Podcasts about fpies

If you've ever felt alone navigating an FPIES diagnosis—or if you're wondering what FPIES even is—this episode is for you.  I'm joined by Dr. Taylor Arnold, pediatric dietitian and mom of two children who had FPIES, and Dr. Manisha Relan, board-certified allergist and immunologist. Together, we break down what FPIES actually is, why it's so often misdiagnosed, how it differs from typical food allergies, and what families can do to manage it confidently. Whether you're a parent seeking answers or a clinician wanting to deepen your understanding, I hope this conversation leaves you feeling more empowered, prepared, and less alone. We discuss:  What FPIES is, how it differs from typical food allergies, and why diagnosis is often delayed. Navigating food introductions, managing reactions, and reducing anxiety around FPIES. Practical tips for daycare, social situations, and long-term support for children with FPIES. To connect with Dr. Taylor Arnold follow her on Instagram @growing.intuitive.eaters, check out all her resources at https://msha.ke/growingintuitiveeaters  To connect with Dr. Manisha Relan follow her on Instagram @pedsallergymd, and check out all her resources at https://www.101beforeone.com/ and her new book: https://www.amazon.com/Baby-Leads-Way-Evidence-Based-Introducing/dp/1610027620 Additional Resources: https://fpiesfoundation.org/ https://www.fpies.org/ https://kidswithfoodallergies.org/living-with-food-allergies/what-is-a-food-allergy/food-protein-induced-enterocolitis-syndrome-fpies/ We'd like to know who is listening! Please fill out our Listener Survey to help us improve the show and learn about you! 00:00 – Intro & Why This Matters 02:00 – Meet the Experts 03:05 – What FPIES Is and Isn't 08:20 – Hallmark Symptoms & Why It's Missed 10:10 – Personal Story: Misdiagnosis & Learning Curve 15:00 – Diagnosing FPIES 18:30 – What Causes FPIES? 20:00 – What Parents & Pediatricians Should Know 23:30 – Figuring Out Food Triggers 25:00 – Managing Feeding Anxiety After Diagnosis 29:00 – Preventing Nutritional Deficiencies 32:00 – Practical Tips for School, Daycare & Social Events 35:00 – Emotional Support for Parents 38:00 – Outgrowing FPIES & What Comes Next 42:00 – Final Takeaways & Encouragement Our podcasts are also now on YouTube. If you prefer a video podcast with closed captioning, check us out there and ⁠subscribe to PedsDocTalk⁠. Get trusted pediatric advice, relatable parenting insights, and evidence-based tips delivered straight to your inbox—join thousands of parents who rely on the PDT newsletter to stay informed, supported, and confident. ⁠⁠⁠Join the newsletter⁠⁠⁠! And don't forget to follow ⁠⁠⁠@pedsdoctalkpodcast⁠⁠⁠ on Instagram—our new space just for parents looking for real talk and real support. We love the sponsors that make this show possible! You can always find all the special deals and codes for all our current sponsors on the ⁠PedsDocTalk Podcast Sponsorships⁠ page of the website.  Learn more about your ad choices. Visit podcastchoices.com/adchoices

Link for MOC Credit! https://cmetracker.net/UTHSCSA/Publisher?page=pubOpen#/getCertificate/10098629 Join Host and Executive Producer Holly Wayment for this grand rounds episode for MOC credit.  We bring you a talk by Dr. Millind Pansare on FPIES, highlighting the crucial role of clinical awareness and research in combating this condition. Discover the clinical presentation, risk factors, and the significance of educational support for caregivers navigating this challenging syndrome. Join us for an informative session that seeks to empower medical professionals with knowledge about this critical pediatric health topic.

This week we're joined by Dr. A, a pediatric allergist based in Toronto (and also Amanda's son Arlo's allergist

（解　説）国立成育医療研究センター 免疫アレルギー・感染研究部  室長　森田英明氏 （ききて）防衛医科大学校教授　池脇克則氏　　

Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED's Health Sciences Advisory Council, interview Dr. Wayne Shreffler, Chief of Pediatric Allergy and Immunology and Co-Director of The Food Allergy Center at Massachusetts General Hospital. Dr. Shreffler is also an investigator at The Center for Immunology and Inflammatory Disease and The Food Allergy Science Initiative. His research is focused on understanding how adaptive immunity to dietary antigens is both naturally regulated and modulated by therapy in the context of food allergy. This interview covers the results of a research paper on The Intersection of Food Allergy and Eosinophilic Esophagitis, co-authored by Dr. Shreffler. Disclaimer: The information provided in this podcast is designed to support, not replace the relationship that exists between listeners and their healthcare providers. Opinions, information, and recommendations shared in this podcast are not a substitute for medical advice. Decisions related to medical care should be made with your healthcare provider. Opinions and views of guests and co-hosts are their own.   Key Takeaways: [:50] Co-host Ryan Piansky introduces the episode, brought to you thanks to the support of Education Partners Bristol Myers Squibb, GSK, Sanofi, and Regeneron. Ryan introduces co-host, Holly Knotowicz.   [1:15] Holly introduces today's topic, the intersection of food allergy and eosinophilic esophagitis.   [1:26] Holly introduces today's guest, Dr. Wayne Shreffler, Chief of Pediatric Allergy and Immunology and Co-Director of The Food Allergy Center at Massachusetts General Hospital and an investigator at The Center for Immunology and Inflammatory Disease and The Food Allergy Science Initiative.   [1:43] Dr. Shreffler's research is focused on understanding how adaptive immunity to dietary antigens is both naturally regulated and modulated by therapy in the context of food allergy.   [1:54] Holly welcomes Dr. Shreffler to Real Talk. When Holly moved to Maine, she sent her patients to Dr. Shreffler at Mass General.   [2:25] Dr. Shreffler trained in New York on a Ph.D. track. He was interested in parasitic diseases and the Th2 immune response. Jane Curtis, a program director at Albert Einstein College of Medicine, encouraged him to consider MD/PhD programs. He did.   [3:31] Jane Curtis connected him to Hugh Sampson, who was working with others to help understand the clinical prevalence of food allergy and allergens.   [3:51] As a pediatric resident, Dr. Shreffler had seen the burden of allergic disease, caring for kids in the Bronx with asthma. His interest in Th2 immunity, the clear and compelling unmet clinical need, and the problem of food allergy guided his career.   [4:31] Dr. Shreffler's wife has food allergies and they were concerned for their children. Fortunately, neither of them developed food allergies.   [5:21] Dr. Shreffler thinks the food allergy field has a lot of people who gravitate toward it for personal reasons.   [5:53] Food allergy is an adverse response to food that is immune-mediated. There is still uncertainty about this but Dr. Shreffler believes that a large percentage of patients with EoE have some triggers that are food antigens.   [6:27] The broad definition of food allergy would include things like food protein-induced enterocolitis syndrome (FPIES).   [6:47] The way we use the term food allergy in the clinic, there are two forms: IgE-mediated allergies and non-IgE-mediated allergies, including EoE.   [7:40] Some patients have food-triggered eczema, some have FPIES.   [8:04] In 2024, Dr. Shreffler and Dr. Caitlin Burk released a paper that looked at the triggers of EoE, particularly the intersection of IgE-mediated food allergy and EoE.   [8:41] Dr. Caitlin Burk joined the group as they were publishing papers on IG food allergy and EoE. It was a moment where things unexpectedly came together.   [9:17] Adaptive immunity to food proteins comes from antibodies that cause milk allergy, egg allergy, peanut allergy, or multiple allergies. The IgE has specificity.   [9:40] T cells also are specific to proteins. They express a host of receptors that recognize almost anything the immune system might encounter. They have a long memory like B-cells.   [10:09] The overlap in these two threads of research was regarding a population of T cells that are important for mediating chronic inflammation at epithelial sites, including the gut.   [10:36] These T cells have been described in the airways in asthma, in the skin in eczema, and the GI tract. Researchers years ago had also described them as being associated with IgE food allergy. People with IgE food allergies avoid allergens.   [11:13] T cells, being associated with chronic allergic inflammation, now being associated with food allergies which are not having chronic exposures to the allergen, was interesting and surprising.   [11:30] Dr. Shreffler and his group found the T cell subset in patients who don't do well with Oral Immunotherapy (OIT) and patients who have EoE with immediate symptoms.   [12:01] Dr. Shreffler notes differences. There are immediate symptoms of IgE food allergy. There is a subset of patients with EoE who have immediate symptoms that are not fully understood. Maybe IgE plays a role there.   [12:28] There are different mechanisms for how symptoms are caused and so different ways of making a diagnosis. A food allergy with an IgE antibody can be measured through skin tests and blood tests. This can help identify which foods are the trigger.   [12:57] This common T cell subset that we see in EoE and food allergy, helps to explain why IgE alone is not always a very specific marker for identifying people who will have immediate reactions when they're exposed to the food.   [13:17] For patients who react at low levels, it's not just that they have more or better IgE but they also have an expansion of these T cells that are common between EoE and other chronic forms of allergy and IgE food allergy.   [13:41] There's a lot to learn that might be relevant for patients about this T cell subset.   [14:23] These T cells are a specific subset of the group of Th2 T cells, which are a subset of all CD4 T cells. Some CD4 T cells are important for responding to viruses and tumors. Others are important for responding to outside allergens.   [15:01] In an allergy or a parasite infection, Th2 T cells are important. There is a subset of T cells that is driven by repetitive and chronic exposure to the triggering protein, antigen, or allergen.   [15:47] Most antigens are proteins that trigger an immune response. An antigen that elicits an allergic response is an allergen. [16:30] A food trigger is a protein antigen that is an allergen. In IgE, food allergies, milk, and eggs are prevalent triggers early in life. For reasons not well understood, a lot of people outgrow them. In older patients, peanut and tree nut allergies are prevalent.   [17:01] In EoE, milk is one of the most common dietary triggers into adulthood. Some patients with IgE allergy to milk can tolerate it if it's well cooked. Patients with EoE are less likely to be able to get away with regular and ongoing exposure to milk protein.   [17:54] Milk, eggs, and nuts are common triggers in both conditions. There can also be rare food allergy triggers. That's part of the early evidence that the adaptive immune response was likely to be involved. It can be so specific for some people to rare things.   [18:20] Hallmarks of something being immune-mediated are that it is reproducibly demonstrable as a trigger. It's going to be long-lived. It's going to be generally relatively small amounts. The immune system is good at detecting small exposures.   [19:07] EoE is tricky because there's not that clear and easy temporal association between an offending allergen exposure for most people and their symptoms. People don't associate the symptoms with the triggers.   [20:14] A history of having blood in the stools can be milk-allergen-driven and was associated with a diagnosis of EoE in those kids when they're older.   [20:26] There are a lot of commonalities in the allergens but it's not always obvious clinically.   [22:40] A challenge in diagnosing EoE is that providers have to be on guard against their biases. They have to give a patient good advice. In EoE there is no test to identify triggers, except rigorous introduction, elimination, reintroduction, and endoscopies.   [24:18] For some of Dr, Shreffler's patients, it becomes less important to know their dietary triggers. They gravitate toward an approved form of treatment that may, if successful, allow them to have a more normal diet because of effective medication.   [24:50] Dr. Shreffler thinks there are other triggers, including pollens. There is evidence of seasonality of active EoE in patients shown to have allergic sensitization to pollens. That's indirect evidence. If the body is making IgE, it's likely making other responses.   [25:32] There are questions about how large the population of patients is who have EoE that may be more intrinsically than extrinsically driven because of genetic variations.   [25:54] Dr. Shreffler believes that EoE in some patients is allergen-driven and in some patients EoE is food-driven. Food is a trigger for the majority of pediatric patients and a large percentage of adult patients but not necessarily the exclusive trigger.   [27:04] If a patient is motivated to learn what dietary triggers may be at play, Dr. Shreffler often makes assessments outside of pollen season for allergens to which the patient has demonstrated positivity.   [28:09] Looking at the epidemiology, both EoE and food allergy are atopic disorders. You see an increased prevalence of asthma, hay fever, eczema, and even allergic proctocolitis in infancy. You see an enrichment of one disorder to another.   [28:29] The overlap of food allergy to EoE is stronger than you might expect. About 30 to 40% of patients with EoE will also have IgE food allergy. A higher rate will have IgE positivity, whether or not that food is a trigger of immediate symptoms.   [28:48] Patients with food allergies are about four times more likely to have EoE than the general population. That's a stronger association than the risk of eczema or other atopic conditions to EoE.   [30:09] There are differences between IgE food allergy and EoE. The presence of IgE gives a useful tool for identifying the food trigger in food allergy, but not in EoE. Identifying rare triggers in EoE patients is done by clinical observation.   [31:46] Epinephrine and antihistamines are not useful in treating EoE. Blocking IgE with Omalizumab has not been effective in trials in treating EoE. PPIs, topical steroids, and dupilumab are helpful for many EoE patients.   [32:38] Dupilumab has been evaluated a bit in food allergy in combination with OIT, and there was no statistically significant benefit from dupilumab in food allergy.   [33:25] A group in Pennsylvania has been evaluating epicutaneous immunotherapy as a modality to treat EoE. It's also being evaluated for IgE food allergy. Dr. Shreffler thinks it's something to keep an eye on.   [33:40] The oral route for immunotherapy can drive EoE for patients. As they become less sensitive from an immediate reactivity viewpoint, a significant percentage of patients develop GI symptoms. This has also been observed with sublingual therapy.   [34:14] Iatrogenic EoE, caused by the treatment, may resolve on the cessation of the immunotherapy treatment.   [36:25] Dr. Shreffler says in some cases, the shared decision is a decision where he has a strong evidence-based opinion. In some cases, there's a lot more room for a range of clinical decisions that could be equally supported by what we know right now.   [36:57] We've said that EoE is a contraindication for OIT. There is a shift happening. Dr. Shreffler sits with families and has a conversation about restricting diet or trying chronic therapy and keeping an ad-lib diet.   [37:38] What about doing the same thing by treating the immediate-type food allergy with chronic allergen exposure and then ameliorating the effects of EoE if it emerges, with another therapy? A hundred providers would have a diversity of responses.   [38:19] When there is a history of EoE in a family, Dr. Shreffler advocates for getting a baseline scope. It becomes an important “ground zero.”   [38:28] The goal is to have less invasive ways to monitor these conditions.   [39:32] Chronic inflammation, which is the hallmark of EoE, is well-targeted by therapies like PPIs and steroids. Steroids don't help with IgE-related food allergies. They're not effective at blocking the IgE-driven immediate response.   [41:13] Until recently, IgE food allergy has only been managed with avoidance. We have some other tools now. Xolair is not effective in EoE but is effective in two-thirds to three-quarters of patients with immediate-type food allergies for preventing anaphylaxis.   [41:45] Dr. Shreffler refers to an upcoming study on the effectiveness of Xolair in treating people with food allergies. Those who were able to tolerate a minimum amount were allowed to begin consuming allergen. We'll get insight into how those patients did.   [43:08] Food-induced immediate response of the esophagus (FIRE) is immediate discomfort with exposure to some allergens. Dr. Shreffler explains it. Data supports that these patients are experiencing an IgE-mediated but local response to those triggers.   [44:59] If FIRE is IgE-mediated, it may be that Xolair would help suppress it in these patients. It's worth looking at Xolair for this subset of EoE patients.   [45:20] Ryan invites any listeners who want to learn more about FIRE to check out episode #34 with Dr. Nirmala Gonsalvez.   [45:37] In the paper, Dr. Shreffler wrote about what he hopes will be the practical usefulness of the finding, the intersection between IgE food allergy and EoE.   [45:56] A subset of Th2 T cells express a protein called GPR15. It appears to be a marker for the subset of cells that are playing a role in the EoE.   [46:36] Caitlin Burk's work now is looking at their activation status in active disease and post-diet elimination and remission. She is developing a data set that is leading us toward the possibility of focusing on that cell subset and techniques to adopt in clinics.   [47:12] She is also working out more advanced techniques to look at the receptors. Dr. David Hill at CHOP is working on similar research. This research has the potential to lead to the development of better tests for EoE.   [47:44] Holly tells Dr. Shreffler this has been such an informative episode with so many tidbits of things to help patients advocate for themselves. Holly thanks him for sharing all of that.   [48:12] Dr. Shreffler is trying to see what can be utilized from their research to make non-invasive tests to identify food allergen triggers for patients so they don't have to go through so many endoscopies. He sees it as a huge unmet need.   [48:31] Ryan thanks Dr. Shreffler for joining us. For our listeners who would like to learn more about eosinophilic disorders, including EoE, please visit APFED.org and check out the links in the show notes.   [48:41] If you're looking to find a specialist who treats eosinophilic disorders, we encourage you to use APFED's Specialist Finder at APFED.org/specialist.   [48:50] If you'd like to connect with others impacted by eosinophilic diseases, please join APFED's online community on the Inspire Network at APFED.org/connections.   [49:00] Ryan thanks Dr. Shreffler for joining us today for this interesting conversation. Holly also thanks APFED's Education Partners Bristol Myers Squibb, GSK, Sanofi, and Regeneron for supporting this episode.   Mentioned in This Episode: Dr. Wayne Shreffler, MD, Ph.D., Chief of Pediatric Allergy and Immunology and Co-Director of The Food Allergy Center at Massachusetts General Hospital “Triggers for eosinophilic esophagitis (EoE): The intersection of food allergy and EoE” Dr. Caitlin Burk Dr. David A. Hill   APFED on YouTube, Twitter, Facebook, Pinterest, Instagram Real Talk: Eosinophilic Diseases Podcast apfed.org/specialist apfed.org/connections   Education Partners: This episode of APFED's podcast is brought to you thanks to the support of Bristol Myers Squibb, GSK, Sanofi, and Regeneron.   Tweetables:   “This fascinating problem of food allergy: why does the immune system do that for some people — recognize what should be nutritive and innocuous sources of energy as an immunological trigger? ” — Dr. Wayne Shreffler   “A food allergy; because there is this IgE antibody, we can do skin tests. We can measure that in the blood. It's a useful marker for helping to identify which foods are the trigger.” — Dr. Wayne Shreffler   “EoE is tricky because there's not that clear and easy temporal association between an offending allergen exposure for most people and their symptoms. People don't associate the symptoms with the triggers.” — Dr. Wayne Shreffler   “Everything is shared decision-making. In some cases, it's a shared decision where I have a strong evidence-based opinion. In some cases, there's a lot more room for a range of clinical decisions that could be equally justified.” — Dr. Wayne Shreffler   “Steroids don't help with IgE-related food allergy. They're not effective at blocking that IgE-driven immediate response.” — Dr. Wayne Shreffler   “I'm trying to see what we can utilize from our research to make non-invasive tests to identify food allergen triggers for patients so they don't have to go through so many endoscopies. I think that's a huge unmet need.” — Dr. Wayne Shreffler  

