Podcasts about chronically ill

Have you ever wondered how to enhance your psychic abilities? Do you feel guilt for avoiding your magical practice? Do you struggle to channel intense emotions?Sarah's mailbag is overflowing with questions from her glorious patrons, and in this episode she dedicates some time to answering them. She shares the discovery of her psychic gifts, why she doesn't want to channel the dead, and how her magical practice changed when she became chronically ill. She also explores the role of consent in accessing guides, and the best methods of harnessing emotional and energetic intelligence to channel intense feelings skilfully.You'll learn:How to unlock your psychic giftsHow to reinvigorate your magical practice when you're lacking energyHow to effectively channel your energyWhy you should stop comparing your present self to past versions of youHow to effectively release frustrationIf you feel a block in your practice, this episode is for you.You can check out the Moon Studio Patreon here.Listen to Sarah on Living in this Queer Body, Asher Pandjiris' podcast, here.Listen to Moonbeaming episode 179, How to Use Your Spiritual Gifts: Sarah's Origin Story, here.MOON STUDIO WORKSHOP LINKSFuture Self Workshop.Our Hermit Year.Mystic Vision Workshop.Join the Moon Studio Patreon.Buy the 2025 Many Moons Lunar Planner.Subscribe to our newsletter.Find Sarah on Instagram.

Dawn E. Shedrick, LCSW is the Current NASW-NYS Suffolk Division Director. She is a clinical social worker, consultant, educator, and writer whose work focuses on the health and wellbeing of family caregivers, trauma survivors, and queer people. She is the founder and principal consultant of JenTex Training & Consulting, a continuing education and professional development firm for health and human services professionals. Dawn weaves her extensive experiences as her mother's primary caregiver since 1996. She is a mental health practitioner, trainer, educator, and holistic healer who creates experiences and tools for caregivers to heal from stress and burnout. She also helps health and human services professionals develop the skills to support them in their healing.  On October 31, 2024 NPR (highlighted her experience in a full feature article detailing her personal journey as her mother's primary caregiver. (https://bit.ly/3ZSli6T)  She is also the author of Courageous Contemplation: A Guided Journal for Family CareGivers of Chronically Ill, Disabled, and Elderly Loved Ones. Here reputation as a Subject Matter Expert on the personal joys and challenges of caregiving was skillfully detailed in the online publication “Sisters of AARP”. (https://www.sistersletter.com/author/dawn-e-shedrick-lcsw)

Click here for the WORKSHEET for this episodeCLICK HERE to sign up for our Reclaiming Intimacy: A Workshop for Bodies in Pain this Saturday Feb 22nd 2025 at 10:30am ESTDisclaimer: Everything we talk about here is just meant to be general education and information. It's not intended as personal mental health or medical advice. If you have any questions related to your unique circumstances, please contact a licensed therapist or medical professional in your state of residence.

How do you support a friend with a chronic illness? Do you have a chronic illness and are wondering how to create more support and transparency? In this episode, Sarah meets with close friend Brooke Manning to discuss the ingredients of a nurturing, long-lasting friendship. Brooke explores the crossover between death and friendships, and how both require vulnerability, curiosity, and acceptance. This conversation will help support you in navigating relationships and change.In this episode you'll learnHow to authentically nurture your friendshipsWays to support chronically ill friendsHow to identify your boundaries in friendshipsWhat accepting death can gift usHow to begin a death practiceIf you want to invest in relationships and community more in 2025, while still taking care of yourself, and open to the gifts of change and endings, this intimate conversation is for you.We'll be creating a special in-person event together in Los Angeles February 15th, sign up here.About Brooke: Based in Toronto, Brooke is a queer, polyamorous, polytheistic pagan, artist, musician, poet, clinical hypnotherapist and death doula. Brooke facilitates monthly death-positive workshops and is currently studying Psychotherapy at the Gestalt Institute of Toronto.Check out Brooke's website here.Follow Brooke's Instagram here.MOON STUDIO WORKSHOP LINKSRitual for Remembering: A Return to Self.Our Hermit Year.Future Self Workshop.Join the Moon Studio Patreon.Buy the 2025 Many Moons Lunar Planner.Subscribe to our newsletter.Find Sarah on Instagram.

In this episode, I open up about my personal experience of caring for a chronically ill spouse and how our relationship has evolved over the years. From navigating the aftermath of a life-altering accident in our teenage years to now facing the complexities of my own illness, I share the raw truths and lessons we've learned along the way. I also dive into 10 powerful tips for supporting a chronically ill partner while maintaining balance, love, and self-care. Whether looking for practical advice, emotional encouragement, or a reminder that you're not alone, this episode is for you. Listen in and explore how to face the most challenging moments with grace, compassion, and resilience. Follow Jaymee on: Instagram @jaymee.the.genuine.mom TikTok @jaymee.the.genuine.mom Facebook The Genuine Mom

Amelia Home Care wants to provide you with the quality in-home care necessary to ensure that your chronically ill child remains healthy, happy, and comfortable. Apply for care today at https://ameliahomecareny.com/ Amelia Home Care City: Brooklyn Address: 3007 Ocean Parkway Website: https://www.ameliahomecareny.com/

Hey Heart Buddies! Wow! This week's episode is what I needed when I was facing heart surgery and I know you'll find it super helpful too.I interview Dr. Laura Suarez Pardo, a psychocardiologist from Mayo Clinic! Together, she and I explore how mental health impacts cardiac health. Dr. Suarez emphasizes the need for support programs for those with chronic heart conditions. The conversation underscores the importance of addressing psychological issues like depression and anxiety to improve cardiovascular outcomes. I share my personal journey with congenital heart disease and how nutritional changes and mental health therapy aided my recovery. The episode highlights self-compassion, the significance of a supportive healthcare team, and the transition to a "survivorship mindset."More about today's guest:Laura Suarez Pardo, MD │ Senior Associate Consultant │ Consultation-Liaison Psychiatry -- Psychocardiology│ Assistant Professor of Psychiatry │ Mayo Clinic College of MedicinePatient Support Networks♥ AHA: https://supportnetwork.heart.org/s/♥ AHA Caregiver support: https://www.heart.org/en/health-topics/caregiver-support♥ Mended Hearts: https://mendedhearts.org/connect/chapters_groups/♥ Women Heart: https://www.womenheart.org/find-support/♥ Congenital Heart Disease MN: https://www.conqueringchd.org/minnesota/♥ Adult Congenital Heart Association – Heart to Heart Peer Mentors: https://www.achaheart.org/your-heart/programs/heart-to-heart/Books♥ Facing Heart Disease: A Guide for Patients and Their Families by Theodore A Stern MD, Scott R Beach MD, JamesL Januzzi MD♥ Anger Kills: Seventeen Strategies for Controlling the Hostility That Can Harm Your Health by Redford Williams♥ ICD connection: Living with an implantable cardioverter by H. McFarland.♥ One beat at a time – Living with sudden cardiac death by M.D. Noble, M. D.♥ Russell Douglas Publishing.♥ defibrillator. A collection of patient & family stories. Ann Arbor: MPublishing.♥ Mindfulness for Beginners by Jon Kabat-Zinn.♥ Full Catastrophe Living by Jon Kabat-Zinn♥ A Mindfulness-Based Stress Reduction Workbook by Bob Stahl PhD, Elisha Goldstein PhD, Saki Santorelli EdD MA♥ Mindfulness Meditation for Pain Relief by Jon Kabat-Zinn, PhD♥ The Happiness Trap: How to Stop Struggling and Start Living Paperback by Russ Harris♥ Overcoming Depression: A Cognitive Therapy Approach by Mark Gilson and Arthur Freeman♥ Unwinding Anxiety by Judson Brewer♥ Mastery your Anxiety and Worry by David H. Barlow and Michelle G. Craske♥ The Invisible Kingdom: Reimagining Chronic Illness by Meghan O'Rourke♥ How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers by Toni Bernhard♥ Minding the Body Workbook by Jason M. Satterfield♥ Coping with Chronic Illness: A Cognitive-Behavioral Approach for Adherence and Depression by Steven Safren, Jeffrey Gonzalez,, Nafisseh Soroudi♥ Self-Compassion: The Proven Power of Being Kind to Yourself by Dr. Kristin Neff (Author)Join the Newsletter for almost weekly content for this podcast and other heart related news.Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.If you just want to support the show as a one-time gift (thank you), go

