Podcasts about palliative care organization

On today's episode of the SimplyRevised podcast, Brenda and Steve are joined by guest John Carroll. John, a registered nurse in Corinth, Mississippi, has a unique role in hospice care. His experience offers valuable lessons that can benefit others by providing a deeper understanding of hospice care. Some of the content in today's episode may not be appropriate for all audiences. Please consider your unique audience as you choose to listen today.   Episode Links: Buy Me A Coffee SimplyRevised.org Contact Us Join Our Email Music by Eric Gwin Facebook Instagram (Podcast) Not Just Sundays Freed-Hardeman University (YouTube) Beloved Classics Library CaringInfo National Hospice and Palliative Care Organization

In this episode, Dr. Cassandra Vonnes, DNP, GNP-BC, APRN, AOCNP, CPHQ, FAHA, a Gerontological Nurse Practitioner, and member of the GAPNA Communication Team, talks with Dr. Aparna Gupta, DNP, FACHE, CPHQ, CRNP, the Vice President of Quality for the National Hospice and Palliative Care Organization, in Alexandria, Virginia.  Dr. Aparna Gupta, DNP, FACHE, CPHQ, CRNP, is the Vice President of Quality for the National Hospice and Palliative Care Organization, in Alexandria, Virginia.  Dr. Cassandra Vonnes, DNP, GNP-BC, APRN, AOCNP, CPHQ, FAHA, is the Nurses Improving Care for Healthsystem Elders (NICHE) Coordinator, Geriatric Oncology, at the Moffitt Cancer Center, in Tampa, Florida. She is a member of the Gerontological Advanced Practice Nurses Association Communication Team and is a host of the GAPNA Chat podcast series.Discover GAPNA: https://www.gapna.org/Production management by Anthony J. Jannetti, Inc., for the Gerontological Advanced Practice Nurses Association.Opening Music by:Optimistic / Inspirational by Mixaund | https://mixaund.bandcamp.com
Music promoted by https://www.free-stock-music.comClosing Music by:Scott Holmes.http://www.scottholmesmusic.com

Qwynn Galloway-Salazar is the heart and soul of this week's Heroes Caring for Heroes episode. As an Army veteran, end-of-life doula, and the founder of In Their Honor, Qwynn has dedicated over two decades to elevating the quality of life for military, veteran, and caregiving communities. Her personal journey, however, took an unexpected turn when her husband, Jose, a retired combat veteran and law enforcement officer, faced a major medical emergency.Qwynn found herself thrust into a new role - that of a caregiver. Despite her extensive experience and expertise, Qwynn struggled to reconcile her professional identity with the deeply personal and emotional experience of caring for her own loved one. Her vulnerability and honesty in sharing this journey are both inspiring and heartbreaking as she navigates the challenges of maintaining her own well-being while supporting her husband through his recovery. Qwynn's story serves as a poignant reminder that even the most seasoned caregivers can find themselves in need of support and community.Throughout our conversation, Qwynn's resilience, compassion, and unwavering commitment to her family and her mission shine through. Her willingness to open up about the isolation and loneliness of caregiving, the importance of self-care, and accepting help from others offers a powerful message. Qwynn's journey is a testament to the strength and resilience of military and veteran caregivers, and her story will resonate with and inspire others who find themselves in similar circumstances.About Qwynn:Dr. Qwynn Galloway-Salazar, known as Doc Q, is the Founder and CEO of In Their Honor. An Army Veteran and spouse to a Combat Veteran, she has devoted over two decades to enhancing the quality of life for military and Veteran communities. As an End-of-Life Doula Educator and Storyteller, Qwynn launched In Their Honor to collaborate with various stakeholders, ensuring Veterans and their families receive the care and support they need through the end of life. Her previous role as Co-Director of SAMHSA's Service Members, Veterans, and Their Families Technical Assistance Center underscores her deep commitment to this cause.Qwynn's influence extends across numerous initiatives focused on women Veterans, LGBTQIA+ Veterans, and end-of-life support. Notable roles include Lead Advisor for PsychArmor's “Caring for Veterans Through the End-of-Life Collection” and her ongoing contributions as a Creative Advisor. She is also involved with the National Hospice and Palliative Care Organization's End-of-Life Doula Council and the Compassionate Communities Think Tank. Her research and advocacy have earned her recognition as one of USA Today's 2024 Women of the Year and the inaugural Woman Veteran of the Year by Georgia's Department of Veterans Services, highlighting her leadership and dedication to making a significant impact.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Voting is a powerful way to influence the policies that impact your life. By participating in elections and advocating for change, you can help shape the future. Dr. Jesse Roach, NKF's Senior Vice President of Government Relations, and Lauren Drew, NKF's Congressional Relations Director, explain why your vote matters and how to get involved.   Dr. Jesse Roach is a strategist and clinician whose work focuses on improving access to kidney health by removing barriers to care through policy, partnerships, and research. He is currently the Senior Vice President for Government Relations at the National Kidney Foundation (NKF), where he leads the NKF's advocacy efforts. Dr. Roach received his medical degree and completed a residency in Internal Medicine and Pediatrics at the Medical University of South Carolina. He completed a combined fellowship in pediatric and adult nephrology at the University of Michigan Medical School. He resides in Washington, DC. Lauren Drew is the Director of Congressional Relations at NKF, and formerly worked at the National Hospice and Palliative Care Organization and on Capitol Hill. She's original from New Jersey and an alumna of the George Washington University and the Villanova School of Law.    Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.

Imagine facing the end of your life with a sense of peace and support. In this episode, Suzanne O'Brien shares her insights on creating an impactful and authentic death doula website that reflects your passion for end-of-life care. We explore user-friendly platforms like Squarespace and Wix, offering practical advice on presenting your services with clarity and genuineness. Discover how to use colors and images to resonate with your unique approach and learn about the necessity of proper training and resources to provide the highest level of service to patients and their families. Ever wondered about the crucial role of death doulas? Suzanne delves into the non-medical support they provide, encompassing emotional, physical, spiritual, and informational care. Reflect on your preparedness for end-of-life situations and listen to personal stories that highlight the importance of building trust through sharing credentials. We also discuss the comprehensive services offered by death doulas, from facilitating vital end-of-life conversations to creating vigil plans and offering spiritual support, demonstrating how they ensure a positive and comfortable end-of-life experience for everyone involved. Death doulas fill significant gaps left by traditional hospice care, providing extended, personalized support before, during, and after a loved one's death. Suzanne discusses the acceptance of doulas by the National Hospice and Palliative Care Organization and the rigorous training they undergo. Learn about the affordability and availability of doula services, including teledoula support, and the importance of creating accessible end-of-life resources. Whether you're considering becoming a death doula or seeking support for a loved one, this episode offers valuable insights into the profound work of death doulas.       We dive into: (00:00) Build Death Doula Website (08:35) Benefits and Importance of Death Doulas (13:46) Comprehensive Services of Death Doulas (26:57) Creating Free End-of-Life Resources (33:03) End-of-Life Doula Services and Support       We want to hear from you!!! If you found this podcast helpful, Please Rate, Review, & Follow so we can reach more people.       Links mentioned in this episode: Doulagivers Institute The NEXT Free Level 1 End of Life Doula Training Registration LINK  The NEXT Free Doulagivers Discovery Webinar  Unsplash - Beautiful Free Images & Pictures Wix - Website builder Squarespace - Build your website   80-90% of a positive end of life depends on these two things: Knowing the basic skills on how to care for someone at the end of life and planning ahead - and BOTH Doulagivers Institute is giving you for FREE! Access them Below! Making your wishes known is one of the greatest gifts you can give to your loved ones. Download The Doulagivers 9 Choice Advance Directive now! It's FREE!     More about what we do at Doulagivers Institute - Click here!

Show SummaryOn today's episode, we feature a replay of a recent PsychArmor Conversations Webcast, an engaging conversation on the past, present, and future of the LGBTQIA+ community in service and beyond. We hosted a diverse panel of individuals with lived experience in both the military and the LGBTQIA community About Today's GuestsAllison Jaslow is the CEO of Iraq and Afghanistan Veterans of America, an Iraq War Veteran, and a dedicated public servant. Nationally, Jaslow is recognized as a leading voice on the impact of the military-civilian divide on our political system and as an authority on the unique challenges faced by women in the military.  A former Army Captain, Jaslow is also a seasoned political and communications strategist, serving on the staff of several Members of Congress, and as a White House communications aide. She's a former Executive Director of Iraq and Afghanistan Veterans of America (IAVA), the Democratic Congressional Campaign Committee (DCCC), is a co-Founder of Operation Liberty and has recently served as an Adjunct Professor of the Practice at Duke University.Larry Hetu-Robert is the Bereavement Services Manager and Veteran Liaison for VITAS Healthcare in Atlanta, Georgia. His duties include educating hospice providers, the medical community and veteran organizations on the end of life needs of veterans. Mr. Hetu-Robert has taken the E.L.N.E.C. (End-of-Life Nursing Education Consortium) for Veterans, Train-the-Trainer, coursework and shares his knowledge and expertise in this specialized area of psychosocial and spiritual care for veterans facing illness and death. Mr. Hetu-Robert has served on many boards, committees, veteran coalitions and veteran service organizations in his attempts to recognize veterans for their service and advocate for their needs. As an Accredited Claims Agent with the Department of Veterans Affairs, he is able to assist veterans in obtaining their VA benefits. He opened the Veteran Information and Referral Office for VITAS Healthcare of Atlanta in Georgia. Mr. Hetu-Robert also cofounded the Veteran and Hospice Partnership of Greater Atlanta and presently serves on the steering committee for this group under the auspices of the Georgia Hospice & Palliative Care Organization. Arrianna Princess Auva'a Medically retired from the Army after 6 1/2 years of service and now serving in the American Samoa Government Office of Veterans and Military Affairs as the Program Administrator for the Staff Sergeant Fox Suicide Prevention Grant Program and Media Director. I am a certified Veterans Service Office via the VFW national training, and event coordinator for our office. I am also serving as the Secretary for the American Samoa Veterans Association, The Adjutant for the American Samoa VFW (Veterans of Foreign War) Post 3391, Secretary of the Society of Fa'afafine in American Samoa (and LGBTQIA+ / Trans Community Organization), and LHS 2004 Alumni President. I am the current chair-person in partnership with the Hawai'i Department of Veterans Affairs for the first ever inaugural Toa Games / Veterans Challenge games in American Samoa. My passion is in service to my people and the community at large in whatever capacity. I own and operate a platform on Social media in American Samoa with a following of over 300k combined which is the biggest following in American Samoa, and a small business owner of three small businesses. Samoa has four cultural genders – female, male, fa'afafine, fa'atama, and Samoa is considered one of the countries with a highly culturally recognised and pronounced trans and gender diverse population. Fa'afafine and Fa'atama are indigenous LGBTI citizens of Samoa. Fa'afafine translation is "Likeness of a woman". This is my identity. A Fa'afafine, in my native tongue. In western terminology, I am a Transgender Female. Living as a Fa'afafine in American Samoa has given me a platform and a stance for the fight for equality locally and also internationally. Accepting and embracing who I am and my gender identity has given me my voice which is now not only respected, but also taken very seriously. Links Mentioned in this Episode LGBTQIA+ Webcast on YouTubePsychArmor Resource of the WeekThe PsychArmor Resource he recent podcast series on LGBTQIA veterans, episode 166 with Erika Hoover and Andrea Norton on the goals of this public health awareness campaign, episode 169 with MaCherie Dunbar and Ashley Carothers on LGBTQIA+ Veteran Healthcare, episode 171 with Ale Hernandez on Myths and Misconceptions about LGBTQIA+ veterans, and the final episode in the series, episode 173 with Erika Hoover and Andrea Norton again, looking to the future of the needs of the community  You can see find the episodes here:   Episode 166 with Erika Hoover and Andrea NortonEpisode 168 with MaCharie Dunbar and Ashley CarothersEpisode 171 with Ale HernandezEpisode 173 with Erika Hoover and Andrea Norton Provide FeedbackAs a dedicated member of the audience, we would like to hear from you about the show. Please take a few minutes to share your thoughts about the show in this short feedback survey. By doing so, you will be entered to receive a signed copy of one of our host's three books on military and veteran mental health. Episode Partner: Are you an organization that engages with or supports the military affiliated community? Would you like to partner with an engaged and dynamic audience of like-minded professionals? Reach out to Inquire about Partnership Opportunities Contact Us and Join Us on Social Media Email PsychArmorPsychArmor on TwitterPsychArmor on FacebookPsychArmor on YouTubePsychArmor on LinkedInPsychArmor on InstagramTheme MusicOur theme music Don't Kill the Messenger was written and performed by Navy Veteran Jerry Maniscalco, in cooperation with Operation Encore, a non profit committed to supporting singer/songwriter and musicians across the military and Veteran communities.Producer and Host Duane France is a retired Army Noncommissioned Officer, combat veteran, and clinical mental health counselor for service members, veterans, and their families.  You can find more abou...

Join us on Inspired Nonprofit Leadership as host Sarah Olivieri sits down with Sarah Quillen, Executive Director of the International Lyme and Associated Disease Society. In this episode, we explore turning around culture in nonprofit organizations. Learn valuable insights on strategic planning, forming effective partnerships, and maintaining institutional memory. Discover the importance of listening, flexibility, and collaboration in nonprofit leadership. Don't miss this engaging conversation packed with tips and strategies for nonprofit leaders facing daily challenges and opportunities.   My guest for this episode is Sarah Quillen MPA, CFRE, who took on the role of Executive Director at the International Lyme and Associated Disease Society (ILADS) and its sister organization, the International Lyme and Associated Disease Education Foundation (ILADEF), in February 2023. Sarah is dedicated to enhancing the impact and mission of these organizations, continuing their legacy of improving community health. A native New Yorker, Sarah holds a Master's in Public Affairs from the University of North Carolina at Greensboro and is a Certified Fundraising Executive. With over 25 years of experience, Sarah has excelled in fundraising, public relations, and program development. Her impressive career includes notable positions at the Society for the Prevention of Cruelty to Animals, Good Shepherd Hospice in Florida, Capital Caring, and the National Hospice and Palliative Care Organization in the Washington, DC area. Sarah's extensive background in interdisciplinary healthcare, combined with her passion for advocacy and community relations, makes her an ideal leader for ILADS. She is excited to connect with members, build strong partnerships, and continue driving forward the mission of providing the best and most comprehensive care for patients. Here's what to expect during the episode: Changing Organizational Culture Tips on Strategic Planning and Implementation The Importance of Collaboration and Partnerships Tips for Bringing in Major Donors Navigating the Challenges of Change Connect with Sarah! Website: http://www.ilads.org/ Facebook:http://fb.com/ilads.lyme Sponsored Resource Join the PivotGround newsletter for weekly tips and inspiration for leading your nonprofit! Access it here >> Be sure to subscribe to Inspired Nonprofit Leadership so that you don't miss a single episode, and while you're at it, won't you take a moment to write a short review and rate our show? It would be greatly appreciated! Let us know the topics or questions you would like to hear about in a future episode. You can do that and follow us on LinkedIn. Connect with Sarah: On LinkedIn>> On Facebook>> Subscribe on YouTube>>

Introduction In this compelling episode of the Tick Boot Camp Podcast, hosts Matt Sabatello and Rich Johannesen are thrilled to welcome Sarah Quillen, the dynamic Executive Director of the International Lyme and Associated Diseases Society (ILADS), for an insightful conversation on battling Lyme disease. Adding to the excitement, special guest co-host Ali Moresco joins the dialogue, bridging her passionate advocacy work with ILADS' mission. Guest Bio Sarah Quillen: With a robust background in nonprofit leadership, particularly in health and human services, Sarah brings over 25 years of experience to her role at ILADS. Her career is marked by significant contributions to organizations like the National Hospice and Palliative Care Organization and Ronald McDonald House Charities® of Greater Washington, DC. A native of the Hudson Valley, NY, Sarah's personal and familial experiences with Lyme disease have deeply influenced her dedication to improving care and support for those affected by tick-borne illnesses. Ali Moresco: A fervent advocate for Lyme disease awareness and support, Ali has been a vocal presence in the community, continuously working to amplify the conversation around Lyme and associated diseases. Her collaboration with Tick Boot Camp and ILADS underscores her commitment to driving change and providing resources for those in need. Episode Highlights Introduction to ILADS: Sarah provides an overview of ILADS' mission, emphasizing its dedication to the diagnosis, treatment, and education of Lyme and other complex inflammatory diseases, celebrating 25 years of unwavering commitment to science, research, and education. Personal Journey: Sarah shares her personal connection to Lyme disease, reflecting on her upbringing in a region endemic to ticks and her father's challenging journey with Lyme disease and Babesia, including his participation in the Lymerix vaccine trials. Professional Pathway: Highlighting her trajectory from the fields of hospice and palliative care to her leadership role at ILADS, Sarah discusses the alignment of her professional expertise with her passion for advancing patient care in the realm of tick-borne diseases. Advocacy and Education: The conversation delves into the critical role of ILADS in educating healthcare professionals and the public about Lyme disease, with an emphasis on fostering a multidisciplinary approach to care and the importance of community engagement and support. The Power of Collaboration: Ali Moresco discusses the synergy between her advocacy work, ILADS, and Tick Boot Camp, highlighting the collective effort to raise awareness and support individuals affected by Lyme disease. Call to Action: The hosts and guests discuss the need for continued advocacy, education, and research to improve the lives of those dealing with Lyme disease, urging listeners to get involved and support ILADS' mission. Closing Thoughts Sarah and Ali leave listeners with empowering messages of hope and action, encouraging those affected by Lyme disease and their loved ones to seek comprehensive care, become educated advocates, and contribute to the growing community fighting for better awareness and treatment of tick-borne diseases. Resources International Lyme and Associated Diseases Society (ILADS) International Lyme and Associated Diseases Educational Foundation (ILADEF) Ali Moresco Podcast Interview Tick Boot Camp Podcast Episodes This episode was brought to you by Tick Boot Camp, dedicated to liberating individuals from the suffering caused by Lyme disease and other tick-borne illnesses through validation, community building, and education.