In today's episode we chat to Katie, mum to Charlotte, who was diagnoses with FPIES after eating banana on holidays. Today's story is a positive one- with quick diagnosis thanks to her husband (who has a medical background) and getting a cancellation appointment to see an allergist they were well set up to manage Charlotte's FPIES with confidence. 

Send us a Text Message.“FPIES is real, both acute and chronic FPIES. It's not a myth, and it can be an allergic emergency.” -- Dr. Nowak-WegrzynJoin Dr. Mariam Hanna for a comprehensive discussion on Food Protein-Induced Enterocolitis Syndrome (FPIES) with Dr. Anna Nowak-Wegrzyn, a leading expert in pediatric allergy and immunology at NYU Grossman School of Medicine. Dr. Nowak-Wegrzyn sheds light on this unique and often perplexing condition, offering critical insights for healthcare providers.On this episode:Understanding FPIES:Dr. Nowak-Wegrzyn explains FPIES, a non-IgE mediated food allergy that manifests differently from traditional food allergies. She details the typical presentation of FPIES, including severe vomiting, lethargy, and pallor, which can occur a few hours after food ingestion.Difference in Presentation Between Children and Adults:Learn about how FPIES presents in different age groups. While it typically begins in infancy, Dr. Nowak-Wegrzyn discusses the mysterious cases where FPIES emerges in adults who have tolerated the triggering food for years.How FPIES Differs from IgE-Mediated Food Allergies:Understand the key differences between FPIES and IgE-mediated food allergies. Dr. Nowak-Wegrzyn outlines why skin and blood tests may be negative in FPIES cases, despite the severity of symptoms.Prognosis and Counseling Parents:Discover the prognosis for children with FPIES, with many outgrowing the condition by age three to five. Dr. Nowak-Wegrzyn emphasizes the importance of educating and empowering parents through careful counseling and shared decision-making.Management and Treatment:Dr. Nowak-Wegrzyn discusses current strategies for managing FPIES, including dietary modifications, careful introduction of new foods, and the potential use of ondansetron for managing symptoms at home. She also addresses the use of epinephrine in atypical FPIES cases with IgE sensitization.Tune in to this episode for an in-depth exploration of FPIES, offering practical advice and valuable insights for healthcare providers navigating this challenging condition.Visit the Canadian Society of Allergy and Clinical ImmunologyFind an allergist using our helpful toolFind Dr. Hanna on X, previously Twitter, @PedsAllergyDoc or CSACI @CSACI_caThe Allergist is produced for CSACI by PodCraft Productions

Kristin Houts, a Chicago-based Registered Dietitian and a member of the Dietitian Connection team, shares her personal journey from dietitian to allergy parent as she navigates the complexities of FPIES (Food Protein-Induced Enterocolitis Syndrome) with her son. Kristin brings a unique and deeply personal perspective as she opens up about the initial shock of discovering her son's condition, the lengthy diagnosis process and the daily challenges of managing a severe dairy allergy in an infant and toddler. Tune in to learn how Kristin's personal experience with FPIES has profoundly changed her approach to dietetics, making her more empathetic and knowledgeable when working with clients with allergies and intolerances.​ In this episode, we discuss:​ Kristin's lived experience with her son with FPIES​ Why you can't rely on skin and blood tests alone to diagnose food allergies​ The importance of oral food challenges for diagnosing FPIES​ How Kristin's experience has changed her approach to patient care​ Why managing FPIES requires support systems for the entire family​ ​For the shownotes: https://dietitianconnection.com/podcasts/living-with-fpies/ Hosted by Brooke Delfino The content, products and/or services referred to in this podcast are intended for Health Care Professionals only and are not, and are not intended to be, medical advice, which should be tailored to your individual circumstances. The content is for your information only, and we advise that you exercise your own judgement before deciding to use the information provided. Professional medical advice should be obtained before taking action. The reference to particular products and/or services in this episode does not constitute any form of endorsement. Please see here for terms and conditions.

Text Dr. Black your questions or comments.This episode of Eat Your Greens with Dr. Black delves into the complexities of food allergies, intolerances, and sensitivities in children, emphasizing the differences between them. A personal story from a mother, Carli, highlights the severe reaction (FPIES) her son had to oatmeal, underscoring the challenges parents face when dealing with uncommon food reactions. Dr. Black provides a comprehensive overview of food allergies, detailing how they're an immune response, typically immediate and potentially life-threatening, unlike food intolerances which result from digestive issues and are less severe. The episode also explores the concept of food sensitivity and its vague, non-specific symptoms. Misinformation and the exploitation of parents' concerns by the wellness industry are critiqued, particularly the misuse of IgG tests for diagnosing food allergies. Practical advice is given on diagnosing and managing food allergies and intolerances, with an emphasis on the importance of consulting healthcare professionals for accurate diagnosis and avoiding unnecessary dietary restrictions. Additionally, the discussion touches on the genetic and environmental factors contributing to food allergies, and the hopeful message that some food allergies can be outgrown. Finally, the talk highlights how adjustments in diet, based on solid medical advice, can improve symptoms and quality of life.Links for resources and information discussed in the episode:Food Allergy.orgNon-IgE-mediated gastrointestinal food allergyWhat is causing the rise in food allergy? A narrative review of risk factors for the development of food allergy in infants and childrenIf you enjoyed this episode, please take a moment to rate it, leave a review, and most importantly, share it with a friend! For my free guide to Living a Plant-Forward Life, visit the show website and subscribe! eatgreenswithdrblack.com For resources related to a plant-based diet or if you struggle to afford healthy food for your family, please go to eatgreenswithdrblack.com/resources.You can contact Dr. Black at dr.black@eatgreenswithdrblack.comI am happy to answer general questions related to the information presented on this podcast. Be advised that I will never offer specific medical advice via this website, even if your child is an established patient in my practice. If you have concerns about your child's health or growth, please contact their doctor.Thanks for listening and don't forget to Eat Your Greens!

Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED's Health Sciences Advisory Council, have a conversation about the Spoon Theory. In this episode, Ryan and Holly discuss the origin of the Spoon Theory, their experiences, and what the Spoon Theory means in their lives.   Listen to this episode to learn how the Spoon Theory could work for you. Disclaimer: The information provided in this podcast is designed to support, not replace the relationship that exists between listeners and their healthcare providers. Opinions, information, and recommendations shared in this podcast are not a substitute for medical advice. Decisions related to medical care should be made with your healthcare provider. Opinions and views of guests and co-hosts are their own.   Key Takeaways: [:50] Ryan Piansky and co-host Holly Knotowicz introduce the topic of today's episode, the Spoon Theory. Both Ryan and Holly will discuss their experiences.   [1:39] About ten years ago, fatigue became a challenge for Holly. As she researched options for managing her fatigue, Holly came across the Spoon Theory, a tool she uses and teaches now in conferences and talks.   [2:05] The Spoon Theory is a story written and copyrighted by Christine Miserandino in 2003 to help explain how chronic illness affects the amount of physical and or mental energy a person has available for daily activities and tasks and how it can be limited.   [2:28] About a year ago, in a Community Conversations episode of APFED's podcast, guest Ashley Spencer discussed EGPA. Ashley and Holly brought up the Spoon Theory. Ryan calls the Spoon Theory a digestible way to convey the effect of living with fatigue from chronic illness.   [2:46] Holly shared how Christine Miserandino developed the Spoon Theory while at brunch with a friend. Her friend asked Christine how she was coping living with lupus. Christine grabbed all the spoons from the table and explained that each task throughout the day costs a spoon.   [3:21] Christine asked her friend to walk through every activity of her morning. As her friend started talking about the different things she does, Christine would remove a spoon from her pile of 12 spoons. When dinnertime came, there was only one spoon. That limited her choices for dinner; this was long before dinner delivery services.   [4:19] Through this exercise, Christine's friend learned how chronic illnesses use up a lot of energy just from existing. For listeners who want to read more, please check out Christines' website, ButYouDontLookSick.com, linked in the show notes.   [4:33] Ryan sees the Spoon Theory as an easy way to convey what living with a chronic illness is like. He asks, why is it 12 spoons? Does everyone have the same number of spoons? In interviews, Christine has said 12 was the number of spoons on the table but it is a good representation of the limited supply people with chronic illnesses have.   [5:07] According to the theory, healthy people have an “unlimited” supply of spoons, while people with chronic illnesses have to ration their spoons to get through the day. Everybody's number is slightly different but the theory uses 12.   [5:22] Ryan shared a story about seeing his sister during the holidays. She doesn't have a chronic illness. She seems to have unlimited spoons for activities she plans, while Ryan may run out of spoons around 10:00 a.m.   [5:46] Ryan asks if it is always the same number of spoons per day. Holly says your baseline number is about 12 spoons. It can vary if you borrowed spoons from the day before or if you have spoons left over from the day before. Some say on a good day, you might wake up with 20 spoons but a bad day would start with 12 spoons.   [6:34] Holly explains about borrowing spoons. If you run out of spoons on one day, before you finish your activities, you might borrow spoons from the next day by canceling a planned activity for the next day. Holly also explains it to people as a lending library.   [7:49] When Ryan was young, he attended the APFED patient education conference every year. He recommends it. His parents warned him not to overextend himself but to take it easy and rest during the day. At every conference, he just kept going for 12-plus hours. When he got home, he would crash for a day. He had used up all his spoons!   [8:36] Ryan asks what happens when you run out of spoons. Holly shares that when you run out of spoons, your body might have a flare-up, or be more susceptible to getting sick because you've become rundown. [9:10] It can also lead to comparison with others and feeling sad or anxious because you don't have the energy that healthy people around you have. For the average person with chronic illness, cooking from scratch from a recipe could be three or four spoons. [9:51] For someone with a specialized diet, that could double. You're not just reading the recipe, you have to think about substitutions and go buy them. You have to know if the recipe will taste good with substitutions. It's mentally exhausting to follow recipes for specialized diets.   [11:04] Holly is an extrovert but sometimes being with people can take too many of her spoons, so she carefully plans her socializing. Being with good friends might take three spoons. Presenting at a conference takes more spoons. Walking a dog could take two spoons. Taking medication or brushing her teeth could take one spoon.   [12:10] For children with chronic illness, going to school might take four of their spoons. Playing soccer might take five spoons, so at times they don't have the energy. This can result in absences from school because they want to have typical social lives but don't have the energy and reserves to do so. It's the same for adults but it's a hard fact for children.   [12:53] Ryan was diagnosed with EoE at age two. Ryan thinks back to high school. He woke up at 6:15 every day to get to high school before 8:00. Getting to school on time probably took most of his spoons. The rest of the day was exhausting. He never did any extracurriculars in high school. By 3:00, he was down for the count.   [13:50] If Ryan's friends wanted to spontaneously do something after school, he often had to refuse. He needed a few days to prepare physically and mentally for extra activities. Having something sprung on him at the last minute drained more of his spoons. He would like to have had the Spoon Theory to explain it to his friends.   [14:52] Holly says there is a mental aspect to having a chronic illness. You have to think about things in advance, especially people living with eosinophilic diseases and/or those who have specialized diets. To consider going out to a meal, you might have to research a restaurant in advance or even talk to the chef. Thinking about and making these phone calls requires spoons.   [16:06] Recently Ryan planned to go out with friends. After they picked a restaurant and Ryan chose what he would order, the friends decided to try a different restaurant. Ryan had to check the menus of six other restaurants before they settled on the original one. The extra effort depleted Ryan's energy and he just sat quietly during dinner.   [19:14] Ryan didn't push himself to be social because it would have eaten into his reserve spoons for the following day. As it was, he slept in the next day.   [20:07] Ryan has had days where he has had to use up the next day's spoons, and then had the next day be equally busy.    [20:28] The Spoon Theory can be applied to different chronic illnesses. Most of them are invisible illnesses. It makes sense that Christine's website is named ButYouDontLookSick.com.   [21:29] Holly loves that the Spoon Theory provides a visual representation of how our energy works and how we can manage it. Because many chronic illnesses are invisible, people don't always understand why we have to cancel, abort, or decline plans. We often have to prioritize activities to protect our health. It's a different standard.   [22:10] We prioritize activities to protect our health and how we feel. Holly uses the Spoon Theory to explain why she declines plans in advance when she has too many things scheduled. She wouldn't be her best self. Holly rarely schedules anything for after an eight-hour workday.   [22:55] Holly thinks of herself as a dynamic person who brings a lot to the table. She doesn't want to be in an activity where she can't participate fully. It reflects on how much her diagnosis seeps into her life. She doesn't like to share her EoE with everybody, even though many people in her life know it and she does this podcast!   [23:25] Over the last six months, Holly's goal has been to map out her week to keep her energy consistent. She plans when to work out in the morning, when to see patients, and when to fly for international conferences. She gives herself a rest day after the flight or she stumbles and mumbles during the presentation. This means she often declines dinner invitations.   [24:45] Holly will accept invitations to destination weddings but then will not book anything extra for a week afterward or she knows she will get sick. It's a pattern.   [25:28] Ryan says sometimes people can tell when he's not at his best, but for the most part, he looks relatively healthy. He's up and about, at meetings and conferences but it's such a limited amount of energy that he has available. It's hard for people with unlimited spoons to gauge how many spoons Ryan has left.   [25:57] Holly often presents at medical conferences about feeding therapy, eosinophilic diseases, food allergies, FPIES, and tube feeding, and she incorporates the Spoon Theory into some of her talks. She has spoons at the podium and starts dropping them as she goes, holding one or none by the end. That's when questions come.   [27:25] Holly likes people to know that when they're working with kids with chronic illness, it's important to pace out their therapy. For example, give a patient two things to work on until the next time, not ten, to be successful.   [28:50] Ryan clusters his multiple specialist annual visits at the start of the fall semester and at the beginning of the spring semester. That means he misses some classes and lectures at the beginning of each semester. It is draining. Tests eat up half his spoons for the day.   [30:35] Holly shares how applying the Spoon Theory impacts managing her health. The Spoon Theory helps her create and maintain boundaries. She adamantly tries to stick to a schedule that rarely depletes her spoons per day. It's still a work in progress. Holly has a therapist who is helping her work on it.   [31:08] Holly schedules social things on days when she has little to no other obligations. She has to maintain that schedule. She has good days and sometimes great weeks which leads her to add more to her plate, but then she runs out of spoons more quickly because she's borrowing from the next day. Eventually, she has no spoons to borrow.   [31:42] Holly went on vacation for her birthday and then last week she was doing great, taking some urgent referrals for babies. This week, she had to cancel things. She is learning that she needs to schedule time to recharge and rest even on good days.   [32:26] Holly has learned there are ways to increase your number of spoons. The most important things are to be compliant with treatment and follow a specific diet (if recommended). A lot of chronic illnesses have a specific researched diet to help you stay healthy. When you have a cheat day, you're harming yourself by taking spoons from your next day.   [33:31] Working out helps with anxiety and depression. There are physical and mental health benefits. Holly started tracking over the last eight months how many spoons working out earned for her, compared to the spoon it took from her. She finds that it adds three to five spoons to her daily reserve. The endorphins boost her energy.   [34:14] Ryan agrees. He goes to the gym at least twice a week. If he misses a day, he feels worse. He goes out for a walk on days he's not going to the gym just to get moving and he feels better after that. Being stuck inside all day is mentally draining as well. Going for a walk takes extra effort but it does feel better.   [35:32] Ryan and his mother have similar food allergy issues so they both carefully stick to their diet. If they vary their diets on vacation, even without eating triggers or allergens, they feel physically bad for a few days until they get back to their usual diets.   [36:28] Once Holly learned about this theory and was making new contracts, she realized that there may be times when she might have to cancel and reschedule. When she sends an email about an engagement, she includes an article on the Spoon Theory and describes what she is struggling with, in case she has to reschedule.   [37:42] The Spoon Theory is a good way to describe to friends or family why the person with the chronic illness isn't hosting the holiday but may need to go to a room and rest at the host's home. It's a tool to inform loved ones and friends so they can be supportive. It's a different way to share our struggles with our chronic illness. [38:27] When Ryan meets people and tells them about his health issues, he might say he has food allergies but then also explain how his conditions lead to a limited supply of energy, and then tell about the Spoon Theory. It's a helpful tool we can all use, going forward.   [39:08] Our listeners can learn more about the Spoon Theory by going to Christine Miserandino's website, ButYouDontLookSick.com.    [39:47] To learn more about eosinophilic disorders, visit APFED.org. If you're looking for a specialist who treats eosinophilic disorders, use APFED's specialist finder at APFED.org/Specialist. [40:05] To connect with others impacted by eosinophilic diseases, please join APFED's online community on the Inspire Network at APFED.org/Connections.   [40:14] Ryan thanks Holly for sharing information about the Spoon Theory. It means a lot to Holly that we have a platform to reach a lot of people. Holly hopes if you are struggling with a chronic illness that you are not alone and you can use this tool to bring your loved ones and friends closer. Maybe weed out the people who aren't helping.   [41:15] Holly thanks APFED's education partners, AstraZeneca, Bristol Myers Squibb, GlaxoSmithKline, Sanofi, and Regeneron, linked below, for supporting this episode.   [41:26] Ryan shares how he just met his partner's friend and by discussing symptoms while picking a place to eat, it turns out she was diagnosed last year with EoE. It's unusual for him to meet people with EoE out there randomly. Ryan is glad to be creating this resource for people. Holly agrees 1,000%.   Mentioned in This Episode: Christine Miserandino ButYouDontLookSick.comAmerican Partnership for Eosinophilic Disorders (APFED) APFED on YouTube, Twitter, Facebook, Pinterest, Instagram Real Talk: Eosinophilic Diseases Podcast APFED.org/Specialist APFED.org/Connections   Education Partners: This episode of APFED's podcast is brought to you thanks to the support of AstraZeneca, Bristol Myers Squibb, GlaxoSmithKline, Sanofi, and Regeneron.   Tweetables:   “Approximately 10 years ago, fatigue became a real challenge for me and as I researched options on how to manage fatigue, I came across the spoon theory, which is what we're going to specifically discuss today.” — Holly Knotowicz   “[The Spoon Theory] is such an interesting story and it feels like such an easy way to convey what living with a chronic illness is like.” — Ryan Piansky “We all have people in our lives whom we love dearly, but they could maybe be taking too many of our spoons, so you have to be thoughtful about when you plan time with them.” — Holly Knotowicz  

As if starting solids isn't overwhelming enough, we also have to think about introducing allergens. Is my baby going to have a reaction? How will I know? When is the right time to start? Help!On today's episode, we dedicate a whole "help me" episode to the hot topic of introducing allergens. We completely understand that this can be a stressful time for many families, and while we wish there could be certainty, the fact is there is no way of knowing 100% whether or not your little one will develop a food allergy. But we hope today's episode arms you with knowledge and some comfort around what to expect.For those who are tuning in for the first time, a little about us…Luka McCabe - founder of Boob to Food, author of Milk to Meals, registered nurse and midwife, as well as mum of 3Kate Holm - naturopath, nutritionist,  clinical director of Boob to Food and mum of 3In this podcast we discussWhat is a food allergy and how it differs from a food sensitivity or intoleranceWhat is FPIES (and Kate's personal experience with this)What are the top 9 allergens and some tips before introducing themWhen is the right time to start the introduction and which foods to introduce firstThe signs of an allergic reaction and what to do nextRecommendations on how often your child should be exposed to an allergen food and what counts as an exposure... and so much more!You may also like to download our ALLERGEN TRACKER so you can keep track of how you are progressing and whether or not any reactions have occurred.Today's episode is brought to you by Stokke - Nomi. We are long time fans of Stokke and their new Nomi chair is no exception. Ergonomically designed and tool free adjustment, this is the perfect chair to grow easily with your child from newborn, for life! Despite its solid construction, it is so lightweight it can even hang on your table when you inevitably have to clean the floor after meal times.Until the 1st of April 2024 you will receive a free newborn set with every Nomi bundle purchased via the unique link HERE (no code needed).Follow us on instagram @boobtofood to stay up to date with all the podcast news, recipes and other content that we bring to help make meal times and family life easier.Visit www.boobtofood.com for blogs and resources, to book an appointment with one of our amazing practitioners and more.Presented by Luka McCabe and Kate HolmTo get in touch please email podcast@boobtofood.com