In this episode of Parenting Great Kids, Dr. Meg Meeker welcomes Dr. Maureen Michelle Peterson—pediatrician, life coach, and author of Reclaiming Life. Dr. Peterson shares her deeply personal journey of raising a child diagnosed with pediatric neuroblastoma, a rare form of childhood cancer, during her third year of residency. Despite her medical expertise, no amount of training could shield her from the emotional toll of the diagnosis. Years later, her family faced another life-altering challenge when her daughter, now 12, was diagnosed with type 1 diabetes. These experiences not only shaped Dr. Peterson's approach to parenting but also inspired her to write and share her story to help others navigate similar journeys. This insightful episode equips parents with practical tools for building trust with healthcare providers, preparing for advocacy meetings, and prioritizing self-care amidst the demands of caregiving. Dr. Peterson offers guidance on staying resilient, reframing thoughts, and managing setbacks with a positive mindset. Listen now for valuable advice and inspiration to support you on your parenting journey. Our Guest:  Maureen Michele Petersen, MD is an award-winning leader, life coach, author, and physician. As a general pediatrician and allergist/immunologist, she has spent her career caring for patients with a variety of acute and chronic health problems. She is a military veteran and has enjoyed using her story-telling talent to teach young physicians the art of medicine. She is an accomplished life coach who helps parents of chronically ill children regain control of their lives and thrive at fulfillment. Maureen is the mother of three amazing children and has first-hand experience with being a parent of a child with long-term health issues. Key Moments:  00:59 Meet Dr. Maureen Michelle Peterson 02:20 The Journey of Writing 'Reclaiming Life' 05:09 Personal Story: A Mother's Struggle 06:59 Coping with a New Diagnosis 09:10 The Importance of Mental Health and Coaching 10:35 Empowering Children Through Adversity 28:17 Practical Tips for Parents of Chronically Ill Children 28:39 Advocating for Your Child's Health 31:37 Finding the Right Pediatrician 38:58 Conclusion and Contact Information Need parenting advice? Grab one of Dr. Meg's coaching spots here. Watch today's episode

“There was a lot of dilemma, and I wasn't able to definitely deal with the sudden knowledge of my cancer and to be able to impart that information in a more containing and structured manner so that my patients can be held even in that situation. But the consciousness was there about how to go about it. Whenever I was asked by the patient directly, or if the necessity arose where the hospital needed to impart the information, I did agree later that they can let them know about the cancer situation, and the patient can connect to me directly. When I was in a better stage, I knew how to deal with it, but that was months later. I found that the honest submission was more helpful for me and for the patient because when certain larger than life events happen, it probably connects us in a more humble way to the community - that the analyst as healer is not supreme above all of this, and who can also be affected with such aspects of life."    Episode Description: We begin with honoring the clinical difference between fantasies of physical vulnerability from real life mortal danger. Jhuma shares with us her medical journey that entailed suddenly receiving a diagnosis of cancer. She was immediately hospitalized and faced with, among other challenges, the question of how to inform her patients. She describes her fragility and uncertainty and the various engagements she was able to arrange. We discuss the meanings of "honest submission," patient's curiosity, and their aggression and tenderness towards her. She elaborates on the presence of the Hindu notion of an afterlife and her post-hospital awareness that “the clinical becomes vast" - this refers to the importance of bringing analytic sensibilities to the many venues that are 'off the couch'. We close with her sharing clinical vignettes demonstrating how even real-life current trauma can meaningfully awaken a patient's awareness of their forgotten painful past.     Our Guest: Jhuma Basak is a Training & Supervising Psychoanalyst of the Indian Psychoanalytical Society and member of the International Psychoanalytical Association. She holds a Ph.D. in Psychology from the Kyushu University, Fukuoka, Japan. She has specific interest in culture & gender in psychoanalysis. She has publications in Japanese, Italian, French and Spanish. Over the past 20 years, she has presented at various IPA Congresses, along with the Keynote for the 53rd IPA Congress in Cartagena in 2023. Other presentations were at the Washington Baltimore Centre for Psychoanalysis, Hakuoh University, and Kyushu University. She is the co-editor of the book Psychoanalytic & Socio-Cultural Perspectives on Women in India and editor of Sculpting Psychoanalysis in India – Sudhir Kakar. Jhuma has been the past Co-Chair of the Asia Committee on Women & Psychoanalysis and continues to be its consultant.    Reading List: Bernstein, Stephen (2024): The Making of the IPA Podcast: Psychoanalysis On & Off the Couch. Psychoanalytic Inquiry, Vol.44. No.2, 166-177.   Fajardo, B (2001): Life-Threatening Illness in the Analyst. Journal of the American Psychoanalytic Association. 49:569-586.   Feinsilver, David (1998): The Therapist as a Person Facing Death: The Hardest of External Realities and Therapeutic Action. International Journal of Psychoanalysis, 79: 1131-1150   Fieldsteel, N. D. (1989): Analysts' expressed attitudes toward dealing with death and illness. Contemporary Psychoanalysis, 25 (3): 427-432 o    Halpert, Eugene (1982): When the Analyst is Chronically Ill or Dying. Psychoanal. Q., (51):372-389.   Kitayama, O. (1998) Transience: Its Beauty and Danger. International Journal of Psychoanalysis 79:937-942.   Masur, Corinne (ed) (2018): Flirting with Death: Psychoanalysts Consider Mortality. Routledge.   Rosner, Stanley (1986): The Seriously Ill or Dying Analyst & the Limits of Neutrality. Psychoanalytic Psychology, 5(4), 357-371

Todd is looking for love, but he's unsure about disclosing something in dating profiles: his multiple sclerosis. With symptoms that are increasingly visible, Todd feels compelled to be upfront about his disability with potential dates—but he doesn't know when or how to discuss it. On this episode of How To!, Carvell Wallace brings on Jessica Slice and Caroline Cupp, authors of Dateable: Swiping Right, Hooking Up, and Settling Down While Chronically Ill and Disabled. They give Todd guidance on having that talk, navigating ableism, and managing his own internal expectations.   If you liked this episode check out: How To Flirt With Confidence Do you have a problem that needs solving? Send us a note at howto@slate.com or leave us a voicemail at 646-495-4001 and we might have you on the show. Subscribe for free on Apple, Spotify or wherever you listen. How To's executive producer is Derek John. Joel Meyer is our senior editor/producer. The show is produced by Rosemary Belson, with Kevin Bendis and Sara McCrae. Slate Plus members get bonus segments and ad-free podcast feeds. Sign up now at slate.com/howtoplus. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this eye-opening conversation with writer Jessica Slice, you'll learn what it's like to date with a disability and chronic illness. We get into so much in this episode, like when to disclose a disability, tips for using dating apps, where dating apps fall short when it comes to inclusivity for disabled folks and tips for what to do when you encounter someone in your dating journey who has a disability. We also talk a lot about Jessica's amazing new book, Dateable: Swiping Right, Hooking Up and Settling Down while Chronically Ill and Disabled. Book link: https://www.amazon.com/Dateable-Swiping-Settling-Chronically-Disabled/dp/0306832739 Modern Love piece: https://www.nytimes.com/2021/11/19/style/modern-love-he-cared-so-i-broke-up-with-him.html Slide into my DMs on IG: https://www.instagram.com/dating.intentionally/ Follow on TikTok: https://www.tiktok.com/@dating.intentionally Get my free dating FAQ guide: http://eepurl.com/ihTMYj Read more on the blog: https://intentionally.dating/blog-posts/  Watch on YouTube: https://www.youtube.com/@Dating.Intentionally  Submit a dating dilemma: https://forms.gle/xCmAWvDPGJdr3rFz9  Rate on Apple: https://t.ly/JJgpP  About Jessica Slice: Jessica Slice is a disabled author and essayist who has published essays The New York Times's Modern Love column, in Alice Wong's bestselling Disability Visibility, The New York Times, The Washington Post, Hippocampus, Glamour, Cosmopolitan, and HuffPost. Learn more about your ad choices. Visit megaphone.fm/adchoices

