A podcast bringing awareness to gynecologic cancers, women's health, and patient advocacy.
This week, Mary and Alex discuss Pinktober, Breast Cancer, and charitable giving. --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Reposting this incredible interview with Yohanna Hoehler in honor of Gynecologic Cancer Awareness Month! Yohanna Hoehler (39), is a Vulvar Cancer Survivor and Advocate. She is the founder of the Vulvar Cancer Awareness Forum, a non-profit organization. VCAF focuses on raising awareness and educating on all things Vulvar Cancer and provide support to those who have been diagnosed. Yohanna also actively advocates and lobbies for new Vulvar Cancer research and treatment advancements as most of what we know about this cancer is based on outdated information. IG Handle: @vulvarcancerawareness --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Mary's perspective following Alex's cancer diagnosis. During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories. Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist. The Foundation for Women's Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more. #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage and #Move4Her --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
On this week's episode, Alex speaks with Dr. Tania Small. Dr. Small is the Global Head of Oncology Medical Affairs and Chair of R&D Diversity, Equity, and Inclusion Council at GSK. They discuss disparities in diagnosis, treatment, clinical trials, and survival rates of uterine and endometrial cancer among Black, Asian, and Hispanic women. Dr. Small shares her thoughts on ways physicians and pharmaceutical companies, as well as patients, can make changes to bring about meaningful change. #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage #WorldGoDay #Move4Her #GynecologicOncology #RacialBias #BlackWomen #advocacy #anchor #podcast #research #spotify #nonprofits Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Summary Keywords Gynecologic Cancer Awareness Month, GCAM, Move The Message, World GO Day, Move4Her Gynecologic Oncology, Racial Bias, Black Women, advocacy, anchor, podcast, research, Spotify, nonprofits --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Alex's cancer story. During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories. Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist. The Foundation for Women's Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more. #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage and #Move4Her --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week, Mary and Alex watched the 1944 film “Gaslight” to learn about the origin of the commonly-used term of psychology of the same name. They discuss ways in which they have been gaslit by medical professionals, as well as how to recognize medical gaslight and ways to advocate for your health when a doctor tries to downplay your symptoms. #Podcast #Spotify #Anchor #research #advocacy #cancer #gaslighting #IIH #CSF #ocularmigraine #lumbarpuncture #shoulderdystocia Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links What is gaslighting? Examples and how to respond Shoulder Dystocia: Signs, Causes, Prevention & Complications Episode Highlights Intro [0:13] Welcome Back! [1:23] Pickleball [1:57] Gaslighting [3:05] American 1944 movie [3:40] Mary's personal gaslighting story [5:28] Shoulder dystocia [6:47] High risk pregnancy [8:35] Elective C-section [9:40] Advocate for yourself [11:34] Alex's personal gaslighting story [12:05] Idiopathic Intracranial Hypertension (IIH) [12:20] Ocular Migraine [13:15] Lumbar puncture [13:40] Thank you, Merry-Jennifer! [15:20] Cerebral Spinal Fluid [15:48] Vulvar Cancer Network [19:04] ER doc's perspective needed [20:03] Opioid crisis [22:50] High pain threshold [23:03] Mary's colonoscopy follow-up [23:43] Only apology[25:25] Ingrid Bergman & Angela Lansbury [28:33] Medical gaslighting [30:22] Thanks for listening! [31:20] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, gaslighting, IIH, CSF, ocular migraine, lumbar puncture, shoulder dystocia --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss the lack of attention to detail that can have devastating results, especially in the medical community. They share personal experiences and cite articles that discuss the consequences that can result from a lack of attention to detail. #Podcast #Spotify #Anchor #research #advocacy #cancer #attentiontodetail #colonoscopy #eliquis #polyps #slowdown #trustyourgut Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Down There Aware Attention to Detail (or the lack thereof) – Hug the Mountain Bristol-Myers Squibb recalls pills with wrong dose - nj.com High Cost of Small Mistakes: Most Expensive Typos of All Time The Relationship of Parental Attitudes and Expectations to Children's Mathematics Achievement Behaviour - Delene Visser, 1987 Episode Highlights Intro [0:13] Welcome Back! [1:25] It is HOT! [1:32] Back to school time [1:50] College town [2:38] Why today's topic? [3:06] Attention to detail [3:30] Mary's colonoscopy [3:50] Bloodthinnners [5:38] Trust your gut [6:14] That's Sadie's tail thumping! [6:35] Come prepared [7:17] Polyps [7:48] No one apologized [10:05] Write down names [11:59] Correct spelling of names [13:30] Pharmaceutical mistakes [15:45] Oops! Battery died! [16:37] Checks and balances? [16:41] Life and death [17:10] Mary's theory [17:17] 90's warm and fuzzy[17:30] Alex's dishwashing lesson [21:10] My job as your mother [22:14] Children will rise to your expectations [23:16] Everything goes faster [23:27] Alex's staple removal story [25:41] Thank heaven for Ginny! [28:35] A challenge to slow down [31:00] Thanks for listening! [31:36] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, attention to detail, colonoscopy, polyps, eliquis, slow down, trust your gut --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss period poverty, what it is and what we can do about it. They describe the kickstart project of the Down There Aware nonprofit and explain how listeners can partner with us to truly make a difference in the lives of young girls who are living the nightmare of period poverty. #Podcast #Spotify #Anchor #research #advocacy #cancer #nonprofits #donations #DownThereAware #education #periodpoverty #femininehygieneproducts #periodshaming #Kelly&Ellie #ReadySetGoboxes Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Down There Aware Periods an open and honest conversation with an 11 year old and her mom Episode Highlights Intro [0:13] Welcome Back! [1:31] Thanks for voting! [1:42] Spotlight on DTA nonprofit [2:00] Hard to know how to get the word out [3:38] Word of mouth - the best form of advertisement [4:32] First project: Ready, Set, Go (RSG) boxes [4:52] Kelly & Ellie, Season 2, Episode 12 [5:13] Period Poverty [6:02] Local girl's initiative [8:17] Educational information for RSG boxes [8:45] Period shaming [11:54] Educate men about girl's periods [12:28] Donations for nonprofit - Thank you! [13:16] Speak into existence - 500 RSG boxes by Christmas! [13:44] Assemble RSG prototypes [14:21] Why Ready, Set, Go? [15:30] How to donate [16:35] Goal by Christmas [17:40] Thanks for listening! [17:44] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, nonprofits,donations, Down There Aware, education,, period poverty, feminine hygiene products, period shaming, Kelly & Ellie, Ready Set Go boxes --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss nonprofits, what are they and how do they work? They, specifically, discuss their nonprofit, Down There Aware, its purpose, its mission, and how it grew out of the podcast of the same name. #Podcast #Spotify #Anchor #research #advocacy #cancer #nonprofits #donations #DownThereAware #ProctorandGamble #periodpoverty #femininehygieneproducts Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links www.downthereaware.com Episode Highlights Intro [0:13] Welcome Back! [1:22] July was a busy month! [3:48] Four Seasons of DTA [4:48] Sadie's entrance [5:04] Alex's four-year mark [5:45] Favorite Chef contest [7:20] James Beard Foundation [7:47] Down There Aware nonprofit [8:22] Tallahassee Democrat interview [9:40] Arts Admin Masters degree [11:20] Funding [13:10] Sadie's exit [14:01] Ready, Set, Go! boxes [18:00] Kelly and Ellie inspiration [19:42] Volunteers [21:25] Video glitch - UGH! [22:54] Nonprofit documentation on website [23:27] Please consider donating to DTA [24:35] Info on feminine hygiene packaging [24:55] Video is back! [25:43] Proctor and Gamble plea [26:01] Toilet paper packaging in the UK [26:27] Thank you for listening! [28:04] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, nonprofits,donations, Down There Aware, Proctor and Gamble, period poverty, feminine hygiene products --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex speak with Barasch & McGarry Partner, Sara Director as well as 9/11 Survivor diagnosed with uterine cancer, Karen Smith-Hagman to discuss the World Trade Center Health Program recently naming Uterine and Endometrial cancer to the list of conditions covered by the Victims Compensation Fund. #Podcast #Spotify #Anchor #research #advocacy #cancer #911 #compensation #BaraschandMcGarry #uterinecancer #endometrialcancer #MemorialSloanKettering #WorldTradeCenter Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links https://www.911victims.com Episode Highlights Intro [0:13] Welcome Back! [1:21] Guest introductions [1:29] Uterine cancer [2:22] 9/11 Bill: Victim Compensation [2:42] World Trade Center Health Program [4:10] Compensation [4:20] Educated and informed doctors [4:32] “Never forget” [5:40] Men vs Women [6:15] 69 qualifying conditions [8:06] Karen's story [8:50] Uterine/Endometrial cancer diagnosis [10:35] Memorial Sloan Kettering [10:45] 5 years NED [13:15] Initial symptoms [16:10] Transvaginal ultrasound [18:40] Total hysterectomy [20:51] Chemotherapy [23:01] Adding uterine cancer [27:16] Accommodations for employees with cancer [29:27] 1 in 3 people get cancer [30:31] Who is eligible for compensation? [33:35] Providers who KNOW what to look for [37:23] Autoimmune and heart conditions [38:57] Incredible work [39:34} Who to contact [40:10] Thank you! [42:58] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, 911, compensation, Barasch and McGarry, uterine cancer, endometrial cancer, Memorial Sloan Kettering, World Trade Center --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex speak with Cliff Reed, Founding CEO, and Dennis Watson, VP Business Development, of Travera, a company specializing in new technology enhancing the landscape of late stage cancer treatment. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #cancer #Travera #genomics #DNA #MIT #FDA #CLIA #LDT #cancerresearch #technology #cancertechnology #innovation #groundbreaking #latestagecancer #stage4cancer #uterinecancer #ovariancancer #leukemia Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links TRAVERA Episode Highlights Intro [0:13] Welcome Back! [1:25] Guest introductions [1:44] M.I.T. technology [3:42] Genomics and DNA sequencing [3:58] Limited patients [4:05] New measurement tool [4:48] MIT/Dana Farber Cancer Institute partnership [5:32] Infectious disease comparison [5:48] Multiple Myeloma [6:38] “Cheat code” [7:30] Commercial launch [9:09] Test offered for free [10:15] Working with physicians [10:55] Trial and error process for patient [13:20] Advocacy groups [15:25] Patient profile [16:01] Cancer mutation [17:57] Access to live cancer cells [18:38] Quick turn-around for results[21:30] No additional burden on patient [23:35] Early stage testing and limited data [24:28] Predictive accuracy over 80% [25:12] Late stage cancer patients [26:25] Response from oncology community [28:00] Difference in this x vivo test [29:25} No financial risk [30:00] Great value to research and future patients [31:57] MIT intent [34:57] Great creative minds in scientific research [36:15] Future of Travera's efforts [36:55] The bigger plan [39:01] FDA approval/CLIA certification [40:05] Laboratory Developed Test (LDT) [40:21] Potential to greatly benefit newly diagnosed patients[41:49] Microchip specs [43:45] Physics vs biochemistry[46:20] Simple comparison to a diving board [47:05] Speed and logic [49:47] If someone is listening today and is interested [51:30] dwatson@travera.com [52:23] PHI and HIPAA [53:35] Hearing from those who know best [55:03] Thanks for listening! [56:19] Stay Connected Podcast, Spotify, Anchor, research, advocacy, cancer, Travera, genomics, DNA, MIT, FDA, CLIA, LDT, cancer research, technology, cancer technology, innovation, groundbreaking, late-stage cancer, stage 4 cancer, uterine cancer, ovarian cancer, leukemia --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss Sympathy Fatigue. Is it really a “thing” and what can be done if we are suffering from it? #Podcast #Spotify #Anchor #research #advocacy #sympathyfatigue #Hank Green #HodgkinsLymphoma #LynchSyndrome #leukemia #compassion #cancer #communication #fertility Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Are you experiencing compassion fatigue? Hank Green Lynch syndrome - Symptoms and causes - Mayo Clinic Episode Highlights Intro [0:13] Welcome Back! [1:25] Is Sympathy Fatigue a thing? [2:28] Cancer muggle [3:05] Compassion Fatigue [4:45] “I'm sorry.” [5:23] “Es tut mir leid.” [6:49] Cancer jokes [8:35] Communication from patient [9:20] Be intune to the patient [9:28] Difficult subjects [12:23] Leukemia [14:45] Fertility was the cost of treatment [17:30] Lynch Syndrome [18:05] Hank Green [18:18] Parent's response to sympathy [20:17] “No” is a complete sentence. [21:05] Thanks for listening! [22:06] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, sympathy, fatigue, Hank Green, Hodgkin's Lymphoma, Lynch Syndrome, leukemia, compassion, cancer, communication, fertility --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss how transitioning from a fixed mindset to a growth mindset might affect our daily lives, especially regarding unexpected medical diagnoses. #Podcast #Spotify #Anchor #research #advocacy #ALS #GrowthMindset #FixedMindset #funding #MariaMenounos #BrookeEby Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links https://mariamenounos.com/ https://iamals.org/stories/brooke-eby/ https://www.youtube.com/watch?v=VxfJtE9W11E https://www.mindsetworks.com/science/ Episode Highlights Intro [0:13] Welcome Back! [1:25] What's happening? [1:40] Maria Menounos [4:20] Oops! Pancreatic, NOT breast cancer [4:36] Happening FOR me, not TO me [4:43] Growth Mindset [5:20] Fixed Mindset [6:23] Health perspective [7:58] Parosmia/Dysgeusia [8:15] Alex's cancer journey led to podcast [9:58] Alex advocates for her friend [11:30] Important to take someone to doctor appointments [12:18] Life lessons [12:56] Brooke Eby [14:23] Parent's response [17:17] Research funding [18:16] Grieving loss [19:15] Importance of continually choosing Growth Mindset [19:47] Thanks for listening! [21:34] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, ALS, Growth Mindset, Fixed Mindset, Choices, funding, Maria Menounos, Brooke Eby --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss three articles covering a ground-breaking vaccine trial, heart transplant anti-rejection drug risks, and colon cancer diagnoses in young adults. There is some shocking news in each of these articles and this mother/daughter duo feels it's very important to share what they've learned. #Podcast #Spotify #Anchor #research #advocacy #vaccinetrial #cancerprevention #hearttransplant #immunosuppressantdrugs #antirejectiondrugs #coloncancer #youngadults #earlysymptoms #als #procterandgamble #mands Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Victoria's Secret From The B00BLESS BABE'S POV @Theebooblessbabe
