Podcasts about golisano children

Why are more young adults getting cancer? It's a question researchers are racing to answer. In January, the American Cancer Society released a report detailing how despite the cancer mortality rate in the U.S. decreasing by 34% from 1991 to 2022, the progress is jeopardized by an increase in diagnoses of many types of cancer, especially in younger adults. As our guests this hour explain, navigating cancer diagnosis and treatment as a young person has unique challenges. We talk with them about the state of research and how to support young adults living with the disease. Our guests: Lauren Spiker, founder and executive director of 13thirty Cancer Connect Jamie Flerlage, M.D., chief, academic director, and associate professor of the Pediatric Hematology/Oncology Division at Golisano Children's Hospital and assistant director of clinical research at the Wilmot Cancer Institute Ashley Chittenden, survivor of acute myeloid leukemia and nurse practitioner in the Pediatric Hematology/Oncology Division at Golisano Children's Hospital/Wilmot Cancer Institute

The measles outbreak in the southern United States has caused multiple deaths, marking the first measles fatalities in this country in years. Health and Human Services Secretary Robert F. Kennedy Jr. has sent mixed messages on vaccination and preventive care. In addition, Kennedy has been wrong about how vaccines are tested in children. We talk to local doctors about the best way to care for kids and keep them safe. Our guests: Elizabeth Murray, D.O., associate professor of clinical emergency medicine at the University of Rochester Medical Center, and director of child health and safety communications for Golisano Children's Hospital Justin Rosati, M.D., assistant professor of neurology at the University of Rochester Medical Center

In this episode of Against the Green, hosts Gabe and Dave bring humor and updates

Nikki Shimko, nurse manager of the Golisano Transport Team and president of the Florida Neonatal Pediatric Transport Network Association, recounts the harrowing experience of evacuating Golisano Children's Hospital during Hurricane Ian. Despite the lack of preparedness leading up to the hurricane, Nikki's team successfully evacuated 81 patients, including 62 neonates, over 160 miles to 15 facilities. The collaborative effort and preexisting networks proved invaluable in ensuring the safety and well-being of the patients, highlighting the importance of planning and relationships in disaster preparedness.RESOURCES:https://www.nhc.noaa.gov/data/tcr/AL092022_Ian.pdfhttps://www.goodmorningamerica.com/wellness/story/inside-harrowing-48-hour-rush-evacuate-nicu-babies-90995512https://www.youtube.com/watch?v=CRpFrX3P8hM

In the aftermath of Hurricane Ian's unexpected Category 5 landfall in Florida, the evacuation of Golisano Children's Hospital became a critical operation, highlighting the challenges and heroism of transport medicine teams. Phyllis Hendry, MD, FAAP, FACEP, a key figure in pediatric emergency care and transport services, sheds light on the complexities of pediatric transport, the necessity of community-based response, and the lessons learned from this harrowing event. REASOURCES:https://www.nhc.noaa.gov/data/tcr/AL092022_Ian.pdfhttps://www.goodmorningamerica.com/wellness/story/inside-harrowing-48-hour-rush-evacuate-nicu-babies-90995512https://www.youtube.com/watch?v=CRpFrX3P8hM

Another classic interview with Tonya Watt (Pamela Anderson's "double"), Stan reflects on the previous day's Cares For Kids Radiothon for Golisano Children's Hospital in Fort Myers, Grab Bag, Local Beat, Roger's Entertainment Corner, Junior's segment, a game of Stan's 10 to 200, News Headlines, Fluffer, your emails, a classic Haney true crime story, News, Frank Sinatra and Friends Week concludes, classic standup comedy, and more...

Bob talks to Clay Harris on Rochester delaying reassessment, conversation on Todd Baxter and Terrence Lewis, as well as Trump & overcapacity at Golisano Children's Hospital.

In 2021, federal rules from the 21st Century Cures Act mandated that most clinical notes be made available in real-time, online and free of charge to patients. This practice, commonly known as “open notes,” was a significant step towards enhancing medical information transparency–– a vital step in reinforcing trust in the provider-patient relationship. However, it also introduced complexities, raising questions as to what to include in the notes. “The ethical analysis does not always align with the legal analysis, and these are conversations that ethicists are aware of,” Steven Bondi, MD, JD, says. Dr. Bondi, a lawyer turned doctor, is renowned for his expertise on the Cures Act, Open Notes and Electronic Medical Records. He specializes in pediatric medicine at Golisano Children's Hospital and is an associate professor within the Department of Pediatrics at the University of Rochester Medical Center. “I think that knowledge is important, and we need to know what the law says and what its parameters are and when we can use the exceptions,” Dr. Bondi says. Dr. Bondi recommends multiple resources on this topic. He suggests visiting healthit.gov and navigating to their information blocking section for informative FAQs and webinars. He also recommends the Guttmacher Institute as a source for general knowledge around adolescent health and privacy. Lastly, he explains that he was recently a part of the American Academy of Pediatrics' committee on medical liability and risk management where he helped produce a monthly column called ‘Pediatricians in Law.' This episode was recorded at the 2023 American Academy of Pediatrics National Conference and Exhibition. Some highlights from this episode include:  How to navigate difficult situations and avoid labels  The role that ethics play in this discussion Confidentially in adolescents by state Biggest pitfalls and gray areas  For more information on Children's Colorado, visit: childrenscolorado.org    

Premier Talen Relations CEO Joe Lynch called in to invite Bo and TJ to play a little ball !!!! 

Bob talked to the Psychiatrist in Chief at Golisano Children's Hospital, Dr.Mike Scharf about the life of his college Dr.Brophy. Bob also talked about Israel, Palestine, and dressing up for church.

Bob talked to Jerry Pucillo about his experience with his daughter having cancer. Marvin Adams also read a poem for the listeners. Bob talked about the radiothon Cares 4 Kids for the Golisano Children's Hospital

Bob talked about the Radiothon Cares 4 Kids for Golisano Children's Hospital.

Bob talked to Kim McCluski, the Golisano Children's Hospital board chair, about her experience in the hospital. He also talked to Morgan Kowalski about her experience with Golisano Children's Hospital. Bob talked about the Radiothon Cares 4 Kids for Golisano Children's Hospital.

Bob talked to Timothy Paul about his experience with a child in the hospital. He asl talked to Dr. David Korones about his experience as an oncologist. Bob talked about the Radiothon Cares 4 Kids for Golisano Children's Hospital.

Bob talked about the Radiothon Cares 4 Kids for Golisano Children's Hospital. Bob interviewed Dr.Patrick Brophy, the pediatrician-in-chief.

Bob talked to Dr.Michael Scharf, the chief of pediatric psychiatry. He also talked to Lauren Opladen, a nursing student at Brockport. Bob talked about the Radiothon Cares 4 Kids for Golisano Children's Hospital.

Bob talked about the Radiothon Cares 4 Kids for Golisano Children's Hospital.

Sept 28, 2022 is a day I will never forget!  I had no idea that Hurricane Ian would not only affect the entire coast of Florida where I have lived for 25 years, but would also hit each member of my family in ways I never could have imagined. Are you prepared for emergencies to come up?   Maybe chaotic schedules this fall felt like an emergency. Maybe a diagnosis or sudden illness?  Maybe a past trauma gets reactivated in your brain when something happens and catches you "off guard". My tips for being prepared for an emergency... big or small.... are 1. Know who has the final say. 2. Prepare your family in advance... my biggest recommendation is to go camping!  Nothing prepares you for survival like camping! lol 3. Be a duck. 4. Know your fundamental needs/values in advance.  Ponder and let them permeate your heart on GOOD DAYS so on BAD days they are your foundation. 5.  Pray... without ceasing.... before, during, after.... The Lord's Prayer is a great one..  Jesus taught us to pray it for a reason:) Want to help with Hurricane Ian relief?  This matching fund through Healing Hands, doTERRA's non profit, will serve Golisano Children's Hospital's staff so they can fully reopen and Kids Minds Matter events are top in my heart.  Go to thewellteam.com and scroll down for the link to donate.  Thank you! UP TO $15,000 will be matched by Healing Hands!!  