Aging Matters" According to “The Urban Institute”: https://www.urban.org/. The number of Americans ages 65 and older will more than double over the next 40 years, reaching 80 million in 2040. The number of adults ages 85 and older, the group most often needing help with basic personal care, will nearly quadruple between 2000 and 2040.  According to the “National Council on Aging's report from October 2023: (https://www.ncoa.org/article/get-the-facts-on-healthy-aging) Nearly 56 million Americans are 65 and older, with projections estimating that the population of older adults will grow to 94.7 million in 2060. On average, a 65-year old can expect to live another 17 years. For most older adults, good health ensures independence, security, and productivity as they age. The "Kelsunn-on-the-Air" Social Work Podcast is honored to bring this vital topic of "Aging Matters" to the forefront of discussions for this segment. You will hear from my two distinguished guests who are: > Dr. Tara Anglim, EdD, LCSW, ACHP-SW. She has spent her 30-year career working with individuals and families in a variety of systems and clinical settings. She is proud to work within healthcare for the last 12 years, currently serving as Associate Executive Director of Culture and Experience for Peconic Bay Medical Center-Northwell Health. She began there in 2013, where she served as the Associate Director of Palliative Medicine. Her interdisciplinary work and collaborations include piloting a new model for in-home palliative care, implementing community MOLST education across eastern Suffolk County, establishing the hospital's family caregiver support program, creating a bereavement plan of care for individuals who experience loss, and achieving the hospital's inaugural Joint Commission Palliative Care Certification in 2017. Dr. Anglim led the creation of PBMC Caregivers Center, which opened in 2018 and was the first of its kind in a hospital on Long Island, dedicated to providing person-centered support, education and resources to family caregivers. Tara received her Doctorate of Education degree from Molloy University, Master of Social Work degree from Fordham University, and her Bachelor of Social Work from Molloy College. Tara is humbled and honored to elevate the stories and lived experiences of family caregivers who ultimately influenced and inspire her interest in research. Tara feels privileged to be able to support individuals and families in her work every day. She is most proud of her own family with husband Kevin and their three children Kevin, Sean & Kate.  > Dawn Shedrick, LCSW is a licensed clinical social worker, consultant, educator and trainer. She founded JenTex Training and Consulting as a professional development firm for health and human service professionals. She has been her mother's primary caregiver since 1996. She weaves her extensive experience in trauma-informed care, social justice, mental health care, and equitable health and mental health care for marginalized communities into her efforts to ensure caregivers have access to effective mental health care and social support. Ms. Shedrick is the author of Courageous Contemplation: A Guided Journal for Family CareGivers of Chronically Ill, Disabled, and Elderly Loved Ones and her writing has been featured in the Sisters from AARP newsletter. Dawn is a lecturer at the Columbia University School of Social Work where she was an inaugural recipient of the Steven P. Schinke Teaching Innovation Award. She is a doctoral candidate at Teachers College-Columbia University where her action research engages caregivers in the development of tools to support emotional healing and wellness.  #aging #aarp #adelphi #northwellhealth #peconicbaymedicalcenter #nasw #naswnys #naswnys #stonybrookschoolofsocialwelfare #socialwork #socialworkers #nationalcouncilonagaing#cswe #hospice #palliativecare #caregivers #elderly #seniorcitizens #family #agingmatters #grandchallengesofsocialwork

In this episode, Kim Rogers (The Worm Queen) and I have a great conversation about how after being diagnosed with endometriosis and 13 surgeries, she was just as sick as she was before she started with the medical world. She was discouraged and in a lot a pain when she went to the woods with her husband to live and it was there, she thought she was going to die… until an Instagram video talking about WORMS saved her life!    Kim Rogers is a seasoned wellness professional with over 18 years of experience in Western medicine. Kim has dedicated her career to advancing medical knowledge and improving patient care. Throughout her extensive tenure in the medical field, she has authored numerous medical publications, contributed to national allied health certification tests, and provided valuable insights as a member of medical advisory boards.Kim's journey in the medical field took an unexpected turn when her own health challenges led her on a transformative path. Inspired by her own healing journey, Kim founded RogersHood Apothecary in December of 2021 and invented the globally known, best-selling ParaFy Parasite Cleanse kit. Driven by her passions, Kim aims to empower individuals to become patient advocates for their own health. By sharing her experiences and knowledge, she invites you to embark on your own journey.     I am your host, Marci Nettles. I have had a lifetime of opportunities where I had the choice to Breakdown or Breakthrough. It is my hope this Podcast may become your light in the darkness, as you listen to the stories of people I consider “heroes.” Each one had a point where they too had to choose to either Breakdown or Breakthrough! Working from home, with my husband/business partner, helping people around the world find new levels of success in their health and wellness, is part of what makes me tick! If you are open to opportunity, let's connect!    Thank you for listening!   Please connect with Kim: MrsRogersHood on TikTok  MrsRogers.Hood on Instagram  Order Your Parafy Parasite Cleanse kit here: Use Code: Marci for 10% OFF   Find Marci at: Website- . YouTube- @YoureBlankWhatNow Don't forget to claim your FREEBIE from Kim by going to To Watch or Read this Episode:   YouTube  BLOG at  While you are there, make sure to subscribe to receive the YBWN Podcast Newsletter, ‘Making Mondays,' that will give insight to each episode and give you a heads up on what is coming next!        

Food and Friends now serves 5000 people living with chronic illnesses across the region with medically tailored food.

Are you struggling to get a diagnosis or manage your chronic condition effectively?Many people feel lost and unsupported when trying to navigate the complexities of autoimmune diseases. You may face debilitating symptoms, dismissive doctors, and ineffective treatments, adding stress and uncertainty to your journey.But there's hope. By taking these FIVE proactive steps, you can advocate for yourself, find the right treatment, and lean on a supportive network, transforming your experience from one of helplessness to empowerment.BY THE TIME YOU FINISH LISTENING, YOU'LL DISCOVER:How to become an informed advocate for your own healthThe importance of building a robust support systemStrategies to find and work with the right medical professionalsTips for preparing for appointments and advocating for necessary testsThe role of self-care and stress management in managing your conditionTaking these proactive steps will empower you to take control of your journey and find the support and treatment you need to thrive.If you want to take the next step in discovering your own power to HEAL by figuring out what needs to be done so that you find lasting relief from your symptoms without medications, sign up to download the free ebook “The Autoimmune symptoms relief guide”Free eBook: The Autoimmune Symptoms Relief Guide: aninditarungta.com/symptomreliefOTHER LINKS MENTIONED IN THIS EPISODE:Episodes Mentioned:Episode 22: "Keep it Simple: Small Shifts for the Chronically Ill"Episode 14: "3 Essential Practices to Build Your Coping Toolkit Amidst Fluctuating Health"Episode 17: "4 Actionable Strategies to Manage Autoimmune Challenges Fearlessly"Book Recommendation: Kitchen Table Wisdom by Dr. Rachel Naomi RemenI just opened up 10 spots for a free call with me over the next 2 weeks. There are a few spots that have become available in my coaching programme "Healing from within"If you would like to get a clear roadmap for your healing journey to find lasting relief from your symptoms and know what your next steps should be, then sign up for a free 45 minutes DISCOVERY CALL with me  Click on the link below to grab one of those spots on my calendar!CLICK HERE TO SCHEDULE A FREE DISCOVERY CALLDid you enjoy this episode? I'd love to hear your biggest takeaway from today's episode. Take a screenshot of you listening on your device, share it to your Instagram stories and tag me, @aninditarungta . LEARN MORE FROM ANINDITA @aninditarungta | nourish heal connect | Embrace Your Healing Journey

