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Imagine the shock and horror of having a child be diagnosed with Acute Myeloid Leukemia, going through treatment for that for 8 months,, relapsing 2 months later, and then being told that the first diagnosis was wrong, and that the child actually had Ewings Sarcoma. That is what happened to then 2 1/2 year old Connor Mocey who is now 5 years old and doing as well as possible while dealing with this difficult Bone Cancer.
He lost most of his leg, two lungs got cracked open, and somehow he still walked it off—literally. Jeff Bryant's life was all about basketball—until a swollen leg led to a diagnosis of high-grade osteosarcoma. What followed was a wild medical journey: a full femur and knee replacement, the loss of three out of four quadriceps, two lung surgeries, and multiple reconstructive operations. But Jeff didn't just survive—he came back swinging, walking hospital laps days after surgery, mentoring other patients, and even launching an international young adult cancer support network. This episode dives deep into the physical pain, the mental grit, and the community that helped Jeff keep going. From titanium bones to Final Four tickets, this is a story of resilience, purpose, and finding new dreams when old ones get ripped away.
He lost most of his leg, two lungs got cracked open, and somehow he still walked it off—literally. Jeff Bryant's life was all about basketball—until a swollen leg led to a diagnosis of high-grade osteosarcoma. What followed was a wild medical journey: a full femur and knee replacement, the loss of three out of four quadriceps, two lung surgeries, and multiple reconstructive operations. But Jeff didn't just survive—he came back swinging, walking hospital laps days after surgery, mentoring other patients, and even launching an international young adult cancer support network. This episode dives deep into the physical pain, the mental grit, and the community that helped Jeff keep going. From titanium bones to Final Four tickets, this is a story of resilience, purpose, and finding new dreams when old ones get ripped away.
From initial symptoms to survivorship, understanding bone cancer care is crucial for primary care providers. During this episode of Banner Health's Making the Rounds podcast, we'll explore the complexities of bone cancer diagnoses, treatment pathways and the vital role of primary care providers in supporting patients across every stage of their journey. We'll cover the different types of bone cancer, the importance of a multidisciplinary approach and how primary care can bridge the gap between oncology specialists and families facing this difficult diagnosis.You'll hear from Dr. Ahmed Elabd, an orthopedic oncology specialist at Banner - University Medicine Tucson and the University of Arizona Cancer Center, and assistant professor of orthopedics at the University of Arizona College of Medicine - Tucson. Dr. Elabd is a specialist in treating both pediatric and adult patients with bone cancer.
How does one come to accept ‘endgame cancer'? When her breast cancer metastasized into terminal bone cancer, Mandy Mulders took steps to throw off emotional burdens and past trauma. She shares her journey to freedom despite the loss of her breasts and strength, supported by family, friends, spiritual transformation and BrainWorking Recursive Therapy. www.mariettesnyman.co.za · thelifeofmgm.blogspot.com · This episode's podcast notes and photographs · www.facebook.com · www.instagram.com · www.linkedin.com
When Rene Michael's 6 year old daughter Alicia was complaining of a backache in December of 2001, little did she know that her backache would lead to a diagnosis of a Peripheral Nueroectodermal Tumor which is a Bone Cancer closely related to Ewings Sarcoma. During her inpatient treatment, her mom Rene tells the story of Alicia deciding to find a way to donate money to the Pediatric Cancer patients and their families who were on her oncology floor. Thus, the Honeysuckle Foundation was born, inspirationally started by Alicia and officially started by Rene who has been the director of this foundation since its inception in late 2002. This foundation focuses on the all important psychosocial aspects of Pediatric Cancer. Today Alicia is approaching her 30th birthday, is married, and living her best life possible.
After hearing something pop in her left shoulder during a virtual school physical education class during the pandemic, 12 year old Grace Messinger was diagnosed with Osteosarcoma. Grace went through some very difficult treatment including 2 Thoracic Surgeries which removed a total of 55 nodules from her lung with many of them being cancerous, a Limb Salvage surgery, and never had any type of break from this very difficult bone cancer. Despite having a great attitude and fighting hard, Grace passed away on September 27th of 2023, just after her 15th birthday.
BEST OF HMS PODCASTS - THURSDAY - December 12, 2024 Learn more about your ad choices. Visit podcastchoices.com/adchoices
BEST OF HMS PODCASTS - THURSDAY - December 12, 2024 Learn more about your ad choices. Visit podcastchoices.com/adchoices
Send us your desired health topic or guest suggestionsMichele Jones, navigated her concurrent ovarian and bone cancer diagnosis with an unwavering belief in holistic methods. As a colon hygienist, Reiki master, NLP master, and hypnotherapist, she defied traditional treatments, instead embracing her intuition and personal empowerment. Her story provides a beacon of hope for anyone facing life-threatening illness, demonstrating the power of spiritual awareness and the importance of shielding oneself from external fears.We also uncover the complex ties between physical well-being, emotional health, and ancestral influences. In a captivating narrative, explore a healing path marked by alternative therapies like the Gerson method, cannabis extracts, and sweat lodge experiences. . The remarkable recovery, aided by a holistic approach and reduced chemotherapy in Central and South America, underscores the potential of non-traditional methods.Hear how enhanced vision and emotional healing during plant journeys can release fears associated with serious diagnoses. Our guest's story culminates in a celebration of empowerment, the creation of one's reality, and the joy of overcoming life's challenges with the support of loved ones. Michele also shares exciting developments, including new books for adults and children, all while expressing gratitude for the opportunity to inspire others with her incredible journey.You can find Michele Jones at:Website - https://nashvillecoloncare.com/ Please Follow and Review this podcast if you would like to support the growth of this show. Thank You! :)If you enjoyed this episode, please consider sharing it with two people you know that might benefit from the information. The more knowledge that people have in their hands, the healthier we can all become. If you would like to see a particular health issue discussed, or know someone who would be a great guest, contact the Open-Minded Healing podcast at openmindedhealing365@gmail.com. Note: By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, including but not limited to patients that you are treating. Consult your own physician for any medical issues that you may be having. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Marla Miller, Open-Minded Healing Podcast, any guests or contributors to the podcast, be responsible for damages arising from use of the podcast.
A police officer in Oklahoma City is under investigation after body camera footage shows him slamming a 70-year-old Vietnamese man to the ground during a traffic stop. A major cyber breach at the Library of Congress in Washington, D.C., exposes emails between congressional offices and library staff. Drew Nelson reports.See omnystudio.com/listener for privacy information.
Today's top stories, including Dr. Phil testifies in Texas death row inmate Robert Roberson's case. Harvey Weinstein has been diagnosed with bone cancer. Nancy Grace weighs in on the Delphi Murder trial. Both presidential candidates campaign in swing states as polls reveal a tight race. New allegations arise in the Sean Diddy Combs investigation.
In this week's episode of Gent's Talk, presented by BULOVA, host Samir Mourani sits down with paralympian hockey player Tyler McGregor to talk about being diagnosed with bone cancer as a young teenager, losing his leg and learning to cope with his new reality, learning to become a hockey player again and what phantom pain really feels like. Tyler shares insights into his career, his life and his recent work with the Princess Margaret foundation. #gentstalk Connect with us! Subscribe here ► https://www.youtube.com/@GentsTalkPodcast Website: https://gentspost.com/ Instagram: https://www.instagram.com/gentspost/ TikTok: https://www.tiktok.com/@gentstalkpod Facebook: https://www.facebook.com/gentspost/ About Gent's Talk: The Gent's Talk series, powered by Gent's Post and presented by BULOVA Canada is an episodic video podcast conversation with leading gents and rising stars across various industries. Guests include Russell Peters, James Blunt, Robin Sharma, Director X, JP Saxe, Wes Hall, Johnny Orlando, Shan Boodram, Dom Gabriel, and Nick Bateman, just to name a few. The conversations range from career, mental health, family, relationships, business, and everything in between. Gent's Talk is the first-ever video podcast to be made available for streaming on all Air Canada domestic/international flights. We aim to have a raw, unfiltered conversations about our guests' lives, how they achieved success, lessons learned along the way, and the challenges encountered. Credits: Host/Producer: Samir Mourani Creative Director and Executive Producer: Steven Branco Video & Sound Editor: Roman Lapshin A STAMINA Group Production, powered by Gent's Post.
A massive port workers strike is underway, with the potential for major impacts on the nationwide supply chain. Also, aid and cleanup efforts are underway after Hurricane Helene rips through the Southeast. Plus, Former British Prime Minister Boris Johnson says Queen Elizabeth II had ‘a form of bone cancer' before her death in his new memoir. And, MLB great Pete Rose, who was banned from baseball for life after a betting scandal, dies at 83.
Boris Johnson has claimed the Queen was battling bone cancer before her death. It's still unclear if Israel is planning to launch a full scale ground invasion of Lebanon, in a bid to wipe out Hezbollah. Dating apps in Australia have been put on notice. Comedian Joel Creasey is engaged. ABC star Tony Armstrong was hung out to dry by the ABC last night.In NRL, the Storm have suffered a major blow ahead of Sunday's grand final against Penrith. See omnystudio.com/listener for privacy information.
After noticeably limping during a soccer game in 2019, Maggie Spada's daughter Lucy was diagnosed with Ewings Sarcoma at the age of 9. After going through a very difficult treatment protocol, Lucy is now 5 years removed from this diagnosis and is doing very well. Maggie will talk about Lucy and will also talk about her Little Warriors Foundation, which she and her husband Piero started when they learned about how little money the Federal Government was contributing to Pediatric Cancer, and also learning about the treatments that Lucy and other Ewings Sarcoma patients have to go through, which has not changed in over 40 years.
After seeing her then 9 year old son Jaxen hopping on one leg in June of 2023 because he felt pain, Maggie Licea wanted to take Jaxen to his pediatrician who was not available. Instead, Maggie took Jaxen to the nurse practitioner and told her that she suspected that he had cancer. The nurse practitioner disagreed but Maggie's persistence finally prevailed and Jaxen was given the necessary testing that revealed a diagnosis of Osteosarcoma. Jaxen is nearly 14 months past his original diagnosis and unfortunately suffered a relapse from this form of Bone Cancer last week.
In this episode, we talk to Dr Meena Rafiq, Academic GP and Clinical Research Fellow within the Institute of Epidemiology and Health at University of Melbourne. Title of paper: Clinical activity in general practice before sarcoma diagnosis: an Australian cohort studyAvailable at: https://doi.org/10.3399/BJGP.2023.0610Sarcoma is challenging to diagnose with delays associated with poor patient outcomes and experiences. This study has shown that patients with sarcoma often have multiple GP visits and imaging requests in the year before their diagnosis. Clinical activity in general practice increases from 6 months before sarcoma diagnosis, primarily in the form of imaging requests, indicating that opportunities for a timelier diagnosis may exist in some patients. Primary care interventions to increase awareness of sarcoma symptoms and streamline diagnostic pathways, including promoting and clarifying guidelines to optimise the use of appropriate imaging and direct specialist centre referrals, could improve earlier diagnosis and patient outcomes.
In this month's edition of the Cancer Prevention Segment, Senior Public Health Educator from the Cortland County Health Department Courtney Maxson joins X101's Matt Brooks. She discusses bone and sarcoma[Read More...] The post July is Bone Cancer Awareness Month appeared first on X101 Always Classic.
More than half of U.S. households include pets, but there has been a lack of medical treatments developed specifically for small animals. Biotech companies are working to change that with new treatment options that both borrow from and, potentially, advance human health discoveries.Follow us on LinkedIn, X, Facebook and Instagram. Visit us at https://www.bio.org/
They say you won't heal from Multiple Myeloma Bone Cancer. We have now had two clients heal from Myeloma Bone Cancer. Kathy joined us in the Studio to share her story. Whats most interesting that after doing the 10 day cleanse and meditations the Huntsman Cancer center told her some amazing news! Kathy's experience as a Homepathic doctor and holds 2 masters degree in Counseling led her to really embrace a more holistic approach. She was later convinced to get a bone marrow transplant and harvest her stem cells and then did a stem cell transplant. They gave her Chemo as wellBecause of her dedication to keeping up nutrition she shortened her stay by a large amount. Most people stay up to a year. Kathy stayed only 3 weeks!Because of the Chemo she lost so much of her memory. A Year after the bone marrow transplant her memory was toast. She could not practice. She began looking at places to detox from top clinics in Mexico and the United states. One day it dawned on her she had Living Waters Wellness Center in her backdoor. After 8 days at Living Waters she came in and said, " My memory is back! I can accept patients again! She got tested after the Cleanse. The Gene that "doomed" her to death was no where to be found!!!!! Where did it go!!!!!! Listen and Share and give us a review! Related Episodes https://www.wholebodydetoxshow.com/the-history-of-colon-hydrotherapy-iridology-dr-bernard-jensen-with-dr-ellen-tart-jensen/Support the showReady for your healing journey?Visit our website: www.LivingWatersCleanse.com Or, give us a call at: (208) 378-9911Stem Cell Activation Patches:www.StemCellPatch.netGet your supplements and purifiers here:www.livingwaterscleanse.com/supplementsFollow us on our socials:Facebook: www.facebook.com/livingwaterswellnessInstagram: www.instagram.com/livingwaterswellness YouTube: www.youtube.com/livingwaterswellnesscenterBitChute: www.bitchute.com/livingwaterswellnessRumble: www.rumble.com/livingwatersIf you like this show, support us!Buy Me A Coffee: buymeacoffee.com/livingwaters
Osteosarcoma in dogs is bad news upon bad news. First, you hear your dog has cancer. Second, you hear that the best treatment is amputation. WHAT?? It's depressing and scary as heck. Well, there's a brand-new treatment (to veterinary medicine) available: bone cement. Cementoplasty has been used to help stabilize human bones for decades … and now it's being used in dogs with bone cancer. Join us for a deep dive into the bare bones, elegant technique offered by TheraVet S.A., a company headquartered in Belgium. Their new compound, BIOCERA-VET, is ready for use in the U.S. Veterinarian and imaging whiz Aquilino Villamonte Chevalier joins us from the company to explain how their product works and what to expect if you try to save your dog's limb. We're also joined by Dr. Shaina Stewart, a general practice veterinarian from North Carolina who's one of the few veterinarians using this technique in the United States. The pain relief and support cementoplasty offers to her patients may be worth considering. Join our Facebook support group at https://facebook.com/groups/dogcancersupport Call +1 808-868-3200 to leave a question on our Listener Line for a future show! Related Videos: Related videos about osteosarcoma: https://www.youtube.com/watch?v=WK9PQiHGNeI https://www.youtube.com/watch?v=YGIvyktfXlY https://www.youtube.com/watch?v=2yZhgNqzFX8 https://www.youtube.com/watch?v=WvPUqHMtxUo https://www.youtube.com/watch?v=MieBxhkcWuU Related Links: If your dog has osteosarcoma, this article on our website will help you get a good overview of the illness: https://www.dogcancer.com/articles/types-of-dog-cancer/osteosarcoma-in-dogs/ Chapters: 0:00 Intro 00:21 About the guests 1:08 When did Cementoplasty started 08:52 How does Cementoplasty work 10:47 Can it be used instead of amputation? 12:57 Why Cementoplasty is not a cure for cancer 20:16 How long is the recovery period 25:29 Proliferative vs Lytic 29:38 Special Trainings you offer 30:05 Countries that offer Cementoplasty 33:02 Outro -- Get to know Dr. Shaina Stewart: https://www.dogcancer.com/people/shaina-stewart-dvm/ Get to know Aquilino Villamonte Chevalier, DVM PhD: https://www.dogcancer.com/people/aquilino-villamonte-chevalier-dvm-phd/ For more details, articles, podcast episodes, and quality education, go to the episode page: https://www.dogcancer.com/podcast/ Learn more about your ad choices. Visit megaphone.fm/adchoices
Martine Kalbhenn was 3000 miles away at her family's home in Kennebunk, Maine when her 5 year old son Jackson tripped and fell while running and hurt his leg badly while visiting his Grandmother in California. Martine received a phone call from her husband Kyle and made plans to immediately travel out west. Jackson's fall was far from normal, as he was diagnosed with the Bone Cancer Ewings Sarcoma. Martine will talk about that time period in which his fall occurred in late July, and how he is doing now during his treatment protocol, taking place at the Barbara Bush Children's Hospital, located at the Maine Medical Center in Portland, Maine.
Hello Lovely Blubirds, Dive into today's extraordinary episode! Experience a soulful solo rift and meet the incredible Dr. Bones—my cherished friend and Chinese Herbal Medicine expert, Nadia Ramos. She unfolds her inspiring journey of conquering bone cancer through the potent embrace of Chinese Herbal Medicine and the profound insights from the plant kingdom. From acupuncture to cupping, and nurturing my holistic well-being on both physiological and psychosomatic fronts—my trust in her extends to every fiber of my being. I'm thrilled to have you join us on this remarkable journey. This podcast is sponsored by: MUD/WTR Use Code BLU to save $20 off your purchase (and receive free goodies too ;) mudwtr.com/blu MUD/WTR is a coffee alternative consisting of 100% organic cacao, ayurvedic herbs and functional mushrooms. With just a fraction of the caffeine found in coffee, you get energy, focus and immune support without the jitters, crash or poor sleep. === Timestamps: 00:00 Intro 1:00 MUD/WTR Sponsor 2:14 Solo Rift 3:09 Altar Ego 7:56 Individuality and Uniqueness 9:02 To be “Hueman” 10:25 Spiritual Sharks 12:23 Gene Keys & The Hueman expression 13:51 Instagram is a projection field 18:07 Using humor to reprogram the voice of judgement 23:58 Solo Rift Wrap 24:52 Welcome Nadia! 26:54 Nadia's Personal Intro 29:14 Her genius within Chinese Herbal Medicine 32:00 Nadia's Journey with Bone Cancer 35:25 Calling B.S on the word “incurable” 37:04 Bridging the Spiritual and the Intellect 38:19 Blu's experience with Nadia's healing sessions 40:06 Listening to the emotions stuck in the body 48:10 Honoring Oneself 48:38 1:1 Mentorship - 3 month program 49:41 Filling our awareness with wisdom that will enrich our lives 52:08 Making allies with the plant realm 54:51 Get rooted in nature: Healing the mental health crisis 56:20 Her Humor!!! 59:07 Thank You to Nadia 59:50 One piece of value to bring to people's lives 1:01:38 Closing === Dr. Nadia Ramo has been practicing acupuncture since 2016 and in 2021 received her Doctorate in Chinese Medicine. During her undergrad, Nadia studied pre-med anatomy & physiology courses at UC Berkeley. By studying the depths of the human body both physically and energetically, through the lens of Western and Eastern medicine, Nadia's treatments draw on psychosomatics through physical and energetic release. In March 2022 Nadia completed her Certification of Psychedelic Therapy in Research through the CIIS. Nadia has been trained by clinicians, as well as Elder Medicine keepers, to hold space for those on a psychedelic journey. She uses the arts of Chinese Medicine, Reiki, and intuitive healing during the journey to enhance the healing for those undergoing psychedelic therapy. Connect more with Nadia: https://www.drnadiaramo.com/mentorship https://www.instagram.com/earthybadbitch/ === Blu is a motivational speaker, artist, musician & host of the Deja Blu Podcast with over 4 million listeners worldwide, interviewing some of the most prolific spiritual leaders of our generation. She is the co-founder of Florescence, a modern mystery school which connects a global community of women in sisterhood through online sharing circles & in-person events. === BLU: https://www.instagram.com/bluofearth/ https://www.bluofearth.com/ https://www.florescence.earth DONATE TO THE DEJA BLU PODCAST: https://www.paypal.com/donate/?hosted_button_id=VACWQVBHTCQ3Q
For opera singer Kathleen Watt, a life-changing cancer journey began during an otherwise routine trip to her family dentist. In January of 1997 when Watt was 43 years old, the examination of a bump in the gumline at the back of her upper jaw eventually led to Watt receiving a diagnosis of the bone cancer osteosarcoma, which would be followed by treatment that included chemotherapy and a decade-long process of facial reconstruction. “A small corps of medical elites convened to excoriate my diseased bones with surgical wizardry and lethal toxins,” as Watt described on her website, “and stayed on to restore me to myself through a brutal alchemy of kindness and titanium screws.” Watt had recently begun her third season in the chorus of the Metropolitan Opera in New York City when she received her diagnosis. Approximately 1,000 new cases of osteosarcoma are diagnosed in the United States each year, and approximately only half of those cases are among adults, according to the American Cancer Society. Osteosarcomas account for approximately 2% of childhood cancers, “but they make up a much smaller percentage of adult cancers,” the American Cancer Society reported. “I think it's common for people who are facing catastrophic illness or in a period of illness that you enter it thinking, ‘This is going to be a hiatus in my life, this is going to be something I'll get through and then I'll get back to my life,'” Watt told CURE®. “If you have a short illness or short, dramatic catastrophe and get it taken care of and you're done with it, it's easy to consider that a hiatus and then you get back to everything. “I think that the fact that my definitive reconstruction was so protracted over so many years, things kept going wrong, things kept not working, or they would work but not come to complete fruition, (it) was just never definitive, and kept me in a limbo for this long, long trajectory. And I had to think change my thinking from the fact that this was a hiatus or some kind of blank space that would (be) taken out of the flow of my life to a feeling that that this is part of life. Long or short, you're on a train that's taking you through your life, it's a view (that) is part of the landscape that you traveled through on the vehicle of your own energy that propels you (with) the propulsion of life along a track through a landscape which is going to change from catastrophe to joy to resolution to discovery, (it) is all one ride.” Watt shares her story in her new memoir, “Rearranged: An Opera Singer's Facial Cancer and Life Transposed,” which is set to be released on Oct. 10 by Heliotrope Books. That same day, she returns to the stage for a cross-country book tour launching at P&T Knitwear in New York City. (For a full list of tour dates and more information on “Rearranged,” visit kathleenwatt.com.) “In the years since I was onstage all the time, I really did not notice how much I had retreated into my naturally shy disposition, content to express myself through my kids' Halloween or Spirit Week costumes, etc., avoiding the camera myself,” Watt said. “Then, in the selfie-revolution, and during the pandemic when everyone in the world took to Zoom, I felt myself shrinking from being seen on screen, becoming hyper-aware of my facial difference, such as it is. The ramp-up to this book tour has forced me to get off the dime, get over myself and just show up. I'm reminded of the time-worn advice to young singers, that no one in the audience has come to watch you be frightened, nervous or apologetic. They show up because they want to buy what you're selling. They don't want to see you be nervous or apologetic; they expect to see you succeed. They show up and pay for a ticket because they intend to be moved by what you have to offer. “This live book tour has required me to call up my performer chops and dust them off, because honestly, I think this cancer journey is actually a success story that people are going to want to hear, and I am privileged to be able to tell.” In this episode of CURE's “Cancer Horizons” podcast, Watt speaks about the importance of remaining present during treatment and how the notes she and her loved ones took during her cancer journey resulted in “Rearranged” decades later. For more news on cancer updates, research and education, don't forget to subscribe to CURE®'s newsletters here.
Camille Wahl was diagnosed with Osteosarcoma when she was 10 years old in January of 2013. On today's podcast Camille will talk about her amazing journey in which she has relapsed a total of 8 times and is once again doing everything possible to recover from her latest relapse which occurred earlier this year. Through it all, Camille, now a student at Boston University majoring in psychology, has been able to live a most meaningful life . Her life includes cohosting her own podcast with fellow Osteosarcoma survivor Mia Sandino, owning an Etsy Shop, performing in musicals, taking voice lessons, and being a Junior Ambassador for the Non-Profit MIB Agents, which focuses on the very difficult form of bone caner in which Camille and too many others have to deal with.
This episode is a replay of episode 104 of Boundless Body Radio, where we interviewed Dr. Al Danenberg. On August 2, 2023, "Dr. Al" transitioned from life to death. Dr. Al was massively impactful for many people. We are releasing this episode in his memory. God bless, Dr. Al.An Open Letter To My Readers -Preparing for Life's TransitionFind Dr. Danenberg at-https://drdanenberg.com/Better Belly Blueprint RecipesFind Boundless Body at- myboundlessbody.com Book a session with us here!
Janet Henscheid grew up on a dairy farm in Idaho. Her father was a WW2 veteran and wanted his family to live in peaceful surrounding. Janet moved to Idaho to go to school. She and her husband, Don, have lived in Utah, Wyoming, and Arizona. Janet and Don are patriotic. They raised their five kids to be patriotic. Like many others, September 11, 2001 transformed their family dynamic for years. Their son, Cody, was 15 and their younger son, Landon, was only 12. Cody was only 17 in 2003 when Janet and Don agreed to sign him up to become a soldier. Cody went to basic training at Fort Knox, Kentucky the summer between his junior and senior year in high school. Their younger son, Landon, followed suit, attending basic training between his junior and senior year. Both boys came back from basic training changed. They were now responsible adults. Cody was assigned to a transportation unit. He served 18 months in Iraq. Cody suffered brain damage when the semi he was in was hit by an IED. He was awarded the bronze star. Janet had no idea about PTSD when Cody came home for R&R. He was changed, quiet, and reclusive. Cody's injuries are unseen. It took 10 years to get him discharged from service. Cody has endured addiction and divorce. Through healing, he now finds support in his wife and solace in fishing. Landon was in civil affairs. He spent his time speaking with village elders while on his first deployment in Afghanistan. Landon was assigned as a combat medic for his second deployment. Six months into this deployment, life took a drastic turn for him. Janet recalls feeling uneasy about this deployment. She was nervous. On June 16, Landon was injured and medevacked out. On June 21, Janet was finally able to speak to her son. He was having a lot of back pain, something Landon attributed to the heavy equipment he carried, but it got to the point where he was physically unable to walk. Landon underwent surgery to decompress his spine. Tumors were on his spine and around a rib. He was immediately sent to the United States and Walter Reed hospital. Landon was diagnosed with a rare form of bone cancer (Ewing Sarcoma) ; a cancer most often found in pediatric patients. Landon was 23. Landon's first thought was to knock out the cancer and get back to his guys in Afghanistan. Doctors told him this was not possible; chemotherapy lasted one year and radiation 3-4 months. Landon was devastated. Landon spent 14 months at Walter Reed hospital fighting the cancer. He had no feeling from the chest down. Landon thought he had beat cancer. He was moved to a spinal rehab facility. Several weeks later, the cancer came back like a ferocious beast. Landon was in severe pain. He decided to do chemotherapy again, but first there was a surgery to remove as much cancer as possible. Radiation on his esophagus made it difficult to swallow. Between the bone, nerve, and esophagus pain; plus the PTSD, Landon felt very vulnerable. A new scan was done after the second line of chemotherapy. The news was devastating, the tumor had grown. Landon's last procedure was on his esophagus. He desperately wanted to eat. Landon went into cardiac arrest. He was surrounded by doctors. Landon went into a coma. He was put on a ventilator. Landon was taken off a ventilator for a short period. Janet could see the pain in his eyes and requested that the ventilator be reapplied. Following a command by Landon's first sargeant to "Stand Down Soldier," he passed away on December 7, 2013. Janet became a gold star mother. Her desire was to help other families enduring the same heartache. Janet works in Survivor Outreach through the Utah National Guard.
July is Sarcoma and Bone Cancer Awareness Month. Sarcomas are rare cancers in which malignant cells form in the bones or soft tissues. In this CAPcast, Mary Edgerton, MD sits down with Julie Fanburg-Smith, MD to talk about bone and soft tissue tumors and how the Cancer Protocols support patient care and treatment. Dr. Edgerton is the chair of the Pathology Electronic Reporting Committee and Dr. Fanburg-Smith is a member of the Cancer Committee. More information about the CAP Cancer Protocols: https://www.cap.org/protocols-and-guidelines/cancer-reporting-tools/cancer-protocols. For questions, please email us at CancerProtocols@cap.org.
Dr. Jeffrey Bryan earned his D.V.M. from the University of California - Davis in 1993. He worked as an Associate Veterinarian from 1993-1995 and served as Medical Director from 1995-2002 of the Irving Street Veterinary Hospital in San Francisco, CA. Bryan then completed a medical oncology residency, a Masters of Biomedical Sciences, and a PhD in Pathobiology at the University of Missouri. He received certification by the American College of Veterinary Internal Medicine in Oncology 2005. He is the Director of the Tom and Betty Scott Endowed Program in Veterinary Oncology, the Director of PET Imaging Center of the University of Missouri, Associate Department Chair for Research, and the Associate Director of Comparative Oncology for Ellis Fischel Cancer Center. Dr. Bryan's research focuses on comparative examination of cancers in companion animals to better understand cancers in all species. His particular areas of interest are targeted imaging and therapy, epigenetics, and immunotherapy of cancers. He directs the PET Imaging Center, which seeks to develop novel PET imaging agents for cancer diagnosis, localization, and prognostication. He studies DNA methylation of canine non-Hodgkin lymphoma. He studies immunotherapy in companion dogs including investigating fetal microchimerism. --- What We Do at MIB Agents: PROGRAMS: End-of-Life MISSIONS Gamer Agents Agent Writers Prayer Agents Healing Hearts - Bereaved Parent and Sibling Support Ambassador Agents - Peer Support Warrior Mail Young Adult Survivorship Support Group EDUCATION for physicians, researchers and families: OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma MIB Book: Osteosarcoma: From our Families to Yours RESEARCH: Annual MIB FACTOR Research Conference Funding multiple $100,000 and $50,000 grants annually for OS research MIB Testing & Research Directory The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments. Help us MakeItBetter. https://www.mibagents.org Help support MIB Agents, Donate here https://give-usa.keela.co/embed/YAipuSaWxHPJP7RCJ SUBSCRIBE for all the Osteosarcoma Intel
Jason was diagnosed with bone cancer in November last year, at the age of 34. First thought to be caused by baby hernia, the massive pain in Jason's groin was actually due to a large lump over his pelvic bone that was protruding inwards. After a visit to a radiologist who referred him to a doctor and a series of MRI scans and biopsies, Jason received news he never expected. Much the same with everyone receiving news like this, Jason didn't understand one bit. So, he mustered up his courage and talked to his doctor. He then met with the team who will handle his operation, Dr Charlie Gardener. With this first meeting, Jason felt safe. Here he learned about the procedure to be done, which is THE first here in Australia, and the dreadful possibility of losing limb. We can say that the 10-hr operation was a success, but the recovery was difficult. Albeit difficult, Jason says what happened changed him for the better. From his diagnosis to his account of how extensive his surgery was - imagine amputation and hip repair, to regaining strength through biking, to losing 4 cms (of you know what) and gaining it back, make sure to buckle up with a few tissues on hand. Jason will take us on an amazing ride that's a first here in the P*nis Project podcast. As for Jason's sexual health, it's a work in progress. Or say, a comeback in progress. To see the details mentioned in the episode like pictures and links, please make sure to read the show notes. Start listening through the button below. ---------- Websites: https://thepenisproject.org/ https://rshealth.com.au/ https://www.prostaterehabilitation.com/ http://www.menshealthphysiotherapy.com.au/ http://prost.com.au/ Facebook: https://www.facebook.com/Restorativeshealthclinic Instagram: https://www.instagram.com/rshealth_perth/ Linkedin: https://www.linkedin.com/in/melissa-hadley-barrett/ Music David Mercy https://open.spotify.com/artist/1HbvnltKu4XbWTmk0kpVB9?si=D1xP5dDVQK-zzNU3rViRWg Producer Thomas Evans: The SOTA Process https://www.instagram.com/thesotaprocess/ https://open.spotify.com/show/4Jf2IYXRlgfsiqNARsY8fi
Three people. Ever. That's how many have been cured of HIV. We visited one of them to learn about the extraordinarily rare (and risky) treatment — and to find out if it can, even indirectly, lead to a true cure for 40 million more.
What's got you feeling good going into the weekend?This show is part of the Spreaker Prime Network, if you are interested in advertising on this podcast, contact us at https://www.spreaker.com/show/4305715/advertisement
In this episode of Integrative Cancer Solutions with Dr. Karlfeldt, we delve into the power of alternative therapies for cancer treatment. Our guests share their inspiring stories of hope and healing, including a couple who opted for a naturopathic approach and experienced a decrease in pain and an increase in energy. We also hear from a veteran who was told there was no hope for treatment, but found a facility that focused on supporting the body's immune system to fight cancer. And, we listen to the story of a couple who underwent intensive alternative therapy protocols and saw amazing results. Our hosts emphasize the importance of exploring all healthy options for cancer treatment beyond just chemo and radiation, and highlight the potential negative effects of traditional cancer treatments. Join us as we discuss the importance of individualized care and healthy lifestyle changes in the fight against cancer. Don't miss this episode of Integrative Cancer Solutions with Dr. Karlfeldt.- Naturopathic approach vs. chemo- Individualized care for cancer patients- Body's own capabilities in fighting cancer- Positive experience with alternative therapies- Exploring all healthy options for cancer treatmentKEY POINTS[0:6:8] Despite being given a grim prognosis of only one month to live, the couple chose to embrace a naturopathic approach to cancer treatment instead of relying on chemotherapy.[0:10:11] Despite the grave threat posed by cancer, an evidence-based approach of leveraging the body's natural defenses was embraced over the use of harsh chemotherapy, demonstrating the immense power of holistic treatments.[0:15:33] Despite the veteran's desperate pleas for help, the medical professionals failed to provide any light of hope, leaving the veteran and his wife feeling utterly hopeless.[0:16:51] After incorporating dietary changes and supplements into their daily routine, the patient experienced remarkable improvements in their quality of life, including a significant reduction in pain and increased appetite.[0:16:51] By avoiding toxic treatments and sticking to a dedicated program, you can dramatically improve your quality of life and achieve lasting health -- without sacrificing patience.[0:19:41] After exhausting traditional cancer treatments, the couple found solace and a renewed sense of hope in naturopathic facilities, providing them with much-needed relief from the debilitating effects of chemotherapy.[0:19:41] Despite initial hesitation, the comprehensive two-week regimen of therapies offered a reassuring sense of comfort and assurance, ultimately aiding the patient in managing their pain and improving their overall health.[0:20:5] With the right combination of nutrient-rich food and immune-boosting supplements, your body is empowered to fight off illness, even when chemo and radiation fail. Integrative Cancer Solutions was created to instill hope and empowerment. Other people have been where you are right now and have already done the research for you. Listen to their stories and journeys and apply what they learned to achieve similar outcomes as they have, cancer remission and an even more fullness of life than before the diagnosis. Guests will discuss what therapies, supplements, and practitioners they relied on to beat cancer. Once diagnosed, time is of the essence. This podcast will dramatically reduce your learning curve as you search for your own solution to cancer. For more information about products and services discussed in this podcast, please visit www.integrativecancersolutions.com. To learn more about the cutting-edge integrative cancer therapies Dr. Karlfeldt offer at his center, please visit www.TheKarlfeldtCenter.com.
Len Goodman, the beloved former judge on popular dance shows Strictly Come Dancing and Dancing With the Stars, has passed away at the age of 78 after a battle with bone cancer. Goodman was an integral part of the success of both shows, and his enthusiastic style and wry humor made him a favorite of audiences on both sides of the Atlantic. This episode pays tribute to the life and legacy of Len Goodman
This townie tried to escape when touring the country as a traveling nurse. Now married to a farmer, living in the country and mothering to a little boy and girl, she has planted her roots firmly in the Midwest while working as a nurse practitioner. Listen as this guest (and fellow Franklin Magnet Middle School Knight) reunite to explain how she made friends while moving rapidly from city-to-city in the world of health care. A slip in the grocery store and a mom's intuition turned what Leah thought as an unsightly bump into a life changing mass with a 50 percent, 5-year survival rate. Leah shares how she was in the right place at the right time when a normally pediatric cancer aggressively took hold of her leg causing her to undergo surgery and treatment that would result in an adorable pixie cut and endless days without work and feeling down and out. In an emotional recollection, she remembers the countless people who reached out to wish her well. These moments, people and trinkets kept her afloat during the hardest days. I'd like to thank this episode's sponsor, The Venue CU. These historical buildings at 51 and 55 East Main Street in Downtown Champaign are seeing their finest days as a modern industrial event space. Add the services of sister companies, Bugbee's DJ Plus and Chikondi Craft Chocolate to create the most memorable occasions. For all information on all their ventures, visit thevenuecu.com and the venuecu on Instagram and Facebook.Thank you so much for listening! However your podcast host of choice allows, please positively: rate, review, comment and give all the stars! Don't forget to follow, subscribe, share and ring that notification bell so you know when the next episode drops! Also, search and follow hyperlocalscu on all social media. If I forgot anything or you need me, visit my website at HyperLocalsCU.com. Byee.
Tyler McGregor was just a teenager when he lost a leg to cancer to save his life. But that didn't stop him from skating and playing hockey. McGregor even went on to play sledge hockey in the Paralympics. Now, he's using his skills on the sledge skate to raise money for the Terry Fox Foundation. McGregor is skating a marathon - 42km - in each of the 10 provinces. CBC's James Grudic met up with Tyler McGregor in Deer Lake.
To have your question featured in a future video, please email: questions@drmdc.health
Your Host Joy dives right back in where Part 1 left off to tell you about Bone Cancer staging and treatment. Find out why immunotherapy is generally not approved for the treatment of bone cancer. Also, learn where bone sarcomas most often spread. Finally, discover a terrific resource you can call or e-mail for free bone cancer support. Support the show
In the first part of a 2-part show for Bone Cancer Awareness Month, your Host Joy (a stage 4 young adult cancer survivor) shares risk factors that could raise your risk of Bone Cancer. She also shares symptoms & signs to be aware of including one that's especially important to know for youth. Finally, discover tests used to diagnose bone cancer. Support the show
Still in the fight of his life – for his life. That's the real-life story of this week's Team Never Quit guest, Chris Cathers, a former US Army Green Beret and CIA paramilitary Global Response Staff (GRS) contractor with 12 deployments to Iraq, Afghanistan, Palestine and North Africa. And if Chris' PTS struggles weren't enough, Chris speaks openly about the stage 4 bone cancer he has had for over a year. Struggling to find adequate medical care opened his eyes to the difficulty of finding the right team for any aspect of medicine, and he has dedicated himself to encouraging his military brothers and sisters to seek help immediately and not downplay the signs. Chris and his business partner Daniel also aim to raise awareness of the veteran suicide epidemic via a documentary, “Brother's Keeper”, currently in production. Chris has established a nonprofit organization to help raise funds for a small number of other nonprofit and for-profit businesses, committed to giving our veterans a hand in their fight. In this episode you will hear: At one time, I was feeling really good. I was doing protection for celebrities for 5 years, as well as Jiu-Jitsu, MMA, and lifting a lot. My femur was compromised to the point that I was close to snapping it. I always prepare myself for the worst and hope for the best. You have to advocate for yourself, or you won't have a good success rate. Unfortunately with what I've got, radiation & chemo doesn't work. It's more of a Hail Mary. My wife calls me a cockroach. “Man, this guy's stubborn.” Sports is what kept me on the right path. I feel like a sheepdog – I like to keep the wolves at bay. I really enjoy protecting people. If I would redline my body, all the “noise” would settle down. Doing something bigger than you has always been a calling for me. Initially, my outlook wasn't great - 29% and the 5-year survival rate wasn't good. I'm a patriot and I love our country, I think we're the best country on the planet, but we're doing our damnedest to fuck it up. That's not acceptable to me. We didn't think we could have children, 1 - I'm old as dirt and I'm stage 4. So we were not planning on having a child, but… Comparison is the thief of joy. Support the Mission: https://www.wearebrotherskeeper.com/ Follow Chris on Instagram: https://www.instagram.com/chris_cathers/ Follow Us on Social: https://www.instagram.com/marcusluttrell/ https://www.instagram.com/andrewbrockenbush/ https://www.instagram.com/team_neverquit/
Sarcoma is the general term for a broad group of cancers that begin in the bones and soft tissues of the body, including muscle, fat, blood vessels, nerves, tendons and the lining of your joints. There are more than 70 types of sarcoma. Bone cancer is a rare disease, accounting for just 0.2% of all cancers. An estimated 3,910 new cases of sarcoma of the bones and joints will be diagnosed in 2022, according to the National Cancer Institute. Some types of bone cancer occur primarily in children, while others affect mostly adults. "When we think of sarcomas of the bone, the common types are chondrosarcoma, Ewing sarcoma, and osteosarcoma," says Dr. Safia Ahmed, a radiation oncologist at Mayo Clinic. "While sarcoma can happen in any bone in the body, the most common sites include the pelvis, the spine, and the skull base for most of these tumors."Treatment for sarcoma varies depending on sarcoma type, location and other factors. Treatments can include surgery, chemotherapy and radiation therapy. Proton beam therapy is a type of radiation therapy that is more precise than traditional X-ray treatment, which delivers radiation to everything in its path. Proton beam therapy uses positively charged particles in an atom — protons — that release their energy within the tumor. Because proton beams can be much more finely controlled, specialists can use proton beam therapy to safely deliver higher doses of radiation to tumors. This is particularly important for bone cancers."When we treat these tumors in the bone with radiation, they need much higher doses of radiation than, say a sarcoma that arises purely in the muscle, what we call a soft tissue sarcoma," explains Dr. Ahmed. "And these high doses of radiation often exceed what the normal tissues around the area can tolerate. So proton therapy allows us to give this high dose of radiation while protecting the normal tissues."July is Sarcoma Awareness Month. On this Mayo Clinic Q&A podcast, Dr. Ahmed discusses sarcoma diagnoses and treatment options, including proton beam therapy.
This episode features Caroline Wilbur and her incredible story of being a cancer survivor! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/nick-henderson57/support
Stay in your present. Stop talking about your problems, your fears of a future that's unknown, because it's robbing you of your daily joy. If you enjoyed this episode, make sure and give us a five star rating and leave us a review on iTunes, Podcast Addict, Podchaser and Castbox. Sign up for the next Follow-Through Challenge Follow me on Social Media:Amy on IGAmy on Facebook Resources:AmyLedin.comLean Bodies Consulting (LBC)LBC University
Theresa Beech's son Daniel was diagnosed with Osteosarcoma when he was 11 years old and passed away from this bone cancer in 2016 when he was 13 . Theresa, a Space Engineer at NASA was able to use her expertise in collecting and analyzing data, to identify a drug which allowed Daniel to live 4 months longer when the thought was that he had only 2 weeks to live.Before he passed away, Daniel asked his mother to continue to try and help other Osteosarcoma patients, and Theresa has come up with a number of initiatives and solutions which are making the future of Osteosarcoma patients, especially patients that have relapsed, look brighter then one that they currently have.
Metastatic bone cancer are three words no one wants to hear. But there are state of the art treatments being offered at the health system that mean you won't need more treatments afterward. Musculoskeletal oncologist and reconstructive surgeon Dr. Kyle Sweeney is joined by his patient Mary Alice to talk about treatment today. Active treatment provides improved quality of life for those living with metastatic bone cancer.
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Host Dr. John Sweetenham, of the UT Southwestern Harold C. Simmons Comprehensive Cancer Center, interviews Professor Piotr Rutkowski, of the Maria Sklodowska-Curie National Research Institute of Oncology in Warsaw, Poland, about plans to provide cancer care for Ukrainians fleeing the war in Ukraine. Transcript Dr. John Sweetenham: Hello, I'm John Sweetenham, the associate director for Clinical Affairs at UT Southwestern's Harold C. Simmons Comprehensive Cancer Center, and host of the ASCO Daily News Podcast. As many of you all know, 2 million people have now fled the war in Ukraine, according to the United Nations Refugee Agency—the UNHCR. Today, we'll be discussing efforts underway in neighboring Poland to provide health care and other support to Ukrainian refugees, particularly for patients with cancer. It's an honor to welcome Professor Piotr Rutkowski, who leads the department of Soft Tissue and Bone Cancer at the Maria Skłodowska-Curie National Research Institute of Oncology in Warsaw, Poland. He also serves there as the deputy director of the Institution for National Oncological Strategy and Clinical Trials. Additionally, Professor Rutkowski serves as the President-elect of the Polish Oncological Society. My guest and I have no conflicts relating to our topic today. Our full disclosures are available in the show notes, and disclosures relating to all guests on the podcast can be found on our transcripts at asco.org/podcast. Dr. John Sweetenham: Professor Rutkowski, thank you for coming on the podcast today. We are really pleased to have this opportunity to speak with you during what must be an incredibly difficult time. Dr. Piotr Rutkowski: Thank you for the invitation. That's true, with this horrible time. And to be honest, we haven't expected how it can be going on. But now we have a new reality, and we have to fight on. Dr. John Sweetenham: Just beginning with that new reality, my first question to you was going to be to ask you a little bit about details of the decisions made by Poland's parliament. So, your parliament has adopted new legislation that provides health care for Ukrainian refugees and enables the creation of a call center at Poland's National Health Fund. Could you give us some more details about these new developments, and how you anticipate this will help the Ukrainian refugees who are suffering, particularly those who are suffering with cancer? Dr. Piotr Rutkowski: Yes, that's true. Until now, we have nearly 1 and a half million people from Ukraine who arrived in Poland during the last 2 weeks. And because of the increasing numbers of patients with cancer coming to our institution but also all the oncology call centers in Poland, the Polish parliament—together with the Polish National Health Fund decided that all refugees of war from Ukraine are authorized to receive health care the same as citizens of Poland. This is very important because it resolves a lot of bureaucratic issues. We do not need to get specific permission to treat the patients. And we can provide them the same care as every citizen of Poland, in terms of outpatient treatment, admission to the hospitals, surgical procedures, access to the drug, prescriptions of the drug . . . it is absolutely important. It also means that within the framework of this new law, we can treat the patients according to all the same regulations, or the same standards, as Polish oncological patients. Of course, I have to stress it, but Ukrainian oncological patients—except, of course—have no priorities. They are going to the same queue and [are under] the same care as Polish patients. Moreover, this is very important because for newly diagnosed oncological patients in Poland—we have so-called oncological cards, which allow for faster diagnosis including pathological evaluation, molecular evaluation, and imaging. So, they are undergoing the same diagnostic procedures as Polish patients. Of course, last week, we have admitted around 100 children in need of oncological treatment to centers in Poland. But probably it was the first wave of patients. Now we have an increasing number of normal adult patients with lung cancer, breast cancer, [and] GI cancers, coming to us. Some of them also need the continuation of the treatment, or they have to start specific treatment with innovative drugs—if they are reimbursed in Poland—it's also allowed to treat with all these medicines in Poland. So, the second point which you mentioned that the Polish National Health Fund established this special, general, official hotline for oncological patients from Ukraine—and also a webpage. This hotline is in Ukrainian, Russian, English, and Polish languages, and with the use of this hotline, we are trying to direct the patients to the proper oncological centers because this hotline from the National Health Fund cooperates with 20 top Polish comprehensive cancer centers. So, using this official hotline, it's much easier to be directed to the correct hospital treating the given type of cancer. This is very important because [patients can] contact directly to the hotline of the National Health Fund or the hotline of the oncology call centers in the region where the patients are temporarily staying in Poland. So, it's the best we can recommend and this is what has been done until now in our country. Dr. John Sweetenham: It's incredible how quickly the Polish government has moved to help the many Ukrainian patients with cancer and other patients who are coming into the country. The cancer centers in countries such as yours, who are accepting and treating these Ukrainian patients, presumably are going to struggle to have sufficient resources in terms of space, equipment, drugs, and staff to handle the large number of patients from Ukraine who will be showing up at your doors. What resources does Poland have? And what do you need from the international community to be able to help with this very large additional patient load that you'll be seeing? Dr. Piotr Rutkowski: Yes, thank you. This is an excellent point because now, of course, the enthusiasm dominates, and normal human help—we involved everybody. So Polish oncological societies are working together, and we are providing different materials: translation for the patients; we also ask the pharmaceutical companies to provide the Ukrainian language material, which we had in the countries, and also patient advocacy groups are really helpful. And we are sending the required medical resources to Ukraine in some official actions. However, of course, you are right that the Polish oncological system had, even before, this increasing number of patients which we can calculate means that we'll have 10 percent more patients with cancer in this year. So, it's a really huge number. Until now, we also had some limitations in resources. The basic drug reimbursement was at a good level when we compare it to other central-eastern European countries, so we had a relatively good system. We also started, 2 years ago, our new national oncological strategy. However, we also transformed to this 3-level system of comprehensive cancer centers of reference. So, we are also at the level of some transformational oncological systems. So, it's not the easiest time, especially, but generally, the numbers of nurses and health care providers, including different oncological specialties, are limited in Poland. And when we calculate per number of patients, it's one of the lowest in Europe. Generally, we can expect a shortage of human resources. Of course, we can count that we easily and temporarily facilitate the qualification of Ukrainian medical staff for Poland. And this is also included in this package of new laws. But on the other hand, still, we are facing the problems of communication, even with medical staff. So, it's not so easy. Moreover, when we calculated nowadays this number of patients, it costs about 50 to 70 million Euros per month additionally. So, it changes the priorities in health care in Poland. So, I cannot tell you now, but maybe we can make some calculations in 2 or 3 months. But nowadays, we can still resolve these issues, but what will be in 3 or 4 months, I really don't know, And how delayed will the oncology health care be due to [the] increasing number of patients? So, it is what we can anticipate, and we try to reorganize at the level of different hospitals now. We had some meetings with the Ministry of Health and our National Health Fund. And the normal functioning levels—we cannot see. Things are changing. We have first patients now, but the numbers are increasing every day. So, I cannot definitely say what resources, except human resources, and of course, increasing funding, we need in the near future. We try to collaborate with different organizations. I really appreciate the meeting with ASCO and ECO that took place recently about how to transfer some patients to other oncological centers. However, it's not so easy when we can't transfer the patients somewhere else if the patient started the treatment in 1 given center. So, this is the situation now, and what we expect, but it can be more difficult in a few weeks or months. Dr. John Sweetenham: Yeah, thank you. I'd like to perhaps, pick up on that last point you made about medical information on patients that you're accepting. So as a clinician yourself, how are you handling the issue of prior treatment history, and medical information of patients who are coming into your system? For example, are you able to get access to their pathology reports, their imaging, or their prior treatment reports? And if you don't have access to those, how are you facing the challenges of treating those patients with an incomplete medical history? Dr. Piotr Rutkowski: Of course, we have to translate it. So, we have help in our institution, but it's not common practice everywhere. Some of the patients have translated documents. We do not insist on the certified translations, just the original documents or copies of the documents with translation into Polish, because not all words are even well understood. The problem is that the level of health care in Ukraine is sometimes lower, and pathology reports are not perfect. So even if the pathological report, which we are receiving . . . if it's even available from the patients . . . sometimes we need to redo the biopsy and establish some molecular factors. One patient who was admitted to my department yesterday with sarcoma, we redid the biopsy last week because the report was not complete. And we completely changed the diagnosis in 3 days. Other patients will probably also need [to be] re-biopsied. Sometimes we are lacking imaging . . . but some of the patients arrive with at least CDs of CTs or MRIs, so it's much easier. Some of the refugees have only the copy in their mobile phone . . . so the documents are at a very different stage. If we have information about how the patient was treated in Ukraine, it's perfect because they can continue the treatment. But not all kinds of treatment in Ukraine were provided according to the standards which we have in Poland. So, it's also difficult because we have to discuss with patients how to change their treatment. There are really individual situations. This is what I can say. We have a lot of volunteers now helping with translation. We also employed some additional staff and it's easier. But the problems with the documentation probably will also be increasing, that's true. However, we try to simplify as much as possible, and in some situations, redo the biopsy and re-establish the diagnosis, if we have enough information. It's really resolved case by case. Dr. John Sweetenham: Yes, gotcha. It sounds as if it certainly can add to everybody's workload and degree of stress, unfortunately. Because of the additional tests that some of these patients are now having to face, on top of everything else that they've already confronted over the last couple of weeks. One of the other things which I think will be of interest to our listeners in that regard is whether you're experiencing patients who are coming in, who have been part of a clinical trial? And if so, whether there are any mechanisms in place for that situation, or perhaps, a patient on a relatively early-phase clinical trial, who may have received part of their initial treatment in Ukraine? Dr. Piotr Rutkowski: Probably it is the easiest part because, for the last year, I have treated several Ukrainian patients in a clinical trial where they had access to new drugs. And we had the possibility, at least before the pandemic because the pandemic also complicated the transport or movement of patients. But before, we had several patients in clinical trials, and many of them have relatives and are accompanied by translators who provided for compliance with the requirements for informed consent and of course, understanding all procedures. But because some companies ask us for [the] possibility to transfer patients from Ukraine to Poland within the clinical trials, so they are providing us the certified translation of the documents and also the informed consent in Ukrainian—at least 2 or 3 companies, because I'm responsible for clinical trials in our institute. So, they contacted us and of course, we agreed. This is much easier because it's professional machinery and they have at least documents in the forms of CRF (case reporting form) so we can get the full history, and how the patient was treated, [and] in the majority of cases also imaging. So, it's much easier because everything is provided, and we also inform the bioethical committee about the situation. But it's probably, also, a little more work in the next few weeks. Dr. John Sweetenham: Yes, well it is good to hear that those patients are able to continue their treatment on trial, thanks to all of the backup support that you've been able to provide. I want to conclude by saying thank you, Professor Rutkowski, for coming on to the podcast today. And for everything that you and your colleagues, your institution, and the Polish people—are doing to support patients with cancer during what are obviously extremely difficult times. Dr. Piotr Rutkowski: Thank you very much. You know, cancer is a matter for all of us, and cancer has no borders, so we have to help each other in these difficult times, that's true. Thank you very much. Dr. John Sweetenham: Thank you to our listeners, for your time today. If you're enjoying the content on the ASCO Daily News Podcast, please take a moment to rate and review us wherever you get your podcasts. Disclosures: Dr. John Sweetenham: Consulting or Advisory Role: EMA Wellness Dr. Piotr Rutkowski: Honoraria: Bristol-Myers Squibb, MSD, Novartis, Roche, Pfizer, Pierre Fabre, Sanofi, and Merck Consulting or Advisory Role: Novartis, Blueprint Medicines, Bristol-Myers Squibb, Pierre Fabre, MSD, Amgen Speakers' Bureau: Pfizer, Novartis, Pierre Fabre Research Funding (institution): Novartis, Roche, Bristol-Myers Squibb Travel, Accommodations, Expenses: Orphan Europe, Pierre Fabre Disclaimer: The purpose of this podcast is to educate and to inform, this is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement.
This episode covers sarcoma.Written notes can be found at https://zerotofinals.com/surgery/orthopaedics/sarcoma/ or in the orthopaedic section of the Zero to Finals surgery book.The audio in the episode was expertly edited by Harry Watchman.
I am always searching for that Unicorn. The person that has outlived me while fighting similar battles. And for 20 years! In Mike's words: “I told God when I cut my last deal with him before my last thoracotomy, that I would give any and all people I could hope if he would allow me to hang around a while longer…thankfully he has and continues to give me that opportunity, and I intend to do it till the sand runs out!”This episode filled me with more faith and more hope. It is one you will not want to miss! Paula Molstead's blog If you enjoyed this episode, make sure and give us a five star rating and leave us a review on iTunes, Podcast Addict, Podchaser and Castbox. Sign up for the next DAC Bootcamp Follow me on Social Media:Amy on IGAmy on Facebook Resources:AmyLedin.comLean Bodies Consulting (LBC)LBC University Amy Ledin Bio: The Co-Owner and Operator at Lean Bodies Consulting. Amy Ledin has been in the online wellness space for over a decade. Her coaching in this space has led to her passion in helping women build strong personal integrity. Fighting cancer for now close to 7 years, Amy loves sharing her mindset hacks and strategies that helped her through her fight to not just be a survivor, but an overcomer.