Thank you for joining this week's episode of the Albany Update. In today's news, we tell you about a legal challenge to the state's new gun control law. There have been other suits filed, but what makes this case different is that it's filed on behalf of evangelical churches across the state. Then, the Election is only about a month away. We'll look at the race for Attorney General, as well as State Comptroller. There's also a bond act referendum for voters to consider. Finally, there is disturbing news from Golisano Children's Hospital in Rochester, NY. Apparently, the pediatric medical center is offering gender transition services. Let's get started. --- Support this podcast: https://anchor.fm/albanyupdate/support

On today's episode host Laura Reagan, LCSW-C speaks to Donna Jackson Nakazawa about her forthcoming book, The Angel and The Assassin: The Tiny Brain Cell That Changed the Course of Medicine.  Donna Jackson Nakazawa is an award-winning journalist and internationally-recognized speaker whose work explores the intersection of neuroscience, immunology, and human emotion. Her mission is to translate emerging science in ways that help those with chronic conditions find healing. She is the author of six books, including her most recent book, The Angel and The Assassin: The Tiny Brain Cell That Changed the Course of Medicine (Random House/Ballantine, January 2020), which illuminates the newly-understood role of microglia – an elusive type of brain cell capable of Jekyll and Hyde behavior. When triggered, microglia can morph into destroyers and take down synapses, causing depression, anxiety, and Alzheimer's. But under the right circumstances, they can be angelic healers, repairing the brain in ways that can help alleviate symptoms and prevent disease. Hailed as “riveting,” “stunning,” and “visionary,” The Angel and the Assassin elucidates the biological basis behind the mind-body connection and offers us a radically reconceived picture of human health. Donna's other books include Childhood Disrupted: How Your Biography Becomes Your Biology, and How You Can Heal (Atria / Simon & Schuster, 2015), The Last Best Cure (Hudson Street Press / Penguin, 2013), The Autoimmune Epidemic (Touchstone / Simon & Schuster, 2009), and Does Anybody Else Look Like Me? A Parent's Guide to Raising Multicultural Children (Perseus, 2003). Her writing has been published in The Washington Post, Health Affairs, Aeon, More, Parenting, AARP Magazine, Glamour, and elsewhere. She blogs for Psychology Today and HuffPost. In addition to her work as a science journalist, Donna has been a keynote speaker at numerous universities, conferences and hospitals. Her keynote lectures include the 2019 Care Plus Annual Conference, 2018 Rutgers University Behavioral Health Care Conference, 2018 Golisano Children's Hospital Annual Pediatric Conference, 2017 Royal Society of Medicine SIRPA Conference on Chronic Pain and Emotion, 2017 Learning and the Brain Conference, 2016 Johns Hopkins Conference on Trauma-Informed Healing, and the 2012 International Congress on Autoimmunity. She has appeared on The Today Show, National Public Radio, NBC News, and ABC News. Resources Learn more about Donna Jackson Nakazawa here: https://donnajacksonnakazawa.com  Thank you to TherapyNotes for sponsoring this week's episode! TherapyNotes makes billing, scheduling, notetaking, and telehealth incredibly easy. And now, for all you prescribers out there, TherapyNotes is proudly introducing E-prescribe! Find out what more than 100,000 mental health professionals already know, and try TherapyNotes for 2 months, absolutely free. Try it today with no strings attached, and see why everyone is switching to TherapyNotes. Now featuring E-prescribe. Use promo code "chat" at www.therapynotes.com to receive 2 FREE months of TherapyNotes! This episode is also sponsored by Trauma Therapist Network. Learn about trauma, connect with resources and find a trauma therapist near you at www.traumatherapistnetwork.com. We believe that trauma is real, healing is possible and help is available. Therapists, registration opens in July for Trauma Therapist Network membership. Join a compassionate and skilled group of trauma therapists for weekly calls focused on Self Care, Case Consultation, Q&A and Training.  Get on the waiting list now to be the first to know when registration opens! Sign up here: https://traumatherapistnetwork.com/wait-list/  Podcast produced by Pete Bailey - https://petebailey.net/audio 

Tune in to this episode of Boating Broadcast to hear more about how MarineMax Fort Myers helped raise over one million dollars to benefit the Golisano Children's Hospital! We hear from some of the key players involved in this event, MarineMax Fort Myers General Manager Ryan West, Lee Health Chief Officer of Hospital Operations Armando Llechu, and Chris Simoneau, Chief Development, Marketing, and Communications Officer. Check out upcoming events, find more ways to give, and learn more about the event's beneficiaries by visiting www.leehealthfoundation.org.   

David and his wife Jerri relocated from Illinois to Naples in 2015 and have since become the largest commercial real estate property owner in Naples while creating new jobs and investing back into the community they love. The Hoffmann Family of Companies includes Hertz Arena and the Florida Everglades, The Naples Princess & Miss Naples boats, and Naples Transportation & Tours. David and Jerri also support many worldwide charitable, arts, and civic organizations and are trustees of the Naples Children & Education Foundation. David Hoffmann is also a director at the Naples Zoo at Caribbean Gardens.      David joins me on the show to discuss why he believes that gaining a bigger footprint in an area and providing a broader service is a fantastic way to serve the community. He shares what drew him to Naples, Florida, and describes the amazing Interactive sculptures he has donated to the city to form a sculpture walk. David also shares his beginnings in real estate investment, how he acquired his first piece of land, and some of the projects his company is currently involved with.     “We have no partners or shareholders in our 90 plus businesses and 280 locations around the world. It is our family's assets and our fit.” - David Hoffmann    “It is a blessing to be successful, but I think there's also a huge responsibility.” - David Hoffmann     This Week on The Wow Factor:  Deals that sparked David's interest in market-making   How acquiring a small golf course generated the cash flow to support other business acquisitions and real estate acquisitions  Why he started buying apartment buildings in Washington, Missouri at the young age of 24 and ended up becoming the largest owner of that kind of commercial real estate in town   What drew David to Naples, Florida, and why he acquired some wonderful properties along Fifth Avenue   Some of the unique projects that David is involved with right now including a boutique hotel and a 12 hole golf course   Business ventures that haven't gone so well for David and the lessons he has learned through the mistakes he made  Why the Hoffmann family have no partners and no shareholders in any of their 90 Plus businesses in 280 locations around the world  David's commitment to philanthropy and some of the organizations he contributes to, including the Everglades Foundation and the Golisano Children's Museum in Florida   The philosophy behind David's lifelong passion for generosity    David Hoffmann's Words of Wisdom:  Don't sit there and complain about what's going on in the world — get out there and make changes by getting involved in your local community. The world is changing, but we have to be the change we want to see if we're going to move forward positively.     Connect with Hoffmann Family of Companies:  The Hoffmann Family of Companies Website  The Hoffmann Family of Companies on Facebook  The Hoffmann Family of Companies on LinkedIn  The Hoffmann Family of Companies on Instagram    Connect with The WOW Factor:  I Like Giving: The Transforming Power of a Generous Life  by Brad Formsma  Words of Wisdom Website  Brad Formsma on LinkedIn  Brad Formsma on Instagram  Brad Formsma on Facebook  Brad Formsma on Twitter     

Want to help your community thrive? It begins with your own inner work. In this episode, we have invited Chantel Rhodes. She is a child advocate for Golisano Children's Hospital in Fort Myers, Florida, and has been involved with human rights campaigns her entire adult life. She first joined the Black Lives Matter movement while studying to get her master's degree at Georgia State University in Atlanta. Chantel is passionate about expanding awareness regarding social issues, increasing cultural competency, promoting equal opportunity, fostering mental health, and decreasing social and health disparities.

Today is Giving Tuesday! A lot of us get caught up in Black Friday and Cyber Monday, the holiday shopping craze. Let's not forget what the spirit of the season is really all about. The Season of giving. On giving Tuesday, we hope that you can make a donation. To those less fortunate. Today we teamed up with […] The post Giving Tuesday with Golisano Children's Hospital appeared first on B1039.

On Tuesday, the CDC formally endorsed the Pfizer COVID-19 vaccine for children ages 5-11. According to PBS NewsHour, "CDC officials calculated that for every 500,000 kids this age vaccinated, between 18,000 and 58,000 COVID-19 cases would be prevented, and prevent anywhere from 80 to 226 hospitalizations." This hour, we talk with local pediatricians about the COVID-19 vaccine for kids. Our guests: Elizabeth Murray, D.O. , assistant professor of pediatrics and pediatrician at Golisano Children's Hospital Steve Cook, M.D. , associate professor of pediatrics and pediatrician at Golisano Children's Hospital

It's Miracle Treat Day at Dairy Queen For every Blizzard they sell they'll donate $1 to the Golisano Children's Hospital Here are all the details: https://www.dairyqueen.com/en-us/ See omnystudio.com/listener for privacy information.

