WH Auden and Stephen Spender on Amazon. 67. Pilloo Pochkhanawala on Wikipedia and JNAF. 68. Arvind Krishna Mehrotra on Amazon, Wikipedia and Poetry Foundation. 69. Amar Akbar Anthony -- Manmohan Desai. 67. Ranjit Hoskote on Amazon, Instagram, Twitter, Wikipedia and Poetry International. 71. Arundhathi Subramaniam on Amazon, Instagram, Wikipedia, Poetry International and her own website. 72. The Red Wheelbarrow -- William Carlos Williams. 73. Mary Oliver's analysis of The Red Wheelbarrow. 74. A Poetry Handbook — Mary Oliver. 75. The War Against Cliche -- Martin Amis. 76. Seamus Heaney on Amazon, Wikipedia and Poetry Foundation. 77. The world behind 'Em and the Big Hoom' -- Jerry Pinto interviewed by Swetha Amit. 78. Jerry Pinto interviewed for the New York Times by Max Bearak. 79. Salman Rushdie, Amitav Ghosh and GV Desani on Amazon. 80. Episodes of The Seen and the Unseen on the creator ecosystem with Roshan Abbas, Varun Duggirala, Neelesh Misra, Snehal Pradhan, Chuck Gopal, Nishant Jain, Deepak Shenoy and Abhijit Bhaduri. 81. Graham Greene, W Somerset Maugham and Aldous Huxley on Amazon. 82. Surviving Men -- Shobhaa De. 83. Surviving Men -- Jerry Pinto. 84. The Essays of GK Chesterton. 85. The Life and Times of Nilanjana Roy — Episode 284 of The Seen and the Unseen. 86. City Improbable: Writings on Delhi -- Edited by Khushwant Singh. 87. Bombay, Meri Jaan -- Edited by Jerry Pinto and Naresh Fernandes. 88. The Life and Times of Urvashi Butalia — Episode 287 of The Seen and the Unseen. 89. Films, Feminism, Paromita — Episode 155 of The Seen and the Unseen (w Paromita Vohra). 90. Wanting -- Luke Burgis. 91. Kalpish Ratna and Sjowall & Wahloo on Amazon. 92. Memories and Things — Episode 195 of The Seen and the Unseen (w Aanchal Malhotra). 93. Ashad ka Ek Din -- Mohan Rakesh. 94. Anna Karenina -- Leo Tolstoy (translated by Constance Garnett). 95. Gordon Lish: ‘Had I not revised Carver, would he be paid the attention given him? Baloney!' -- Christian Lorentzen.. 96. Sooraj Barjatya and Yash Chopra. 97. The Life and Times of Mrinal Pande — Episode 263 of The Seen and the Unseen. 98. Don't think too much of yourself. You're an accident — Amit Varma. 99. Phineas Gage. 100. Georges Simenon on Amazon and Wikipedia.. 101. The Interpreter -- Amit Varma on Michael Gazzaniga's iconic neuroscience experiment. 102. The Life and Times of Abhinandan Sekhri — Episode 254 of The Seen and the Unseen.. 103. Madame Bovary -- Gustave Flaubert. 104. Self-Portrait — AK Ramanujan. 105. Ivan Turgenev, Ryu Murakami and Patricia Highsmith on Amazon. 106. A Clockwork Orange -- Anthony Burgess. 107. On Exactitude in Science — Jorge Luis Borges. 110. Playwright at the Centre: Marathi Drama from 1843 to the Present — Shanta Gokhale. 111. Kubla Khan -- Samuel Taylor Coleridge. 112. Girish Shahane, Naresh Fernandes, Suketu Mehta, David Godwin and Kiran Desai. 113. The Count of Monte Cristo -- Alexandre Dumas. 114. Pedro Almodóvar and Yasujirō Ozu. 115. The Art of Translation — Episode 168 of The Seen and the Unseen (w Arunava Sinha). 116. The Lives of the Poets -- Samuel Johnson. 117. Lives of the Women -- Various authors, edited by Jerry Pinto. 118. Lessons from an Ankhon Dekhi Prime Minister — Amit Varma. 119. On Bullshit — Harry Frankfurt. 120. The Facts Do Not Matter — Amit Varma. 121. Beware of the Useful Idiots — Amit Varma. 122. Modi's Lost Opportunity — Episode 119 of The Seen and the Unseen (w Salman Soz). 123. Kesavananda Bharati v. State of Kerala. 124. The Importance of Data Journalism — Episode 196 of The Seen and the Unseen (w Rukmini S). 125. Rukmini Sees India's Multitudes — Episode 261 of The Seen and the Unseen (w Rukmini S). 126. Pramit Bhattacharya Believes in Just One Ism — Episode 256 of The Seen and the Unseen. 127. Listen, The Internet Has SPACE -- Amit Varma.. 128. Fixing Indian Education — Episode 185 of The Seen and the Unseen (w Karthik Muralidharan). 129. The Reflections of Samarth Bansal — Episode 299 of The Seen and the Unseen. 130. The Saturdays -- Elizabeth Enwright. 131. Summer of My German Soldier -- Bette Greene. 132. I am David -- Anne Holm. 133. Tove Jannson and Beatrix Potter on Amazon. 134. The Hobbit and The Lord of the Rings -- JRR Tolkien. 135. Darkness Visible: A Memoir of Madness -- William Styron. 136. An Unquiet Mind: A Memoir of Moods and Madness -- Kay Redfield Jamison. 137. Searching for Swadesh -- Nirupama Dutt.. 138. Parsai Rachanawali -- Harishankar Parsai. 139. Not Dark Yet (official) (newly released outtake) -- Bob Dylan.. 140. How This Nobel Has Redefined Literature -- Amit Varma on Dylan winning the Nobel Prize.. 141. The New World Upon Us — Amit Varma. 142. PG Wodehouse on Amazon and Wikipedia. 143. I Heard the Owl Call My Name -- Margaret Craven. 144. 84, Charing Cross Road -- Helen Hanff. 145. Great Expectations, Little Dorrit and Bleak House -- Charles Dickens. 146. Middlemarch -- George Eliot. 147. The Pillow Book -- Sei Shonagon. 148. The Diary of Lady Murasaki -- Murasaki Shikibu. 149. My Experiments With Truth -- Mohandas Gandhi. 150. Ariel -- Sylvia Plath. 151. Jejuri -- Arun Kolatkar. 152. Missing Person -- Adil Jussawalla. 153. All About H Hatterr -- GV Desani. 154. The Ground Beneath Her Feet -- Salman Rushdie. 155. A Fine Balance -- Rohinton Mistry. 156. Tales from Firozsha Baag -- Rohinton Mistry. 157. Amores Perros -- Alejandro G Iñárritu. 158. Samira Makhmalbaf on Wikipedia and IMDb. 159. Ingmar Bergman on Wikipedia and IMDb. 160. The Silence, Autumn Sonata and Wild Strawberries - Ingmar Bergman. 161. The Mahabharata. 162. Yuganta — Irawati Karve. 163. Kalyug -- Shyam Benegal. 164. The Hungry Tide -- Amitav Ghosh. 165. On Hinduism and The Hindus -- Wendy Doniger. 166. I, Lalla: The Poems of Lal Dĕd — Lal Dĕd (translated by Ranjit Hoskote). 167. The Essential Kabir -- Arvind Krishna Mehrotra. 168. The Absent Traveller -- Arvind Krishna Mehrotra. 169. These My Words: The Penguin Book of Indian Poetry -- Edited by Eunice de Souza and Melanie Silgardo. This episode is sponsored by CTQ Compounds. Check out The Daily Reader and FutureStack. Use the code UNSEEN for Rs 2500 off. Check out Amit's online course, The Art of Clear Writing. And subscribe to The India Uncut Newsletter. It's free! Episode art: ‘He is Reading' by Simahina.

