Podcasts about lorem

Lorem ipsum dolor sit amet... o, en español, no se nos ocurrió qué escribir en la intro de la descripción del Ep562 de Café Fandango. Esta semana Gus evade sus resposabilidades como jugador para hacer caso a sus responsabilidades de adulto, mientras que Edu se lamenta en FM por partidos que si hubiese ganado, no los hubiese perdido, se prepara para enfrentar el final de Clair Obscure, y se deja tentar por las mecánicas gacha de Persona 5: The Phantom X. Luego de algunos lanzamientos, pasamos por las noticias donde Netflix nos saca juegos de los bolsillos, repasamos algunos anuncios de fechas de juegos que esperamos y no tanto, cantamos la música de Bubble Bobble mientras nos enteramos de la nueva entrega en la saga, recordamos momentos no tan gratos del Helldivers 2, vemos como Xbox sigue probando dónde puede meter la mano con su marca, y revivimos la tecnología de punta de 1998 con la cámara de Gameboy y algunas personas que la quieren traer al presente. Cerramos con una Pregunta Fandango que nos hace pensar en esos periféricos o accesorios que tenemos en nuestra wishlist mental.

Roisin McGuigan, Commissioning Editor, Nucleic Acid Insights, speaks to Stanley Crooke, Chairman, Founder and CEO, n-Lorem, about his long career and pioneering role in the antisense oligonucleotide (ASO) space, how RNA-targeting therapies are set to enter the mainstream, and his latest focus: making personalized, free-for-life ASO therapies available to nano-rare patient populations.

La recherche utilisateurs, pour certaines équipes, c'est une étape obligée. Pour d'autres, ça fait grincer des dents : pas le temps, pas le budget, peur inconsciente d'être confronté à une idée contraire... La recherche, on la perçoit comme un travail compliqué, qui prend forcement beaucoup de temps. Alors, j'ai eu envie de démystifier, de désacraliser la recherche, en confrontant les pratiques de 3 personnes. Bien sûr, j'ai voulu me concentrer sur l'UX writing.Pour mettre l'accent sur l'importance de l'information, du langage et des émotions des utilisateurs, et sur l'importance pour une UX writer ou un Content designer de participer à cette phase de recherche. À mes côtés, j'ai pu compter sur : Alexandre Prot, UX researcher et UX writer chez LumApps Fatiha Belabed, Content designer chez Mews Camille Bourjade, Content designer freelance Ensemble, on a commencé par reposer les bases avec la définition de la recherche. Pour ensuite s'attaquer à plusieurs questions qui suscitent des débats : Pourquoi est-ce important de participer à la phase de recherche quand on fait du Content design ? Qu'apporte l'expertise UX writing à la recherche ? Comment se nourrissent ces 2 expertises ? Comment convaincre de faire de la recherche ? Est-ce qu'il est possible de tester uniquement le contenu écrit ? Si oui, comment ? Enfin, notre conversation est ponctuée de nombreux exemples de recherches menées, avec des pratiques souvent applicables simplement. Bonne écoute ! - L'épisode est aussi accessible en format écrit sur ⁠⁠⁠⁠⁠⁠le ⁠⁠blog⁠⁠ de Lorem UX writing⁠⁠⁠⁠⁠⁠. Vous y trouverez les ressources citées. Pour être au courant de la sortie des nouveaux épisodes, n'hésitez pas : à vous abonner, sur la plateforme d'écoute de votre choix à vous inscrire à la newsletter du même nom - ⁠⁠⁠⁠⁠⁠⁠⁠⁠UX Content Craft, by Lorem⁠⁠⁠⁠⁠⁠⁠⁠⁠, sur Substack ou à me suivre sur ⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠

Title  – Photophobia and diarrhea   Episode description RR discuss a fascinating case of fever, photophobia and diarrhea   Student discount https://www.rlrcpsolvers.com/student-discounts/   IMG discount Use coupon code RLRIMG at check out  https://rlrcpsolvers.com/annual-plan                   Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec… Read More »Episode 368 – RLR – Fever and photophobia

Opa, aqui é Gustavo Estrela, o AutoPeel, e hoje vamos dar uma primeira visão para um debate; Devemos criar a lore do personagem antes ou depois das fichas?Muitos jogadores costumam pensar seus personagens antes de fazer a ficha, deixando eles frustrados com as limitações que aquilo pode trazer quando coloca o personagem no papel. Hoje vamos falar sobre isso e dar argumentos para você criar o seu personagem depois de terminar a ficha. O Dicas de RPG é um podcast semanal no formato de pílula que todo domingo vai chegar no seu feed. Contudo precisamos da participação de vocês ouvintes para termos conteúdo para gravar. Ou seja, mande suas dúvidas que vamos respondê-las da melhor forma possível. Portanto pegue um lápis e o verso de uma ficha de personagem e anote as dicas que nossos mestres vão passar. Links: - Conheça nosso Patronato- Seja um Padrim do Movimento RPG- Assine o Picpay e ajude o site- Conheça mais Dicas clicando aqui. E-mail: contato@movimentorpg.com.br - Tem dúvidas sobre alguma coisa relacionado a RPG? Mande suas dúvidas para nosso e-mail. Voz:Gustavo Estrela, o AutoPeelEdição do Podcast: Senhor AArte da Capa: Raul Galli Crie sua Ficha Antes do seu LoreMúsicas: Music by from Pixabay

Il y a quelques mois, quand j'ai repris le podcast en mains, le premier épisode parlait de la collaboration entre Product manager, Product designer & UX writer. Souvenez-vous, c'était avec Fanny et Cassandra, toutes deux chez Qonto, et moi-même pour la casquette UX writing. Je voulais montrer comment le métier d'UX writer s'articulait avec deux expertises majeures du Produit et du Design. Et montrer que 1) la conception ne se fait pas et ne peut se faire seul, 2) l'UX writing apporte une valeur en plus et un regard différent. C'était à l'échelle d'une grosse équipe design et produit - Qonto. À l'époque, il y avait 20 UX writers dans l'équipe, presque le double de Product designers, et je ne comptais plus le nombre de Product managers. C'est une organisation à part, qui correspond à peu d'entreprises ou que peu d'entreprises souhaitent emprunter. Dix mois plus tard, j'ai eu envie de parler de nouveau de la collaboration, cette fois-ci entre Product designer et UX writer, et à une plus petite, mais vraiment plus petite échelle. Aujourd'hui, j'ai le plaisir d'échanger avec Gautier Zimmermann & Mathilde Chauvin, qui sont respectivement Lead Product & Design et UX writer chez Malo. La particularité ? Il y a un Product designer et une UX writer dans l'équipe design (accompagnés aussi d'une Brand designer). Une équipe restreinte. Et un ratio - presque - de 1 pour 1. L'organisation est donc, elle aussi, très spécifique. Une organisation qui m'a fait me questionner. Pourquoi Malo n'a pas suivi le chemin classique de recruter un nouveau Product designer pour faire évoluer l'équipe ? Pourquoi avoir plutôt décidé de miser sur l'UX writing ? Dans ce cadre, comment s'articule la collaboration entre Product design & Content design ? Et aussi, quels sont les apports mutuels qui enrichissent les compétences de l'un et de l'autre ? Comme d'habitude, je ne réponds pas à ces questions. Je vous laisse à ma conversation avec Gautier et Mathilde. Bonne écoute ! - L'épisode est aussi accessible en format écrit sur ⁠⁠⁠⁠⁠⁠le ⁠blog⁠ de Lorem UX writing⁠⁠⁠⁠⁠⁠. Vous y trouverez les ressources citées. Pour être au courant de la sortie des nouveaux épisodes, n'hésitez pas : à vous abonner, sur la plateforme d'écoute de votre choix à vous inscrire à la newsletter du même nom - ⁠⁠⁠⁠⁠⁠⁠⁠UX Content Craft, by Lorem⁠⁠⁠⁠⁠⁠⁠⁠, sur Substack ou à me suivre sur ⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠

The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease.Survey – Patient Empowerment Program PodcastRegister for the 2024 Nano-rare Patient ColloquiumOn This Episode We Discuss:Two most common words in medicine: Health and DiseaseThe Scientific MethodThe Importance of Single VariablesOrthogonal ThinkingWe Are at a Unique Moment in Medical HistoryGenomicsAdvances in OmicsBiological Networks and AIFacile Collection, Maintenance, Growth and Differentiation in the LabAntisense Technology

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Paul Compton and his wife Andrea chose to start a family through adoption. Unknown to anyone, one of their adopted boys, Taeson, was the inheritor of DRPLA, a progressive brain disorder caused by a mutation in the ATN1 gene. Determined to find a treatment and advocate for their son and others with the disease, the Comptons established CureDRPLA. In early 2024, Taeson received his initial treatment with an ASO discovered and developed by n-Lorem. Paul discusses his family's journey and shares his observations of Taeson's progress since beginning treatment.In This Episode We Discuss:3:05 – Paul's origins in business and finance 4:32 - Investment banking is different than traditional banking 7:27 – Opposites attract – Meeting his wife, Andrea, and starting a family through adoption 10:06 – Paul's son, Tayson, has a progressive brain disorder known as DRPLA, which is caused by a mutation in the ATN1 gene; Discovering the idea of n-Lorem 16:03 – Tayson's journey to a diagnosis 23:00 – The deterioration of his abilities over the years 25:00 – The progress Paul has observed in his son since initial treatment Links:Take our survey and receive an n-Lorem Store coupon code Register for the 2024 Nano-rare Patient Colloquium / October 30-31, 2024Make Hope Possible with a donation

Mutations affecting ion channels are the most common cause of 'applications for treatment' submitted to n-Lorem. These channels regulate the passage of essential electrically charged ions, like sodium, potassium, calcium, and chloride, into cells. Alas, ion channels pose a significant challenge in the ASO discovery process, as there is little room for error due to the need for highly allele-selective ASOs to achieve success. Let's 'dive into the channel' and explore the complexities of treating patients with ion channel mutations.Recently a report on one of our patients with an ion channel mutation was published in Endpoints News highlighting the power of our technology for these disorders. Check it out by clicking the link below.Endpoints News (endpts.com) A teenager faced constant seizures. Could a drug developed just for him stop them?Podcast Awards - The People's ChoiceSurvey – Patient Empowerment Program PodcastRegister for the 2024 Nano-rare Patient ColloquiumOn This Episode We Discuss:Defining Ion Channels and IonsHealth, Homeostasis, and Biological BufferingMultiple forms of the same geneMultiple Isoforms of Gene Product from the same geneNetwork redundancyIon Channels are different