A mother mourning the loss of her daughter discovers that she has lost something else important to her.   TRANSCRIPT SPEAKER 1: The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. SPEAKER 2: Welcome to JCO's Cancer Stories, The Art of Oncology, brought to you by the ASCO Podcast Network, a collection of nine programs covering a range of educational and scientific content and offering enriching insight into the world of cancer care. You can find all of the shows, including this one, at podcast.asco.org. ELIZABETH CONROW: Access Denied, by Elizabeth Conrow. I lost my daughter, Amanda, in 2015. She was diagnosed with a brain tumor at age three and was in treatment for 2 and 1/2 years. Less than two weeks after she died, friends and family were getting on with their lives, but I was still in shock. I couldn't believe that Amanda was really gone. Early in the day, I looked at my kitchen table and tried to imagine her eating a bowl of rice, an unusual breakfast for a five-year-old. But that was Amanda. My eyes filled with tears as they rested on the empty chair. She was really gone. In that moment, standing in the kitchen, I struggled to remember every detail of who she was. It felt like the memory of her was slipping away. My heart beat quickened, and my mind raced with compulsive nagging thoughts. How tall was she the last time we were in the outpatient clinic? How much did she weigh? I realized I would never be able to put her on a scale again or mark her height on the cupboard door. I fear that this information would be lost forever, just like Amanda. I moved to my computer and started to log on to our hospital's online patient portal to see if I could find answers to my questions. How many times had I logged into this system looking for Amanda's test results or to message one of her doctors? How many times did it serve to confirm appointment times or remind me of medicine doses? I clicked the Sign In button, and my heart stopped. I couldn't get in. Instead of viewing her chart, I saw an alarming red stop sign and a message saying "access denied." I stared at the screen in disbelief. Just two weeks after losing my daughter, I faced yet another heartbreaking and unexpected loss. I no longer had access to Amanda's medical records. I no longer had a connection to her medical team and the hospital family I had grown to love and care for. Everything Amanda had been through for the last 2 and 1/2 years was gone. It was as if she never existed. She had vanished. I was caught off guard, deeply saddened, and utterly unprepared to have this connection to the hospital and this connection to Amanda ripped away. I was confused and embarrassed by my emotions. I certainly didn't need this access. But I was devastated that it had been taken away. I reached out to my daughter's oncologist to ask how and why the patient portal had been turned off. I let him know that it was really important to me to be able to view Amanda's records, at least for a time. It had never occurred to him that a parent might want to see this information again. He explained that it was a system designed safety measure that automatically turned off access to an account once a patient had died. I was the first parent to reach out to him with this question. Amanda's oncologist immediately contacted the online records office to reactivate her chart so I could search out answers to some of my questions. It brought me so much comfort to be able to go back in and revisit her medical journey. As I thanked her doctor, I shared with him how important it was to protect families from this type of trauma. I didn't want another family to experience this pain. He listened and helped put a manual reactivation system in place. Going forward when a child died, the online records office would manually reactivate each pediatric account individually. It wasn't a perfect solution, but it was a step in the right direction. It has been six years since Amanda's passing. I am now the bereavement coordinator at the same hospital where she received care. When I started in this role, I was surprised to learn of several families who, like me, had been denied access to their child's medical record. Hadn't the hospital resolved this issue years ago? I was frustrated that our institution hadn't found a better solution in the six years that passed. Last spring, as I followed up with bereaved families from our hospital, I had a conversation with a mother, Diane, that was hauntingly familiar and heartbreaking. Diane and I spoke on the phone shortly after the loss of her son, Evan. As we wrapped up our call, almost as an afterthought, she sheepishly asked about Evan's medical records being deactivated. I was immediately brought back to my kitchen table and the pain I felt when I experienced this secondary loss just two weeks after losing Amanda. I knew why Diane felt silly asking about this. And I deeply understood her need to log in. Diana explained that she was creating a record of everything Evan had been through, every transfusion, every chemo treatment, every inpatient and outpatient visit. And she could no longer complete that task. She shared her experience with me. I know for me, it was really difficult to wake up that very next morning, literally only about 12 hours since he died and not be able to look at it. Even though I know there had been no additional tests run since the last time I had checked, it was my morning routine to look at it. I would check it each morning, even before I got up. It had been that way for months while we were inpatient. First, looking at his ANC and counts, and then in the final month and a half, checking his bilirubin and liver numbers. There was always that hope that things were going to improve. This would be the day. So that first and subsequent time was just a blunt reminder that he was gone and there would be no more checking. I wanted to go back and look at his results, too. Oddly, I thought it would make me feel closer to him and closer to the routine I had while he was alive. Diane wanted to feel closer to her son. I wanted to feel closer to my daughter. Accessing a child's online medical portal is one way a parent begins to come to terms with this impossible loss. Snaman, et al, 2016, suggest that parents who are grieving significantly benefit from the creation and continuation of bonds with a child who has died. Revisiting a child's journey through the lens of the medical portal helps strengthen that bond. As I looked through Amanda's chart and remembered various times we visited the hospital, it helped me picture her more clearly. And it helped me feel a connection to her that I was deeply longing for. Looking through a child's medical record, while painful, can be part of healing and connection. In addition to creating bonds with a child who has died, the medical portal helps parents stay connected to the hospital and the medical team that cared for their child. According to additional research by Snaman, et al, 2016, bereaved parent's benefit from the ongoing support of a hospital throughout a time of grief. When a child dies, the secondary loss of the medical community can leave families feeling abandoned by those they have come to trust and depend on. Anyone who had taken care of Amanda felt like family to me. Sending messages to Amanda's medical team after she died provided a feeling of familiarity when everything else around me was spiraling out of control. A continuing connection with the medical team through the online portal can positively impact grief outcomes for bereaved parents. Accessing a child's medical record provides a grieving family with an easy way to communicate with, and ask lingering questions of the medical team. Access to medical records should not end when a child dies. The 21st Century Cures act acknowledges the need to provide patients with open notes and immediate access to medical information. As we implement real-time access for living patients, continuing access after a loss should also be considered essential. Dr. Alan Wolfelt, from the Center for Loss, discusses the need to say hello to one's grief and welcome it before saying goodbye to the person who died. In those early months, saying hello to grief meant reading through Amanda's medical records, communicating with her medical team, and uncovering every connection I had to her while she was alive. In some small way, logging into Amanda's medical portal and discovering that she was 42 inches tall and weighed 41.2 pounds brought me immeasurable comfort. As parents grieve the loss of a child, comfort and connection should be readily available without having access denied. SPEAKER 3: The guest on this podcast episode has no disclosures to declare. SPEAKER 4: Welcome to Cancer Stories, The Art of Oncology podcast series. With me today is Elizabeth Conrow, bereavement coordinator at the University of Rochester Medical Center and the author of Access Denied. Welcome to the program, Liz. ELIZABETH CONROW: Thank you so much for having me here. It's an honor to be here. SPEAKER 4: It is our pleasure. And first of all, let me start by saying I was very moved by the piece. And I'm so sorry that you lived through this experience. And really interested in knowing how you transformed your personal grief into now, your profession. ELIZABETH CONROW: Sure. Well, it's definitely been a process. Obviously, as a family, we never thought we would be down this road. I never thought I would have a child who had cancer. I never thought that I would have to go through the grief of losing a child and then comforting my own family, and my husband, and those around us through that experience. And I can tell you that for the first couple of years, I really didn't feel equipped to do anything. I felt like I lost my confidence in anything that I had an ability to do prior to this. Simple things like making a meal for someone who was sick became way too overwhelming to even consider doing. So it was definitely a process of years. But when the opportunity came up to work at Golisano Children's Hospital, the same place where Amanda had been cared for, the timing was right. And I knew that it was a great step to take and a way to honor Amanda's life, and really in some way, offer just a little bit of support and comfort to bereaved families, because I understood a little bit of what maybe they were going through. So it just seemed like a really good fit and a really good match for my experience at that point and a way to help and honor Amanda. SPEAKER 4: Let's start by talking a little bit about Amanda. Tell us a little bit about her and her story. ELIZABETH CONROW: Sure. Amanda is one of five children. So she was the fourth of the five. Very silly, loved to wrestle with daddy, had the biggest blue eyes that anyone had ever seen. She was just a delight and a joy. And when she was 3 and 1/2, she was diagnosed with a brain tumor. And we were in the hospital for a number of days. She had surgery and a full resection. And we were told that if after a resection and radiation it never came back, that we would be good. But that if it came back, it would likely be terminal. So we knew at the outset that this was-- we're not dealing with a cold or a headache. We're dealing with something pretty serious. So she went through the surgery beautifully. She went through all of her radiation treatments. We did a clinical trial of chemotherapy. And six months from when she was diagnosed, we really felt like we did well. She did amazing. And we were ready to walk away from everything and just celebrate really, kind of getting through this. And her very first follow-up scan two weeks after she was done with treatment-- her doctor, Dr. Koronas, called us and let us know the very devastating news that the tumor had returned, and it was all in her brain and down her spine and too many places to count. So six months from diagnosis, we knew that this was not going to end well. And we kind of had to struggle to prepare for that, as well as to recognize that in that moment, she was still Amanda. And she was still doing really well. But we knew that time would be limited. And so we had actually a very good year and a half with her, as much as you can say that. She went through additional radiation treatments. And we continued to try other chemotherapies to do what we could. But ultimately, in February of 2015, surrounded by her family in our home she passed away. And we then had a whole new struggle with grief and really, coming to terms with a new life and a devastating loss. But she was a joy. And she was a joy throughout it. So it was not all terrible. SPEAKER 4: She sounds like an extraordinarily little girl. And in your essay, you start by telling us that just after she died, I think a few days or weeks, you're thinking about her, and you want to access her medical record through the portal that you had gotten used to using all the time. And then as you're logging in, you get the signal that says "access denied." And that triggered a tremendous wave of grief for you or something. Tell us a little bit about that and what you did with that. ELIZABETH CONROW: Sure. I think I didn't realize at the time that I was really just trying to hang on to who she was, that I was trying to connect with her in some way. I mean, it was just two weeks after she had died. And I just-- I wanted access to see, what did she weigh? Goodness, if I could recreate her in the form of a stuffed animal, how long would she be? How much would she weigh? And when I went to log in, it was a horribly devastating loss. It really felt like all of the sudden, I knew in my mind she was gone, but logging into this wealth of information that contained all of her blood counts and numbers and information that we had access so often, to all of a sudden have that gone. It