This week Mary and Alex respond to Hank Green's recent video in which he shares his cancer diagnosis. Hank was very open and honest as he begins this journey. Mary and Alex discuss their reactions to Hank's perspective, expectations from the audience of content creators, and the many life lessons to be learned when faced with a serious diagnosis. #Podcast #Spotify #Anchor #research #advocacy #Hodgkinslymphoma #bloodcancer #chemo #contentcreator #lifelonglearner #cancersucks #control Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Looking for Alaska: Green, John: 8601400593011: Amazon.com: Books So, I've got cancer It's Not about Me: Lucado, Max: 9789575879532: Amazon.com: Books Episode Highlights Intro [0:13] Welcome Back! [1:24] Hank Green [2:33] John Green [2:45] Fault in Our Stars [3:06] Content creators [3:56] “It's probably nothing” [4:10] American Healthcare System [6:37] Sadie Mae joins us [10:00] Hodgkin's Lymphoma [10:45] Smiling when discussing serious issues [11:01] Emotional processing in private [12:17] Difference between blood cancers and solid mass tumor cancers [13:04] Risk factors for Hodgkin's Lymphoma [16:05] Knowledge is power [18:35] Audio issues [20:15] Practicalities and logistics [20:50] “This is your job now.” [23:30] Expectations of content creators [24:22] It's Not About Me [25:05] Sadie's afraid of the rain [25:16] Specific requests [26:50] “Let's fight this thing together” - NOT. [28:40] Good science, good healthcare, good outlook/attitude, chance [28:55] Nerdy science guy [29:30] Control is a spectrum [30:10] I can be both. [30:55] Grieving the person who's never had cancer [31:02] Friendships:Joyful in the moment, wise in the long term [31:38] What you give comes back to you, multiplied.[32:40] “I'm fine, but I'm not fine.” [33:27] The “Big C” [33:53] Tuberculosis? [34:37] Effects of cancer on an entire community [35:53] No apology necessary [37:17] Cancer sucks! [38:07] We wish you well, Hank! [40:12] Thanks for listening! [40:14] Summary Keywords Podcast, Spotify, Anchor, research, advocacy,Hodgkin's lymphoma, blood cancer, chemo, content creator, life-long learner, cancer sucks, control --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex have an informal chat about the medical community and ever-changing guidelines for testing and care. They share research, articles, and personal experiences about how far we've come. #Podcast #Spotify #Anchor #research #advocacy #pectusexcavatum #cervicalcancer #guidelines #insurance #colonoscopy #risk #tuberculosis #infertility #menstruation Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Looking for Alaska: Green, John: 8601400593011: Amazon.com: Books Pectus excavatum: Not just a cosmetic concern What Is Cervical Cancer? - NCI Da Vinci Robot | Robotic Assisted Systems | Intuitive Fact Sheets | General | Tuberculosis: General Information | TB | CDC Episode Highlights Intro [0:13] Welcome Back! [1:25] New look in the studio! [1:35] Sadie in the spotlight! [1:55] Katie Couric [2:52] Dense breast tissue [3:52] Medical recommendations and insurance [4:20] Guidelines lagging behind research [5:20] Colonoscopy recommendations [6:45] The risk factor [8:10] What can colonoscopy diagnose? [9:32] The ever-changing hysterectomy [10:12] DaVinci machine [12:25] FL DOT [14:55] Decisions to benefit whom? [16:06] Pectus Excavatum repair [19:35] Global society [21:50] John Green [22:05] Tuberculosis [22:30] Eradicating cervical cancer [23:05] Check out our TikTok [23:38] Maternal mortality rate [24:10] Challenge for audience! [25:11] Like, Subscribe, Rate, and Share! [25:20] Previous podcast episodes [25:56] Alex's story [26:15] Infertility [26:28] Preteens and menstruation prep [27:05] Thanks for listening! [27:49} Summary Keywords Podcast, Spotify, Anchor, research, advocacy,pectus excavatum, cervical cancer, guidelines, insurance, colonoscopy, risk, tuberculosis, infertility, menstruation --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss the reasons for and the process through which we might go about seeking a 2nd opinion. 1. To gather information, 2. Not comfortable with diagnosis, 3. Unsuccessful treatment #Podcast #Spotify #Anchor #research #advocacy #pectusexcavatum #IdiopathicIntracranialHypertension #discectomy #2nd opinion Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links The Gift of Fear: And Other Survival Signals That Protect Us from Violence Pectus excavatum: Not just a cosmetic concern Idiopathic Intracranial Hypertension: Symptoms, Causes & Treatment Episode Highlights Intro [0:13] Welcome Back! [1:24] Happy Birthday, Mary & George! [1:48] Second opinions [2:20] Negative stigma? [2:58] Gathering more information [3:31] Will's 2nd opinion for pectus excavatum [4:31] Alex's 2nd opinion for IIH [7:13] The Gift of Fear [12:04] Treatment is unsuccessful [16:35] Didn't seek 2nd opinion [17:10] Back injury [18:28] No need to rush into decisions [23:31] Sadie may enters [26:07] Thanks for listening! [26:15] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, pectus excavatum, Idiopathic Intracranial Hypertension, discectomy, 2nd opinion --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex reflect on an article written by a woman who left her fiancé when he was diagnosed with a brain tumor because, in her words, “I knew the future we had planned out was over.” #Podcast #Spotify #Anchor #research #advocacy #caregiver #empathy #commitment #braincancer Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links I Dumped My Man Because He Has Cancer. Now I'm Running in His Honor Woman Reveals Broke Fiancé Recovering Brain Surgery Danielle Epstein: Londoner left partner Jelle Fresen because his cancer was ‘damaging my mental health' | PerthNow "How to remain single forever": Danielle Epstein slammed over London marathon fundraiser after abandoning cancer-stricken boyfriend Leaving my boyfriend after his cancer diagnosis was the best thing for both of us Woman who left fiancé because he had cancer ended their relationship while he was in hospital Episode Highlights Intro [0:13] Welcome Back! [1:25] Unexpected break [2:05] Alex's disclaimer [2:50] Danielle and Jelle's story [3:55] It's not about you! [6:30] In sickness and in health [6:40] Me, myself, and I [7:00] Caregivers [8:04] Seeking validation [9:05] Maslow's Hierarchy of Needs [10:10] Ann-Forest's story [11:30] Change in life's trajectory [12:55] Mental Health Awareness [15:35] Negative response [17:33] You can do both! [19:02] Benefits of caregiving [20:35] Divorce rate [23:28] Oops! Lost the video, but still have sound! [24:23] Video is back! [24:46] LOVE [26:06] Michael J. Fox [27:45] We just don't get it. [29:52] Thanks for listening! [32:49] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, brain cancer, caregiver, empathy, commitment --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex chat about the term “health anxiety.” Is it real? Is it a positive or negative concept? Is there any value in it? #Podcast #Spotify #Anchor #research #advocacy #healthanxiety #trepidation #anticipation #fear #hypochondria #worry #munchausensyndrome #familyphysician #TodayShow #UFHealth Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Intro [0:13] Welcome Back! [1:25] Time to chat [1:46] The TODAY Show [1:53] Peloton instructor dx with breast cancer [2:03] Health Anxiety [3:19] “Scanxiety” [3:39] Hypochondria [6:45] Negative connotation [7:40] Worry [8:35] What Ifs [10:05] Hug the Mountain [12:30] Shout out to Victoria [14:50] Alex's