On today's episode, Melinda Gruber, Chair of the Board of Directors for the National Hospice and Palliative Care Organization, and Ken Albert, Chairman of the Board for the National Association for Home Care and Hospice Chair, join the podcast to discuss the future of both organizations and the continuum of care. Tune in to learn more about the affiliation between both orgs and what next steps lie ahead in 2024. For more information, please visit: https://www.nhpco.org/nahc-collaboration/

Artificial intelligence (AI) and algorithms are revolutionizing healthcare everywhere, including hospice and palliative care. Join our host, Jeff Howell, with healthcare executive and National Hospice and Palliative Care Organization board member, Dr. Katy Lanz, to discuss how hospice models need to adapt to the changing needs of patients and caregivers. Dr. Lanz chats about how data and AI can change how clinicians identify those at risk for mortality and create more predictive plans for crises, leading to more days of care at home. Listen in for insights on the future of caregiving in an AI-driven world and the crucial importance of the person-to-person aspect of care.See additional episode resources at Home Health 360.

Jill Venden grew up in Davenport, Iowa, graduating from Palmer College of Chiropractic as a Doctor of Chiropractic in June 1996.  While starting a practice in Davenport, Jill took on a part-time job as an adjunct instructor at a local college.  This is when the education bug bit her, and she remained in higher education for 15 years, ranging from an adjunct instructor, to Program Chair, Academic Director, and finally Assistant Director of Education.  While her career in education ended in the fall of 2017, Jill states she was fortunate to find her current position as a Volunteer Coordinator at Compassus where she is able to utilize her teaching skills, healthcare background, and her passion to help others.  At Compassus, she oversees the volunteer programs in the four Iowa offices: Cedar Rapids, Cedar Falls, Washington, and Davenport.  Jill is eager to add additional volunteers and grow her team to meet the needs of her organization!On a personal note, Jill is a grandmother of six, who enjoys gardening, travel, podcasts, and motorcycle trips with her husband Larry.Email: Jill.Venden@Compassus.comWork Cell: 928-899-8546Julie Sanders has a combination of more than 17 years of acute and post-acute care experience as a Respiratory Therapist as well as 10 years in the financial industry. As a Hospice Consultant, she is honored to be part of a team that assists the individual, providers, families, and the surrounding community with education and support regarding hospice and palliative care.National Hospice and Palliative Care Organization:https://www.nhpco.org/Connect with us! Let us know topics YOU want us to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.

When we started planning for Season 5 of The Problem With Perfect, we identified topics we wanted to explore in depth- topics that were too big and too important not to give them the airtime they deserve. Thats why we dedicated the month of April to the critical end of life issues we all face at some point in our lives, either personally or on behalf of a loved one.Welcome to the fourth episode of this series we are calling What To Know Before You Go.. This week, our guest is Dr. Jaymi Meyers, a palliative care specialist and hospice medical director. Jaymi comes to us from the beautiful state of South Carolina, and is known as “the smart one” in Denise's family.Special Guest:Dr. Jaymi Meyers, MD is a family medicine specialist in Seneca, SC. Dr. Meyers studied at the University of Iowa and currently practices at Oconee Palliative Medicine and is affiliated with Prisma Health Oconee Memorial Hospital. Show Notes:For more information about palliative care and hospice: National Hospice and Palliative Care Organization: nhpco.orgFor information about body donation programs by state - IEDS.online;Anatomy Gifts.org; Sciencecare.com

“People don't understand that there's a normal, natural way of dying. My materials are written to guide and support anyone who finds themselves addressing end of life situations. The goal is to help people have a positive experience so everyone involved will have a sacred memory to carry with them.” - Barbara Karnes, RN In this episode, Hannah Vale and Barbara Karnes talk about dementia and the end of life. Hospice doulas are playing a very important role in end of life care. Learn the signs to look for to know when a patient should call an end of life or dementia doula.  Barbara also talks about how interdisciplinary care teams can reduce the fear of dying by educating their patients and families and doing some things that are practical.  Learn about her resource and an exciting new project that will be released in 2024! Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. If it has to do with death and dying, Barbara Karnes, RN is talking about it. Her articles have been featured in The NY Times, USA Today, The Huffington Post, Thrive Global, & The Washington Post, among others.  Awarded the NHPCO Innovator award for her decades as an end-of-life educator and for her iconic booklet, GONE FROM MY SIGHT: The Dying Experience (aka: "the little blue hospice book"). Barbara's career spans four decades and began as an early hospice pioneer during the AIDS crisis. In addition to the many years she has spent at the bedside caring for patients and their families as a nurse, Barbara has also served as executive director of hospice and various home-health agencies. She has also worked through the hospice ranks as patient care manager, clinical director, staff, nurse, and volunteer. Barbara is a dedicated end of life educator, training professionals, authoring resource materials, booklets, movies, and her fabulous blog. You may find Barbara's end of life resources for patients, families, and caregivers on her website:  www.bkbooks.com Barbara's Social Media Platforms: FACEBOOK  INSTAGRAM   LINKEDIN   Family Support Bundle and other resources we talked about on this podcast can be found on Barbara's website.  Website: bkbooks.com  Office #:  360.828.7132 Barbara's email address:  barbara@bkbooks.com Barbara's experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 30 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death.  In 2015, Barbara's film New Rules for End of Life Care was featured in film festivals around the world and was the recipient of 10 prestigious film awards.   Barbara's other award-winning publications and films include: The Eleventh Hour: A Caring Guideline to the Hours to Minutes Before Death A Time to Live: Living with a Life-Threatening Illness My Friend, I Care: The Grief Experience, You Need Care Too: Self Care for the Professional Caregiver How Do I Know You? Dementia at End of Life A Place in My Heart: When Our Pets Die Pain at End of Life: What You Need to Know About End of Life Pain and Comfort Management, BY YOUR SIDE: A Guide for Caring for the Dying at Home The Final Act of Living: Reflections of a Long-Time Hospice Nurse. Care for the Caregiver, DVD This is How People Die, DVD

The word “palliate” comes from the Medieval Latin “palliare,” meaning to conceal, or to cover with a cloak. In the context of health care, a palliative approach is one that alleviates symptoms without curing disease. In this episode of The ABMP Podcast, Kristin speaks with author Cindy Spence about her book Palliative Touch: Massage for People at the End of Life, how practitioners can protect themselves during this emotional work, and why pressure, pace, and frequency are important aspects when doing hands-on work. Cindy Spence has been a massage therapist specializing in oncology and hospice care since 1999. She believes in the power of choice and pursuit of optimal well-being at all phases of life, particularly during advanced illness and the dying process. Cindy's training includes a master's degree in Public Health and more than 100 hours of continuing education from institutions such as MD Anderson and Sloan-Kettering. Co-creator of Final Touch Training, Cindy is a member of the Society for Oncology Massage, The Hospice and Palliative Nurses Association, and the National Hospice and Palliative Care Organization. As a member of the Oncology Massage Alliance, she provides massage in the chemo infusion room at Baylor Hospital in Dallas. She is also author of Comfort Massage Basics; A Training Program for Nurses and CNA's in the Hospice Care Setting. Cindy finds food for her soul in deep connection with family and friends, quiet time at the beach, long walks with her dog (Pongo), dancing, books, and prayer beads.   Resources:   Palliative Touch: Massage for People at the End of Life: https://us.singingdragon.com/products/palliative-touch-massage-for-people-at-the-end-of-life   Final Touch Facebook: www.facebook.com/finaltouchtraining/       Host: Kristin Coverly, LMT is a massage therapist, educator, and the director of professional education at ABMP. She loves creating continuing education courses, events, and resources to support massage therapists and bodyworkers as they enhance their lives and practices. Contact her at ce@abmp.com.     Sponsors:   Anatomy Trains: www.anatomytrains.com    Healwell: www.healwell.org   Precision Neuromuscular Therapy: www.pnmt.org   AnatomySCAPES: www.anatomyscapes.com       Anatomy Trains is a global leader in online anatomy education and also provides in-classroom certification programs for structural integration in the US, Canada, Australia, Europe, Japan, and China, as well as fresh-tissue cadaver dissection labs and weekend courses. The work of Anatomy Trains originated with founder Tom Myers, who mapped the human body into 13 myofascial meridians in his original book, currently in its fourth edition and translated into 12 languages. The principles of Anatomy Trains are used by osteopaths, physical therapists, bodyworkers, massage therapists, personal trainers, yoga, Pilates, Gyrotonics, and other body-minded manual therapists and movement professionals. Anatomy Trains inspires these practitioners to work with holistic anatomy in treating system-wide patterns to provide improved client outcomes in terms of structure and function.                      Website: anatomytrains.com                        Email: info@anatomytrains.com             Facebook: facebook.com/AnatomyTrains                       Instagram: www.instagram.com/anatomytrainsofficial   YouTube: https://www.youtube.com/channel/UC2g6TOEFrX4b-CigknssKHA       Healwell is creating community and a new kind of massage therapy practitioner all around the world. Check out our courses, join our online community, find us all over the social media universe, and bring your gorgeous self to the conversation!  www.healwell.org Instagram: @healwell_org Twitter: @healwell_org LinkedIn: https://www.linkedin.com/company/healwell/ Facebook: https://www.facebook.com/Healwell.org Check out our podcast, Interdisciplinary, anywhere you get your podcasts!   Therapists who are drawn to Precision Neuromuscular Therapy are problem-solvers who want to learn new approaches, but also understand the “why” behind the “what”.  This desire resonates with our emphasis on the problem-solving process, rather than the teaching of a singular technique or approach. Led by founder Douglas Nelson, each PNMT instructor is a busy clinician with decades of practical experience.   We have taught hundreds of hands-on live seminars for more than twenty years, emphasizing precise palpation and assessment skills. PNMT online courses are another rich source of discovery and deeper understanding. Also available is a video resource library (PNMT Portal) with hundreds of videos of treatment, assessment, pathology, and practice pearls.   Learn more at www.pnmt.org   AnatomySCAPES—created by and for hands-on professionals. As therapists, we want more than labeled charts of muscles, nerves, and bones. We crave anatomy education that informs our touch, and we want the know-how for working with the “stuff” in between. We want the whole story. Led by AnatomySCAPES co-directors, and ABMP Massage & Bodywork magazine columnists, Rachelle Clauson (FRS Fascial Net Plastination Project) and Nicole Trombley (Equilibrio Massage), our in-person lab workshops are in sunny San Diego, not far from the ocean. We teach you what the tissues look like, feel like, how they move, and how they relate to their surroundings. Your eyes and hands learn to “see” what they could not see before. Come join us in the lab in 2023!   Website: www.anatomyscapes.com   FB: facebook.com/AnatomySCAPES   IG: instagram.com/anatomyscapes   YouTube: youtube.com/@anatomyscapes   Email: info@anatomyscapes.com

Where do you start when consoling those who are going through grief? Most people don't know where to start, so they stay away from that person.In this episode, I am joined by Barbara Karnes, RN. An internationally recognized author, speaker, thought leader, and expert on end-of-life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards.Throughout this episode, Barabara talks about why she chooses to write short booklets instead of long books. She also shares a few tips on how to console a friend who is grieving. Additionally, she'll share the role our personality plays at the point of death.Listen to episode 87 of Grief and Happiness to hear how you can support someone who is grieving! In This Episode, You Will Learn:Why Barbara writes booklets instead of books (01:03)Barbara's advice to people running grief groups (08:18)How to someone going through grief (17:26)Barbara's eye-opening view on grief (29:03)Resources:Books - End of Life Guideline Series: A Compilation of Barbara Karnes BookletsBook - You Need Care Too: Self Care for the Professional CaregiverBook - How Do I Know You? Dementia at End of LifeBook - A Place in My Heart: When Our Pets DieConnect with BarbaraFacebookInstagramLinkedInLet's Connect:WebsiteLinkedInFacebookInstagramTwitterPinterestThe Grief and Happiness AllianceBook: Emily Thiroux Threatt - Loving and Living Your Way Through Grief Hosted on Acast. See acast.com/privacy for more information.