On this episode of Food Allergy Talk, I welcome Seely, of Mouse Ear Memories. She focuses on the Orlando Theme Parks for food allergies and gluten free options. Seely lives in Orlando and visits Disney World weekly to cover on her website, socials and ebooks. She has three ebooks, the Disney World Food Allergies Made Easy guide, the Disney Food Allergy Snack Guide, and the Gluten Free Disney World Guide. When she first started covering Disney World her two children with FPIES were top 14 free, and while they've lost some allergies, she still manages several in the top 8, and covers all Top 8 food allergies in her Disney guides.We will talk all things food allergy at Disneyland Resort, California Adventure, Walt Disney World, and Disney Cruise Lines! Previous Episode 22 of the Food Allergy Talk Podcast, referenced on this episode regarding FPIES: https://foodallergytalk.buzzsprout.com/1904835/10963600-ep-22-what-is-fpies-with-amanda-lefew-of-the-fpies-foundation-food-allergy-talkBio: Seely started MouseEarMemories in 2018 to share about Food Allergies and Gluten Free finds at the Orlando Theme Parks. Through her work, she's helped over 10,000 families enjoy a safe trip to Disney World with her expertise on all things Food Allergy Orlando. A fan of mild roller coasters, she loves Everest, Cosmic Rewind and Hagrids Motorbike. She lives in Orlando with her three kids. Links: Website - https://Mouseearmemories.com Disney Ebooks for Food Allergies or Gluten Free - https://mouseearmemories.com/shop/Instagram- https://www.instagram.com/mouse.ear.memories/Facebook- https://www.facebook.com/mouseearmemories/Join My Private Facebook Group to connect, support and share: https://www.facebook.com/groups/FoodAllergyPI/Read My Articles on WebMD: https://blogs.webmd.com/food-allergies/lisa-horneThe Everything Nut Allergy Cookbook: https://www.simonandschuster.com/authors/Lisa-Horne/190009636The Food Allergy Talk Podcast: https://foodallergypi.com/the-food-allergy-talk-podcast/Food Allergy P.I. Blog: https://foodallergypi.comX: @foodallergypi & @fatalkpodcastInstagram: https://www.instagram.com/foodallergypi/ and https://www.instagram.com/foodallergytalk/ TikTok: https://www.tiktok.com/@foodallergypiEmail: foodallergypi@gmail.com

On part two of this two part Say Grace podcast, Constance has Jess on to discuss the rare food allergy of their daughter called, FPIES- Food Protein Induced Enterocolitis Syndrome.   On the last episode they shared their experience leading up to the FPIES diagnosis. On this episode, Constance and Jess talk about how the shift after the diagnosis changed everything in their lives and they weren't even expecting it!   Listen in to hear about how the years of FPIES not only affected how they ate, but how it altered Constance's career and outlook.

On this two part Say Grace podcast, Constance has Jess on to discuss the rare food allergy of their daughter called, FPIES- Food Protein Induced Enterocolitis Syndrome.   FPIES rocked their worlds as young parents, but also unexpectedly became one of the biggest blessings for the family.   Listen to part 1 to hear about how they got the FPIES diagnosis, signs they recognized in hindsight, and how they moved forward as a family.   Make sure to tune in for part 2 next week to hear about the aftermath of the FPIES diagnosis, what the change meant, and how it completely changed Constance's life, purpose and their family direction.

In this episode of Nutrition Pearls: the Podcast, Megan Murphy and Jen Smith host dietitian Raquel Durban.   Raquel is a registered dietitian specializing in the dietary management of families with food allergies at Carolina Asthma & Allergy Center in Charlotte, NC.  As a recognized authority on the dietary and nutritional management of food allergies, Raquel is a frequently invited speaker at allergy and immunology conferences and has the pleasure of precepting dietetic interns. She has contributed her expertise to peer reviewed publications and continuing education programs. During this episode she will discuss FPIES and nutrition considerations and management. Questions regarding FPIES email, raquel.durban@gmail.comResources:  Nowak-Wegrzyn A, et al.  International consensus guidelines for the diagnosis and management of food protein–induced enterocolitis syndrome: Executive summary—Workgroup Report of the Adverse Reactions to Foods Committee, American Academy of Allergy, Asthma & Immunology.  J Allergy Clin Immunol. 2017;139:1111-26. https://www.fpies.org/wp-content/uploads/2018/08/IFPIES-ER-Letter-2018.pdf https://www.fpies.org/Produced by: Megan MurphyNASPGHAN - Council for Pediatric Nutrition Professionalscpnp@naspghan.org

This one is about working on the pediatric feeding team and your role as the SLP from your initial evaluation to the development of a very detailed treatment program. This is PreChaining 101 from birth to age one year. I also discuss how to see the big scary red flags and the all important signs of big anatomical TROUBLE. So jump in, let's learn about these extremely complex issues that lead to severe feeding problems and aversion. --- Send in a voice message: https://podcasters.spotify.com/pod/show/cheri-fraker/message

Dr. Jenna Timboe, a pediatrician and a mom to a child with food allergies, will discuss: The signs of cow milk allergies, like rashes, reflux and vomiting What to do if you suspect your infant is allergic to cow's milk How switching to a hypoallergenic formula can help provide babies with relief from the unpleasant symptoms of this allergy As the country continues to face the impacts of the baby formula shortage, Dr. Timboe will share what formula options are available to caregivers of infants with cow milk allergy in the U.S. About Dr. Jenna Timboe, Pediatrician - Dr. Jenna Timboe completed her medical school education at Keck School of Medicine at University of Southern California. She pursued a pediatric residency at University of California, Irvine – Children's Hospital of Orange County and then stayed at UCI/CHOC for an additional year as Chief Resident. She has been working at a private practice as an outpatient pediatrician in Ladera Ranch, CA since 2017. Dr. Timboe and her husband, Andy, have 3 children, Hailey (6), Robby (4) and Weston (1). When Hailey was 5 months old, she was diagnosed with Food Protein Induced Enterocolitis Syndrome (FPIES), prompting Dr. Timboe's special interest in FPIES, food allergies, and gastroesophageal reflux disease in infants.    About Teaching Your Toddler: Please like and subscribe to our podcast and leave a 5-star review so we can reach more parents like you! Subscribe to our podcast by sending an email to subscribe@teachingyourtoddler.com  For more expert interviews, fun activities and story time podcasts, please visit our website at TeachingYourToddler.com Check us out on Facebook at Teaching Your Toddler and on twitter at @TeachingToddler and on Instagram at @teachingyourtoddler  To support great future content, please click here and help us out with a $5 gift: glow.fm/teachingyourtoddler Leave us some feedback on this show and your ideas for future shows! #parenting #toddlers #moms #momlife #kids #podcast #toddlerlife 

Vi har besøk av en dyktig gjest, Vibeke Landaas, som er klinisk ernæringsfysiolog ved Barne- og ungdomsklinikken på Rikshospitalet. Anna Bistrup snakker med Vibeke om Food protein-induced enterocolitis syndrome (FPIES). De går igjennom diagnosen, symptomer og utredning. Les mer om Melkeproteinallergi: https://www.naaf.no/allergi/matallergi/melkeproteinallergi Trenger du råd og veiledning om astma, allergi, eksem, kols eller inneklima? Kontakt våre rådgivere: https://www.naaf.no/tilbud-til-deg/rådgivningstjenesten Har du tips til temaer du vil høre mer om, kontakt oss på podkast@naaf.no Denne episoden er laget med støtte fra Stiftelsen Dam - https://dam.no/

Sitting at FAACT's Roundtable today is Fallon Schultz, Founder and Executive Director of the International FPIES Association. Learn the basics of FPIES, including how FPIES can present in adults and steps to take if you suspect that you or a loved one might have FPIES.To keep you in the know, below are helpful links for adults with food allergies:International FPIES AssociationFPIES UniversityEmergency Room Letter (designed by a patient for IFPIES)FPIES GuidelinesYou can find the FAACT Roundtable Podcast on Pandora, Apple Podcast, Spotify, Google Podcast, Stitcher, iHeart Radio, Podcast Chaser, Deezer, and Listen Notes.Visit us at www.FoodAllergyAwareness.org and follow us on Facebook, Twitter, Instagram, LinkedIn, Pinterest, TikTok, and YouTube. Contact us directly via Email.Sponsored by: American College of Allergy, Asthma, and ImmunologyThanks for listening! FAACT invites you to discover more exciting food allergy resources at FoodAllergyAwareness.org!

"I'm treading water. I'm surviving. That's all I have right now."About This Episode: It's Mama Monday! This week, I'm talking with mom Kahrissa. She talks about what true survival looks like in her life - and what she wishes she could change. Here are just some of the topics we discussed:-How being vulnerable allowed others to help her-What "survival" looks like in her house-Life with daily doctor appointments, meltdowns, Autism, FPIES, and complex medical needs-When "being resilient" doesn't feel like a complimentPlease shower Kahrissa with love and support by SHARING this episode with a mom who needs to hear her story. Connect with Kahrissa on IG @the_advocating_mom.April registration for Mothers Together has officially begun! Not sure if it's right for you? You have until 4/10 to cancel for a FULL refund. There's nothing to lose - only community to gain! Save your spot at ontheharddays.com/motherstogether.I ALWAYS welcome YOUR thoughts! Feel free to DM me on IG (@on.the.hard.days) or email me: ontheharddays@gmail.com. This podcast is what it is because of YOU.And speaking of the podcast, YOU all recently got me to my goal of 100K downloads. Thank you!The best way to keep this podcast download streak is to:1) Subscribe to the podcast - your device will automatically download new episodes!2) Share the show with others - think therapists, pediatricians, and teachers!3) Leave a rating/review for the show - the Apple algorithm will push the show out to more moms who need the support and validation!THANK YOU, so very much, for your continued support! 

Did you feel frazzled at your first pediatrician's appointment? Did you cling to your baby feeding goals because your birth didn't turn out the way you hoped? Kaitlin McGreyes of Be Her Village tells three very different breastfeeding stories that showed varying levels of support. But one thing rang true throughout– the levels of support she felt and didn't feel made it clear that she wanted to change how much support other parents felt, and she wanted to do that starting in pregnancy, and wanted to make support a part of the mainstream conversation.On this episode you will hear themes related to: Being disappointed in your birth story Clinging to your breastfeeding outcomes as a result of your birth outcomes The importance of finding a pediatrician who truly supports human milk feeding Remembering that pediatricians work for parents Every baby is different How emotional baby feeding can be even years after the fact Baby registries and big box stores don't talk to families about support Helping families get support paid for FPIES in the breastfeeding infant Finding your own diagnosisHead to Apple Podcasts or Spotify for more Milk Making Minutes episodes!Listen to Episode of The Milk Making Minutes on Amazon Music too!Parents: behervillage.comCreate your FREE registry and fund your support team!Birth Workers: behervillage.com/partnersUse code MILKMAKING25 to save 25% off any annual plan and/or Gift Registry Expert Certification course.To find my listing on be her village go to:https://behervillage.com/partners/quabbinbirthservicesTo connect with Be Her Village on IG:https://www.instagram.com/behervillage/To book a lactation consultation with me, visit my website: www.quabbinbirthservices.com. In many cases I can bill your insurance, or create a superbill for you to submit for reimbursement. I offer virtual consults for clients outside of my service area!Follow me on IG @lonigrosh to laugh about baby feeding (so you don't cry) and to see photos of guests. Follow me on TikTok to answer questions of the day and ponder systemic inequities together: @lonigroshibclc

Sitting at FAACT's Roundtable Podcast is the newly installed president of the American Academy of Allergy, Asthma, and Immunology (AAAAI) and board-certified allergist, Dr. Jonathan Bernstein, who explores medical prior authorization barriers for people with food allergies and related conditions. Learn about the challenges and how you can address barriers and help support impact. To keep you in the know, below are helpful links for adults with food allergies:American Academy of Allergy, Asthma, and ImmunologyBernstein Allergy GroupNeedy Meds WebsiteGood RX WebsiteFixpriorauth.org (American Medical Association sponsored prior authorization advocacy website)You can find the FAACT Roundtable Podcast on Pandora, Apple Podcast, Spotify, Google Podcast, Stitcher, iHeart Radio, Podcast Chaser, Deezer, and Listen Notes.Visit us at www.FoodAllergyAwareness.org and follow us on Facebook, Twitter, Instagram, LinkedIn, Pinterest, TikTok, and YouTube. Contact us directly via Email.Sponsored by: Genentech*Please note that today's guest was not sponsored by Genentech or compensated in any way by the sponsor to participate in this specific podcast.Thanks for listening! FAACT invites you to discover more exciting food allergy resources at FoodAllergyAwareness.org!

