Podcasts about Pediatric intensive care unit

Send us a textGet to know Maria Hoegh, ARNP!Maria Hoegh is a board-certified Family Nurse Practitioner. She received her Doctor of Nursing Practice from Creighton University in 2021, and recently moved from Utah where she was practicing in a Family Medicine clinic.Prior to the start of her career as a Nurse Practitioner, Maria's nursing career began in 2013 after graduating with her BSN from Clarkson College. She has worked as a Pediatric Emergency nurse at Blank Children's Hospital, and she also worked at the University of Iowa's Children's Hospital in both the Pediatric Intensive Care Unit and Pediatric Hematology/Oncology and Medical Surgical Unit.During this mini-episode, we asked Maria about:Why she chose to become a nurse practitionerWhat she wants her patients to knowHer special interests in medicine Her hobbiesHer family & petsand more! Listen now to this short, fun episode to get to know Maria Hoegh, ARNP.

CLICK VIDEO ABOVE to watch our entire interview. Shaped by Faith Radio Guest This Week is Brittany Spence. Brittany Spence, along with her husband David, founded the Forrest Spence Fund in memory of their son Forrest. Shortly after birth, Forrest developed complications and was transported to the Pediatric Intensive Care Unit at Le Bonheur Children’s Hospital in Memphis, Tennessee, where he fought valiantly for life for 55 days before his illness overtook him. The mission of the Forrest Spence Fund is to assist with the non-medical needs of critically or chronically ill children and their families throughout the Mid-South. Keep reading...

In this World Shared Practice Forum Podcast, Dr. Robert Tasker, Editor-in-Chief of the journal Pediatric Critical Care Medicine, discusses his efforts to help scholars improve their writing and get published. He emphasizes the importance of reading contemporary literature, mastering the basics of scientific writing, and engaging with references critically in the age of AI. LEARNING OBJECTIVES Upon listening to the presentation, learners will be able to: - Recognize the importance of reading and thoroughly engaging with references in scientific writing - Discuss the limitations and uncertain place of AI-generated content in academic writing - Identify the role of mentors, reviewers, and editors in ensuring academic rigor in scholarly work - Preview upcoming innovations in the journal of PCCM AUTHORS Robert C. Tasker, MBBS, MD ditor-in-Chief, Pediatric Critical Care Medicine Pediatric Critical Care Medicine Senior Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Professor of Anesthesia Harvard Medical School College Lecturer in Medicine and Graduate Tutor Selwyn College, University of Cambridge Traci Wolbrink, MD, MPH Senior Associate in Critical Care Medicine; Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Associate Professor of Anesthesia Harvard Medical School DATES Initial Publication Date: January 22, 2024. ARTICLES REFERENCED 2:17 https://pubmed.ncbi.nlm.nih.gov/33657612/ Tasker RC. Writing for PCCM: The 3,000-Word Structured Clinical Research Report. Pediatr Crit Care Med. 2021;22(3):312-317. doi:10.1097/PCC.0000000000002700 2:36 https://pubmed.ncbi.nlm.nih.gov/33790209/ Tasker RC. PCCM Narratives, Letters, and Correspondence. Pediatr Crit Care Med. 2021;22(4):426-427. doi:10.1097/PCC.0000000000002732 2:50 https://pubmed.ncbi.nlm.nih.gov/36165939/ Tasker RC. Writing for PCCM: Instructions for Authors. Pediatr Crit Care Med. 2022;23(8):651-655. doi:10.1097/PCC.0000000000003032 2:56 https://journals.lww.com/pccmjournal/fulltext/2022/08000/writing_for_pccm__instructions_for_authors.9.aspx Tasker, Robert C. MBBS, MD, FRCP1–3. Writing for PCCM: Instructions for Authors. Pediatric Critical Care Medicine 23(8):p 651-655, August 2022. | DOI: 10.1097/PCC.0000000000003032 5:21 https://pubmed.ncbi.nlm.nih.gov/35390115/ Horvat CM, Curley MAQ, Girard TD. Selecting Intermediate Respiratory Support Following Extubation in the Pediatric Intensive Care Unit. JAMA. 2022;327(16):1550-1552. doi:10.1001/jama.2022.4637 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Tasker RC, O'Hara JE, Wolbrink TA. The Future of Scholarly Writing in Pediatric Critical Care Medicine. 01/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/pccm-in-the-future-era-of-writing-and-reading-by-r-tasker-openpediatrics.

Adina Levitan, MS, CCLS is a certified child life specialist with a Master's degree in Child Life, Administration and Family Professional Collaboration from Towson University. To become a certified child life specialist Adina volunteered at Mt. Washington Pediatric Hospital and Johns Hopkins Children's Hospital. Following the completion of her Master's degree, Adina went on to complete three child life practicums at Sinai Hospital in Baltimore, University of Maryland in Baltimore and Children's National Medical Center in Washington DC. She completed her child life internship at Cohen Children's Medical Center in New Hyde Park, NY in the Pediatric Intensive Care Unit and the Emergency Department. Following her internship, Adina returned to Baltimore to work at Children's National Medical Center in DC where she provided child life services for children receiving surgery. Most recently, Adina provided child life services in the outpatient pediatric hematology/oncology clinic at Sinai Hospital. Adina is passionate about providing psychosocial services to pediatric patients and their families and improving the healthcare experience. Child Life On Call www.childlifeoncall.com Comfort Positions: A Guide for Parents and Healthcare Professionals https://www.megfoundationforpain.org/2023/03/14/comfort-positions-a-guide-for-parents-and-healthcare-professionals/ _______________________________________________________ Become a JOWMA Member! www.jowma.org  Follow us on Instagram! www.instagram.com/JOWMA_org  Follow us on Twitter! www.twitter.com/JOWMA_med  Follow us on Facebook! https://www.facebook.com/JOWMAorg/ Stay up-to-date with JOWMA news! Sign up for the JOWMA newsletter! https://jowma.us6.list-manage.com/subscribe?u=9b4e9beb287874f9dc7f80289&id=ea3ef44644&mc_cid=dfb442d2a7&mc_eid=e9eee6e41e

Today, Angela Barker, a former pediatric ICU nurse working in the area of pediatric private duty home care for pediatric and adult patients, describes the unique complexities of home care nursing for children. As an LNC, she also takes up the liability risks and the documentation to look for. This care may be short- or long-term. It may cover People who have seizures or who need to be on ventilators. Generally, people with different levels of skill and accreditation work in these settings. This care may be short- or long-term. It may cover People who have seizures or who need to be on ventilators. Generally, people with different levels of skill and accreditation work in these settings. Angela covers in detail the kinds of training those working within the auspices of a home nursing agency receive. Every effort is made to make sure they demonstrate competence and know what to do in emergencies. Such agencies also provide support and visit the practitioner to check on their skills and preparedness. In addition, they will provide a replacement should the usual practitioner be unable to come to the house. She emphasizes that his is a specialized area of nursing and a complex area in terms of liability. Be sure to watch Angela's show to get a sense of some of the risks and responsibilities of a nurse or an aide, or an LVN taking care of a patient in-home Learn more about Inside Home Care Nursing: Navigating Challenges & Liability-Angela Barker What are some of the short- and long-term conditions in children that require private duty home care? What levels of nursing care are needed for different situations? What kind of training do home health aides receive? Why is it so important for a home health worker of whatever level of training to come from an agency? What are some of the liability issues in home care? Listen to our podcasts or watch them using our app, Expert.edu, available at legalnursebusiness.com/expertedu. Announcing LNC Success™ Virtual Conference 8 October 26,27 & 28 LNC Success™ is a Virtual Conference 3-day event designed for legal nurse consultants just like you! Pat Iyer and Barbara Levin put together THE first Legal Nurse Consulting Virtual Conference in July 2020. They are back with their 8th all-new conference based on what attendees said they'd find most valuable. This new implementation and networking event is designed for LNCs at any stage in their career. Build your expertise, also attract higher-paying attorney clients, and take your business to the next level. After the LNC Success™ Virtual Conference, you will leave with clarity, confidence, and an effective step-by-step action plan that you can immediately implement in your business. Your Presenter of Inside Home Care Nursing: Navigating Challenges & Liability-Angela Barker Angela Barker is a Registered Nurse of 18 years. She began her career in the Pediatric Intensive Care Unit. Then she moved to San Antonio to work for Maxim Healthcare Services, a national company that specializes in providing Private Duty Nursing for pediatric and adult patients where she served as the Administrator. She decided to transition to Legal Nurse Consulting. As a Legal Nurse Consultant and the Owner of Covenant Legal Nurse Consulting, she helps attorneys Nationwide make sense of medical records, identify and locate expert witnesses. Connect with Angela www.CovenantLNC.com

In Today's episode, Saul talks to Abby Brockman about her life's journey and work. Abby Brockman is a Jewish board-certified clinical trauma chaplain. She received her Masters of Divinity from Boston University's School of Theology, completed her clinical residency at the Seattle VA hospital, and worked as a staff chaplain for many years at Seattle Children's Hospital on their Cancer Care Unit, Pediatric Intensive Care Unit, and In-patient Psychiatric Unit. She specializes in trauma, grief and loss, and end-of-life work and recently started her own private practice to provide spiritual care. Her work is deeply informed by an anti-oppression ethic, she's passionate about advocating for a systemic lens and power analysis in all conversations about mental health and wellness, and believes there are gateways to holiness everywhere. 