On this episode of The Power of Love Show we welcome special guest, Barbara Karnes, RN. If it has to do with death and dying, Barbara Karnes, RN is talking about it. Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara's career spans four decades and began as an early hospice pioneer during the AIDS crisis. In addition to the many years she has spent at the bedside caring for patients and their families as a nurse, Barbara has also served as executive director of hospice and various home-health agencies. She has also worked through the hospice ranks as patient care manager, clinical director, staff, nurse, and volunteer. Barbara is a dedicated end of life educator, training nurses and volunteers, authoring resource materials, booklets, movies, and her fabulous blog. Barbara's experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of ‘Gone from My Sight: The Dying Experience'. Affectionately referred to in the industry as the “little blue hospice book,” ‘Gone from My Sight' has sold over 30 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. In 2015, Barbara's film New Rules for End of Life Care was featured in film festivals around the world and was the recipient of 10 prestigious film awards. Her articles have been featured in The NY Times, USA Today, The Huffington Post, Thrive Global, & The Washington Post, among others. Awarded the NHPCO Innovator award for her decades as an end-of-life educator and for her iconic booklet, GONE FROM MY SIGHT: The Dying Experience (aka: "the little blue hospice book"). Learn more: Instagram: @BarbaraKarnesRN Facebook: Barbara Karnes, RN Website: bkbooks.com Linktree: @bkbooks Learn More About DDJF: Website: DDJF.org Instagram: @DeeDeeJacksonFoundation Facebook: Dee Dee Jackson Foundation LinkedIn: Dee Dee Jackson Foundation Twitter: @DDJFoundation Leave a podcast review: Apple Podcasts: https://podcasts.apple.com/us/podcast/the-power-of-love-show/id1282931846 Spotify Podcasts: https://open.spotify.com/show/6X6zGAPmdReRrlLO0NW4n6?si=koXehESfSrSwA-zWi2vf-w Did you know that you can support DDJF while you shop on Amazon at no cost to you? Add DDJF as your selected charity via Amazon Smile: https://smile.amazon.com/gp/chpf/dashboard/ref=smi_nav_surl_mi_x_mkt Listen as a podcast: https://podcasts.apple.com/us/podcast/the-power-of-love-show/id1282931846 Subscribe to our YouTube channel: https://www.youtube.com/watch?v=2-Nd1HTnbaI Like Our Facebook Page: https://www.facebook.com/884355188308946/ Join our Official Facebook Page full of supportive community members: https://www.facebook.com/groups/1500933326745571/?ref=share_group_link Have you subscribed to our Podcast? Apple Podcasts: https://podcasts.apple.com/fr/podcast/the-power-of-love-show/id1282931846 Spotify Podcasts : https://open.spotify.com/show/6X6zGAPmdReRrlLO0NW4n6?si=bhNl9GjJRxKXUvTdwZme6Q Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9wb3dlcm9mbG92ZS5saWJzeW4uY29tL3Jzcw Other podcasts: https://anchor.fm/thepowerofloveshow Visit the DDJF official website: http://www.ddjf.org/ Donate to DDJF (501c3): https://www.flipcause.com/hosted_widget/hostedWidgetHome/MTIxODI3 Check Out DDJF Merch: https://my-store-10253433.creator-spring.com/?# Join the Dee Dee Jackson Facebook Group: https://www.facebook.com/groups/1500933326745571 --- Support this podcast: https://anchor.fm/thepowerofloveshow/support

Like all patients, military veterans bring their unique experiences and backgrounds with them as they navigate medical and end-of-life care. At Mayo Clinic, programs are in place to honor military service and care for veterans.Mayo Clinic Hospice is a partner of the We Honor Veterans Program run by the National Hospice and Palliative Care Organization. The Hospice team provides the high level of medical, emotional, spiritual and social care that those who have served in the U.S. armed forces deserve. Team members recognize and honor the hospice patient's military service with a veteran pinning ceremony. Ceremonies are provided after approval by the patient and family and can include anyone whom the military member and family would like to participate, along with the hospice team.“It's just a small, simple way of saying thank you to a veteran,” says Loren Olson, a chaplain with Mayo Clinic Hospice. “We bring a pillowcase that represents their branch of the service and a small pin that they could put on a lapel, or a lot of them put them on their military hats. We bring a coin and a certificate from Mayo Clinic expressing our appreciation and we invite them to share their experiences in the military.”Building on the We Honor Veterans program, Charlie Hall, a Mayo Clinic security operations supervisor, helped develop a "Final Honor Walk" for deceased veterans at his Mayo Clinic Health System location in La Crosse, Wisconsin.Hall served in the Army as an active-duty rifleman with a combat tour to the Balkans and as a paratrooper with close to 100 military parachute jumps. In addition to his role as a security supervisor, Hall and his team in La Crosse meet with families of deceased veterans to arrange a “Final Honor Walk," where family and staff line the hallway to honor veterans while they are moved out of the hospital room in a flagged-draped cart. “The final honor walk is something that I wanted to develop,” explains Hall. “I had worked with the We Honor Veterans program in Rochester, with hospice, and the near-end-of-life things with veterans, all the great things they do there. I had the privilege of doing that, but I saw us being able to do a little bit more in an inpatient setting.” In addition to care at the end of life, it's important to acknowledge the unique needs of veterans every day in the clinical setting. Issues including post-traumatic stress disorder (PTSD) and substance use disorders are more common among veterans than the general population, and they often go hand in hand. More than 2 in 10 veterans with PTSD also have a substance use disorder, according to the U.S. Department of Veterans Affairs. “If a veteran is wearing a hat that signifies their veteran's status if you will, that to me is the OK to come up and thank them for their service,” says Hall. “And I do that routinely here. It's usually a surprise to the veteran. They're usually extremely grateful. Probably the No. 1 thing is to acknowledge them. It's so important to make people feel at ease when care is coming, especially when there are some complex situations with medical care. There are some very sensitive conversations that have to happen. We all know that happens so much easier when we have great rapport with our patients.”“Honoring veterans is part of the culture at Mayo Clinic, at least in my experience,” says Olson. “One of the first things I learned as I came to work the hospice program was that We Honor Veterans partnership with the Veterans Administration is important to us. We want to spend time honoring our veterans. So I do think we have developed a corporate culture that just helps us to think of the specific needs of our veterans.” On this special Veterans Day edition of the Mayo Clinic Q&A podcast, Olson and Hall join host, Dr. Halena Gazelka, for a conversation on caring for veterans.

I'm excited to welcome Alua Arthur to the podcast. Alua is a certified death doula who works with clients to develop end of life plans and provide non-medical support leading up to death. Her company Going With Grace staffs a team of death doulas that provide professional end of life support as well as courses, training, and retreats for future death doulas. Alua also sits on the Board of Directors of the End of Life Doula Council of the National Hospice and Palliative Care Organization. On this episode, we talk about: exactly what a death doula does where fear of death comes from how to get over the fear of dying without finishing what you wanted to do actionable ways to acknowledge + deal with grief in all its forms  a genius practice for building resilience exactly how to show up for someone in your life that's grieving  how to stop letting fear of death limit your life  what a death meditation is + how it works  what your intrusive thoughts about death may be trying to tell you  realistic tips for navigating fears of oblivion and nothingness when you die  the impact of religious or spiritual beliefs on facing death  the one thing people who are the strongest at the face of death have in common exactly how to talk to kids about death without scaring them  tips for facing anxiety about leaving the people who need us most when we die  what to do if you're hesitant to get preventative medical care due to fears of finding out bad news and so much more!  We would LOVE to hear from you any thoughts, reactions, or takeaways you have as you're listening, so definitely screenshot and tag me @lizmoody and Alua @going_with_grace on Instagram.  To join the Healthier Together Podcast Club Facebook group, go to https://www.facebook.com/groups/healthiertogetherpodcast. Get your Healthier Together Deck today at healthyconvo.co and use code LAUNCHDAY to get 10% off, just right now to celebrate launch. This episode is sponsored by Paleovalley. Head over to paleovalley.com and use the code LIZM for 15% off. This episode is sponsored by Ava Jane's Kitchen Colima Sea Salt. Go to HealthierTogetherSalt.com to get your first bag of Colima Sea Salt for free.  This episode is sponsored by Pique. Get 5% off plus a free blooming teas pouch complete with premium Pique samples when you purchase 2 or more cartons from piquetea.com/LIZMOODY and use code LIZMOODY.  Healthier Together cover art by Zack. Healthier Together music by Alex Ruimy.

A lot of people don't want to talk about death and dying. Yet, talking about death doesn't mean it's going to happen, and it's usually better to talk about it before it happens – for everyone involved. Death and dying are something that a lot of people don't have a lot of experience dealing with. That's because, over the past several decades, as a society, we have moved death out of the home and into institutions.  For some, the information I share in this podcast may be an intellectual conversation/ information) – for others, it may hit the heart.  It's one thing to listen to information about death and dying when you're not right in the middle of it; compared to being in the middle of it and trying to learn more. Listening to and learning about death and dying can be harder when your heart is hurting.  Many of the most important things tend to range from education around what to expect, preparing by getting their finances straight, and getting advanced directives in order. There are many things to think about when preparing for the end of life— if you're lucky enough to have time to do so. In my experience, some people have the luxury of this time, and some don't. Those whose loved one dies unexpectantly are upset because they didn't have time to resolve unfinished business or get to a place of acceptance ~ compared to those families whose loved ones take months to weeks to ultimately die being upset that it's taking so long for death to come, because it's emotionally exhausting.  In this episode of This is Getting Old: Moving Towards an Age-Friendly World,  we will discuss end-of-life care— two different types of care; as well as the providers involved and the type of care provided.    Key points covered in this episode:  ✔️ What is the difference between End-Of-Life Care, Palliative Care, and Hospice Care? It can be very stressful when you or someone you love is diagnosed with a life-threatening, serious illness. For most people who go through this experience, it is helpful to understand what type of care and resources are available.  This information will help you navigate the system to get answers to the questions you have – or will have - and help you manage the uncertainty of what to expect next.  End-of-Life Care  End-of-life care is an umbrella term that refers to the process of addressing all the issues that come into play from medical care, social and emotional support, and the spiritual care that you may need either as the person dying or as a family member. Palliative Care  Palliative care begins early during the course of treatment for a life-threatening, serious illness, and it can be delivered at several points of care across the continuum of healthcare settings. This type of end-of-life care includes institutional long-term care settings (nursing homes and assisted living); home health, acute care facilities, and outpatient clinics. Palliative care has limited funding, and most palliative care programs need alternative funding.  Hospice Care Hospice care is comfort care when you reach the point in the disease trajectory where aggressive care or therapies are no longer a viable option. It's a service delivery system that provides interdisciplinary care for people with limited life expectancy—typically when you're given six months or less to live.  Hospice care also includes comprehensive biomedical, psychosocial and spiritual support as you enter the terminal phase of an illness or condition. Hospice care also supports you, your family member(s) understand what to expect as death nears. Luckily for people 65 and over or those with a disability,  Hospice care is funded by Medicare's Hospice Benefit.  ✔️  What Type of Healthcare Providers Provide Palliative Care?   Basic Palliative Care Basic palliative care is delivered by health care professionals who are not palliative care specialists—they are not “certified” in palliative care by a credentialing organization. Basic palliative care providers can be primary care providers and disease-oriented specialists, such as cardiologists or oncologists;  nurses; social workers; chaplains; and other providers (such as physical, occupational, and/or speech therapists).  Specialty Palliative Care Specialty palliative care providers are all those same provider types (interdisciplinary team), except they are certified in palliative care by a credentialing organization.  I look back on my career, Hospice was certainly part of the standard of care when I graduated as a nurse practitioner in 2000; but Palliative care was just coming into practice at that time in my area. I was lucky enough to work with a geriatrician who trained us to provide high-quality palliative care. Technically, that made me a basic palliative care provider because I didn't have a certification in that specialty.  ✔️  What Type of Care Does Palliative Care Provide? Physical: Physical care has to do with your physical symptoms of either respiratory distress, pain, difficulty breathing, or anything physically that occurs along the disease trajectory and/ or at the end of life. Psychological and Psychiatric: Psychological or psychiatric aspects are the emotional support helping you deal with the reality of the situation and any other psychiatric things that might come into play—if you have a longstanding psychiatric illness and/or end up experiencing delirium. Spiritual, Religious, and Existential: Everyone has a different way that they connect to their spirituality. The hospice and palliative care team is there to help ensure that all of those needs are met for you. Cultural: Many cultural things come into death and dying from needing to open a window at the moment of death, mourning family and friends around, compared to not wanting anyone to see you. The person dying and their family need to communicate these cultural customs to the team, so they can ensure those needs are met. Ethical and Legal: These ranges from advance care planning, deciding on a surrogate decision maker, to making sure that all advance care planning wishes are in writing. If ethical issues come up along the way, the patient and the family's autonomy is supported.  Care of the Imminently Dying: This care involves making sure that all symptoms are managed when death is imminent. This includes making sure the person is pain-free, doing what we can do to help with breathing, and talking to the family about what to expect and what changes to anticipate during the final days and weeks of life.  Bereavement: Bereavement happens after death. This service is to support your family member(s) in dealing with the different complex consequences that a death in the family can cause; and helping support you duing the process of grief and grieving for up to one year after the person dies. ✔️ Help Is Always Available If you or someone you love are going through end-of-life experiences—help is always available.  How to find a hospice and palliative care provider? National Hospice and Palliative Care Organization. The National Hospice and Palliative Care Organization is a national organization that can connect you to palliative care providers. You can visit their website, enter your zip code or the type of provider that you're looking for, and you can connect with healthcare providers in your area. Medicare.gov   Check out the Medicare website and in the Provider Type section, select “Hospice Care”. Enter your zip code, and then it will tell you what providers are available in your area.      If you have questions, comments, or need help, please feel free to drop a one-minute audio or video clip and email it to me at melissabphd@gmail.com, and I will get back to you by recording an answer to your question.  About Melissa Batchelor, PhD, RN, FNP, FGSA, FAAN: I earned my Bachelor of Science in Nursing ('96) and Master of Science in Nursing ('00) as a Family Nurse Practitioner (FNP) from the University of North Carolina Wilmington (UNCW) School of Nursing (SON). I genuinely enjoy working with the complex medical needs of older adults. I worked full-time for five years as FNP in geriatric primary care across many long-term care settings (skilled nursing homes, assisted living, home, and office visits), then transitioned into academic nursing in 2005, joining the faculty at UNCW SON as a lecturer. I obtained my PhD in Nursing and a post-master's Certificate in Nursing Education from the Medical University of South Carolina College of Nursing ('11). I then joined the faculty at Duke University School of Nursing as an Assistant Professor. My family moved to northern Virginia in 2015 which led to me joining the George Washington University (GW) School of Nursing faculty in 2018 as a (tenured) Associate Professor. I am also the Director of the GW Center for Aging, Health, and Humanities. Please find out more about her work at https://melissabphd.com/.

Barbara Karnes, RN Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards.Barbara's experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 30 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death. In 2015, Barbara's film New Rules for End of Life Care was featured in film festivals around the world and was the recipient of 10 prestigious film awards. Barbara's other award-winning publications and films include:The Eleventh Hour: A Caring Guideline to the Hours to Minutes Before DeathA Time to Live: Living with a Life-Threatening IllnessMy Friend, I Care: The Grief Experience,You Need Care Too: Self Care for the Professional CaregiverHow Do I Know You? Dementia at End of LifeA Place in My Heart: When Our Pets DiePain at End of Life: What You Need to Know About End of Life Pain and Comfort Management,The Final Act of Living: Reflections of a Long-Time Hospice Nurse.Care for the Caregiver, DVDThis is How People Die, DVDEmail: Barbara@BKbooks.comWebsite: https://bkbooks.com/Inclusive Consulting Services: https://inclusiveconsultingservices.com/LinkedIn: https://www.linkedin.com/company/76504273/admin/

On this weeks episode, Cole and Chelsie sit down with Ryan Klaustermeier MSN, RN for a conversation surrounding his experiences in hospice work at the local, state, and national levels. Ryan is the Chair of the Next Generation Leadership Council, with the National Hospice and Palliative Care Organization.  He is also the VP of Professional Services with AXXESS. He gives some great insight into how his work evolved into helping Hospice and Palliative care continue to grow and progress through advocacy and leadership. 

