Podcasts about public involvement

In this episode, Dr Elle Wadsworth speaks to Professor Joanne Neale from the Addictions Department at King's College London and Professor Brian Kelly from the Department of Sociology at Indiana University. The interview covers their editorial titled, ‘Over a decade later and Addiction journal is still committed to publishing qualitative research'. · The origins of the editorial and why it is needed [01:01]· The goal of the changes Addiction is implementing for qualitative submissions [01:44]· The importance of increasing the word limit to 6,000 words [02:49]· Whether similar journals in the addiction field struggle with low numbers of qualitative submissions [04:19]· The increase in qualitative editors at the Addiction journal since 2013 [05:52]· Finding consensus among a diversity of disciplines on the editorial board [07:21]· Semi-quantification over quantification in qualitative research [08:30]· What the authors hope to achieve with this editorial [09:36]· The take-home messages for qualitative researchers [11:04]About Professor Joanne Neale: Jo is Professor of Addictions Qualitative Research based within the National Addiction Centre at the Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK. She is also Conjoint Professor in the Centre for Social Research in Health at UNSW Sydney, Australia. Joanne trained in social work and is the Patient and Public Involvement and Engagement Lead for the UK NIHR Addictions Policy Research Unit. Her current research focuses largely on patient perceptions of treatments and interventions for alcohol and other drug use. In the last three years, Joanne Neale has received, through her university, research funding from Mundipharma Research Ltd and Camurus AB and honoraria from Camurus AB and Indivior for presentations.About Professor Brian Kelly: Brian is a Professor of Sociology at Indiana University and also Senior Research Program Leader at the Irsay Institute. His research examines social contextual influences on health, mainly focusing on substance use. His current research projects include the influence of policy contexts on youth substance use trajectories, sibling socialisation processes of adolescent substance use, and the impact of disasters on community drug-related outcomes.Original editorial: Over a decade later and Addiction journal is still committed to publishing qualitative research https://doi.org/10.1111/add.70047 Qualitative guidelines for Addiction: (1) https://doi.org/10.1111/add.12408 and (2) https://doi.org/10.1111/add.12857The opinions expressed in this podcast reflect the views of the host and interviewees and do not necessarily represent the opinions or official positions of the SSA or Addiction journal.The SSA does not endorse or guarantee the accuracy of the information in external sources or links and accepts no responsibility or liability for any consequences arising from the use of such information. Hosted on Acast. See acast.com/privacy for more information.

In this episode of Lo and Order, SEBA Executive Director Lolita Harper sits down with San Bernardino Police Chief Darren Goodman to unpack the heated debate surrounding education mandates in law enforcement. From his unique journey through USC, Harvard, and beyond, Chief Goodman shares why a college degree shouldn't be the golden ticket into policing—and how Sacramento's top-down policies are missing the mark. Together, they explore the real-world consequences of a "one-size-fits-all" academic requirement, the dangers of legislating from flawed premises, and how removing life experience from the badge equation could cost communities far more than politicians realize. Learn More about the San Bernardino Police Department: https://www.sbcity.org/412/Police-Department Follow Police Chief Darren Goodman: https://x.com/SBPD_CHIEF ----more---- Topics Covered: 07:45 – Education vs. Experience in Policing Why checking the "degree box" isn't a silver bullet—and how real-world experience often matters more. 11:40 – Sacramento's Modern Policing Bill A deep dive into the legislation's origins, its flawed premise post-George Floyd, and the political virtue-signaling behind it. 18:20 – The Problem with One-Size-Fits-All Mandates How requiring a degree could devastate recruitment, especially in underserved communities. 23:50 – Diversity Beyond Skin Color Why life experience, military service, and cultural familiarity matter more than classroom credentials. 28:30 – What Makes a Great Cop Chief Goodman's must-haves: heart, grit, public service commitment—and why a degree can't teach those. 33:00 – Political Disconnect in Sacramento How state leaders are legislating in a vacuum, ignoring the people who actually keep streets safe. 38:40 – The Real Cost of Virtue Signaling Personal stories from San Bernardino: what the community loses when good candidates are locked out by mandates. 46:10 – Recruitment, Retention, and California's Exodus Why even military vets and seasoned professionals are leaving the profession—or the state altogether. 52:00 – Human Trafficking Hypocrisy & Misguided Reforms A brutal look at how legislation aimed at "equity" is inadvertently enabling exploitation. 57:30 – Public Involvement and Civic Action Chief Goodman's call to action: how everyday citizens can stop reckless policymaking before it's too late. 1:02:00 – Closing Thoughts Why heart will always beat a diploma—and the danger of punishing police instead of empowering them. ----more---- Learn more about the Sheriff's Employees' Benefit Association (SEBA): https://www.seba.com/ SEBA is the Sheriff's Employees' Benefit Association proudly representing 4,000+ public safety officers in San Bernardino County since 1946 Follow Show Host Lolita Harper: Instagram LinkedIn

In this special episode to mark World Parkinson's Day, we focus on something every person with Parkinson's can do to help in the quest to find new treatments and ultimately a cure. One of the biggest obstacles facing research is finding enough volunteers representing as diverse a population as possible, to help with studies and trials.  We also hear first hand, the emotional story of how a patient participation role has led to a new treatment that is transforming the lives of people with Parkinson's.   Joining Dr Julie Jones and Helga Macfarlane in the studio are two people with vast but very different experience in the field of PPI: Claire Bale is Associate Director of Research and Involvement at Parkinson's UK,  and Sue Whipps, a long standing patient participant along with her husband John, who has Parkinson's.

As of February 2025, the Generation Study has recruited over 3,000 participants. In this episode of Behind the Genes, we explore what we have learnt so far from running the study and how it continues to evolve in response to emerging challenges. The conversation delves into key lessons from early recruitment, the challenges of ensuring diverse representation, and the ethical considerations surrounding the storage of genomic data. Our guests discuss how ongoing dialogue with communities is helping to refine recruitment strategies, improve equity in access, and enhance the diversity of genomic data.  Our host Vivienne Parry, Head of Public Engagement at Genomics England, is joined by Alice Tuff-Lacey, Program Director for the Generation Study; Dalia Kasperaviciute, Scientific Director for Human Genomics at Genomics England; and Kerry Leeson Bevers, CEO of Alström Syndrome UK. For more information on the study, visit the Generation Study website, or see below for some of our top blogs and podcasts on the topic: Podcast: What do parents want to know about the Generation Study? Podcast: How has design research shaped the Generation Study? Blog: What is the Generation Study? "We always have to remember, don't we, that if people say no to these things, it's not a failure to on our part, or a failure on their part. It's just something they've thought about and they don't want to do, and for all sorts of different reasons. And the other reflection I have about different communities is the ‘different' bit, is that what approach works for one community may not work for another, and I think that that's something that's going to have to evolve over length of the study, is finding the things that are the right way, the most helpful way to approach people." You can download the transcript, or read it below.   Vivienne: Hello and welcome to Behind the Genes.    Alice: “And this is quite an exciting shift in how we use whole genome sequencing, because what we are talking about is using it in a much more preventative way. Traditionally, where we've been using it is diagnostically where we know someone is sick and they've got symptoms of a rare condition, and we're looking to see what they might have. What we're actually talking about is screening babies from birth using their genome, to see if they are at risk of a particular condition, and what this means is this raising quite a lot of complex ethical, operational, and scientific and clinical questions.”    Vivienne: My name's Vivienne Parry, and I'm Head of Public Engagement here at Genomics England, and I'm your host on this episode of Behind the Genes.      Now, if you are a fan of this podcast, and of course you're a fan of this podcast, you may have already heard us talking about the Generation Study, the very exciting Genomics England research project which aims to screen 100,000 newborn babies for over 200 genetic conditions using whole genome sequencing.      Well, we've got more on the study for you now. What we're doing to make it both accessible and equitable for all parents-to-be, and our plans to ensure that we continue to listen to parents, and perhaps in future, the babies as they grow up. We'll chat, too, about emerging challenges and how we might deal with them.    I'm joined in our studio by Alice Tuff-Lacey, the Programme Director for the Generation Study, and Dalia Kasperaviciute, Scientific Director for Human Genomics, both from Genomics England, and we're delighted to welcome Kerry Leeson-Bevers, Chief Executive of Alström Syndrome UK. And I'm just going to quickly ask Kerry, just tell us about Alström Syndrome and how you're involved.    Kerry: Yes, so Alström Syndrome is an ultra-rare genetic condition. My son has the condition and that's how I got involved. So, the charity has been around now since 1998, so quite a well-established charity, but as part of our work we developed Breaking Down Barriers, which is a network of organisations working to improving engagement and involvement from diverse, marginalised and under-served communities as well.    Vivienne: And you wear another hat as well?  Kerry: I do. So, I'm also a member of the research team working on the process and impact evaluation for the Generation Study. So, I'm Chair of the Patient and Public Involvement and Engagement Advisory Group there.    Vivienne: Well, the multiply hatted Kerry, we're delighted to welcome you. Thank you so much for being with us.      So, first of all, let's just have a sense from Alice Tuff-Lacey about this project. In a nutshell, what's it all about, Alice?  Alice: Thanks Viv. So, I think in the last few years we've seen some really big advances in the diagnoses of rare diseases through things the Genomic Medicine Service. But we know it takes about 5 years often to diagnose most of these rare conditions. What we also know is that there are several hundred of them that are treatable, and actually there can be massive benefits to the child's health from diagnosing and treating them earlier. I think a really good example of this which is often talked about is spinal muscular atrophy, which is a particular condition where there is a genetic treatment available and there is a really big difference in families from those babies where the condition was identified later on, versus their brothers and sisters where they were identified early because they knew there was a sibling that had it and they were given that treatment.     What we think there is a huge potential opportunity to identify these children from their genome before they get ill, and this is quite an exciting shift in how we use whole genome sequencing, because what we are talking about is using it in a much more preventative way.  But this is a really different approach to how we've been using it so far, because traditionally where we have been using it is diagnostically where we know someone is sick and they've got symptoms of a rare condition and we are looking to see what they might have, what we are actually talking about is screening babies from birth using their genome to see if they are at risk of a particular condition. And what this means is, this raises quite a lot of complex ethical, operational and scientific and clinical questions.      So the aim of the Generation Study is really to understand if we can and should use whole genome sequencing in this way to screen for rare conditions in newborn babies. We've been funded by the Department of Health and Social Care to do this over the following years, and the way we'll be doing this is by a national study across a network of trusts in England where we are aiming to recruit about 100,000 babies and screen them for rare treatable conditions that we know present in childhood. And really the aim of this is to understand if this will work and how it will work, and to generate the evidence to allow the NHS and the National Screening Committee to decide if this could become a clinical service, and that's very much the primary goal of the study.      Beyond that, however, there are some other aims of the study, and we also consent mothers to ask permission to retain their genomic data and to link it to the baby's clinical data over their childhood, and we'll be providing access to this to researchers in the de-identified way in our trusted research environment. And this is to really understand if that data can also be used to further generate information around other discovery research, but also critically understand that the motivations for parents involved will be very different, and we need to think very carefully about how we engage and work with the parents of the babies going forward about how we use their data.    Vivienne: And the super exciting thing is we've started recruiting. How many mothers have we recruited?  Alice: So, we've recruited over 3,000 to date, and it's building every day and every week really. And it's really exciting because we see more and more trusts coming online and the study building and really starting to learn from the experience. And every week and every month, we're learning much more about how this process works, what the impact it's having, and kind of what we need to do over the coming few months and years to deliver it.    Vivienne: And we did a huge about of work at Genomics England before the study even started, to try and find out what people wanted. So, we found out, for instance, that people didn't want to know about late onset conditions, they did want to know about conditions where there was a treatment, and they wanted things that could be done for their babies in childhood. So, we had a really clear steer from the public about this project before we even started. So, how are we continuing to learn from the people who are involved in the study and the public? I mean Kerry, you've been involved in this aspect. We need to listen, don't we, to find out what's going on?    Kerry: We do, we do, and I think it's really encouraging to see the public dialogue and the amount of engagement work that was done there to kind of identify what some of those areas were, but it's really important that we don't stop that engagement there. It's really important to continue that, and I know that we've got quite a diverse group for our Patient and Public Involvement Advisory Group and the Evaluation Team, and one of the things they're really interested in is how we're going out there to speak with communities. You know, we can't just be reliant on the media, and press releases about the study. We need to actually go to communities and have these conversations so that people can have a conversation within an environment that they feel safe and confident with the people that they feel supported by as well.    So I think it's really key that we continue to ask those questions but also learning from the evaluation and, as we go through the process, of speaking to the patient organisations as well who support families that suffer from some conditions that we plan to identify through this study, and learn what some of their challenges are as well. You know, do they feel equipped to be able to support parents that are getting a diagnosis? As well as obviously their participants and the general public, to make sure that we're aware of attitudes and perceptions as the study goes along.    Vivienne: Because there's always a danger with this kind of study that it's people who are health literate who end up being involved. Whereas some of the people on whom the burden of rare disease is greatest may not either feel that they can access, or would want to access, this study. So, what are we doing there? How are we listening to people?  Kerry: When we are looking at recruitment as well, like you say, you know this is a research study and when we look at history and when we look at participants in research studies, we very rarely do you get a diverse representation of people in these types of studies. So, it's really important that those extra efforts are made really in terms of recruitment to get the right sample of people involved. And I know at Genomics England, that they have invested their time and money in terms of interpreters and translating materials and things, but actually it's the sites and recruiting people that need to be well resourced in order to use recruitment strategies, because if we're just looking at posters in waiting rooms, for instance, you're going to get a particular demographic of people that will respond to those kind of posters, such as people who don't speak English as a first language, it would be really difficult sometimes to read those kinds of posters and then to ask questions about that.     We need skilled people within sites that are recruiting who have got cultural competence who can have those conversations, address some of those areas, some of those concerns so that we can get that diverse representation.    Vivienne: So, there's a whole piece about equity of access for everybody and Dalia, perhaps you can explain why this is so important, scientifically as well as ethically? There's another piece about making sure that we get a full diversity represented.    Dalia: We know that some of the conditions are more common in certain populations or certain communities. We also know that some of the conditions are caused by certain variants in one population but not in the others. And these genetic causes even of the same condition can vary between different communities and different genetic ancestors.  On the other hand, our knowledge about the conditions and the genes, and the variants which cause them, come a lot from what we've seen before. Where we've seen those variants in the patients with the disease, and importantly where we've seen those variants in control populations where these individuals which don't have conditions.      Therefore, if we lack the diversity in our datasets, we would not know about all the diverse reasons of why conditions can be caused, or how it progresses, or what it might mean for individuals. And we would not be able to have equitable testing, or we wouldn't know whether the test works for everyone. If that happened, we might be in the territory where we can't detect or don't detect as well all the conditions across different individuals. But also, we may be having more false positive results and create more anxiety for families as well as burden for healthcare system.    Vivienne: So, are you saying, Dalia, that actually sometimes we might get a false positive, or indeed a false negative, simply because in that person, the condition which we think is usually caused by a particular change, they've got a slightly different change and so therefore we're not picking it up.  Dalia: Indeed, but it's one of the possibilities. If, let's say, all our knowledge about certain genes came from a limited number of individuals, seeing a new variant in another individual might seem that it's something really rare and never seen before and it's potentially changes how the gene functions, we would say; “oh that's maybe something which causes the disease,” when actually it can be that it is a benign variant, just a normal variation which is very common in another part of the world, it's just that we don't have enough data to know about it. So, we need to be aware of those risks and take it into account when we interpret the variants.      And, we also need to be transparent when operating in the environment. There was historical and investment in the diversity in research and our data sets still are not as diverse as we would like to be. It's shifting, the balance is definitely shifting in the last few years. A lot of effort is being done but the only way to shift the balance forever and make that genomic medicine work for everyone is to really actively engage those individuals and involve them in the research, and taking all the effort that Kerry was talking about.    Advert: The Genomics England Research Summit is fast approaching and registration is now open! Join us for this one day in-person event on Tuesday 17 June 2025. This year's agenda dives into rare condition diagnosis, cancer genomics, pharmacogenomics, therapeutic trials, and the impact of emerging technologies. Hear from leading experts and inspirational speakers as we explore the present and future of genomics and the latest research and technology from the Genomics England research community. Keep an eye on the website, genomicsresearchsummit.co.uk for all the details and to secure your spot. Spaces are limited, so don't miss out. We'll see you at the summit!  Vivienne: Alice, that goes back to this thing about holding the genomic data, because you need to hold the genomic data because the thing about genomics as always, you need to know what happens next. So, for instance, if somebody had a negative result and then later developed a condition, you need to be able to go back that data in order to find out what the problem was.  Kerry: That's right. You know, as Dalia talked about, we know that there is a risk within the study and we try and be clear about that in our participant information that there are some babies where they may have a genetic condition that we will need not find it, and others where we might find something that doesn't go on to be the actual condition. And we need to kind of monitor those in different ways.      So in particular in the cases where, if we've returned a result where we don't think we suspect a condition and a baby goes on to develop a condition, it's quite complex how we monitor that, and we're trying to go for a multi-track approach, and I think a lot of the benefits is some of the infrastructure that Genomic England already has that we can utilise.  So, some of the foundational things we've put into the study to help support the approach are things like the ability to contact parents regularly so we can actually work with them to find out over time if their babies develop conditions.    As you say, ability and consent to access the clinical data about the baby so that we can then access national data sets, and then we can then potentially monitor to see if babies seem to be showing signs of developing a condition. And also, really continuing to work with a network of clinical specialists where we've work quite hard over the last couple of years to build that kind of network and engage with them about the study, because they'll be the ones who the babies will come to if they develop those conditions. So, they are a really good route to us finding out, whether or not there are babies who have been part of the study who then go on to develop a condition.     And I think the reality is that this is a really complex process and it's something that even traditional screening programmes really struggle with, and that's why this multi-pronged approach is really important, and why also we see that this approach will evolve over time, and at the moment, the important thing is we've worked hard to put the right foundations in to allow us to do this type of monitoring, and to really evolve that approach as things develop and as more things come along potentially where we can invest in.    Vivienne: So, it's interesting, isn't it, because I guess that some parents would think that if you get a false positive or false negative, that it means that the test is at fault. And actually the accuracy of the test is good, but what we may have an issue with is that there is something else causing the problem that we don't yet know about. So, a big part of this project is giving much, much more information about the causes of conditions.    Alice: Yes, and I think that's also why the discovery research aspect is really important, the fact that we consent for that ability to hold the baby's data. So not only will we want to use it for the evaluation, but as I mentioned at the beginning, we have asked for parents to be able to allow us to link it to clinical data which then allows us to track over time and find out more information, because it's always the quality of the information we know that will help us in the future to identify these conditions, so the more we can generate potential information, you know, the more we will learn as a society.    And so it's actually quite an altruistic thing we're asking of parents, and that's something we recognise and that's why it's also important we think about, how we continue to engage with the parents and the baby over their lifetime to remind them that we're holding this data, but also to understand what their concerns and feelings are about us holding that data and how we're using it for that broader research.  Vivienne: And that's very much what you're involved in, isn't it Kerry?  Kerry: Yes, and I think sometimes in some ways that may offer some reassurance to parents as well, to know that's there as a reference point if things do develop over time, but I know that one of the things we're looking at as part of the evaluation, and the PPI Group we're involved in, is looking at the experiences of patients through this journey because actually it will create quite a lot of uncertainty.      As a parent of a child with a genetic condition, that uncertainty really is one of the hardest things to learn to live with. So at that early stage, one of the things we're looking at is that experience, how much support people have received, whether that has an impact on the parent and their child and their on bonding and their experiences and things like that, and I think it is important that we do that, but I think also having those references, where you're able to go back and ask those questions, that's really important that the support is in place, and that pathway really for parents to know where to go to. Because sometimes, although we may arrange to have calls at regular intervals and things, sometimes the questions of parents don't necessarily come at the time when they are having a telephone call. They come really late at night when there's nobody to pick up the phone, so having as much information as we can available, and those support structures in place, is really key.    Vivienne: We all start off these projects thinking that they are going to go in a particular way, but actually there's a lot of flexibility in this study, isn't there, Alice?  For instance, we will be looking at all those false positives, false negatives because we need to learn from that. We will be, perhaps, changing our approach as we go on if there is something that isn't working out. Is that what we're doing?  Alice: Yes, I think what we have recognise is it is a study and therefore that involves learning by it's very nature, and that's why partly we're working with external evaluation partners that Kerry's involved with, but also why we invest in a lot of things internally. Like we do a lot of user research with our midwives and our participants, and also potential participants. Because, actually we don't know the answer to this. No one's done this before, and so this is about all of us really learning, and learning in the right way and continuing to do that throughout the study, but also more importantly capturing that information and making sure that at the end of it, we then have some understanding of if we were to see that it's right to deliver this as a clinical service, what that might actually involve.      But also, even if we get to that point, I think beyond that we will still continue to learn over time and that's again why that long enduring consent is quite important, because we can then continue to maintain that long term evaluation and continue to maintain that long term potential to help further further research. And so that's the thing where actually we'll be learning for the next 10-15 years, really what the Generational Study has learnt, and actually what we have achieved through it.  Vivienne: I just want to move back to something that you mentioned, Kerry, about conditions that we're looking for, and there were a lot of very specific things. I've said that what parents wanted, but there's also some scientific things, and Dalia might want to come in here, that these are conditions that we pretty sure that if you've got the particular genetic change, that you will get the condition – something called penetrance. So, you know, we're not leaving people with a lot of uncertainty. But, how will we go about assessing new conditions as part of this study, or are we just on the ones that we're on at the moment?  Dalia: So, we started from the things we understand the best and we know how to detect them and we know how to confirm them because the tests that we are doing in Genomics England is a screening test, it will not be a definitive answer whether you have or you don't have a condition. Anyone which will get a positive result will be referred to an NHS specialist clinician for further assessment. And some of those positive results turn out not to have the conditions and some of them will have, and they will have their treatment pathways. So, we're started to very cautiously, and that's what came from public dialogue, everyone was saying that; “you need to be really cautious, we need to see that it works for the conditions that we understand well”.     But as a starting point, as we learn more, we're learning of how could we expand that list.  What would be acceptable for public. Maybe some conditions will have an experimental treatment, which currently would not be included in screening but as treatments evolve, at some stages maybe there will be opportunities to include some conditions in the future.      As our science evolves, we keep assessing the new conditions and seeing can we include them, would it be acceptable to parents, would it be acceptable to the healthcare system, and one of the things about screening it's really important not to cause harm. There are a lot of benefits in screening but if we didn't do it cautiously, it also has some risks, and we need to be very careful about it.    Vivienne: Now Kerry, there are lots of parent groups who will come along to us and say; “oh you must include this condition,” but perhaps there isn't yet a treatment, or there isn't a pathway in the NHS that will help people get what they need. And I guess if we try to include too many conditions, we would actually undermine trust.    Kerry: So, the patient organisation, our condition, Alström Syndrome, isn't included in the list. For our condition, there is no specific treatment although we do have a highly specialised service, and it is very important to get early diagnosis because children can develop heart failure and there are symptom-specific treatments available there. But I get the reasoning why there needs to be a specific treatment and the need to include just a smaller group at the beginning, but our hope as with I'm sure a lot of other patient organisations, is that our condition will be added at a later time if it is found that this is something that would be acceptable in routine care.    Advert: If you're enjoying what you've heard today and you'd like to hear some more great tales from the genomics coalface, why don't you join us on the Road to Genome podcast, where our host, Helen Bethell, chats to the professionals, experts and patients involved in genomics today. In our new series, Helen talks to a fantastic array of guests including the rapping consultant, clinical geneticist Professor Julian Barwell about Fragile X Syndrome, cancer genomics and the holistic approach to his practice. A genuine mic-drop of an interview. The Road to Genome is available wherever you get your podcasts.  Vivienne: Let me move on to another aspect of this study. These are babies, and we are holding their genomic information but at 16, they will be able to decide whether they want us to continue holding their genomic information. Alice, is that very much part of this programme to think about what we're going to say and how we're going to engage those 16-year-olds?  Alice: Yes, it very much is. What I always say, because I get asked this question a lot, is that I don't think we can pre-judge what that looks like. Because I look at my children, and certainly their lives are very different from my childhood, and I don't think we can imagine exactly what our babies will look in 16 years and what that world looks like. I think the important thing is many of things we are trying to do is that we lay the right foundations in place, and part of that is ensuring that we continue to think about how we engage with young people as the study evolves and over time, so that we understand what the world is looking like from their perspective.      But also, how do we equip the parents to talk about the fact that these babies are part of the study to them? What does that look like? How can we support them? And that's very much something we want to be looking at in the next year, really working with parents from the Generation Study to understand how best we can do that so that they can have some of that conversation for themselves as well. I think we can't pre-judge exactly how we need to talk about them and also not think it's just one thing. We need to evolve and work with the children as they grow up, and work with their parents to equip them because, as I said, we don't really know how they're going to access information in the future. You know certainly TikTok didn't exist when I was a child, and so that's what we've got to think about is what's the best avenues or forums to really engage properly with them as they grow.  Vivienne: Kerry, what other concerns to parents have that we're learning now?    Kerry: I think the concern is that when treatments are being developed, that they are not necessarily being developed for the whole population. They're often being developed for sub-sets of population because we don't have a complete dataset. And when you think about people being involved in research, people feel that they are being left behind because their data is not necessarily represented within there, it doesn't reflect their community, and it's not being discussed within communities, the different research opportunities and things have been available, I think it's the fact that we're not investing enough in community engagement and dialogue to explain more about genetics.   I think technology has advanced at pace. As a parent of a child with a genetic condition, that is very encouraging to see that, but I think sometimes the support and the information is not necessarily keeping up, so we're not having those open conversations really about genetics and genomics, and I think that's one of the things I hope that this study will really lead to, that it will now become much more part of everyday conversation.   Because often, when you have a child with a genetic condition, you first hear about a condition, the way you take in that information and ask questions is very different than having a conversation with the general public about genetics. When you're concerned that your child may have a condition or you may have a condition yourself, you're in a completely different mindset. So, the hope is that that dialogue will open so that people will be able to ask questions to learn more about the projects and things that are out there and available so that people are included and can take part in research if they want to. But it's important to remember that not everybody will want to. It's about being given informed choices and to do that we need to make sure that the support and the information is appropriate, inclusive and accessible.    Vivienne: We always have to remember, don't we, that if people say no to these things, it's not a failure to on our part, or a failure on their part. It's just something they've thought about and they don't want to do, and for all sorts of different reasons. And the other reflection I have about different communities is the ‘different' bit, is that what approach works for one community may not work for another, and I think that that's something that's going to have to evolve over length of the study, is finding the things that are the right way, the most helpful way to approach people.   Kerry: I completely agree. I think it's like you say, if people say no, that is completely their right to do so as long as they're saying no when they've been given the information to be able to really take that on board, think through, consider it and then make an informed decision. I think often people say no because they've not been given the right information to be able to understand what is expected, so they've not necessarily been given the opportunity. And I think we all want good outcomes for everybody. That doesn't mean delivering the services in the same way. Sometimes we need to deliver services in different ways because often services aren't very accessible for some communities to be able to access. So sometimes we need to make changes, adapt, to make sure that everybody has the same opportunities to the same outcomes.  Vivienne: We are constantly re-evaluating, rethinking, re-engaging to try and make it the best we can. Whether it's with different communities and different approaches. Whether it's with constantly assessing people who've had false positives, false negatives and finding out why that is the case. And in the future, I think this will have some really major effect.  Dalia, you're the scientist amongst us today. Tell us what you're hoping for from this study in science terms.  Dalia: So, first of all, we want to find the babies which we can treat before we develop symptoms, before we get ill, so that we can have more fulfilling lives. That's the bottom line. But we're doing that, we also will learn about the conditions. We'll learn a lot about the natural history of the conditions. What happens when you detect it before baby gets ill, then you start treatment, and how does it work in the diverse communities and diverse populations that we've talked about. Are there are any differences based on people's ancestry, but not just ancestry, about their lifestyle, about anything else which can affect how disease develops, or how the care or treatment goes.      So, that's kind of the bottom line. The top line and now our ultimate aim, probably many years from now, would be that we can detect variants of genes or conditions before they develop, and we can create treatments for them before our children get their conditions.  That's something that the science community is very excited about. I think we're quite a few years from that, but that's where we hope all this will be heading in the future.    Vivienne: It's really becoming a possibility, but the science is only the first part of it. It's the human interaction. It's the how it lands with people. It's how they feel about it. It's how they trust it. And these are all the things that we're really working on at Genomics England to make this study not just a scientific success, not just a success for the NHS, but also something that is really meaningful and important and valuable and trusted for people having babies. Would you agree?  Alice: Yes, 100%. I think, just to come in there, Viv, I think we've talked a bit about the importance of public trust and being the foundations of what we do, and I think that's something that Genomics England's always held true to itself, but I think for the purpose of the Generation Study, it's been one of kind of the foundational principles from the beginning, and I think Kerry and you have touched upon some really important themes today about how it's not a ‘one size fits all' approach. And I think very much that piece that we touched on a bit about, kind of, how do we make this accessible to everybody, we see it very much as not a ‘one size fits all', and so we've been trying lots of different things to really tackle that, and evolving the approaches which, as you said, that's where the flexibility comes in.      My hope for the next 12 months is that we can really, now that we've got the study up and running, work a lot with the some of the regional networks, the Genomic Medicine Service alliances who are working at the regional level, and the recruiting trusts, to really explore different approaches and work out how we can support them to engage with the communities in their areas, because they're the ones who will understand who they are, and our role is to really try and provide, as Kerry highlighted, the tools of support to allow them to do that, and to try and make sure that we can make this as equitable as possible in terms of people being able to at least understand the studies here, get the information in the appropriate way, and then as we have also talked about, making their own minds up about whether this is the right thing for them to be part of.    Vivienne: So, the final question for you all is if I'm a mother-to-be, where can I find out more information. Let's start with you, Kerry.  Kerry: Well, from the Generation Study website, there's information there. Midwives, GP practices, obviously they're often going to be your first port of call, so I'm hoping that they feel equipped to be able to answer those questions and to signpost people to one of the trusts that are involved.    Vivienne: And we've also got a Genomics 101 episode where we answer some of the frequently asked questions, and I think there are at least 2 or if not 3 separate episodes from Behind the Genes, which people can look for which look at different aspects of the project. Anything else, Alice, that we need to know?  Alice: So, Kerry highlighted it, the Generation Study website is a really good starting point, but that's a good place to also find out what trusts are involved because it's also important to know that this is not available in all trusts in England at the moment. We have a network and it's growing, and it is all around England, but the first place to start is, kind of, is it in your local trust?  And then from there, it's then engaging with your trust and hospitals where there will be information, and the midwives are prepared to kind of talk to people.  So those are, kind of, the good first places to start.    Vivienne: Well, we're going to wrap up there. It's been so good talking to you all. So, thank you to our guests Alice Tuff-Lacey, Kerry Leeson-Bevers, and Dalia Kasperaviciute for joining me as we talked through how the Generation Study is continuing to evolve as it responds to emerging challenges. Now, if you would like to hear more about this, then please subscribe to Behind the Genes on your favourite podcast app and, of course, we hope that you would like to rate this.  Because, if you rate it, it allows more people to see it and more people to get enthused about Behind the Genes, which we love. It's available through your normal podcast apps. I've been your host, Vivienne Parry. The podcast was edited by Bill Griffin at Ventoux Digital, and produced by Naimah Callachand at Genomics England. Thank you so much for listening. Bye for now.  

In this installment of Anglers Unite, I'm thrilled to have Dr. Tracy Fanara— an environmental engineer and water quality expert, join us. We dive deep into water quality issues in Florida, covering everything from pharmaceutical contaminants to the infamous Red Tide. Dr. Tracy shares her insights on sustainable land management, wastewater treatment challenges, and innovative mitigation strategies. We also touch on the interconnectedness of ecosystems and the surprising impacts of events like Saharan dust. Whether you're an angler, boater, or just passionate about clean water, this discussion is packed with valuable information. Don't miss out on learning how we can collectively make a difference! 00:00 Introduction to the Podcast and Guest 00:11 Understanding Water Quality Issues 00:42 Dr. Tracy Fanara's Background and Expertise 02:06 Low Impact Development Techniques 05:21 Challenges in Urban Water Management 11:43 Saharan Dust and Its Impact 16:49 Red Tide: Causes and Effects 25:15 Mitigation Strategies for Red Tide 36:15 Advancements in Environmental Modeling 38:52 Improving Hurricane Surge Models 39:29 Understanding Watershed and Flooding 40:21 Visualization Tools for Better Storm Preparation 41:18 Public Involvement in Environmental Data Collection 42:11 The Role of Anglers in Environmental Monitoring 44:15 Anecdotal Information vs. Scientific Data 45:30 Beach Conditions Reporting System 46:40 Shark Behavior and Environmental Changes 57:09 Pharmaceuticals and Chemicals in Marine Life 01:00:51 Water Treatment and Conservation 01:08:57 Optimism for Florida's Environmental Future 01:12:11 Fishing and Conservation Efforts 01:15:44 Conclusion and Future Prospects Thanks to Burnewiin for sponsoring Anglers Unite! Check out there awesome selection of products here https://bit.ly/3B6CX1L

In this compelling episode, Mohua engages in a heartfelt conversation with Gaurab Sen, a dedicated advocate for leprosy awareness and the CEO of Sasakawa-India Leprosy Foundation (SILF). Gaurab shares his inspiring two-decade-long journey in the development sector, his motivation to tackle the stigma surrounding leprosy, and the systemic challenges faced by marginalized communities. From SILF's innovative educational initiatives to empowering leprosy colonies through decentralization and livelihood programs, Gaurab highlights the critical importance of advocacy and awareness. He also delves into how SILF adapted during the COVID-19 pandemic and continues to expand its outreach across India. This episode sheds light on a largely untold story of resilience, inclusion, and hope.Connect with UsMohua Chinappa: https://www.linkedin.com/in/mohua-chinappa/The Mohua Show: https://www.themohuashow.com/Connect with SILFSasakawa-India: https://silf.in/contact/Sasakawa-India: https://www.instagram.com/silfindia/Follow UsInstagram:https://www.instagram.com/litlounge_pod/ YouTube: https://www.youtube.com/@TheMohuaShowLinkedIn: https://www.linkedin.com/company/themohuashow/Facebook: https://www.facebook.com/themohuashowInstagram: https://www.instagram.com/themohuashow/For any other queries EMAILhello@themohuashow.comChapters:00:00 - Highlights00:58 - Introduction to Gaurab Sen and SILF02:02 - The Journey into Leprosy Advocacy07:54 - Impact of COVID-19 on SILF's Operations09:55 - Decentralization and Expansion of SILF12:58 - Educational Initiatives for Affected Children15:55 - Understanding Leprosy Colonies18:22 - Demystifying Leprosy and Public Perception20:05 - Success Stories and Community Impact22:07 - Public Involvement in Ending Leprosy Stigma24:04 - Final Thoughts on Leprosy AwarenessDisclaimerThe views expressed by our guests are their own. We do not endorse and are not responsible for any views expressed by our guests on our podcast and its associated platforms.#TheMohuaShow #MohuaChinappa #Leprosy #SILF #Gaurab Sen #Social change #COVID-19 #Education #Community #Public awareness  #Podcast #PodcastEpisode Thanks for Listening!

It's been a few months since Lisa Davis took over at the Austin Police Department, and she's already made some big tweaks. But what else does she have planned for revamping APD's approach to transparency and community policing? And how will she repair the tenuous relationship with Austin's City Council and City Manager? Host Nikki DaVaughn asks her about it all, in an interview at APD headquarters. This episode originally aired on November 21.  Learn more about the sponsor of this January 15th episode: The Holdsworth Center Want some more Austin news? Then make sure to sign up for our Hey Austin newsletter.  Follow us @citycastaustin You can also text us or leave a voicemail.  Interested in advertising with City Cast? Find more info HERE

About RickDr. J. Richard "Rick" Kiper is a seasoned professional with a diverse background in education and law enforcement. After earning his degree in 1992, he taught high school physics and science research before serving as a Special Agent in the FBI for 20 years. His extensive experience includes investigating white-collar and organized crime, administering a Confidential Human Source program, and developing cybersecurity curricula. A retired FBI agent, he now consults in cybersecurity and digital forensics while completing his manuscript for "Education is Salesmanship." He is dedicated to enhancing education through practical insights and mentorship.Recording Date: November 7th, 2024WATCH Rick's Congressional Testimony HERE- Go to time 36:15 Rick's LinksLinkedInClayton's LinksTikTok | Instagram | Twitter (X) | YouTubeBook: travelingtoconsciousness.com/rstj-got-volume-1999 Meditation Challenge: https://999meditation.travelingtoconsciousness.com/Timecodes00:00 - Intro02:22 - Whistleblowing at the FBI06:07 - The Impact of Whistleblower Protection Laws08:17 - Details of the Whistleblower Experience12:34 - Government Waste and Inefficiency18:34 - Challenges in FBI Leadership and Culture26:28 - Exploring Spirituality in Law Enforcement27:08 - The Promotion Process and Its Impact on Families28:35 - Leadership Challenges and Personal Sacrifices30:00 - Accountability and Integrity in the FBI32:53 - The Need for Transparency and Consequences33:53 - Whistleblowing and the Fight for Justice37:46 - The Role of Media and Public Discourse39:48 - Fear and Consequences of Speaking Out41:16 - Diversity and Inclusion: A Double-Edged Sword45:16 - Reforming Large Organizations: A Path Forward49:06 - Leadership Recommendations for the Future51:52 - Weaponization of Government and Its Implications53:58 - The Spiritual Crisis Within Law Enforcement58:02 - Intimidation Tactics and Public Perception01:00:49 - Whistleblowing and Accountability in Law Enforcement01:01:42 - Integrity and Moral Compass in Law Enforcement01:06:21 - Advice for Current Agents Facing Ethical Dilemmas01:09:43 - The Importance of Evidence Integrity01:12:49 - Revelations in the NXIVM Case01:25:19 - Public Involvement and Awareness in Justice ReformIntro/Outro Music Producer: Don KinIG: https://www.instagram.com/donkinmusic/Spotify: https://open.spSend Clayton a text message!Support the showClayton's Campaign: Clayton24.comFREE 999 Meditation Challenge: Sign Up Here

This episode is the fifth in our “People First” series with guest host Marie Kopka. During this series, Inside the Castle will be celebrating unity, empowerment and the Corps great asset, our people! Listen in as Inside the Castle learns about the Public Involvement Specialist role within USACE with Dr. Akilah Martin (Chicago District) and Alex Smith (Mobile District).

Bill King, the President and CEO of the Downtown Raleigh Alliance joins us to discuss the vitality of downtown Raleigh, including economic development, safety measures, and promotional events. King discusses the role of the DRA, their funding sources, and the challenges faced, such as accommodating office workers post-pandemic and promoting new businesses. A significant topic covered is the proposed relocation of the Red Hat Amphitheater due to the expansion of the Raleigh Convention Center. King emphasizes the economic impact of the amphitheater and the importance of timely actions to avoid losing a season of shows. We touch on the broader vision for downtown Raleigh, including improved public transportation, safety, and potential major league sports developments. 00:00 Introduction to the NCF&B Podcast 00:46 Meet Bill King: President and CEO of Downtown Raleigh Alliance 01:24 Bill King's Background and Experience 02:35 The Role and Mission of the Downtown Raleigh Alliance 04:40 Challenges and Initiatives in Downtown Raleigh 11:18 The Impact of the Pandemic on Downtown Raleigh 17:11 Safety and Transportation in Downtown Raleigh 25:52 Future Developments: Red Hat Amphitheater and Convention Center Expansion 27:24 Amphitheater Relocation and Controversy 27:55 Economic Impact of the Amphitheater 28:48 Community Concerns and Connectivity Issues 29:41 City's Plan to Address Connectivity 30:17 Urgency and Timeline for Construction 31:58 Public Involvement and Hearings 32:55 Impact on Local Businesses 35:08 Future of Raleigh's Entertainment Venues 43:56 Potential for Major League Sports in Raleigh 52:40 Call to Action for Community Support WATCH THE SHOW HERE On the mic this week: @trujillo.media @weisswine Join our Facebook family: @NCFandBPod Follow us on Instagram: @ncfbpod

Dr Sarah Griffiths, narrating her blog written for the Dementia Researcher website. Discover how people with dementia play a crucial role in guiding the ethical review process in research. Sarah Griffiths from University College London shares her insights and experiences in involving patients and carers through Patient and Public Involvement and Engagement (PPIE). Learn how this collaborative approach leads to successful NHS ethics applications and ensures inclusive, accessible research practices. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-ethical-review-process-guided-by-people-with-dementia/ #DementiaResearch #Ethics #ResearchEhtics #EthicalReview -- Dr Sarah Griffiths has a background in speech and language therapy and has been involved in aphasia research. For 14 years she was a senior lecturer on a BSc Speech and Language Therapy course at Plymouth Marjon University. Now Sarah is is a Senior Research Fellow in the Centre for Ageing Population Studies, Research Department of Primary Care and Population Health at University College London. -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher

Helen and Danni are using their experiences to help improve womb cancer research. Helen and Danni are both volunteers for the Peaches Womb Cancer Trust Patient Voices group. Sarah, Helen and Danni talk about How the group grew from one voice to Patient Voices The difference they have made to research especially around language and ethics Why contributing to research can help bring meaning and comfort following a cancer diagnosis What research teams could be doing to work more effectively with patients   Find out more Read the full show notes on the podcast website  Connect with Helen via LinkedIn or email Find out about Peaches Trust and Peaches Trust Patient Voices   Contribute to the 50th Episode by 30 July 2024 Leave a voice message via SpeakPipe   About Research Adjacent Follow the podcast on LinkedIn and Instagram Sign up to the podcast newsletter Email Sarah a comment, question or suggestion Leave Sarah a voice message   Theme music by Lemon Music Studios from Pixabay

Can we innovate co-production?"Co-production can be a live thing that happens every day in your organisation. Every time you're engaging with a carer, there's an opportunity to learn something new."Listen in to our Co-Production Special of the Carer Catalysts podcast - an episode recorded live with a brilliant panel of guests:

Welp, it's a wrap folks! Welcome to the last episode of Season 2 of asPERusual and onePERspective. In this feature segment of asPERusual, guest listener and patient partner Kathy Smith offers a short recap and her key takeaways from last week's episode of asPERusual focused on SPOR CHILD-BRIGHT. Tune in to this short (~10 minute) episode, regardless of whether you want to compare reflections or get the Coles notes of the full SPOR CHILD-Bright episode and learn more about engaging children, youth, and families in research.Episode Transcript:Hi everyone! Welcome back to onePERspective, a tri-weekly segment in which patient partner Kathy Smith shares a synopsis and key reflections from the previous week's episode of asPERusual – a podcast for practical patient engagement. My name is Anna Chudyk, and I am asPERusual's host. This is officially the last episode of season 2 of asPERusual, and onePERspective, by association. But have no fear, I'm already booking tapings for next season, so we definitely do plan to be back sometime in the fall again.On this episode of onePERspective, Kathy is recapping our previous episode that featured Carrie Costello, Annette Majnemer and Gillian Backlin from the Strategy for Patient-Oriented Research (or SPOR for Short) CHILD-BRIGHT Network. The network is funded by the Canadian Institutes of Health Research – Canada's national health research funder – with the aim of making the future brighter for children with brain-based developmental disabilities and their families through patient engagement (also referred to as patient and public involvement) and patient-oriented research. If you're unfamiliar with the concepts, patient engagement actively and meaningfully involves patients and caregivers as members of research teams, while patient-oriented research incorporates patient engagement into research that focuses on patient-identified priorities and outcomes. Now that we're all hopefully on the same page, I'll hand it over to you Kathy for your onePERspective! Kathy Smith:All of the patient engagement entities funded by Canadian Institutes of Health Research (CIHR) under Canada's Strategy for Patient-Oriented Research (SPOR) have given us insightful and unique models for patient and public involvement. CHILD-BRIGHT is a national network made up of a team 15 funders, 500 researchers, as well as clinicians, policy-makers, parents. What stands out though is the inclusion of young partners with lived, or living, experience (PWLEs). CHILD-BRIGHT authentically integrates children as active team members in all research projects and advisory activities. They are all focused on making brighter futures for children and youth with brain-based developmental disabilities. Hearing Carrie, Annette and Gillian describe the depth and breadth of engagement of their youth sector was something new that piqued my interest. “Nothing abut me without me” is really in play. We listeners learned about special considerations related to authentically engaging younger people and their families. We were given how-to methods we could now incorporate within our own engagement communities. As well, Carrie, Annette and Gillian provided examples of where the PWLE voices powered moving research into improved practice and policies for all children living with brain-based developmental challenges.For proof of concept, Id like to share a couple of my own personal affirmations of the power of the voices of children with lived experience can contribute. At our regional hospital, a very young child had endured repeated surgeries. Finally, he asked if he could be taken into surgery in a wagon, instead of the big scary gurney. Now, all children at our regional hospital enjoy that wagon ride into surgery. A child engineered this patient-centric improvement in care! A powerful example of “for patients by patients” done by a young PWLE! I'll share a more personal example convincing me of the power of youth voices sharing their lived experiences to improve patient care. Bloodwork is frequent when you are undergoing chemotherapy. Veins are exquisitely tenders making the draws quite painful. A 7-year old lad in an adjoining cubicle was to receive his bloodwork. He had his arms folded. He refused to unfold them because he saw the technician was not going to use the special equipment for sensitive veins. He stood firm repeating; “I will not unfold my arms until you bring in the “butterfly” – a much smaller, gentler apparatus for blood draws. Asserting his lived experience knowledge and insisting on more responsive patient-centric care, he helped me dealing with my own sore veins and dread of the draw. I asked for, and got, the butterfly too! And that made all the difference. I was so impressed by, and eternally grateful for, that young lad for voicing his concerns and correcting a gap in patient care.CHILD BRIGHT examines many gaps in (1) early identification; (2) innovative technologies and (3) rehabilitation with input from the entire team. Parents like Carrie, and patients like Gillian, are co-investigators on research projects surrounding their three themes that were developed in partnership with parents and youth: projects that optimize developmental outcomes; projects that integrate mental health support into care for patients and their families; and projects that redesign health care services to be more responsive to family needs.Now entering CHILD-BRIGHT's second phase, the focus will shift to implementing the knowledge gleaned during the past six years in Phase One. I'd like to learn more about their individualized knowledge translation hubs targeted either for clinicians, for parents, or for policymakers always ensuring the concepts equity, diversity, inclusion, decolonization and Indigenisation are integrated into the hubs and in all the research activities they undertake.As for patient involvement, Carrie describes her role as the “connector” between the Steering Committee, the other Patient Liaisons and the public at large. Similarly, I've referred to my PPI (Patient and Public Involvement) role as that of a bi-directional “honey bee”. Happy to see how their use of an expert to help them deliberately recruit new members thru targeted social media sites really paid off. And using their “matching tool” then fits the right Patient Liaison to the right project based on the specific information PWLE's are asked to supply in their onsite application.Gillian describes her role on the Youth Advocacy Council as that of a consultant – or collaborator - providing the voice lived experience on all committees and working groups or advising researchers. Really great to hear Gillian tell us how much her Youth group has grown and how they now have incorporated Liaison Partners from 13 First Nation groups. CHILD-BRIGHT's uniqueness centres on in its focus on youth and the extent of its inclusion of youths with lived experience in all aspects of engagement in research. And CHILD-BRIGHT shares the common struggles of other patient engagement in research (PER) entities surrounding recognition, remuneration and evaluation of success. It is likely even more challenging dealing with special issues working with youth as well as working with adults. Their heart is in the right place. They are united in purpose and their focus is on an underserved group: children and youth with brain-based developmental disabilities. I am grateful this podcast enlightened me about CHILD-BRIGHT. Thank you Anna, Annette, Carrie and Gillian!PERsonally Speaking1, Really appreciated learning about a patient engagement group of children and youth and their families. Really impressed at the depth and breadth of youth participation – even as co-authors of research!2. Again, we encounter the common theme of the importance of authentic bi-directional relationship building and the patience of time and whole lota money needed to build a successful and meaningful collaboration between patients and practitioners and policymakers.3. And again we see a PER group still working out the fine details surrounding recognition, remuneration and evaluation of engagement.Points to PonderFinal words to close out season 2. Each specific engagement entity will always have their own special priorities to deal with in their own special way, But all sites have common features of PER that I hope we can amalgamate into one, standard pan-Canadian PER agency. This common entity would have a repository matching a researcher request with best-fit, vetted PWLEs. And it would include dedicated PER Navigators to handle the administrative tasks for both the PWLE's and the researchers.Wishing you all a happy, safe and healthy, fun-filled summer!Anna:Thanks so much Kathy. I can't thank you enough for all of the time and energy you have poured into onePERspective and the wonderful insights that you have brought to all of us. Thank you to all of our listeners; to those of you who have helped spread the word about the podcast and sent me supportive emails; to our guests who have shared their time, experiences, and wisdom; to Bryn Robinson and Roger Stoddard who were my original cohosts and helped make this podcast a reality; and to Bre Kelly and Sasha Kullman who have been huge helps behind the scenes. Lastly I would also like to thank my mentor Annette Schultz and the CIHR POR Awards - Transition to Leadership Stream Phase 1 and 2 awards for their support in helping me establish my patient-oriented research program, which led to this podcast.I hope you all have a great summer and I look forward to coming back with Season 3 sometime in the fall. If you haven't done so already, I encourage you to subscribe to our podcast's newsletter by visiting asperusual.substack.com so that you are kept up to date with podcast updates, or to add me to LinkedIn or X by searching Anna M. Chudyk on your web browser as I also post notifications there. If you have any ideas on how we can make asPERusual even better next season, be sure to send me an email at anna.asperusual@gmail.com. Big hugs to you all and until next time, let's keep working together to make patient engagement in research the standard or As PER Usual. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit asperusual.substack.com

This conversation gets our coverage of the Evidence Based Perioperative Medicine, World Congress, (EBPOM) 2024 off to a great start. Shared decision making is a topic which cuts right to the centre of perioperative medicine with a focus upon patients and patient perspectives. Presented by Andy Cumpstey with his guests, Bob Evans, a retired Chartered Town Planner and local authority director, a board member of the Centre for Perioperative Care (CPOC), founder member of the Patient, Carer and Public Involvement and Engagement (PCPIE) group, Debra Leung, staff specialist anesthetist at the Peter MacCallum Cancer Centre, Melbourne, Australia and Alf Collins, Freelance health consultant, communication skills trainer and former National Clinical Director of Personalized Care and Shared Decision Making for NHS England.

In this podcast episode hosted by Noreen Turley, Anne Lawlor, Chairperson of the HSE's Patient Forum and founder of the 22q Charity Ireland, and Joe Ryan, HSE National Director of Public Involvement, Culture, and Risk Management, discuss the critical theme of patient partnership in the HSE. They highlight the importance of genuine patient involvement at every level of healthcare, to increasingly ensure that patient experiences and voices shape the design, implementation, and evaluation of future healthcare services.   Joe emphasises how working in partnership with patients and service users (and their families, carers and supporters) will be a cornerstone of how we work across our health system. This requires a cultural shift but offers numerous opportunities. He explains how the HSE is committed to partnering with patients and how the Better Together framework aims to foster effective patient-professional partnerships.   Anne highlights how patient partnership can empower individuals and foster a sense of community, benefiting both patients and healthcare professionals. She reflects on the upcoming Patient Partnership Conference, emphasising the importance of balanced representation from patients and healthcare professionals. The conference aims to foster open conversation and learning from patient experiences, creating a space for genuine interaction and shared learning.   Anne invites the public to join this journey towards a more inclusive healthcare system.   To find out more and register for the HSE Patient and Public Partnership Conference, "Changing Patient Outcomes: One Partnership at a Time," held on Tuesday, 24th September at Dublin Castle, visit https://www.hsepatientconference.ie/   Produced by GKMedia.ie

Welcome to another episode of the Connecting Citizens to Science podcast, where we explore the dynamic role of public involvement in advancing health research. In this episode, hosted by Dr. Kim Ozano, we delve into the impactful world of Patient and Public Involvement (PPI) with insights from the PPI Summer School at the University of Limerick.Episode Guests:Dr. Jon Salsberg - Senior Lecturer in Primary Healthcare Research, University of Limerick A dedicated public health researcher, Dr. Salsberg has an academic background in health promotion and development anthropology. His research primarily explores the dynamics of research partnerships and the transition of research leadership from academic institutions to community stakeholders.Over his career, Dr. Salsberg has been involved in collaborative research with a diverse array of stakeholders, including patients, health practitioners, community organisations, policymakers, and health service decision-makers. His extensive work with indigenous communities includes his significant involvement in the Kahnawake Schools Diabetes Prevention Project, which is detailed here. In this episode, Jon discusses the evolution and impact of the PPI IGNITE Network.Lora Ruth Wogu - Founder and CEO of Sickle Cell and Thalassemia Ireland Lora Ruth Wogu is an Allied Health Professional and a passionate advocate for diversity, equity, and inclusion in healthcare, focusing on quality patient care for migrants and individuals with disabilities. As the founder and CEO of Sickle Cell and Thalassemia Ireland, she champions initiatives to educate and improve care for those affected by these conditions. Lora also leads the Migrant Health Alliance, aiming to enhance research participation and address barriers faced by migrant communities in healthcare settings. Her work is driven by a commitment to ensuring compassionate, competent, and inclusive healthcare for all, making her a respected voice in health advocacy and policy discussions.Lora shares her experiences with engaging migrant communities in health research.Alison Johnson - keynote speaker PPI Summer School 2023 Alison is a passionate advocate for patient, public, and carer involvement in healthcare, focusing on serious medical conditions. Her work in PPI began as a research participant, evolving into roles as a collaborator, where she champions the inclusion of patient and carer voices in health research. A lifelong learner, Alison's voluntary efforts extend to mentoring researchers and advising on best practices for effective patient engagement. In This Episode:Introduction to PPI and its SignificanceDr. Kim Ozano introduces the concept of patient and public involvement and its critical role in shaping health research.Deep Dive with Dr. Jon SalsbergLearn about the establishment and achievements of the PPI IGNITE Network, its goals for institutional change, and how it's transforming health research culture in Ireland.Community Engagement Insights from Lora Ruth WoguDiscussion on the challenges and strategies for involving diverse communities, especially migrants, in health research to ensure their voices are heard and represented.Experiences from the Field with Alison JohnsonAlison shares her personal experiences and the importance of having meaningful contributions from public collaborators in research projects.Email us at hello@thesclagency.co.uk for more information or to share your thoughts.Subscribe and Follow Us:Don't forget to subscribe to our podcast on platforms like Spotify, Apple Podcasts, and Google Podcasts. Rate us and leave a review to help us reach more listeners.Follow...

Dr Kamar Ameen-Ali narrates her blog written for Dementia Researcher. Kamar helps us discover how Patient and Public Involvement (PPI) can revolutionise laboratory research, leading to breakthroughs that resonate more deeply with the needs of society. Engage in this critical dialogue to elevate the quality and impact of scientific discovery. #PPI #ResearchWithImpact Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-how-to-implement-patient-public-involvement-as-a-lab-scientist/ -- Dr Kamar Ameen-Ali is a Lecturer in Biomedical Science at Teesside University & Affiliate Researcher at Glasgow University. In addition to teaching, Kamar is exploring how neuroinflammation following traumatic brain injury contributes to the progression of neurodegenerative diseases that lead to dementia. Having first pursued a career as an NHS Psychologist, Kamar went back to University in Durham to look at rodent behavioural tasks to completed her PhD, and then worked as a regional Programme Manager for NC3Rs. -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher

In this episode of Precision Neuroscience Reimagined, Tina is joined by Simon Pillinger, Head of Information Governance, Ethics and Patient and Public Involvement at Akrivia Health. Together, they revisit the topic of Information Governance, diving deeper into what's happening in the world right now, best practices and anonymisation. Simon offers invaluable guidance for navigating the complex terrain of data governance in healthcare. - - - - - Produced by Clarity Podcasts: https://claritypodcasts.co.uk/ - - - - -

Today, we delve into the complex relationship between renewable energy development and biodiversity conservation. Gillian speaks with Mike Webb from the Gwent Wildlife Trust, exploring the nuanced challenges that solar power station developments pose to biodiversity-rich habitats in South Wales and beyond. While recognising the crucial shift towards green energy, our discussion uncovers the need for strategic, sustainable planning to ensure that this transition supports both progress and nature preservation. Importantly, we also learn the importance of soldiering on to win the war even if you lose the battle. Key Takeaways: Journey to Environmental Advocacy: Mike Webb shares insights into his early life, university years, and the journey that led him to advocate for nature and politics. The Gwent Levels - A Case Study: Examination of the Gwent Levels, highlighting the area's ecological significance and the threats posed by proposed solar farm developments. The Environmental Cost of Progress: Discussion on the delicate balance between renewable energy profitability and environmental sustainability. The critical need for independent research to fully understand the potential impacts of renewable energy infrastructure on biodiversity. Public Involvement and Policy Challenges: The importance of public involvement in environmental protection efforts. A look into contentious political issues, international law, and the role of legislation in safeguarding natural habitats. Navigating Developer Hurdles and Community Perspectives: The big NIMBY question! Strategies for reconciling community concerns with environmental and development goals. The Future of Renewable Energy and Biodiversity: Mike's vision for a sustainable future for the Gwent Levels and similar ecosystems. Practical advice for planners and developers on incorporating biodiversity conservation into renewable energy projects. Reflections on Leadership and Environmental Stewardship: Mike's humorous musings on being the 'King of Wales' and ruling the world, tying back to the serious theme of responsible leadership in environmental conservation. Follow the show: You can follow ‘If I Ruled the World' on Apple Podcasts, Spotify or your preferred platform of choice. Follow Gillian Instagram: https://www.instagram.com/gillians_voice/ Website: https://www.gillianburkevoice.com/ Mentions & Resources Gwent Wildlife Trust The Wildlife Trusts What would you do if you ruled the world? If you have any insights or feedback on today's episode or you have an idea for how the world could be a better place, drop me an email on podcast@gillianburkevoice.com A final thank you to our wonderful sponsors Triodos Bank UK for making this podcast happen, and to The Wildlife Trusts for their continued support. Produced by Soundquake Edited by Jake-Lee Savage

In this engaging discussion with Leslie Morgan and Chris Joyner from the USDA Forest Service, the mission of the Forest Service and its multi-use approach towards the Cherokee National Forest is dissected. From timber harvesting, wildlife conservation to recreation, the conversation navigates through the involvement of volunteer groups in forest maintenance, the challenges of land management, and future plans. The term 'Disney effect' is explored noting the misconception of the reality of the outdoors, and the talk culminates with suggestions for public involvement in preserving public lands, with notable mentions of organizations like Friends of the Cherokee National Forest. The discourse underscores the need for responsible recreation and respect for the wilderness during visits to National Forests and Parks. 00:00 Introduction and Guest Introduction 00:11 Understanding the Role of the USDA Forest Service 01:32 Passion for the Forest Service: Personal Stories 02:16 The Importance of Public Lands 05:45 Exploring the Cherokee National Forest 13:46 The Challenges of Managing Multiple User Groups 14:33 The Power of Volunteerism in Conservation 21:11 Understanding the Impact of Increased Visitation 32:35 The Importance of Mindful Infrastructure 36:25 Advocacy and Funding for Public Lands 38:53 Engaging in Conservation Efforts 38:54 The Importance of Partnership Organizations 39:26 Funding Challenges and Opportunities 40:51 The Role of Local Communities in Conservation 40:59 Current Legislative Acts Impacting Conservation 41:18 The Role of Non-Profit Groups in Conservation 41:44 Land Acquisitions and Growth of the Forest 42:48 The Forest Service Beyond Trees 43:44 The Working Forest: Balancing Conservation and Use 44:32 The Impact of Management Actions on the Forest 46:01 The Importance of Public Engagement in Conservation 48:25 The Challenges of Multi-Use Trails 48:43 Wildlife Management in the Forest 50:48 The Role of the Forest Service in Habitat Management 52:49 The Importance of Preserving Cultural Heritage 55:35 The Impact of Conservation on Local Communities 57:48 The Challenges of Balancing Conservation and Recreation 01:00:43 The Future of Conservation in the Cherokee National Forest 01:13:40 Advice for New Visitors to the National Forest 01:17:35 Conclusion: The Importance of Public Involvement in Conservation To learn more about the region, visit northeasttennessee.org Produced by Mitch McGarry of Maypop Media

In this episode, Zoe Swithenbank talks to Drs Amy O'Donnell and Kat Jackson about their recent study on how to improve care for people with coexisting heavy drinking and depression. The discuss the theoretical concept of Relational Autonomy and how it influenced their research. Amy and Kat describe how they set up the research, and in particular the challenges of recruiting participants from groups where your research is not their priority. They also talk about how much work it takes to conduct effective PPI (Patient and Public Involvement) and how important it is to do it well. They then go through their findings, discussing how they can inform theory and clinical practice: "A lot of people who we spoke to literally didn't have anybody. They'd been turned away from every formal health and social care service that they needed to access and they also didn't have any family relationships or friendships for various reasons. How are you supposed to get better if you don't have those?" Original article: Understanding people's experiences of the formal health and social care system for co-occurring heavy alcohol use and depression through the lens of relational autonomy: A qualitative study by Katherine Jackson and colleagues. Published in Addiction (2023)The opinions expressed in this podcast reflect the views of the interviewer and interviewees and do not necessarily represent the opinions or official positions of the SSA.The SSA does not endorse or guarantee the accuracy of the information in external sources or links and accepts no responsibility or liability for any consequences arising from the use of such information. Hosted on Acast. See acast.com/privacy for more information.

On January 16, 1987, Ann Ledger is found raped and murdered in her apartment in Sandy Springs, Georgia.   In this episode of Zone 7, Crime Scene Investigator, Sheryl McCollum, teams up with Jessica Noll and Todd McComas as they dive into the intricacies of solving cold cases. The trio explores the unique dynamics of their partnerships, emphasizing the invaluable role of media in aiding law enforcement. Todd opens up about the human side of police work, while Jessica sheds light on the hurdles journalists face in accessing information.   Show Notes: [0:00] Welcome back to Zone 7 with Crime Scene Investigator, Sheryl McCollum   [1:55] Sheryl introduces guests, Jessica Noll and Todd McComas to the listeners [2:00] Check out The Investigators Podcast HERE [5:50] Sheryl discusses the invaluable resources that news organizations can offer [10:10] Todd shares a story of a time he lost a weapon [15:00] Jessica shares an instance where Todd's keen observational skills proved invaluable [20:00] The trio dives into the murder and rape of Ann Ledger. This is a cold case from 1987 [27:30] “The First Amendment is a real thing. And the reporter that you were running from is going to write that story anyway, The best thing you can do is put yourself in the best light.” [37:00] If you have information about Ann Ledger, reach out to Jessica or Todd, or call the Sandy Springs Police @ 770-551-6900  [37:50] Final words on Ann Ledger's unsolved case  [43:10] “If you're not going to offend somebody, you don't need the First Amendment.” -L.F Thanks for listening to another episode! If you're loving the show and want to help grow the show, please head over to Itunes and leave a rating and review! How to Leave an Apple Podcast Review: First, Open the podcast app on your iPhone, Mac, or iPad. Then, hit the “Search” tab at the bottom right-hand corner of the page and search for Zone 7. Select the podcast, scroll down to find the subheading “Ratings & Reviews”. and select “Write a Review.” Next, select the number of stars you'd like to leave. Please choose 5 stars! Using the text box which says “Title,” write a title for your review. Then in the text box, write the review itself. The review can be up to 300 words long, but doesn't need to be much more than: “Love the show! Thanks!” or Once you're done select “Send” in the upper right-hand corner. --- Sheryl “Mac” McCollum is an Emmy Award winning CSI, a writer for CrimeOnLine, Forensic and Crime Scene Expert for Crime Stories with Nancy Grace, and a CSI for a metro Atlanta Police Department. She is the co-author of the textbook., Cold Case: Pathways to Justice. Sheryl is also the founder and director of the Cold Case Investigative Research Institute, a collaboration between universities and colleges that brings researchers, practitioners, students and the criminal justice community together to advance techniques in solving cold cases and assist families and law enforcement with solvability factors for unsolved homicides, missing persons, and kidnapping cases.   You can connect and learn more about Sheryl's work by visiting the CCIRI website https://coldcasecrimes.org Social Links: Email: coldcase2004@gmail.com Twitter: @ColdCaseTips Facebook: @sheryl.mccollum See omnystudio.com/listener for privacy information.

To learn more please visit the links below: ReConnect Rondo 2023 Inaugural Reconnecting Communities Summit - ReConnect RondoFunding - ReConnect RondoReConnect Rondo - ReConnect RondoReconnect Communities Grant Program  Reconnecting Communities and Neighborhoods Grant Program | US Department of TransportationBiden-Harris Administration Announces First-Ever Awards from Program to Reconnect Communities | US Department of TransportationPast, Present, and Future of Reconnecting Communities (arcgis.com)

Sam uses her own experiences to help improve research involvement For this episode Sarah is joined by Sam Alexandra Rose, a Patient and Public Involvement (PPI) Manager at Bowel Research UK. Sam talks about Why patients are the most important people in health research Her journey from bowel cancer patient to PPI manager Breaking down stigma and ‘getting comfortable being uncomfortable' Read the full show notes on the podcast webpage Connect with Sam on Twitter, Instagram or visit her personal website   Follow the podcast on LinkedIn, Twitter and Instagram Sign up for Research Adjacent Round-Up monthly newsletter   Theme music by Vitaliy Levkin from Pixabay

In this episode I'm excited to share that I have officially begun my new role as Chief of Staff at Valley Metro and I'm celebrating by interviewing someone I started my career with, Alexandra Albert. Alex and I worked together in the early days of light rail planning, design, and construction; she was in public involvement and I was in program management. Over the past twenty-plus years, our careers have taken very different paths. Alex focused on communication, taking on more and more challenging projects, took a hiatus to focus on her three children, and is now an Assistant Vice President of Communication and Public Involvement at WSP.  In this interview, Alex shares her insights regarding effective public involvement, her professional journey, and what she's most excited about when thinking about the future. She has a passion for public transportation from her youth in New York and she's brought that to a career of service in the Valley. Alex is a consummate communications professional with a wealth of information to share.

Dr Clarissa Giebel narrates her blog written for Dementia Researcher. You will have come across the term PPIE, or Patient and Public Involvement and Engagement. It is a given that we involve people affected by a condition, so for us, dementia, in our research design and development, conduct, and dissemination. And that is not restricted to dementia of course. PPIE needs to be embedded in any health and social care research, because how else do we know that we as researchers really address the issues that are most important, and urgent, to those with lived experience? In this blog Clarissa takes us through her advise for great PPIE. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/guest-blog-public-involvement-engagement-in-research/ -- Dr Clarissa Giebel is a Senior Research Fellow at the University of Liverpool and NIHR ARC North West Coast. Clarissa has been working in dementia care research for over 10 years focusing her research on helping people with dementia to live at home independently and well for longer, addressing inequalities that people with dementia and carers can face. Outside of her day work, Clarissa has also organised a local dementia network - the Liverpool Dementia & Ageing Research Forum, and has recently started her own podcast called the Ageing Scientist. -- If you would like to write your own blog drop us a line, we're always on the look out for new contributors to write about their research, careers + more dementiaresearcher@nihr.ac.uk -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.

Colin Wilkinson, Public Involvement Specialist (Episode 3) | Colin talks about the good, bad and ugly of health research involvement For episode 3 of Research Adjacent I chat with Colin Wilkinson, a public involvement specialist, about the good, bad and ugly of health research involvement. We talk about  Colin's journey from steel chemist to public involvement specialist His passion for improving science and research through engagement and involvement  His recent contributions towards the Shared Commitment to Public Involvement Advice for researchers and research-adjacent professionals looking to improve their collaborations Read the full show notes on the podcast website  Find out more about Colin and his work here: Corylus Services The Shared Commitment to Public Involvement is a joint commitment by UK research organisations to bring about changes that will drive up standards in health and social care research.  What did you think of this episode? Follow the podcast on Twitter @ResAdjacent and share your thoughts using #ResearchAdjacent. Theme music by Vitaliy Levkin from Pixabay

The National Environmental Policy Act (NEPA) is more than just an environmental law - it is a tool that helps advance civil rights. Hear from  Stephen Schima, the senior legislative council at EarthJustice to learn about how unions and community activists have utilized the law to create good paying union jobs and make environmental justice a reality.

Welcome to our December Dictionary Series! We recognise that we reference a whole bunch of terms and theories on this podcast and felt it was time to have a handy series of definitions that you can keep coming back to. This is a series of 24 x 5 minute episodes covering some key terms that we use a lot in our work at the centre. Episodes will be released daily and definitions have been co-created with or provided by various members of the Centre for Appearance Research team. In this episode of the series, Maia shares some definitions for the term PATIENT AND PUBLIC INVOLVEMENT To find out more about Patient and Public Involvement: Listen to this previous podcast episode to hear about how PPI has been used in research with parents of children with a visible difference: https://soundcloud.com/appearance-matters/parenting-a-child-with-a-visible-difference OR) Read this journal article by Zucchelli et al. (2021) which demonstrates the role of PPI in a project developing an intervention for adults with a visible difference: https://formative.jmir.org/2021/3/e26355/ Please remember to rate, review, share and subscribe and happy listening! The CAR podcast team xxx To find out more about the Centre for Appearance Research, follow us: On Twitter:  twitter.com/CAR_UWE On Instagram:  www.instagram.com/car_uwe/ On Facebook:  www.facebook.com/AppearanceResearch Transcript available soon at: bit.ly/3FfqSH6 Cover image designed by Abbi Matthews Episode developed and produced by Maia Thornton

Dr. Diana Rose wears many hats—academic, researcher, service user, and activist. She is a leading figure in user-led research and currently an Honorary Distinguished Professor at the Australian National University. Dr. Rose was previously Professor of User Led Research and Director of the Service User Research Enterprise (SURE) at King's College. She was also lead in Patient and Public Involvement in several large research programmes at the Institute of Psychiatry, Psychology, and Neuroscience. Apart from an impressive set of publications, Dr. Rose's new book Mad Knowledges and User-Led Research is about to hit the markets. In today's interview, she brings together her vast breadth of experience and depth of knowledge to talk about the challenges service users and survivors of psychiatry face when they take space as knowers and researchers in the Psy-disciplines. *** If you find this podcast valuable, rating it and leaving a review on iTunes or Spotify or sharing it on social media helps us to get the word out about these important conversations. Thank you.

As planners, we are usually prepared with planning theory, Constitutional law, planning process, and knowledge about the fundamentals of the profession.... then someone throws a curve ball and starts talking about the need for public involvement and we scratch our heads. What is it, what should it be, and what is the actual purpose of involving the public? We explore this topic with a subject expert, Mr. Andy Boenau and tell some stories from our own background throughout. 

On this episode, we're replaying our recent Public Policy Briefing on the plan to replace the Kay Bailey Hutchison Convention Center and renovate the Cotton Bowl and parts of Fair Park. You'll hear a presentation from Rosa Fleming, Director of the City of Dallas' Convention & Event Services Department; as well as Brian Luallen, CEO of the nonprofit Fair Park First; and Ruben Landa, Assistant Vice President and Texas Business Leader of Communications & Public Involvement for WSP USA. You may download their presentation slides here: https://recouncil.com/wp-content/uploads/2022/06/Kay-Bailey-Hutchison-Convention-Center-Presentation.pdf Register for our August 17 Bank of Texas Speaker Series event with Crescent Real Estate co-founder John Goff here: If you are interested in purchasing a table for FightNight XXXIII: Breaking Ground, email Kristin Urias at kurias@recouncil.com. Subscribe to TRECcast Apple Podcasts: https://podcasts.apple.com/us/podcast/treccast/id1438048995 Spotify: https://open.spotify.com/show/7df4hgNUizIRV35pzXltno Amazon Music: https://music.amazon.com/podcasts/55396a83-c374-403d-ab3f-8ad2e7b59861/treccast Have an idea for an episode topic or guest? Email bsanantonio@recouncil.com. Follow TREC on Social Media Facebook: https://www.facebook.com/therealestatecouncil Twitter: https://twitter.com/TRECDallas Instagram: https://www.instagram.com/trecdallas/ LinkedIn: https://www.linkedin.com/company/the-real-estate-council YouTube: https://www.youtube.com/channel/UCk-GkSGoJOltGV34Yt83GRA

Episode 39 of the Long Covid Podcast is a chat with Lynn Laidlaw & Tracy Ibbotson who are very involved in research involvement and PPI (Patient & Public Involvement) but they have had very different journeys to this point.We chat through some of their experiences, why it is really worthwhile to get involved and how this might be possible in different ways.If you'd like to know more, you can get involved with Tracy at Glasgow uni or the UK research involvement groups via the links below, or drop me a message if you would like to know more about other countries and I'll do my best to find out.Links:Glasgow Univeristy PPI infoUK Research InvolvementFrom diagnostic odyssey to involvement odyssey – an emotional journey | UCL UCL Public Engagement Blog (By Lynn Laidlaw)Co-production and involvement in health research: why aren't we showing our working? | UCL UCL Public Engagement Blog (by Lynn Laidlaw)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comDiscovery MattersA collection of stories and insights on matters of discovery that advance life...Listen on: Apple Podcasts Spotify Support the show

The Smart 7 is a daily podcast that gives you everything you need to know in 7 minutes, at 7 am, 7 days a week...With over 9 million downloads and consistently charting, including as No. 1 News Podcast on Spotify, we're a trusted source for people every day.If you're enjoying it, please follow, share, or even post a review, it all helps...Today's episode includes the following guests:Antonio Guterres - Secretary-General of the United NationsProfessor Jim Skea - Co-chair of the Intergovernmental Panel on Climate ChangeHeleen de Coninck - Professor of Socio-Technical Innovation and Climate Change at Eindhoven University of TechnologyDr Julia Ware - Paediatric clinical researcher at the Wellcome-MRC Institute of Metabolic ScienceRoman Hovorka - Professor of Metabolic Technology Research at the University of CambridgeProf Li Zhang - Mechanical engineer at the Chinese University of Hong Kong Dr Thomas Kabir - Head of Public Involvement at the McPin FoundationRobert DePalma - Palaeontology PhD candidate at the University of ManchesterDr Phill Manning - Professor of palaeontology at the University of ManchesterDr Susan Kohlhaas - Director of Research at Alzheimer's Research UKFederica Pirrone - Researcher in the Department of Veterinary Medicine at the University of MilanIn Ireland? Why not try our Ireland Edition?Contact us over at Twitter or visit www.thesmart7.comPresented by Jamie East, written by Liam Thompson, researched by Olivia Davies and produced by Daft Doris. See acast.com/privacy for privacy and opt-out information.

The Smart 7 Ireland Edition is the daily news podcast that gives you everything you need to know in 7 minutes, at 7am, 7 days a week…Consistently appearing in Ireland's Daily News charts, we're a trusted source for people every day.If you're enjoying it, please follow, share or even post a review, it all helps…Today's episode includes references to the following guests:Antonio Guterres - Secretary-General of the United NationsProfessor Jim Skea - Co-chair of the Intergovernmental Panel on Climate ChangeHeleen de Coninck - Professor of Socio-Technical Innovation and Climate Change at Eindhoven University of TechnologyDr Julia Ware - Paediatric clinical researcher at the Wellcome-MRC Institute of Metabolic ScienceRoman Hovorka - Professor of Metabolic Technology Research at the University of CambridgeProf Li Zhang - Mechanical engineer at the Chinese University of Hong Kong Dr Thomas Kabir - Head of Public Involvement at the McPin FoundationRobert DePalma - Palaeontology PhD candidate at the University of ManchesterDr Phill Manning - Professor of palaeontology at the University of ManchesterDr Susan Kohlhaas - Director of Research at Alzheimer's Research UKFederica Pirrone - Researcher in the Department of Veterinary Medicine at the University of MilanContact us over at Twitter or visit www.thesmart7.comPresented by Ciara Revins, written by Liam Thompson and produced by Daft Doris. See acast.com/privacy for privacy and opt-out information.

In this episode of BJD Talks, we delve into the evolving world of patient and public involvement. Join guests Dr Carron Layfield and Bernd Arents as we explore its origins, how to do excellent PPI and some of the challenges facing PPI in the future.

Nathan Stephens narrates his blog written for Dementia Researcher. In this blog Nathan discusses Patient and Public Involvement, unpacking what that actually means in respect of other similar concepts such as participation and engagement, how PPI can be done throughout the research process, and drawing on my experiences of intentionally and unintentionally doing involvement activities. If you are just starting out with you studies this could be helpful to support PPI elements in your research proposal and ethics, or if your research is underway like Nathan's, it may just be useful to validate your activities and situate them in the research process. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/guest-blog-am-i-doing-ppi-or-was-that-ppi/ -- Nathan Stephens is a PhD Student and unpaid carer, working on his PhD at University of Worcester, studying the Worcestershire Meeting Centres Community Support Programme. Inspired by caring for both grandparents and personal experience of dementia, Nathan has gone from a BSc in Sports & Physical Education, an MSc in Public Health, and now working on his PhD. -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.

The original post can be seen hereMy details are:Website: www.a30minutelife.comFacebook:  www.facebook.com/a30minutelifeTwitter: www.twitter.com/a30minutelifeThis was first broadcast on Connemara FM on February 15, 2022.Fresh Coffee Store Buy coffee freshly roasted when order and with FREE delivery. Supporting Chronic Illness Bloggers

This week, Omar Guerrero speaks with local activists about Manatee County's redistricting process. Becca Hadwen learns how the 1 trillion dollar infrastructure bill will affect Sarasota and Manatee. Yasi Bahman reports on the annual Visions of the Black Experience Film Festival, and Laura Fletcher closes the show with how local veterans are working for sustainability.

Welcome to Part 1 of the LIVE podcast. This is a two-part podcast series about Patient and Public Involvement (PPI) in research. In this episode, we will hear from the individuals involved in the IDEAs study which is being conducted in the School of Public Health, University College Cork. The aim of the study is to develop and test the feasibility of an intervention to Improve Diabetes Eye-screening Attendance. These individuals will tell us about how they are using their experiences of diabetes to inform and shape the research being conducted.

Welcome to Part 2 of the LIVE podcast. This is a two-part podcast series about Patient and Public Involvement (PPI) in research. In this episode, we will hear from the individuals involved in the MiUSE study. The MiUSE study is being conducted in the School of Public Health, University College Cork and aims to develop a digital intervention to reduce the harm from substance use in third level students. These individuals will tell us about how they are using their experiences of student life to inform and shape the research being conducted.

Conhecer os resultados negativos de um estudo científico é tão importante quanto conhecer seus resultados positivos.Como saber se ele foi conduzido de forma eticamente correta?Confira no papo entre o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.> OUÇA (58min 36s)*Naruhodo! é o podcast pra quem tem fome de aprender. Ciência, senso comum, curiosidades, desafios e muito mais. Com o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.Edição: Reginaldo Cursino.http://naruhodo.b9.com.br*PARCERIA: ALURAA Alura tem mais de 1.000 cursos de diversas áreas e é a maior plataforma de cursos online do Brasil -- e você tem acesso a todos com uma única assinatura.Aproveite o desconto de R$100 para ouvintes Naruhodo no link:https://www.alura.com.br/promocao/naruhodo*REFERÊNCIASWhat is Patient and Public Involvement in health and social care research?https://www.rds-sc.nihr.ac.uk/ppi-information-resources/Health PEI Public and Patient Engagementhttps://www.princeedwardisland.ca/en/information/health-pei/health-pei-public-and-patient-engagementREMARKS BY THE PRESIDENT IN APOLOGY FOR STUDY DONE IN TUSKEGEEhttps://clintonwhitehouse4.archives.gov/textonly/New/Remarks/Fri/19970516-898.htmlFinal Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panelhttps://biotech.law.lsu.edu/cphl/history/reports/tuskegee/complete%20report.pdfAP WAS THERE: Black men untreated in Tuskegee Syphilis Studyhttps://apnews.com/article/business-science-health-race-and-ethnicity-syphilis-e9dd07eaa4e74052878a68132cd3803aThe Discovery of Penicillin—New Insights After More Than 75 Years of Clinical Usehttps://wwwnc.cdc.gov/eid/article/23/5/16-1556_articleBrain health and its social determinantshttps://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)02085-7/fulltextDevelopment and validation of an instrument to measure patient engagement in Hong Kong Special Administrative Region, Chinahttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6129019/Realist evaluation of public engagement and involvement in data-intensive health researchhttps://link.springer.com/article/10.1186/s40900-020-00215-4Developing patient reference groups within general practice: a mixed-methods studyhttps://bjgp.org/content/65/632/e177.shortPatient and public engagement in research and health system decision making: A systematic review of evaluation toolshttps://onlinelibrary.wiley.com/doi/full/10.1111/hex.12804Patient and public engagement and involvement in clinical commissioning; socio-material pedagogies of partnershiphttps://cris.brighton.ac.uk/ws/portalfiles/portal/6418803/DHatfield_Thesis_Final_12June19_Redacted.pdfAssessing community engagement in Nigeria polio eradication initiative: application of the Consolidated Framework for Implementation Researchhttps://bmjopen.bmj.com/content/11/8/e048694.abstractPatient and Family Engagement Approaches for Digital Health Initiatives: Protocol for a Case Studyhttps://www.researchprotocols.org/2021/7/e24274/Curso Delineando a Pesquisa Clínica e Estatística aplicada a Psicobiologia:https://www.cientistica.com/homepage/videos-cientisticaNaruhodo #247 - O que é telemedicina e por que ela é importante?https://www.b9.com.br/shows/naruhodo/naruhodo-247-o-que-e-telemedicina-e-por-que-ela-e-importante/Podcasts das #Minas: SINUCA DE BICOS#MulheresPodcastershttps://open.spotify.com/show/5ks8ResoOV2hh1webdNhA5*APOIE O NARUHODO!Você sabia que pode ajudar a manter o Naruhodo no ar?Ao contribuir, você pode ter acesso ao grupo fechado no Telegram, receber conteúdos exclusivos e ter vantagens especiais.Assine o apoio mensal pelo PicPay: https://picpay.me/naruhodopodcast

It's a given - now - that good study design means a process of involving patients at every step, from the big questions like 'what shall we investigate', to the how and where and when, to the important details like the exact words in patient information leaflets and how people are welcomed when they arrive. And there's a process to the process - or at least there was till Covid hit, and raised some big questions about how we involved patients in research during a pandemic. And the person to answer those questions in Nottingham was our latest Research Hero, Kate Frost, who's Head of Patient and Public Involvement at Nottingham's NIHR Biomedical Research Centre and Clinical Research Facility. This episode was published for International Clinical Trials Day ##internationalclinicaltrialsday. Links Nottingham's NIHR Biomedical Research Centre and Clinical Research Facility - https://www.nottinghambrc.nihr.ac.uk/take-part or email getinvolved@nuh.nhs.uk Nottingham NIHR Clinical Research Facility - https://nottinghamcrf.nihr.ac.uk/ Our Research Hub: https://www.nottinghamresearch.org/ Nottingham University Hospitals NHS Trust research information for patients and public - https://www.nuh.nhs.uk/patients-and-public-ri This Podcast is brought to you by the Research & Innovation team at Nottingham University Hospitals NHS Trust. Follow us on @ResearchNUH and @NottmBRC, or email R&Icomms@nuh.nhs.uk. If you haven't already, please subscribe to the podcast where-ever you get your podcasts, and like/review us on Apple Podcasts especially. It's For Science.

Introduction:For this episode, I'm joined by Gay Robinson, owner of Gay Robinson Consulting. In our conversation, we journey through snippets of Gay's experience in the field of public engagement and training with examples of “collaboration gone right”. Her deep involvement and commitment to a principled engagement approach shines through, as well as her advocacy for the guidance provided by the International Association for Public Participation (IAP2).As Gay describes collaboration throughout our conversation, you will get an understanding of how purpose, people, process, and belief come together to make a space for collaboration. Gay points to some of the ways might navigate the challenges that come with the vocabulary of collaboration and share authority among the people participating in collaboration.There's a lot to learn and take away from this conversation. Please enjoy.During this episode we discuss:Some background on GayPrescribed versus principled engagementExperience from the training worldHow does Gay see collaboration?Stories of collaboration gone rightExperimental mindsetOther lessonsGetting more people to the magicTake away lessonsBook or resourceResources mentioned in this episode:Gay Robinson ConsultingInternational Association for Public Participation (IAP2)The Health Canada Public Involvement Continuum as part of The Health Canada Policy Toolkit for Public Involvement in Decision MakingBook: 21 Things You May Not Know About the Indian Act: Helping Canadians Make Reconciliation with Indigenous Peoples a Reality by Bob JosephMorris J. Wosk Centre for Dialogue at the Simon Fraser UniversityNow it's  your turn.If you want to get in touch with Gay, you should check out her page on LinkedIn. Be sure to look up the other resources Gay mentioned as well. Your comments and ratings in Apple Podcasts and other providers are really important, so be sure to subscribe to the podcast. Most importantly, suggest to your friends that they subscribe and share as well. Don't forget to sign up for other interesting collaboration tidbits at Collaboration Dynamics.

Noreen is in conversation with Rachel Thompson (Research Associate in Information Governance and Public Involvement, in the Department of Population Data Science, Swansea University School of Medicine). Rachel's project is called: "Wales' Citizen Engagement with Responses to Covid-19", and in this chat she describes one part of it, which was about running online engagement with members of the public, around attitudes to the track and trace app. This episode was recorded as part of #Scotland #coproweek in November 2020. Erratum: Noreen inaccurately stated in the introduction that Aj is at Birmigham University. Not so! Here are the correct details of the other participants on this call: Dr Ajmal Mubarik (Medical Ethics and Law, Manchester University) Mrs Lynsey Cross (Public Engagement Officer for Population Data Science, Swansea University) Credit: final editing by Emmi Manteau.

One of the impacts of the COVID-19 pandemic has been the temporary end to the traditional public meeting. Most of these gatherings have become virtual. On AASHTO's ETAP Podcast, Arizona DOT’s Steve Olmsted, senior program manager, discusses ways in which his agency has approached the challenge of engaging the public and moving forward projects during a time of social distancing.

Arizona DOT's Senior Program Manager Steve Olmsted describes his agency's virtual public hearing and lessons learned from the experience.

In the first part of the podcast, Dr. Jeffrey Ratliff and Dr. Jason Crowell continue their discussion on movement disorder emergencies in the 2nd part of a 2-part dialogue. In the second segment, Dr. Stacey Clardy talks with Dr. Holly Hinson about her Neurology: Clinical Practice editorial on patient and public involvement in clinical trials from the June 2020 issue. Disclosures can be found at Neurology.org. No CME this week: Interviews based on articles from Neurology: Clinical Practice®, Neurology® Genetics, and Neurology® Neuroimmunology & Neuroinflammation are excluded from the CME program.

In this episode, Sam talks with Ericka Aviles of Ericka Aviles Consulting about her work in communications and public involvement in hospitality, transportation and other industries. Ericka also talks about her work in the Hispanic community building trust and effectively involving an important demographic in the Las Vegas community and much more. Connect with Ericka at her website and social media:  https://www.erickaaviles.com/ https://www.linkedin.com/in/erickaaviles https://www.facebook.com/ErickaAvilesConsulting https://twitter.com/erickaaviles https://instagram.com/erickaavilesconsulting   Subscribe to the podcast at www.civilfx.com/lookgoodpodcast

Join Megan O’Hare interviewing the panel for an insightful discussion on PPI in biomedical research. On previous podcasts, we have discussed the importance of Patient and Public Involvement (PPI) – and the value it can add to research project development and also to researchers themselves, people living with dementia and their carers. Today’s podcast looks at PPI in biomedical research as there is a growing trend toward involving patients and public in lab-based projects. The panel – Dr Lindsey Sinclair, from Bristol University, Dr Claire Lancaster from Oxford University and Dr Martina Bocchetta from University College London, discuss how they have used PPI when developing their research projects and applying for funding and share tips on best places to seek out PPI help and involvement and what they have learned along the way. You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available here https://www.dementiaresearcher.nihr.ac.uk/podcast-patient-and-public-involvement-in-biomedical-research/ Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. Enjoy our content? We are pleased to announce that we are now running a Midday Lecture Webinars - find recordings of previous lectures and details on how to register for future events at www.dementiaresearcher.nihr.ac.uk/webinars

Welcome The BG Podcast! Conversations at the intersection of business, community, and public policy, from the Austin metro and around Texas. Today's episode features Austin Council Member Paige Ellis (District 8) discussing her recently initiated resolution creating the Healthy Streets Program. A response to COVID19, the Healthy Streets Programs aims to provide immediate public space through temporary barriers on certain city streets. ABOUT THE GUEST Paige Ellis was elected in 2018 to represent District 8 – Southwest Austin. Her professional background includes Marketing and Public Involvement. For 8 years prior to being elected, she worked for an environmental firm specializing in environmental compliance on housing development and regional transportation projects. She has a bachelor's degree in Sociology from the University of Texas at San Antonio. CONNECT WITH COUNCIL MEMBER ELLIS: Twitter -> @PaigeForAustin Facebook- > https://www.facebook.com/PaigeForAustin/ HELPFUL LINKS: Austin's Healthy Streets Program (City Page) -> http://www.austintexas.gov/HealthyStreets Health Streets Resolution Language (City Page)-> https://www.austintexas.gov/edims/document.cfm?id=340507 This is episode was recorded remotely on May 20, 2020.

In this episode, Jed Wheeler joins the podcast to discuss getting into management with a large construction firm (William Charles formerly known as Meadow Valley Contractors), using 3D visualization to win CMAR (Construction Management at Risk) and Design-Build, utilizing interactive visualization for public involvement as well as how technology is changing civil construction.  Watch the video here: https://youtu.be/lmSZwrQ1sC4 Jed also talks about his side hustle doing project site documentation where he uses cameras to document before and after on projects. Learn more about William Charles at: http://www.williamcharlesconstruction.com/

In this episode of We Make Civil Engineering Look Good Sam and Wayne discuss how the COVID-19 crisis has affected the Civil FX team as well as the projects they are working on and the clients they are serving. They also discuss how virtual public meetings could be the future of outreach and how new tools could emerge from this pandemic and associated shutdown. They close with a discussion about Civil FX Vision and how it may be an answer to visualization for infrastructure projects if budget cuts limit spending on outreach in a potential recession.  Learn more about Civil FX at www.civilfx.com 

NABWIC TALKS airs Wednesday mornings at 8:30 A.M. ET as a benefit to National Association of Black Women In Construction members. It is offered as an educational serivice to our listening audience. We bring our members and industry experts to you each week to educate, motivate and encourage professional connections.  To join NABWIC - https://nabwic.org/ Your host: Ersula K. Odom - CEO - Sula Too LLC, a Legacy Writing & Publishing company - https://www.sulatoo.com/  Your Program Director: Tena Williams - CEO - Williams Professional Water Restoration Service LLC https://professionalwaterrestoration.services/ Our guest -Mercedes Young CEO - Vivid Consulting Group LLC Young has extensive experience with work in Florida on projects for FDOT / County / City in Civil Engineering and all aspects of PD&E and Design of Urban and Rural Highways and general Infrastructure Projects. Our areas of expertise include, Roadway Geometry, Drainage, R/W Usage/Determination/Acquisition, Permitting, Construction Plan preparation, Spec Pkg preparation, Signal Design and Traffic Engineering Studies, QA/QC and Public/Involvement; with responsibilities of complete scope preparation, task definition, budget management, project management, quality assurance, quality control, estimating, and construction assistance and supervision. Work on projects for FDOT in Districts 1, 2, 3, 4, 5, 7 and the Turnpike.

In this episode, we talk about how the OSCARSS programme used the involvement of carers of stroke survivors to help facilitate a research study into how how they can be better supported. For more information, visit clahrc-gm.nihr.ac.uk/stroke

NABWIC TALKS airs Wednesday mornings at 8:30 a.m. et as a benefit to the members of the National Association of Black Women In Construction. It is offered as an educational serivice to our listening audience. We bring our members and industry experts to you each week to educate, motivate and encourage professional connections.  Your host: Ersula K. Odom - CEO - Sula Too LLC, a Legacy Writing & Publishing company Your Program Director: Tena Williams - CEO - Williams Professional Water Restoration Service LLC Our guest - Mercedes Young CEO - Vivid Consulting Group LLC Young has extensive experience with work in Florida on projects for FDOT / County / City in Civil Engineering and all aspects of PD&E and Design of Urban and Rural Highways and general Infrastructure Projects. Our areas of expertise include, Roadway Geometry, Drainage, R/W Usage/Determination/Acquisition, Permitting, Construction Plan preparation, Spec Pkg preparation, Signal Design and Traffic Engineering Studies, QA/QC and Public?Involvement; with responsibilities of complete scope preparation, task definition, budget management, project management, quality assurance, quality control, estimating, and construction assistance and supervision. Work on projects for FDOT in Districts 1, 2, 3, 4, 5, 7 and the Turnpike. EOR in the Design-Built arena for the first FDOT Design- Built project that included R/W acquisition in District 3 (The I-10 Rests Areas in Santa Rosa and Okaloosa Counties) and EOR of the project that won the recognition of the State as the most innovative project in 2004.

Dr Crystal Legacy arrived in Australia from Canada in the early 2000s to study at the University of Melbourne and is now a senior lecturer in urban planning.Dr Legacy has published widely on transport politics, urban conflict, citizen participation, strategic plan-making, urban governance and infrastructure, and in all this her prime interest has been the welfare of peopleShe is keenly interested in autonomous vehicles, urban governance and strategic planning and along with that she us attuned to urban politics deliberative democracy.

This week, we’re talking about planning. Nick and Jason discuss the City’s entry into a talks with the a private land owner about master planning 4,000 acres of undeveloped land; the City’s strategic planning process; and the recently passed amendments to the City’s comprehensive plan for development.

In this latest podcast we hear from a volunteer, researcher and charity working closely together to ensure that people affected by dementia are involved in every stage of research to maximise impact. We discuss the challenges of PPI and provide some practical advice to support you to work with volunteers in a mutually beneficial way. Patient and public involvement (PPI) in research is a philosophy whereby research is carried out ‘with’ or ‘by’ people affected by the condition rather than ‘about’, ‘for’ or ‘to’ people. Over the past twenty years an increasing value has been placed on including the lived experience of patients and the public in research covering the full spectrum of basic science through to health services. Our panellists today all work for or are funded by Alzheimer’s Society - Anna-Louise Smith, Research Engagement Manager, Dr Kirsten Moore, UCL Senior Research Fellow and Jane Ward, Research Network Local Area Coordinator. Alzheimer’s Society has pioneered the active involvement of people affected by dementia through their award winning Research Network, since 1999. More recently, over the last year Alzheimer’s Society has been considering the evidence surrounding how it involves people affected by dementia in research and moving the conversation about PPI forward from ‘proving’ why it should be done to ‘improving’ how it can do it in partnership with researchers. For more information on Alzheimer's Society work on Patient and Public Involvement and to get involved visit: https://www.alzheimers.org.uk/research/play-your-part-research/patient-and-public-involvement To see other content on this topic via our twitter feed #PPIImpact visit: https://twitter.com/search?q=%23PPIImpact&src=typd

Simon Denegri OBE, National Institute for Health Research (NIHR) National Director for Patients, Carers and the Public.

Mercedes Young CEO - Vivid Consulting Group LLC Young has extensive experience with work in Florida on projects for FDOT / County / City in Civil Engineering and all aspects of PD&E and Design of Urban and Rural Highways and general Infrastructure Projects. Our areas of expertise include, Roadway Geometry, Drainage, R/W Usage/Determination/Acquisition, Permitting, Construction Plan preparation, Spec Pkg preparation, Signal Design and Traffic Engineering Studies, QA/QC and Public?Involvement; with responsibilities of complete scope preparation, task definition, budget management, project management, quality assurance, quality control, estimating, and construction assistance and supervision. Work on projects for FDOT in Districts 1, 2, 3, 4, 5, 7 and the Turnpike. At the present time, Vivid is assisting the Contractor as a Specialty Consultant at the new DDI (Diverted Diamond Interchange) in Sarasota/Manatee Counties in the areas of Drainage, MOT and Shop Drawing revie EOR in the Design-Built arena for the first FDOT Design- Built project that included R/W acquisition in District 3 (The I-10 Rests Areas in Santa Rosa and Okaloosa Counties) and EOR of the project that won the recognition of the State as the most innovative project in 2004. In the PD&E arena Vivid was a part of the team that produced the first study to expand the Selmon Expressway to the east that studied 5 major routes, 20+ sub-alternates and included a very intense public participation program. Abundant experience working with Design-Build Teams Disadvantaged Minority Woman Owned 50 years of combined experience in the areas of civil engineering and business development

Sally Crowe, PPI facilitator in research, gives a quick overview of her talk at #BASCDEdin and tackles some of the thorny issues that can arise.

Podcast 15 Patient and Public Involvement with Mr Simon Denegri by Professor Allan Gaw

Chris Creese reports from the Ecological Society of America conference in Portland USA. She has the stories on how the Internet is enabling ordinary people to become get involved in scientific discovery. She talked... The post scientist 24: the ecologist – phenology and public involvement in research (2012) appeared first on Roger Frost: science, sensors and automation.

Community engagement efforts are based on good intentions, although they can easily go wrong and lead to ‘bad’ decisions. Knowing the essential steps that lead to a quality engagement outcome -- and the pitfalls to avoid -- are key for designing and implementing any engagement effort. Join us for a discussion with Australian community engagement practitioner, teacher and author Vivien Twyford about her insights -- drawn from more than 20 years working with public, nonprofit/NGO and private organizations -- about what you need to know about creating sustainable decisions. Twyford is the co-author, with Stuart Waters, Max Hardy and John Dengate, of the noted book Beyond Public Meetings: Connecting Community Engagement with Decision-Making.

The ability to apologize is serious business with serious benefits for the apologizer. It’s not just about being nice. In Effective Apology: Mending Fences, Building Bridges, and Restoring Trust (Berret-Koehler, 2009), John Kador demonstrates that the willingness to apologize is now perceived as a critical test that all leaders must confront. In this July 2009 book talk, Kador describes how leaders of public, nonprofit and private organizations who apologize signal strength of character, accountability, and humility. There is also discussion of how an apology can be a critical part of making difficult situations right while also allowing people or communities to move forward.

Community engagement efforts are based on good intentions, although they can easily go wrong and lead to ‘bad’ decisions. Knowing the essential steps that lead to a quality engagement outcome -- and the pitfalls to avoid -- are key for designing and implementing any engagement effort. Join us for a discussion with Australian community engagement practitioner, teacher and author Vivien Twyford about her insights -- drawn from more than 20 years working with public, nonprofit/NGO and private organizations -- about what you need to know about creating sustainable decisions. Twyford is the co-author, with Stuart Waters, Max Hardy and John Dengate, of the noted book Beyond Public Meetings: Connecting Community Engagement with Decision-Making.