Podcasts about Cerebral palsy

Living with mild cerebral palsy can sometimes feel like living between two different worlds.In the non-disabled world, people may immediately see me as disabled. They may notice the way I walk, make assumptions about what I can do, or even question whether I belong in certain spaces.Then there is another side of the experience.Within the disabled community, I have also had people minimize my disability or suggest that I am not disabled enough because some of the things I struggle with are not immediately obvious.That can leave you in a strange middle ground.In this episode of Living with Mild Cerebral Palsy, I talk openly about what that experience has felt like for me. I get into wanting to fit in sometimes, feeling guilty because other people have greater physical challenges, constantly feeling like I need to prove myself, and wondering whether the drive to keep accomplishing more can sometimes come from a lifelong fear of being behind.I also talk about something I think is especially important.Your experience does not have to be compared to somebody else's before it becomes valid.Someone else having a different experience with cerebral palsy does not erase yours. Your ability to adapt does not mean things have always been easy. And appreciating what your body allows you to do does not mean you are never allowed to feel frustrated, exhausted, or weighed down by it.Sometimes you can appreciate yourself and still wish you could blend in.Sometimes you can be optimistic and still acknowledge that this is hard.Sometimes simply giving yourself permission to recognize those thoughts is part of learning more about yourself.If any part of this episode connects with you, spend a few minutes writing about your own experience. You do not need a perfect journal practice. Write a few sentences, make a list in your phone, or simply put the thoughts somewhere outside of your head.You deserve to know how you feel about your own life.Get the journal prompts that will help you to continue to unpack your thoughts and feelings:https://yourlevelfitness.com/email

OAKLAND, CALIFORNIA: In 2009,  a five year old vanished after being left in a car for just a few minutes. Hassani Campbell was diagnsed with Cerebral Palsy and wore leg braces- leaving his family to believe he had to have been abducted.Where is Hassani Campbell?The Where are they? Podcast can be found on Facebook, Instagram, YouTube, and Twitter with regular case updates.Follow us for case updates & information: Facebook: www.facebook.com/wherearetheypodcast Instagram: @thewherearetheypodcast Email me: Canwefindthem@gmail.com Join our online detective group at Patreon & help support the families of the missing: ⁠⁠⁠⁠www.patreon.com/wherearetheypodcast⁠⁠⁠⁠Support our mission: ⁠⁠⁠⁠https://www.buymeacoffee.com/wherearethey⁠⁠

NB. Moderate post processing was applied to this recording due to the higher than usual ambient noise in the conference hall.Differences in Bone Mineral Density Response to Bisphosphonate Treatment by Stage in Puberty in Children with Cerebral Palsy

NB. Moderate noise reduction and post processing was used due to ambient noise in the corridor next to the podcast booth.Back to the Future: Celebrating 80 Years of Science at AACPDM and Envisioning an Even Brighter FutureDiane is a recently retired tenured Senior Investigator at the National Institutes of Health (NIH). She is internationally recognized for her research which focuses muscle strengthening and on the design of device-augmented interventions to promote activity, mobility and neuroplasticity in infants and children with cerebral palsy, including a pediatric strengthening exoskeleton and a smart harness to promote infant mobility. Diane pioneered the use of mobile brain imaging technologies to evaluate cortical activity during functional motor tasks and for neurofeedback training. She has over 175 peer-reviewed publications and was an Associate Editor of Neurorehabilitation and Neural Repair. Diane is a Past President of the Gait and Clinical Movement Analysis Society and the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) - the first physical therapist to serve in that role. She is a co-founder of the International Alliance of the Academies of Childhood Disabilities, an international effort to support the scientific education of multidisciplinary health professionals caring for children with CP and their families. She has received multiple awards, including the 2024 Mentorship award from the  AACPDM and the 2025 Lifetime Achievement award from the Cerebral Palsy Foundation

Frame Running Training For Youth with Cerebral Palsy and Similar Neurodisabilities: A Multicentre Randomized, Waitlist Controlled Trial of Fitness, Fatigue and Mobility Outcomes.Gayle G. Arnold Award Finalist

I launched another podcast.This one is called Living With Mild Cerebral Palsy, and unlike some of the other shows I do, I am not committing to a rigid posting schedule.The goal is simply to have a dedicated place where I can share more of this part of my life.Some episodes will be solo conversations where I talk through my own experiences, thoughts, frustrations, and perspectives around living with cerebral palsy. Others will feature conversations with people who have cerebral palsy and want to share their own experiences.I also talk in this episode about how this new feed fits alongside The Cerebral Palsy Perspective Podcast, which I co-host with Chad Williams. I really like the way Chad and I approach those interviews and the way he helps people tell their stories. But coordinating three schedules can sometimes mean waiting weeks or even months to get somebody on.This new feed gives me another place to share conversations in the meantime, especially when someone's story or perspective connects directly to cerebral palsy.There is already a trailer episode out, along with upcoming conversations with Zach and David, plus a solo episode where I get into my perspective on ableism within the cerebral palsy community.I have a lot of podcast feeds already, so I do not add another one lightly.But this is a part of my life I think is worth talking about more openly, and I wanted a space where I could do that without forcing it into a set schedule.Brand new to Your Level Fitness?https://yourlevelfitness.com

Gayle G. Arnold Award FinalistSpecificity of Training Effects of a Power-Based Training Program on Medial Gastrocnemius Muscle Architecture and Performance in Youth with Cerebral Palsy.Dr Noelle Moreau is Professor of Physical Therapy and Associate Dean of Research at Louisiana State University Health Sciences Center New Orleans. Dr Moreau was the Gayle G. Arnold Award winner in 2025 and is also a finalist for the Gayle G Arnold award for 2026. Presentation: Specificity of Training Effects of a Power-Based Training Program on Medial Gastrocnemius Muscle Architecture and Performance in Youth with Cerebral Palsy.Recorded LIVE at AACPDM 2026 Philadelphia

“Assistive” devices are often bulky, but not the one Jeremiah Robison, founder and CEO of Cionic, has developed. His company's FDA-cleared Neural Sleeve is worn on the leg and combines wearable sensors, machine learning, and functional electrical stimulation to improve gait for people dealing with foot drop, spasticity, and other mobility-limiting neurologic conditions. Host Geoff Pardo shares a very personal story of a spinal procedure that took away much of his right-side mobility and how the Neural Sleeve has helped with his recovery. Robison also shares the origins of the technology, starting with his daughter's cerebral palsy diagnosis. Their conversation breaks down how the system works, including IMUs for gait kinematics, surface EMG for muscle signals, and why precise timing in the walking cycle changes everything.  Medtech Talk Links:  Cambridge Healthtech Institute   Medtech Talk  Gilde Healthcare   Cionic Links: Cionic 

(Sep 15, 2026) The Rail Trail connecting Tupper Lake and Lake Placid has become one of the Adirondacks' biggest attractions. A Saranac Lake man with cerebral palsy is on a journey to walk all 34 miles of it. Also: Half of New York's households are now eligible to receive discounts on their monthly utility bills thanks to an expansion of the state's energy affordability program.