In this podcast, Edo Banach, president and CEO of the National Hospice and Palliative Care Organization, talked about the positive and negative aspects of the proposed hospice payment rule for fiscal year 2023. He also addressed growing support for the community palliative care benefit and the government's concerns regarding hospices' long lengths of stay and high discharge rates. Banach advised members “to do the best job they can do at delivering the benefit every day” and said those hospices dedicated to bereavement services rise above the rest.Follow us on social media:Twitter: @McKHomeCareFacebook: McKnight's Home CareLinkedIn: McKnight's Home CareInstagram: mcknights_homecare

Edo Banach (President and CEO of the National Hospice and Palliative Care Organization) joins the show to discuss everything you need to know about palliative care vs. hospice.This episode is sponsored by the Institute of Healthcare Improvement. Learn more about how IHI is improving health and healthcare by visiting them at www.IHI.org.Watch this episode on YouTubeFind us on the web: Follow CareTalk on the Health Podcast NetworkFollow John on TwitterFollow David on Twitter About Edo Banach:Edo Banach is President & CEO of the National Hospice and Palliative Care Organization.  He previously was the Senior Advisor and Deputy Director of the Medicare-Medicaid Coordination Office at the Centers for Medicare & Medicaid Services and Associate General Counsel at the Visiting Nurse Service of New York.  Prior to that, Edo Banach was the Medicare Rights Center's General Counsel.  Edo has also practiced health law at the firms of Latham & Watkins and Gallagher, Evelius and Jones, and clerked for U.S. Judge John T. Nixon of the Federal District Court for the Middle District of Tennessee.  Prior to attending law school Edo worked for the New York City Department of Homeless Services and Mayor's Office of Operations. Mr. Banach holds a B.A. from Binghamton University and a J.D. from the University of Pennsylvania Law School.#hospice #palliativecare #musictherapy #cancertherapy #healthcare #healthcarepodcast #healthcarepolicy #healthcareindustry

Financial burden is a real problem for over 55 million caregivers across the U.S. What money issues do people need to consider before they take on the caregiving role?  Often a caregiver has many roles, including being a full time wage earner and other family caregiving responsibilities like kids.  Caregivers spent an average of $7000 of their own money in 2017 for things like medical expenses, legal fees, and paid caregiving help.  It's important to stay informed, and to think about the financial needs in advance if you can.  Keep in mind the financial health of both the one needing care and the caregiver. Think about sustainability - how long can you afford to maintain a caregiving system?  Is a caregiving system home feasible?  Caregivers have health care needs, too.  Not all partners or family members are physically able to care for a loved one.  What if you live separately from the one needing care, possibly at a long distance?  The costs of travel can mount.  With the expectation that care needs will expand as a patient's condition declines toward end of life, a village of caregivers becomes essential.  Be proactive with these discussions, if you have the luxury of time. There are resources available - take time to check them out.  One great option is AARP (American Association of Retired Persons).  Find more caregiver support at theheartofhospice.com.  **Don't forget to register for the California Hospice and Palliative Care Organization conference coming up in June 2022!  The hosts of The Heart of Hospice podcast are beyond thrilled to be partnering with end of life educator Barbara Karnes of BK Books, author of Gone from My Sight (also known as the Little Blue Book),  to feature a talk on getting back to the basics at the bedside.  When you register, be sure to tell them you heard about it on The Heart of Hospice podcast!  Grab your spot at the conference by clicking here.  Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/ Connect with podcast host Jerry Fenter at jerry@theheartofhospice.com. Connect with podcast host Helen Bauer at helen@theheartofhospice.com. Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.  Send your questions and comments to host@theheartofhospice.com.  We'd love to hear from you!  

Host Ankur Patel, MD, MBA, FAAFP, Chief Medical Officer, Tabula Rasa HealthCare, interviews Dr. Samira Beckwith. Dr. Beckwith has served as President and CEO of Hope Healthcare in southwest Florida for more than 30 years. Within the state of Florida, she served on the Transition Advisory Committee on Health and Wellness, the Florida Center for Nursing Board of Directors, and the Long-Term Care Advisory Committee. Dr. Beckwith has also served on the White House Conference on Aging, and on the boards of the National Hospice and Palliative Care Organization and the National Hospice Foundation. She is the Founding President of the Florida PACE Providers Association and a Founding Director of the National Partnership for Hospice Innovation, as well as past president of the Florida Hospice and Palliative Care Association. 

The next episode of our podcast, Elevate, is now available! COVID-19 has left little untouched in its wake as the deadly virus continues its global spread. Nearly three years later into a public health emergency, the pandemic rages on with financial, regulatory and operational impacts sweeping through the industry. Reporter Holly Vossel sits down with Edo Banach, president and CEO of the National Hospice and Palliative Care Organization (NHPCO) to take a closer look at how hospices are navigating pandemic-related headwinds on the horizon in this 15th episode of the Hospice News Elevate podcast. Subscribe to the Elevate Podcast to be notified when new episodes are released. Listen today!

Trained as a psychologist, Dr. Connor has been involved in hospice care since the 1970s. He worked in the National Hospice and Palliative Care Organization around the Hospice Benefit. For the last 15 years, he has focused on international palliative care. He is Executive Director of the Worldwide Hospice and Palliative Care Alliance.

In today's episode, we talk to Jason Bring, a health care partner at Arnall Golden Gregory who cochairs the law firm's National Post-Acute Care team and serves on the Board of the National Association for Home Care and Hospice. Bring also works with the National Hospice and Palliative Care Organization on legislative issues in the industry. Through both his position at Arnall Golden Gregory and his personal involvement in the home health care field, Bring offers a lot of information about how legislation is impacting home health care.  In this episode we discuss:  How Bring's work affects home health care providers and consumers  How current legislation is impacting the home health care field  How legislation could potentially drive significant progress in home health care 

The tenth episode of our podcast, Elevate, is now available! The COVID-19 pandemic has created tremendous disruption in the hospice space, including in the regulatory arena. In this episode of Hospice News Elevate podcast, reporter Holly Vossel talks with Judi Lund Person of the National Hospice and Palliative Care Organization about the impact of the pandemic on the regulatory and payment landscape. Subscribe to the Elevate Podcast to be notified when new episodes are released. Listen today!

There's a great virtual learning opportunity from the National Hospice and Palliative Care Organization at the IDC 2021! The Interdisciplinary Conference 2021 brought together by NHPCO will offer some highly valuable education to hospice and palliative care professionals on September 20-22, 2021.  It's all virtual this year, eliminating the cost of lodging and travel. The IDC is a great way to get your required CE/CMEs for license and certification renewal.   Because it's being offered virtually, attendees will be able to access the content through December 31, 2021.  According to the NHPCO website, the Conference “is designed for professionals in the hospice and palliative care field and related stakeholders in the following disciplines and roles: nurses and advanced nurse practitioners, bereavement, palliative care, pediatrics, physician, quality, regulatory and compliance, social work, spiritual care.”  Take advantage of this great opportunity to hear keynote speaker Dr. Jessica Zitter and to screen her new documentary “Caregiver: A Love Story”.  Register by clicking here!  You'll find more support for your end of life journey by visiting theheartofhospice.com.  We're here to support you 24/7, offering podcasts on all things hospice-related.  If you'd like to book Jerry or Helen as a speaker for your next conference, agency memorial service, or company event, send an email to host@theheartofhospice.  No matter where you are in your hospice journey, you are The Heart of Hospice!

Today on All Home Care Matters, we are going to be talking about how hospice helps families. If you want to learn more about hospice, you can watch or listen to our previous episodes, What is Hospice, or What is Palliative Care. You can find them on our website, wherever you get your podcasts, or on our YouTube channel. Today we're going to go over what hospice is, how it began, and how it is helping families today. Now let's move on to the rest of the show.   The American Cancer Society describes hospice care as a special kind of care that focuses on the quality of life for people and their caregivers who are experiencing an advanced, life-limiting illness. Hospice care provides compassionate care for people in the last phases of incurable disease so that they may live as fully and comfortably as possible. Hospice's goal isn't to treat the disease but to treat the symptoms and make the end-of-life as comfortable and fulfilling for the patient as possible.   The founder of the first modern hospice, Dame Cicely Saunders, said that “You matter because of who you are. You matter to the last moment of your life, and we will do all we can, not only to help you die peacefully but also to live until you die.”   Dame Cicely Saunders established the first modern hospice in West London in 1967. She did not invent hospice, as it had been around for some time, but she did make it what it is today. Before her, those that were dying and in pain had to wait until their painkillers wore off before they could be given their next dose. People feared addiction for those that were suffering, which seems odd today, but before 1967 was commonplace. Dame Cicely Saunders saw that her dying patients were being forced to suffer through their pain until their inevitable deaths and worked to change how end-of-life care was managed. She created an approach that emphasized pain management, emotional and spiritual support and family counseling. She insisted that dying people needed dignity, compassion, and respect, as well as rigorous scientific methodology in the testing of treatments, and abolished the philosophy that the patient must be cured, and if they were unable to, they must be lied to about their prognosis.   One of Dame Saunders patients transferred from another hospital to her hospice care facility said that “[the previous hospital] used to see how long I could go without an injection. I used to be pouring with sweat because of the pain. I couldn't speak to anyone and I was having crying fits. I think I've only cried once since I've been here . . . The biggest difference is feeling so calm. I don't get worked up or upset."   Dame Saunders' Hospice made such a difference in the end-of-life care of patients, and it has only improved since then. Today, hospice's philosophy revolves around palliative and not curative care. It focuses on the care and comfort of the patient by managing the symptoms and not the disease. Its goal is to improve and uphold the patient's quality of life instead of the amount of time the patient has left and neither postpones nor hastens death. Hospice also aims to educate and support the patient, the family, and other caregivers throughout end-of-life care.   When thinking about hospice care for your loved one, first you must determine their eligibility. A social worker will likely come and assess your loved one to see if they are ready for end-of-life care, but there are a few things you can check on your own. If their doctor has anticipated six months or less for the remainder of your loved one's life, assuming the illness takes its projected course and if your loved one chooses to forego life-prolonging, aggressive treatments for the terminal illness  and related diagnoses, they most likely qualify for hospice.   Once your loved one has been accepted into hospice care, they will receive care wherever they are, in their own home, in the hospital, in a facility, or any other place they may be. They will be given a primary caregiver, along with hospice staff, and will have the option to have 24/7 care. They will also be monitored by an interdisciplinary team and have an end-of-life plan tailored to fit their needs.   Hospice supports not only the patient but everyone involved. They will help you through the end-of-life process, so you don't have to go through it alone. They can give you resources and suggestions that can help you make the most of the time you have left with your loved one.   As the older population in the United States grows, more and more families are going to be considering end-of-life care. In 2015, 1.43 million Americans received hospice care and that number is steadily climbing each year. Hospice care requires 24/7 caregivers and a caregiving team involving a somewhat large amount of people. It can be quite expensive, and that financial burden may be weighing heavy on you right now but try not to worry about the money too much. There are a few ways your loved one can get free care or help covering the costs of hospice care. If your loved one is on Medicare, they can be provided hospice care at no cost to them. Medicare will cover 100% of the costs. Medicaid and private insurances will cover the costs, but you will have to talk to your insurance agent and doctor to see what they will cover. Some hospice care groups offer discounted rates or even free care, so be sure to check with the hospices in your area to see what their rates are and how they can work with you. Some organizations and non-profits will help you cover the costs. You can check with your local senior center or united way for more information on programs or resources they offer.   There are non-profit and for-profit hospices. They both run on the same philosophies and carry out treatments the same way, but they differ on the financial side. The Medicare Hospice Benefit established in 1983 provides Medicare beneficiaries with access to high-quality, end-of-life care services. This benefit is what allows Medicare to completely cover the costs of hospice care, but it also recognized hospice care as a viable concept and form of healthcare service for terminally ill patients in the United States.   Hospice took a while to gain traction in the United States, possibly because of its philosophy to only treat the symptoms and not treat the disease, but by 1983, it was widely accepted in the country. With this benefit passed, millions of Americans were finally given access to quality end-of-life care, something many would have been unable to afford otherwise.   According to Crossroads Hospice, the biggest difference between for-profit and non-profit hospices is that non-profit hospices are not required to pay taxes to state or federal governments on the funds they receive from Medicare. Tax exemption is a standard of all non-profits and is not exclusive to hospice care. For-profit hospices are also prohibited from using donations to directly pay for patient care. Non-profit hospices mainly run on donations, holding fundraisers and soliciting donations from the community to pay for patients' care.   Since for-profit hospices are not allowed to use donations to pay for patient care, many for-profit hospices create a non-profit foundation that is separate from the hospice to collect donations. The for-profit hospice foundations must each have a specialized mission, like securing supplies to help patients with special needs or providing hospice education to area healthcare providers.   Regardless of whether the hospice is for-profit or not, you want to make sure you are selecting the right program for your loved one. Each hospice is different and has its own structure for care teams, programs, and even philosophies. When searching for a hospice provider, you should contact and interview several in your area before you decide on one. Your loved one's doctor may also help you make this important decision by helping you figure out what the most important parts of care are for your loved one. For some, it could be having a nurse on hand at all hours, but others may only need a nurse at certain times of the day, if ever.   It is also important to note that hospice care may lapse if your loved one's illness improves or your loved one outlives their prognosis with no changes. Especially now, hospice care providers are hard to come by. The Covid-19 pandemic has many hospice providers, as well as most other healthcare providers, severely understaffed and they are struggling to provide care to all the patients they already have, let alone prospective patients.   So please be patient during this process. Hospice care providers and other caregivers are trying their best to make sure your loved one has the best quality of life, but they are also doing the same for numerous other families.   Hospice cares for patients with serious illnesses and diseases at the end of life, but what does that really mean? A 2017 study by the National Hospice and Palliative Care Organization found that 27% of patients had been diagnosed with cancer, while 18.7% had cardiac and circulatory, another 18% had dementia, 11% had respiratory issues or diseases, 9.5% were stroke patients, and 15.6% had other unlisted illnesses or diseases. If your loved one suffers from any of these illnesses or diseases and has been told they are nearing the end of their time, hospice may be the right care provider for them.   Choosing the right hospice for your loved one and yourself gives your many things: care support, the backing of an expert team, respite care, grief support, help with planning, less stress, better health, and peace of mind. Since hospice care is provided wherever the patient is, oftentimes it is in their own home, and the family, you, are the caregiver. According to Daily Health Wire, hospice care teams visit the patient in the home on a routine basis to assess, monitor and treat symptoms, and they train the family and loved ones how to care for the patient when medical personnel isn't around. When care is provided in a nursing home, the hospice team provides care in addition to the care the patient receives from nursing home personnel.   Hospices don't just have nurses, but they also have other trained professionals, including physicians, social workers, chaplains, and personal care specialists. Many even have volunteer support. The entire team works with the patient to meet their physical, emotional, social, and spiritual needs, along with the family, to improve the quality of life for both you and your loved one.   As a caregiver, you know how important is to take care of yourself while taking care of your loved ones. If you need help figuring out ways to help manage your stress or balance caregiving with your life, we have several episodes on the subject that can be found on our website, YouTube channel, or wherever you get your podcasts. If you need a break, whether you just need an hour to run errands or you need a few days away for whatever reason, respite care is something you might find useful.   A hospice caregiver can come into the home and watch over your loved one for a few hours while you are away. Many hospices also have a facility where your loved one can stay if you need to leave for a few days. Check with the hospice providers in your area to see what is available and to ask if they are able to provide these services.   We also need to make mention that when a family has hospice service that the hospice provider does not replace the home care support that a family may already have in place. This can become confusing for families and this is something that we have found families that we provide care for have thought that by having hospice come on-board to provide services for their loved one that they would no longer need or require home care because of this. This is not accurate.   When a family has hospice care this does not replace the home care support that they had prior to hospice. Whether it is hospice, home health care, or home care all three of these professions and services work independent of each other. If you have more questions or are interested in more information make sure to visit our website and there you'll find a secure fillable form that you can fill out and someone will reply to you and answer any questions that you may have or provide any resources or information that you request.   Linda Hickey, the daughter and full-time caregiver of Ruth, appreciated having a respite-care option. "My sisters and I had split up the responsibilities, but at times, it still felt overwhelming. Caring for her full time was exhausting," she explained. A local hospice cared for Ruth as a respite care patient, giving the family time to recharge. Time away, even just a little bit, can help you come back refreshed and ready to continue caregiving.   Another thing that hospice provides is grief support. The end-of-life stage is difficult for both you and your loved one and the right hospice can help you both through it - through emotional and spiritual support. Social workers, chaplains, and volunteers are all available to help your loved one come to terms with their situation and help you through the bereavement process. Even once your loved one has gone, they usually offer support to you and your family, because they treat each patient as an individual, and not a statistic.   They can also help with the planning that may be overwhelming for you. They can help with the power of attorney and a living will, as well as helping with the creation and follow-through of an individualized care plan.   Having a hospice provider on your side alleviates some of the caregiving burden and stresses that come with it, allowing you to enjoy more of the time you have with your loved one, rather than worrying about caregiving and other responsibilities.   Perhaps one of the greatest things that hospice provides is peace of mind for both you and your loved one. With hospice, you know that someone that cares is always on hand, or just a phone call away, allowing family members the chance to spend precious quality time with their loved one. And even during this sad and difficult time, many families have made great memories with their loved ones, thanks to hospice care.   Finding the right hospice provider for your family and your loved one can make all the difference in their lives, so don't wait too long. Get started today so you can enjoy tomorrow with your loved one.   We want to say thank you for joining us here at All Home Care Matters, All Home Care Matters is here for you and to help families as they navigate long-term care issues. Please visit us at allhomecarematters.com there is a private secure fillable form there where you can give us feedback, show ideas, or if you have questions. Every form is read and responded to. If you know someone is who could benefit from this episode and please make sure to share it with them.   Remember, you can listen to the show on any of your favorite podcast streaming platforms and watch the show on our YouTube channel and make sure to hit that subscribe button, so you'll never miss an episode. Join us next time on All Home Care Matters where we will explain what Medicare is and what it isn't.   Sources:   https://www.trihealth.com/dailyhealthwire/health-topics/well-being/7-ways-hospice-care-helps-families   https://www.cancer.org/treatment/end-of-life-care/hospice-care/what-is-hospice-care.html   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5072234/   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5072234/?report=printable   http://www.nnecos.org/resources/Documents/2018%20SLIDES/NNECOS%20Hospice%20101.pdf   https://casahospice.com/the-history-of-hospice-care/   https://www.bmj.com/content/suppl/2005/07/18/331.7509.DC1   https://www.cdc.gov/nchs/fastats/hospice-care.htm   https://www.crossroadshospice.com/hospice-resources/education-for-families/non-profit-vs-for-profit-hospices-what-is-the-difference/      

