Podcasts about stiff person syndrome

In this podcast, our moderator Lillie Shockney is talking with Dr. Scott Newsome, director of the Johns Hopkins Stiff Person Syndrome Center.

Our moderator Lillie Shockney talks with Drs. Kate Thomas and Tammy Senn about the intimacy levels that change during a woman's lifetime.

Intermittent painful spasms, stiffness and rigidity of the proximal and truncal muscles are only a few symptoms of the relatively uncommon Stiff-person syndrome (SPS). In this podcast, we delve into the characteristics and diagnosis of this complex autoimmune condition. PN's podcast editor Dr. Amy Ross Russell interviews Professor Saiju Jacob (University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK). The paper is the Editor's Choice paper of the February issue of Practical Neurology. The episode is released to coincide with world Encephalitis day. For more information about World encephalitis day, or encephalitis international please follow this link: https://www.encephalitis.info/world-encephalitis-day/  Please subscribe to the Practical Neurology podcast on your favourite platform to get the latest podcast every month. If you enjoy our podcast, you can leave us a review or a comment on Apple Podcasts (https://apple.co/3vVPClm) or Spotify (https://spoti.fi/4baxjsQ). We'd love to hear your feedback on social media - @PracticalNeurol. Production by Letícia Amorim and Brian O'Toole. Editing by Brian O'Toole. Thank you for listening. 

Send us a textIn this episode of the podcast, Ricardo Karam meets Lea Jabre, the French-Lebanese advocate who turned her battle with the rare "Stiff Person Syndrome" into a message of hope and inspiration. Lea, who began her career in journalism and politics and further joined Ricardo Karam himself, chose to dedicate her life to humanitarian work and raise awareness about rare diseases.  After surviving a life-threatening health crisis, Lea emerged stronger, becoming a passionate advocate for patients and a fundraiser for research on Stiff Person Syndrome. She shares her journey of navigating physical challenges, emotional struggles, and societal perceptions, transforming her pain into a mission to change lives.  Join Ricardo Karam and Lea Jabre for an honest and moving conversation about resilience, purpose, and the hope for a brighter future.في هذه الحلقة من البودكاست، يلتقي ريكاردو كرم ليا جبر، الفرنسية اللبنانية التي حوّلت معاناتها مع "متلازمة الشخص الصلب" النادرة إلى رسالة أمل وإلهام. ليا، التي بدأت مسيرتها المهنية في الصحافة والسياسة لتعمل لاحقاً مع ريكاردو كرم نفسه، اختارت العمل الإنساني وتكريس حياتها لدعم المرضى والتوعية بالأمراض النادرة.  بعد أن نجت من صدمة صحية كادت تودي بحياتها، عادت ليا بقوة لتصبح مدافعة عن المرضى وجامعة تبرعات لأبحاث متلازمة الشخص الصلب. تروي ليا تفاصيل رحلتها بين التحديات الصحية والألم النفسي، وكيف اختارت تحويل هذه المعاناة إلى فرصة لتغيير حياة الآخرين.  انضموا إلى ريكاردو كرم وليا جبر في حوار صادق ومؤثر حول الألم، الإرادة، والأمل بمستقبل أفضل.

As 2024 comes to an end, we're taking a look back at some of the most meaningful TODAY moments from the year. Legendary singer and music icon Celine Dion sat down with Hoda Kotb for an NBC News Exclusive interview to discuss her life and health since being diagnosed with Stiff Person Syndrome, a rare autoimmune neurological disorder. Dion has spent the last several years uncharacteristically out of the spotlight, fighting for her life and her voice. Dion opens up about her health struggles, the impact SPS has had on her life and where she's finding hope.

This week, Deanna talks about Stiff Person Syndrome and Celine Dion's struggle with the condition (starts at (6:20)) at the end, we have things that are embarrassing for no reason! CHECK OUT our new merch store!  Please remember to subscribe and rate us/review us! Follow us on Instagram! Become a patron and support us via Patreon! Email us your f*cked up stories at NFWpodcast@gmail.com we'd love to hear from you! C U Next Tuesday!

Did you know some of the most iconic musicians in history lived with disabilities? Beethoven composed masterpieces despite losing his hearing. Stevie Wonder, blind from infancy, redefined soul music. Rick Allen of Def Leppard turned a tragedy into triumph, playing the drums with one arm after a car accident. Accordingly, this Friday, November 22, Pushing Limits brings you a unique musical journey spotlighting incredible artists from the 1960s to the early 2000s. Explore how their creativity and resilience shaped their music—and the world. Host Denny Daughters dives into his rich collection to share hits from artists living with blindness, dyslexia, Stiff Person Syndrome, and amputation and more. Whether you're a lifelong music lover or simply curious, this half-hour promises unforgettable tunes. This show was hosted, edited, and produced by Denny Daughters. But wait, there's more! For an uncut version of this program, alongside the programs predecessor, visit this episode of The Flashback Podcast. The post Musicians With All Types Of Disabilities – Pushing Limits – November 22, 2024 appeared first on KPFA.

Hoda Kotb's “Today Show” replacement revealed. ET with Craig Melvin moments after the announcement. Then, who will join Jenna Bush Hager for the fourth hour? Plus, how Jennifer Lopez powered through her first post-split performance. And, Celine Dion rules the runway while still battling Stiff Person Syndrome. Then, Cameron Diaz out of retirement. A first look at the film that brought her back and then got halted by Jamie Foxx's medical emergency. Plus, a sneak peek at Pamela Anderson's return to acting. And, only ET can take you to the set of Blake Shelton's new music video. Then, did a messy affair lead to a Real Housewife's divorce? Teddi Mellencamp breaks her silence. Plus, Kylie Richards on her ‘evolving sexuality' and how she really feels about ex Mauricio kissing someone else. And, our day at Disneyland continues with a look at the park's newest attraction.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Q&A on the film I Am: Celine Dion with director Irene Taylor. Moderated by Mara Webster, In Creative Company. A raw and honest behind-the-scenes look at the iconic superstar's struggle with Stiff Person Syndrome, a life-altering illness.

Stiff person syndrome, like many rare diseases, does not get nearly the same amount of screen time or name recognition that other, more common diseases do. For many people, Celine Dion's announcement of her diagnosis with the condition in 2022 marked the first time they had heard of it. This limited awareness surrounding stiff person syndrome marks just one of the many challenges keeping this disease and other rare disorders in the dark. In this episode, we attempt to shed some light on stiff person syndrome, exploring the complex biology, frustrating history, and hopeful future of this disease. Because while the field of stiff person syndrome research faces many hurdles, there are also so many individuals - researchers, patients, advocates - and organizations that fight to bring this and other rare disorders into the light. Tune in today! Links: National Organization for Rare Diseases Genetic and Rare Diseases Information Center Johns Hopkins Stiff Person Syndrome Center Support this podcast by shopping our latest sponsor deals and promotions at this link: https://bit.ly/3WwtIAu Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Ilea Khan has spent her life in constant pain. Though she may appear healthy on the outside, Khan suffers from the same rare disease as Celine Dion – stiff person syndrome. This week, she explains what it's like to live with an invisible illness and why advocacy and community is so crucial for people living with SPS. Learn More: https://radiohealthjournal.org/stiff-person-syndrome-dying-from-an-invisible-disease Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of The Music in Me, I'm diving into the incredible world of one of my favorite singers—Celine Dion! I'll be taking you through eight of her most unforgettable songs, from the emotional powerhouse “All By Myself” to the uplifting anthem “I'm Alive.” I'll also share why these songs hold such a special place in my heart and how they've become timeless hits for so many.Along the way, I'll talk about Celine's inspiring resilience as she faces her health battle with Stiff-Person Syndrome, and how it's impacted her career and live performances. Plus, I'll chat about the I Am Celine Dion documentary on Amazon Prime and her amazing performance at the Olympics this year.And don't miss the “Interesting Fact of the Week” where I'll tell you all about how Celine first wowed an audience at just 5 years old! Whether you've been a fan of Celine for years or are just discovering her music, this episode is packed with fun stories, music insights, and a tribute to one of the greatest voices of all time. Tune in and join me in celebrating the magic of Celine Dion!SONGS MENTIONED...All By MyselfThe Prayer with Andrea BocelliTell him with Barbra StreisandMy Heart Will Go OnThe ReasonThat's The Way It IsI'm AliveBecause You Loved MeWhat did you think of this episode? Support the showKeep listening, keep grooving, and let the music in you continue to shine. Thank you, and see you soon!CONTACT TERI:Instagram: https://www.instagram.com/terirosborg/Facebook: https://www.facebook.com/teri.rosborgYouTube: The Music in MeTikTok: https://www.tiktok.com/@terirosborgPodcast Facebook Page: The Music in Me Podcast Facebook pageTHEME SONG BY: Hayley GremardINTRODUCTION BY: Gavin Bruno