teaching emergency [15:20] Sadie Mae [16:57] Healthy attitude and preparation [17:18] Munchausen Syndrome [18:20] Shands experience [18:48] Develop honest relationships with doctors [20:40] Trusted Internet sites [22:50] Yikes! We lost our video! [24:11] Importance of regular check-ups [25:25] Vital role of family physicians [26:04] Thanks for listening! [27:16] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, health anxiety, trepidation, anticipation, fear, hypochondria, worry, munchausen syndrome, family physician, Today Show, UF Health --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary discusses (and Alex reacts) to the medical and legal ramifications that can come from a delay in diagnosing endometriosis. #Podcast #Spotify #Anchor #research #advocacy #travel #endometriosis #delayeddiagnosis #patient advocacy Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Intro [0:13] Welcome Back! [1:23] Happy Easter! [1:40] What is the cost of a delayed diagnosis? [2:27] The overlap between endometriosis and other conditions. [3:32] Where a diagnosis starts [4:37] Pitfalls of specialist referrals [10:05] Primary care physician superstars [12:32] Diagnosis stats [15:37] Why are there delays? [16:51] Dismissal of symptoms [17:20] Taking the easy route [20:22] Let's be real, some doctors are lazy [21:09] Will doesn't have a clue [21:27] The legal perspective of a delayed diagnosis [22:55] Whoops lost the camera feed! [23:02] Sadie joins us (and is bored with all of the liturgical talk [23:34] Patient vs. Doctor responsibility in a delayed diagnosis [24:23] Maggie's diagnosis [25:46] Sometimes delayed diagnosis is unavoidable [26:33] Signs of a delayed diagnosis [27:00] Lack of coordination between specialist [30:15] It's a team effort [32:10] Thanks for listening! [34:47] Summary Keywords Podcast, Spotify, Anchor, research, travel, ovarian cancer, insurance, delayed diagnosis, endometriosis, miscommunication, specialists, team effort, patient advocacy --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Alex and Mary share three different women's cancer stories that are simply unbelievable, yet sadly, they are true. #Podcast #Spotify #Anchor #research #advocacy #travel #ovariancancer# insurance #pectusexcavatum #pseudotumorcerebri #advocate #zugspitze #covid #coloncancer #weightbias Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Jacksonville 20-year-old gets a second chance at life after having a 104-pound ovarian tumor removed Doctors repeatedly told a woman stress was causing her symptoms. Then they pulled out a volleyball-size tumor. 24-Year-Old Who 'Ignored' Stomach Pain, Bloating Had Ovarian Cancer Episode Highlights Intro [0:13] Welcome Back! [1:23] Peach PJs [1:40] Back from Germany! [2:27] Covid. UGH. [2:30] A glorious trip to Germany! [3:40] Personal anecdotes [4:15] Mary's fall up the escalator [4:40] Alex's “pressure” moment [13:30] Zugspitze [14:16] “Run, Mary, run!!!” [15:32] Pay for bathrooms in Europe [18:00] A bounty of alarming news articles [18:27] Hannah's story, stressed? No, ovarian cancer. [21:26] Overweight [22:30] Pseudotumor cerebri [23:38] Pectus Excavatum [27:55] Health Insurance [30:55] 104 pound ovarian tumor [32:17] Stage 3 colon cancer @ 24 years of age [36:29] Sadie Mae joins us! [40:20] Advocate for yourself! [43:45] Thanks for listening! [47:05] Summary Keywords Podcast, Spotify, Anchor, research, travel, ovarian cancer, insurance, pectus excavatum, pseudotumor cerebri, advocate, zugspitze, covid, colon cancer, weight bias --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Alex and Mary discuss cancer statistics in South America, Latin America, and the Caribbean, how they compare to other regions, and the questions that arise from the “why” behind the data. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #travel #SouthAmerica #LatinAmerica #Caribbean #statistics #data #dothetestanyway #cervicalcancer #ovariancancer #vulvalcancer #endometrialcancer #screening #geographical #socioeconomic #HDI #grants #ProctorandGamble #gallbladdercancer #CancerAtlas #breastcancer Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Cancer patterns and trends in Central and South America - ScienceDirect South America Latin America & the Caribbean | The Cancer Atlas Episode Highlights Intro [0:13] Welcome Back! [1:24] Same day, same clothes [1:43] Trip to Germany [1:50] South America, Latin America, Caribbean [2:20] Low risk of death from cancer in females [4:00] Cancer Atlas [5:50] 2018 cervical most common cancer death in Guyana [6:42] Gallbladder cancer in Bolivia and Chile [7:10] Cancer registry [8:39] Cancer 3rd/4th leading cause of death in Mexico [9:26] Breast cancer leading cause of death in Mexican women [9:57] Cancer leading cause of death in Mexican children [10:13] Mary gets distracted with “Popular” [10:50] Universal Healthcare [11:25] Half of top 10 highest cancer rates are in island nations [13:12] Stomach cancer [14:30] HDI component [15:01] Maybe we should look at Canada and the USA [18:05] Sadie Mae joins us [18:33] An official 501c3 Nonprofit [19:30] Donate button on website [19:45] Grant funding [20:00] Proctor and Gamble labeling [20:25] Thanks for listening! [21:05] Summary Keywords Podcast, Spotify, Anchor, research, travel, South America, Latin America, Caribbean, statistics, data, do the test anyway, cervical cancer, ovarian cancer, vulval cancer, endometrial cancer, screening, geographical, socioeconomic, HDI, grants, Proctor and Gamble, gallbladder cancer, Cancer Atlas, breast cancer --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Alex and Mary discuss cancer statistics in Europe, how they compare to other regions, and the questions that arise from the “why” behind the data. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #travel #Europe #statistics #data #dothetestanyway #cervicalcancer #ovariancancer #vulvalcancer #endometrialcancer #screening #geographical #socioeconomic Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Intro [0:13] Welcome Back! [1:24] Europe [1:43] ESGO Congress annual meeting [2:03] Sponsors for annual meeting [3:00] Cervical cancer deaths in Europe [5:25] Young women with cervical cancer [6:30] Eastern Europe [7:38] Highest ovarian cancer incidence in the world [7:48] Vulval cancer [9:24] Genetic component? [10:35] HPV and smoking as factors [10:54] Soaking in the German culture [11:35] Vaginal cancer [13:11] Lack of early screening [13:40] Maslow's Hierarchy of Needs [14:13] Uterine cancer [14:32] Aging population and obesity as factors [15:01] More likely to get uterine cancer having never given birth [15:13] Fallopian tube cancer [15:48] Breast cancer [17:50] Northern and Western Europe [18:20] Geographical component [19:10] Possible US series? [19:50] Thanks for listening! [22:41] Summary Keywords Podcast, Spotify, Anchor, research, travel, Europe, statistics, data, do the test anyway, cervical cancer, ovarian cancer, vulval cancer, endometrial cancer, screening, geographical, socioeconomic --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Alex and Mary discuss cancer statistics in Africa, how they compare to other regions, and the questions that arise from the “why” behind the data. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #travel #Africa #cervicalcancer #MaslowsHierarchyofNeeds #Rwanda #statistics #data #ASR #ASIR #GDP #HDI #Globalstatistics #Cancerburden #Trends Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links Sub-Saharan Africa | The Cancer Atlas How Rwanda could become one of the first countries to wipe out cervical cancer | Global development | The Guardian Mapping Cancer in Africa: A Comprehensive and Comparable Characterization of 34 Cancer Types Using Estimates From GLOBOCAN 2020 Episode Highlights Intro [0:13] Welcome Back! [1:24] Another Millennial/Boomer moment [1:35] Africa [3:42] Leading cause of death in Rwanda [5:20] Africa has the highest cervical cancer rate [5:50] Reached 98%+ target HPV vaccine population [6:07] Mortality rates [7:48] Breast cancer vs cervical cancer in North Africa [10:10] Breast cancer vs cervical cancer in Subsaharan Africa [10:55] Great need for cervical cancer vaccine/screening [11:55] Maslow's Hierarchy of Needs [14:10] Trends predicted to rise [17:40] Lack of resources [18:30] Much work to be done! [20:10] Thanks for listening! [21:49] Summary Keywords Podcast, Spotify, Anchor, research, Africa, cervical cancer, Maslow's Hierarchy of Needs, Rwanda --- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Alex and Mary discuss cancer statistics in Australia, how they compare to other regions, and the questions that arise from the “why” behind the data. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #travel #Australia #statistics #data #dothetestanyway #cervicalcancer #ovariancancer #vulvalcancer #endometrialcancer #screening #geographical #socioeconomic Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links https://www.aihw.gov.au/getmedia/03a38ab8-3ac4-48d4-b69c-8239a97c60a5/13972.pdf.aspx?inline=true https://www.acrf.com.au/support-cancer-research/cancer-statistics-australia/?gclid=CjwKCAiAjPyfBhBMEiwAB2CCIvorWMi5Xp4umFp9RvHOlyu9Cs64u9V59sNwpIxDMGZ0JnjlQamxUxoCrucQAvD_BwE https://www.aihw.gov.au/reports-data/health-conditions-disability-deaths/cancer/overview https://ace.amegroups.com/article/view/4614/5363 Episode Highlights Intro [0:13] Welcome Back! [1:26] Trip to Germany [1:45] Global series [3:47] Millennial vs Boomer [4:35] Australia [7:00] GYN cancer: 4 deaths in 12 diagnoses [8:35] Uterine cancer [9:12] Ovarian cancer [10:00] Death rates [10:35] Pre-cancer screenings [11:50] Mary's personal experience [12:36] Survival rates [15:18] We don't know what we don't know. [17:25] Age variable [18:25] Change needed in med schools [19:15] Dr. Merry Jennifer Markham [19:30] Perspective of older women [21:10] Geographical variable [21:57] Socioeconomic variable [24:12] Number of females vs number of diagnoses [24:42] Primary cancer diagnosis [26:25] Average age at diagnosis [27:05] Younger people getting cancer [30:35] Be your own advocate! [31:15] Order the test, anyway [31:58] Awesome doctor [33:12] Thanks for listening! [34:46] Summary Keywords Podcast, Spotify, Anchor, research, travel, Australia, statistics, data, do the test anyway, cervical cancer, ovarian cancer, vulval cancer, endometrial cancer, screening, geographical, socioeconomic --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss cancer statistics in Asia, how they compare to other regions, and the questions that arise from the “why” behind the data. #Podcast #Spotify #Anchor #research #advocacy #travel #Asia #statistics #data #ASR #ASIR #GDP #HDI #Globalstatistics #Cancerburden #Aflatoxin #HepatitisB #Trends Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Links ASR (age-standardised rate). The ASR is a weighted mean of the age-specific rates where the weights are taken from the population distribution of a standard population Latin America & the Caribbean | The Cancer Atlas Overview of Geographical Diversity | The Cancer Atlas Reproductive & Hormonal Factors | The Cancer Atlas Endometrial cancer statistics | World Cancer Research Fund International Southern, Eastern, & South-Eastern Asia | The Cancer Atlas Cancer Incidence and Mortality in Asian Countries: A Trend Analysis - PMC Episode Highlights Intro [0:13] Welcome Back! [1:26] Trip to Germany [2:20] Shout out to Herr Michael Simmons [2:54] Global series [5:16] ASR/ASIR WHOOPS![8:08] GDP [10:38] HDI [10:48] ASMR [11:50] Sadie Mae joins us [12:15] Global statistics [14:04] The cancer atlas [14:20] Endometrial cancer global stats [15:20] Definitive tests [22:22] Preventative screenings [23:49] Geographic variable [24:20] Global cancer burden in 2040 [26:32] Cervical cancer incidence rate [28:30] Cancer in Asia [31:45] China has highest liver cancer rate [32:10] Aflatoxin exposure [32:35] Hepatitis B [32:45] Life expectancy variable [36:30] Over-diagnosis [38:12] Rising trends in younger population [40:00] Same day, same clothes [42:05] Thanks for listening! [43:14] Summary Keywords Podcast, Spotify, Anchor, research, travel, Germany, statistics, data, ASR, ASIR, GDP, HDI, Global statistics, Cancer burden, Aflatoxin, Hepatitis B, Trends --- Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary discuss what it's like to travel with a chronic illness. They share tips for their preparation and planning for their upcoming trip to Germany. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #travel #Germany #medications #preparations #chronicillness #compressionsocks #Lasix #mobility #blood sugar #hcm #diabetes Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Intro [0:13] Welcome Back! [1:24] Chronic illness travel prep [4:50] Checking in with the cardiologist [5:20] Compression socks [6:05] Lasix and frequent bathroom breaks [6:55] Restroom accessibility in Europe [8:00] Refrigerated medications [8:48] Upgraded to lie-flat accommodations [10:30] Mobility on airplane [11:45] Snacks to control blood sugar [12:22] Medications in carry-on luggage [12:55] Organization [14:10] Sadie Mae and Uncle Will [15:12] In USA docs limited in out of state RXs [15:45] Alex's travel packets [16:55] Shout out to Steve and Victoria [17:21] Dress for destination weather [17:55] Menstruating on a long trip [19:05] Flight Attendant requests, if needed [19:55] Atlanta airport [21:10] Think ahead [22:28] “Give yourself grace.” [22:42] Pace out the itinerary [23:40] 5-week series [23:54] Sadie Mae joins us [25:03] Thanks for listening! [25:39] Summary Keywords Podcast, Spotify, Anchor, research, travel, Germany, medications, preparations, chronic illness, compression socks, Lasix, mobility, blood sugar, HCM, diabetes --- Send in a voice message: https://anchor.fm/downthereaware/message
Because February is American Heart Health Month, in Episode 3 Alex and Mary discuss the latest research regarding how Covid affects the heart. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #covid #hearthealth #myocarditis #pericarditis #vaccines #bloodvessels #vascularvirus #respiratoryvirus #longcovid #bloodclots #stress #bloodpressure #parosmia #dysgeusia #olfactorynerve Episode Highlights Intro [0:13] Welcome Back! [1:25] February is American Heart Health Month [3:37] Heart issues have increased since 2020 [4:37] Ages 25-44 [4:50] Cedar-Sinai study [6:22] Increase in heart-related deaths across every age group [6:29] Higher viral load exposure [7:13] Immune response in stronger immune systems [7:17] Vaccines [8:50] Virus more dangerous than vaccine [9:14] Weigh the risks [10:00] Myocarditis [11:10] Increase in blood clot formation [13:30] Inflammation in blood vessels [13:45] Increase in stress and blood pressure [13:50] Respiratory virus vs vascular virus[14:05] Oximeter [15:20] Continually changing research [17:00] Long-Covid [17:40] UF Health [18:13] Dysgeusia and Parosmia [19:11] Olfactory nerve[20:45] Shout out to Ann Weismueller! [23:30] Please “Like,” “Subscribe,” and “Follow” DTA [25:27] Thanks for listening! [25:50] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, heart health, myocarditis, pericarditis, vaccines, blood vessels, vascular virus, respiratory virus, long covid, blood clots, stress, blood pressure, parosmia, dysgeusia, olfactory nerve --- Send in a voice message: https://anchor.fm/downthereaware/message