About our Guest: Jerry Zimmerman, M.D, PhD, FCCM is a Professor of Pediatrics at the University of Washington and the former Chief of the Division of Critical Care Medicine and the Director of the Pediatric Intensive Care Unit at Seattle Children's Hospital. He is a past president of the Society of Critical Care Medicine. Dr. Zimmerman is the co-editor of the textbook Pediatric Critical Care and is an accomplished researcher. He was a charter principal investigator in the Pediatric Acute Lung Injury and Sepsis Investigators (PALISI) network and is a co-principal investigator for the Stress Hydrocortisone in Pediatric Septic Shock (SHIPSS) trial that we will discuss later in this episode. Learning Objectives:By the end of this podcast, listeners should be able to discuss:The physiologic rationale supporting and opposing the use of corticosteroids in septic shock.The high-quality clinical evidence supporting and opposing the use of corticosteroids in septic shock.The current practice patterns among pediatric intensivists in prescribing corticosteroids in septic shock.The clinically relevant side effects associated with corticosteroids in septic shock.Future research of corticosteroids in septic shock with emphasis on the Stress Hydrocortisone in Pediatric Septic Shock (SHIPSS) study.How to support PedsCrit:Please rate and review on Spotify and Apple Podcasts!Donations are appreciated @PedsCrit on Venmo , you can also support us by becoming a patron on Patreon. 100% of funds go to supporting the show.To help improve the podcast, please complete our Listener Feedback Survey (< 5 minutes)!Thank you for listening to this episode of PedsCrit. Please remember that all content during this episode is intended for educational and entertainment purposes only. It should not be used as medical advice. The views expressed during this episode by hosts and our guests are their own and do not reflect the official position of their institutions. If you have any comments, suggestions, or feedback-you can email us at pedscritpodcast@gmail.com. Check out http://www.pedscrit.com for detailed show notes. And visit @critpeds on twitter and @pedscrit on instagram for real time show updates.Key reference:Zimmerman, Jerry J. MD, PhD, FCCM. A history of adjunctive glucocorticoid treatment for pediatric sepsis: Moving beyond steroid pulp fiction toward evidence-based medicine. Pediatric Critical Care Medicine: November 2007 - Volume 8 - Issue 6 - p 530-539Other references:  PMID: 32058370  PMID: 20228689  PMID: 29979221  PMID: 29490185  PMID: 29347874  PMID: 27695824  PMID: 18184957  PMID: 12186604 Support the show

About our Guest: Jerry Zimmerman, M.D, PhD, FCCM is a Professor of Pediatrics at the University of Washington and the former Chief of the Division of Critical Care Medicine and the Director of the Pediatric Intensive Care Unit at Seattle Children's Hospital. He is a past president of the Society of Critical Care Medicine. Dr. Zimmerman is the co-editor of the textbook Pediatric Critical Care and is an accomplished researcher. He was a charter principal investigator in the Pediatric Acute Lung Injury and Sepsis Investigators (PALISI) network and is a co-principal investigator for the Stress Hydrocortisone in Pediatric Septic Shock (SHIPSS) trial that we will discuss later in this episode. Learning Objectives:By the end of this podcast, listeners should be able to discuss:The physiologic rationale supporting and opposing the use of corticosteroids in septic shock.The high-quality clinical evidence supporting and opposing the use of corticosteroids in septic shock.The current practice patterns among pediatric intensivists in prescribing corticosteroids in septic shock.The clinically relevant side effects associated with corticosteroids in septic shock.Future research of corticosteroids in septic shock with emphasis on the Stress Hydrocortisone in Pediatric Septic Shock (SHIPSS) study.How to support PedsCrit:Please rate and review on Spotify and Apple Podcasts!Donations are appreciated @PedsCrit on Venmo , you can also support us by becoming a patron on Patreon. 100% of funds go to supporting the show.To help improve the podcast, please complete our Listener Feedback Survey (< 5 minutes)!Thank you for listening to this episode of PedsCrit. Please remember that all content during this episode is intended for educational and entertainment purposes only. It should not be used as medical advice. The views expressed during this episode by hosts and our guests are their own and do not reflect the official position of their institutions. If you have any comments, suggestions, or feedback-you can email us at pedscritpodcast@gmail.com. Check out http://www.pedscrit.com for detailed show notes. And visit @critpeds on twitter and @pedscrit on instagram for real time show updates.Key reference:Zimmerman, Jerry J. MD, PhD, FCCM. A history of adjunctive glucocorticoid treatment for pediatric sepsis: Moving beyond steroid pulp fiction toward evidence-based medicine. Pediatric Critical Care Medicine: November 2007 - Volume 8 - Issue 6 - p 530-539Other references:  PMID: 32058370  PMID: 20228689  PMID: 29979221  PMID: 29490185  PMID: 29347874  PMID: 27695824  PMID: 18184957  PMID: 12186604 Support the show

In this episode of the CancerDad podcast, Neyland's Dad updates us on Neyland's condition and journey with childhood cancer. He shares that they have reached a point where they have possibly switched from "if" to "when" regarding Neyland's condition. Although Neyland was considered stable, his parents were struggling to balance being by his side and taking care of their other children. Ultimately, they were left with no choice but to be by Neyland's bedside. Join Neyland's Dad as he takes us through the reality of childhood cancer and the impact it has on families.[00:02:18] The possibility of losing Neyland. [00:03:50] Letting go of a loved one. [00:09:44] Difficult decision making. [00:11:32] Hope During Terminal Illness.

In this episode of the CancerDad Podcast with Jason Pickel, he discusses his family's experience with childhood cancer and shares updates on his son Neyland's journey with cancer. Neyland's Dad talks about the many treatments, medications, infections, pain,  and how it has taken a physical, mental, and emotional toll on Neyland. The episode ends with a look into the Butterfly Fund of East Tennessee Foundation, an organization dedicated to the research, treatment, and services necessary to defeat childhood cancer.[00:01:46] Struggle to keep leukemia at bay. [00:04:47] Cherishing Family Time. [00:07:03] Health Emergency and Coping. [00:10:57] Small acts of kindness challenge.The Butterfly Fund - Supporting research, treatment, and services dedicated to the defeat of all childhood cancers

Bronchiolitis is a common lung infection in young children and infants. Approximately one-tenth of the affected children are admitted, and between 2 and 6% of them present a severe form and are referred to paediatric intensive care units. Nevertheless, the definition of severe acute bronchiolitis is mainly clinical and based on low levels of evidence.In this podcast, Dr Milési presents guidelines for managing infants under 12 months of age with severe bronchiolitis to create a series of pragmatic recommendations for a patient subgroup poorly individualised in national and international guidelines. Original paper: Clinical practice guidelines: management of severe bronchiolitis in infants under 12 months old admitted to a paediatric critical care unitSpeakersChristophe MILÉSI. Pediatric Intensive Care Unit, Montpellier University Hospital (FR).Mariangela PELLEGRINI. Dept. of Surgical Sciences, Uppsala University (SE).

