Podcasts about Chiari malformation

In today's episode of That Neuroscience Guy, we discuss the Chiari Malformation - a unique  condition that causes the brain to grow into the spinal cord. 

In this episode, we review the high-yield topic of ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Arnold-Chiari Malformation ⁠from the Pediatrics section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets

In this conversation RibeyeRach, shares her experience with chronic fatigue syndrome and how she was able to recover from it using a combination of a carnivore diet, brain retraining, and other lifestyle changes. She also talks about the importance of mindset, movement, and stepping back from illness support groups in her healing journey. Racheal emphasizes the power of listening to recovery stories and surrounding yourself with positive influences when trying to heal from a chronic illness. As technologies evolve, the roles of healthcare professionals also change.More and more, people have started taking their health and healing into their own hands, collaborating with doctors, but not letting their limiting beliefs about what can and cannot be done hold them back.Racheal has seen that chronic illness sufferers can also benefit from eating meat-based diets as well. Having healthy and supportive relationships is an important factor in healing, as well as trusting in the body's ability to heal itself.Paying attention to circadian rhythms by getting enough natural light and avoiding excessive screen time can also improve overall health. Maintaining good posture and gradually increasing movement and exercise can also be beneficial, but it's important to pace oneself and be mindful of individual limitations. Brain retraining is retraining the brain to signal safety to the brain to achieve a parasympathetic state. This can be done through practicing visualization in the form of brain retraining programs, and belief work to let go of limiting beliefs. Somatic practices, such as body-centered modalities, can also help with releasing tension and enhancing awareness. Having an open mind and starting with curiosity can aid in changing limiting beliefs and allowing for healing to take place."My name is Rachael, and I am currently healing from many years of seveThank you so much for listening to my podcast. I hope you enjoyed it. Your support means the absolute world to me. And if you're enjoying the show, I've got a small favor to ask you. I'd be incredibly grateful if you would consider becoming a supporter and make a small monthly donation. Your contribution will really help to improve the show. It's a small monthly contribution. You can cancel at any time, and the link is in the show notes. Support the showAll my links in 1 easy list, including booking and personal training workout plans at LINKTREE You can now download the carnivore experience appApple direct link for apple devices Google play store direct link to app for Android Coach Stephen's Instagram Book me for coaching My growing UK carnivore YouTube channel I have set up a community that is all about eating low-carb and specifically carnivore. CLICK HERE Support my podcast from just £3 per monthBECOME A SUPPORTER Success stories Optimal Health 5 Star reviews All my facebook and other reviews are here Thanks to www.audionautix.com for any music included. Ple...

Thank you for joining us for our 2nd Cabral HouseCall of the weekend! I'm looking forward to sharing with you some of our community's questions that have come in over the past few weeks…   Laura: Hi, dr. Cabral.. I already asked you on IG, could you please do a review of the Super Patches? The founder Jay Dhaliwal had a mother with alzheimers & that's why he funded research for these patches, to help people in another way without using pharmaceuticals.. there are many YT videos on it, demonstrations of a lateral and dynamic stability tests (I've seen it done live on volunteers from the audience as well).. the patches are supposed to work by VTT (vibrotactile trigger technology) and use nothing to absorb into your skin.. the information travels to your brain through your nerves and after using them for a while, your brain gets used to better responding to stress for example or mitigate chronic pain (depending on the patch).. could you please try them out & review them?Thank you    Lara: Hi, again :) I would also like to ask about this soap/shampoo bar that we are using.. It's called the African black soap and the ingredients are Potassium Shea Butterate, Potassium Cocoate, Potassium Palmate, Aqua, Glycerin and that's it.. are those ingredients ok for everyday use? My partner started to use it on his hair even though he has dandruff and his hair falls out a lot, we also use it to wash hands & shower with it.. We feel that You are the most trustworthy person in the world, that's why we only want your opinion on products.. so please try the patches out and do a review and also help us choose the right soap :) Thank you so much for all you do..Love and health to all..   Jacquie: Hi Dr. Cabral, Did the big 5, and just finished up your 21 day FMD and heavy metal everything is better :) Psoarisis, sleep, energy, mood. THANK YOU! I have been sweating in a hot bath or infrared daily and feel this has been really important for my "rain barrel". Other than reducing toxins coming in (working on it), while pre-natal, pregnant and breastfeeding, how can we reduce our toxic load? I am worried that 2 3 years of not emptying the barrel will really detract from my new normal.   Christy: Hello! My son is 15 and diagnosed with chiari malformation. I own a mushroom store and believe in the mushrooms as medicine. He is an extreme athlete and learning about chiari I said absolutely no surgery. So I proceeded to ask him to try a lions mane extract I would make. Not using the standard extraction recipe I made a batch and the results have been amazing. The syrinx cysts were gone within 3 days, he had clear speech for the first time ever ( it would vary) the headaches gone, the bloody noses rarely happen compared to weekly before, The vomiting on a regular basis gone. Now Im not the Mom that ever let my child focus on pain and sickness so many of these symptoms we just passed off as nothing. Is there a way to get this tested? This is my formula and would like more study   Thank you for tuning into this weekend's Cabral HouseCalls and be sure to check back tomorrow for our Mindset & Motivation Monday show to get your week started off right! - - - Show Notes and Resources: StephenCabral.com/2956 - - - Get a FREE Copy of Dr. Cabral's Book: The Rain Barrel Effect - - - Join the Community & Get Your Questions Answered: CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - Get Your Question Answered On An Upcoming HouseCall: StephenCabral.com/askcabral - - - Would You Take 30 Seconds To Rate & Review The Cabral Concept? The best way to help me spread our mission of true natural health is to pass on the good word, and I read and appreciate every review!  

It was last summer we last caught up with our Yorkshire correspondent Mel Sykes. Since then, much has happened, this week Mel gives us a huge update. After successful outings last year, Ultra Trail Snowdonia, Summer Spine Challenger and Lakeland 50 amongst them, Mel has been hampered. After suffering from blurry vision and some balance issues Mel was diagnosed with Chiari Malformation. The result? Brain surgery, a scar that tells the tale and a temporary pause on her upward trajectory in the world of ultra running. We find out how Mel noticed the symptoms, how her major operation went and, of course, get all the updates on her road to recovery as she looks to make up for lost time. Mel, in typical positive mood, also tells us all about her gig volunteering at this year's Spine Race, an event she was due to compete in. Is she in for the Winter Spine 2025 though? A run through her plans for the rest of 2024 reveals she's cracking on with her recovery and we even let you all know about our own planned race meet up in September. Oh, and we've a bumper intro for you too as John and Stevie Boy take the oppo to get caught up on all their chat, a race or not segment thrown into the equation too. Spoiling you we are! We love our catch up's with Mel, we are sure you will too. Enter Auchterarder Running Festival 2024 HERE - Opens Sunday 3 March at 7pm --- Send in a voice message: https://podcasters.spotify.com/pod/show/youngheartsrunfree/message

Join Ribeye Rachel in this interview as she shares her inspiring journey of how she overcame chronic illnesses through the carnivore diet. Rachel discusses her initial skepticism, her struggles with various chronic conditions, and her decision to try the carnivore diet after hearing positive stories. She explains the improvements she experienced, her transition to an animal-based approach, and the role her supportive family played in her healing journey. Rachel also emphasizes the importance of addressing the nervous system and shares her unique perspective on Lyme disease and the body's innate ability to heal.Timestamps:0:00 - Introduction0:08 - Why I became a carnivore1:15 - My chronic illnesses and struggles1:53 - The search for healing2:41 - Starting the carnivore diet3:05 - Seeing improvements and continuing the diet3:39 - Inspiration from other carnivores4:08 - How I got so sick7:06 - The trigger for my severe illness7:23 - Inspirations to try carnivore10:27 - Support from family and friends16:02 - Eating habits when starting carnivore20:09 - Inclusion of fish and dairy20:59 - Transitioning away from strict carnivore25:54 - Beliefs about Lyme disease26:46 - Importance of healing the nervous system28:32 - The power of visualizationhttps://www.instagram.com/ribeyerach/Thank you so much for listening to my podcast. I hope you enjoyed it. Your support means the absolute world to me. And if you're enjoying the show, I've got a small favor to ask you. I'd be incredibly grateful if you would consider becoming a supporter and make a small monthly donation. Your contribution will really help to improve the show. It's a small monthly contribution. You can cancel at any time, and the link is in the show notes. Support the showAll my links in 1 easy list, including booking and personal training workout plans at LINKTREE You can now download the carnivore experience appApple direct link for apple devices Google play store direct link to app for Android Coach Stephen's Instagram Book me for coaching My growing UK carnivore YouTube channel I have set up a community that is all about eating low-carb and specifically carnivore. CLICK HERE Support my podcast from just £3 per monthBECOME A SUPPORTER Success stories Optimal Health 5 Star reviews All my facebook and other reviews are here Thanks to www.audionautix.com for any music included. Ple...

Stephanie Woodhouse is a physiotherapist based in Melbourne, Australia.  She completed her undergraduate study in 2010 and immediately started work in private practice. From there she went on to complete her Post Graduate Certificate and then Masters in Sports Physiotherapy. She has worked in various elite sports since 2013, many of which have taken her around the world traveling with Australian teams. But, there is another side to her story. She suffered from glandular fever twice during her school years and never really recovered from the second bout and it developed into chronic fatigue syndrome. Over the following 10 years there were some relapses and an additional diagnosis of adrenal fatigue. After development of some new symptoms she was diagnosed with a Chiari Malformation and underwent decompression surgery (brain surgery) late 2018.Working in the health industry whilst also suffering from a number of health concerns has given her an interesting, and in some ways, unique perspective. She has gained a lot of knowledge and has accessed a lot of resources that have allowed her to navigate her journey a little easier. She is also a mumma to Romy who has just turned 1. Initially things were going well with Romy's sleep but soon she found her little one was waking 11x overnight which meant she was too, and her partner ended up sleeping in the spare room! She knew she needed support but never resonated with the CC or CIO approaches. Referred by a friend she embarked on a beautiful journey of personal growth and sleep transformation which she was very keen on sharing with other mummas. During this podcast episode we discuss not only her entire family's sleep transformation but how important it was to undertake a philosophy that was in line with her beliefs such as co regulation and having a long term approach as well as resolving the immediate issues at hand. She discusses the sleep transformation we embarked upon, to be not only about sleep but intense personal growth and overcoming feelings of guilt, judgement and anxiety she experienced as she considered reaching out for support.  She describes her sleep transformation to be “more transformative than birth”. This is an incredible episode which is sure to change your perspective of what it is like to do sleep work with this unique and truly holistic method at The Holistic Sleep Project. Listen to Steph's professional take on sleep work and her personal story here.  LINKS Book your 30 min Discovery Call just like Steph did to take the first step to YOUR sleep transformation https://calendly.com/gwindebank/30-minute-discovery-call?month=2023-11Hear Steph's LIVE via Instagram that was discussed through this podcast ep at https://www.instagram.com/reel/CzZ4pysPIS2/?igshid=bTJ3ZTJmaGd3aTVI Grab your Free Catnapping Guide at https://www.theholisticsleepproject.comCheck out our membership The Sleep Collective at https://www.theholisticsleepproject.com/the-sleep-collective  

October 2023 Guidelines Podcast Congress of Neurological Surgeons Systematic Review and Evidence-Based Guidelines for patients with Chiari Malformations: Part III - Special Edition - Bobby Jones CSF This podcast highlights the benefits to patients and surgeons of including a patient advocate on the guideline team. It also provides a second perspective on appropriate surgical interventions in the treatment of patients with Chiari I malformation (CIM). CNS Guidelines Podcast Host and Moderator: J. Bradley Elder, MD Author: Cormac Maher, MD, Chief of Pediatric Surgery, Stanford Medicine - Children's Health Guest: Dorothy Poppe, Executive Director, Bobby Jones Chiari & Syringomyelia Foundation

“In this episode Noah will explore the following topics, make sure to hear about the Pain Voice, Toxic positivity, and the bystander effect!  Quote of the day! Best practices in decision making  Chiari decompression calculator How to view chances in life How to fight self negative talk (Christie Cox) What the pain voice is and how to fight it (Christie Cox) The connection between the mind and body  The power of being present in the moment  Toxic positivity How to play your cards to win Fostering relationships (Kristin Means) Bystander effect!  