Episode 2 follows up on advocacy and action as Alex and Mary discuss their campaign to provide messaging on feminine hygiene products, warning young women about signs and symptoms of gynecologic cancers. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #gyncancer #action #UKefforts #checkmeupuk #procterandgamble #marksandspencer #u4cancer #bowlcancer #youngwomen #earlydiagnosis Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary kick off Season Four with reflections on their “hiatus” (AKA surgery recovery) and they give a sneak peek into what's ahead for the new season. They're transitioning from information and education to advocacy and action! Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. #Podcast #Spotify #Anchor #research #advocacy #gyncancer #action #UKefforts Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Welcome back! [1:25] Alex's back surgery [2:15] Discectomy [3:14] Mary's heart surgery [4:38] “Go-to” person for surgery [5:00] Shout out to Victoria and Janey! [5:23] ICD implantation [7:02] Alex, the hairdresser [7:28] Shout out to Suzie Flowers! [9:10] Watch us on YouTube! [9:28] Shout out to Hoda Kotb! [10:21] The podcast is evolving [12:40] Alex's latest check-up [14:27] Young women CAN get GYN cancer [15:00] What's next? [16:00] @checkmeupuk [16:10] Episode Two focus [17:10] Nonprofit status [17:58] Routine exam [19:00] Hiccup with blood work [19:32] Listen to your mama! [20:00] “My cancer wasn't bad enough.” [21:33] Waiting for the other shoe to drop [22:50] Oops! Video cut out, but audio is good! [24:03] Please follow, subscribe, and like us! [27:05] Weekly episodes on Thursdays! [27:46] Two-week trip to Germany! [28:23] Thanks for listening! [28:43] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex updates us on her upcoming surgery and she and Mary discuss the long journey that has brought her to, yet, another surgery. Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Research Links Episode Highlights Welcome back! [0:57] A life update [1:06] Debilitation back issues [1:18] Disc herniation [1:44] Surgery scheduled [2:28] Recovery from surgery - BLT [4:17] FMLA [5:25] September is GYN Cancer Awareness Month [5:50] Check social media for updates [6:40] Micro-discectomy [7:52] Thanks for all the prayers and positive vibes! [9:39] Surgery isn't always convenient. [10:20] Avoid permanent damage [10:37] Never say never! [12:15] Please like, subscribe, and review! [13:05] Thanks for listening! [13:34] Summary Keywords Podcast, Spotify, Anchor, GYN cancers, GYN cancer awareness month, back surgery, recovery, FMLA, disc herniation, micro-discectomy --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss what it means to be “aware,” why it is so important to be aware, and how they are compelled to host a podcast about awareness. #podcast #womenshealth #GYNcancers #awareness #beinformed #awarenesschallenge Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Welcome back! [0:57] Awareness [1:10] September is GYN Cancer Awareness Month [1:21] Wear PURPLE Day [1:30] Definitions of AWARENESS [2:12] Importance of being well informed [3:45] Uterine/Endometrial Cancer [4:20] Age doesn't determine which cancer your get [4:40] Inaccurate date [6:10] Awareness is our mission [8:10] Ice Bucket Challenge success [8:40] Challenge for our listeners! [9:07] August 22nd deadline [9:40] A prize for the winning submission [10:45] Thanks for listening! [13:45] Summary Keywords Podcast, Spotify, Anchor, GYN cancers, GYN cancer awareness month, awareness, be informed, awareness challenge --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss how social media affects our medical decisions, positively and negatively. They also share some of their favorite social media sites that have proven to be trustworthy, educational, and informative. #podcast #womenshealth #social media #tiktok #facebook #instagram #pinterest #todayshow Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Research Links An Inside Look at Fake Online Reviews for Doctors and Dentists Tallahassee Memorial HealthCare - TMH - Home | Facebook @Merry_Jennifer @lennoxhillspine @it_started_with_a_cyst @belowthewaist_gyncancers @thewombtangclan @4hcmwarriors @justpeachywombcancer @gynecancerinitiative @drdlanger @amydeepharmd @todayshow Episode Highlights Welcome back! [0:57] Heatwave! [1:03] I saw it on The Today Show! [1:46] Fake online medical reviews [1:57] The point of the podcast [3:15] How to spot a fake review [3:51] How does social media affect medical decisions [4:20] Global connections [4:54] From cable news to social media breaking news [5:50] Does the good outweigh the bad? [6:53] Online support groups [8:40] Think critically when online [9:35] Functioning without the Internet [10:46] Connecting with Morgan Gaynor [13:30] Positive influences [13:56] Dr. Mary Jennifer Markham [14:18] Doctors on Tik Tok [15:28] Time with doctors is limited [17:30] Tallahassee Memorial Hospital on Facebook [18:06] TV hospitals are NOT reality [19:12] GoFundMe and Memorials [21:26] Connecting with former students [22:30] Caring Bridge [23:20] Alex's 3rd year cancer diagnosis anniversary [24:12] We have control [24:40] Thanks for listening! [28:04] Summary Keywords Podcast, Spotify, Anchor, social media, tik tok, Instagram, Facebook, Pinterest --- Send in a voice message: https://anchor.fm/downthereaware/message
Morgan Gaynor shares her unbelievable story, recounting how her desire to freeze her eggs at the age of 30 led to a cancer diagnosis. This Stage 4 cancer would, in all likelihood, not have been discovered otherwise. Morgan turned her experience into a positive by becoming actively involved in cancer awareness and fundraising campaigns. Morgan was honored as the American Cancer Society's Tides of Change 2021 Survivor of the Year, in recognition of her advocacy for cancer awareness. Episode Highlights Welcome back! [0:55] Welcome Morgan Gaynor! [0:59] Morgan's story [1:20] Freezing eggs [1:50] Ultrasound findings [2:34] Endometriosis/PCOS [3:10] Memorial Sloan Kettering [3:35] Unrecognized symptoms [4:14] Age is a factor [7:00] Low-grade serous carcinoma [7:20] Limitations of PAP smear [8:20] 9-hour surgery [8:55] Advocacy [11:38] Ovarian Cancer Research Alliance [12:45] STAAR [13:10] Survival rate [18:10] Post-surgical treatment [18:40] Cancer anxiety [22:30] Surgical menopause [23:35] Support system [25:10] Breaking the news [27:25] What's next for Morgan? [30:58] Talking to your doctor [33:20] Find your network [37:25] Dilation & Curettage [40:45] Doctor's apology [42:30] Thank you, Morgan! [44:50] Thanks for listening! [46:45] Episode Research Links https://morganbeatscancer.com/ https://www.staaroc.org/ https://www.mskcc.org/ https://ocrahope.org/ Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware --- Send in a voice message: https://anchor.fm/downthereaware/message
This week, Mary and Alex look back on important medical headlines we may have overlooked in the midst of the Covid-19 pandemic. --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary draw from their own experiences to discuss how and why a medical diagnosis or health issue can affect our mental health. They also touch on various coping strategies that may be helpful. Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Episode Highlights Welcome back! [0:56] June is bustin' out all over! [1:00] Mental health [1:36] We're tired. [1:58] Vicious cycle [2:45] Physical incapabilities [3:10] Routine promotes security [3:54] Expectations [4:38] Not knowing is the worst [6:35] End in mind [7:35] Sense of control [9:02] Uncertainty of Covid [9:40] Long Covid [11:18] Parosmia/Dysgeusia [12:10] Adjust mentality [13:30] Cultural and eating [14:22] Definitive diagnosis [15:14] IV contrast made in China (shortage) [18:05] Give yourself a break, don't compare. [19:30] Be your own advocate [22:24] Keeping up with others [23:24] Ask for help [25:20] Equating fat with lazy [25:44] Toxic positivity [26:59] Understanding our feelings [27:50] Coping with feelings [28:45] Therapy [28:58] Treating the WHOLE patient [29:50] Everyone struggles [30:54] Self-care [30:30] Thanks for listening! [33:54] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, mental health, diagnosis, therapy, parosmia, dysgeusia, long covid --- Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary reflect on various challenges, diagnoses, and life-altering events that have helped them learn to admit, accept, and adapt. --- Send in a voice message: https://anchor.fm/downthereaware/message
