Podcasts about dipg

Today's episode is one that sits incredibly close to Ellie's heart, as she discusses coping with Christmas after child loss. As many listeners will know, Ellie lost her beautiful boy Billy to DIPG, and this is her second Christmas without him. The festive season can bring a complex mix of emotions for bereaved parents, the memories, the empty space, and the pressure to appear "festive" when the heart is somewhere else entirely. In this episode, Ellie is joined by Bereavement Support Service Lead Rachel Tegg from Child Bereavement UK for an open, gentle and honest conversation about what it means to face Christmas after losing a child. Whether someone is in their first year, their fifth year or anywhere in between, this discussion offers comfort, understanding and the reminder that no parent walks this path alone. Content Warning This episode includes discussion around the death of a child, grief and the emotional challenges of Christmas. Listeners are encouraged to take care of themselves while listening and to step away at any time if needed.   Email us at info@mybaba.com Follow us on Instagram @mybabainsta and @mybabagram Show notes Child Bereavement UK - Helpful Resources Helpline Number: 0800 02 888 40. Normal Opening Hours: Monday-Friday, 9am-5pm Christmas Opening Hours: Friday 24th December, 9.00 am – 1.30 pm Saturday 25th December - Tuesday 28th December, Closed Wednesday 29th December - Friday 31st December, 10.00 am - 4.00 pm Monday 3rd January, Closed Tuesday 4th January onwards, Normal hours 9.00 am – 5.00 pm Email: helpline@childbereavementuk.org.uk Website: www.childbereavementuk.org (Live Chat support and other resources can be found here) Managing Christmas Resource: https://www.childbereavementuk.org/managing-special-occasions What is My Baba? My Baba provides the daily scoop on family, food and lifestyle - we're not just experts at all things parenting. Visit mybaba.com  The Content on this podcast is provided by My Baba and represents our sole opinions and views. For more information on our terms and conditions please refer to the website: https://www.mybaba.com/terms-conditions/

Welcome back to The Psychology Sisters! In our October unfiltered episode, Kat recaps her trip of a lifetime swimming with humpback whales in Tonga and a humbling pit! Aimee shares her half marathon run for DIPG raising money for children with rare cancer. Our loves and leaves are as follows: Love: Pistachio spread from Coles, Haigs chocolate pistachio balls and Fat bear week. Kat also recommends line dancing!! Leave: The summer I turned pretty and feeling cringe/ embarrassed.  October is Mental Health Month and this year's theme is “Taking Steps on Your Wellbeing Journey.” It's all about the small, meaningful ways we can move toward better mental health — not in a perfect way, but in a real, human way.And it's also BPD Awareness Week from October 1st to 7th a really important time to remember that people living with Borderline Personality Disorder are not “too much,” “too complex,” or “too hard.” Recovery is absolutely possible with the right understanding and support and that message really ties into what we wanted to explore today. This episode's a bit of an unfiltered check-in for all of us as we head into the last few months of the year. We'll be chatting about two big things:1.End-of-year burnout: why it sneaks up on us, and how we can start taking steps now to prevent it.2.Trauma bonding: what it actually is, what it isn't, and how to recognise it.So if you're feeling a bit over it, tired, or emotionally stretched, this one's for you. Think of it as a gentle reset and a reminder that small steps really do matter on your wellbeing journey.Aimee + Kat You can find more of us here: Our Online Psychology practice: Did you know we have online appointments available with our amazing therapists Lisa or Maddie. Learn more here https://thepsychcollaborative.com.au The Thriving Therapists: To connect with a safe and supportive community of like-minded therapists, head to our Thriving Therapists Facebook group: https://m.facebook.com/groups/224252457083630/?ref=share&mibextid=S66gvFOr find us on our Instagram: https://instagram.com/thethrivingtherapists?igshid=OGQ5ZDc2ODk2ZA==The Psychology Sisters Instagramhttps://www.instagram.com/thepsychologysisters/?hl=enThe Psych Collaborative instagramhttps://www.instagram.com/thepsychcollaborative/?hl=enPlease note: this episode is for informational purposes only and does not replace personalised psychological advice.

Jannell and Keith Royer's daughter McKenna was experiencing headaches before her Diffuse Midline Glioma diagnosis in August of 2023. This Pediatric Brain Cancer behaves in a similar manner to DIPG, leaving little room for a lifespan which is normally expected to be 9-12 months.  McKenna did not even make it that far, passing away on February 26th of 2024, 6 months after being diagnosed. Jannell and Keith will talk about how McKenna felt surprisingly well during almost all of her battle, until 8 days before her passing when she suddenly went downhill health wise. Jannell and Keith will also about their Brave Like McKenna Foundation and their advocacy work for the cause of Pediatric Cancer.

Episodio número 33 de Cuéntame Más Ciencia con Ester Calvo Fernández, farmacéutica y Doctora en Patología y Medicina Molecular por la Universidad de Columbia.Ester, original de Mataró, tuvo claro que se quería dedicar a la investigación en el momento en el que conoció a un paciente pediátrico con un tumor cerebral incurable, el glioma pontino intrínseco difuso (DIPG). En este capítulo, Ester nos cuenta su trayectoria por la Universidad de Michigan, Columbia y finalmente en Harvard, donde actualmente está realizando su postdoctorado. Ester siempre se ha volcado a la investigación de tumores cerebrales, un conjunto de patologías que, a día de hoy, siguen repletas de incógnitas en cuanto a su origen y tratamiento más eficaz. En este capítulo, reflexionamos una vez más sobre la importancia de la investigación para dar una oportunidad a estos pacientes. Episodio grabado por ⁠⁠⁠⁠⁠⁠⁠⁠⁠David Meseguer García.Cuéntame Más Ciencia es un podcast financiado por la Fundación Ramón Areces y elaborado por el programa E-Visibility de la Comisión de Comunicación de ECUSA. Visita nuestra web ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.ecusa.es⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ y síguenos en las redes sociales⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.Las opiniones y declaraciones expresadas en Cuéntame Más Ciencia representan el punto de vista de cada participante y no de ECUSA como asociación, ni de cualquier otra institución.