Konstantina Skourti-Stathaki leads the n-Lorem research team behind the design and discovery of ASOs. Nadina, as we at n-Lorem call her, has a passion for helping patients and an excitement for science that is contagious. She joins the Patient Empowerment Program podcast to discuss her day-to-day activities as n-Lorem's Director of ASO Design and Discovery, the ongoing research her team is conducting, and more!On This Episode We Discuss:Inspired to study biology at the University of CreteLeaving Greece to attend grad school at the University of OxfordAn internship led Nadina to the world of RNALeaving academia to impact livesLessons learned from experiencing drug discovery and developmentThe reason she joined n-LoremDay-to-day activities as Director of ASO Design and discoveryn-Lorem's internal research management committee to make key decisions regarding programsOngoing research at n-Lorem to enhance allele selectivityStan Crooke on why he pioneered antisense technology

We're recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origins and aspirations of n-Lorem and Columbia University's Silence ALS initiative, visualize the journey of a nano-rare patient with the help of an emotional story told by a loved one, and imagine a future where commercial drug discovery organizations can focus on the world's rarest diseases and more all in this one episode. To access the entire event, visit https://www.nlorem.org/nano-rare-patient-colloquium-2023/Register for the 2024 NRPC: https://www.nlorem.org/2024-nano-rare-patient-colloquium-registration-form/

Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare". Hear Olivia's outlook on nano-rare patients and how the support of an institution like UCSD Rady Children's Hospital makes all the difference.On This Episode We Discuss:1:55 When Dr. McManus became interested in pediatric neurology and epilepsy 4:00 What ion channels do and why they play a role in epilepsy 5:17 How often is epilepsy genetically caused? 6:52 Why Dr. McManus and Rady Children's Hospital choose to invest time and resources in helping nano-rare patients. 11:50 Bringing people together for a single forum at the Nano-rare Patient Colloquium inspires collaboration between groups 14:43 The importance of a network of treating physicians and institutions and sharing experiences and lessons learned 17:58 Interest within Rady Children's Hospital regarding nano-rare patient treatment and ASOs 21:45 A Physician's Perspective of Nano-rare and n-Lorem

Genetics can be intricate, no doubt. With millions of mutations present in every human, one might wonder why not everyone is impacted by pathogenic diseases. The Patient Empowerment Program aims to assist you in grasping the fundamental concepts of various mutations and how they function, paving the way for you to enhance your understanding of genetics. Delve into the diverse array of disease-causing mutations, their characteristics, and explore which mutations could potentially be addressed through ASO treatment in this concluding episode of Advanced Genetics.On This Episode We Discuss:The nature of a SNPPre-mature-m-RNA effectsIndels can disrupt the reading frameDefining Alleles, Homozygous, Heterozygous, and Compound HeterozygousThe difference between whole exome and genome sequencingHow we, at n-Lorem, decide which patients are amendable to ASO treatmentsHow we design ASOs to take advantage of different post-RNA binding mechanismsMechanisms: Non-allele selective RNAse H1, Allele-selective RNAse H1, and Splicing ASOs

Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Dui vivamus arcu felis bibendum ut. Et ligula ullamcorper malesuada proin libero nunc. Consectetur purus ut faucibus pulvinar elementum integer enim neque. Pharetra pharetra massa massa ultricies. Elit sed vulputate mi sit amet mauris commodo!   Need more content?  Subscribe to ThreeABP on Patreon! for $2 a month and get access to bonus content exclusive to members.    Shoutout to Pixabay for providing sound effects! Check them out at https://pixabay.com/    

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Today we are talking about CI for Drupal modules, How it helps us build Drupal, and the ongoing work and improvements being made with guest Fran Garcia-Linares. We'll also cover Require on Publish as our module of the week. For show notes visit: www.talkingDrupal.com/441 Topics What does CI mean How do Drupal modules use CI When we talk about Drupal CI are we talking about the website itself or the CI that supports contributors What tools does Drupal use for CI How do maintainers interact with CI What changes have happened in the last year Speed improvements Drupal CI vs Gitlab CI Process to convert When is Drupal CI being shut down What improvements are coming If someone has an issue where do they get help Resources Gitlab templates module Gitlab CI Drupal Support ElasticSearch 8 [#3279558] | Drupal.org Slack channel for ci questions #gitlab DrupalCI and all patch testing will be turned off on July 1, 2024 | Drupal.org Testing a Drupal module | Basic module building tutorial: Lorem ipsum generator Gitlab CI getting started GitLab CI | Using GitLab to Contribute to Drupal WIP: Create a space to document how to customize each of the GitLab CI jobs [#3423238] | Drupal.org will generate https://project.pages.drupalcode.org/gitlab_templates/ We are pushing for a basic version to be fully live this week [Meta] Switching to Gitlab CI [#3424725] | Drupal.org Guests Fran Garcia-Linares - fjgarlin Hosts Nic Laflin - nLighteneddevelopment.com nicxvan John Picozzi - epam.com johnpicozzi Anna Mykhailova - kalamuna.com amykhailova MOTW Correspondent Martin Anderson-Clutz - mandclu Brief description: Have you ever wanted to have content fields that could be optional until a piece of content is published, or ready to be published? There's a module for that. Module name/project name: Require on Publish Brief history How old: created in Apr 2018 by Mike Priscella (mpriscella), though recent releases are by Mark Dorison (markdorison) of Chromatic Versions available: 8.x-1.10 Maintainership Actively maintained, latest release just over a month ago Security coverage Test coverage Number of open issues: 18, 8 of which are bugs Usage stats: 3,001 sites Module features and usage With this module enabled, form to configure fields for you content types will have a new checkbox labeled “Required on Publish” Check this new box instead of the normal “Required field” checkbox to have the field only required if the content is being published or already published Useful for publishing workflows where you want content creators to be able to quickly get started on content, but ensure that fields will be filled in before publishing Useful for fields that will optimize the content for SEO, social sharing, search, and so on

For n-Lorem's Chief Operating Officer, Sarah Glass, the mission of n-Lorem is personal. Her son Ethan was diagnosed with a nano-rare mutation. A geneticist by training, she joined n-Lorem to oversee and direct the organization's efforts to provide hope and potential help to those who need it most. It's more than just a job for her; she's powered by her son and the entire nano-rare community. 1:20 Sarah's background, early life, and scientific interests 7:20 Thinking about the patient experience while at a Contract Research Organization 8:43 Rare disease trails are relatively new 10:54 Sarah's son, Ethan, is a nano-rare patient 16:15 How long it took for Ethan to receive a diagnosis 21:35 Ethan's diagnosis and symptoms25:55 How Sarah heard about n-Lorem29:30 How does one come to terms with caring for a nano-rare child; How do parents continue looking for opportunities of hope when they may feel hopeless32:58 What Sarah has learned while at n-Lorem36:48 The biggest surprises Sarah has encountered during her journey at n-Lorem

Charissa Lipman joins n-Lorem founder and CEO, and host of the Patient Empowerment Program Podcast, Dr. Stan Crooke, in this question-and-answer episode to discuss additional questions asked during the 2023 Nano-rare Patient Colloquium. Charissa attended the inaugural Colloquium in October 2023 and brings the perspective of a patient family member, discussing her experiences and takeaways from the meeting. She is the mother of Ryker, a nano-rare n-Lorem patient with a CACNA1A genetic mutation. Stan and Charissa sit down to have a conversation and together address questions from the nano-rare community. Do you have a question you want to ask Stan Crooke? Email podcast@nlorem.org for a chance to be featured in a future episode. For general questions, email info@nlorem.org.In this episode we answer:08:25 As you are successful in discovering and developing individualized ASO for nano-rare patients, do you envision creating a library of ASOs that would be available to patients across the world?10:29 For disease organization/patient advocacy groups that have several patients with the same mutation, should they apply for treatment as a group or separately?13:16 Would an ASO developed for one patient work for another patient with a mutation in the same gene?14:29 What's a SNP?16:19 As a nano-rare family member, I have never been so inspired in an opening address as what was provided at the 2023 colloquium by Stan Crooke. Given the mission of n-Lorem, I don't understand how any researching neurologist (or any researcher in the space) would not want to be at the absolute forefront of what n-Lorem is doing. Why do you think there is such an obstacle to being a part of an organization that has for the first time an opportunity to move the needle in such a meaningful way?20:16 How would you describe the relationship between n-Lorem and the research physician, and what should patients expect from each side?23:44 What do you mean by an optimized ASO?24:59 Would you expect to see better results from ASO treatment in patients who are younger versus older?28:10 The FDA has certain designations for program review (Fast Track, Orphan, etc,), is there anything like that for nano-rare patients?29:35 I realize that there was significant work done in 2023 to streamline n-Lorem's operations. Which processes in the workflow do you believe can still be optimized to help streamline patient programs?31:35 Has there been a change in the amount of time it takes to process a patient and develop and ASO...

We're getting candid in our interview with Susannah Joffe. We're Getting Candid with Susannah Joffe about how she gained the confidence to become the most authentic version of herself, how growing up in Austin, Texas and moving to New York has shaped her artistry, and the importance of building a visual world around her music. Susannah Joffe's new EP dropped February 2nd and sees her blending elements of indie rock, lofi, and country songwriting. She's racked up millions of streams as an independent artist and has been featured on playlists like Spotify's Lorem, Undercurrents, and All New Indie. Listen to the full interview with Susannah Joffe on Name 3 Songs podcast and find a transcribed excerpt at name3songs.com. For more of Name 3 Songs, check out our podcast here and other interviews here. Enjoy this episode? Join our Patreon community or leave us a tip on PayPal!  Want to talk more? Find us  @name3songs | @sara_feigin | @jenna_million Learn more about your ad choices. Visit megaphone.fm/adchoices

Las inteligencias artificiales que generan resúmenes de podcast son bastante deficientes, pero como estamos tan ocupados desarrollando software para nuestros clientes, es lo que hay. Además, nadie lee estas cosas, así que podríamos poner toneladas de Lorem ipsums y nadie se daría cuenta.O sí. Si es el caso, hacédnoslo saber. Lo mismo tenemos un premio para vosotros/as.El caso es que el resumen automático de Auphonic nos regala esta auténtica cutrez.En resumen, el hablante principal reconoce el crecimiento inesperado de su empresa y la incertidumbre que enfrenta. Destaca la importancia de tomar oportunidades y contratar talento técnico, así como compartir los problemas y dudas con el equipo. A pesar de los desafíos, busca cambios y mejoras. Admite errores pasados y busca soluciones para adaptarse a los cambios del mercado. Destaca el enfoque en cuidar a los clientes y busca nuevas estrategias de crecimiento. Reconoce la presión de obtener un retorno de inversión, pero valora la transparencia. Agradece al invitado y promueve su producto.