This week we revisit Trisha's journey of infertility and pregnancy loss... except it has a much different ending. Trisha and her husband just welcomed a beautiful baby girl into the world! We are so incredibly happy for Trisha and wanted to share so that other women may be able to find hope in her story. Listen on our website, www.downthereaware.com, or wherever you get your podcasts. #mothersday #podcast #motherdaughter #infertility #pregnancyloss #birth #baby #women #womenshealth #miscarriage #birthstory --- Send in a voice message: https://anchor.fm/downthereaware/message
Taking a bit of a detour, Mary and Alex discuss women throughout history. What they were "allowed" to do and say and just how far we've come in our ability to advocate for ourselves, our bodies, and our healthcare. We still have a long way to go, but it's important to acknowledge all who came before us and made it possible. Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware #Podcast #Spotify #Anchor #womenshealth #history #womeninhistory #feminist #feminism --- Send in a voice message: https://anchor.fm/downthereaware/message
This week, Mary and Alex discuss Alex's latest health crisis that derailed a trip to Texas and their plans for the March 28th episode. Listen on our website, www.downthereaware.com, or wherever you get your podcasts. #podcast #spotify #womenshealth #women #herniateddisc #ER #ERvisit #opioidcrisis #healthcare #insurance #texas --- Send in a voice message: https://anchor.fm/downthereaware/message
Assembling Your Tribe: The Importance of Having a Strong Support System This week, Mary & Alex discuss the importance of having a strong support system when you are faced with a cancer diagnosis. Episode Highlights · Why a support system is important [1:07] · Your journey is not yours alone [6:22] · Feeling like an impostor [12:39] · You have to tell your story in your own way and on your own time [16:17] · We all need a support system [20:23] Stay Connected Email Us Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware --- Send in a voice message: https://anchor.fm/downthereaware/message
This week Mary and Alex sit down with Dr. Randall Bradley, a dear friend who lost his wife of 36 years, Brenda, to stage four pancreatic cancer. Randall is transparent about the highs and lows of dealing with a shocking diagnosis and the deliberate decisions he and Brenda made together in order to allow her to “die as she lived.” Randall shares intimate details of their conversations, the choices they made in the midst of heartbreak, and the community that walked alongside them. Episode Highlights Welcome back! [0:56] Dr. Randall Bradley intro [1:08] April 2019 [2:40] Constipation [3:30] Delays in diagnosis [4:10] Devastating diagnosis [4:48] Dim Prognosis [6:30] “We decided we needed more time.” [7:00] Open and honest sharing [8:40] “Determined to be positive.” [9:15] “Die as she had lived” [11:20] “Not live in a vacuum” [11:30] One last trip to Kenya [12:55] A Few More Minutes: A Poetry Collection, by Brenda Livingston Bradley [14:40] Bradley Family Recipes: Bread for the Journey [15:19] Brenda Bradley Memorial Scholarship Fund at McLennan Community College [16:24] A premonition, of sorts [17:18] How am I going to die? [18:40] Getting finances in order [20:43] Funeral planning [21:45] Obituary [22:25] Notes to the children [23:13] Precious,2 helpful notes scattered about [24:00] Cleaning out personal items [24:20] Journal entries [25:17] Continue to live as you have lived [27:15] Continue to be who I fell in love with [29:00] I need time alone [29:40] Live life intentionally every day [31:10] Discuss death with family, proactively and periodically [35:00] CaringBridge [36:25] Transparency in sharing your journey[37:56] Living and dying in community [40:37] Take the opportunity to help others understand[41:45] Should we always do what the deceased person wanted? [42:32] It's ok to laugh with people who are dying [45:10] No guilt in being ready to someone to die [46:04] Hospice [47:00] Responsibility and privilege to share [49:25] Thanks for listening! [50:23] Summary Keywords Podcast, Spotify, Anchor, research, advocacy, humor, pancreatic cancer, transparency, honesty, funeral planning, chemotherapy, CaringBridge, terminal diagnosis, death and dying --- Send in a voice message: https://anchor.fm/downthereaware/message
This week is very special! Mary and Alex sit down with Marion Saville, Sue Collins, and Kirsty Browne from the Conquering Cancer Campaign to learn what they are doing in conjunction with the World Health Organization to ELIMINATE cervical cancer. YES you read that right, ELIMINATE a cancer! Visit www.downthereaware.com/conqueringcancer to learn more about the campaign, watch the trailer, or purchase a ticket to view the documentary. (All ticket sales go directly to the Conquering Cancer Campaign.) --- Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex sits down with Rylan and Veronica, two fellow young women with endometrial cancer. The ladies have an open and honest conversation about love during a cancer diagnosis, as well as the need for a strong support system - from your significant other and more. Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Summary Keywords Podcast, Spotify, Anchor, research, advocacy, humor, deflection, coping skills, World Cancer Day, Patch Adams, Robin Williams, Chris Evert, ovarian cancer, therapeutic humor, inappropriate humor --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary return on the 4th Monday and their new schedule. This week they discuss humor, as deflection and a coping mechanism when dealing with trials and tribulations. Alex shares some personal experiences with humor in times of tragedy. Part of their research involved viewing the 1998 film Patch Adams, with Robin Williams, as well as several peer-reviewed articles and various related websites. #Podcast #Spotify #Anchor #research #humor #darkhumor #cancer #thankscancer Episode Research Links Use of humor as a coping mechanism, psychological adjustment, and social interaction The Use of Humor in Patients With Recurrent Ovarian Cancer Laughing in the Face of Fear (of Disease Detection): Using Humor to Promote Cancer Self-Examination Behavior Laughing at cancer: Humour, empowerment, solidarity and coping online Hall House Productions (@thankscancer) • Instagram photos and videos Tumor Humor - My Perfect Prescription for Coping with Cancer How One Woman Used Humor to Help Her Cope with Her Cancer - OHC The impact of humor on patients with cancer Finding a Reason to Laugh | Cancer.Net Cancer is no laughing matter — or is it? Using Humor as a Coping Tool | NAMI: National Alliance on Mental Illness Getting serious about funny: Psychologists see humor as a character strength Humor As Weapon, Shield and Psychological Salve Summary Keywords Podcast, Spotify, Anchor, research, advocacy, humor, deflection, coping skills, World Cancer Day, Patch Adams, Robin Williams, Chris Evert, ovarian cancer, therapeutic humor, inappropriate humor --- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary are back with a new episode for 2022. They're discussing the pros and cons of New Year's resolutions, commercialism, succeeding and failing at keeping resolutions, and wondering if it really matters. They also give an update on their time away, including Alex's surgery/recovery and they announce a new schedule for the podcast and reveal a new musical introduction, as they begin Season 3. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. Episode Highlights Welcome back! [0:31] Happy New Year! [0:36] Thanksgiving update [1:15] Christmas update [1:33] Surgery update [2:08] New podcast schedule [6:57] Mary's lichen planus diagnosis [6:24] Please subscribe [7:42] New Year's Resolutions [8:45] Success percentage rates [9:27] Gym memberships [11:07] Money spent on resolutions [11:48] Do you need a “new you?” [14:20] Health-related resolutions [15:20] Dry January [15:40] The “why” of each resolutions [16:25] Generational statistics [17:06] Regional statistics [18:16] Chris Terrell [19:30] Be careful what you wish for! [20:45] Commercialism [20:38] Test the practicality of resolutions[24:11] Coffee Trends [25:10] New Year, New You? [26:25] Thanks for listening! [28:36] Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, resolutions, commercialism, dry January, gym memberships --- Send in a voice message: https://anchor.fm/downthereaware/message
In this week's episode, Alex and Mary discuss their experiences with various medical diagnoses and the process of weighing the pros and cons in deciding on treatment options. They share how important it has been for them to do their own research in order to make an informed decision. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. Episode Highlights Welcome back! [0:39] A multi-generational perspective [1:05] Subscribe, rate, and review [1:45] Weighing pros and cons of new diagnosis [2:16] Multiple treatment options [3:05] Alex's endometrial cancer diagnosis [3:57] Mary's lichen planus diagnosis [6:24] Idiopathic conditions/diseases [8:55] Vaccines, medications, and injury [10:28] In the News [13:17] Alex's hernia repair [18:48] Bowel strangulation [20:06] Shunt tubing [22:10] Papilledema [26:54] We are taking a break! [29:10] Season 3, January 2022 [30:15] TikTok [30:43] Thanks for listening! [31:05] Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Links Mentioned in the Episode Mayo Clinic Developing Blood Test That Can Spot More Than 50 Types of Cancer Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, awareness, incisional hernia, lichen planus, treatment options, pros and cons #Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #awareness #endometrialcancer #incisionalhernia #lichenplanus #prosandcons
In this week's episode, Alex and Mary discuss their research methods. They offer their best tips on finding credible resources and sifting through what pops up on Google. . . separating the wheat from the chaff, if you will. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. Episode Highlights Welcome back! [0:40] Thanks for your support! [0:50] Subscribe, rate, and review [1:18] Research [1:40] Google [2:23] Using the Internet [3:35] Discernment [4:12] Alex is a space nerd [5:00] Government websites [5:20] Dig a little deeper [6:38] Peer-reviewed documents [7:34] Google Scholar [8:45] Check publication dates on articles [10:14] Be open to multiple publications [11:28] Reputable websites [14:06] Recommends from physicians [15:35] Prep for doctor appointments [17:53] Approaching your physician [18:27] Updated medication list [21:03] Thanks for listening! [26:38] Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Links Mentioned in the Episode Mayo Clinic - Mayo Clinic Cleveland Clinic National Institutes of Health (NIH) | Turning Discovery Into Health Google Scholar Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, awareness, research, reputable sites, mayo clinic, cleveland clinic, national institute of health
This week's episode is a sit down discussion between Alex and Mary, looking back on the things in their lives that have shaped them into who they are today. Childhood experiences, neighborhoods, and the way we grow up has a profound effect on who we grow into and that oftentimes determines how we deal with our health and various medical issues. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. Episode Highlights Welcome back! [0:40] What shapes us? [1:12] Bruce Springsteen & Barack Obama [1:30] Absentee fathers [2:08] Pig farm [2:55] Life-long learner [3:35] Growing up in the ‘burbs [5:11] Helping in the kitchen [6:54] Dinner table conversations [8:12] Healthy curiosity [9:45] Learning from mistakes [11:11] Respect for others [13:00] Learning by doing [14:20] Age-appropriate questions/answers [16:48] Ellie Rae's period episode [18:16] Overhearing adult conversations [19:11] Mind/Body connection [20:43] Subscribe, Rate, and Review [21:28] Everyday Health article [21:45] Thanks for listening! [22:25] Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Links Mentioned in the Episode Best Breast and Gynecological Cancer Podcasts Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, awareness
This week, Alex and Mary discuss exactly what it means to know your body, how we can be more aware of unusual signs and symptoms, and when it is important to investigate further. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. Episode Highlights Welcome back! [0:40] Rate, Subscribe, and Review DTA [1:10] How to know your body [2:15] Always evolving [2:57] Alex's 1st experience [3:20] Make a note of unusual symptoms [4:00] Speaking to your doctor [4:30] Pain is relative [5:15] Add situational details [6:35] True Crime shows [8:30] Textbook patients? [9:18] Dehydration [10:18] How much should we be drinking daily? [11:59] LaCroix [12:49] Apps for tracking health/activities [14:32] Period pain [16:28] Journaling vs Apps [17:38] Timing tasks [18:54] Physical signs of a medical issue [19:54] Trust your gut [21:05] Is there a pattern? [25:33] Listen to your body [24:45] What are your limitations? ]26:00] Changing providers [26:55] Thanks for listening! [28:13] Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Links Mentioned in the Episode Water: How much should you drink every day? The 9 Best Health Apps of 2021 Erin Condren Wellness Bundle Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, trust your gut, journaling, health apps, aware, intune, patterns #Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #trustyourgut #journaling #healthapps #beaware #stayintune #patterns
In this week's episode, Alex and Mary discuss knowing your limitations and speaking up instead of over-exerting yourself. Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts. Episode Highlights Welcome back! [0:40] Rate and Review DTA [0:57] Mary's 2nd Wednesday Coffee [1:25] Alex's crazy week [2:00] Pulling an all-nighter [3:05] Edema [3:53] “A man's got to know his limitations.” [4:00] Advocate for yourself [4:45] Accept your limitations [5:40] The toll of exhaustion [6:55] Kindness of strangers [8:02] Melt-down [8:15] Consequences [9:10] Progression of heart failure [9:36] Perception/Stigma of weight [10:28] Caring about what others think [11:38] Acceptance [14:13] Ableist society [16:10] Realizing limitations and speaking up [18:13] Always learning [19:47] Do what's best for YOU! [20:21] Listen to your body [24:45] What are your limitations? ]26:00] Thanks for listening! [27:19] Stay Connected Email Us: downthereaware@gmail.com Instagram:@downthereaware Facebook: Down There Aware Twitter: @downthereaware Pinterest: Down There Aware TikTok: Down There Aware Summary Keywords Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, limitations, edema, obesity #Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #limitations #obesity #edema
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