Carolyn Koppel is the 2022 Recipient of the Passionistas Persist Visionary Award and the founder of Aaron's Coffee Corner. She started her amazing organization after spending many long nights in the Pediatric Intensive Care Unit (PICU) with her son, Aaron. Now, Aaron's Coffee Corner provides 24/7 access to free, fresh, quality coffee in the family great rooms of hospital PICUs. It is Carolyn's mission to provide the smallest of comforts to the family, friends and caregivers of critically ill children by providing something familiar in an unfamiliar place.  Learn more about Aaron's Coffee Corner. Learn more about The Passionistas Project.   Full Transcript: Passionistas: Hi, we're sisters, Amy and Nancy Harrington, the founders of The Passionistas Project. We started The Passionistas Project to tell the stories of women who are following their passions and fighting for equality for all. The more we spoke with women for our podcast, subscription box and the Women's Equality Summit, the more we saw a common trait in all of them — they are unstoppable. Whether they choose to use their voices to start a women-owned brand or fight for the rights of the marginalized, we found that all Passionistas are resilient, compassionate and PERSISTENT. Each year we honor women who embody these qualities by presenting the Passionistas Persist Awards. This episode of the podcast is an interview with one of the 2022 recipients. For our next award, we asked the Passionistas community to vote daily for the woman-founded or woman-centric non-profit they wanted to see honored with the Passionistas Persist Visionary Award. The nominees were 2Live2Cure, Aaron's Coffee Corner, Bâtonnage Women in Wine, Be Humanitarian, Home of Champions, Mary Rose Foundation, Miry's List, Paint the World and Project U First.     Our community cast the most votes for Carolyn Koppel, the founder of Aaron's Coffee Corner. She started her amazing organization after spending many long nights in the Pediatric Intensive Care Unit (PICU) with her son, Aaron. Now, Aaron's Coffee Corner provides 24/7 access to free, fresh, quality coffee in the family great rooms of hospital PICUs. It is Carolyn's mission to provide the smallest of comforts to the family, friends and caregivers of critically ill children by providing something familiar in an unfamiliar place.    So it was our honor to present the Passionistas Persist Visionary Award to Carolyn Koppel.   Carolyn: It's an honor to receive The Passionistas Persist Visionary Award for our efforts in providing direct support to people that often get overlooked in the medical jungle we call healthcare. Parents are a crucial part of the puzzle, and Aaron's Coffee Corner wants them to know that we see them. Providing a daily dose of comfort in the form of coffee and tea is the least we can do to acknowledge their courage, their grit, and determination while they care for their children in a uniquely stressful situation. Aaron's Coffee Corner is thrilled to accept this award on behalf of all of our persistent supporters who voted and acknowledged the work that parents, families, and caregivers and guardians do for their critically ill children, not only when they are in the hospital, but what they do for them every day. We would never have been able to make the progress we have made without the help of Keurig, Dr. Pepper, The Anne and Robert Lurie Children's Hospital of Chicago, and all of our supporters, family and friends who voted. They voted with their daily wordle or with their morning coffee or they stopped me on the street while I was walking my dog to tell me they were voting every day. And it was just such an honor to know that people were out there listening and supporting us and we had no idea. It's just an honor to receive this award. It's our first. We hope we set an example that will allow it to be the first of many. We are so proud of the organization because Aaron is a part of it and we are all in the now and people can see where the idea was born. And we just thank you for acknowledging us. It's really, really lovely.  Passionistas: Tell us what you're most passionate about.  Carolyn: My passions have changed over the years and right now the thing that is most important to me is helping other people. So as we have worked on our project, I see the impact that we have made and it creates a greater passion for me to continue what we're doing. So I think Aaron's Coffee Corner and my son Aaron are my drivers and they're my passion at the moment along with the rest of my family.  Passionistas: Tell everybody a little bit about Aaron. Carolyn: Aaron is 17 years old. We started Aaron's Coffee Corner when he was 13. He is nonverbal and non-ambulatory. He has an underlying disorder called Dihydropyrimidine Dehydrogenase Deficiency. Right now, he's the only living survivor of this disorder at this age, so we're very lucky to have him. And we've had great help along the way. Aaron is a critically ill child all the time. He is chronically ill, he suffers from epilepsy, but he's all those things that he can't do. One of the things he can do is he can light up a room with his smile. He's super handsome. He's engaged with the world around him and we are proud of all the things that he has done in these 17 years. And what he has given us has really created an outlook of appreciation. It's kind of cliche, but you really do appreciate every day he wakes up. So it's just one of those… he's just really the light in our lives in so many ways, in so many other people's life as well. And we're lucky that we started the organization with him as a living legacy instead of [that's my dog.]. instead of memorializing him when he's gone, which is always difficult. And it's best for Aaron to be able to show other people what it's like to be in this life and how he does that is just being a part of the community and people saying, “Oh, Aaron's Coffee Corner. There's actually Aaron behind the Coffee Corner. Who is Aaron?” And they get to see him instead of just hear about him, right? We were just at our local farmer's market and Aaron was there and everybody's like, “Oh, this is Aaron.” So that kind of personal connection that he brings to our organization is really remarkable. And I think that our supporters really appreciate the fact that they can learn more about Aaron as they support our organization. Passionistas: Tell us more about Aaron's Coffee Corner's mission. Carolyn: Aaron's Coffee Corner provides a safe place for people to go and get direct support by getting a cup of coffee or a cup of tea in the family in the great rooms at Lurie Children's Hospital's Pediatric Intensive Care Unit and their Neonatal Intensive Care Unit now. So we've created a space where they can go grab a cup of coffee or tea and really just take a moment to get out of their room with their sick child and refresh and just clear their mind for a minute. So what we try and do is create an environment where people feel they can take a moment for themselves and really stay present for their child while they're in the hospital. Passionistas: So many charities focus on the patients. Why did you decide to create an organization that really focuses more on the families?  Carolyn: Because I am the family. It was a selfish thing to do, right? It was all about me one night late in a room by myself, and I needed coffee. So I think that it makes it even more important because it's part of my community and I realize that these people need coffee like I need coffee in the middle of the night or whenever I'm admitted into a Pediatric Intensive Care Unit because my son is sick. So I think that it was just circumstance that brought me to the place where I could think, providing something that I know others would really appreciate. And that took me a long time to do.  I mean, Aaron is 17 and the first few years are hard. It's hard to have a critically ill child that you're caring for 24/7. I had a lot of help and I'm very lucky about that. But there's a lot of mourning, of loss, of all the things that you're not going to have with your child. And that takes a long time to kind of work through. And it's been 14 years past his prognosis. He wasn't supposed to live past the age of three. So when we look around at ourselves, we're very lucky. Aaron is pretty healthy. And I think that is what triggered me thinking, “Oh, maybe we can do something for others who are in the same situation because we've been there.” We know what the situation is and how we can help them. And I knew from personal experience that coffee was something that was missing to help those families. Because if you help the family recover, the child's going to recover, right? If the people that are caring for the child are tired and disillusioned and disappointed and upset, those kinds of things can be managed a little bit by having a little time to themselves to restore their own being, their self-worth, how to get back in the game and walk back into that room and really stand up for their child and help their child get better.  Passionistas: Tell us about the process of creating a 501(c)(3).  Carolyn: It's a bit of a tedious process. And I suggest that you get a lot of help trying to figure it out because it will make it so much faster. Because me, I like to do a little research before I start asking people that know what they're talking about. And I found that the research was really overwhelming. And so I try and reach out to the people that know Aaron that can help us support Aaron in any way they can. So I talked to our family lawyer who was familiar with Aaron. And I said, “Have you ever started a 501(c)(3) for anybody?” And he was like, “Yeah, I just did one for my wife. So let's see what we can do.”  So here are the things that I find important. One, read all the information because there are shortcuts that you can take if you do it the right way and you follow through on all of your tasks — because there's a lot of tasks — especially with the state, that you have to just kind of tick off. And I know from experience that I may have forgotten one thing and it got me into a little bit of trouble. So it's important to really just kind of find out what you need to do and make a list and just continue to check that list as you go through. And then once you're in it, it's really pretty simple to manage it in a way that you just have to send something in every year. So if you want to try it and you've got a good reason to do it, I suggest you try. It does a lot of good for people.  Passionistas: Tell us about a time in your life that you persisted and how you got through it.  Carolyn: Trying to get Aaron's Coffee Corner off the ground is my key persistent moment. It took close to a year for things to kind of get everybody in line and on the same page. And to just to say yes to helping these parents in the pediatric intensive care. You'd think that there was already coffee there. And what they used to have was like a bun burner, like a bun stove with a glass coffee pot. And it was always dirty. And I'm like, “No, we can make that better for you.” And you'd think they'd say, “Oh, that would be great.” But there are a lot of ins and outs in politics and bureaucracy when it comes to a major hospital. And we're lucky enough that we were able to work it out so we could at least start a pilot project. And I knew once we got in, it was going to be be hard to get rid of us. So my goal was to make it as successful as I could in the first four months and make sure that they saw that our fundraising could keep up with what was needed because it's always hard to take things away from people. And a lot of people in the pediatric intensive care unit are there — it's not fun place — but they end up there because their kids are sick. So it's something that people would notice if it was gone all of a sudden. So the idea of just being sure that we were proving our worth, not to the families and not to the PICU staff and not to the PICU doctors that were using it, but to the bureaucracy that surrounds an organization like this. So I feel like we are pretty persistent and we got it done and now we have two machines. I'm hoping for a third. So we'll see where it goes. But, um, persistence paid off in this particular situation.  Passionistas: What's your dream for Aaron's Coffee Corner?  Carolyn: The dream changes. I find that I get an Instagram post from a family at Lurie's and they say how much it's meant to them to have this coffee. They've been there for 42 days, and that makes staying at Lurie's and just Lurie's worth it because I know that we're really having a direct impact on the people that are using it. I think pre-Covid we had like a five-year plan, which is now maybe like an eight-year plan. And we would like to spread it to a couple of other hospitals, either locally or a hospital that has a number of hospitals throughout the country. And that would be creating it in a way that we could help them with a grant. And create a lesson plan or a syllabus on how to raise money and how the hospital should raise money. Because what we do for Luries is a separate entity, even though they help us collect money. And I think that it's important as we move forward that the hospitals know how to continue the relationship with their families and how to build on the fact that they are doing something for the families and how working with families can also help children thrive when they are ill.  So that's our, that's our goal. I don't know when we're going to get there. I am feeling that Lurie's needs us right now. And I feel like we are, we are helping a pretty large population because they're a large hospital. But I would like to help smaller hospitals as we move forward. And that's why I really want them to take part in the fundraising and maybe find a family that could support Aaron's Coffee Corner as a fundraising family. So I have all these ideas in my head, but right now we're focusing on Aaron's Coffee Corner and how we raise our funds and that we can continue the legacy. I mean, we're in our fourth year and we'd like that to be for 40 years. There's no end in sight for our work at Lurie's. So it depends on where the path leads and we're going to, we're going to see what happens. Passionistas: How can the Passionistas community support Aaron's Coffee Corner?  Carolyn: Well, there are a couple of ways. You know the whole thing about, we're basically an online organization because of Covid. So the last few years we have really done all of our fundraising online. And the best way for people to help us with that is to like us and to follow us, to comment because that all is algorithms and they just drive me crazy. So that's the easiest way just to support us by giving us a little like. That is a big support.  And then we run fundraisers. We run online fundraisers. We're in the middle of one right now for our fourth anniversary. And we also do local fundraising. So we do events. If you're local and you want to do an event and come join us. We do all kinds of things like jewelry. And Estetica Mia has helped us, which was one of the Passionistas group organizations. And we did an online facial. It was awesome and very successful. We try and support local organizations that are also woman-run. So we have a friend of ours from Deerfield who has a clothing store called Apricot Lane, and we try and work with her. And we try to stay local because we are a local organization. But you would be surprised how many people know somebody that has been in a Pediatric Intensive Care Unit and can relate to the fact that they're astounded that there's no coffee there. Or that they know somebody that's actually been to Lurie's because it's a world-renowned hospital, and they know somebody that has, that knows somebody that their child was there. So we have a lot of outreach online on Instagram and Facebook.  Passionistas: And you have amazing merch. too. Carolyn: We do have amazing merchandise. We have an online store. Thank you, Nancy. We do have an online store here. Look at that beautiful mug. It's great. It's huge. It's great for breakfast in the morning or mac and cheese in the evening. Whatever you need — also good for coffee. Not going to say it doesn't work for coffee.  But we have water bottles. We have everything. And our shipping is free. So you can check us out at www.aaronscoffeecorner.org and go to our online store. You can also donate online, and that goes straight to Lurie's. So it's a nice way for us to get everything in one spot on our website. Passionistas: Tell us what the phrase “Power of Passionistas” means to you.  Carolyn: It is an interesting concept because women run the world. And I think that the idea of women supporting women is kind of overlooked and sometimes not really appreciated. So I think that it's really important for people to remember that we should be supporting one another as women. And we should be supporting people that are believing in what they're doing because everyone that is participating in this is really trying to find a way to help others be their best selves. Whether that is — remembering to be kind or remembering how to act in an office or to vote. Those are all things that can bring more gusto to what women can do in the world. And it's an important time to remember women have a say in what happens in the world. And we should really take advantage of it. Passionistas: What's your dream for women?  Carolyn: Wow. I would like them to get paid as much as men. I would like them to be appreciated for working from home. I would like them to have a right to choose what to do with their body. I mean, these are all very basic things that really haven't quite hit the threshold yet. And I think that we need to look around and those basic levels of necessity be reached.   Passionistas: Thanks for listening to the awards presentation with Carolyn Koppel. To learn more about how you can support her mission to provide 24/7 access to free, fresh, quality coffee in the family great rooms of pediatric intensive care units visit Aarons Coffee Corner dot com. And be sure to subscribe to the Passionistas Project Podcast so you don't miss any of our upcoming inspiring guests. Until next time, stay well and stay passionate. 

Genene Jones murdered dozens of young children and infants as a nurse in the Pediatric Intensive Care Unit. content warning: child death sources: MurderpediaAll That's InterestingSupport the show

You last heard from us on June 1st with a Steve Poltz concert. What happened the morning after that concert had both our families in chaos for almost the entire month of June.MClet #2 fell ill and the families scrambled with childcare, driving to and from the Pediatric Intensive Care Unit, dance classes, summer activities, you name it. Oh, and sleep.There just wasn't a chance to fire up the microphones and be topical. We apologize for our absence but as we've always said, family comes first. Always.So, come hear the details of our absence and a few topics we hope to discuss in the coming weeks!Support the show

Nosocomial infections are a prevalent cause of death and complications in critically ill children. Conventional cultures are able to detect only up to 25% of bacteremias. Several studies have suggested that molecular tests could be a faster and effective tool for detection of bacterial infections.