In this episode of the Game Over: c*ncer, hosts Val Solomon and Dana Nichols, sit down with Tammi Carr, co-founder of the ChadTough Defeat DIPG Foundation. Tammi shares the story of her son Chad, her family's fight against DIPG, and how powerful collaboration across families, foundations, and researchers is accelerating progress.You will hear:How Chad's legacy inspired a movement that now fuels millions in research each yearWhy joining forces with partner families and merging organizations created real momentumWhat recent progress means for DIPG treatment and why speed still matters for kids todayHow cuts to federal research funding impact pediatric cancer labs and what we can do togetherThis conversation is a candid look at grief turned into action, and at the collective will it takes to create options for kids with brain tumors.If you have a question we did not cover, drop it in the comments.  Let's keep the conversation going.Learn more and support our guest at: https://www.chadtough.orgIf this conversation moves you, please like, comment, and share to help us educate for change. Leaving a review helps more families find tangible hope.Tune in to hear this inspiring and informative conversation. Don't forget to subscribe, leave a review, and join the fight to make Game Over: c*ncer a reality.Connect with Dana: https://www.linkedin.com/in/danaknichols/Connect with Val: https://www.linkedin.com/in/valerie-solomon/Upcoming Ckc Events: https://cannonballkidscancer.org/category/make-an-impact/events/----------------------------------Podcast Produced by Hi Hello Labs: Website: https://www.hihellolabs.com/

Bonnie Corcoran will talk about her beloved daughter Brenna who was diagnosed with DIPG, just 8 months after Bonnie and her husband Robert had taken custody of her, then adopted her when she was 3 1/2 years old. Brenna was born with a Cocaine addiction thanks to a family member and was welcomed by Brenna, her husband Robert, and their 5 other children, all of whom were at least 10 years older then she was. Brenna fought her DIPG as much as she could, before passing away on September 6th of 2022. 

Neurologist Michelle Monje studies the close relationship between cancer and the nervous system, particularly in an aggressive brain cancer that often strikes in childhood. Her research shows that the cancer cells are electrically integrated into the brain itself and these connections actually help the cancer to grow. Monje and collaborators have now developed an immunotherapy that has shown great promise in mice and early human trials. One patient had a “complete response” and is cancer-free four years after treatment, Monje tells host Russ Altman on this episode of Stanford Engineering's The Future of Everything podcast.Have a question for Russ? Send it our way in writing or via voice memo, and it might be featured on an upcoming episode. Please introduce yourself, let us know where you're listening from, and share your question. You can send questions to thefutureofeverything@stanford.edu.Episode Reference Links:Stanford Profile: Michelle MonjeConnect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads / Bluesky / MastodonConnect with School of Engineering >>> Twitter/X / Instagram / LinkedIn / FacebookChapters:(00:00:00) IntroductionRuss Altman introduces guest Michelle Monje, a professor of pediatric neurology at Stanford University.(00:03:39) Focus on Cancer ResearchMonje's clinical observations led to exploring cancer-neuron interactions.(00:05:28) Neurons and Glial CellsThe role of neurons and glial cells in brain function and disease.(00:08:32) Gliomas in ChildrenAn overview of gliomas and their origins in glial precursor cells.(00:10:12) Rethinking Brain Cancer BehaviorHow gliomas don't just grow—they integrate with brain circuits.(00:14:49) Mechanisms of Tumor GrowthTwo primary mechanisms by which cancer exploits the nervous system.(00:16:32) Synaptic Integration of Cancer CellsThe discovery that glioma cells form synapses with neurons.(00:20:06) CAR T-Cell TherapyAdapting CAR T-cell immunotherapy to target brain tumors.(00:22:52) Targeting GD2 AntigenIdentification of a surface marker enables precision CAR T-cell therapy.(00:24:35) Immune Access to the BrainThe ability of CAR T-cells to reach the brain, despite prior understanding.(00:26:16) First Clinical Trial ResultsThe significant tumor reduction and response from CAR T-cell therapy.(00:28:21) Combined TherapiesPairing immune therapy with neural signaling blockers for better outcomes.(00:30:35) Conclusion Connect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads / Bluesky / MastodonConnect with School of Engineering >>>Twitter/X / Instagram / LinkedIn / Facebook

Matt Dun left school at 17 to join the Australian navy as a submariner and later finished his high school certificate as an adult attending TAFE at night.He then trained in biomedical science and was researching childhood leukaemia when his family received some devastating news, their little daughter Josie was diagnosed with terminal brain cancer.Matt turned all his energy and expertise into searching for treatments to help Josie and other children like her.He found running was one thing that helped him cope with the stress and pain of his daughter's illness, and with his wife founded the charity, RUN DIPGFurther informationThe charity founded by Matt and Phoebe Dun is RUN DIPGFind out more about the Conversations Live National Tour on the ABC website.This episode of Conversations was produced by Jen Leake, executive producer is Nicola Harrison.It explores childhood brain cancer, biomedical science, grief, family, DIPG, drug trials, research, submarines, the Australian Navy, running.

In this powerful episode (#35) of BioTalk Unzipped, recorded live at the AAPS NBC conference in Boston, Gregory Austin engages in a deep conversation with a leading Neuroscientist, Dr. Robert Thorne, Denali Fellow at Denali Therapeutics, for an intimate and scientific deep dive into the evolving world of brain cancer treatment and CNS drug delivery. Both Gregory and Dr. Thorne share personal stories of losing family members to brain metastases, weaving in the emotional 'why' behind their professional paths.Dr. Thorne highlights the complexities of the blood-brain barrier, the heterogeneity of brain metastases, and cutting-edge delivery technologies—including focused ultrasound and molecular engineering approaches. The conversation also touches on pediatric brain tumors like diffuse midline glioma (DIPG), emerging research in lysosomal storage diseases, and the collaborative spirit driving innovation in neuroscience today.This is more than a technical discussion—it's a human story about grief, hope, and the relentless pursuit of better outcomes for patients with brain diseases.00:00 Preview & Intro01:10 Robert Thorne's Reflections on the AAPS NBC conference03:14 The Professional Biotech and Pharma League05:09 A Personal Story Shared: Family Loss to Brain Cancer07:57 My Reason for Optimism Treating Brain Cancer08:50 Why Brain Metastases Remain Hard to Treat11:10 Scientific Advances in Drug Delivery for Brain Cancer12:30 Seed and Soil Concept in Oncology15:18 Pediatric Brain Tumors: DNET, DIPG, and Beyond16:49 Looking Ahead: Hope for Future Therapies21:32 Closing GratitudeDr. Robert Thornehttps://www.linkedin.com/in/robert-g-thorne/Denali Therapeutics - https://www.denalitherapeutics.com/ Dr. Chad Briscoehttps://www.linkedin.com/in/chadbriscoe/ Celerion - https://www.celerion.com/ Gregory Austinhttps://www.linkedin.com/in/gregoryaustin1/ Celerion - https://www.celerion.com/ Key Takeaways:Personal Connection Fuels Professional Passion: Both Gregory and Dr. Thorne were driven into the life sciences field by family experiences with brain tumors.The Blood-Brain Barrier (BBB) Remains a Major Challenge: Brain metastases from cancers like melanoma, lung, and breast cancer still present difficult delivery barriers for therapies.Heterogeneity in Brain Mets: Different metastases within the same patient can have vastly different BBB permeability, requiring multifaceted delivery strategies.Emerging Drug Delivery Innovations: Focused ultrasound, engineered biologics, and Denali's own delivery platforms are all promising ways to improve CNS drug penetration.Pediatric Brain Cancers Present a Unique Set of Challenges: Diseases like diffuse midline glioma (DIPG) remain largely untreatable, but learnings from lysosomal storage disorders may translate in the...