High Yield Family Medicine
#19 - Red Blood Cell Disorders

High Yield Family Medicine

Play Episode Listen Later Jan 26, 2023 57:28


$5 Q-BANK: https://www.patreon.com/highyieldfamilymedicine Intro 0:30, Sickle cell anemia 1:34, Thalassemia 9:03, Hereditary spherocytosis 15:36, G6PD deficiency 17:38, Pyruvate kinase deficiency 19:27, Microangiopathic hemolytic anemia 20:08, Autoimmune hemolytic anemia 24:56, Paroxysmal nocturnal hemoglobinuria 26:59, Blood transfusion reactions 28:31, Drug-induced hemolysis 30:05, Malaria 30:42, Babesiosis 31:47, Iron deficiency anemia 32:34, Megaloblastic anemia 35:34, Lead poisoning 37:59, Porphyria 39:07, Sideroblastic anemia 40:01, Aplastic anemia 41:23, Polycythemia 45:24, Methemoglobinemia 46:34, Carbon monoxide poisoning 47:56, Hemophagocytic lymphohistiocytosis 48:48, Practice questions 49:34

Biopedia
60- Porphyria

Biopedia

Play Episode Listen Later Dec 25, 2022 4:26


In today's episode, we revisit an old blog post from all the way back in January 2021. George III of the United Kingdom is probably the person most famously associated with porphyria. However, what isn't as often discussed is what exactly it is. Moreover, as we will introduce in today's episode, it isn't just George Hanover who was affected with the condition; his wider family seems to have suffered from it too. We don't touch on this that much in the episode, but it in fact seems to stretch back to Peter I of Bourbon in the 14th century... Sources for this episode: 1) Cussans, T. (2017), The Times Kings & Queens of the British Isles: A History of Monarchy. Marlborough: Times Books Ltd. 2) Dean, G. and Barnes, H. D. (1955), The Inheritance of Porphyria. British Medical Journal 2(4931): 89-94. 3) Hurst, L. C. (1982), Porphyria revisited. Medical History 26(2): 179-182. 4) Macalpine, I., Hunter, R. and Rimington, C. (1968), Porphyria in the Royal Houses of Stuart, Hanover and Prussia: A Follow-up Study of George III's Illness. British Medical Journal 1: 7-18. 5) Roy, R., New Scientist (2011), Dracula's disease (online) [Accessed 11/12/2022]. 6) Author unknown, British Liver Trust (date unknown), Porphyria (online) [Accessed 11/12/2022]. 7) Author unknown, Genetics Home Reference (2016), porphyria (online) [Accessed 11/12/2022 via Internet Archive]. 8) Author unknown, Wikipedia (date unknown), Peter I, Duke of Bourbon (online) [Accessed 11/12/2022]. NOTE: Original access dates for webpages weren't listed on my blog post, so dates are for pre-podcast access.