The International Food & Beverage Technology Association (IFBTA) is a nonprofit trade association that promotes the use of technology within the global food and beverage industries with a specific focus on education, networking, certification, standards, research, and events, while aligning with other industry associations and groups in support of their technology related initiatives.Rob started his career as a restaurant manager for Bob's Big Boy and Marriott Hotels. In those roles, he was able to marry his love of operations and restaurants with technology.  Rob is seeing an increase in the use of robotics in back-of-house operations in restaurants, but fewer uses for food delivery to tables. At CES, Rob sees a sharp increase in electric vehicles as a trend and robotics for use in food preparation and fewer uses of VR.   QUOTES “The word ‘technology' is changing. It's evolving as a definition in hospitality, food service and retail and that's a very exciting thing to see.” (Rob) “Certain terms and technology become very popular over time. The way to know what's popular is to go to a trade show and look above the aisles at the signs. I look at what words are being used. Many years ago it was one-to-one marketing or big data.” (Rob) “I think the concept of drones may be more of a fad than a trend (in food service). I'm not so hot on drones for delivery, I am very hot on autonomous vehicles and even hotter now that I'm at CES. There is a whole room at CES with electric vehicles and half of those vehicles – probably more than half – are using autonomous driving.” (Rob)“I believe in robotics. I think we're going to see it more in the back of the house for food preparation. That's very clear here at CES with robotic baristas. There's going to be at the NRF Show next week a robotic pizza maker that's being used by Walmart. What we don't see is a ton of robots being used for delivery of food (in restaurants) to tableside.” (Rob)“I saw a company in Taiwan and they were doing simultaneous translation with earbuds. I've seen this before, but it always needed a phone. This one did not need that. So we're really getting to the point of Star Trek where you put the earbuds in and you're instantly having conversations with somebody and it's instantly being translated.” (Rob) “One of the two things I've noticed at CES between last year and this year is a whole pavilion on vehicles. Electric scooters, cars and farming equipment. The other thing I noticed is that the big companies that usually do CES have two booths. I see LG electronics, who I normally see in the main building doing video displays and phones, now has a separate booth in the automotive section where they're showing their cars.” (Rob)  “I believe you can't talk about technology. The best way is to show people technology and show them how it's being used.” (Rob)  TRANSCRIPT 00:01.96vigorbrandingHello everyone today's guest is ah a self-described techovvader and someone I've known for a long long time. A good friend. He's Rob Grimes and he's the founder and Ceo of the international food and beverage technology Association Rob also has other businesses. He's tied to he'll talk a little bit about that. And he's obviously not in his house unless he has a casino and slot machines in his house. He's in vegas so obviously ah, you're at the Ceo show welcome to the show Rob ah, let's hear a little bit about you. 00:31.18Robert GrimesThank you? Well listen? Yeah I'm in vegas and unfortunately since we're doing this on a webcam I can't tell you that what goes on in vegas stays in Vegas but I can tell you that I got elevators behind me I got a Starbucks over that way I got slot machines over that way and. 00:43.23vigorbrandingX. 00:50.50Robert GrimesFront desk over here and when I come out to vegas I still get up my normal time which is about four thirty in the morning East Coast so I was up early and so you just never know what you see coming in and out so I cannot be responsible for anybody getting out of that elevator or going in the elevator. But. 01:04.72vigorbrandingYeah, very cool. Well you know, depending on who comes out of the elevator with whom this might be the most watched podcast of all time. So I'm pretty excited about it. 01:07.52Robert GrimesAnyway, so that's why I am but I am here for CES. 01:15.90Robert GrimesSome while. 01:18.62vigorbrandingSo anyway I've heard I mean you you call yourself? ah a techno vader you want to talk a little bit about that. 01:25.67Robert GrimesSo I don't call myself that that's sort of a name that was given to me. Um, now I've been called a lot of things but I thought that was sort of interesting and I think it was a combination of putting technology and innovation which is what I spend most of my time looking At. Ah, but at the same time sort of the entrepreneurial side of helping Tech. You know to come Along. So I Just it sort of stuck so I used it and um, but anyway so it's really the combination I'm not really a highly technical person I can't program I can't do things like that. But. What I do do is I spend my time in technology trying to figure out and forecast where I think it's going to go and then certainly try to predict New Trends and sometimes see new companies which is actually why I'm out here at cs. 02:12.66vigorbrandingVery Cool. So I mean a little refresher for those who aren't familiar with the international food and beverage technology association and what you and your team do the Ifbta promotes the use of technology within the food and beverage industry considering the constant advances in technology I Mean. You and I do Trends presentations. We speak on Trends and what's going on in food and beverage and technology and it's just technology I mean just that's always a trend. It's always the topic I mean you know it's a massive undertaking.. How do you begin to focus on that objective. 02:46.10Robert GrimesWell, ah, gosh you know that's such a big that's such a big subject and it's a very large question so I have blinders on so my blinders focus on technology as it relates to the hospitality food service and retail industry so you can't look at it all. But. You know I'm very focused on how technology putting aside my own personal interest and my own personal things that I like to use and do besides that. Um you know I'm very focused on how technology might work within our industries. However. What I've learned recently and I got a feeling that maybe 2024 is the year that yours and my worlds actually collide or combined and I'll tell you why because the word technology is changing and so as I go see technology even here at Cs like today. There's a food tech zone. That's going to be about technology of food. How do you cook it what type of foods you have that is technology yet most people thought technology in my world was point-of-ale and Kios and drivethroughs and but it isn't and your world working in the cpg world working with a lot of food products. That is technology as well and how it's going to be prepared and where it's going to be served and so I think the interesting thing about is that technology is evolving as a definition in hospitality food service and retail and that's sort of a very exciting thing to see. 04:09.57vigorbrandingYeah I think there's no question I mean it's It's a part of everything we do and you know whether it's the the marketing and restaurant world or if it's in the Cpg world. It's just it's it's ah it's just a paramount to be on top of the changing. 04:19.35Robert GrimesBut I've enjoyed the trends that you put out every year and you put out that report and you're really talking about food trends that's something I have to study more now because as those trends are there how that food is delivered and where it's delivered and whether it's a fresh food bending machine which nobody ever thought that they could do that or something. You know all of a sudden what you're putting out in the trends in food I need to actually follow in the trends in technology and put those things together. 04:45.63vigorbrandingYeah, absolutely absolutely so like I've heard you say you're a restaurant manager first I think it's awesome because you worked at Bob's big boy. That's where it's all started and so you're seeing needs you you know? Obviously it was a long time ago and technology has just evolved so. Ah, how does that all tie into tech. How did you end up in tech from that start. 05:03.67Robert Grimesum um I always believe that you also puts people in the right place at the right time nobody expects to do what they do and when I talk to students today in hospitality schools and I tell them to do like a focus chart I tell them your focus chart can't be any more than a year or two out. Because your life could change you know based upon things happen. So I did start as a restaurant manager um actually Roy Rogers then Bob's big boy both owned by Marriott at the time and then Marriott hotels and then I got asked to do a systems project. And it was supposed to be like six months go to Marriott Headquarters I was working in in a Marriott hotel as a assistant restaurant manager in Washington and it was a six month deal come to come to corporate help us on a systems project. We need somebody who understands operations and then when you're done. We send you back and you get promoted to restaurant magic well without. Totally getting into my age or where I might have been at the time the world of the pc and I collided at Marriott headquarters and it came out and so you didn't have to be a programmer anymore to do technology and so I took over point of sale for Marriott globally some Pms and that's actually how I got started but. I was like the first one of corporate headquarters to have a mobile phone. It was in a bag it was a bag phone pretty funny ah but then I had to convince my boss to pay for it because you had to pay $3 a minute for airtime I told him I was going to use it for support. But anyway so I was able to marry 2 things together. 06:19.36vigorbrandingE. 06:34.16Robert GrimesMy love for operations and restaurants which I still am involved in and then the tech side of it. 06:40.49vigorbrandingVery cool, very cool and it's It's always neat how that all kind of comes together and you know I just got I was talking my daughter this morning I said hey look if you love what you do, You don't work a day in your life. So if you find things you're really passionate about you can bring them together and really kind of grow in that it's just ah, it's wonderful and we're We're very lucky for that. 06:52.97Robert GrimesPeople should always do things that they're passionate about. 06:57.55vigorbrandingYeah, no question and so you you said it you and I both end up speaking a lot of the same things on technology you technology mostly and me food and beverage Cpg and restaurant. But then as you said they come together. So The last couple of Trends Presentations I'm sure that you've talked about that I've talked about we talk about things like. Drone delivery and robots and restaurants and you know is there a day that pizza and and and Chinese food's going to be delivered by drone and you know some of the stuff sounds pie in the sky. But but really the way technology is moving. It necessarily is so yeah. 07:28.74Robert GrimesUm, was that a play on words pie in the sky. Yeah, good be pizza pie. Um. 07:30.66vigorbrandingThere you go there, you go Pi the pie. Maybe that should be a company our next company the pie pie in the sky and we'll do pie delivery. Ah, ah yeah, yeah. 07:41.35Robert GrimesYou know it's funny certain terms and technology become very popular over time and so what I tell people is the way to know what's popular is you go to a trade show and it can be an industry show. It can be a general one like cs and what I always do is I look above the aisles. And the aisles have signs and they point in different directions to zones or places you can go and I look to see what are the big words that are being used so many years ago it was 1 to 1 marketing or big data was a term out there. You know drones are so so drones and robotics are sort of interesting now. I'm really shocked. You didn't say the word ai because that is the term right now and I'm getting a little tired of it. But but that is the term right now. However, here's an interesting perspective for you about drones specifically I have said for years that I didn't think that drones were actually going to be the end all method of delivery. 08:18.93vigorbrandingYeah, oh yeah, yeah. 08:36.16Robert GrimesI think they were showy and I think that they were things that people tested and they showed the pizza coming up and dropping it. Do I think the drones will be used to deliver to remote places. Yes, as long as you can get the distance so that you can go ahead and control the drone. Yeah and as long as you can deal with. 08:36.74vigorbrandingThat's. 08:51.96Robert GrimesAir traffic control seriously and things like that that you have to deal with but their payload isn't heavy enough to carry really a lot of stuff and you're going to have food quality issues. Okay, where I really thought and you'll get the punchline on this in a second. What I really have always thought was going to be the method. Of delivering stuff was autonomous vehicles. Whether a vehicle is just a little bot that goes on a campus or whether it's a car that drives itself That's where I thought it was be so here I am at Cs Do you know that for the last 2 to 3 years at Cs putting aside Covid. That when I went to Cs. There was a whole section on drones. Interesting I haven't seen that section yet as a matter of fact, when we get off this podcast I'm going to look it up because I don't think they actually have it as a section right now now Robotics is clearly a section that's here. 09:30.80vigorbrandingHe. 09:44.59vigorbranding3 09:46.89Robert GrimesSo I think the concept of drones may have been more of a fad than a trend now. Do I think the drones are going to be big sure because anybody following current events knows the military uses the drones and that is usually how things get their funding so I'm not so hot on the drones for delivery I am very hot. On the autonomous vehicles even hotter now that I go to cs there is a whole room. Its ceos of electric vehicles and half of those electric vehicles that are there probably more than half are showing autonomous driving. 10:18.84vigorbrandingAnd he. 10:21.79Robert GrimesIncluding how to and equip in a current car but not only that they have smaller vehicles that are autonomous that can do it for delivery. That's the way I think that you know ah delivery is going to go through autonomous vehicles. Um and the drones are going to be out there and then you talk about robotics you know. I also believe in robotics I think that we're really going to see it more in the back of the house than the front of house to start for food preparation. That's very clear here at cs with robotic baristas. Ah there's going to be at the Nrf show next week a robotic pizza maker that is being used by Walmart but those are all back of the house. What you don't see is a ton of robots being used for delivery of food to tableside now United Airlines put it in their clubs. 10:58.16vigorbrandingExcuse me. 11:06.42vigorbrandingGive up. 11:09.97Robert GrimesBut it's mainly to be an assistant to somebody take away dirty dishes or bring something out. We're not seeing that kind of robotics yet we will. But I think that we will see robotics in the back. So those are 2 huge technologies. You know the autonomous and the robotics that I think you know will make a difference to us. 11:29.20vigorbrandingYeah, and then let's face it with ah you know talking to all the restaurants and chains out there I mean getting employees is a big deal. So ah, you know Necessities is a mother of invention the the back out as so the backend robotics ah is certainly important to to to help them with their business and keep their business rolling. So. 11:29.25Robert GrimesI. 11:38.40Robert GrimesIf. 11:47.14vigorbrandingI Think that's that's ah, it's a really good point that you make um so when it comes. 11:49.49Robert GrimesUm, well robotics allows us robotics allows us to also open up smaller form factor or self-operated things and I actually consider. Vending to be Robot ah robotics in a box or restaurant in a box that is robotics when they're preparing fresh food hamburgers and pizzas that are made fresh in a bending machine. Not not something you know, frozen and microwaved or whatever in there. So. 12:05.22vigorbrandingThe. 12:14.70Robert GrimesIt's not so much about solving the employee problem. It actually is a revenue generator for opening up new units. Um. 12:18.00vigorbrandingYeah, it makes a lot of sense. Well so we talk about back office or in front of house a back of house when it comes to restaurant tech I mean obviously there's there's front of house technology. There's the stuff that consumers see. There's the back of the house kitchen technology which one is growing faster. 12:29.19Robert GrimesTo change. 12:34.61vigorbrandingAnd and which one is more important. Do you think that the restaurants jump on board. 12:40.76Robert GrimesI think that people will adopt back of the house more and a lot of the technology is in the back of the house. Um, if you want to talk about employees. You know it's funny I saw somebody yesterday a company out of China out of Taiwan and they were doing simultaneous. Ah translation with earbuds now I've seen this before and I've covered this before but it always needed a phone that you had to go through the phone to the earbuds. This one did not need that so we're really getting to the point of like star trek or something where they put the earbuds in and you're just instantly talking you know conversation with somebody. It's instantly being translated. So I asked the guy you know what's your use case for this so half the people I talked to here at cs. They're all on the consumer side. They never thought about doing anything on the commercial side. So we start talking well he tells me that honey grow is using it in the kitchen. Why are they doing that because they have workers that don't speak english. 