#286: Can babies be intolerant to dairy foods and cow's milk protein? If your baby had blood and/or mucous in the stool early on in infancy you may have switched to a hypoallergenic formula or if breastfeeding then mom started cutting things out of her diet like dairy or soy. But when the baby starts eating solid foods do you have to still avoid these foods? My guest is leading pediatric food allergy and infant nutrition researcher Marion Groetch, MS, RDN who will be teaching about Food Protein Induced Allergic Proctocolitis (FPIAP) and how to handle this quickly resolving type of non-Ig-E mediated food allergy.  Marion was previously on the BLW podcast teaching about FPIES and you can listen to that episode FPIES: How Do I Know if My Baby Has Food-Protein Induced Enterocolitis Syndrome? with Marion Groetch, MS, RDN at https://blwpodcast.com/episodes/230.  Want ideas on how your baby can safely eat the potentially allergenic foods? Get your copy of the 100 FIRST FOODS list on Katie's free BABY-LED WEANING FOR BEGINNERS workshop: https://babyledweaning.co/workshop Follow @babyledweanteam on IG: https://www.instagram.com/babyledweanteam/ Shownotes with all the links mentioned in this episode are here: https://blwpodcast.com/286 If you learned something from this episode and like this podcast, your review means the WORLD to us and helps other parents find this important evidence-based infant feeding info. Click here to leave a review on Apple podcasts and thanks for being a part of this amazing and supportive BLW community! Learn more about your ad choices. Visit megaphone.fm/adchoices

#286: Can babies be intolerant to dairy foods and cow's milk protein? If your baby had blood and/or mucous in the stool early on in infancy you may have switched to a hypoallergenic formula or if breastfeeding then mom started cutting things out of her diet like dairy or soy. But when the baby starts eating solid foods do you have to still avoid these foods? My guest is leading pediatric food allergy and infant nutrition researcher Marion Groetch, MS, RDN who will be teaching about Food Protein Induced Allergic Proctocolitis (FPIAP) and how to handle this quickly resolving type of non-Ig-E mediated food allergy.  Marion was previously on the BLW podcast teaching about FPIES and you can listen to that episode FPIES: How Do I Know if My Baby Has Food-Protein Induced Enterocolitis Syndrome? with Marion Groetch, MS, RDN at https://blwpodcast.com/episodes/230.  Want ideas on how your baby can safely eat the potentially allergenic foods? Get your copy of the 100 FIRST FOODS list on Katie's free BABY-LED WEANING FOR BEGINNERS workshop: https://babyledweaning.co/workshop?utm_source=Shownotes&utm_medium=Podcast&utm_campaign=Episode%20Link Follow @babyledweanteam on IG: https://www.instagram.com/babyledweanteam/ Shownotes with all the links mentioned in this episode are here: https://blwpodcast.com/286 If you learned something from this episode and like this podcast, your review means the WORLD to us and helps other parents find this important evidence-based infant feeding info. Click here to leave a review on Apple podcasts and thanks for being a part of this amazing and supportive BLW community! Learn more about your ad choices. Visit megaphone.fm/adchoices

Information for Parents and Caregivers, A research based reference for navigating Food Protein-Induced Enterocolitis Syndrome. For more about Dr. Evka, go to https://www.evkamd.com/ To get the book, go to https://www.amazon.com/dp/1723438669/

Anyone who's known FPIES knows how painfully hard it is to have a balanced diet despite it. Veronica Lamb, my guest for today's episode, has dealt with her children's food FPIES sensitivities ever since they were babies. She recollects her time from diagnosing and realizing hers and her children's food sensitivities to adjusting food habits at home and empowering her children to live their lives happily despite the problems. On the professional front, Veronica is a holistic health & life coach who helps high-achieving women transform their lives with a simple five-minute daily practice, her own signature “TRUE PRESCRIPTION FRAMEWORK”. Her approach is always holistic - involving spirit, mind, and body to get sustainable life-long results. Plus, she comes with 14 years of experience in the game. Listen in to learn how this mamma progressed through her kids' food journey and how she's helped one of them even overcome it over time! We'll discuss: What FPies sensitivities are and how they affect your daily life: Food Protein-Induced Enterocolitis Syndrome refers to a sensitivity to cow's milk, soy, coconut milk, and related foods. It causes diarrhoea, vomiting, and related issues. Listening to your body to understand what food suits and doesn't: Veronica uses her daughter's example to share how important it is to listen to what our body says it cannot have. Dealing with the stress of managing her kids' different food sensitivities and related health issues: Veronica resorted to CBD oil to get proper sleep. She also sought the help of an online virtual community. How do you manage a social life with all your insensitivities? Bring your own food wherever you go. Let your friends know the seriousness of your condition. How to encourage kids with insensitivities to live their life happily without fear: Tell them how common it is. Many people in the world have small or big insensitivities; while some know of it, others don't.     About Veronica:   Veronica is a holistic health & life coach. With 14 years of experience coaching women, she developed her own signature “TRUE PRESCRIPTION FRAMEWORK” to help female leaders transform their life with a simple 5-minute daily practice. Podcast listeners can get a FREE Diagnostic Discovery Session. We talk about where you are & the strategy to get you healed, whole, and thriving. Book your free call here: https://calendly.com/veronicalambhnl/free-call *Spots limited, August only*     Find Veronica online! Instagram: https://www.instagram.com/veronicalambhnl/ Website: https://www.veronicalamb.com   Find me online! Etsy: @foodallergyawesomeness IG: @foodallergyawesomeness TikTok: @foodallergyawesomeness

Dr. John James is an Allergy, Asthma and Immunology specialist certified by the American Board of Allergy and Immunology, particularly interested in pediatric food allergy and anaphylaxis. He has a strong family history of asthma, food allergies, and eczema and has been diagnosed with FPIES*. After 30 years in a clinical setting, he wanted a change in how he benefits patients. In January of 2021, he formed and launched a new business called Food Allergy Consulting and Education Services, LLC.   With his diagnosis of FPIES, Dr. James discusses what it is and what it looks like and talks about his experiences with its diagnosis and management. He explains the most common misconceptions and shares what he wishes food allergy sufferers better understood. Dr. James shares his thoughts on changes needed for consistent care across food allergy medical professionals. What are the most exciting next steps in the food allergy arena? Dr. James lets us know his thoughts. *Food protein-induced enterocolitis syndrome (FPIES) is a rare food allergy that affects the gastrointestinal (GI) tract. 

On this episode of Food Allergy Talk, I welcome Amanda LeFew, Co-Director of The FPIES Foundation.Amanda LeFew lives with her husband and two daughters in Massachusetts, both children have FPIES. Amanda is a Foundation Founding Member and Executive Co-Director, currently serving as Co-Chair and Medical Liaison of The FPIES Foundation.Today we will discuss with Amanda  her story, FPIES – what it is, symptoms, diagnosis and management. As well as The FPIES Foundation and their role in the community. We also talk about resources and tools for diagnosis, doctors, and more. Community support for parents as well as information on starting a support group.Resource links from The FPIES Foundation:What is FPIES?https://fpiesfoundation.org/about-fpies-3/https://fpiesfoundation.org/is-this-fpies/https://fpiesfoundation.org The FPIES Foundation websitehttps://fpiesday.com Global FPIES Day siteSocial mediahttps://twitter.com/fpiesfoundationhttps://www.facebook.com/FPIESFoundationhttps://www.youtube.com/TheFPIESFoundationFPIES Foundation Support Forum for families https://thefpiesfoundation.hoop.la/FPIES Toolbox https://fpiesfoundation.org/resources/Quick start guide to doctor's visits https://fpiesfoundation.org/doctor-visits/Facebook:https://www.facebook.com/FPIESFoundation/Twitter:https://twitter.com/fpiesfoundationYouTube:https://www.youtube.com/channel/UClLx49dWjxhkWG2Fi2P1pTg/featuredListen online anytime: https://foodallergypi.com/the-food-allergy-talk-podcast/ or on any podcast player.

Is your child dealing with digestive issues? Want to know how to treat common concerns like constipation, diarrhea or belly aches naturally? Curious what digestion has to do with bedwetting? Tune in to hear us cover all things kids and digestion, from resolving infant colic to easing tummy aches to more serious conditions like FPIES and beyond.    In this episode, Ali and Becki drill down on common digestive issues starting from birth through preteen and teenage years. Learn what to have in your farmacy for occasional constipation complaints, foodborne illness, and even those nasty gut bugs like norovirus. Plus get insight into how to supplement kids for ongoing digestive resilience and a proactive approach to support their digestion as they grow!    Also in this episode:  Use code PODCAST300 for 15% off your next supplement order! Expires 7/31 Back to School Webinar August 17th Sign Up Now for this FREE Webinar, spaces are limited!  Flash Sale on Food As Medicine for the Whole Family Program use code BACKTOSCHOOL Episode 286 Digestive Health Q&A Belly Aches and ColicDigestaid for mom Metagenics Baby Probiotic Rebuild Spectrum Probiotic Gripe Water SBI Protect KidsBiotic Restore Baseline Probiotic Digestaid GI Lining Support MRT Food Sensitivity Panel  GERD in KidsGinger CookiesEffectiveness of Nutritional Ingredients on Upper Gastrointestinal Conditions and Symptoms: A Narrative Review Melatonin Episode 242: Heartburn and Reflux 5 Ways to Manage Heartburn and Why You Should Toss Your PPI and Antacids! MultiAvail Kids ConstipationEpisode 105: Perfecting Your Poop Perfecting Your Poop [Constipation and Why Miralax is Not the Solution] Coconut Oil Prune Puree Relax & Regulate Probiotic Challenge KidsBiotic PhytoFiber BedwettingNocturnal enuresis and allergy DiarrheaRebuild Spectrum Probiotic GI Cleanup MRT Food Sensitivity Panel  Electrolyte Limeade Congee Recipe Bone Broth Popsicles GI Lining Support  FPIESGI Lining Support  Digestaid SBI Protect MultiAvail Kids   Sponsors for this episode:  This episode is sponsored by FOND Bone Broth Tonics, Your Sous Chef in a Jar. FOND is slow simmered and lovingly tended from simmer to seal. They partner with organic farms and hand-pick and pair ingredients to optimize absorption and taste. Use code ALIMILLERRD to save at fondbonebroth.com. 

Have you ever wondered what an allergist is really thinking when that allergist is asking very specific, particular questions about your kiddo's reaction to a food? That's because the allergist is trying to determine the underlying type of reaction.  While some adverse reactions to foods are food allergies, other reactions are not immune-mediated and, thus, are not allergies. And not all food allergies have the same clinical presentations or treatments!It's so very important to identify and understand the type of adverse reaction to food that's present so that a clear and effective management plan can be put into place.This episode has a ton of information that's foundational to understanding food allergies! Don't miss this!Stop wondering about food allergy testing! Check out Dr. Hoyt's ebook The Food Allergy Mamma's Guide to Food Allergy Skin & Blood Testing: What It All Really Means!What's your food allergy question? Submit it and learn more about food allergy and YOUR kiddo through the Food Allergy and Your Kiddo website: https://foodallergyandyourkiddo.comAre you in need of an allergist in your area? Check out these allergist finder tools from the American Academy of Allergy, Asthma and Immunology and the American College of Allergy, Asthma and Immunology:AAAAI Allergist Finder: https://allergist.aaaai.org/find/ACAAI Allergist Finder: https://acaai.org/locate-an-allergistDoes your kiddo's school need help with medical emergency response planning? Check out Code Ana, the non-profit program that is equipping schools for medical emergencies like anaphylaxis.www.CodeAna.orgVisit us on Instagram!https://www.instagram.com/hoytfoodallergy/The Hoyt Institute of Food Allergy is the Official Allergy Practice of Food Allergy and Your Kiddo. Information on, within, and associated with this site and Food Allergy and Your Kiddo is for educational purposes only and is not medical advice.

Are you excited about summer? (We sure are!!!) And with summer come new yet familiar challenges regarding food allergies. Tune in to this fantastic, tactical episode in which Pam and Dr. Hoyt discuss their top 3 must-do's to have a wonderful, safe, low-stress summer. SPOILER ALERT: it's all about being prepared!Stop wondering about food allergy testing! Check out Dr. Hoyt's ebook The Food Allergy Mamma's Guide to Food Allergy Skin & Blood Testing: What It All Really Means!What's your food allergy question? Submit it and learn more about food allergy and YOUR kiddo through the Food Allergy and Your Kiddo website: https://foodallergyandyourkiddo.comAre you in need of an allergist in your area? Check out these allergist finder tools from the American Academy of Allergy, Asthma and Immunology and the American College of Allergy, Asthma and Immunology:AAAAI Allergist Finder: https://allergist.aaaai.org/find/ACAAI Allergist Finder: https://acaai.org/locate-an-allergistDoes your kiddo's school need help with medical emergency response planning? Check out Code Ana, the non-profit program that is equipping schools for medical emergencies like anaphylaxis.www.CodeAna.orgVisit us on Instagram!https://www.instagram.com/hoytfoodallergy/The Hoyt Institute of Food Allergy is the Official Allergy Practice of Food Allergy and Your Kiddo. Information on, within, and associated with this site and Food Allergy and Your Kiddo is for educational purposes only and is not medical advice.

It's my fault. My faith isn't strong enough. Ever say that to yourself? Mom of 2, former pediatric nurse and blogger of This Bread Will Rise, Lauren Larson shares her journey with self-blame and the realizations she's had about her faith walk as she navigates her baby's medical diagnosis of FPIES, a gastrointestinal condition. If you're taking on the weight of trying to do everything through your own strength, you'll walk away with practical, honest advice on inviting God in, what to do when it's hard to pray, and how to find God's peace and comfort especially when He feels far away. -----To connect with Lauren, visit her website, Instagram, and Facebook page.Enjoying the show? Rate us on Apple, Spotify or Momsgrabcoffee.com.Sign up for our email list for new episode alerts.Support the Moms Grab Coffee Podcast-----Music Credits: Soundroll and Zoo

#230: What is FPIES? How do I know if my baby has FPIES? Although food protein-induced enterocolitis syndrome is a very rare food allergy reaction in babies, it is important for parents to understand the difference between an IgE and non IgE mediated allergy, as they are often mistaken for the other. In this episode, I am joined by a global expert on the topic of FPIES, Marion Groetch, MS, RDN who is here to discuss some of the common symptoms that result from trigger foods and suggestions on what parents should do if they suspect their baby has FPIES.       Get your copy of the 100 FIRST FOODS list on Katie's free BABY-LED WEANING FOR BEGINNERS workshop: https://babyledweaning.co/workshop   Follow @babyledweanteam on IG: https://www.instagram.com/babyledweanteam/   Shownotes with all the links mentioned in this episode are here: https://blwpodcast.com/230   Learn something you liked in this episode? Would you kindly subscribe, rate and review where you're seeing this? (...it really helps other parents find this BLW info too!)