Fiona Ramsay, is a Calgary-based designer with a master's in architecture and a passion for sports and the outdoors. Fiona shares her journey through Chiari Malformation Type 1. Although Chiari is something ninjas scream while driving their fists through the chest cavity of their enemies, this is a completely different kind of Chiari. Chiari malformation is a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is misshapen or smaller than is typical, pressing on the brain and forcing it downward. Fiona emphasizes the challenges of diagnosis and the rollercoaster from symptoms to surgery to recovery. She also sheds light on living with an invisible illness and its profound impact on mental health. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN

Fiona Ramsay, is a Calgary-based designer with a master's in architecture and a passion for sports and the outdoors. Fiona shares her journey through Chiari Malformation Type 1. Although Chiari is something ninjas scream while driving their fists through the chest cavity of their enemies, this is a completely different kind of Chiari. Chiari malformation is a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is misshapen or smaller than is typical, pressing on the brain and forcing it downward. Fiona emphasizes the challenges of diagnosis and the rollercoaster from symptoms to surgery to recovery. She also sheds light on living with an invisible illness and its profound impact on mental health. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN

September 2023 Guidelines Podcast Congress of Neurological Surgeons Systematic Review and Evidence-Based Guidelines for patients with Chiari Malformations: Part II (Surgical Interventions) This clinical guideline has been created to improve patient care by outlining the appropriate surgical interventions involved in the treatment of patients with Chiari I malformation (CIM). This guideline was created as an educational tool to guide qualified physicians through a series of surgically-related decisions to improve the quality and efficiency of care for patients with CIM. CNS Guidelines Podcast Host and Moderator: J. Bradley Elder, MD First Author: Jogi V. Pattisapu MD FAAP FACS FAANS Resident Fellow and Co-Host: Brandon Laing, MD

In this episode of The Headache Doctor Podcast, Dr. Taves explains Chiari Malformation, an abnormality that causes the brainstem and cerebellum to be pressed into the spinal canal, disrupting the flow of the spinal fluid (causing an increase in pressure in the brain). Check out this podcast to learn about the 3 different types of Chiari and to discover recommendations on next steps if you have been diagnosed with Chiari.  Novera: Headache Center

In this episode, we review the high-yield topic of ⁠Chiari Malformation⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the Neurology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets --- Send in a voice message: https://podcasters.spotify.com/pod/show/medbulletsstep1/message

Welcome to Season 3 Episode 20 of Winning Isn't Easy, the podcast that dives into the complexities of disability insurance claims. In this episode, we turn our focus to an essential topic: "Chiari Malformation Disability Claims."Join us as we explore the unique challenges and intricacies of disability claims related to Chiari Malformation. This condition can have a significant impact on an individual's daily life and ability to work, making it crucial to understand the complexities of navigating the claims process.Our host, Nancy Cavey, a seasoned disability attorney, shares her expertise in handling Chiari Malformation disability claims. Nancy will provide valuable insights and strategies for effectively advocating for your rights as a claimant and securing the disability benefits you deserve.Throughout the episode, we'll discuss the medical evidence required to support a Chiari Malformation disability claim, common issues faced during the claims process, and the importance of accurate and comprehensive medical records.Whether you're personally dealing with a Chiari Malformation disability claim or seeking to deepen your understanding of this topic, this episode offers valuable information to help you navigate the complexities of Chiari Malformation disability claims.Tune in to Winning Isn't Easy Season 3 Episode 20: Chiari Malformation Disability Claims, and join us as we shed light on this critical subject, empowering you to fight for the disability benefits you need during this challenging time.Resources Mentioned In This Episode:LINK TO ROBBED: https://caveylaw.com/get-free-reports/get-disability-book/LINK TO PROFESSIONAL BOOK: https://caveylaw.com/get-free-reports/disability-insurance-claim-survival-guide-professionals/FREE CONSULT LINK: https://caveylaw.com/contact-us/Need Help Today?Need help with your Long Term Disability or ERISA claim? Have questions? Please feel free to reach out to use for a FREE consultation. Just mention you listened to our Podcast!Review like and give us a thumbs up! We love to see your feedback about our Podcast!Please note that the information provided in this episode is based on general knowledge and should not substitute for personalized advice from a qualified disability attorney or medical professional.

This one is about working on the pediatric feeding team and your role as the SLP from your initial evaluation to the development of a very detailed treatment program. This is PreChaining 101 from birth to age one year. I also discuss how to see the big scary red flags and the all important signs of big anatomical TROUBLE. So jump in, let's learn about these extremely complex issues that lead to severe feeding problems and aversion. --- Send in a voice message: https://podcasters.spotify.com/pod/show/cheri-fraker/message

Today's episode is sponsored by Jeannie Kulwin Coaching. Book your FREE 45 minute call with Jeannie on her website: https://www.jeanniekulwin.com/ OR follow Jeannie on IG: https://www.instagram.com/jeanniekulwincoaching/ In today's episode with Rachael you will learn: How to get through the harder days of healing How the carnivore diet supported Rachel on her healing journey & more about supportive nutrition How light therapy and nature has supported her healing journey What Rachel's favorite regulation tools are How to overcome limiting beliefs and resistance to rewiring Rachael is a health and nutrition blogger sharing her journey to healing from years of severe chronic illness (EDS, POTS, Chiari malformation, Gastroparesis, etc). At her worst, she was bed-bound, and she is now thriving. Rachael hopes to encourage others going through similar challenges and spread the message that recovery is possible! Connect with Rachael: ▶Website: https://ribeyerach.com/ ▶ IG: https://www.instagram.com/ribeyerach/ ▶FB: https://ribeyerach.com/ ▶YT: https://www.youtube.com/@RibeyeRach/ Connect with me: ▶Website: www.ourpoweriswithin.com ▶ IG @OurPowerIsWithin  ▶ FB: Our Power Is Within ▶Join the podcast Facebook group Check out ⁠⁠my favorite product recommendations⁠⁠ (good for us, good for the Earth) For more information on alternative Self Healing Programs: ⁠⁠⁠⁠Primal Trust Academy⁠⁠⁠⁠ Use code OPIW for 5% off CFS School ⁠⁠⁠⁠DNRS ⁠⁠⁠⁠ ⁠⁠GUPTA ⁠⁠ PS: IF you aren't familiar with www.rewiringyourwellness.com - check them out - it is another wonderful resource for all things healing & rewiring. The next speaker for the 2023 Speaker Series is Sonya Mujeeb, an Integrate Health Coach, on July 25th @ 11am PDT PSS: NEW cover art & logo designed by Joe C @Joecdesign.com OR follow him on IG @JoeC.333 Click HERE to listen to the latest episode with Jeannie Kulwin. Disclaimer: The Content provided on this podcast is for informational purposes only. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast. Individual results may vary.  Show notes may contain affiliate links to products. I may receive a commission for purchases made through these links. Thank you for your support.  --- Support this podcast: https://podcasters.spotify.com/pod/show/ourpoweriswithin/support

During the first rotation, I (Ken) was at a vestibular clinic to work on patient's balance and unsteadiness. I had two patient's with Chiari Malformation which peaked my interest in the topic. So let's dive in to more details on how I picked it and the presentation itself.    https://linktr.ee/theptassistants   Don't forget to like, comment, and share with others in the PTA world! Thank you for everything.

Chiari Malformation: Identifying Potential Oral Health Symptoms in Dental Patients By Spring Hatfield, RDH, BSPH Original article published on Today's RDH: https://www.todaysrdh.com/chiari-malformation-identifying-potential-oral-health-symptoms-in-dental-patients/ Need CE? Start earning CE credits today at https://rdh.tv/ce Get daily dental hygiene articles at https://www.todaysrdh.com Follow Today's RDH on Facebook: https://www.facebook.com/TodaysRDH/ Follow Kara RDH on Facebook: https://www.facebook.com/DentalHygieneKaraRDH/ Follow Kara RDH on Instagram: https://www.instagram.com/kara_rdh/

In this episode I talked to Alex about being diagnosed with Chiari malformation when she was in high school and how it has affected her throughout her life. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/lmbdl/message Support this podcast: https://anchor.fm/lmbdl/support

In this week's podcast, Neurology Today's editor-in-chief discusses new findings on decompression for Chiari malformation, the association of atrial cardiopathy with dementia, and a neurology resident's 3D printing of brain model.

Jeff, the head trainer at Orangetheory East Delray, discusses his journey with Chiari Malformation, Syringomyelia, and his decompression surgery. He speaks about the importance of excercise to his quick recovery. He talks about how Orangetheory has helped him both mentally and physically.

A client is sore and has joint pain in multiple locations. She is easily triggered into painful spasms. And . . . she has an unusual form of spina bifida. What is spina bifida? What makes this person's experience of it unique? And what opportunities are here for massage therapy to be helpful?   Sponsors:     Books of Discovery: www.booksofdiscovery.com     Advanced-Trainings: www.advanced-trainings.com   Host Bio:                    Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com.                    Recent Articles by Ruth:          “Unpacking the Long Haul,” Massage & Bodywork magazine, January/February 2022, page 35, www.massageandbodyworkdigital.com/i/1439667-january-february-2022/36.   “Chemotherapy-Induced Peripheral Neuropathy and Massage Therapy,” Massage & Bodywork magazine, September/October 2021, page 33, http://www.massageandbodyworkdigital.com/i/1402696-september-october-2021/34.           “Pharmacology Basics for Massage Therapists,” Massage & Bodywork magazine, July/August 2021, page 32, www.massageandbodyworkdigital.com/i/1384577-july-august-2021/34.       Resources:    Pocket Pathology: https://www.abmp.com/abmp-pocket-pathology-app   CDC (2020) What is Spina Bifida? | CDC, Centers for Disease Control and Prevention. Available at: https://www.cdc.gov/ncbddd/spinabifida/facts.html (Accessed: 8 August 2022).   Sencen, L. (no date) ‘Spina Bifida', NORD (National Organization for Rare Disorders). Available at: https://rarediseases.org/rare-diseases/spina-bifida/ (Accessed: 8 August 2022).   Spina Bifida Causes, Treatment, Symptoms, Types & Life Expectancy (no date) eMedicineHealth. Available at: https://www.emedicinehealth.com/spina_bifida/article_em.htm (Accessed: 8 August 2022).   Tethered Spinal Cord Syndrome | National Institute of Neurological Disorders and Stroke (no date). Available at: https://www.ninds.nih.gov/health-information/disorders/tethered-spinal-cord-syndrome (Accessed: 8 August 2022).   Podcast on Chiari Malformation: https://www.abmp.com/podcasts/ep-208-chiari-malformation-i-have-client-who-pathology-conversations-ruth-werner   About our Sponsor:   About Til Luchau and Advanced-Trainings.com:   As a Certified Advanced Rolfer™, Til was on the faculty of the Dr. Ida Rolf Institute® for 20 years, where he served as Coordinator and Faculty Chair of the Foundations of Rolfing Structural Integration program. The author of the Advanced Myofascial Techniques textbook series (which has been translated into 6 languages), his regular Myofascial Techniques and Somatic Edge columns have been featured in Massage & Bodywork magazine since 2009, and (along with Whitney Lowe) he co-hosts the popular Thinking Practitioner Podcast. He is the Director of Advanced-Trainings.com which since 1985 has offered short, credit-approved professional trainings and certification for manual therapists of all types, in person and online.   Website: Advanced-Trainings.com   Email: info@advanced-trainings.com   Facebook:  facebook.com/Advanced.Trainings1/   Instagram: instagram.com/tilluchau   YouTube: youtube.com/user/AdvancedTrainings  

Maddi shares her very interesting story and talks at length about her experience with postnatal depression. After her first positive vaginal birth, she was diagnosed with chiari malformation type 1 where part of the brain at the back of her skull bulges and puts pressure on the spinal column. Her neurologist confirmed that she could birth vaginally but she wouldn't be able to have an epidural or spinal block if an emergency situation arose. Maddi accessed all the evidence she could relating to chiari malformation and vaginal birth yet she couldn't find any information on the ongoing effects after birth. Subsequently, she made the informed choice to plan a caesarean birth under general anaesthetic. 