13:30.89vigorbrandingNo. 13:36.21Robert GrimesAnd so what they're doing is they're using in the kitchen to train and to do simultaneous now. That's the only one in the us that's doing it. They are doing it a ton of them over in China and other places so I see a lot of technology being used in the back of the house to help prepare foods. Ah, to do ventless cooking like sous vide cooking that's out there I see technology and how the screens and the orders and communicating with the staff in the back of the house being more efficient for doing runner systems and things the front of the house. The biggest technology change I see in the front end house besides having customers do their own ordering which is in certain things is really to do the handheld terminals you know for taking the order at tableside in the payment is almost if you think about it's almost like the biggest technology change there is but mostly changes in the back. 14:22.63vigorbrandingI mean it makes sense total sense so you know it's interesting. You're at Cs Restaurants Nations restaurant news predicts that and 2024 will be the year that restaurant tech industry shrinks as smaller tech startups either shut down or get bought by larger players. Ah, is that do you think that's a good thing I mean because I will say on this podcast I mean I can have ah I can have a a new tech concept every week because there's just so many of them out there just it's they're everywhere and I'm sure you're aggregating it. You're understanding. It. You're you're managing it. You're looking at it. So I'm sure you see the same things. Do you think it's good that that that industry shrinks. Um, what? what are your? What are your feelings there. 15:02.36Robert GrimesSo you know so as you know I have a podcast called accelerate and I've covered this issue a little bit when I talk about all in 1 systems versus best to breed and all in 1 is where you get everything from one company. Best to breed is where you focus on specific areas I think um. 15:13.66vigorbrandingE. 15:18.60Robert GrimesThe ifbta also has something called exchange and which is being released next week which has about 600 different vendors in it. You know, not not paid vendors just sort of listing I think what we're seeing is a lot of innovation but the innovation is very very focused innovation. Like it could be the the headsets or it could be the displays or it could be your payroll or training or point of sale or loyalty and so. 15:38.78vigorbrandingMean. 15:48.14Robert GrimesThere is consolidation when you have something that comes out of the blue that takes everybody by storm and the big guys sit there and they go oh. We missed the vote I will never forget an fs tech panel I did where one of the major vendors said. We missed the boat on online ordering there're now over 30 companies and this is years ago they said there's over 30 companies that are doing this now and they are basically point-of sale companies because they take payments and and they can do an order and they said we miss the boat. So what are they going to do they have to have online ordering so they go ahead and they they purchase and consolidate the companies. Sometimes it's a matter of 2 companies that come together that have very specific focused technologies and you have to put them together to make it work like 1 has this one has that and you put them together. So I think it's good. We're going to see a lot more innovation though I don't think we're going to see as much shrinkage and part of the reason for that is the hospitality schools. 16:29.70vigorbrandingUm. 16:38.30Robert GrimesAre now offering innovation and entrepreneurship as a course even Penn State where even Penn State's doing that. So um I think we're going to see more because software is a lot easier to develop than hardware and we're not hardware dependent anymore. 16:39.91vigorbrandingGreat. 16:51.84vigorbrandingIt would be interesting I mean what do you? What are you seeing at Cs I mean I know it's only been one day so far is there anything That's really standing out anything new that you want to talk about. 16:54.00Robert GrimesSo I don't know that I agree with that I hadn't heard that and I don't know that I agree with that. 17:05.16Robert GrimesYeah, the general observations is cs and I'm going to have to look for the statistics on this because I'm not exactly sure my impression right now is that cs is not as crowded as it has been number one in the past I know that wasn't your question but you know, but it also could be because Las Vegas opened up a huge new. 17:15.21vigorbrandingInteresting now. It's interesting. 17:24.42Robert GrimesConvention center is part of cs it's connected and I think they spread out more so one of the 2 things that I've noticed last year and this year is a whole pavilion on vehicles and and when I say vehicles every electric scooter car truck up to big deer. You know, big deer farming equipment is electrified. They have their own building which is amazing to me with all the ev that's in there and we're not talking about autonomous vehicles now we're talking about all of even even Amazon the other thing I noticed is the really big companies that traditionally do see yes, now have two booths. So. 17:50.40vigorbrandingWhile. 18:03.90Robert GrimesI see Lg electronics who I normally see in the main building doing video displays you know and phones now has a separate pavilion in the automotive place where they're showing their cars so that's 2 Yeah, the the expense is is amazing. So I see. 18:09.87vigorbrandingUm. 18:13.41vigorbrandingWow. 18:22.36Robert GrimesSo I think it could be because you have so much more space that it makes it look like it's not as crowded but I bet you when the stats come in. It's probably as crowded. Um I haven't gotten to the wearables area yet which I'm going to do today and there's actually a food tech area there and I'm also looking for what's in the home. 18:32.58vigorbrandingMe. 18:40.85Robert GrimesI'm a little bit surprised I haven't seen so much in the way of glasses right now in the past ah vr I went to the gaming area yesterday just to see what was there. Ah the vr and the glasses are not as widely spread as they were in the past I know that ah meta got a lot of play with the um. With the glasses that came out from raban early this year I don't view those as very functional because there's nothing on the screen. It's basically a gopro in a ah in a nice looking glass. So I'm looking forward to that so I was a little surprised. They didn't see much of that. Um, the health and wellness area I'm not seeing as many watches and things as I normally would see. Um, and the robotics I am seeing robotics here for sure. Um, there's a lot of robotics as they relate to showing mechanics of how they can start to become like a human so a robotic dog was very interesting I saw and several. Boost but you always look for those surprises that are here. But there's nothing so far that's jumped out at me except maybe what has been missing. 19:43.83vigorbrandingInteresting. Well you want to talk a little bit about the Ifbta I mean this is ah something near and dear to you I mean the talk about that a little bit. What so what? What is ibta going to get from this show. What are you hoping to do? what are your members like talk about that a little bit. 19:55.33Robert GrimesWell our members so you know the ifta the food but international food and beverage technology association Yo we have a number of different missions. We are not a lobbying organization. Although we work with many. 19:59.57vigorbrandingMcburn. 20:09.45Robert GrimesSo our mission is to promote food and beverage technology which at the beginning of this podcast. We talked about maybe having a change in definition. Um, expanding to promote it to provide education and networking for our members globally and so that means chapters that means education like our certification program. Ah, that means events we do at certain industry events where we bring people together who are interested in technology but it also means partnering with the industry owners so to speak the associations like Naqs for convenience stores the and nf for the and nra for restaurants. Ah, you know. Just ah, partnering with them the american hotel lodging association to help them to bring technology because they can't focus on all these areas. So that's our mission is education and networking of our members and in that we recognize that our members are really threefold. 1 is the individual of a small the medium or the independent. Which is you're going to find in every state then you have your mid-tierer and your enterprise which wants something different entirely and then um, you also have the supplier community and you have the other people that are sort of friends of the community that do things so we really have to fill a role for all of them. That are there. So my mission here at cs is everybody can't be everywhere although I saw a whole contingent of mcdond's Donald going by on a guided tour yesterday. So not everybody can do that so I see my role here and a couple other people here as being sort of eyes and ears to predict. What's going to happen. 21:37.80vigorbrandingIn. 21:40.91Robert GrimesOr what we should be looking at and then focus on bringing that to the companies at things like and Nrf or fste or Murrttech or the and nraio or or places like that. So that's you know that's really the role and the role I played but I will just point out 1 other thing to you that I believe that you can't. 21:53.20vigorbrandingAnd. 21:59.27Robert GrimesTalk about technology really the best way is to show people technology to show them how it's being used and coming up live on our website today tomorrow certainly by by Monday you know you're going to be able to actually talk to me on the website. But if you saw me at and nf next week I would be this standup hologram. You could talk to and I can answer questions for you as if I'm doing it right now which is a great way of doing it. So we're going to put that kind of technology to use on our own website and other technologies because we want to be able to show people realistically how it can be used without going cutting edge. We want to be or bleeding edge. 22:21.36vigorbrandingRight. 22:36.66Robert GrimesYou know we want to show them the realistic use of it. So that's really our world. Yeah. 22:38.38vigorbrandingYeah, you're trying to bring the the stuff that's way out there closer home So people can see the actual uses how they can imply it and everything else and that's brilliant I mean you bring a lot of wealth. 22:45.95Robert GrimesAnd I'm and I'm cheap like everybody else though I don't want to spend a fortune on it. So I want to work with technologies that exist. 22:51.93vigorbrandingAh, ah, very cool, very cool. Do you want to talk about your other businesses anything like that or is there anything else from ah what you're seeing at the show I mean you know as we close this out like what are some of the things you want to maybe mention. 23:01.56Robert GrimesYeah, so I mean I am involved in a lot of businesses I think I've sort of lost count over time. But personally I believe I've been involved in about 80 different businesses. But that includes multiple variations of the same business but in different geographies around the world. So you know I've never sold any hardware software ever. I've always been more of a services kind of person so today I still own a constrata which is a consulting company and a services company that does deployments for people acting as their internal staff. Never want to sell I don't run those day to day because i. Certainly don't want a conflict with the Ita which is totally impartial and open to all and everybody's equall in the ivta all the operators all the suppliers and then um, you know I spend some time on some other entrepreneurial ventures trying to help people. But again those swim lane the pacoty food service retail services in technology. 23:42.27vigorbrandingIs. 23:58.73Robert GrimesIf it's outside of those lanes I probably shouldn't be doing it. Um I am very excited about next week where we're going to have for the first time a food service innovation zone at the national retail federation show at the javit center that is a huge show is the whole Javit Center what I find fascinating every year is the book ends and I will do an article and I will do a podcast as I do every year called tail the two cities vegas is the first one with cs and rf is the second one which is retail and it's really all retail so you know, ah. 24:29.76vigorbrandingYou. 24:34.16Robert GrimesI spend my time just looking at these things whether it's constrata the ifbta or just my personal thing I will tell you 1 thing that sometimes when I talk to people. Yeah about what their preferences are in tech I always like to get a feel for it and so I'm still trying to figure out how I become that tech influencer so Samsung. Just give me 1 of their new tri screen phones that they still haven't brought out after showing it two years ago but they should just give it to me so I can go ahead and use it and just show it to people like how to use it. So that's the 1 thing I have yet to achieve. 24:56.24vigorbrandingYeah, yeah, you are kind of an old school influencer before influencers were cool. That's for sure. There's no question about that now. 25:08.74Robert GrimesFast. 25:11.19vigorbrandingSo now a couple personal things here. So talk about this polar plunge thing you do this every year. Why do you do it? how many how many years have you been doing this thing. 25:19.29Robert GrimesAh, 4 years so the polar bear plunge in Margate in on the jersey shore since I'm from Philadelphia I've had a house of Jersey Shore um I don't know it was just sort of an idea to run in and you run into the water you got to dive because you got to get. Over this year. It was like really cold. Normally it hasn't been so cold and it was really cold and you had to run out far enough. It wasn't deep enough to do the dive because the waves weren't coming in so I had to go out and I'm like coming out of my ankles and my sins are like just numb. But I've been doing it for 3 years maybe 4 and um. 25:52.11vigorbrandingAh, nice. 25:55.49Robert GrimesIt's like 3000 people they do it all over the jersey shore you could actually do one like at ten o'clock one at 111 at 121 at 1 but it was just something to do it just seemed like a good idea at the time. 26:03.31vigorbrandingyeah yeah I I too I go to the jersey shore and I don't even go in the water in July because it's still too cold. So I have no desire whatsoever to do that. But it sounds the same. 26:12.59Robert GrimesI Do want to point out to anybody listening this podcast. We don't go to the beach. We're going to the shore and I want to make sure you know that there is a beach at the shore but we go to the shore. 26:24.66vigorbrandingYep I totally get it. That's a Philly thing. So last question I asked this of everybody if you had 1 final meal. What would you eat and why. 26:34.96Robert GrimesUm, a final meal. Um, well I mean I'm a huge steak fan but that's like what every prisoner orders for their last meal right? So I'm not so sure I want to I want to be there Um, a final meal. 26:46.23vigorbrandingAh. 26:48.40Robert GrimesThat's like really ah a tough question I'm sure it would be something it would be something like a steak of some sort that was out there just because I just happen ah like steakhouses and St it might be a plant. It might be a plant. It might be a plant based one by the way over time I did have. 26:58.18vigorbrandingIs there a particular steakhouse that you love. 27:07.39Robert GrimesJust just a note I love having conversations with people so I had a conversation at a function last night with this guy who told me he went vegan and he asked me what I thought the future of vegan was and whether people would adopt it over time and my response to him was this is about tech and food tech I said hey listen who would have thought ten years ago you could go to a burger King and get a whopper that you might not know the difference between a beef flopper one made a plant. So my view over time is that steak that I'm eating and I understand that ah Leonardo Dicaprio invested in a company that's doing plant-based steak is they're working on that and over time. 27:30.74vigorbrandingE so. 27:39.44vigorbrandingHere. 27:44.42Robert GrimesThere may be no difference and I will be eating a steak and as long as the texture the taste. You know the satisfaction is the same we're going to forget that you know over time and so I don't know if it'll be a plant-based steak for my last meal or whether it would be you know, really good I Love independent steakhouses I have a favorite here The Golden seer. Ah. 27:53.90vigorbrandingUm. 28:02.38vigorbrandingOh yeah. 28:04.28Robert GrimesWhich is a friend you know that has that it started in 1958 he wasn't around then but it's great. But I just like the old time steakhouses. 28:12.91vigorbrandingVery cool, very cool Rob look. It's always ah fascinating. It's always a pleasure I always enjoy talking to you I really appreciate your time. Enjoy the rest of Cs and thank you. 28:22.63Robert GrimesWell no, it's the pleasure I know I see it several times during the year and it always turns out to be a good conversation. It's a lot of ideas and actually even this conversation today just gave me a few thoughts that I might want to take a look at so thank you for having me. 28:32.22vigorbrandingMe too me too me too. Absolutely thanks. Rob. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.