#230: What is FPIES? How do I know if my baby has FPIES? Although food protein-induced enterocolitis syndrome is a very rare food allergy reaction in babies, it is important for parents to understand the difference between an IgE and non IgE mediated allergy, as they are often mistaken for the other. In this episode, I am joined by a global expert on the topic of FPIES, Marion Groetch, MS, RDN who is here to discuss some of the common symptoms that result from trigger foods and suggestions on what parents should do if they suspect their baby has FPIES.   Get your copy of the 100 FIRST FOODS list on Katie's free BABY-LED WEANING FOR BEGINNERS workshop: https://babyledweaning.co/workshop?utm_source=Shownotes&utm_medium=Podcast&utm_campaign=Episode%20Link Follow @babyledweanteam on IG: https://www.instagram.com/babyledweanteam/   Shownotes with all the links mentioned in this episode are here: https://blwpodcast.com/230   Learn something you liked in this episode? Would you kindly subscribe, rate and review where you're seeing this? (...it really helps other parents find this BLW info too!) Learn more about your ad choices. Visit megaphone.fm/adchoices

On this episode of Food Allergy Talk, I welcome Kathlena, The Allergy Chef. Kathlena has over 200 food allergies and intolerances, and can't drink most water. The members of her household also have food allergies and special diets, none of them the same. After being told she had 30 days to live, she made it her mission to help the food allergy and special diet communities thrive. Three years from her lowest point, she and her team have published several cookbooks, started a bakery, done local and nationwide outreach, developed hundreds of free recipes and resources, and much more. We also discuss:Overcoming the negatives in diagnosis as well as in the community, to empower not only ourselves but one another. She focuses on the "whole" food restricted as opposed to food allergy, vs food intolerant, vs FPIES, and EOE etc. Instead, to find ways to come together, build community, and find safe foods and recipes. Uptick in community discussion of new allergy diagnosis following COVID or COVID vaccine.Dr Sears alternative schedule reference: https://naturopathicpediatrics.com/wp-content/uploads/2017/09/Dr.-Sears-alternate-vaccine-schedule.pdfGMO's, organic food, pollution in environment and other triggers affecting our immune systems. Polarizing choices and that no two people or situations are the same. Do what's good for YOUR situation, and then support and don't judge one another whether OIT/vaccines/eating may contains etc. Remember we are all on the same team - the food allergy community... the restricted diet community. We are in this together. Unsolicited advice regarding what to eat, treatments, therapies, and more.How life changing even one allergy friendly recipe can be for someone that is on a restricted diet. Children and adults when noticing body has distaste, and following that to investigate for potential allergies or other issues. Focus on what we can have vs what we cannot have.Water allergy diagnosis, and how she is allergic to what is used to treat water, as opposed to the water itself. What she eats if allergic and intolerance to 200 foodsStop putting one another down and rally even when handle and manage diagnosis different.Her open letter to kids:https://raise.theallergychef.com/an-open-letter-to-children-with-food-allergies-restricted-diets/Instagram: @theallergychefWebsite: www.goraise.netDiscount code for The Food Allergy Talk Podcast listeners: enter "pi50" on goraise.net for 50% off your first month of membership!Listen online anytime: https://foodallergypi.com/the-food-allergy-talk-podcast/ or on any podcast player. 

No episódio de hoje do Check-up Semanal, o editor-chefe médico do Portal PEBMED, Ronaldo Gismondi, destaca os principais resumos da semana na medicina. Fique atualizado sobre: cadioversão na fibrilação atrial, atualização do DSM-5, teste de provocação oral para síndrome da enterocolite induzida por proteínas alimentar (FPIES), prevalência de depressão e ansiedade após covid-19 e panorama da tuberculose no Brasil. Aperta o play e ouça agora o episódio!

Are you a parent who has a child who is a picky eater or has difficulty tolerating some foods? You definitely don't want to miss this episode with the amazing Dr. Cesnek aka Dr. Evka. You want your child to feel comfortable and enjoy food. Instead, your child vomits, cries a lot, has food intolerances, or shows other feeding challenges. This leaves you feeling anxious and hopeless. You could instead feel empowered and this is why I am so excited to chat with Dr. Cesnek. The root of the issue was food protein-induced enterocolitis syndrome (FPIES) is an adverse food reaction involving the immune system that mainly affects infants and young children. Dr. Evka is a family doctor trained in feeding therapy, a nutritionist, and a best-selling author. She has helped hundreds of children who were told they had "reflux". They started to thrive after their real medical conditions were revealed and properly treated. She is the author of multiple books and an accomplished speaker. Connect with Dr. Evka https://linktr.ee/doctorevka https://www.doctorevka.com/ --- Send in a voice message: https://anchor.fm/urcaringdocs/message

If you have a child with a food allergy, you've likely heard of IgE-mediated food allergies. But there's another type of food allergy that is less well-known - FPIES. Although FPIES is not an IgE-mediated food allergy, it can still be a severe and potentially life-threatening condition. On this episode of the podcast, Dr. Hoyt interviews THE WORLD RENOWN EXPERT on FPIES: Dr. Anna Nowak-Wegrzyn. Drs. Nowak-Wegrzyn and Hoyt described the symptoms of FPIES, best practices for management, and some very good news about this disorder.Don't miss this informative, enjoyable discussion!What's your food allergy question? Submit it and learn more about food allergy and YOUR kiddo through the Food Allergy and Your Kiddo website: https://foodallergyandyourkiddo.comAre you in need of an allergist in your area? Check out these allergist finder tools from the American Academy of Allergy, Asthma and Immunology and the American College of Allergy, Asthma and Immunology:AAAAI Allergist Finder: https://allergist.aaaai.org/find/ACAAI Allergist Finder: https://acaai.org/locate-an-allergistDoes your kiddo's school need help with medical emergency response planning? Check out Code Ana, the non-profit program that is equipping schools for medical emergencies like anaphylaxis.www.CodeAna.orgVisit Dr. Hoyt and Pam on Facebook!https://www.facebook.com/foodallergyandyourkiddo

It's not always easy to identify what may be causing infant colic or infant allergy reactions. Infant food sensitivities are common and can result in projectile vomiting, reflux, mucousy/bloody stool, and more - which can be very distressing to parents and lead to unnecessary dietary restrictions. This week I interview Dr. Trill Paullin on Infant Food Sensitivities, how they arise and what we can do to help manage them Dr Trill is a Molecular Biologist and mother to two daughters who had severe infant food sensitivities and reactions to proteins transferred from my diet to her breast milk.  After she processed the painful fact that she could hurt my children through breastfeeding, she started researching how to produce breast milk they could properly digest.  She discovered that many parents experience the same troubling situation. Through this experience, she wanted to create a place for parents to find answers to their questions about infant food sensitivities and empower them to continue their breastfeeding journey.  That was how Free to Feed was born.  Free to Feed is starting this mission by first creating an at-home test strip that will allow mothers to analyze their breast milk for allergens. We talk about: How Trill became interested in the field of infant allergies The origin of Trill's company Free to Feed What the differences are between non-Ige mediated allergies (FPIAP and FPIES) and IgE mediated allergies How the symptoms between these three diagnoses differ How to identify what may be causing infant allergies What the treatment options are for mothers trying to cope with infant allergies How Trill was able to gather data in this area of research that was largely unrepresented in the literature. The research around transferability and reaction timing The lack of support for families dealing with non-IgE mediated infant allergies and the importance of validating these experiences What Free to Feed offers today to help parents navigate this journey. At-home breastmilk test strips as well as infant allergen friendly multivitamins   Connect with Trill on her website at freetofeed.com on Instagram @free.to.free on Twitter or on her Facebook here as well!

Food protein-induced enterocolitis syndrome, or FPIES, is a rare and different food allergy with a complex etiology and management.  Amy Dean, MPH, RD, CSP, LDN, clinical dietitian, Gayle Diamond, MD, attending gastroenterologist, Terri Brown-Whitehorn, MD, attending allergist, who all work together in the FPIES Clinic at Children's Hospital of Philadelphia, provide a review. Their discussion includes: symptoms and how FPIES may present in the primary care setting; tips for getting a useful history for diagnosis; how FPIES is different from other food allergies; which foods are the most common causes; what is acute FPIES; respecting parent fear of FPIES reactions, which can be upsetting; tips on diet modification; why a multidisciplinary approach, including allergy and GI, is important; an overview of how CHOP manages FPIES; biomarker research that may lead to a diagnostic test; and more. Published December 2021. This podcast is for general informational and educational purposes only and is not to be considered as medical advice for any particular patient. Clinicians must rely on their own informed clinical judgment in making recommendations to their patients. ©2021 by Children's Hospital of Philadelphia, all rights reserved.

Brandon shares about meeting a local entrepreneur and mom whose babies had a rare condition called FPIES.Food Protein-Induced Enterocolitis Syndrome (FPIES), sometimes referred to as a delayed food allergy, is a severe condition causing vomiting and diarrhea. In some cases, symptoms can progress to dehydration and shock brought on by low blood pressure and poor blood circulation.She is going to create a curriculum to help parents of kids who have this condition. Brandon was able to help her shoot some video at the local pumpkin lot.We talk about the food value of pumpkins and ways to prepare them (aside from a latte).Not just pumpkins but other squash are high in beta carotene, high levels of vitamin A and vitamin C.We discuss how to save the seeds from your pumpkins and turn them into a handy snack to take on the go.We discuss how the different colors of fruits and vegetables are indicators of how they have different levels of nutrients and sources of vitamins.We unpack the GERMAN BISON BURGERS WITH ASPARAGUS AND ROASTED ACORN SQUASHfrom the FirewithinNF.com website. Check out our other recipes and we'd love to hear what you think after you prepare them!

FPIES is a rare type of food allergy that causes delayed reactions like vomiting or diarrhea - and BOTH of my kids had it. My daughter had FPIES to egg and my son had FPIES to wheat, so we are just an allergy family! In this video, I go over: What we initially thought my daughter's allergy was What her first reaction was like When and how we reintroduced eggs How we knew my son also had FPIES How we navigated FPIES at daycare When and how we reintroduced wheat The medical providers we had on board for both How they're both doing now My top two tips for FPIES parents SUBSCRIBE to help your kids eat more veggies, not obsess over sweets, and develop healthy relationships with food! FOLLOW ME ON IG SUBSCRIBE TO MY YOUTUBE CHANNEL SUPPORT ME by sharing my content with your family and friends, sharing Growing Intuitive Eaters with your favorite brands and podcasts, or buying me a coffee at https://ko-fi.com/drtaylorarnold

There is no denying that mealtime can be a challenge for those with eosinophilic gastrointestinal diseases (EGIDs) who are on elimination diets. In this episode, co-hosts Dawn McCoy and Ryan Piansky discuss some creative strategies that can help make mealtimes easier with Holly Knotowicz, MS, CCC-SLP.   Holly Knotowicz is a Speech-Language Pathologist and a Feeding and Swallowing Specialist. Her background is in Communication Sciences and Disorders, and her areas of clinical interest include behavioral, oral motor, and oral sensory feeding disorders, including mealtime dynamics. Holly specializes in working with children who have eosinophilic gastrointestinal diseases (EGID), including eosinophilic esophagitis (EoE), and working with children who have food allergies, FPIES, and neurogenic disorders. She is an active participant in research, has been published in Gastroenterology Journal, and is an international speaker on feeding.   In this episode, Holly shares a little about her own journey with EoE, how that influenced her to dedicate herself to this field, as well as how feeding therapists can help care for those with these conditions. Holly draws on her years of experience to share tips, strategies, and creative coping mechanisms to improve people's experiences with food, as well as how to navigate the social norms around food and eating. Tune in to find out more about how a feeding therapist can become an invaluable part of a healthcare team for someone with an EGID, such as EoE.   Disclaimer: The information provided in this podcast is designed to support, not replace the relationship that exists between listeners and their healthcare providers. Opinions, information, and recommendations shared in this podcast are not a substitute for medical advice. Decisions related to medical care should be made with your healthcare provider. Opinions and views of guests and co-hosts are their own.   Key Takeaways: [1:40] Ryan introduces the guest for this episode — Holly Knotowicz. [2:40] Holly shares a little about how she got started in her field. [3:11] What is the role of feeding therapists in the care of someone with Eosinophilic Esophagitis (EoE)? [4:08] How does Holly collaborate with other specialists, specifically pediatricians and gastroenterologists? [5:27] What are some of Holly's tips for people who are just starting an elimination diet? [9:42] Ryan relates his personal experience of having limited foods in his diet. [10:37] What are some coping mechanisms that Holly recommends for people who have trouble with a new food? [13:30] Holly touches on the social aspect of food in our culture. How might someone with dietary restrictions navigate these social activities? [18:48] What are some of the long-term benefits of parents and children working with feeding therapy services? [21:17] How does Holly help children and families who have a reluctance to reintroduce certain foods back into their diet, and how can they work with their healthcare provider to do that? [24:50] What are some creative tactics and tools that Holly gives the children she works with to help them in the long term after they leave the treatment session? [29:20] How can someone locate a feeding specialist?   Mentioned in This Episode: American Partnership for Eosinophilic Disorders (APFED) APFED on YouTube, Twitter, Facebook, Pinterest, Instagram Email Holly Always-Sometimes-Future Foods Resource PickyEaters.co FeedingMatters.org Eosinophilic esophagitis (EoE) 2021 EOS Connection Patient Education Conference APFED Recipes EOS Connections Online Community APFED's Specialist Finder   This episode is brought to you thanks to the support of our Education Partners: Bristol Myers Squibb, Sanofi Genzyme, and Regeneron Pharmaceuticals.