JIMD Podcasts
Diagnostics, EXPLORE B and POWER in Porphyria

JIMD Podcasts

Play Episode Listen Later Dec 9, 2022 39:48


Kristen Wheeden of the United Porphyrias Association joins as podcast co-host to ask David Cassiman, Pieter Vermeersch and Amy Dickey about improving diagnostics in porphyria and the outcomes of the EXPLORE B and POWER surveys exploring quality of life. Development and validation of diagnostic algorithms for the laboratory diagnosis of porphyrias Stefanie Lefever, et al https://doi.org/10.1002/jimd.12545 EXPLORE B: A prospective, long-term natural history study of patients with acute hepatic porphyria with chronic symptoms David Cassiman, et al https://doi.org/10.1002/jimd.12551 Quantifying the impact of symptomatic acute hepatic porphyria on well-being via patient-reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study Amy Dickey, et al https://doi.org/10.1002/jmd2.12343

PeerVoice Clinical Pharmacology Audio
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Clinical Pharmacology Audio

Play Episode Listen Later Nov 23, 2022 32:45


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Internal Medicine Audio
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Internal Medicine Audio

Play Episode Listen Later Nov 23, 2022 32:45


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Digestive Diseases Video
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Digestive Diseases Video

Play Episode Listen Later Nov 23, 2022 32:35


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Digestive Diseases Audio
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Digestive Diseases Audio

Play Episode Listen Later Nov 23, 2022 32:45


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Brain & Behaviour Video
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Brain & Behaviour Video

Play Episode Listen Later Nov 23, 2022 32:35


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Brain & Behaviour Audio
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Brain & Behaviour Audio

Play Episode Listen Later Nov 23, 2022 32:45


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Clinical Pharmacology Video
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Clinical Pharmacology Video

Play Episode Listen Later Nov 23, 2022 32:35


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Internal Medicine Video
Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Internal Medicine Video

Play Episode Listen Later Nov 23, 2022 32:35


Paolo Ventura, MD - Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

Two Onc Docs
Porphyria

Two Onc Docs

Play Episode Listen Later Oct 31, 2022 10:55


This week's episode will be focusing on porphyrias, we will go over quick facts on the need to know facts regarding  acute & chronic porphyrias from presentation to  treatment.

Don't Touch My Sasquatch
Ep 22: Don't Touch My... Halloween Special Part 1 - Vampires & Werewolves

Don't Touch My Sasquatch

Play Episode Listen Later Oct 24, 2022 64:16


This week on the Don't Touch My Sasquatch Podcast, we begin Part 1 of our first Halloween Special.  For the holiday we are talking about 2 classic horror movie monster legends: Vampires and Werewolves. We discuss Vlad the Impaler, Sekhmet, Vampire travel requirements, the best ways to become a werewolf, Sigmund and Sinfjotli, Gilgamesh and how to weaken or destroy these monsters. Listen now to the first episode in our spooky 2-part Halloween series. Patreon: https://urlgeni.us/patreon/m1jQ Facebook: https://urlgeni.us/facebook/9JnQ Instagram: https://urlgeni.us/instagram/pJcM Twitter: https://urlgeni.us/twitter/b4RH www.Donttouchmypodcast.com References https://www.history.com/topics/folklore/vampire-history https://www.nbcnews.com/sciencemain/vlad-impaler-real-dracula-was-absolutely-vicious-8c11505315 https://historydaily.org/vlad-impaler-real-life-draculas-most-monstrous-acts/16 https://www.wondersandmarvels.com/2011/05/the-first-vampire.html https://www.ebonridge.com/vampire-strengths--weaknesses.html https://www.queensu.ca/gazette/stories/vampire-myths-originated-real-blood-disorder#:~:text=Porphyria%20is%20an%20inherited%20blood,origin%20of%20the%20vampire%20myth https://www.history.com/topics/folklore/history-of-the-werewolf-legend https://www.werewolves.com/gilgamesh/ https://www.britannica.com/topic/Lycaon-Greek-mythology https://www.werewolves.com/ancient-norse-werewolves/ https://en.wikipedia.org/wiki/Werewolf#:~:text=A%20Sicilian%20belief%20of%20Arabic,the%20werewolf's%20hands%20with%20nails. Stock Media provided by TheDoctorCaptain / Pond5

JIMD Podcasts
Shortcast: Transcriptomic study in explanted liver from a patient with acute intermittent porphyria