“Everybody that's on this journey is just as challenged as we are. And it can be one of the most empowering beautiful experiences when we share our pain and what we've been through if we intentionally create greatness with it.” -Mallisa J. Vogel   Failure is not an identity. It is a chapter that we can flip into an unexpected plot twist. It is a natural part of life but it doesn't define who we are as people or our potential as leaders.  The first time we fail at something, it may feel like a big deal. But if there is one thing that life has taught us, it is that failure can actually lead to great things. Mallisa J. Vogel aka “MJ Vogel Inspire” learned to turn her darkest moments into her strength. Life was hard for Mallisa growing up in an economically challenged household with so much violence, lacking education, and being diagnosed with Chiari Malformation, a congenital condition tha affects brain structure and spinal cord. But through it all, she found her power and became a strong business leader, author, podcaster, and woman.  In this episode, Daniel and Mallisa talk about how to build the hero within us, how to remove the limitations imposed on us, why we should appreciate the boring and mundane stuff that goes into success building, how to set up habits and systems, how we should view money, what differentiates failure from success, and what it means to choose our 158.  Tune in as Daniel and Mallisa double the inspiration in this week's podcast!    Be Inspired! with Daniel:  Website Email Facebook Facebook Group Twitter Pinterest YouTube Episode Highlights: 03:47 When Life Punches You In The Face 10:34 Breaking the Cycle of Hurt 14:03 Be the Hero of Your Story 21:33 Build Your Own Habits and Systems 26:46 Allow Yourself to Celebrate Yourself  33:23 What are Your Money Beliefs?  37:43 Abundance Hacks 40:11 Fork in the Road

Introducing nurse, speaker, mentor, author, poet, and radio show host Dr. Saprina Allison. Learn about her diagnosis of Chiari Malformation and what it is How she has Defied the Odds not living life as a label or a statistic Her role as an internet radio host and an author Dr. Saprina Allison was born to be a nurse and to defy  the odds. Starting her career in Baltimore City gave her what some would call guts and grit. She has always been known as a fierce fighter of disparities, and a strong proponent  for patient education and advocacy. It is Saprina's goal to make sure that each individual has the appropriate tools to apply to make an informed decision. Knowledge is useless to have if it is never applied. After more than 20 years of being a nurse, the nurse became a patient. Being diagnosed with Chiari Malformation, an incurable but treatable brain disorder, Saprina became her best advocate and educator to those around her. Being told what she could not do ignited a fire on the inside of Saprina to INTENTIONALLY LIVE LIFE NOT A LABEL. Blessed with the gift of writing , she now spends her time writing poetry, doing speaking engagements, and mentoring others with chronic disorders. Her Mantra for life is Run Hard Dream Big and Create a Legacy Brought to you by J.C. Cooley Foundation  "Equipping the Youth of Today for the Challenges of Tomorrow" : https://www.cooleyfoundation.org  Support the show: http://www.cooleyfoundation.org/ See omnystudio.com/listener for privacy information.

In this POTS Basics episode, we cover some uncommon POTS comorbidities that can cause or exacerbate POTS symptoms. Join us for a tour of the brain and spinal cord in relation to the bony structures that surround them a way that we haven't done before on The POTScast! You can read the transcript for this episode here: https://tinyurl.com/24zk85f5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

In this POTS Basics episode, we cover some uncommon POTS comorbidities that can cause or exacerbate POTS symptoms. Join us for a tour of the brain and spinal cord in relation to the bony structures that surround them a way that we haven't done before on The POTScast! You can read the transcript for this episode here: https://tinyurl.com/24zk85f5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Thank you for joining us for our 2nd Cabral HouseCall of the weekend! I'm looking forward to sharing with you some of our community's questions that have come in over the past few weeks…   Justin: Hi Dr. Cabral, Does cold weather make you sick? My mother is paranoid about her body being cold even when she is inside, and being out in the cold weather she is even more paranoid. She is convinced cold weather will make her sick. I've looked this up and could not find anything on it. Thanks   Fay: I'm curious… Dr. Cabral you cured yourself of all your diseases. Drs tell me mine is not reversible. I have Exocrine Pancreatic Insufficiency (EPI).. my pancreas is not producing the enzymes I need to digest my fats, proteins and carbs. I have done your labs and your protocols. However, I am going to have this continued bacterial overgrowth because of the EPI. I am taking XXXX enzymes with all meals. My pancreas is fine, not enlarged. My liver is fine..I still have my gallbladder. I have no surgeries or diseases. I've done all the bloodwork, endoscopy  etc. I am fine except for the EPI. My Dr said I was drinking more alcohol than I should have on a daily basis. It's been a few years now that I only have few drinks on weekends. I know I should have none.. I've tried that with no change. My question is can I heal my pancreas so that it makes the enzymes I need? Otherwise there's no point in doing anything more to get rid of the excess bacteria I have.. it'll just keep coming back. I suffer with bloating and burping. XXXX enzymes helps but I really don't want to take these pills the rest of my life if I don't have to. Thanks for any insight with this.   Kenny: Hi Dr. Cabral, a friend sent me an article saying that there's health risks to taking melatonin. I take it at least 5 nights a week and I know in the past you've spoken very highly on melatonin and it's safety. Here is a link to the article. It's CNN, so I am very skeptical already. Looking forward to hearing your thoughts. Thx! https://www.cnn.com/2022/02/01/health/melatonin-overuse-wellness/index.html   Alicja: Hi Dr. Cabral, I love your podcast and have learned so much from it! I've had candida overgrowth and other gut issues that I have been working on. I've done a couple of protocols for candida and parasites in the past (not yours) but still experience lot's of bloating. I take probiotics daily. One of the probiotics I take has S.boulardi in it. I know it's a good yeast, but it still yeast. My question: can Saccharomyces boulardii make candida worse? I also had to take antibiotic recently (Xifaxan), so I want to bring good bacteria to my gut now. Will I benefit from s.boulardi, or can it make my candida worse? (I just purchased Complete Candida, Matabolic and Vitamins test from you and will retest for candida to see where I stand now, I'm curious about the "good fungi" and candida interaction)   Alicja: Hi again Dr. Cabral, I also would love to ask you about the medicianal mushrooms and candida overgrowth? Chaga, Reishi, Lion's Mane, Turkey Tail, Cordyceps etc. Can they be good for a person with gut imbalances and candida overgrowth? Or will they make my condition worse? Thank you so much for your answers. Lot's of gratitude and love towards you and your family.   Elizabeth: Hi Dr. Cabral! Thank you for all of your wonderful wisdom - I have been a faithful follower for many years. My daughter was diagnosed with a Chiari-1 malformation at age 2 (about 4 years ago) after a fall that required a CT scan due to persistent concussive symptoms. We had an MRI one year ago that showed interval development of a syrinx. Because of the higher probability that it may cause irreversible paresthesias and/or chronic pain, we decided to have decompression surgery in attempt to reduce the pressure in her spinal cord. She has had a follow-up MRI in the past 6 months which has not shown much improvement in the size of the syrinx. Wanting to avoid surgery again, I am curious as to whether you have any recommendations (not cures, diagnoses or treatments) to improve her symptoms. We are currently in PT due to her low muscle tone and poor coordination. I also give her a high quality multivitamin, Vitamin D3/K2, and omega daily. How would you treat this if it were your daughter? Thank you again! Elizabeth Thank you for tuning into this weekend's Cabral HouseCalls and be sure to check back tomorrow for our Mindset & Motivation Monday show to get your week started off right! - - - Show Notes & Resources:  http://StephenCabral.com/2249 - - - Dr. Cabral's New Book, The Rain Barrel Effect https://amzn.to/2H0W7Ge - - - Join the Community & Get Your Questions Answered: http://CabralSupportGroup.com - - -  Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Stress, Sleep & Hormones Test (Run your adrenal & hormone levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels)

Disclaimer: This episode does mention ideas on race but it's not to offend anyone. Today we discuss Chiari Malformation which is a brain injury from birth. Ms. Triveda talks about her issues while living with this health condition! --- Send in a voice message: https://anchor.fm/tharemedy/message

Jordan Ray was on track to becoming a D1 Athlete until she was diagnosed with a rare condition called Chiari Malformation, as a result of her condition her dreams were shattered. Two years later she launched her company 'Limitless Medical Logs' at the age of 19.www.shorturl.at/giGKOLink for next week's event. 

A client can't find a massage therapist, because they have a condition that no one knows how to work with: Chiari malformation. This is a problem in the spatial relationships between the cerebellum, brainstem, and the foramen magnum. One patient describes it as, “My brain is too big for my head.” But is massage really off the table for people with Chiari malformation? Probably not! Listen in for more on what this condition means, and how to figure out where our work fits.   Sponsors:     Books of Discovery: www.booksofdiscovery.com      Advanced Trainings: advanced-trainings.com    Host Bio:                    Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com.                                     Recent Articles by Ruth:          “Unpacking the Long Haul,” Massage & Bodywork magazine, January/February 2022, page 35, www.massageandbodyworkdigital.com/i/1439667-january-february-2022/36. “Chemotherapy-Induced Peripheral Neuropathy and Massage Therapy,” Massage & Bodywork magazine, September/October 2021, page 33, http://www.massageandbodyworkdigital.com/i/1402696-september-october-2021/34.           “Pharmacology Basics for Massage Therapists,” Massage & Bodywork magazine, July/August 2021, page 32, www.massageandbodyworkdigital.com/i/1384577-july-august-2021/34.       Resources:    Pocket Pathology: https://www.abmp.com/abmp-pocket-pathology-app   ‘Chiari Malformation: Practice Essentials, Problem, Epidemiology' (2021). Available at: https://emedicine.medscape.com/article/1483583-overview (Accessed: 1 March 2022).   Chiari Malformation Fact Sheet | National Institute of Neurological Disorders and Stroke (no date). Available at: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Chiari-Malformation-Fact-Sheet (Accessed: 28 February 2022).   Hidalgo, J.A., Tork, C.A. and Varacallo, M. (2022) Arnold Chiari Malformation, StatPearls [Internet]. StatPearls Publishing. Available at: https://www.ncbi.nlm.nih.gov/books/NBK431076/ (Accessed: 1 March 2022).  

Imagine being seized by pain after laughing, sneezing, and even talking. Imagine having to avoid funny people, loud places, and singing in the car. For Christie Griffith, this has become reality after being diagnosed with Chiari malformation, a birth defect that affects 1 in 1000 individuals. Her symptoms rapidly progressed after sustaining a concussion while snowboarding in early 2021. Today's we step into Christie's world of living with Chiari malformation. We swim through events of the past year and arrive at the apogee of her journey, decompression surgery that was just a few weeks away at the time of this recording. This conversation is about bringing awareness to chiari malformations and what it's like to live with the condition. It features an inspiring look into how Christi has managed to balance her debilitating symptoms with her full-time job and, perhaps most importantly, being there for her family and her 9-year-old daughter. Christie is not one to come front and center, but she is on a mission to raise awareness and build a community of people who understand the realities of living with a chiari malformation. Christie's Instagram: https://www.instagram.com/christie_with_chiari/?hl=en Help Support the Podcast: https://anchor.fm/thechronicpod/support — Find the Chronic Connection Community: Podcast Instagram: @thechronicpod Twitter: @thechronicpod Join us on Facebook! https://www.facebook.com/thechronicpod Morgan's Instagram: @lifewithmigraine --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/thechronicpod/message Support this podcast: https://anchor.fm/thechronicpod/support

This weeks Warrior Guest is Lucy, Lucy will take us on her Journey of being a Mom and wife while navigating her Chronic Conditions in daily pain. Lucy's conditions include I.I.H a disorder related to pressure in the brain, it causes symptoms and signs of a Brain Tumor. She also has Chiari malformation type 1 where the lowest part of her brain extends into the spinal canal. You can follow Lucy on Instagram @lucy.ali.87

Today we have the honor of speaking with Evelyn Morales.  Evelyn is a beautiful young mother living in Texas, and has had some physical challenges over the past few years.  I started following her on TikTok due to her super positive "I Can Do This!" attitude.  ​Evelyn's health journey began with a diagnosis of hypothyroidism.  Hypothyroidism is when the thyroid gland doesn't make enough of the thyroid hormone called thyroxine (T4). This causes the body's system to slow down and can lead to symptoms like fatigue, feeling cold, weight gain due to fluid retention, dry skin, and hair loss.  She then was diagnosed with Chiari Malformation. Chiari malformations are structural defects in the base of the skull and cerebellum, the part of the brain that controls balance.  Normally the cerebellum and parts of the brain stem sit above an opening in the skull that allows the spinal cord to pass through it (called the foramen magnum).  When part of the cerebellum extends below the foramen magnum and into the upper spinal canal, it is called a Chiari malformation (CM).  This had her struggling for relief from the severe neck and shoulder pain, migraines, dizziness and nausea.  When her doctor said surgery was the best option to help with all of the Chiari symptoms she should have been relieved, but due to the excess weight gain from her thyroid she wasn't a good candidate for brain surgery.  That didn't stop Evelyn!   Her next step was to drop more than HALF OF HER 498 lbs!  After successfully going through a gastric sleeve procedure and many hours of dedicated fitness routines she achieved that goal and was able to have her decompression surgery to stop the brain from crowding her spinal cord.  Her beautiful daughter helped in her recovery, even to a point of changing the dressings at the base of her skull following surgery!  A very brave young lady (like her mom)!  From what I hear, she might be back on for another episode in the future  (medical mysteries continue)!!  

Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things. Just ask gold medalist Allysa Seely. Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more. Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she's been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis. Allysa confides that she used all her “you can't”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days. Allysa's story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship. #TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner

Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things.Just ask gold medalist Allysa Seely.Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more.Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she's been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis.Allysa confides that she used all her “you can't”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days.Allysa's story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship.#TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS  #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

Most scoliosis is termed "Idiopathic" which means "of unknown cause".  Sometimes though, scoliosis is caused by other things that we do know.  In this episode, I talk to Izzy and her mother, Julie, about scoliosis that came on after a neurological cause.   Izzy was diagnosed with a Chiari Malformation which caused her scoliosis.  Her experience and journey through brain surgery and then scoliosis treatment is inspiring.    Even with brain surgery and faithfully bracing, Izzy is now looking at having VBT surgery to reduce the size of her curve as she continues to grow.  In this episode you can hear how she has stayed motivated and optimistic.  Her advice is to stay positive and ask questions.  Listen to the rest of her story to learn more about what you can do to help your own curve.     You can learn more about scoliosis in children by going to our website at  https://aligntherapyutah.com/child-teen-scoliosis/

All episodes are available at https://TheNeuroNerds.com.  Follow @TheNeuroNerds on Twitter/Instagram and Like us at Facebook.com/TheNeuroNerds. SummaryThe NeuroNerds are running in the London marathon! Well, virtually participating that is, since we're not physically there, on behalf of the Brain & Spine Foundation on October 3, 2021.  In this episode, Joe interviews fellow Brain & Spine Foundation ambassador Rhys Johnson plus their Community and Events Fundraising Officer, Grace Patient is joining us once again to talk about the marathon as well as all of the wonderful things this organization does to raise funds and awareness to support brain injury survivors.And with September being Chiari Malformation Awareness Month, Rhys is sharing his journey of getting diagnosed with this condition and his road to recovery.Want to support the Brain & Spine Foundation's London Marathon fundraiser?  Go here to donate - www.justgiving.com/fundraising/The-NeuroNerds.  Links Mentioned:- Learn more about the Brain & Spine Foundation - https://www.brainandspine.org.uk/- Follow Brain & Spine Foundation on IG - https://instagram.com/brainandspine- Follow Rhys Johnson on IG - https://www.instagram.com/rhys_kye- Read Rhys' full story here - https://www.brainandspine.org.uk/supporting-you/personal-stories/patient-and-carer-stories/rhys-story/ Check out The NeuroNerds Amazon Shop at amazon.com/shop/theneuronerdsPlus get a free Audible trial at http://www.audibletrial.com/theneuronerds! Currently, The NeuroNerds are reading our fellow stroke survivor, Kavita Basi's book ‘Room 23.' Join us! Credits- Support The NeuroNerds podcast on Patreon and join our NeuroJedi High Council at www.Patreon.com/TheNeuroNerds- Co-hosted by Joe Borges and Lauren Manzano- Find Joe at http://joesorocks.com and @joesorocks on Twitter/Instagram and submit your stroke/brain injury recovery story at https://www.joesorocks.com/submit-your-story- Find Lauren at @laurenlmanzano on Instagram, @tankbbg on Twitter

It's Chiari Malformation Awareness Month. Let's talk with Fran S. --- Send in a voice message: https://anchor.fm/chroniclesbspodcast/message

Got the chance to speak with an extraordinary 9 year old named Steven Spice. Steven hosts a YouTube channel call SWJ - Stevens Wrestling Journey where he interviews professional wrestlers. Steven was diagnosed with Chiari Malformation a rare incurable disease but he doesn't let it stop him. Steven has even been featured on WWE's The Bump following his interview with Kevin Owens and appeared on the show with him. Steven also gained some notoriety for his interview with Edge (Adam Copeland) which has surpassed 10k views on his channel. Steven is also raising money with Sick Kids so that hopefully a cure can be found and no kid has to go through what he has. If you would like to make a donation here is the link: https://fundraise.sickkidsfoundation.com/stevenshearts YouTube Channel: https://www.youtube.com/c/SWJStevensWrestlingJourney/featured

Excerpt taken from: Persistent Central Apnea and Long-Term Outcome After Posterior Fossa Decompressive Surgery for Arnold Chiari Type 1 Malformation in a Pediatric PatientArnold Chiari malformation (ACM) is the most common cause of central sleep apnea (CSA) in otherwise healthy children. Although there are several case reports and series reported on this topic, there are limited descriptions of the long-term course of these children after the surgical interventions. Posterior fossa decompression surgery to relieve pressure of the herniating cerebellum on the brainstem is generally thought to significantly improve CSA in most cases, however, there are very limited data on the natural course of CSA in children following decompression surgery. There may be a subset of children in whom it may take much longer for CSA to resolve, and in some it may not resolve completely. Hence, these children need to be followed closely with sleep studies to document resolution of CSA.In the case report referenced, Dr. Abigail Strang and Dr. Umakanth Katwa describe a 10-year-old male with severe CSA who was subsequently diagnosed with type 1 ACM and underwent posterior fossa decompressive surgery. However after surgery, although there was improvement in his CSA, he still had a significant degree of residual CSA which required bilevel positive pressure therapy and took more than 7.5 years to resolve. This case report illustrates the need for close follow-up in these children and for providers to understand the natural course so they can accurately counsel families about expectations after surgical treatments.Read the study here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6457512/

During this episode we speak to Mariel D. Moya whom is a psychic medium, mom, entrepreneur, graphic artist, Chiari Malformation warrior, Comadre and so much more speaks to us about her “medium” journey and we have an unexpected special guest. --- Send in a voice message: https://podcasters.spotify.com/pod/show/riseandsucceed/message Support this podcast: https://podcasters.spotify.com/pod/show/riseandsucceed/support

Check out the forty-second episode of CWN Weekly as CWN Founder & Editor Chris Maloney shared his thoughts on the passings of Bob Biladeau & Pasion Kristal, John 'Earthquake' Tenta, All Elite Wrestling, Mark Henry, WWE Hell in a Cell 2021, WWE SummerSlam 2021, Awesome Kong, NXT TakeOver: In Your House 2021, Rated-RKO, Big Japan Pro-Wrestling, Chelsea Green, Muertes, Josh Alexander, IMPACT Wrestling: Slammiversary 2021, Chris Jericho, Lacey Evans, Game Changer Wrestling, Joanie 'Chyna' Laurer, Andrade El Idolo, Bret Hart, The Dream Team, NJPW Dominion in Osaka-Jo Hall 2021, Dark Side of the Ring: Season 3, UFC Fight Night: Rozenstruik vs. Sakai, Floyd Mayweather vs. Logan Paul, Steven's Hearts for Chiari Malformation, #WeAreCIW, #SWSO, Canadian Wrestling Network, Pro Wrestling Tees and much more! CWN Weekly airs LIVE every week and you can check out the forty-second episode at the following links: Facebook: https://www.facebook.com/81039719205/videos/906968729880991 Twitch: https://www.twitch.tv/videos/1046893341 YouTube: https://www.youtube.com/watch?v=kJepcNyk3pM From Coast to Coast... We've got it covered! #CWNweekly #EP42 #PrideMonth #StevenSTRONG #WeAreCIW #CWNonline #12YearsSTRONG #CWNetwork #CANUCKproud

Check out the forty-first episode of CWN Weekly as CWN Founder & Editor Chris Maloney shared his thoughts on Steve Corino, Josh Alexander, Kazuchika Okada, El Desperado, Adnan Virk, ROH Survival of the Fittest 2021, #FutureEndeavors, WWE Ratings, Jimmy Smith, AEW Unrestricted, AEW Media Briefing with Cody Rhodes, Tom Phillips, WWE SummerSlam 2021, Dark Side of the Ring: Season 3, Tony Khan, Paige, NJPW Dominion in Osaka Jo Hall 2021, Willie Urbina, Off-season, Steven's Hearts for Chiari Malformation, #WeAreCIW, #SWSO, Canadian Wrestling Network, Pro Wrestling Tees and much more! CWN Weekly airs LIVE every week and you can check out the forty-first episode at the following links: Facebook: https://www.facebook.com/81039719205/videos/945577476215633 Twitch: https://www.twitch.tv/videos/1039406606 YouTube: https://www.youtube.com/watch?v=a-hbl-rmTeU From Coast to Coast... We've got it covered! #CWNweekly #EP41 #StevenSTRONG #WeAreCIW #CWNonline #12YearsSTRONG #CWNetwork #CANUCKproud

Check out the fortieth episode of CWN Weekly as CWN Founder & Editor Chris Maloney shared his thoughts on Hana Kimura, Owen Hart, New Japan Pro-Wrestling, ROH Best In The World 2021, Don Kernodle, AAA Triplemania XXIX, Bronson Reed, NXT Roster Cuts, The 50 Greatest Tag Teams in WWE History, #AEWonTBS, Will Ospreay, WWE SummerSlam 2021, Velveteen Dream, Dark Side of the Ring: Season 3, Violent By Design, Davey Richards, Andy 'The Butcher' Williams, WWE Live, The Ultimate Warrior, Off-season, Steven's Hearts for Chiari Malformation, Alexia Nicole, #WeAreCIW, #SWSO, Canadian Wrestling Network, Pro Wrestling Tees and much more! CWN Weekly airs LIVE every week and you can check out the fortieth episode at the following links: Facebook: https://www.facebook.com/81039719205/videos/514986429540902 Twitch: https://www.twitch.tv/videos/1032784546 YouTube: https://www.youtube.com/watch?v=fry5l58LcGg From Coast to Coast... We've got it covered! #CWNweekly #EP40 #RIPOwenHart ❤️ #RIPHanaKimura

Check out the thirty-ninth episode of CWN Weekly as CWN Founder & Editor Chris Maloney shared his thoughts on the passing of Jerome 'New Jack' Young, Billy Red Lyons, New Japan Pro-Wrestling, AEW Dynamite LIVE, Chelsea Green, Renée Paquette, Jinder Mahal, NXT TakeOver: In Your House 2021, Quinn McKay, Zelina Vega, WWE LIVE, ROH Survival of the Fittest 2021, Sonya Deville, ELP, UFC 262: Oliveira vs. Chandler, Off-season, Steven's Hearts for Chiari Malformation, Alexia Nicole, #WeAreCIW, #SWSO, Canadian Wrestling Network, #CWNinterview, Pro Wrestling Tees and much more! CWN Weekly airs LIVE every week and you can check out the thirty-ninth episode at the following links: Facebook: https://www.facebook.com/81039719205/videos/1451937701821659 Twitch: https://www.twitch.tv/videos/1023787526 YouTube: https://www.youtube.com/watch?v=PjTclXN26BI From Coast to Coast... We've got it covered! #CWNweekly #EP39 #RIPNewJack #WeAreCIW #StevenSTRONG #CWNonPWT #CWNonline #12YearsSTRONG #CWNetwork #CANUCKproud

This week, Kaite McKenna comes on the podcast to share her story of living with rare neurological conditions Syringomyelia and Chiari Malformation.  This episode is brought to you first and foremost by the Storytime Superhero Patrons on YouTube. Become a Patron: http://clisare.rocks/support This podcast is also supported by Amazon Music. Get unlimited access to 70 million songs with a free, 30-day trial. Cancel anytime. Click the link in the show notes or in the video description on YouTube or go to http://getamazonmusic.com/clisare (AF)

Ryan French of “Monday Q Info” on Twitter joins The Fire Pit Collective, a modern media network. From a TV on fire to the Fire Pit, we welcome Ryan French to the Collective. A Robin Hood of golf and media, the humble and thoughtful stay-at-home dad found a platform and a purpose while tending to the responsibilities of a daughter and a son, who, at the age of 18 months, was diagnosed with Chiari Malformation, a rare brain condition that required surgery. With a supportive family and friends who he made along the backroads of scruffy mini-tour venues, French launched a Twitter handle @acaseofthegolf1, more commonly referred to as “Monday Q Info,” which recently surpassed 50,000 followers. One of them is Aaron Rodgers, who slid into French’s DMs in order to support Monday qualifiers. Monday Q Info is one of the best stories in golf right now, and it’s because of the stories he’s compelling all of us to care about. See Michael Visacki, Corey Conners, and the guitar-playing lasso champion who competed in the Byron Nelson pre-qualifier. What’s French’s relationship with the PGA Tour? They, like everyone else, are taking notice. And rightfully so.  Visit the The Fire Pit Collective to check out everything we are doing. Use promo Firepit25 at Linksoul.com for 25% off your next Linksoul order. Got a comment about this story or a tip on a story we should track down? You can reach me on Twitter (@mattginella) or on Instagram (@matt_ginella). For bonus visuals and some behind the scenes of The Fire Pit podcast production, go to The Fire Pit YouTube Channel.