For the return of the patient empowerment program podcast, we're recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origins and aspirations of n-Lorem and Columbia University's Silence ALS initiative, visualize the journey of a nano-rare patient with an emotional story told by a loved one, and imagine a future where commercial drug discovery organizations can focus on the world's rarest diseases and more all in this one episode. To access the entire event, click here.

Nano-rare diseases strip power from families and this often leads to hopelessness, anger, and dread. However, channeling these intense emotions to carefully navigate risk/benefit decisions is within one's control.n-Lorem is different than standard drug development settings. Every risk/benefit decision that n-Lorem makes is in the context of the individual patient's symptoms, status, and needs. While we cannot promise benefit, we can promise that we will do our very best in the creation of an optimal medicine.On This Episode We Discuss:Risk/benefit decisionsn-Lorem is differentWe cannot make promisesCommunicating about riskPerceptions concerning controlExposure and riskCompressionOmissionTimingOfficial positions affect our perceptionsAnchoring and communicating risk

Jeff Carroll, Ph.D., inherited a gene that will eventually lead to symptoms of Huntington's Disease. Alongside researching this debilitating disease as an Associate Professor of Neurology at the University of Washington, he's a Scientific Advisor for n-Lorem and member of the Access to Treatment Committee (ATTC) that helps screen and assess submitted patient applications.On This Episode We Discuss:2:45 Joining the Amy on a whim 4:30 Serving in Kosovo and Germany6:00 Learning that his mother was diagnosed with Huntington's disease (HD)10:25 Seeking information and diving into the world of Biology and HD14:52 Deciding to have children when there was a chance that they'd inherit the disease and utilizing preimplantation genetic diagnosis (PGD)18:30 Watching Ionis make initial progress on an ASO for Huntington's disease23:10 How Jeff became involved with n-Lorem27:30 Most important things Jeff has learned during his role at n-Lorem30:38 Helping people is motivating32:11 Nano-rare patients teach us a lot about science33:57 Jeff expects to receive an ASO treatment one day35:22 n-Lorem is on your side