In this episode of the Crazy Wisdom Podcast, host Stewart Alsop sits down with Neil Bortolus, founder of Esteem Biomechanics and Stewart's personal trainer for the past year and a half, to explore the intersection of functional movement, human biology, and emerging technology. Their conversation ranges from the principles of biomechanics and the evolutionary blueprint of human movement—standing, walking, running, and throwing—to the dangers of modern movement practices that prioritize aesthetics over function, the role of fascia and connective tissue in chronic pain, and why most gym exercises fail to respect our biological needs. They tackle bigger questions about where technology is taking us, from AI and LLMs replacing human cognitive work to transhumanism and whether we're headed toward a cyberpunk dystopia or a solarpunk regenerative future, all while emphasizing the importance of first principles thinking, the need for humans to remain in the loop, and creating environments that promote biological and mental regeneration rather than degeneration. Visit Neil's website atesteembiomechanics.comTimestamps00:00 Stewart introduces Neil Bortolus, founder of Esteem Biomechanics and his trainer for a year and a half, discussing their interesting conversations about movement and health05:00 Discussion shifts to negative and positive pressure in the body, how athletes naturally create proper core tension, and the differences between training high-performance athletes versus clients with cerebral palsy or stroke recovery10:00 Stewart shares his journey through yoga and discovering modern postural yoga's surprising origins in late 1800s British calisthenics mixed with Indian anticolonial movements, questioning why modern movement practices are fundamentally flawed15:00 Neil explains functional patterns' first principles approach, emphasizing standing walking running and throwing as evolutionary movement patterns that should guide all exercise design20:00 Conversation explores Brian Johnson's technology-focused longevity experiments versus optimizing natural biological function, questioning whether peak biology or technology interventions lead to better health outcomes25:00 Neil describes environmental factors like Southern California and Hawaii providing optimal conditions for human health through fresh food, sunlight, and natural grounding environments year-round30:00 Discussion of solarpunk versus cyberpunk futures, examining how technology could either support biological health or create dependency, with Stewart sharing his Invisalign experience as cautionary tale35:00 Neil and Stewart analyze education systems, influencer marketing, and Jacques Ellul's concept of technique autonomously taking over human goals and replacing both muscle and mental labor40:00 Neil questions Stewart's first principles for approaching technology, leading to discussion about using AI to accomplish tasks faster while maintaining human oversight and decision-making authority45:00 Stewart explains the black box problem with LLMs and neural networks, admitting he's built applications he can't fully understand, questioning whether understanding mechanisms matters if outputs work50:00 Debate about benevolent AI governance using El Salvador's transformation as analogy, questioning whether society should surrender control to AI systems for farming or other critical infrastructure55:00 Final discussion on determinism versus free will, alignment problems in AI development, and Neil's concept of regenerative versus degenerative environments for optimal human biological and mental healthKey Insights1. Movement training must be adapted to individual needs and capabilities rather than following a one-size-fits-all approach. Neil explains that working with clients ranging from those with cerebral palsy and stroke recovery to high-performance athletes requires fundamentally different techniques. While stroke and cerebral palsy clients experience every improvement as monumental, such as being able to walk a mile, elite athletes already possess optimal biomechanics and need only tiny refinements. The challenge lies in keeping athletes motivated through detailed adjustments while helping severely impaired clients build basic functions from the ground up.2. Modern fitness and yoga practices are built on flawed first principles that prioritize aesthetics over functional movement. The conversation reveals how modern postural yoga was actually invented in the late 1800s through a combination of British calisthenics and Indian anticolonial movements, not ancient wisdom as commonly believed. Similarly, conventional gym exercises and bodybuilding focus on how bodies look rather than how they function evolutionarily. The key insight from Functional Patterns methodology is that if a technique cannot help someone who is broken, it should not be applied to someone who is healthy. This principle exposes how much of modern fitness is based on working with people who are already genetically gifted rather than developing universally applicable methods.3. Human movement should be designed around four fundamental patterns that reflect our evolutionary blueprint: standing, walking, running, and throwing. These movements represent the biomechanical demands that shaped human evolution and remain essential for optimal health. Hunter-gatherer tribes that still exist today demonstrate this principle, as their members typically exhibit athletic builds, low body fat, minimal injury rates, and few mental health disorders despite having no access to modern gyms. The critical insight is that 80 percent of human movement occurs horizontally through space rather than vertically, yet most conventional exercises focus on vertical force vectors like squatting and deadlifting, which do not align with how humans actually move in nature.4. Technology should be used to optimize our environment for biological health rather than replace biological function entirely. The discussion contrasts two approaches to human enhancement: using technology to create better living conditions versus using it to bypass the need for healthy habits. Examples include using renewable energy to reduce electromagnetic frequency exposure, ensuring clean water access, and designing indoor lighting that mimics natural sunlight patterns. The key is maintaining environments that support regenerative rather than degenerative processes. This regenerative approach considers whether food, exercise, and environmental factors promote cellular regeneration and joint health, rather than simply preventing obvious harm.5. The rapidly changing technological environment is outpacing human biological adaptation in unprecedented ways. While human populations historically had thousands of years to develop epigenetic adaptations to their environments, such as Icelandic peoples developing larger bodies for heat retention or Sub-Saharan Africans developing efficient heat expulsion, modern society changes too quickly for such adaptation. The past two hundred years have seen dramatic shifts, and the pace is accelerating rather than slowing. Most dramatically, the media environment is changing fastest of all, particularly with AI development creating a cognitive flywheel where staying current requires constant attention to collective knowledge networks like Twitter and Reddit, leaving those outside these loops increasingly disconnected from technological reality.6. AI and large language models represent both opportunity and risk depending on whether humans maintain agency in their use. The conversation distinguishes between using AI as a tool to accomplish tasks more efficiently while keeping humans in control versus allowing AI to make decisions autonomously. The example given involves using AI to complete projects that previously required hiring people, eliminating interpersonal problems while still maintaining human oversight and learning. However, there is concern that many people are beginning to ask AI how to make every decision, effectively abdicating their agency. The critical variable in any AI interaction is actually the human prompter and their instructions, yet this is often overlooked by AI developers who believe in determinism and lack of free will.7. Modern society operates within a deterministic framework where free will is exercised primarily in choosing which constrained environment to inhabit. Using the example of an accountant earning two hundred thousand dollars annually with a four hundred thousand dollar mortgage and three children in private school, Neil illustrates how most daily decisions are predetermined by earlier choices about environment and commitments. True free will exists at major life forks, such as choosing a career path or living situation, but day to day existence operates within deterministic constraints created by those choices. This insight applies to both human development and AI alignment, suggesting that the solution is not giving AI ultimate freedom but rather constraining its environment so that available options consistently benefit humanity, similar to how Functional Patterns constrains exercise choices to only those respecting biological blueprints.