In this powerful and deeply personal episode of Game Over c*ncer, we sit down with Jasan Zimmerman—a three-time childhood and young adult cancer survivor, former molecular biologist, and now the Senior Director of Foundation Relations at the Lucile Packard Foundation for Children's Health.Jasan opens up about his lifelong journey through cancer, the mental health struggles that often follow survivorship, and his evolution from patient to patient advocate. With honesty and vulnerability, he shares what it means to process trauma, show up authentically, and build community with purpose. He also highlights the importance of patient-centered research and the critical impact of including survivors' voices in medical trials and program design.Together, we reflect on the groundbreaking research funded through CKc's partnership with Stanford, including a clinical trial showing full response in children with DIPG. This is why we do what we do.If you've ever wondered what life after cancer really looks like—or how you can be part of advancing pediatric cancer research—this is the episode for you.Tune in to hear this inspiring and informative conversation. Don't forget to subscribe, leave a review, and join the fight to make Game Over: c*ncer a reality.Connect with Dana: https://www.linkedin.com/in/danaknichols/Connect with Val: https://www.linkedin.com/in/valerie-solomon/Upcoming Ckc Events: https://cannonballkidscancer.org/category/make-an-impact/events/----------------------------------Podcast Produced by Hi Hello Labs: Website: https://www.hihellolabs.com/

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Hide Harashima, dad, advocate, and founder and president of Love4Lucas Foundation. He discusses creating the Love4Lucas Foundation in honor of his son Lucas, who was diagnosed with diffuse intrinsic pontine glioma (DIPG). Dr. Peters is then joined by Dr. Paul Fisher, Professor of Neurology and Pediatrics, and by courtesy, Neurosurgery and Epidemiology and Population Health, Beirne Family Professor of Pediatric Neuro-Oncology, Dunlevie Family University Fellow in Undergraduate Education at Stanford University, and Editor-in-Chief of The Journal of Pediatrics. Dr. Fisher explains DIPG and other similar cancers, discusses treatment options, and what new research is being done today.   Additional Resources Love4Lucas Patients and Their Loved Ones Find New Roles as Advocates After Diagnoses Lawyer and Model Who Survived Brain Tumors Focuses on Giving Back   Other Brain & Life Podcast Episodes Actor Craig Russell on Staying Positive during his Brain Tumor Diagnosis Lawyer, Model Victoria Vesce Uses Her Platform for Brain Tumor Advocacy BMX Athlete Josh Perry's Perseverance Living with Brain Tumors We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media: Hide Harashima @love4lucasfoundation; Dr. Paul Fisher @stanfordchildrens Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

This week, I sit down with Alan and Eimear Durnan to talk about their beautiful daughter, Keeley Duggan, who they heartbreakingly lost in July 2023. Keeley was diagnosed with DIPG, a rare and aggressive brain tumour. Alan and Eimear speak openly about the long road to her diagnosis, her incredible strength throughout her illness, and the deep grief they now live with. In her memory, they’ve set up the Keeley D Foundation, a charity that offers practical support to children on palliative care and their families. Their story is one of love, heartbreak, and the unbreakable bond of family. Instagram @Keeleydfoundation @griefireland For more information on Grief Retreats visit griefireland.com

This week, I sit down with Alan and Eimear Durnan to talk about their beautiful daughter, Keeley Duggan, who they heartbreakingly lost in July 2023. Keeley was diagnosed with DIPG, a rare and aggressive brain tumour. Alan and Eimear speak openly about the long road to her diagnosis, her incredible strength throughout her illness, and the deep grief they now live with. In her memory, they've set up the Keeley D Foundation, a charity that offers practical support to children on palliative care and their families. Their story is one of love, heartbreak, and the unbreakable bond of family. Instagram @Keeleydfoundation@griefirelandFor more information on Grief Retreats visit griefireland.com

Sometimes, the hardest thing we'll ever do is face our own reflection and embrace who we truly are. Ginger Bliss takes us on a powerful journey of self-compassion, transformation, and breaking the cycle of self-doubt. She opens up about confronting buried pain, shifting from self-loathing to self-love, and discovering that true freedom comes from facing what scares us most. Through her story, we're reminded that pain is inevitable—but suffering in silence doesn't have to be. With wisdom, courage, and a heart full of hope, Ginger shows us that when we stop pretending and start reflecting, we unlock the path to a more authentic, fulfilling life. Key Takeaways: Avoiding pain doesn't make it disappear—it seeps into behaviors and relationships. Facing it head-on allows for healing and personal growth. Practicing self-compassion helps you embrace your worth, let go of perfectionism, and build deeper connections with others. Other people's words and actions are a reflection of them, not you. Releasing self-blame can bring more peace and confidence. Small, intentional steps like journaling, listening to inspiring content, or following uplifting voices can lead to powerful mindset shifts. Growth may change your relationships, but by living authentically, you'll attract the right people who support your journey.   About Ginger Bliss: Ginger L. Bliss is an accomplished executive leader with over two decades of experience developing staff and leaders, driving operational improvements, guiding strategic planning and business development within healthcare and corporate environments. With a proven track record in leadership, operations, marketing, communications, and organizational efficiency, Ginger has a unique ability to identify opportunities for growth, anticipate challenges, and develop solutions that enhance human behavior leading to increased engagement and satisfaction both personally and professionally, as well as organizational performance.  Ginger is also the author and publisher of Brave Enough To Be Bliss, a memoir that delves into the power of self-reflection in overcoming fear and control within relationships. She launched her book in 2024 at the BrainStorm Summit in Washington, D.C., where she spoke to grieving parents and physicians working to find a cure for terminal pediatric brain cancers DIPG and DMG. As the founder of GB Real Life & Leadership Strategies, Ginger provides tailored life and leadership coaching services that deliver strategic guidance and actionable plans with measurable outcomes. She works with adults of all ages, as well as emerging and executive leaders. Drawing on her deep and broad knowledge of human behavior, gained through years of professional experiences and personal healing, Ginger guides struggling humans and business leaders toward creating their own long-term fulfillment and success. Ginger's expertise extends to operational enhancements having spearheaded transformative projects such as facility expansions and greenfield development, joint ventures, partnerships and mergers, process optimization, and relationship management. She has also successfully overseen multimillion-dollar budgets, and streamlined a variety of individual and organizational processes, consistently improving efficiency, accuracy, and cost savings. Throughout her career, Ginger has held executive leadership roles, including Chief Operating Officer at Midwest Aortic & Vascular Institute, Vice President of Strategic Planning and Business Development at Carondelet Health, and Vice President of Marketing, Planning, and Business Development at Shawnee Mission Medical Center, among others. Her leadership in these organizations led to significant operational improvements, increased market share, and enhanced organizational performance. She maintains relationships with colleagues and vendors from every organization throughout her distinguished career because her primary concern and investment has always been with the people who cross her path.  Ginger earned a master's degree in health services management from Webster University and a bachelor's degree in journalism/mass communication from Kansas State University. She has been recognized for her leadership with inclusion in Ingram's Magazine 40 Under 40 Leaders and has actively contributed to many community organizations, including the serving as a board member for the HeadsUp Foundation for PCS, Metropolitan Organization to Counter Sexual Assault, Spofford Home for Children, and the Leawood Chamber of Commerce. https://www.gingerbliss.life @ginger_l_bliss linkedin.com/in/gingerbliss   Connect with Dr. Michelle and Bayleigh at: https://smallchangesbigshifts.com hello@smallchangesbigshifts.com https://www.linkedin.com/company/smallchangesbigshifts https://www.facebook.com/SmallChangesBigShifts https://www.instagram.com/smallchangesbigshiftsco   Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can also subscribe in your favorite podcast app. Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts.