In this episode, Dr. Hayley Quinn and I discuss her experience with anxiety and depression when she was a young girl that led her to being extremely self-critical.  These thoughts and behaviors turned into a strong drive to perform at high levels in everything she did.  It was this high expectation of herself that forced her from being independent into complete dependency when she became chronically ill.   Dr Hayley D Quinn is a fellow human being, the anti-burnout business coach for service-based business owners; supervisor for psychologists & allied health professionals; trainer & clinical psychologist. She is also the host of the Welcome to Self® with Dr Hayley D Quinn podcast. Originally from the UK, and now based in Australia.  She is passionate about helping people move towards their business goals in a way that prioritizes sustainable ways of working and their own well-being so they can achieve the outcomes they want without burning out.  Hayley strongly believes that if you thrive your business will too.    I am your host, Marci Nettles. I have had a lifetime of opportunities where I had the choice to Breakdown or Breakthrough. It is my hope this Podcast may become your light in the darkness, as you listen to the stories of people I consider “heroes.” Each one had a point where they too had to choose to either Breakdown or Breakthrough! Working from home, with my husband/business partner, helping people around the world find new levels of success in their health and wellness, is part of what makes me tick! If you are open to opportunity, let's connect!    Thank you for listening!   Please connect with Dr. Hayley: website- , Facebook- Instagram- LinkedIn-   Find Marci at . YouTube: Don't forget to claim your FREEBIE from Hayley by going to   Are YOU a READER? You can now read this episode on my BLOG at   While you are there, make sure to subscribe to receive the YBWN Podcast Newsletter, ‘Making Mondays,' that will give insight to each episode and give you a heads up on what is coming next!   You can also WATCH this episode on YouTube here:   If you loved Hayley's story, you may also enjoy these YBWN Podcast Episodes: Episode 98: “You're Feeling Unsafe (In a Crazy World), What Now?” with Dr. Nerina Rhamlakhan Episode 87: “You're Unseen, Unworthy, and Not Loved, What Now?” with Marci Nettles    

Chronically ill and dynamically disabled business owner and copywriter Darci Ellenberger joins us this episode for a conversation about running a solo-business while disabled. The thing is, managing a chronic illness or a dynamic disability is already full-time job. With at least 25% of the U.S. population self-reporting some kind of disability, and millions more reporting some level of new disability as a result of Long COVID or other post-COVID complications, how we approach work and disability requires a novel, creative approaches. Darci offers a wealth of insight for managing creative challenges, emphasizing the importance of community and support, and finding ways to continue delivering value to clients while prioritizing well-being— both for herself and her clients. If creating a work life free of deadlines sounds like your kind of dream, this episode is for you: Darci did it, without sacrificing her health or her bottom line.Links to work with Darci, as well as all other resource links, are **in the full show notes at hoorfpodcast.comSubscribe to Hoorf! Radical Care in a Late Capitalist Heckscape wherever you listen to your favorite podcast:Apple | Spotify | YouTubeBecome a Patron:https://www.buymeacoffee.com/hoorfpodcast/membershipConnect with Elle Billing:Website: www.hoorfpodcast.com / www.elleandwink.comInstagram: instagram.com/hoorfpodcastSupport the Show.

Are you feeling overwhelmed and frustrated trying to manage your chronic illness with complex strategies and protocols?Healing doesn't have to be complicated and difficult. Living with a chronic condition is already hard enough, we don't need to make it harder on ourselves when we are trying to get better.Chasing "quick fixes" or sticking to rigid, overwhelming regimens without addressing the root causes can actually worsen your symptoms and hinder your progress, leaving you feeling depleted and discouraged.The key to true, sustainable healing lies in embracing simplicity and focusing on the foundations of good health. By making small, consistent shifts that support your body's innate wisdom, you can tap into your natural healing capacity and create lasting well-being.BY THE TIME YOU FINISH LISTENING, YOU'LL DISCOVER:-Five actionable strategies to simplify your approach to managing chronic illness-How to let go of perfectionism and adopt a mindset of self-compassion and flexibility-The importance of tuning into your body's unique signals and needs-Why focusing on joy and connection is crucial for reducing stress and supporting healing-The power of celebrating your progress, no matter how small, to maintain motivation and build resilienceEmbracing simplicity in your healing journey is about recognizing that you have the power to make meaningful, sustainable changes in your health and well-being, one small step at a time.  OTHER LINKS MENTIONED IN THIS EPISODE: E013 | Start anywhere: 5 Small steps that lead to major healingE16 | 3 practical steps to cut through the health information overloadBook : Atomic habits by James ClearI'm thrilled to introduce my new VIP DAY programme. It's called INTENSIVE GUT HEALTH REBOOT and it's a game changer. During this immersive 2-hour VIP coaching session, plus a BONUS 30-minute follow-up sessioI'm thrilled to introduce my new VIP DAY programme called INTENSIVE GUT HEALTH REBOOT and it's a game changerEnrollment closes on the 30th of April, 2024!CLICK HERE TO CONFIRM YOUR SPOT I'm thrilled to introduce my new VIP DAY programme called INTENSIVE GUT HEALTH REBOOT and it's a game changerEnrollment closes on the 30th of April, 2024!CLICK HERE TO CONFIRM YOUR SPOTDid you enjoy this episode? I'd love to hear your biggest takeaway from today's episode. Take a screenshot of you listening on your device, share it to your Instagram stories and tag me, @aninditarungta . LEARN MORE FROM ANINDITA @aninditarungta | nourish heal connect | Embrace Your Healing Journey

Body image is tricky especially when you're chronically ill. After being diagnosed with two chronic illnesses as a teen, Hannah Bee dealt with weight fluctuations and a complicated relationship with their young, yet struggling body. Brought to you By: The Sonar Network https://thesonarnetwork.com/

While ministry leaders and Churches do a fantastic job caring for those who are sick and in need of help, what happens when someone needs longer term care. Or, they are chronically ill? Today, Jeanette Yates joins the podcast to talk about how Churches can help in this way. Subscribe: Apple Podcast | Android | Spotify | RSS  ACTION STEPS: Share your thoughts! What do you think? Share below or on social media by connecting with Tom. If you want to connect with Jeanette you can find her on Twitter/X. She is very active on social media, especially on Twitter so get in touch with her. If you would like to book a time with her for a free conversation, click here. Join the Digital Bootcamp Facebook Group. To learn how to be more effective using digital tools for your ministry join the group. This is for ALL Ministers, not just Church Communicators or Social Media Managers as we share resources, tools and digital trends to see how we can reach more people for Christ with these tools. Looking for Digital Ministry Coaching? The Church Digital is offering a variety of digital, phygital or metaverse ministry coaching and cohorts. Just click here.  If you are in Digital Ministry, be part of the Digital Ministry Twitter Community. We share daily encouragement and support to help you do ministry in this online world more effectively. Click here to be part of it. Sign up for the Sidekick Scoop Weekly Email. Each Friday get a fresh email with content from all over the ministry world (especially online and student ministry topics) and be encouraged in how you can minister more effectively in today's world. If you have an idea for a topic or a person for Tom to interview for a future podcast episode, email tom@thechurch.digital.

