Podcasts about national psoriasis foundation

Not sure what Minimal Disease Activity or MDA is and how it relates to psoriatic arthritis and your joints? Listen as rheumatologist Dr. Arthur Mandelin explains what MDA means. Join hosts Jeff Brown and LB Herbert as they discuss minimal disease activity in psoriatic arthritis with nationally recognized rheumatologist Dr. Arthur Mandelin who identifies what it is, factors that influence achieving MDA, how long it takes to reach, and the impact on selection of treatments. Dr. Mandelin also addresses fatigue associated with inflammation, and what the future holds for minimal disease activity in psoriatic arthritis. Whether you have psoriasis or psoriatic arthritis, this episode offers information to help you understand management goals set by your doctor and the importance of attaining minimal disease activity. Timestamps: (00:00) Intro to Psound Bytes & guest welcome rheumatologist Dr. Arthur Mandelin (02:23) What is minimal disease activity (MDA) (04:32) MDA in comparison to ACR response criteria (07:36) Criteria for reaching MDA (09:20) Positive and negative factors of MDA (11:25) Importance of reaching MDA within a specific time frame (17:34) Length of time to reach MDA (18:48) Selection of treatment options and psoriatic arthritis domains (23:51) Inflammation and fatigue (26:59) A look at the future of minimal disease activity in psoriatic arthritis: Reaching ACR 90 (29:09) Advancements in psoriatic arthritis: Finding disease markers (33:40 ) If you have psoriasis, be aware of your risk for psoriatic arthritis 4 Key Takeaways: There are various ways to measure minimal disease activity in psoriatic arthritis to assess how the disease impacts quality of life.   Attaining and keeping minimal disease activity low through use of different therapy options offers a chance for better bone and joint outcomes. Advancements in psoriatic arthritis include attaining ACR90 and the potential for identifying key markers that make treatment selection more targeted and individualized. Those who have psoriasis need to realize bone and joint pain, and swelling in the joints may be related to their psoriatic skin disease and seek appropriate help.  Guest Bio: Dr. Arthur Mandelin is an Associate Professor of Medicine at Northwestern University Feinberg School of Medicine and the Department of Medicine Division of Rheumatology. Dr. Mandelin launched Northwestern University's first training program in musculoskeletal ultrasonography for rheumatology fellows. He is an active participant in the REASON Group which is a multi-center research collaboration devoted to using ultrasound guidance to obtain minimally invasive synovial tissue biopsies. Dr. Mandelin is a past member of the National Psoriasis Foundation's Medical Board where he served on consensus panels for the development of a variety of practice guidelines.  Resources Mentioned: National Psoriasis Foundation: https://www.psoriasis.org PEST Screener: https://www.psoriasis.org/psoriatic-arthritis-screening-test/ PsA Action Month 2025: https://www.psoriasis.org/psa-action-month/ NSAIDS  for Psoriatic Disease: https://www.psoriasis.org/advance/nsaids-for-psoriatic-disease-psa/ AMP (Accelerated Medicines Partnership): https://www.psoriasis.org/advance/progress-and-success- through-collaboration/  Tags: psoriasis, skin, psoriatic arthritis, minimal disease activity, ACR20, ACR50, ACR70, tender joints, bone erosion, joint swelling, enthesitis, inflammation, pain, fatigue, axial disease, spinal involvement, treatment, NSAIDS, biologics, personalized medicine, dermatology, National Psoriasis Foundation, AMP, Psound Bytes podcast, Soundbites podcast

Act+Acre's husband-and-wife founders were early to the growth of the scalp-care market when they launched their brand in 2019 with one product: a $48 prewash treatment called Scalp Detox Oil.  “[Scalp care] was definitely an afterthought for people [a few years ago],” brand founder and hairstylist Helen Reavey told Glossy. “Launching it in 2019, we were one of the first to solely think about scalp care the way skin care had come up and was so personalized, and we took that approach. It's not a one-size-fits-all for the scalp.” Reavey has seen the effects of poor scalp care throughout her 15-year career as a celebrity and editorial hairstylist — most notably during fashion month, when models' hair is routinely overworked backstage until their scalps become sensitive to the touch. “I had that moment where I was like, ‘I wish I could give them something to remove everything and to really start with a fresh canvas,'" she said. “It was that moment [where we said], ‘OK, we should do this; we should launch a brand.'”  Reavey is also a certified trichologist, a specialization focused on the treatment and health of the hair and scalp. She launched Act+Acre with husband and business partner Colm Mackin, who now serves as CEO.  Now an award-winning hero product for the brand, Scalp Detox is one of 25 products sold individually and through 10 curated systems made up of individual SKUs. From oil control to hydration to hair growth, they're each designed for a specific concern.  To help consumers navigate the offerings, Act+Acre publishes blog posts and educational content on social media, and offers a 10-plus question quiz on its site to match a consumer with the right products.  Top selling systems include its Stem Cell System, Thick + Full System and Essential Hydration System. Meanwhile, individual bestsellers include Stem Cell Serum for $86 and Daily Hydro Scalp Serum for $24.  The line is sold DTC and through Sephora, Revolve, Bluemercury, Amazon, Dermstore, Anthropologie and TikTok Shop, among other channels. The brand does 60% of its business DTC and has a 50% subscription rate within that cohort, Mackin told Glossy.  Several products are also recognized by the National Psoriasis Foundation for being safe for those with psoriasis.  “People are definitely starting to understand that the scalp is a foundation for healthy hair, and that comes across in all of our messaging,” Reavey told Glossy.  Act+Acre's latest launch, a two-step shampoo and treatment, is focused on hard water buildup, which impacts the majority of U.S. consumers. High levels of minerals like calcium and magnesium in tap water can build up in the hair and cause brittleness and discoloration, especially on color-treated hair. “I don't think people were really understanding that hard water was this silent destructor,” Reavey told Glossy. The brand's Clarifying Hard Water Shampoo sells for $32, while the Clarifying Hard Water Scalp Treatment goes for $38.  In this week's episode of The Glossy Beauty Podcast, Reavey and Mackin share insider details on these topics. The duo also discusses the ways they stand out in the market, including through community building, education and customer service.

In this episode of Cutaneous Miscellaneous, host Nicholas Brownstone, MD, welcomes James Del Rosso, DO, to discuss the value of dermatology residents engaging with professional societies and how it can benefit their careers and patients. They begin with a board review on topical and systemic retinoids, highlighting the common applications of the topicals tretinoin, adapalene, and tazarotene as well as an overview of systemic options like isotretinoin and acitretin. They then discuss how residents can leverage professional societies, such as the American Acne and Rosacea Society and the National Psoriasis Foundation, to access networking opportunities, research grants, educational resources, and more. They explore how involvement in societies can support residents, provide resources for patients, and help dermatologists build connections and advance their careers. Tune in to the full episode to learn how professional societies can support your journey through residency and beyond!

Community DC Host Dennis Glasgow visits with President & CEO for the National Psoriasis Foundation to talk about education, diagnosing, treatment, research, donations and much more.

Summary Todd Bello, founder of the Facebook group, Overcoming Psoriasis, shares his journey as a psoriasis patient and the impact it had on his life. He discusses the challenges he faced, including the lack of information and treatment options available at the time of his diagnosis. Todd emphasizes the importance of finding a board-certified dermatologist and joining support groups like the National Psoriasis Foundation. He also highlights the advancements in psoriasis treatment over the past 30 years, particularly the development of biologics. Todd mentions the potential for genetic testing and personalized medicine in the future. He concludes by discussing the role of his patient networking group in providing support and accurate information to psoriasis patients worldwide.   Takeaways Finding a board-certified dermatologist and joining support groups like the National Psoriasis Foundation are crucial for psoriasis patients. Advancements in psoriasis treatment, particularly the development of biologics, have significantly improved outcomes for patients. Genetic testing and personalized medicine hold promise for the future of psoriasis treatment. Patient networking groups play a vital role in providing support and accurate information to psoriasis patients worldwide.   If you suffer from psoriasis: Help Us Understand More About Sleep and Psoriasis Are you interested in helping researchers understand how psoriasis and sleep are related? Please consider taking our paid online survey. Recruiting both individuals with and without psoriasis. https://redcap.ucsf.edu/surveys/?s=RLFR379LNL4RFTTF   Help Us Understand About Menopause and Psoriasis Are you interested in helping researchers understand how psoriasis and menopause are related? Please consider taking our paid online survey. Recruiting post-menopausal women with psoriasis. https://redcap.ucsf.edu/surveys/?s=JYTNX3XKDC84J3DX   Chapters 00:00 - Introduction and Overview 05:17 - The Impact of Psoriasis on a Patient's Life and Career 11:22 - Advancements in Psoriasis Treatment: The Role of Biologics 25:00 - Addressing Hesitancy Towards Biologics 26:20 - The Future of Psoriasis Research and Treatment