Chip Wilson, the creator of Lululemon and SOLVE FSHD, stands as a pioneer, business innovator, philanthropist, and a person affected by a rare disease. His passion for fitness led him to build a successful career in designing athletic wear, but a diagnosis of Facioscapulohumeral Muscular Dystrophy (FSHD), a degenerative muscle condition, altered his active lifestyle.On This Episode We Discuss:0:46 Working on the Alaska Oil Pipeline as a 17-year-old4:30 Saving money young and becoming an entrepreneur7:05 Following trends and founding Lululemon8:36 Chip's initial dream and vision for Lululemon11:45 Combining Italian design ethics with quality western fabrics for an amazing Lulu product 14:20 The feeling of leaving the Lululemon Board of Directors 17:00 The takeaways from Joseph Heller's Catch 22 and Something Happened 24:15 Reading the top 100 biographies and admiring those with integrity 33:44 Using the culture of an organization and leadership as a strategic advantage 38:18 Facioscapulohumeral muscular dystrophy (FSHD) 40:05 Chip on losing muscle when exercise and movement is so necessary for his way of life 44:27 Climbing Mount Kilimanjaro with FSHD 46:58 Chip's advice to those suffering from rare diseases and their caregivers 49:24 What progress that has been made to find a treatment for FSHD 52:35 Why Chip and SOLVE FSHD donated to help fund the funded the laboratory at n-Lorem

In this episode of Syntax, Wes and Scott relate even more spooky listener submitted coding horrors including crypto copy paste, Big Brother bug, losing $50,000, 2,000 SMS, a $20,000 hour, and more. Show Notes 00:09 Velcome to Synax 01:09 Syntax Brought to you by Sentry 01:36 Stories are anonymous! 01:57 Crypto copy + paste 03:48 Big Brother Bug 07:00 One of 6 laptops that can fix npm 07:57 Auto-submitting payments 09:42 40,000 orders shipped and refunded 11:16 Dropping the analytics database 11:40 dev was actually production 12:40 Updating the DNS 13:40 Losing ~$50,000 15:30 Clearing 80 million records 16:21 Web chat DDoS 18:00 URL Shortener #$@%# Ontario's rejected licence plates for 2022 | CP24.com Boonta Vista: A “political” podcast for “smart” people 21:12 Sending an email to 20,000 users 21:42 Moving code to GitHub 23:32 “Lorem sale” 26:08 2,000 SMS messages 27:00 International shipment of kiosks 28:19 Crashing production Slow DB Queries | Sentry Documentation 31:01 Hitting customers credit card limit 32:01 Infinite redirect loop 32:53 My first commit 33:23 Augmented reality game prize mistakes 35:15 A $20,000 hour 35:57 Site went down for 3 days 37:42 Accidentally truncated the prod database 38:48 Off by one error 40:05 Exposing database credentials 42:08 Delete a temp directory on prod 44:51 SIIIIICK ××× PIIIICKS ××× ××× SIIIIICK ××× PIIIICKS ××× Scott: Race to the Summit Wes: 100LBS Strong Magnetic Hooks Shameless Plugs Scott: Sentry Wes: Wes Bos Tutorials Tweet us your tasty treats Scott's Instagram LevelUpTutorials Instagram Wes' Instagram Wes' Twitter Wes' Facebook Scott's Twitter Make sure to include @SyntaxFM in your tweets Wes Bos on Bluesky Scott on Bluesky Syntax on Bluesky

After a year of various traumas and Voncid's recent transgressions, several Order members have mandated appointments with Delia the Order psychologist Hosted on Acast. See acast.com/privacy for more information.

Dr. Daniel Curran leads Takeda's efforts to unlock innovation and deliver transformative medicines in a variety of rare-disease areas. Dan embraces learning from, collaborating with, and meeting members of the rare disease community in an effort to produce treatments that result in better health and a brighter future for rare.2:02 How rare disease is defined at Takeda4:10 Rare disease units at Takeda5:23 How Takeda economically justifies half of their pipeline being rare disease drugs9:06 The price of rare disease drugs is too high12:15 Why rare disease efforts are often associated with hematology14:57 What Dr. Curran enjoys about leading Takeda's rare genetics and hematology therapeutic unit16:42 Dr. Curran's professional journey20:50 Takeda's choice to support n-Lorem

As the first ever Nano-rare Patient Colloquium is just around the corner, we are flipping the script. Spectrum News' Brady Huggett interviews n-Lorem founder and CEO, Dr. Stan Crooke, and picks his mind to understand the inspiration behind the creation and want for this first of its kind nano-rare community event. Along with some background information on the highly anticipated Colloquium, Stan candidly conveys n-Lorem's hurdles and joys in its first four years of service.

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Argonaut Manufacturing Services Inc. CEO, Wayne Woodard, joins the Patient Empowerment Program to detail how Argonaut bottles vials of hope for n-Lorem patients. Argonaut is n-Lorem's provider of Sterile Fill-Finish for an optimal ASO. This means that the lyophilized ASO powder, which was manufactured with good manufacturing practices (GMP), gets formulated and aliquoted into sterile vials. The final product is tested for various attributes to ensure maximal quality. Once assessed and approved, the finished product is then ready to be administered to a nano-rare patient by a qualified research physician at an established institution.

Gay Grossman is the mother of an n-Lorem patient and co-founder of ADCY5.org. She has been active in the rare disease space for 25+ years and continues to fight and advocate for patients every single day by connecting ADCY5 families, speaking at events, and informing the entire rare community. On Wednesday, Gay joins the Patient Empowerment Program podcast to discuss her daughter, Lilly, lessons that she has learned as a rare disease mom and advocate, the difficulty of gathering and sharing medical records before the creation of Ciitizen, and why newborn genomic sequencing should be introduced in the United States today.On This Episode We Discuss:0:00 What is Ciitizen?3:14 The difficulty of sharing medical records before Ciitizen5:55 Gay's daughter, Lilly, is an n-Lorem patient10:00 Finding an initial pediatrician to help Gay and her family diagnose and understand Lilly's gene mutation11:45 Lilly's nightly seizures and wondering what it would take to receive a diagnosis15:05 How caffeine helps Lilly and others with ADCY5 mutations18:35 What Lilly is doing nowadays19:48 How Lilly's genes were sequenced21:00 Advocating to introduce newborn sequencing into newborn screenings23:30 What was known upon diagnosis and other's with ADCY5 mutations28:13 Lessons that Gay learned from her 25+ years of rare disease care and advocacy33:19 The progress n-Lorem has made since inception

On the island town of Slumberland, a tower built from yellow bricks has stood for over a century. This structure is known as the "Lorem Lighthouse." A student named Elaina McElian just finished her research report about the lighthouse, and she's excited for you to hear it. For more info click here Elaina McElian performed by Alex Nursall, a director, writer, illustrator, and chronically sleepy person based out of Toronto. She is the co-creator/writer, director, and voice of Judith on the award-winning horror podcast Parkdale Haunt (www.parkdalehaunt.com), and is also the voice of Mairi on the D&D Actual Play podcast Dice Shame (www.diceshamepodcast.com). She is a commercial voice and casting director in her day-to-day life, and in her off time enjoys watching F1, hiking, and trying every interesting baked good Toronto has to offer. Music by Blue Dot Sessions The sound design in this episode owes thanks to Freesound Project contributors: juskiddink, ianoboe, chocchi, kyster, avakas, webbfilmsuk, zoltoks, marateresa, hazure, cylon8472, sirkoto51, vartian, inspectorj, opticaillusions, khenshom and joedeshon. Thank YOU you for listening to Slumberland!

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We had the pleasure of interviewing Mereki over Zoom video!Australian/English savant of purposeful pop Mereki releases her debut solo album Death of a Cloud. Created over seven years and three continents, in collaboration with a roster of the artists Mereki trusted most to bring this deeply personal and intuitively conceived material to life, the album is a look into the joy and difficulty of self-realization and finding the universe within, expressing this journey through music – Stream.The album release comes along with the news of Mereki signing with BMG. Proving her success as an independent artist, her progress will be furthered through the creative efforts of BMG along with her own label BunBun Records.Leading up to her album release, Mereki put out the singles “Presence” and “Twin Flame.” The creation of “Presence” stemmed from Mereki getting inspired by the guitars reverberating through the walls while in a writing room above the studio where Dhani Harrison and Graham Coxon of Blur were recording. After she began singing a melody that became the first verse, she shared it with Harrison, and then the two were motivated to work together to complete Mereki's composition. “Twin Flame” sentimentally arrived the same week as Valentine's Day as a hymn to kindred spirits.Her singles were met with praise from the likes of Notion, Beats Per Minute, Soundazed and Mundane Mag, as well as editorial support from Spotify's infamous Lorem playlist, making the artist's return her strongest streaming to date.At the end of 2022, Mereki and her Be Kind charity partnered with the Happy Baby Community for a Presents for Presence holiday fundraiser. The campaign helped raise money, awareness, and much needed supplies for asylum-seeking new mothers and their babies. Happy Baby Community provides a holistic approach to healing which includes long term support for both mothers and children.ABOUT MEREKI:Indie Australian/English artist Mereki creates pop with a purpose – vibrant musical worlds that share messages of transcendence and healing without sacrificing the fun. Now based in the UK, she first moved from her native Australia to the USA where she quickly found a home in the spiritually minded creative community of the east side of Los Angeles, collaborating with an impressive collection of producers, writers, and musicians as she refined her song writing and voice, laying the foundations for what was to come.Mereki began writing and releasing music with esteemed writers & producers Dan Nigro (Olivia Rodrigo, Conan Gray, Caroline Polachek) and Justin Raisen (Charli XCX, Sky Ferreira). GRAMMY-nominated superstar producer Ariel Rechtshaid (HAIM, Vampire Weekend, Madonna, Adele) spotted her talent, prompting their collaboration, “Golden Boy”, recorded by fellow Australian icon Kylie Minogue. She scored writing credits with Phantogram and Atrak, and guest artist and co-writer credit on tracks with Dhani Harrison, Goldroom, Basenji, Flight Facilities and Holychild. While fronting Goldroom, she performed everywhere from middle America to NYC to Bogotá, Colombia, before going on to perform with electronic act Flight Facilities as their featured vocalist on the duo's sold out North American tour.Kindness and magic are at the backbone of everything Mereki aims to be and be around in her music and in her life. She finds expression for her message in many creative outlets. In addition to music, she is also working on a record label, a children's book, a book of poetry and a collection of portrait photography. In 2016, Mereki created Mereki's Clubhouse, a pop-up event platform with a focus on kindness and creating spaces to give a voice to up-and-coming female artists. The Clubhouse motto “Be Kind” grew into a non-profit organization of the same name.Through all her work with and for others, Mereki found time to create her own music. Her debut solo single, “Blue Lake”, was released to critical acclaim from the likes of Spin, Nylon and Flood Magazine. After enduring some personal tragedy and heartbreak, she found catharsis in a brief foray into high-energy punk rock, releasing a few singles that landed her music in a Victoria's Secret commercial. In 2017, Mereki returned to the essence of who she truly is with the release of the Beach EP. The songs on Beach have Mereki's signature style, a distinctly pop-feel with positive messaging, while tracks like “Spiritual”, “French Kissing” and “Got It All” also hold an ethereal, dreamy quality.Mereki's return to music marks what has already been an extraordinary year for her, including her UK live debut at the legendary Glastonbury Festival 2022, alongside appearances at a host of UK festivals and headlining shows in London.We want to hear from you! Please email Hello@BringinitBackwards.com. www.BringinitBackwards.com#podcast #interview #bringinbackpod #Mereki #DeathOfACloud #NewMusic #ZoomListen & Subscribe to BiBhttps://www.bringinitbackwards.com/follow/ Follow our podcast on Instagram and Twitter! https://www.facebook.com/groups/bringinbackpodThis show is part of the Spreaker Prime Network, if you are interested in advertising on this podcast, contact us at https://www.spreaker.com/show/4972373/advertisement