Excerpt taken from: Persistent Central Apnea and Long-Term Outcome After Posterior Fossa Decompressive Surgery for Arnold Chiari Type 1 Malformation in a Pediatric PatientArnold Chiari malformation (ACM) is the most common cause of central sleep apnea (CSA) in otherwise healthy children. Although there are several case reports and series reported on this topic, there are limited descriptions of the long-term course of these children after the surgical interventions. Posterior fossa decompression surgery to relieve pressure of the herniating cerebellum on the brainstem is generally thought to significantly improve CSA in most cases, however, there are very limited data on the natural course of CSA in children following decompression surgery. There may be a subset of children in whom it may take much longer for CSA to resolve, and in some it may not resolve completely. Hence, these children need to be followed closely with sleep studies to document resolution of CSA.In the case report referenced, Dr. Abigail Strang and Dr. Umakanth Katwa describe a 10-year-old male with severe CSA who was subsequently diagnosed with type 1 ACM and underwent posterior fossa decompressive surgery. However after surgery, although there was improvement in his CSA, he still had a significant degree of residual CSA which required bilevel positive pressure therapy and took more than 7.5 years to resolve. This case report illustrates the need for close follow-up in these children and for providers to understand the natural course so they can accurately counsel families about expectations after surgical treatments.Read the study here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6457512/Visit www.airwayandsleepgroup.com.

Paige Willis is a full time student, barista at Starbucks while also pursuing a career as a musician and released her very first single “Does She Know Me” last fall. As well as pursuing music she is working towards a degree in theater with a minor in psychology. She's had a some great accomplishments but the most recent one she can check off her list is surviving brain surgery! We will discuss her diagnosis of Chiari Malformation, a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward. How she discovered through genetics that she had the CM type l. And her experience and recovery from decompression surgery. Paiges instagram Paiges new single This ill only hurt a little links: Facebook Twitter TikTok Music by: Alexis Tenney --- Support this podcast: https://podcasters.spotify.com/pod/show/claire-scattini/support

An episode that will leave you empowered to take back control of your health! Join me for a conversation with Jordan Ray, founder and CEO of Limitless Medical Log, a company aiming to help chronic illness patients eliminate the stress of managing their health through the use of their medical journals and digital app. Jordan shares her journey to diagnosis, including the day everything changed, the frightening and debilitating symptoms she started experiencing, and the moment her illness was finally given a name. She also speaks about undergoing brain surgery and her resulting struggle with PTSD. We discuss the emotional aspects of chronic illness, such as the land of the healthy vs. the land of the sick and the frustration of watching others achieve the dreams you had. And then we dive into her work with Limitless, talking about how her experience led to the creation of the company, the unique components of the log users will find most helpful, and how it helps to improve communication between patients and doctors. Plus, we get a look inside their new app and Jordan tells us what's next for her!

Domestic abuse and brain injury. Don't let this scare you off. It is a conversation we all need to take part in. 75% of domestic abuse survivors suffer TBI as a result and you know we can't leave friends in the community hanging! Today we join How to Love a Battered Woman's Nia Renee to discuss domestic abuse and brain injury. Strikingly, overcoming both require similar skills of resilience, perseverance, strength, and o-so-much inner work. You won't want to miss out on this insightful conversation.  There's a tremendous amount of wisdom shared for all those going through either or both experiences. And if you aren't in either situation, it is still a crucial listen to gain understanding and insight. You never know when you might need to be an ally!       Covered in this episode: CTE is a result of repetitive brain trauma commonly recognized as a disease affecting professional football players.  Victims of domestic abuse are probably even more affected due to repeated knocks on the head at home but it is not publicized like it is for professional athletes Women are more susceptible to TBI due to the structure of our necks 75% of domestic abuse survivors have a TBI Nia is a survivor of 20+ years of domestic abuse She has a brain condition called Chiari Malformation that was sped up due to the abuse Therapy is an ongoing process throughout the rest of your life (5:45).  It's not a one and done fix  Chiari Malformation Happens when the brain is herniating into the spinal canal because the brain is too big for the skull 185 (ish) symptoms associated with this disease Nia started experiencing symptoms her sophomore year of college While experiencing symptoms of the brain injury she was also being hit in the head which likely exacerbated her condition There is a lot of stigma around this disease in the neurologic world.  Some neurologists believe that Chiari is an incidental finding that doesn't cause symptoms It took Nia advocating for herself and finding the right fit with a neurosurgeon to get treatment and surgery. Shout out to https://www2.mhsi.us/doctors/holly-gilmer/ (Dr. Holly Gilmer, M.D.!) Nia talks about recovery from surgery and trying to get to know her chronic illness self   A metaphor for living with chronic illness: A handful of spoons: every activity in your day requires you to give away a spoon. Eventually you have no spoons left to give away.  This represents the energy each activity in life takes when you have a chronic illness and brain injury.  You have to be deliberate on what you give your spoons to Surgery is not a cure; it just gives you a more livable life The surgery can make some people worse.  The experience and decision to have surgery is highly individualized  Ehlers-Danlos Syndrome (EDS): a connective tissue disorder that is commonly associated with Chiari.  Allow yourself to evolve and let go of the preinjury self.  You are who you are now.   Brain injury can cause an identity crisis Life lessons from surviving domestic abuse and living with a chronic brain condition Nia's only 27! She has wisdom beyond her years. Remaining resilient Resiliency as a child consisted of doing something creative to express herself and help her bounce back, especially writing.  It was later on that she realized she doesn't need to be quiet about what was happening to her.  Speak out! “I got to a point where I realized I don't have to be quiet about any of these things.  Why do I have to? If it makes you uncomfortable that is not my concern, business or problem” (19:30) “If hearing about domestic violence experiences makes you uncomfortable, question why, look inside yourself.  Does it make you uncomfortable because you are a part of the problem?  Is it because it touches on something that you haven't had a chance to work on yet? Are you realizing that you are not

Chronic pain can take control of your entire life but there are ways to make it through it. In this episode, I am talking to Heather White. Heather is a married mother of 2 and has worked for the Kinston Police Department in Kinston, NC.  Heather has lived with chronic pain since she was 19 years old following a horseback riding accident After 2 surgeries causing permanent nerve damage, she was legally declared disabled in 2014 due to back pain, knee pain, and Chiari Malformation. Her journey of advocating for her own health and surrounding herself with supportive people is inspiring. Listen in as we discuss how every day is different with chronic pain, the judgments you have to deal with from other people, and finding joy in your life.

This is part two of our insightful conversation with Rev. Stephanie A. Duzant, Social Action & Virtual Minister at St. Matthews AME Community Church, Hollis Queens, New York. She shares with us the power of taking charge of your diagnosis and pain management--don't take ‘No' for an answer! Keywords:  disability, new york, nevada, chiari malformation, Black woman, womanist, communion, edible, cbd, pain, pain management, skittles, arizona iced tea, mikvah, sciatica, eucharist, healing, thc, travon martin, COVID, quarantine

 On this episode of WGBD, Rev. Stephanie A. Duzant, Social Action & Virtual Minister at St. Matthews AME Community Church, Hollis Queens, New York. She shares with us the power of taking charge of your diagnosis and pain management--don't take ‘No' for an answer! This is part one of a two-part conversation. Keywords:  disability, new york, nevada, chiari malformation, Black woman, womanist, communion, edible, cbd, pain, pain management, skittles, arizona iced tea, mikvah, sciatica, eucharist, healing, thc, travon martin, COVID, quarantine

How to connect with Jordan Ray, the founder of Limitless Medical Logs           Website:  https://limitlessmedicallogs.com/  Email: Contact@LimitlessMedicalLogs.com Linked In: https://www.linkedin.com/company/limitless-medical-logs/ Twitter: https://twitter.com/LMLbetterhealth Facebook: https://www.facebook.com/LimitlessMedicalLogsOfficial Instagram: https://www.instagram.com/limitlessmedicallogs/  I'm so grateful Jordan joined the Chronic Illness Support Podcast to talk about Chiari Malformation and chronic illnesses to spread education and awareness. Sending her and everyone listening hugs and love.          Chronic Illness Support Podcast is listed at number 10 of 20 chronic illness podcasts by Feedspot! Top 20 Chronic Illness Podcasts You Must Follow in 2019: https://blog.feedspot.com/chronic_illness_podcasts/

Today on The Real Life Show: Living with a Chronic Illness, we talk with the multi-talented entrepreneur, Jordan Ray. Jordan shares her journey as a prospective D1 college athlete, now serial entrepreneur, keynote speaker, aspiring author, and brain surgery survivor.  She had been a competitive softball player for nine years when an incident on the field led to a neurosurgeon's visit, several brain scans, and a diagnosis of a Chiari Malformation. Unfortunately Jordan was unable to continue playing the sport she devoted her whole life to. She took this adversity at such a young age and turned into actively helping and advocating for herself and others on her college campus by bringing awareness to students with chronic illnesses. Jordan goes on to talk about her biggest project brought about by her medical journey, which is her Limitless Medical Logs. This is a physical tool in the form of a small, portable journal with sections unique to a chronic patient; like appointment notes, the human body chart, and areas to mark your specific pain points. Link to the medical journal below! https://limitlessmedicallogs.com/Digital app coming soon:Digital version of the journalAppointment remindersJordan's Instagram: https://www.instagram.com/jordanray25/Limitless Medical Logs Instagram: https://www.instagram.com/limitlessmedicallogs/Social Media:https://www.instagram.com/therealspooniesunite/https://www.therealspooniesunite.com/https://www.facebook.com/groups/2443751542368935E-book: https://chelseadcoaching.com/the-ebook MyWellnessHub: https://mywellnesshub.coMerch: https://teespring.com/stores/the-real-spoonies-uniteWorkbook: https://amzn.to/2GqFIi2Email: hello@TheRealSpooniesUnite.comSupport the show (https://www.patreon.com/therealspooniesunite)

Comedian Jasmyn Carter shares life after having Brain Surgery and her experience with Chiari Malformation. Taquita shares being hospitalized after hip surgery and losing her race to the restroom. They talk all things comedy, bedpans, and foley catheters. Jasmyn Carter is a Comedian from Cleveland, Ohio. She is known for her Vine, Instagram, and YouTube comedy sketches and has over 115k followers on Instagram as well as appearances on WorldStar. Jasmyn performs all over, including Bonkerz Comedy Club, The Hannah, Hilarities at Pickwick and Frolic, the Cleveland Improv, Pittsburgh Improv, and the Chicago Laugh Factory. She is the first woman to win The Accidental Comedy Festival in 2016. She can be seen on Laugh Tonight with Damon Williams. https://www.instagram.com/__jasmyn/?hl=en --- Support this podcast: https://anchor.fm/taquita-love/support

Episode 59: Sky Full Of Stars: Battling Murphy's Law in the Special Needs World With Guest Meg Apperson In this episode, we discuss coping with life when everything that could go wrong, does go wrong. Guest Meg Apperson's daughter Avery was diagnosed with craniosynostosis during the latter part of Meg's pregnancy. They initially thought Meg had placenta previa and found this condition instead. Avery's skull was measuring several weeks behind the measurements of the rest of her body. Meg knew something was very wrong, although the nurse and doctor disagreed. They allowed her to see a specialist, who agreed with Meg that her daughter's condition was serious. After a few more tests, doctors found out that her daughter's condition was more severe than they had originally thought. This meant that not only was the skull and brain affected by this condition, but everything surrounding it could be as well. There could also be abnormalities in other areas of the body. In order to prepare for Avery's birth, Meg did a ton of research. She wanted to be prepared for anything that she might experience after Avery was born. The unknowns started with the birth, as she and the doctors weren't sure what the safest type of birth would be for Avery. From the beginning, Meg listened to her intuition. With labor, she only had one contraction and came to the hospital, and two hours later, Avery was born. Had she not gone in when she did, her placental abruption would not have been found. Once Avery was born, there were so many unknowns as to what would work for treatment and what kinds of impairments she might have. From the beginning, Avery had respiratory difficulties, so Meg only had a few short moments with Avery. Shortly after, Avery was transported to a hospital with a better-equipped NICU. Avery was in the NICU for 6 weeks before she went home. Avery made it 3 days at home before she decompensated and needed another NICU stay. She was home for another 10 days before she had to go back to the hospital. She required a g-tube early on, and a trach not too long after. Complications in the first year included hydrocephalus, feeding issues, respiratory failure, staph in her trach, eye problems, shunt malfunctions leading to a coma, and septic shock. She underwent cranial vault remodeling and other various cranial and brain surgeries. Doctors also found a Chiari Malformation. She coded frequently and required a ventilator. It was a long and painful ride for her and her family.   During every admission, doctors hemmed and hawed about what to do and there was never a consensus about anything. Doctors would never commit to causes or treatments of any complication. Doctors kept trying to delay treatments and surgeries, to the extreme detriment of Avery. Numerous times, she became more ill due to the inaction of the doctor. Due to this, poor Avery had numerous additional complications that never should have occurred. In order to save Avery's life, Meg stuck up for Avery and advocated very heavily for the care she felt Avery required to live. To add to all of this, while Avery was still sick, Meg found out that her son Macson had a serious heart defect and needed almost immediate surgery. Meg found advocating for Avery very difficult at first because she dislikes confrontation. Over time, she learned to trust her instincts and she had done enough research to know she could stand up for her daughter. The more times she was right, the more confident she became. Meg has become an unbelievable and inspiring advocate for her daughter and through this, she has saved her daughter's life many times. Meg recommends doing research about your child's condition and ask every question you have. Write it down and ask all the questions, write the answers down, and ask doctors to clarify if you don't understand. For Meg to cope, she wanted to research everything and get all the information she could, in order to advocate for Avery. Writing and blogging were also very cathartic for her. Facebook groups for Avery's conditions were helpful for learning information and gaining a community. Seeing pictures of other kids with similar conditions also helped, as she could see that there were happy times in the future. Over the years, her coping strategies have changed. She tends to go with the flow, have faith, and let minor concerns go. Meg kept trying to go at a crazy pace, but her body started to protest. Meg had been running on adrenaline, but after a while, her body couldn't do it. To take care of herself, she gets lots of sleep, uses good sleep hygiene, does a lot of writing, has stopped drinking coffee, and uses positive self-talk. Links: Instagram Blog Sky Full Of Stars Email us if you have any questions or ideas! We are now on instagram! Check out updates on our website. Follow Thriving on Twitter. Check us out on Facebook and join our parent group! Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Show Music: Intro Outro: Intro Outro 2 by Mattias Lahoud under CC-BY 3.0 License (www.freesound.org) Theme Song: 90s rock style by monkeyman535 under CC-BY 3.0 License (www.freesound.org) Self Care Song: Green and Orange No Water by Duncan Alex under CC-BY 3.0 License (www.freesound.org) Hosted by: Jessica Temple and Lewis Temple Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Parents of children with health issues should always consult their health care provider for medical advice, medication, or treatment. Copyright 2020 Jessica and Lewis Temple

In this episode Jennifer and her 16 year old daughter, Katy that was in the accident reflect on the hope and healing from the last four years. They discuss hard truth about trauma in a family, anxiety and the faith.