In the final part of Theo's story, Allie and Mike share the magic of hearing their son speak again, after four months of silence. They reflect on a beautiful and intense summer - the elated highs and the gutting lows, before recounting their final weeks with Theo, when his tumor began to progress and eventually took his life. SUNSET is part 3 of a 3 part series. This episode contains details about the death of a child - take care of yourself while listening.Show credits:Written, produced and edited by Allie and Mike Kramer.Music by Mike Kramer, Duncan Thum and Tyler Sabbag.To join us in the fight against DIPG, visit ThriveLikeTheo.com.Get in touch: contact@worstclubeverpodcast.comInstagram: @worstclubeverpodcast

Today's episode is a continuation of my conversation with Shawn and Sandy Smith about their son Andrew—a joy-filled boy with a love for music—who went to heaven in 2009 after a courageous battle with DIPG. Today, we look at what life has been like over the sixteen years since Andrew went home to Jesus.  In this episode, Shawn and Sandy open up about how they've learned to carry their loss, what has brought them comfort, and how their faith has deepened in ways they never expected.We'll talk about the struggles and the hope, the moments that still take them by surprise, and the ways God has shown His love and faithfulness through the years. I believe today's episode will be an encouragement to you.I would love to hear your thoughts on the show. Click here to send me a message!** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org

In Part 2 of Theo's story, Allie and Mike describe hearing the news of their son's terminal cancer diagnosis, and chronicle the first four months that followed. They share their journey through radiation, treatment planning, and trying to bring Theo the most magical experiences possible amidst the chaos of cancer. ECLIPSE is part 2 of a 3 part series. This episode contains descriptions of pain, suffering, and medical trauma, and may be inappropriate for some listeners. To donate to DIPG research in Theo's name, visit ThriveLikeTheo.com.Show credits:Written, produced and edited by Allie and Mike Kramer.Music by Mike Kramer, with additional music from Duncan Thum and Tyler Sabbag.Get in touch: contact@worstclubeverpodcast.comInstagram: @worstclubeverpodcast

Joining me today are Shawn and Sandy Smith, who I had the opportunity to meet when they attended our first While We're Waiting Weekend in Michigan a couple years ago.  Their faith has been tested in ways most of us can hardly imagine—first, when Sandy was diagnosed with breast cancer, and then, just days later, when their six-year-old son Andrew was diagnosed with DIPG, an aggressive and terminal form of brain cancer. Through every challenge, every difficult conversation, and every painful moment, Shawn and Sandy clung to their faith, trusting that God had a purpose even in their suffering. In this episode, they share how they walked through this unimaginable season with hope, how Andrew's childlike faith and joy reflected the goodness of God, and how they found peace in His promises—even when healing on this earth was not part of His plan. Their story is one of deep sorrow but also incredible trust in God's sovereignty—a story of holding fast to His Word, even when the path ahead seemed impossible. If you've ever wrestled with faith in the face of suffering, this conversation will remind you that God has not forgotten you.  Be sure and come back next week to hear more of their story!  I would love to hear your thoughts on the show. Click here to send me a message!** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org

In the very first episode of Worst Club Ever, host Allie Kramer and her husband Mike begin to tell the story of the life and death of their four-year-old son, Theo. In Part 1, Allie and Mike share what their lives were like with Theo from his birth, up until his devastating brain cancer diagnosis at age three. SUNRISE is part 1 of a 3 part series. This episode is highly emotional and may be inappropriate for some listeners. To donate to DIPG research in Theo's name, visit ThriveLikeTheo.com.Show credits:Written, produced and edited by Allie and Mike Kramer.Music by Mike Kramer, with additional music from Duncan Thum and Tyler Sabbag.Get in touch: contact@worstclubeverpodcast.comInstagram: @worstclubeverpodcast

Abigail Derr from Young Lives v Cancer sits down with Jamie and Ellie Thompson to share their heart-wrenching yet powerful story, Billy the Brave: A Family Fight Against DIPG. In this episode, Jamie and Ellie open up about their son Billy's diagnosis with DIPG, a terminal brain cancer, and the five-month battle that followed. Billy The Brave: A Family's Fight Against DIPG They discuss the first symptoms that raised alarm, the pivotal moment that took them to A&E on 7th November 2023, and the shattering reality of being told their son wouldn't survive. Together, they reflect on the challenges of radiotherapy, the emotional toll of steroids, and how they clung to hope amidst devastating blows. This is a conversation about resilience, love, and raising awareness of DIPG—a fatal disease that's poorly understood, underfunded and under-researched. Join us as we honour Billy the Brave and the Thompsons' fight to make a difference as they launch Billy's Battalion and plan for their next fundraising event, Billy's Bash: A Family Funday. To donate to Billy's Battalion, part of Abbie's Army, please click here.  Follow Ellie & Jamie on Instagram and Facebook.  Show notes Email us at info@mybaba.com Follow us on Instagram @mybabainsta and @mybabagram What is My Baba? My Baba provides the daily scoop on family, food and lifestyle - we're not just experts at all things parenting. Visit mybaba.com  The Content on this podcast is provided by My Baba and represents our sole opinions and views. For more information on our terms and conditions please refer to the website: https://www.mybaba.com/terms-conditions/

Abigail Derr from Young Lives v Cancer sits down with Jamie and Ellie Thompson to share their heart-wrenching yet powerful story, Billy the Brave: A Family Fight Against DIPG. In this episode, Jamie and Ellie open up about their son Billy's diagnosis with DIPG, a terminal brain cancer, and the five-month battle that followed. Billy The Brave: A Family's Fight Against DIPG They discuss the first symptoms that raised alarm, the pivotal moment that took them to A&E on 7th November 2023, and the shattering reality of being told their son wouldn't survive. Together, they reflect on the challenges of radiotherapy, the emotional toll of steroids, and how they clung to hope amidst devastating blows. This is a conversation about resilience, love, and raising awareness of DIPG—a fatal disease that's poorly understood, underfunded and under-researched. Join us as we honour Billy the Brave and the Thompsons' fight to make a difference as they launch Billy's Battalion and plan for their next fundraising event, Billy's Bash: A Family Funday. To donate to Billy's Battalion, part of Abbie's Army, please click here.  Follow Ellie & Jamie on Instagram and Facebook.  Show notes Email us at info@mybaba.com Follow us on Instagram @mybabainsta and @mybabagram What is My Baba? My Baba provides the daily scoop on family, food and lifestyle - we're not just experts at all things parenting. Visit mybaba.com  The Content on this podcast is provided by My Baba and represents our sole opinions and views. For more information on our terms and conditions please refer to the website: https://www.mybaba.com/terms-conditions/

Tara and Jonathan Sharpe will talk about their decision not to seek treatment for their 5 year old daughter Lydia who was diagnosed with DIPG on August 7th of 2021. They decided that rather then put Lydia through radiation and possible clinical trials which they knew would not ultimately cure her,  they wanted to make Lydia as happy and comfortable as possible during her final days, as the only thing she wanted to do was to go home and play as long as possible with her 7 year old sister Madeline.

Hopefully for the 1ST and LAST time, I spoke with a mom and dad who had what I am calling a misfortune on Steroids when Tanya and Luke Palmowski's son Tyler was diagnosed with Medulloblastoma when he was 8 years old in 2015, was able to ring the bell at Stollery Children's Hospital in Edmonton, Albert 1 year later in 2016, and then just as Covid was hitting in March of 2020 was diagnosed with DIPG. Tyler passed away on November 24th of 2020 .

Brandon and Amanda Huffman's daughter Avery complained of double vision and then her right eye became introverted in June of 2015, and after 2 visits to a Pediatric Opthamologist, she was diagnosed with DIPG. Avery's battle with this form of Pediatric Brain Cancer lasted only 7 1/2 months before her passing on February 16th of 2016, and she was even denied the Honeymoon period that many DIPG sufferers get to experience. 

11 year old Noah Klein began having trouble with his motor skills as well as fatigue in January of 2022 and quickly was diagnosed with DIPG. Noah was able to feel well enough by May of that year to attend a Miami Heat playoff game and to meet Jimmy Butler who was their star player. His mom Elan talks about what Noah went through which included a honeymoon period that summer where Noah was able to travel with his family and was feeling good until the fall season when his condition began to deteriorate, and led to his passing on February 17th of 2023 when he was 12 1/2 years old. 

Sil Lutkiwitte is the Chief Executive Officer and Randy Schrecengost is the Chief Scientific Officer for Targepeutics, and their company has created a protein known as GB-13 which is targeted to help in the fight against DIPG and DMG. This protein is designed to kill off bad brain cells while completely avoiding good brain cells and they are hoping to get the necessary financing to be able to bring this protein to Clinical Trial in the near future. 

Even at the age of 7 Eric Buther's son Santiago was a graceful athlete but then he became clumsy and also was feeling tired and lethargic before he was diagnosed with DIPG in 2018. Santiago was able to go through an extended "Honeymoon" period after being treated at St Jude Children's Research Hospital but then he relapsed and after a stay at Cincinnati Children's Hospital he passed away on January 17th of 2020, while in 3rd grade. 

Join Joann and Allison interview Jenica with Dahlias 4 DIPG. Following the loss of their son, Levi, Jenica and her family started this dahlia business as a way to raise funds and awarness for childhood cancer. Come listen to all the awesome things they are doing for families walking through the same journey.  You can reach out to the Levi's Legacy team and find out more about Dahlias 4 DIPG on Facebook. Find the Dahlias 4 DIPG page or the Levi's Legacy DIPG Foundation page. Their tubers will go for sale in spring at https://dahlias-4-dipg.myshopify.com/password. Also, follow their facebook page for dahlia auctions. 

Becky Handley overheard her 12 year old daughter talk about having double vision to her ballet teacher in September of 2020 after complaining of headaches in the preceding days. The next day which was September 20th, Ava was diagnosed with DIPG. Ava did experience a six month honeymoon period from January of 2021 through July of 2021 but eventually her condition deteriorated and she passed away from this terrible form of Pediatric Brian cancer on June 15th of 2022.

Jamie Buckner's beloved nephew Kyler passed away on March 2nd of 2021 after enduring a 16 month battle with the Pediatric Brian Cancer DIPG. Jamie is a filmmaker and he is currently working on a Documentary film which highlights Kyler's brain cancer fight. Jamie hopes to have this film completed in early 2025 and his initial marketing plans include having it shown at well known film festivals, and eventually having it shown at the White House to help raise awareness for this most dreaded form of Pediatric Brain Cancer 

Join us this week as we talk to Jaden McDuffie and Fiona Godwin. Jaden gives us the scoop following the win Friday night vs Severna Park and walks us through his three big touchdown catches from quarterback Finn Mulvilhill.Plus we sit down with Fiona Godwin. Her organization, Lace 'em up for Libby, raises funds to contribute to organizations that fight childhood cancer, especially the one that took her daughter, Libby, at far too young of an age. Join Fiona and many of our South River sports teams at the 6th Annual Mr. Ted's Relay on Saturday, September 21st from 7:00am to 3:00pm at Davidsonville Park. Learn more about this wonderful event at https://www.laceemupforlibby.org/6th-annual-mr-teds-relay/All proceeds will go toward the Alex's Lemonade Stand Foundation's “The Million Mile" fundraiser to support the Hopkins Brain & Eye Tumor Laboratory, the lab that's still working with Libby's cells to find new therapies for DIPG and other forms of childhood cancer.Hawk Talk is hosted by Tom Frank and brought to you by Chad's BBQ, Merrick Creative, and Maryland Remodeling Expert. Don't hesitate to contact us through Instagram @SRHawkTalk or by email at SRHawkTalk@gmail.com. We want to report on all sports and all the great stories happening throughout the season. Please reach out, send updates after games, let me know about fundraisers, big games, etc. This show is only as good as what we know. So get involved! Subscribe, Listen and Share the show on Apple, Spotify or wherever you listen to podcasts, leave us a rating on Apple, help support the show at https://srhawktalk.buzzsprout.com, and spread the word Seahawk Nation. #WERSRSupport the show

Send us a message! We love hearing from our listeners.In this episode, we delve deep into the heart-wrenching story of Casey, a devoted mother who navigated the nearly impossible journey of losing her young daughter, Zoe, to childhood cancer. Zoe, who battled the disease from the tender age of three, tragically passed away at just five years old on July 4, 2018, leaving behind a legacy of love and resilience that Casey warmly recounts.Casey chronicles the events leading to Zoe's diagnosis, detailing how a seemingly innocent fall at the park quickly spiraled into a devastating medical discovery. She describes the emotional roller coaster of hospital stays, the endless tests, and the gut-wrenching moment when they were told Zoe had an inoperable brain tumor – initially misidentified, but later confirmed as DIPG, a fatal pediatric brain cancer.Throughout the episode, listeners are invited into Casey's world of unimaginable grief, tough decisions, and small victories amid a backdrop of profound love and hope. Casey reflects on the life transitions and emotional shutdown she experienced post-divorce and during the COVID-19 pandemic, candidly sharing her journey towards therapy and emotional healing, including exploring specialized treatments like EMDR.A significant part of the conversation is dedicated to keeping Zoe's memory alive through outdoor activities, charitable initiatives, and vivid recollections of happier times, like Zoe's lively playhouses and her favorite holidays. Casey's charity work stands as a testament to her enduring connection with Zoe, providing joy to families of children with terminal illnesses.In a deeply moving recount of Zoe's final days, Casey touches on the emotional complexities of watching her daughter slip away, the support from family and friends, and the pivotal decisions made in solace and desperation. With raw authenticity, she talks about the long-term impact of grief, how she coped through organizing and cleaning, and the crucial role her dog Juno played in helping her through the darkest times.Casey's vulnerable storytelling offers a beacon of hope for anyone facing similar trials, as she shares her continued efforts to find joy and reengage with life after loss. Join us for this emotional and inspiring episode as we honor Zoe's memory and Casey's unyielding strength and dedication to her daughter's legacy.Support the showFor more, go to thedayafter.com, or join the conversation online and follow us @thedayafteronline. You can find our hosts at: @cjinfantino @ashleyinfantinoMusic by Servidio Music

Seahawk Nation, we officially kicked things off this past week with the start of the regular season for our Fall Sports. Join host, Tom Frank, as he runs through last week's results and looks ahead to all our upcoming games for Boys and Girls Soccer, Volleyball, Field Hockey, Golf, Cross Country and Football.Plus we have 3rd year Varsity Girl's Soccer Coach, Christine Flanagan, back for her 3rd time on the podcast. She provides great insight on this year's team and coaches, the keys to a successful season and who we need to beat in the county. And lastly discover more on the 6th Annual Mr. Ted's Relay! Mr. Ted and Ms.Snow are ready for another showdown! For those not in the know, Mr. Ted and Ms. Snow like to compete to see who can complete the most miles around Davidsonville Park every year...but being teddy bears they need your help!The race is Saturday, September 21, 2024 from 7:00 a.m. - 3:00 p.m. (you pick your time) at Davidsonville Park. For more information fo to https://www.laceemupforlibby.org/6th-annual-mr-teds-relay/All proceeds will go toward the Alex's Lemonade Stand Foundation's “The Million Mile" fundraiser to support the Hopkins Brain & Eye Tumor Laboratory, the lab that's still working with Libby's cells to find new therapies for DIPG and other forms of childhood cancer. Hawk Talk is hosted by Tom Frank and brought to you by Chad's BBQ, Merrick Creative, and Maryland Remodeling Expert. Don't hesitate to contact us through Instagram @SRHawkTalk or by email at SRHawkTalk@gmail.com. We want to report on all sports and all the great stories happening throughout the season. Please reach out, send updates after games, let me know about fundraisers, big games, etc. This show is only as good as what we know. So get involved! Subscribe, Listen and Share the show on Apple, Spotify or wherever you listen to podcasts, leave us a rating on Apple, help support the show at https://srhawktalk.buzzsprout.com, and spread the word Seahawk Nation. #WERSRSupport the show

For Our Children: Warrior Parenting Guest Janet Demeter, Founder of Jack's Angels Foundation and Host of Childhood Cancer Talk Radio Fifty percent of children in the U.S. have chronic health issues, and among these, cancer is the leading cause of death among children by disease. Underlying this diseased state of our children are environmental toxins, which enter a body and accumulate over time to create metabolic deficiencies and imbalances. Such toxins exist in our air, water, soil and food. Parents are stepping up to identify these problems, raise awareness and advocate for systemic change. They are doing so in many different capacities; some are focusing on prevention and others are searching for therapies that are better than “standard of care” - less toxic, safer and more effective. In this episode, Janet Demeter shares her son's brain cancer story and the leadership role she took on within the childhood cancer community after losing Jack in 2012. Janet has learned a lot about cancer research, the shortcomings of the pediatric cancer care system and government policy, as well as what we need to do to be more effective. Janet is the founder of Jack's Angels Foundation, host of Childhood Cancer Talk Radio and a lead advocate for pediatric cancer awareness. She one of many parents who have been creating greater visibility and encouraging a higher level of funding for research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general. Janet leads the effort to pass a resolution designating the 17th day in May as ‘‘DIPG Awareness Day,'' which cites DIPG as the most compelling example of pediatric cancer. This September 2024 interview coincides with Childhood Cancer Awareness Month, CureFest 2024, a new book release, DIPG: Eternal Hope Versus Terminal Corruption, and the heightened focus on children's chronic health trends happening in national politics. The DIPG book is an experiential narrative published by Dean and Wendy Fachon about their son's cancer journey, and below is a link to a must-see video interview with the Fachons – “What is DIPG?” LISTEN TO PARENTS SPEAK ABOUT OUR CHILDREN'S HEALTH Childhood Cancer Talk Radio with Janet Demeter https://toginet.com/shows/childhoodcancertalkradio What is DIPG? With Dean and Wendy Fachon https://live.childrenshealthdefense.org/chd-tv/shows/good-morning-chd/what-is-dipg/ What is Bioethics? with Rachael McIntosh https://dreamvisions7radio.com/what-is-bioethics/ Why Eating Organic is Crucial to the Future of the Planet? With Zen Honeycutt https://dreamvisions7radio.com/eating-organic-crucial-future-planet/ Environmentally-Safe Technology with Cecelia Doucette https://dreamvisions7radio.com/environmentally-safe-technology-part-3/   READ LEGISLATIVE INITIATIVES FOR CHILDHOOD CANCER 118th CONGRESS (2023-2024) H.RES 416 – Designating the 17th day in May as ‘‘DIPG Awareness Day'' Letter to Congress and Text of Resolution https://www.govtrack.us/congress/bills/118/hres416/text Fairness to Kids with Cancer Act of 2023 https://www.congress.gov/bill/118th-congress/house-bill/5405/text Gabriella Kids First Research Act 2.0 https://www.congress.gov/bill/118th-congress/house-bill/3391/text   LEARN ABOUT CHILDHOOD CANCER ORGANIZATIONS CREATED BY PARENTS Jack's Angels Foundation (Janet Demeter) https://jacksangelsfoundation.com/?page_id=3305 Smashing Walnuts: Cracking the Cure for Childhood Cancer (Ellyn Miller) https://smashingwalnuts.org/ The Cure Starts Now (Brooke and Keith Dessrich) https://www.thecurestartsnow.org/ … and there are many, many more. Learn more at https://netwalkri.com email wendy@netwalkri.com or call 401 529-6830. Connect with Wendy to order copies of Fiddlesticks, The Angel Heart or Storywalker Wild Plant Magic Cards. Subscribe to Wendy's blog Writing with Wendy at www.wendyfachon.blog. Join Wendy on facebook at www.facebook.com/groups/StoryWalkingRadio

The Mariners have the day off and a much-needed homestand. Plus, it's EQC Note Thursday! Brandon Huffman, 247 Sports joins Ian to talk about the loss of his daughter Avery to DIPG. The community continues to rally around his family. He also gives us the latest look on local recruiting and assesses the difference on what's happening with the Cougs versus the Huskies. He tips his hat to Jake Dickert and the job he's done. Mayor of Maple Valley update and even though the Mariners are off tonight, there is some scoreboard watching to do. Corbin Smith, Locked on Seahawks joins Ian to discuss what the Ryan Grubb offense looks like with the Seahawks. He's extremely encouraged by what he's seen in the off-season from Abe Lucas and changed his mind as to whether or not he'd be ready for preseason. BOLD PREDICTION: Corbin says Jaxon Smith Njigba will have the most receptions for Seattle this year. Ian is intrigued by Corbin's assessment of where JSN should be in receptions this year. Certain guys have the ability to be gamechangers this year. Plus a quick update on the NBA Draft. Sports are becoming less accessible by the day when it comes to TV, and now we have another potential roadblock. We also listen to Jordan Morris, who explained why he'd so passionate about his foundation. Ian discusses why it's so important to him, personally.Anne McCoy, Washington State Athletic Director joins Ian to talk about that interim tag being removed and officially be named WSU's new AD. She discusses what the restructure looks like in administration and Washington State and how great the Cougar spirit has been through all of the changes.

Diffuse intrinsic pontine glioma, known as DIPG, is a rare and aggressive type of pediatric cancer that forms in the brainstem, resulting in approximately 200 to 300 new cases in the United States each year. Fortunately, investigators at Lurie Children's Hospital are paving the way to breakthrough treatment for children with DIPG. In this episode, Lurie Children's physicians Dr. Ashley Plant-Fox and Dr. Michael DeCuypere discuss the progress of this first-of-its-kind, phase 1 clinical trial for DIPG that has been open since January of 2022 and offers hope for a disease that currently has no curative options.  

Chris Crawford and Nathan Bishop join Ian LIVE from Snoqualmie Casino as we have a very special Mollywhop Friday! Heidi Watney, Apple TV is on the call for the Mariners game tonight and joins the guys to give an overview of the series with the Angels and just what the AL West looks like this year. She takes a deep dive into the Mariners and where they stand right now. We also learn more about the rest of the MLB headlines.John Forslund, NHL Play by Play Announcer is on the call tonight for the Stanley Cup Playoff game between the Oilers and Stars in Dallas and gives us a solid preview of the matchup. Plus, what are the Kraken getting in Dan Bylsma? Mollywhop Friday! Nathan Bishop and Chris Crawford are live with Ian from the Snoqualmie Casino and we get into an official WHOP! The Mariners took three of four from the Astros over the weekend and sit 3 games atop of the AL West, but can they sustain it? The watchability of the team comes into discussion. Chris likes the way Servais has been handling his pitching staff. What would the Mariners need to give up to truly improve this roster, and would it be worth it? What do you make of Julio Rodriguez's numbers right now? FRIENDS OF FURNESS FRIDAY! Brandon Huffman, 247Sports.com joins us to talk about his foundation in honor of his daughter, which focuses on fighting DIPG. They've raised over $1 million that has gone to help throughout the country. Ian's golf tournament directly supports this as well. Brandon gives us the latest news in the world of football recruiting and transfer portal.

Join Stephen Napleton and Father Tom Hurley on the Steve Cochran Show as they share the powerful journey of Violet, Stephen's 3-year-old daughter who lost her life in February 2022 to a form of brain cancer called Diffuse Intrinsic Pontine Glioma, or DIPG. They delve into Violet's story, the inspiration behind creating The Violet Foundation, and how to maintain faith in the face of adversity. For additional details, please visit https://www.violet-foundation.org/See omnystudio.com/listener for privacy information.

DIPG: Eternal Hope versus Terminal Corruption Guests: Dean Fachon, author with wife Wendy Fachon Neil Fachon was a 19-year-old engineering-student at Northeastern University when he was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable brain stem cancer. His family was with him at Mass General Hospital when the neuro-oncologist said he had three months to live. “Six, if you start radiation.” With no time to lose, the family searched out every conceivable treatment, as quickly as possible. Neil chose to enroll in a clinical trial at the Burzynski Clinic in Houston. Though dogged by controversy throughout his career, Dr. Stanislaw Burzynski has achieved miraculous results treating many patients with “incurable” cancers, including some with DIPG. The medical system designed to protect patients like Neil instead proved as intractable as the disease in his brain. DIPG: Eternal Hope versus Terminal Corruption is the first book of a trilogy, covering the time from misdiagnoses to diagnosis, and from choosing and commencing treatment to being denied treatment. Through a long series of moves and counter moves, Neil was caught in the middle of a life and death chess game, against an opponent that was less than above board. This book is dedicated to everyone who feels abandoned by the very institutions we believed were established to safe guard our rights. Dean Fachon is publishing his son's story to commemorate Brain Tumor Awareness Month (May) and DIPG Awareness Day, which is May 17. Dean Fachon has a Bachelors Degree in English Literature from Colgate University and a Masters Degree in Technical Communication from Rensselaer Polytechnic Institute. He wrote technical publications for IBM and DEC, and is the author of Grand Illusion a treatise on fiat money. Dean's wife, Wendy,, is a writer for Natural Awakenings magazine, a contributing author of Shining a Light on Grief, Volume 2, author of The Difference Maker, and host of the Story Walking Radio Hour here on D7RN. DIPG: Eternal Hope versus Terminal Corruption DIPG, by author Dean Fachon is the 1st book of a trilogy, covering the time from misdiagnoses to diagnosis, and from choosing and commencing treatment to being denied treatment. Through a long series of moves and counter moves Neil, Dean's son was caught in the middle of a life and death chess game…https://dipgbook.com/ Call In and Chat with Deborah during Live Show: 833-220-1200 or 319-527-2638 Learn more about Deborah here:  www.lovebyintuition.com

Nora Schmidt noticed that her daughter Maddie's right eye was crossing inward, one day after she had gone to her eye doctor for a simple eye appointment in which everything looked fine. This situation, which according to her Eye Doctor and a Pediatric Opthamologist could have been a common condition known as Strabismus, but  instead turned out to be DIPG. Nora will talk about Maddie's journey which lasted for just over 10 months before her passing from this Pediatric Brain Cancer on December 31st of 2022. 

In this premier episode, Matt and Nick discuss cutting edge Science topics and decide, once and for all, has Science gone too far? Topics discussed include Artificial Intelligence and its inherant dangers, Diffuse intrinsic pontine glioma (DIPG), human bias in data, social media echo chamber, Spin Launch, satellites, G Force, space debris, and ancient building materials.  Sources: Scientists use AI to identify new drug combination for children with incurable brain cancer - The Institute of Cancer Research, London (icr.ac.uk) What it is and why it matters | SAS SpinLaunch If you want to recommend some Science Topics for us to discuss on a future episode of this podcast, you can join our Facebook Group here: The Chamber of Knowledge | Facebook . 

Becoming a Nurse and caring for Pediatric Cancer patients is a very difficult job in itself and becoming a nurse and working with DIPG patients and their families makes their jobs only more difficult. On today's podcast Nurse Navigators Leslie Jared and Lauren Kirages will talk about their experiences working with these kids who have been diagnosed with this type of Brain Cancer which, as we know, still does not have any survivors after a certain time period. Leslie and Lauren will  speak very passionately about the love that they have for the kids and families that they work with, and the passion that they have for their roles in this DIPG fight.

Grace Wethor began her life as a self described "Super Active Child" as she was a Dancer, a member of a World Championship Synchronized Figure Skating Team at the age of 9, then joining the Circus when she was 11, hanging by her toes 30 feet in the air on a trapeze.  When she was 13 years old, Grace was diagnosed with a Brain Stem Glioma which is a form of Pediatric Brain Cancer which looks a great deal like DIPG but has never been diagnosed as such.  Grace was diagnosed on January 9th of 2015 and now nearly 9 years later has been going strong professionally as she is an Award Winning Film Director, and Actress, a best Selling Author, and the CEO of her own company known as GRAE Entertainment. Grace is also a very public advocate for the cause of Pediatric Brain Cancer as she has made it a mission to help as many of her peers with different forms of Brain Cancer as she can.

Amanda DeCicco's son Jayden was born while Amanda was a high school senior. After completing her studies  and raising Jayden , he was diagnosed with DIPG at the age of 6. On today's podcast Amanda will talk about what her beloved son went through before his passing in April of 2015, how she turned her grief into becoming a Born Again Christian, writing a book called THE HERO WITHIN, and helping other families who are in their own Pediatric Cancer battles.

Christie Blankenship and her husband decided to adopt 16 month old Reese in 2017 after she was so abused by biological family members that Reese was unable to to walk, talk, or see. 2 years later Reese was diagnosed with DIPG on May 29th of 2019, and exactly 4 years later on May 29th of this year she passed away from this dreaded form of Pediatric Brain cancer. This is a truly incredible story of a mother who did everything possible to make a life for her daughter that was worth living.  

15-year-old Austin Kahn passed away from a terminal brain tumor just days after his birthday. For his parents, Christopher and Jeanette Kahn, unity and good communication in the middle of tragedy helped keep their family together, even as it was falling apart. In this second part of a two-part series, Jeanette and Christopher share how their family learned to process and grieve the loss of their son. Together, they discuss the lessons of courage, determination, and acceptance Austin exemplified and the good work the parents are doing in Austin's memory through the “Alex's Lemonade Stand Foundation for Childhood Cancer.”  Even though we live in challenging times, we can become Relentlessly Resilient as we lean on and learn from one another's experiences. Hosts Jennie Taylor and Michelle Scharf are no strangers to overcoming adversity; Michelle lost her husband to cancer, while Jennie's husband, Major Brent Taylor, was killed in the service of our country. Their stories bond them together, and now listeners can join them weekly as they visit with others enduring challenges and who teach us how they are exercising resiliency, finding value in their grief, and purpose in moving forward.  Listen to the Relentlessly Resilient Podcast regularly on your favorite platform, at kslpodcasts.com, kslnewsradio.com, or on the KSL NewsRadio App. Join the Resilience conversation on Facebook at @RelentlesslyResilient and Instagram @RelentlesslyResilientPodcast. Produced by KellieAnn Halvorsen.See omnystudio.com/listener for privacy information.

On today's podcast Stacy Sands will talk about her son Hudson, who was 5 years old in October of 2019  when he was diagnosed with DIPG. Despite his diagnosis, Hudson was able to travel to such places as Galveston  Texas, San Diego California, and the Missouri Ozark Mountains with his family, before he passed away on December 18th of 2020. Stacey will also discuss the 4 different hospitals that Hudson went to as she and her husband Todd did everything possible to help their beloved son.

15-year-old Austin Kahn passed away from a terminal brain tumor just days after his birthday. For his parents, Christopher and Jeanette Kahn, unity and good communication in the middle of tragedy helped keep their family together, even as it was falling apart. In this first part of a two-part series, Christopher shares Austin's story of courage, determination, and acceptance in the face of death. In the second part of the series, his wife Jeanette joins to talk about the grief process and the good work the parents are doing in Austin's memory through the “Alex's Lemonade Stand Foundation for Childhood Cancer.”  Even though we live in challenging times, we can become Relentlessly Resilient as we lean on and learn from one another's experiences. Hosts Jennie Taylor and Michelle Scharf are no strangers to overcoming adversity; Michelle lost her husband to cancer, while Jennie's husband, Major Brent Taylor, was killed in the service of our country. Their stories bond them together, and now listeners can join them weekly as they visit with others enduring challenges and who teach us how they are exercising resiliency, finding value in their grief, and purpose in moving forward.  Listen to the Relentlessly Resilient Podcast regularly on your favorite platform, at kslpodcasts.com, kslnewsradio.com, or on the KSL NewsRadio App. Join the Resilience conversation on Facebook at @RelentlesslyResilient and Instagram @RelentlesslyResilientPodcast. Produced by KellieAnn Halvorsen.See omnystudio.com/listener for privacy information.

After having difficulty controlling the ball during soccer practice and having her leg give out after that, Mina Carrol's 7 year old daughter Philomena  was diagnosed with the most dreaded DIPG.  During the so called "Honeymoon" period when Philomena was initially feeling well enough after radiation treatment, she and her family were able to travel to Rome to meet the Pope. Unfortunately Philomena's condition worsened after that and she passed away just 10 months after her diagnosis. Mina will also discuss her STORM THE HEAVENS FUND which is doing everything possible to support others in this DIPG fight. 

Katie Thornhill and I continue the conversation we began last week about the aftermath of her son Marcus's diagnosis with DIPG brain cancer and his homegoing just shy of his eighth birthday.  We address issues related to lack of control, surrender, finding peace, and the importance of vulnerability in our journeys.  Katie also shares about her own podcast and how we can truly be "anchored in always."  Our discussion is uplifting and encouraging, and I believe you'll be blessed by listening in!   Click HERE to visit Katie's website, where you can find a link to the "Anchored in Always" podcast and her Christian Life Coaching information.Click HERE to connect with the Marcus Strong Foundation on Facebook. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org