April W. Armstrong, MD, MPH, FAAD interviewed by Jackie Dosal, MD, FAAD

April W. Armstrong, MD, MPH, FAAD interviewed by Jackie Dosal, MD, FAAD

Dr. Jeffrey Cohen took a course called Mindful Medicine as a medical student, and it continues to influence him today. He learned about metacognition and cognitive biases, and he emphasizes approaching all interactions with humility, curiosity, and grace. Dr. Jeffrey M. Cohen, MD is a board-certified medical dermatologist and the Director of the Psoriasis Treatment Program at Yale School of Medicine. Graduating from Harvard Medical School, Dr. Cohen completed his dermatology residency at New York University School of Medicine. His current research focuses on skin condition epidemiology, the links between skin disorders and other medical issues, and improving the delivery of dermatologic care. He has over a hundred peer-reviewed articles and serves on the Editorial Board of the Journal of the American Academy of Dermatology and the Medical Board of the National Psoriasis Foundation.

Think you're all caught up on the latest psoriasis research? Think again. This week, we're joined by Dr. Brad Glick as he walks us through the importance of the skin barrier and how to support it, and offers tips on exciting combination therapies. Each Thursday, join Dr. Raja and Dr. Hadar, board-certified dermatologists, as they share the latest evidence-based research in integrative dermatology. For access to CE/CME courses, become a member at LearnSkin.com. Brad P. Glick, DO FAOCD is a board-certified dermatologist practicing at the Glick Skin Institute in Margate and Wellington, Florida. Dr. Glick is also an Assistant Clinical Professor of Dermatology at Herbert Wertheim College of Medicine at Florida International University and Dermatology Residency Program Director at the Larkin Palm Springs Hospital, Miami, Florida. He is a member of the Board of Directors of the American Academy of Dermatology, Past President of the Florida Academy of Dermatology, Past President of the American Osteopathic College of Dermatology, and a member of the Medical Board of the National Psoriasis Foundation.

In this thought-provoking episode of Health Nonprofit Digital Marketing, we delve into the art of storytelling with Matt Werbach from the National Psoriasis Foundation. We explore the common misconception that storytelling is easily mastered and challenge this notion by highlighting the significance of specificity in narratives. Discover how shifting from aspirational, grandiose writing to small, specific, and singular narratives can truly captivate your audience and invoke a sense of authenticity. Matt and Spencer discuss practical strategies for integrating specificity into your storytelling while emphasizing the importance of bravery and trusting your audience to grasp the bigger picture. About the guest Matt is the associate director of media and communications for the National Psoriasis Foundation. He oversees content creation, editorial work, and public and media relations. When he's not working he's reading, writing, or running trails in and around Portland, Oregon. He is the father of a third grader with Down syndrome and husband to a working mother in the field of higher education.  Contact Matt https://www.psoriasis.org/ https://www.psoriasis.org/advance/ editor@psoriasis.org 

Community DC Host Dennis Glasgow viisits with Leah Howard, President and CEO for the National Psoriasis Foundation to discuss education, World Psoriasis Day and the upcoming Take Action DC Fest and much more!

Been waiting for a deep dive on the gut-skin-immune axis? We've got it right here. This week, we're joined by Dr. Jason Hawkes as he takes us right into the science behind the many ways in which the body's systems are connected and what that means for treating inflammatory skin diseases. Each Thursday, join Dr. Raja and Dr. Hadar, board-certified dermatologists, as they share the latest evidence-based research in integrative dermatology. For access to CE/CME courses, become a member at LearnSkin.com. Jason E. Hawkes, MD MS is a board-certified dermatologist and Associate Professor of Dermatology at the University of California Davis in Sacramento. He completed his medical degree and dermatology residency training at the University of Utah School of Medicine, where he was also enrolled in the Program's 2+2 dermatology research track. In addition to his clinical training, Dr. Hawkes completed a research fellowship in translation immunology at the National Institutes of Health as part of the HHMI-NIH Research Scholars Program and received a master's degree in Clinical Investigation from Rockefeller University in NYC. Dr. Hawkes' principal clinical and research interests are the treatment of complex inflammatory skin diseases, such as psoriasis, psoriatic arthritis, hidradenitis suppurativa, and eczema. He has a special interest in translational human research and the development of novel biologics and small molecules used for the treatment of inflammatory conditions. Dr. Hawkes is currently serving on the Medical Board of the National Psoriasis Foundation and has served as the Principal Investigator and Co-Investigator of multiple pharmaceutical-sponsored and investigator-initiated clinical trial protocols. He is the recipient of multiple research grants and teaching awards and was recently named the 2021 Outstanding Educator in Psoriatic Disease by the National Psoriasis Foundation. He is the author of more than 50 peer-reviewed publications and 8 book chapters. To learn more about Gut, Immune System, and Inflammatory Skin Diseases, attend Dr. Hawkes' lecture at the 2023 Integrative Dermatology Symposium.

Join us as we discuss life with psoriatic disease and how those experiences shaped the lives of two amazing NPF volunteers, Melissa Leeolou and Max Green, who now pursue a career in medicine. Hear how they came to volunteer with the National Psoriasis Foundation and why they dedicate their lives to helping others through life's challenges. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, and UCB. 

This episode is a rebroadcasting of a DIGA webinar with Dr. Feldman: Dr. Steven R. Feldman is Professor of Dermatology, Pathology, Social Sciences & Health Policy, and Molecular Medicine & Translational Science at the Wake Forest School of Medicine. He received MD and PhD degrees from Duke University and completed dermatology residency at the University of North Carolina at Chapel Hill and dermatopathology training at the Medical University of South Carolina. He leads the Center for Dermatology Research, a health services research center whose mission is to improve the care of patients with skin disease. Dr. Feldman's chief clinical interest is psoriasis, a chronic, physically & psychosocially disabling condition. His passion is to help guide how patients with psoriasis are treated. He serves on the Medical Board of the National Psoriasis Foundation and directed psoriasis education programs for the American Academy of Dermatology. According to Expertscape.com, Feldman has been rated among the top experts in the world on psoriasis, acne and dermatology. Music: District Four by Kevin MacLeod Link: https://incompetech.filmmusic.io/song/3662-district-four License: https://filmmusic.io/standard-license --- Send in a voice message: https://podcasters.spotify.com/pod/show/derminterest/message

In episode 41 of Derms and Conditions, our host James Q. Del Rosso, DO brings back a prior podcast guest in Brad P. Glick, DO, a member of the board of directors of the AAD and National Psoriasis Foundation as well as the residency program director at Larkin Palm Springs in Miami. The two discuss psoriasis management and the utility of anti-TNF drugs. Dr. Glick emphasizes that TNF inhibitors remain a very important part of our psoriasis therapeutic armamentarium despite newer drugs coming to the market. About 30% of psoriasis patients will get psoriatic arthritis and TNF inhibitors are very effective at treating both skin and joint disease. In addition, TNF inhibitors are used to treat inflammatory bowel disease as well and are often selected by Dr. Glick to treat psoriasis if there is a family history of IBD. Dr. Glick provides several valuable tips on recognizing the most common signs and symptoms of psoriatic arthritis and quickly but effectively screening patients at every visit. He also discusses several common clinical scenarios and how to choose the right drug for the right patient. Finally, he provides his thoughts on biosimilars and how they stack up against their counterparts. Tune in to learn more from an accomplished psoriasis veteran!

EP. 114 - Did You Know that there are different types of the chronic skin disorder Psoriasis? And no one type of treatment works for everyone? On this episode, I am joined by Dermatologist Dr. April Armstrong, and Leah M. Howard, President & CEO of the National Psoriasis Foundation to talk about the challenges faced when living with Psoriasis, and a new once daily oral treatment option available to help people with Psoriasis manage their skin health better. #Health

All with a little help from our friends! In this episode, Miriam Goldstein, HFA's Interim Vice President for Public Affairs, speaks with Will Hubbert, the National Psoriasis Foundation's Grassroots and Advocacy Manager, about the importance of coalitions, alliance building, and developing confidence and enthusiasm amongst grassroots advocates. For more information contact Lindsay Cox, Senior Manager for Advocacy & Outreach at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America's website at hemophiliafed.org.