In 2017, my 18-month old daughter had to have brain scans for a suspected tumor. While in the hospital, she didn't wake up from the anesthetic. It turned out she had caught a superbug while being tested, but the doctors told me that she should also be tested for lung cancer, blood cancers, among other really scary diagnoses. All of this was something I had to navigate in a foreign country, in a foreign language.   Literally, the scariest week of my life.   Eventually she was diagnosed with Chiari Malformation and doctors have since wanted to perform an invasive brain stem surgery/decompression surgery. Last week they told me again that she needs this intervention, but I am terrified. Also, she has no symptoms, which makes the decision making process incredibly difficult and really triggering for me.   In this week's episode, I share what it is like to experience this real fear I am having, but also the ways that I am coping. I will continue to discuss fear inventories and how to use our fears as a gateway towards reframing our values and purpose. This isn't about shifting away from pain and fear, but actually leaning into it, using somatic understanding, so that we can get clear and mindful about how to process and make decisions with confidence.   Facebook: Kate Marlena-Restorya Instagram: @Restorya   Tara Brach and the R.A.I.N. Meditation https://www.tarabrach.com/rain/   #chiarimalformation #podcast #fears #mentalhealth #recovery #meditation #somatics #transformation   If you're already a listener please please consider leaving a review. It would mean a lot to have your support!

On this edition of The Mary Faye Headrick Good Deed Segment, I am talking with Tiffany Johns. Tiffany is sharing about her 3--year-old daughter's Chiari malformation journey and the hope that she has for Nevaeh to get relief after surgery which took place on Thursday. Listen & share.

Founder of Treasured, Courtney DeFeo, is moving into a "season of rest" due to her recent diagnosis of Chiari Malformation. Listen in as Paula Faris interviews Courtney about this decision to leave her current vocation and move into a new season despite fear. Paula is a wife, mom, author, journalist, podcaster and champion of others. In her recent book, Called Out, Paula shares her own journey of burn out and physical breakdowns from her time at ABC News and The View. She knows the peace that comes with seeking your true calling.  

We continue our push to get Brian Propp into the Hockey Hall Of Fame with Fred Isbell. Joey Gorman checks in to explain Chiari Malformation ended his baseball career. Mark Jamison, Captain of the Ocean City beach patrol with the Beach Patrol report.

Listen in as your host Candace talks with Kendra Mitchell, a doula and childbirth educator, about her two home births and one scheduled cesarean.  Kendra will talk about her health challenges with Chiari Malformation and how that led her to a very different experience for her third birth.  She will also tell us how her births led her to becoming a doula and childbirth educator. Kendra's book recommendation is Babies Are Not Pizzas by Rebecca Decker of Evidence Based Birth.    

In part 2 of my interview with mold warrior Erik Johnson, he tells about the lengths he’s had to go to get and keep himself healthy. Erik terms his approach ‘extreme mold avoidance’ - and that involves a modified and mold-free camper vehicle, and also mapping, and then avoiding, areas and buildings with high levels of toxic black mold Stachybotrys Chartarum. Erik has been relentless in his efforts to bring awareness to the public, patients and researchers that toxic mold is an element of ‘chronic fatigue syndrome’.  Yet there is resistance by the Centre for Disease Control, by researchers, and by the medical profession, to consider or acknowledge how unseen toxic mold in our workplace, public and home environments may be making many people very sick. As you will hear Erik explain, there has been incredible pressure to hide the impact of toxic mold on human health. Erik also shares how the derogatory label of ‘chronic fatigue syndrome’ re-classified an entire illness from an ‘infectious illness’ diagnosis, to the ‘all in your head’ insult. SHOW NOTES Erik's Mold Map 0:05:15 The whole point of redefining CFS (chronic fatigue syndrome) was to put distance between CFS and the initial incident it was based on to keep it in maximum confusion - and loosened up on the psychiatric exclusion, whereas Holmes (definition) was clear that psychiatric must be excluded 0:06:00 When Erik saw strong connection between mold and CFS, he proposed to Dr Cheney that since he was focused on the viral factor, Erik would focus on the mold factor 0:07:00 The 1994 study by Chester Levine "Association of concurrence between sick building syndrome and CFS: Epidemic neurasthenia revisited" - was a study of clusters, including Truckee school - mentions other clusters including Elk Grove in California, where same exact malady emerged in teacher in a sick building 0:08:00 It took Erik several years to find out what specific mold was involved, but it was Stachybotrys Chartarum (SC), the dreaded black mold, same as the Lake Tahoe - Erik thought this should be included in the CFS criteria so that they become a putative mold reactivity patient 0:09:00 If CFS patients have mold reactivity, they can be instructed on how to avoid it and reduce symptoms - Erik tried to identify the worse place / buildings in Lake Tahoe and created a map to avoid them and started to recover 0:10:00 Erik thought he could maximize his recovery be spending more time in the nearby Nevada desert - he was eager to get back into aviation and hanging out a small airport - one day he sees a 'crazy man' out in the desert heat raking, by hand, a 700 foot landing strip 0:11:00 Nearby was a tractor with rake attached, set up to do the job - Erik asked him about it and got a strange look, as his mental wheels were turning - he said 'I've got this strange illness, I'm from Incline Village, Nevada, and doctors tell me I have CFS, and I come out to the desert because it is the only thing that helps' - he was coming to the desert for the exact same reason as Erik 0:12:00 They started telling other people - and taking them to the 'toxic' areas of town to see if they reacted and decide if they wanted to try to avoid mold - this is how the CFS Mold Tour began - he's taken many prominent people on this tour, author Julie Rehmeyer (Through the Shadow Lands) and she became a mold avoider Powerful Neurotoxin 0:13:00 Jennifer Brea, director of documentary Unrest also got Mold Tour and realized she needed to avoid mold too - what is curious to Erik, is that no researcher enquired about why Jen was avoiding mold in her documentary 0:14:00 Erik has asked researchers at screenings of Unrest why they think Jen is doing that - but he has not been able to drum up any interested researchers - because SC is one of the most powerful neurotoxins known to man, it is essentially like nerve gas, so neuroinflammatory - repeated exposures cause neurological symptoms similar to nerve agents 0:15:00 The chronic inflammation puts stress on the nerves that the electrical impulses in the nerve become inhibited, and to compensate, the nerves thicken their myelin sheath to help nerve impulses and restore function 0:16:00 For a long time, researchers assumed these neurological symptoms were close to multiple sclerosis (MS) - so with intracranial hypertension, neurological information from toxic mold exposure, where the physical damage perpetuates symptoms, like in Chiari Malformation where the brain is literally pushing itself out of the skull, opening pressure on spinal taps, and spinal fluid leaks 0:17:00 Erik thinks breakdown of ligaments and collagen contribute to neck problems in some CFS patients and is due to downstream effects of chronic inflammation over years - Erik's health did pretty good for a few years 0:18:00 Erik would also check wind direction to avoid toxic areas, and being down wind of them, in town - if he couldn't avoid these areas, he would shower and change clothes as soon as possible 0:19:00 By reducing inflammatory response and cytokine cascade, he's been able to live like a normal person - Erik had to find a home free of mold - he also built a camper out of mold resistant materials to drive around that had a shower in it 0:20:00 This allows him to decontaminate quickly - but in 1994 he slowly started getting worse - turns out it was neighbouring houses, the sewer - Erik got sicker and sicker and went to Dr Peterson 0:21:00 But Dr Peterson was too busy with his viral interests - Erik got worse, almost bed ridden again - Erik was diagnosed, again, with CFS with reactivated HHV6 - Dr Peterson said Erik's only option was the drug Ampligen, an experimental medication that pushes the immune system into high gear     Desert Living   0:22:00 Some people have a spectacular response to Ampligen - but free Ampligen in the trial was only open to very sick / bed ridden patients - since Erik could still walk, he would only be eligible for the cost recovery program, but Ampligen cost about $60k / year and Erik could not afford that and his insurance company had canceled his insurance because he had CFS 0:23:00 Erik decided to try even harder to avoid mold, extreme avoidance and see if he could max out his health - Dr Peterson didn't think it would work, but since Erik couldn't afford Ampligen, what was there to lose - Erik bought a camper and drove it to the desert and spent as much time as possible in pristine environments and once again his health improved 0:24:00 Within 6 months of extreme mold avoidance, Erik was climbing Mt Whitney, the tallest mountain in connected USA, 13,500 feet high and a 25 mile hike - takes about 20 hours to climb 0:25:00 Erik thought that climbing Mt Whitney as a CFS patient avoiding mold would be impossible for researchers to ignore - but their reaction was 'how nice for you' 0:26:00 Erik says that mold is the common factor in all these clusters - but researchers don't want to investigate the mold aspect - he hopes one day we'll know why they are not interested 0:27:00 CFS emerges after a trigger, usually a viral infection - researchers focus on the trigger as if it was the sole cause 0:28:00 From the moment the CDC (Centre for Disease Control) announced they intended to collate the results, Erik began contacting CFS researchers and explaining he was the prototype patient for CFS, but he did not get one positive response 0:29:00 By the time the 1988 Holmes definition of CFS was published, Erik realized this was more than just a scientific endeavour, and more than documenting the toxic mold aspect, it was sociological research to see how researchers would handle a situation like this, and that's how Erik approached CFS research 0:30:00 Erik created a standard phrase to see how doctors and researchers responded: "I'm an Incline Village survivor and prototype patient for the 1988 Holmes criteria, would you like to hear about it?" - never, not once over 30 years has Erik had a positive interest response, it is mind boggling     Confidentiality Agreement   0:31:00 When Osler's Web came out, Erik already realized he was getting 100% negative response from researchers and no interest in following up on the Lake Tahoe outbreak - but Erik couldn't believe that on page 25, the Truckee teacher cluster - Erik's teachers - is clearly described - when Erik makes his assertion that CFS was never investigated, it sounds unbelievable - but those teachers told Holmes there was something in that school room 0:32:00 In Osler's Web, it talks about the disdain Holmes had for these teachers - on page 49, a couple of patients ambush Dr Holmes and explained about that school room and the infrequently changed air filters in that room and asked him to examine the air filters in that room 0:33:00 Turns out the filters did have the toxic mold SC - the school realized they had toxic mold and hired remediators to clean it up and the incidence of illness decreased - the school and its teachers, remediators, towns people and local doctors know about this - but not CFS researchers 0:34:00 Erik went to CFS symposiums and said he could take them to the locations and introduce them to the remediators who cleaned up the mold - Erik ran into a problem: the school authorities did want people to know about it, the teachers are fearful of repercussions so keep quiet - and the remediators said they couldn't disclose because they had a confidentiality agreement with the schools 0:35:00 So the only person who has no vested interest and willing to describe it is Erik - the remediation of the mold was in the newspapers - so clearing up CFS is simply doing some epidemiology research 0:36:00 Erik climbs Mt Whitney every year to celebrate his recovery - he posts about it online and how has helped other people recover from CFS - author Julie Rehmeyer is the most high profile person he's helped - she wrote an article for the Washington Post: What is CFS and why is more not being done to study this disease? 0:37:00 In the 2015 article Julie describes how none of the other treatments her doctor had tried had much effect - Julie heard about the extreme mold avoiders and decided to come to Incline Village and Erik took her the sick buildings - after a short period of mold avoidance her post exertional malaise symptom had disappeared and she was climbing mountains     Media Interest, But No Researcher Interest   0:38:00 So we have a direct intervention for CFS and it deserves research - but still, no researchers have looked into mold in CFS 0:40:00 SC has been studied quite a bit, but only known in the mold community, not in the CFS community - the CDC puts pressure not to research mold - they don't want this very expensive problem to come to public light 0:41:00 Because a lot of schools and public buildings will be affected - the CDC did its own toxic mold investigation in 1984 and found exactly what they didn't want to find and they buried that research through paralysis by analysis - but stated that nothing conclusive was discovered and more research is needed, but they didn't do it 0:42:00 Erik has returned to flying, a very expensive hobby, and mold avoidance is a very expensive therapy and includes avoiding sick buildings and immediately decontaminating if he is exposed - so that curtailed how much flying he could do, so he turned to mountain climbing and hiking - Erik does a ton of advocacy work around mold, and that doesn't pay, he hasn't made a dime 0:43:00 Erik goes to the ME/CFS conferences and tells his story to researchers as they take an active disinterest - like Hillary Johnson said, the politics is so compelling it draws you back in, its unique, and the sheer unbelievable, bizarre aspect that keeps sucking Erik back in - he can't believe this happened and the medical and research communities behaved in this way 0:44:00 Erik believes to fix the problem, it needs to be brought to light - the medical profession needs to realize they've committed an epic failures in their entire history - perhaps the embarrassment will force them to reconsider how they do business 0:45:00 Erik doesn't think any one will believe or understand this complex convoluted history until a movie is made about it - Erik's basic premise is that a researcher would want evidence, and so Erik developed a test 0:46:00 Back in the 1800s when Ignaz Semmelweis, a Hungarian physician in Austria, discovered that hand washing killed germs - he noted that the 2 health clinics had different mortality rates - the midwife's clinic had a very good success rate, but the doctor's clinic had an unbelievably high mortality rate from childbed fever (puerperal sepsis)     Money Can't Buy A Ride Like This   0:47:00 A pathologist doing an autopsy on a childbed fever death, nicked himself and he then died of the same illness - this suggested something, 'cadavers particles', had been transferred to the doctor through the blood - Semmelweis implemented hand washing with lyme / bleach and instantly reduced the mortality rate at the doctor's clinic - there were no autopsy's at the midwife's clinic 0:48:00 Semmelweis didn't know it was germs, but he didn't need to - he only needed to note that there was difference between the buildings and start to investigate - the history of CFS is similar: sick buildings making people sick 0:49:00 But no current researchers are investigating - in effect, there are no more Semmelweis - Erik has used the internet to get this info out and spending a lot of time in social media groups building up a following to put pressure on researchers and all this will come to light 0:50:00 Why does Erik keep doing advocacy? Hillary Johnson described Dr Cheney when he was in the middle of his fight with the CDC as saying "Money can't buy a ride like this"       Connect with Erik Johnson:   Facebook: The Erik Johnson Effect   Twitter: @ErikMoldWarrior   ______________________________________________     Be a podcast patron Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.  Premium Patrons get access to video versions of podcasts for $5 / month. Be my Guest I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer. If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description:  RemediesPodcast@gmail.com  Need a Counsellor? Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error. If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments. **For my health and life balance, I limit my number of counseling clients.**  Email me to learn more or book an appointment:  RemediesOnlineCounseling@gmail.com      Scott Simpson:  Counsellor + Patient Advocate + (former) Triathlete I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard. I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships. Thanks to research and access to medications, HIV is not a problem in my life. I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life. Counseling / Research I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.  Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions. Patient Advocacy I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network. I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada. Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system. My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk. Remedies Counseling - Making Life Better