Amber Freed and Shanna Tolbert join n-Lorem founder and CEO, Stan Crooke, for the first ever Patient Empowerment Program Q&A episode. Amber and Shanna are two nano-rare patient mothers and rare disease advocates who have experience with the n-Lorem pathway to treatment as caregivers. Through their experiences, and by canvasing others in the nano-rare community, they've compiled questions aimed to help current and potential n-Lorem patients and their families become more knowledgeable about the process, receive advice, understand side effects, and more! Stan sits down with these patient families to have a conversation and together address questions from the nano-rare community. Question Bank:- How do you apply to be an n-Lorem patient and who do you need on your team to help? 05:26 - How does the Foundation assess cases? 05:26- Once a patient is accepted, what is the best way to track the progress of the ASO program? 12:45- Any advice for when seeking information from a research physician who isn't communicative? 14:05- How often should a patient expect to hear communication from a research physician? 15:50- What is hydrocephalus, and should patients be concerned about the side effect? 19:30- If side effects occur in treated patients, will subsequent patients be notified in real time? 30:55- What is the difference between an ASO and gene therapy? 33:55- How is n-Lorem defining an “optimal ASO”? 37:20- Can n-Lorem help patients who are severely advanced in their disease? 44:10- How can treating one person can lead to breakthroughs for many more? 39:40- What is Stan's favorite success story from his career? 46:20

When patients face the diagnosis of a rare disease, they face a costly, uphill battle to develop a treatment for their condition… that is, if they ever do.   Dr. Stanley Crooke is aiming to change that. As the CEO of n-Lorem Foundation, his mission is to provide personalized treatments to ultra-rare disease patients for free as long as they live, no questions asked. Thanks to his humility, coupled with the generosity of other individuals and companies, ultra-rare disease patients have a renewed hope to get the treatments others may not be able to provide.   Join Dr. Crooke as he reflects on his humble beginnings at Ionis, the approach n-Lorem takes to developing drugs for ultra-rare diseases, and what the future holds for research in this area.Show Notes  n-lorem Foundation  Charles River - Rare Disease  Vital Science S4, E01 Project ALS: Fueled by Love  2021 Rare Disease Trailblazers  BioSpace: n-Lorem Foundation Preps First Doses to Treat Ultra-Rate Disease Patients for Free  Ionis Pharmaceuticals  Nature Medicine: Antisense oligonucleotide silencing of FUS expression as a therapeutic approach in amyotrophic lateral sclerosis  

The creation of a drug consists of a copious and complicated series of projects that are all intertwined. Andy Mehrotra, CEO of Unipr, joins the Patient Empowerment Program to discuss how Unipr's AI based cloud program, project, and portfolio management platforms allow organizations like n-Lorem to quickly analyze data to inform program management. Today, n-Lorem effectively manages more than 90 accepted patient programs thanks to help from Unipr. Discovering locations where productivity can be increased while maintaining quality in every step is critical to treating as many nano-rare patients as possible. On This Episode We Discuss:Andy's upbringing among physicians and pharmaceutical entrepreneurs Traveling the world to launch Humera Baring the frigid Boston winters at MIT Inspiration to found Unipr How biotech and pharmaceutical organizations can use Unipr to increase efficiency The partnership between Unipr and n-Lorem Unipr's focus areas: Increasing the probability of success, decreasing the operational costs, and decreasing the cycle time for drug development Why Andy would donate himself to help n-Lorem

Manish Raisinghani joins the Patient Empowerment Program to discuss how Target ALS fosters collaboration between academia and industry to research and accelerate the fight against ALS. Target ALS has funded over 50 collaborative projects. Greater than 50% of which have had an industry partner and over 60% have resulted in an ongoing drug discovery program. From their Innovative Ecosystem, 6 clinical trials have emerged. Target ALS' commitment to fight all forms of ALS, no matter how rare, is evident in their founding support of Silence ALS, an initiative that aligns Columbia University and n-Lorem to offer an integrated solution to identify, support and potentially treat nano-rare ALS patients. Target ALS hopes that one day, no patient, no matter how rare their form of ALS, is left behind. On This Episode We Discuss: Target ALS' innovative model Accelerating ALS research through collaboration How a single nano-rare study can inform the ALS research landscapeThe importance of understanding the fundamental biology behind ALS Committing to fight all forms of ALSTarget AlS' support for n-Lorem and Columbia University's Silence ALS Initiative

I'm a day away from just filling all these with that "Lorem ipsum dolor sit amet..." bullshit. Cause I never have anything to say after the fact. Enjoy! Our website: www.wearenotjoerogan.com For advertising inquiries, please visit: https://www.advertisecast.com/TheJoeRoganExperienceExperience As always, you can listen to every episode of The Joe Rogan Experience here https://open.spotify.com/show/4rOoJ6Egrf8K2IrywzwOMk Support us here: https://www.patreon.com/jreepodcast Follow Joe on Instagram here: https://www.instagram.com/joerogan Follow Jamie on Instagram here: https://www.instagram.com/jamievernon Follow us on Instagram here: https://www.instagram.com/jreepodcast/ Follow Kamar on Instagram here: https://www.instagram.com/kamar_babar/ Follow Floyd on Instagram here: https://www.instagram.com/floydeeeee Follow the Subreddit here: https://www.reddit.com/r/jreepodcast/ Subscribe to our YouTube channel here: https://www.youtube.com/jreepodcast Beats by: Ghettosocks here:  https://open.spotify.com/artist/1AeYteGuRWeFyptpSz0y5b Movie Game Jingle by: https://www.instagram.com/tylerdevall/

ONCE UPON A GENE - EPISODE 175 Every Patient Matters - Discovering, Developing, and Providing Experimental ASO Treatments to Nano-Rare Patients for Free with n-Lorem Founder and CEO Stan Crooke Stan Crooke is the Founder and CEO of the n-Lorem Foundation. He's also the Founder and former CEO of Ionis Pharmaceuticals, the leader in RNA-targeted therapeutics. Under his leadership at Ionis, he pioneered development of the revolutionary antisense technology platform and created one of the largest, most advanced pipelines in the biotechnology industry. His foundation is now using this technology to discover, develop and provide personalized, experimental antisense oligonucleotide medicines to nano-rare patients for free, for life.  EPISODE HIGHLIGHTS What do you do at n-Lorem? With antisense oligonucleotides (ASOs), we design chemically modified pieces of genetic information and those pieces of genetic information allow us to target a specific RNA, which is the molecule that gets transcribed from your DNA to make the protein that makes cells work. Because we now understand that code very well, and because we have a lot of experience, we can be very rational, efficient and inexpensive compared to traditional drug development. In a nano-rare patient, a patient with a unique mutation in a single gene, we begin with this incredible advantage. We can create a genetic medicine for many of these genes and mutations and do that very rapidly and inexpensively and provide medicines for free to patients. What criteria does a family need to meet to become a n-Lorem candidate? The patient has to have a disease with a mutation that is present in no more than 30 patients in the world. By definition, our patients are truly unique and extremely rare. Patients also have to be genotypically and phenotypically characterized fully. A patient has to have a qualified research physician who can do all the work to understand what's wrong with the patient and then treat the patient with an experimental medicine after we make it.  How are some of your patients doing on the drug created for them?  The first patient that was treated with a personalized ASO that we were involved in was an 18 year old German named Anna who has a rare form of ALS. It manifests itself typically in early teens, and untreated is extremely rapidly fatal. Anna was desperately ill when the ASO treatment was started and we weren't sure if we'd even get the ASO to her before in enough time. She recovered and did remarkably well. She's now walking up multiple flights of stairs on her own with no ventilator. She has a speaking tube so her mom can hear her talk for the first time in almost three years. She's also planning to go to school. Anna even wrote a personal note to me, and for a patient with ALS to have the fine motor coordination to do that is really quite astonishing.  Where do you think we're going be in 5 to 10 years with personalized medicine? We look forward to being able to treat thousands of patients, which means we'll also be learning incredible amounts from each of these patients. We are committed to sharing what we learn and we'll have our first annual meeting of investigators, patients, and parents this year. As we learn more, then I think there will be more interest in this space, and as we create a model of quality, others can follow. I hope that as n-Lorem succeeds, we serve as a model for others to follow, and we drive policy changes that will enable more people, more technologies and more organizations to come to the aid of patients who are unserved. LINKS & RESOURCES MENTIONED https://www.mi-reporter.com/opinion/show-your-stripes-to-honor-rare-disease-day-on-feb-28/ https://www.nlorem.org/ https://www.ionispharma.com/ https://twodisableddudes.com/ https://www.ultragenyx.com/rare-entrepreneur-bootcamp/ https://open.spotify.com/episode/14RO0pNneHdpYxSqEzk1l7

ONCE UPON A GENE - EPISODE 172 From Cancer Biologist to Rare Disease Mom - Digging Into the Data to Better Understand SCN8A with Madeleine Oudin PhD - Professor of Biomedical Engineering at Tufts Madeleine Oudin is a scientist and Tiampo Family Assistant Professor at Tufts University. Her daughter Margo has two de novo mutations in the SCN8A gene, which causes epilepsy. She's navigating life as a rare, working mom and sharing her knowledge in an understandable and accessible way for other rare parents.  EPISODE HIGHLIGHTS Can you tell us about the epilepsy conference you just attended? The SCN8 community organizes the conference for clinicians, researchers and families every year at the American Epilepsy Society meeting. There were over 35 families in attendance who have children with SCN8A and it was amazing to meet everyone in real life. What advice do you have for parents who aren't sure about attending a conference? Meeting other people has made a big difference for me and I encourage others to find their people. Going to gatherings can lead to finding resources and there's value in connecting to others and learning more about a disease. Community is everything. As a scientist and now a rare parent, how do you look through the microscope differently? The impact of genetic testing surprised me in how vital it is when it comes to rare genetic diseases. When Margo had her first seizure and had genetic testing, the results helped to connect us to community. Genetic testing is vital for families to connect them to resources. What work have you done in the SCN8A community to help other families understand the disease and advance the treatment progress? Science communication is something I'm passionate about. Since becoming a rare mom, I started an Instagram account where I explain the science of the diagnosis and break it down so the information is accessible to everyone. I recently did a webinar breaking down the different treatment strategies for SCN8A.  Can you talk about Margo's acceptance to n-Lorem? We applied with our neurologist and were accepted into the foundation to develop custom Antisense oligonucleotide (ASO) treatments. In parallel, we're doing treatments in my lab on a mouse and mouse cells, testing out different ASOs to see if we can gain any additional insights. LINKS & RESOURCES MENTIONED ONCE UPON A GENE - Episode 139 - Remember Who You Are https://effieparks.com/podcast/139-remember-who-you-are Margot_thebrave on Instagram https://www.instagram.com/margot_thebrave/ SCN8A Alliance   https://scn8aalliance.org/ American Epilepsy Society https://www.ilae.org/ The n-lorem Foundation https://www.nlorem.org/ SCN8A Unraveled https://www.youtube.com/playlist?list=PL-RngxzecxdLsaJFQyerqqfGLarDe9MUt TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/ Interested in advertising on Once Upon a Gene? Email advertising@bloodstreammedia.com for more information!

Where did lorem ipsum come from? The answer turns out to be just as murky as the nonsense placeholder text itself. Plus, a new game that challenges you to guess when photos were taken. And the best family sitcom of the turn of the twenty-first century is getting a revival.Links:The hero(ine) who invented Lorem Ipsum may never be known. (Slate)Lorem ipsum translated: it remains Greek to me (The Guardian, 2014)Lorem ipsum : nouvel état de la question (L'Intelligence du Monde, 2012)What does the filler text “lorem ipsum” mean? (Straight Dope, 2001)The History of Lorem Ipsum (Priceonomics, 2015)DeLorean Ipsum Contested Will: Who Wrote Shakespeare? by James ShapiroChronophoto‘King Of The Hill' Revival Ordered By Hulu; Original Cast Returning (Deadline)Jackson Bird on TwitterSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

As some of you may know, our host Kira Dineen also co-produces the “Patient Empowerment Program” by n-Lorem. The podcast launched earlier this year and focuses solely on the needs of people with nano-rare diseases. These are people who have a unique pathogenic variant (aka mutation) that affects 30 or less people in the world, sometimes just one person. The host of the show is Dr. Stan Crooke, who will be a familiar voice to you if you are a long time listener of DNA Today. He was on Episode 141 where I picked his brain about nano-rare diseases. He is a scientist, physician, entrepreneur and the father of antisense technology. Dr. Crooke is responsible for more than 40 drugs in development including the famous Spinraza to treat people with spinal muscular atrophy. So this week we are sharing an episode of the podcast where Dr. Crooke interviews Dr. Sessions Cole about the diagnosed odyssey for people with rare diseases. Dr. Sessions Cole shares his career being a neonatal pulmonologist and his involvement in the undiagnosed diseases network (UDN). Dr. Cole estimates that it can take up to 12 years to get a diagnosis for a patient with a rare genetic condition and that there could be as many as 30 million of these patients in the U.S. who are undiagnosed. The UDN is working to elevate the awareness of the diagnostic odyssey these patients undertake and diagnose up to one third of patients who are referred to the UDN. Dr. Cole is part of n-Lorem's access to treat committee (ATTC), the committee that evaluates and recommends patients to n-Lorem. In this episode, Dr. Cole discusses the robust processes involved in the evaluation of each application to n-Lorem and the hope and value that n-Lorem is providing to nano-rare patients today.To hear other episodes of the n-Lorem “Patient Empowerment Program'', subscribe on Spotify, Apple Podcast, their website, YouTube, or wherever you stream your podcasts. The host is Dr. Stan Crooke, videographer is Jon Magnuson of Mightyone Productions, producers are Jon Magnuson and Kira Dineen. Stay updated with n-Lorem on Twitter, Instagram, Facebook, Linked In, YouTube and their website, nlorem.org. Questions/inquiries can be sent to podcast@nlorem.org. Stay tuned for the next new episode of DNA Today on October 28th! New episodes are released every Fridays. In the meantime, you can binge over 200 other episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Today”. Episodes since 2021 are also recorded with video which you can watch on our YouTube channel. DNA Today is hosted and produced by Kira Dineen. Our social media lead is Corinne Merlino. Our video lead is Amanda Andreoli. Our outreach Intern is Sanya Tinaikar. Our Social Media Intern is Kajal Patel. And our Graphic Designer Ashlyn Enokian.See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, DNAToday.com. Questions/inquiries can be sent to info@DNAtoday.com.

We had the pleasure of interviewing Danny Dwyer over Zoom video!Hailing from St. Louis, MO, Danny is an LA-based singer/songwriter & producer whose genreless music straddles indie rock, alternative, pop, and everything in between. He grew up learning jazz and playing in punk bands which eventually led him to college in Los Angeles where he studied music and started working on his solo artist project.Following a break-up in 2017, Danny turned to writing as he released his first song ‘What You Want' as part of a school assignment. Mixing contemporary R&B with his love of indie music, the song's early success inspired him to pursue his solo artist project. A genre chameleon, Danny seamlessly straddles different musical styles and sounds, bringing in diverse musical influences from his childhood and development. Recent collaborators include Benny Sings, Billy Lemos, Roy Blair, Ritt Momney, Magdalena Bay, RAC, Maria Isabel, Kllo, Maude Latour, Chloe Lilac, MILK, Marcos G, Jelani Aryeh, Brandon Banks and more.Danny's music has been featured in playlists such as Spotify's Lorem, Mellow Morning, Mellow Mood, Fresh Finds and Alternative R&B and Apple's INDIY, Day One and more. Danny has also received press from outlets such as Pigeons & Planes, OnesToWatch and Office amongst others. Mortal Kombat” is the fifth single off the anti-pop artist and producer's upcoming debut double EP, Losers, an emotional portrayal of liberated youth. The EP is a love letter and a goodbye note to his rural stomping grounds of the Midwest. “I used to feel the need to exploit as much as possible from any opportunity,” Danny says of the way LA twisted him. “Now I want to work on my bike and make sense of where I come from and where I am. All of these things I've compartmentalized for so long are now colliding.” The result is a collection of coming-of-age songs that have one foot in Friday Night Lights and another in Harmony Korine's Kids. WATCH "MORTAL KOMBAT" - https://youtu.be/b9S1AjXSBhI We want to hear from you! Please email Tera@BringinitBackwards.com. www.BringinitBackwards.com#podcast #interview #bringinbackpod #DannyDwyer #Losers #LosersEP #MortalKombat #NewMusic #zoom Listen & Subscribe to BiB https://www.bringinitbackwards.com/follow/ Follow our podcast on Instagram and Twitter! https://www.facebook.com/groups/bringinbackpod

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We had the pleasure of interviewing Bestfriend over Zoom video!Canadian bedroom pop duo Bestfriend are back. After their wildly successful EP, places i've lived, the duo announce a sister EP, places i've left, and share the lead single "Someplace Else," a dreamy bedroom pop bop. Nostalgic, romantic, and sugary sweet, "Someplace Else" is all about crushing on someone, and frankly, "It might be the most purely happy song we have ever written, really," the band notes. Leading listeners into a dreamy soundscape of lush, atmospheric synths and layers upon layers of rich harmonies, Bestfriend's latest single is the perfect prologue to their forthcoming EP, due out this summer. Written and produced entirely by the duo and mixed by Grammy-nominated Travis Ference (Ariana Grande, Tori Kelly, Imagine Dragons), places i've left leaves us where their debut EP places i've lived left us: lovestruck, yearning, and filled with a sun-drenched, bittersweet nostalgia. Bestfriend's debut EP, places i've lived, came out last October, to reach critical acclaim from Under The Radar, Line of Best Fit, Earmilk, DIVA, and more. A love letter to all of the experiences and people from Bestfriend's young adult lives, places i've lived is heavily inspired by storytelling songwriters like Lorde, The National, Big Thief and Julia Jacklin, with production inspired by Bleachers, FINNEAS, The 1975, Rina Sawayama. Created remotely, with Stacy on the west coast and Kaelan in the east, Stacy would write songs, create rough demos and send them to Kaelan who would then produce it from there, passing it back and forth between each other to add/detract elements. Since its release, duo have been featured on Spotify's Lorem, Bedroom Pop, and my life is a movie playlists, amassing over 1,500,000 streams within the first 4 months of release. For more on the story behind the music, check out Bestfriend's exclusive interview with The Line of Best Fit and Luna Collective. We want to hear from you! Please email Tera@BringinitBackwards.com. www.BringinitBackwards.com #podcast #interview #bringinbackpod #Bestfriend #LGBTQ+ #LGBTQ #PlacesIveLived #NewMusic #zoom Listen & Subscribe to BiB https://www.bringinitbackwards.com/follow/ Follow our podcast on Instagram and Twitter! https://www.facebook.com/groups/bringinbackpod