JIMD Podcasts

Play Episode Listen Later Oct 12, 2022 4:26


Transcription (RNA) of the genes that regulate the heme-synthesis pathway in the liver is modified in a patient with acute intermittent porphyria. Transcriptomic study in explanted liver from a patient with acute intermittent porphyria Jordi To-Figueras, et al https://doi.org/10.1002/jmd2.12329

PeerVoice Clinical Pharmacology Audio
Ask, Spot, Refer: Identifying Acute Hepatic Porphyria in the Emergency Room

PeerVoice Clinical Pharmacology Audio

Play Episode Listen Later Sep 29, 2022 28:37


Ask, Spot, Refer: Identifying Acute Hepatic Porphyria in the Emergency Room

PeerVoice Internal Medicine Audio
Ask, Spot, Refer: Identifying Acute Hepatic Porphyria in the Emergency Room

PeerVoice Internal Medicine Audio

Play Episode Listen Later Sep 29, 2022 28:37


Ask, Spot, Refer: Identifying Acute Hepatic Porphyria in the Emergency Room

PeerVoice Internal Medicine Video
Ask, Spot, Refer: Identifying Acute Hepatic Porphyria in the Emergency Room

PeerVoice Internal Medicine Video

Play Episode Listen Later Sep 29, 2022 28:54


Ask, Spot, Refer: Identifying Acute Hepatic Porphyria in the Emergency Room

Ask The Nurses
Ask The Nurses Episode 88

Ask The Nurses

Play Episode Listen Later Jul 26, 2022 74:00


Ryleigh Jones was a happy, lively, normal 8-year-old girl until she was injured.March 23rd, 2022 Ryleigh lost feeling and ability to walk. With the diet change she has begun to walk again but the limbs have no sensation. Ryleigh no longer feels when she urinates. This is a tragedy to her Mom and Dad.Between the 15th of February and April 20, 2022 Ryleigh has been admitted to VCU Health system 11 times and they have been unable to diagnose her properly. They say that Ryleigh has a disorder called Functional Neurological Disorder. We do not believe this to be true as she is only 8 years old, and this diagnosis would be unheard of at this age.Ryleigh has undergone extensive medical procedures such as EEG, MRI, and a lumbar puncture, all of which have come back clear.We still have no diagnosis for our beautiful, loving girl. If you've known Ryleigh, you know she loved life, school, friends, baseball, and dance.Ryleigh has suffered significant memory loss to the extent some times she doesn't remember her dad and me or her family and beloved dog Buddy.Ryleigh was injured on January 6, 2022, and was diagnosed with COVID on January 12th. During COVID she had a straight 48-hour fever and lethargy.On March 24th, we took Ryleigh to Johns Hopkins Hospital, where we were quickly shut down because they pulled our record from VCU Health System, so they could not truly do an extensive workup on Ryleigh. JHH did not help us much other than running tests that suggest Ryleigh may have Porphyria and Celiac disease.As of 4/25/2022, Ryleigh has improved slightly because we changed her diet significantly. Gluten-Free foods and plant-based organic foods are all that Ryleigh can eat as of now. As you can imagine, for an 8-year-old, this has been significantly challenging.We have several upcoming outpatient appointments to determine further what damage has been done to our loving little girl.Ryleigh's blood work has not been explained to us, and there are no explanations for why her SED rate, CRP, and other tests are elevated.Please consider helping us figure out what is happening with our child. We have accumulated over $13,000 in medical bills, and her treatment is ongoing we may also have to have an attorney.Thank you, and hug your child tight because tomorrow may not be the same.https://givesendgo.com/ryleighFit, Healthy & Happy Podcast The Fit, Healthy and Happy Podcast is designed to help you become your best overall self.Listen on: Apple Podcasts SpotifySupport the show

Uncited: An English Lit Podcast
Porphyria's L(over it)

Uncited: An English Lit Podcast

Play Episode Listen Later Jul 22, 2022 36:23


We talk about how Porphyria's Lover, a very weird Victorian poem named after a disease that turns your pee purple, is actually a feminist masterpiece. Content warning for domestic abuse and murder. If you are impacted by domestic violence and need help, here are some resources: Advice for survivors and shelter map in Canada - https://sheltersafe.ca/ Shelter map in the United States - https://www.domesticshelters.org/ Helpline in the UK - https://www.nationaldahelpline.org.uk/ Advice to support others - https://www.rainn.org/news/how-support-someone-who-experiencing-domestic-violence You're not alone. Please mind the content warnings and stay safe.