We explore the poetry of medicine by offering two conversations. In the first, Dr. Ira Byock talks with Dr. Patrick Clary about his poetry, why he writes it, how he uses it, and why it matters."I don't see it as a medical practice so much as a humane practice for us as we do medicine; to maintain our way of looking at our patients as people."    —Dr. Patrick Clary in conversation with Dr. Ira Byock..Then host Seán Collins talks with palliative care clinician Redwing Keysaar about the poetry workshops she's been hosting online during the pandemic. What began as a way for people to process their grief has become a way to get in touch with un-tapped creativity and strengths."We forget so many of the healing modalities that are with us all the time and that have been part of the various cultures that many of us come from. Dr. Rachel Remen says, "We may have lost faith in our ability to write poems just as we have lost faith in our ability to heal. Recovering the poet strengthens the healer and sets free the unique song that's at the heart of each life."   —Redwing Keysaar, RN in conversation with Seán Collins..Patrick L Clary, M.D.  has long used poetry as a tool in his effort to understand, practice, and teach medicine. His work has appeared in anthologies and in two collections, Notes for a Loveletter and Dying for Beginners. A conscientious objector on the basis of Quaker beliefs, he served as a medic with US Infantry Units in Vietnam 1969-70. He is past President of the New Hampshire Hospice and Palliative Care Organization and remains clinically active in end-of-life care as medical director of a community hospice house...Ira Byock, M.D., FAAHPM, is a leading medical authority and public advocate for improving care through the end of life. He is founder and serves as chief medical officer of the Providence Institute for Human Caring. The Institute drives transformation in clinical systems and culture to make caring for whole persons the new normal. The Institute for Human Caring's change strategies produce measurable and scalable improvements in healthcare quality and efficiency. Dr. Byock's books include The Best Care Possible  and The Four Things That Matter Most...Redwing Keysaar, RN is a palliative care clinician, author, poet, educator, national presenter, and frequent contributor to the public conversation about palliative and end-of-life care. Redwing is currently the director of Patient and Caregiver Education at the MERI Center for Education in Palliative Care (Making Education Relevant and Integrated) for Primary Palliative Care Education  at the Mt. Zion Campus of the University of California, San Francisco. She is the author of The Last Acts of Kindness. 

In today’s episode of Help Choose Home, we’re joined by Edo Banach , JD, President and CEO of the National Hospice and Palliative Care Organization . He has worked as the Senior Advisor and Deputy Director of the Medicare-Medicaid Coordination Office at the Centers for Medicare & Medicaid Services and Associate General Counsel at the Visiting Nurse Service of New York. Edo has also served as the Medicare Rights Center’s General Counsel, and has practiced health law at the firms of Latham & Watkins and Gallagher, Evelius and Jones, and clerked for U.S. Judge John T. Nixon of the Federal District Court for the Middle District of Tennessee. In this episode we discuss: The history of the hospice benefit and why there’s still plenty of room for hospice reform The importance of standardized, high-quality community-based palliative care. Strategies for raising consumer awareness about legislative issues related to hospice and palliative care, and tips for talking to loved ones about them. Be sure to check out Help Choose Home Season 4, Episode 2 show notes and our full library of podcasts dedicated to helping families learn more about professional home care options.

Ben joined NHPCO in October 2020, bringing 30 years of leadership experience in educational, healthcare, and social service settings. Prior to joining the NHPCO senior leadership team, Ben was with Hospice of the Chesapeake where he served as President and Chief Executive Officer (2015-2020) and Chief Operating Officer (2013-2015). Prior to relocating to Maryland in 2013, he served as Chief Administrative Officer at San Diego Hospice and The Institute for Palliative Medicine. Ben has an extensive background in working with multidisciplinary clinical and management teams in a variety of educational and clinical settings. He holds a Master’s of Science in Counseling from San Diego State University, a Master’s of Education in Administrative Leadership from the University of San Diego, and a Bachelor of Sacred Theology and Philosophy from the Gregorian University in Rome, Italy. For more information about advance care planning, and to find the needed forms, please visit the National Hospice and Palliative Care Organization.

In this episode, Barbara shares an experience from when she was a 16-year-old nurse's aide asked to sit with someone dying. Terrified to do so, she was told to let them know, meaning the nurse's station, when they died.Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader, and expert on end-of-life care and dying dynamics. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards.Barbara’s experience as a hospice care provider at the bedside of hundreds of people and as an administrator overseeing the care of thousands led to the 1985 publication of Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 30 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today, educating families on the signs of approaching death.In 2015, Barbara’s film New Rules for End-of-Life Care was featured in film festivals worldwide and was the recipient of 10 prestigious film awards.Barbara’s other award-winning publications and films include:The Eleventh Hour: A Caring Guideline to the Hours to Minutes Before DeathA Time to Live: Living with a Life-Threatening IllnessMy Friend, I Care: The Grief ExperienceYou Need Care Too: Self Care for the Professional CaregiverHow Do I Know You? Dementia at End of LifeA Place in My Heart: When Our Pets DiePain at End of Life: What You Need to Know About End-of-Life Pain and Comfort ManagementThe Final Act of Living: Reflections of a Long-Time Hospice NurseCare for the Caregiver, DVDThis is How People Die, DVDSupport the show (https://healgrief.org/donations/)

Dr. Ira Byock, Founder and Chief Medical Officer of the Providence Institute for Human Caring, discusses a new vision for advance care planning that simply asks individuals to name a trusted decision- maker to speak for them in the event they're not able to speak for themselves. This choice is then entered into the electronic health record by a care provider. Joining Dr. Byock are Edo Banach, President and CEO of the National Hospice & Palliative Care Organization, and Nathan Kottkamp, founder of the National Healthcare decisions Day.

Along with a pandemic and a contentious election, hospice leaders have to navigate new payment models, diversify and expand services, protect the health and safety of patients and staff, meet new regulatory challenges, and leverage technology to deliver care virtually.   How do we navigate the path forward?   In this episode of Netsmart CareThreads, we asked Edo Banach, president and CEO at National Hospice and Palliative Care Organization, for his thoughts.    Here's what Edo said:   - How technology helps provision hospice and palliative care   - Why the future may lie in person-centered interdisciplinary care   - How the Medicare Advantage plan can affect patient perceptions of choice   - Ensuring that current community palliative care providers remain relevant for serious illness care at the state level   - Alternative payment structures   This discussion with Edo Banach was taken from our show Netsmart Care Threads. If you want to hear more episodes like this one, check us out on Apple Podcasts.   If you don’t use Apple Podcasts, you can find every episode here.

Jennifer O'Brien has spent her career working in healthcare and managing medical practices.  Life took an unexpected turn when her husband, a palliative care physician, was diagnosed with a terminal illness.  She documented her journey through art and ultimately via a book, “The Hospice Doctor's Widow.”  Jennifer O'Brien's unique perspective on healthcare, end-of-life experiences, and caregiving frame this episode of SoundPractice.  Whether a patient, a cousin's spouse, a co-worker, we all know someone carrying for a terminally ill relative.  Jennifer O'Brien offers sage advice to those caregivers and she also provides guidance for physician leaders on how they can be examples in the community.   Join us for this important episode of SoundPractice.   Jennifer O'Brien may be reached at: https://www.hospicedrswidow.com/contact https://www.etaliapress.com/new-products/the-hospice-doctors-widow-a-journal The following persons/organizations were referenced by Ms. O'Brien in the interview: Rebel Health's Archangels: rebelhealth.us Jessica Zitter, MD wrote Extreme Measures: jessicazitter.com The National Hospice and Palliative Care Organization: nhpco.org  

Jennifer O’Brien has spent her career working in healthcare and managing medical practices.  Life took an unexpected turn when her husband, a palliative care physician, was diagnosed with a terminal illness.  She documented her journey through art and ultimately via a book, “The Hospice Doctor’s Widow.”  Jennifer O’Brien’s unique perspective on healthcare, end-of-life experiences, and caregiving frame this episode of SoundPractice.  Whether a patient, a cousin’s spouse, a co-worker, we all know someone carrying for a terminally ill relative.  Jennifer O’Brien offers sage advice to those caregivers and she also provides guidance for physician leaders on how they can be examples in the community.   Join us for this important episode of SoundPractice.   Jennifer O’Brien may be reached at: https://www.hospicedrswidow.com/contact https://www.etaliapress.com/new-products/the-hospice-doctors-widow-a-journal The following persons/organizations were referenced by Ms. O’Brien in the interview: Rebel Health's Archangels: rebelhealth.us Jessica Zitter, MD wrote Extreme Measures: jessicazitter.com The National Hospice and Palliative Care Organization: nhpco.org  

About this episdoeFor lots of people, Hospice is a scary word because it's associated with the end of life, confronting our own mortality or that of someone we hold dear is tough. And the final journey we take in this lifetime can be a challenge for the whole family. But what most people don't realize is that not only does hospice provide the patient the ability to live well, right up to the final moment, but it also provides comprehensive support to the family as well. The myths surrounding hospice lead to a really unfortunate under-utilization of it, so in this episode, we spent some time talking about a few of those myths and revealing the beautiful truth about hospice.  My GuestsI was happy to host Andrew Molosky and Dean Forman of Chapters Health System to help me wade through some of the common misconceptions about hospice. Both Andrew and Dean found their careers in hospice through personal experiences that identified a calling and a desire to support families and empower patients during a difficult time. That's pretty common among people who work in Hospice. They are a very special bunch! Links and resources we mentionedhttps://www.chaptershealth.org/about-chapters-health-system/leadership-team/ (Andrew Molosky bio) https://www.chaptershealth.org/about-chapters-health-system/leadership-team/ (Dean Forman bio) https://www.chaptershealth.org/ (Chapters Health System) https://www.chaptershealth.org/services-chapters-health-system/chapters-health-hospice-care/good-shepherd-hospice/ (Good Shepherd Hospice) https://www.chaptershealth.org/services-chapters-health-system/chapters-health-hospice-care/good-shepherd-hospice/grief-support/bethany-center/ (Bethany Center) https://www.hospiceinnovations.org/ (National Partnership for Hospice Innovation) https://www.nhpco.org/ (National Hospice and Palliative Care Organization) https://www.nahc.org/ (National Association for home care and hospice) https://hospicefoundation.org/ (Hospice Foundation of America) - we didn't mention this one in the episode, but lots of good information there for caregivers. https://www.medicare.gov/hospicecompare/ (Medicare.gov) - Find and compare hospice options local to you by entering your zip code Thanks for listening!Are you enjoying the Sage Aging podcast and blog? Tell us about it! I'd really appreciate it if you would https://www.facebook.com/sageagingpodcast/reviews/ (leave a positive review) and share the sage aging podcast with a friend. If you have topic ideas you'd like to share, we'd love to hear from you. Drop us a line at info@Sageaging.us.

Welcome to Essential Insights: A Podcast for Healthcare Professionals. Hosted by Sidnie Kane, Program Coordinator for the Hospice & Homecare Webinar Network. My goal is to bring the listener, the essential worker, the latest information and high-quality education on critical topics that healthcare professionals are facing on a daily basis. The fifth episode covers IDG Meetings. Our speaker today is the Executive Director of the Advanced Palliative Hospice Social Work certification organization, Gary Gardia. He will cover IDG meetings and the importance of holistic/interdisciplinary care models. Gary's knowledge in the field brings a very real aspect to his teachings that healthcare workers can relate to. He gives real-life examples and applications that people can use in their daily work routines. He covers many challenging topics in a professional and easy to understand manner. Gary is truly a top-notch speaker and we are so thankful to have him share his expert knowledge on the podcast today. Check out these links for more info! Latest IDG webinar by Gary: https://bit.ly/2F3FnRJ Gary's Social Worker Series: https://bit.ly/304IaRE Follow us on LinkedIn: https://www.linkedin.com/company/hhwn Give us a like on Facebook: https://www.facebook.com/hhwnwebinars Over 34 years ago, Gary began his hospice career as a volunteer. Since then he has worked in many capacities leading a variety of teams and departments including volunteers, social workers, bereavement, and education. Gary holds Masters Degrees in both Education and Social Work and is a Licensed Clinical Social Worker. He also holds the new Advanced Palliative Hospice Social Worker Certification (APHSW-C). Gary received the National Hospice and Palliative Care Organization's (NHPCO) Heart of Hospice Award for developing innovative programs to meet the needs of caregivers and the bereaved and is the recipient of the national social work organization Social Work Hospice and Palliative Network (SWHPN) Award of Excellence in Professional Education. He is a frequent presenter and keynote speaker at state and national conferences and works as a consultant for various businesses and healthcare organizations. He is currently the Executive Director of the Advanced Palliative Hospice Social Work certification organization

It is with great excitement that we announce that Death by Design is partnering with PartnerPlus Media to enhance hospice educational materials in local communities. PartnerPlus Media and Death by Design share similar passions when it comes to supporting hospice organizations through thoughtful educational resources to comfort families and patients facing a life-limiting illness. Together, we can enhance end-of-life education by sharing a common goal —supporting patients and families. The greatest part about this unique collaboration is that it is done at NO COST to hospice organizations.PartnerPlus Media PartnerPlus Media supplies print and digital marketing solutions to thousands of businesses and non-profit organizations in the United States, Canada, and the UK. For over 20 years, they have worked with clients from world-renowned brands. PartnerPlus Media is passionate about working with those who make a difference in the lives of hospice patients. The innovative vision of PartnerPlus Media has helped develop a unique resource guide for hospices to utilize within their local community. The organization is a member of the National Hospice & Palliative Care Organization as well and maintains close relationships with leading hospices in the United States. In this time of uncertainty, PartnerPlus Media is committed to expanding the knowledge of end-of-life services at no charge to the hospice agencies locally supporting families and patients every day. www.partnerplusmedia.comDeath by Design Many of you may know me, but for the newbies, I’m Kimberly C. Paul. I have worked in the end-of-life field for 20 years. I initially worked in television and film but when I lost my boyfriend to cancer, my world imploded. It changed my direction by creating a path into a very dark tunnel called grief. With my creative background, I wanted to give back to hospices. What was initially a temporary career, became a lifelong passion. Through my Ted Talk, Podcast (Death by Design), and book (Bridging the Gap), I’m hoping to expand awareness about hospice services on a local, community, medical and personal level. I’m thrilled to collaborate with PartnerPlus Media to introduce new and innovative ways to enhance brand, language, and educational tools as well as build a new community relationship that ultimately supports local hospices in their area. Combining my talent for creative marketing and my passion to serve those facing a life-limiting illness is my commitment. Together, we can radically change how individuals face the end of their lives. www.deathbydesign.com The benefits of working with Death by Design and PartnerPlus Media are:· Over 20 years of creative hospice marketing experience exceeding census and referral goals. · Working with a world-renowned creative design team to enhance your hospice brand · Increasing your outreach efforts by expanding community relationships and growing potential fundraising opportunities. · Working with a team specializing in the supply of innovative, no-cost marketing solutions.· Providing in-home resources for families on how to provide a safe environment when caring for a loved one with a serious illness (fall prevention tips).· Providing a central location for all hospice contact numbers for families to prevent unnecessary 911 calls / ER visits.· Creating an effective “leave behind” for families not ready to accept the hospice philosophy upon initial referral as a community educational tool for families.· Deliver essential information to patients and families, including carbonated / perforated forms such as admission paperwork, advance directives, supply lists, donations, etc.We, Kimberly C. Paul and PartnerPlus Media, look forward to supporting your hospice and growing the community message and resources for those facing life-limiting illnesses. Support this show http://supporter.acast.com/death-by-design. See acast.com/privacy for privacy and opt-out information.