Our guest this week is Jerry Rakfeldt of Santa Monica, CA who is an entrepreneur, marketing executive, disability advocate, co-founder of Growing Side By Side and Adrian's Place and perhaps most importantly, father of two including a son with cerebral palsy.Jerry and his wife Katty have been married for 23 years and are the proud parents of two children: Sofia (19) and Adrian (22) who has cerebral palsy. Together they founded Adrian's Place, a community activity center in Santa Monica, CA that offers a wide range of programs for youth and young adults with intellectual and physical disabilities. What makes Adrian's Place different is rather than operating as a traditional therapy center, Adrian's Place functions as a community-based activity center where independent providers deliver programs under one roof.It's an uplifting story about family, commitment to community and service all on this episode of the SFN Dad to Dad Podcast. Show LinksPhone – (310) 308-4149Email – Jerry@adriansplace.comLinkedIn - https://www.linkedin.com/in/jerry-rakfeldt-994848/Website – https://www.adriansplace.com/Website – https://www.adriansplacefoundation.org/  Special thanks to all those who supported the SFN U.S. Tour, a month-long, 50-state, 60+ stop tour that took place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network and distribute 1,000+ complimentary copies of our new book: Dads Raising Children With Special Needs & Disabilities: A Guide For 21st Century Dads. Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 900+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

Hear Joni share a touching story about a high school football star who finds a great way to show honor to his friend. -------- Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org Find more encouragement on Instagram, TikTok, Facebook, and YouTube.

Episode 157 of "The Total Podcast! With Phil Scott features: Lacey Richcreek - Lacey is not your typical recent college graduate - Lacey has battled Cerebral Palsy her entire life, and in spite of her physical disability, she goes for her goals. She has many followers on TikTok and Instagram, and tells her story in her own words. Lacey is an inspiring woman that we all can learn from. Learn about Lacey on this fascinating episode!Links for Lacey:https://www.instagram.com/lacey.richcreek/https://www.tiktok.com/@laceyrichcreekPhil Scott:https://www.instagram.com/podcastphil/

Message us!Every keyboard you've ever typed on started life as an assistive device. That's not just a factoid, it's the whole thrust of this episode. If you design for the people the market usually treats as 'niche,' you tend to build something better for everyone else too. This goes from wheelchairs to closed captions to AI training data, and gets more interesting at every stop.KG and Paul spent time in the Podcave with Pete Horsley, founder of Remarkable, the disability tech accelerator built by the Cerebral Palsy Alliance, talking about what happens when you design technology for the people the market usually leaves out. It's an impressive conversation. We hope you can join us.Once again, thanks to our friends at Annandale Cellars for the bottle: the Motherblock 2023 Red by the Chalmers family, a blend out of the Murray-Darling region created from Nero d'Avola, Sagrantino, Teroldego and Sangiovese. It pours a deep, almost violet cherry-red, with chocolate and dark cherry on the nose, fine tannins, a proper Italian dryness through the middle, and a long plummy finish that had both hosts reaching for a second pour.Get at least half a dozen of these (or half a dozen of any of Annandale Cellars' amazing wines) and get a 20% discount by using our code at checkout: DECANTEDSláinte friends! Great to see you again!!Useful resources from this episodeRemarkablePete Horsley on LinkedInCerebral Palsy AllianceNDIS (National Disability Insurance Scheme)Please feel free to send us your thoughts, comments and suggestions any time by leaving us a text/voice message via the link at the top of these show notes!Or talk to us through either of the options below.Email: askus@leadershipdecanted.com Website episode comments: www.leadershipdecanted.comDisagree or agree with anything we've said? How wrong are we?!? Are there any leadership topics you'd like us to discuss, or people you'd like us to talk to? Maybe you'd like to recommend a favourite wine!Whatever tickles your fancy, we'd love to hear from you!!

What if fitness was built around what your body can do instead of forcing your body into a program that was never designed for you?In this episode of The Your Level Fitness Podcast, I sit down with Richard Harrison, founder of Able Fitness & Nutrition, to talk about the training business he is building for people with cerebral palsy, physical disabilities, limitations, and anyone who needs a more individualized approach to fitness.Richard has cerebral palsy himself and began training seriously after realizing that cookie cutter exercise programs simply did not work for his body. Over time, he learned how to adapt exercises to himself, and that experience eventually became part of a much larger vision.For Richard, ABLE means All Abilities Welcome.We talk about why so many adults with cerebral palsy and other disabilities lose access to support as they get older, why traditional gyms can feel intimidating, and why confidence can be just as important as the exercises themselves.Richard also shares why he does not believe disability needs to become someone's entire identity or automatically determine what they are capable of doing. There may be movements that need to be changed. There may be physical hurdles to navigate. But that does not mean there is not another way to approach the goal.That philosophy is now becoming the foundation of Able Fitness & Nutrition.Richard currently works with people one on one and is building toward helping clients beyond his local community through individualized programming that can reach people around the world. Instead of relying on automated, one size fits all plans, his goal is to understand the person in front of him and adapt the training accordingly.We also talk about Richard's own confidence, the support system he had growing up, what it means to become comfortable doing things differently in the gym, and the opportunity for disabled trainers to help other people with disabilities see what may be possible for themselves.If you have cerebral palsy, another physical disability or limitation, or simply want to follow what Richard is building, connect with him below.Connect With Richard Harrison and Able Fitness & NutritionInstagram: https://www.instagram.com/able.fitness1/Facebook: https://www.facebook.com/profile.php?id=61575858020520TikTok: https://www.tiktok.com/@able.fitness1Richard encourages anyone interested in working with him to reach out directly through one of his social media accounts to start a conversation about individualized training.Connect With Daryl PerryInstagram: https://instagram.com/daryltperry

I'm joined by Mikael Avatar--a man who essentially shouldn't be here, let alone breaking records. Born clinically dead for 45 minutes with cerebral palsy, doctors didn't expect him to walk, yet he went on to set a Paralympic world record in the long jump. After spending 40 years trapped in chronic pain, he cracked the code to becoming pain-free and now spends his time dismantling the "performance masks" of high-achieving leaders, helping them move from the empty pursuit of status to genuine, lived freedom.02:33 The reality check: Gratitude for modern life's comforts04:24 Mikkel's background: From clinical death to world record07:08 Metaphysical views: Destiny, past lives, and soul contracts12:05 Mikkel's life philosophy: Conquering the mind and body16:26 The impact of anger and mastering emotional resilience23:36 The power of authenticity and living without masks27:19 The importance of clear boundaries and time management30:43 Mikkel's experience with world records and public recognition40:47 Developing a resilient mindset: Masks of high performers45:10 The role of self-awareness in performance and relationships54:40 The value of clear goals and intentional living01:00:17 Overcoming societal beliefs about disability and love01:04:38 Success stories: Love and achievement despite cerebral palsy01:08:57 Case studies: Breakthroughs in coaching and personal growthFor everything mentioned here, read: Defying dire destiny [with Mikael Avatar]

Surviving eight shots of Narcan at twelve years old is one hell of an introduction to chronic illness, and for Haylee, that was just the tip of the iceberg. Meet Haylee, a master's student living with an absolute alphabet soup of diagnoses, including Cerebral Palsy, Complex Regional Pain Syndrome (CRPS), ARFID, AuDHD, OCD, and a recent addition of Bipolar disorder. In this raw and intimate conversation, Haylee breaks down what life is actually like when your body and brain are constantly clashing. From surviving a 26-hour leg surgery and an accidental morphine overdose at just twelve years old, to navigating the cold, isolating reality of transitioning out of pediatric care, Haylee doesn't hold back. She opens up about the trauma of medical PTSD, getting an ableist university professor fired, navigating safe-food obsessions, and using music and song-writing to quiet her brain during manic episodes. It's an honest, eye-opening look at disability, identity, and proving everyone, including her doctors, wrong.Follow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