In this episode, Rachel Ojha, Director of Medical Affairs, Specialized Pediatrics at Nutricia, takes us into a deep dive into the specialized world of amino acid-based nutrition often used by children with food allergies, and related GI/allergic conditions like FPIES and EoE. Learn more about how amino acid-based nutrition can change lives!To keep you in the know, here are a few helpful links:Nutricia NeocateFinding Access to Product and Reimbursement: Resources regarding access and insurance1-800-365-7354: Insurance support call lineYou can find the FAACT Roundtable Podcast on Pandora, Apple Podcast, Spotify, Google Podcast, Stitcher,  iHeart Radio, Podcast Chaser, Deezer, and Listen Notes.Visit us at www.FoodAllergyAwareness.org and follow us on Facebook, Twitter, Instagram, LinkedIn, Pinterest, and YouTube. Contact us directly via Email.Sponsored by: NovartisPlease note that today's guests were not sponsored by Novartis  or compensated in any way by the sponsor to participate in this specific podcast.

Food Protein Induced Enterocolitis (or FPIES) is a non-IgE mediated food hypersensitivity that presents with vomiting and looking very unwell, later often followed by diarrhoea. Most cases occur in under 12 month olds.  Usually children present with profuse vomiting about 1-3 hours post ingestion of the trigger food. They often look very unwell and become lethargic, floppy and pale for a period of time! 5-10 hours after ingestion they often develop diarrhoea (which may be bloody). Follow us on Instagram @yourekiddingrightdoctors Facebook: https://www.facebook.com/yourekiddingrightpod-107273607638323/ Our email is yourekiddingrightpod@gmail.com Make sure you hit SUBSCRIBE/FOLLOW so you don't miss out on any pearls of wisdom and RATE if you can to help other people find us! (This isn't individual medical advice, please use your own clinical judgement and local guidelines when caring for your patients)

FOOD!It can be a very exciting journey, it can be an anxiety ridden journey, and it can be anything in between. We both started off with feeding purees to our babes at 4 months, but that's where the similarities stop. One kiddo has taken their time to get into food, while the other took  to Baby Led Weaning from day 1. We share our individual food journeys, allergies **do you know what FPIES is?!** tools you'll need, different approached to introducing food, and resources we find very helpful. Is your baby ready to start their food journey? How are you feeling about it? Let us know!  Join our conversation on Instagram at: https://www.instagram.com/momlifethepodcast/  

FOOD!It can be a very exciting journey, it can be an anxiety ridden journey, and it can be anything in between. We both started off with feeding purees to our babes at 4 months, but that's where the similarities stop. One kiddo has taken their time to get into food, while the other took  to Baby Led Weaning from day 1. We share our individual food journeys, allergies **do you know what FPIES is?!** tools you'll need, different approached to introducing food, and resources we find very helpful. Is your baby ready to start their food journey? How are you feeling about it? Let us know!  Join our conversation on Instagram at: https://www.instagram.com/momlifethepodcast/  

Both food allergies and reflux in babies can be associated with vomiting. However, some people say that food allergies and reflux are not related. A more accurate statement is that the vomiting in these conditions can be due to different mechanisms. Let's discuss more about this vomiting.

Meet Carly Sachs, a mom of two lovely ladies who is passionate about talking about the reality of motherhood. She blogs about making the transition to motherhood, parenting, awesome products, and staying sane at The Mamma's List. Carly shares about her postpartum and breastfeeding experiences, why she started the Mamma’s List Blog, and how her youngest was diagnosed with FPIES (Food Protein-Induced Enterocolitis Syndrome).As a way of paying it forward, when you join the Momxiety Club, your first month’s fee is donated to a charity that benefits families and children who are handling a chronic illness or disability. As a new member this month you’ll be supporting the Child Life Fund at the Children’s Hospital of Philadelphia. Child Life staff assist children and their families in coping with an illness, injury, or procedure. The fund also enables staff to have activities and toys on hand for children. And as I mentioned in the last few episodes and Carly mentioned today, CHOP is a leader in the research and treatment of FPIES and VEO-IBD.You get access to an amazing group and movement to help reduce momxiety and charity benefits…a win-win in my book! Just head to join.momxietyclub.com and the link to join is in the show notes!Past Episodes and Links of Interest:Failure to thrive to FPIES Diagnosis: An Interview with Allyson CutaiarWhat is food protein-induced enterocolitis syndrome (FPIES)? from Children’s Hospital of PhiladelphiaCoping with Anxiety when Your Child is Diagnosed with a Chronic Illness with Tori LevineConnect with Carly and The Mamma's List:The Mamma's ListPinterest FacebookInstagramTwitterWhat did you relate to most in today’s episode? Let's Connect: hello@momxietyclub.com Momxiety Club Website Momxiety Club Facebook Page Momxiety Club Instagram Access ALL the FREE resources from Momxiety Club™ and Mommy Barre®Please leave a rating and review on Apple Podcasts or Spotify.Gain access to emotional and physical support for the stress, anxiety, and overwhelm that comes along with motherhood when you become a Momxiety Club Member at join.momxietyclub.com! Momxiety Club Membership for less than $10/month AND your first month will be donated to the Child Life Fund at the Children’s Hospital of Philadelphia! **The Momxiety Club podcast is not intended to take the place of medical advice or therapy. If you are in crisis call your local emergency number or the National Suicide Prevention Hotline at 1-800-273-TALK (8255)Support the show (https://www.paypal.com/biz/fund?id=KDK9H5JM6UA4G)

Your child has food allergies. Does having a food allergy affect mealtime behavior? Are children with food allergies more likely to not like eating, become picky eaters, not want to go to the mealtime table, or show a low appetite?

Thank you for listening to my 10th episode! In this episode, we discuss the difference between being alone and being lonely. So many new parents feel lonely. In fact, it's been said that parenthood can be a busy time of profound loneliness when you are never alone. We discuss parents of children with picky eating, food allergies, challenging mealtime behavior, FPIES, diminished appetite, and other challenges around food. They can feel especially lonely. We discuss why and what can be done to help empower those who feel lonely. Great episode!

You know that your child has a medical diagnosis, a food allergy, FPIES, picky eating, or some other concerns around food. You try your best to help your child, and it feels like an uphill battle. You believe that your parent or other family member is trying to sabotage your efforts. They are in denial over the low appetite, the medical diagnosis, etc. They do not believe that your child is a picky eater. What do you do? You may want to please your parent or other family member, but you also want to protect your child.

Meet Allyson Cutaiar, EMT, first-time mom of a 18-month-old little girl named Lexi, hyperemesis warrior, and lover of books and chocolate. She shares her experience as a first-time mom with anxiety on top of her experiences parenting a baby diagnosed with failure to thrive, food allergies, and the process that led to her daughter’s diagnosis. Learn how Allyson's mother's intuition, support from fellow moms, and advocacy for her child saved her sanity and led her daughter to treatment that has allowed her to thrive.In this interview, we talk a lot about medical appointments and conditions and experiences we had with our own children with food allergies and intolerances. We discuss our children and the conversations we had with their doctors. Please remember that each case and each child is unique and nothing we speak about in this podcast should be taken as medical advice to treat, cure, or diagnose any possible disease or condition. If you have concerns about your child’s health you should call and speak with your pediatrician immediately. Remember this podcast is a place for moms to vent and discuss our shared experiences to let other moms know they are not alone. I hope you enjoy and if you have concerns about your child’s health that this gives you the confidence to reach out to your child’s doctor without fear of being labeled that crazy mom who calls about every bump and bruise, every rash, and every different diaper. No one knows your child better than you and no one can be a better advocate for your child than you.Links to topics referenced:What is food protein-induced enterocolitis syndrome (FPIES)? from Children’s Hospital of PhiladelphiaVEO-IBD and CHOP Pediatric Inflammatory Bowel Disease websiteWhat is Celiac Disease? from Children’s Hospital of PhiladelphiaI love hearing from YOU! Let's Connect: hello@momxietyclub.com Momxiety Club Website Momxiety Club Facebook Page Momxiety Club Instagram Access ALL the FREE resources from Momxiety Club™ and Mommy Barre®Share what you’ve done for yourself by sending a voice message by heading to join.momxietyclub.com and clicking on “Send Voicemail” so I can give you a little bit of the spotlight on a future episode! Thanks for listening! Don't forget to subscribe, share, and follow the Momxiety Club on social media (@momxietyclub), and if you like what you heard, please leave a rating and review on Apple Podcasts or Spotify.Ready to be a Momxiety Club Insider? Head to join.momxietyclub.com and gain access to emotional and physical support for the stress, anxiety, and overwhelm that comes along with motherhood. The Momxiety Club Membership for less than $10/month! *The description may contain affiliate links **The Momxiety Club podcast is not intended to take the place of medical advice or therapy. If you are in crisis call your local emergency number or the National Suicide Prevention Hotline at 1-800-273-TALK (8255)Support the show (https://www.paypal.com/biz/fund?id=KDK9H5JM6UA4G)

Worrying where your child's next meal will come from is tough enough. Add to that the significant issue of your child having a food allergy, and you are left with a scary, difficult situation. Emily Brown was there, and not only did she overcome that that challenging time in her life but she and her family are on a mission to help other families not be in that situation. Tune in to this episode to hear Dr. Alice Hoyt interview Emily Brown about her mission and organization Food Equality Initiative. You'll come away inspired!Learn more on the infoblog!

You've probably heard about doctors recommending babies eat peanut to prevent peanut allergy. This is a major shift from the recommendation made 20 years ago which recommended babies avoid this potentially allergenic food. Allergists did not have much evidence upon which to make that recommendation. But now we have evidence that supports actually introducing peanut - in an age-appropriate, safe way - to babies who are at risk of peanut allergy as a way of preventing the development of peanut allergy. And in some babies who have already developed a peanut allergy, peanut products may be used to teach the immune system to tolerate peanut. Does all this sound confusing? Tune in to this episode where I discuss with my friend and colleague - Dr. Jackie Bjelac - how peanut can be introduced to at-risk babies, and we go into detail about what to expect at a "food challenge." Also, learn more on the accompanying infoblog where you can find the Food Challenge Checklist!

Did you know there are multiple types of peach allergies? Tune in as Dr. Alice Hoyt answers questions from listeners about peaches, pollens, and peanuts, and how they are related to food allergy. Check out the accompanying info+blog!

Testing for food allergies can be confusing! This, in part, is due to food allergy itself being a confusing disease. Did you know there is more than one type of food allergy? Not just peanut, egg, etc., but there is anaphylactic food allergy and eosinophilic esophagitis and other types of food allergies? Join Dr. Hoyt as she discusses different types of food allergies and the myths and facts to food allergy testing.Check out the updated, accompanying infoblog to this podcast!Questions about how to use an epinephrine auto-injector? Check out Dr. Hoyt's non-profit Code Ana at www.CodeAna.org. The organization equips schools to be prepared for medical emergencies like anaphylaxis. Are you prepared?

#003 - It’s never been more important than now - during COVID-19 - for food allergy mamas to understand the nutrition label. The FDA recently made “temporary changes” to food labeling guidelines, allowing for "flexibility" in labeling ingredients on the nutrition label. In this episode, Dr. Hoyt interviews food allergy advocate Jen Jobrack regarding the nutrition label. You'll learn what claims are - and are NOT - regulated on the label and how COVID-19 is affecting the label.Read the InfoBlog here!

I welcome back Dr. Shreya Patel, an Allergist and Immunologist. We spoke on episode 7 about Eczema 101 and she's back to talk all about FOOD ALLERGIES and FPIES. Parents are afraid of their child having a food allergy, but it is this fear that can cause them to delay the introduction of allergenic of foods which can increase chances of a food allergy.What are the most common allergenic foods?Can children outgrow food allergies?When can you introduce allergenic foods?What's the deal on allergenic food programs like Spoonful One, Ready Set Food, and Lil' Mixins?What is FPIES? And what are the signs? Listen in as we answer these questions and so much more! Follow us on Instagram @pedsdoctalk and @shreyapatelmd to continue the conversation.  Learn more about your ad choices. Visit megaphone.fm/adchoices

I welcome back Dr. Shreya Patel, an Allergist and Immunologist. We spoke on episode 7 about Eczema 101 and she's back to talk all about FOOD ALLERGIES and FPIES. Parents are afraid of their child having a food allergy, but it is this fear that can cause them to delay the introduction of allergenic of foods which can increase chances of a food allergy.What are the most common allergenic foods?Can children outgrow food allergies?When can you introduce allergenic foods?What's the deal on allergenic food programs like Spoonful One, Ready Set Food, and Lil' Mixins?What is FPIES? And what are the signs? Listen in as we answer these questions and so much more! Follow us on Instagram @pedsdoctalk and @shreyapatelmd to continue the conversation.