Skyler Cohen is a close friend of the FlexIt community, and has nearly seven years of experience in the healthcare industry, across multiple verticals. This career has inspired Skyler to further pursue the business side of the healthcare industry, specifically in health tech. In the latest episode of Just FlexIt™, Skyler touches on the importance of telehealth and relates the industry to FlexIt's platform. Skyler also provides a touching look into her upcoming journey post-graduation from Columbia Business School. 

Show 111: Psoriasis   Leah McCormick Howard is the president and CEO of the National Psoriasis Foundation. She has spent more than 20 years working with national health and disability organizations, local governments, and leading health care and research institutions. Howard has a Bachelor of Arts degree in government and international relations from the University of Notre Dame and a law degree from George Mason University School of Law.   1:10 Why did you go down the road of the National Psoriasis Foundation?   3:00 Do you get involved with insurance companies?   5:00 What is Psoriasis   8:50 Stress can bring out a flair of Psoriasis   13:00 What are you doing to spread awareness of Psoriasis?   15:30 What can we do to help the public understand this disease?   Website: Psoriasis.org   At Executive Medicine of Texas we understand that true health can only be found when you treat the patient as a whole. That's why our Executive Physical Exams are second to none in the amount of testing and information we gather prior to making a wellness plan for our patients. Learn more about how you can take charge of your health at EMTexas.com.   Websitte: StayYoungAmerica.com   Twitter: @StayYoungPod   Facebook: @ Stay Young America!   Join us next time as we are going to be talking to a horse psychologist.

Community DC Host Dennis Glasgow speaks with President and CEO Leah Howard of the National Psoriasis Foundation in Washington, DC. Topics that are addressed; Psoriasis, Psoriatic Arthritis, Education, Treatment, Support & Helping.

Did you know that other chronic disorders face the issue of step therapy as well? In this episode, Lindsay Cox, HFA's Senior Manager for Advocacy & Outreach, speaks with Hannah Lynch, Associate Director of Federal Government Relations and Health Policy for the National Psoriasis Foundation, about how step therapy impacts our communities, what HFA and NPF are doing to combat step therapy, and how listeners can take action on this issue. For more information contact Lindsay Cox, Senior Manager for Advocacy & Outreach at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

If you're new to the chronicpreneur world, then this episode is packed full of info-bombs!Julie Croner is on a mission to advocate for ALL advocates. A psoriatic arthritis patient leader, she's also the Vice President of the Patient Leader Network at WEGO Health and has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. Julie is one busy chronicpreneur, as well as being a very involved mom! Listen in to find out what drives her, as she talks about her own journey to make her passion her career, before covering her work at WEGO Health and the support that their incredible community of patient leaders offers. In this episode:Julie's struggle to accept her diagnosis and subsequent depressionHow she began connecting with patients online as a way to educate herselfHow a fateful trip to Florida relocated her badass gene and why she started her blog the very next day The benefit of putting yourself out there as you never know where it will leadHow Julie gradually realized that she could get paid work because of her experiences, not despite themInformation about how Julie became involved with WEGO Health and her work thereWhere to go to find out more about Julie and WEGO HealthResources:Visit the Patients Getting Paid website to learn more about and JOIN the PGP communityJulie's blog, ItsJustABadDay.comIt's Just A Bad Day on Twitter, Facebook, and InstagramVisit WEGO Health and connect on Twitter, Facebook, and Instagram**Be sure to join us on the Patients Getting Paid Facebook and Instagram pages AND get on the PGP email list to stay updated on all things PGP!Special thanks to Steve Woodward at PodcastingEditor.com

Specific topics include:Julie’s experience with multiple knee surgeries Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 monthsHow a trip to Disney World led to Julie’s epiphany that she should share her story and start a blogHow Julie put her Information Technology (IT) degree to use while tracking her symptoms and discovering her unique inflammation triggersHow Julie discovered the most important tools for living a healthy, full life with PSAJulie’s current role as a patient advocate with WEGO healthHow PSA affected Julie’s dating life and how she met her now husbandJulie’s experiences with pregnancy and parenting with PSAThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Speaker Bios:Julie Croner, a psoriatic arthritis patient leader, is on a mission to advocate for ALL advocates. She's the Vice President of the Patient Leader Network at WEGO Health and was named to MM&M's inaugural class of 40 Under 40 in 2020. Julie has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode links:Julie’s sites:Blog: Itsjustabadday.com Twitter: twitter.com/justagoodlife Facebook: Facebook.com/itsjustabaddaynotlife Instagram: Instagram.com/itsjustabaddaynotlife LinkedIn: www.linkedin.com/in/juliecerrone  Blog Email: justabaddaynotlife@gmail.com Work email: Julie.croner@wegohealth.com  Organizations mentioned in this interview:WEGO HealthMothertoBaby - research studies of medications and pregnancy / breastfeedingMindful Mamas AppArthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl &  Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:00 - Introduction to Julie.2:00 - Julie’s winding journey to a psoriatic arthritis diagnosis: knee surgeries / swelling from fifth grade until after college and during work as an Information Technology (IT) consultant.4:55 - Julie gets the adult diagnosis of psoriatic arthritis (PSA) and her rheumatologist helps get it under control. She’s able to connect the dots of her chronic health issues in retrospect and see how it all relates to psoriatic arthritis (PSA).8:24 -  Julie also experiences avascular necrosis in the femur bone (leg) which led to complex regional pain syndrome (CRPS). She started connecting to other patients online, got medication for PSA and started exploring diet and lifestyle. 9:48: Julie researches anti-inflammation lifestyle approaches, and uses her IT consultant skills to make an excel spreadsheet to track everything (food, movement, mood, medications, etc) for 6 months and discovered her unique inflammation and flare  triggers. 10:55 The BEST thing she did in her journey!11:20 - Julie discovers that her body is sensitive to food triggers. She discovers that gentle movement, meditation and mindfulness helps her. She continues going on and off medications when needed. 12:40 - Cheryl reflects on the importance of discovering your own unique triggers and not thinking there is a one size all solution. 14:00 - Julie’s worst food triggers for joint inflammation. (15:12) 15:44 - Julie is bedridden for 6 months due to her Avasular Necrosis and is depressed. Her parents take her to DisneyWorld and she has an epiphany after doing a singing competition!  She decides to share her story through starting a blog: “It’s just a bad day not a bad life.”19:20 - After being on disability for four years, she decides to focus on a career in patient advocacy rather than IT consulting.20:30 - Julie starts working for WEGO Health, a network of patient leaders. She helps patients and loved ones use their story and get connected to companies wanting their insights.23:40 - Why Julie thinks it’s so important for patients to share our stories: how she found an answer to her avascular necrosis due to seeing another patient’s story online.26:50 - How Julie’s health conditions affected her dating life, and how she met her husband. Her husband said, “You talk like you USED to be great, and the person I see IS really great! (28:13)”30:00 - How did PSA affect her family planning with her spouse who is in the army. When pregnant she felt very nervous and overwhelmed.  She signed up for a MothertoBaby study.33:45 - During her first pregnancy PSA went into remission, psoriasis in 1st trimester. Second pregnancy didn’t go into remission. 35:15 - What helped her when babies were little: asking for help, planning ahead, pacing yourself. 37:15: How Julie copes with big emotions while parenting: Headspace app and Mindful Mamas app. 39:36 - Julie’s best advice for newly diagnosed patients - empower yourself and be a partner with your medical team.40:45 - Cheryl and Julie’s advice to patients who are overwhelmed when “doing their own research” - how to evaluate which resources are high quality information and which are low quality or dangerous. Reflections on how to navigate disease-specific Facebook groups.44:15: Julie’s concluding thoughts: if you are dealing with an autoimmune disease, you are not alone. 

Hello, Lovelies! Before sitting down to watch all of the WrestleMania week festivities, Brian Bell welcomes "The Real Mutha Trucker" Dewey Murray to the show. A known name within the northeast, Murray details how growing up around the ECW locker room pushed him to enter pro wrestling, how the influence of the late Brodie Lee affected him beyond the ring and the pride he takes as an advocate with the National Psoriasis Foundation. They also get into Murray's 15-plus year in-ring career, including the birth of "Dewdust!" Follow Dewey Murray on Twitter: @realmuthatrucka Follow Brian Bell on Twitter: @WonderboyOTM Follow LGBT In The Ring on Twitter: @LGBTRingPod  The Progress Pride Flag design by Daniel Quasar is a product of Progress Initiative. Find out more at quasar.digital! Huge thanks to Sarah & The Safe Word for the show's theme, Formula 666 from the album Red, Hot and Holy. Find them on Twitter, @STSWBand, and check out their music on Spotify and Bandcamp. Check out IndependentWrestling.tv for the best in current and classic independent pro wrestling, including live events from top independent promotions worldwide. Use promo code “LGBTRingPod” or visit tinyurl.com/IWTVLGBT for a 5-day free trial. Learn more about your ad choices. Visit podcastchoices.com/adchoices

Hello, Lovelies! Before sitting down to watch all of the WrestleMania week festivities, Brian Bell welcomes "The Real Mutha Trucker" Dewey Murray to the show. A known name within the northeast, Murray details how growing up around the ECW locker room pushed him to enter pro wrestling, how the influence of the late Brodie Lee affected him beyond the ring and the pride he takes as an advocate with the National Psoriasis Foundation. They also get into Murray's 15-plus year in-ring career, including the birth of "Dewdust!" Follow Dewey Murray on Twitter: @realmuthatrucka Follow Brian Bell on Twitter: @WonderboyOTM Follow LGBT In The Ring on Twitter: @LGBTRingPod  The Progress Pride Flag design by Daniel Quasar is a product of Progress Initiative. Find out more at quasar.digital! Huge thanks to Sarah & The Safe Word for the show’s theme, Formula 666 from the album Red, Hot and Holy. Find them on Twitter, @STSWBand, and check out their music on Spotify and Bandcamp. Check out IndependentWrestling.tv for the best in current and classic independent pro wrestling, including live events from top independent promotions worldwide. Use promo code “LGBTRingPod” or visit tinyurl.com/IWTVLGBT for a 5-day free trial. Learn more about your ad choices. Visit megaphone.fm/adchoices

Mike Siegel, PhD joined PeDRA as the Executive Director in 2018. He received his PhD in Bioengineering from the University of Washington and got his start in dermatology research at OHSU. Following his time at OHSU he became the Senior Vice President of Research and Clinical Affairs at the National Psoriasis Foundation. It was through his work at NPF that he became acquainted with PeDRA. Get to know more about Mike, what he loves about the work he does, and how he became a sandwich connoisseur.

Heather Miller joined PeDRA in 2020 as the event manager for PeDRA's first virtual conference. She previously spent time working with the National Psoriasis Foundation and brings many years of non-profit experience to her role. Since 2020, Heather's role with PeDRA has grown from planning the Annual Conference, to also support membership and the PeDRA Mobile app. Get to know more about Heather and her billiards hobby!

Mike Siegel, PhD joined PeDRA as the Executive Director in 2018. He received his PhD in Bioengineering from the University of Washington and got his start in dermatology research at OHSU. Following his time at OHSU he become the Senior Vice President of Research and Clinical Affairs at the National Psoriasis Foundation. It was through his work at NPF that he became acquainted with PeDRA. Get to know more about Mike, what he loves about the work he does and how he became a sandwich connoisseur.