Invisible Not Broken A Chronic Illness Podcast
A Conversation With Cosmo: Autism, Porphyria, Long Haul Covid, Media & Disability, & More

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jun 11, 2022 98:32


A FEW THINGS WE TALK ABOUT IN THE EPISODECONTENT WARNING: WE DISCUSS RIGHT TO DIE ON THIS EPISODE. IF YOU ARE ANYONE YOU KNOW NEED HELP PLEASE REACH OUT TO THE CALL THE NATIONAL SUICIDE PREVENTION LIFELINE1-800-273-8255ORTEXT GO TO 741741 TO REACH A TRAINED CRISIS COUNSELOR THROUGH CRISIS TEXT LINE, A GLOBAL NOT-FOR-PROFIT ORGANIZATION. FREE, 24/7, CONFIDENTIAL.NEURODIVERGENCE AUTISM AND ADDGAMING AND CHRONIC ILLNESSUS HEALTH POLICIES INHIBITED BY LEADERS IMAGINATIONS AND BOWING TO TEMPER TANTRUMSPROBLEMS WITH SOME DISABILITY GROUPS & NON PROFITSWHO CAN TELL WHO'S STORY COMEDY, CANCELLING, AND SERIOUSLY STEPHEN KING WHY WON'T MY BREATS POUT?SHARED HIGHSCHOOL TRAUMAWHAT ALL OF US STAY AT HOME DISABLED PEOPLE DO ALL DAYLONG COVID PATIENTS AND THE ADJUSTMENT PERIOD OF CHRONIC ILLNESSDISABILITY AND FRIENDSHIPSWHY HOLD MUSIC SHOULD BE BANNED FOR MENTAL HEALTH.Name*Cosmo CPronounsFey/FemWebsite and handles you want published*Twitter: @MaelstromMinded Twitch: @TheMaelstromMindWhat is the name of your disorder, When did it present?Acute Hepatic Porphyria (Variegate Porphyria, 14) Fibromyalgia (14) CPTSD (very young but unsure) Dissociative Identity Disorder (8-9, but realized it at 18) Endometriosis (13) PCOS (13) POTS (14) Autism and ADHD (Figured those out at 22 and 28) EDS (birth) I may have forgotten some See acast.com/privacy for privacy and opt-out information.

PeerVoice Clinical Pharmacology Audio
Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Clinical Pharmacology Audio

Play Episode Listen Later May 20, 2022 32:45


Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Internal Medicine Audio
Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerVoice Internal Medicine Audio

Play Episode Listen Later May 20, 2022 32:45


Perspectives in Acute Hepatic Porphyria Care: Improving Long-Term Management with Novel Therapeutics

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast
Herbert L. Bonkovsky, MD - Putting the Pieces Together: Would You Recognize Acute Hepatic Porphyria If You Saw It?

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 22, 2022 38:21


Go online to PeerView.com/DQY860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, an expert in acute hepatic porphyria (AHP) reviews the diagnostic criteria for AHP and examines current treatment options. Upon completion of this activity, participants should be better able to: Apply laboratory and diagnostic assessments to confirm suspicion of AHP, Recognize disease burdens that patients with AHP frequently experience (eg, impact on overall health, quality of life, daily activities), Employ evidence-based treatment regimens that include siRNA therapy, as appropriate, to improve outcomes, minimize disease impact, and reduce the burdens of disease in patients with AHP.

PeerView Internal Medicine CME/CNE/CPE Audio Podcast
Herbert L. Bonkovsky, MD - Putting the Pieces Together: Would You Recognize Acute Hepatic Porphyria If You Saw It?

PeerView Internal Medicine CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 22, 2022 38:21


Go online to PeerView.com/DQY860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, an expert in acute hepatic porphyria (AHP) reviews the diagnostic criteria for AHP and examines current treatment options. Upon completion of this activity, participants should be better able to: Apply laboratory and diagnostic assessments to confirm suspicion of AHP, Recognize disease burdens that patients with AHP frequently experience (eg, impact on overall health, quality of life, daily activities), Employ evidence-based treatment regimens that include siRNA therapy, as appropriate, to improve outcomes, minimize disease impact, and reduce the burdens of disease in patients with AHP.

PeerView Family Medicine & General Practice CME/CNE/CPE Audio Podcast
Herbert L. Bonkovsky, MD - Putting the Pieces Together: Would You Recognize Acute Hepatic Porphyria If You Saw It?

PeerView Family Medicine & General Practice CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 22, 2022 38:21


Go online to PeerView.com/DQY860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, an expert in acute hepatic porphyria (AHP) reviews the diagnostic criteria for AHP and examines current treatment options. Upon completion of this activity, participants should be better able to: Apply laboratory and diagnostic assessments to confirm suspicion of AHP, Recognize disease burdens that patients with AHP frequently experience (eg, impact on overall health, quality of life, daily activities), Employ evidence-based treatment regimens that include siRNA therapy, as appropriate, to improve outcomes, minimize disease impact, and reduce the burdens of disease in patients with AHP.

Habasthalk | هبسطهالك
بورفيريا دراكولا...Dracula's porphyria

Habasthalk | هبسطهالك

Play Episode Listen Later Apr 22, 2022 11:12


في اول حلقة في السيزون ال ٣ هنتكلم عن اساطير دراكولا و ايه الرابط التاريخي و الطبي ورا حكايته اللي كتبها المؤلف الايرلندي برام ستوكر و اللي استوحي قصته من حكاوي صديقه  مجرية عن الفلكلور المجري المرتبط بدراكولا و اللي كان مبني علي وقائع اجزاء منها حصلت بالفعل اثناء حكم فلاد دراكولا ال ٣ ..كل القصص دي و اكتر هنحكي عنها في حلقه مشوقة و  ممتعه …. و متنسوش ان عليكوا انكوا تخمنوا و علينا ان احنا نبسطهالكمتنسوش تتبعونا علي كل منصات السوشيال ميديا علشان تتابعوا كل جديدlinktr.ee/HabasthalkPodcastinstagram :https://www.instagram.com/habasthalk/facebook:https://www.facebook.com/habasthalkyoutube :https://www.youtube.com/c/HabasthalkPodcast#podcast_mena #podcast #podcasting #podcastdubai #dubai #egypt #arabicpodcast #middleeast #anghami #spotify #مصر