was just a punch in the gut reminder that she truly was gone and that her records had disappeared. And she just wasn't here. And I wasn't prepared for that. I really thought that I'd be able to go in and find the things I wanted to find and have peace about that. It was shocking to me. And I remember feeling so embarrassed like, how can I call her doctor and say, I lost this access and I really need it? When she's not here, there's no reason. I don't need it. He's going to think I'm crazy. But it was important enough to me that I reached out to him. And I said, you've got to help me. How can I still access this? SPEAKER 4: So what happened next? ELIZABETH CONROW: So he-- actually, I was pretty surprised. I was the first parent he said, that had ever reached out to him with this issue. And I thought, how is that possible? How is that possible? And I'm guessing other parents had experienced it, but didn't know what to do, didn't know where to turn. And he was very compassionate. And he reached out to our online medical team, our portal team, and tried to figure out a way to reactivate the account for me. And got that done very quickly. And I said, well, it's not enough that it's been reactivated for me. No other parent can go through this. We have to come up with a plan. And so he really did work very hard with our team here to come up with something that would hopefully fix the problem. And it did. I know many families then, had their access turned back on manually, through a manual process that they put in place here. But I know that in the last six years, there have been several families who went to log in and had this experience. And unless you've been there and unless you've been the parent on the end of losing a child and then going in and having more taken away that you didn't expect, you don't understand the pain of that. And so I think the driving force behind me really wanting to write this article was to say, I know that this isn't just my institution. I know this is happening across hospitals. I know that when a child dies, this access is turned off. And that really hurts families. And if there's a way to bring attention to that and say, hey, we can do better, we need to. SPEAKER 4: Now that you have this perspective, I know that you have actually developed some training for oncology fellows and staff to train them a bit to talk with bereaved parents. What are some of the lessons that you want people to learn? ELIZABETH CONROW: That's a great question. I'm working with another doctor here. It's an advanced communication training where we're helping young doctors share bad news for the first time. And it's amazing to me how afraid people are to approach the bereaved. And I guess, having been through it, I see now how poorly we really do bereavement and how afraid we are to kind of approach someone who's lost a child and just wrap our arms around them and say, I'm so sorry. I'm here with you. Everybody wants to fix it. And there's no fix. And people don't want to approach a bereaved parent and bring up their child, because they don't want to make them sad. And what many people realize is that our children are always on our mind. You're not reminding us of anything we're not already thinking about. I was pretty surprised after losing Amanda that someone could be on my mind all the time-- all the time when they're not here anymore. You know, you think about people here and there, time to time, people in your life. But once she was gone, she was right at the front of my mind and still is, every moment of every day. And so if you see a bereaved person, it's OK to mention their child's name. I actually-- I go to the dentist. And the woman who cleans my teeth, every single time I go, will mention Amanda. And I know it's intentional. And I know it's because she wants me to know that she cares. And so those kinds of simple acts that people do as a way of recognizing and honoring the child whose passed means so much to a bereaved parent. SPEAKER 4: Just listening to you and the emotion in your voice, I imagine it must have been difficult in a way to go back to the same place where Amanda was treated and now, work with the staff and the clinicians who treated her. Tell us a little bit about how you've managed those relationships? ELIZABETH CONROW: One of the things I've learned, and that's partly through the role I have now in supporting other bereaved parents is that everyone grieves differently. And I know there are some parents who, the first time they come back to the hospital, it's really, really hard for them. And it's almost like a PTSD moment. For me, I appreciated and cared about all of the medical staff so much that coming back here to me, was a need. I needed to get back here and find a way to connect with these doctors and nurses and the people who cared for Amanda so beautifully while she was here. In those first months of grief, I showed up at the hospital-- I remember there was one day I showed up, and I felt so lost. But I just needed to see those nurses and give them a hug. And I felt awkward and out of place, because suddenly, I'm here and she's not with me. But I just needed to be in a place where she had been and a place that meant so much to us. So coming back here for me, certainly had its hard moments. And there have been challenges with it. But it's been a place of comfort. And being able to talk about Amanda with other parents has really been a gift for me, because it's not an opportunity you have all the time, especially six years later to talk about the child who died. So it's been a gift. SPEAKER 4: What is it like for you to be with other parents now who are going through what you experienced? How does your experience of loss influence your role as a counselor for a newly bereaved parents? ELIZABETH CONROW: I do a lot of listening. I do a lot of listening. And there are some parents who I'll call and follow up with and check in on. And they're good. And they don't need anything. And to be honest, I think when we first lost Amanda, if someone called me and I had never met them before, I might say I'm good. I don't really need any support right now. I've got my family. But there are some parents who I will call, and they will talk to me for 45 minutes. And they will cry. And they will say, you're the first person I've been able to talk to about this, because you understand and you've been through it. And so I'm able just to listen. And when they say things that they think are crazy, I wandered into my son's room and I slept in his bed last night, I say, I understand that. I once found Amanda's socks in a travel bag. And when I found them, I pulled them out and I slept with her socks. So there are things that people think are crazy that I'm able to help them normalize some of those feelings and understand that it's OK. SPEAKER 4: I don't think it's crazy at all. You speak with such knowledge and also such empathy. I wonder if you can help us also understand how you see the clinicians now-- the doctors and nurses who are actually are caring for these patients-- how you see them react to the death of a patient and how they maintain their relationships with what the parents once the kids are gone? ELIZABETH CONROW: It's been very interesting, I guess you could say to be on the other side of this, right? I was on the parents side before, where I was able to receive kind of the love and comfort and support of those who cared for Amanda. And I was able to see them showing up at the funeral and the ways that they would reach out and send notes and cards. But now, being on this side working with many of those same people, I've been really struck, even during our weekly meetings when they talk about different cases and different families and the losses that they've had, how significantly it does impact them, and how much those families and those children really do mean to them. And you know, I've often sat there now wondering, well, what did they say about my family? What did they say about us? And not a conversation I can go back to and sit in on. But I'm just struck by how much they really do care and how much it extends beyond this just being a job for most of-- all of them. SPEAKER 4: Yeah, in your role now, in your professional role, what kind of changes have you implemented in the way clinicians and parents communicate, or the way the system communicates with parents? ELIZABETH CONROW: At our hospital where I work, we have probably around 80 or 90 losses a year. And I came into this and said, I can support these families. And I can follow up with 80 or 90 families in a reasonable manner. But really, we need more parents doing this. We need to expand kind of what we're doing. So I've been trying to work toward implementing a mentoring program of sorts, where bereaved parents who are a few years out in their grief can come alongside newly bereaved parents and really support them, one on one for a year or a year and a half to help them get through that time, so that it isn't just me. And as great as I am, I really know that we can do much, much better by parents if we expand kind of the support network that we have. So I've been trying to grow some of our bereaved parent base. And those who can give input on some of the things we're doing-- because I know bereaved parents have so much wisdom and so much they can share from their own experiences. SPEAKER 4: You sound like a force. I wonder, have you connected with other hospitals, other teams? Or is your-- are you concentrated on your hospital and your community? ELIZABETH CONROW: The greatest support to me, actually has been St. Jude. They have such a fantastic program. Their bereavement, their parent support is really outstanding. Actually, just this week, I was able to sit in on one of their parent mentor trainings to kind of learn, well, how do you train your people, and what do you do? And so that was fantastic. So I'm really grateful-- grateful for their support. So they've been really wonderful. SPEAKER 4: I imagine Amanda's passing really affected your entire family and the other kids. Can you tell us a little bit about how all the other kids dealt with their grief? ELIZABETH CONROW: Sure. I know at the time when Amanda was diagnosed, my oldest was 9, and my youngest was 9 months. So everybody was pretty little. And they went through that at a really young age. And then when she passed, my oldest was 11 and my youngest was 3. So they were still little. And they had been through what I consider to be significant trauma in those early years. And when things first happened, I mean, I had a therapist describe it to me as a children's mobile that hangs over their bed you know, that once it becomes imbalanced, it just tips on its side. And that's the way things felt at home for quite a while. You know, just nothing felt right and things felt out of order. But kids are so resilient and so forward looking. And my kids really did beautifully through it. And I had someone tell me, well, kids are going to revisit grief. And they're going to come back to it from time to time. And it'll surprise you. And I will say, that's so true. You know, I would think everything was going along OK and everyone was coping well. And then, my daughter Jessica, who was closest in age to Amanda, would come down at 10 o'clock at night in tears because she was thinking about her sister. And that would catch me a little bit off guard. And my oldest just went away to college. And she's now 18. And she's had some conversations with me lately just about everything they went through and really revisiting some of her feelings about it all. And so they don't really get over it. But helping them to kind of process it and work through it and really, just talk about her. We talk about her constantly. She's a part of everything we do. We still make her a birthday cake. So we just keep her memory alive and celebrate her life together. But grief for kids is certainly different, and it doesn't end. But they are definitely forward looking and really can handle more than I think sometimes we give them credit for. SPEAKER 4: And your husband and you I hear have also been involved in some activities to talk about this publicly or teach others. What was that like for you as parents? ELIZABETH CONROW: There are a few things that we've really wanted to help move forward in terms of childhood cancer awareness and things that people can do to really help bereaved parents. And I think there's just so much that people don't know or understand. Many people don't realize how underfunded childhood cancer is. So it just means a lot to us to be able to kind of get that message out now. SPEAKER 4: I imagine there's so much work to do. And as we've had this great opportunity to chat about Amanda to remember her, to think about your experience and the amazing work you seem to be doing-- are there any final comments that you want to share with our listeners? ELIZABETH CONROW: It's an honor for me to really share this experience. And that bereaved parents need support, and they need to know that people care and remember, even as time goes on. So just take good care of those who know who are grieving. And love one another. SPEAKER 4: Thank you so much. This is Liz Conrow, author of Access Denied, published in Journal of Clinical Oncology. Thank you very much. Until next time. SPEAKER 1: Until next time, thank you for listening to this JCO's Cancer Stories, The Art of Oncology podcast. If you enjoyed what you heard today, don't forget to give us a rating or review on Apple podcasts or wherever you listen. While you're there, be sure to subscribe so you never miss an episode. JCO's Cancer Stories, The Art of Oncology podcast is just one of ASCO's many podcasts. You can find all of the shows at podcast.asco.org. [MUSIC PLAYING]