Casey Gonnella was 11 years old when he started Transcutaneous Spinal Neuromodulation (TSN). Fast forward a few years and he now a published co-author on an academic publication discussing his case study in the Journal of Neurophysiology, along with the grandfather of Spinal Neuromodulation, the late Dr Reggie Edgerton, Dr Susan Hastings and his mother, Jennifer Gonnella. In this conversation, Mindy Silva from WiredOn Development sits down with Dr Susan Hastings, Jen, and Casey to discuss their research paper, Neuromodulatory Strategies Overcome Multiple Inevitable Impairments of Cerebral Palsy, J. Neurophysiol. 2026, 136, 445–458, They address skepticism about Casey's diagnosis and detail his pre- versus post-TSN changes, including major gains in tactile sensation, easier movement, and new visual, auditory, cognitive, swallowing, and facial-expression awareness. The discussion emphasizes that the paper's key clinical contribution is proprioceptive derived intervention (PDI): training midline, alignment, head/neck control, weight shifts, and eyes-open/eyes-closed strategies to uncouple vision from movement, often using unstable surfaces. They also cover FES and TheraTogs, hands-on versus hands-off guidance, risks of reinforcing wrong patterns, individualized dosing, and the need for experienced clinicians who have evidence of long-term outcomes from children they'v worked with. 00:00 Welcome and Paper Intro 00:49 Honoring Reggie Edgerton 01:39 How the Paper Came Together 02:50 Did Casey Really Have CP 05:46 Life Before and After TSN 08:04 Early Choices and Surgery Pressure 11:02 PDI Explained and Midline 20:49 Hands On vs Hands Off 23:24 TheraTogs Reality Check 29:24 Eyes Closed Motor Learning 31:54 FES Before TSN and Weight Shifts 34:19 Pictures in the Brain 39:16 Barefoot Proprioception Tips 40:50 Ball Sitting Midline Test 42:19 Parenting Through TSN 45:22 Alignment Cues Tongue Trick 46:55 Vision Changes and CVI 52:10 Session Flow and Breaks 55:10 One Week Withdrawal Crash 01:04:11 Dialing Stim Too High 01:07:34 Slow Skill Ownership 01:10:21 Facial Expression Practice 01:11:16 Facial Expression Practice 01:13:21 Hidden Emotions in CP 01:15:50 TSN Changes Awareness 01:18:08 What the Paper Missed 01:22:55 Biggest TSN Improvements 01:24:21 Alignment and PDI Debates 01:29:14 How to Start Safely 01:35:45 Casey's Future Path 01:38:04 Research Still Evolving 01:41:37 Wrap Up and Resources

Surviving eight shots of Narcan at twelve years old is one hell of an introduction to chronic illness, and for Haylee, that was just the tip of the iceberg. Meet Haylee, a master's student living with an absolute alphabet soup of diagnoses, including Cerebral Palsy, Complex Regional Pain Syndrome (CRPS), ARFID, AuDHD, OCD, and a recent addition of Bipolar disorder. In this raw and intimate conversation, Haylee breaks down what life is actually like when your body and brain are constantly clashing. From surviving a 26-hour leg surgery and an accidental morphine overdose at just twelve years old, to navigating the cold, isolating reality of transitioning out of pediatric care, Haylee doesn't hold back. She opens up about the trauma of medical PTSD, navigating safe-food obsessions, and using music and song-writing to quiet her brain during manic episodes. It's an honest, eye-opening look at disability, identity, and proving everyone, including her doctors, wrong.Follow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

Casey Gonnella was 11 years old when he started Transcutaneous Spinal Neuromodulation (TSN). Fast forward a few years and he now a published co-author on an academic publication discussing his case study in the Journal of Neurophysiology, along with the grandfather of Spinal Neuromodulation, the late Dr Reggie Edgerton, Dr Susan Hastings and his mother, Jennifer Gonnella. In this conversation, Mindy Silva from WiredOn Development sits down with Dr Susan Hastings, Jen, and Casey to discuss their research paper, Neuromodulatory Strategies Overcome Multiple Inevitable Impairments of Cerebral Palsy, J. Neurophysiol. 2026, 136, 445–458, They address skepticism about Casey's diagnosis and detail his pre- versus post-TSN changes, including major gains in tactile sensation, easier movement, and new visual, auditory, cognitive, swallowing, and facial-expression awareness. The discussion emphasizes that the paper's key clinical contribution is proprioceptive derived intervention (PDI): training midline, alignment, head/neck control, weight shifts, and eyes-open/eyes-closed strategies to uncouple vision from movement, often using unstable surfaces. They also cover FES and TheraTogs, hands-on versus hands-off guidance, risks of reinforcing wrong patterns, individualized dosing, and the need for experienced clinicians who have evidence of long-term outcomes from children they'v worked with. 00:00 Welcome and Paper Intro 00:49 Honoring Reggie Edgerton 01:39 How the Paper Came Together 02:50 Did Casey Really Have CP 05:46 Life Before and After TSN 08:04 Early Choices and Surgery Pressure 11:02 PDI Explained and Midline 20:49 Hands On vs Hands Off 23:24 TheraTogs Reality Check 29:24 Eyes Closed Motor Learning 31:54 FES Before TSN and Weight Shifts 34:19 Pictures in the Brain 39:16 Barefoot Proprioception Tips 40:50 Ball Sitting Midline Test 42:19 Parenting Through TSN 45:22 Alignment Cues Tongue Trick 46:55 Vision Changes and CVI 52:10 Session Flow and Breaks 55:10 One Week Withdrawal Crash 01:04:11 Dialing Stim Too High 01:07:34 Slow Skill Ownership 01:10:21 Facial Expression Practice 01:11:16 Facial Expression Practice 01:13:21 Hidden Emotions in CP 01:15:50 TSN Changes Awareness 01:18:08 What the Paper Missed 01:22:55 Biggest TSN Improvements 01:24:21 Alignment and PDI Debates 01:29:14 How to Start Safely 01:35:45 Casey's Future Path 01:38:04 Research Still Evolving 01:41:37 Wrap Up and Resources

Go to www.joniradio.org today to see pictures of Jareth's precious family --------Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org. Find more encouragement on Instagram, TikTok, Facebook, and YouTube.