PeerView Gastroenterology CME/CNE/CPE Audio Podcast
Herbert L. Bonkovsky, MD - Putting the Pieces Together: Would You Recognize Acute Hepatic Porphyria If You Saw It?

PeerView Gastroenterology CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 22, 2022 38:21


Go online to PeerView.com/DQY860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, an expert in acute hepatic porphyria (AHP) reviews the diagnostic criteria for AHP and examines current treatment options. Upon completion of this activity, participants should be better able to: Apply laboratory and diagnostic assessments to confirm suspicion of AHP, Recognize disease burdens that patients with AHP frequently experience (eg, impact on overall health, quality of life, daily activities), Employ evidence-based treatment regimens that include siRNA therapy, as appropriate, to improve outcomes, minimize disease impact, and reduce the burdens of disease in patients with AHP.

The Medbullets Step 1 Podcast
Hematology | Acute Intermittent Porphyria

The Medbullets Step 1 Podcast

Play Episode Listen Later Feb 5, 2022 12:18


In this episode, we review the high-yield topic of Acute Intermittent Porphyria from the Hematology section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbulletsIn this episode --- Send in a voice message: https://anchor.fm/medbulletsstep1/message

Ye Old Reading Room
Porphyria's Lover

Ye Old Reading Room

Play Episode Listen Later Jan 31, 2022 3:19


-- By Robert Browning -- Robert Browning's poems often explore the viewpoints and mentality of emotionally imbalanced people, and we hear an excellent exploration of that concept in Porphyria's Lover. The poem was first published in the British publication the 'Monthly Repository' in January 1836. --- Support this podcast: https://anchor.fm/patrick-fennell6/support

Freaky AF
Introducing: Cause of Death - Porphyria

Freaky AF

Play Episode Listen Later Dec 23, 2021 38:00


Happy Holidays from the Freaky AF fam! I'm delighted to introduce to you our sister podcast, Cause of Death with Jackie Moranty! Cause of Death is also a part of the Darkcast network. Follow Cause of Death! Twitter: @CauseOfDeath10IG: @causeofdeathpodcastListen to Cause of Death wherever it is that you listen to your podcasts! Check out the Darkcast Network: darkcastnetwork.wixsite.com/indieThis is a special episode of Cause of Death where I look at porphyria, a very rare gene mutation that affects heme production in the blood. Why do you care? Well, listen and find out.Porphyria Researchhttps://www.sciencedirect.com/topics/agricultural-and-biological-sciences/porphyrin.https://www.niddk.nih.gov/health-information/liver-disease/porphyriahttps://www.mayoclinic.org/diseases-conditions/porphyria/symptoms-causes/syc-20356066https://medlineplus.gov/genetics/understanding/mutationsanddisorders/genemutation/https://www.mayoclinic.org/diseases-conditions/porphyria/diagnosis-treatment/drc-20356072?&mc_id=google&campaign=9240373087&geo=9030454&kw=porphyria%20treatment&ad=416382330863&network=g&sitetarget=&adgroup=92955515279&extension=&target=kwd-608574446344&matchtype=e&device=c&account=1733789621&invsrc=transplant&placementsite=enterprise&gclid=CjwKCAjwwsmLBhACEiwANq-tXIzTqETFsNIpsysIdXvO56sVgIsUlWm8Vvg5aDPUbqIJeKheI37OuxoCS78QAvD_BwE&gclsrc=aw.dshttps://pubmed.ncbi.nlm.nih.gov/8657842/https://www.britannica.com/place/Walachiahttps://www.livescience.com/40843-real-dracula-vlad-the-impaler.htmlHistory, Hourly. Vlad the Impaler: A Life From Beginning to End (Medieval History) (p. 24). Kindle Edition.Scary music provided by: Music: https://www.chosic.com/free-music/all/ Hello Regan! By Loyalty Freak Music

GI Insights
Acute Hepatic Porphyria (AHP): Looking Beyond the Obvious

GI Insights

Play Episode Listen Later Dec 14, 2021


Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Manish Thapar, MD, AGAF, FAASLD, FACG Acute hepatic porphyria (AHP) is a rare genetic condition characterized by severe, diffuse abdominal pain and a broad range of seemingly unrelated symptoms. AHP presents differently in each patient, with symptoms that mirror those of more common conditions, making it difficult to diagnose. Although AHP can be misleading, it can be easy to detect once you know what to look for. Joining Dr. Charles Turck to discuss AHP signs and symptoms and when a doctor should consider AHP in a patient is porphyria expert Dr. Manish Thapar, gastroenterologist and associate professor of medicine in Philadelphia. ©2021 Alnylam Pharmaceuticals, Inc. All Rights Reserved. AS1-USA-01069