In this episode Dr. Hassink is joined by Dr. Stephen Cook, associate professor of pediatrics and internal medicine at the Golisano Children's Hospital, to discuss weight bias and stigma in children and adolescents.

This episode features Alyssa Bostwick, Vice President Of Operations and Chief Nurse Executive at Golisano Children's Hospital of Southwest Florida. Here, she discusses recruitment, rebuilding, her excitement towards offering more services, and more.

Do vaccine incentives work? By mid-summer, researchers were concluding that vaccine incentives were not making much of a difference. From lottery tickets to free beer, state and local government tried just about everything. But a new analysis from McGill University indicates that incentives are now one of the most useful tools for increasing vaccination. We talk to our guests about what works and what they are hearing in the community. Our guests: Rachel Barnhart , Monroe County Legislator Albert Blankley , COO of Common Ground Health Stephen Cook, M.D. , associate professor of pediatrics, and pediatrician at Golisano Children's Hospital

What Makes Harmon-Meek Gallery a Good Neighbor...Harmon-Meek Gallery has provided Naples residents and visitors with works of art by major American artists since 1964. In the half-century since, Harmon-Meek Gallery has become a nationally respected fine art gallery. The artists represented each meet the high standard of having works in the permanent collections of museums.Harmon-Meek Gallery works with museums and academic institutions across the nation having loaned more than 300 exhibitions of art. J. William Meek III arranged the first permanent collections of art for what would become the Baker Museum (1996), Naples Art (1997), and the Golisano Children's Museum of Naples (2010). In recent years, William worked directly with Florida Southern College and the Polk Museum of Art arranging the donation of a vast collection of works dedicated to the figure as a subject in American art.Harmon-Meek Gallery and the Meek family have proudly supported the community by giving back to area non-profits. In 2012, Kristine Meek worked with the Southwest Florida Community Foundation to establish a fund dedicated to at-risk youth and children's art programs in our community. Kristine and Juliana Meek have hosted 6 fundraising galas entirely underwritten by Harmon-Meek Gallery with 100% of money raised going directly to this cause. The two also host children's groups at the gallery, a tradition at the gallery since its founding in 1964.To learn more about Harmon-Meek Gallery, go to: www.harmonmeek.comHarmon-Meek Gallery382 12th Avenue SouthNaples, Florida 34102(239) 262-2699Support the show (https://goodneighborpodcast.com)

COVID-19 vaccines are safe and effective, preventing severe disease and death from the virus and the variants that cause COVID-19. But, as medical experts point out, vaccines providing complete immunity to COVID -- and to any infection -- is unachievable. The notion of sterilizing immunity is a myth. This hour, we're joined by medical experts who weigh in on the purpose of vaccines, how infections work, and what they think the public should understand about protection against severe illness. Our guests: Stephen Cook, M.D. , associate professor of pediatrics, and pediatrician at Golisano Children's Hospital Elizabeth Murray, D.O. , assistant professor of pediatrics, and pediatrician at Golisano Children's Hospital Deborah Pierce, M.D. , clinical associate professor of family medicine at the University of Rochester Medical Center

Laura F. Fryan, Partner, Brouse McDowell, speaks to Nicole Cifra and Taylor Starr, physicians at the Golisano Children's Hospital at the University of Rochester Medical Center, about the intersection of the law and the practice of medicine when it comes to treating patients with eating disorders. They discuss legal issues related to determining inpatient versus outpatient treatment, guardianships for adults, the concept of “treating over objection,” and treating children and adolescents. Dr. Cifra , MD, MPH is an Adolescent Medicine Fellow at the University of Rochester Medical Center, and Dr. Starr, DO, MPH is an assistant professor of pediatrics and medical director of Golisano's Eating Disorder Program. Read Laura's in-depth interview with Drs. Cifra and Starr in this May 2021 PG Briefing. From the Children's Health Affinity Group of AHLA's Academic Medical Centers and Teaching Hospitals Practice Group.

Just as there are no two recipes that contain the exact same ingredients or measurements, there are no two success stories exactly the same. Recipe For Success features entrepreneurs, visionary leaders and innovators of all ages who will share their ingredients that make them successful – personally and professionally. Let's get cooking! oe Cox has served as the President and CEO of the Museum of Discovery and Science in Fort Lauderdale, Florida since February 2018. Accredited by the American Alliance of Museums, the Museum connects 450,000 visitors to inspiring science annually. Prior to his current position, he has worked in the museum field for over 20 years having previously served as the President of the EcoTarium Museum of Science and Nature in Worcester, Massachusetts (2012 – 2018) and as Founding Executive Director of the Golisano Children's Museum of Naples (2004 – 2012) where led a campaign to raise over $25million to build the Museum. He has a Bachelor's Degree in Environmental Science from St. Mary's University in London with a focus on environmental law and paleoquaternary biogeography and completed his Masters in Museum Studies from the University of Leicester. Joe was the recipient of a Smithsonian Fellowship in Museum Practice based at the National Zoo and National Museum of Natural History in Washington, DC. He completed the Getty Museum Leadership Institute at the Getty Center in Los Angeles. He is past Chair of the Florida Association of Museums Foundation and currently serves on the national board of the Association of Children's Museums. Learn more about the Museum of Discovery and Science at: https://mods.org/. For more information about Junior Achievement of South Florida, visit https://www.jasouthflorida.org. Follow us on social media: Facebook: https://www.facebook.com/jasouthflorida LinkedIn: https://www.linkedin.com/company/junior-achievement-of-south-florida/ Instagram: https://www.instagram.com/jasouthflorida Twitter: https://twitter.com/JASouthFlorida

Armando Llechu is Chief Officer of Hospital Operations and Women and Children's Services at Lee Health in Fort Myers and he previously served as Chief Administrative Officer for Golisano Children's Hospital of Southwest Florida.  He also led a team in collaboration with Lee Physicians Group in the development of a comprehensive pediatric mental and behavioral health program, including the addition of 12 mental health providers, resulting in a 1000% increase in available patient appointments.