Aaron Housh, CEO of Good Samaritan Hospice, joins us to discuss hospice and advanced illness care. He shares how his organization's operations have been affected by the COVID-19 pandemic and helps clarify some of the common misconceptions about end-of-life care. We also talk about the internal supports "Good Sam" has in place to care for the emotional well-being of their employees, as well as the different volunteer opportunities available for those who may be interested in assisting individuals and families who are dealing with progressive illness. Resources mentioned in this episode:Good Samaritan Hospice website - http://www.goodsam.care CaringInfo ( a program of the National Hospice and Palliative Care Organization) - http://www.nhpco.org Sponsor Information:Teen Connections - https://www.plannedparenthood.org/planned-parenthood-south-atlantic/education-programs/teen-connections Contact: Malinda Britt, PPSAT Community Health Educator Malinda.Britt@ppsat.org (540) 315-2130

Dr. Ira Byock, Founder and Chief Medical Officer of the Providence Institute for Human Caring, discusses a new vision for advance care planning that simply asks individuals to name a trusted decision-maker to speak for them in the event they’re not able to speak for themselves. This choice is then entered into the electronic health record by a care provider. Joining Dr. Byock are Edo Banach, President and CEO of the National Hospice & Palliative Care Organization, and Nathan Kottkamp, founder of the National Healthcare Decisions Day.

This episode focuses on grief. I wanted to discuss this topic because 2020 seems like a year that we have all been impacted by this strong emotion due to everything that's happened. From the passing of loved ones to celebrity passing's that have shaken us all, I think discussing this complicated emotion and learning more about public health's involvement is essential in the healing process.Key Takeaways:Grief is normal and impacts children to older adults.The five stages of grief includes denial and isolation, anger, bargaining, depression, and acceptance. Each of the five stages do not happen in order nor will we get through all five.And finally, there are resources to help you cope-so do not feel alone. Reach out for support. For Adults/Older Adults National Hospice and Palliative Care Organization https://www.nhpco.org/patients-and-caregivers/For Children National Alliance for Grieving Children https://childrengrieve.orgGeneral/COVID Good Grief https://good-grief.org/covid-19/Support the show (https://www.buymeacoffee.com/phfortheculture)

Your Authentic Presence Can Help Patients Feel Empowered!An honest and personal conversation with my guest Barbara Karnes, RN. As a healthcare professional, do you recognize what you may be taking on, taking in, and taking home? Barbara and I discuss what it means to be vulnerable and to be human as healthcare professionals. It's a real conversation on the importance of finding balance and having self-care rituals to support your professional care-giving efforts. Barbara Karnes is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. Barbara’s experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of, Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 25 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death. In 2015, Barbara’s film New Rules for End of Life Care was featured in film festivals around the world and was the recipient of 10 prestigious film awards. Visit Barbara's website: https://bkbooks.com/ You can watch interview on YouTube: https://youtu.be/_YysxmVLv4EConnect with me on FB: https://www.facebook.com/drdebhowell/ Instagram: Dose of Deborah

On this episode of "Ask a Death Doula", I have the great pleasure of interviewing Barbara Karnes RN. Enjoy this lively discussion from this expert about "Pain at End of Life" - the title of her latest educational booklet. Barbara has insights and wisdom that every person can benefit from.   Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. Barbara’s experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 25 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death. Links Mentioned in This Episode Barbara Karnes Books End of Life Care Facebook Group Something-To-Think-About Blog

Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards.

Judi Lund-Person hears the stories of hospice agencies from all over the country in her work with NHPCO.  She wants those end of life professionals to feel supported by their leaders in the industry.  As an advocate for the hospice industry working closely with CMS, Judi helps to ensure that agencies can bring compassion and quality to the work they do.  In today’s Connection Moment, Judi voices her gratitude for the work that interdisciplinary teams are doing to care for seriously ill patients.  You’ll find ways to connect with Judi and the resources that the National Hospice and Palliative Care Organization have to offer when you visit nhpco.org.  There’s information on NHPCO member benefits, and resources for lay people as well.  The Heart of Hospice is here to support you, too.  You can connect with Jerry and Helen by sending an email to host@theheartofhospice.com.  We’ll make sure you get a personal reply.  Your hospice journey isn’t forgotten, even in the middle of a pandemic.  We’re here to come alongside you, to encourage and support you.  You’ll find us at theheartofhospice.com.  No matter who you are, you are The Heart of Hospice.   

In today’s episode, I’m happy to share a truly extraordinary guest, Barbara Karnes, RN. Barbara is an internationally recognized author, speaker, thought leader, and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. In this conversation, we talk about the very personal and holistic approach Barbara takes to some of the most devastating moments in our lives. She shares her feeling that even if we can no longer heal the physical body, there is still opportunity to heal the emotional, spiritual and mental aspects of a person. Barbara shares some of the pivotal moments of her childhood and early adulthood, including challenging family dynamics and a traumatic miscarriage, that have informed her work in end of life care. We also speak about the differences in experience when we lose someone younger vs. when they are later in life. During that part of the conversation I share some of my own personal stories of loss and the new insights I found through Barbara’s insights and thoughts on the topic.   “We are treating diseases that people have, instead of the people that have the diseases."  ~ Barbara Karnes, RN   This is an extremely important conversation at any time, and yet even more so now given what our world is currently facing. Many are dealing with end of life care and the restrictions placed in health care these days because of COVID have made this time of life feel more isolated and lonely. Barbara reassures us that we are never alone at the time of death, and shares some stories to illustrate that idea. I’m certain this conversation will bring you as much comfort as it brought to me.   I can’t tell you how grateful I am for Barbara’s work and this conversation. My hope is that after this conversation you feel you know Barbara and the reasons behind why she does this incredible work. She gave so many gifts during this conversation, including to me personally that I was not expecting. Please share your insights and everything you got out of this one of a kind conversation. If you are needing support during this pandemic, I invite you to join my free Facebook Group that I have created for you. It is so important to me that we are ready to exit the Waiting Room when it’s time to re-enter our new lives on the other side of this. More About Barbara Karnes, RN Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader, and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. Barbara’s experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 25 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death.  In 2015, Barbara’s film New Rules for End of Life Care was featured in film festivals around the world and was the recipient of 10 prestigious film awards. You can connect with her via her website, Instagram, Twitter, LinkedIn, and Facebook. Things We Mention In This Episode Website: www.bkbooks.com  Books: End of Life Guidelines Series, by Barbara Karnes, RN DVD Kit: New Rules for End of Life Care by Barbara Karnes, RN Facebook Group: End of Life Care Book: Where Did You Go? by Christina Rasmussen Book: Second Firsts by Christina Rasmussen Newsletter - Message In a Bottle: Sign up for Christina’s weekly letter  Apple podcast reviews and ratings are really important to help get the podcast in front of more people to uplift and inspire them too, which is the ultimate goal. Thank you!

Edo Banach of NHPCO spends his days supporting hospice agencies in the U.S. Today he reminds us this season of uncertainty and isolation will pass, with better times ahead for the end of life industry. Edo believes hospice teams shine in times like this.  We’re built for care of patients and families when grief and hurt seem overwhelming.  He also acknowledges the post traumatic stress issues that healthcare workers are facing, and will continue to experience in the future.  Hospice professionals know what that’s like - it’s what we do on a daily basis.  Edo reminds end of life teams of their strengths, and encourages us to look past this time to a future when we’re all connected again.  Your agency can become a member of the National Hospice and Palliative Care Organization to access their numerous resources.  Just visit nhpco.org for membership information and current hospice news.  You’ll also find resources there for patients and families to use.  Need more information about hospice?  The Heart of Hospice is here 24/7 to help.  Visit our website at theheartofhospice.com.  No matter who you are - hospice provider, patient, family member -  we’re here to help.  You are The Heart of Hospice.   

Working as the Director of Quality and Compliance at NHPCO gives Missy Ring a unique perspective on hospice care.  Recalling her own field experience with patients, she reminds us to simply breathe during this stressful time.  Missy also tells us not to forget about the care of ourselves while we’re caring for seriously ill patients and their families.  Every discipline included in end of life teams is focused on providing quality care.  We need to give ourselves and our team members the same care.  This is what we do in hospice care - guiding people through hard times and grief.  Missy reminds leaders to take care of themselves, remembering that team members will take cues from leadership behavior.  You can connect with the resources that the National Hospice and Palliative Care Organization has to offer, including membership for hospice agencies, at nhpco.org. NHPCO also offers resources for personal caregivers and patients.  Find encouragement for your caregiving, whether it’s your job or simply a labor of love, at theheartofhospice.com.  We’re here to support you during your hospice journey.  You are The Heart of Hospice. 

It’s hard to talk about end-of-life care. You should do it anyway. Edo Banach, the President & CEO of the National Hospice and Palliative Care Organization, explains how to create an advance directive — and the best ways to approach the conversation with loved ones.

TAFP's Jonathan Nelson talks with Paul Tatum, MD, director of the Hospice and Palliative Medicine Fellowship at the University of Texas at Austin Dell Medical School. As the COVID-19 pandemic continues to spread through our communities, frontline physicians like family doctors find themselves having many difficult conversations with patients and their families. That would be tough on its own, but in this situation, all the relevant information seems to be constantly changing. The ability to have those conversations with compassion and comfort is a challenge in such stressful times. Dr. Tatum offers several resources for physicians and their staff members. Resources mentioned in the showVitalTalk: COVID Ready Communication Playbook VitalTalk is a group of communication specialists who collaborate to offer a communication guide for complex issues that can be shared with office staff, especially phone staff and nursing teams.CAPC COVID-19 Symptom Management Protocols The Center to Advance Palliative Care provides a wide COVID-19 resources. The one Dr. Tatum discusses most is the Symptom Management Protocols.NHPCO COVID-19 Shared Decision-Making Tool The National Hospice and Palliative Care Organization offers this tool to help physicians, patients, and their families discuss risk for seriously ill patients including conversations about advance directives.CPPCD ICU Shared Decision-Making Guide for Life Support The Colorado Program for Patient-Centered Decisions offers a decision aid for patients considering life support in the setting of critical resource shortages.PREPARE for Your Care Medical Planning Guide Among other resources, PREPARE for Your Care provides a COVID-19 advance care planning guide your office team can share with patients who can then complete the guide on their own.Advance Care Planning Conversation Guide The San Francisco VA health Care System Hospice and Palliative Care Service offers this guide for use with outpatients at high risk of developing COVID-19 complications.

On this episode of "Ask a Death Doula", I have the great pleasure of interviewing Barbara Karnes RN. Enjoy this lively discussion from this expert about "Pain at End of Life" - the title of her latest educational booklet. Barbara has insights and wisdom that every person can benefit from.   Barbara Karnes, RN, is an internationally recognized author, speaker, thought leader and expert on end of life care and the dynamics of dying. Barbara was recognized in 2018 as a Hospice Innovator by the National Hospice and Palliative Care Organization and was named the 2015 International Humanitarian Woman of the Year by the World Humanitarian Awards. Barbara’s experience as a hospice care provider at the bedside of hundreds of people, and as an administrator overseeing the care of thousands, led to the 1985 publication of Gone from My Sight: The Dying Experience. Affectionately referred to in the industry as the “little blue hospice book,” Gone from My Sight has sold over 25 million copies worldwide, is published in 12 languages, and remains the leading resource on the market today educating families on the signs of approaching death. Links Mentioned in This Episode Barbara Karnes Books End of Life Care Facebook Group Something-To-Think-About Blog

Edo Banach (@EdoBanach) is the President and CEO of the National Hospice and Palliative Care Organization. On this week's episode, he explains Medicare's hospice benefit, the difference between hospice and palliative care, and how accountable care organizations can better coordinate with these services.

It's hard to know which hospice agency will provide the best care for you or someone you love.  When you're having to hospice shop, using the Helpline from the National Hospice and Palliative Care Organization is a great way to find an agency in your area.  The NHPCO website can help you ask the right questions to partner with an agency that will be a good fit. Read more about finding a hospice agency that's right for you at https://www.nhpco.org/patients-and-caregivers/about-hospice-care/choosing-a-hospice/ or calling 1-800-568-8898.  The Heart of Hospice website has more resources for you, including information on advance care planning, self care, and hospice care 101.  Email your questions to us at host@theheartofhospice.com - we'll be sure to send a personal reply.  No matter who you are, or where you are in your hospice journey, you are The Heart of Hospice.

Meet Dr. Jennifer Kennedy, Senior Director of Regulatory and Quality for the National Hospice and Palliative Care Organization!  Jennifer sat down with Helen and Jerry to share her hospice journey, and talk about what we're doing right in end of life care. According to her bio on the NHPCO website, Jennifer has “more than 30 years of diverse healthcare experience with consistently increasing responsibilities in management, education program development, program operation, staff development, continuous quality improvement, regulatory compliance, utilization management, outcomes analysis, public speaking, and program development and implementation. Jennifer has earned a BSN, a duel Master in Case Management and Health Counseling, and a doctoral degree in healthcare education and policy.”  We were honored to hear how Jennifer got her start in hospice, and what she thinks the future looks like for end of life care.  Her passion and dedication to hospice is amazing! Find more about the work of NHPCO at nhpco.org.  You can learn more about The Heart of Hospice and how Jerry and Helen got started in hospice at theheartofhospice.com.  If you'd like to share your hospice journey with us, write us at host@theheartofhospice.com.  We'd love to hear from you - you are The Heart of Hospice! 