Welcome to our semi-final instalment of this string of episodes on writing with limitations and disabilities.In this episode, writer S.L. Shuter, a member of my Writerly Love Community, talks about embracing an identity related to her diagnosis and the push back she received for this.Set L. Shuter is a writer, filmmaker and storyteller from Toronto. She holds an MFA in Creative Nonfiction from The University of King's College and is currently querying her horror-comedy medical memoir, Ovaries Gone Wild. Her essays have appeared in The Toronto Star, Chatelaine Magazine, Understorey Magazine, CBC, and Creative Nonfiction Magazine.Set reads from an essay about access to medicine related to her condition published in a special COVID-19 edition of Understorey Magazine.Listen to how she embraces humour related to her limitations but more recently finds more kindness for herself as she writes and makes films about chronic illness.All of the notes for this episode are up at rachelthompson.co/96—Sign up for my Writerly Love Digest, which is sent weekly and includes support for your writing practice, prompts, and lit mag publications. Hosted on Acast. See acast.com/privacy for more information.

Continuing our conversation with warrior, Aston Martinez. Diagnosed in adulthood with ADHD and Autism, Aston knows the challenges of managing neurodivergence and her many chronic conditions. Tune in to Part Two as Aston discusses how you can support your neurodivergent loved one and how she handles her anxiety and past trauma when going to the doctor. Aston is diagnosed with ADHD, Autism, Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy, Epilepsy, Chronic Activated Epstein Barr Virus, Myalgic Encephalomyelitis and Trigeminal Neuralgia. Aston continues to advocate as a proud member of the Rare Advocacy Movement and wishes to provide support and connection to the chronic illness community by developing a new app/website. To learn more about the Rare Advocacy Movement, go to https://www.rareadvocacymovement.com. To offer suggestions for Aston's new chronic illness app/website, email notmypain@heroescircle.org.

Parenting a chronically ill child teaches us that within life's challenges lies the extraordinary opportunity for growth, resilience, love, and even self-care. In this episode, Dr. Maureen Peterson, author of Reclaiming Life: A Guide for Parents of Chronically Ill Children, shares the joys and stresses of raising a chronically ill child. Through relatable experiences and heartfelt advice, she touches on the overwhelming emotions parents face, offering strategies to manage stress and advocate effectively for their children. Dr. Peterson emphasizes the importance of self-care for parents, dispelling myths and stereotypes about what constitutes self-care. She also emphasizes that self-care isn't just about spa days; it's about nurturing oneself in small, impactful ways that fill the emotional cup. Tune in and learn how to keep the lamp burning for you and your child. Check out Dr. Jordan's previous podcast on the vulnerable child syndrome: https://drtimjordan.com/2022/03/parents-overprotective-children-resilience-infertility-addictions-emotions/

Reintroducing warrior from S2E9, Aston Martinez. Diagnosed in adulthood with ADHD and Autism, Aston knows the challenges of managing neurodivergence and her many chronic conditions. Listen to Part One as she shares her story and her struggles from multitasking her neurodivergence with doctors, medications, and all her symptoms and emotions. Aston is diagnosed with ADHD, Autism, Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy, Epilepsy, Chronic Activated Epstein Barr Virus, Myalgic Encephalomyelitis and Trigeminal Neuralgia. Aston continues to advocate as a proud member of the Rare Advocacy Movement and wishes to provide support and connection to the chronic illness community by developing a new app/website. To learn more about the Rare Advocacy Movement, go to https://www.rareadvocacymovement.com. To offer suggestions for Aston's new chronic illness app/website, email notmypain@heroescircle.org.

In my last few episodes, I've been talking about the book "How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" by Toni Bernhard and how it has helped me navigate the physical and emotional recovery process after getting into a car accident recently.   My final episode on this book is another lesson I've been relearning this year...reframing your perspective.

Continuing our discussion from S2E15 with warrior, Samah Khan. Samah's dream was to be a doctor. She was making her dream a reality when in her penultimate year of medical school, mysterious and chronic symptoms started. She graduated but her health issues forced her to give up practicing medicine, her passion in life. Samah spent the following years searching for her diagnoses, being dismissed by the medical profession, and managing her new reality. With persistence, Samah was finally diagnosed with psoriatic arthritis, fibromyalgia, and joint hypermobile syndrome or Ehlers-Danlos, but to this day, doctors are unresolved on her conditions, leading her to suffer from improper management. In Part Two, Samah shares her unique perspective on why doctors tend to dismiss patients with chronic illness especially functional disorders such as fibromyalgia and chronic fatigue syndrome and the importance of believing the patient. If you would like to become part of Samah Khan's Facebook group, go to PICK SEBBIE BC SEBBIE PICKS U and send an invitation request. 

Good Ranchers - Bringing everyone to the table to share in the best of what makes life good. They source all of their meat from local, independent farms in the U.S. https://go.goodranchers.com/family Use the discount code VOETBERG to get 10% off and free shipping when you order any box.-Dale Partridge is the president of Relearn.org and holds a graduate certificate from Western Seminary. He is the author of several Christian books, including “The Manliness of Christ” and the bestselling children's book “Jesus and My Gender.” He is also the host of the Real Christianity podcast and the lead pastor at King's Way Bible Church in Prescott, Arizona. Dale and Veronica got married in 2010 and have four children (10, 8, 6 and 7 months old). They host the podcast Welcome Home where you can step inside their home and hear their journey of cultivating a biblical household in the face of a secular culture. Filled with big conversations about Christ, suffering, parenting, hospitality, and ministry you will leave encouraged, warmed, and hopefully wearing a smile.You can connect and follow Dale & Veronica Partridge through the links below:Website - relearn.orgRelearn app - https://app.relearn.org/Kingsway Bible Church -https://kingswaybible.org/Reformation Seminary - https://reformationseminary.com/Instagram - https://www.instagram.com/relearnhq/Twitter - https://twitter.com/dalepartridgeWelcome Home Podcast - https://podcasts.apple.com/us/podcast/welcome-home/id1723755190Real Christianity Podcast - https://podcasts.apple.com/us/podcast/real-christianity/id1408224071

The healing journey continues!  The book that has been helping me through my recovery process is called "How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" by Toni Bernhard. As I'm reading this book, I realize that I cause myself unnecessary suffering sometimes.  I share what I learned from Bernhard's journey that helps me with stressful and overwhelming thoughts.

We are throwing back to S2E14 with warrior, Samah Khan. Samah's dream was to be a doctor. She was making her dream a reality when in her penultimate year of medical school, mysterious and chronic symptoms started. She graduated but her health issues forced her to give up practicing medicine, her passion in life. Samah spent the following years searching for her diagnosis, being dismissed by the medical profession, and managing her new reality. With persistence, Samah was finally diagnosed with psoriatic arthritis, fibromyalgia, and joint hypermobile syndrome or Ehlers-Danlos, but to this day, doctors are unresolved on her conditions, leading her to suffer from improper management. Tune in as Samah reveals how redefining success for herself was instrumental in finding new meaning in her life again and allowing her to move forward as a medical editor and writer and founder of the Facebook group called PICK SEBBIE BC SEBBIE PICKS U where many chronically ill come for support. Samah also discusses the lack of proper training for doctors especially as it pertains to rare and chronic conditions. If you would like to become part of Samah Khan's Facebook group, go to PICK SEBBIE BC SEBBIE PICKS U and send an invitation request. 