The CDC cleared the Pfizer vaccine for kids age 12 and up starting last week. In the first seven days of eligibility, federal authorities report that more than 600,000 kids got their first dose. Vaccine trials for children in different age groups are ongoing. This hour, our guests discuss the safety and efficacy of COVID-19 vaccines in kids, and we hear from local children about getting the shot. Our guests: Jennifer Nayak , M.D., chief and associate professor in the Department of Pediatrics, Infectious Diseases, at Golisano Children’s Hospital at Strong Mary Caserta , M.D., professor in the Department of Pediatrics, Infectious Diseases, at Golisano Children’s Hospital at Strong Reverend Kelly Spahr , parent Brennen Sierra, 3rd grader at Anna Murray-Douglass Academy School No. 12 in the Rochester City School District James Daley, 7th grader at Twelve Corners Middle School in Brighton Aubrey, 7th grade at Dake Junior High in West Irondequoit Lilly Nicandri, 7th grader at Barker Road

Millions of American adults have not gotten vaccinated against COVID-19…by choice. We meet people who have been on the fence about the vaccines, and we welcome expert medical analysis to address individual concerns. Data finds that the vaccines are working in clear, powerful fashion: the six most vaccinated states in the country combined for a total of six COVID deaths on Wednesday. This hour there will be no shaming, no mocking, no condescending. Just a conversation about how some Americans are weighing the decision. Our guests: Steve Cook , M.D., pediatrician with Golisano Children's Hospital who has administered hundreds of vaccines since January Jessica Lewis, Torri Cowans, Taneika Thompson, and August Dunlop, members of Sigma Gamma Rho Sorority, Inc. , who will share their own views of the vaccine and the factors they've been weighing to make a decision

How should communities address child sexual abuse? It's a question that has been raised in recent weeks after Hilton elementary school principal was charged with sexually abusing his students. State Police say there are now 11 victims at Northwood Elementary School, all boys, between the ages of 8 and 12. The principal, Kirk Ashton, faces a number of charges, including first-degree sexual abuse, second-degree course of sexual conduct against a child, and endangering the welfare of a child. How can children, families, and the community heal? And what can be done to better screen for possible predators? How can abusers be reformed? Our guests answer these questions and more. Our guests: Deb Rosen , executive director of Bivona Child Advocacy Center Stefanie Szwejbka , manager of community education at Bivona Child Advocacy Center Elizabeth Murray , D.O., assistant professor of pediatrics, and pediatrician at Golisano Children's Hospital Renee Sorrentino , M.D., medical director of the

On this episode of the podcast Megan interviews Dr. Elizabeth "Lissa" McAnarney.  Dr. McAnarney is a Distinguished University Professor and Chair Emerita of the Department of Pediatrics. She received the M.D. Degree and holds two honorary doctoral degrees. She completed her pediatric residency at the State University of New York (Syracuse) followed by a two-year fellowship at the University of Rochester School of Medicine and Dentistry.  Dr. McAnarney was Director of Adolescent Medicine for 22 years prior to serving as Chair of Pediatrics and Pediatrician-in-Chief at the Golisano Children’s Hospital at Strong for 13 years. During her tenure as Chair, she oversaw the development of the Golisano Children’s Hospital and growth of the academic pediatric programs. She was Acting Dean of URSMD for nine months.https://www.urmc.rochester.edu/people/20407698-elizabeth-r-mcanarneySupport the show (https://kidsthrive585.org/about/)

This episode features Alyssa Bostwick, Vice President of Operations and Chief Nursing Executive at Golisano Children’s Hospital of  Southwest Florida. Here, she discusses her path to leadership, her role as CNO, and more.

New data shows a decline in child and adult illnesses in almost all categories. The declines have been driven by masking and other pandemic-related practices. Once the pandemic subsides, which of these practices will stick around, and which will fade away? Our guests discuss it: Elizabeth Murray , D.O., M.B.A., assistant professor of pediatrics and emergency medicine, and faculty director for child health and safety communications for Golisano Children's Hospital at Strong Nicole Cifra , M.D., M.P.H., adolescent fellow and pediatrician at Golisano Children's Hospital at Strong Steve Cook , M.D., M.P.H., associate professor of pediatrics at Golisano Children's Hospital at Strong, and medical director at the New York State Department of Health

Body Mass Index, or BMI, has been strongly criticized in recent years as a health metric. Now, many states are using BMI to decide whether adults should be eligible for a COVID vaccine. We examine the history of BMI and put it in context with the experts. Our guests: Steve Cook , M.D., associate professor of pediatrics at Golisano Children's Hospital Holly Russell , M.D., medical director for clinical and community-based programs the Center for Community Health & Prevention at UR Medicine, and family medicine physician at Highland Family Medicine Jill Chodak , clinical dietitian with the Center for Community Health & Prevention at UR Medicine

On this episode of the Weird Works! Podcast, Dr. Kristy interviews a panel of experts in the areas of legal advocacy, an attorney, and a medical doctor to arm you with the information that you need to make an educated decision. This controversial conversation covers what we know now about the COVID vaccine, health freedoms, the possibility of mandatory vaccines, and a vaccine passport required to travel. Each expert discusses their perspective on the COVID vaccine and the related laws and freedoms regarding freedom of medical choice at the local and federal level.   Melissa Taylor is an executive board member for Florida Freedom Keeper‘s, she's a small business owner in Orlando, and a mother of a seven-year-old. She is passionate about medical freedom, education, and uniting the Florida community to make an impact in maintaining our rights and working with politicians to have our voices be heard. You can learn more about the Florida Freedom Keepers here Flfreedomkeepers.org   Shawn McBride is a corporate lawyer and business consultant by day. But in his spare time, he is passionate about freedom issues. On his Future Done Right™ YouTube Channel (dedicated to the future of business) Shawn has frequently spoken out about freedom issues and their impact on life and business with surveillance being an area of focus. It wasn't long after the pandemic began in March 2020 that Shawn became a frequent speaker with nonprofit groups throughout the State of Florida and began to interface with other nonprofits throughout the country on freedom issues. That, in turn, led to the formation of the American Freedom Information Institute, Inc. where Shawn McBride serves as the President. Here is the link to Shawn's Future Done Right™ YouTube Channel https://www.youtube.com/channel/UClGd3AzsfX3RjcK0rOY6fKQ Here is the link to the American Freedom Information Institute, Inc. https://www.amfreedomii.com/   Dr. Brian Thornburg practices a combined western allopathic medicine with functional healthcare. He believes that health is achieved only through a community perspective. We are part of a living system and a child's mind, body, and spirit must be nourished to maximize epigenetic potential and avoid DNA-programmed disease. Health is different than symptom-free living. Dr. Thornburg attended Nova Southwestern University College of Osteopathic Medicine, interned at the Agency for Healthcare Policy and Research at the National Institutes of Health, trained at the Medical College of Georgia, served on the American Academy of Pediatrics' Section on Home Care Executive Committee, serve as the Medical Director for the Collier County Child Protection Team, have been in private practice since 2003, serve on the Board of Directors at the Golisano Children's Museum of Naples, and is busy raising 8 children and training for triathlons. You can learn more about Dr. Thornburg here Drthornburg.com   You can listen to The Weird Works! Podcast on any of your favorite podcast listening platforms or watch the podcast video on our YouTube Channel. Get the link to both right here https://www.healthbydesignfl.com/the-weird-works-podcast   Links: www.healthbydesignfl.com https://www.facebook.com/HealthByDesignFL/ https://www.youtube.com/channel/UC0-dIX7KXSr9t4HK-f69Lfg https://www.instagram.com/healthbydesignfl/ https://www.linkedin.com/in/healthbydesignfl/

