Girls with Grafts

In honor of National Volunteer Week, we're joined by Jeanette Johnson - burn survivor, Phoenix Society volunteer, and a voice of hope and healing.

In our latest episode of Girls with Grafts, Rachel sits down with Brian O'Connor, a Senior Engineer in the Technical Services department at the National Fire Protection Association (NFPA), to discuss lithium-ion batteries.

In this special episode of Girls with Grafts, hosts Amber Wilcox and Rachel Kudlak sit down for a light-hearted conversation!

In this episode of Girls with Grafts, we sit down with Lee Hoff and Morgan Moore, the dynamic duo behind Morgan & Moore Non-Surgical Hair Replacement and Inclusive Crowns, to discuss their mission to provide hope, healing, and holistic support through cranial prostheses and hair loss solutions.

In this episode of Girls with Grafts, we sit down with Dr. Victoria Miles to explore the fascinating and complex world of hypermetabolism—the body's heightened metabolic response after a burn injury.

In our latest episode of Girls with Grafts, we sit down with burn survivor, massage therapist, and instructor Jen Hartley to explore the transformative power of touch in scar healing. Jen opens up about her personal burn injury and how it led her to a career in massage therapy.

In this episode of Girls with Grafts, Rachel and Amber sit down with Dr. Shaun Mendenhall, a board-certified hand and plastic surgeon specializing in pediatric burn care and reconstructive surgery.

In this powerful episode of Girls with Grafts, Amber and Rachel sit down with Crystal Raye, a self-inflicted burn survivor, to explore her incredible journey of healing and growth.

Welcome to the season six premiere of the Girls with Grafts podcast! This episode features an inspiring and heartfelt conversation with the incredible Danette Haag.

In our last episode of Season 6 of Girls with Grafts, Rachel and Amber sit down with Cat Eustace, a dedicated burn care professional and current Outpatient Burn Clinic Supervisor. We start our conversation by learning how Cat got involved in burn care and how her love for our community has developed over the years.

In this episode of Girls with Grafts, we're honored to sit down with Dr. Tam Pham, the Program Director at the University of Washington Medicine Regional Burn Center. Dr. Pham opens up about his personal journey when he sustained a burn as a young child. Rachel and Dr. Pham discuss the topic of imposter syndrome among some burn survivors and caregivers, highlighting that while we may not all have physical scars, we do all carry emotional ones.Dr. Pham also shares the critical role of aftercare and support services in helping survivors reclaim their lives and thrive beyond their injuries. He also reflects on his connection with Grace Athena Flott, a local artist, fellow survivor, and former patient, whose powerful artwork he proudly displays in their burn clinic. This episode is a moving tribute to the resilience of the burn community, the power of support, and the art of turning pain into purpose. Don't miss this inspiring and heartfelt conversation!  ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Dr. Tam Pham is a highly accomplished surgeon specializing in burn and trauma care, with extensive academic and clinical experience. Currently, he is a professor and director of the University of Washington Medicine Regional Burn Center at Harborview Medical Center. A graduate of the University of California, Dr. Pham pursued rigorous postgraduate training, including a General Surgery residency, and fellowships in burn care and surgical critical care at the University of Washington. His academic contributions are significant, with numerous published research papers, including studies on critical care and telemedicine applications in burn care.Dr. Pham has also been honored with numerous awards and is dedicated to advancing burn care. He has volunteered internationally as well as holds board certifications and is a member of many professional organizations, including the American Burn Association. Links Watch Dr. Rob Cartotto's Girls with Grafts podcast episode on YouTube. Watch Grace Athena Flott's Girls with Grafts podcast episode on YouTube.Learn more about Grace's recent selection to create Governor Jay Inslee's official portrait.Learn more about Phoenix SOAR (Survivors Offering Assistance in Recovery).Podcast Sponsor Today's podcast is powered by the National Fire Sprinkler Association! NFSA aims to protect lives and property through the advancement of fire sprinklers. Learn more about fire sprinklers, fire advocacy, and how to get involved by visiting nfsa.org.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

In today's episode of Girls with Graft, we're honored to feature Alexi Pyles—a burn survivor, Licensed Professional Clinical Counselor (LPCC), and Certified Rehabilitation Counselor (CRC). Alexi's journey began halfway around the world when she was just six months old, and her experiences have fueled a lifelong passion for helping others.Join us as we dive into Alexi's career as a therapist, her invaluable advice for fellow survivors considering therapy, and her reflections on what it truly means to be "healed." We also explore her love for stunts and gymnastics, her expertise in Dialectical Behavior Therapy (DBT), and how creativity plays a vital role in the healing process.  ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Alexi Pyles is a child burn survivor. She was burned at six months old with second and third degree scald burns on her neck and chest. Alexi was abandoned by her parents shortly after the incident. She stayed in an orphanage until the age of two when she was adopted by a single parent mother who brought her back to the states. Alexi doesn't have any memories of her burns, other than what was told. She received extensive burn care from the ages of three to her teens. Due to the lack of immediate care, Alexi did not have the typical burn treatment like skin grafts, expanders, or spending time in a hyperbaric chamber. She had steroidal injections, pressure garments, stitching, and lasers. Today, Alexi is a licensed professional clinical counselor (LPCC) and certified rehabilitation counselor (CRC) with a speciality in DBT therapy modality and trauma informed care. She has worked in many mental health settings including residential, IOP/PHP, hospital, and low acuity outpatient. She currently works for Kaiser Permanente as a psychiatric social worker focusing on their high acuity cases by connecting them to higher levels of care. During her free time, Alexi likes to do stunts and acting, gymnastics, going on hikes especially the beaches and anything creative.  Links Learn more about DBT therapy.Sign up for Phoenix Society's virtual support group.Explore all of Phoenix Society's support offerings.Read “Painting Through the Darkness,” Painting Through the Darkness.Read “Controlling the Internal Flames,” written by Alexi Pyles.Read “Tackling Self-Sabotage,” written by Alexi Pyles.Podcast Sponsor Today's podcast is powered by the National Fire Protection Association! NFPA is a nonprofit that seeks to save lives and reduce loss with information, knowledge, & passion. Learn more about fire safety and explore their educational resources by visiting www.nfpa.org.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

In this episode of Girls with Grafts, host Rachel sits down with Raj Arora, CEO of Jensen Hughes, to delve into the inspiring new partnership between Jensen Hughes and the Phoenix Society for Burn Survivors. Raj begins by sharing his professional journey in the fire engineering industry and what drew him to this critical field. He also recounts his impactful first connection with the Phoenix Society, including a transformative experience at the Phoenix World Burn Congress, and how everything fell into place to bring about this meaningful collaboration.Together, Rachel and Raj explore the shared mission of both organizations: to support burn survivors and promote a safer, more resilient world. They discuss the tangible ways this partnership aims to advance fire prevention and safety standards, as well as the powerful role community plays in recovery and empowerment.Tune in to hear how Jensen Hughes and the Phoenix Society are coming together to make a lasting difference for burn survivors and set a new standard for fire safety!  ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest As CEO of Jensen Hughes, a global market leader, Raj Arora guides the company's rapid expansion while ensuring a steadfast commitment to technical excellence and exceptional client service. Through his leadership, he has transformed the company culture, helping to accelerate growth and inspire its 1,700+ engineers, consultants, data scientists and functional experts to develop and deliver innovative solutions that make our world safe, secure and resilient. Throughout his two decades in the fire, security and risk engineering industry, Raj has built a reputation as a skilled engineer and a strategic business leader with a passion for fostering a positive organizational culture. Earlier in his career, Raj held leadership positions as Vice President and General Manager of Johnson Controls' $1 billion Fire Detection and Special Hazard Product division, headquartered in Switzerland. As an equity partner at Arora Engineers, he helped catapult the firm from a small operation to an industry leader in MEP Engineering within the aviation and rail industries.Raj is a licensed Professional Engineer and holds a Bachelor of Science in Fire Protection Engineering from the University of Maryland. Over the course of his career, he's received multiple awards, including Consulting-Specifying Engineer's Top 40 Under 40 honor and Early Career and Distinguished Alumni awards from his alma mater. Moreover, he was recognized at Tyco with prestigious performance awards for accountability, teamwork and technical acumen. He currently serves as a board director for the National Fire Protection Association.Links Visit Jensen Hughes website.Follow Jensen Hughes on LinkedIn.Sign up for Phoenix Society's newsletter. Watch the “Healing Power of Comedy.”Watch Danny Gropper's Girls with Grafts episode on YouTube.Podcast Sponsor Today's podcast is powered by Jensen Hughes! Jensen Hughes has been a global leader in fire protection engineering since 1939. Their diverse team of more than 1,700 engineers, scientists, and consultants tackles complex risk, safety, and security challenges, helping clients protect lives, property, and reputations. Together, they blend expert knowledge, innovative solutions, and cutting-edge research to make the world safe, secure, and resilient. Learn more by visiting www.jensenhughes.com. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

In this heartfelt episode, Rachel and Amber sit down with Kimaree Lewis, the resilient mother of a burn survivor, to hear her powerful story of navigating trauma, healing, and hope. Kimaree opens up about the day her family's life changed forever, her son and family's emotional and physical challenges, and how her family's faith got them through the toughest times. Join us as Kimaree shares insights on caring for her family and also herself, how giving back as a Phoenix SOAR Peer Supporter has impacted both her and her son, and her advice for other caregivers. Tune in to hear how one mother's journey can offer hope to anyone facing life's most challenging moments.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Kimaree Lewis is the mother of five children and the wife to an awesome husband. She is a Human Resources Manager and in 2024, she received the Human Resources Professional of the year. Kimaree lives by the motto: “Lead others to look up to the person they see in the mirror.” She wants to help others create a reflection that they are proud of and a shadow they don't mind lurking behind them. Helping people is her passion and she feels full and accomplished when she knows she's helped better another's situation or circumstance.   Links Watch our latest podcast episode with physical therapist, Ingrid Parry, where we talk about the importance of movement in burn recovery.Read “Me, Enough? A Sibling's Story of Becoming Free of Guilt and Shame,” where Katherine Hill shares her journey of letting go of the shame and guilt she felt after living through a house fire that injured her twin sister.Read “Self-Care for Caregivers.”Learn more about Phoenix SOAR (Survivors Offering Assistance in Recovery) and how to become a trained Peer Supporter. Podcast Sponsor Today's podcast is powered by the Pritzker Hageman Law Firm! The Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more at: LegalJourney.guide.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

It's World Burns Week, and today's podcast episode features a special takeover by Phoenix Society for Burn Survivors' CEO, Amy Acton! Amy, who has been actively representing the organization on the World Burns Week steering committee, welcomes two incredible guests from Nigeria: Dr. Onuh and Patience. Dr. Onuh is a passionate and skilled surgeon dedicated to advancing burn care, while Patience is a courageous burn survivor eager to share her story.World Burns Week envisions a future where burns are prevented and everyone—no matter their location, income, gender, age, or ability—has access to timely and effective care. In this inspiring episode, Dr. Onuh and Patience discuss the realities of burn care in Nigeria and survivors' unique challenges in achieving equitable treatment. As a special surprise, Patience's role model, Kechi, joins the conversation, creating a heartfelt and unforgettable moment.Listen in today to learn more about World Burns Week and discover ways to get involved in the global movement to reduce inequality in burn care and support survivors worldwide!  Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guests Dr. Onuh is a dedicated burn, plastic, and reconstructive surgeon from Nigeria with a passion for burn care. She advocates for multidisciplinary burn care and is actively involved in managing burn patients. Dr. Onuh is also committed to research, education, and prevention to reduce the burden of burns in her country. Through her work, she aims to improve outcomes for burn patients, burn survivors and advance the field of burn care. Patience is also from Nigeria and sustained a burn injury not that long ago.Links Learn more about World Burns Week.Watch our latest Girls with Grafts episode featuring Kechi!Sign up for Phoenix Society's newsletter. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

In this episode of Girls with Grafts, Amber, and Rachel are joined by the incredible Ingrid Parry, a passionate physical therapist and rehabilitation researcher with years of experience supporting burn survivors on their recovery journey. Ingrid's unique perspective, gained from her extensive research and leadership roles, adds a valuable dimension to our discussion. Together, we explore physical therapy's vital role in burn recovery, the importance of exercise and movement, and the benefits of yoga. Ingrid also shares insights from her numerous research projects, her work with Cutaneous Functional Units (CFUs), and her time as president of the American Burn Association (ABA). Tune in for practical insights, inspiration, and tips on integrating movement into your burn recovery!   ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Ingrid Parry MS, PT, BT-C, PhD candidate, is a Physical Therapist and a Rehabilitation Researcher at Shriners Hospitals for Children, Northern California, and the University of California, Davis. She has worked in burn care for 29 years. Her study interests are diverse within burn rehabilitation and include facial scar management, cutaneous functional units, burn scar contracture, pediatric burn rehabilitation, and early exercise with burn survivors. In 2022-23, she was named president of the American Burn Association as the first non-surgeon to lead the organization.  She has published over 53 peer-reviewed publications and volunteers extensively with various domestic and international burn organizations. She is presently working on her Ph.D. at the University of California, Davis, School of Nursing and Healthcare Leadership with a focus on using cutaneous functional units to predict contracture risk.  In her free time, Ingrid enjoys yoga, dancing, paddleboarding and loves to travel with her husband and three sons.   Links Read “The Miracle of Yoga for Burn Survivors”Learn more and Ingrid Parry and her role with ABA Podcast Sponsor Today's podcast is powered by Buses by the Beach! Buses by the Beach is a group of VW bus lovers, based in West Michigan. They camp, host events, and raise funds for Phoenix Society for Burn Survivors. Learn more about them and save the dates for their 2025 events by visiting https://busesbythebeach.org/.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. 

In this special Girls with Graft episode, we're spotlighting Fire Prevention Week with Phoenix Partner Summit Fire & Security! Rachel sits down with Steve Rice, a seasoned expert with years of experience as the Operations Manager of the Installation Department at Summit Fire & Security, to discuss all things commercial fire safety. Steve shares practical information on how Summit Fire & Security works with commercial spaces to design, install, and maintain fire systems. He provides valuable insights on prevention systems, the importance of routine safety checks, and what you need to know to stay safe in commercial spaces. Whether at work, staying at a hotel, or going out to eat, this episode equips you with critical information to help you be prepared and protect what matters most.Fire Prevention Week 2024This year's FPW campaign, “Smoke alarms: Make them work for you!™” strives to educate everyone about the importance of having working smoke alarms in the home. Learn more about FPW and how to keep you and your family safe by visiting: https://www.nfpa.org/events/fire-prevention-week   

In today's episode, Rachel and Amber sit down with burn survivor Jason Nelson and experienced burn injury attorney Matt Cunningham to explore the complexities of navigating a burn injury legal case.Jason shares his inspiring story of resilience and recovery, showcasing firsthand how you can turn a tragedy into triumph. Matt provides expert legal insight, breaking down the anatomy of a burn injury lawsuit—from the importance of contacting an attorney quickly and assessing damages to the critical steps in building a strong case. Together, they shed light on the challenges survivors and families face and how the legal system can offer a lifetime of support. Tune in to learn about the intersection of personal experience and legal expertise in burn injury cases and how justice can help rebuild lives.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guests Matt Cunningham is a trial attorney who has been handling burn injury cases for over 25 years.  He is recognized as one of the top burn injury lawyers in the United States.  He is the owner and President of the Cunningham Law Firm which is recognized as America's top burn injury law firm.  Since 1996, Matt and the Cunningham Law Firm have represented over 124 clients involving burn related injuries.  Matt is a member of the National Fire Protection Association, American Burn Association, Phoenix Society for Burn Survivors, and previously a guest speaker at the North American Burn Society.  During his career he has obtained some of the highest verdicts and settlements involving burn related injuries.  In 2008 he obtained the highest burn injury verdict in Arizona state history.  Matt and the Cunningham Law Firm are recognized as true advocates on behalf of burn survivors, their families, and generously supports the work of burn foundations across the United States.  Matt is recognized as one of the Top 100 Trial Lawyers by the National Trial Lawyers Association, Best Lawyers of America, Elite Lawyers of America, Arizona's Finest Lawyers, and Southwest Super Lawyers.Dr. Kevin Foster, Director of the Arizona Burn Center, stated about Matt, “Matt Cunningham has earned the respect of the burn community through his hard work, compassion, and deep understanding of the true impact of burn injuries.”  Matt is honored to be a part of the burn community and a champion of justice for burn survivors and their families.  Jason Nelson, a Phoenix, Arizona native, experienced a life-altering event on February 9, 2014. A natural gas explosion in a rental home he owned left him with a staggering 80% Total Body Surface Area (TBSA) burn. The trauma was immense, but Jason's resilience shone through.After enduring countless surgeries, enduring grueling therapy sessions, and navigating the long road to recovery, Jason found a purpose beyond his own healing. Driven by a deep-seated desire to give back to the organizations and individuals who supported him through his ordeal, he dedicated his life to advocating for burn survivors.Jason's involvement with the Arizona Burn Foundation is a testament to his commitment. As a member of the Board of Directors, he actively contributes to shaping the foundation's mission and strategies. His personal experience provides invaluable insights into the unique challenges faced by burn survivors, enabling him to advocate for programs and initiatives that address their needs effectively.Moreover, Jason's fundraising efforts have been instrumental in generating over a million dollars to support burn survivors' journeys. His passion and dedication have inspired others to contribute to this worthy cause, ensuring that burn victims receive the necessary resources to thrive.Jason Nelson's story is a powerful reminder of the human spirit's ability to overcome adversity. His unwavering commitment to helping others recover from the devastating impact of burns serves as an inspiration to countless individuals. Through his tireless efforts, he continues to make a significant difference in the lives of burn survivors, transforming their experiences from tragedy to triumph. Links Connect with the Cunningham Law Firm team by calling 602-257-1750 or visiting their website: http://cunninghamlawfirm.com.Watch the Courage Rising Film.  Podcast Sponsor Today's podcast is powered by Cunningham Law Firm! Located in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

Medley Zeigler Bokun and her husband, Kevin, were just three weeks into their marriage when tragedy struck, and they were both involved in a home gas explosion. The two newlyweds found themselves spending what typically is considered the "honeymoon phase" in the ICU. In today's podcast episode, Medley joins Rachel and Amber to talk about her burn injury, the struggles she faced after going home from the hospital, and how she and Kevin navigated their journeys with their unwavering family and friends by their side. ❤️ We also chat about motherhood and fears Medley had before having her son Levi, the common struggle of overheating, and the fantastic drink Body Armor. Tune in today to see how Medley truly embodies the word resilient! ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Medley Zeigler Bokun, BSN, RN graduated from nursing school at Southeastern Louisiana University at the end of 2017 and immediately began her career at a Women's Hospital in Baton Rouge, LA working as a med-surg and oncology nurse. In June of 2019 she married her wonderful husband, who at the time was a third year medical student. Just three short weeks after their wedding, they were in a gas explosion in their home. It was nearly fatal for both of them, but Medley especially sustained second, but mostly third degree burns across 96% of her body. Her chance of survival was not high, but God had other plans. Now Medley and her husband, Kevin, feel that God has called them from a place of medical ministry to a ministry that's focused on spiritual and emotional healing. Medley and her husband now travel and speak at conferences, churches and social gatherings sharing their story of survival. And most recently in February of 2024, they welcomed their first baby into the world, a sweet baby boy named Levi.  Links Follow Medley Zeigler Bokun on Instagram Read “Working Through Guilt after a Burn Injury”Get Amber's “Scars are Tattoos” shirtPodcast Sponsor Today's podcast is powered by Exsurco Medical! Exsurco engineers high precision products for both the healthcare and tissue bank professionals and are dedicated to advancing the healing power of skin to patients who need it the most. Learn more at www.Exsurco.com.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

What's something that rhymes with no-handed? Bandit! In today's podcast episode, podcast hosts Rachel and Amber are joined by Samoana Matagi, better known as the No-Handed Bandit. Sam talks about the high-voltage electrical accident that caused him to lose both arms and how the No-Handed Bandit was born. We also chat about Sam's first time through a toll booth, his recent encounter with a moose, his experiences wakeboarding, and the power of peer support. Tune in today!  ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Samoana Matagi earned a Bachelor of Arts in Broadcast Journalism in 2004. After two years in the field of Broadcast Journalism, he changed career paths to a high-voltage electrical line worker. Three years into his apprenticeship, he was involved in an electrical work accident that cost him his hands. He then became critically acclaimed for his recovery story, which drove him to create a YouTube channel to help other amputees. Now, he speaks to audiences about resilience. Learn more at www.nohandedbandit.com or by connecting with him on YouTube, Facebook, or Instagram.Links Follow the No Handed Bandit on YouTubeFollow the No Handed Bandit on FacebookFollow the No Handed Bandit on Tik Tok Learn more about Phoenix SOAR and become a Peer SupporterSubscribe to Journey MagazineGet Amber's “Scars are Tattoos” shirt Podcast Sponsor Today's podcast is powered by UL Solutions! A global leader in applied safety science, UL Solutions transforms safety, security and sustainability challenges into opportunities for customers in more than 110 countries.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. 

Play and work with joy is a mantra Michael Van Every lives by. In today's episode, Rachel and Amber are joined by Michael, who was injured in a house fire as a child. Growing up, Michael knew he was different from his peers but never let that stop him. Over time, he found his own voice through playing sports, from the support of his parents, and believing in himself. Now, Michael is the President and Managing Partner of Republic Urban Properties and is deeply committed to giving back. His journey has led him to reconnect with the Regional Burn Center at Santa Clara Valley Medical Center, where he was once a patient. Through fundraising events and advocacy efforts, Michael is dedicated to helping survivors overcome their emotional and mental battles. His unwavering dedication is a moving testament to the power of resilience and the human spirit.   ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guest Michael Van Every is the President and Managing Partner of Republic Urban Properties, the Bay Area flagships of the Republic Family of Companies. Mr. Van Every works with Federal, State and Local governments on the creation and development of ‘smart growth' projects, such as master-planned communities near transportation hubs; urban mixed-use projects near major employment centers; and innovative, public-private partnerships. The Republic Family of Companies is known for developing institutional-quality real estate throughout the United States, from land development, to historic adaptive reuse to shopping malls.In his 25 years of working experience representing major institutional and private real estate developers in the greater Bay Area, Van Every has earned the reputation as a man with the leadership, the knowledge, the experience, and tenacity to see complicated projects through from land acquisition to completion. Under Van Every's leadership, RUP has gained national attention for its Transit Orientated Development (TOD) projects at key transit stations working as the premier public-private partner with many transit authorities across California.Since 2006, as the managing partner of RUP, Van Every has been involved with the planning, financing, construction and delivery of 1,238 multifamily units and 145,000 square feet of mixed-use commercial space. In addition to the multifamily pipeline, RUP has approximately 380 hotels rooms, 151,000 square feet of office, and 120,000 square feet of retail in various stages of development. The estimated hypothetical market value among projects is projected at $1.5 billion in value.A third-generation San Jose native, Van Every holds a Bachelor of Arts degree in Journalism from California State University at Fresno. Van Every is an active member of the Silicon Valley Leadership Group, and he serves as a Board Member on San Jose Stage Company. Michael is married and lives with his wife Jennifer and Jacob in the Willow Glen Neighborhood of San Jose.Links Learn more and support the “San Jose Q&A: A Trivia Showdown in Support of Burn Recovery”Meet the team at the Regional Burn Center at Santa Clara Valley Medical CenterLearn more about the Winchester Mystery HousePodcast Sponsor Today's podcast is powered by one of our fire prevention partners, Telgian! Telgian is committed to providing effective and innovative fire protection, life safety and security programs. Learn more by visiting www.telgian.com.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

Kechi Okwuchi, a living example of resilience, faced a life-altering plane crash that left her with burns over 65% of her body. However, Kechi's story is not one of despair, but of hope and positivity. During our live episode, Amber and Rachel caught up with Kechi and learned more about her America's Got Talent experience (including who her favorite judge is!), and what's next with her singing career. Kechi also shared her experience writing a book and tips for others who want to share their story. We closed the episode by talking about how Kechi keeps it real on social media and how she handles negative comments.   ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guest Kechi is a Nigerian-born author and powerful singer.  She is an inspirational and TEDx keynote speaker, MBA student, and bullying prevention advocate. Her dramatic story, as well as her impactful messages of resiliency and overcoming combine powerfully to inspire personal and cultural transformation. Kechi found her true voice after her accident- a plane crash that took the lives of 107 of 109 passengers in Nigeria in 2005. Throughout the difficult journey of burns recovery, Kechi was sustained by her Christian faith, her family and her music. She resumed high school in 2009 and in 2015 she graduated First Class from University of St. Thomas, Houston, with a Bachelors in Economics.Becoming a finalist on America's Got Talent 2017 was Kechi's truest dream realized, and on June 10th 2018, she released her debut single, ‘Don't You Dare' on all digital music platforms. She became a burn survivor advocate for multiple organizations, including the hospital she herself was treated at- Shriners Burns Hospitals for Children- now Shriners Children's TX- Galveston, Texas.In 2019, Kechi became a finalist on the premiere season of America's Got Talent: The Champions through Simon Cowell's golden buzzer. Since then, she has become an active ambassador for multiple organizations such as WEMovement, Be Strong Global and the United Nations Foundation #TOGETHERBAND project, advocating for various global causes such as youth empowerment, bullying prevention advocacy, and sustainable living. Kechi's memoir ‘More Than My Scars' released on March 29th, 2022 under Baker Publishing Group, and her self-titled debut album is currently streaming on all digital music platforms. Kechi hopes to use her voice and her story to ignite hope all over the world within those that need it.Links Get your copy of “More Than My Scars” Listen to Kechi's music Follow Kechi on InstagramPodcast Sponsor Today's podcast is powered by AlloSource! AlloSource is one of the largest human tissue providers, honoring tissue donors by creating innovative skin allografts to help burn surgeons heal patients. Learn more about AlloSource and their continuing education hours by visiting their Resource Marketplace Listing directly on Phoenix Society's website: https://resources.phoenix-society.org/resource-marketplace/allosource.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. 

We say it all the time: nothing heals survivors like other survivors. In today's podcast episode, Diana Tinney joins us again to discuss research, advocacy, and helping other survivors. Diana shares how she got involved with research, sheds light on common survivor struggles with nutrition, and opens up about overcoming addiction. Upon her return from the hospital, Diana found solace in peer support visits, a transformative experience that underscored the healing power of survivors sharing their stories. This realization, coupled with her proactive curiosity, connection with the local burn care team, and the strength of peer support, propelled Diana into the realm of research and advocacy for the burn community. Over the years, she has actively participated in various research studies, including the recent CLIMB study. Her active involvement in these initiatives, irrespective of the research project or advocacy issue, has always been driven by her goal to enhance the lives of future survivors. Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest In 2010 at the age of 54, Diana Tenney was burned 94% of her body, which consisted of mostly third degree burns. Dianna spent over a year recovering from her injury in the hospital and then went on to have reconstructive surgeries for the next seven years.She has spent most of the last 10+ years working with other burn survivors and medical researchers. She is the past president, secretary, and treasures of Burn Survivors of New England, co-coordinator of Knowledge Translation for the Boston-Harvard Burn Model Systems, trained Phoenix Society peer supporter, previous speaker with the American Burn Association, former Wellness Room Leader at Phoenix World Burn Congress, and so much more. She is extremely active in burn research and advocacy. Diana has also been sober for many years and is active in AA. Diana married her sweetheart, Jerry, in 2023 and has currently relocated with her husband, dog Barney, and cat Pebbles, to Tennessee to help care for her mother. Additionally, Diana is very physically active and participates in ZUMBA and yoga.  Links Watch Diana's previous episode on Youtube Read Diana's book: “God Never Moved: A Couple's Journey Through Fire to Life”Join Vanderbilt Burn Center's support groupLearn more about Burn Survivors of New EnglandJoin Phoenix Society's support groupParticipate in the CLIMB study by emailing bostonharvardbims@partners.orgExplore resources from the Burns Model SystemLearn more about burns being a chronic conditionExplore resources on nutrition for burn survivorsGet your copy of “Living a Healthy Life with Chronic Conditions"Learn more about Al-Anon  Podcast Sponsor Today's podcast is powered by Johnson Controls! Johnson Controls is a global leader in fire safety and suppression technologies, helping to save lives and protect people around the world. Learn more about Johnson Controls by visiting their website: https://www.johnsoncontrols.com. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

We're kicking off Season 5 of Girls with Grafts with a fun Q&A with your hosts, Rachel Kudlak and Amber Wilcox! Rachel and Amber start today's podcast by sharing their burn survivor stories, how they're doing now, and how they got connected with Phoenix Society for Burn Survivors. They also chat about their love of reality TV before running through ten rapid-fire questions. Whether you are an OG listener or a new fan, you're bound to learn something new about the girls behind Girls with Grafts!   Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guests Amber Wilcox is a burn survivor, yoga instructor, and marketing professional from Ormond Beach, Florida. After her kitchen accident in 2020, Amber faced burns on 20% of her body from a hot caramel spill. After two skin graft surgeries from Orlando Regional Burn Center, Amber experienced hypertrophic scarring and underwent a series of laser burn surgeries at Tampa General Hospital. As the Solutions Marketing Manager at United Rentals, Amber helps drive the company's growth by operationalizing the experience throughout the customer lifecycle; from prospect to delight. When not marketing, Amber enjoys volunteering for Phoenix Society as a Phoenix SOAR Peer Supporter, teaching yoga for Kula for Karma supporting youth in Florida detention centers, or providing free yoga for peers on her website, yogaamber.com.Rachel Kudlak is a burn survivor and marketing professional residing in Charleston, South Carolina. As the Marketing Lead, Rachel manages and executes Phoenix Society's marketing and digital strategies. She develops online marketing tactics, creates dynamic content, and maintains consistent engagement across online platforms. Before joining Phoenix Society's team, Rachel served as the Marketing and Communications Phoenix Fellow and worked in the SEO/ORM industry. When not working, Rachel enjoys going on walks with her dog Remy, trying a new recipe, or binge-watching reality tv.Links Catch up on Girls with Grafts on YouTubeSign up for Phoenix Society's monthly newsletterWatch “Advocating for the Burn Survivor Patient” Watch “Parenting After a Burn Injury: Brittney & Henley Horton”Watch “The Latest Trends in Burn Care with Burn Surgeon and Survivor Dr. Jason Heard”Follow Amber on InstagramSign up for Phoenix Society's support groupPodcast Sponsor Ad: Today's podcast is powered by Gropper & Nejat! Gropper & Nejat is a personal injury firm with offices in New York and New Jersey. They take pride in fighting to achieve the best results for those who have suffered fractures, surgeries, amputations, severe burns and other injuries.Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

In our final episode of Season 4 of Girls with Grafts, Rachel and Amber are joined by survivor, actor, and author J.R. Martinez.  If you don't know J.R., you'll learn quickly that he is full of energy and living his best life post-burn injury – but that doesn't mean he hasn't had challenges along the way. As humans, we often underestimate our potential, see limitations, and settle for less than we truly deserve. But setting daily intentions is a powerful tool that allows you to shift your focus from doubt to your inherent abilities, empowering you to believe in yourself and strive for more.In this episode, we have a candid conversation with J.R. Martinez about his journey of living life with intent after a burn injury. We delve into his experiences with the grieving process, his journey to feeling confident and comfortable in his new skin, and the common concerns burn survivors face. We also touch on the pros and cons of ongoing medical procedures and the importance of decompressing and living in the moment. Living with intent is not about grand gestures but the consistent effort to achieve something greater each day, even if it's just a tiny step. This approach can lead to significant personal growth and transformation, offering hope and encouragement on your journey. Meet Our Guest J.R. Martinez is an Army veteran, burn survivor, actor, motivational speaker, New York Times best-selling author, Dancing with the Stars season 13 winner, and former Phoenix World Burn Congress emcee. J.R has traveled the world speaking with troops at various bases, as well as serving as keynote speaker for numerous major corporate events, non-profits, universities and Fortune 500 companies. J.R. devotes himself to spreading his message of resilience and optimism.   Links Create your Friends of Phoenix Fundraising page to help generate support for our mission.Join our Summer Webinar Series to hear from esteemed experts in their respective field.Learn more and stay connected with J.R. Martinez.Watch J.R. Martinez's first appearance on Girls with Grafts on Youtube. Podcast Sponsor Today's podcast is powered by YOU! Phoenix Society is 67% funded by donor support – that means we can't do this work without our community. We just launched a Friends of Phoenix Campaign and encourage you to help generate additional support for our mission by creating your own fundraising page. You can learn more at www.phoenix-society.org/friends.   Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

If you're subscribed to Phoenix Society's mailing list, you've most likely received at least one email asking you to partake in a burn care research study. As survivors, our stories and voices are crucial in providing true lived experience on the physical, emotional, and social recovery after a burn injury. However, most studies simply ask survivors to complete a survey - and once the survey is complete, the outcomes are hard to find or even harder to understand. But Dr. Callie Thompson is on a mission to change that.In today's episode, Burn and Trauma Surgeon, Dr. Callie Thompson, talks about her recent burn care studies and how she involves survivors from start to finish. She also discusses why involvement throughout the entire research process is important, what factors make a “good” research project, and how other researchers can follow a similar format. Dr. Thompson also shares insight on her role as a surgeon and her passion for helping survivors thrive after a burn injury. Looking for links? Check out our show's description on Apple Podcasts or Spotify.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Dr. Callie Thompson is a burn and trauma surgeon by training. She specializes in the care of the thermally injured patient and other skin and soft tissue diseases that require surgical intervention. Her research is focused on implementing changes to care delivery that improve patient-centered outcomes for burn survivors and engaging burn patients as equitable partners in the entire research process.Links Explore current research participation opportunities Download the 2023 State of the Survivor ReportExplore the Journal of Burn Care & Research Podcast Sponsor Today's podcast is powered by the D.C. Firefighters Burn Foundation. The D.C. Firefighters Burn Foundation is dedicated to assisting in the recovery and rehabilitation of injured firefighters and burn survivors. Learn more by visiting www.dcffburnfoundation.org.Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

A burn injury often changes how we feel about ourselves, and for survivors who lose their hair, their whole identity can feel different. The emotional impact of hair loss is significant, and it's a journey that many survivors can relate to. When a survivor does experience hair loss, they usually turn to wigs as a solution to help them feel like themselves again—however, wigs are not the only option anymore!  In today's episode, Amber and Rachel are joined by non-surgical hair replacement specialist Emily Gutierrez. Emily, with her deep empathy and dedication, shares insights on what hair prosthetics are, the process for installing and maintaining a prosthetic, and who would benefit from them. She also recounts her touching experience working with a young burn survivor, highlighting her passion for instilling hope and restoring confidence through hair for those experiencing hair loss.  Looking for links? Check out our show's description on Apple Podcasts or Spotify.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guest Emily Gutierrez is a licensed cosmetologist and IAT certified trichologist. She is the owner of Advanced Hair Loss & Scalp Solutions LLC, a certified hair replacement brand who caters to those who have been impacted by hair loss. Emily and her team work with men, women, and children who have been affected by genetic and traumatic types of hair loss. They utilize modern technology to help prevent hair loss, reverse scalp disorders, and restore one's appearance while building a long-lasting relationship with the clients.  Links Learn more about Advanced Hair Loss & Scalp Solutions Follow Emily Gutierrez on InstagramWatch Aden's hair transformationVisit the American Hair Loss Association's websiteLearn more about CRLAB Podcast Sponsor Today's podcast is powered by the Bert Martin Foundation! The Bert Martin Foundation was established to assist those who help others and provide financial support for nonprofit organizations. We're honored to have the Bert Martin Foundation as a long-standing Phoenix Society Partner. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.

Summer is quickly approaching, which means summer camps are in full swing! Summer camp is usually an extremely positive and beneficial experience for any child - but for burn survivor children, camp offers more than just fun. It provides a supportive community where they can share feelings and experiences with other children who have experienced similar trauma, fostering a sense of belonging and understanding. In this episode, Rachel is joined by two esteemed guests, Daniel Chacon and Kristen Quinn. Both are renowned burn camp experts and board members of the International Association of Burn Camps (IABC). They delve into the benefits of burn camps, offer valuable tips on preparing your children (and yourself as a caregiver!), and guide you on selecting the right camp. Rachel and her guests also share cherished camp memories and ways to keep the 'camp magic' alive long after camp ends. Looking for links? Check out our show's description on Apple Podcasts or Spotify.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guests Kristen Quinn has been a passionate advocate for burn survivors and meaningful aftercare programs since 1993. She started her career as a burn center Child Life Specialist, earned her Masters in professional counseling in 2000 and spent the next 24 years as a mental health clinician at the burn center, with aftercare and burn camp as her focus. Kristen believes that every interaction, activity and discussion at camp has the ability to foster emotional growth and that camp provides challenges that allow campers to push beyond perceived limitations.Kristen has two children who are now forging their own lives as young adults. She has been married to a fire fighter for the past 30 years. There is always at least one dog in the house. Joy is found on rivers, hiking trails, in a good book or over a great meal. Friendships mean the world to Kristen.Daniel Chacon is the Executive Director of the Alisa Ann Ruch Burn Foundation, a California-based nonprofit organization that is committed to preventing burns and fires, and providing services to those who have been affected by burn injuries. Before joining AARBF, Daniel worked as an emergency dispatcher, firefighter, and high school teacher.Daniel is a proud member of various organizations such as the American Burn Association, the American Camp Association, and the International Association of Burn Camps, where he served on the board of directors in 2016 and was the immediate past president. He is passionate about discovering outcome measurements and has partnered on numerous research studies for burn survivors. He has also presented dozens of conferences throughout the United States.Links Learn more about the International Association of Burn Camps (IABC) View the IABC Camp Directory Learn more about the Alisa Ann Ruch Burn FoundationLearn more about the University of Utah Health Burn Camp ProgramResearch: Impact of a pediatric residential burn camp experience on burn survivors' perceptions of self and attitudes regarding the camp communityRead “Burn Camps Offer Unique Growth Opportunities”Read “Taking That “Camp Magic” Home With You”Podcast Sponsor Today's podcast is powered by the National Fire Sprinkler Association! NFSA aims to protect lives and property through the advancement of fire sprinklers. Learn more about fire sprinklers, fire advocacy, and how to get involved by visiting nfsa.org. Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

After years of hiding a prominent birthmark on her face, Paige Lauren Billiot now proudly highlights her facial difference. She was born with a port-wine stain birthmark on her face, ear, and neck, and now hopes to inspire others to embrace their imperfections.Paige Lauren Billiot is Face Equality's newest ambassador and in honor of Face Equality Week, we invited her on the podcast to talk about using art and creativity as a tool for social change! This year's theme is #MyFaceIsAMasterpiece, but we're taking it further and celebrating all visible and hidden differences with #MyBodyIsAMasterpiece.Rachel and Paige talk about the challenges growing up with visible differences, how to craft a spicy response when strangers ask rude questions, and how to embrace our flaws (hey, we all have them!). Paige also shares how she started her Instagram, The Flawless Affect, her experiences working in Hollywood, and what advocacy projects she has in the works (including a doll with visible differences!). Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our GuestPaige Lauren Billiot is a birthmark advocate, model, and producer from Seattle, WA. Growing up in Las Vegas she began pursing her love for acting as a theatre major at Las Vegas Academy of Performing Arts & International Studies. In 2014 she moved to Hollywood to create representation in the film and beauty industry for others who looked like her, facing industry resistance to her unique diversity. Undeterred, Paige carved her path on Instagram, using makeup, props, and VFX to celebrate her birthmark as her Superpower.Her influence has been recognized in many magazines including Seventeen, Glamour, and Women's Health, earning her a spot on Glamour's "50 Instagrammers You Need To Follow Right Now."When she isn't advocating for the birthmark community, she loves taking her four cats on walks in their strollers, while expanding her chai tea latte palate and Scooby Doo collection. Links Follow Paige Lauren Billiot on Instagram (Flawless Affect) Learn more about Visible Difference & Disfigurement in the ArtsRead “What is Face Equality”Access Our “Getting Back Out There, Tools for Social Empowerment” Course Follow Phoenix Society for Burn Survivors on FacebookLearn more about Face Equality WeekFollow Face Equality International on Facebook Podcast Sponsor Today's podcast is powered by one of our fire prevention partners, Telgian! Telgian is committed to providing effective and innovative fire protection, life safety and security programs. Learn more by visiting www.telgian.com. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. 

Most burn survivors and caregivers can remember a special burn nurse who truly impacted and changed the trajectory of their healing journey. In honor of National Nurses Day, we're celebrating all of the wonderful burn care professionals with Emily Werthman, Ph. D. (c), BA, RN, CBRN!After losing her mother to a house fire, Emily was drawn to burn care and began her career as a bedside nurse. Over the past 10+ years, she has advanced her career and now holds many positions within the field, including burn program coordinator at the Johns Hopkins Burn Center.In this episode, we talk with Emily about the trauma, compassion fatigue, burnout burn care nurses face, the recently launched burn nursing specialty certification (CBRN), and research projects involving acute burn pain and childhood adversity. Tune in to hear more about the advancements in burn care nursing! Looking for links? Check out our show's description on Apple Podcasts or Spotify.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our GuestEmily Werthman is the burn program coordinator of the Johns Hopkins Burn Center, where she has been a nurse since 2012. A graduate of the Allegany College nursing program, she also holds a BA in History from the University of Wisconsin-Madison, as well as a BSN and MSN from the University of Notre Dame of Maryland. She is a PhD candidate at the University of Maryland where she studies the relationship between acute burn pain and childhood adversity. Emily is the lead nurse planner for the American Burn Association where she also holds a national committee appointment to the Nursing Committee. She is a subject matter expert, item writer, and exam content review committee member for the Board of Certification for Emergency Nursing's Certified Burn Nurse (CBRN) exam. She also serves as a member of BCEN's board of directors. She was recently appointed a special advisor to the Biomedical Advanced Research and Development Authority (BARDA)'s burn and blast injury special advisory group. Additionally, she holds adjunct faculty positions in the Johns Hopkins and Stevenson University Schools of Nursing. She publishes and lectures frequently on burn resuscitation, critical care nursing, and burn pain. Links Listen to The Importance of Good Sleep with Dr. Sheera Lerman Zohar on Apple PodcastsListen to Beyond Survival: A Journey of Self-Love & Resilience With Michelle Escamilla Valladares on Apple PodcastsVisit the Board of Certification for Emergency Nursing (BCEN)'s websiteLearn more about the Certified Burn Nurse (CBRN) examView the list of the American Burn Association's verified burn centersPodcast Sponsor Today's podcast is powered by Johns Hopkins Medicine! The mission of Johns Hopkins Medicine is to improve the health of the community and the world by setting the standard of excellence in medical education, research and clinical care. Learn more by visiting: www.hopkinsmedicine.org. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. 

In honor of National Volunteer Week, Rachel and Amber are joined by our Volunteer of the Month, Xiomari Castro! Whether she's helping survivors and caregivers find their miracle of the day or providing hope through hugs, Xiomari's passion for helping the burn survivor community is truly inspiring. Her commitment and dedication are evident in her roles as Phoenix SOAR Coordinator and Spanish Instructor, and Patient Services Coordinator at the Burn and Reconstructive Centers of America (BRCA).During the episode, Xiomari shares how she first got involved with the burn community, her favorite part of her job, and the importance of peer support. She believes we all have a role in helping others and embodies what it means to give back with a humble heart. Thank you, Xiomari, for all that you do for our community!Looking for links? Check out our show's description on Apple Podcasts or Spotify.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our GuestXiomari Castro is the Patient Services Coordinator at Burn and Reconstructive Centers of America (BRCA) in Augusta, GA, where she has worked since March 2015. She has been an invaluable source for patients and their families at Joseph M. Still Burn Centers at Doctors Hospital of Augusta. Xiomari works to help patients, their families, and colleagues through positivity, encouragement, and compassion. She first became a Phoenix SOAR Coordinator in 2018, and in 2023, she became an Instructor, including instructing the first Spanish Phoenix SOAR Peer Supporters class. Xiomari is a native of Puerto Rico and lives with her husband and best friend, Robinson, in Augusta, GA. They have two children and four grandchildren. Outside of work, she loves to spend time with her grandkids church family, serving God, and preaching the word of God. Links Follow Phoenix Society on FacebookLearn more about Phoenix SOARContact Phoenix Society's team Join our Facebook group for survivors and caregivers (English)Join our Facebook group for survivors and caregivers (Spanish) Learn how to watch our Youtube videos in your preferred languageLearn more about Angel FlightPodcast Sponsor Today's podcast is powered by the National Fire Protection Association! NFPA is a nonprofit that seeks to save lives and reduce loss with information, knowledge, & passion. Learn more about fire safety and explore their educational resources by visiting www.nfpa.org. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

We've all heard of post-traumatic stress disorder (PTSD), but have you heard of post-traumatic growth? Post-traumatic growth is all about the positive transformations people can undergo after experiencing trauma. During this episode of Girls with Grafts, we hear from Christopher Gage, a burn survivor, and his caregiver and wife, Holly, on how post-traumatic growth impacted their healing journeys. You'll also get a behind-the-scenes look at Chris and Holly's Healing Phoenix Arts Program, designed to provide a post-traumatic growth experience by introducing a new perspective on healing from a traumatic event. Through the dynamic and engaging program, Chris and Holly help survivors recognize the progress they have made towards their future and healing.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guests Holly Gage is the creator and instructor of the Warrior Scar Jewelry workshops and co-founder of the Healing Phoenix Arts Program. Holly is a world-renowned jewelry artist and has instructed students of all ages and abilities with a soulful brend of creating during in-person workshops, interactive online classes, and retreats worldwide for almost 25 years. After her husband and son were involved in an explosion and fire in 2018, she became trained to support burn survivors and their families through the Phoenix SOAR program and certified in the Post Traumatic Growth program from the Boulder Crest Foundation. Together with her husband, Christopher Gage, they combine art with discussion as a healing modality for a Post Traumatic Growth experience.Christopher Gage is the Group Discussion Facilitator of the Warrior Scar Jewelry Workshop and Co-Founder of the Healing Phoenix Arts Program. Christopher is a burn survivor whose recovery experience from his accident in 2018 is the number one event that has driven him to his current line of work. The explosion, fire, and destruction of his mobile restaurant has completely reshaped Christopher's life for the better, in a positive way, resulting from working through the Post Traumatic Growth (PTG) process. Christopher learned there is a teaching component to PTG, and he has a need to give hope to those who have suffered trauma. Christopher is peer support trained and certified in Burn Survivor and PTG. Christopher speaks about PTG and is the author of a book detailing his journey to come later this year. Links Learn more about the Healing Phoenix Arts ProgramLearn more about the Warrior Scar WorkshopRead Holly's testimonial of Phoenix World Burn Congress 2023Learn more about Phoenix SOAR (Survivors Offering Assistance in Recovery) Podcast Sponsor Today's podcast is powered by the Pritzker Hageman Law Firm! The Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more more at: LegalJourney.guide Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

Have you ever filled out our "contact us" form? If you have, then you've already met today's podcast guest: Liliana Palacios, Phoenix Society's Community Resource Coordinator! Liliana is a burn survivor who has worked with trauma survivors in various capacities throughout her career. She discovered her passion for community service after sustaining a major burn injury when she was 19.In our conversation, Liliana provides a behind-the-scenes look at her role with Phoenix Society, reveals some of the frequently asked questions she hears from survivors and caregivers, talks about her own struggles as an amputee, and offers tips for those who are interested in giving back.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Liliana Palacios grew up in Los Angeles and is a proud mother to three grown-up kids. She studied at San Francisco State University, earning a Bachelor of Science in Health Education with a minor in Holistic Health and Women's Health Issues. Over the years, Lili has mainly worked supporting trauma survivors in various capacities. She discovered her passion for community service through her own experience as a burn survivor. Forty-one years ago, at the age of 19, Lili was in a house fire (she's on OG, y'all!). She attended Phoenix World Burn Congresses throughout the years. Through a fellow burn survivor and her mentor, she learned about the different resources available to the survivor community - which inspired her to get involved in community service. Her other interests include art, photography, cooking, and gardening, among other things. Links Join our Facebook Group for Spanish-speaking survivors and caregiversDownload Sara's STEPS in Spanish Sign up for Phoenix Society's Virtual Support GroupJoin our weekly Peer Support ChatContact Phoenix Society for Burn SurvivorsVisit our Burn Community Calendar Podcast Sponsor Mölnlycke Health Care is a world-leading MedTech company that specializes in innovative solutions for wound care and surgical procedures. Mölnlycke products and solutions are used daily by hospitals, healthcare providers, and patients in over 100 countries around the world. Learn more by visiting: https://resources.phoenix-society.org/resource-marketplace/molnlycke.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

Ever wondered about donor-less skin grafts? Or how cryotherapy is used for pain control? What about spray-on skin? In this captivating podcast episode, we're joined by burn survivor and burn surgeon Dr. Jason Heard to explore these intriguing topics and more, as we delve into the latest trends and treatments in burn care. Dr. Jason Heard, a burn survivor turned burn surgeon, brings a unique perspective to the field. At the age of 12, he experienced second and third-degree burns over 40% of his body. This life-altering event inspired him to dedicate his career to caring for others. Now a faculty member at the UC Davis Firefighters Burn Institute and Shriners Children's Northern California burn units, Dr. Heard's journey from patient to practitioner is a testament to the resilience of the human spirit.Join us as we delve into the cutting-edge world of burn care with Dr. Heard. We'll explore the latest trends and treatments, from revolutionary laser surgeries and donor-less skin grafting to innovative cryotherapy for donor-site pain control and the game-changing foam dressing. Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest After sustaining a burn injury on almost half of his body at the age of 12, Dr. Jason Heard was drawn to the medical field and knew he wanted to help other burn survivors in the future. He completed his Bachelor of Science degree in Genetics and Biotechnology at the University of Iowa in 2011. During his undergraduate years, Jason completed many burn related research projects leading to multiple peer reviewed publications. He was also able to be heavily involved with a regional burn non-profit organization, Saint Florian Fire and Burn Foundation. Through this organization, Jason was able to not only attend but develop programming for multiple burn survivor programs. He was fortunate to serve on their Board of Directors from 2012-2014. He enrolled into medical school at the University of Iowa Carver College of Medicine in 2012 and matched into general surgery residency at UC Davis in 2016, and ultimately completed his residency at the University of Iowa Hospitals and Clinics in 2021. Jason's passion for burn care and my aspiration of doing a burn/critical care persisted throughout my training and he completed his fellowship at UC Davis in 2022. He is currently a faculty member at UC Davis/Shriners Northern California Burn Units, where he continues to care for burn survivors during their initial hospital admission and throughout their recovery, including reconstructive procedures/treatments. Jason is also on Phoenix Society for Burn Survivors' Board of Directors.  Links Laser Treatment for Burn Scars: What Burn Survivors Want to KnowWill My Burn Skin Graft Go Away Over Time?Learn more about Spray-On SkinLearn more about the different type of skin grafts Podcast Sponsor Today's podcast is powered by Cunningham Law Firm! Located in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

In this inspiring episode of Girls with Grafts, Diana Tenney-Laperriere shares her story of survival. In 2010, one surprisingly warm early spring day turned into tragedy when Diana was burned over 90% of her body. At the age of 54, Diana was given less than a one percent chance to live. More than 400 days later, Diana returned home. Years and countless surgeries later, Diana and her husband, Jerry, found a new calling to advocate and support burn survivors nationwide. In this episode, we talk with Diana about her struggle with alcoholism, how she and Jerry navigated their relationship post-accident, the importance of physical fitness in recovery, and how to advocate for yourself and loved ones. Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guest In 2010 at the age of 54, Diana Tenney-Laperriere was burned 94% of her body, which consisted of mostly third degree burns. Dianna spent over a year recovering from her injury in the hospital and then went on to have reconstructive surgeries for the next seven years.She has spent most of the last 10+ years working with other burn survivors and medical researchers. She is the past president, secretary, and treasures of Burn Survivors of New England, co-coordinator of Knowledge Translation for the Boston-Harvard Burn Model Systems, trained Phoenix Society peer supporter, previous speaker with the American Burn Association, former Wellness Room Leader at Phoenix World Burn Congress, and so much more. She is extremely active in burn research and advocacy. Diana has also been sober for many years and is active in AA. Dianna married her sweetheart, Jerry, in 2023 and has currently relocated with her husband, dog Barney, and cat Pebbles, to Tennessee to help care for her mother. Additionally, Diana is very physically active and participates in ZUMBA and yoga. Links Get Your Copy of God Never MovedInformation about Alcoholics AnonymousBurn Survivors of New EnglandBoston-Harvard Burn Model SystemsVolunteer for Phoenix SOAR with Phoenix Society Research Opportunities with Phoenix SocietyBecome a Phoenix AdvocatePodcast Sponsor Today's podcast is powered by Solvita (formerly Community Blood Center/Community Tissue Services). Solvita comes from “sol” meaning sun and “vita” meaning life. As sunlight nurtures new life, Solvita takes the donor gift and transforms it into new hope, bringing the light of healing to patients through blood donations and  tissue transplants. Learn more about them here: https://solvita.org/  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

Retired Occupational Therapist and dedicated burn survivor ally, Barbara-Anne Hodge joined today's episode of Girls with Grafts! We talk with Barb about her experience working on the burn unit for over 25 years and what led her to help establish the Mamingwey Burn Survivor Society. Although retired, her work with the burn community has not slowed down! Barb is now a dedicated volunteer, ally, and supporter to burn survivors around the world. Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guest Barbara-Anne Hodge is a retired Occupational Therapist who worked for over 25 years on the Burn Unit at the HSC Hospital in Winnipeg, MB. In the course of her work, she came to know many burn survivors who were dealing with changes to their appearance and to their daily lives due to the burn injuries long after they left the hospital. To address these needs and alongside other Burn Unit staff, she helped establish the Mamingwey Burn Survivor Society in Manitoba in 2003. Today, this organization is known as the Mamingwey Burn Society Inc, and she continues in the role of Board Chair.Barbara-Anne is also a member of the Canadian Burn Survivors Community and is the Secretary of the Board at the Canadian Skin Patient Alliance. She is a past board member of the Firefighters' Burn Fund Inc. in Manitoba. She is now retired from hospital work and enjoys time spent with burn survivors and others as a volunteer through these various organizations. She is mom to 4 grown kids and a grandmother to 2, and spends as much time as possible with her family.Links Learn more about the Mamingwey Burn Survivor SocietyGet connected with the Canadian Burn Survivors CommunitySign up for the Go For the Burn Run 2024Explore the Canadian Burn Survivors Community's Calendar of EventsJoin Phoenix Society for Burn Survivors' weekly Peer Support ChatWatch Girls with Grafts on YouTube!  Podcast Sponsor Today's podcast is powered by Johnson Controls! Johnson Controls is a global leader in fire safety and suppression technologies, helping to save lives and protect people around the world. Learn more about Johnson Controls by visiting their website: https://www.johnsoncontrols.com. Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

It's true: laughter is strong medicine.Scientific studies have shown a direct correlation between humor and the diminishment of pain. In addition to easing tension and comforting others, comedy and laughter have been shown to help in various medical and psychological ways, including combatting fear, reducing stress, and even boosting the immune system. In this episode of Girls with Grafts, Amber and Rachel are joined by burn survivor and quad amputee, Dan Gropper. Dan shares how humor and comedy has impacted his healing journey, shares his experience relearning how to walk, drive, and complete everyday activities after losing all four limbs, and how to keep a positive outlook on life. Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!   Meet Our Guest Dan Gropper is a burn survivor and quad amputee since December of 1989.  He's a  peer supporter for fellow survivors, speaks and gives demonstrations to PT and OT students as well as doctors. Dan sits on the Nassau County advisory board to help improve the lives of the physically challenged.  He loves to travel, exercise, box, and plays golf, go to concerts and games.Links Read: Reflecting on My Experience at Phoenix World Burn Congress 2023Watch: The Healing Power of ComedyWatch: The Healing Power of Laughter Read: Joshua Gropper: Attorney, Advocate, AllyListen: Celebrating NFPA®'s Fire Prevention Week™ with Telgian's Pamela RenoPodcast Sponsor Today's podcast is powered by Gropper & Nejat. For over 25 years, the team at Gropper & Nejat have helped individuals who have suffered fractures, surgeries, amputations, severe burns and other injuries get the financial reparations they deserve. If you are local to the New York, New Jersey, or PA areas, contact them today for a free evaluation of your case! https://www.groppernejat.com Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

Join us for an inspiring episode of "Beyond Survival," where we welcome the remarkable Michelle Escamilla as our special guest. Michelle's life is a testament to the power of resilience, self-love, and unwavering determination in the face of adversity.As a burn survivor, spouse, friend, and passionate advocate for self-love, Michelle's story transcends the boundaries of mere survival. Despite enduring life-altering challenges, she embraces each day with courage and grace, refusing to be defined by her past experiences. Instead, Michelle embodies resilience as she navigates life's uncertainties with resilience and purpose.In this heartfelt conversation, Michelle shares her personal journey, offering insights into how she has found strength and meaning in the face of adversity. From her experiences as a burn survivor to her dedication to serving her community in various capacities, Michelle's story is one of hope, empowerment, and the transformative power of self-love.Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!  Meet Our Guest Michelle Escamilla (she/ella) joins us to share about her life including being a burn survivor, a spouse and friend, an advocate for self-love, and as someone who pushes through life's adversities and uncertainties. Though one of her identities includes being a burn survivor, she describes living a life beyond “just surviving”. Michelle dedicates her life to serving the community in a variety of roles and most recently has begun podcasting to share her story and experience with others.  Links Become a Phoenix SOAR Peer Supporter today: https://resources.phoenix-society.org/phoenix-soar Join our Facebook group, connect with other survivors and caregivers, and attend our weekly support chatRead Burns are Beautiful—Five Survivors on Scars and Self-LoveRead Ask the Experts—Finding LoveRead Positive Self-LoveListen to the Make Believes Podcast (also on Spotify & Apple Podcasts) Listen to More Than A Survivor (also available on YouTube & Spotify)Follow Michelle on Instagram Podcast Sponsor Buses by the Beach is a group of VW bus lovers, based in West Michigan. They camp, host events, and raise funds for Phoenix Society for Burn Survivors. Their first event of 2024, Buses BRRR, is coming up this weekend! Their main event, the Bus Benefit, will be held over memorial day weekend in Michigan. Learn more by visiting https://busesbythebeach.org/.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

We're kicking off season 4 of Girls with Grafts during National Burn Awareness Week! National Burn Awareness Week is hosted by the American Burn Association and this year's theme is spreading awareness about preventing flammable liquid burn injuries.  And who better to join us than the American Burn Association's president, Dr. Rob Cartotto! In this episode, Dr. Cartotto and Rachel discuss what it's like being a burn surgeon, common questions from burn survivors, and a behind-the-scenes look at burn care and research. Dr. Cartotto also shares his experience attending Phoenix World Burn Congress 2023 and what's ahead for the American Burn Association in 2024.  Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlsWithGrafts and tagging Phoenix Society for Burn Survivors! Meet Our Guest Dr. Rob Cartotto is a plastic and reconstructive surgeon and burn intensivist at the Ross Tilley Burn Centre in Toronto, Canada. He is a Professor in the Temerty Faculty of Medicine, Department of Surgery, at the University of Toronto. He currently serves as the President of the American Burn Association. His research interests span the continuum of burn care and he has been particularly interested in burn shock resuscitation, lung injury and mechanical ventilation after burns, surgical techniques and outcomes for burns of the hands and face, and the development of clinical practice guidelines for burn care. Outside of work he prefers being at his cabin rather than the city, and he is an amateur artist and avid backcountry camper.  Links Learn more about the American Burn Association and National Burn Awareness Week. Register for the ABA Annual Meeting. Take our State of the Survivor Report survey (survey closes February 29, 2024). Review our 2022 State of the Survivor Report. Explore our Tools for Social Empowerment Whitepaper to learn how to handle questions, comments, and staring after a burn injury.  Explore other research opportunities.  Podcast Sponsor Today's podcast is powered by AlloSource! AlloSource is one of the largest human tissue providers, honoring tissue donors by creating innovative skin allografts to help burn surgeons heal patients. Learn more about AlloSource and their continuing education hours by visiting their Resource Marketplace Listing directly on Phoenix Society's website: https://resources.phoenix-society.org/resource-marketplace/allosource.  Sponsor Girls with Grafts  Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.  

During this episode of Girls with Grafts, Amber Wilcox rejoins Rachel Kudlak for the final episode of Season Three. They begin the episode with a quick life update from Amber. The girls are then joined by CEO of Phoenix Society for Burn Survivors, Amy Acton, who shares a recap of 2023 and what's ahead for the organization in 2024. Meet Our GuestAmy Acton is the Chief Executive Officer for Phoenix Society for Burn Survivors, where she has served the organization for over 20 years. Amy is a burn survivor, former burn nurse, and leading advocate for the burn community. She has dedicated her career to promoting the expansion of burn recovery services and resources for burn survivors and their loved ones.Podcast SponsorToday's podcast is powered by Buses by the Beach! Buses by the Beach are a group of VW van lovers, and while they are based in the West Michigan area, they draw VW bus owners and their families from all over the USA and Canada. Since 2002, Buses by the Beach have combined our love of Volkswagen-style camping with raising money for the Phoenix Society for Burn Survivors. Learn more about them here: https://busesbythebeach.org/ Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

With over 20 years of experience, Dr. Jeffrey Schneider specializes in physical medicine and rehabilitation and first had his opportunity to work with burn patients shortly after the Station Nightclub Fire occurred while he was completing his residency. It was during that time that Dr. Schneider became interested in the long-term effects of a burn injury, and has since dedicated time to researching to better understand the impact of a burn injury. In this episode, we speak with Dr. Schneider about his research, discuss areas of opportunity for the burn community, and understand more about what it means to classify burns as a ‘chronic condition'. About Dr. Jeffrey C. SchneiderDr. Jeffrey C. Schneider is the Medical Director of Burn, Trauma, & Orthopedic Rehabilitation and Director of the Rehabilitation Outcomes Group at Spaulding Rehabilitation Hospital. In addition, he serves as Division Chief of Comprehensive Rehabilitation and Associate Chair of Physical Medicine & Rehabilitation at Harvard Medical School. Dr. Schneider's research focus is on the long-term effects of burn injury. He is also the Principal Investigator and Project Director of the Boston-Harvard Burn Injury Model System (BHBIMS), a multi-institutional clinical and research collaboration between Spaulding Rehabilitation Hospital, Massachusetts General Hospital, Brigham and Women's Hospital, Boston University, and Shriners Hospitals for Children—Boston.Resources from the Show Learn more about Spaulding RehabLearn more about the Station Nightclub Fire Watch ‘Burns as a Chronic Condition' featuring Dr. SchneiderCheckout Research Opportunities for Burn SurvivorsInformation about the Libre SurveyUnderstand more about the Burn Model SystemsRead more about the Harvey Stuart Allen Distinguished Service AwardListen to Gina Russo, Station Nightclub Survivor on Girls with GraftsGet articles to learn more about physical healing after an injuryPhoenix Society ResourcesAbout Spaulding RehabSpaulding is one of our Phoenix Partners and is a world leader in advanced rehabilitation treatment and research – serving the greater Boston region and beyond. Learn more about Spaulding Rehab: https://spauldingrehab.org/research/programs-labs/burn-injury Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

It's #GivingTuesday! Giving Tuesday is a global generosity movement unleashing the power of radical generosity. In honor of Giving Tuesday, we want to highlight a few of the ways you can give back to Phoenix Society and burn community. We hope today's podcast inspires you to find a way to give back that is meaningful to you.Ways to Give BackDouble Your Impact & Become a Monthly Donor: By joining our monthly giving club today, your donations will be MATCHED dollar for dollar! Monthly gifts are especially meaningful because they ensure that Phoenix Society has the resources we need to reach survivors, caretakers, and healthcare partners - no matter where they are - all year round. Please visit https://give.phoenix-society.org/match23 to make a gift!Join Team Phoenix: Whether you're running your first 5k or training for a triathlon, fuel your cause by making every mile count for the burn community. Learn more by visiting https://www.phoenix-society.org/ways-to-give/team-phoenix. Become a Phoenix SOAR Peer Supporter: Phoenix SOAR (Survivors Offering Assistance in Recovery) connects burn survivors and loved ones to a community of peer supporters who share similar experiences. Learn more by visiting https://www.phoenix-society.org/phoenix-soar or emailing phoenixsoar@phoenix-society.org. Meet Our GuestsRobert Duval has been the Fire Investigator for the NFPA (National Fire Protection Association), which is based in Quincy, Massachusetts, since 1997.  Robert is responsible for conducting investigations of technically significant incidents in order to gather, “Lessons Learned” from each incident to apply those lessons to improving NFPA codes and standards. The investigation of these incidents includes documenting the emergency services response, the structure(s) involved as well as the events leading up to and following the incident. Robert was named the New England Regional Manager for NFPA in 2003. His region recently expanded to include NY and NJ and is now referred to as the Northeast Region. As Regional Director, Robert is responsible for outreach within the northeast states regarding code adoptions, and training. He also serves as a point of contact for stakeholders in the NFPA process; including the fire service, engineering and safety professionals.Tony Gonzalez was burned on 95% of his body in February 1997. The accident was caused by a propane gas explosion at a friend's vacation cabin in Wisconsin. Tony spent the next nine months in the ICU before spending another two months in rehab before returning home to the Chicago area. He had over 80 surgeries total and thanks his strong, close knit family for their endless support and guidance throughout his recovery.In 1998, Tony met the founder of Phoenix Society, Alan, and his wife, Delwyn during a peer support visit at Loyola Medical Center. He went on to attend Phoenix World Burn Congress one year later and was trained as a Peer Supporter in the pilot program of Phoenix SOAR in 2001. Since then, Tony has been actively involved with Phoenix Society and the burn survivor community. Tony currently serves on Phoenix Society's Board of Directors and gives back to the organization in many ways, including his philanthropic support. Shelby Mitchell currently resides in Wisconsin. She has a Goldendoodle named Josie who is her sidekick and goes everywhere that she can with Shelby. Shelby was burned in 2022 and has been involved with Phoenix Society since meeting a Peer Supporter while recovering in the hospital. Shelby recently completed the Phoenix SOAR training and has been a volunteer since September. Podcast SponsorToday's podcast is powered by YOU! As a nonprofit, we do rely on the support from our donors, volunteers, supporters, and advocates. We couldn't do it without you and we sincerely thank you for all that you do for our community. Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!

Every year, wildfires burn across the United States, and a growing number of people are living where wildfires are a real risk. According to NFPA, every year, wildfires burn across the U.S., and more and more people are living where wildfires are a real risk. Nearly 45 million homes and more than 72,000 U.S. communities are now at risk. In today's podcast, we sit down with Allyson Watson, a burn survivor of the 2003 San Diego Wildfires. Allyson shares her journey as a survivor, wildfire prevention tips, and advice for the survivors of the recent Maui wildfires. About Allyson WatsonAllyson Watson is a burn survivor from the 2003 San Diego Wildfires. She lost her home, and was burned 2nd and 3rd degree over 86% of her body while trying to evacuate. She lost all 10 fingers, part of her upper lip, the tip of her nose, as well as her left ear due to the injuries. More devastating than her injuries; her 16 year old sister Ashleigh, was killed in the blaze.Allyson has since rallied from that loss, went back to college, began a career in homeless outreach, got married, and is now the mother of two boys. In her spare time, Allyson volunteers as a motivational speaker, hoping to educate the community on fire prevention and preparedness. She also enjoys photography, horseback riding, days at the beach, and any activities involving family. Interested in getting connected with Allyson? Contact Phoenix Society at info@phoenix-society.org. Resources from the Show Ready Set Go NFPA Wildfire ResourcesExplore Phoenix Society's wildfire safety and burn prevention tips.About Gropper & NejatFor over 25 years, the team at Gropper & Nejat have helped individuals who have suffered fractures, surgeries, amputations, severe burns and other injuries get the financial reparations they deserve. If you are local to the New York, New Jersey, or PA areas, contact them today for a free evaluation of your case! https://www.groppernejat.comSponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!

Many burn survivors face the harsh reality after a burn injury of wondering if they will ever return back to ‘normal'. For many, the long journey to recovery can seem both overwhelming and uncertain—not knowing what the future can hold or how long recovery (both physical and emotional) may take. A burn survivor's journey to recovery is not often quick—and it can be in these moments of uncertainty that finding purpose and motivation can help survivors overcome some of their darkest moments. For Matt Manzari, a career in wakeskating that began at an early age seemed like what he was born to do. However, after two major traumatic events—a wakeskating water accident and an electrical burn injury, he was left not knowing what his future may hold. In this episode, we talk with Matt about his personal journey to recovery, how he found purpose after his accidents, and what returning back to ‘normal' meant for Matt. About Matt ManzariMatt Manzari fell in love with water sports at an early age. He started wakeskating and before he knew it, he was sponsored by Nike and traveling the world doing what he loved at the age of 15!  It seemed like his career was established, and Matt knew what he would do for the rest of his life! However, God had other plans and began to work on his heart. Matt went on to school to study Theology and four years laters, he was about to graduate and he and his wife were excited to move into full-time ministry. The weekend before his final exams, and even though he had pretty much removed himself from the sport, Matt entered into the pro tour contests to earn some extra money. However, tragedy struck and he was involved in an accident that doctors were amazed he survived. A year later, Matt began working in ministry. He was trimming trees at a local church and a power line arched over to the metal bucket he was standing in. 14,000 Volts shot through his body and caused 4th and 5th-degree burns, which melted most of the skin off of his chest and arms, going deep enough to kill muscle and bone. Matt was rushed to the emergency center and doctors were not sure if he would ever wake from the coma he was in. Miraculously, a few days later he woke up from the coma and began to speak. After multiple surgeries of tissue removal, artificial skin placement, and skin grafts, Matt was released just over three months later. Resources from the Show Visit Matt Manzari's Website.Purchase Matt's Book on Amazon.Learn More About Operation Wake Surf.Follow Matt on Facebook.Follow Matt on Instagram.Watch Matt on YouTube.Visit the Burn Community Bookshelf.Learn More About Phoenix Society's World Burn Congress.Watch ‘Finding Purpose After a Burn Injury'.Read the Article ‘Pain Management After a Burn Injury'.Watch ‘Telling Your Story to Make a Difference'.Download Your Free Copy of ‘A Caregiver's Guide to a Burn Injury'.Share Your Burn Survivor Story Online.Join the Online Burn Survivor Communities for Peer Support.Get Your Own Copy of Phoenix Society's Journey Magazine.For More Resources, Visit Us Here.About Mallinckrodt PharmaceuticalsFor more than 150 years, Mallinckrodt has been advancing the fields of science and medicine to improve the lives of people around the world. Learn more by visiting https://www.mallinckrodt.com.Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

After a burn injury, many burn survivors are left with the appearance of visible burn scars that can sometimes make getting back out there after a burn injury difficult. There are several options that burn survivors may explore to help with the appearance of scars, all with a unique preference for the survivor and their own healing journey. While many survivors are comfortable with the appearance of scars as they are, every survivor's journey and unique preference for how they manage the appearance of their scars is different.In this episode, we talk with Murphy Miñoso, a paramedical tattoo artist, to learn more about this type of scar camouflaging and how it can impact the emotional and physical aspects of a survivor's burn recovery journey. We dive deep into the process of paramedical tattooing with Murphy as she shares with us more about what survivors can expect with choosing this type of treatment for burn scars.About Murphy MiñosoWhen Murphy Miñoso first learned about paramedical tattooing, she was immediately drawn to the power beyond its artistry. Its ability to change people both physically and emotionally was something that Murphy connected with on a very personal level. Through her tattooing services, she hopes to aid in the journey towards turning insecurity into confidence.Seeing how artistic transformations could be so profound was always inspiring to Murphy. She originally began her career as a licensed cosmetologist, as well as a professional makeup artist. Murphy started her journey working in a high-end NYC salon and moved on to doing makeup for film and television in Louisiana and Chicago. After 11 years, she built a strong background in color theory and aesthetics and learned the deep importance of enhancing each individual's unique beauty.In a world with so much emphasis on physical appearance, it can be difficult to find the balance of inner and outer beauty. It fills her heart that she is now able to focus her passion for helping others and intertwine it with her affinity for nature and its ability to heal. This is where Willow & Birch was born. Murphy hopes to inspire some self-love and remind people that true happiness lies within themselves, regardless of the scars life brings along the way.Resources from the Show Visit Murphy's Website.Visit Willow & Birch: Wellness Boutique and Paramedical Tattoo Studio | 324 N River St. East Dundee, IL 60118Email Willow & Birch: wellness@willowandbirch.comFollow Willow & Birch on Instagram.Follow Willow & Birch on Facebook.Read the Article ‘What Does it Mean When Someone Stares at Your Scars?'.Read More About Laser Treatment for Burns.Watch ‘Makeup Application Tips for Burn Survivors'.Watch ‘Skin Care After a Burn Injury'.Read the article ‘Burns are Beautiful'.Read the Article ‘I Don't See Your Scars'.Get Your Own Copy of Phoenix Society's Journey Magazine.For More Resources, Visit Us Here.  About Pye-Barker Fire & SafetyPye-Barker is a nation leader in fire protection, life safety and security services to a wide variety of industries. Learn more and find a location near you by visiting www.pyebarkerfs.com. Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

Halloween is a time for fun, but let's not forget that it can be tough for those with facial and visible differences. Portraying a burn survivor or someone with physical disfigurements can be extremely disrespectful and triggering. Additionally, burn survivors see an increase of harmful and hurtful messages during the spooky season. In today's podcast, we sit down with influencer Tonya Meisenbach, better known as Burned Beauty 2018. Tonya shares her thoughts on Halloween and the negative comments and questions she's been receiving. We also chat about how survivors and those with visible differences are portrayed in Hollywood. From Darth Vader in Star Wars to Scar in The Lion King, filmmakers have long made a link between physical disfigurement and evil.About Tonya MeisenbachTonya Meisenbach, better known as Burned Beauty 2018, is a wife, mother of two adult children, luminary, and humanitarian currently living in Atlanta, GA.Formerly a Paralegal and Realtor, Tonya has always enjoyed helping and elevating others. After being burned over 35% of her upper body and almost losing the battle, nothing has changed, Tonya turned her pain into purpose, and although Tonya's methodology is different, the end goal remains the same, elevating others.Tonya now uses hair, makeup, tutorials, and social media to help inspire other burn survivors in their recovery. She wants all survivors to understand that their wounds will heal, and that with the right mindset, they can and accomplish anything and overcome any obstacle thrown in their path.Resources from the Show Follow BurnedBeauty2018 on Facebook Follow BurnedBeauty2018 on InstagramFollow BurnedBeauty2018 on TikTokLearn more about Face Equality International Sign the Face Equality International PetitionLearn more about Visible Differences & Disfigurement in the ArtsAbout the Cunningham Law FirmLocated in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com. Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!

Taylor Campbell was just 8 months old when her burn injury occurred from a kitchen accident resulting in 64% of her body burned with a 7% chance of survival. Today, Taylor is 19 years old and has had over 30 surgeries since her accident. As a child burn survivor, Taylor has spent her life adapting to her burn injury, with countless surgeries and obstacles to overcome along the way.In this episode, Taylor shares her journey as a child burn survivor to what life is now like as a 19-year-old college student and author. Taylor recalls details of her memories of facing school for the first time as a survivor, how she managed to overcome new challenges such as wearing a wig and provides advice for other survivors about getting back out there. About Taylor CampbellTaylor Campbell is a nineteen-year-old college student attending the University of North Carolina at Chapel Hill, majoring in Communications and minoring in Creative Writing with a focus on Journalism. She is the author of "Hope to the Third Degree" and is currently working on her second book, as writing is one of her true passions. She co-founded the Taylor Campbell Pledge Fund, located at the North Carolina Jaycee Burn Center Children's Hospital, aiming to raise funds to assist families with aftercare necessities.Currently, Taylor is working towards becoming Leadership certified with John C. Maxwell and his team, which will be official this upcoming March. This certification will allow her to engage in coaching, speaking, and further, her writing career, as Taylor feels called to make a difference through sharing my story. In her free time, she enjoys the beach, staying active, engaging in outdoor activities, and spending time with her family. Resources from the Show Sharing Your Story as a Burn SurvivorResources about Burn Survivors and Returning to SchoolGetting Back Out There After a Burn InjuryTaylor's Open Mic SubmissionAbout the Taylor Campbell Pledge FundLearn more about TaylorAbout AlloSourceAlloSource is Phoenix Society's Vision Partner and I want to take a quick moment and share a message from Dean Elliott, AlloSource's president and CEO:“AlloSource's partnership with Phoenix Society has been a powerful extension of the physical healing we provide burn survivors through our allografts. It's given our organization the opportunity to support the mental and emotional journey burn survivors face as part of their healing process. Whether it is providing speakers to share their personal stories of survival or offering a platform for community involvement through time or donations, the Phoenix Society partnership has played a role in helping our employees further connect to our important work honoring tissue donors by creating products to help surgeons save and enhance lives.”Learn more about AllosourceSponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

Each year, the National Fire Protection Association (NFPA®), hosts Fire Prevention Week™ (FPW) to help with educating the public about the importance of fire safety. For more than 100 years, NFPA, the official sponsor of FPW, has hosted a fire prevention campaign and themes the week around a particular aspect of fire safety. This year's FPW campaign, “Cooking Safety Starts with YOU”, highlights the important actions that should be taken to stay safe in the kitchen. Join the NFPA to celebrate Fire Prevention Week on October 8th-14th and commit to kitchen and cooking safety!In honor of Fire Prevention Week, in this special episode, we are joined by special guest Pamela Reno, Fire Protection Engineer & Regional Practice Leader at Telgian Engineering & Consulting, to discuss fire safety, learn more about her role as a fire protection engineer, and discuss key messages in honor of fire prevention week. About Pamela RenoPamela Reno has more than 20 years of experience and knowledge of concepts, principles, and practices of fire prevention, fire protection, and life safety engineering in the healthcare, engineering consulting, and manufacturing industries. She facilitates process development, documentation, and technical leadership, and administers training to ensure company and regulatory policies are met. Mrs. Reno also oversees fire and life safety components of planning and design including resolving issues during construction and ensuring codes, plans, and standards are in compliance. She has developed new passive fire protection and life safety design standards for hospitals, family health centers, ambulatory surgical centers, and regional practice sites and has also performed life safety assessments in accordance with the 2012 Life Safety Code, Joint Commission Standards, and the Center for Medicaid and Medicare services regulations.Mrs. Reno established and maintained a fire-safe environment by protecting patients, personnel, visitors, and property from fire, smoke, and other products of combustion for hospital campus buildings, family health centers, ambulatory surgical centers, and regional practice sites.She has developed fire plans, which included:Roles and responsibilities of employees during a fire emergencyHow to use fire alarms and fire extinguishersHow to contain fire and smokeEvacuation proceduresAdditionally, she has designed fire evacuation signs, ensured fire evacuation plans were up-to-date and current, trained operating room (OR) staff on fire safety in the OR, and conducted fire drills to ensure OR staff knew roles and responsibilities in the event of an OR fire. Pamela also plays an integral role in codes and standards development.Resources from the Show Join Phoenix Society in Advocacy EffortsWhat to Know About Home Fire SprinklersHow to Read a Fire Extinguisher TagRead About Fire Safety AssumptionsRead About Embarking on a Journey of Healing Through Fire AdvocacyRead About Understanding and Preventing Flash FiresTips for Preventing Burns and Scalds in the KitchenFor more resources, visit us here.Learn More About TelgianLearn More About NFPA's Fire Prevention Week About Telgian Engineering & ConsultingTelgian is committed to providing effective and innovative fire protection, life safety and security programs. Learn more Telgian at: https://www.telgian.com Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

On Halloween in 1987, Anthony Razzano at the young age of 12 years old found himself influenced by peers huffing gas on a quad motorbike. In his recollection of a ‘split-second decision,' Anthony decided to join his peers and later returned home with a friend to continue the activity. Not realizing the dangers around gasoline, Anthony's friend lit a match causing burns to over 87% of Anthony's body. Anthony was given a 0% chance at living and had his last rights read to him three times over the course of his recovery. In this episode, we talk with Anthony about his journey to recovery as a child burn survivor, the role mental health plays in burn injury recovery, and discuss how he's overcome obstacles to become who he is today. Anthony shares his advice for other burn survivors, and talks about what to expect when reading his memoir, “Against All Odds”. About Anthony RazzanoAnthony Razzano is a Certified Public Accountant (CPA), licensed sports agent, and an NFL-certified contract advisor. He has made a career out of negotiating successful contracts for his clients and providing expert tax and business advice since 2006. Born and raised in New Castle, Pennsylvania, Anthony harbored childhood dreams of becoming a professional football player.However, at a young age, Anthony was tragically injured in a fire that resulted in burns covering 87% of his body, and he lost his left hand. Anthony was not expected to survive but defied all odds. After an intense recovery, he became the starting outside linebacker for the New Castle Red Hurricanes high school football team, demonstrating an unbreakable spirit and determination that has been a hallmark of his life.Today, he is the author of the upcoming memoir, "Against All Odds," which tells his inspiring journey from the fire back to the football field, and his subsequent success in the fields of finance and sports management. Anthony is an embodiment of the power of resilience, fortitude, and tenacity.Resources from the Show Visit Anthony's Website.Purchase Anthony's Book on Amazon.Read More About Helping Child Burn Survivors Reclaim Life.Download the Guide for Parents and Caregivers of Burn Survivors.Watch ‘Building a Mindset that Serves You.'Download the Guide ‘Beyond Surviving'.Visit the Burn Community Bookshelf.Join the Online Burn Survivor Communities for Peer Support.Share Your Burn Survivor Story Online.Become a Phoenix Society SOAR Peer Supporter.Get Your Own Copy of Phoenix Society's Journey Magazine.Learn More About Ways to Give Back to Phoenix SocietyFor More Resources, Visit Us Here. About NFPA (National Fire Protection Association)NFPA is a nonprofit that seeks to save lives and reduce loss with information, knowledge, & passion. Learn more about fire safety and explore their educational resources by visiting www.nfpa.org.Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

We're just weeks away from Phoenix World Burn Congress 2023! To help attendees prepare for the event, we welcomed Megan Tinney, Phoenix WBC event manager, and Gina Russo, a key volunteer dedicated to ensuring that our first-time attendees are welcomed and supported at the conference, to the podcast!About Gina RussoGina Russo was born and raised in Cranston, Rhode Island. She is a mother to two amazing sons and has worked at the local hospital for 32 years, In 2003, her and her fiancé attended a concert at the Station Nightclub in West Warwick that turned into a deadly blaze, killing 100 including her fiancé Alfred. Gina survived the accident with 3rd and 4th degree burns to 40% of her body - and she only learned about Alfred's death after coming out of a medically induced coma 12 weeks later. In 2009, she self-published a book titled "From The Ashes." It was written for a therapeutic reason but wanted to share her story with others. She is proud to share that the book went on to sell for 3,500+ copies and opened up a world of public speaking about living and surviving such a tragic event.  Today, she is a Phoenix SOAR Peer Supporter and loves giving back and helping new survivors navigate their new life and get back to living. She has been married to her husband, Steven, for 15 years and loves her life as a burn survivor and what it has opened up for her. She is grateful for the opportunity to meet so many amazing person and the opportunity to help others. About Megan TinneyMegan Tinney is responsible for developing, managing, and planning Phoenix World Burn Congress. As the Program Manager of Community Engagement, Megan expands community outreach, engagement opportunities, and virtual offerings. She began her career as a Physical Therapist at Shriners Hospital for Children, Galveston after earning her Doctorate in Physical Therapy from Shenandoah University.Megan was first introduced to Phoenix Society at the 2009 Phoenix WBC before assisting with the conference next year in Galveston. Since 2010, Megan has held many roles within Phoenix WBC, including serving as the Event Coordinator Assistant for the past three years. In addition to her work with Phoenix Society, Megan also served as the Manager of Rehabilitation Services at Shriners Hospital for Children, Galveston and has worked in a variety of healthcare settings. About Phoenix World Burn Congress Phoenix World Burn Congress (WBC) is a program of Phoenix Society for Burn Survivors, the leading national nonprofit organization dedicated to empowering people impacted by a burn injury.Phoenix WBC began in 1985, developed by burn survivors, for burn survivors, to identify and understand the issues that impact the daily lives of those associated with burn trauma. Today, Phoenix WBC is the world's largest gathering of survivors, their families, burn care professionals and the fire service industry.This life-changing biennial event connects attendees with support resources, educational programming, workshops, and, most importantly, each other. It is through these shared experiences that healing begins, because we have learned that nothing heals survivors like connection with other survivors.Register today: https://pwbc2023.eventbrite.com/ Resources from the Show Register for Phoenix World Burn Congress 2023Download our Phoenix WBC Planning GuideView the full Phoenix WBC ScheduleFollow us on FacebookJoin our Phoenix Society Facebook GroupPhoenix Society ResourcesAbout MedStar HealthMedStar Health is a health system dedicated to caring for people in Maryland and the Washington, D.C., region, while advancing the practice of medicine through education, innovation and research. Learn more at www.medstarhealth.org.About the D.C. Firefighters Burn FoundationThe D.C. Firefighters Burn Foundation is dedicated to assisting in the recovery and rehabilitation of injured firefighters and burn survivors from the Washington metropolitan region. The foundation supports burn research, treatment, and rehabilitation programs at Washington Hospital Center and Children's National Medical Center. Learn more atwww.dcffburnfoundation.org. Sponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! 

At the age of 20, Grace Athena Flott was studying abroad in Paris when the apartment she lived in caught on fire causing burns to 45% of her body, a broken back and ankle, and the loss of two of her friends from the incident. Today, over a decade after her injury, Grace is an incredibly talented artist expressing and giving back to her community through her passion for the arts. In this episode, we speak with Grace about her passion for art, and discuss with her how her art helps her advocate for appropriate representation of those with visible differences. Grace shares with us more about her current project featured in the Museum of Museums in Seattle, and shares vulnerable details about advice she has for survivors in accepting their own appearances. Grace FlottGrace Flott is a painter, arts educator, and burn survivor advocate. She is a member of the Jasmine Jahanshahi Fire Safety Foundation, a Phoenix SOAR volunteer, and a volunteer camp counselor for Camp Eyabsut, a camp for burn survivor kids of all ages. She grew up in eastern Washington State and now resides in Seattle, where she holds drawing and painting classes in her private studio and onlineResources from the Show Learn more about Grace Athena FlottFinding an Audience for Your Story (Featuring Grace Athena Flott)The Art of Healing: Creativity and Community in Pediatric HealthcarePainting Through DarknessRead ‘Your Brain on Art'Phoenix Society ResourcesAbout Pritzker HagemanThe Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more more at: LegalJourney.guideSponsor Girls with Grafts Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org. Enjoyed the show? Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!