Civilianization
Episode 502: VA Presumptives and happy holidays

Civilianization

Play Episode Listen Later Nov 25, 2021 32:24


 Updated September 2021 1 Presumptive Disability Benefits Whatis “Presumptive”Service Connection? VA presumesthat certain disabilities were caused bymilitary service. Thisis because of the unique circumstances of a specific Veteran's military service. If a presumed condition is diagnosed in a Veteran within a certain group, they can be awarded disability compensation. What are “Presumptive” Conditions? If you are diagnosed with a chronic disease within one year of active duty release, you should apply for disability compensation. Examples of chronic disease include: arthritis, diabetes or hypertension. Or, if you served continuously for atleast 90 days and are diagnosedwith amyotrophic lateralsclerosis (ALS) after discharge, you can establish service connection for the disease. Veteransin the following groups may qualify for “presumptive” disability benefits: • Former prisoners of war who: • Have a condition thatis atleast 10 percent disabling • Depending on length of imprisonment, specific conditions are presumed  Imprisoned for any length of time: • Psychosis • Any of the anxiety states • Dysthymic disorder(or depressive neurosis) • Organic residuals of frostbite • Post- traumatic osteoarthritis • Heart disease or hypertensive vascular disease • Stroke and the residual effects • Osteoporosis, when the Veteran has posttraumatic stress disorder Updated September 2021 2  Imprisoned for at least 30 days: • Beriberi (including beriberi heart disease) • Chronic dysentery • Helminthiasis • Malnutrition (including optic atrophy) • Pellagra • Other nutritional deficiencies • Irritable bowel syndrome • Peptic ulcer disease • Peripheral neuropathy • Cirrhosis of the liver • Avitaminosis • Osteoporosis • Vietnam Veterans who were: • Exposed to AgentOrange • Served in the Republic of Vietnamor on a vessel operating not more than 12 nauticalmiles seaward from the demarcation line of the waters of Vietnam and Cambodia between Jan. 9, 1962 andMay 7, 1975 • Specific presumed conditions are: • AL amyloidosis • B-cell leukemia • Chronic lymphocytic leukemia • Multiple myeloma • Type 2 diabetes • Hodgkin's disease • Ischemic heart disease (including but notlimited to, coronary artery disease and atherosclerotic cardiovascular disease) • Non-Hodgkin's lymphoma • Parkinson's disease • Parkinsonism • Prostate cancer • Respiratory cancers • Soft-tissue sarcoma (not including osteosarcoma, chondrosarcoma, Kaposi'ssarcoma or mesothelioma) • Bladder cancer • Hypothyroidism Updated September 2021 3  The following conditions, if they become greater than 10 percent debilitating within a year of exposure to an herbicide agent: • Acute and subacute peripheral neuropathy • Chloracne or other similar acneform disease • Porphyria cutanea tarda • Atomic Veterans exposed to ionizing radiationand who experienced one of the following: • Participated in atmospheric nuclear testing • Occupied or were prisoners of warinHiroshima orNagasaki • Served before Feb. 1, 1992, at a diffusion plantin Paducah, Kentucky, Portsmouth, Ohio orOak Ridge, Tennessee • Served before Jan. 1, 1974, at Amchitka Island, Alaska Specific presumed conditions are:  All forms of leukemia, except chronic lymphocytic leukemia  Cancer of the thyroid, breast, pharynx, esophagus, stomach, small intestine, pancreas, bile ducts, gall bladder, salivary gland, urinary tract, brain, bone, lung, colon or ovary  Bronchioloalveolar carcinoma  Multiple myeloma  Lymphomas, other than Hodgkin's disease  Primary liver cancer, except if there are indications of cirrhosis or hepatitis B • Gulf War Veterans who: • Served in the Southwest Asia Theater of Operations • Have a condition that is at least 10 percent disabling by Dec. 31, 2026 • Specific presumed conditions are:  Medically unexplained chronic multi-symptom illnesses that exist for six months or more, such as: • Chronic fatigue syndrome • Fibromyalgia • Irritable bowel syndrome  Any diagnosed or undiagnosed illness that warrants a presumption of service connection, as determined by the Secretary of Veterans Affairs Updated September 2021 4 • Signs or symptoms of an undiagnosed illness include: • Fatigue • Skin symptoms • Headaches • Muscle pain • Joint pain • Neurological or neuropsychologicalsymptoms • Symptoms involving the upper or lower respiratory system • Sleep disturbance • Gastrointestinalsymptoms • Cardiovascular symptoms • Weight loss • Menstrual disorders • Gulf WarVeterans who: • Served in the Southwest Asia Theater of Operations orinAfghanistan on or after September 19, 2001  Manifest one of the following infectious diseasesto a degree of 10 percent ormore within 1 year of separation: • Brucellosis • Campylobacterjejuni • Coxiella burnetii (Q fever) • Nontyphoid Salmonella • Shigella • West Nile virus • Malaria (or when accepted treatisesindicate the incubation period began during a qualifying period of service)  Manifestto a degree of 10 percent ormore at any time after separation: • Mycobacteriumtuberculosis • Visceral leishmaniasis • Gulf War Deployed Veterans who: • Served any length of time in the Southwest Theater of Operations during the Persian Gulf War, or • Served any length of time in Afghanistan, Syria, Djibouti or Uzbekistan on or after September 19, 2001 and • Manifests one of the following to any degree within 10 years from the date of separation from military service: o Asthma o Rhinitis o Sinusitis, to include rhinosinusitis 

Health Professional Radio - Podcast 454422
When Should A Doctor Suspect Acute Hepatic Porphyria AHP

Health Professional Radio - Podcast 454422

Play Episode Listen Later May 27, 2021 12:05


Dr. Angelika Erwin, a board‐certified clinical geneticist and internist at Cleveland Clinic, as well as a porphyria expert and member of the Porphyrias Consortium discusses acute hepatic porphyria (AHP), when a doctor should suspect AHP in a patient and how to test for it. Dr. Angelika Erwin is a medical geneticist in Miami, FL, affiliated with Cleveland Clinic, who specializes in clinical genetics and is experienced in lysosomal storage diseases, cancer genetics, general medical genetics, lipodystrophy, and porphyrias. She is a member of the Porphyrias Consortium, comprised of the nation's foremost experts in porphyria, and serves as a consultant of Alnylam Pharmaceuticals to help educate about the condition. #AHP #Porphyria

Gastro Girl
How Chronic GI Symptoms Can Mask a Rare Disease—One Patient's Journey to an Accurate Diagnosis of Acute Hepatic Porphyria

Gastro Girl

Play Episode Listen Later Apr 13, 2021 38:45


Symptoms of Acute Hepatic Porphyria (AHP) often resembles those of other diseases including those in the gastrointestinal tract. Severe symptoms can lead to unnecessary surgeries or procedures. Nicole shares her all too common story of enduring years of misdiagnosis and heartbreaking surgeries before she was finally diagnosed with AHP and properly treated.  Dr. Angelika Erwin, who specializes in the porphyrias, explains why this rare genetic condition can stump even the most acute medical experts.

The Tales We Tell
Ep. 53: Vampires!

The Tales We Tell

Play Episode Listen Later Mar 24, 2021 89:17


Have you ever looked at a rotting corpse and thought, they sure look plumper than when they were alive... must be rising from the grave and feeding on the blood of innocent victims? Well you're not alone. Turns out, almost every culture in the world has lore about creatures returning from the dead (or having their dead bodies reanimated by demons) and wreaking havoc on their communities! This week, Hannah tells Katy about some of the reasons people came up with Vampire lore in the first place, and dives into a couple different variants on the blood sucking beast around the world! Lock your doors and windows, hang the garlic, have a wooden stake (or blowtorch) handy just in case, and settle in for this Spooky Tale! Links to our Patreon, merch store, and more: https://linktr.ee/TheTalesWeTellSources: http://news.bbc.co.uk/2/hi/europe/178623.stmhttps://aquila.usm.edu/cgi/viewcontent.cgi?referer=https://www.google.com/&httpsredir=1&article=2362&context=dissertationshttps://onlinelibrary.wiley.com/doi/abs/10.1002/ajpa.1330940210https://archive.org/details/fromdemonstodrac00bere/page/n245/mode/2upDurham, M. Edith. “121. Of Magic, Witches and Vampires in the Balkans.” Man, vol. 23, 1923, pp. 189–192. JSTOR, www.jstor.org/stable/2788569. Accessed 18 Mar. 2021.Lee, D. Demetracopoulou. “Greek Accounts of the Vrykolakas.” The Journal of American Folklore, vol. 55, no. 217, 1942, pp. 126–132. JSTOR, www.jstor.org/stable/535250. Accessed 18 Mar. 2021.https://en.wikipedia.org/wiki/Vampirehttps://en.wikipedia.org/wiki/Shtrigahttps://en.wikipedia.org/wiki/Vrykolakashttps://en.wikipedia.org/wiki/Strigoihttps://en.wikipedia.org/wiki/Porphyria

Move Podcast
MOVE Podcast #5 - Madison Morales - Finding Porphyria and Graves Disease.. a Journey with Uncertainty

Move Podcast

Play Episode Listen Later Mar 13, 2021 88:14


This week, Madison Morales shows whats possible, when you ask a few more questions, understand yourself a bit more honestly, and consume sugar like hummingbird..... Life with Porphyria, is anything but boring.   SHOW NOTES: Kaiser Hospital - https://healthy.kaiserpermanente.org/ TED Talk - https://www.youtube.com/watch?v=nM-ySWyID9o   Produced and edited by: Kasey N. Summers

Eardstepa's Courses
Porphyria's Lover an analysis

Eardstepa's Courses

Play Episode Listen Later Oct 19, 2020 26:55


This episode applies feminist, Marxist, and psychological criticism to Browning's poem. --- Support this podcast: https://anchor.fm/paul-cady/support