What does it really take to become a champion?On this episode of This Week in America with Ric Bratton, author Beth Watter shares the inspiring story behind The Making of Champions, a heartfelt book that celebrates courage, perseverance, friendship, and the power of believing in yourself.Inspired by her son Nik's journey with cerebral palsy, Beth reminds us that true champions aren't measured by trophies or victories—they're defined by resilience, compassion, determination, and the willingness to overcome life's greatest challenges.Whether you're a parent, educator, coach, or simply looking for an uplifting story, this conversation offers hope and encouragement for anyone facing obstacles.In this episode you'll discover:  How Beth's son inspired The Making of Champions  Why inclusion changes lives for children with disabilities   What defines a true champion beyond winning   The importance of resilience, kindness, and perseverance   How families can encourage confidence and self-belief in every child  This Week in America with Ric Bratton is one of America's longest-running and most respected syndicated radio shows and podcasts, featuring engaging conversations with today's leading authors, experts, innovators, and thought leaders. Heard on more than 100 radio stations and podcast platforms worldwide, the program delivers insightful interviews covering health, business, history, education, personal growth, current events, entertainment, and inspiring life stories. New episodes are available every week.If you're looking for inspiration, stories about overcoming adversity, or practical encouragement for families, educators, and young readers, don't miss this conversation with Beth Watter about The Making of Champions. Discover how courage, inclusion, resilience, and believing in others can help anyone become a true champion.Podcast KeywordsBeth Watter, The Making of Champions, cerebral palsy, disability awareness, inclusive children's books, children's author, inspirational books, resilience, perseverance, courage, overcoming adversity, parenting, Special Olympics, inclusion, friendship, family inspiration, motivational stories, children's literature, inspirational podcast, youth sports, champions, disability advocacy, self-confidence, believing in yourself, personal growth, education, This Week in America, Ric Bratton, syndicated radio interview, author interview

What does it really take to become a champion?On this episode of This Week in America with Ric Bratton, author Beth Watter shares the inspiring story behind The Making of Champions, a heartfelt book that celebrates courage, perseverance, friendship, and the power of believing in yourself.Inspired by her son Nik's journey with cerebral palsy, Beth reminds us that true champions aren't measured by trophies or victories—they're defined by resilience, compassion, determination, and the willingness to overcome life's greatest challenges.Whether you're a parent, educator, coach, or simply looking for an uplifting story, this conversation offers hope and encouragement for anyone facing obstacles.In this episode you'll discover:  How Beth's son inspired The Making of Champions  Why inclusion changes lives for children with disabilities   What defines a true champion beyond winning   The importance of resilience, kindness, and perseverance   How families can encourage confidence and self-belief in every child  This Week in America with Ric Bratton is one of America's longest-running and most respected syndicated radio shows and podcasts, featuring engaging conversations with today's leading authors, experts, innovators, and thought leaders. Heard on more than 100 radio stations and podcast platforms worldwide, the program delivers insightful interviews covering health, business, history, education, personal growth, current events, entertainment, and inspiring life stories. New episodes are available every week.If you're looking for inspiration, stories about overcoming adversity, or practical encouragement for families, educators, and young readers, don't miss this conversation with Beth Watter about The Making of Champions. Discover how courage, inclusion, resilience, and believing in others can help anyone become a true champion.Podcast KeywordsBeth Watter, The Making of Champions, cerebral palsy, disability awareness, inclusive children's books, children's author, inspirational books, resilience, perseverance, courage, overcoming adversity, parenting, Special Olympics, inclusion, friendship, family inspiration, motivational stories, children's literature, inspirational podcast, youth sports, champions, disability advocacy, self-confidence, believing in yourself, personal growth, education, This Week in America, Ric Bratton, syndicated radio interview, author interview

You can help the lonely by joining a Wheels for the World team today. Just visit www.joniandfriends.org for more details. -------- Thank you for listening! Your support of Joni and Friends helps make this show possible.     Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org   Find more encouragement on Instagram, TikTok, Facebook, and YouTube.

As part of the 2026 Developmental Disabilities Conference, Dr. Bhooma Aravamuthan, Medical and Research Director, Cerebral Palsy and Mobility Center, Washington University in St. Louis, discusses evidence-based approaches for treating spasticity and dystonia management. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 41464]

As part of the 2026 Developmental Disabilities Conference, Dr. Bhooma Aravamuthan, Medical and Research Director, Cerebral Palsy and Mobility Center, Washington University in St. Louis, discusses evidence-based approaches for treating spasticity and dystonia management. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 41464]

As part of the 2026 Developmental Disabilities Conference, Dr. Bhooma Aravamuthan, Medical and Research Director, Cerebral Palsy and Mobility Center, Washington University in St. Louis, discusses evidence-based approaches for treating spasticity and dystonia management. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 41464]

What if the word uncurable really just means a doctor has run out of ideas? This episode dares you to question that verdict and discover a functional medicine approach built on gut health, trace minerals, and nervous system repair that has helped many people defy impossible odds and rewrite a hopeless diagnosis into a story of hope.Host Jenn Trepeck welcomes Dr. Aaron Hartman to Salad with a Side of Fries, where he shares how chronic illness recovery starts with the basics everyone overlooks, and why patients in remission from conditions like multiple sclerosis prove healing is possible even when doctors say there is nothing more they can do.What You Will Learn in This Episode:✅ Why the label “incurable” often just means idiopathic (unknown cause) and how functional medicine looks deeper✅ How gut health, sleep, and stress form the foundation of true chronic illness recovery✅ The connection between hypermobility, dysautonomia, mast cell activation, and autoimmune disease✅ Why organ meats, bone broth, and trace minerals support the nervous system and healingThe Salad With a Side of Fries podcast, hosted by Jenn Trepeck, explores real-life wellness and weight-loss topics, debunking myths, misinformation, and flawed science surrounding nutrition and the food industry. Let's dive into real-life wellness and weight loss, including drinking, eating out, and skipping the grocery store.TIMESTAMPS:00:00 Introduction to this episode on functional medicine and rethinking an incurable diagnosis03:47 Dr. Aaron Hartman explains cerebral palsy and his daughter Anna's dire early diagnosis07:17 Why incurable and idiopathic are labels Dr. Hartman refuses to accept and exploring the mast cell activation, hypermobility, autoimmune, gut, and dysautonomia super syndrome15:28 The big three foundations of gut health, stress regulation, and quality sleep for healing21:41 Why trace minerals, organ meats, and bone broth matter for true nutrient-dense nutrition24:38 Practical sleep hygiene tips rooted in circadian rhythm and nervous system regulation28:58 Balancing sugar addiction and dopamine-driven cravings with real food healing habits31:43 How the body's self-healing capacity applies at any age, from childhood through adulthood37:12 Lipid medicine: Using fats to heal your bodyKEY TAKEAWAYS:

To have Dr. Morse answer a question, visit: https://drmorses.tv/ask/ All of Dr. Morse's and his son's websites under one roof: https://handcrafted.health/ Facebook Page: https://www.facebook.com/handcrafted.health 00:00:00 - Intro 00:00:40 - Letter from Jolie 00:14:43 - Spirituality and Life 00:35:42 - Detox Specialist Update  - Help required as head area not healing - Digestion help  01:06:24 - Fecal Leakage  01:16:59 - Neuromyelitis Optica Spectrum Disorder (NMOSD) - High Blood Pressure 01:31:00 - Eye Blurring  01:45:18 - Viral Protocol 01:53:58 - Cerebral Palsy 00:14:43 - Spirituality and Life How can we deal with heartbreak (and more) from a Spiritual perspective? 00:35:42 - Detox Specialist Update  - Help required as head area not healing - Digestion help  Nothing is helping the severe buzzing and burning in the nerves around my brain.  01:06:24 - Fecal Leakage  Fecal leakage when passing gas or experiencing peristaltic movement. 01:16:59 - Neuromyelitis Optica Spectrum Disorder (NMOSD) - High Blood Pressure I'm currently in a wheelchair and dealing with something that mirrors MS lesions on my spine, T3-T12. 01:31:00 - Eye Blurring  I have not seen a doctor since my last birth, at age 24. 01:45:18 - Viral Protocol What is the best juice to drink every day, or a fruit/veggie protocol, to stay hydrated and clean my body? 01:53:58 - Cerebral Palsy  This problem has made me unable to walk without a walking aid, and also caused me to have a severe stutter.

For parents with children who are disabled, there can be a haunting question - “Who is going to take care of my child when I die?” In the award-winning film “Paper Bag Plan” a father faces that possibility when he learns he's diagnosed with colon cancer. His 25-year-old son lives with Cerebral Palsy. And he attempts to make his son more independent by training him to be a bagger at a grocery store.  This movie is the latest feature by Oakland filmmaker Anthony Lucero. It's inspired by his mother and disabled brother, and it's now out on streaming platforms. The host of KALW's Sights and Sounds Show Jenee Darden, spoke with Lucero about his new movie. 

In this episode of Choose Your Perspective, I sit down with Jake to discuss his journey from a passionate sports fan to becoming a TEDx speaker and entrepreneur while navigating life with Cerebral Palsy. We explore how adversity shaped his outlook, why conserving energy and focusing on what matters most became essential, and how choosing gratitude over self-pity transformed his life.Our conversation dives into the importance of mental health, overcoming loneliness, building meaningful relationships, and discovering self-worth beyond appearance or circumstances. We also discuss faith, grief, taking action despite fear, and why the perspective we choose each day ultimately shapes the lives we lead.Whether you're facing your own challenges or simply looking for inspiration to live with greater purpose, this episode is a reminder that while we can't always control what happens to us, we can always choose how we respond.

The Doing Hard Things My Way 5K is back for its second year, and we're excited to share what makes this event so special.In this episode of the Cerebral Palsy Perspective Podcast, Chad and Daryl discuss the inspiration behind the annual Doing Hard Things My Way 5K, how it grew from a personal running journey into a community-focused event, and why inclusion remains at the center of everything it represents.What started as an idea to give back through the running community has evolved into an opportunity for people from all walks of life to come together, get active, and support one another. Whether you run, walk, jog, roll, or participate in your own way, this event is designed to meet you where you are.Chad shares how the race came to life, the impact of last year's event, and the partnership with Cerebral Palsy Strong. Daryl discusses how the event aligns with the Your Level Fitness philosophy of creating accessible opportunities for movement and community.In this episode, we discuss:• The origin of the Doing Hard Things My Way 5K• How running became a life-changing part of Chad's journey• Why inclusive fitness opportunities matter• The benefits of a virtual race format• How participants can complete the event from anywhere• Building community through movement and shared experiences• The role of social media in connecting participants• Race week details, team participation, and event goalsThe 2026 Doing Hard Things My Way 5K takes place from August 30 through September 5, giving participants an entire week to complete their 5K in whatever way works best for them.Ready to join us?Sign up here:https://runsignup.com/Race/Register/RaceGroup-1?raceId=187209Whether you're participating individually, joining a team, or creating your own, we'd love to have you be part of this year's event.Use #DoingHardThingsMyWay and #CerebralPalsyStrong during race week to share your experience and connect with the community.Thank you for listening, and we'll talk to you again next week.

Title: Becoming Strong By Never Giving Up As You Live Full OutShow Theme: Never Giving UpEpisode: 2026.12.26The Living Full Out Show with Nancy Solari invites you to discover the strength to keep going. You may feel discouraged after facing countless setbacks. Perhaps you are tempted to walk away from a dream that seems out of reach. Join Nancy as she explores how refusing to give up can help you achieve more than you ever imagined.Our first caller is a high school junior feeling the pressure of upcoming college applications and wonders how to create a fulfilling life. Nancy encourages him to look past what he should be doing and instead embrace what feels impossible. She asks him to dedicate his time to shadowing people and learning from their experiences. Tune in to understand why the most meaningful paths begin with a willingness to try.Our inspirational guest James Cox was born with cerebral palsy and went through a variety of mobility aids throughout his life. After being diagnosed with depression in his thirties, James went on to start his own Podcast called When Words Fail and supports those with the power of music. Today, James is guided by the belief that every moment of perseverance has the potential to impact someone in unexpected ways. Tune in to learn how staying committed could inspire change in both yourself and others.If you are facing something that feels hopeless, ask yourself how you can keep moving forward one step at a time. Rather than quitting when things get tough, remind yourself that your breakthrough may be just out of sight. Choosing persistence through the dark times is what it means to live full out.Become a supporter of this podcast: https://www.spreaker.com/podcast/living-full-out-show--1474350/support.

Zul Rodriguez: Cerebral Palsy, Highschool Drop Out, Teen Pregnancy, Motherhood, CHISME & MORE! Download Hily Dating App from the App Store or Google Play, or visit ⁠⁠⁠⁠⁠⁠https://hily.go.link/yDhNz⁠⁠⁠⁠⁠ •Don't forget to subscribe to the podcast for free wherever you're listening or by using this link: ⁠⁠⁠⁠⁠https://bit.ly/NochedePendejadasPodcast⁠⁠⁠⁠⁠ •If you like the show, telling a friend about it would be helpful! You can text, email, Tweet, or send this link to a friend: ⁠⁠⁠⁠⁠https://bit.ly/NochedePendejadasPodcast⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Follow Alannized on IG⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Follow Alannized on TikTok⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Follow Alannized on Twitter⁠⁠⁠⁠⁠  Learn more about your ad choices. Visit podcastchoices.com/adchoices

Why did Chad start running?What began as preparation for a Spartan Race became a complete transformation of his physical health, confidence, mindset, and sense of purpose.In this episode of Why Did You Start Running, Chad shares how a difficult period following COVID left him struggling with mobility, spasticity, self-doubt, and depression. Living with cerebral palsy, he found himself facing an important decision: continue down a path of inactivity or take a chance on himself and see what was possible.That decision led to his first 5K.Since then, Chad has logged more than 1,000 miles, completed dozens of races, earned a first-place age group finish, organized a charity virtual 5K, launched a scholarship program, and become a voice of encouragement within both the running and cerebral palsy communities.We also discuss the power of community, the mental health benefits of running, navigating grief, overcoming self-doubt, and how one small decision can create opportunities you never imagined.Whether you're a runner, someone living with a disability, or simply looking for a reminder of what's possible when you take a chance on yourself, this conversation is packed with inspiration and perspective.In This Episode• Why Chad signed up for a Spartan Race in 2022• Living with cerebral palsy and navigating physical challenges• How running helped improve mobility and confidence• The mental and emotional benefits of running• The importance of supportive communities• Running through grief and difficult life experiences• Finding purpose through helping others• Creating a scholarship program and charity 5K• Building confidence through personal growth• Why taking one chance on yourself can change everythingConnect With ChadInstagram: https://www.instagram.com/chadwillia1/Learn More About Cerebral Palsy PerspectiveWebsite: https://cerebralpalsyperspective.comIf this episode encouraged you, share it with someone who needs a reminder that progress doesn't require perfect circumstances. Sometimes the biggest transformations begin with a single decision to try.

In this special episode of The Cerebral Palsy Perspective Podcast, Chad Williams and Daryl Perry welcome Luke, the first recipient of the Doing Hard Things My Way Adaptive Athlete Scholarship.After reviewing hundreds of applications, Luke's story stood out because of his determination, leadership, athletic accomplishments, and commitment to helping others. A recent high school graduate from Alabama, Luke has spent the last four years competing in football and track while developing a passion for adaptive athletics and disability advocacy.During this conversation, Luke shares how he unexpectedly found his love for sports, what athletics taught him about teamwork and leadership, and how discovering adaptive sports opened new possibilities for his future. He also discusses his decision to pursue a career in physical therapy and his goal of helping other individuals with disabilities discover opportunities in adaptive athletics.The conversation highlights the power of community, the importance of creating opportunities for others, and what it means to truly do hard things your own way.In This Episode• Meet Luke, the first Doing Hard Things My Way scholarship recipient• How a friend's encouragement led him into athletics• Lessons learned through football and track and field• Why teamwork matters beyond sports• Discovering adaptive athletics and new opportunities• Attending the University of Alabama's adaptive athletics program• Pursuing a future career in physical therapy• Advocating for people with disabilities in sports• The impact of mentorship, support, and community• What it means to build a future centered around helping othersAbout The ScholarshipThe Doing Hard Things My Way Adaptive Athlete Scholarship was created to recognize adaptive athletes who demonstrate perseverance, determination, leadership, and a commitment to making a difference in the lives of others. Luke's story embodies those values and serves as an inspiration for athletes and advocates alike.Connect With Luke:https://www.instagram.com/luke__ramos_Connect With ChadInstagram: https://www.instagram.com/chadwillia1/Connect With DarylInstagram: https://www.instagram.com/daryltperryIf you enjoyed this episode, share it with someone who could benefit from hearing Luke's story. Conversations like these help create awareness, build community, and remind us of what's possible when we choose to keep moving forward.

ResearchWorks is heading to AACPDM 2026 in Philadelphia this year!We can't wait to see you there - it's a special 80th Annual Meeting for the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM).Join with us as we speak with Dr Kristie Bjornson - live from EACD 2026 in Galway Ireland, the final episode that we recorded on our European tour! A preview of what to expect from this year's annual congress and a look at the host city, Philadelphia!Register here:https://www.aacpdm.org/events/2026/registration

Episode Notes On E430, Andrew talks with Dr Dan Rosenfeld, award winning physchologist, stand up comic and author to talk about Cerebral Palsy; his experiences growing up with it, how they differ from mine, and so much more. We talk about his new book, The Confidence Equation: Three Keys to Unleashing Self-Confidence as an Introvert, plus a whole lot more. Enjoy! You can follow Dr. Dan here: @dr.dan.phd Episode sponsors: Episode Sponsors  Buy the new novella Descent here Are you looking for attendant care when you need it at your convenience? Check out your team, on tap www.whimble.ca Get 15% off your next purchase of sex toys, books and DVDs by using Coupon code AFTERDARK at checkout when you shop at trans owned and operated sex shop Come As You Are www.comeasyouare.com Order Notes From a Queer Cripple and hire him to speak on it by e-mailing andrew@andrewgurza.com US: https://us.jkp.com/products/notes-from-a-queer-cripple Canada: https://www.ubcpress.ca/notes-from-a-queer-cripple Support the show with a donation: https://patreon.com/disabilityafterdark This podcast is powered by Pinecast. This podcast is powered by Pinecast.

Helping Children Flourish: Parent-Informed Social Narratives to Support Readiness for Upper Limb Rehabilitation in Cerebral Palsy

Power mobility experience, meaning and outcomes for children with complex non-ambulant cerebral palsy: A scoping review

Health-Related Quality of Life after Guided Growth Treatment for Hip Displacement in Young Children with Cerebral Palsy

Non-invasive Measurement of work of breathing in children and young adults with high level cerebral palsy.

A Joni and Friends Family Retreat is a little slice of heaven on earth! Learn how you be part of providing a Christ-centered, accessible week of respite for families living with disability here. --------Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org. Find more encouragement on Instagram, TikTok, Facebook, and YouTube.

Brenna and Joe check out Sharon Draper's Out Of My Mind (2010) about Melody, a non-verbal girl with Cerebral Palsy who wants to be able to communicate more than anything.Unlike so many other books about disability, however, this isn't a book about how Melody changes the world...and it's better for it!Plus: exceptional Middle Grade fiction; resisting the temptation of a fantasy ending; and garbage children and systemic barriers.Wanna connect with the show? Follow us on Instagram and BlueSky @HKHSPod or use the hashtag #HKHSPod:> Brenna: @brennacgray> Joe: @bstolemyremote (Instagram) or @joelipsett (BlueSky)Have a mail bag question? Email us at hkhspod@gmail.com Theme music: Rewind Kid "Rhythm Revolution" Hosted on Acast. See acast.com/privacy for more information.

When looking into tethered oral tissues, it is easy to focus entirely on visual structural appearance. However, judging a restriction by looks alone frequently misses the true clinical picture. Real progress happens when healthcare providers shift the diagnostic paradigm away from what a tie looks like and focus entirely on how it affects dynamic function over a patient's lifespan.In this episode, Hallie sits down with Dr. Richard Baxter, DMD, MS, FAAPD, a board-certified pediatric dentist, founder of the Alabama Tongue-Tie Center, and lead author of the bestselling book Tongue-Tied. Dr. Baxter shares his personal and professional insights into the complexities of identifying oral restrictions, moving past basic anatomical definitions to explore how a tiny string under the tongue can alter systemic, long-term health.About the Guest: Dr. Richard BaxterDr. Richard Baxter is a board-certified pediatric dentist, a Fellow of the American Academy of Pediatric Dentistry (AAPD), a Diplomate of the American Board of Laser Surgery, and the founder of the Alabama Tongue-Tie Center. As an internationally recognized speaker and creator of the Tongue-Tied Academy, he has dedicated his career to educating healthcare providers and parents on the structural and functional impacts of oral restrictions. Having experienced a tongue-tie himself and treated his three daughters as infants, his dedication to the field is deeply personal. He resides in Birmingham, Alabama, with his family.Key Topics & TakeawaysSymptoms Over Appearance: Why a visual exam never tells the full story and why diagnostic protocols must prioritize symptom functional profiles over pure aesthetics.Groundbreaking Research in Complex Profiles: Dr. Baxter shares fascinating insights from recent research surrounding oral restrictions and their structural correlations to cerebral palsy.Buccal and Lip Ties Exploded: Clarifying the distinct functional impacts of cheek and lip restrictions, and how they play a role in infant feeding dynamics.The Interdisciplinary Standard: Best practices for post-operative care, follow-up timelines, and maintaining clear, collaborative communication lines across the therapy team.Soundbites"Common does not mean normal." "Digestion starts in the mouth.""Untie the shoelaces for proper function."Timestamps00:00:00 – Intro Hook: The Shoelace Analogy breakdown.00:01:03 – Guest Welcome: Dr. Richard Baxter joins the show.00:02:43 – Clinical Debate: Treating oral restrictions based on symptoms vs. appearance.00:06:51 – Collaborative Care: How a therapist should present a concise, one-page case review to a doctor.00:09:13 – The Post-Op Rule: Why myofunctional therapy is essential (The knee surgery comparison).00:11:51 – Clinical Truths: Why "common" does not mean "normal" when tracking snoring or mouth-breathing.00:13:08 – Complex Case Study: Dr. Baxter's landmark research on tongue-tie releases in children with Cerebral Palsy.00:20:27 – Digestion & The Nervous System: How poor swallowing mechanics trigger chronic fight-or-flight states.00:26:49 – Emerging Research: Survey insights on identifying and treating Buccal (cheek) ties globally.00:32:24 – The Bed-Wetting Link: The surprising connection between airway stress, heart peptides, and nocturnal polyuria.00:48:28 – Reclaiming "No-Man's Land": Why releasing ties between 6 months and 4 years old is critical for core brain development.Links & ResourcesRead the Best Selling Book: Tongue-Tied by Dr. Richard BaxterExplore Clinical Resources: Visit TongueTie.comWatch and Learn: Tune into Dr. Baxter's YouTube ChannelWORTH A LISTEN: CONTINUE YOUR JOURNEYEpisode 200: Functional Impact: When A Tongue Tie Is ACTUALLY A Tongue TieEP 348: Tongue Ties, Sleep Apnea & More: The Patient-Centered Approach to Airway DentistrySTAY CONNECTED & GROW YOUR PRACTICEJoin the conversation: Get behind-the-scenes insights, clinical pearls, and real conversations over on Substack. Hosted on Acast. See acast.com/privacy for more information.

What happens when the person keeping you alive is also the person roasting your life choices the hardest? If you're new to the show, Brock is our brilliant, hilarious resident intern who navigates life with Cerebral Palsy. But this week, we're turning the spotlight on the real hero of his life. His long-term care worker (and for sure NOT his wife) Katherine, joins the fellas to talk about the chaotic, beautiful, and hilariously messy reality of being a Personal Support Worker (PSW). From catastrophic bladder blunders involving white pants and aggressive speed bumps, to asking the highly inappropriate boundary questions everyone else is too polite to touch, this episode is a raw look at what happens when your medical partner feels less like a sterile clinician and more like a cranky old spouse. But again… Not his spouse. Follow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

Jerzy Gregorek (@TheHappyBody) is a 4x World Weightlifting Champion, co-founder of UCLA's weightlifting team, and co-creator, with his wife Aniela, of the Happy Body program. You can watch the documentary Prisoner No More, directed by Jeff Wolfe and produced by WolfePrideProductions.com, for free here: tim.blog/hardchoices. To fill out the form on Cerebral Palsy Research Project, visit tim.blog/cp.This episode is brought to you by:Matic the intelligent robot vacuum and mop that navigates obstacles and needs no babysitting: MaticRobots.com/TimOur Place's Titanium Always Pan® Pro using nonstick technology that's coating-free and made without PFAS, otherwise known as “forever chemicals”: FromOurPlace.com/TimTimestamps[00:00:00] Start.[00:01:29] The transformation I've been chasing for a decade.[00:02:39] When an unstoppable coach meets an immovable cerebral palsy diagnosis.[00:04:35] Three pounds to 170: the bench press that woke a brain up.[00:07:17] Navigating autism and building the basics of communication that sustain higher education.[00:10:41] Treadmills exhaust, athletes progress: why physical therapy stalled where coaching took off.[00:19:00] Lethargy, sleeping in the car, and the quiet power of resting energy.[00:20:22] The 16-inch box that opened the bathroom door — and everything after.[00:24:26] Micro-progressions, certificates, ceremonies, and writing history onto a blank brain.[00:29:16] Parental dedication and appreciation.[00:31:54] The adulthood gambit: quit piano, quit training — if you can stick an 18-inch jump.[00:35:14] License plates as the gateway drug from counting to math five hours a day.[00:40:04] Jerzy's coaching style doesn't court approval.[00:42:42] Genghis Khan vs. Admiral Yi Sun-Sin vs. Jerzy vs. Tae Jin.[00:46:35] In search of the science behind such transformations: 25 patients, five years, and a method built to be replicated (interested researchers, visit tim.blog/cp).[01:05:39] Hard choices, easy life — and the call to find your starting point.*For show notes and past guests on The Tim Ferriss Show, please visit tim.blog/podcast.For deals from sponsors of The Tim Ferriss Show, please visit tim.blog/podcast-sponsorsSign up for Tim's email newsletter (5-Bullet Friday) at tim.blog/friday.For transcripts of episodes, go to tim.blog/transcripts.Discover Tim's books: tim.blog/books.Follow Tim:Twitter: twitter.com/tferriss Instagram: instagram.com/timferrissYouTube: youtube.com/timferrissFacebook: facebook.com/timferriss LinkedIn: linkedin.com/in/timferrissSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What do you do when you're born with a brain-body communication glitch?. If you're Dr. Dan, you don't just "manage". You go out and collect a PhD, a Paralympic gold medal in table tennis, and a career as a dating coach just to keep things interesting. This week, the fellas sit down with the legendary Dr. Dan to talk about life with Spastic Quadriplegic Cerebral Palsy. Dan gets real about the "Super Crip" pressure to be ten times better than everyone else just to be seen as equal. But the real meat is in the mindset. As a psychologist and author of The Confidence Equation, Dan breaks down the "veil of misperception," the toxic trap of Instagram comparisons, and why your self-doubt is actually just a bunch of external voices living rent-free in your head. You can find more of Dr. Dan on Instagram: @dr.dan.phdFollow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

What happens to patients with disabilities when the government signals their lives don't matter, and what does that mean for the doctors fighting alongside them? Ashna Shome, a pediatrics resident with cerebral palsy, joins the show to discuss her KevinMD article, "The impact of policy cuts on ableism in health care." She explains how proposed Medicaid cuts, the rollback of physical access requirements for federal buildings, and harmful rhetoric around autism and vaccines are compounding to create a more hostile environment for the one in four U.S. adults living with disabilities. You will hear how anti-vax discourse tacitly suggests that developmental disabilities are worse than death, why she now relies almost exclusively on the American Academy of Pediatrics as a trusted source of health information, and how her own experience navigating medicine with cerebral palsy has shaped her advocacy. Shome also makes a compelling case for physician unionization as a tool for disability justice, arguing that the artificial barrier between doctor and patient must be dismantled. If you care about disability rights, health equity, or the future of physician advocacy, this conversation demands your attention. Partner with me on the KevinMD platform. With over three million monthly readers and half a million social media followers, I give you direct access to the doctors and patients who matter most. Whether you need a sponsored article, email campaign, video interview, or a spot right here on the podcast, I offer the trusted space your brand deserves to be heard. Let's work together to tell your story. PARTNER WITH KEVINMD → https://kevinmd.com/influencer SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended

Recap and review the top pearls from episodes #120: Muscular Dystrophy, #141: Cerebral Palsy from Birth to Adolescence & #126: Trisomy 21 with a few members of our production team! It's Fables from the Cribside! (FFTC), our series providing a rapid review of recent Cribsiders episodes for your spaced learning.