In this episode we will discuss Chiari Malformation.  It is most often caused by structural defects in the brain and spinal cord that occur during fetal development.  This can be the result of genetic mutations or a maternal diet that lacked certain vitamins or nutrients.  This is called primary or congenital Chiari malformation.  It can also be caused later in life if spinal fluid is drained excessively from the lumbar or thoracic areas of the spine, to traumatic, injury, disease, or infection.  This is called acquired or secondary Chiari malformation and is a rarer form. ​Our guest on today's show is Heidi Elise Marquis. 

Melissa Newman joins us to discuss her use of cannabis for her debilitating rheumatoid arthritis & chiari malformation. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

Jordan Ray was planning on being a college athlete, however, when she was diagnosed with Chiari Malformation, her college and life plans completely changed! Hear how she started a business from her bedroom that is focused on giving power back to medical patients! Limitless Medical Logs: www.limitlessmedicallogs.com Jordan's Instagram: https://www.instagram.com/limitlessmedicallogs/ Shop The Dream Achieve Workbook: https://shophannahashton.com/products/dream-achieve-workbook Personal video Hannah mentiones in the intro: https://www.youtube.com/watch?v=41HdOCxk4Rk

Limitless Medical LogsFollow Jordan @Facebook : limitless medical logs / Jordan RayInstagram: limitless medical logs / JordanRay25LinkedIn : Limitless Medical Logs / Jordan RayTwitter: LMLbetterhealth / JordanRayAge *21What is your disorder? *Chiari MalformationAt what age did your disorder become a daily issue? *17Who were you before your illness became debilitating? *I was a high school softball athlete, with opportunities to play college ball. Until I was diagnosed with chiari malformation.What would you do if you were not dealing with your invisible illness? *I would be a student athlete playing college softballWhat would you like people to know about your daily life? *Struggle daily with horrible migraines, and chiari. this is what caused me to create this company and our products to help track pain and symptoms accurately.What would make living and moving in the world easier for you? *less migraines and pain, daily migraines make living harder.What kind of support do you get from family or friends? *when I got diagnosed I had a huge support system from family and friends, they did not understand what I was diagnosed with because only a few people are aware of Chiari. But they still were there for me in any way they could.Have you ever had someone not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *Yes, when I first got diagnosed. I had a "friend" tell me her mom is a nurse and Chiari Malformation does not exist and I am faking my illness. I think having an invisible illness makes explaining your illness a little more difficultHow has your invisible illness affected your relationships? *people do not like sick people. it is always an inconvenience to them. If it does not benefit them they do not care. My friends and family still continue to be a support, so my relationships have not truly been affected. Only when they ask to hang out or go out somewhere and I cant due to 10/10 painIs there anything you are afraid to tell people in your life? *no, not really. I am always open to family and friends. I am trying to spread awareness about this, my family and I went through months of different remedies.Does the fact that your disease is invisible change how healthcare professionals treat you? *yes, some professionals will not give you the time of the day. They do not listen to your exact symptoms and how you have been feeling which affects how quickly you can be treated.What is your best coping mechanism? *Coaching the sport I love, since I no longer can play this game. I cope with being able to coach and teach my players on how to excel in this sport and get them to the collegiate level. I also volunteer my time to coach a baseball event for kids with mental disorders. I like writing things down, from my feelings, to daily activities. it is very therapeutic and also I do not have to stress to remember everything. Since I struggle with brain fog and memory loss. I also love the gym but since my symptoms have been horrible, I have been limited to my gym activities.What are you the most concerned about and the most hopeful for in the future? *I am hoping to get relief from these debilitating symptom and provide life changing medical logs to everyone battling a illness like I am.Is there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.Spreading awareness about Chiari Malformation and how this illness has changed my life & my families. My mom being diagnosed with breast cancer when I was 16, how I had to mature faster than my friends. Using softball as my escape. My black out causing us to figure out I had Chiari, I could of blacked out while driving.What is the hardest and/or best lesson your condition has taught you?" it's not what happens to you, but how you react to it that matters" I love this quote. I have taken my personal illness and designed a management tool for people with chronic illnesses.What is the best purchase under $100 that helped your lifeA stem machine, for my back and my neck. Also my medical log, it had been a game changer for me during my illness.May We Add You To Our Newsletter? *yesAny questions you think we should add to this list?I am trying to spread awareness about chiari, the treatments, money spent, time wasted. See acast.com/privacy for privacy and opt-out information.

Hello Sussex Squad! In today’s podcast  we had three incredible guests who have been in the fandom since the very beginning. Thank you to Kay, Maya, and Jay for joining Michelle and I on this pod! Today’s episode will be more conversational. Baby Sussex update: still no baby! We are still doing global Sussex Baby shower until May 12th if you can donate please do! The only event we have to report on was Harry attending ANZAC day commemoration and Thanksgiving on 25 April with Kate and Duke of Gloucester. Nothing much to report other than he wasn’t sure if he was going to make it but he did. He also attended the London marathon today. Here are some the topics we covered today Harper Bazaar’s article written by Omid on April 23 The world now speaking out against how Meghan and Harry are treated (500k tweets) lots of thoughts about the lack of empathy shown to Meghan. shout-outs to Doria & her college and "Hollywood" friends. Harper Bazaar’s article written by Omid on April 25 about cambs visiting and subsequent silliness from RR Sunday Times new spin on go back to Africa How they will handle public interest with Baby Sussex given what they have decided for the birth   Charities supported by shower: WellChild is a national charity who’s aim is to help children and young people thrive at home with their families.@wellchild / http://wellchild.org.uk The Lunchbox Fund provides a daily meal to orphaned and vulnerable school children in areas of South Africa. @TheLunchboxFund thelunchboxfund.org/donate/ LittleVillage provides donated clothes and kit to local families experiencing hardship in London. @LittleVillageHQ / http://littlevillagehq.org Baby2Baby is a California based charity, providing children living in poverty with clothing, diapers and the basics that every child deserves. @baby2baby / http://baby2baby.org   The podcast is still fundraising for: Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical. Please donate what you can even if it is just volunteering,  items, or retweeting nothing is too small! #blacktwitter #MeghanMarkle #PrinceHarry #BabySussex #GlobalSussexBabyShower #SussexSquad #BabySussex #DukeandDuchessofSussex #DuchessofSussex #DukeofSussex Thanks for joining us for this episode the sussex squad podcast. We sincerely hope you guys have enjoyed this episode and please don’t forget to leave us a 5 star rating and review on itunes also subscribe to our channel on youtube  

Hello Sussex Squad! It is just Michelle and Tina today! We chatted briefly about Sussex IG, charity updates, “go back to Africa” article, and what’s next for the podcast Sussexes IG just hit 5 million they posted about earth day Prince Harry took all But one picture! Thank all of our supporters and trolls (Lol). how we are going to do guest hosting moving forward Update on global Sussex Baby shower we are doing welcomebabysussex with a goal of $5000 donated to charity on the day baby Sussex is born “Go back to Africa” article What’s next for podcast Charities supported by shower  WellChild is a national charity who’s aim is to help children and young people thrive at home with their families.@wellchild / http://wellchild.org.uk The Lunchbox Fund provides a daily meal to orphaned and vulnerable school children in areas of South Africa. @TheLunchboxFund thelunchboxfund.org/donate/ LittleVillage provides donated clothes and kit to local families experiencing hardship in London. @LittleVillageHQ / http://littlevillagehq.org Baby2Baby is a California based charity, providing children living in poverty with clothing, diapers and the basics that every child deserves. @baby2baby / http://baby2baby.org   The podcast is still fundraising for Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical. Please donate what you can even if it is just volunteering,  items, or retweeting nothing is too small! Don’t forget to send us some topics to cover for the next podcast hashtag sussexsquadpodcast Email: hello@sussexsquad.com Twitter: @sussexpodcast   #MeghanMarkle #PrinceHarry #BabySussex #GlobalSussexBabyShower #SussexSquad #BabySussex #DukeandDuchessofSussex #DuchessofSussex #DukeofSussex Thanks for joining us for this episode the sussex squad podcast. We sincerely hope you guys have enjoyed this episode and please don’t forget to send letters to harry and meghan using hashtag sussexsquadletters on envelope and in letter, subscribe to our podcast on all podcasting platforms and youtube,  Don’t forget to leave us a 5 star rating and review on itunes.