Colleges and universities struggled with challenges to profitability and program diversity before COVID-19 arrived, and the global pandemic certainly didn’t help matters! Amy and Mike invited higher education expert Daan Braveman to lay out the solutions inherent in innovative partnerships in higher education. What are five things you will learn in this episode? Why should colleges be looking for creative ways to work with other organizations? Why should institutions of higher education be obsessed with providing value to students and communities? In what ways can schools work together to serve students? In what ways can schools and businesses work together? How can alliances support the ultimate viability of some institutions? MEET OUR GUEST Daan Braveman, a Rochester native, graduated from the University of Rochester and obtained his law degree from the University of Pennsylvania. After serving as a law clerk to Justice Samuel J. Roberts of the Pennsylvania Supreme Court and then as an attorney for the Greater Upstate Law Project in Rochester, Braveman joined the faculty of the Syracuse University College of Law where he served as Dean from 1994-2002. During his tenure, he taught courses and published on civil procedure, civil rights, constitutional law, federal courts, legal education, and federal Indian law. In 2005, he was inaugurated as the ninth president of Nazareth College, and served in that position until June, 2020. Braveman is the past Chair of the New American Colleges and Universities, a national consortium of colleges and universities. He also served on the Board of the New York Pennsylvania Campus Compact, a consortium of over 100 schools committed to community engagement. Locally, he is Co-Chair of the Steering Committee for the Rochester Monroe Anti-Poverty Initiative, and serves on the Boards of the Farash Foundation, WXXI, Golisano Children’s Hospital and Discovery Charter School.  Recently, he assumed his current position as Senior Higher Education Counsel at the law firm of Harter Secrest & Emery. Daan can be reached at dbraveman@hselaw.com. LINKS At the intersection of crisis and opportunity: strategic alliances RELATED EPISODES THE ULTIMATE COLLEGE STRESS TEST THE IMPACT OF NACAC ADMISSIONS CHANGES YOU CAN’T HANDLE THE TRUTH: SECRETS OF COLLEGE ADMISSIONS ABOUT THIS PODCAST Tests and the Rest is THE college admissions industry podcast. Explore all of our episodes on the show page.

We have a conversation about a number of subjects related to autism. Our guests help us understand a new screening process, how to help families navigate pandemic challenges, and how to improve police interactions with people who have autism. Our guests: Dylan Dailor , author and autism self-advocate Susan Hyman , M.D., professor of pediatrics, and division chief of developmental and behavioral pediatrics at Golisano Children's Hospital at Strong Lisa Latten, health project coordinator for the Southern Tier Initiative in the Division of Developmental and Behavioral Pediatrics at the University of Rochester Medical Center Rachel Rosner , director of education and support services for AutismUp *Dr. Hyman recommends these resources for families affected by the pandemic. More information can be found here . People interested in volunteering for URMC research related to auditory processing can email developmental_research@urmc.rochester.edu . This conversation is part of Dialogue on

“As parents, you guys are probably the best monitors of your children’s behavior because you’ve been watching them from the time they were born, and honestly, you’re a better expert on your child than I am so I tend to trust parents on that.” - Dr. Rolando Gonzalez Dr. Rolando Gonzalez is a sports psychiatrist who provides mental health care for children through young adulthood with the Lee Physician Group and Golisano Children's Hospital in Fort Myers, Florida. He previously worked at the University of Wisconsin-Madison and the University of Miami, where he completed his fellowship training in child and adolescent psychiatry. He provides mental health care and treatment for elite and competitive athletes through all competitive levels, including athletes with disabilities. He provides initial consultation with a focus on specialized care that compasses diagnostic clarification, medication management, and individual therapy. He serves on both the Youth and Outreach Committees of the International Society for Sports Psychiatry. In this episode, Rolando and I talk about the difference between sports psychology and sports psychiatry and some of the common disorders he sees among the athletes he works with. We also discuss what parents need to know about traumatic brain injuries and his position on performance enhancing drugs. Join us as he also explains why it’s important for parents to help their child cope with the changes and maintain structure and a routine during the COVID-19 pandemic. Resources: International Society of Sport Psychology (ISSP)’s ​International Journal of Sport & Exercise Psychology Sports Psychiatry: Strategies for Life Balance and Peak Performance by David R. McDuff

November is Prematurity Awareness Month. On this episode of the podcast we welcome Carla LeVant. She has been a social worker at the Golisano Children’s Hospital at Strong for 34 years and in the NICU for the past 15. Carla has a Bachelors in Social Work from Syracuse University and a Masters in Social Work from New York University. Her graduate placement was at NYU Medical Center on the Acute Pediatric Floor. She has an interest in Family Systems and a focus on Family Centered Care. She has co –facilitated the GCH Parent Advisory Council for 20 years and one specific to NICU issues for the past 15 years.Resources for preemie parents:Hand to Hold-https://handtohold.org/Peek A Boo ICU-https://www.peekabooicu.com/ The Essential Guide for Parents of Premature Babies: Preemies Second Edition, Preemie Parents: Recovering from Baby’s Premature BirthBabyCenter.com- Understanding your Baby’s Cues- https://www.babycenter.com/2_understanding-your-babys-cues_10350320.bcMarch of Dimes Prematurity/NICU Information - https://www.marchofdimes.org/complications/the-nicu.aspxGCH at URMC NICU - https://www.urmc.rochester.edu/childrens-hospital/nicu.aspxSupport the show (https://kidsthrive585.org/about/)

Join Jaime Saunders, President and CEO of the United Way of Greater Rochester, as she brings critical awareness to the lifelong impact that trauma has on children. Hear from Dr. Elizabeth Murray, Pediatrician at Golisano Children's Hospital, and Dr. Justin Russotti, Researcher at Mt. Hope Family and TRANSFORM Research Centers, how our community can prevent Adverse Childhood Experiences, or ACEs, by assuring safe, stable, nurturing relationships and environments.

In this episode Sarah talks with Dr. Sandy Jee, co-director of the Finger Lakes Children's Environmental Health Center.The Finger Lakes Children’s Environmental Health Center’s mission is to prevent, diagnose, and treat environmentally related conditions for families in their 15 county region. Funded by NYS Department of Health, FLCEHC is part of the first state-based model for pediatric environmental health services in the country. For more about FLCEHC, check out:Website - www.golisano.urmc.edu/flcehcFacebook - https://www.facebook.com/FLCEHCCall Line - (844) 352-3420 (844-FLCEHC-0) for the public, community agencies, and healthcare providersDr. Jee is an Associate Professor of Pediatrics at the University of Rochester. She received her B.A. in English from Yale University, her M.D. with Distinction in Research from the University of Rochester, and M.P.H. in Health Management and Policy from the University of Michigan. She completed her pediatric residency at N.Y.U. and University of Michigan, and fellowship in Pediatric Health Services Research at the University of Michigan. She has also completed a fellowship in Integrative Medicine from the University of Arizona. In October 2020 she became Co-Director of the Finger Lakes Children’s Environmental Health Center (FLCEHC) at Golisano Children’s Hospital. She is a practicing general pediatrician and teaches medical students and residents at the University of Rochester. Her current research and clinical interests focuses on health disparities for children and promoting healthy living principles.For more about Dr. Jee, visit:https://www.urmc.rochester.edu/people/21286902-sandra-h-jeeSupport the show (https://kidsthrive585.org/about/)

What do pediatricians think about kids going back to school in the fall? The American Academy of Pediatrics made headlines last week with a call to put kids back in physical classrooms, if at all possible. Dr. Sean O'Leary helped write the guidelines, and he told the New York Times that we've learned enough since March to make adjustments to school environments: "Schools can do a lot of things to really make the environment as safe as possible." We talk to local doctors about how best to support kids this fall, no matter what decisions the state or districts make. Dr. Stephen Cook , M.D., associate professor of pediatrics and internal medicine at the University of Rochester Medical Center, and medical director at the New York State Department of Health Dr. Elizabeth Murray , M.D., associate professor of pediatrics and emergency medicine at Golisano Children’s Hospital at Strong Dr. David Topa , M.D., pediatrician at Pittsford Pediatric Associates

In this episode Megan interviews Jennifer Johnson the Director of Family and Community Outreach at Golisano Children’s Hospital at Strong. Jennifer works within the Children's Hospital to help connect families with needed resources during and after their hospital stays. This episode will shed light on this amazing new role within our local hospital and how this work will help local children and families going forward.Support the show (https://kidsthrive585.org/about/)

David Topa, MD spent his childhood in Pittsburgh and Cleveland before attending the University of Dayton, from which he graduated Magna Cum Laude. He attended the Case Western Reserve University School of Medicine and served as a national board member to the student section of the Association of American Medical Colleges. Serving as Chief Resident of Outpatient Pediatrics during his third year of residency, he completed his training in Pediatrics at the Golisano Children’s Hospital at Strong (GCHaS) and subsequently joined Pittsford Pediatric Associates. Since joining Pittsford Pediatrics, he has advocated for Monroe County to improve Child Protective Services staffing and increase funding for programs that prevent child abuse. For these efforts, he was presented with a Special Achievement Award by the American Academy of Pediatrics in 2018. He is active in the local chapter of the American Academy of Pediatrics and teaches child advocacy skills to residents at GCHaS. Outside of the office, he serves as cofounder of Karaoke at the Corner, an annual event that has raised over $40,000 to benefit the Monroe Ave YMCA, Teen Empowerment, and GCHaS. He enjoys running (he completed the Rochester Marathon in 2012), and volunteering at his children's schools. He lives in the Highland Park Neighborhood of Rochester with his wife and three children.Support the show (https://kidsthrive585.org/about/)