This week join your patient co-hosts, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune and Autoinflammatory Arthritis, and Kelly Conway, co-founder of AiArthritis and author of the popular blog As My Joints Turn: My Autoimmune Soap Opera, as they welcome three special guests to the table for a new episode of the Voices 360 Special Series: Rheumy Rounds. They are joined today by three practicing adult rheumatologists: Dr. Al Kim of the Washington University School of Medicine, Dr. Vibeke Strand of the Stanford University School of Medicine, and Dr. Jeff Sparks of the Harvard School of Medicine. In this special episode of Rheumy Rounds, they discuss patient and rheumatologist vaccination hesitation and key education points, while providing insights to assess benefits and risks and promote shared-decision making strategies. On February 10, 2021 the American College of Rheumatology published clinical guidance on COVID-19 vaccinations which suggests that all rheumatic disease patients should be vaccinated for COVID-19 and provided very specific recommendations regarding modifications needed - if any - to immunosuppressive therapies before and after vaccination. But most patients don’t read press releases from ACR. Not all patients will have an appointment with their rheumatologist between February 10th and the date they may be eligible or able to receive the vaccine in their specific location. This round table discussion seeks to prepare all stakeholders to participate in effective shared decision making conversations between patient and provider so that all members of the community can make the best decision for their own health, as well as the best decision for their families. So pull up a chair as these three rheumatologists answer patient-provided questions about vaccine efficacy, side-effects, availability, and much more. Then consider getting involved. The COVID-19 Global Rheumatology Alliance is seeking participants for their survey on how the pandemic has impacted rheumatic disease patients. If you are an adult patient living with an AiArthritis disease, or the parent of a juvenile patient, you can sign up to participate in the survey here. But don’t stop there! We also want to hear from you. Reach out to us on social media (@ifAiArthritis on all platforms) or via email (to podcast@aiarthritis.org) and give us your insight on this critical question: how can we get more information to patients about the vaccine and the ACR guidance to facilitate shared decision-making? Now, if you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat! Join Tiffany, Kelly, and all the other recurring Voices 360 co-hosts to continue this conversation inside our new, coordinating AiArthritis Voices online community - where patients unite with others around the world to talk, learn, and connect.    JOIN TODAY!   AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast. Find us on Twitter, Instagram, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org) to have your seat at the table.     RheumyRounds is a concept developed by AiArthritis to bring rheumatology professionals & persons affected by AiArthritis diseases to the same table, as equals, to discuss important community topics that, if solved, would improve communication and positively impact outcomes.  https://www.aiarthritis.org/rheumyrounds   ________________________________________________________________________ Disclaimer: This is meant to be informative, but not to provide medical advice.  Every person living with AiArthritis diseases must make vaccination choices based on their self-education then contact their rheumatologist or practicing physician and determine a solution together (shared-decision making). It is important you determine the best course of action for YOU, based on your own individual health situation. ___________________________________________________________________________ Episode 56 - Rheumy Rounds: Vaccination Hesitation   00:53 - Tiffany welcomes listeners. 01:56 - Tiffany welcomes her fellow patient co-host and co-founder of AiArthritis, Kelly Conway, and special guests Dr. Al Kim, Dr. Vibeke Strand, and Dr. Jeff Sparks. 02:28 - Dr. Al Kim is an adult rheumatologist at the Washington University School of Medicine in St. Louis, MO and the founder and co-director of the Lupus Clinic.  02:47 - Dr. Vibeke Strand is an adult rheumatologist and a member of the faculty at Stanford University Division of Immunology / Rheumatology, as well as a consultant in new product development in rheumatology.  03:32 - Dr. Jeff Sparks is an adult rheumatologist at Brigham and Women’s Hospital and Harvard Medical School.  04:22 - The idea of the AiArthritis Talk Show is to bring stakeholders to the table for a roundtable discussion, not to conduct interviews. 07:46 - The American College of Rheumatology put out clinical guidance on COVID-19 vaccinations which suggests that all rheumatic patients should be vaccinated for COVID-19 and that all medications rheumatic patients take should be continued with very few exceptions (listed in the document) because controlled disease and avoidance of flares is better for the patient when receiving the vaccine. 10:32 - Some patients are stuck in a misinformation limbo where they were told not to get the vaccine by their doctor before the ACR guidance was put out, but they have not heard that the information has changed. 11:00 - Have you seen any hesitancy among rheumatologists to recommend patients receive the COVID-19 vaccine? 11:18 - Dr. Kim has not seen any of his colleagues in St. Louis tell patients not to get the vaccine, but he thinks they may be in a privileged bubble because of their proximity to the medical school. 12:05 - Rheumatologists normally have control over whether their patients receive a vaccine, but with the COVID-19 vaccine they may not even be consulted by their patients in making the decision. Dr. Sparks says most of his patients seem eager to get the vaccine. 12:53 - Patients are reaching out to their rheumatologists about when they will be able to receive the vaccine, but most states are not prioritizing rheumatic patients for vaccination which causes frustration for both patients and their physicians. 13:19 - Dr. Strand thinks that the reliance on Telehealth appointments may also be limiting the amount of information patients are getting from their rheumatologists. 13:47 - Social media is the source of news for many people, which is a blessing and a curse because it opens up access to lots of information - including misinformation. 14:24 - The weather has also caused a lot of delays in vaccine access for many patients in the US. 15:17 - What if my second dose of the vaccine is delayed beyond the due date?  16:32 - Because of the way the immune system functions, it should be fine to get the second dose a week or even two weeks late. 16:54 - If I have to miss my second dose appointment, can I just make an appointment at a different location and get a different vaccine for my second dose? 17:24 - The vaccines are shipped in paired doses, and your second dose is usually reserved for you. You need to receive your reserved dose so that it doesn’t go to waste. Also there have been no tests on patients receiving one dose each of two different vaccines. It’s very important to receive the second dose that was reserved for you. 18:20 - Data from Israel is showing that vaccinated patients may not be carrying or shedding the virus at the same rate as unvaccinated people. 18:56 - Will my rheumatologist be checking in some way to see if I have an antibody response to the vaccine? 19:10 - No, because that information is not clinically actionable. We can’t do anything with that information, so there’s no reason to subject the patient to a test. We also can’t order the ingredients from the vaccine that would be necessary to test the patient for the presence of antibodies. 20:05 - The antibody response is also not the only thing that determines if a vaccine works for a patient. So even if we could test it, the information would not tell us the whole picture. 21:18 - A lot of the hesitancy Dr. Kim has seen has been coming from patients, either because they are concerned that the vaccine will destabilize their disease; they feel like social distancing is working fine for them; or they want to wait for more information before getting the vaccine. 23:36 - Kelly reports that many patients are claiming that the Pfizer vaccine has fewer side-effects than the Moderna vaccine, which is not true. 24:35 - It is important that patients get both doses from the same type of vaccine (2 doses of Pfizer, 2 doses of Moderna, etc.). 24:56 - Because of the lack of available vaccine doses, patients may not be able to choose which brand of vaccine they get. Is this a problem? 25:18 - There are many reasons patients may be hesitant to get the vaccine, and doctors need to try to understand those reasons in order to help those patients. 26:40 - Patients around the world have access to different vaccines than people here in the US. Eventually American people may have access to more than just the mRNA vaccines, and that may impact patient choice as well. 27:12 - The two mRNA vaccines - Moderna and Pfizer - behave very similarly. Some people have reactions to the vaccine, particularly the second dose, from either brand. 27:25 - Having allergies is not likely to cause you to have an anaphylactic reaction to the vaccine because the agent that they believe is causing those reactions is a common ingredient in household substances and foods. 27:54 - It’s extremely unlikely (less than 1% chance) that you will have an anaphylactic reaction to the vaccine. 28:38 - It is very easy to view the ingredients for the vaccines and compare the list to your known allergies. 29:05 - Having a bad vaccine reaction in the past does not mean you will have a bad reaction to the COVID-19 vaccine, and you’re much more likely to have a bad reaction to the COVID-19 virus than to the vaccine. 29:25 - The mRNA vaccines are very safe. 29:44 - Does it make sense to try and wait for a specific brand vaccine with a 95% effectiveness rate instead of one with an 85% effectiveness rate? 30:18 - Most vaccines have effectiveness rates of 50-70%, so all of the COVID-19 vaccines have efficacy rates higher than that. 31:12 - Those numbers are based on antibody responses, which don’t even reflect the entire response to the vaccine. All of the vaccines approved by the FDA are effective and safe. 31:59 - The vaccines are so hard to get right now that if you are offered a COVID-19 vaccine, you should get it regardless of what brand it is. 34:08 - Is there anything else our listeners should know about getting the vaccine? 34:28 - Many people with rheumatic diseases have autoantibodies, so people were worried that an mRNA vaccine could stimulate an autoantibody response. The data with COVID-19 and the vaccine suggests that it’s still much safer for rheumatic patients to get the vaccine than to get the virus. It doesn’t matter if you have autoantibodies. We still want you to have the vaccine so that you don’t get the virus. 35:39 - The phase III clinical trials for both Moderna and Pfizer were the largest clinical trials for any vaccine ever. The results should reassure all of us that these vaccines are safe and effective. 36:44 - We will still need to wear masks after receiving the vaccination until the pandemic ends.  37:14 - How can we as a community assess barriers and benefits of getting the vaccine?  How does that impact shared decision-making? 38:25 - Patients need to discuss 3 things with their rheumies:  what are your specific risks for getting the infection? Do you have comorbidities that elevate your risk for complications from the virus? What is your risk for infecting others? All of these questions should impact your decision to get the vaccine. 39:50 - The patient’s specific concerns should really influence the conversation the physician is having. Someone who is eager to get the vaccine should be having a very different discussion compared to someone who is concerned about getting the vaccine. 40:23 - The ACR guidance document states clearly that the benefits outweigh the risks, and all rheumatic patients should get the vaccine. 41:16 - Many patients just want to hear about the basics of the vaccine, but not all of their physicians have all of the information to have informed discussions with their patients. 42:10 - What happens if some rheumatologists refuse to endorse the ACR guidelines and continue to discourage their patients from receiving the vaccine? Should patients still pursue shared decision-making with a doctor who is not complying with ACR?  42:33 - Now that there is an official guidance document from ACR, hopefully everyone can utilize that to support those conversations. 43:22 - Are the ACR guidelines useful for rheumatologists in other countries that may not even be using the mRNA vaccine? 43:47 - The ACR guidelines are very relevant because the guidance is drawn from studying previous vaccines, not the mRNA vaccines specifically. It doesn’t matter whether it’s an mRNA vaccine or where the doctor is located, the science is the same. 45:15 - There are discordances among guidances issued by different organizations. The National Psoriasis Foundation recommended that most patients should continue biologic or oral therapy when receiving their vaccines, but they did not offer any specifics. The ACR guidance did offer specific guidance for psoriatic arthritis patients about biologic usage and the vaccine.  47:04 - We don’t really know the answer for sure about what patients should do with regard to their medications and the COVID-19 vaccine, but the vaccine is so effective that whatever you decide with your doctor should be fine. 48:39 - We don’t have any lab test to measure the efficacy of the vaccine for an individual patient because we don’t know what antibody titer would convey protection against the virus. 50:00 - There are already a large population of people who reject vaccines outright, and then they see news stories that focus on misleading interpretations of data. The ACR guidelines offer clarity and impartial information to patients trying to juggle multiple opinions and information sources to decide what is best for themselves and their families. 52:23 - What can we do to get the ACR guidance information in front of the patients who need it to make the best decision for their health? 53:27 - Disenfranchised patients in particular may not want to hear from their physicians at all. That’s one benefit to operating the vaccination clinics through community health centers. 56:30 - How can patients get involved with clinical research about COVID-19 vaccines? 56:43 - Dr. Kim is expecting to report preliminary data in 2-3 weeks on the efficacy of COVID-19 vaccine response in patients on immunosuppressants.  1:00:10 - Rheumatic disease patients and parents of juvenile patients can participate in a survey with the COVID-19 Global Rheumatology Alliance to help researchers understand the impact of the pandemic on rheumatic disease patients. 1:01:33 - Tiffany thanks Kelly, Dr. Kim, Dr. Strand, and Dr. Sparks for participating in this important episode. 1:02:29 - We want to hear from you on social media, especially Twitter where the rheumatologists are active. We are @IFAiArthritis on all platforms. How can we get more information to patients about the vaccine and the ACR guidance to facilitate shared decision-making? 1:02:50 - Visit aiarthritis.org/rheumyrounds to participate in a survey about your opinions on all of the topics we discussed today. 1:03:13 - If you are a practicing rheumatologist and would like to get involved in a future episode of Rheumy Rounds, there is a link where you can sign up to do that, and we would love to have your input. 1:03:32 - Find Dr. Kim on Twitter @AlHKim where he recommends that all patients receive these safe and effective vaccines. 1:04:07 - Find Dr. Sparks on Twitter @ JeffSparks where he encourages patients to discuss any concerns they may have about the vaccine with their doctor so that they will feel comfortable getting this safe and effective vaccine. 1:04:32 - Dr. Strand wants to remind everyone that the vaccinations are safe and very effective, and this is our best chance at going back to living life as we should be. 1:05:46 - Visit aiarthritis.org/vaccinations to get your questions about vaccines addressed personally. Be sure to check out our top-rated show on Feedspot!  

David Roberts joined PeDRA as the Development Director in 2019. He brings more than 15 years of experience in non-profit development to his role. He has worked in the dermatology space for some time, having previously worked at the National Psoriasis Foundation. Get to know more about David and his artistic abilities!

David Roberts joined PeDRA as the Development Director in 2019. He brings more than 15 years of experience in non-profit development to his role. He has worked in the dermatology space for some time, having previously worked at the National Psoriasis Foundation. Get to know more about David and his artistic abilities!

On todays show, Stacy is back and we are talking with Julie Croner, Vice President of Patient leader network, blogger and health coach about being your own health advocate and giving voice to your healthcare relationship.Julie Croner is a Patient Empowerer, American Association of Drugless Practitioners Certified Holistic Health Coach, Yoga Instructor, Speaker and Patient Leader Blogger thriving with psoriatic arthritis and avascular necrosis of the femur and has battled melanoma, complex regional pain syndrome, depression, and anxiety. Using her personal mantra ‘It’s just a bad day, not a bad life’, she started itsjustabadday.com, which has been named one of the top 5 Psoriatic Arthritis blogs by EveryDay Health, top 7 Psoriasis blogs by HealthLine, top 40 Arthritis blogs by Feedspot and has been highlighted by The Mighty, WedMD, The National Psoriasis Foundation, and many other online sources. Staying busy is a way of life for Julie. Some of her accomplishments and activities include: Vice President of the Patient Leader Network for WEGO Health, 2016 Standford MedX Ignite Talk and Oral Presenter, 2014 Stanford Medicine X ePatient Scholar, Psocial Ambassador for the National Psoriasis Foundation, member of the Advocacy and Mission Committee for Arthritis Foundation, WEGO Health Best In Show: Twitter in the 2015 Health Activist Awards, Psoriasis Social Media Ambassador and Health Guide for HealthCentral, blogger for PsoStrong.com, contributor to Everyday Health and Yoga Instructor. Julie is an army wife and new mama. When she’s not working, Julie can be found jamming out to Celine Dion, taking a yoga class, traveling, cooking, geeking out over health-related things or enjoying life in Pittsburgh, PA. Thank you Julie for your passion and support!You can follow Julie at:Blog: itsjustabadday.comTwitter: twitter.com/justagoodlifeFacebook: facebook.com/itsjustabaddaynotlifeInstagram: instagram.com/itsjustabaddaynotlife LinkedIn: www.linkedin.com/in/juliecerroneBlog Email: justabaddaynotlife@gmail.comFind Davis and Stacy at:Website: www.diabeticsavvy.comYoutube: @diabeticsavvywithdavisknightFacebook: @diabeticsavvyInstagram: @diabeticsavvyTwitter: @diabeticsavvy Stacy on Twitter: @diet_bites

Episode 007. Do you have kids? If so, you undoubtedly know that kids experience a ton of skin issues—some right at infancy—which is thoroughly frustrating as a parent. In this quick tips episode, Dr. Jen Haley, a dermatologist, reviews some common skin conditions with kids and tips that might just surprise you! I know I picked up a few gems.Got teenagers? Still having skin problems as an adult? Stay tuned as we'll be covering those topics in Episode 8.Products mentioned in the podcast:CeraVe Moisturizing CreamCetaphil Baby Moisturizing LotionCetaphil Baby Soothe and ProtectCetaphil Body Moisturizing CreamJennifer T. Haley, MD FAAD Dr. Haley received her Bachelor of Science in biology and nutrition from Cornell University before attending medical school at F. Edward Hebert School of Medicine in Bethesda, MD. While in medical school, Dr. Haley was the recipient of the following honors: Alpha Omega Alpha Honor Medical Society; the Glasgow Memorial Achievement Citation; the Outstanding Academic Performance Award in Internal Medicine; the Distinguished Academic Performance Award in Pediatrics; and the Distinguished Academic Performance Award in Pathology. She completed her internship and residency in San Diego and was selected as the Intern representative for her class. Dr. Haley has been a board-certified dermatologist since 2004 and scored in the top 1% on the in-service examination during all three years of Dermatology residency. After completion of her residency, and as an Officer in the United States Navy, Dr. Haley was selected as the VIP dermatologist consultant to the U.S. Capitol in Washington, D.C. This role garnered her a rare and prestigious letter of commendation for her outstanding support of America’s leaders. She simultaneously was an associate professor of her medical school and teaching staff for the Dermatology residents at Bethesda Naval Medical Center. In 2006, Dr. Haley was named as the Head of the Dermatology Department in Pearl Harbor. Since 2009, Dr. Haley has been in private practice using her extensive international experience in medical, cosmetic, and surgical dermatology.Dr. Haley is an active member of numerous professional organizations, including the American Academy of Dermatology, the American Society for Dermatologic Surgery, the National Psoriasis Foundation, the Association of Military Dermatologists (from 2005-2006 she was that organization’s secretary-treasurer), and the Skin Cancer Foundation. She also reviews cases and provides expert advice for the Medical Board of Arizona and Colorado. With her background in nutrition, fitness, and skin science, Dr. Haley understands the true integration of wellness and its effects on skin health. Dr. Haley enjoys traveling the world and discovering nature’s remedies for all aspects of health and well-being. Since 2013, she has been the dermatology expert writer for FitnessRx magazine and has been actively sought to share her expertise with numerous organizations, including many Fortune 500 companies. Dr. Haley has also worked on the scientific advisory board of a number of skincare start-up companies and regularly contributes to national and international magazines (Oprah, BHG) with her knowledge of holistic skin health. She currently has a concierge and telemedicine practice in 16 states through the Dermatologistoncall.com platform. Dr. Haley splits her time between Scottsdale, AZ, and Park City, UT, and is the local Dermatologist for KPCW radio in Park City, where she enjoys educating the public on all things skin. Dr. Haley has a passion for health, fitness, and nutrition and enjoys integrating science with nature in her treatment approaches.

Dermatology News: Non-Whites remain sorely underrepresented in phase 3 psoriasis trials (https://bit.ly/3jmv2ia) Women make progress in pediatric dermatology leadership (https://bit.ly/35nNdir) Survey: Doctors lonely, burned out in COVID-19 (https://bit.ly/3dKwhXg)   *  *  * Psoriasis patients who are pregnant or those seeking a medication-free treatment may benefit from phototherapy. Vincent A. DeLeo, MD, talks to George Han, MD, PhD, and Jashin J. Wu, MD, about the joint guidelines from the American Academy of Dermatology and National Psoriasis Foundation for psoriasis treatment with phototherapy. They provide tips for getting patients started on phototherapy and discuss different devices for at-home or in-office use. While discussing avoidance of treatment pitfalls, Dr. Han notes that “documentation really is key when you’re doing phototherapy, and that’s one of the nice things about some of the newer phototherapy units. They’ll actually be linked up to a computer control that automatically keeps the treatment record.” Article: https://www.mdedge.com/dermatology/article/226940/psoriasis/translating-2019-aad-npf-guidelines-care-management-psoriasis Downloadable PDF: https://cdn.mdedge.com/files/s3fs-public/CT106002082.pdf *  *  * Hosts: Nick Andrews, Vincent A. DeLeo, MD (University of Southern California, Los Angeles) Guests: George Han, MD, PhD (Icahn School of Medicine at Mount Sinai, New York); Jashin J. Wu, MD (Dermatology Research and Education Foundation, Irvine, Calif.) Disclosures: Dr. DeLeo is a consultant for Estée Lauder. Dr. Han and Dr. Wu report conflicts of interest with numerous sources in industry. Show notes: Allegra Sparta, Melissa Sears *  *  * You can find more of our podcasts at http://www.mdedge.com/podcasts Email the show: podcasts@mdedge.com

In this special episode: let's talk about psoriasis, Let's Psyconnect explores what is known about psoriasis, including possible comorbid mental health symptoms/conditions. _____________________________________________ References: Amin, M., Lee, E., Tsai, T., & Wu, J. (2020). Psoriasis and Co-morbidity. Acta Dermato Venereologica, 100(3), 81-87. https://doi.org/10.2340/00015555-3387 Brezinski EA, Dhillon JS, Armstrong AW. Economic Burden of Psoriasis in the United States: A Systematic Review. JAMA Dermatology. 2015 Jun;151(6):651-8. doi:10.1001/jamadermatol.2014.3593. Review. PubMed Gelfand, J.M., Stern, R.S., Nijsten, T., Feldman, S.R., Thomas, J., Kist, J., Rolstad, T., Margolis, D.J. (2005). The prevalence of psoriasis in African Americans: results from a population-based study. Journal of the American Academy of Dermatology, 52(1), 23-6. Gelfand JM, Gladman DD, Mease PJ, Smith N, Margolis DJ, Nijsten T, Stern RS, Feldman, S.R., Rolstad, T. (2005). Epidemiology of psoriatic arthritis in the population of the United States. Journal of the American Academy of Dermatology, 53(4), 573. Ferreira, B. I. R. C., Abreu, J. L. P. D. C., Dos Reis, J. P. G., & Figueiredo, A. M. D. C. (2016). Psoriasis and associated psychiatric disorders: a systematic review on etiopathogenesis and clinical correlation. The Journal of Clinical and Aesthetic Dermatology, 9(6), 36. Liang, S. E., Cohen, J. M., & Ho, R. S. (2018). Psoriasis and suicidality: A review of the literature. Dermatologic Therapy, 32(1), e12771. https://doi.org/10.1111/dth.12771 Pietrzak, D., Pietrzak, A., Grywalska, E., Kiciński, P., Roliński, J., Donica, H., Franciszkiewicz-Pietrzak, K., Borzęcki, A., Socha, M., Niedziałek, J., & Krasowska, D. (2018). Serum concentrations of interleukin 18 and 25-hydroxyvitamin D3 correlate with depression severity in men with psoriasis. PLOS ONE, 13(8), e0201589. https://doi.org/10.1371/journal.pone.0201589 National Psoriasis Foundation. (2015). Psoriasis Statistics. https://www.psoriasis.org/content/statistics _____________________________________________________ Disclaimer: Let's Psyconnect Podcast and its associated social media platforms are used for informational and educational purposes and should not be considered therapy or any form of treatment, diagnosis, and is not intended to substitute professional psychological, psychiatric or medical advice. Additionally, we do not recommend or endorse any specific tests, physicians, products, procedures, opinions, or other information that may be mentioned on this Podcast or other platforms used to promote it. --- Support this podcast: https://anchor.fm/letspsyconnect/support

Hear special guest Dr. Albert Rizzo, Chief Medical Officer at the American Lung Association and member of Christiana Care Pulmonary Associates discuss what COVID-19 means for your patients; risks, symptoms, possible treatments and overall impact moving forward. Includes a discussion of patient resources available through the American Lung Association from Chief Mission Officer, Ms. Deb Brown. For a helpful patient fact sheet with tips for using telehealth contact the National Psoriasis Foundation's Patient Navigation Center at education@psoriasis.org. To view disclosure information and claim credit, go to https://www.eeds.com/em/1170.  

A little unsure of the impacts of COVID-19 on psoriasis patients? This week we're joined by Jason Hawkes, MD MS as we discuss recommendations provided by the National Psoriasis Foundation and some considerations for psoriasis patients using immunosuppressive medications. Each Thursday, join Dr. Raja and Dr. Hadar, board certified dermatologists, as they share the latest evidence based research in integrative dermatology. For access to CE/CME courses, become a member at LearnSkin.com. To learn more about the National Psoriasis Foundation guidelines, visit: https://www.psoriasis.org/advance/coronavirus  

Patients with severe psoriasis may be at higher risk for infection because of increased inflammation in the body. Dr. Lawrence Green discusses how to counsel patients who are taking biologics to control their psoriasis during the COVID-19 pandemic. “What I recommend [is to] stay on your biologic as long as you can unless you have exposure [or] you start to feel feverish,” Dr. Green advises. *  *  *   We also bring you the latest in dermatology news and research: 1. CMS implements temporary regulatory changes to aid COVID-19 response 2. FDA issues EUA allowing hydroxychloroquine sulfate, chloroquine phosphate treatment in COVID-19 3. FDA okays emergency use of convalescent plasma for seriously ill COVID-19 patients 4. Physician couples draft wills, face tough questions amid COVID-19 *  *  *   Key takeaways from this episode: Patients with uncontrolled psoriasis symptoms are at higher risk for developing infection and other comorbidities. “In general, I have told patients that if they stop the biologic for some time and the psoriasis comes back so that it’s severe again, I think that it’s significantly more risky for getting COVID-19 than if they continue to take their biologic,” says Dr. Green. There currently are no data on whether biologics help or harm patients with COVID-19. Anti–tumor necrosis factor (anti-TNF) agents may be useful in helping control pneumonia, but they also are associated with an increased risk for infection, compared with other biologic agents. It may be safer for patients to switch to or continue treatment with anti–IL-17 or anti–IL-23 agents during the COVID-19 pandemic. Patients should stop biologic treatment if they have exposure to someone with COVID-19 or start to show symptoms. “Stopping a biologic for a few weeks will not bring your psoriasis back. ... [but] a few months off can make a difference,” Dr. Green explains. Patients currently on biologics should take extra precautions to practice social distancing, stay at home when possible, wash hands, use hand sanitizer, and avoid touching the face, as recommended by the Centers for Disease Control and Prevention. For additional resources, dermatologists can consult the American Academy of Dermatology or the National Psoriasis Foundation guidelines on psoriasis treatment during the COVID-19 pandemic. *  *  *   Host: Nick Andrews Guest: Lawrence J. Green, MD (George Washington University, Washington) Show notes by: Alicia Sonners, Melissa Sears *  *  *   You can find more of our podcasts at http://www.mdedge.com/podcasts      Email the show: podcasts@mdedge.com Interact with us on Twitter: @MDedgeDerm

Through this special episode learn what the Coronavirus means for you and your psoriasis and/or psoriatic arthritis. Hear answers to your questions from dermatologist, Dr. Mark Lebwohl , the Waldman Professor and Chairman of the Kimberly and Eric J. Waldman Department of Dermatology, Icahn School of Medicine at Mt. Sinai Health System in New York, and Dr. Stacie Bell, Chief Scientific and Medical Officer at the National Psoriasis Foundation.  

The Biologic Fulfillment Fundamentals (BFF) Campaign from the National Psoriasis Foundation, sponsored by Janssen, supports dermatology biologic coordinators working on behalf of psoriasis patients to ensure they're able to start and stay on their prescribed biologic treatment. Hear from dermatology biologic coordinator, Leslie Lucas, and psoriasis patient, Alicia, who discuss the importance of communication and best practices to implement between patients and dermatology medical professionals when being prescribed a biologic treatment. For more information visit psoriasis.org/BFF. 

The Biologic Fulfillment Fundamentals (BFF) Campaign from the National Psoriasis Foundation, sponsored by Janssen, supports dermatology biologic coordinators working on behalf of psoriasis patients to ensure they're able to start and stay on their prescribed biologic treatment. Hear from dermatology biologic coordinator, Leslie Lucas, and psoriasis patient, Alicia, who discuss the importance of communication and best practices to implement between patients and dermatology medical professionals when being prescribed a biologic treatment. For more information visit psoriasis.org/BFF. 

Phototherapy is a viable option for many patients with psoriasis. Dr. George Han speaks with Dr. Jashin Wu about the recent national guidelines from the American Academy of Dermatology and the National Psoriasis Foundation on phototherapy, particularly narrowband UVB. They discuss treatment advantages, potential side effects, combination regimens, and patient reimbursement for at-home phototherapy. “Phototherapy serves as a reasonable and effective treatment option for [psoriasis] patients requiring more than topical treatments but also wishing to avoid systemic medications or if they are simply seeking an adjuvant to a failing regimen,” advises Dr. Wu. * * *   We also bring you the latest in dermatology news and research: 1. How the mutant selection window could reshape antibiotic use Dr. Hilary Baldwin describes a concept in the infectious disease literature that could help dermatologists strike a careful balance between treatment and resistance. 2. What oral therapies work best for hyperhidrosis Dr. Jashin Wu examines the nondevice options for treating patients with the condition. * * *   Things you will learn in this episode: Narrowband UVB is the primary type of phototherapy used in dermatology. It acts by three major pathways: alteration of the cytokine profile, apoptosis (programmed cell death), and UV-induced immunosuppression of epidermal Langerhans cells. Phototherapy offers advantages for a wide range of patients. “If a patient has failed topical treatment but they may not be interested in systemic therapy -- they don’t want a biologic or they don’t want an oral therapy --phototherapy still is a good option for these patients. In particular, I like it for patients with moderate disease ... between 3% and 10% body surface area,” Dr. Wu explains. Phototherapy also is a good option for pregnant women who may be concerned about potential fetal side effects associated with most systemic agents. Acitretin (Soriatane) is one of the most common agents used in combination with phototherapy: “In theory, phototherapy could increase the risk of skin cancer, especially if [the patient has] several hundreds of episodes of phototherapy,” Dr. Wu notes. “Acitretin in theory may improve the risk of skin cancer, so actually this has a protective effect and also may reduce the number and length of phototherapy [treatment sessions] that [are] needed.” It is recommended that patients undergoing phototherapy use genital shielding to reduce the risk of skin cancers in the genital area and wear goggles to reduce the risk of cataracts. Skin cancer risk in patients treated with both narrowband and broadband UVB has been correlated with the number of treatments received, but the risk has not shown to be significantly greater than in the general population. “If [the patient has] had a prior history of skin cancers, I probably wouldn’t be choosing phototherapy as one of my first-line agents,” Dr. Wu says. Home phototherapy is a good option for patients who are not able to come to the office for treatment two or three times per week. “Sometimes the insurance carriers would actually prefer this,” Dr. Wu explains. Some patients may request to stop treatment temporarily during warmer months when they are more likely to get exposure to natural sunlight. When resuming phototherapy, these patients will need to repeat the induction phase before returning to a maintenance regimen. Hosts: Nick Andrews; George Han, MD, PhD (Icahn School of Medicine at Mount Sinai, New York, New York) Guests: Hilary E. Baldwin, MD (State University of New York, Brooklyn); Jashin J. Wu, MD (Dermatology Research and Education Foundation, Irvine, California) Show notes by: Alicia Sonners, Melissa Sears, Elizabeth Mechcatie You can find more of our podcasts at http://www.mdedge.com/podcasts      Email the show: podcasts@mdedge.com Interact with us on Twitter: @MDedgeDerm

Dr. John Koo talks with Dr. Vincent DeLeo about the three main benefits of phototherapy, including its accessibility, safety profile, and wide range of effectiveness. Some physicians may think phototherapy is obsolete, but it continues to be a valuable tool in the dermatologist’s armamentarium. Dr. Koo also provides various clinical scenarios in which phototherapy may be the best treatment option for patients. We also bring you the latest in dermatology news and research: AAD, NPF update use of phototherapy for psoriasis The latest guidelines on psoriasis care includes pros and cons; emphasize patient choice. Sasha D. Jaquez, PhD, says a psychology consult for children’s skin issues can boost adherence, wellness Clinicians should pay attention to nonverbal cues and steer clear of scare tactics to change a child’s behavior. Trained interpreters essential for treating non–English-speaking patients Even in a private office setting, failure to engage a trained translator is discouraged. Things you will learn in this episode:  Phototherapy is universally accessible to millions of patients. Many payers prefer that patients try phototherapy before approving treatment with biologic agents. Because phototherapy is purely an external treatment, systemic safety is among its key advantages, particularly in elderly patients, those with active or history of recent cancer, and immunosuppressed populations in whom biologics and other systemic agents are not advised. There is no convincing evidence that UVB phototherapy increases skin cancer risk in any patient population. Psoralen plus UVA (PUVA) phototherapy has been shown to increase the risk of squamous cell carcinoma in fair-skinned white patients, but this risk has not been seen in nonwhite patients and has been associated only with systemic PUVA, not bath PUVA. Unlike biologics, which target specific molecules to treat individual conditions, phototherapy is a nontargeted treatment with wide effectiveness for many skin conditions. Because the broad-spectrum efficacy is nontargeted, both UVB and PUVA are usable for many different conditions that have nothing to do with one another, reported Dr. Koo. Narrowband UVB was designed to treat psoriasis but also works well for atopic dermatitis, generalized pruritus, vitiligo, urticaria, and seborrheic dermatitis. Psoralen plus UVA can effectively treat up to 50 different conditions, including psoriasis, atopic dermatitis, cutaneous lymphoma, mycosis fungoides, scleroderma, lymphomatoid papulosis, lichen planus, graft-versus-host disease, and alopecia areata. The biggest disadvantage of phototherapy is that treatment may not be convenient for patients. It can take up to 3 months to clear the skin, with patients ideally being treated three times weekly. Proper training and education of patients is critical for safe use of home UVB. “In our practice,” Dr. Koo explains, “we insist that nobody gets home UVB unless they spend some good amount of time where our professional phototherapy nurses or other staff can attest to the fact that the patient knows how to do it right.” Dermatology trainees aren’t always exposed to phototherapy during residency. Dermatology residents should get involved with phototherapy during their training, and those who have already graduated may choose to seek additional training through the National Psoriasis Foundation or by observing another academic or private practitioner. From a financial perspective, phototherapy can be well reimbursed. Hosts: Elizabeth Mechcatie, Terry Rudd, Vincent A. DeLeo, MD (University of Southern California, Los Angeles) Guest: John Koo, MD (University of California, San Francisco) Show notes by Alicia Sonners, Melissa Sears, and Elizabeth Mechcatie. Dr.  Jaquez is a pediatric psychologist with Dell Children’s Medical Center of Central Texas, Austin. You can find more of our podcasts at http://www.mdedge.com/podcasts      Email the show: podcasts@mdedge.com Interact with us on Twitter: @MDedgeDerm

Learn how the National Psoriasis Foundation's regional Advocacy Action Networks work to change or ensure legislative policies benefit people with psoriatic disease. Activities include step therapy reform, tackling rising out of pocket cost, Medicaid expansion and more. Hear about the issues and how many voices work collectively to achieve better policies for all. 

Hear highlights from extraordinary volunteers Kathleen Browning and Thomas Dvorak as they share why volunteering is a family affair and what they do (and you can too) to help the National Psoriasis Foundation attain its mission. In honor of Volunteer Appreciation Week a sincere thank you to all our volunteers!

Hear what the new treatment guidelines for psoriatic arthritis from the American College of Rheumatology and the National Psoriasis Foundation may mean for you. Dr. Philip Mease, a rheumatologist and Director of the Rheumatology Clinical Research Division at Swedish Medical Center/Providence St. Joseph Health in Seattle, WA discusses key points about the guidelines. This "New Psoriatic Arthritis Treatment Guidelines" episode is supported by Amgen and AbbVie.    

Hear what the new treatment guidelines for psoriatic arthritis from the American College of Rheumatology and the National Psoriasis Foundation may mean for management of the disease. Dr. Philip Mease, a rheumatologist and Director of the Rheumatology Clinical Research Division at Swedish Medical Center/Providence St. Joseph Health in Seattle, WA, discusses the high points of the guidelines. To view disclosure information and claim credit, go to https://www.eeds.com/em/1112 . This program is supported by unrestricted educational grants from Bristol-Myers Squibb, Lilly and Ortho Dermatologics. For additional CME education opportunities visit https://cme.psoriasis.org  

Hear what the new treatment guidelines for psoriatic arthritis from the American College of Rheumatology and the National Psoriasis Foundation may mean for management of the disease. Dr. Philip Mease, a rheumatologist and Director of the Rheumatology Clinical Research Division at Swedish Medical Center/Providence St. Joseph Health in Seattle, WA, discusses the high points of the guidelines. To view disclosure information and claim credit, go to https://www.eeds.com/em/1112 . This program is supported by unrestricted educational grants from Bristol-Myers Squibb, Lilly and Ortho Dermatologics. For additional CME education opportunities visit https://cme.psoriasis.org  

WBZ's Laurie Kirby speaks with the COO of the National Psoriasis Foundation.

Alisha is a community ambassador for the National Psoriasis Foundation and has served her community in countless ways to help give a better understanding of what’s it’s like to live with psoriasis. Her life motto is the following: “My purpose is to change the hearts of people by creating empathy and compassion for those the least understood through transparency of self, patient advocacy, and dermatology.”

This video interview is about the National Psoriasis Foundation and the Pearls of Psoriasis Support with Dr. April Abernathy and was recorded at the 2013 SDPA Fall Conference in Atlanta.

A video Recorded at the 8th Annual Fall Conference in Grapevine TX.

How can individual patients possibly go up against behemoths like hospitals, insurers or drug companies? Sheila Rittenberg, Senior Director at the National Psoriasis Foundation tells us how patients can band together to get better health care. The post Getting Better Health Care – The weak against the strong. appeared first on WebTalkRadio.net.