Our guest on this episode is Dr. Darlene Acorda who joins us to discuss Children with Medical Complexities.Dr. Darlene Acorda is a Clinical Specialist in the Pediatric Intensive Care Unit at Texas Children's Hospital and a pediatric nurse practitioner in the community. She is also an adjunct faculty in the undergraduate program at the University of Texas Cizik School of Nursing and currently serves as the chair of the Clinical Practice and Research Committee of the Society of Pediatric Nurses. Her research focuses on the experience of children with medical complexity and their caregivers, especially those who are tracheostomy and ventilator dependent. She has received funding support from the Society for Simulation in Healthcare to explore how family caregivers perceive the use of high-fidelity simulation in learning tracheostomy emergency management. She also received funding from Sigma Theta Tau Zeta Pi Chapter to examine the challenges of caring for a child with medical complexity during a global pandemic. Her other research interest is in minimizing pediatric health disparities, improving the rapid response of critically ill children, increasing cultural competence in care, and merging research and quality improvement methods to implement interventions with a positive, sustained impact on the care of hospitalized children. Hosts: Manny Ramos and Mindy OfianaDirected and Produced by: Rodney CajudoExecutive Producers: Mary Joy Garcia-Dia and Carmina Bautista

In this World Shared Practice Forum podcast, Dr. Akash Deep, Director of the Pediatric Intensive Care Unit, Staff Governor, and Professor in Pediatric Critical Care at King's College Hospital, discusses his recent publication on non-transplant options in pediatric acute liver failure. He describes important considerations for the management of acute liver failure and commonly associated toxicities, and offers insights into the paradigm shift currently evolving in the field and what we can expect in the trends of future treatment pathways. Upon listening to this presentation, learners should be able to: - Apply strategies for management of acutely ill children with acute liver failure - Describe various forms of toxicity commonly associated with acute liver failure Publication date: June 28, 2022. Articles Referenced: • Deep A, Nagakawa S, Tissieres P. Non-transplant options in paediatric acute liver failure-what is new?. Intensive Care Med. 2022;48(1):114-117. (00:49) • Habib M, Roberts LN, Patel RK, Wendon J, Bernal W, Arya R. Evidence of rebalanced coagulation in acute liver injury and acute liver failure as measured by thrombin generation. Liver Int. 2014;34(5):672-678. (7:03) • Slack AJ, Auzinger G, Willars C, et al. Ammonia clearance with haemofiltration in adults with liver disease. Liver Int. 2014;34(1):42-48. (13:27) • Hunt A, Tasker RC, Deep A. Neurocritical care monitoring of encephalopathic children with acute liver failure: A systematic review. Pediatr Transplant. 2019;23(7):e13556. (17:39) • Kochanek PM, Adelson PD, Rosario BL, et al. Comparison of Intracranial Pressure Measurements Before and After Hypertonic Saline or Mannitol Treatment in Children With Severe Traumatic Brain Injury. JAMA Netw Open. 2022;5(3):e220891. (19:51) Citation: Deep A, Daniel D, Burns JP. Non-transplant Options in Pediatric Acute Liver Failure. 6/2022. Online Podcast. OPENPediatrics. https://youtu.be/iSvZ26drzy0. Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support nor control any related videos in the sidebar, these are placed by Youtube. We apologize for any inconvenience this may cause.

This week we are talking to Christina from @its.jesse.and.tanner! Christina moved from New York to Colorado 4-ish years ago with her extremely reactive dog, Jesse. They met her partner, Jackson, shortly after moving here and they all now live in a small mountain town together with their second dog Tanner, a rescue who was returned to a local shelter 3 times before they took him home forever. I must add Tanner is a fan favorite at their local bar. Jesse is now 5.5 years old and Tanner is about to be 4. Christina is a registered nurse in the Pediatric Intensive Care Unit in Denver and her partner is a professional snowboarder and carpenter. Their family spends their days hiking, camping, snowboarding, training the dogs and Christina also loves to crochet and play piano!TSHIRTS ARE COMING BACK MAY 30 - SIGN UP TO NOT MISS OUT!Try Open free for 30 days with code DMM30! Open is a mindfulness studio and app with meditation, breathwork, and movement classes.  Did you know I am developing a journal specifically for dog owners? Help me help you by filling out my survey!Find Karoline and Layla on Instagram @dogmommentalityThis series is for fun, but if you would like to support me hosting it on podcast platforms ( & support Layla's frisbee fund) check out our Buy Me A Coffee Sign up for the DMM newsletter!Intro song: Let You Go (feat. Tara Flanagan) (Instrumental) by Spectrum https://spoti.fi/2ZLAORn Free Download / Stream: https://bit.ly/_let-you-go Music promoted by Audio Library https://youtu.be/of6rlIM0AZA Podcast artwork: Nicole Everlith @moth_folkPodcast editing: Elisa Dyer  @elisaann.vaSupport the show

TeamPeds Talks newest series, focused on Nurse Practitioner Leadership and Career Development, is brought to you by the National Association of Pediatric Nurse Practitioners. This series of podcasts includes inspiring and thought-provoking conversations with expert leaders in pediatric health care with a focus on advancing career development and leading change. This series is hosted by Dr. Andrea Kline-Tilford, NAPNAP's Executive Board President. Andrea Kline-Tilford, PhD, CPNP-AC is an Acute Care Pediatric Nurse Practitioner with significant clinical experience in pediatric critical care and pediatric cardiac surgery. She is the NAPNAP Executive Board President and the Professional Issues Department Editor of the Journal of Pediatric Health Care. She is the co-editor of two books: Lippincott Certification Review: Pediatric Acute Care Nurse Practitioner and Cases in Pediatric Acute Care: Strengthening Clinical Decision Making. She has presented internationally on topics of pediatric acute care and pediatric advanced practice nursing, with many publications in these areas. She is an advocate for children and proud mother of two. This episode's guest is Kristin Hittle Gigli. Tune in to this episode of TeamPeds Talks to hear pediatric-focused nurse practitioner workforce expert, Dr. Kristin Hittle Gigli discuss burnout and building resilience. Kristin Hittle Gigli is an acute care pediatric nurse practitioner and health services researcher. She is an Assistant Professor in the College of Nursing at Health Innovation at the University of Texas at Arlington. Her research examines the role of hospital-based advanced practice provider workforce in providing care to and impacting health outcomes of hospitalized children. She earned her PhD in Nursing from Vanderbilt University and completed a post-doctoral fellowship in the Department of Critical Care Medicine at the University of Pittsburgh. In addition to her research, Kristin has more than15 years of experience working in pediatric critical care and holds a clinical appointment in the Pediatric Intensive Care Unit at Children's Health Dallas. Check out NAPNAP Position Statement on Resilience and the Postpandemic Pediatric Nurse Practitioner Workforce (jpedhc.org)

Treatments and new hope in detection? We're talking ovarian cancer with Dr. Tamar Perri, director of the Gynecologic Oncology Department and her former patient, Dr. Rivka Brooks, a founding director of the Pediatric Intensive Care Unit, at Hadassah Medical Organization.

TeamPeds Talks newest series, focused on Nurse Practitioner Leadership and Career Development, is brought to you by the National Association of Pediatric Nurse Practitioners. This series of podcasts includes inspiring and thought-provoking conversations with expert leaders in pediatric health care with a focus on advancing career development and leading change. This series is hosted by Dr. Andrea Kline-Tilford, NAPNAP's Executive Board President. Andrea Kline-Tilford, PhD, CPNP-AC is an Acute Care Pediatric Nurse Practitioner with significant clinical experience in pediatric critical care and pediatric cardiac surgery. She is the NAPNAP Executive Board President and the Professional Issues Department Editor of the Journal of Pediatric Health Care. She is the co-editor of two books: Lippincott Certification Review: Pediatric Acute Care Nurse Practitioner and Cases in Pediatric Acute Care: Strengthening Clinical Decision Making. She has presented internationally on topics of pediatric acute care and pediatric advanced practice nursing, with many publications in these areas. She is an advocate for children and proud mother of two. This episode's guest is Kristin Gigli This episode of TeamPeds Talks features a conversion with pediatric-focused nurse practitioner workforce expert, Dr. Kristin Hittle-GIgli. As experts in pediatrics and advocates for children, the supply of a diverse, prepared workforce is essential to the health and well-being of children across the country. Tune in to hear a discussion on current and projected trends in pediatric-focused nurse practitioner workforce and strategies to address upcoming challenges. Kristin Hittle Gigli is an acute care pediatric nurse practitioner and health services researcher. She is an Assistant Professor in the College of Nursing at Health Innovation at the University of Texas at Arlington. Her research examines the role of hospital-based advanced practice provider workforce in providing care to and impacting health outcomes of hospitalized children. She earned her PhD in Nursing from Vanderbilt University and completed a post-doctoral fellowship in the Department of Critical Care Medicine at the University of Pittsburgh. In addition to her research, Kristin has more than15 years of experience working in pediatric critical care and holds a clinical appointment in the Pediatric Intensive Care Unit at Children's Health Dallas.

This special edition of the National Association of Pediatric Nurse Practitioner's TeamPeds Talks podcast, FocusED sponsored by the Pediatric Emergency Care Special Interest Group. FocusED is a podcast program that offers listeners unique insight into the broad scope of pediatric emergency care by exploring a variety of emergency care topics through different lenses across the care continuum. Vaping, or the use of electronic cigarettes has very quickly become a significant health concern among the youth population. Nicotine and other additives are created in liquid form and sold in pods that are easily inhaled once vaporized. it is easy for teenagers to obtain these products and for health care providers it is concerning that with easy access nicotine exposure at a young age will continue to rise, paving the way for many other additional health concerns. This 4-part podcast series will focus on vaping. We will be speaking with a nationally recognized pediatrician who has spent more than 15 years evaluating the effects of nicotine on adolescents and targeting cessation endeavors. An in-depth conversation will be had with 2 respiratory therapists who specifically work with teens who vape, how to manage and anticipate withdraw in the hospital. We will be joined by a critical care physician who will focus on managements from the Emergency Department or urgent care setting into the ICU guiding acute management and anticipating higher level interventions. We will also gain insight from a young man who will speak about how he started vaping, why it's so easy to start and continue over the 4 years he has vaped. Hilary W Baxter is dual certified nurse practitioner at the Emergency Department of The Children's Hospital of Philadelphia. She is starting her 10th year of practice. She currently is the co chair of the Pediatric Emergency Care SIG. She resides in NJ with her husband, 3 kids and 2 dogs. Hilary has presented at several NAPNAP conferences with a focus on providing supportive care during emergent procedures as well teaching suturing at this years Reconnect Symposium. Her focus is on identifying health literacy deficits in the population and assisting families with learning to help manage wellness and health concerns. This week's guest is Aaron Donoghue, MD, MSCE, an attending physician in the Emergency Department, Trauma Center and Pediatric Intensive Care Unit at Children's Hospital of Philadelphia. His areas of expertise are: Emergency airway management, Pediatric cardiopulmonary resuscitation, Simulation education Dr. Donoghue receive his medical education at Robert Wood Johnson University Hospital in New Brunswick in NJ. He is currently on staff at The Children's Hospital of Philadelphia in PA. He is dual certified in Critical Care as well as Emergency Medicine and divides time between the two clinical areas. He is faculty at the University of Pennsylvania Medical School. His expertise in the Simulation lab and focus on pediatric cardiopulmonary resuscitation is pioneering intervention in education for BLS and PALS certification and re certification. He is ideal to speak regarding topics of early intervention for respiratory conditions to prevent cardiac failure.