Stiff Person Syndrome (SPS) is treatable if managed correctly from the outset. It is essential to distinguish SPS spectrum disorders from disease mimics to avoid both overdiagnoses and misdiagnoses. In this episode, Allison Weathers, MD, FAAN, speaks with Marinos C. Dalakas, MD, FAAN, author of the article “Stiff Person Syndrome and GAD Antibody–Spectrum Disorders,” in the Continuum® August 2024 Autoimmune Neurology issue. Dr. Weathers is a Continuum® Audio interviewer and associate chief medical information officer at the Cleveland Clinic in Cleveland, Ohio. Dr. Dalakas is a professor of neurology and director of the neuromuscular division at Thomas Jefferson University in Philadelphia, Pennsylvania; a professor of neurology and chief of the neuroimmunology unit and the National and Kapodistrian at the University of Athens in Athens, Greece. Additional Resources Read the article: Stiff Person Syndrome and GAD Antibody–Spectrum Disorders Subscribe to Continuum: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the American Academy of Neurology: aan.com Social Media @ContinuumAAN facebook.com/continuumcme Full episode transcript available here Dr Jones: This is Dr Lyell Jones, Editor-in-Chief of Continuum, the premier topic-based neurology clinical review and CME journal from the American Academy of Neurology.  Thank you for joining us on Continuum Audio, which features conversations with Continuum's guest editors and authors who are the leading experts in their fields. Subscribers to the Continuum journal can read the full article or listen to verbatim recordings of the article and have access to exclusive interviews not featured on the podcast. Please visit the link in the episode notes for more information on the article, subscribing to the journal, and how to get CME.   Dr Weathers: This is Dr Allison Weathers. Today, I'm interviewing Dr Marinos Dalakas about his article on stiff-person syndrome and GAD antibody-spectrum disorders, which is part of the August 2024 Continuum issue on autoimmune neurology. Dr Dalakas is a world- renowned expert in neuromuscular diseases and, really, the first name any neurologist thinks of when they hear the diagnosis of stiff-person syndrome. Dr Dalakas, this is such an honor to be able to speak to you today. Welcome to the podcast, and would you please introduce yourself to our audience?   Dr Dalakas: Yes, thank you very much. I'm so happy to participate in this interview. I'm the Chief of the Neuromuscular Division at Thomas Jefferson University in Philadelphia, and I am interested in autoimmune neuromuscular diseases for many years and also on disease mechanisms and immunotherapy.   Dr Weathers: Thank you again for talking with me today. So, given how very rare stiff-person syndrome and the GAD antibody-spectrum disorders are, prior to December 2022, I would have started our time together by asking you to explain this collection of diagnoses to our listeners and by also talking about how often they occur. It feels like that's a bit unnecessary ever since Celine Dion went public with her diagnosis - that moment really changed the public awareness of what was previously outside of neurology and almost unheard-of disease. So, instead, I'll start with, what is the key message of your article? If our listeners are going to walk away remembering one thing from our discussion, what would you like it to be?   Dr Dalakas: Well, I think the publicity has been very good for the disease, this disease spectrum. On the other hand, there have been some misleading messages, like, it's extremely rare, it's untreatable, it's disabling – which, they are partially correct, so, my message is, first, to make sure the neurologists make the correct diagnosis, because there are a lot of diseases similar to stiff-person, but they are not stiff-person. So, to make sure the diagnosis is correct and to make the patients aware of what to expect when they have this disease and what therapies we have and what we may have in the future. So, the number one message is the correct diagnosis and then to avoid overdiagnosis or misdiagnosis, because now we see both - we see overdiagnosis and misdiagnosis.   Dr Weathers: I think that's such a critically important point, and one you really delve into really beautifully in the article, so I encourage our listeners who do have access to it to really read through it. As I said, you do a great job really explaining that - and, actually, to go into that further, could you explain how you approach the diagnosis of a patient with possible stiff-person syndrome or one of the other GAD antibody-spectrum disorders? And I know you probably get asked that on a daily basis. As I was telling you before we actually formally started recording, I remember back when I was a resident and saw my first case of a suspected patient with stiff-person syndrome, my mentor advised me to look up your case series, your articles at the time, and really use that to guide my diagnosis. What do you feel is the most challenging aspect of diagnosing a patient with one of these conditions?   Dr Dalakas: Well, the first is the clinical symptomatology. We say the patients present with spasms and stiffness, but also, there are phobias. They are very hyperexcitable to sudden stimulations, to sudden noises, to unexpected touches, and all of them can cause spasms, and then when you examine the patients, they have stiffness. Now, the stiffness (if there is a true stiffness) results in gait abnormalities (the patients are falling because they're so stiff), and also, the hyperexcitability causes a lot of anxiety and a lot of phobias (they're afraid to cross the street, they're afraid to make a destination promptly) – so, all these things are sort of suggestive of stiff-person. So, these are the symptoms that you hear, you listen, and you ask the patients, and then, when you examine the patient, you look for certain signs that there are, specifically, like stiffness of what we call agonist muscles and antagonist muscles, which means there is stiffness of the abdominal muscles and at the same time, stiffness of the back muscles - so, this concurrent stiffness of these opposing muscles is very specific, very characteristic of the stiff person, so if you see that, and then you listen to the history, you're very close to the diagnosis, and then you do the antibodies. And the antibodies (the specific antibodies, the GAD antibody), but it is specific as we say in the article, and we tried to make this very clear to the neurologists, that it's the high titers that matter, because low titers are not necessarily specific. So high titers of antibodies in the serum, above 10,000 by ELISA (or whatever method they use; but it has to be this many times above normal), and then if you have high serum titers and all the symptoms they mentioned, it is stiff-person. On the other hand, if the titers are low, then you may want to do a spinal tap to see if there is synthesis of antibodies in the spinal fluid. That helps you. Now if the GAD antibodies are negative, then you start wondering, is this seronegative SPS? And how do you confirm the seronegative SPS? You do electrophysiology, and the electrophysiology is, again, to see if there is activity (muscle activity) concurrently from the agonist and antagonist muscles - in other words, from the, let's say the tibialis anterior and the gastrocnemius (so, it's two opposing muscles, eg, biceps and triceps) - and if you see activity in both of these opposing muscle groups, and you see also hyperexcitability (you touch the patient, you stimulate just a little, and you see activity in other muscle groups). So, the electrophysiology is very important if the patient's antibody negative, but they have the other symptoms that I mentioned before.   Dr Weathers: I can imagine how challenging those must be (those seronegative cases) to try to really make sure you're identifying and carefully determining that you have the right disease as you alluded to at the beginning. I know how hard it must be for patients to want to at least have some answers to have a diagnosis.   Dr Dalakas: And this is the main thing today, because the publicity, as I mentioned, the beginning, increased the receipt of some information, so they overdiagnose it, like, “Oh, you have this and this and this, so it may be stiff-person”. And so, in fact, recently, we had a series of patients together with the Mayo Clinic Group of out of 173 patients referred to the Mayo Clinic for stiff-person – that's referred to them - only 28% had stiff-person. It's a low percentage, but it is an indication that the neurologists now refer patients to us for stiff-person, but we need to be very careful to correctly make a diagnosis.   Dr Weathers: On one hand, it's good that people are aware and considering the diagnosis, but it does highlight that risk of overdiagnosing.   Dr Dalakas: Yeah. It's the opposite of when I started this stiff-person syndrome (was close to 30 years ago at NIH) - at that time was underdiagnosed. This was the most rare disease, and I collected patients because at the NIH, I was also the Chief of the neuromuscular division there, and I was doing a study, so it was easy to collect patients (I collected more than 100 patients), but at that time, it was misdiagnosed. So, we had patients that I was seeing and they're really disabled, because they have been having the disease for many years, but they had been diagnosed either for Parkinson disease, for anxiety disorder, for psychiatric diseases, or for MS, or for myelopathies, or for myelitis - so many different things, and of course, they didn't have the correct diagnosis and they were disabled.   Dr Weathers: The side effect of having one of the most famous celebrities in the world having this rare disease - you know, the downside of the increased awareness, as we've said. So, moving on from the diagnosis to treatment - again, you do a, obviously, you know, an incredible job in the article, really going through the treatment options and your algorithms - what would you say is the most common misconception you've encountered in treating patients with this disease?   Dr Dalakas: The most common is now (with the publicity) is that it is a disabling disease. Well, it is disabling, but if you treat the disease correctly and early on, I'm not saying we're curing the disease - many diseases (autoimmune diseases), we help a lot, so there are some we make the patient feel normal, but the disease is there - so, if we start the correct therapy early, a good number of patients respond very well. But by the time the patients come to us, they are so stiff, they walk like a statue, or they come in a wheelchair - of course, it's difficult to reverse this, although we have been very happy to see patients with immunotherapies to get out of the wheelchair, to walk, to enjoy normal activities. So, we have made enough progress with the therapists to help a good number of patients. Now, what is the first therapy we do? Well, is what we call the antispasmodics - these are drugs that relax the stiffness that patients have, sort of a symptomatic therapy. It's not going to address the disease itself, but we address the symptoms. And of course, the symptomatic therapy in SPS is not just to relax the patients - it is related to the so-called GABAergic inhibition. So, the drugs that we use (like the benzodiazepines, or the baclofen, et cetera), these are the drugs that work on the GABAergic pathways. So, it is symptomatic therapy, but it works also on the mechanism, so it's not just a relaxing basis - but since the patients have a lot of phobias, the benzodiazepines also help the phobias. The anxiety and the phobias make the patients worse - they make them more stiff. And in the beginning, they go to psychiatrists because they are so phobic - they're phobic to walk. They hear something, they get so stiff. And I have patients coming at the National Airport in Washington to come to there needing aids in getting out of the plane - some of them get so stiff, they have to get an ambulance to come to the hospital because they're stiff everywhere. So, these phobias and anxiety have triggered a lot of my interest to the point of asking the investigators at the National Institute of Mental Health to see if there is any such thing like autoimmune phobias, because these patients have an autoimmune disease, so, well, maybe we can treat the phobias of immunology - well, we did not find anything, but I just sort of brought the idea maybe we have an autoimmune phobia. But on the other hand, when the patients get better, the phobias are reduced and they're more comfortable to walk. So, it's a very interesting complexity of the symptoms altogether.   Dr Weathers: That is – and, actually, that leads into my next question somewhat, that, as I mentioned in your introduction, you are the world expert in this rare disease. How did that happen? You talked about it a little bit just now. But how did you develop this particular interest and expertise? What drew you to this particular disease?   Dr Dalakas: Yes. It's interesting. I was interested in autoimmune neuromuscular diseases (many of them) and neuropathies and myopathies, and one day, I had a good friend of mine who was the clinical director of NINDS at that time, Dr Hallett. So, he saw patients in the movement disorder clinic and they had stiff-person (I don't know why they went to the movement disorder, but they went there), and Dr Hallett said, “Well, this is an autoimmune disease. You should work on this.” And then, I started seeing one or two patients, and I was very impressed. Really, the symptomatology is so interesting. The patients are suffering, and they sort of give the impression that they're neurotic. So, it's just a combination of when you listen to the symptoms, I was very impressed with the depth of the discomfort that they have and without seeing anything - but, when you examine the patient, you see the stiffness and nothing else. They're not weak, like, we see patients with MS, with myopathies, with neuropathies - they have weakness. They may use a cane, they may use two canes, they may use a walker, because they're stiff. So, it's a different disability than you see in patients who are weak. So, this really made me so interested to understand the mechanism - what's going on here - and that's the reason I started and I put the protocol. And then, we did a lot of immunological studies to understand the mechanism, electrophysiological studies to look at these agonist and antagonist muscles - and of course, we named it also. You know, in the beginning, the syndrome was described as stiff man (stiff-man syndrome), and they're all women. They are most of them, women. In fact, there is an article in a major journal, three women with stiff-man syndrome - and this was many years ago. So, stiff-person will be a more proper term. And then we're seeing a lot of patients or more women, but also we have enough men.   Dr Weathers: So, we've talked a lot about the change with this disease in public awareness. How has that changed your day-to-day life - has it (with the change in public awareness)? Are you bombarded with media requests?   Dr Dalakas: Well, it has stimulated me to write more about the disease and more articles, but also to highlight certain things that were not known before. For example, I had recently a paper on late-onset stiff-person. So, people, we see now patients who develop stiff-person at the age of seventy - they are above sixty or so, overall - and they have more severe disease. These patients also have not good tolerance to the medications we use - so, it's a more challenging group, so it is important to make the diagnosis even in patients with late-onset. These people do less well, because, first of all, they're all misdiagnosed, because if you're a little stiff at the age of sixty-five or seventy - well, you have a bad back, so you all have degenerative disc disease, so you don't think of stiff- person in that age. So, the stimulus was to identify some other issues with the stiff-person. The other is to think of new trials - and I have been working on two new trials. They're not out yet. I'm working to see how best to apply the new therapies. And also, it came up the idea of what are the best ways to assess, objectively, to assess the response, because this is an issue from the beginning. When I did controlled trials at the NIH, and we had established the so-called stiffness index to see how stiff they are measurably, but it is still subjective. It's not really objective, it's not (weakness to measure). So, we have gait analysis, we have the time to walk. So, I think establishing objective criterion to assess response to therapy, it's an important one - and so, I have been working on this how to make it more objective or as subjective as we can.   Dr Weathers: I think that's fantastic. And you actually, I think, have already answered my question - which is, what is the next breakthrough coming in the diagnosis and management of patients with stiff-person syndrome and the GAD antibody-spectrum disorders - and I think it's going to be the outcomes of these trials. Is there anything else that you're really excited about coming along in this field?   Dr Dalakas: Well, I think that the hope is, then, better immunotherapy, because the patients respond to IVIG based on the controlled study. We did one with anti-B-cell therapy - it was not statistically positive, but we had some placebo effects, because that second trial included some patients who did not have severe disease, so it was difficult to assess mild response. So, I'm interested in other similar immunotherapies, and we were approaching companies to see if they can sponsor such a trial. I think the publicity helps a lot, because if I was going to approach a company before the publicity, nobody would be interested in - there's no, you know - it's money-driven, so they will not do it. But at the NIH, I did it, because NIH had the grants there to sponsor the trials. So, I think the publicity will help us. And I know talking to companies, there are one or two companies that they have expressed a lot of interest, and, hopefully, we can do some new trials and go work on it, but I don't have any clear drug at the moment. I cannot discuss a real drug.   Dr Weathers: Of course, of course, more to come, but still very exciting. And so, still to learn more about you - again, you're so well known, obviously, for what you've done for the field of neurology. What do you like to do outside of seeing neuromuscular patients in your research career? What do you do for fun for your hobbies?   Dr Dalakas: Well, I have two hobbies. One is I'm an art collector of abstract expressionism. So, I go to a lot of auction houses, and I bid often for certain artists that I'm very interested, some French artists, some at the New York School of Modern Art. The eras of the forties and fifties of the abstract expressionism - so that's my collection and my interest in not missing auctions. And the other was I have a interest in wine collection – but, so, most of the time, I read art and I collect art.   Dr Weathers: That is a great answer. I appreciate art. I am not (fortunately) at the auction and collecting stage yet, but that I will have to learn from you. That's wonderful.   Dr Dalakas: Yeah. I'm originally from Greece, and I have also a professorship at the University of Athens, and also I go there. I also have some European artists in my collection.   Dr Weathers: That's wonderful. We have one more modern piece that we've been lucky enough to have.   Dr Dalakas: Yeah, I started with the impression impressionistic art, but I evolved into abstract.   Dr Weathers: Who is your favorite artist?   Dr Dalakas: Well, it's, you know, Rothko and Newman. So, these are very expensive artists, of course, so I can, but in that school, so these artists are not alive now, but people who are working with Rothko and Newman in the other group - so, there are four or five of them that I collect.   Dr Weathers: I feel like we need a whole separate interview just to talk about that.   Dr Dalakas: But, they are very stimulating, because the colors talk to you, and it's not like an impressionistic piece that, sort of, their flowers are nice, et cetera - so the colors talk to you differently.   Dr Weathers: They do. I love Rothko. Well, thank you, Dr Dalakas, for joining me on Continuum Audio. This has been a wonderful conversation. Again, today, I've been interviewing Dr Marinos Dalakas, whose article on stiff-person syndrome and GAD antibody-spectrum disorders appears in the most recent issue of Continuum on autoimmune neurology. Be sure to check out Continuum Audio episodes from this and other issues, and thank you to our listeners for joining us today.   Dr Monteith: This is Dr Teshamae Monteith, Associate Editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use this link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at Continpub.com/AudioCME. Thank you for listening to Continuum Audio.