Thank you to this episode's sponsor, TherapyNotes. Get a 2-month free trial of TherapyNotes by going to www.TherapyNotes.com and using the promo code TherapyChat.  On today's episode host Laura Reagan, LCSW-C speaks to Donna Jackson Nakazawa about her forthcoming book, The Angel and The Assassin: The Tiny Brain Cell That Changed the Course of Medicine.  Donna Jackson Nakazawa is an award-winning journalist and internationally-recognized speaker whose work explores the intersection of neuroscience, immunology, and human emotion. Her mission is to translate emerging science in ways that help those with chronic conditions find healing. She is the author of six books, including her forthcoming book, The Angel and The Assassin: The Tiny Brain Cell That Changed the Course of Medicine (Random House/Ballantine, January 2020), which illuminates the newly-understood role of microglia – an elusive type of brain cell capable of Jekyll and Hyde behavior. When triggered, microglia can morph into destroyers and take down synapses, causing depression, anxiety, and Alzheimer’s. But under the right circumstances, they can be angelic healers, repairing the brain in ways that can help alleviate symptoms and prevent disease. Hailed as “riveting,” “stunning,” and “visionary,” The Angel and the Assassin elucidates the biological basis behind the mind-body connection and offers us a radically reconceived picture of human health. Donna’s other books include Childhood Disrupted: How Your Biography Becomes Your Biology, and How You Can Heal (Atria / Simon & Schuster, 2015), The Last Best Cure (Hudson Street Press / Penguin, 2013), The Autoimmune Epidemic (Touchstone / Simon & Schuster, 2009), and Does Anybody Else Look Like Me? A Parent’s Guide to Raising Multicultural Children (Perseus, 2003). Her writing has been published in The Washington Post, Health Affairs, Aeon, More, Parenting, AARP Magazine, Glamour, and elsewhere. She blogs for Psychology Today and HuffPost. In addition to her work as a science journalist, Donna has been a keynote speaker at numerous universities, conferences and hospitals. Her keynote lectures include the 2019 Care Plus Annual Conference, 2018 Rutgers University Behavioral Health Care Conference, 2018 Golisano Children’s Hospital Annual Pediatric Conference, 2017 Royal Society of Medicine SIRPA Conference on Chronic Pain and Emotion, 2017 Learning and the Brain Conference, 2016 Johns Hopkins Conference on Trauma-Informed Healing, and the 2012 International Congress on Autoimmunity. She has appeared on The Today Show, National Public Radio, NBC News, and ABC News. Resources https://donnajacksonnakazawa.com  Leave me a message via Speakpipe by going to https://therapychatpodcast.com and clicking on the green Speakpipe button. Thank you for listening to Therapy Chat! Please be sure to go to iTunes and leave a rating and review, subscribe and download episodes. You can also download the Therapy Chat app on iTunes by clicking here. Podcast produced by Pete Bailey - https://petebailey.net/audio

Winner Cole Favro and some very generous people in Florida A message written on an upper floor window at the Golisano Children's Hospital in Rochester called on someone to send pizza to a patient's room. Not long after, the small wish became a reality not once — but more than a dozen times. Winner 14-year-old Capri Everitt from right here in Vancouver, BC 14-year-old Capri Everitt is fluent in two languages, but she can sing in 41. She is setting a record for singing the most national anthems.

About 30 million Americans suffer from eating disorders, ranging from anorexia and bulimia to the lesser known binge-eating and restrictive-food-intake disorders. University of Rochester eating disorder specialists Mary Tantillo, a professor of clinical nursing, and Taylor Starr, an assistant professor of pediatrics and director of the Eating Disorder Program at Golisano Children’s Hospital, offer advice on how to spot the warning signs in teens and find the best treatment options. Original theme music Roots and Wings (2017) by Billy Petito ‘18E.

Joy In Learning is a weekly podcast highlighting some of the stories happening at The Harley School in Rochester, NY.   The Harley School will host Become Energy Smart, an interactive talk focusing on how to become an educated energy consumer, including how to understand your energy bill (bring your RG&E bill!).   Our speaker will be addressing topics ranging from comparing a traditional gas car with an electric one to how consumers can make the right choice about energy use and management, all relating to how to make educated energy choices. You will learn vocabulary, unit conversions, and the connection of energy and power specifics to major technologies such as your car, house, and generators. The event will be held on April 26 from 6:30-8pm in the Briggs Center for Civic Engagement, located in the third floor of The Commons. It is free and open to the public.   The Commons Speaker Series is designed to engage local and regional leaders to facilitate discussions in the areas of mindfulness and empathy; environmental sustainability and science; civic engagement and the democratic process; and inquiry-driven exploration.   Call (585) 442-1770 for more information.   About the speaker Dr. Joel Pasternack: Joel Pasternack, MD, PhD is Professor of Clinical Emergency Medicine at the University of Rochester School of Medicine and Dentistry. He works as attending physician in the emergency department at Strong Memorial Hospital and at Golisano Children’s Hospital. His education includes ScB. from Brown University, M.A. in Mathematical Physics and Ph.D. in Mathematics from Princeton University, M.D. from University of Rochester.

Laurie Napoleone has a Bachelor of science degree in nursing from Niagara university, master of science in nursing university of Phoenix- worked many years in direct care of patients in hospital setting- 10 years of ER, then school nurse teacher for 9 years in Batavia at elementary school. She took a leave of absence when her son Michael became ill  with cancer.  Laurie returned for a year but it was difficult working with pediatric population after the loss of her son.  For the past 6 years up to present, she has been a health careers instructor for Genesee valley educational. Laurie has been married 34 years to her husband Mark, has 4 children and 2 granddaughters and a grandson on the way. "My family and faith are my number one priorities.” She and her family started the Michael Napoleone Memorial Foundation in honor of Michael and to pay forward all the good that was given to her through his illness in 2007. It is a non profit assisting families with the challenges of a pediatric cancer diagnosis. It also supports blood cancer research and assists with funding for youth activities. We have helped over 300 families with $270,000 worth of support, donated $56,000 to research and 44,000 to youth activities. In addition, a $50,000 donation to the new Golisano Children's Hospital in Rochester. We are celebrating our 10th year of the Foundation this year. www.michaelshope.org  

The Huntington Study Group is a world leader in facilitating high-quality clinical research trials and studies in Huntington disease (HD). HSG has the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe, dedicated to seeking treatments that make a difference and improving the quality of life and outcomes for families affected by HD. Ray Dorsey, MD, MBA, is the chair of HSG. Ray is also a Professor of Neurology and Director of the Center for Human Experimental Therapeutics and Center for Health and Technology at the University of Rochester Medical Center. Ray investigates new treatments for movement disorders and improves the way care is delivered for individuals with Parkinson and Huntington diseases and other neurological disorders. As an academic neurologist, he is pleased to have devoted much of his professional activities and energies to Huntington disease and the Huntington Study Group. Since joining HSG, he has worked as a site investigator, served on the steering committee for five clinical studies and trials, and led the recently completed phase II clinical trial of PBT2 (Reach2HD) study.  Heather Hare has been the Director of Communications & Outreach for HSG for one year this month. She holds a BA in print journalism from GWU and spent seven years as a newspaper reporter before making the switch to communications in 2005. She spent a decade at the helm of public relations for the University of Rochester’s Golisano Children’s Hospital. Heather focuses on communication and relationships with HSG members, friends, partners and trial and study participants and through the HSG website, printed materials and other communication tools. Her major focus has been on building relationships with families impacted by HD.

Christin Collins is the System Director Health and Wellness Strategic Business Partner for Lee Memorial Health System. Her role is to help align the system’s vision for health, wellness and prevention internally, and within the community. Prior to this, Christin was Senior Director of Development for LMHS Foundation. The main project was the building of Golisano Children’s Hospital of SWFL, where she enjoyed meeting amazing community people who are passionate about supporting the children of our 5 county area. As well, she was blessed to work with The Optimal Healing Environment within Cape Coral Hospital, which she found exciting and innovative. Through her work at LMHS, she also recently created a new movement, Impact Initiative, which unites strong community leaders to collectively make a difference in the health of our community.