Welcome back to mental health awareness month here on The Unclassical Musician! This one is a must-listen! This week, I sat down with my good friend and master of social work Amanda Deligiannis to talk about some mental health issues pertaining to musicians, and the music school experience.  Amanda started at DePaul as a music ed major, with french horn as her instrument. Over the course of our four years there she waffled between continuing with music ed and considering switching to regular education. She eventually finished her music ed degree. During her teaching career she became passionate about education inequity as well as childhood trauma, which inspired her to complete a Master of Social Work from Loyola University. Throughout this time, she gained clinical experience interning for the Cook County Public Defender as well as in addiction treatment. Amanda also completed an internship as a medical social worker at the Ann and Robert H. Lurie Children's Hospital of Chicago, supporting families while they experienced chronic illness, celebrations, and loss in the Pediatric Intensive Care Unit. Amanda now works for a children's therapy group in Chicago. Even though Amanda has been out of music school for a while now, she is still very much in this community. I think she has a very unique and interesting view on the struggles of classical musicians from a clinical perspective. In this episode: Some fundamental aspects of music school that are detrimental to students' mental health  Music school as a traumatic experience  Self-care tips for musicians (we're not talking bubble baths and manicures!)  We are continuing Mental Health Awareness month next week with Rusty Holmes! Another french horn player, based in Austin TX.  One of his many passions is mental fitness for musicians! Links for this episode: Send Amanda an email amandadeligiannis@gmail.com Check out Rusty Holmes on IG! Watch the free training with Nicole Riccardo on How to Sell Out Your Offers on Instagram Links for the podcast: Follow Tori and The Unclassical Musician! Support The Unclassical Musician on Patreon Follow Tori on Instagram  Follow The Unclassical Musician on Instagram by following the hashtag #theunclassicalmusician Join The Unclassical Musicians Facebook Group Sign up for a FREE 30-minute coaching session with Tori  Send Tori an email tori@torilupinek.com    

Today's episode is dedicated to Tumor Lysis Syndrome management in the PICU. Join us as we discuss the patient case, symptoms, and treatment. We are delighted to be joined by Dr. Himalee Sabnis, Assistant Professor of Pediatrics at Emory University School of Medicine. She is also a pediatric hematologist/oncologist and the Co-Director of the High-Risk Leukemia Team at the AFLAC Cancer & Blood Disorders Center at Children's Healthcare of Atlanta.  Show Highlights: Our case, symptoms, and diagnosis: A three-year-old female with pre-B ALL presents on Day 2 of chemotherapy to the PICU. She is admitted with telemetry findings of arrhythmia, decreased urine output, and an EKG notable for peaked T waves. Her labs are notable for elevated WBC, hyperkalemia, hyperphosphatemia, and low ionized calcium. Tumor Lysis Syndrome is a life-threatening medical emergency stemming from rapid tumor cell destruction that overwhelms the usual metabolic and excretory pathways.  Why TLS is the most common pediatric oncologic emergency for pediatric cancer patients When the tumor cells die or lyse, what's inside those cells comes out into the blood Key metabolic abnormalities that affect organ function are too much potassium and phosphorus, low calcium, and uric acid buildup. Those metabolic abnormalities can result in cardiac arrhythmia and kidney failure. Certain patient populations have an increased risk for TLS: Hematological cancers have a higher risk than solid tumors Patients with fast-growing tumors, like lymphoma and leukemia, are at high risk Key pathophysiologic principles that drive TLS: The imbalance of electrolytes can impact heart function TLS is characterized by hyperkalemia, hyperphosphatemia, hypocalcemia, and uric acid, which is a by-product of DNA breakdown If untreated, the uric acid can lead to acute kidney injury and renal failure Electrolyte and metabolic disturbances can progress to renal insufficiency, cardiac arrhythmias, seizures, and death TLS releases cytokines that can cause a systemic inflammatory response and multi-organ failure Other lab markers in patients with TLS include uric acid, LDH, CBC, DIC panel, and daily blood gas (these are typically trended every 4-6 hours). Key factors in TLS management are to understand the risk and know your resources. Steps taken would be continuous cardiac monitoring, uric acid control, administering Allopurinol to combat uric acid formation, and managing electrolyte disturbances in conjunction with an intensivist. Chemotherapy would not be delayed due to TLS because the patient's condition won't improve until the cancer is treated. How the complications of TLS are treated: Hyperphosphatemia should be treated by using oral phosphate binders such as aluminum hydroxide. Hypocalcemia does not require therapy unless cardiac function is affected. How renal replacement therapy might be required and indications are similar to other forms of acute kidney injury. Besides Allopurinol being given at the initiation of chemotherapy, patients at high risk for TLS may receive low-intensity initial therapy to prevent rapid cell lysis. Takeaway clinical pearls regarding TLS: Know what you're dealing with because every cancer is different. Fluid management is important and will vary from patient to patient. Be proactive in monitoring. Intervene early and quickly.  

Now that Biden has reinforced the 'Buy American' bill, where are things going to go from here for Canada? Can we negotiate an exception for Canadian businesses? Should we make a 'Buy Canadian' in retaliation? Guest: Tracy Gray, MP, Kelowna-Lake Country; Shadow Minister, Export Promotion & International Trade - Every human is going to die at some point or another however we still aren't 100% sure of when in the dying process we are definitively dead. The Death Prediction and Physiology after Removal of Therapy Study (DePPaRT Study) looked into finding an answer to this. How will this study help inform those considering organ donation? Guest: Dr. Sonny Dhanani, Chief, Pediatric Intensive Care Unit, Children’s Hospital of Eastern Ontario; Associate Professor of Pediatrics, University of Ottawa See omnystudio.com/listener for privacy information.

Effective decision making in the Pediatric Intensive Care Unit relies on quickly ascertaining diagnostic information in order to deliver a tailored clinical response. The utility of rapid genetic testing of critically ill patients has been demonstrated several times, owing to their relatively high diagnostic yield. However the cost and slow turnaround of results have been major barriers in the past to the widespread uptake of this technology in the clinical setting. In this episode, we meet Professor Steve Kernie from Columbia University Irving Medical Center and Morgan Stanley Children's hospital, who conducted a pilot study to assess what impact the use of rapid exome sequencing would have on the length of stay of a subset of children admitted to the Pediatric Intensive Care Unit. Have a listen! See acast.com/privacy for privacy and opt-out information.

Returning guest, Dr. Keith Meyer, Medical Director, LifeFlight® Neonatal and Pediatric Transport Services at Nicklaus Children's Hospital who treats patients in the Pediatric Intensive Care Unit discusses COVID related multisystem inflammatory syndrome in children (MIS-C).

There have been recent articles stating that nearly 100k children in the U.S. have tested positive for COVID-19 during the last two weeks of July. Dr. Keith Meyer, Medical Director, LifeFlight® Neonatal and Pediatric Transport Services at Nicklaus Children's Hospital who treats patients in the Pediatric Intensive Care Unit discusses what they are seeing in children with COVID-19, what they know, how children do not respond to the virus the same as adults, and what the recommendations are to parents.

In this podcast, Editor-in-Chief Kelly A. Tappenden, PhD, RD, interviews Bodil Larsen, PhD, RD about her article, "Epidemiology of Interruptions to Nutrition Support in Critically Ill Children in the Pediatric Intensive Care Unit," published in the February 2015 issue of JPEN. https://doi.org/10.1177/0148607113513800

Christie and Izzy interview Brittany Bennett, a medical provider on the frontlines of the COVID-19 crisis.  Brittany is the Nurse Manager of a Pediatric and Pediatric Intensive Care Unit in Brooklyn. Her unit is now a COVID+ adult ICU. Formerly, Brittany was a Peds, PICU, And NICU nurse in Manhattan. She grew up in New Jersey, attended Villanova University (go Cats!) for undergrad and New York University for her Masters in Public Administration for Nurse Leaders. Britt loves to travel, sail, and take Bar Method classes with Christie! DONATE: Feeding the Frontline GoFundMe:  A Safe Way Home for Brittany Like what you hear?  Leave us a review!   Music courtesy of Ondina (@ondinathequeen). "Grow" 2018 instrumental. Come sit with us! www.fromwhereshesits.com - IG @fwsspodcast

“The first case of COVID in China was the 8th of December…” this piece looks at the outbreak of the disease from the perspective of healthcare workers in Italy. Focusing on the community health approach to controlling this pandemic, our guest emphasizes the importance of understanding the epidemiology of COVID- 19. Mirco Nacoti, Department of Anesthesia and Intensive Care, Pediatric Intensive Care Unit, Papa Giovanni XXIII Hospital, Bergamo, Italy, was subsequently featured in the New England Journal of Medicine where he along with Andrea Ciocca and Maurizio Cereda wrote this excellent article: https://catalyst.nejm.org/doi/full/10.1056/CAT.20.0080 Please share this information with as many colleagues and friends as you can. TopMedTalk is working with you, our listeners, to raise awareness at this crucial time. REMINDER: PLEASE stop having in person meetings with administrators and departments to help stop the spread of CV19. Presented by Monty Mythen and Desiree Chappell. This podcast was originally released as part of a longer podcast which you can listen to here: https://www.topmedtalk.com/covid-19-you-must-learn-the-epidemiology/ Thank you to our sponsor Edwards Lifesciences. Edwards clinical education (ECE): https://www.edwards.com/clinicaleducation

Ep 2 - Is it advocating or arguing with doctors? I share my 5 tips for dealing with doctors (tip number 5 might surprise you) and my recent experience with Noah in the Pediatric Intensive Care Unit. Let's share some strengths and have a laugh - Jillian   Instagram: @SprinkledWithStrengthPodcast

They say the most predictable thing about childbirth is how unpredictable it can be. It's true and emergencies do happen and we are here to make sure you are ready for them before you go into labor and delivery.  Meet Chris Duvall, Mississippi born, father of three, loving brother and air force veteran with 15 years of experience including multiple deployments to combat zones in the Middle East and East Africa. Chris has years of experience in project management, Pediatric Intensive Care Unit nursing, and for the last 9 years as a nurse Anesthetist. He has administered thousands of anesthetics and currently practices anesthesia in South Texas where 80% of his primary patient population is Labor and Delivery. Today's episode is all about epidurals, spinal blocks and c-sections. Chris is here to break some myths surrounding epidurals and how to make sure you are prepared in the event of an unplanned emergency. Stay tuned next week where Chris and I dive into scheduled c-sections and how to prepare yourself for the big day. 

Carolyn Koppel founded Aaron's Coffee Corner while sitting with her son Aaron in his hospital room. Her mission is to provide 24/7 access to free Keurig coffee to the family, friends and caregivers admitted to the Pediatric Intensive Care Unit of Ann & Robert Lurie's Children's Hospital of Chicago. Find out more at AaronsCoffeeCorner.org. Read more about The Passionistas Project. FULL TRANSCRIPT: Passionistas: Hi and welcome to The Passionistas Project Podcast. We're Amy and Nancy Harrington. Today we're talking with Carolyn Koppel, the founder of Aaron's Coffee Corner. Carolyn left a career in Hollywood to return to the Midwest where she worked at the Shoah Foundation and Oprah Winfrey's Harpo Studios. Most recently she founded Aaron's Coffee Corner, while sitting with her son, Aaron, in his hospital room. Her mission is to provide 24/7 access to free Keurig coffee to the family, friends and caregivers of patients in the pediatric intensive care unit of Ann and Robert Laurie's Children's Hospital of Chicago. So please welcome to the show, Carolyn Koppel. Carolyn: Hello. Thank you. Passionistas: What's the one thing you're most passionate about? Carolyn: I feel that of course, right now I'm passionate about this project and getting coffee to people that really could use it, but I think in general, as I look back on my adult life, I've tried to work with organizations and people that do good, which I didn't really think about, but it turns out that it's a running theme in my life and I'm pretty proud of it. Passionistas: Why do you think you're drawn to projects that help other people? Carolyn: I think it's just my upbringing. I think I grew up pretty happily and my parents were always very kind to people and I think that my family has nurtured that. And as I went through middle school and high school and college, it's something that I carried with me. I think it's just my upbringing. I'll give that credit to my parents. Passionistas: How does that translate into what you do in your day to day life? Carolyn: Well, right now my day to day life is nothing that I thought it would be like 14 years ago when my child Aaron was born. So over the last few years I've thought about what can I do? Should I get a job? How can I get a job? Because there's a lot of medical appointments and there's a lot of time off if parent gets sick, how do I tell people that I need a really flexible job that can allow me to care for my globally delayed and medically fragile child? So it's been a journey to try and find something that I can do. And along the way I've volunteered on a parent board, um, for a local organization here called North suburban special education district, which my son is a part of and has been a part of. And I slowly got back into the idea of filling my time, trying to help somebody else because after you're in a situation like I am, it takes a long time to kind of settle into your life. And I think that just over the last few years we've had a little more regularity so you can kind of look outside of what your craziness is and say, Oh, other people have it worse than me. And I think that when I started going to the hospital, I think that played a big role in how I was going to handle life with Aaron. And that I always looked around when I was in the pediatric intensive care unit and thought, Oh my God, look at these people. They have it so much worse than we do. And I think that always rang true that no matter how frustrating and how difficult and how ludicrous you feel your life is, somebody has always got it worse. So it took a long time to kind of get to the point where I'm like, okay, well it's always going to be like this. Let's see how we can help other people because now I have things a little under control and let's open it up and see what we can do for others. And that started to happen about four or five years ago, but I couldn't really find what I needed until I was so frustrated in the middle of the night in a hospital room that I couldn't find some coffee. And that's really how we got here. Passionistas: Let's back up a step. Tell everybody about Aaron and why you're in the hospital so much. Carolyn: So my son has something called dihydro perimeter ING dehydrogenase deficiency. And it's not necessarily uncommon to have this disorder, but it is to have it from birth. So his symptoms started showing very early and at about 18 weeks he had a seizure and then we knew something wasn't right. And we took ourselves to that hospital and we needed to get transferred down to Lurie's children's because they didn't know what was going on and they had to get the seizures under control. So this disorder was known to people. And when Aaron was admitted to the hospital, he was there for about, I think the first time, about eight days. And they just did a battery of tests and they were trying to figure out what was wrong. And they did EKGs to see about his seizure activity. And they took all kinds of blood tests and one test from that very admission kept coming back positive. And I remember that genetics factor coming in and saying, well this is something we're going to have to test again because I've never seen it in my career. So we're gonna send it to the Mayo clinic and have the, his blood tested it and then we're going to see what they say. And then it came back from the Mayo clinic and they said there's one man in the Netherlands that's doing research on this particular disorder. You did test positive for it and can we have blood samples from your whole family and urine samples and send them to him? And when that was confirmed, we knew what his diagnosis was. So a lot of kids that are medically fragile and globally delay, they don't have any kind of diagnosis. So we were lucky right there that we had something to hold on to. And the way that we knew that this was what he had was because there was a drug called five plural are soul, that men in their forties when they get prostate cancer, sometimes we're treated with this drug and it had horrible side effects including death. So this man in the Netherlands had created a urine test that could test before they had this treatment to make sure that they can get it. And that's the test that Aaron kept coming back positive for. So they pulled it back around and they said, we don't have very much information on this disorder, but we know that children haven't lived past the age of three. So that was his diagnosis and his prognosis very early on, at around under a year. And that's a shock. Let me tell you what he suffers from I guess. So he has epilepsy. He suffers from unmanageable seizures. He's globally delayed. He is not verbal and he is non-ambulatory, which means he is confined to a wheelchair. He doesn't really have the use of his limbs. So I guess he would technically be classified as a quadriplegic. And he has excellent hearing and a really good sense of spell. So he's fed through a G tube. He's on a number of medications, which he also takes through his G-tube. And as a result of the disorder, besides the epilepsy, he has lot of pulmonary issues, breathing issues. He's had pneumonia a few times. And one of the many reasons we've been in the hospital so often is that it doesn't take very much for him to get. And when he does, he has a really hard time recovering from it. So he's just a really sick, handsome little guy, you know, and, and he's just a love. He recognizes voices, he smiles when he's happy, whether you know why he's happy or not. It's always good to have him smile. And I think that he is surrounded by so much love that he emanates it back. He really is a lucky kid and we're lucky to have him. Passionistas: We're sorry that you've had to deal with all that. Carolyn: Oh, it's okay. It's all right. It's turned out to be a pretty good life unexpectedly. Passionistas: Let's go back and talk about your path to getting to here. So you studied journalism at the university of Wisconsin Madison, and what were your goals at that point when you graduated and what did you do? Carolyn: Well, my goal at the university of Wisconsin was to get out of the cold when I graduated. And my parents had already had that idea and they deserted me while I was living while I was in college. So they took off or Arizona and I went and shacked up with them for a year and I worked as a stringer producer. So there was a company in Arizona and we would do work for the Phoenix suns and for lifestyles of the rich and famous and for ESPN and all those kinds of stringer things. That was anything that was happening in entertainment tonight. Anything that was happening in Phoenix, we would run out and do a little bit and I would be the person holding the little microphone and asking the questions off camera. And a friend of mine had already moved out to California and she's like, well why don't you come out here? And I'm like, okay. And I had another friend from Arizona that happened to be going to California for a summer program and she and I ended up being roommates with a couple of other girls and I got a job. I was, the first thing I did is I went to limited express to make sure I could work for them while I was there cause I had to have a job. And I had done that on and off. Like through school I had worked at limited express. So that was my first thing. And another friend of mine said, well why don't you come in and interview and see if we have a job for you at Viacom? And it was via con television. And at the time it was Dean Hargrove and Fred Silverman and they were doing all of these shows that old people like “Jake and the Fatman” and “Matlock” and “Perry Mason” “Diagnosis, Murder.” It was awesome. And I ended up working for a woman who was the script production office manager, Donna and I was a script coordinator. So the first thing she had me do was learn how to type better because my typing skills were not up to par because I thought I'd be a broadcast journalist. From then on I was in a pretty good place. I was like, this is cool. I have a great group of friends, we're all in it together, we're all starting out. And it was a really great experience and I had done that for about four years. And I remember a friend of mine asked me to go see a movie and the movie was Schindler's list and I remembered that at the end of the movie we were on the universal lot and we had seen it in a screening room. And at the end of the movie it said that Steven Spielberg was starting a foundation to interview Holocaust survivors. And I was like, Oh well, if I remember correctly, he's my neighbor on the universe a lot. So let me send him some universal mail with my resume in it and a letter. And that got me introduced to the show foundation. And by then I was in California for five years and I was known as the crazy aunt from California. All my nieces and nephews were being born. It was like a machine out West out East. And I was like, I should see if I can give them an idea and see if they'll give me a job. So when I sent them a letter, I said, I really do believe that you're going to be wanting to locate in Chicago, Illinois and I'm from the Midwest and I'd be more than happy to run your production office from Chicago. And they said, well that's a little far off because you know, we're in one trailer in the back of Amblin entertainment right now and we have to get set up here. And I said, well, I'm happy to volunteer or whatever you need. And so eventually I volunteered there and they offered me the job in Chicago. So I became the Midwest regional coordinator for the show foundation. And that brought me back here. After that project was over, I went on to Harpo and an interviewer that was working for me on the show foundation said, Oh, you should meet my friend at the Oprah Winfrey show. She's a producer. And I said, okay. And I had coffee with her and I told her what I did and she went back to the office and told her, her boss, one of the producers and said, you know, you're starting up this new project, maybe she's the one for you. And I went in and I interviewed for that job and I got it. And it was the very beginning of Oprah's angel network, the original version of it where we raised money for kids to go to college and we built houses with habitat for humanity. So between the Shoah foundation and recording these visual histories of what had happened to these people during the most horrific period of time in their lives, and to show at the end how they've survived and how they've created new families and continue to do good in the world. Then to go top Harpo and give back to communities. It was just kind of a theme I was on and it was great and I was like, okay, what's the next thing? And I had been at Harpo for a little while and the angel network had kind of morphed into something else and they were opening up Oprah online, they creating their own website. So I moved over to that website and I helped them start that website. And I learned a lot about things that I never thought I would know about, like HTML and all that kind of stuff and how to create a website. But it wasn't really hitting the Mark for me. And I enjoyed my time there, but I had met my husband by then and he's like, well go look for a different job. And I think he found out about my next job, which was for adventure, which was an educational technology company right in the middle of the bubble. It was all very exciting and I was the operations manager and it was great. And then the bubble burst and I was four months pregnant and I look like I was eight months pregnant and one of those people that as soon as I got pregnant I looked like I had been pregnant for 17 years because I looked so pregnant at the beginning and I was like, I can interview for jobs because who's going to take a pregnant woman? And then I had my first child and everything was working out all right, we bought a house, my husband was working, did I really need to go back to work? Not really. I was lucky and I did some work here and there and a little production work and then Aaron was born and that's when things kind of took a little different path. And so I became the primary caregiver and I think all of those lessons that I learned from all of those jobs, I think that's the secret to really getting through life is to remember what you've learned and bring a little of that to your next project and bring all of that to your next project and to build upon it. And I think that by the time Aaron came, I kind of knew this was going to be okay and it's not horrible, but we don't know what's going to happen. And once he hit three years old, we started having a birthday party every year. We just had his 14th birthday party and my backyard this weekend. And I'm telling you, there's tons of people that come in there, his therapists and doctors and nurses and our family and friends that have supported us for 14 years, you know, that have gone through the highs and the lows and the hospitals, hospital visits. And I mean it just makes you realize how lucky you are. I think that they always say maybe a Maya Angelo says it. If you find it in your heart to care for somebody, then you've succeeded. So if you keep your heart open and you try and do the best you can for somebody else, you're going to get through the next door. And that's kind of how I got to where I am. I just, I love being in broadcast journalism, but I really loved helping other people and being a part of a bigger project and I think that's just the path I took, which turned out to work well for me. And I'm using all those skills now. So it's pretty remarkable. Passionistas: We're Amy and Nancy Harrington and you're listening The Passionistas Project Podcast and our interview with Carolyn Koppel. To learn more about her mission to provide 24/7 access to free curd coffee to the family, friends and caregivers admitted to the pediatric intensive care unit of Ann and Robert Laurie's Children's Hospital of Chicago, visit AaronsCoffeeCorner.org. Now here's more of our interview with Carolyn. Passionistas: How did the day to day skills you learned when you were in production apply to your life now? Carolyn: We're going to take a little downturn for, for a minute. And I say that with as light of an attitude as I can, but when you're told that your child is not gonna live past three, so for those first few years, you're not sleeping, you're listening for him to breathe and not to have a seizure every night. And then when you wake up in the morning you're like, Oh my God, we made it through the night. You know, cause you always think it's going to be nighttime when something happens and you're gonna walk into that room and something horrible will have happened and there goes on for many, many years. And once he hits three, you're like, how long is it going to go on? How do you plan for it? So you're going to be here one year and then gone the next. It's like when you get classified, you get the hanging sticker that says you're driving a car that has a handicap ramp or something, that little hang or the blue one. And then they're like, you know, well maybe you should have a license plate. And I'm like, no, because if I get the license play, maybe that's like superstitious and then something horrible is gonna happen. So there was a lot of that year after year, like I didn't want to think too far ahead, but here I am with a ramp van with a license plate that says we're handicapped. So you have to jump over those hoops to get where you are. And I think that's just a positive attitude. If you let go of what you think you're supposed to be doing with your life and then you're going, okay, well what am I supposed to be doing with it? Every time you do that you get a little further down the line. And I think I took that from all of my experiences in working with people and just volunteering and stuff like that. So I think I might date today. It really played a role in just moving forward everyday move forward and see what happens. And here we are. I mean it's kind of worked, you know, we have these moments where he gets RSV or he gets pneumonia and we're in the hospital and we are at that point where people are talking about do not resuscitate letters and what do we have in place to move ahead with his treatment? Or do we put a breathing tube in so he can recover from his illness? Or is the breathing tube something that's keeping him alive? Like is it because of his underlying disorder that he needs some breathing tube? So you're making those distinctions and you're looking at your child who's on all kinds of machines in a hospital and you're like, okay, what if we have to bury him next week? And those are not the kind of thoughts you want going around your head. But it's very practical and I'm a Capricorn and that's how I think. So I think the first thing that we did when those things kind of started happening, we were concerned about my older son Eli, who's 17 now and terrific and I was like, who is he going to talk to if something happens to Aaron? Because he's not gonna wanna talk to me or, or my husband stuck. I don't want to touch him. My sister, he needs like a third party. And I remember doing that early on, he was probably eight or nine and I thought, okay, we have that taken care of. We have a place for Eli to kind of process his feelings, but we have to, um, plan for things that you just don't think you need to plan for. And there are things that people don't want to talk about. Like you just have to, uh, compart mentally maybe and say this is where he'll be buried and when it happens, this is how we'd like it to happen. But those change, all those things change as you go through the process. I think that just understanding that it's going to be okay. You don't have a lot to do with it. Right? And you just have to understand it and not accept it, but understand it and move through it because it sucks. Don't get me wrong. So I think that's what gets us true to this situation where I was like having a little self pity party and I was really upset that I couldn't find some coffee at 10 o'clock at night. What's wrong with that? And it was really frustrating and that's at one of those times when you have a sick child, you kind of know that something's happening, right? Like he was not his normal self and he was having seizures that he didn't usually have and he was having some seizures that he hadn't had for a long time. So things were changing and you know that it could be growth, you know, it could be diet, it could be age, they have all these reasons for all these changes to happen and you end up going into the hospital a couple of times a year to have things checked out and that's where we end up. We end up in the hospital because everybody wants to help and the best possible way, except when you go for an EEG and people don't realize that there's a lot of times when you go into the hospital and you don't have full nursing care, you're on a floor and you're there and he's having all of these electrodes attached to his head and you're responsible for hitting this little alarm when you think he's having a seizure. So they can watch the video and look at the EEG printout and kind of determine if it's a seizure, if it's neurological, if they can say that it's a seizure or not and how to treat it, but you're the one for three days. In Aaron's case, we were there for three days this last time so we could be sure to catch what was happening and you're the one that's for doing it. You give him his meds, you are awake, you're watching the activity as it goes through, and then when you go to bed, there's somebody that comes into the room and watches it on the camera so you can't leave the room. You can't go down to elevators to get a cup of coffee or one elevator to go to the cafeteria because it's not open and room service is closed and then you just getting pissed, right? You're like, I have to stay up until midnight to turn him his last time. So Aaron, since he doesn't move, has to get moved every few hours. And the longest time that he sleeps on one side is from midnight to about six in the morning depending on when my husband wakes up. So I always have to stay up until midnight. And I was really frustrated and I'm like, why isn't there coffee ever in the hospital when I need it in the mornings before the rounds happen or the doctor start check again at seven o'clock in the morning and I've been up since five, why do I not have little more access to that? And I started thinking about it and I thought, well let's ask Keurig to help. And so that night, I think it was 10 45 I wrote them a letter and I said, it's 10 45 at night and I can't get a cup of coffee and how can we work together to make that happen in the hospital. And I had big visions of every floor having a Keurig machine for the families and it would be great and super easy. It seems so simple. And the rest of our stay happened. I wrote the letter, I put it aside, I went back to my job as seizure alarmist and couple of days later we went home and I'm like, Oh I wrote that letter, I should go read that letter. Maybe I'll send that letter. So I went back and I read it and I told my husband that I had written this letter and that I'm going to mail it out to the CEO of Keurig. So I did and I didn't hear from anybody and I was like, maybe I should send it to like the whole board of Keurig. So, cause it was Christmas time and who's really reading their mail and they're probably all off on vacation. And so in January, I think I sent it to all the board members listed on the cure USA website. And in February I got a phone call from this man, so I'm looking for Carolyn capital. I said, does this Carolyn? And he said, this is John Barrett from Keurig. And I'm like, it is not John Barrett from curate. And he's like, yes it is. And I was like, I was just trying to figure out how to start a fundraiser at Lurie's and how much a pure coffee machine would really cost. I'm doing all the research right now. And he's like, well, we'd like to help you out with that and as like you are kidding me. And he's like, no, whatever you need, figure it out, we'll help you. And so from that point I was like, I had already been complaining to people for two weeks and making sure that I was in the right. Nobody was going to disagree, that I don't deserve coffee when I want coffee. And I was getting a lot of really good feedback. I could have been because I was a little aggressive, but I knew that I was right. So I got in touch with Lurie's and I said, listen, I have this offer from Keurig and wouldn't it be great if we could get a machine on all the floors? And they're like, hold on there we are a huge hospital and we got to figure out if we can do it. And I, I got a few notes and this is when you learn that no is just the wrong answer. And if you keep complaining and keep talking about it, somebody is going to hear you and say, Oh well why can't we just try that on one floor? Because I had already gotten it down to that. My big dream had come in like how about a pilot program for three months? Can you give me that? And they're like, I don't know why we can't. That's a really reasonable thought and let me explore what we can do. So when this was all happening, it was my son's 13th year and in September I knew we were having a bar mitzvah. So in my mind, without telling a lot of people when I was up to, I was like, Oh, that would be a great way to kick off Aaron's bar mitzvah. You know, if people want to give money, we've always given money to make a wish. When I think Aaron was five, so Eli must've been around 11 we went on a Make-A-Wish trip and it was to this day, the best trip we've ever taken, I'm very grateful for that organization. And at every birthday for Aaron, we've always asked people to donate to make a wish. And I thought they've gotten enough money from us. We've paid that trip back. We sent a few kids on their own. We are all good with them. Let's see if we can switch directions and put our energies into this project. And so I had all of this formulating in my head and I kept getting no. So there were a few more phone calls and then one woman, Barbara Burke from the founders board. I think at Lori's called me up to give me the final no, and I kept her on the phone and she's like, I'm going to find out why we can't do this. I have a Keurig machine in my own house. It's very easy. I'm like, I know. So what's more? He got on board, it moved really quickly and we were able to set up a website through Lurie's about what we were doing and we were able to get it all done before labor day weekend in September and at his bar mitzvah I got up and told people what I was going to do and all of a sudden people were donating and people were sending me pictures of how they were using their mugs because everybody got a mug at the bar mitzvah and they'd fill up with pants or they'd show me their copy and I had an enormous help from, she's down my social media coordinator, but she's been Aaron's babysitters since he was one years old. She just said, we should put it online and this is a social media thing and you need an Instagram and a Facebook and a Twitter. And I'm like, I don't know how to use any of that. She's like, I'll teach you. And from that moment on, we've really snowballed when I was first formulating, and in my mind, people are going to give you money to give coffee to people. It's not for research or it's not for, you know, blankets or something for the kids. And I'm like, I'm done with the kids. Kids get tons of stuff. I don't think people realize that it's the whole family is part of the experience. And if you can bring a little comfort to the family in the smallest of ways, it's gonna make the biggest difference. And I always felt like if we could help the families, we were helping the child because you create less stress, you create a little peace of mind and it makes you better at navigating all of this unfamiliar stuff. All of the machines. Your child is all of a sudden hooked up to the medicine that I V bags, the noises in the hospital, the family that wants to desperately do something for you and they don't know what to do. You know, these are all ways you can help the whole community that supports you to make it a little easier. And I, I think it's a great idea and I just wish, you know, we can take it to a second floor and then a third floor and eventually as we continue, we can create grants for smaller hospitals. Set could use a Keurig machine, maybe don't know, pick you because they aren't big enough to have a pediatric intensive care unit, but maybe in their emergency room, you know, maybe we can spread a little bit of the comfort and help a lot of people. It doesn't take much. And I think the simplicity of it is really what's people are like, wait, what? You're just going to give them some coffee? I'm like, yeah, yes please. I think that people don't realize one in the hospital, it's expensive. So let's say that all of these years, until about two years ago, we got a Illinois medical waiver. So it helps us with everything. Like the 20% the deductibles, it goes through our insurance and then it goes to this waiver program and they help pay for it. So for the first 12 years we paid to have our house redone so we could have a wheelchair in the house. We had paid for diapers for 12 years. Those are big diapers and they're not like little Pampers. You can run to the store for wipes, gloves, you know, Chuck's for the bed, we have a really nice laundry machine because we do it all the time. We've spent all this money that people think, Oh that's like everyday kinds of stuff. But I don't think everybody has like a $700 a month bill for one medicine every month. Right. And they think, Oh well you have insurance and that's with insurance. So it's like paying for college but not saving for college for all of those years. And you're trying to save and you're trying to move money around. And that is stressful on its own. So these people that find themselves in the hospital in an emergency that we're counting on that. Like I been doing this for a long time. I know that when I used to go into the hospital and I got up $536,000 bill, I needed to pay 10% of that to the hospital. And that's a lot of money. So for years I was on a constant payment plan and I think that people, one, they need to know about those payment plans. Any hospital will take a payment plan and you should ask about it and get on it and only give them what you can afford. If anything anybody hears today, that should be it. But it's stressful. Money is stressful, sickness is stressful. So when you have those things mixed together and you find yourself in a hospital and you're like, can I really afford a $4 cup of coffee at Starbucks down the way? Maybe not. Maybe I could get a free cup of coffee down the hall and be back in time to talk to the nutritionist or the doctor. That's coming around. And if I'm gone for a couple of seconds, the nurse can say, Oh, she just went to get a cup of coffee. She'll be back in moments instead of finding out where the doctor is on the floor and what time rounds usually are, and then to rush out, get your copy and something to eat and then get back to your room so you don't miss anything. It's a whole different like universe inside a hospital. And it's even more difficult and unnerving to be in a PICU because a pediatric intensive care unit, just like when adults go to an intensive care unit, things are not good. So the best day, and I've said this before in the PICU, is the day you leave the pick queue and you want to leave the PICU. So it's just a different way of thinking of it and really simplifying it and saying, we appreciate what you're going through. We been there, we're a family that has experienced it, and we want you to know that it's going to be okay. It might take a little while. The journey is a long one and you just gotta stick with it. Passionistas: Is there one lesson you've learned so far on this journey that sticks with you the most? If you have a good idea and you hear no a lot, that you should take a risk and just keep trying for yes. Carolyn: I think that's a really big lesson to learn and that these things take time. You know, it takes a long time for somebody to say yes and it's worth it at the end when you hear yes, just don't give up. It's not anything great, but it's hard to do in practice is to not give up and just not take no for an answer. Because when you don't stop, there's going to be a door that opens up and somebody's gonna say, Hey, I'm there with you. And I think that's important to keep in mind and, and learn about yourself. Stick to it. If miss, I don't know. It's been a good journey. Hard, difficult, sad, glorious, fun. I mean all of those things. But it's still a journey. And at the end, we're all going to meet our end and the Aaron's going to meet it in its own time surrounded by people he love living a life that has been glorious because the people around him are glorious. What more could you ask for really? Right. So it's all gonna be good in the end. Passionistas: Thanks for listening to The Passionistas Project Podcast and our interview with Carolyn Koppel. To learn more about her mission, to provide 24/7 access to free Keurig coffee to the family, friends and caregivers of patients in the pediatric intensive care unit of Ann and Robert Laurie's Children's Hospital of Chicago, visit AaronsCoffeeCorner.org. And be sure to subscribe to the passion Eustace project podcast so you don't miss any of our upcoming inspiring guests.

This is another exciting conversation with a physician who is following a non-traditional career path! Dr. Arup Roy-Burman Dr. Roy-Burman is a pediatric intensivist (aka pediatric critical care specialist) and former Medical Director of the Pediatric Intensive Care Unit at UCSF Benioff Children’s Hospital. Dr. Roy-Burman is now the CEO of Elemeno Health, which he cofounded in 2016. Dr. Roy-Burman completed his undergraduate degree at UC Berkley in 1989; completed his medical degree at UCSF in 1994; completed his residency in pediatrics at Stanford in 1997; and then returned to UCSF for a fellowship in pediatrics critical care (aka PICU fellowship), which he completed in 2000. After his fellowship, Dr. Roy-Burman took his first attending job at the Children's Hospital of Oakland eventually crossing the Bay to fill the role of Medical Director of the PICU at UCSF Benioff Children’s Hospital in 2011, where he was also the Director of Transport, Access and Outreach. In this dual role of Medical Director of the PICU and Director of Transport, Access, and Outreach allowed Dr. Roy-Burman to interact with large swaths of the healthcare system from inpatient to outpatient and with all sub-specialities who consult in the PICU. With this experience of the inter-workings of the hospital system combined with his clinical understanding of patient care and provider pain points, he decided to co-found Elemeno Health, which received backing from famed accelerator and venture capital firm, Y Combinator. At a high-level, Elemeno Health is a SAAS (software as a service) company whose software aims to help push best-practices to front-line providers as well as capture feedback from these front-liners, thereby closing the "knowledge-practice gap." ***Medical students, residents and all interested parties:*** If interested in joining the Elemeno Health team, Dr. Roy-Burman would love to hear from you at info@elemenohealth.com! Please enjoy with Dr. Roy-Burman! P.S. We recorded this one in Dr. Roy-Burman's car on his drive from an investor meeting in Palo Alto back to his startup digs in Oakland, which makes for an interesting listen! Try to get through the first 5 minutes--the audio gets much better.

Christopher M. Horvat, MD, MHA joins JAMA Network editors to discuss a cohort study that examines whether severe hyperoxemia events are associated with mortality among children admitted to a pediatric intensive care unit. Read the article here: https://ja.ma/2L96Cei. JNO Live is a weekly broadcast featuring conversations about the latest research being published in JAMA Network Open. Follow us on Facebook, Twitter and YouTube for details on the next broadcast.

In this episode of Live, Learn & Play we sit down with Taylor Long, a nurse in the Pediatric Intensive Care Unit, to chat about the culture of nursing here at Arkansas Children's, the values of being a nurse, and a behind the scenes look at what makes Arkansas Children's different as a pediatric hospital.

In this episode, host Mary Susan speaks with friend Jessica Stevens about her life as a nurse in the pediatric intensive care unit. They discuss everything from tips for parents, handling the holidays in the hospital, to the behind the scenes of a nurse's world...

Mary Giehl’s art echoes themes that she had encountered through her work experience as a Registered Nurse in a Pediatric Intensive Care Unit. She often cared for children after they had been abused and much of her work focuses around this theme. There are hints of darkness and confinement in her installations, along with a mixture and balance of playfulness and seriousness. Mary is also a dedicated rock climber, and creates dramatic spandex costumes for her nephew who is a semi-professional wrestler called Dalton Castle for Ring of Honor Wrestling. Some of her work can be seen at https://marygiehl.com/

Margaret Parker, MD, MCCM, speaks with Shari Simone, DNP, about the article, Implementation of an ICU Bundle: An Interprofessional Quality Improvement Project to Enhance Delirium Management and Monitor Delirium Prevalence in a Single PICU, published in the June 2017 issue of Pediatric Critical Care Medicine.

Margaret Parker, MD, MCCM, speaks with Shari Simone, DNP, about the article, Implementation of an ICU Bundle: An Interprofessional Quality Improvement Project to Enhance Delirium Management and Monitor Delirium Prevalence in a Single PICU, published in the June 2017 issue of Pediatric Critical Care Medicine.

As of today, we are done with all chemo treatment.  I can't believe I'm actually writing this. On April 14, 2014, our family's world was turned upside down when we were told our little 5 year old boy had Leukemia.  I remember the first night in the Pediatric Intensive Care Unit, watching the nurse come [...]

More than 3 million children are hospitalized in the United States. Every 33 minutes a child is diagnosed with cancer and that's just one reason that children are admitted to the hospital. Twelve years ago on Halloween, Summer Germann's family became one of those statistics. Little did they know that they were about to be face the fight of their lives when Summer's younger brother was diagnosed with a terminal illness. Her only sibling,15 years her junior, Summer was with him constantly. Halloween was his favorite event and Summer wanted him to enjoy that time regardless of being in the hospital. One year later, her brother was back in the hospital in the Pediatric Intensive Care Unit, and an idea was born - to create children's hospital gowns that made them into the super heroes of their dreams. And Brave Gowns were born. Join me in this conversation, how one family's tragedy is bringing hope and joy to critically ill children.

Margaret Parker, MD, MCCM, speaks with Christina L. Cifra, MD. Dr. Cifra is a Pediatric Intensivist and an Assistant Professor in the Department of Pediatrics at the University of Iowa Carver College of Medicine in Iowa City, Iowa.

Margaret Parker, MD, MCCM, speaks with Christina L. Cifra, MD. Dr. Cifra is a Pediatric Intensivist and an Assistant Professor in the Department of Pediatrics at the University of Iowa Carver College of Medicine in Iowa City, Iowa.

Margaret Parker, MD, MCCM, speaks with Ann-Marie Brown, ACNP, PhD, RN, FCCM, Assistant Professor of Nursing at the University of Akron and Advanced Practice Nurse in the Pediatric Intensive Care Unit at Akron Children's Hospital in Akron, Ohio.

Margaret Parker, MD, MCCM, speaks with Ann-Marie Brown, ACNP, PhD, RN, FCCM, Assistant Professor of Nursing at the University of Akron and Advanced Practice Nurse in the Pediatric Intensive Care Unit at Akron Children's Hospital in Akron, Ohio.

In this podcast, Editor-in-Chief Kelly A. Tappenden, PhD, RD, interviews Bodil Larsen, PhD, RD about her article, "Epidemiology of Interruptions to Nutrition Support in Critically Ill Children in the Pediatric Intensive Care Unit," published in the February 2015 issue of JPEN.