Hello Sussex Squad! Today we have 2 special guests Kennedy and Stephanie, we chatted about prince harry's engagement in London to meet with members of international affairs think-tank @ChathamHouse (archive photo) for a briefing session and also attended a #RoyalFoundation discussion on conservation and sustainability. Updates on #Globalsussexbabyshower going to keep going till May 12th. Camfed update 100 girls will be sent to school for a whole year! The new media attacks to include threats against the Duchess. a) How do ppl in commonwealth/USA  perceive this, b) is this ethical c) more diversity in reporting.. will it help? How does Meghan’s treatment compare to Michelle Obama? What can the Sussex Squad do to push back? Charities supported by shower  WellChild is a national charity who’s aim is to help children and young people thrive at home with their families.@wellchild / http://wellchild.org.uk The Lunchbox Fund provides a daily meal to orphaned and vulnerable school children in areas of South Africa. @TheLunchboxFund thelunchboxfund.org/donate/ LittleVillage provides donated clothes and kit to local families experiencing hardship in London. @LittleVillageHQ / http://littlevillagehq.org Baby2Baby is a California based charity, providing children living in poverty with clothing, diapers and the basics that every child deserves. @baby2baby / http://baby2baby.org The podcast is still fundraising for Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical. Please donate what you can even if it is just volunteering,  items, or retweeting nothing is too small! Don’t forget to send us some topics to cover for the next podcast hashtag sussexsquadpodcast Email: hello@sussexsquad.com Twitter: @sussexpodcast #MeghanMarkle #PrinceHarry #BabySussex #GlobalSussexBabyShower #SussexSquad #BabySussex #DukeandDuchessofSussex #DuchessofSussex #DukeofSussex Thanks for joining us for this episode the sussex squad podcast. We sincerely hope you guys have enjoyed this episode and please don’t forget to send letters to harry and meghan using hashtag sussexsquadletters on envelope and in letter, subscribe to our podcast on all podcasting platforms and youtube,  Don’t forget to leave us a 5 star rating and review on itunes.

In this episode, guest speaker, Mallisa Jackson Vogel is on to share her inspiring story - Linkedin: https://bit.ly/2YlgYMU Join yogacises free group for yoga, meditation, fitness and nutrition tips https://bit.ly/2rkm2Fg Twitter: https://bit.ly/2E00v7T Pinterest www.pinterest.com/yogacises Schedule a 50 minute free health coaching consultation with Pan He at http://coaching.yogacises.com/pages/contact Yogacises on Tiktok https://vm.tiktok.com/KtF9PT/ Yogacises on Tumblr https://yogacises.tumblr.com/

Hello Sussex Squad! Today we have 2 special guests Nicki and Mary and we chatted about updates on globalsussexbabyshower Harry’s engagement in Dagenham, his collaboration with Oprah and Apple TV and finally the news around the birth of Baby Sussex.   Updates on Globalsussexbabyshower going to may 12th how much was raised So The Duke of Sussex visited an OnSide Youth Zone in Dagenham, as a continuation of his longstanding work in supporting young people and the belief that sport can change and sometimes even save lives. OnSide Youth Zone creates state of the art ‘Youth Zones’ for disadvantaged communities to provide children and adults aged 8 to 19 (and up to age 25 with a disability) with a safe and inspiring place to be for mentorship, support, and guidance.Participation in youth zones is proven to reduce crime and anti-social behaviour by half or more. Earlier this year, The Duke was joined by The Duchess of Sussex in opening an OnSide club in Birkenhead. On April 10, it was announced that Prince Harry is collaborating with Oprah Winfrey and AppleTV on a mental health series that is going to be released in 2020. Both Mrs Winfrey and the Duke are co-creators and executive producers on the project. They’ve been working on it for several months already and had several meetings in London. On April 11, the arrangement around the birth of Baby Sussex was announced by Buckingham Palace.Talk about the press notes that the reporters received. Charities supported by shower  WellChild is a national charity who’s aim is to help children and young people thrive at home with their families.@wellchild / http://wellchild.org.uk The Lunchbox Fund provides a daily meal to orphaned and vulnerable school children in areas of South Africa. @TheLunchboxFund thelunchboxfund.org/donate/ LittleVillage provides donated clothes and kit to local families experiencing hardship in London. @LittleVillageHQ / http://littlevillagehq.org Baby2Baby is a California based charity, providing children living in poverty with clothing, diapers and the basics that every child deserves. @baby2baby / http://baby2baby.org   The podcast is still fundraising for Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical. Please donate what you can even if it is just volunteering,  items, or retweeting nothing is too small! Don’t forget to send us some topics to cover for the next podcast hashtag sussexsquadpodcast Email: hello@sussexsquad.com Twitter: @sussexpodcast #MeghanMarkle #PrinceHarry #BabySussex #GlobalSussexBabyShower #SussexSquad #BabySussex #DukeandDuchessofSussex #DuchessofSussex #DukeofSussex Thanks for joining us for this episode the sussex squad podcast. We sincerely hope you guys have enjoyed this episode and please don’t forget to send letters to harry and meghan using hashtag sussexsquadletters on envelope and in letter, subscribe to our podcast on all podcasting platforms and youtube,  Don’t forget to leave us a 5 star rating and review on itunes.

Can you imagine living with a debilitating disease and no one, not even doctors know? That's what Tianna Smith had to do. For more than 20-years she suffered headaches and more. It took years before a doctor properly diagnosed her with Chiari malformation. After surgery, she has prescribed a list of medicines that were supposed to help. When the prescription pills didn't work, she found a real solution. Today, she's a warrior for Chiari malformation patients and cannabis. Tianna stopped by the podcast to discuss going 27-years with an undiagnosed illness, how cannabis came to her rescue helping launch NORML West Georgia and bringing Women Grow back to Atlanta.

Hello SussexSquad! Today we have a special guest Tola who joined us all the way from South Africa. This was just more of a conversation with our listeners we chatted about why she had an interest in Duke and Duchess? What does this union mean in South Africa especially the birth of the baby, what she thinks the future holds, and finally, what does the Sussex represent to South Africa. We talked about the Duke and Duchess thanking the Sussex Squad on instagram for #GlobalSussexBabyShower and what that meant to the fandom. We discussed people staying safe online and researching charities they are are donating to. Tola gave South African fans pointers on how to get their donations to lunch box matched. Here are the charities we are currently promoting and fund-raising  for per the Duke and Duchess of Sussex WellChild is a national charity who’s aim is to help children and young people thrive at home with their families.@wellchild / http://wellchild.org.uk The Lunchbox Fund provides a daily meal to orphaned and vulnerable school children in areas of South Africa. @TheLunchboxFund thelunchboxfund.org/donate/ LittleVillage provides donated clothes and kit to local families experiencing hardship in London. @LittleVillageHQ / http://littlevillagehq.org Baby2Baby is a California based charity, providing children living in poverty with clothing, diapers and the basics that every child deserves. @baby2baby / http://baby2baby.org   The podcast is still fundraising for Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical. Please donate what you can even if it is just volunteering,  items, or retweeting nothing is too small! Ok that is all we have for today don’t forget to send us some topics to cover for the next podcast #sussexsquadpodcast Email: hello@sussexsquad.com Twitter: @sussexpodcast #GlobalSussexBabyShower #SussexSquad #BabySussex #MeghanMarkle #PrinceHarry #DukeandDuchessofSussex #DuchessofSussex #DukeofSussex Thanks for joining us for this episode the sussex squad podcast. We sincerely hope you guys have enjoyed this episode and please don’t forget to send letters to harry and meghan using hashtag sussexsquadletters on envelope and in letter, subscribe to our podcast on all podcasting platforms and youtube,  Don’t forget to leave us a 5 star rating and review on itunes.

February 2018 will be a month that Crystal Tully and her beautiful family will never forget. In a matter of moments, 14 year old Anna Grace’s active, athletic, swim life changed forever. Crystal shares her testimony of their struggles, their … Continue reading →

Hello SussexSquad Today we are still covering #GlobalSussexbabyshower and it’s impact. The new instagram page, move to Frogmore, and our reactions. The Duke’s engagements to the YMCA yesterday, at the Big Curry Lunch today to raise money for Soldiers Charity that supports those who have served in Iraq and Afghanistan and Harry's attendance at Our Planet premiere with Prince Charles and Prince William. These are the charities we are focusing on this week https://www.justgiving.com/invictusgamesfoundation https://one25.org.uk/donate/ https://smartworks.org.uk/get-involved/donate-money/ We are still fundraising for Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical.   Please donate what you can even if it is just volunteering,  items, or retweeting nothing is too small!   Ok that is all we have for today don’t forget to send us some topics to cover for the next podcast #sussexsquadpodcast Email: hello@sussexsquad.com Twitter: @sussexpodcast   #GlobalSussexBabyShower #SussexSquad #BabySussex #MeghanMarkle #PrinceHarry #DukeandDuchessofSussex #DuchessofSussex #DukeofSussex

Today we will cover all things #GlobalSussexbabyShower and it’s impact. There is no structure or format to this episode we just want to chat with our fellow #SussexSquad members who thought of this idea and how we all rallied around it. Also the we have added 3 new charities to this effort!! Thank you!! https://one25.org.uk/donate/ https://invictusgamesfoundation.org/ https://smartworks.org.uk/get-involved/donate-money/ We also mentioned a fundraising effort for Emmalyn: https://www.gofundme.com/emmalyn-is-headed-back-to-nyc Emmalyn has chiari malformation and severe chronic neutropenia! She has been through 29 brain and spine surgeries since the age of 3 and headed for surgery 30! We have been in NYC for 6 months other than 26 days. She has been fighting infection, surgery to redo her cervical fusion, and next up is to remove her cervical fusion and with healing will be another month long trip on NYC! There isn’t a day this little girl doesn’t go through headaches! Emmalyn has had a long hard fight with Chiari Malformation and its co conditions. She is such a ray of light who fights daily with headaches. Our neurosurgeons are in NYC, so we make many trips there every year.  Please if you can't help please pray for Emmalyn and our family! Thank you in advance!! And one of our Sussex Squad member sister who is in need of a Kidney and donations: http://give.transplants.org/site/TR/NFTPatientsandLivingDonor/General?px=1038721&pg=personal&fr_id=1040 Gwendolyn Best is awaiting a new lease on life. In 2011, she was diagnosed with chronic kidney disease. Over the years, her kidney function has declined and her illness has now progressed to stage-5. Gwendolyn is on dialysis, which leaves her tired and takes a toll on her quality of life. Doctors say a kidney transplant is critical. Please donate what you can even if it is juts volunteering,  items, or retweeting nothing is too small! Ok that is all we have for today don’t forget to send us some topics to cover for the next podcast #sussexsquadpodcast Email: hello@sussexsquad.com Twitter: @sussexpodcast

Today on the podcast we're chatting with Jordan Ray about her crazy story with Chiari Malformation. Definitely listen in if you've ever been interested to learn more about this OR if you've never heard of it. Jordan's story is inspiring and she's even started her own business after being diagnosed, Limitless Medical Logs!    Jordan's Information: Website: www.limitlessmedicallogs.com Purchase the Limitless Medical Log: limitlessmedicallogs.com/products/essential-book Facebook: www.facebook.com/limitlessmedicallogs/ instagram: @jordanRay25 or @limitlessmedicallogs Twitter: twitter.com/LMLbetterhealth   Jessie's Information: Blog: www.justjessieblog.com Instagram: www.instagram.com/chronically.healing Facebook Group: https://www.facebook.com/groups/AIPositivegroup/ Email: jessie@jessiedeschane.com  

In this episode, Geoff sits down with Anthony & Angela Ramsey of Franks Guy in Spring City to hear an incredible story of faith, family & determination. Shortly after their wedding, Angela was diagnosed with a condition known as Chiari Malformation and has since undergone eight brain surgeries in the last 10 years. Though they … Continue reading "Podcast S01Ep10: Anthony & Angela Ramsey of Franks Guy" The post Podcast S01Ep10: Anthony & Angela Ramsey of Franks Guy appeared first on Discover SPRINGFORD.

Today we are featuring a conversation with a powerful painiac, Jen Lake. Jen is an East Coast transplant living life in the high deserts of New Mexico with her better half, Trevor, and her pack of three very large rescue pups, Miesha, T-Bone and Bumper. By day, Jen is a web designer and photographer, but by night, she is a graduate student working on a dual masters is Business Administration and Information Systems and Assurance. Jen is also a 2016 Schwinn Bicycle Ambassador. In 2014, Jen underwent brain surgery and a fusion of her cervical spine to address a condition called Chiari Malformation, and then, in 2015, she underwent a second surgery on her back to address a tethered spinal cord. From these experiences, Jen developed a passion for not only wellness but for inspiring others on their own health journeys. Outside of studying and practicing wellness and self-care, Jen likes to spend her free time scrap-booking, baking gluten-free desserts, drinking chai lattes, and chronicling her daily life on Instagram and her blog.

Today I am talking with Lisa Grefe. Lisa is the founder of Deliver Delight. She understands that sometimes flowers just don’t cut it. Deliver Delight was born out of a small and simple idea from her own experience healing and recovering from brain surgery. Diagnosed with Chiari Malformation and Syringomyelia, a rare neurological condition, brain surgery was her only option to live a better quality of life. Overtime, the small gifts, notes, and support meant the world to her and have inspired her first product, Deliver Delight.