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Welcome to episode 186 of the Life Happens, Laugh Anyway podcast with comedian Tracy DeGraaf and her co-host Cathrine. In this episode, Tracy and Cathrine dive into the documentary "I Am: Celine Dion," available on Amazon Prime, which explores the renowned singer's journey with Stiff Person Syndrome, a rare and debilitating disorder. They provide an overview of the documentary, sharing insights into how this syndrome has affected Celine Dion's life and career. They also discuss other individuals who have faced similar challenges, losing their extraordinary gifts due to illness, and how they coped with these life-changing experiences. Tracy and Cathrine share their own personal stories of loss and resilience, offering encouragement and hope through scripture and a heartfelt call to action. Don't miss this touching and inspiring episode that celebrates the strength of the human spirit and the unwavering power of faith. P.S. Love the podcast? Become a Humor Contributor by donating $5 per month on Patreon. Your gift helps to offset the cost of bringing weekly episodes for your binging pleasure and personal growth. ;0)  P.P.S. Want to give a one-time gift of any amount? Do that here. Tracy and Cathrine are always dreaming and setting growth goals to reach more people with humor and truth. Adding video to the podcast is one of those lofty goals and it costs money to create a set, purchase equipment, and get training. Your gift of any amount will help in those efforts. Thank you so much.     

Céline Dion's Olympic performance came despite her struggle with stiff person syndrome. She's finding help, and hope, in Colorado. Then, lawmakers may try again to address high property taxes. Plus, Cherry Creek bucks the office vacancy rate. Also, the future of the historic Zuni power plant. And, what would your Olympic sport be? Finally, Ryan Tedder and OneRepublic premiere a new outdoor venue in Colorado Springs.

Céline Dion's Olympic performance came despite her struggle with stiff person syndrome. She's finding help, and hope, in Colorado. Then, lawmakers may try again to address high property taxes. Plus, Cherry Creek bucks the office vacancy rate. Also, the future of the historic Zuni power plant. And, what would your Olympic sport be? Finally, Ryan Tedder and OneRepublic premiere a new outdoor venue in Colorado Springs.

Jeremy Baker joins the show and they guys talk about: The Olympics dongs and all. Calling it Stiff Person Syndrome did Celine dirty. AI server farms are giant energy sucks. Robert Downey Jr. Is playing Dr. Doom and Dale is PUMPED. TV show talk. The most insane escalation of an online beef. Music Billionaires. MAGA is upset at Greenday for doing the same stuff they've done for 30 years. Trump said athletic coaches could lead military units and it's the best idea for a sci-fi movie.  Find us:Web outragefactory.comTwitter @OutrageFactPodInsta @outrage_factoryTik Tok @dalederuiterFacebook www.facebook.com/outragefactpodReddit r/OutragefactorypodEmail Outragefactpod@gmail.comCheck out our redbubble swag https://www.redbubble.com/shop/ap/49661850

Celine Dion is a famous Canadian bilingual singer. She's sang over 40 years in French and English, but unfortunately has suffered from Stiff Person Syndrome. Aiming to get stronger in her new documentary, she movingly concluded Paris' Summer Olympics opening ceremony a week ago! Growing up loving her music, I reminisce the memories I have loving these 10 songs from her. Theme Song: "Dance Track", composed by Jessica Ann CatenaText the podcast! Support the showCeline Dion top 10 playlist:10. “I'm Alive” (2002)Stuart Little 2 9. “The Prayer” - Andrea Bocelli (1998)Quest for Camelot 8. “The Power of Love” (1993)7. “That's the Way It Is” (1999-2000)6. “All By Myself” (1996)5. “Taking Chances” (2007-2008)4. “It's All Coming Back To Me Now” (1996)3. "Beauty and the Beast (End Duet)” - Peabo Bryson (1991-1992)movie; Angela Lansbury's film ballroom scene version2. “Because You Loved Me” (1996); Up, Close, and Personal Diane Warren's songwriting credits1. “My Heart Will Go On” (1997-1998); TitanicRelated Episodes:Ep. 27 - NBC's SonglandEp. 62 - Christina Aguilera Top 10 HitsEp. 139 - Carrie Underwood's Country AlbumsEp. 174 - Titanic & "My Heart Will Go On"Ep. 231 - Eric Carmen's Tribute PlaylistEp. 233 - Mariah Carey Top 10Ep. 235 - Eclipse Playlist

Olympics highlights and stiff person syndrome; Should I be concerned about my B12 being so high?; My calcium level is low. Should I be concerned?; Have you ever treated microscopic colitis patients with bismuth?; I'm taking Evening Primrose Oil but isn't it pro-inflammatory?

Maconomics Summit recap, I met Ryan Leslie, Earn Your Leisure, K Camp, Cortez Smith and so many other people! But before you ask.... I did not bring up Cassie or Diddy lol. Divorce In The Black, hear me out... Tyler Perry is footing a BIG ASS BILL for his black Hollywood. Simone Biles is back and ready to continue her reign, like shorty is a true OLYMPIAN. Her four-part Netflix series, is out now. The Céline Dion is a treasure of music we are forgetting about. Her documentary on Prime will have you thanking god for good health because why is "Stiff Person Syndrome" real? Why did I think it was made up...smh God forgive me... --- Support this podcast: https://podcasters.spotify.com/pod/show/robin-evette/support

Send Mary and Kelsey a Message!In this episode Mary and Kelsey share their top 3 favorite Celine Dion songs and the surprising stories behind them, like Meat Loaf's beef with Celine over It's All Coming Back To Me Now, how she hit that F5 in All By Myself, and more. Plus, the gals share their reactions to Celine's powerful new documentary, I Am: Celine Dion, which provides a gut wrenching look at her current struggles with rare neurological disorder called Stiff-Person Syndrome. Instagram: @whentheypoppedpodTikTok: @whentheypoppedEmail: whentheypoppedy2k@gmail.comWebsite: linktree.com/whentheypopped

It's all things Celine Dion! First, Chelsea welcomes Chris DeRosa (Fixing Famous People) to unpack the legendary singer's new documentary "I Am Celine" and explore insights into Celine's recent struggles with Stiff Person Syndrome and how it has affected her life and career. Then, we're bringing you a special re-release of our episode about Celine Dion's memoir, “My Story, My Dream,” with guest Stephanie Beatriz (“Brooklyn 99,” “In the Heights”). Learn about Celine's perspective on her rise to fame, the intricacies of her relationship with her manager and husband Rene, and more.The memoir episode begins at 24:06. Content warning: this episode contains discussions of sexual abuse. Take care while listening and find resources here. Where to order Chelsea's book: Bookshop.org Find other places to pre-order Follow Chelsea: Instagram @chelseadevantez Join the cookie community: Become a member of the Patreon Show Notes: 24:06 - Memoir episode begins Penny Marshall Episode Where to find our Guests: Chris DeRosa: Instagram Fixing Famous People Podcast Stephanie Beatriz: Instagram *** Thank you to our sponsors: Tanteo Tequila - @tanteotequila Pattern Brands - @patternbrands Libro.fm - Click here to get 2 audiobooks for the price of 1 with your first month of membership using code TRASH. A HUGE THANK YOU TO OUR TOUR PARTNERS THROUGHOUT THE TOUR: Lipgloss: @cheekbonebeauty Cocktails: @postmeridiemspirits Fans: @familyindustries Notebooks & pens:  @poketo @patternbrands  NEW YORK: Hotel: @staypineapple Books: @cafeconlibros_bk Cookies: @madbatternewyork Gift Bags: @thetravelagency.co Flowers: @flowersforall_bk DC: Hotel: @swannhouse Bookstore: @loyaltybooks Cookies: @unclechipscookies NASHVILLE:  Venue: @erinmurraycreates & @collective615 Bookstore: @novelettebooksellers Cocktails: @drinktipsy Desserts:  @myfavoriteplum @googooclusters @saturatedicecream @dandrewsbakery Gift Shop:  @tenngallonhat @gifthorsenashville Totes: @bagzdepot Photographer: @newviewmediaproductions  CHICAGO:  Venue: @thesecondcity Bookstore: @slantoflightbooks Photographer: @sandysteinbrecherphotography   NEW MEXICO Hotel: @eldoradohotelandspa *20% discount off of our Best Flexible Rate across all Heritage Hotels & Resorts properties to anyone who references promo code: COOKIESONLY through the summer Guests can call the reservations department and reference this promo code to enjoy these special rates or click the links found here. ABQ venue, planning & gifting: @newnuevonm Santa Fe venue & planning:  @sarahjonesabq @jeancocteaucinema @sfccnm @stagecoachfdn Bookstore: @beastlybooks418 Desserts:  @chaine_santafe @theturquoisemacaron.abq Permanent Jewelry: @linkxlou.albuquerque Henna: @MissHennaMarie Tarot: @readingsbykasandra Cheese Plates: @ the_bougie_brie Wine: @missionwinery Photographer: @gatheringsunshine SEATTLE: Hotel: @palladianhotel Venue: @shoptansysea Bookstore: @elliottbaybookco Cookies: @hellorobincookies Hair: @gwenythbeautybarber Permanent Jewelry:@linkxlou.seattle Totes: @bagzdepot Photographer: @katemillerphotography  PORTLAND: Hotel: @woodlark_hotel Use code CHELSEA for a discounted stay 20% off at The Woodlark Hotel for the Cookies! Venue: @sirentheatre Bookstore: @powellsbooks Cookies: @showstopper_cookies  Use code CHELSEA for 15% off your order  Photographer: @notnowjosh LA SPONSORS  Venues:  @shoptansyla @kisolosangeles Bookstore: @octavias_bookshelf Cookies: @uzziscookies Natural Wine: @itslulaseason Use COOKIESONLY code for $15 flat rate 3-day shipping on US orders thru July Tarot: @simonashapiro Totes: @my.awesomeprints Gifting: (essential oils) @properxchange (essential oils)  @pradosbeauty (lashes) @rustyschips (chips) @drinkghia (aperitif) @appalachianbotanicalco (lavender mist) @kindri_skincare (beauty oil) @popped.nyc (CBD body butter) @mpscandlestudio (custom candeles) @paperblanks (notebooks & bookmarks) Photographer & Videographer: @raemystic Photographer: @cowboymae

Subscribe to Mamamia One of the world's biggest superstars has let a film crew record some her most vulnerable moments and we can't stop talking about it. I Am: Celine Dion, reveals a raw insight into the singers life, living with an incredibly rare progressive autoimmune neurological disorder called stiff person syndrome. We discuss the details from the moving documentary and unpack Dion's motivation to share her most personal moments with the world. Plus, your weekly recommendations, which include an eye-opening podcast, something to do with three generations and the best kind of shopping - it's free.   And, a very messy Mia, a lesson never learned and Jessie's big Saturday night, it's our best and worst of the week. What To Listen To Next:  Listen to our latest episode: Jessie's Unexpected Therapy Dilemma Listen to Monday's episode: Is This All Jill Biden's Fault? Listen to Wednesday's episode: A Morality Checklist For Cheerleaders Listen: Every Thought We Had About 'America's Sweethearts: Dallas Cowboys Cheerleaders' Listen: Which Season Are You? The Colour Rules That Changed Our Wardrobes Listen: “Shut Up, You're Too Old”  Connect your subscription to Apple Podcasts  Sign up to the Mamamia Out Loud Newsletter for all our recommendations and behind-the-scenes content in one place.  Get $20 off for our birthday. Click here to get a yearly Mamamia subscription for just $49.  Want to try our new exercise app? Click here to start a seven-day free trial of MOVE by Mamamia  More From Mia, Holly & Jessie:  Listen to Mid: I Am Woman, Hear Me Giving No Shits Listen to No Filter: The Bromance The World Needs - Jimmy & Nath Listen to Cancelled: Katy "Feud With Taylor Swift" Perry What To Read:  Read Em Vernem's piece: What day of the week are you? Your answer reveals a lot about you. Read: A scene from Celine Dion's new documentary has fans in tears. Read: Inside Celine Dion and John Farnham's unexpected 6-year-long friendship. Read: One 'intense' moment in Céline Dion's doco was almost cut out. The singer fought to keep it in. GET IN TOUCH: Feedback? We're listening. Send us an email at outloud@mamamia.com.au Share your story, feedback, or dilemma! Send us a voice message Join our Facebook group Mamamia Outlouders to talk about the show. Follow us on Instagram @mamamiaoutloud CREDITS: Hosts: Holly Wainwright, Mia Freedman & Jessie Stephens Producer: Emeline Gazilas Assistant Producer: Tahli Blackman  Audio Production: Leah Porges Mamamia acknowledges the Traditional Owners of the Land we have recorded this podcast on, the Gadigal people of the Eora Nation. We pay our respects to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander cultures.Become a Mamamia subscriber: https://www.mamamia.com.au/subscribeSee omnystudio.com/listener for privacy information.

Send us a Text Message.In this episode of "The Autoimmune RESET," VJ explores Stiff Person Syndrome (SPS), a rare and complex neurological disorder marked by severe muscle stiffness and spasms. With its autoimmune roots, SPS is often linked to other conditions like type 1 diabetes and vitiligo. VJ dives deep into the science behind SPS, focusing on its connection to pathogens such as Epstein-Barr Virus (EBV) and Cytomegalovirus (CMV). Learn how these infections might trigger or worsen SPS through mechanisms like molecular mimicry and bystander activation.We'll also discuss how SPS affects daily life, from the challenges of managing overstimulation and muscle control to its impact on high-profile cases like Celine Dion's career. Understand how SPS influences her ability to perform and the adjustments needed for managing symptoms while maintaining a demanding schedule.You will gain practical advice on living with SPS, including nutritional strategies, natural therapies, and stress management techniques that can help mitigate symptoms. Whether you're living with SPS, know someone who is, or are simply curious about this condition, this episode provides a thorough and compassionate overview of SPS, combining the latest research with real-world insights.Stiff Person Syndrome, SPS, autoimmune disorder, pathogens, infections, molecular mimicry, Celine Dion, Epstein-Barr Virus, Cytomegalovirus, natural therapies, overstimulation, health podcastYou can download your free copy of The Autoimmune RESET here.And you can access all of VJ's free resources here.If you would like to book a free initial consultation with VJ Hamilton, The Autoimmunity Nutritionist, to find out how nutritional therapy and functional medicine could improve your health, you can book an appointment here.Learn more about the functional medicine services at The Autoimmunity Nutritionist Clinic here.Thanks for listening! You can join The Autoimmune Forum on Facebook or find me on Instagram @theautoimmunitynutritionist.

On this week's show, Dan Kois (author of Vintage Contemporaries and the upcoming Hampton Heights) and Laura Miller (Slate's books and culture columnist and author of The Magician's Book) fill in for Julia and Dana. The panel is first joined by Carl Wilson, Slate's music critic and the author of Let's Talk About Love, to parse through I Am: Celine Dion, a new documentary on Prime Video. Directed by Oscar-nominated director Irene Taylor, I Am: Celine Dion chronicles the French Canadian singer's private battle with Stiff Person Syndrome, an illness that has stripped away Dion's ability to sing – and with it, her identity. Then, the three explore A Family Affair, Netflix's wish fulfillment rom-com for middle-aged women starring Zac Efron, Joey King, and Nicole Kidman (plus a whole lot of Plasticine.) Finally, they dive into the world of aesthetics, inspired by Erin Schwartz's essay for The Cut, “In Defense of Calling Everything an Aesthetic.”  In the exclusive Slate Plus segment, the panel looks into “The Vexing Problem of the ‘Medium Friend'” by Lisa Miller for The New York Times.  Email us at culturefest@slate.com.  Endorsements: Dan: All Fours by Miranda July.  Laura: The Ministry of Time by Kaliane Bradley.  Stephen: “Art and Memory” by Julian Barnes for London Review of Books.  Podcast production by Jared Downing. Production assistance by Kat Hong.   Hosts Stephen Metcalf, Dan Kois, Laura Miller Learn more about your ad choices. Visit megaphone.fm/adchoices

On this week's show, Dan Kois (author of Vintage Contemporaries and the upcoming Hampton Heights) and Laura Miller (Slate's books and culture columnist and author of The Magician's Book) fill in for Julia and Dana. The panel is first joined by Carl Wilson, Slate's music critic and the author of Let's Talk About Love, to parse through I Am: Celine Dion, a new documentary on Prime Video. Directed by Oscar-nominated director Irene Taylor, I Am: Celine Dion chronicles the French Canadian singer's private battle with Stiff Person Syndrome, an illness that has stripped away Dion's ability to sing – and with it, her identity. Then, the three explore A Family Affair, Netflix's wish fulfillment rom-com for middle-aged women starring Zac Efron, Joey King, and Nicole Kidman (plus a whole lot of Plasticine.) Finally, they dive into the world of aesthetics, inspired by Erin Schwartz's essay for The Cut, “In Defense of Calling Everything an Aesthetic.”  In the exclusive Slate Plus segment, the panel looks into “The Vexing Problem of the ‘Medium Friend'” by Lisa Miller for The New York Times.  Email us at culturefest@slate.com.  Endorsements: Dan: All Fours by Miranda July.  Laura: The Ministry of Time by Kaliane Bradley.  Stephen: “Art and Memory” by Julian Barnes for London Review of Books.  Podcast production by Jared Downing. Production assistance by Kat Hong.   Hosts Stephen Metcalf, Dan Kois, Laura Miller Learn more about your ad choices. Visit megaphone.fm/adchoices

In the documentary "I Am: Celine Dion", Celine suffers a painful, 10-minute seizure to show what it's like to live with Stiff Person Syndrome. See omnystudio.com/listener for privacy information.

Celine Dion details the horrific symptoms of her Stiff Person Syndrome. Showing us for the first time just how awful it can be. Then, Jeremy Renner posing shirtless revealing his scars after being crushed by a snow plow. Plus, Shannen Doherty suffers a cancer setback. An update on her brave battle preparing to lose her hair for a third time. And, Travis Kelce talks Taylor Swift revealing the moment she won him over. Then, meet Kevin Costner's son. Our first interview with 15-year-old Hayes. Plus, continuing Bahamas week with the pink flamingos and Corrine Foxx. What she's revealing about her upcoming ‘I Dos'. And, how her dad Jamie is taking over the wedding. Then, our “A Quiet Place Day One” exclusive on the roof of the Empire State Building. Why Lupita Nyong'o almost passed on the role as she shows off her best quiet faces with co-star Joseph Quinn. Plus, Lindsay Lohan and Jamie Lee Curtis reunited. Our first look behind-the-scenes of their “Freaky Friday” sequel. And, a “Superman” set scoop with the new ‘Man of Steel', David Corenswet and Lois Lane, Rachel Brosnahan.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

062624 - 0700 - EBUZZ 2 Hosted on Acast. See acast.com/privacy for more information.

Moe Diggs is a journalist, cultural commentator, and podcaster. She joins Simone and Danielle to dive into the juiciest pop culture moments of the week, from dissecting the Tony Awards, to Usher's latest fasting routine, to Ariana Grande's recent album. And they debate the best rom-com movies of all time.See omnystudio.com/listener for privacy information.

In this enlightening episode of It Happened To Me, we are joined by Dr. Tara Zier, founder of the Stiff Person Syndrome Research Foundation. Dr. Zier shares her personal journey with Stiff Person Syndrome (SPS), a rare and debilitating autoimmune disorder, and discusses her mission to advance research, treatments, and awareness for this condition. Introduction: Dr. Tara Zier, founder of the Stiff Person Syndrome Research Foundation Background on Stiff Person Syndrome: a rare autoimmune disorder characterized by muscle stiffness and painful spasms Key Discussion Points: Understanding Stiff Person Syndrome: Description and symptoms of SPS Impact on daily life for those affected Dr. Zier's Journey: Her personal experience with SPS and the path to diagnosis The challenges faced and the resilience shown Managing Symptoms: Current medications and therapies including muscle relaxers, infusions, plasma exchange, physical therapy, and more Medications and treatments to avoid for SPS patients Foundation's Mission and Goals: The establishment of the Stiff Person Syndrome Research Foundation Aims to fund research, develop treatments, and find a cure Collaborations and Achievements: Partnerships with the Stiff Person Syndrome Center at Johns Hopkins and the Mayo Clinic Contributions to the global patient community Insights into Research and Treatments: Current state of SPS research and available treatments The importance of raising awareness and public understanding Role of Patient Communities: The significance of patient communities in advancing research and providing support How the foundation fosters connections with patients worldwide Support Beyond Fundraising: Additional ways the foundation aids individuals and families affected by SPS Advice for Aspiring Advocates: Encouragement and guidance for those looking to establish foundations or support medical research for rare diseases Personal Reflections: Stories and experiences from the SPS community that have touched Dr. Zier Dr. Zier's personal strategies for maintaining mental health amidst her advocacy work Future Aspirations: Hopes and aspirations for the future of the Stiff Person Syndrome Research Foundation Vision for the field of SPS research and treatment Closing Remarks: Dr. Zier's final thoughts and gratitude for the opportunity to share her journey Encouragement for listeners to support SPS research and awareness initiatives Episode Links: Stiff Person Syndrome Research Foundation Follow Dr. Tara Zier on Twitter Stay tuned for the next new episode of It Happened To Me! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com. 

The Eid holidays is a time to unwind and spend more time with family and friends. How about to do nothing, too? Olga Mecking, writer, translator and author of “Niksen: Embracing the Dutch Art of Doing Nothing″ joins us live from The Netherlands  Celine Dion has opened up about living with stiff person syndrome (SPS), so what do we need to know about this condition? Consultant neurologist Dr. Rody El Nawar guides us It's property special with Haus & Haus' Ben Walsh And if you're stuck on where to bring the kids this Eid holiday or want ideas about summer camps, Kidzapp has your back.See omnystudio.com/listener for privacy information.

Morse code transcription: vvv vvv G7 agrees 50bn loan for Ukraine from frozen Russian assets Elon Musk wins record breaking Tesla pay deal from shareholders Rare twin elephants born in Thailand miracle Huang Xueqin Chinese MeToo journalist jailed for five years Pope Francis meets Jimmy Fallon and 105 other comics at Vatican Japanese band pulls Columbus video after slavery backlash South Korea gym ban on aunties sparks an ageism row Wells Fargo fires workers over fake keyboard activity REM perform for the first time since 2007 at Songwriters Hall Of Fame Celine Dion says Im back after Stiff Person Syndrome struggles

Morse code transcription: vvv vvv Wells Fargo fires workers over fake keyboard activity G7 agrees 50bn loan for Ukraine from frozen Russian assets Rare twin elephants born in Thailand miracle REM perform for the first time since 2007 at Songwriters Hall Of Fame Japanese band pulls Columbus video after slavery backlash Pope Francis meets Jimmy Fallon and 105 other comics at Vatican Celine Dion says Im back after Stiff Person Syndrome struggles Huang Xueqin Chinese MeToo journalist jailed for five years Elon Musk wins record breaking Tesla pay deal from shareholders South Korea gym ban on aunties sparks an ageism row

Morse code transcription: vvv vvv Huang Xueqin Chinese MeToo journalist jailed for five years Elon Musk wins record breaking Tesla pay deal from shareholders Wells Fargo fires workers over fake keyboard activity Pope Francis meets Jimmy Fallon and 105 other comics at Vatican Japanese band pulls Columbus video after slavery backlash Rare twin elephants born in Thailand miracle G7 agrees 50bn loan for Ukraine from frozen Russian assets South Korea gym ban on aunties sparks an ageism row Celine Dion says Im back after Stiff Person Syndrome struggles REM perform for the first time since 2007 at Songwriters Hall Of Fame

Céline Dion has been quietly battling Stiff Person Syndrome - a disorder that's affected her ability to sing - since revealing the diagnosis in 2022. But this week, she sat down for a very candid interview with NBC's Hoda Kotb, in which she opened up about her intense struggle with SPS, her upcoming documentary, “I Am: Céline Dion,” and whether she'll ever sing live again. There's no denying she's got a tough road ahead of her, but Céline is proving she's a fighter. And she's got the heart to go on.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Céline Dion has been quietly battling Stiff Person Syndrome - a disorder that's affected her ability to sing - since revealing the diagnosis in 2022. But this week, she sat down for a very candid interview with NBC's Hoda Kotb, in which she opened up about her intense struggle with SPS, her upcoming documentary, “I Am: Céline Dion,” and whether she'll ever sing live again. There's no denying she's got a tough road ahead of her, but Céline is proving she's a fighter. And she's got the heart to go on.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Everyone knows who Céline Dion is. You can't forget her incredible power ballads, her iconic outfits at the Met Gala or her quirky conversations with journalists and fellow singers alike.But what fans didn't know for years was Céline was suffering from stiff-person syndrome. It was causing her body to tense up and spasm, making it hard to use her famous vocal chords. She went public with the diagnosis a year and a half ago, and then stepped away from showbiz and the public eye.Now, she's opening up about her story and how stiff-person syndrome has affected her life in a new documentary. Ahead of its release, we hear from CBC's Adrienne Arsenault, who got an exclusive interview with Céline and tells us what she learned about Celine's life and her plans to sing in the future.Help us make Front Burner even better by filling out this audience survey.

Legendary singer and music icon Celine Dion sat down with Hoda Kotb for an NBC News Exclusive interview to discuss her life and health since being diagnosed with Stiff Person Syndrome, a rare autoimmune neurological disorder. Dion began quietly experiencing mysterious symptoms affecting her body and her voice, and after more than a decade of testing and treatment, was diagnosed with SPS. Fearful she may never return to the stage, or to her beloved fans, Dion has spent the last several years uncharacteristically out of the spotlight, fighting for her life and her voice. Dion opens up about her health struggles, the impact SPS has had on her life and where she's finding hope.

Hoda sits down with Celine Dion as she discusses her diagnosis of Stiff Person Syndrome and how she's finding hope amid her health battle. Also, Will Ferrell discusses “Despicable Me 4” and plays a fun game of “Fact or Fake” with Hoda and Jenna. Plus, a few of this year's biggest décor trends to take your wedding to the next level.  

Caller threatens to boycott Hake! Dogs, God's gift? RIP longtime stewardess! "Willful ignorance" advised! Stiff-Man Syndrome rant. Whites listening to rap? The Hake Report, Tuesday, May 28, 2024 AD TIME STAMPS * (0:00:00) Start/Topics: Working in old age, Willful Ignorance * (0:02:19) Hey, guys! Orange Henley * (0:03:30) "Remiss" in a sentence * (0:04:21) MARK, CA: Affirmative Action after Snivel Rights failed, Nixon, DEI * (0:07:01) MARK: Complaining about Joe the snake, "penance" * (0:12:12) MARK: s/o Greggatron, AA dodge, problem race * (0:13:13) MARK: NY youth vs cops; Venice "hate crime"; Molotov subway * (0:15:31) MARK: More complaining about Joe: Complaint jar! Suspension? * (0:18:13) THOMAS, CA: Dogs, God's gift to man. Cats. "Ghost" movie. Whoopi. * (0:29:43) RIP Bill Walton, Bette Nash, former flight attendant * (0:38:45) Christians' phoniness, division * (0:39:57) JAIME, MN: Mark vs Joe; $4000 vs $119 plane tickets * (0:43:46) DANIEL, TX: Mark, some wisdom * (0:49:20) Super: Ben Carson, aka Bigg Bump * (0:50:29) Super: D.I.A.N. (DIAN nickname accepted!) * (0:51:43) Coffee: R-word women, turn LGBT for prison (Manning) * (0:54:20) Coffee: USS Hake? (T-shirt Monday) * (0:54:43) COFFEE: Willful Ignorance on the [blank] Solution meaning * (1:04:35) Whitecross - "Holy War" (1991, In the Kingdom) * (1:11:08) Coffee: Troy oz of Gold inflation 20-percent (Biden-Obama rant) * (1:14:32) Coffee: Suffering, drama, over. Gray hair wisdom * (1:16:29) Coffee: AAPI Month, barely any Chinese music! * (1:18:49) Rumble: Naming animals (Adam and man, to this day) * (1:20:27) (Stiff-Man Syndrome vs Stiff-Person Syndrome, anti-feminism rant) * (1:23:46) Rumble: YouTube profession, MMA, willful ignorance * (1:26:08) Rumble: Single mom scam story (Xenia) * (1:26:55) JEFF, LA: Caucasian Shepherd, Russian prison, Gas tax, Chinese EVs * (1:35:38) MANUEL, CA: Child alone. Had to put dog down * (1:42:08) ALEX, CA: Smoke alarms, rap bass, hearing loss * (1:46:18) ALEX: Whites listening to rap * (1:52:10) The Cootees - "Beach Party" (1997, Let's Play House) BLOG  https://www.thehakereport.com/blog/2024/5/28/the-hake-report-tue-5-28-24 PODCAST / Substack  HAKE NEWS from JLP  https://www.thehakereport.com/jlp-news/2024/5/28/cnn-wants-to-know-if-pope-francis-used-homophobic-slur-hake-news-tue-5-28-24 Hake is live M-F 9-11a PT (11-1CT/12-2ET) Call-in 1-888-775-3773 https://www.thehakereport.com/show VIDEO  YouTube  -  Rumble*  -  Facebook  -  X  -  BitChute  -  Odysee*  PODCAST  Substack  -  Apple  -  Spotify  -  Castbox  -  Podcast Addict  *SUPER CHAT on platforms* above or  BuyMeACoffee, etc.  SHOP  Spring  -  Cameo  |  All My Links  JLP Network:  JLP  -  Church  -  TFS  -  Nick  -  Joel   Get full access to HAKE at thehakereport.substack.com/subscribe

On the new Greg Cote Show: We discuss the agony of Panthers' 5-4 OT home playoff loss. Plus Bark Air, Stiff Person Syndrome, Dwyane Wade, Stan Van Gundy, neighbor Shelly and more. Learn more about your ad choices. Visit megaphone.fm/adchoices

On the new Greg Cote Show: We discuss the agony of Panthers' 5-4 OT home playoff loss. Plus Bark Air, Stiff Person Syndrome, Dwyane Wade, Stan Van Gundy, neighbor Shelly and more. Learn more about your ad choices. Visit megaphone.fm/adchoices

I think it's pretty obvious that one of the biggest stars in my galaxy is the legendary (lovers) Katy Perry. She's rumored to be dropping new music any day now and I am beyond excited. I watched the Chromatica Ball this weekend on MAX and I suggest that everyone watch it. Watch it with the best surround sound that money can buy. It was edited and produced by our living queen, Lady Gaga. Gaga also hinted that she has new music on the horizon. This year has been an absolute feast in the music industry and I am thriving. Someone who is not thriving right now is Nicki Minaj. She was arrested in Amsterdam over the weekend and had to cancel her show in Manchester. Sean Kingston probably isn't singing to beautiful girls right now seeing as he is also in police custody for alleged fraud. A person who should be arrested right now is one of the security guards at the Cannes Film Festival for harassing and shoving other women on the red carpet. Our educated queen, Bridgit Mendler, has graduated Harvard Law school adding to her roster of talents and degrees. Miley Cyrus will be on the new season of My Next Guest Needs No Introduction. In the preview she talks about what it was like to audition and play the pop sensation superstar, Hannah Montana. Another star, Chris Hemsworth, was honored with a star on the Walk Of Fame over the weekend. The new season of the Kardashians has started and it's giving Keeping Up with the Kardashians energy, which I am obsessed with. And lastly, Celine Dion has a documentary coming out about the struggles and challenges she is facing with her rare sickness, Stiff Person Syndrome. Thanks for listening!

After she got the Anthrax vaccine when she was in the military, Robyn's health started to decline. Over the course of the last two decades, she has had 17 surgeries to deal with numerous health issues. She uses cannabis to deal with her latest health issue: stiff person syndrome. Robyn joins us from North Carolina to share her interesting story.

Drake's dick, Stiff person syndrome, the Grammys, female R&B singers, nepo babies, pretty privilege, Rumpelstiltskin, & more.See omnystudio.com/listener for privacy information.

ACROSS AMERICA, CLEAN ENERGY PLANTS ARE BEING BANNED FASTER THAN THEY'RE BEING BUILT COULD A ROGUE BILLIONAIRE MAKE A NUCLEAR WEAPON? DR. JIM KEANY – ER DOCTOR What is cannabis induced psychosis? HOW you get vaccinated may make a difference in immune response Why are more young people getting diagnosed with cancer? What is Stiff Person Syndrome? Mixed reality headsets can cause 'dangerous' after effects

Why You Should Listen:  In this episode, you will learn about heavy metals, metal allergy, and Type IV delayed hypersensitivity responses.  About My Guest: My guest for this episode is Shari Guess.  Shari Guess almost died from severe allergies due to metal hypersensitivity after a litany of orthopedic surgeries, all performed within a few short years, which implanted a large amount of metal and dental hardware in her body.  At the time she got sick, she was working as a full-time realtor and attending college, studying pre-med, hoping to eventually become a Physician's Assistant.  After being bedridden for nearly 3 years and feverishly researching everything she could to help find out the cause of her severe systemic symptoms, she had a lucky break in the case and was able to connect the dots with all of her symptoms. Suddenly everything made sense!  Shari has undergone numerous surgeries to date to remove and revise hardware. These surgeries have restored her to near-full health as the symptoms related to her metal allergies began to subside by leaps and bounds immediately following the procedures.  While in the thick of her illness, due to a compromised immune system, she also acquired Lyme Disease, Alpha Gal Syndrome, and several other autoimmune diseases.  Shari is blessed to have been able to put almost all of that behind her, experiencing near complete relief from the symptoms of Lyme and co-infections after LymeStop treatment in Coeur d'Alene, Idaho, along with the restoration of her immune system through the removal of the metals and implementing limbic system retraining. Key Takeaways: - What is a Type IV hypersensitivity reaction? - What is the difference between a Type IV hypersensitivity reaction to heavy metals and a mast cell reaction? - Is there an overlap between metal hypersensitivity and autoimmunity? - What role do medical implants play in triggering metal hypersensitivity? - Can IUDs or hernia mesh trigger type IV hypersensitivity reactions? - Might metal allergy play a role in Stiff Person Syndrome? - Should titanium dioxide in supplements be avoided? - Might heavy metals lead to EMF hypersensitivity or EHS? - Is gadolinium toxigenic or immunogenic or both? - What is MELISA testing? - What is patch testing? - Can detoxification of heavy metals be done too aggressively? - Is there a place for immune modulation in dealing with metal allergy? - How might tools like LDN, LDA, or LDI be helpful? - What is the role of the low nickel diet in metal allergy? Connect With My Guest:  http://HeavilyMetalled.com Interview Date: January 10, 2023 Transcript: To review a transcript of this show, visit https://BetterHealthGuy.com/Episode195. Additional Information: To learn more, visit https://BetterHealthGuy.com. Disclaimer:  The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority.