Podcast appearances and mentions of monica michelle

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Best podcasts about monica michelle

Latest podcast episodes about monica michelle

Invisible Not Broken A Chronic Illness Podcast
Musician Ann-Britt Celebrating New Music, Creativity and Chronic Illness, and Creating New Goals

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Oct 28, 2024 53:21


SummaryIn this conversation, Monica Michelle and Ann-Britt discuss their shared experiences with chronic illness, particularly Ehlers-Danlos syndrome. They explore the challenges of living with a chronic condition, the importance of community support, and the therapeutic role of music in coping with illness. Ann-Britt shares her journey from being an active musician to adapting her life around her health challenges, including the use of a wheelchair. They also touch on the differences in healthcare systems between Denmark and the USA, emphasizing the need for better understanding and support for those with chronic illnesses. In this conversation, Monica Michelle and Ann-Britt discuss the challenges of traveling with a disability, the emotional journey of adapting to life changes due to chronic illness, and the importance of setting boundaries. They explore generational differences in self-care, the concept of diminished normalcy, and the emotional ties to home. Ann-Britt shares her musical inspirations and the themes of her upcoming album, highlighting the beauty in small moments and the power of creativity in the face of adversity.Keywordschronic illness, Ehlers-Danlos syndrome, mental health, creativity, music therapy, wheelchair use, healthcare systems, Denmark, USA, community support, chronic illness, accessibility, self-care, personal growth, music, life changes, boundaries, emotional health, travel experiences, generational differences Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
 Author of “Finding A New Normal: Living Your Best Life with Chronic Illness”: Suzan Jackson

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Sep 23, 2024 49:39


Monica Michelle is joined by author Sue Jackson.Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease.In this episode, Monica and Sue discuss: Sue's pathway to diagnosis Parenting with chronic illness and parenting a child with chronic illnessManaging ME/CFS from diagnosis to creating routinesUsing books to cope emotionallyWriting a book while having chronic fatigueTIMESTAMPS00:46 Sue's diagnosis and how she manages her symptoms 13:03 Parenting with a chronic illness25:02 COVID-19's impact on chronic illness 30:35 Books as a form of escapism and connection42:00 The challenges of writing and the importance of routines with chronic illness The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Using Self-Portraits to Represent Chronic Pain

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Sep 4, 2024 60:29


Monica Michelle is joined by artist Kyrianna Bolles.Kyrianna lives with chronic pain.In this episode, Monica and Kyrianna discuss: Kyrianna's struggle to be accommodated for her pain throughout school yearsHow Kyrianna uses her portraits to help represent other's chronic conditionsThe communities Kyrianna has built, from a college support group to an artist collectiveKyrianna's favorite tools for art and chronic painTIMESTAMPS00:00 Intro to Kyrianna 10:45 Kyrianna's self portraits 24:42 Kyrianna's Support group 33:40 Animus45:57 Kyriannas favorite support tools The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Dory's Corner: New Podcast intro with Host Nick Clemmons

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Aug 12, 2024 60:25


Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory's Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon.Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome, POTS, MCAS, and Fibromyalgia.In this episode, Nick and Monica discuss:Monica's diagnostic history and her relationship with her disabilitiesHow Monica learned to advocate for herselfLack of media representation influencing abled people's perspectives of disabled folksHow Monica's family functions around disabilityTIMESTAMPS00:42 - Monica's history and relationship with her disabilities13:06 - How Monica found her voice *Trigger Warning: Mention of SA* 31:40 - Media representation45:09 - Monica's familyThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Disability Access in the Education System and How to Support Disabled Folks' Needs with Nick Clemmons

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later May 5, 2024 54:05


Monica Michelle is joined by consultant and podcast host Nick Clemmons.Nick lives with Sickle Cell Disease.In this episode, Monica and Nick discuss:The ways disabled folks are often forgotten in education infrastructureHow Nick navigates societal limitations to achieve his goalsDisability representation in the mediaKnowing how to realistically offer help to disabled folksTIMESTAMPS00:42 - ADA, Title IX, and disability access in schools20:08 - How Nick makes and achieves opportunities 28:40 - Media and disability40:42 - How to respectfully be concerned about someone else's needsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Vulnerability, Resiliency, and Advocacy with Tim Reitsma

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Apr 15, 2024 47:06


Monica Michelle is joined by consultant and podcast host Tim Reitma.Tim lives with Crohn's Disease.In this episode, Monica and Tim discuss: Tim's resiliency through managing his Crohn'sThe importance of self-advocacy, especially in the workplace Tim's podcast why he shares stories of those with invisible illness TIMESTAMPS00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy15:41 - Why Tim started his podcast22:42 - Invisible condition etiquette31:00 - What HR can do better for employees with invisible illness39:31 - Tools Tim uses to care for his Crohn's outside the homeThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

SLOW FLOWERS with Debra Prinzing
Episode 656: Follow the Blooms with Host and Producer Katie Lila, and Bloom TV Network's founder & CEO Monica Michelle

SLOW FLOWERS with Debra Prinzing

Play Episode Listen Later Apr 3, 2024 52:51


There's HGTV and there's the Food Network, but have you checked out the Bloom TV Network? Today, we'll meet Monica Michelle, creator of the floral-centric streaming platform and Slow Flowers member Katie Lila, host and producer of the new series “Follow the Blooms,” which begins at the flower farm and ends with a beautiful installation […] The post Episode 656: Follow the Blooms with Host and Producer Katie Lila, and Bloom TV Network's founder & CEO Monica Michelle appeared first on Slow Flowers Podcast with Debra Prinzing.

Invisible Not Broken A Chronic Illness Podcast
Tech and Disability: What VR Offers the Disabled Community with Sunny Ammerman

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Mar 19, 2024 70:27


Monica Michelle is joined by artist and disability advocate Sunny AmmermanSunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum".In this episode, Monica and Sunny discuss: Sunny's complex disorders and how she copes with themEverything VR provides from accessible gaming, social platforms and the potential for better online education.Various VR/AR games and their gameplay Sunny's VR support groupTIMESTAMPS00:45 - What VR/AR offers for chronically ill and disabled folks11:57 - Sunny's conditions and how she copes with them17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences37:13 - The social aspects of virtual gaming51:32 - What opportunities VR has for the future1:04:49 - Sunny's VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Reporting on Chronic Illness and Disability with Journalist Julia Metraux

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Feb 26, 2024 39:16


Monica Michelle is joined by Journalist Julia Metraux.Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID.In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lensHow community impacts the mental health of those with chronic illnessHow Julia and Monica find positives and negatives in the internet spaces for chronically ill and disabled folksThe politics of how government, businesses, and celebrities influence the chronic illness community TIMESTAMPS00:32 - Julia's diagnostic journey07:02 - Julia's work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks26:46 - How Julia's illness impacts her work, both in what she writes about and how she manages her lifestyleThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Author of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Feb 5, 2024 31:29


Monica Michelle is joined by author & physiotherapist Kevin Hunt.Kevin lives with chronic pain.In this episode, Monica and Kevin discuss: Kevin's philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what's important to you.Kevin's idea behind his new book.Using pain as a guide.TIMESTAMPS00:34 - Kevin's work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life's needs14:00 - Putting aside the idea of a “quick fix”19:45 - Kevin's personal experience with pain and how he uses it with patients28:44 - Kevin's book, “Pain: The Ultimate Mentor”The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Author of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jan 16, 2024 28:35


Monica Michelle is joined by author & personal trainer John K. Frazier.John lives with ankylosing spondylitis.In this episode, Monica and John discuss: John's work as a physical trainer and authorChronic pain comparisonsPersonal triumphTIMESTAMPS00:50 - John's business & diagnosis07:19 - Chronic pain olympics09:31 - Talking about & hiding a diagnosis15:09 - Personal triumph18:24 - Staying in the present23:29 - The superman complexThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
The Creative Process, Self Worth, and Dating with Disability: Laura Mustard

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jan 2, 2024 31:08


Monica Michelle is joined by musician Laura Mustard.Laura lives with VATER syndrome.In this episode, Monica and Laura discuss: Laura's inspiration for her upcoming musical EP.How Laura's illness impacted her recent relationship & self-image.Laura's creative process, new music, and social media pressure.TIMESTAMPS00:30 - Laura's new EP / Monica's recent COVID experience05:32 - Relationships with chronic illness11:20 - Image and self acceptance with disability15:32 - Laura's creative process and current projects20:05 - Pursuing creativity despite social media attentionThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Author of “The Girlfriend's Guide to Lupus”: Amanda Chay

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Dec 19, 2023 30:43


Monica Michelle is joined by author Amanda Chay.Amanda lives with Sjögren's and Lupus.In this episode, Monica and Amanda discuss: Amanda's book & diagnosisOutlooking on work & writingNavigating chronic illness with kids & familyTIMESTAMPS00:26 - Intro + The Girlfriend's Guide to Lupus02:17 - Amanda's diagnosis10:09 - Amanda's outlook on writing17:11 - Navigating chronic illness with kids & family23:29 - Labels and roles26:24 - Flare reads & closing remarksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Author of “Compass Points the Way”: Alexis Kline

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Dec 4, 2023 23:14


Monica Michelle is joined by author Alexis Kline.Alexis lives with Dysautonomia.In this episode, Monica and Alexis discuss: Being a sick teenagerHaving an isolated diagnosisProductivity workflowsTIMESTAMPS00:28 - Alexis's diagnosis & dog07:18 - Sick teenager road map10:00 - Alexis's book & workflow16:25 - Having an isolated diagnosis20:50 - Wildlife photography, purchases The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

The Quilter on Fire Podcast
QOF Episode 141 - MadeTV with Monica Michelle & Jo Packham

The Quilter on Fire Podcast

Play Episode Listen Later Nov 27, 2023 61:45


Monica Michelle has a passion for helping women share their brands with a wider audience. She is the CEO and co founder of Bloom TV, her first streaming TV network with floral focused content, and has now co founded with Joe, Made TV, that is specifically designed for artists and makers of all kinds. Jo Packham has been editor in chief for Where Women Create, Where Women Cook, Where Women Create Work, and What Women Create magazines. She has a list of accolades and awards for launching magazines and is known for creating actionable business tips and powerful stories. What these two women have come together to create in Made TV is a streaming network to gather creators and lift them up to share their creations, crafts, and work with a wider audience.MadeTV Website: https://madetvnetwork.com/Sign up for Brandy's Mini Mystery Holiday Workshop86 spots full! We have room for 100 students. Join us Dec. 6th at 5pm PST for a Complimentary Mystery Holiday Workshop on MadeTV! It's a fun little project! Get ready for a festive adventure with the Quilter on Fire (a.k.a Brandy Maslowski) in this live holiday workshop! Join Brandy for a super fun mini mystery workshop where you'll create a handy little gift that you can replicate for everyone on your Christmas list. Go to this link and scroll down to Dec. 6th. You'll find her!  https://madetvnetwork.com/event-calendar/TODAY'S SHOW ADVERTISERS:www.thequilting.ca  (use the code FIRE20 at checkout)Angels Sewing and Quilting (20% off fabric, notions, and accessories with the code quilteronfire)Support the show by buying Brandy a virtual coffee. Thank you for listening to the Quilter on Fire Podcast.Support the showThank you for listening to the Quilter on Fire Podcast.

christmas tv ceo fire quilting fire podcast quilter monica michelle jo packham makersgonnamake
Invisible Not Broken A Chronic Illness Podcast
Author of “From the Sidelines to the Finish Line”: Emily Falcon

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Nov 20, 2023 36:47


Monica Michelle is joined by author Emily Falcon.Emily lives with ALCAPA.In this episode, Monica and Emily discuss: Growing up sickPost-surgery supportHaving a public bodySelf-motivation and adventuringTIMESTAMPS00:28 - Being a sick kid & Emily's book title07:28 - Mortality10:16 - Portrayal of disability in media12:21 - Post-surgery support19:23 - Having a public body23:43 - Self-motivation29:46 - Emily's tips for adventuresThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
A 26-Year Search for the Right Diagnosis: Micaela Hoo

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Nov 7, 2023 35:19


Monica Michelle is joined by writer and entrepreneur Micaela Hoo.Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease.In this episode, Monica and Micaela discuss: Micaela's diagnosis storyHealthcare insuranceTIMESTAMPS00:24 - The start of Micaela's diagnosis journey14:42 - Gastroparesis & Micaela's research16:52 - Healthcare insurance, wait times, and bad docs21:52 - Micaela's research pays off25:52 - Medical closure29:33 - Micaela's businessesThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Patience, Productivity, and the “Push Through Pain” Mindset: Rita White

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Oct 25, 2023 28:46


Monica Michelle is joined by physical therapist Rita White.Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS.In this episode, Monica and Rita discuss: Rita's work as a physical therapistToxic productivity mentalityHappiness from self-understanding and patienceTIMESTAMPS00:38 - Rita's diagnosis and job04:58 - “pushing through the pain”14:10 - handling bad days & Rita's business19:28 - productivity and patience26:16 - favorite purchases under $100 & closing remarksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Navigating Work, Relationships, and Parenting with Epilepsy: Sara Staggs

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Oct 2, 2023 32:09


Monica Michelle is joined by author Sara Staggs.Sara lives with epilepsy.In this episode, Monica and Sara discuss: Being a full-time creative with a disabilityPregnancy & parentingDisability disclosureChronic illness in mediaTIMESTAMPS00:30 - Sara's writing process06:03 - Sara's diagnosis & college09:44 - Pregnancy & parenting13:37 - Disability disclosure in dating and parenting19:17 - Characters with chronic illness24:36 - Seizure first aid and life with epilepsy27:37 - Favorite purchases under $100The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com#epilepsy #epilepsyawareness #author #UncontrollableBook #SaraStaggs Hosted on Acast. See acast.com/privacy for more information.

2 Fat Guys Talking Flowers
Ep. 84 - "101 Show Pitches" with Monica Michelle, CEO and Co-Founder of BloomTV

2 Fat Guys Talking Flowers

Play Episode Listen Later Sep 29, 2023 86:29


In this week's special episode of #2FatGuysTalkingFlowers the Fern, Mike & the Fatty Gang sit down with Monica Michelle, CEO and Co-Founder of BloomTV. We hear all about Monica's past and path to owner of a media company, how she moved to a remote island to build the company, plans for the future, and more! Throughout the episode, we pitch Monica a bunch of new show ideas (hence the episode title).  Listen in and enjoy!BloomTV is a streaming TV network for all things floral. From workshops and pilot shows submitted by creators, to BloomTV-produced TV shows and professional workshop series, BloomTV has something for everyone. Whether you are incorporating flowers into your garden, your home, art, DIYs, or recipes, this lifestyle channel will show you that there are endless ways to incorporate flowers into your every day, and experience life in full bloom.Learn more about Monica and Bloom TV at https://bloomtvnetwork.com/Submit your questions, comments and requests to be on the show by emailing 2FatGuys@jetfreshflowers.com

Invisible Not Broken A Chronic Illness Podcast
Talking TV, Reading, Happiness, and Parenting with Dione Bullard

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Sep 18, 2023 36:47


Monica Michelle is once again joined by musician, chef, and activist Dione Bullard.Dione lives with End Stage Renal Disease.In this episode, Monica and Dione discuss: Favorite TV showsFavorite booksMoments of delightParentingTIMESTAMPS02:20 - Platonic11:42 - Somewhere Boy14:09 - More favorite shows21:38 - Favorite books26:17 - Appreciating moments of delight30:42 - Parenting through guided experienceSeries mentioned in this episodeAvailable on Apple TV+PlatonicSiloFoundationDickinsonAvailable on HuluSomewhere BoyThe Righteous GemstonesBewitchedAvailable on NetflixBridgertonGlamorousDAHMEROtherI Am a Virgo - Available on Prime VideoOur Flag Means Death - Available on (HBO) MaxThe Life and Times of Total Made GraceThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Adulting on Disability Income, Reflecting on Privilege and Prejudice: Cosmo

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Sep 4, 2023 38:12


Monica Michelle is joined by activist Cosmo C.Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia.In this episode, Monica and Cosmo discuss: PetsLARPingDisability income and surviving on itPrivilege and PrejudiceTIMESTAMPS00:33 - Cats and LARPing12:05 - Adulting on disability income22:01 - Privilege and prejudice31:19 - Deadlines, speech, and steroidsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

PaintTalks's podcast
Ep 143 MadeTV Network President Jo Packham

PaintTalks's podcast

Play Episode Listen Later Aug 24, 2023 48:20


Dionne talks with Jo Packham, a successful entrepreneur with her own publishing companies: WOMEN CREATE, WWC Press, Chapelle Ltd. and The Vanessa-Ann Collection. Jo has been a leading innovator in the handmade publishing market for more than 44 years. Beginning in 2023 and working with Monica Michelle of BloomTV, Jo left the world of publishing and began a new career in online video and live-streaming TV with the introduction of MadeTV.   https://madetvnetwork.com/

tv network monica michelle jo packham
Invisible Not Broken A Chronic Illness Podcast
Resilience & Self-Advocacy in Health, Music, and Culinary Arts: Dione Bullard

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Aug 22, 2023 41:42


Monica Michelle is joined by musician, chef, and activist Dione Bullard.Dione lives with End Stage Renal Disease.In this episode, Monica and Dione discuss: End Stage Renal DiseaseSelf Advocacy as a PatientDion's Music & CookingTIMESTAMPS06:17 - Dion's diagnosis14:44 - Music career & food21:42 - Self advocacy26:05 - Disparities in care of dialysis centers31:27 - How to speak with healthcare professionals35:22 - Distilling down our purpose in life37:11 - Favorite apps and culinary toolsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Chronic Pain, Opioid Hysteria, and Tech Tools for Advocacy: Kim Luke

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Aug 7, 2023 41:50


Monica Michelle is joined by activist Kim Luke.Kim lives with multilevel spondylosis, POTS, and fibromyalgia.In this episode, Monica and Kim discuss: Kim's storyPain clinic negligenceDisability tech & advocacyTIMESTAMPS00:51 - How Kim started10:54 - Kim's work16:03 - Pain clinic negligence19:33 - Healthcare in politics27:08 - Recommendations for teaching and advocacy31:47 - Disability Tech Business Idea36:04 - The flat effect40:12 - Pillows!The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Fighting for Disability in Law, in the Entertainment Industry, and in a Pandemic Society: Julia Irzyk

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jul 17, 2023 35:32


Monica Michelle is joined by lawyer, author, comedian, and activist Julia Irzyk.Julia lives with Lupus, Osteoarthritis, Degenerative Disk Disease, and Fibromyalgia.In this episode, Monica and Julia discuss: The state of COVID-19 in 2023Julia's new book, "Disabilities and the Law, 4th Edition"The entertainment industryAccess to pain medicationTIMESTAMPS00:56 - COVID-1909:10 - Masks in healthcare environments16:31 - Wheelchairs, flipping them, and HIPPA18:21 - Julia's new book23:03 - COVID-19 in the entertainment industry24:57 - Access to pain medicine33:26 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Charcot Marie Tooth Disease, Scoliosis, and Accessible Tech: Lisa Weiner

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jul 3, 2023 33:35


Monica Michelle is joined by activist Lisa Weiner.Lisa lives with Charcot Marie Tooth Disease and Scoliosis.In this episode, Monica and Lisa discuss: Growing up with CMT and ScoliosisDealing with bracesLiving and moving around San Francisco with a chronic illnessFinding community resourcesDiscovering simple tools that can help with daily activitiesTIMESTAMPS0:37 - What is Charcot Marie Tooth Disease?4:42 - Lisa's experience growing up with CMT19:07 - Braces are no fun24:47 - Center for Independence of Individuals with Disabilities20:30 - CMT Association Awareness Month31:55 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
EDS Author of Floppy - Tales of a Genetic Freak of Nature at the End of the World: Alyssa Graybeal

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jun 20, 2023 40:28


Monica Michelle is joined by award-winning author Alyssa Graybeal.Alyssa lives with Ehlers-Danlos Syndrome.In this episode, Monica and Alyssa discuss: Alyssa's new bookMonica and Alyssa discuss being a sick kid with creativityPacing your work in a hustle-driven cultureEmergency rooms & technologyThe benefits of talking about your storyTIMESTAMPS1:10 - Floppy – Tales of a Genetic Freak of Nature at the End of the World4:40 - Alyssa talks about being a creative sick kid8:21 - Pacing, hustle culture, and self-gaslighting14:25 - Building the confidence to come back home to your body16:55 - Finding your career20:02 - Alyssa's art space22:23 - Emergency rooms26:22 - Technology32:43 - The benefits of talking about your story36:55 - Alyssa's cats40:25 - Favorite booksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Disabled Dungeons and Dragons NPC Cards & Miniatures: Dale Critchley

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later May 15, 2023 40:57


Monica Michelle is joined by Dale Critchley. They discuss his revolutionary Kickstarter campaign in making disabled D&D NPC Cards and Miniatures.Dale is hard of hearing and has ADHD.Limitless Champions Kickstarter CampaignTIMESTAMPS1:35 - Dale's Story Behind the Project11:40 - Developing the Various Types of Miniatures14:15- Representing Your Own Experience15:55 - The Importance of Representation17:26- Understanding Someone's World of Disability22:18 - Exposure and Lack Thereof25:50 - Connecting with People While Developing the Project29:52 - What's Bad about Pity36:00 - The Disabled/Villan Trope39:00 - Final ThoughtsThe full transcript is located on the episode page at invisiblenotbroken.com. Happy listening! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Death with Dignity, the Right to Die: Kathryn Trueblood

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later May 1, 2023 42:13


Monica Michelle is joined by Kathryn Trueblood. Kathryn lives with Crohn's disease and Graves disease. In this episode, Monica and Kathryn discuss: John Abraham's when we decide how someone else should die we are playing godCompassion and ChoicesCovid end of life and choicesTIMESTAMPS1:11 - Kathryn and Caretaking 4:55 - Neurological Disease and Vsed6:22- Dealing with Differing Viewpoints9:34 - Nursing Home Care11:54- Emotional Support17:28 - Making Your Own Choice21:50 - Catholic-owned Hospitals29:24 - Resources for Grief41:00 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.comThank you for listening. Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Why Robots Are Our Friends and Navigating the Work World with Visual Impairments, Panhypopituitarism, and Optic Nerve Hypoplasia: Sunshine Ammerman

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Apr 17, 2023 39:57


Monica Michelle is joined by artist and activist, Sunshine Ammerman. Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum".In this episode, Monica and Sunny discuss: National Organization for Rare Disorders(Un)Well Netflix DocuseriesWorking a Physical Job with a Chronic IllnessApplying for DisabilityCreating ArtHow to Utilize Robots and GadgetsThe Wellness IndustryTIMESTAMPS0:46 - Working with NORD - the National Organization for Rare Disorders 3:28 - Sunny's Story and (very) rare disease8:45- Being an Artist with a Chronic Illness11:34 - Winning a Disability Case14:20- Keeping a Calendar + Utilizing Robots30:48 - Being “Inspiring”38:07 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
M.S., Mental Health, the Fitness Industry: Marnie Bothmer

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Apr 3, 2023 35:39


Monica Michelle is joined by fitness coach, Marnie Bothmer. Marnie lives with multiple sclerosis (MS).Marnie's linksMarie's WebsiteMarnie's InstagramIn this episode, Monica and Marnie discuss:Being a Fitness Coach with a Chronic IllnessMarnie's Diagnosis StoryMedical BillsTrusting your own JudgementADHDGrowing Up ReligiousTIMESTAMPS2:10 - Marnie's Story 6:15 - Being a Fitness Coach with M.S.8:37- Living Inauthentically9:54 - Diagnosis Shock15:34- Healthcare and Finances20:08 - Navigating the Traumatic Medical World26:49 - Navigating the Pressure of Faith and Religion31:07 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Ethical Eating and Motherhood While Managing Chronic Pain: Allison Samon

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Mar 20, 2023 36:09


Monica Michelle is joined by health coach and nutritionist, Allison Samon. Allison lives with unexplained chronic knee, back, and butt pain.Allison's linksInstagramFacebookAllison's WebsiteIn this episode, Monica and Sarah discuss:Pregnancy and MotherhoodEthical Eating + SustainabilitySuburban FarmingUniversal DesignTIMESTAMPS1:02 - Allison's Story 4:13 - Pregnancy + Motherhood15:10- Societal Expectations17:35 - Ethical Eating + CPG Brands21:02- Suburban Farms24:39 - Universal Design28:23 - Sustainability + Documentaries34:36 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Living your Authentic Self with Chronic Illness: Michelle Irving

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Feb 7, 2023 39:07


Monica Michelle is joined by Michelle Irving, a mentor for women around the world teaching them how to create a life filled with love, meaningful work and deep personal power.Michelle lives with:Autoimmune Hepatitis (AIH)Migraine Associated Vertigo (MAV)In this episode, Michelle and Monica discuss:how to ask for help and supportbecoming and living your authentic self and how to respond to others as your authentic selfdating with a chronic illnessthe parallels between chronic illness and Persephone, of Queen of the UnderworldTimestamps01:02 - Michelle's Story7:52 - Asking for Help11:00- Becoming Vulnerable and Authentic16:10 - Responding to Advice from Others23:00- Queen of the Underworld27:20 - Building the Skills and Foundation to Live Your Truth30:15 - Dealing with the Death of Self33:30 - Dating with a Chronic Illness36:57 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Raw Advocacy for Racial and Disabled Disparities: Tinu Abayomi-Paul

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jan 23, 2023 50:49


Monica Michelle is joined by disability activist and founder of Everywhere Accessible, Tinu Abayomi-Paul, creator of the popular hashtag #EverywhereAccessible. She is a survivor of Cancer and Chronic Pain, and she is a black woman. *This episode was recorded back in 2020 but is still very topical today. In this episode, Monica and Tinu discuss:Affirmative Action: The Guidelines address what appears to be a conflict between the statutory prohibition against considering race, sex, and national origin in making employment decisions, and the need, often through affirmative action, to eliminate discrimination and to correct the effects of prior discrimination. First Nation Missing Girls & Laws / Father of GynecologyAdviceBe clear, ask with an idea in mindHow to use and share your privilege to leverage helpHow do we give people the rodCompany ActivismColor BlindnessHow to amplify inclusion ridersWhat we can do to push the Black Voice forward: Create a day on the 13th to support Black artists, makers, and storytellers. On the 13th, companies should take the time to listen to their workers about what is needed within their companies.Use Your Local LibraryGetting Medical & Mental Help while BlackHow Tech Workers can helpA Day for Black money to Black artistsDisability Access and Political ActivismThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Navigating the Medical World as a Woman Living with a Mysterious Illness: Sarah Ramey

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jan 9, 2023 49:08


Monica Michelle is joined by author of The Lady's Handbook For Her Mysterious Illness, Sarah Ramey.Sarah Ramey lives with:Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)Complex regional pain syndrome (CRPS) Postural orthostatic tachycardia syndrome (POTS)VulvodyniaMast cell activation syndrome (MCAS) *This episode was recorded back in 2020 but is very much still topical today. In this episode, Sarah Ramey and Monica discuss: being denied painkillersnon-traditional medicine and being forced to embody the female ‘warrior' archetypethe lack of empathy in the medical worldnavigating specific illnesses within a world of cancer and other leading illnessesbreaking the gender norms, emotional intelligence, and moreTIMESTAMPS01:53 - Sarah's Story8:17 - Being Denied Painkillers12:00- Forced into Becoming a Wellness “Warrior” with Non-Traditional Medicine17:00 - Feeling Bad for Your Symptoms19:00- Empathy in the Medical World23:13 - “WOMIS” - A Woman with a Mysterious Illness25:31 - Chronic Fatigue Syndrome within a World of Other Issues29:01 - Working From Home33:49 - David Bowie's Labyrinth and the Parallels 38:40 - Breaking the Gender Normative 48:06 - Final ThoughtsShow notes and the full transcript are located on the episode page. Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

Invisible Not Broken A Chronic Illness Podcast
Sex Self Esteem and Body Awareness

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Dec 19, 2022 38:35


Monica Michelle is joined by Dr. Phillips, award-winning psychotherapist and sex therapist. Dr. Phillips offers a safe, empathetic, and warm environment to help clients achieve their goals. Dr. Phillips has experience in treating LGBTQIA populations, depression, sexual challenges, anxiety disorders, trauma, bipolar disorder, substance use disorders, chronic pain, chronic illness, disabilities, and disease. As a dedicated psychotherapist, certified substance abuse counselor, and certified sex and couple's therapist, Dr. Phillips uses holistic approaches by treating the whole person and not just the symptoms. Clients who are in non-monogamous, swingers, polyamorous, and/or kink relationships are welcomed.This episode was recorded back in 2020 but is very much still topical today. In this episode, Dr. Phillips and Monica discuss: BDSM & coping with paindefining your sexualitygrief and chronic illnessredefining your pleasure zonesself-fulfillment and masturbationthe importance of therapycheck-ins with partners, and more.Timestamps, show notes, and the full transcript are located on the episode page. Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.

PaintTalks's podcast
Ep 108 CEO Monica Michelle with Bloom TV Network

PaintTalks's podcast

Play Episode Listen Later Nov 24, 2022 56:59


Our Paint Talks Podcast guest today is CEO and Founder of BloomTV, a network dedicated to all things floral, Monica Michelle. She has a background in digital marketing and entrepreneurship and is a huge advocate for nature and all its creations. Through her latest endeavor, BloomTV, she is on a mission to help connect people to each other, and to the planet through innovative ideas and initiatives that combine technology with education. About BloomTV: BloomTV is your network for all things floral. Enjoy an immersive video library created by experts from across the globe as they demonstrate the various ways flowers can be used. Whether you're incorporating flowers into your garden, home, art, DIYs, or recipes, this lifestyle channel will show you that there are endless ways to incorporate flowers into your everyday life and experience life in full bloom. Starting Friday, November 18, 2022, BloomTV is bringing back Lifetime Memberships at a special holiday offer - $125 for a single membership, or 2 memberships to gift at $199. Link - https://bloomtvnetwork.com/lifetime/  Website: https://bloomtvnetwork.com/ Facebook: https://www.facebook.com/bloomtvnetwork Instagram: https://www.instagram.com/bloomtv_network/ Youtube: https://www.youtube.com/channel/UCidQDu4ERpjiPRHa7sli3Yg

Mornings with Mayesh
BloomTV & Monica Michelle

Mornings with Mayesh

Play Episode Listen Later Sep 22, 2022 44:27


Have you always wanted a Food Network but for flowers? Well, it's here and it's called BloomTV!! This week, founder and CEO of BloomTV, Monica Michelle, shared why she started this new streaming network, talked about the episode "A Flower's Journey", and what she is planning next! Show notes & video replay: https://blog.mayesh.com/mwm-bloomtv-monica-michelle 

ceo flower food network monica michelle
Grapevine & Palaver
Grapevine & Palaver Reviews: The Woman King.

Grapevine & Palaver

Play Episode Listen Later Sep 18, 2022 12:52


My lovely wife, Monica Michelle joins me to discuss the Viola Davis-lead and produced movie, The Woman King. In theaters now! #thewomanking #violadavis #moviereviews --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

EXTRAORDINARY Women
Episode 104: La rentrée for Grownups

EXTRAORDINARY Women

Play Episode Listen Later Sep 12, 2022 17:53


How are you preparing for your next season? Your next chapter? Is there something you want to build or create? In today's episode, Sharri Harmel shares steps we can take to turn our thoughts and ideas into action. She also discusses how things like vision boards and accountability partners help us to move forward on our goals.   Resources and Links: ·    Monica Michelle, BloomTV Network, https://bloomtvnetwork.com/·    Listen to Episode #91 Bloom TV Network with Monica Michelle, https://extraordinarywomenmagazine.com/blog/2022/06/13/bloom-tv-network-with-monica-michelle/ Extraordinary Women magazine is the “must-have” digital magazine for women looking for inspiration, tips, and support to create a fabulous business, or just the next chapter. In a nutshell, for women who are ready to make their dreams happen. Subscribe today! Extraordinary Women magazineConnect with Sharri Harmel Find this episode (and more) on your favorite podcast player at Extraordinary Women with Sharri Harmel 

From My Kitchen Table with Jo Packham
Ep. 26: Live Bold and Let Inspiration BLOOM with Monica Michelle

From My Kitchen Table with Jo Packham

Play Episode Listen Later Aug 9, 2022 64:03


In this episode of FROM MY KITCHEN TABLE, Monica Michelle, the founder and CEO of BloomTV, joins Jo Packham to discuss "living bold" and letting your big ideas bloom into reality. Monica has a background in digital marketing and entrepreneurship, and has a special passion for bringing beauty to the planet. She is on a mission to help build connections between people, and to the planet, through innovative ideas and initiatives that combine technology with education. Learn more about Monica Michelle and BloomTV: Website Instagram Facebook

ceo inspiration bloom live bold monica michelle jo packham
The Business & Pleasure of Flowers
We Asked: What's Inspiring You? (Live! from AIFD Symposium 2022)

The Business & Pleasure of Flowers

Play Episode Listen Later Jul 12, 2022 38:07


Episode 133: It was a great week at AIFD National Symposium! Vonda, Lori and Ellie were joined by Julie Poeltler to represent Flower Clique at the Partners Showcase, as well as to reconnect with their floral family. Vonda and Julie also presented on the Main Stage alongside fellow Teleflora Education Specialists for the emotional design program "PULSE". In this episode, Lori and Ellie took the opportunity to pull attendees of AIFD aside and ask them Lori's famous podcast question, "what's inspiring you right now?" We loved hearing everyone's responses and we think you will too. Our participants were: Helen Miller AIFD; Heather Towne AIFD; Jodi McShan AIFD; Jim DelPrince AIFD, Joyce Mason-Monheim AIFD; Julie Poeltler AIFD; Kelly Mace; Kevin Ylvisaker AIFD; Lottie McKinnon; Marisa Guerrero AIFD; Michelle Peters AIFD; Monica Michelle; Pat Scace AIFD; Renee Tucci AIFD; Talmage McLaurin AIFD; Theresa Colucci AIFD; Tim Farrell AIFD; Tom Bowling AIFD; and Trent Harshman Our Sponsors: Flower CliqueFlower Clique Prep Schools

EXTRAORDINARY Women
Episode #91: BloomTV Network with Monica Michelle

EXTRAORDINARY Women

Play Episode Listen Later Jun 12, 2022 53:21 Transcription Available


On today's episode, Sharri Harmel speaks with Monica Michelle, founder and CEO of BloomTV Network, a video network dedicated to highlighting the diverse world of flowers and guided by professionals across the globe. Viewers are immersed in a world of floral fantasia, through education, health, flower-focused recipes, crafts, design, gardening, and so much more.Monica shares not only her start up journey – which is loaded with ideas and tips that you can use if you are building a business – but also how to get involved in BloomTV Network if you are a creator with flowers!  If you simply want regular access to ideas, products and even the emotional healing benefits of flowers, be sure to investigate the beautiful work Monica is doing at BloomTV Network.Resources and links in this episode:BloomTV Network, https://bloomtvnetwork.com/Interested in being a creator on BloomTV Network? Email Monica Michelle at monica@bloomtvnetwork.comExtraordinary Women magazine is the “must-have” digital magazine for women looking for inspiration, tips, and support to create a fabulous business, or just the next chapter. In a nutshell, for women who are ready to make their dreams happen. Subscribe today! Extraordinary Women magazine Connect with Sharri Harmel Find this episode (and more) on your favorite podcast player at Extraordinary Women with Sharri Harmel

The Flower Podcast
BloomTV's Introduction by Monica Michelle

The Flower Podcast

Play Episode Listen Later Nov 29, 2021 45:19


This week we're excited to share our interview with Monica Michelle, one of the founders and CEO of BloomTV. It was great to learn about how her love of flowers started and how she came up with the idea for creating a streaming service all about flowers. Follow the link below to sign up for the beta program and learn more about all of the great flower content that will be releasing later this Spring. Sign up for BloomTV here! Learn more about Monica and all of our past guests on TheFlowerPodcast.com Subscribe to our YouTube Channel for access to all of our Zoom chats, tutorials, IG Lives, and video extras. Also Subscribe on your favorite podcast platform. We are available on Apple Podcasts, Spotify, Stitcher, Amazon Music, Gaana, and many more! Visit The Flower Podcast Blog! Sponsors of The Flower Podcast Garden Roses Direct Accent Decor The Gardeners Workshop ASCFG Florabundance, Inc

Art. Essential or Not.
Monica Michelle Fleming “Difficult Roads lead to Beautiful Destinations”

Art. Essential or Not.

Play Episode Listen Later Sep 27, 2021 26:58


Instagram: @monicandance Description: Choreographers Carnival. Club Jete. Universal Studios Hollywood CityWalk. Recipe Company. LAUSD Teacher. Raw Artist. Los Angeles Valley College Choreographer. Studio A Featured Choreographer. --- Support this podcast: https://podcasters.spotify.com/pod/show/liezel-marie-lorico/support

The Spoonie Struggle
Monica Michelle's Story With EDS, CRPS, MCAS, and POTS

The Spoonie Struggle

Play Episode Listen Later Jun 16, 2021 80:36


Episode 19: Monica Michelle's Story With EDS, CRPS, MCAS, and POTS In this episode, Monica Michelle discusses her chronic illness story with EDS, MCAS, POTS, Fibromyalgia, CRPS, and more. Monica and Jessica go on a lot of fun soap-box rants about the state of healthcare and disability. They discuss the use of mobility aids, and awesome tips and tricks to stay safe. We chat about the complexities of MCAS and trying to figure out our triggers. Jessica rants about how expensive chronic illness is and how much it affects ones finances. Monica discusses the combination of treatments that helps make her chronic pain slightly more manageable. To minimize sleeping dislocations, she keeps on leg on top of a pillow, and keeps herself still with a weighted blanket. She recommends an adjustable bed to assist with transfers to her wheelchair. Monica shared that it took 30 years to get formally diagnosed. She was always in pain and throwing up as a child. Doctors simply diagnosed her with mental health difficulties, and she was initially diagnosed with MS and lupus. She was able to get in with a private pay doctor who eventually properly diagnosed her. The two then  discuss the horrors or racial discrimination in the healthcare industry and the power differential between patient and doctor. They discuss weight discrimination and the horrible limitations to getting insurance with preexisting conditions.   To cope, Michelle uses her medications, uses virtual reality games and tours, a TENS unit, social support, distraction, bring kind to her, learning how to be a sick mom, and having “slug” days with her daughter.   Invisible Not Broken Explicitly Sick Podcast I Can't Believe That Happened Podcast Unacceptable Pain Scale Muldowney Protocol Whillchair Smartcane Zerogravity Bed Oculus YouTube VR Art Rage App Procreate App Ninja Hot/cold Mixer Untamed Skillshare H-Wave     Links: Website Facebook Instagram Email Twitter     Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Hosted by: Jessica Temple  Music by Antarcticbreeze Music Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment. Copyright 2021 Jessica Temple

Invisible Not Broken A Chronic Illness Podcast
Roundtable - Setbacks and Chronic Illness with Jason and Monica

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jun 2, 2021 48:25


Monica (Explicitly Sick), Jason (Discomfort Zone) Jason from Discomfort Zone and Monica Michelle from Explicitly Sick have an open chat about what it is like to have a setback on your chronic illness protocol. Monica Michelle who has Ehlers Danlos had a setback this week while using the Ehlers Danlos Protocol, The Muldowney Method. Jason had a set back with a knee injury. They discuss frustrations and tools to get back. Redefine what success is. How Elizabeth Gilbert's book Big Magic applies to chronic illness and disability. Why Smart Crutches are the best. Whether to financially invest in one's setback with money, time, or effort._____PLEASE SHARE

Explicitly Sick
Tinu and Monica Michelle Catch Up : Raising Teens in Pandemic, Live In care Homes A new Way, Self Worth, and Solving the World's Problems A Disability Chronic Illness Podcast

Explicitly Sick

Play Episode Listen Later May 19, 2021


New Episode: Tinu & Monica Catch up Talking trust and travel Raising teens in quarantine How to support friend's new businesses Live in care home day dreams Tinu solves world problems

Invisible Not Broken A Chronic Illness Podcast
Roundtable - Throwback to Ep 100! Managing from Mattress: Monica and Eva

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jan 9, 2021 58:57


THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle.In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experiences when one has a chronic illness. Links/suggestions mentioned:Monica's other podcast - "I Can't Believe That Happened" PodcastLibby: https://meet.libbyapp.com/ - "Did you know your local library has thousands of ebooks and audiobooks? You can borrow them, instantly, for free, using just the device in your hand."Scrivener: https://apps.apple.com/us/app/scrivener/id972387337 - "Scrivener is the go-to app for writers of all kinds, used every day by best-selling novelists, screenwriters, non-fiction writers, students, academics, lawyers, journalists, translators and more."Movies/TV showsHouseHow I Met Your MotherFriendsSex and the CityDiagnosis (documentary)PLEASE SHARE

Explicitly Sick
Interview With Max Feinstein : What Rhymes With Hemophilia? Tattoos, Music, and Chronic Illness

Explicitly Sick

Play Episode Listen Later Dec 2, 2020 109:20


Have you subscribed to Invisible Not Broken's Podcast Explicitly Sick with founder Monica Michelle? Head over to your favorite podcast site and hit subscribe to Explicitly Sick and share with friends and your online community. Max and I talked about our favorite topic: Creating With Chronic Illness The Vulnerability In Medicine Mischievousness And Explaining Disability Destroying World Views of Healthy People Humor and Disability Hemophilia on Tour Resentment and Rage Tattoos and Other Ways To Control The Body Song Writing and Storytelling Chronic Pain and Careers Covid and Music Touring

Explicitly Sick
Interview With Author of I'm Good Olivia Gaynor: Crohn's Disease, hEDS, CRPS, RA, and OCD in the Days of CoVid

Explicitly Sick

Play Episode Listen Later Nov 18, 2020 67:12


Interview with author and disability advocate Olivia Gaynord AboutHer Book I'm GoodFeeling Like you Are Doing Enough When you have Chronic IllnessMental Health and the writing processBook Writing ProcessCrowd Funding a BookChronic Illness and WritingToo Far and Never Enough The PT dance of EDSThe Great British Bake Off BakingHow to Use Mental Health IssuesIf you enjoy this episode please subscribe to Monica Michelle's newest podcast Explicitly Sick

Explicitly Sick
Sunny & Monica Michelle Virtual Reality & Disability, Martyr & Trickster Activism, & NORD

Explicitly Sick

Play Episode Listen Later Nov 4, 2020 86:26


Sunny and I talked about our favorite topic: *Tech and disability, specifically *Virtual Reality and chronic illness. *Oculus 2 *Inktober, NaNoWriMo, and creating during Covid *Lovecraft Country and some issues *Martyr vs. Trickster Political activism (think #proudboys gay takeover and the brilliant George Takei) *Game development and empathy *Concerts, Comic Con at home, and Burning Man access for the disabled with Virtual Reality *NORD *Wheelchair VR game Awake INN *Sexism in Virtual Reality

Explicitly Sick
Explicitly Sick: Monica and Tinu: Mental Health, Relationships, Raising Teens, Covid, and Favorite Shows

Explicitly Sick

Play Episode Listen Later Sep 16, 2020 45:00


Elizabeth Gilbert and Tim FerrisElizabeth Gilbert TED Talk on Mental Health and CovidWatchmen and Tulsa MassacreLovecraft Country and Jim Crow A few topics we Tinu and Monica Michelle covered:Black Hair Care and chronic illnessMonica's easily matted jewish haircare and dislocationsRolling blackouts. disability, and NigeriaBlack Live Matter MovementFirst Nations Racism and Socialized MedicineRace and Hollywood's Responsibility to Educate on History : Lovecraft Country and The WatchmenYOU DON'T HAVE TO EARN RESTDisability and parentingBedside MannerTinu's Info & LinksTinu Abayomi-Paul-Author, creatorof #EverywhereAccessible Founder of @EveryAcess, Activist, Survivor, cancer Chronic Pain, and black woman.HASHTAGS TO LOOK FOR PEOPLE TO FOLLOW#DISABLEDBLACKTALK#DISABLEDPEOPLEFORBLACKLIVESRESOURCES HISTORY OF THE POLICE OFFICERS LINKSHOW THE U.S. GOT ITS POLICE FORCENATIONAL LAW ENFORCEMENT MUSEUM: SLAVE PATROLS: AN EARLY FORM OF AMERICAN POLICINGPEOPLE TO FOLLOW@OSOPEPATRISSE @OPALAYO @ALICIAGARZA @KAILEESCALES @THEKINGCENTER @EVERYACCESS @UNITEDWEDREAM@4WheelWorkOutWEBSITEShatewatch.orgBOOKS TO READ: Born A CrimeCoretta Scott King Book Award Winners: books for children and young adults31 Children's books to support conversations on race, racism and resistanceBlack Feminist Thought by Patricia Hill CollinsEloquent Rage: A Black Feminist Discovers Her Superpower by Dr. Brittney CooperHeavy: An American Memoir by Kiese LaymonHow To Be An Antiracist by Dr. Ibram X. KendiI Know Why the Caged Bird Sings by Maya AngelouJust Mercy by Bryan StevensonMe and White Supremacy by Layla F. SaadRaising Our Hands by Jenna ArnoldRedefining Realness by Janet Mock Sister Outsider by Audre LordeSo You Want to Talk About Race by Ijeoma OluoThe Bluest Eye by Toni MorrisonThe Fire Next Time by James BaldwinThe New Jim Crow: Mass Incarceration in the Age of Colorblindness by Michelle AlexanderAFFIRMATIVE ACTION: The Guidelines address what appears to be a conflict between the statutory prohibition against considering race, sex, and national origin in making employment decisions, and the need, often through affirmative action, to eliminate discrimination and to correct the effects of prior discrimination. FIRST NATION MISSING GIRLS & LAWSFATHER OF GYNECOLOGYADVICE:BE CLEAR ASK WITH AN IDEAHOW TO 'USE AND SHAREMY PRIVILEGE TO LEVERAGE HELP'HOW DO WE GIVE PEOPLE THE RODCOMPANY 'ACTIVISM' - LATER, TREVOR NOAH NICKOLO DI ANCOLOR BLINDNESS: THE PROBLEMSHOW TO AMPLIFY: INCLUSION RIDERSWHAT CAN WE DO TO PUSH THE BLACK VOICE-CREATE A DAY THE 13 FOR SUPPORT OF BLACK ARTISTS, MAKERS, STORYTELLERS. ON THE 13 COMPANIES SHOULD TAKE THAT TIME TO LISTEN TO THEIR WORKERS ABOUT WHAT IS NEEDED N THEIR COMPANIES.USE YOUR LIBRARYLIST OF AUTHORS TO START WITHSUPPORT PROTESTS FROM BED:CONTACT LOCAL COMMUNITY ORGANIZERS SUPPLIES, PRESS AGENT, LEGAL HELP , HELP WITH ACCESS. NOTIFY PERSON , FOOD COORDINATE. HASHTAG HELP HOW CAN TECH WORKERS HELP?USE A DAY FOR BLACK MONEY TO BLACK ARTISTSDISABILITY ACCESS AND POLITICAL ACTIVISMSICK WHILE BLACK. GETTING MEDS.

This is Not What I Ordered: a podcast on full-hearted living with chronic illness + health challenges

Podcasting has brought so much to my life, both as someone who loves hearing others’ stories and as someone who wants to learn from the experiences of others. Hearing an array of experiences is what makes This is Not What I Ordered so powerful to me, and to listeners, as well.   Today’s episode touches a bit on how podcasting is a form of therapy — both for the hosts, the guests, and the listeners. It also combines conversations about podcasting, chronic illness, and life in quarantine with two past guests: Monica Michelle and Courtney Brame. This conversation is full of fun banter and deep, powerful conversations.   What I appreciate most about this conversation is that Monica and Courtney don’t shy away from sharing their own experiences during the pandemic, as well as prior to the pandemic. It’s so important to see how we all experience life through the lenses of our chronic conditions, as well as through our human lenses. I hope you find this conversation as refreshing and insightful as I did.

Invisible Not Broken A Chronic Illness Podcast
(INB Roundtable) Discussing Fears of the Future with Progressing Chronic Illness: Monica and Eva

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jul 19, 2020 67:03


Time for a INB Roundtable! Today I (Eva), "Miss Positivity" and glass-half-full-girl get vulnerable around my progressing illness. And who better to talk about it with than my slap-in-the-face fantastic partner, Monica Michelle

Discomfort Zone
Big News for Discomfort Zone

Discomfort Zone

Play Episode Listen Later Jul 6, 2020 1:12


Big News for Discomfort Zone - I'm joining Invisible Not Broken Podcast Network!PodcastsInvisible Not BrokenThe Humancare Podcast Discomfort ZoneSocial MediaFollow Invisible Not Broken on Facebook, Instagram, and TwitterFollow Wellacopia on Facebook, Instagram, and TwitterFollow Discomfort Zone on Facebook, Instagram, and TwitterHello everyone, Jason here. I’ll be releasing 4 new episodes shortly. In the meantime, I want to fill you in on some big news. I am thrilled to let you know that Discomfort Zone is joining the Invisible Not Broken Podcast Network, a podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. It’s a perfect match for Discomfort Zone. The network includes Invisible Not Broken with host Monica Michelle and HumanCare Podcast with host Eva Minkoff. I was a guest on Monica’s show recently. She and Eva are two of my favourite people. If you like my show, I’m sure you’ll love theirs. I’ve posted links to their shows and social media in the description below. This change should be seamless for existing subscribers. If you listen off of my website, www.discomfort.fm, I’m transitioning over to www.invisiblenotbroken.com. Thank you for listening and keep an eye on your feed for new episodes.

big news discomfort zone monica michelle invisible not broken
Discomfort Zone
Big News for Discomfort Zone!

Discomfort Zone

Play Episode Listen Later Jul 6, 2020 1:12


Big News for Discomfort Zone - I'm joining Invisible Not Broken Podcast Network!PodcastsInvisible Not BrokenThe Humancare PodcastDiscomfort ZoneSocial MediaFollow Invisible Not Broken on Facebook, Instagram, and TwitterFollow Wellacopia on Facebook, Instagram, and TwitterFollow Discomfort Zone on Facebook, Instagram, and TwitterHello everyone, Jason here. I’ll be releasing 4 new episodes shortly. In the meantime, I want to fill you in on some big news. I am thrilled to let you know that Discomfort Zone is joining the Invisible Not Broken Podcast Network, a podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. It’s a perfect match for Discomfort Zone. The network includes Invisible Not Broken with host Monica Michelle and HumanCare Podcast with host Eva Minkoff.I was a guest on Monica’s show recently. She and Eva are two of my favourite people. If you like my show, I’m sure you’ll love theirs. I’ve posted links to their shows and social media in the description below.This change should be seamless for existing subscribers. If you listen off of my website, www.discomfort.fm, I’m transitioning over to www.invisiblenotbroken.com. Thank you for listening and keep an eye on your feed for new episodes.

big news discomfort zone monica michelle invisible not broken
Discomfort Zone
Big News for Discomfort Zone!

Discomfort Zone

Play Episode Listen Later Jul 6, 2020 1:12


Big News for Discomfort Zone - I'm joining Invisible Not Broken Podcast Network!PodcastsInvisible Not BrokenThe Humancare PodcastDiscomfort ZoneSocial MediaFollow Invisible Not Broken on Facebook, Instagram, and TwitterFollow Wellacopia on Facebook, Instagram, and TwitterFollow Discomfort Zone on Facebook, Instagram, and TwitterHello everyone, Jason here. I’ll be releasing 4 new episodes shortly. In the meantime, I want to fill you in on some big news. I am thrilled to let you know that Discomfort Zone is joining the Invisible Not Broken Podcast Network, a podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. It’s a perfect match for Discomfort Zone. The network includes Invisible Not Broken with host Monica Michelle and HumanCare Podcast with host Eva Minkoff.I was a guest on Monica’s show recently. She and Eva are two of my favourite people. If you like my show, I’m sure you’ll love theirs. I’ve posted links to their shows and social media in the description below.This change should be seamless for existing subscribers. If you listen off of my website, www.discomfort.fm, I’m transitioning over to www.invisiblenotbroken.com. Thank you for listening and keep an eye on your feed for new episodes.

big news discomfort zone monica michelle invisible not broken
Invisible Not Broken A Chronic Illness Podcast
(Explicitly Sick) Author of The DISCOMFORT ZONE On IBS, Fibromyalgia, POTS, Meditation and Starting a Chronic Illness Podcast: Jason Herterich

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jun 10, 2020 82:22


Website/Blog, Twitter, & Instagram Handle DZonePodcast, DZonePodcastName *Jason HerterichDisorder InfoWhat is your disorder? *Fibromyalgia, postural orthostatic tachycardia syndrome (POTS), and irritable bowel syndrome (IBS)At what age did your disorder become a daily issue? *22Who were you before your illness became debilitating? *An outgoing, energetic, adventurous, driven fourth-year engineering physics student and a varsity triathleteWhat would you do if you were not dealing with your disorder and/or disability? *If I wasn't dealing with my disorder and/or disability, I could be doing any of the following: starting a family, focusing on my engineering career, competing in sports, traveling the world, volunteering with vulnerable members of our society.What would you like people to know about your daily life? *I 'live with' pain, I don't 'suffer from' pain. Despite the many challenges my illness presents, my life is very purposeful. There are times when I experience depression, but I'm generally a positive person.What would make living and moving in the world easier for you? *It would make my life easier if we could all end the stigma on invisible/chronic illness and mental health. I wish I could talk more openly about these topics without the fear of making everyone around me uncomfortable.Do you have any life hacks? *Active decision-making: Periodically throughout the day, I check in with myself to see how I'm feeling physically/emotionally and I make conscious choices about how to use my time/energy. I weigh the pros and cons of each potential decision and select one accordingly. Candlelight hour: An hour before bed, I turn off all artificial sources of light and only use candlelight. (Quick science note: artificial light is more blue-shifted in the light spectrum, which suppresses the production of melatonin. Fire, on the other hand, is more red-shifted, which supports the production of melatonin.) Weighted pen: In the past, I've experienced severe arm pain and have had difficulty using a pen or pencil. Solution: I created a weighted pen by wrapping electrical tape around 4 nails. That way, I can let gravity do more of the work and I don't have to press down as hard.What kind of support do you get from family or friends? *I live with my parents. They help me with cooking, cleaning, and other household chores. I have leaned on my sister and friends for emotional support when needed, which isn't very often anymore.Have you ever had someone, or a medical professional, not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *In 2014, the anesthesiologist told me that he deals with patients who have much worse pain than me and that I should simply return to work. For the first 3.5 years of my illness, my parents and grandparents were either skeptical or in denial of the existence of my symptoms.How has your chronic illness affected your relationships? *Before becoming ill, I loved group gatherings with friends and meeting new people. Since developing my illness, I can't handle large groups of people. I mostly get together with friends 1-on-1 and do low key things like go for a walk, drink tea, sit around and talk, or play board games.Is there anything you are afraid to tell people in your life? *Not really. I've talked openly with my loved ones and on my podcast about how I used to experience suicidal ideation. I don't shy away from difficult conversations if I think that doing so could be fruitful.What is your best coping mechanism? *Walking in natureWhat are you the most concerned about and the most hopeful for in the future? *I'm most concerned about whether or not I'll be able to return to a full-time career, live an independent life, and have children (if I decide that's what I'd like to do). I'm hopeful that, over time, I'll find a deeper sense of purpose in my work as I become more involved with advocacy efforts for persons with chronic illness and disabilities.Is there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.If you'd like, we can chat about my dad dealing with a potential case of COVID-19 after returning from Cuba in early March. (Note: he actually tested negative, but the head of Neurology at a major Toronto Hospital suspects that he was a false-negative. He nearly required hospitalization at his worst) Promoting my podcast, Discomfort Zone - a show on what it's like to live with an invisible and chronic illness. I explore how I developed chronic pain, the daily realities I currently face, and the uncertain road that lies ahead. This podcast stars myself, family, friends, and other members of the chronic illness community. www.discomfort.fm Social media handle: @DZonePodcast I'm also an advisory member for D-Next Accessible Media Lab, an emerging lab that is led and run by a creative team of new media artists, filmmakers, journalists, and advisory members with disabilities. We are dedicated to producing authentic underrepresented portrayals of people with disabilities in the mainstream and social media, told through a nothing for us without us lens. https://www.cilt.ca/d-net-project/What makes you energized or enthusiastic? What drains you?I am energized by listening to peoples' stories, telling my own, and connecting with the chronic illness and disability community. I'm drained by conversations involving politics, hate-filled speech, ableism, racism, and sexism. I dislike conversations that divide us as a society. I also don't watch any cable news.Any favorite books or shows?I mainly consume podcasts! Radiolab, Snap Judgment, Heavyweight, White Coat Black Art, and last, but not least, Invisible Not Broken :)What is the hardest and/or best lesson your condition has taught you?That regardless of the situation I find myself in, my energy is best spent by focusing on "How do I make the most of things?" NOT "What could have gone differently?" Also, it's OK to accept help.What is the best purchase under $100 that helped your lifeEarbuds! I listen to podcasts for hours every day, I definitely got my money's worthiMovie, CoVid rap, chronic illness, chronic illness and travel, chronic illness and CoVid, Chronic illness and life choices, chronic illness and travel,ME, Fibromyalgia, chronic illness podacst, DiscomfortZone, Jason Herterich, Monica Michelle, Invisible Not Broken, Explicitly Sick See acast.com/privacy for privacy and opt-out information.

Explicitly Sick
(Part 2) ME, POTS, Mayo Clinic, and What Persephone Has To Do With It: Sarah Ramey: A Chronic Illness Podcast With Monica Michelle

Explicitly Sick

Play Episode Listen Later May 27, 2020


Explicitly Sick
(Part 1) Sarah Ramey On The Medical Journey, ME, POTS, Mayo Clinic, and What Persephone Has To Do With It: A Chronic Illness Podcast With Monica Michelle

Explicitly Sick

Play Episode Listen Later May 14, 2020


Part 1 Interview With Memoir writer Sarah Ramey about her book launch: The Lady's Handbook for Her Mysterious Illness. A discussion with Invisible Not Broken's Monica Michelle about chronic fatigue, POTS, a trip to the MAYO clinic, and a dash of Greek mythology Persephone.

Invisible Not Broken A Chronic Illness Podcast
(Explicitly Sick) How to Feed Yourself (Spoonie Edition): Occupational Therapist Kimberlea Lemon

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Mar 15, 2020 38:16


Food shopping and meal preparation for spoonies with occupational therapist Kimberlea Lemon and the chronic illness and disability podcast Invisible Not Broken with podcaster Monica Michelle. How to feed yourself, some parenting with chronic illness tips, and an idea for the food box service Hello Fresh. Ehlers Danlos, Fibromyalgia, POTS, ME, and Chronic Fatigue. See acast.com/privacy for privacy and opt-out information.

Invisible Not Broken A Chronic Illness Podcast
(100th Episode!) Managing from Mattress: Tips for Enjoying Chronic Illness Life When Bed-Bound

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Sep 18, 2019 57:58


Eva Minkoff and Monica Michelle interview EACH OTHER on this very special 100th episode of the Invisible Not Broken podcast. Links/suggestions mentioned:Monica's other podcast - "I Can't Believe That Happened" PodcastLibby: https://meet.libbyapp.com/ - "Did you know your local library has thousands of ebooks and audiobooks? You can borrow them, instantly, for free, using just the device in your hand."Scrivener: https://apps.apple.com/us/app/scrivener/id972387337 - "Scrivener is the go-to app for writers of all kinds, used every day by best-selling novelists, screenwriters, non-fiction writers, students, academics, lawyers, journalists, translators and more."Movies/TV showsHouseHow I Met Your MotherFriendsSex and the CityDiagnosis (documentary) See acast.com/privacy for privacy and opt-out information.

This is Not What I Ordered: a podcast on full-hearted living with chronic illness + health challenges

In this episode, I interview Monica Michelle, a children’s book writer, illustrator, and mother of two living with fibromyalgia and Ehlers-Danlos syndrome. A passionate artist, photographer, and author, Monica is truly a woman of many talents. She now hosts the Invisible Not Broken podcast, as well as I Can’t Believe That Happened -- a history podcast for kids and curious grownups.Monica has lived with chronic illness from a young age but she’s never let that dampen her humorous and creative spirit. Embracing the impermanence of life and using her failures as lessons, she’s mastered the art of picking up the pieces and moving on without losing her core role of storyteller. Monica discusses how her lifelong struggle with chronic illness and the realization that there are no guarantees have led her to fearlessly chase her dreams. She explores how her journey has given her remarkable resilience and an unshakable faith in herself. During our colorful conversation, Monica opens up on using humor as a survival mechanism, how she focuses on her true passions to find her core, and she offers creative parenting tips on how she’s raising her kids to be more empathetic.

dreams embracing evolving ehlers danlos monica michelle invisible not broken
Invisible Not Broken A Chronic Illness Podcast
Interview with Author and TED Speaker Emily Ann Peterson About Essential Tremor, Hypothyroidism & Her Book Bare Naked Bravery

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Nov 13, 2018 61:55


Emily’s Website * Emily’s Podcast * Emily’s Twitter * Emily’s Instagram * Emily’s YouTube * Emily’s Pinterest * Emily’s SoundCloud *Emily’s Facebooksinger-songwriter & creative consultantbestselling author of Bare Naked Braveryfounder of The School of Bravery a learning lab for creative visionariesRecomendationsHolli MargelSchool of BraveryZapierTrelloFabulous IOS APPEmily Ann Peterson, the founder of The School of Bravery, a learning lab for creative visionaries, talks to Monica Michelle on the chronic illness podcast Invisible Not Broken about Essential Hand Tremor , Hypothyroidism, her career as a cellist and her new life as an author of Bare Naked Bravery, podcast host, and coach.What is your disorder? *Essential Tremor & Hypothyroidism, seasonal depression sometimes too.At what age did your disorder become a daily issue? *24Who were you before your illness became debilitating? *More energeticWhat would you do if you were not dealing with your invisible illness? *Same thing! Just more of it!What would you like people to know about your daily life? *When I cancel an appointment, it's necessary.What would make living and moving in the world easier for you? *Slower pace from everyone else.Do you have any life hacks? *Yes! Naps! and automating EVERYTHING! and contingency plans!What kind of support do you get from family or friends? *I've got a couple great girlfriends ready for a text convo anytime!How has your invisible illness affected your relationships? *I can't be as outgoing on my "bad days."Does the fact that your disease is invisible change how healthcare professionals treat you? *Sort of? I'm overweight, so I get those lose-your-weight talks all the time, but the weight is related to living with a low thyroid for so many years. Ugh, so frustrating.What is your best coping mechanism? *Naps. Seriously.What are you the most concerned about and the hopeful for in the future? *Concerned that the rest of the world doesn't know how good life can be at a slower pace. Concerned that those with invisible illnesses discount their potential to achieve the same things others without illness achieve.What is your favorite swear word?FUCK! ;-)Is there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.I founded the School of Bravery, where I teach my clients and students how to make their bravery as friction-free as possible. It's my mission to help people know that bravery CAN be easy if we foster an environment for it!What is the hardest and/or best lesson your condition has taught you?I am not what I achieve. I am not what I do. I am.What is the best purchase under $100 that helped your lifeSoftware. Seriously. The right software can automate the most difficult things in life. See acast.com/privacy for privacy and opt-out information.

Invisible Not Broken A Chronic Illness Podcast
FEAR AND CHRONIC ILLNESS HALLOWEEN : MONICA MICHELLE AND KYROS STARR TALK ALL ABOUT THE THINGS THAT SCARE THEM

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Oct 30, 2018 64:11


FEAR AND CHRONIC ILLNESS HALLOWEEN EDITION MONICA MICHELLE AND KYROS STARR TALK ALL ABOUT THE THINGS THAT SCARE THEM. Monica Michelle has been having a tough time with Ehlers Danlos Syndrome and a new diagnosis of MCAS and Kyros is have joint problems and some new troubling symptoms. Disability has never been so spooky.In all seriousness warning if you have problems hearing about depression and things that go along with depression.Panel Discussion: FEAR Life before Invisible IllnessThings you fearLosing your job - because you worry about paying your billsGrowing oldGetting in a car accidentThe First Fears - Something’s Wrong: Invisible Illness arrivesThings you fearLosing your job - because you’ll lose your health insuranceChanging jobs - will my new insurance consider my illness a pre-existing condition?What’s wrong with me? - pain or problem intermittent or minor so you’re unsure what’s wrong.The internet is a HORRIBLE place to look for what’s wrong with you. Self-diagnosis can lead you down many frightening paths!!Losing friends because you can’t participate in social eventsWhat if I never get better?Loss of self-controlDependencyWorry about worst-case scenariosDoing things that could lead to more pain (going out with friends, etc)Missing out - all the things you want to do, but can’t anymoreDoctors Don’t Have Any AnswersThings you fearMore fruitless testsSpending more money for said fruitless tests with no guarantee that you’ll actually learn anythingLosing your home because of mounting medical billsUncertaintyAm I the only one?Afraid the doctor won’t believe me or will dismiss my illnessWill this medication work / Will it continue to workResearch, Research, ResearchThings you fearDesperation leads you to researching on the internet. You’ll convince yourself that you are dying in 10 different ways before lunch!Join chat rooms, facebook groups, reddit forums all so you can talk to people in the hopes of finding out something that can lead you to a diagnosisI Have A Diagnosis! Finally I know what’s wrong, now what?Things you fearWhat does this look like going forward?What are my new limitations?Is there a cure or just “bandaids”?Can I get something for this pain? - “The opioid epidemic”What are the side effects of the medicine I now have to take?What Do You Mean I Have Something Else Now? - Most people with an invisible illness have multiple problems, not just the one.Things you fearWhat is this new thing?Do I tell my doctor?Having to go through the whole process of figuring out what’s wrong with me now.Is this too much for one person to bear? Thoughts of suicide.Losing relationships because they can’t bear the ever increasing hardship of taking care of youLoneliness and isolationFear of death Article Linkshttps://themighty.com/2017/09/chronic-illness-and-fear/https://themighty.com/2017/07/chronic-illness-fears/https://themighty.com/2017/05/emotional-side-effects-sick/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1070773/https://brainlessblogger.net/2017/12/10/6-fears-we-can-have-with-chronic-illness/http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.htmlhttps://themighty.com/2016/06/honest-facebook-statuses-about-chronic-illness/ *******https://themighty.com/2016/12/always-worrying-about-new-diagnoses-chronic-illness/http://chronicallychloe.com/dear-diary-chronic-illness-and-fear/https://mcreyscope.com/2014/09/12/the-stages-of-chronic-illness/ - The graphic in this article is especially goodhttps://www.psychologytoday.com/us/blog/turning-straw-gold/201301/5-tough-choices-you-face-when-chronically-ill-or-in-painhttps://welldoing.org/article/emotional-psychological-fallout-chronic-illnesshttps://www.psychologytoday.com/us/blog/turning-straw-gold/201601/day-in-the-life-chronic-illness See acast.com/privacy for privacy and opt-out information.

The Creative Life Show
Being unstoppable, with Monica Michelle

The Creative Life Show

Play Episode Listen Later Aug 20, 2018 31:48


Monica Michelle had a thriving, six-figure photography business which she loved. She adored the families, the kids, the women who she did boudoir photos for, as well as the events and the travel she was in demand for.She'd had to give on a career as a dancer, but that was ok. But now, her body started going wrong. Gradually she had to start reducing what she did, as every part of her became weaker and more painful.Then, the diagnosis. And a period of deep introspection and wondering what on earth to do with the energy and creativity that had always driven her.If you're expecting a sad episode, don't! Monica is joyously positive, and the host of a fast-growing and successful podcast, an author and illustrator. This is a brilliant lesson in how to reinvent yourself, and find new outlets for your creativity, no matter what life throws at you.Click to view: show page on Awesound

unstoppable awesound monica michelle
The Inspire Cafe
025: Monica Michelle: Shedding Light on Invisible Disabilities

The Inspire Cafe

Play Episode Listen Later Apr 19, 2018 51:05


Monica Michelle is a fellow podcaster, who co-hosts Invisible Not Broken.  As a child, Monica aspired to be a ballerina, but that got halted when she was a teenager due to her illness, or rather the debilitating illnesses she eventually was diagnosed with.  Getting frustrated with the lack of information about them, she's now on a mission to not only build a community of others with invisible disabilities, but also to help educate the public of the existence of these illnesses and shed some light on them. 

Invisible Not Broken A Chronic Illness Podcast
Bed Rest and Chronic Illness A Panel: Lupus, Fibromyalgia, and EDS How To Live A Meaningful Life From Bed Rest {A Chronic Illness Podcast}

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Mar 5, 2018


Lupus, Fibromyalgia, EDS, and a Car Accident: Karma needs to chill.A discussion with naturopath Elizabeth Clamon from Clamon Natural Health, and Monica Michelle who between the two of them are dealing with Chronic Fatigue, Lupus, Ehlers Danlos, Chronic Pain, Car Accident, and Fibromyalgia. This is a panel talk all about LIVING with a horizontal life or how to live when bedbound with chronic illness. When Monica Michelle became sick and spending far too much time in bed she started a list of what would still be possible in her life when so much of it took place in bed. Elizabeth Clamon discusses her life after a car accident and chronic illness pushed her into bed right after she got her degree, Elizabeth began and runs a business, Clamon Natural Health, while homeschooling her children.During this panelParenting from bed: homeschool, delegation, chores, and listen for Darling Slug Days (Monica's favorite tip for spoonie parents with young children)Great things to have on bed rest: dumbells, apple watch, iPad, apple pencil, yoga ball, bands, slow cooker, rolling file cabinet, and pedalsFor work delegation and clear goals. Try Fiverr or TaskRabbitHow to stay physically active from a bed. We are NOT doctors. We don't even play one on the podcast or TV so ask someone with a coat and a degree before using. For us the IMPORTANCE of pets. Monica has fun with direwolf while having a POTS attackWe talk about work and education that can be done from bed or recliner.A real talk about the NEW NORMAL, thank you, Dame Oprah.Pinterest, yes, Pinterest, the ultimate rabbit hole. Also some advice on how to use Pinterest to make your life So much easierGoogle Keep the BEST list-making app for the forgetful spoonieSome Books To Read to adjust to a new life of chronic illnessThe Raging Sloth Eric EdenThere's Nothing Wrong With You Cheri HuberSiddartha Hermann Hesse Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! See acast.com/privacy for privacy and opt-out information.

Invisible Not Broken A Chronic Illness Podcast
Everything you wanted to know about Medical Marijuana : Laws, Health, and the Other Side of Legality: It’s Not Easy Being Green

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Feb 26, 2018 59:00


Links & Show Notes For Medical Marijuana and Chronic Pain Panel DiscussionJason David and child seizures medical marijuanaCharlottes Web CBD treatment for pediatric seizuresSanjay GuptaOprah and Medical MarijuanaSunset Magazine and Medical Marijuana in landscapingNational Geographic and Medical MarijuanaMedical Marijuana RefugeesMedical Marijuana and Cancer, Medical Marijuana and PTSD, Medical Marijuana and Chronic Pain, Medical Marijuana and Autoimmune Disorders, Medical Marijuana and Depression,What does Peer Reviewed mean?California Medical Marijuana Tax CodeDepartment of Health Medical MarijuanaThe Sinister Reason Weed is Illegal A fun way to find out about the VERY racially motivated reason of why marijuana became illegal.CBG CBD THC Medical Marijuana Panel Show NotesEverything you wanted to know about Medical Marijuana: Laws, Health, and the Other Side of Legality: It’s Not Easy Being Green Emily Joyce CW Analytical Laboratories VP business development Jessica Peters Moxi  Monica Michelle Podcaster, Children's Book Writer and Illustrator, and EDS, POTS, MCA, Fibromyalgia, and chronic pain patient and medical marijuana user.    What does a lab do for medical marijuana?Jessica Peters of Moxi CBD rich tinctures now out of business because of Santa Rosa fires. Keep an eye out for her next business venture. Came to medical marijuana for her endometriosis becoming non-symptomatic after her use of marijuanaJessica has worked at Harborside MedicalIf you want people lowering their opioid use don’t make medical marijuana costly or difficult to get and other tales of common senseTaxation and not having the ability to use insurance means at least for Monica Michelle not being able to afford medication when taxes are more than the productPediatric medical marijuana with seizure disorders and the parents who become medical refugees to get their children medicine that WILL NOT kill them. CPS issues with medicating children with Medical Marijuana. By the way, information by the government on what is or is not allowed by the CPS was VERY hard to find.A miracle cure? Might be if we could take it off schedule 1 to LEGALLY study all aspects of a plant that has NEVER caused an overdose death.Unravel the medical mystery of THC CBD and the rest of the alphabet soupYou thought THC was just for fun….hang on and have a listenSo marijuana is legal right? Hang in and listen to what it means to be a schedule 1 substance (If you have listened to this far can we at least all agree that this is not a plant with ZERO medical benefits).What happens when you run a business that is legal in certain states but is ILLEGAL in the United States hint no insurance, no write off and no business bank account. Just think what happened in the Santa Rosa fire to farmers at harvest time.Who benefits when people can grow their own medicine? Any guesses?Why are Pharmaceutical companies investing research into medical marijuana?What happened when the people who need the medicine the most are on disability and do not have extra money to buy their medical marijuana but hey the prescription drugs are $5 to $10 with insurance.What we can do to help people get their medicine. It will be grassroots and it will come down to all of us to create change Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! See acast.com/privacy for privacy and opt-out information.

Invisible Not Broken A Chronic Illness Podcast
Work, Disability, and the Spoonie Life {A Chronic Illness Podcast}

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Jan 29, 2018 59:00


Disability, staying home, guilt, and screwing with the feminist agenda.Trying to get over "letting down" the people in your life by staying home for disability.Some behind the scenes of what happened when Monica Michelle had to shut down her Menlo Park photography studio.Trying to justify your day when you stay home every day.Spoon theory and getting to work using public transportation which is not accessible for all, BART calling you out on your pointless elevators. This is one of the BIG reasons MANY disabled people CANNOT work.Why people are dragging themselves through work when their bodies no longer work: Insurance, Retirement, and the huge hole between what disability pays and how much you will need for basic living.Privilege, disability, and working. Do you have a position and company policies that let you do what you need to feel better, take time off for flares, and Dr. appointments?What happens when your medication is not legal for you to take because of your job.Can you get work RESPECT when you are in a wheelchair? Is the workplace accessible to get around with canes and wheelchairs? Enough handicap parking spaces? SERIOUS words of respect for teenagers dealing with mental and physical disability in high school and college.Businesses, before you call yourself accessible borrow a wheelchair and try to do everything needed THEN tell me if you are accessible. Fooling yourself on your abilities after a few "good days"Staying home is not a choice most of us would make.Show LinksACA Low-Cost Perscription APP Good RXActivism on Your Phone Don't Wine Text Your Representatives! If You Like What You Heard....Subscribe! Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! See acast.com/privacy for privacy and opt-out information.

Invisible Not Broken A Chronic Illness Podcast
A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later Nov 27, 2017 49:00


A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast Chronic Illness Podcast.Kyros and I have dealt with Chronic pain for years. You can listen to either of our episodes to hear about Kyros's Morton's neuroma and Monica Michelle's fibromyalgia, POTS, and Ehlers DanlosWe go over the true cost of having a chronic illness and/ or chronic pain.The opioid crisis and the feelings from someone who is a patient and is in chronic pain with chronic illness.Medical Marijuana and pain therapy.Privilege and pain management.Don't forget to share the podcast with someone in your life who has chronic pain.Links To Articles CitedWhat's in Your SupplementMedical Marijuana for Treatment of Chronic Pain and Other Medical and Psychiatric ProblemsA Clinical ReviewSome People Still Need OpioidsEven in legal weed states, parents who consume pot can still lose custody of their kidsLinks To Products for Chronic Pain Management MentionedMedical Marijuana Rub (If you live in a medical marijuana state. If not please contact your congressperson relentlessly).QuellLady Gaga 5'2 DocumentarySmart CrutchesA Better Pain Scale because you know after this chronic pain podcast you need a laugh.Thank you so much for listening to our chronic illness podcast. Can you pleaseShare us with a person dealing with chronic illness.Please subscribe if you haven't.Say something really nice about us on iTunes See acast.com/privacy for privacy and opt-out information.