#002 - This episode of Food Allergy and Your Kiddo Podcast features Pam Lestage, food allergy mama and food allergy advocate. Join the discussion with Pam and Dr. Hoyt as they discuss challenges and strategies it managing a kiddo with food allergy. Stay tuned to the end of the episode for a fantastic downloadable tool you can use to overcome challenges, and visit the blog for more information!

#001 - Does your kiddo have food allergy? Join me, Dr. Alice Hoyt, as I introduce this podcast all about food allergy. I'll share a bit about my background (board-certified allergy and immunologist who specializes in food allergy) and what to expect from this podcast - excellent guests as well as tools & strategies that will help you and your family on your journey. This podcast has an accompanying blog! Check it out here!I mention Code Ana...Code Ana equips schools for medical emergencies like anaphylaxis. It guides schools through the process of creating a medical emergency response plan. Important for all kiddos and adults at any school! Sharing the Code Ana's School Program is this program's primary goal, and that goal is supported in part through Code Ana's Online Epinephrine Training Program. Educate yourself while supporting this important mission!

This week Guest Aaron Kobernick, MD, and Host Paul Wirkus, MD, FAAP will be talking about food allergy. Why histamine? When do food allergies emerge, do they go away? FPIES and prevention. Send your questions to questions@vcurb.com and for more information about available credit visit vCurb.com.

Describe phenotypes of FPIES.Discuss approach to diagnosis of FPIES.Analyze management of FPIES.

Stephanie - A wife and mother of two beautiful, loving little girls born with many severe and life threatening food allergies. We live a sweet organic everyday life. Sharing our journey with Celiac disease, unspecified muscular dystrophy, EOE, FPIES, EDS (connective tissue disease) GERD and Autism. My goal is to advocate, bake, blog and love! My husband, Giovanni, has been one of my greatest supports in providing our family with what we need. Living off one income is no easy task, but we manage because we love our daughters. Everyone in our lives have been a tremendous help and support. This blog is to educate, to inform, to share yummy recipes, and to review samples from companies, so that you- the reader- may enjoy peace in your own unique home. RESOURCES Find Stephanie’s blog at uniqueheartbeat.com Find Stephanie on Instagram @sweetorganicliving Thanks for joining us on the Think Yourself Healthy Podcast! Don’t forget to leave a review and make sure you share that you’re listening to this episode on the gram and tag myself @nutritionvixen and @thinkyourselfhealthy_ so we can share! --- Send in a voice message: https://anchor.fm/heather-deranja/message Support this podcast: https://anchor.fm/heather-deranja/support

You get home after receiving a food allergy diagnosis, look into your fridge, where do you even start?   In the second part of answering questions on what new food allergy suffers should know, we tackle the lifestyle side of a food allergy diagnosis. Dr G and Kortney are joined by Stefanie Lowe to discuss grocery shopping, navigating labels, how to approach friends and family about your needs, how to find your comfort level and introducing new foods to your child.   Stephanie is a food allergy advocate, and community thought leader, she is a mother to three children, the oldest of which has multiple food allergies, FPIES, asthma, Celiac disease as well as all three managing environmental allergies. If you have ever seen a build light up teal for food allergy awareness, this is because of Stephanie. She is the founder of Turn It Teal, a global project committed to raising food allergy awareness by lighting buildings, monuments and bridges, predominately during Food Allergy Awareness Week.    The questions we answer in this episode What are the first things you should do after receiving your food allergy diagnosis? What should you prioritize? What do you do at home, with friends, family? Should you remove all allergens from the house? How do you figure out what the best plan of action is for you? How do you seek support from your family when they don't understand the diagnosis and that it is something that comes with a lifestyle change?  How do you find a food allergy community? What resources are available to me? Will this impact us financially because of special foods? How do you go about navigating labelling and reading packages? When is the best time to introduce new foods? Big Takeaways Every family does things differently. Always have epinephrine auto-injectors and an action plan. Learning day by day - your allergy journey is made from building blocks of each with a more defined level of comfort. Life with food allergies requires you to be aware and hypervigilant, it's best not to make it what you are all about. ADDITIONAL RESOURCES: https://www.itchpodcast.com/post/episode-19

My guest this week is Judy Converse, a licensed registered dietitian, and nutritionist who works with children of all ages to customize nutrition strategy so that they can learn, grow and thrive. In addition to running her private practice, Nutrition Care For Children, she has published three print books, two e-books, and numerous articles on nutrition support for children with autism, ADHD, allergies, FPIES, growth and feeding issues, behavioral disorders, constipation and more. I hope you'll enjoy this episode learning about the effect of nutrition on children's behavior.  In this episode, Judy and I discuss the incredible power of nutrition and its effect on children's mood and behavior. Judy shares her expertise on how parents can begin to assess their children's nutrition and what signs to be aware of when nutritional intervention may be necessary. She brings an extensive history of knowledge to the table and even discusses a few case studies where nutritional interventions had a life-changing effect on children in her practice. Learn more about Judy Converse here.    Nutrition Support for Children with Advanced Behavioral Disorders Most physicians do not receive training in nutritional support Your child may look fine on a growth chart but may have a nutritional deficit that's overlooked. Autism spectrum, ADHD, and sensory processing issues can be addressed with nutritional intervention, however, medication is often the first line of defense.   Assessing Nutrition In Children 1. Assess the Gut and What Their Eating A large body of research shows that the microbiota (or gut bugs) has a direct affect on mood and immune function Find a practitioner who can properly assess your child's gut health. Is the child withholding stool? Are they struggling to eat during the day and have a calorie deficit? This is commonly overlooked.   2. Growth Patterns Often pediatricians will not catch a growth issue unless the child is significantly failing on the growth chart. Are they sleeping well?   3. Iron Status Being marginal for iron status, pre-anemia Functioning falters and could affect a child's ability to learn, specifically in math Children need iron to make and break down serotonin and dopamine (these affect mood and focus)   Kids Need Fat and Carbs Use clean carbs like fruits and veggies vs processed foods high in sugar Carbs are important for energy output Before putting your child on a restrictive diet be sure to discuss with a nutrition expert or practitioner   Why Working with a Professional is Essential When diets are improperly applied, a host of other issues may surface For example, diets may change growth patterns, affecting how bones are mineralized and can lead to more fractures in children   What Parents Can Do at Home Before Seeking Professional Intervention Shift away from processed foods and prepare more whole foods to eat Cut out glyphosate, GMO, and pesticides (these are typically found in processed food) These ingredients can often trigger ADHD symptoms Create a healthy mindset around food Make food fun vs harping on which foods are “bad.” Celebrate healthier food Nutrition is Powerful Children with mental health issues can be drastically helped by diving deeper with nutritional interventions Nutritional intervention may aid in the removal of medication overall, or help find the appropriate blend by optimizing their nutrition and balancing it with the correct medication vs. relying on medication alone to solve the problem Nutritional interventions should not be overlooked for even the most fragile cases Where to Learn More About Judy Converse MPH, RD, LDN NutritionCare.net Judy Converse Books on Amazon Facebook Instagram Twitter

Katy is an allergy mum (and money blogger on katykicker.com) to a toddler who they discovered has FPIES. In today’s episode, Katy tells me all about the reality of living with FPIES on a day to day basis, the lack of information GPs hold, and how they often assume that when your child is just unwell.  We also talk about managing your anxieties around your child’s allergy, when they are justified and perhaps when they are just you being a parent.  Katy also talks about the symptoms her daughter has when she is reacting and how they can vary. We talk about educating family, friends and extended family too.  What is FPIES? FPIES stands for Food Protein-Induced Enterocolitis Syndrome. It is a type of food allergy that affects the gastrointestinal (GI) tract. What are the symptoms of FPIES? Symptoms include but are not limited to vomiting, diarrhoea, dehydration which leads to lethargy. Children can often look pale or blue. Other symptoms can include low blood pressure, and blood tests that mimic infection which can look like sepsis or lead to sepsis like shock. All children are different and can have different symptoms. For more information, please visit: http://fpiesfoundation.org Top 3 Tips Parents Dealing with FPIES Be kind to yourself - you have not caused your child’s allergies With time, it will get better - but you can do it! Empower yourself with information Resources Listen to when I interviewed my parents on our journey living with allergies in episode 12, 13, 14 & 15. Subscribe to the podcast on iTunes or Stitcher Radio (android). My new recipe book "Chocolate Treats: Decadent delights free from the top 14 allergens" is on Amazon.com or Amazon.co.uk Leave a Review Thank you to all of you who have sent me feedback! I love hearing your ideas and requests for new episodes or to share your story! If you have 2 minutes spare, please would you leave a review on iTunes? It helps other allergy parents and allergy sufferers find it because it boosts its search ability in the iTunes directory. Click here to go to iTunes>> Ask Your Questions If you have a question about your own allergy journey or from the episode, leave a comment below or if you would like some 1-on-1 help you might be interesting in having some coaching. If so, please send me an email for more information.

I am just a daddy's girl who is alive and free! I am living my life to glorify Abba and reveal him as the amazing father he is to all of my sisters! It's the wildest most amazing adventure ever.....that is why I want to share every epic testimony Abba gives me because his love is endless and available to you too! Join me on this journey it is amazing and your life will never be the same.

Dori Ann explains what and AIP Diet is and what it's appropriate usages are.. If you have or know someone with food allergies this is the episode for you!

Dori Ann discussed food allergies and the different ways it can effect your body. She discusses the importance of listening to your body and finding balance so when things start to fly off the balance train you don't get thrown of the tracks completely. So come joins are we learn about the early signs of imbalances in our body!

On today's episode, we welcome back Matthew Greenhawt, MD, to discuss non-IgE related food allergies, including Food Protein-Induced Enterocolitis Syndrome (FPIES). Dr. Greenhawt is an associate professor of pediatrics and allergy at the University of Colorado School of Medicine. In this episode: How non-IgE mediated food allergies most commonly presents in children The fact that non-IgE food allergy symptoms appear more slowly Identifying the various presentations and triggers of dietary protein-induced enterocolitis The benefits of using extensively hydrolyzed infant formulas or amino acid-based infant formulas Treating atopic dermatitis with a topical steroid versus allergy screening Creating awareness of eosinophilic esophagitis in the primary care discipline The importance of identifying family history patterns to diagnose allergies How the presentation of FPIES differs between environments globally

Salicylate intolerance. Amine intolerance. Anaphylaxis. Sensory processing disorder. FPIES. Eosinophilic oesophagitis. Candida. Parasites. Mary’s son had them all. And Mary was so stressed out at the thought of having to resolve each and every one of those issues individually that she gave up and did nothing. Because how do you even start to fix all Listen In The post AQJ 71: Mary Kelly- Healing with GAPS when you can’t tolerate many foods appeared first on The Wellness Couch.

This week’s story is absolutely fascinating – an amazing story of hope and healing, with Mary Kelly of ‘Good Mood Food’. Anaphylactic to wheat, dairy, eggs, nuts, and sesame seeds, and allergic to just about everything else except white rice and corn, life was difficult for little Daniel. He survived on a hypoallergenic formula, but Listen In The post AQJ 32 : Anaphylactic Allergies, FPIES, Post Natal Depression, Parasites, and Hope for Healing! appeared first on The Wellness Couch.

Over the past decade, Food Protein Enterocolitis, or FPIES, has emerged as the most actively studied non–IgE-mediated gastrointestinal food allergy because of its acute onset, severity of symptoms, and distinctive clinical features. Yet as a rare allergic disorder of infancy and young childhood, it is often misinterpreted and misdiagnosed in clinical practice, leading to difficult treatment paths for patients and their families. Joining Dr. Renee Matthews to present a case history from the vantage point of a patient's mother, including challenges faced in reaching the correct diagnosis and starting effective treatment regimens, is Jennifer Kandt.

Over the past decade, Food Protein Enterocolitis, or FPIES, has emerged as the most actively studied non–IgE-mediated gastrointestinal food allergy because of its acute onset, severity of symptoms, and distinctive clinical features. Yet as a rare allergic disorder of infancy and young childhood, it is often misinterpreted and misdiagnosed in clinical practice, leading to difficult treatment paths for patients and their families. Joining Dr. Renee Matthews to present a case history from the vantage point of a patient's mother, including challenges faced in reaching the correct diagnosis and starting effective treatment regimens, is Jennifer Kandt.

Over the past decade, Food Protein Enterocolitis, or FPIES, has emerged as the most actively studied non–IgE-mediated gastrointestinal food allergy because of its acute onset, severity of symptoms, and distinctive clinical features. Yet as a rare allergic disorder of infancy and young childhood, it is often misinterpreted and misdiagnosed in clinical practice, leading to difficult treatment paths for patients and their families. Joining Dr. Renee Matthews to present a case history from the vantage point of a patient's mother, including challenges faced in reaching the correct diagnosis and starting effective treatment regimens, is Jennifer Kandt.