We are throwing back to S2E14 with warrior, Samah Khan. Samah's dream was to be a doctor. She was making her dream a reality when in her penultimate year of medical school, mysterious and chronic symptoms started. She graduated but her health issues forced her to give up practicing medicine, her passion in life. Samah spent the following years searching for her diagnosis, being dismissed by the medical profession, and managing her new reality. With persistence, Samah was finally diagnosed with psoriatic arthritis, fibromyalgia, and joint hypermobile syndrome or Ehlers-Danlos, but to this day, doctors are unresolved on her conditions, leading her to suffer from improper management. Tune in as Samah reveals how redefining success for herself was instrumental in finding new meaning in her life again and allowing her to move forward as a medical editor and writer and founder of the Facebook group called PICK SEBBIE BC SEBBIE PICKS U where many chronically ill come for support. Samah also discusses the lack of proper training for doctors especially as it pertains to rare and chronic conditions. If you would like to become part of Samah Khan's Facebook group, go to PICK SEBBIE BC SEBBIE PICKS U and send an invitation request. 

In this episode, I talk about my progress in the physical, and emotional, healing journey I've been on since the car accident.  I share what 'wise inaction' means based on the book I'm reading called "How to be sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" by Toni Bernhard. I also talk about one of the best pieces of advice I've gotten so far this year!  

Continuing our conversation with warrior, Dr. Maureen Michele. Dr. Maureen is a military veteran, pediatrician, allergist/immunologist, certified life coach, and author. Above everything, she is a mom to three beautiful kids. Through navigating numerous chronic illness diagnoses for her three children, Dr. Maureen discovered important tools to bring peace and meaning to her life which she now shares as a certified life coach with other parents to support their journeys with their chronically ill children. In Part Two, Dr. Maureen will discuss how a parent can effectively advocate for their sick child at the doctor, how to manage the feeling of being overwhelmed and some personal pearls of wisdom that every parent and chronically ill person should hear! To learn about Dr. Maureen Michele including her services, book or Personal Pearls of Wisdom blog, go to website https://maureenmichelemd.com. To find her book on Amazon, Reclaiming Life: A Guide for Parents with Chronically Ill Children, go to https://amzn.to/3Hn6zrD. 

Meet warrior, Dr. Maureen Michele. Dr. Maureen is a military veteran, pediatrician, allergist/immunologist, certified life coach, and author. Above everything, she is a mom to three beautiful kids. Dr. Maureen was in her pediatric residency when her infant daughter was diagnosed with neuroblastoma. She was naturally consumed with the stress of getting her daughter healthy. Additional challenges arose years later when her daughter was diagnosed with Type 1 Diabetes and her other two children with mental health diagnoses. Her life became focused on navigating the health and well-being of her children. In Part One, tune in to Dr. Maureen as she shares her story and how through her experience, she gained valuable skills to create a calm, resilient, and meaningful life. Dr. Maureen now uplifts other parents in the same situation discover tools to support their journeys as a certified life coach. To learn about Dr. Maureen Michele including her services, book or Personal Pearls of Wisdom blog, go to her website https://maureenmichelemd.com. To find her book on Amazon, Reclaiming Life: A Guide for Parents with Chronically Ill Children, go to https://amzn.to/3Hn6zrD. 

Are you EXHAUSTED because you're constantly trying to explain yourself... all the time... to everyone? When you have to say no, when you have to reschedule, when you have to limit yourself, when you're not feeling well... and on and on to forever. Today I talk about how to handle this and how to make sure this emotional exhaustion doesn't hurt your closest relationships.   Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!   Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

In this episode, I explore the challenges of productivity when living with chronic illness. I'll get into the concept of pacing and share personal insights on self-compassion, finding rhythms, and listening to our body's signals. Join me as I provide valuable strategies for managing emotions and finding meaning and purpose in your pursuits. __________________________________________________ Connect with Destiny email: ⁠⁠⁠destiny@destinywinters.com⁠⁠⁠  IG: @the.chronicillnesstherapist.com website: ⁠⁠⁠thechronicillnesstherapist.com⁠⁠⁠ ***If you like any of The Chronic Illness Therapist episodes, please leave a review! Reviews tell the app, “hey, people like this! Show it in the algorithm to more people!” :) FREE DOWNLOADS: - “Mastering Pacing: How Slowing Down Helps you Speed up” https://spring-lion-815.myflodesk.com/eswknvrdsc - “6 Ways To Help Your Partner Understand Your Chronic Illness” - download at this link ⁠⁠⁠https://view.flodesk.com/pages/628c0317081c14b7b35ee9de⁠⁠⁠ FOR THERAPISTS - FREE CONSULT GROUP every third Friday of the month from 1-2:30pm EST. Join the email list here for updates: ⁠⁠⁠https://view.flodesk.com/pages/633e2980409cbc0f983fcee8⁠⁠⁠ Disclaimer: Everything we talk about here is just meant to be general education and information. It's not intended as personal mental health or medical advice. If you have any questions related to your unique circumstances, please contact a licensed therapist or medical professional in your state of residence. --- Send in a voice message: https://podcasters.spotify.com/pod/show/citherapist/message

In this episode, I explore the challenges of productivity when living with chronic illness. I'll get into the concept of pacing and share personal insights on self-compassion, finding rhythms, and listening to our body's signals. Join me as I provide valuable strategies for managing emotions and finding meaning and purpose in your pursuits. __________________________________________________ Connect with Destiny email: ⁠⁠⁠destiny@destinywinters.com⁠⁠⁠  IG: @the.chronicillnesstherapist.com website: ⁠⁠⁠thechronicillnesstherapist.com⁠⁠⁠ ***If you like any of The Chronic Illness Therapist episodes, please leave a review! Reviews tell the app, “hey, people like this! Show it in the algorithm to more people!” :) FREE DOWNLOADS: - “Mastering Pacing: How Slowing Down Helps you Speed up” https://spring-lion-815.myflodesk.com/eswknvrdsc - “6 Ways To Help Your Partner Understand Your Chronic Illness” - download at this link ⁠⁠⁠https://view.flodesk.com/pages/628c0317081c14b7b35ee9de⁠⁠⁠ FOR THERAPISTS - FREE CONSULT GROUP every third Friday of the month from 1-2:30pm EST. Join the email list here for updates: ⁠⁠⁠https://view.flodesk.com/pages/633e2980409cbc0f983fcee8⁠⁠⁠ Disclaimer: Everything we talk about here is just meant to be general education and information. It's not intended as personal mental health or medical advice. If you have any questions related to your unique circumstances, please contact a licensed therapist or medical professional in your state of residence. --- Send in a voice message: https://podcasters.spotify.com/pod/show/citherapist/message

Welcome to "The Healthy Healer" podcast. I'm your host, Dr. Fred Moss. Through sustained conversations, we delve deep into the journeys of healers who've found their purpose after personal transformation. Many enter the healing profession with aspirations only to grapple with reality—endless training, unexpected responsibilities, and even disillusionment. But there are those who rise above, harnessing personal healing and rediscovering their passion. Our podcast features these inspiring souls who've returned to the healing profession, stronger and more aligned than ever. Join us for riveting conversations that shed light on the true essence of healing and the incredible individuals who've redefined their paths.   Here are some key takeaways from this follow-up episode: - Holly Beck shared her journey from dealing with chronic mono, fatigue and lupus to becoming a health coach for women with chronic illnesses.  - Her story exemplifies turning adversity into growth to become an effective healer for others. She learned about alternative healing and took control of her health. - Holly emphasizes not giving up hope when facing health struggles. Breakthroughs can come by believing in yourself and working on personal growth.  - Her spiritual awakening around 5 years ago was a major turning point. Connecting to God/higher power and learning about mindset shifted her life. - By healing herself, Holly removed obstacles and became more aligned with her purpose to serve others. Human connection is at the heart of healing.  - Listeners are reminded that the ups and downs of life shape us. Adversity can be fuel to step into our calling as healers.   The episode encourages reflection on maximizing your capacity to heal yourself and others. Holly models overcoming chronic illness to guide others in health. The key themes are using your own healing journey to transform into an effective healer/guide for others, spiritual connection as a turning point, and hope and growth through adversity.

In this insightful episode, we engage in a profound conversation with online business consultant, Teresa Heath-Wareing, exploring the intricate link between personal well-being and entrepreneurial success. Delving into the harsh realities of the business world, we touch on challenges such as imposter syndrome and the journey to create a business that mirrors our authentic selves. Teresa sheds light on the importance of building a venture that not only aligns with our health and values but also unveils the raw truths about mental well-being, authenticity, and the personal sacrifices a budding business may necessitate. Furthermore, we emphasize the significance of embracing vulnerability in marketing, the influence of personal stories, and the finesse required to share our adversities while staying aligned with our core principles. Join us in this compelling dive into mindful entrepreneurship, and discover how to design a business that nurtures your health, spirit, and financial growth.Key Takeaways:The intertwined relationship between personal health and business success, and the importance of authenticity.The value of vulnerability in marketing and the impact of personal narratives in connecting with audiences.The essential role of a supportive community in navigating entrepreneurial challenges and uncovering latent opportunitiesSupport the showTo Work With Nikita, Book A Free Sales Call Here.Loved this episode? Leave a review: https://www.craftedtothrive.com/reviews/new/Subscribe to the exclusive private-podcast series, Create Your Clarity Mondays, where I help service-based creatives and coaches living with chronic illness get unstuck and grow their businesses with ease in less than 15 minutes.Follow Nikita on InstagramSupport the show

"After a college student finally found a treatment that worked, the insurance giant decided it wouldn't pay for the costly drugs. His fight to get coverage exposed the insurer's hidden procedures for rejecting claims." This healthcare horror story goes into the life of a chronically ill Penn State student, denied by UnitedHealthcare for treatment, and the lies and deception that the company put him through. Read the full ProPublica article, "UnitedHealthcare Tried to Deny Coverage to a Chronically Ill Patient. He Fought Back, Exposing the Insurer's Inner Workings." written by David Armstrong, Patrick Rucker and Maya Miller here: https://www.propublica.org/article/unitedhealth-healthcare-insurance-denial-ulcerative-colitisFacepalm America: facepalmamerica.comTwitter: @FacepalmUSAFind Beowulf: @BeowulfRochlenThis show is part of the Spreaker Prime Network, if you are interested in advertising on this podcast, contact us at https://www.spreaker.com/show/5189985/advertisement

In this episode, DJ invited Maureen Michele, M.D. to the show to discuss her own personal journey of parenting a chronically ill child. Maureen is not only an MD, she is an accomplished general pediatrician, allergist, immunologist, and now life coach. Stay tuned to hear how Maureen learned to cope, make time for self-care, find positivity and how that led her to become a coaching expert, helping parents of chronically ill children navigate their own mental health and well-being.Maureen Michele, MD is an award-winning leader, life coach, and physician. As a general pediatrician and allergist/immunologist, she has spent her career caring for patients with a variety of acute and chronic health problems. She is a military veteran and has enjoyed using her story-telling talent to teach young physicians the art of medicine. She is an accomplished life coach who helps parents of chronically ill children regain control of their lives and thrive at fulfillment. Maureen is the mother of three amazing children and has first-hand experience with being a parent of a child with long-term health issues.TIMESTAMPS• [5:15] Maureen shares her personal journey of becoming a pediatrician and caring for her daughter with cancer then type 1 diabetes, highlighting the challenges of balancing career and family. • [14:51] Dr. Michele discusses how parents of chronically ill children must prioritize self-care to avoid burnout and maintain hope for their child's future.• [23:41] “It takes a little bit of courage sometimes for a parent of a chronically ill kid to actually ask for help… Get the courage and ask for it because you cannot do this alone.”• [37:23] “Make sure that your child is well aware of what their strengths are… and there is a lot of science behind gratitude and self love, because it builds confidence.”For more information on the Imperfect Heroes podcast, visit: https://www.imperfectheroespodcast.com/Connect with Us!DJ Stutz: Website: https://www.littleheartsacademyusa.com/Facebook: https://www.facebook.com/littleheartsacademy/Instagram: https://www.instagram.com/littleheartsacademy/YouTube: https://www.youtube.com/channel/UCOpphCRklDJiFXdS76U0LSQDJ Stutz Booking Link: https://bookme.name/ImperfectheroespodcastCICERONE MASTERS Link: https://www.littleheartsacademyusa.com/courses/cicerone-mastersONE ON ONE COACHING Link: https://www.littleheartsacademyusa.com/courses/one-on-one-coaching-bundleMaureen Michele M.D.Website: https://maureenmichelemd.comTwitter: https://twitter.com/maureenmmd/Instagram: https://www.instagram.com/maureenmichelemd/Facebook: https://www.facebook.com/maureenmichelemdLinkedIn: https://www.facebook.com/maureenmichelemdAmazon - Reclaiming Life: A Guide For Parents of Chronically Ill Children: https://www.amazon.com/dp/B0BNKXF3VQEpisode with Clarissa Nelson mentioned in the podcast: https://www.imperfectheroespodcast.c

Have you ever made a list of the healthy habits you have built to support your body and to thrive? I recently did this and found myself so proud of how far I have come. Today I talk to you about my process and go into 20+ habits I have built to change my life. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!   Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Kay Toombs is associate professor emerita of philosophy at Baylor University in Texas. In her work she explores the ways in which contemporary values and the context in which we live our lives impact our efforts to develop a sustainable culture and to form caring communities. In her work related to illness, disability and healthcare, she combines her training in philosophy with her experience of living with neurological disease to reflect on the experience of illness and disability, the care of the chronically and terminally ill, the relationship between health care professionals and patients, and the meaning of suffering and healing, both in the context of Western culture and within the context of intentional Christian community. Explore Books by Kay Toombs:www.homesteadheritage.com/books; www.amazon.com/booksThe Meaning of Illness: A Phenomenological Account of the Different Perspectives of Physician and PatientHow Then Should We Die: Two Opposing Responses to the Challenges of Suffering and DeathLiving at the Boundary, Healing and Incurable IllnessThe Human Dimension of Sustainable Culture Write to Kay Toombs KEY QUESTIONS:What can God show us through disability and serious illness?How can Christians turn from radical autonomy to relationship with God and others?How can Christian community create a sustainable, caring culture?How can faith enrich our experience of caregiving? KEY SCRIPTURES:Psalm 61:1–2: “Hear my cry, O God; listen to my prayer. From the ends of the earth I call to you; I call as my heart grows faint; lead me to the rock that is higher than I.”Psalm 133:1: “How good and pleasant it is when God's people live together in unity!”John 15:13: “Greater love has no one than this: to lay down one's life for one's friends.” ------- Find more encouragement on Joni Eareckson Tada's Sharing Hope podcast and daily devotional.Follow Joni and Friends on TikTok, Instagram, Facebook, and YouTube.Your support makes this podcast possible!Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Founded by Joni Eareckson Tada, we provide Christ-centered care through Joni's House, Wheels for the World, and Retreats and Getaways, and offer disability ministry training.

Imagine having to navigate the challenges of living with a chronic illness. Now imagine having to deal with the additional burden of a job that doesn't offer you the accommodations you need for the unseen challenges you face. For many who live with a chronic illness, the result is a life of underemployment or unemployment. Yet, with appropriate accommodations, many individuals who live with a chronic illness can thrive in their professional roles. It's time to close this gap. On this episode of The Workplace Communication Podcast, we're talking with Julie Hamilton, Certified Fibromyalgia Coach and Life Coach, Owner of Coaching PI at Coaching PI LLC. After her own diagnosis of fibromyalgia in 2009, Julie realized she needed to blend her personal experience with her background in Human Resources Management to shed light on the challenges faced by individuals with chronic illnesses in the workplace, and what can be done to support them. Join us as Julie offers valuable insights on how to create a supportive work environment by cultivating open communication, collaboratively identifying appropriate accommodations, and fostering a culture of trust and inclusivity. Leadership tips you won't want to miss:

Meet warrior, Alex. Alex is transgender identifying as trans-masculine and non-binary. From a young age, Alex endured many chronic illnesses and disabilities. He/They was later diagnosed with Agenesis of the Corpus Callosum, a rare brain disorder where there is a partial or complete absence of an area of the brain that connects the two cerebral hemispheres. Alex also manages Dandy-Walker Syndrome, a congenital brain malformation involving the cerebellum and the fluid-filled spaces around it that coordinates movement, and additionally lives with blindness in the right eye, arthritis, chronic pain, non-verbal learning disorder, depression, anxiety, PTSD, OCD, autism, and more. Alex works hard to support the disabled community as a full-time Disability Resource Specialist, as well as strives to care for his/their own health. Alex not only faces tremendous obstacles living with multiple, rare conditions, but he/they faces another huge hurdle; Alex must navigate a healthcare system that doesn't truly accommodate or comprehend his/their needs as a transgender person. Listen as Alex shares his/their story, the challenges of being transgender and chronically ill, and how he/they supports his/their health and well-being.   

Continuing our conversation with warrior, Lydia Joy Launderville. Lydia is a freelance writer specializing in health and lifestyle, a ghostwriter, a blogger, an advocate, and a full-time Reading Interventionist for elementary children. Diagnosed with Fibromyalgia, Migraine, Raynaud's syndrome, and a host of other conditions, Lydia entered the dating world while still discovering her diagnoses and how to manage her various symptoms. Through each relationship, Lydia has grown to understand her conditions and what she needs in her partner and for her health. Tune in to Part Two as Lydia discusses managing her health including doctor appts and flare ups while in a relationship, how she took care of herself during a breakup and how past and present romantic relationships have given her a deeper understanding of herself, her health and life. Lydia reminds all chronic illness warriors that you are so much more than your disease and are deserving of love. To learn more about Lydia Joy Launderville or her writing, go to https://lydiajoylaunderville.wordpress.com.  

Courtney talks to Bob Bell about how birding gave him a new lease on life in the midst of a fraught diagnosis, difficult illness, and early retirement. The connections between birding and hope for those suffering from acute or chronic illness. Links from Bob's show Bob's book: Out of the Lyme Light and Into the Sunlight Free Birding & Ecology Resources Merlin Bird ID E-Bird iNaturalist Seek Follow Bob: Twitter The Thing with Feathers is birds, birding, and hope with an obsessive newbie birder and a wide range of experts and special guests. New episodes every Monday! Follow Courtney: Twitter Facebook Website Many thanks to Emily Dickinson, for having such a lovely poem in the public domain. Our music is by Del Belcher. The Thing with Feathers is hosted and produced by Courtney Ellis. --- Send in a voice message: https://podcasters.spotify.com/pod/show/courtney-ellis02/message

This week we delve into a critically important topic which is the mental health of our patients with chronic disease. How common are mental health issues amongst patients with sickle cell disease, cystic fibrosis and congenital heart disease? What accounts for differences in diagnosis or treatment of things like anxiety, depression or ADHD in these different chronic disease state patients? What is structural racism and how does this impact these findings? What is the solution to the under-recognition of mental health disorders in these chronic medcial patients? We speak with ACHD fellow at Texas Children's Hospital and the first author of this week's work, Dr. Vincent J. Gonzalez. DOI: 10.1016/j.jpeds.2023.113411Thanks to all who have been listening to the podcast the past 5 years on today's landmark, 250th episode.

Entrepreneur and soon-to-be author Calley Means' recent Twitter post exposed the racist agenda of Coca-Cola and racked up a whopping 12 million views,  13,000 retweets, and close to 60,000 likes in just one month.   And that's just one tiny piece of Calley's incredible journey to exposing the problems of our current healthcare and food system.   But instead of just complaining and highlighting the issues, Calley's actively working on a solution through his latest company, TrueMed, which aims to use food and exercise as medicine instead of relying on pharmaceuticals that actually make things worse.   When you tune into this episode, you'll learn more about his latest company, along with Calley's first-hand experience seeing big pharma and food companies funneling money to professors, universities, and research studies on nutrition to skew the data in their favor. You'll also hear about how companies like Coca-Cola continue to target low-income families through food stamp programs and how they lobby to avoid having a sugar tax placed on their products.   Calley also discusses how our current system has been making people with chronic diseases worse off instead of better, why weight loss drugs are not the answer, especially for obese kids, and what can be done to turn things around.   Calley also shares his personal experience and how he found himself in this space, what he believes the root causes of chronic diseases are based on science and research, and more about his company TrueMed.   Here's a look at what Calley and Dr. Anthony Gustin discuss in this episode: Calley's backstory and why he started caring about health and fixing the healthcare system How it's become normalized for people to be chronically sick and taking a handful of prescriptions each day, and what that stems from How the food system is designed to be efficient at making food cheap and addicting Calley's Twitter post that went viral and shed light on how food companies are funding research on nutrition and skewing the results in their favor The two biggest lobbying spenders and why this is a massive problem for our healthcare system How our chronic disease management process is actually causing diseases to go up and get worse instead of making things better What can be done to fix our healthcare system? Will our healthcare system eventually work itself out? What can be done to address rising mental health issues? How the scientific community has let Americans down and what can be done about it Calley shares his thoughts on treating obese kids with prescription drugs and shots The problem with weight loss drugs and why this is a huge issue The root causes of chronic diseases and how it's preventable Calley's latest business, TrueMed, and the problems it's actively working to solve   Mentioned in this episode: Calley Mean's website Calley Mean's Twitter and Instagram Calley's website for TrueMed Justin Mares' Twitter and weekly newsletter Levels Health Brain Energy: A Revolutionary Breakthrough in Understanding Mental Health and Improving Treatment for Anxiety, Depression, OCD, PTSD, and More by Dr. Christopher M. Palmer

The McDevitt family really had no idea what they would face when caring for their son Hampton, and what should have been a fatal diagnosis. This podcast highlights the emotional, social and financial toll a diagnosis can take on a family. This story actually has a twist involving Cam Wimberly of Southern Charm (as all good stories do) and a happy ending. It is a must listen, even to gain some insight and empathy into another family's struggle and gain empathy.

On this week's episode of The Waves, Slate senior editor Shannon Palus sits down with writer and political scientist Virginia Eubanks. They talk about Virginia's New York Times magazine essay , “His PTSD, and My Struggle to Live With It,” and how the condition is more widespread than most people realize, even as terms like “trauma” and “triggered” are tossed around cavalierly. Later in the show, they talk about why you shouldn't give unsolicited advice to people living with PTSD—and what kind of support caregivers of people with PTSD really need.    In Slate Plus: Why Virginia wanted to write her New York Times essay, and whether the COVID-19 pandemic is, technically speaking, a traumatic event.  Further Recommended Reading: What to Say When Someone Tells You They're Chronically Ill by Rachel Meeks Irritable Hearts: A PTSD Love Story by Gabriel Mac Podcast production by Cheyna Roth with editorial oversight by Shannon Palus, Daisy Rosario and Alicia Montgomery. Send your comments and recommendations on what to cover to thewaves@slate.com Learn more about your ad choices. Visit megaphone.fm/adchoices