Episode Summary:   We have all experienced the loss of loved ones, and if you haven’t, you will, because death happens to all of us. If you have ever had a friend or loved one who is terminally ill or referred to hospice care at the end of their life, or wondered about hospice and what they do, then today is the perfect show for you.   In this episode, I’m talking with my friend, Shelley Sisson, a retired hospice and palliative care nurse. Shelley shares what hospice care entails, when it is utilized, and how to die well. She shares that the end of life is like standing on holy ground, and although it can be painful to watch a friend or loved one with a terminal illness die, that we can catch glimpses of heavenly treasures if we will look for them.   When a terminally ill patient has been referred for hospice care, the goal is symptom management and to keep them as comfortable as possible during whatever time they have left. Hospice has a team that works together to provide medication management, self-care, chaplain services, as well as patient and family education to help the family best support their loved one at the end of their life.   Shelley shares how we can best support a friend or loved one with a terminal illness receiving hospice care, as well as how we can support their grieving loved ones.  Death is inevitable for all of us, but we can take the opportunity to die well.     Quotables from the episode:   Today we’re going to be talking about hope in the midst of loving someone with a terminal illness. If you have ever had a friend or loved one who is terminally ill and referred to hospice care, or wondered about hospice and what they do, then today is the perfect show for you. It’s crucial that at the end of life, we learn how to die well. Hospice is medical care that can be provided once a doctor has said that there is nothing else that can be done to cure a condition. Hospice provides care and comfort measures, to address symptoms, and to keep the patient comfortable in their final days. Hospice care is usually provided for the last few days to months of a terminally ill patient’s life. If you or your loved one are not clicking with your hospice team, there are other teams available, and it’s okay to ask to be transferred to work with another team that might be a better fit. Hospice helps provide support for administering medications, self-care for the patient, and trains the family to be able to best support their loved one. There is always a last dose of medication. Someone has to administer the last dose. But it is not the last dose that has caused them to die. It is not something to feel guilty about. Don’t exclude your children from the dying process. They tend to handle it better than adults do. But if you don’t include them, they will be prone to believe lies rather than the truth about the situation, and those lies can haunt them into adulthood. Please don’t tell your little children that the patient went to sleep, because everyone goes to sleep every night, but that can cause fear that they will go to sleep and never wake up. Tell them the truth. Look for Jesus. He promised that He will never leave us or forsake us. He is there in the room with your loved one. If they are staring at someone, ask them what they see. If a patient indicates they are seeing something, encourage them to ask. God gives them glimpses of heaven to prepare them to leave this world and enter the next world. The only struggle they have is leaving this world and leaving their family members behind. It’s okay to cry. Tears are liquid prayers. Some of the signs and signals that we can see if we look for them, are God’s way of comforting them so they are not afraid of leaving this world. But patients and their loved ones often experience fear at the thought of death. But God is not going to let them go through this alone. Tell your friend or loved one that you love them, that you will miss them, but that will be okay. Patients often hold on longer because they fear their loved ones won’t be okay in their absence. Sometimes there are no words. Sometimes words aren’t necessary, but your presence always matters. Don’t be afraid to laugh—laughter is good medicine. To the loved ones of a terminally ill patient, let them know that you are going to be there for them. Let them know that their feelings are normal, and that what they are going through is normal. Let them know that there is no time span cut off for grief. Share your fond memories of them and their loved ones. A new normal will develop although it doesn’t happen quickly. Nothing seems normal anymore, but that will change over time. The intense grief will lessen, but you will still miss your loved one. Even Jesus wept when Lazarus died, which gives us permission to grieve. If you are mourning or grieving, it is not a lack of faith. It just attests to how much you love them, and how much it hurts to go on without them. It’s a hard battle in your own soul to know that they will be better off, even if it means you have to let go. To the one with a terminal illness, take every moment to love on your loved ones that you have. Even with a terminal illness, it can be a blessing to give you a chance to make amends. Love them. Know that Jesus is with you. He is going to be with you in this process and be with you on the other side. To the loved ones of terminally ill patients, if you are both believers, you will see your loved one again. It’s hard, but you will see them again. God is faithful—He will mend your heart. He won’t erase your memories, but He will mend your heart. Not even death can separate us from the love of God.   Scripture References:   Deuteronomy 31:6 “So be strong and courageous! Do not be afraid and do not panic before them. For the Lord your God will personally go ahead of you. He will neither fail you nor abandon you.” Joshua 1:9, “This is my command—be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.” Romans 8:38-39 says “And I am convinced that nothing can ever separate us from God’s love. Neither death nor life, neither angels nor demons, neither our fears for today nor our worries about tomorrow—not even the powers of hell can separate us from God’s love. No power in the sky above or in the earth below—indeed, nothing in all creation will ever be able to separate us from the love of God that is revealed in Christ Jesus our Lord.” Zephaniah 3:17 says, “For the Lord your God is living among you. He is a mighty savior. He will take delight in you with gladness. With his love, he will calm all your fears. He will rejoice over you with joyful songs.”   Recommended Resources:   Crossing the Creek: A Practical Guide to Understanding the Dying Process by Michael Holmes (no amazon link) Living at the End of Life: A Hospice Nurse Addresses the Most Common Questions by Karen Whitley Bell, RN https://amzn.to/32qeqPA Changing the Way We Die: Compassionate End of Life Care and The Hospice Movement by Fran Smith, Sheila Himmel, and Joan Halifax https://amzn.to/32nlyfq https://drmichellebengtson.com/practical-grace-how-to-not-be-friend-to-someone-with-cancer-part-1/ https://drmichellebengtson.com/practical-grace-what-not-to-say-to-someone-with-cancer-part-2/ https://drmichellebengtson.com/practical-grace-how-to-be-friend-to-someone-with-cancer-part-3/ https://drmichellebengtson.com/how-to-support-someone-with-cancer/ “Hope Prevails: Insights from a Doctor’s Personal Journey Through Depression” by Dr. Michelle Bengtson, winner of the Christian Literary Award Reader’s Choice Award https://amzn.to/2zB0e7J “Hope Prevails Bible Study” by Dr. Michelle Bengtson, winner of the Christian Literary Award Reader’s Choice Award https://amzn.to/2yMdN46     Social Media Links for Host and Guest:   National Hospice and Palliative Care Organization: https://www.nhpco.org/   For more hope, stay connected with Dr. Bengtson at:   To order Hope Prevails: https://drmichellebengtson.com/hope-prevails-book/ Website: https://drmichellebengtson.com/ Blog: https://drmichellebengtson.com/blog/ Facebook: https://www.facebook.com/DrMichelleBengtson Twitter: https://twitter.com/DrMBengtson (@DrMBengtson) LinkedIn: https://www.linkedin.com/in/drmichellebengtson/ Instagram: https://www.instagram.com/drmichellebengtson/ Pinterest: https://www.pinterest.com/drbhopeprevails/ YouTube: https://www.youtube.com/c/MichelleBengtson Radio Show Host: http://graceandtruthradio.world/shows/your-hope-filled-perspective/   Air Date: July 8, 2019   Guest: Shelley Sisson, retired hospice and palliative care nurse Shelley was a Certified Hospice and Palliative Care Nurse for 12 years and worked all over the United States, but mostly in Oklahoma and Central Texas. She retired and moved back to Oklahoma. She still has a passion for all things hospice and what it provides to patients and their families.   Hosted By: Dr. Michelle Bengtson Audio Technical Support: Bryce Bengtson  

Cooper and Nicole welcome Jennifer Kennedy, Senior Director of Regulatory and Quality at the National Hospice and Palliative Care Organization, for a chat on the future of hospice and palliative care. 

Ian Barry, better known as Poods to his friends, was an extremely gifted athlete that found meditation in movement, an unconditionally kind and creative soul that lived by his words “keep doing your thing and keep being who you are”. On September 27 2012, Ian passed away at 22 years old when he accidentally fell from a bluff. Although it is important to know that his death was an accident and that he was in his element being one with nature (adhering to another one of his mantras – less technology and more nature), Ian’s death is not the focus of this conversation and podcast episode. This is a discussion about living….about how Ian lived so fully and how his parents John and Ali and younger sister Kiva continue to live while they process the grief of losing their only son and brother. Ian was VERY special and made people that he came to know feel like their “best friend”. He had a quiet, humble, disarming charm combined with an attitude of accepting everyone for exactly who they were without judgment. He truly made you feel better when you were around him. According to his family and friends, his personal struggles simply made him more compassionate and accepting. Ian always tried to see the good in people but never understood acts of unkindness. This is a story about how Ian’s family channeled his spirit into healing energy for the LARGE community of people he touched also grieving the loss of a friend and special soul. This is a story that is infinite and very much ALIVE. This light from Ian’s heart center, that has been stoked and kept alive by his family and community, has lit and fueled the Rollin’ From The Heart Foundation. It is all summed up in their mission statement: Providing disadvantaged and at-risk youth the opportunity to participate in skateboarding, surfing and camping in an effort to promote a more active lifestyle and encourage positive choices. By teaming with peer/mentors that share our values of kindness, compassion and acceptance we strive to instill confidence in those we serve so that they can overcome personal barriers regardless of their economic, social or mental health status. It's pretty simple really – be kind, be yourself and have fun. This organization provides toolboxes and beams light on the futures of infinite young lives. THIS is a vital, living and moving memorial. This is the story of channeling challenges into positivity that provides us all with hope rollin’ into the future! Learn more: www.rollinfromtheheart.org and follow @rollinfromtheheart on Instagram for daily doses of smiles and feel goods Woody Gutherie song “So Long It’s Been Good To Know You” ( one of Ian’s all time favorites) performed and recorded for this podcast by singer/songwriter John Finkbiner. John is an acclaimed and talented musician and visual artist is a native of Southern California, also with roots in Nashville, TN, and currently lives in Leucadia, CA. Check all his projects out at @johnfinkbinerart on Instagram If you or someone you know is in need of grief support or resources call your local Hospice! For Hospice resources visit The National Hospice and Palliative Care Organization: https://www.nhpco.org/ Rollin’ From The Heart supporters are mentioned in the podcast.  To see all their partners visit rollinfromtheheart.org. Brixton: www.brixton.com Vans: www.vans.com  

Episode Description: In this episode, some of the most common myths and misconceptions about hospice and palliative care are explored and explained. Tune in to learn the history of hospice, how to qualify for hospice, what services/supports are available from hospice, and much more.   Show Description:  Join your hosts, Jenni Brennan, LICSW and Josh Brennan, CTBS, and explore a variety of topics including grief, parenting, health and wellness, and relationships.    Show Notes: Hospice Foundation of America: https://hospicefoundation.org/About-HFA   National Hospice and Palliative Care Organization: https://www.nhpco.org/   The H Word: http://www.jennibrennan.com/changing-perspectives/the-h-word

This week on "Ask a Death Doula" my guest is Deanna Cochran RN. Deanna Cochran, is a hospice RN since 2000. She is Founder and CEO of Quality of Life Care since 2005 and has been a palliative care educator, end of life doula in private practice, and creator and trainer of her signature program: Accompanying the Dying: A Practical Guide and Awareness Training, the first Certificate program of its kind in 2010. She is one of the earliest voices in the end of life doula movement and is presently honored to serve as Chair of the newly formed End of Life Doula Advisory Council within the National Hospice and Palliative Care Organization and is a founding member and was 1st Vice President of the National End of Life Doula Alliance. She believes in unity in this grassroots death positive movement and contributes all she can to special projects with others. Her latest is The National Certificate for End-of-Life Doula Hospice Programs (NCEHP) where she is a partner with Suzanne O’Brien, RN. Together they are presenting hospice organizations with an end-of-life doula program development template complete with all full training to create their own unique hospice doula program. She is the author of the book: Accompanying the Dying: Practical, Heart-Centered Wisdom for End-of-Life Doulas and Healthcare Advocates.   Her new book “Accompanying the Dying: Practical, Heart-Centered Wisdom for End-of-Life Doulas and Healthcare Advocates” is out TODAY. You can download it for free today, February 19th until 6pm ET. To Download the FREE book HERE: http://amzn.com/0989659356   “The book is ideal for the go-to person who is always the one helping everyone in illness, through dying, through crises of life. These people are the salt of the earth, they are the ones who are coming forward as the newly emerging role of the end-of-life doula, wanting to empower others through a serious illness. The book is meant to educate and inspire us to accompany each other through dying well in this modern age. It will save you countless hours of research and enhance your confidence and guide you through every stage of empowering your friends, family, and community.”   FREE DOULA TRAININGIf you're a family caregiver, community volunteer, or are interested in becoming a Certified End of Life Doula Practitioner, follow the link below to join Suzanne for her FREE Introductory End-of-Life Doula Training!   For More Information on this free Doula Training Click Here: http://freetraining.doulagivers.com/   OR   Learn how to give the gift of Peace of Mind at the End of Life to yourself and your family members by signing up for Suzanne's Peace of Mind Planner course! Follow the link below to learn about the five keys to achieving Peace of Mind at the End of Life.   For More Information on The Peace of Mind Planner Click Here: https://planner.doulagivers.com/about

Since her book, Bridging the Gap, was published on April 13th, 2018, Kimberly is on to her next adventure of speaking throughout the United States. But she is doing it a little differently than anyone expected. In June 2018, she bought an RV, downsized her belongings and hit the road with her German Shepherd, Haven. Kimberly has named her adventure the “Live Well Die Well Tour” because she states, “The more I talk about death, the more boldly I feel I’m living life to the fullest.”The tour jump started in Ohio alongside her ex-boyfriend’s parents (the boy who lost his life to cancer over 18 years ago). Kimberly states, “It was a way to put meaning into the beginning of the tour – to make sure it is always personal.” Now she is making her way through every state, with exception of Hawaii, to connect with people and communities, sign books and share how she learned to live life boldly at the bedside of hospice patients.The Live Well Die Well tour is supported by over 20 sponsors including Cabot Cheese, My Last Soundtrack, Amedisys Hospice, INEDLA, National Hospice and Palliative Care Organization, POLST Paradigm and many more who support community education in an effort to empower individuals to reclaim death as a human experience and not a medical event. See acast.com/privacy for privacy and opt-out information.

Judi Lund Person - National Hospice and Palliative Care Organization by Resources For Integrated Care

Are You Interested In How Whole Person Care Can Help Us With Pain And Dying? Do You Work With Others In Pain And Find Yourself Burned Out? Want To Learn How Diana And Yael Practice Self Care As Therapists? Join Us For And Interview With Palliative Care Physician Dr. Michael Kearney!  In this episode, Diana interviews Dr. Michael Kearney, a palliative care physician who takes an interpersonal, integrative approach to healing. Dr. Kearney shares with us how he has had to learn to "breathe underwater" and allow pain to move through him, and discusses his new book: The Nest in the Stream.  Michael Kearney MD  trained at St Christopher’s Hospice in London with Dame Cicely Saunders, pioneer of the modern hospice movement.  He later returned to his Ireland as medical director at Our Lady’s Hospice in Dublin.  In the early 2000’s he moved to North America, and now lives and works in Santa Barbara, California.  Throughout his career, Michael has been interested in whole person care and approaches that combine medical treatment with the innate healing potential of body, soul, and spirit.  He draws on depth psychology, mythology, Buddhist philosophy, indigenous wisdom and Earth-based spirituality. Michael has published three books, Mortally Wounded: Stories of Soul Pain, Death, and Healing, and, A Place of Healing: Working with Nature and Soul at the End of Life, as well as many articles and chapters. His most recent book, The Nest in the Stream: Lessons from Nature on Being with Pain, offers a way of being with pain and suffering that is infused with mindfulness, nature connection, openness, and compassion. Michael is married to psychologist, meditation teacher, and author Radhule Weininger, Ph.D. They teach and write together and share six adult children between them.  Resources: Dr. Micheal Kearney's website Image of the Nest in the Stream The Nest in the Stream: Lessons from Nature on Being with Pain Listen to meditations with Dr. Michael Kearney Palliative Care Consultants of Santa Barbara National Hospice and Palliative Care Organization

The National Hospice and Palliative care Organization (NHPCO) has selected Edo Bannach, JD, as it next president and chief executive officer. Edo succeeds J. Donald Schumacher, PsyD, who has led the organization since 2002.As a partner in the firm of Gallagher, Evelius & Jones in Baltimore, Edo previously served as deputy director of the Medicare-Medicaid coordination Office at the Center for Medicare & Medicaid Services (CMS) and associate general counsel at the Visiting Nurse Service of New York. Edo holds a B.A. from Binghamton University and a J.D. from the University of Pennsylvania Law School. Prior to attending law school Edo worked for the New York City Department of Homeless Services and Mayor’s Office of Operations.“With the aging of the Baby-Boomers, our nation is experiencing an increase in the need for hospice and palliative care services.” Edo states. “What began 50 years ago as a grassroots movement to better care for the dying is now an integral part of the U.S. health care landscape and the expansion of community –based palliative care services provides further opportunities to ensure we are providing the best possible care for those facing serious and life-limiting illness.”National Hospice & Palliative Care Organization is the oldest and largest membership association working on behalf of hospice and palliative care providers and professionals in the U.S. See acast.com/privacy for privacy and opt-out information.

Heather Stang is a thanatologist, mindfulness speaker, and author of the grief book Mindfulness & Grief: With Guided Meditations To Calm Your Mind & Restore Your Spirit. She is best known for using present moment awareness to relieve suffering, cope with and eventually reengage with life after loss. Her focus on teaching others to use mindfulness-based techniques to reduce stress, cope with grief, and cultivate personal growth is inspired by her own journey of love, loss and posttraumatic growth.Heather discovered yoga and mindfulness while she was the CEO of a web development company and diagnosed with a stress-related illness. These contemplative practices inspired Heather to live a life in service to others, and she became a suicide/crisis hotline call specialist in honor of her uncle who died by suicide when she was a child.She relied on her mindfulness training to maintain a calm and compassionate attitude both on the job and at home after difficult shifts. Additionally, Heather volunteered as a trainer and call specialist on the New Orleans hotline just weeks after Hurricane Katrina devastated the region, and was a research assistant for a NIMH funded National Suicide Prevention Lifeline Research Project. This experience inspired her to pursue a Masters in Thanatology (Death, Dying & Bereavement Expert) from Hood College, which she earned in 2010.Struck by the parallels between mindfulness, yoga, and contemporary theories of grief, which focuses on the individual’s direct experience of loss and the benefits of meaning making and posttraumatic growth, Heather developed a “Yoga for Grief” course: an 8-week program uniting yoga, meditation, journaling, expressive arts and death education. Today, that course is captured in her book, Mindfulness & Grief, and is offered by yoga, meditation, and grief professionals in North America in a variety of venues.Heather is a public and keynote speaker, presenting for organizations such as the Tragedy Assistance Program for Survivors (for military families), Association of Death Education and Counseling, the National Hospice and Palliative Care Organization, the National Fallen Firefighter’s Foundation, and the Maryland Library Association. In addition to Mindfulness & Grief, she contributed three chapters to the volume Techniques of Grief Therapy: Assessment & Intervention (Neimeyer, 2015).Heather lives on South Mountain overlooking Maryland’s Middletown valley with her husband, and is the founder of the Frederick Meditation Center where she is a Phoenix Rising Yoga Therapist and mindfulness meditation instructor.Learn more at heatherstang.com and mindfulnessandgrief.com. ​

Heather Stang is a thanatologist, mindfulness speaker, and author of the grief book Mindfulness & Grief: With Guided Meditations To Calm Your Mind & Restore Your Spirit. She is best known for using present moment awareness to relieve suffering, cope with and eventually reengage with life after loss. Her focus on teaching others to use mindfulness-based techniques to reduce stress, cope with grief, and cultivate personal growth is inspired by her own journey of love, loss and posttraumatic growth.Heather discovered yoga and mindfulness while she was the CEO of a web development company and diagnosed with a stress-related illness. These contemplative practices inspired Heather to live a life in service to others, and she became a suicide/crisis hotline call specialist in honor of her uncle who died by suicide when she was a child.She relied on her mindfulness training to maintain a calm and compassionate attitude both on the job and at home after difficult shifts. Additionally, Heather volunteered as a trainer and call specialist on the New Orleans hotline just weeks after Hurricane Katrina devastated the region, and was a research assistant for a NIMH funded National Suicide Prevention Lifeline Research Project. This experience inspired her to pursue a Masters in Thanatology (Death, Dying & Bereavement Expert) from Hood College, which she earned in 2010.Struck by the parallels between mindfulness, yoga, and contemporary theories of grief, which focuses on the individual’s direct experience of loss and the benefits of meaning making and posttraumatic growth, Heather developed a “Yoga for Grief” course: an 8-week program uniting yoga, meditation, journaling, expressive arts and death education. Today, that course is captured in her book, Mindfulness & Grief, and is offered by yoga, meditation, and grief professionals in North America in a variety of venues.Heather is a public and keynote speaker, presenting for organizations such as the Tragedy Assistance Program for Survivors (for military families), Association of Death Education and Counseling, the National Hospice and Palliative Care Organization, the National Fallen Firefighter’s Foundation, and the Maryland Library Association. In addition to Mindfulness & Grief, she contributed three chapters to the volume Techniques of Grief Therapy: Assessment & Intervention (Neimeyer, 2015).Heather lives on South Mountain overlooking Maryland’s Middletown valley with her husband, and is the founder of the Frederick Meditation Center where she is a Phoenix Rising Yoga Therapist and mindfulness meditation instructor.Learn more at heatherstang.com and mindfulnessandgrief.com.

 Zoë A Lewis, MD, is a Internist and Hospice and Palliative Medicine specialist. She is an internationally recognized author and speaker on Alzheimer’s disease and care giving for those with a serious illness. Her books, “I hope they know….The Essential Handbook on Alzheimer’s Disease and Care,” and the spanish translation are recognized by the National Alzheimer’s Association and National Hospice and Palliative Care Organization .  She was the producer and host of blogtalkradio’s Hope Through Knowledge with Zoë A. Lewis, M.D., Talk Radio For Caregivers, with her first show airing in 2008. She is going into her 5th year of programs dedicated to caregivers. Dr. Lewis is an elected fellow to the American College of Physicians, and a Diplomat of the American Academy of Hospice and Palliative Medicine. She is a former Harvard Medical School Clinical Instructor of Medicine. Her dedicated website: zoealewis.com promotes education for end-of-life issues using the principle hope through knowledge, and encourages the dissemination of information to practitioners and families of those with a dementing illnesses. Currently she is an independent acute care hospitalist on assignment in Lawrence, Massachusetts. She has medical license to practice in Massachusetts, Florida and Pennsylvania.

The April 12, 2016 Boomer Generation Radio program includes interviews with Dr. Judith Curtin, AuD, CCC A/SLP, an audiologist with ABC Hearing in Philadelphia, PA, and Dr. Stephen Goldfine, chief medical officer of Samaritan Healthcare and Hospice in Marlton, NJ. [spp-player] About the Guests Judith A. Curtin, AuD, CCC A/SLP Judith A. Curtin , AuD , CCC A/SLP – Dr. Curtin is a AAA Board Certified audiologist and a ASHA certified speech pathologist. Dr. Curtin is a AAA Board Certified audiologist and a ASHA certified speech pathologist. She has practiced aural habilitation /rehabilitation audiology for over 30 years. She was awarded her Doctor of Audiology from the University of Florida in December of 2006. Dr. Curtin is a renowned innovator in audiology being one of the first to implement a comprehensive, integrative audiology program focused on training an older person. The program ensures maximum benefits from the hearing aids and develops listening strategies. Her research and expertise resulted in Manhattan Eye And Ear receiving FDA approval to implant a congenitally deaf child in the mid 1980′s. Dr. Curtin understands that “no man is an island”. ABC Hearing clients are treated, their family is supported, and their community is offered training and workshops. At the state and national level, she shares her knowledge organizing educational courses. She is involved in either lobbying for legislative change or advocacy work regarding the needs of the hearing impaired. Her training, research, and publications are known locally, nationally and internationally. She is recognized for her extensive continuing education program by the American Academy of Audiology by earning the “Scholar” award for 2003-4. And she has received the distinguished ACE awards from the American Speech and Language Association for two consecutive years, 2004 and 2005. Dr. Curtin is a faculty member of West Chester University since 2000 and formerly its Hearing Clinic Coordinator. She guests lectures at other similar institutions. She is a former Chair for Hearing and Hearing Disorders in Childhood for the American Speech, Language and Hearing Association. Dr. Stephen Goldfine, MD, DABFP, CAQGM, DABHPM Stephen Goldfine, MD, DABFP, CAQGM, DABHPMChief Medical Officer, Samaritan Healthcare and Hospice Dr. Stephen Goldfine, MD, DABFP, CAQGM, DABHPM,  is the full-time Chief Medical Officer for Samaritan Healthcare & Hospice and serves as a liaison between Samaritan and the medical community.  Dr. Goldfine graduated from Emory University, Atlanta, and received his medical doctorate from Temple University School of Medicine in Philadelphia. He completed a family practice residency program at Virtua Hospital in Mt. Holly and is board certified by the American Board of Family Practice with added qualifications in geriatrics and from the American Board of Hospice and Palliative Medicine. In 2009, Dr. Goldfine was named Hospice Physician of the Year by the New Jersey Hospice and Palliative Care Organization. He gained end-of-life experience from his practice at Primary Care of Moorestown and as Medical Director at several area rehabilitation facilities including Virtua Rehabilitation Center at Mt. Holly, the Lutheran Home of Moorestown and Moorestown Estates. Boomer Generation Radio is sponsored in part by Kendal Corporation, a Quaker-based provider of continuing care retirement communities in the Northeast and Midwest, airs on WWDB-AM 860 every Tuesday at 10 a.m., and features news and conversation aimed at Baby Boomers and the issues facing them as members of what Rabbi Address calls “the club sandwich generation.” You can hear the show live on AM 860, or streamed live from the WWDB website. Subscribe to the RSS feed for Boomer Generation Radio podcasts.   Subscribe to the RSS feed for all Jewish Sacred Aging podcasts.   Subscribe to these podcasts in the Apple iTunes Music Store.  

Dianne Gray is the bereaved parent of Austin, and President and founder of Hospice and Healthcare Communications and the Elisabeth Kübler-Ross Foundation.  She is a nationally recognized speaker, and award-winning writer.  She serves on the boards of International Children's Palliative Care Network, the National Hospice and Palliative Care Organization and the American Academy of Pediatrics Hospice and Palliative Medicine's Parent Advisory Group.

Dr. Stephen Goldfine, chief medical officer of Samaritan Healthcare and Hospice in South Jersey, is Rabbi Address' guest on the January 21, 2014 episode of Boomer Generation Radio. Stephen Goldfine, MD, DABFP, CAQGM, DABHPM Dr. Stephen Goldfine, MD, DABFP, CAQGM, DABHPM,  is the full-time Chief Medical Officer for Samaritan Healthcare & Hospice and serves as a liaison between Samaritan and the medical community.  Dr. Goldfine graduated from Emory University, Atlanta, and received his medical doctorate from Temple University School of Medicine in Philadelphia. He completed a family practice residency program at Virtua Hospital in Mt. Holly and is board certified by the American Board of Family Practice with added qualifications in geriatrics and from the American Board of Hospice and Palliative Medicine. In 2009, Dr. Goldfine was named Hospice Physician of the Year by the New Jersey Hospice and Palliative Care Organization. He gained end-of-life experience from his practice at Primary Care of Moorestown and as Medical Director at several area rehabilitation facilities including Virtua Rehabilitation Center at Mt. Holly, the Lutheran Home of Moorestown and Moorestown Estates. Boomer Generation Radio airs on WWDB-AM 860 every Tuesday at 10 a.m., and features news and conversation aimed at Baby Boomers and the issues facing them as members of what Rabbi Address calls “the club sandwich generation.” You can hear the show live on AM 860, or streamed live from the WWDB website.   Subscribe to the RSS feed for all Jewish Sacred Aging podcasts. Subscribe to these podcasts in the Apple iTunes Music Store.

The National Hospice and Palliative Care Organization reported that in 2011 over a million and a half people utilized hospice services in the United States. In this podcast, Dr. Dona Reese talks about the lack of utilization of hospice care by African American patients. This includes identifying variables that influence African American hospice use. One of those barriers is the almost complete absence of African American staff or volunteers in hospices across the nation. Dr. Reese describes a field placement and community intervention project that was a successful first step in accomplishing the goal of increasing African American staff. Additionally, she offers her thoughts on what must be done to expand the number of African American social work professionals in hospice settings.

Guest: Bill Colby, JD Host: Susan Dolan, RN, JD Hear attorney Bill Colby, National Fellow with the National Hospice and Palliative Care Organization and author of Unplugged: Reclaiming Our Right to Die in America, as he discusses what healthcare issues the Baby Boomers will face at the end-of-life.

Guest: Stacy Orloff, EdD Host: Susan Dolan, RN, JD Dr. Stacy Orloff, co-chair of the Children's Project on Palliative Hospice Services (ChiPPS), a program of the National Hospice and Palliative Care Organization discusses how ChiPPS improves palliative and hospice care for children.

Guest: Perry Fine, MD Host: Susan Dolan, RN, JD Join Dr. Perry Fine, Senior Fellow with the National Hospice and Palliative Care Organization as he explains the benefits of Open Access Hospice.

Guest: Perry Fine, MD Host: Susan Dolan, RN, JD Join Dr. Perry Fine, Senior Fellow with the National Hospice and Palliative Care Organization, as he offers physicians a simple way to determine when a patient with nonmalignant disease is eligible for hospice care.

Guest: Donald Schumacher, PsyD Host: Susan Dolan, RN, JD Hear Dr. J. Donald Schumacher, President and CEO of the National Hospice and Palliative Care Organization as he discusses end of life care for the Baby Boomers.

Guest: Donald Schumacher, PsyD Host: Susan Dolan, RN, JD Hear Dr. J. Donald Schumacher, President and CEO of the National Hospice and Palliative Care Organization as he discusses Pediatric Hospice.

Like all patients, military veterans bring their unique experiences and backgrounds with them as they navigate medical and end-of-life care. At Mayo Clinic, programs are in place to honor military service and care for veterans.Mayo Clinic Hospice is a partner of the We Honor Veterans Program run by the National Hospice and Palliative Care Organization. The Hospice team provides the high level of medical, emotional, spiritual and social care that those who have served in the U.S. armed forces deserve. Team members recognize and honor the hospice patient's military service with a veteran pinning ceremony. Ceremonies are provided after approval by the patient and family and can include anyone whom the military member and family would like to participate, along with the hospice team.“It's just a small, simple way of saying thank you to a veteran,” says Loren Olson, a chaplain with Mayo Clinic Hospice. “We bring a pillowcase that represents their branch of the service and a small pin that they could put on a lapel, or a lot of them put them on their military hats. We bring a coin and a certificate from Mayo Clinic expressing our appreciation and we invite them to share their experiences in the military.”Building on the We Honor Veterans program, Charlie Hall, a Mayo Clinic security operations supervisor, helped develop a "Final Honor Walk" for deceased veterans at his Mayo Clinic Health System location in La Crosse, Wisconsin.Hall served in the Army as an active-duty rifleman with a combat tour to the Balkans and as a paratrooper with close to 100 military parachute jumps. In addition to his role as a security supervisor, Hall and his team in La Crosse meet with families of deceased veterans to arrange a “Final Honor Walk," where family and staff line the hallway to honor veterans while they are moved out of the hospital room in a flagged-draped cart. “The final honor walk is something that I wanted to develop,” explains Hall. “I had worked with the We Honor Veterans program in Rochester, with hospice, and the near-end-of-life things with veterans, all the great things they do there. I had the privilege of doing that, but I saw us being able to do a little bit more in an inpatient setting.” In addition to care at the end of life, it's important to acknowledge the unique needs of veterans every day in the clinical setting. Issues including post-traumatic stress disorder (PTSD) and substance use disorders are more common among veterans than the general population, and they often go hand in hand. More than 2 in 10 veterans with PTSD also have a substance use disorder, according to the U.S. Department of Veterans Affairs. “If a veteran is wearing a hat that signifies their veteran's status if you will, that to me is the OK to come up and thank them for their service,” says Hall. “And I do that routinely here. It's usually a surprise to the veteran. They're usually extremely grateful. Probably the No. 1 thing is to acknowledge them. It's so important to make people feel at ease when care is coming, especially when there are some complex situations with medical care. There are some very sensitive conversations that have to happen. We all know that happens so much easier when we have great rapport with our patients.”“Honoring veterans is part of the culture at Mayo Clinic, at least in my experience,” says Olson. “One of the first things I learned as I came to work the hospice program was that We Honor Veterans partnership with the Veterans Administration is important to us. We want to spend time honoring our veterans. So I do think we have developed a corporate culture that just helps us to think of the specific needs of our veterans.” On this special Veterans Day edition of the Mayo Clinic Q&A podcast, Olson and Hall join host, Dr. Halena Gazelka, for a conversation on caring for veterans. Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy