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This is The Briefing, a daily analysis of news and events from a Christian worldview.Part I (00:13 - 06:11)The Papal Advantage: Eyes are Drawn to a Spectacle – And This Was a Major Concern of the ReformationPart II (06:11 - 17:04)Should Parents Have an Opt Out for LGBTQ+ Books for Their Children in Public Schools? SCOTUS Hears Oral Arguments on Religious Liberty and Parental RightsSupreme Court's conservatives are poised to strike down elementary school policy denying opt-outs for LGBTQ+ books by CNN (John Fritze)Part III (17:04 - 20:18)Gov. Youngkin Makes Another Bold School Proposal: Virginia's General Assembly Accepts Youngkin's Ban on Cell Phones in ClassroomsPart IV (20:18 - 25:26)From Idea to Story to Societal Change: The Washington Post Runs Major Story on ‘Marriage Sabbaticals' That Reveals How Moral Changes Happens in a SocietyWhat's a marriage sabbatical, and why are there so many books about it? by The Washington Post (Karen Heller)Sign up to receive The Briefing in your inbox every weekday morning.Follow Dr. Mohler:X | Instagram | Facebook | YouTubeFor more information on The Southern Baptist Theological Seminary, go to sbts.edu.For more information on Boyce College, just go to BoyceCollege.com.To write Dr. Mohler or submit a question for The Mailbox, go here.
Today on the I Am Dad Podcast, we are honored to welcome three phenomenal scholars and thought leaders who have dedicated their careers to reshaping the narratives of fatherhood: Dr. Brianna P. Lemmons, Dr. Tasha Alston, and Dr. Latrice Rollins. Collectively, these trailblazing researchers have transformed the way we understand Black fatherhood, family dynamics, and father-inclusive policies. Dr. Brianna P. Lemmons is an assistant professor at Baylor University and the Founder and President of the Black Female Fatherhood Scholars Network, where she uplifts Black fathers through research, education, and training. Her work explores the predictors of non-resident African American father involvement and the impact of fatherhood on child well-being. Dr. Tasha Alston is an assistant professor at the University of Pittsburgh School of Medicine and a leading voice in fatherhood research. With expertise in social work and educational psychology, she has spent over 25 years uncovering how fathers influence child development, maternal health, and family well-being. She is the author of African American Fathers' Involvement in Their Children's Education and co-editor of Health, Parenting, and Community Perspectives on Black Fatherhood. Dr. Latrice Rollins is an assistant professor at Morehouse School of Medicine and the director of the National African American Child and Family Research Center. A Robert Wood Johnson Foundation Culture of Health Leader, her work focuses on father engagement in health and human services. As the editor of Engaging and Working with African American Fathers and Health, Parenting, and Community Perspectives on Black Fatherhood, she is at the forefront of advocating for policies that strengthen father-inclusive practices. These three powerhouse scholars are not only shifting research but also influencing policy and practice to ensure that Black fathers are recognized as vital contributors to their families and communities. In this conversation, we'll explore their research, their personal insights, and how we can collectively work to challenge stereotypes and empower fathers everywhere.
In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Shea Hammond, athlete and founder of CP Soccer. Shea shares about his personal experience growing up with Cerebral Palsy (CP) and how staying active and working with a physical therapist has helped him continue to reach his goals. He also discusses CP Soccer's mission, to build a nationwide soccer league for kids who are affected by cerebral palsy, stroke or traumatic brain injury, and what's next for the organization. Dr. Peters is then joined by Dr. Mauricio Delgado, professor of neurology at UT Southwestern Medical Center, former president of the American Academy for Cerebral Palsy and Developmental Medicine and co-founder member of the Mexican Academy for Cerebral Palsy and Neurodevelopmental Disabilities. Dr. Delgado explains how CP is diagnosed and treated, and what the future for those affected and their caregivers looks like. Additional Resources CP Soccer Biking Gives Freedom to a Teen with Cerebral Palsy How Parents Advocate for Their Children with Rare Diseases Other Brain & Life Podcast Episodes RJ Mitte on Living Confidently with Cerebral Palsy Gavin McHugh is Building an Acting Career and a Community with Cerebral Palsy Josh Blue Uses Humor to Ease the Stigma Around Cerebral Palsy We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Shea Hammond @shea_hammond; Dr. Mauricio Delgado @utswmedcenter Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this conversation, Kelly Rigg and Wendy Charles-Warner are aiming to reassure you that whilst it is important not to panic about the implications of the Children's Wellbeing and Schools Bill, it is important to take on an advocating role. They address the anxiety surrounding the bill, the misconceptions about home education, and the statistics that highlight the quality of education and safeguarding in both home-educated and school settings. The conversation emphasizes the need for parents to engage with their MPs and advocate for their rights and the well-being of their children. The discussion emphasizes the role of parents in teaching consent and critical thinking, the limitations of institutional safeguarding, and the bureaucratic challenges that come with home education. Ultimately, they encourage parents to empower themselves and engage with educational policy to ensure their children's well-being. Watch this space for more episodes about the bill as things develop! Keywords: Children's Wellbeing, Schools Bill, Home Education, Parental Rights, Advocacy, Education Quality, Safeguarding, Malicious Referrals, Regulations, Parental Involvement, home education, parental rights, safeguarding children, educational perspectives, consent education, advocacy, community support, educational policy 00:00 Introduction to the Children's Wellbeing and Schools Bill 05:45 Challenging Misconceptions About Home Education 15:30 The Impact of Malicious Referrals 20:41 The Burden of New Regulations on Home Educators 25:51 The Importance of Parental Involvement 37:39 Exploring Unique Educational Approaches 43:30 Teaching Consent and Critical Thinking 49:08 Empowering Parents to Advocate for Their Children 56:35 The Importance of Community Support
What can thousands of dogs and their owners teach us about behavior? In this insightful episode, Scott Sheaffer, certified dog behavior consultant and behaviorist, shares 15 foundational truths he's learned from years of hands-on experience. Covering common misconceptions—from barking and leash pulling to food guarding and misunderstood dominance.Looking for specialized training for your team? Explore our workshops at USADogBehavior.com, where some organizations qualify for free seminars. Tune in and remember to subscribe for more quick and insightful dog behavior tips!Episode LInks:Barking Dogs: What's the Problem and How Do We Fix It?My Dog Won't Stop Jumping on PeopleWhat is Resource Guarding?When Dogs Roll Over for "Belly Rubs," What Does it Really Mean?Dog Front-Door Aggression, Myths and FactsWhat Is the Best Type of Dog Collar to Stop Pulling?Ever Wonder What Dogs Think About All Day? Here's the AnswerDon't do to Your Dog What Some People do to Their Children 3 Words I Wish Dog Owners and Dog Trainers Wouldn't UseIs your dog intentionally bad?100 Reasons Why You Need to Give Your Dog More Respect“Socialization,” a Misused and Misunderstood Concept in Dog Training4 Predictors of Success When Working with Dogs with Behavior IssuesScott Sheaffer's 15 Fundamental Guidelines for Living with DogsThe Problem with Shock Collars in Dog TrainingFind us at USADogBehavior.com.Follow us on Facebook.DisclaimerIf your dog is aggressive toward humans, consult an experienced, certified canine behavior consultant immediately and ensure your dog cannot harm anyone. This podcast is for educational purposes only and does not replace professional guidance. Scott Sheaffer and USA Dog Behavior, LLC, are not liable for outcomes resulting from the advice provided.
Congratulations to Cardinal John Foley Regional School from Havertown, PA - our third and final finalist in the K-8th Division of B101's 2024 Christmas Choir Competition! Their Children's Choir is advancing to the finals of the B101 Christmas Choir Competition this Thursday, December 5th with their performance of "Do You Hear What I Hear".
In this episode of the Brain & Life podcast, co-host Dr. Daniel Correa is joined by Deborah Vauclare, loving mother of Leo, who is living with a rare genetic neurodegenerative condition called Infantile Neuroaxonal Dystrophy (INAD.) Deborah shares about Leo's diagnosis and symptoms and how she and her family started an organization called Bisous for Léo with the goal to eradicate INAD and other related neurodegenerative diseases. Dr. Correa is then joined by Dr. Darius Adams, clinical geneticist who works as the Medical Director of the Goryeb Children's Hospital Genetics and Metabolism Division. Dr. Adams explains what INAD is and what types of research are being conducted to better the lives of patients and their families. We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards. Additional Resources Bisous for Léo INADCure Foundation How Parents Advocate for Their Children with Rare Diseases Advice for Caregivers of People with Rare Diseases Other Brain & Life Episodes on this Topic Rare Thoughts on a Rarer Neurologic Condition Advocacy and Athleticism with the Pittsburgh Steeler's Cam Heyward Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Guests: Deborah Vauclare @bisousforleo; Dr. Darius Adams @AtlanticHealth Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Brianna Chickefry shares details of Zach Bryan breakup on BFFS (19:53)Goldie Hawn Joins Kids Kate and Oliver Hudson and Their Children for Cozy SKIMS Campaign (PEOPLE) (45:22)Liam Payne's friend, hotel employee and alleged drug dealer charged in connection to singer's death (Page Six) (48:38)Martha Stewart Said Reporter Who Covered Her Trial Was 'Dead Now, Thank Goodness' but She's Not (PEOPLE) (57:47)Bravo Hits Pause on 'The Real Housewives of Dubai' After Two Seasons (Deadline) (1:00:39)Queenie and Weenie of The Week (1:03:09)See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Send us a textIn today's episode, I interview Jamie O'Rourke, the director of the short film "Calf." The film looks at a topic that is extremely relevant to many people around the world today, yet not talked about nearly enough and is it qualified for the 97th Academy Awards.Listen to hear about the inspiration for the film in working on a documentary on abuse, some striking statistics around domestic abuse, and the benefits of being able to shoot almost the entire film on a recently retired farm.Books mentioned in this episode include:Republic of Shame: How Ireland Punished ‘Fallen Women' and Their Children by Caelainn HoganMaking the Future: The Unipolar Imperial Moment by Noam ChomskyThere Are Little Kingdoms by Kevin BarryFilms mentioned in this episode include:"Calf” directed by Jamie O'RourkeZone of Interest directed by Jonathan GlazerLa Chimera directed by Alice RohrwacherAftersun directed by Charlotte WellsGhost directed by Jerry ZuckerFargo directed by Joel CoenGroundhog Day directed by Harold Ramis"The Afters" directed by Jamie O'RourkeFollow Jamie on Instagram @jamie_o_rourke and the film @calf_thefilm."Calf" recently screened at the Newport Beach International Film Festival and the Brooklyn Horror Film Festival last week and you can check out at the St. Louis International Film Festival November 7th-17th and the Norwich Film Festival November 11th-24th with more coming up this fall.Find out more about domestic abuse in Ireland at the Women's Aid website.
"It's time for us to restore men to their children." "Addiction destroys families." "The results of too much alcohol can be detrimental." "Men are not supposed to operate in the same ways as women." "Marriage makes men earn 10 to 11% more." "The opposite of addiction is connection." In this episode of Patriarchy Principles, Jey and Casey discuss the intersection of family, faith, and politics, focusing on the challenges fathers face in today's society. They explore the story of Noah as a biblical example of addiction and self-control, Casey's journey in recovery activism, and the impact of identity politics on political views. The conversation critiques current decriminalization policies and emphasizes the importance of fatherhood in recovery. They propose legislative changes aimed at restoring family structures and addressing addiction treatment more effectively. In this conversation, Casey and Jey explore the evolution of masculinity, the neurochemical benefits of meaningful work for men, and the importance of marriage in enhancing men's lives. They discuss the role of the church in addiction recovery and the need for unity in society, emphasizing the importance of conservative values and the impact of fatherhood. The conversation culminates in a call for action, urging men to engage in politics and vote for a better future for their families. Takeaways The podcast aims to shed light on political issues impacting families. Noah's story illustrates the consequences of addiction and lack of self-control. Casey emphasizes the importance of fathers in recovery and family dynamics. The shift in political views reflects a growing discontent with identity politics. Critique of decriminalization policies highlights their ineffectiveness in addressing addiction. Fatherhood is crucial for recovery and should be prioritized in legislation. Identity politics have become a dominant narrative in modern politics. Rethinking addiction treatment is necessary for better outcomes. Proposals for legislative change focus on restoring family structures. Compassion should not enable continued substance use. Men have evolved from a lineage of masculine traits that were favored in mate selection. Neurochemical benefits are derived from physical work, which has been diminished in modern society. ADHD may be overdiagnosed; it used to be a superpower for men in certain contexts. Men benefit from different therapeutic approaches than women, often requiring more action-oriented solutions. Marriage incentivizes men to earn more and provides greater life satisfaction. The church has a critical role in supporting those in addiction recovery. Bridging the gap between the church and substance users can create meaningful connections. Unity in society is essential for overcoming divisions and fostering cooperation. Conservative values can provide a foundation for addressing societal issues. Voting is a crucial action for men to take responsibility for their families' futures. Chapters 00:00 Introduction and Overview 02:20 The Story of Noah and the Importance of Self-Control 04:27 Casey's Policy Proposals for Addiction Recovery 14:28 The Shift from Left to Right in Political Views 24:33 The Negative Effects of Identity Politics 29:03 Considering Alternative Worldviews in Policymaking 31:07 A Comprehensive Approach to Addressing Addiction 36:56 Preventing Resentment and Infidelity in Marriage 46:38 The Role of Probation and the Criminal Justice System 52:35 Restoring Men to Their Children and Promoting Meaningful Employment 01:02:10 The Benefits of Marriage for Men 01:14:50 The Role of the Church in Addressing Addiction and Providing Support 01:19:25 Introduction and Anecdote 01:20:18 Probation with Informed Treatment 01:21:15 Fatherhood Reconciliation 01:22:04 Meaningful Work and Employment 01:25:01 Marriage and Family Structure 01:30:05 The Church in Recovery 01:40:24 Voting and Taking Action Check out the link-tree 4 YDP https://linktr.ee/ballboyblog --- Support this podcast: https://podcasters.spotify.com/pod/show/youngdadpod/support
In this episode of the Brain & Life podcast, co-host Dr. Katy Peters is joined by Jessica Patay, mother, caregiver, and founder of the nonprofit We Are Brave Together. Jessica discusser her son's diagnosis with a rare genetic neurologic condition called Prader-Willi Syndrome and how it led her to found an organization whose mission is to preserve and protect the mental health of caregiving moms of disabled and neurodiverse children. Dr. Peters is then joined by Dr. Emily De Los Reyes, attending pediatric neurologist at Nationwide Children's and Professor of Clinical Pediatrics and Neurology at The Ohio State University College of Medicine. They discuss exactly what Prader-Willi syndrome is, how it's diagnosed and treated, and what the future looks like for patients and their families. Additional Resources We Are Brave Together How Parents Advocate for Their Children with Rare Diseases These Parents are Giving Their Teenager a Life of Adventure Despite Rett Syndrome Sibling Caregivers Share Rewards and Challenges Other Brain & Life Episodes on this Topic Resiliency and Caregiving with Janet Fanaki Journalist Richard Engel on Parenting a Child with Rett Syndrome Gavin McHugh is Building an Acting Career and a Community with Cerebral Palsy We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Guests: Jessica Patay @wearebravetogether; Dr. De Los Reyes @nationwidekids Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In today's show, I'm welcoming Roberta Boscolo, Climate and Energy Lead at the World Meteorological Organization (WMO). Roberta delves into the nuances of climate science, the importance of timely action, and her unique approach to communicating these urgent issues to the public through social media.Roberta discusses the vital role of the World Meteorological Organization (WMO) in providing accurate weather forecasts and climate models, emphasizing their importance for sectors such as agriculture, energy, and tourism. The conversation shifts to the effectiveness of climate communication, addressing how simplified and relatable narratives could potentially have a greater impact on public awareness and policy changes. Roberta also shares personal insights on how individuals can prepare for and adapt to the increasing occurrences of extreme weather events, stressing the critical urgency for immediate and collective action against climate change.We cover:The Urgency of Addressing Climate Change This DecadeThe Importance of Weather and Climate Models for Future PlanningCommunicating Climate Change: Challenges and Strategies for ScientistsPreparing for Extreme Climate Events and Human MigrationEmpowering Voices in Climate CommunicationGeoengineering Solutions and Their Potential Impact on Climate ChangeWant to go deeper?Invest in climate moonshots with Climate Insiders. Join 300+ members and become a shareholder of the best climate tech startups alongside us, from $1,000.Become a member now: https://www.climateinsiders.comJoin the Climate Insiders newsletter, the only newsletter you need to invest in climate tech. Every Saturday I share one actionable tip to invest successfully in climate tech. Join 3,500+ investors and get access to investing tips and strategies to invest today: https://climateinsiders.substack.com/--------------SHOW NOTES:(00:00) - Episode Trailer(00:51) - Introduction(01:29) - How Did Leveraging LinkedIn Turn One Person into a Powerhouse?(03:23) - What Makes This Decade a Make-or-Break Moment for Climate Action?(05:14) – Is Climate Change just the Natural Cycle?(07:07) - How Legitimate Are the WMO's Climate Forecasts?(09:07) - Is There a Way to Forecast When Major Climate Disasters Will Strike?(12:07) - Who Actually Uses WMO's Weather Forecasts?(14:26) - Are We Really Making Progress with Climate Reports and Predictions?(17:24) - Are Advocates of Social Media Seen as Outliers in Their Organizations?(19:00) – How to leverage results and stats in the story?(20:37) - Who Needs Convincing More: The Masses or the Decision-Makers?(22:30) - What Holds More Persuasive Power: Success Stories or Fear?(24:07) - Can the United Nations Lead the Disruption of Polluting Industries?(26:45) - How Should Parents Discuss Climate Change with Their Children?(29:44) - Are Leaders Discussing Potential Migration Due to Climate Change?(32:27) - Can Visualizing Climate Impacts Make it More Relatable to People?(35:22) - How Is Risk-Reward Culture Perceived Within the United Nations?(38:01) - Can Geoengineering Be Ethically Implemented to Combat Climate Change?(40:10) - Where and How Is Weather Modification Currently Utilized?(43:36) - Outro
You have a limited offer you can use now, that gets you up to 48% off your first subscription or 20% off one time purchases with code 4FIT20 at checkout You can claim it at: https://magicmind.com/4fit20 Summary In this episode of the Fit Fatherhood podcast, Rod Richard discusses the recent growth of his podcast and social media following. He shares his plans to release backlogged episodes and introduces a new segment called the Wednesday Wrap-Up, where he discusses popular posts and conversations happening on social media. Rod also talks about the importance of time management and staying focused on priorities. He addresses the criticism he receives and emphasizes the need for traditional parenting and being a positive influence on children. Rod also mentions the impact of the people children surround themselves with and the role it plays in their development. Takeaways Rod Richard discusses the recent growth of his Fit Fatherhood podcast and social media following. He introduces a new segment called the Wednesday Wrap-Up, where he discusses popular posts and conversations happening on social media. Rod emphasizes the importance of time management and staying focused on priorities. He addresses the criticism he receives and emphasizes the need for traditional parenting and being a positive influence on children. Rod also mentions the impact of the people children surround themselves with and the role it plays in their development. Chapters 00:00 Introduction and Backlogged Episodes 01:05 The Success of Solo Episodes and Instagram Growth 06:02 The Impact of Missing the Morning Routine 08:57 The Benefits of Magic Mind 13:04 Try Magic Mind with a Discount Code 14:52 The Growth of Rod's Instagram Following 15:16 Introduction and Purpose of Wednesday Wrap-ups 19:13 The Importance of Time Management 21:41 The Role of Fathers in Their Children's Lives 27:10 The Influence of Peers and Environment on Children 31:52 The Relevance of Traditional Parenting 39:37 Conclusion and Call to Action 40:30 New Chapter www.4fitfatherhood.carrd.co --- Support this podcast: https://podcasters.spotify.com/pod/show/4fitfatherhood/support
CDC Offers CASH BRIBES to Parents for Their Children's Vax Records; Small Biz Struggles With COVID-19; Plus Fan Fav Maria Albanese; More
A new MP3 sermon from Faith Free Presbyterian Church is now available on SermonAudio with the following details: Title: Parents in Prayer for Their Children Speaker: Rev. Armen Thomassian Broadcaster: Faith Free Presbyterian Church Event: Sunday - PM Date: 7/7/2024 Bible: 1 Samuel 1:27-28 Length: 41 min.
Leoandra Onnie Rogers, Professor of Psychology at Northwestern University, discusses her article, “Exploring Whether and How Black and White Parents Talk with Their Children about Race: M(ai)cro Race Conversations About Black Lives Matter.” which presents the results of an online survey conducted in 2020-2021. Professor Rogers details the ways in which white and Black parents […]
Send us a Text Message.Welcome to Michael Sullivan's episode on Nomadic Diaries called The Expat's Portable Identity. Michael is currently a Goodwill Ambassador with the US Department of State in Turkey and is currently penning a book titled "Building Bridges: Can We Love and Relate in a Polarized World."Michael shares his rich experiences and the nuanced challenges faced by his wife and children by virtue of their relationship and biculturalism. ⚡Building Bridges Across the Great Divide⚡In this episode, we tackled one of the biggest challenges facing humans today. Here are the big takeaways:The Role of Expats in Their Children's Lives:Michael underscores the importance of active involvement in the educational and social activities of our children to help them navigate the complexities of growing up between cultures.Bicultural Challenges:Insights into the personal challenges faced by Michael's family, highlighting the tug-of-war between maintaining one's cultural identity and assimilating into a new environment while constantly building love and connection.Societal Expectations and Labels: The necessity of developing empathy and understanding in today's divided world and how it looks so different from generation to generation came up. Expat Challenges and Inspirations:Michael talks about the bravery needed to live abroad and what motivates individuals to take this significant step, which we can all relate to as each of us has taken a bold step in the direction of living a different lifestyle called overseas.Connect with Michael at any of the links below:https://sullyworks.com/https://podcasters.spotify.com/pod/show/whereareyoufromhttps://linktr.ee/sullyworks Please subscribe, follow, share as we bring you more thought-provoking, perception-shifting, life-changing content on the subject of international lifestyles - across all platforms!Let us know how you're applying these bridge-building insights to create more love, connection, and unity in your world. Don't forget to subscribe and write a review if you've enjoyed the episode and want to hear more engaging stories and interviews like this one.Support the Show.Where stories might wander but purpose finds it's home!!!
Episode 149 - May 14, 2024 - Scandalous Behavior - Walt -0 x DJ Intence - 0 - NBA Talk - Denver Nuggets vs Minnesota Timberwolves - OKC Thunder vs Dallas Mavericks - NY Knicks vs Indiana Pacers Game 4 Review - OKC Thunder vs Dallas Mavericks Game 4 Live Review - Binance Founder Sentenced To 4 Months In Prison (Changing Zhao) - A Woman In Jail After Turning In Her Daughter For Murder (Kenyetta Hayes) - NYC Violator Caught in Bronx, NY - Speaker of The House Mike Johnson Saved From Majorie Taylor Greene's Vote To Remove Him From Speaker Of The House - Donald J. Trump's Legal Woes - Wise Guy's Segment - Gilbert Arenas Take On, Should or Shouldn't Rudy Gobert Missed The Birth Of Their First Child - Wise Guy's Segment - Im_Waltttt Hot Take On Men Need To Be in Their Children's Lives - Wise Guy's Segment - Story Time: Social Media's Q&A, A Sister Trying To Take Her Brother's Boyfriend - Songs Of The Episode - SwaveHMG “Blue Faces”
In this week's episode, a guest host joins Brain & Life podcast! Dr. Bhooma Aravamuthan, Assistant Professor of Neurology, pediatric movement disorders specialist, and neuroscientist studying dystonia in cerebral palsy (CP), speaks with child actor Gavin McHugh about how CP affects his acting career, the connections he has built with his fans on social media, and what terms like "disabled" and "special needs" mean to him. His mother, Lisa McHugh, also shares about Gavin's many talents and what she wishes people knew about CP. Then, Dr. Aravamuthan speaks with Brain & Life co-host Dr. Daniel Correa about what cerebral palsy is, what patients can expect in their lifetime, and the power of finding a community. Additional Resources What is Cerebral Palsy? How Parents Advocate for Their Children with Rare Diseases Biking Gives Freedom to a Teen with Cerebral Palsy Becky Dilworth Skied and Raised a Family Despite Cerebral Palsy The ABCs of Advocacy Other Brain & Life Podcast Episodes on These Topics RJ Mitte on Living Confidently with Cerebral Palsy Josh Blue Uses Humor to Ease the Stigma Around Cerebral Palsy We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Guests: Gavin McHugh @iamgavinmchugh; Dr. Bhooma Aravamuthan @drbhooma Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
On this week's podcast, we discuss some new legislation aimed at drawing more interest in extended foster care, long-sought data on compliance with the Indian Child Welfare Act, and the use of federal funds for family justice. We also break down yet another child welfare-related lawsuit in New York, and concerns over the precedent set by the conviction of Jennifer Crumbley.Reading RoomBipartisan Bill Would Expand Federal Extended Foster Care Programhttps://bit.ly/3Uum8FCFostering Adults: The State of Carehttps://imprintnews.org/special-series/fostering-adults-state-extended-careBiden Proposes New Federal Data on ICWA Compliance https://bit.ly/3OUriXLKeeping The Kids: Native American overrepresentation in foster care in Montana.https://montanafreepress.org/keeping-the-kids/Most States Now Access Federal Funds for Family Court Lawyershttps://bit.ly/3uN543qNew York City Class-Action Lawsuit Defends Parents' Rights in CPS Home Visits — A Rare Constitutional Challengehttps://bit.ly/48HyRrOThe Trouble With Convicting Parents for Their Children's Violent Crimeshttps://bit.ly/3InjhanBill Tracker: Protecting Benefits for Foster Youthhttps://bit.ly/3uqHgCe
This week…we dive into Google Gemini Ultra 1.0, Sam Altman is making AI chips, Nvidia is making chatbots and creepy autonomous AI robots are silently coming for us all.. Kevin explores the new Stable Cascade image model, Gavin goes deep on AI music from Suno, ElevenLabs is going to share revenue with voice model creators and did the AI superbowl commercials over promise? Yes, probably. AND THEN… an interview with the Wall Street Journal's tech reporter Joanna Stern about her viral Apple Vision Pro review, how she uses AI and a fascinating discussion about her latest story around the parents of the Parkland victims using AI to robocall politicians with AI versions of their children's voices. Oh and true juicy-exclusey as this week's AI co-host is none other than Bard, who was just ‘released' by Google this week. We dig into some of that backstory and find out exactly WHY they moved on from Bard. Guess what… IT AIN'T WHAT YOU THINK. It's an endless cavalcade of ridiculous and informative AI news, AI tools, and AI entertainment cooked up just for you. Follow us for more AI discussions, AI news updates, and AI tool reviews on X @AIForHumansShow Join our vibrant community on TikTok @aiforhumansshow For more info, visit our website at https://www.aiforhumans.show/ /// Show links /// Gemini Ultra Released https://blog.google/products/gemini/bard-gemini-advanced-app/ AI Pasta or GPU Sacrifice https://twitter.com/tsarnick/status/1756879325260042737 Sam Altman Seeks 7 Trillion For Chips https://www.cnbc.com/2024/02/09/openai-ceo-sam-altman-reportedly-seeking-trillions-of-dollars-for-ai-chip-project.html Sam's Tweet About Infrastucture https://twitter.com/sama/status/1755294743565930726?s=46 Nvidia Worth More Than Amazon or Alphabet https://www.theverge.com/2024/2/14/24073384/nvidia-market-cap-passes-amazon-alphabet Nvidia's Chat with RTX https://x.com/NVIDIAGeForce/status/1757444009193304328?s=20 ElevenLabs Revenue Share https://twitter.com/elevenlabsio/status/1757087275131748639 DeepMind's Aloha 2 Robot https://www.reddit.com/r/singularity/comments/1anfyl5/google_deepmindaloha_2/ $200 Homemade Robot https://x.com/alexkoch_ai/status/1756500716854841835?s=20 1X Autonomous Robots https://youtu.be/iHXuU3nTXfQ?si=l3H-eOpn1z6VjaQq Tiktok Boximator https://boximator.github.io/?ref=aiartweekly Suno AI Music Generator https://v-day.suno.ai/ Stability AI's Stable Cascade https://stability.ai/news/introducing-stable-cascade Joanna's Apple Vision Pro Review https://youtu.be/8xI10SFgzQ8?si=ydX0KaKlwER4SR4Q Parkland Parents & AI Versions of Their Children https://youtu.be/h3VZjuttZbQ?si=_yTlaPDycKuMaSmS Joanna Stern at WSJ https://www.wsj.com/news/author/joanna-stern
The family household is a fundamental unit of economics, and by extension – a fundamental unit of society. But the amount of research and study on the family within the profession of economics is still developing. Melissa Kearney is a professor of economics at the University of Maryland, a senior fellow at the Brookings Institute, and the director of the Aspen Economic Strategy Group. Her book, The Two-Parent Privilege: How Americans Stopped Getting Married and Started Falling Behind, examines how the makeup of families can determine a child's economic success. She and Greg discuss the success gap between children from two-parent homes vs. one-parent homes, the role families play in the overall economic state of our country, and what needs to be done to bridge that inequality and address poverty. *unSILOed Podcast is produced by University FM.*Episode Quotes:Why does family structure matter in economic success and social mobility?03:43: When you look at all of the research that economists have done on poverty, inequality, and social mobility, family structure is important and determinant of all of that. And so what I'm doing is not uncovering something that isn't there in all of the academic evidence. I just think it doesn't get the attention it deserves when we then say, so what should we do about inequality, threats to social mobility, or poverty? We take family structure as a given in all of our research, and so it matters because it is so determinant. Even if we wish it were otherwise, it is so determinant. We just see that over and over and over again that kids from one-parent homes are less likely to graduate high school, graduate college, go on to achieve high earnings. It's really determinant of all of these markers of what we might think of as economic success.The real constraints of higher educated parents vs. economically constrained parents36:58: Higher-educated folks, married parents; they have more resources that allow them to be the kind of parents that they want to be. And more economically constrained parents have less; they have fewer resources, allowing them to be that.The impact of diverging structures on social disparities08:02: We don't just want to think about single moms and their kids being more likely to live in poverty, but I think the right way to think about it now is that the divergence in family structure between the college-educated class and everybody else is perpetuating inequality. It's exacerbating inequality precisely because these gaps are really large.Shared income and time are key for positive child development14:46: As an economist, my earnest wish is that this shouldn't be such a third-rail topic to talk about because nobody is blaming single parents for not doing an awesome job and putting in the hard work. But when there's a second parent in the house, there's more income coming in; there's more time coming in; there's more supervision; and there's more bandwidth. And we see that all of that collective input yields better outcomes for kids.Show Links:Recommended Resources:Gary BeckerRaj ChettyClaudia GoldinNicholas EberstadtLouisiana Fathers Form 'Dads on Duty' Group to Help Stop Violence at Their Children's High School (People Magazine)Guest Profile:Faculty Profile at University of MarylandDirector, Aspen Economic Strategy GroupNonresident Senior Fellow, Brookings InstituteHer Work:The Two-Parent Privilege: How Americans Stopped Getting Married and Started Falling BehindParental Education and Parental Time with Children
- "The State of Arkansas Recently Awarded More than HALF A MILLION DOLLARS in GOVERNMENT GRANTS to Pregnancy Resource Centers!" - DR. KAYLIE ZAPANTA: "A New Study Suggests that Taking a Low-Dose Aspirin Tablet Each Day Helps LOWER the Risk of Premature Death After Cancer Diagnosis. But DOES IT?" - "A New Poll Suggests that Most American Parents SUPPORT the Ability to OPT-OUT of Teachings They Believe to Be OBJECTIONABLE for Their Children" - "An Update on the Deadly Shooting at Lakewood Church in Houston" - "The Controversial 'HE GETS US' Campaign has Already Received Pushback from Conservative Christians - But Why are PROGRESSIVE LEFTISTS Also Now Entering the Fray?"
For the very first time in the history of this podcast, we have taken a request... from a publisher. That's right! You know as well as we do that there are reprinted picture books coming out all the time. Well, New York Review of Books sort of specializes in that industry. Their Children's Collection division has a tendency to find old and shockingly beautiful titles worth bringing back to life. And this year, in 2023, they decided to do a book that is so lovely, so strange, and so original that when they asked if we might be interested in ever featuring one of their books, we accepted. And so, it may not be the most famous book we've ever done on the show, but we suspect that it may remain one of the most memorable. There are very few interior designer picture books, so we get into the weeds. And the most important thing of all? After you finish reading this you are fully convinced that the illustrator had fun with this book. We sure as heck did. For the full Show Notes please visit: https://afuse8production.slj.com/2023/11/13/fuse-8-n-kate-need-a-house-call-ms-mouse-by-george-mendoza-ill-doris-susan-smith
The better question is “do the college rankings consider Black families……” Regardless, affluent college educated Black families have very strong feelings about what kinds of colleges their children should attend and why. Does it have to be an Ivy or Ivy-adjacent school? Does the PWI have to have a certain percentage of Black students? Are my children “Black enough” to attend an HBCU?!!! These are real questions that middle and upper-class Black people think about and Dr. Deborwah Faulk has taken the time to dissect this phenomena and give it light. As a Professor of Anthropology and Africana Studies at the University of Richmond, her 2023 scholarly research entitled College Choices, Choice Dilemmas: Black Advantaged Parents' Views of Their Children's College Options focuses on much of what we aim to examine in our book, The Black Family's Guide to College Admissions: A Conversation About Education, Parenting and Race. We were fortunate to interview this proud woman of Spelman who earned her doctorate at the The Ohio State University and share our thoughts as well as highlight hers. Rankings, status, prestige and “what other people think” are woven into the fabric of American society. As Black people who make financial, cultural and educational choices for our children, we cannot ignore this fact. Dr. Faulk gives voice to those who embrace this notion and those who want to challenge it. Her scholarship is novel and necessary. Learn something and let's discuss.
Send us a Text Message.In the second installment of the two-part series on Bernardine Dohrn, Amanda and Lauren follow the Weather Underground as they continue to fight against the government, and then follow them back aboveground into the present day.Sources:Days of Rage by Bryan BurroughMother Country Radicals podcast, written and hosted by Zayd Ayers DohrnTruthout: “New Podcast Spotlights Bernardine Dohrn, Bill Ayers, and Their Children's Story” by Amy Goodman and Juan GonzalezBuzzfeed News (RIP): “Bernardine Dohrn was Called the Most Dangerous Woman in America. Now, Her Son Reconsiders Her Legacy” by Alessa DominguezThe Freedom Archives: “Audio Clip of Bernardine Dohrn”New Left Notes: “You Don't Need a Weatherman to Know Which WAy the Wind Blows” by Karin Ashley, Bill Ayers, Bernardine Dohrn, John Jacobs, Jeff Jones, Gerry Long, Howie Machtinger, Jim Mellen, Terry Robbins, Mark Rudd and Steve TappisWTTW (Chicago's PBS Affiliate): “Chicago's Forgotten Days of Rage” by Daniel HautzingerJewAge: “Bernardine Dorhn - Biography”New York Times: “A Radical ‘Declaration' Warns of an Attack by Weathermen” by John KifnerNew York Times: “Timothy Leary, Drug Advocate, Walks Away from Coast Prison” by no bylineWikipediaSupport us!Kind Cotton: https://kindcotton.com/?ref=QnByw-DYpjqDiCMoment: drinkmoment.com, use code MOSTWANTEDAMANDA for 15% off!
Why do we yell? It's because our kids are making us crazy, pushing our buttons, making our life stressful, right? Well, no. It's a kids job to push our buttons, and test our limits. We control our emotions because that's our job. It's our responsibility to react in a way that is good for everybody. Parenting is hard, and it is important to mindfully attend to our triggers, when we feel overwhelmed, powerless, afraid, etc. so we can keep ourselves from "flipping our lids." Listen to this podcast to learn why we yell, and what we can do to stop. Why Parents Yell at Their Children and How to Stop the Cycle of Trauma by Rebecca Lyddon (June 2022)
Send us a Text Message.In part one of their two-part series on Bernardine Dohrn, Amanda and Lauren revisit the "radical" groups of the late 1960s, including the Students for a Democratic Society, the Black Panthers, and the Weathermen.Sources:Days of Rage by Bryan BurroughMother Country Radicals podcast, written and hosted by Zayd Ayers DohrnTruthout: “New Podcast Spotlights Bernardine Dohrn, Bill Ayers, and Their Children's Story” by Amy Goodman and Juan GonzalezBuzzfeed News (RIP): “Bernardine Dohrn was Called the Most Dangerous Woman in America. Now, Her Son Reconsiders Her Legacy” by Alessa DominguezThe Freedom Archives: “Audio Clip of Bernardine Dohrn”New Left Notes: “You Don't Need a Weatherman to Know Which WAy the Wind Blows” by Karin Ashley, Bill Ayers, Bernardine Dohrn, John Jacobs, Jeff Jones, Gerry Long, Howie Machtinger, Jim Mellen, Terry Robbins, Mark Rudd and Steve TappisWTTW (Chicago's PBS Affiliate): “Chicago's Forgotten Days of Rage” by Daniel HautzingerJewAge: “Bernardine Dorhn - Biography”New York Times: “A Radical ‘Declaration' Warns of an Attack by Weathermen” by John KifnerNew York Times: “Timothy Leary, Drug Advocate, Walks Away from Coast Prison” by no bylineWikipediaSupport us!Kind Cotton: https://kindcotton.com/?ref=QnByw-DYpjqDiCMoment: drinkmoment.com, use code MOSTWANTEDAMANDA for 15% off!
Visit the Mental Chill here. Buy Romance here. Pat Dutt's short stories and flash fictions have been published in The Louisville Review, Emrys Journal, Caustic Frolic, America Writers Review, and other literary magazines. She is the author of the non-fiction book, The Good Moms, Their Children, and Friendship. Her home is in central New York where she taught high school science and worked for many years as a landscape estimator. She also volunteers for a mental health organization and writes a blog (mentalchill.org) along with her son, Ben. Theme music is "Take Me Higher" by Jazzhar.
Esta semana, en el segundo de dos episodios, el Dr. Daniel Correa continúa la conversación de la semana pasada con las familias que comparten cómo SYNGAP1-una rara enfermedad neurológica genética que causa convulsiones y retrasos en el desarrollo-ha afectado a sus seres queridos. El neurólogo Dr. Ángel Aledo-Serrano vuelve para hablar de los distintos tipos de terapias disponibles para SYNGAP1 y de cómo el Fondo de Investigación SynGap1 ayuda a apoyar la investigación de esta enfermedad rara. Escuche la primera parte: Primera parte: Perspectivas de la comunidad sobre cómo afrontar un diagnóstico de una epilepsia genética Recursos en español Fondo de Investigación SynGAP Recursos adicionales en ingles SynGAP Research Fund (SRF) Brain & Life: How Parents Advocate for Their Children with Rare Diseases Learn more about autism spectrum disorder Learn more about epilepsy Queremos escucharte! ¿Tiene alguna pregunta o quiere que tratemos algún tema en el podcast Brain & Life? Deje un mensaje de voz al tel. 612-928-6206 Envíenos un correo electrónico a BLpodcast@brainandlife.org Redes sociales: Invitados: SynGAP Research Fund @cureSYNGAP1 (Twitter); Dr. Angel Aledo-Serrano @AledoNeuro (Twitter) @aledoneuro (Instagram) Presentador: Dr. Daniel Correa @neurodrcorrea
This week, in the second of two episodes, Dr. Daniel Correa continues the conversation from last week with families who share how SYNGAP1—a rare genetic neurologic disease that causes seizures and developmental delays—has impacted their loved ones. Neurologist Dr. Angel Aledo-Serrano returns to discuss the different types of therapies available for SYNGAP1 and how SynGap1 Research Fund helps support research for this rare condition. Listen to Part One: Part One: Community Stories of Navigating a Rare Epilepsy Diagnosis Additional Resources SynGAP Research Fund (SRF) Brain & Life: How Parents Advocate for Their Children with Rare Diseases Learn more about autism spectrum disorder Learn more about epilepsy We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Guest: SynGAP Research Fund @cureSYNGAP1 (Twitter); Dr. Angel Aledo-Serrano @AledoNeuro (Twitter) @aledoneuro (Instagram) Host: Dr. Daniel Correa @neurodrcorrea
This week, in the first of two episodes, Dr. Daniel Correa speaks with families who share how SYNGAP1—a rare genetic neurologic disease that causes seizures and developmental delays—has impacted their loved ones and how SynGAP Research Fund (SRF) provides them with resources and community. Dr. Correa also speaks with Dr. Angel Aledo-Serrano, a neurologist and director at Vithas Madrid Neuroscience Institute. Dr. Aledo-Serrano explains SYNGAP1, when individuals should consider seeking genetic testing, and how it relates to other genetic neurologic conditions. Additional Resources SynGAP Research Fund (SRF) Brain & Life: How Parents Advocate for Their Children with Rare Diseases Learn more about autism spectrum disorder Learn more about epilepsy American Epilepsy Society (AES) We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Guest: SynGAP Research Fund @cureSYNGAP1 (Twitter); Dr. Angel Aledo-Serrano @AledoNeuro (Twitter) @aledoneuro (Instagram) Host: Dr. Daniel Correa @neurodrcorrea
Esta semana, en el primero de dos episodios, el Dr. Daniel Correa habla con familias que comparten cómo SYNGAP1 -una enfermedad neurológica genética rara que causa convulsiones y retrasos en el desarrollo- ha afectado a sus seres queridos y cómo el Fondo de Investigación SynGAP (SRF) les proporciona recursos y comunidad. El Dr. Correa también habla con el Dr. Ángel Aledo-Serrano, neurólogo y director del Instituto de Neurociencias Vithas Madrid. El Dr. Aledo-Serrano explica SYNGAP1, cuándo las personas deben considerar la posibilidad de someterse a pruebas genéticas y cómo se relaciona con otras enfermedades neurológicas genéticas. Recursos en español Fondo de Investigación SynGAP Recures adicionales en ingles SynGAP Research Fund (SRF) Brain & Life: How Parents Advocate for Their Children with Rare Diseases Learn more about autism spectrum disorder Learn more about epilepsy American Epilepsy Society (AES) ¡Queremos escucharte! ¿Tiene alguna pregunta o quiere que tratemos algún tema en el podcast Brain & Life? Deje un mensaje de voz al tel. 1-612-928-6206 Envíenos un correo electrónico a BLpodcast@brainandlife.org Redes sociales: Invitados: SynGAP Research Fund @cureSYNGAP1 (Twitter); Dr. Angel Aledo-Serrano @AledoNeuro (Twitter) @aledoneuro (Instagram) Presentador: Dr. Daniel Correa @neurodrcorrea
What happens when creators consider what lifelong human development looks like in terms of the tools we make? And what philosophies from Sesame Street can inform how to steward the power of AI and social media to influence minds in thoughtful, humane directions?When the first episode of Sesame Street aired on PBS in 1969, it was unlike anything that had been on television before - a collaboration between educators, child psychologists, comedy writers and puppeteers - all working together to do something that had never been done before: create educational content for children on television. Fast-forward to the present: could we switch gears to reprogram today's digital tools to humanely educate the next generation? That's the question Tristan Harris and Aza Raskin explore with Dr. Rosemarie Truglio, the Senior Vice President of Curriculum and Content for the Sesame Workshop, the non-profit behind Sesame Street. RECOMMENDED MEDIA Street Gang: How We Got to Sesame StreetThis documentary offers a rare window into the early days of Sesame Street, revealing the creators, artists, writers and educators who together established one of the most influential and enduring children's programs in television historySesame Street: Ready for School!: A Parent's Guide to Playful Learning for Children Ages 2 to 5 by Dr. Rosemarie TruglioRosemarie shares all the research-based, curriculum-directed school readiness skills that have made Sesame Street the preeminent children's TV programG Is for Growing: Thirty Years of Research on Children and Sesame Street co-edited by Shalom Fisch and Rosemarie TruglioThis volume serves as a marker of the significant role that Sesame Street plays in the education and socialization of young childrenThe Democratic Surround by Fred TurnerIn this prequel to his celebrated book From Counterculture to Cyberculture, Turner rewrites the history of postwar America, showing how in the 1940s and 1950s American liberalism offered a far more radical social vision than we now rememberAmusing Ourselves to Death by Neil PostmanNeil Postman's groundbreaking book about the damaging effects of television on our politics and public discourse has been hailed as a twenty-first-century book published in the twentieth centurySesame Workshop Identity Matters StudyExplore parents' and educators' perceptions of children's social identity developmentEffects of Sesame Street: A meta-analysis of children's learning in 15 countriesCommissioned by Sesame Workshop, the study was led by University of Wisconsin researchers Marie-Louise Mares and Zhongdang PanU.S. Parents & Teachers See an Unkind World for Their Children, New Sesame Survey ShowsAccording to the survey titled, “K is for Kind: A National Survey On Kindness and Kids,” parents and teachers in the United States worry that their children are living in an unkind worldRECOMMENDED YUA EPISODESAre the Kids Alright? With Jonathan HaidtThe Three Rules of Humane TechWhen Media Was for You and Me with Fred Turner Your Undivided Attention is produced by the Center for Humane Technology. Follow us on Twitter: @HumaneTech_
Solomon begins to build the house of God with wise men who are already in place because his father David had prepared them to be ready to do so for his son for God's glory. Father's Provide for Their Children.
Calif. Bill Would Punish Parents For ‘Misgendering' Their Children https://www.infowars.com/posts/monday-live-show-calif-bill-would-punish-parents-for-misgendering-their-children/
In this episode of Real Talk, KJK Student Defense Attorneys Susan Stone and Kristina Super are joined by Marbella Cáceres, Tammie Sebastian, and Lisa Lutz from the Ohio Coalition for the Education Of Children with Disabilities. Topics that they discuss are the rights of parents with children with disabilities have. The conversation includes how the coaliation empowers parents when getting their children assistance, how parents can get their children with disabilities services, and how to find out if your child has hidden gifts under their disabilities. Links: https://www.ocecd.org/ Phone Number: 1-844-382-5452 Show Notes: (03:00) The Coalition: Fighting for Parent's Rights with Their Children with Disabilities (05:03) How the Coalition Empowers Parents (08:04) Empowered Parents: Resolving Conflict Resolution with Agencies (08:50) How the Coalition Connects Parents with Disability Rights organizations (09:58) On Your Side: The Coalition Also Has Children with Disabilities (13:42) Cover Up: How Schools Focus on Disabilities But Miss Gifts (14:44) First Step: What Parents Can First Do if They Suspect Their Child Has a Disability (15:23) The Three Tiers: What Every Parent Needs to Know (17:28) How the Coalition Helps Families Who Don't Speak English (19:21) What are the Parents Rights (21:35) How the Coalition Helps Parents with Disabilities (23:46) Why Schools are Required to Have a Language Access Plan (24:49) What Over-Identification is and How It Can Hinder a Child (27:16) Parents Best Bet: How the Coalition Interfaces with Other Agencies to Provide Families with More Services (29:59) How Parents Can Work with the Coalition without Hiring Attorney Transcript: Susan Stone: Today we are gonna talk about the darling of our practice, and that is special education law. And I say it's the darling because even before you and I were law partners, I started the practice only dreaming about doing special ed. I still, oh, Kristina Supler: How could there be life before us together? Susan Stone: What there was,there was you and my three kids. Everyone says that. But there was. And it started with special education and one of our guests here today who you'll introduce, Tammie. I remember reaching out to her years ago when I was just a newbie. Trying to break in and create a name for myself and saying, can I come talk about special education? And you were so gracious, Tammie, to host me to give a primer. And I look back then and I think, wow, what I, I wish I had the knowledge and the mileage of life experience and working with clients that I do today. But you gotta start somewhere, right? Supler? That's right. So today we're gonna do a little special ed work. Why don't you introduce it. Kristina Supler: Today we're joined by Tammie Sebastian, Louise Lutz and Marbella Cáceres, who are all with the Ohio Coalition for the Education of Children with Disabilities, which is a statewide nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio. And they also provide services O C E C D. That's a mouthful. That is a mouthful. Much all of special ed alphabet soup we say, right? Yep. They work through a coalition effort with parents and other professional disability organizations. They have individual members. It's been around since 1984 to help with parent training, and we are really pleased to be joined by three fabulous women today. Welcome. Tammie Sebastian: Hi, how are you guys? Susan Stone: We're doing great. We actually just finished recording a whole speech for milestones for their conference. We did a virtual lecture. So we are just back to back today. But to start out, could one of you lovely guests, explain what the Ohio Coalition for the Education of Children with Disabilities. O C E C D is what you do and what your given roles are within the organization. That's a mouthful. But you guys can handle it. Tammie Sebastian: I'm sure Marbella's gonna do that. And I'm sure she's gonna give you the correction on the 1984 when she, so I'll hand it over to Marbella, but 1984 is when we became a P t I. Is that correct? Marbella? Marbella Cáceres: Yes, that is correct. thank you. First of all, I wanna thank you for the opportunity that you're giving the three of us to come and talk about the services. Our pleasure. The most important part. Yes. as you mentioned at the beginning, the coalition has been around long, long time. Early seventies. We became Wow. Yes. And then we were so lucky enough to apply for the federal funded grant to become the parent training information center for Ohio since 1984. So yes, we have been around for over 50 years. Assisting families, assisting educators with anything that has to do about their responsibility that parents have under the special education process. But the most important piece is the rights that the parents have in this process and how they can become informed so they can participate in this important, decision making meetings, for the benefit of the child children. We take our job very seriously. There is not enough that I can tell you about being involved at the coalition. I first became, part of the coalition just to be an interpreter translator. I've been with the coalition of over 17 years now. And I have the privilege to be serving, The stay under my executive director, Dr. Lisa Hickman as the assistant director. Right now I'm the assistant director of the coalition. I have been for the past three years. And I also oversee the multicultural department as the statewide multicultural coordinator, assisting families that do not have English as the first language, or they are limited English proficient. So that's a Tammie Sebastian: big role. it Marbella Cáceres: is. Lisa, Tammie. Tammie Sebastian: Yeah. So Lisa, do you wanna Go ahead. Go ahead Tammie. That's fine. Okay. So yeah, this probably would be the even flow going to, so I actually, and as Susan had mentioned, so I had actually previously served in Lisa's role. And then I'll hand it over to Lisa. But I had covered Cuyahoga County as an information specialist for about nine years. and what did you do? So an information specialist is very unique. So as the state parent training information center, we empower parents to become effective representatives for themselves. And there's really a lot of confusion around advocacy or advocates and information specialists. And what we do is at no cost to parents and alsodistinction between advocate and information specialist. A as you heard, I said we empower parents.We do not come in and speak for parents. We do not act as attorneys for parents. We do that through education, technical assistance, and I'll let Lisa get into that a little bit more, as her role now as the information specialist in Cuyahoga County. But my role now, with the Ohio Coalition is I am the statewide program coordinator and that I wear many different hats. I provide professional development to staff. I also, create and update trainings. look for host, partner with different agencies to bring in statewide webinars. And also we have a lot of project work that we do. We collaborate with the State Department of Education, the Ohio Department of Education, and many other agencies, and do a lot of project work. We're working on some cross agency training right now with empowering families. Just, we have so many things going on. And I don't wanna take up all the time talking about all those things. I wanna give Lisa an opportunity and maybe we could come back around to that. And then also a big part of my role is networking and building those relationships. And that is so that parents can have a seat at the table, and that they can have a voice. Lisa, Lisa Lutz: Hi, I, am Lisa Lutz and I am an information specialist and trainer. I cover not only Cuyahoga County, but Ashtabula, Lake Gaga, Portage Trumbo, Mahoney. So it's a very, wide and busy area. I do a lot of work with the parents. I do go into meetings with parents. I do primarily all virtual at this point because I can't get from one end of my area to the other. And parents seem to feel that they're treated differently when somebody comes in with them. So that support is really important to help them feel more comfortable and more heard and that their voice does have meaning. So that's, Susan Stone: So would you actually file a due process complaint if necessary and serve as an advocate at a hearing? Lisa Lutz: I do not file due process complaints. I am not a lawyer. If a family wants to file a formal complaint with O D E, I will do some suggestions. But I don't write it for them. I can walk them through that. But, that is for them to have that power to say what they wanna say. Tammie Sebastian: And a big part of our role, too, as the state Parent Training information center is offering that conflict resolution, facilitation, mediation, and looking into all those things. We cannot tell a family what to do. But we wanna provide them with all the options. And as you guys are aware, there's administrative review. There's the state complaint process, due process. And so we try to work through all those through training, and through information. Cadre has a lot of resources. The na I think that's the Center for Dispute Resolution, the National Center for Dispute Resolution. So we really try to work through the process with parents. But if that's where they land, we will certainly help and support them through the process. We just don't file on behalf. If that helps. Marbella Cáceres: Obviously, the work that we do, we recognize that sometimes there is systematic issues that need to be resolved for the benefit of that group of children and parents. So in those situations we partner with agencies that do that type of work. We're very familiarized with Disability Rights, Ohio, the Civil Rights office. So we are a center also that provides resources to families. So if they come to us with specific questions like Tammie and Lisa were saying, we guide parents. We give parents options so they can make informed decisions. That is the responsibility that we have as the parent training center for Ohio. Kristina Supler: I really like that all three of you have really in your comments heavily emphasized the importance of parents having a voice in the education of their children. So can you give us some more specifics on how you work with parents to empower them so that they do have voice to make sure that their child is receiving the necessary support and resources. Susan Stone: To make a meaningful benefit for their education post injury? Tammie Sebastian: Yes. Yeah, that's, I'm glad you guys mentioned that. And I, something we probably should have said, cuz I think we just dove right into the work, is we are all uniquely, parents of children with disabilities ourselves. So number one, that is the number one thing that we bring to the table is that lived experience. And when you have that lived experience,it's much easier, for parents to have that trust in knowing that you went through the process, that empathy, that you've went through that process. So I just wanted to come back to that and let you know that I am also a parent of two children with disabilities. My oldest has ADHD and my youngest has autism. And Lisa, also, I, if we could probably go back around and let you know that Lisa, If you wanted to talk about your children too. Lisa Lutz: I have four kids. My oldest has ADHD and dyslexia. had to fight tooth and nail to get him the supports he needed. And all three of my boys have type one diabetes. So I have that medical piece. Susan Stone: And my Interesting, so do you deal with the interplay between Section 5 0 4 of the Rehabilitation Act? The a d a and i d e A? Lisa Lutz: Yes. Yes. Susan Stone: Okay. A lot of people. that's a whole podcast on of itself, how those stages run together. Lisa Lutz: I do a lot of, explaining the difference that, Section 5 0 4 is not the ugly stepsister of the I IEP. Kristina Supler: No, it's all about access, right? Susan Stone: So yes, that is, that is another part of our work as well. And explaining letting them know the difference, helping them understand that, and that you're not gonna have a 5 0 4 and an ip, but,Yeah, and you may not, sometimes you want one over the other. Depends. correct. Love that. Marbella, can you, give us a little personal Marbella Cáceres: Yes. I'm also a parent of three children. My oldest child is 28 now. But she was identify, and that is the unique expertise that I bring because 25 years ago I wasn't able to speak English. And I was the parent that was trying to look for assistance, but, no one opened the door other than the coalition to provide me with my rights in my native Spanish language. So that is the expertise that I bring. I work with families. I have my child who 14, was diagnosed with a specific learning disability because they thought that was just the fact that she was learning English. And Oh my gosh, wow. And then my male child is gifted, so I have that expertise. Also to navigate that is another elephant in the room with a gifted education. And my little one was diagnosed when he was three with ADHD and is under the spectrum autism spectrum disorder. So like Tammie and Lisa, the experience is very personal. So it is the unique characteristic that sometimes bring us to the level of understanding parents, what they go through and how much they struggle. Susan Stone: Yeah, and I just wanna point out that parents of what we call two E twice exceptional kids have their own struggles. Because a lot of schools, if a student is doing well and getting good grades, what's the problem? What's the problem? It's almost impossible. Those are our biggest fights with school are those two we kids. Yeah. Tammie Sebastian: Yeah. we do. So we're all shaking our heads, because we all are relating because if we had even a penny for every time we heard about the grades. The grades, yes. Susan Stone: The yes. But Johnny has no friends and can't sit still. Tammie Sebastian: Yeah. That there's no other impact but grades. And yeah, I think we've all experienced that. I could just tell you from personal experience, my daughter, unfortunately was identified very late as gifted in her 11th grade year. what? That's great. Wow. Yeah. Yeah. Yeahinteresting interesting. It was in, I should, let me back up. It's not, she was gifted in one area. But the psychologist was so shocked to find out that nobody thought to give her this test and this assessment, and wanted to know why she wasn't in honors. And I said, they. her ADHD was so glaringly obvious that nobody could see that giftedness and they didn't test. So I think we've all experienced that at some level. But yeah, it's, the grades, the, our choice exceptional children. there's so much, we could probably do this podcast once a week with you. let's save our topics. Yeah. Susan Stone: So the parents who suspect their child has a learning disability, what would you describe as the first steps a parent should take? Kristina Supler: What does that look like? Lisa Lutz: To request a meeting with the school to, if they feel like they have a learning disability, to say that you,want a me a team meeting to discuss what interventions and different supports have already been put in place. And then possibly getting a multi-factor evaluation. Susan Stone: Lisa, can I press you a little bit because I think a lot of parents don't know that even before the I E P process, in the planning meeting in the E T R, can you go through what an response to intervention is and what the tiers are? Because I think sometimes we overlook those options. Lisa Lutz: We do. it's a three-tiered, system similar to the P B I S program. That the tier one is what everybody gets. It is the general education. The tier two is some when a student is struggling a little bit to see what other supports they might be able to put in place, whether it's math or ELA or what area that might be in, but adding additional supports, not in place of, but additional supports. And then the tier three is when you really need direct instruction. basically through an I E P. Tammie Sebastian: And if I could just add, I don't know if you were gonna go to go any further with this, Susan. But a lot of times we see our children, being stuck in that R T I process. Oh yeah. I'm well aware. Sometimes for years. And one of the things that we always bring up is that the federal law does say that they cannot use response to intervention to delay an evaluation. And I think that's really important to talk about. And I always say, when we're supporting parents, I always say, that's great. Keep collecting your data. But let's go ahead and evaluate, keep, go, keep doing the response to intervention. But let's go ahead and evaluate. Susan Stone: And I've had denials to evaluate because they're saying the response to the tier two works so well, why do you need us to evaluate? That's a goodie, huh? Tammie Sebastian: Yeah, because, Lisa Lutz: yeah, that's there, the response to intervention, you're not going to have those through high school. They're not going to be doing those response to interventions on that level as in first and second grade. And if they need that in order to be successful within that school class, in that school system, then they need to see what other supports and services that they're gonna need ongoing. Marbella Cáceres: For my, because the approach that sometimes I have for my families, many of my families are immigrant families that come here to assist them that probably is a non-existent system in our countries. Okay. So try to understand how everything connects and how everything works and what the responsibilities for a school the schools are is a very Outside subjects for them. Even, some of the terms that we use in special education do not exist, in other languages. So trying to understand that. One way that I present it to my families is always, that is help that the schools use for struggling learners, for somebody that is having a hard time that, need that direct instruction, very specific guided instruction that has a beginning, that has a middle, that has an end. And also, that is followed with fidelity. So those are the things that sometimes I cannot bring down to my families for them to understand how those systems connect with each other. Everything has to be in harmony for the student to have gain and education. And then it's not, the academics is the social-emotional part of the student as well. Tammie Sebastian: Yeah, I, and I just, I wanted to just add one more thing to response to intervention. If a child's in response to intervention for three years, then I guess they're not responding to intervention. That's just, you think well, So that's just my simplistic, Kristina Supler: I think that's well said. I'm wondering for a, again, a theme of this discussion has been parents having voice and empowering them. So when parents are navigating this process of obtaining services for their children, what are some of the key rights that parents should keep in mind and not lose sight of? Tammie Sebastian: Honestly, every parent comes to us and we talk a lot about this amongst us as staff and as parents. Every parent comes to us at a different, where they might be in the process. It really depends. But one of the first things and I know we all have different ways of working parents. But I think collectively as an organization is the first thing we do is let that parent just release everything they need to release. When they come to us, they, it's, there's a lot going on. We just listen. Sometimes the first phone call, we're just listening to them. Maybe the first couple of phone calls. But then I think the key things that we want them to to know is we reallythey we really have to emphasize their rights and that is so overwhelming. That is such an overwhelming process. So we try to break it down. And we do a really good job of like, when we go through, And we start working through the process. Now, if they're a parent that's new in the process, obviously, we're gonna talk about whether or not, they, whether or not what, you know, what's been going on. And I think Susan had said, you know what? I, Susan and Lisa were talking about initially, what do you tell the parents to do? And so we talked through that process. A lot of data collection, making sure that they're collecting data. So documentation is huge. We tell parents, that's one of the ver the very first, simplest, simplistic things that they can do is make sure they have documentation and data collection. Because so many times parents are like, we've had these conversations. I've had these conversations. What was the response? I don't know. Or they told me they were gonna do this. And really, if we can get them anywhere, just say, collect that data from the beginning. and then again, just, Susan Stone: and Tammie, I just wanna interrupt. You're assuming the parents have the executive function skills to do that? Kristina Supler: Oh, great point, Susan. Because I often, it's, yeah, it's a big assumption that the parents are able to navigate this. Cuz this can be a very complex and overwhelming process. Susan Stone: And a lot of disabilities are, you oftentimes we'll see a parent with a similar disability. And they can't get organized or they don't have the luxury of getting organized. I wanna many children, jobs, parents. Yep. Yep. And to juggle Team meetings, by the way, are in the middle of the day. It's hard. I know districts will try to make it early or late at the end of the day. But the executive function skills you need when you have a student with issues, it can be quite overwhelming. Tammie Sebastian: That's right. And that's why I said we really have to meet the parent where they are at. And sometimes it is. and I know Marbella can speak to this too. Because she has a barrier with some of her families with the language. So that takes an extra layer of being able to develop. start starting that process. Susan Stone: and Marbella I just wanna ask, does what languages can be assisted by your organization? Obviously Spanish, but I know that we really live in a very multicultural world. So what other languages can you help Marbella Cáceres: Any language. Any language that is spoken. Any parent. We obviously have multicultural information specialists that speak for Somali, French, Italian, spanish, Arabic and the ones that we don't have in the house that are working part-time or full-time, we contract with agencies across the state that can provide interpreter agencies that can provide. So no family that comes through our door is left with no help. And there are some times,many times we deal also with parents that are struggle with literacy that cannot read and write. Parents with special needs their themselves, like you were mentioning. Like Tammie said, we meet the family with the family is, for instance, my family. Sometimes, if you start talking to them right away about these are your rights, they're going to shut down. So we need sometimes to a, identify those barriers, respectfully, work with them as much as possible to overcome some of the challenges because parents need to be engaged, parents need to participate, and many limitations that they have is due to a school's not doing the right thing either. So it's okay, now you are aware that every single school district needs to have a language access plan. Now you know that. Now it's not a favor that they're doing to you by you requesting an interpreter. But you requesting this support for you to be engaged, for you to be involved, for you to be a fully participant in those meetings, you need to have this support. So the school is mandate to provide you that support. I So once they know that they are empowered, at least to start this conversations. Susan Stone: Yeah. I wanna share a personal story. My grandparents. My grandmother especially spoke initially very little English. And my mother said that when she went to kindergarten they thought she was cognitively impaired because she really spoke yiddish, which is really interesting cuz it's an almost dead language now. But they viewed her as, Having special needs, but really it was because she was raised and English was not the primary language of the home. So I hear ya. Tammie Sebastian: We've done a lot of work around that, bringing in Steven Gill,national speaker, and, talking about the over-identification. So especially when it comes to language. And whether or not that is you know, the process that they need to go through, whether or not that is a, true learning disability or language issue. And I just wanted to say something to come back really quick on this is, I wouldn't say a personal story, but an advocacy story. That when we work with parents and meeting them where they're at, I actually, in Cuyahoga County worked with a lot of families who, in underserved communities and, also coming from an underserved community myself. And mom was, or grandma I should say, I'm sorry, had full custody, was not able, very little reading, very little writing. But as we walked through the process every step of the way, even though she was not actually writing those things or,she was verbally telling me what to write, how. And she, and even in the places when we started, we had to go file a complaint. And even then I did not take over for her. I had her sitting with me and she was part of the process whether she was organizing papers, whether she wasjust helping,to tell the story along the way. She was part of writing that complaint and it empowered her so much that she's gone on to actually be a great collaborator with the district she's in because they held her in such high regards after she fought so hard for her grandson. So I. I think it's even more important to empower those parents who might not be,who might not have those executive, who might have a disability just as their child. I think even more and I think that we talked a little bit about that Marbella and I, about that empowering piece of just starting off with giving them where they're, or meeting them where they're at, giving them what they need to get onto the next piece. Kristina Supler: That's a really nice, uplifting story, Tammie, and listening to the three of you, you're a wealth of knowledge individually and even more so collectively. And so tell our listeners a little bit about how you collaborate with other organizations and agencies to advocate the needs for, the needs of children with disabilities at the state and national level. Tammie Sebastian: Ooh, so we got a really good one. I love a Susan Stone: who, you got an we have a really big moment. Tammie Sebastian: I know, and I hope parents and professionals will be excited as well. It's no secret. But the Ohio Coalition,was asked to partner with the Ohio Department of Education to look at our parent notice, which is our procedural safeguards. And our last parent notice was called a guide. And for those of you who really have been through the process of special education, they'll probably remember whose idea. And so the procedural safeguards have to have those, so those that's the parent notice. And it has to be provided to parents andat an initial evaluation,when they request, when they provide consent, pretty much every time they turn around. And I have to tell you, and we're trying to get away from the stigma or the joking of you could probably paint your house with these. Because it takes away the seriousness of how important this document is. And so we got have been given the opportunity to partner with the department and rewrite the parent notice. And, that started a year ago, that process. And there was rule revisions from the operating standards that needed to be changed every five years. The Ohio Operating Standards go through a rule revision process. And we, just completed that this week we will be presenting it at the state advisory panel for exceptional children. How exciting. Exciting. Yes. And then we are going to be doing a series of trainings and rollout. It's, it will roll out next year. But there's gonna be a lot coming with this to educate parents. We're very excited about that. I couldn't think of a better way to talk about a collaboration. And this is very, very important because we we really want to model for parents that you can honestly be in disagreement with your district and you're gonna have up and downs and there might be conflict. But you can still partner with them and make sure that the child is always the goal. And we've done that with the State Department of Education. So we hope we can model that to parents and districts alike to make sure that they're working through that process. I'm sorry, I got a little long-winded. I'm very excited about. Susan Stone: I think we asked the right questions. I'm loving the responses. I'm gonna conclude with a final question to all three of you lovely ladies. What can Kristina and I as attorneys in this space, what's the most important thing you'd like to see from us? Kristina Supler: Ooh. That's a good question. I like it. Susan Stone: I'm bringing it back to us, it is our podcast Tammie Sebastian: Oh we're thinking hard? Kristina Supler: Yeah, I can tell. I can tell. Lisa Lutz: I think one of the things that is overwhelming for parents when they feel like the council, when they see council is the monetary commitment. And a lot of my families do not have that. I don't know how you structure your financial pieces. But keeping that in mind and possibly having a plan and a program to help families that do not have that, those resources. Susan Stone: And that's a, that's, and I agree that is a serious issue that Kristina and talk about Of course. We are lawyers. That's our job. We're not funded by an agency. And I think the biggest challenge we have is that we have seen attorneys immediately move to filing a new process complaint because that's the only mechanism that they can think of that if they prevailed, they would get attorney's fees. I'm gonna be very, this is real talk. We won't do that we won't sue just for the sake of getting our fees. In fact, I refuse to do that because you couldn't that's not ethical to me. Kristina Supler: and it's often not in, in the best interest of meeting and serving the needs of the child. Susan Stone: So we just don't do that. Tammie Sebastian: we say, I'm so excited to hear that I, yes, Susan Stone: So we are hourly. and we are sadly, we're not a resource for someone who cannot, a family that cannot pay our fee because of course, it's our job and that's how we get paid. On the other hand, we don't file lawsuits that don't have merit.It's a real issue. And I think that's what we try to do as a other solution, is that we work with on our own staff a parent advocate who's at a lower rate than ours. So we try to, what we call staff responsibly. The problem we have is a lot of times people want us. Yeah, and it's a real challenge. It's, this is a real challenge and our hearts go out, but Right. Tammie? Marbella, what are your thoughts? Tammie Sebastian: If you don't mind, Marbella. Do you mind if I, because I can answer. Go ahead, Iggy. Back off of, yeah, I can piggyback off of that. I, It was interesting because, you had said at the beginning that we, did a, had a training years ago, and it ties into what you're saying. You're not filing for the for the sake of filing. It's whether it's, in the best interest of the family. I. that would go to say that you would love to be proactive in the process and and I think actually having us here today speaks volumes to that. Me, as the person who needs to bring in statewide presenters, I think I would love to bring you guys in, to do some statewide webinars. And maybe collaborate on some trainings. So that's, Susan Stone: That would be our way of Wonderful. Yeah. Yeah. We would love to train people to advocate. It's a, if you's great. Thanks Tammie. For sure. Yeah. This was incredible. Ladies, do you have any final parting words that you would wanna share? And we'll send you this podcast so you can share it around. Because I think we've touched on a lot of important issues. Tammie Sebastian: We have. Marbella, did you wanna go since you were, Marbella Cáceres: I just want to tell parents, if they're listening to this, that every day is a day of an opportunity to know a little bit more of what you know, what you knew the day before. Cause sometimes as parents will feel guilty of not knowing what is the right thing to do for our children. I tell my, my families, you know your child better. And we always repeat that anybody here you have the best interest in the child. And go by your gut instinct. As mothers we're very unique, situated. God give us an extra sixth sense to follow that direction. So I just wanna encourage parents, if they have questions, anything that we can do as an agency for them. We are here to support you and empower you every way possible. Tammie Sebastian: And I would just say the same thing. I would just just go a little bit deeper and say, that if you think, like Marbella said, she said if you have that gut instinct to go on it, it never hurts to get the information. And sometimes it's just coming to get some information and empowering yourself. Opening yourselves up to that. And I also wanna put, if you don't mind our intake, number out there, so please, that way please. yeah, so it's 1-844-382-5452 and you will be connected with Martha Lausé. She is our intake referral specialist. And so anywhere in Ohio you're at, she'll be able you to direct you. Like Marbella said, we cover the entire state of Ohio. There's not a language out there. we don't turn anybody away that a language out there that we don't serve. And again, just thank you guys for giving us the opportunity to reach parents. Because that's always that's always the challenge is we get parents that come to us and say, I wish I would've known about you guys. And it's so hard for us to hear. So this helps us with our outreach. And then I'll hand it over to Lisa. Susan Stone: And this is our podcast is our way of really talking about the issues that need to be talked about. Opening up up the idea of resources, opening up minds. And so for those parents who need free or and affordable resources. We are so grateful to the coalition. Lisa, what are your thoughts? Lisa Lutz: I just wanna thank you for having us and,tell parents that w we're here, we're, we are here for you and, we're here for your child. We want the best for them. And, we will help you learn to be their best advocate. Susan Stone: And, again, we would, Kristina and I would love to come in and train people to be self-advocates. So thank you for that idea. Kristina Supler: This was a real treat. Thank you for taking time out to speak with us today.
What's your neuro emergency plan?https://twitter.com/cureSYNGAP1/status/1646170843503034368 Congrats to Dr. Frazier on the FIRST NET paper: https://twitter.com/cureSYNGAP1/status/1646573476353044481 Thanks to Kevin for going to Gatlinburg - Kevin https://twitter.com/cureSYNGAP1/status/1646530060227346433 - ORCA https://twitter.com/cureSYNGAP1/status/1646212570649604097 Thanks to Brain & Life, part of AAN for this article "How Parents Advocate for Their Children with Rare Diseases” https://www.brainandlife.org/articles/after-their-children-were-diagnosed-with Sibling day John https://youtu.be/J5oBo9zcRUE LGS https://www.youtube.com/watch?v=kR1nWSEZPfY Webinars McKEE 4/27 https://syngap.fund/mckee SMITH 5/11 https://syngap.fund/smith Ciitizen SYNGAP1 count is over 2101 - Sign-UP https://ciitizen.com/syngap1 - Sign-IN & Update https://app.ciitizen.com/ Rare News Updates 1. Hot off Presses, Stoke is talking about TANGO and mentions their SYNGAP1 work with Acadia https://knowablemagazine.org/article/health-disease/2023/hope-for-haploinsufficiency-diseases 2. SCN2A Clinical Trial Site and Video, which is very good! https://www.youtube.com/watch?v=z9SqMSO405I https://scn2aclinicaltrials.com/ 3. Frog update: See what Dr. Helen Willsey is doing here: https://youtu.be/Gp8sROAm5D8 #Sprint4Syngap - 14 days, April 29, 2023 - https://syngap.fund/sprint - Fundraising page: https://syngap.fund/sprint23 #MDBRSRF - 56 days - June 10, 2023 syngap.fund/mdbr23 #SyngapConf - 229 days - book now, November 30, 2023 - Conf pre-registration link: Syngap.Fund/2023conf - Book hotels ASAP: https://syngap.fund/2023hotel Remember the todos in #S10e100 - https://www.youtube.com/watch?v=CCjPkabkR1A - Education survey https://forms.gle/YZJZmJavMNKNEBg88 - Biorepository Roadshow - https://syngap.fund/roadshow List of biorepository collection opportunities, watch this webinar for more information see https://syngap.fund/TJB - MED13L Foundation on April 30th, 2023 (Philadelphia, PA) - DYRK1A Foundation, June 23rd-25th 2023 (Bethesda, MD) - KDVS Foundation, July 19th-21st 2023 (Orlando, FL) - STXBP1 Foundation, July 21st-23rd 2023 (Westminster, CO) - Yellow Brick Road Project, July 30th-August 2nd (Jacksonville, FL) - (Potential) DUP15/Angelman, July 27th-29th 2023 (Nashville, TN) - (Potential) KAND, August 3rd-6th 2023 (Queens, NY) - (Potential) Global Genes, Sept 19th-20th 2023 (San Diego, CA) - IRF2BPL Foundation, Sept 22nd-23rd 2023 (Cincinnati, OH) - USP7/Prader Willi, Oct 5th-7th 2023 (Denver, CO) - TBRS Foundation, Oct 12th-14th 2023 (San Antonio, TX) - COMBINEDBrain Meeting, Oct 15th-16th 2023 (Washington DC) - ADNP Kids Research Foundation, Oct 30th-Nov 1st (Los Angeles, CA) - (Potential) Angelman Foundation, November 2023 (Orlando, FL) - SYNGAP1 Research Fund, Dec 1st-3rd 2023 (Orlando, FL) There is so much work to do, volunteer Info@SyngapResearchFund.org This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here - https://www.syngapresearchfund.org/syngap10-podcast Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818 Episode 101 of #Syngap10 - April 15, 2023 #frogs #biomarkers #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat --- Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message
SRF Supported Publication on NET, Siblings, Webinars, Frog Video, Clinical Trial Questions… #S10e101 What's your neuro emergency plan? https://twitter.com/cureSYNGAP1/status/1646170843503034368 Congrats to Dr. Frazier on the FIRST NET paper: https://twitter.com/cureSYNGAP1/status/1646573476353044481 Thanks to Kevin for going to Gatlinburg - Kevin https://twitter.com/cureSYNGAP1/status/1646530060227346433 - ORCA https://twitter.com/cureSYNGAP1/status/1646212570649604097 Thanks to Brain & Life, part of AAN for this article "How Parents Advocate for Their Children with Rare Diseases” https://www.brainandlife.org/articles/after-their-children-were-diagnosed-with Sibling day John https://youtu.be/J5oBo9zcRUE LGS https://www.youtube.com/watch?v=kR1nWSEZPfY Webinars McKEE 4/27 https://syngap.fund/mckee SMITH 5/11 https://syngap.fund/smith Ciitizen SYNGAP1 count is over 2101 - Sign-UP https://ciitizen.com/syngap1 - Sign-IN & Update https://app.ciitizen.com/ Rare News Updates Hot off Presses, Stoke is talking about TANGO and mentions their SYNGAP1 work with Acadia https://knowablemagazine.org/article/health-disease/2023/hope-for-haploinsufficiency-diseases SCN2A Clinical Trial Site and Video, which is very good! - https://www.youtube.com/watch?v=z9SqMSO405I - https://scn2aclinicaltrials.com/ Frog update: See what Dr. Helen Willsey is doing here: https://youtu.be/Gp8sROAm5D8 #Sprint4Syngap - 14 days, April 29, 2023 - https://syngap.fund/sprint - Fundraising page: https://syngap.fund/sprint23 #MDBRSRF - 56 days - June 10, 2023 syngap.fund/mdbr23 #SyngapConf - 229 days - book now, November 30, 2023 - Conf pre-registration link: Syngap.Fund/2023conf - Book hotels ASAP: https://syngap.fund/2023hotel Remember the todos in #S10e100 - https://www.youtube.com/watch?v=CCjPkabkR1A - Education survey https://forms.gle/YZJZmJavMNKNEBg88 - Biorepository Roadshow - https://syngap.fund/roadshow List of biorepository collection opportunities, watch this webinar for more information see https://syngap.fund/TJB - MED13L Foundation on April 30th, 2023 (Philadelphia, PA) - DYRK1A Foundation, June 23rd-25th 2023 (Bethesda, MD) - KDVS Foundation, July 19th-21st 2023 (Orlando, FL) - STXBP1 Foundation, July 21st-23rd 2023 (Westminster, CO) - Yellow Brick Road Project, July 30th-August 2nd (Jacksonville, FL) - (Potential) DUP15/Angelman, July 27th-29th 2023 (Nashville, TN) - (Potential) KAND, August 3rd-6th 2023 (Queens, NY) - (Potential) Global Genes, Sept 19th-20th 2023 (San Diego, CA) - IRF2BPL Foundation, Sept 22nd-23rd 2023 (Cincinnati, OH) - USP7/Prader Willi, Oct 5th-7th 2023 (Denver, CO) - TBRS Foundation, Oct 12th-14th 2023 (San Antonio, TX) - COMBINEDBrain Meeting, Oct 15th-16th 2023 (Washington DC) - ADNP Kids Research Foundation, Oct 30th-Nov 1st (Los Angeles, CA) - (Potential) Angelman Foundation, November 2023 (Orlando, FL) - SYNGAP1 Research Fund, Dec 1st-3rd 2023 (Orlando, FL) There is so much work to do, volunteer Info@SyngapResearchFund.org This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here - https://www.syngapresearchfund.org/syngap10-podcast Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818 Episode 101 of #Syngap10 - April 15, 2023 #frogs #biomarkers #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
Joining us in this episode of Adopt Perspective is a Queensland mother who lost a daughter to adoption in 1976. Kathryn Rendell was also a member of the National Council for Single Mothers and Their Children (now Single Mother Families Australia Inc.) and was a member of the national Forced Adoptions Apology Reference Group and the Forced Adoptions Implementation Working Group – formed in 2013 to provide key advice to government on services and projects to improve support for people who have been affected by these practices. Kathryn shares with us her personal story and her experience of serving in these two important groups. This episode discusses adult themes and listener discretion is advised. For more information go to http://www.jigsawqueensland.com/episode-notes Your host is Dr Jo-Ann Sparrow - President of Jigsaw Queensland (www.jigsawqueensland.com) Connect with us Instagram - adopt_perspective_podcast Facebook - Jigsaw Post-Adoption Centre Queensland We acknowledge the traditional custodians of the land on which we work and the many lands that our clients now live on and we wish to acknowledge and show our respects to Elders past and present for their continuing connection to culture and the contributions they make to community. We acknowledge how much we have to learn from them and their unique understanding of connection and adoption and their recognition that at the base of every change is truth telling and healing.
This episode may include some triggers for individuals that have suffered with infant loss. The purpose of this episode is to bring awareness around SIDS and the potential risks of vaccines. "There are unansewered questions about vaccine safety. No one should be threatened by the pursuit of this knowledge" Bernadine Healy, MD, former director, National Institutes of Health (NIH) Leigh of Brooks Mission, shares her heart wrenching journey of losing her son 20 days after the DTAP (whooping cough) vaccine. She knew the risks of vaccines, she did not give any vaccines in the hospital, her plan was to space them out and he got his first and only vaccine at 3 months old. In a devestating turn of events they found out that for some children, one shot it all it takes and their sweet Brooks never woke up from his nap on May 20th 2021. He was a perfectly healthy and thriving baby in every way prior to his death. They soon found out that the nightmare they were living occurs to approximately 2000 babies a year. SIDS (Sudden Infant Death Syndrome) is the leading cause of death in infants from 1 to 12 months. Despite the significance of this statistic, researchers know as much now about the causes as they did 50 years ago. There are no treatments. There are no tests. They are determined to have Brooks remembered as having made a difference in this world. In his name, they have helped over 60 families navigate through the loss of a child. Through a variety of events, they have also raised awareness surrounding SIDS as well. Since October 2021, they have helped over 60 families. Many families do not have employers who stand behind them while they grieve. Many families do not have the type of community surrounding them that we had at our lowest points. Your support of Brooks Mission will help families at their lowest moment. Your support will allow families the opportunity to grieve uninterrupted, without the additional stressors of life. Your support will hopefully allow researchers to continue to look for ways to prevent the tragedy our family endured in the future. You can find Leigh on Instagram @authenticleigh_ and @brooks_mission. Their website for their charity is www.brooksmission.com Resources/Books Mentioned in this episode: Dissolving Illusions: Disease, Vaccines, and The Forgotten History by Suzanne Humphries The Vaccine Book: Making the Right Decision for Your Child by Dr. Sears A Mom's Guide to the Covid Shot by Dr. Christiane Northrup Vaccine Epidemic: How Corporate Greed, Biased Science, and Coercive Government Threaten Our Human Rights, Our Health, and Our Children How to Raise a Healthy Child in Spite of Your Doctor: One of America's Leading Pediatricians Puts Parents Back in Control of Their Children's Health by Robert S. Mendelsohn MD Turtles All The Way Down: Vaccine Science and Myth by Anonymous Author
This week, host Elisa runs through the latest national security headlines, covering Xi Jinping's visit to Moscow, political turmoil in Israel, the International Criminal Court's recent charges against Russia, and more. References: The Rome Statute and associated articles: https://www.icc-cpi.int/sites/default/files/RS-Eng.pdf Egozi, Arie. “Improved Saudi-Iran Relationship Has Israel Nervous - about Iran, and about China.” Breaking Defense, 20 Mar. 2023: https://breakingdefense.com/2023/03/improved-saudi-iran-relationship-has-israel-nervous-about-iran-and-about-china/. Trevelyan, Mark. “Russia Defies Putin Arrest Warrant by Opening Its Own Case against ICC.” Reuters, Thomson Reuters, 20 Mar. 2023: https://www.reuters.com/world/europe/russia-opens-criminal-case-against-icc-judges-prosecutor-over-putin-arrest-2023-03-20/. Trofimov, Yaroslav. “Japanese Premier Visits Kyiv as Ukraine War Divides Asia.” The Wall Street Journal, Dow Jones & Company, 22 Mar. 2023: https://drive.google.com/file/d/1dGvLndoVxB02f2-fNwimhrBCmRF6dqQP/view?usp=share_link Khara, Ali. “Afghan Women, Banned from Working, Can't Provide for Their Children.” The Wall Street Journal, Dow Jones & Company, 3 Mar. 2023: https://drive.google.com/file/d/1V3CZ4x3PDr-ecr4FGr5SW2hrhmB6DpBj/view?usp=share_link Shah, Saeed. “Taliban Leader Faces Blowback over Girls' School Ban-from His Own Movement.” The Wall Street Journal, Dow Jones & Company, 22 Mar. 2023, https://drive.google.com/file/d/1Dq1CDo4SoOOoxb4LaGCZttRagqltTrLP/view?usp=share_link
Episode 565: Russ And Geoff Courtnall Stop By The Show Full Interview: https://youtu.be/_rdH-SD_Gh4 Russ & Geoff Courtnall Talk Childhood, Junior Hockey, Draft Day: https://youtu.be/eDBcu42IpzE Russ & Geoff Courtnall Talk Roenick Hit, Olympic Closing Ceremonies Story, Phil Blake: https://youtu.be/DYExtoStQF4 Russ & Geoff Courtnall Talk Stanley Cup Runs, Being Traded, Wanting Out Of Washington: https://youtu.be/gMHNgSL1Bro Russ & Geoff Courtnall Talk St. Louis, Running Jamie Store, Concussions: https://youtu.be/89r6jiuNRuA Russ & Geoff Courtnall Talk Being Traded To Vancouver, Minnesota Moving To Dallas: https://youtu.be/Bovz-J661LU Russ & Geoff Courtnall Talk Best Fights, Best Road Cities, Worst Leaf Trade Ever: https://youtu.be/L38a3y8jh-k Russ & Geoff Courtnall Talk 94 Cup Run, Battle Of The Blades, Their Children, Pre Game Rituals: https://youtu.be/_xkNz8rlYNk Russ & Geoff Courtnall Tell Gino Odjick Road Trip Story: https://youtu.be/9rAVhzt_qEU Linktree: https://linktr.ee/ionlytouchgreatness
Dr. Halley Alexander discusses the Neurology Today article, "Use of High-Dose Folic Acid in Pregnant Women with Epilepsy Is Associated with Cancer Risk in Their Children". Show references: https://journals.lww.com/neurotodayonline/Fulltext/2022/11030/Use_of_High_Dose_Folic_Acid_in_Pregnant_Women_with.2.aspx This episode is brought to you by Mass General Brigham Department of Neurology, please visit us at www.massgeneralbrigham.org.
Happy Holidays! For the last episode of 2022, the Mamas are leaving listeners with a special gift – a visit from journalist Masha Rumor, the author of the new nonfiction book for adults titled, Parenting with an Accent, How Immigrants Honor Their Heritage, Navigate Setbacks, and Chart New Paths for Their Children. Laugh along with the Mamas as they dig into the importance of food, community and house slippers to cultural identity. You'll definitely be Googling Herring Under a Fur Coat by the end of the episode. Treat yourself and listen in! Book Chat:Parenting with an Accent, How Immigrants Honor Their Heritage, Navigate Setbacks, and Chart New Paths for Their Children by Masha Rumorwww.twolitmamas.com
Ask anyone who's ever dealt with a "cancer mom" and they'll tell that they're tough as nails and never want to hear the odds. They'll also tell you that donating blood is huge. That's the message that Christine O'Connell and her "cancer moms" are spreading right now because September is Childhood Cancer Awareness Month. Bloodworks 101 producer John Yeager takes us to the Bloodworks' Bellevue Donor Center where he shares the powerful story of Christine and her friends, some of whom have lost their kids to cancer. But regardless the outcome of their life and death stories, they're all here, donating blood in the Names of Their Children.
This is The Briefing, a daily analysis of news and events from a Christian worldview.Part I (00:13 - 10:45) Ground Zero for the Battle over Education in Public Schools: Florida and Public School Libraries — And There We Watch the Shaping of the Future of Education in the U.S.Back to School in DeSantis's Florida, as Teachers Look Over Their Shoulders by New York Times (Sarah Mervosh)Part II (10:45 - 18:08) From Early American Classrooms to the Common School to Massive Public School Systems: Big Questions Now LoomPart III (18:08 - 24:39) The Big Question in the Public School System Debate: ‘How Much Say Should Parents Have in the Education of Their Children?' — And So Much Rests on Who Presents the Winning Argument'The Perfect Target'? Movement to Ban Books from Schools Brings Vitriol Toward Librarians by USA Today (Alia Wong)Sign up to receive The Briefing in your inbox every weekday morning.Follow Dr. Mohler:Twitter | Instagram | Facebook | YouTubeFor more information on The Southern Baptist Theological Seminary, go to sbts.edu.For more information on Boyce College, just go to BoyceCollege.com.To write Dr. Mohler or submit a question for The Mailbox, go here.
Episode 51 - Dan Teller, Guest ConvoDan Teller is the founder and director of The Good Shepard Catholic Montessori (GSCM) in Cincinnati, Ohio. Since its founding in 1998, GSCM has grown from 28 students in Preschool and Kindergarten to over 200 students up through eighth grade. Dan has dedicated his career to education, having worked in various public and private school settings, including being a traveling Formation Leader who trains catechists in the "Catechesis of the Good Shepard" program. Dan has been married for 40 years and has seven children and two grandchildren. Chad carefully curates the conversation for this episode's exchange of rare ideas. Ben stands guard, baton (still) in hand, ready to swing into action, as the two elicit educational insights from this experienced guest. Where did the Montessori school concept come from and how does it different from more common approaches to schooling? What are some innovative and effective ways to go about transmitting the faith to our youth? What advice does our guest have for dads when it comes to their children's education? SHOW NOTES:School Dan founded: History - The Good Shepherd Catholic Montessori (gscmontessori.org). Swiss study referenced by Dad: Fathers: Key to Their Children's Faith | Opinion News (christianpost.com)
On April 28, 2022, historian Jane Turner Censer presented a lecture about the literary career of Amélie Rives. By 1890, Amélie Rives was well-known all over America, both as the author of a scandalous novel and as a beauty who had married a very wealthy heir of New York's Astor family. Only five years earlier, Rives, then a twenty-two-year-old living in the family plantation outside Charlottesville, had burst upon the literary scene with a short story in the "Atlantic Monthly," arguably the nation's most prestigious literary magazine, and a poem in the highly regarded Century Illustrated Monthly. Jane Turner Censer draws from her new biography, "The Princess of Albemarle: Amélie Rives, Author and Celebrity at the Fin de Siècle," to explain how Rives went from anonymity to a household name. In her quest to become a published author, Rives deployed charm, unconventional behavior, and family connections to bring her stories and poems to the notice of prominent publishers. Censer also indicates how Rives, while achieving celebrity and a literary career, struggled with the expectations of her society, her family, and her own notions about propriety. Jane Turner Censer, Professor Emerita of History at George Mason University, is a specialist on the nineteenth-century United States and southern women. Her essays and prize-winning articles have appeared in numerous journals including the Journal of Southern History, Comparative Studies in Society and History, American Journal of Legal History, Southern Cultures, and American Quarterly. In 2017–18 she served as president of the Southern Historical Association. She is the author of several books, including "North Carolina Planters and Their Children, 1800 1860"; "The Reconstruction of White Southern Womanhood, 1865–1895"; and, most recently, "The Princess of Albemarle: Amélie Rives, Author and Celebrity at the Fin de Siècle." The content and opinions expressed in these presentations are solely those of the speaker and not necessarily of the Virginia Museum of History & Culture.
The news of Texas covered today includes:Our Lone Star story of the day: Three stories in the press review stack show there is a culture of corruption of one kind or another in our Texas public schools. It certainly isn't everyone but it is widespread and people beginning to notice such is why school board races are heating up, not just the conservative Republican fightback against the Left's promotion of sin to our children. SEC charges Crosby ISD, former CFO with misleading investors as it sold $20M in bonds Panel Exposes Disconnect Between School Bond Promoters and Property Taxpayers More Texas Parents Find Pornographic Books in Their Children's School Libraries Texas' traditionally sleepy school board races are suddenly attracting attention — and money Our Lone Star story of the day is sponsored by Allied Compliance Services providing the best service in DOT, business and personal drug and alcohol testing since 1995.More absurdity on the Harris County elections debacle. Now resigned administrator says her staff members were too tired to count ballots (it's done by computer) and giving evidence that the League of Women Voters is not a respectable organization it chooses to honor this disgraced elections administrator.Tacitly admitting reported problems with the Texas National Guard Operation Lone Star border deployment were genuine, Gov. Abbott replaces Texas' top general - post election. And, other news of Texas.Listen on the radio, or station stream, at 5pm Central. Click for our affiliates.www.PrattonTexas.com