Podcast appearances and mentions of riley children

Step inside the evolving world of fetal therapy where precision, teamwork, and full-spectrum care matter most. In this episode of the BackTable OBGYN Podcast, Dr. Anthony Shanks, Vice Chair of Education in the OB department at Indiana University School of Medicine, interviews Dr. Hiba Mustafa, a distinguished maternal-fetal medicine specialist and fetal interventionalist at Riley Children's Hospital. They discuss Dr. Mustafa's expertise in fetal diagnosis and therapy, her training journey through various fellowships, and her role in directing multiple fetal medicine programs. --- SYNPOSIS Dr. Mustafa elaborates on the intricacies of fetal interventions, including procedures for complications in monochorionic twins, spina bifida repair, and new emerging therapies. They also touch on research methodologies like the Delphi consensus technique and summarize key findings from recent studies on conditions such as hemolytic disease, gastroschisis, lower urinary tract obstructions, and preterm birth in twin pregnancies. Dr. Mustafa shares insights on how to stay sharp in the field, the importance of teamwork in surgical procedures, and advice for those aspiring to enter the field of fetal therapy. --- TIMESTAMPS 00:00 - Introduction02:45 - The Role of a Fetal Interventionalist04:00 - Dr. Mustafa's Training Journey07:42 - Fetal Surgery Fellowships16:43 - Conditions Treated by Fetal Interventionalists21:17 - Monitoring and Referrals for Monochorionic Twins30:04 - Understanding Percutaneous Procedures31:10 - Navigating the Equator in Fetal Surgery32:31 - Laser Surgery Techniques and Outcomes33:18 - The Importance of Placenta Delivery33:47 - In Utero Spina Bifida Repair36:19 - Minimally Invasive Techniques for Spina Bifida38:28 - Maintaining Skills in Fetal Interventions42:11 - Delphi Consensus Technique in Medical Research46:19 - Key Takeaways from Recent Research51:55 - Future of Fetal Therapy and Personal Insights

Leona Kleaving Obituary Leona Ruth Kleaving, 100, of Tell City passed away peacefully at the Heartford House, surrounded by her family, on Saturday, June 7, 2025. She was born February 25, 1925, in Spencer County, IN, daughter of the late Charles and Anna (Bauer) Huebschman. Leona graduated from Troy High School in 1943 and then spent the next 9 years working at General Electric as a solderer. She was united in marriage to Alva P. Kleaving on April 7, 1951, and they shared 56 years together before his passing in 2008. Leona lived the life of a farmer's wife for many years where she enjoyed gardening, taking care of her flowers, sewing, and canning. She liked to play euchre and was still playing until about a year ago. Leona was well known for baking pies and her delicious cinnamon rolls. She was a member of the Emmanuel Lutheran Church in Tell City. Leona is survived by her 3 children, Kathy (TO) O'Bryan of Owensboro, KY, Wayne (Donna) Kleaving, and Tina (Rob) Gladish, both of Tell City; six grandchildren, David Coakley of Owensboro, Kevin Coakley of Owensboro, Travis Kleaving of Tell City, Rachel (Chris) Roark of Tell City, Kari (Steven) Byers of Mariah Hill, Joseph Gladish of Tell City; 4 great-grandchildren, Shelby Coakley, Breckin and Brennon East, and Beck Byers; a sister, Marcella Slack, Ft. Worth, TX; as well as several nieces and nephews. In addition to her parents and husband, Leona was preceded in death by her sisters, Selma Lorenz, and Mildred Mulzer, and her brothers, Werner, Harry, Robert, and Clarence Huebschman. Funeral services will be Thursday at 10:00am June 12, 2025, at Emmanuel Lutheran Church, with burial to follow in Greenwood Cemetery. In lieu of flowers memorial contributions may be made to St. Jude Children's Hospital or Riley Children's Hospital. Condolences may be left at zoercher-gillickfuneralhome.com

In this episode, hosts Drs. Peter Lu and Temara Hajjat talk to Dr. Jean Molleston about drug-induced liver injury (DILI) in children.  Dr. Molleston is the former Division Chief of Gastroenterology, Hepatology, and Nutrition at Riley Children's and Professor of Clinical Pediatrics at University of Indiana School of Medicine.Learning Objectives:Understand the definition of DILI and signs that should raise our concern for this diagnosis.Recognize common causes of DILI, including both medications and supplements.Recognize the signs of drug reaction with eosinophilia and systemic symptoms or DRESS syndrome.Links:LiverTox: Searchable resource on drug-induced liver injurySupport the showThis episode may be eligible for CME credit! Once you have listened to the episode, click this link to claim your credit. Credit is available to NASPGHAN members (if you are not a member, you should probably sign up). And thank you to the NASPGHAN Professional Education Committee for their review!As always, the discussion, views, and recommendations in this podcast are the sole responsibility of the hosts and guests and are subject to change over time with advances in the field.Check out our merch website!Follow us on Bluesky, Twitter, Facebook and Instagram for all the latest news and upcoming episodes.Click here to support the show.

In this episode, David Biggerstaff, President and CEO of Riley Children's Health, shares insights on his journey into pediatric healthcare, his vision for the organization, and the strategies to expand access, enhance leadership, and drive innovation in children's health across Indiana.

In this episode, David Biggerstaff, President and CEO of Riley Children's Health, shares insights on his journey into pediatric healthcare, his vision for the organization, and the strategies to expand access, enhance leadership, and drive innovation in children's health across Indiana.

This episode features a conversation between Dr. Roland Herzog and Dr. Joseph Glorioso. On January 1, 2025, Dr. Glorioso will begin his 5-year term as the Editor-in-Chief of Molecular Therapy, marking the end of Dr. Herzog's successful tenure at the helm of the journal. Drs.Herzog and Glorioso engage in a wide-ranging conversation that touches on the history of Molecular Therapy, highlights from the gene and cell therapy field, and how Molecular Therapy will continue to grow and evolve under Dr. Glorioso's leadership. ASGCT is proud to present this episode of the Molecular Therapy Podcast in partnership with our upcoming Breakthroughs in Muscular Dystrophy conference on November 19th and 20th in Chicago, and virtually This event will provide an unparalleled opportunity to delve into the latest advancements in research on gene and cell therapies for muscular dystrophy. Learn more and register today at ASGCT.org/Breakthroughs. In This Episode: Dr. Roland HerzogEditor-in-Chief of Molecular Therapy and Professor of Pediatrics, Riley Children's Foundation Professor of Immunology, and Director of the Gene and Cell Therapy Program at Indiana University Dr. Joseph GloriosoProfessor, Department of Microbiology and Molecular Genetics and Department of Human Genetics at the University of Pittsburgh 'Electric Dreams' by Scott Buckley - released under CC-BY 4.0.www.scottbuckley.com.auShow your support for ASGCT!: https://asgct.org/membership/donateSee omnystudio.com/listener for privacy information.

The Children's Museum of Indianapolis is hosting Fiesta De La Familia on Sunday to celebrate Mexican Independence Day ahead of Monday. The Fiesta will celebrate the hundreds of cultures across Latin America through family fun activities and crafts, including a worry doll.A worry doll, or Muñeca Quitapena, are dolls originating from the Mayan regions of Guatemala and Mexico. According to folklore, the dolls are placed under your pillow, and remove your worries while you sleep.Melissa Trumpey, director of public events at the Children's Museum, says another art activity includes metal inscribing. “We also have a Mexican metal art activity, they'll get a blank piece of metal and be able to inscribe anything they want and take that piece of art home with them.”Other activities Trumpey described include educational events, like learning about the colorful textiles of the Guna people on the San Blas Islands. Photo booths will also be set up, allowing guests to take a photo together and then decorate a photo frame, thinking about your family and traditions. Trumpey says having events like this allows families to learn new things and try them out at the Museum. “It's just really great, we're all about educating and creating those experiences for children and families to do together,” she said.Multiple community groups and partners will be on hand at the event, including Riley Children's Health. They will administer vaccinations to anyone 6 months old and older.The Fiesta starts at 10 a.m. on Sunday.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Drs. Beverly Davidson and Bryan Simpson join Molecular Therapy EiC Dr. Roland Herzog to discuss their recent paper, Targeted long-read sequencing captures CRISPR editing and AAV integration outcomes in the brain, which was published in Molecular Therapy. ASGCT is proud to present this episode of the Molecular Therapy Podcast in partnership with our upcoming Advancing Gene and Cell Therapy for Cancer conference, which will be held on October 16 and 17 in Philadelphia and online. This landmark hybrid event brings together innovative treatment approaches and an unparalleled opportunity to immerse yourself in the latest gene and cell therapy research for cancer. Learn more and register today at ASGCT.org/Advancing. In This Episode: Dr. Roland HerzogEditor-in-Chief of Molecular Therapy and Professor of Pediatrics, Riley Children's Foundation Professor of Immunology, and Director of the Gene and Cell Therapy Program at Indiana University Dr. Beverly DavidsonChief Scientific Strategy Officer and Director of the Raymond G. Perelman Center for Cellular and Molecular Therapeutics at Children's Hospital of Philadelphia Dr. Bryan SimpsonPreclinical Team Lead at Latus Bio 'Electric Dreams' by Scott Buckley - released under CC-BY 4.0.www.scottbuckley.com.auShow your support for ASGCT!: https://asgct.org/membership/donateSee omnystudio.com/listener for privacy information.

In this episode, we go 'behind the scenes' with registered dietitian nutritionist, featuring Kate Beard, MA, RDN, CSPCC, LD. Listen in as we explore the human milk lab at Riley Children's Hospital in Indianapolis. Kate and her team are responsible for over 44,000 feedings per year provided to patients ranging from preterm infants to young adults with specialized metabolic and tube feeding requirements. This episode is hosted by Christina M. Rollins, MBA, MS, RDN, LDN, FAND, CNSC and was recorded on 5/18/24.

Host Dr. Joshua Liu, Co-founder & CEO of SeamlessMD, and marketing colleague, Alan Sardana, chat with Dr. Emily Webber, CMIO at IU Health and Riley Children's Health, about "Mastering AI Governance, Harnessing Listening as a Superpower, Bridging the Tech and Healthcare Cultures, and more." Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen/

On this episode of The Digital Patient, Dr. Joshua Liu, Co-founder & CEO of SeamlessMD, and marketing colleague, Alan Sardana, chat with Dr. Emily Webber, Chief Medical Information Officer at IU Health and Riley Children's Health, about "Mastering AI Governance, Harnessing Listening as a Superpower, Bridging the Tech and Healthcare Cultures, and more..."

Colleen DeRyckere and I were recently introduced by a mutual connection, but during this interview her personality made it feel like we'd known each other for years. During this conversation we talk about: How she got into running to get in shape for her wedding and to keep up with her firefighter husband Why she has a 12.8 sticker on her car instead of a 13.1 Ryan Matthew DeRyckere, her first child who passed away shortly after his birth How she uses running as a way to connect with Ryan Running her first full marathon for Ryan at the 2023 CNO Indianapolis Monumental Marathon Running specifics: training, fuel, gear, and how she listens to music but without wearing headphones How to support Riley Children's Hospital and Colleen and her family Order Ryno merch here Donate or get involved with Riley Children's Hospital here

This week, Drewby and Yergy head to Bedford, Indiana, to discuss the case of Elliaunna Plummer,  who was admitted to Riley Children's Hospital with a brain bleed, a broken collar bone, and facial bruising. According to her meth addicted mother, Cheyenne Hill, Elliaunna was "not a nice kid," and was going to be "the next Jeffrey Dahmer" one day. Mind you, little Elliaunna was just 20-months-old... Support Our Patreon For More Unreleased Content: https://www.patreon.com/themiserymachine PayPal: https://www.paypal.me/themiserymachine Join Our Facebook Group: https://t.co/DeSZIIMgXs?amp=1 Instagram: miserymachinepodcast Twitter: misery_podcast Discord: https://discord.gg/kCCzjZM #themiserymachine #podcast #truecrime Source Material: https://www.documentcloud.org/documents/24000148-hill-pc-affidavit https://www.linkedin.com/in/calysta-herniter-38612a195 https://lawandcrime.com/crime/mother-allegedly-said-toddler-would-have-been-the-next-jeffrey-dahmer-made-her-eat-off-the-floor-because-she-is-free-range-and-called-the-girl-an-a-hole-after-she-died/ https://www.wbiw.com/2023/10/12/more-information-released-on-cheyenne-hills-michigan-arrest/ https://www.linkedin.com/in/emily-werner-0926851b6 https://www.rileychildrens.org/find-a-doctor/physician/andrea-l-powers https://www.linkedin.com/in/calysta-herniter-38612a195?trk=public_profile_samename-profile https://www.linkedin.com/in/amanda-paul-563530a9

Dr Mara Nitu, VP and Chief Medical Officer at Riley Children's Health joins the podcast to discuss her background, top priorities right now, how her organization will evolve over the next couple years, and one change that she or her team has made that yielded great results.

Dr Mara Nitu, VP and Chief Medical Officer at Riley Children's Health joins the podcast to discuss her background, top priorities right now, how her organization will evolve over the next couple years, and one change that she or her team has made that yielded great results.

Looking for something fun to do this weekend? You're in the right place! WISH-TV Events manager, Allan Haw, has a calendar full of things for you to do! Here's what's happening for the weekend of Friday, November 3 through Sunday, November 5, 2023. This week: start a podcast and have a good clean laugh plus more from the WISH-TV Community Calendar! Let's make it a great weekend and find out what's going on “IN the Community”! Events mentioned in this episode: PodINDYNovember 04, 12:00pm-5:00pmHeavenEarth Church309 E Main StWhiteland, IN Local Clay Potters' Guild 25th Annual Holiday Show & SaleNovember 03 - November 04Monroe Convention Center302 S College AveBloomington, IN OnyxFest Theater FestivalNovember 03 – November 12IndyFringe Basile Theatre719 E. St. Clair StreetIndianapolis, IN Taste Together Gala: Journey with our Families Presented by Riley Children's HealthNovember 03, 6:30pm-11:00pm502 East Event Centre 502 East Carmel DrCarmel, IN Hendricks Humane Wine, Beer & Spirits Tasting Presented by NEST RealtyNovember 03, 7:00pm-10:00pmCRG Event Center2499 Perry Crossing WayPlainfield, IN Fall Market at the RoseNovember 04, 12:00pm-6:00pmThe Marilyn Rose Center205 E Palmer StIndianapolis, IN Annual Turkey ChaseNovember 04, 12:00pm-2:00pmVeterans Memorial Park - SouthJackson Street between Ninth and Eleventh StreetsRushville, IN NATIONAL FFA Convention - Future Farmers of AmericaNovember 01- November 04Various LocationsIndianapolis, In The 8th Annual Indiana Craft Brewers ConferenceNovember 05 - November 07, 12:00pm-3:00pmIndianapolis Marriott East7202 East 21st StreetIndianapolis, In WISH-TV Community CalendarSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Kylee Kendall is communication specialist for Beacon Health System in South Bend, Indiana. She joins Jimmy to catch up after being a communication major with him at the University of Indianapolis. She recalls her experience as Editor-in-Chief of The Reflector, UIndy's campus newspaper, and the stressful process of putting a full issue together. Originally from Elkhart, Indiana, Kylee recently moved back to her hometown for a position with Beacon Health System. Beacon Health System oversaw the care of Kylee's sister, Sarah, after she was diagnosed with cancer. This shocking news came during Kylee's freshman year at UIndy, with her sister passing away after a hard-fought five-month battle on December 7, 2013. Kylee also reflects on interning at Riley Children's Hospital, documenting patient stories like Sarah's in her experience. Kylee enjoys helping others with her communication skillset in medicine now, knowing Sarah would be proud of the work she is doing to pay it forward. Finally, Kylee & Jimmy look back on their "Friends" themed capstone Senior Project collaboration that was required for graduation. An easy conversation with one of the most kind & joyful souls I know. --- Support this podcast: https://podcasters.spotify.com/pod/show/jbkonair/support

Susan Henderson- Sears, director, Neonatal Intensive Care Unit Family Support, Riley Children's Health, is honored for exhibiting empathy and compassion in the workplace that impacts the team.

Lauren Hall-Riggins lost her first baby when she was 33 weeks and one day pregnant. "It the greatest anguish, shock and pain," Lauren said. She eventually turned to the Kate Cares Stillbirth Assessment Program, from Riley Children's Health, to learn what may have caused this tragic outcome. The team was able to investigate and informed Lauren that there were no conditions that would cause subsequent pregnancies to have the same outcome. When Lauren became pregnant with her rainbow baby, she turned to the Riley Maternal Fetal Medicine team. She says their care and compassion helped navigate the anxiety she felt after losing her first baby.

In this episode, hosts Drs. Temara Hajjat and Jason Silverman talk to Dr. Charlie Vanderpool about functional components in both human breastmilk and infant formulas, and some of their roles in infant growth and development. Dr. Vanderpool is a pediatric gastroenterologist at Riley Children's Health and an Associate Professor of Clinical Pediatrics at Indiana University School of Medicine.This episode is eligible for CME credit!  Once you have listened to the episode, click this link to claim your credit.  Credit is available to NASPGHAN members (if you are not a member, you should probably sign up).  And thank you to the NASPGHAN Professional Education Committee for their review!Resources mentioned in the episode:Webinar on infant nutrition (NASPGHAN members only)Learning Objectives:Define and discuss functional components of human breastmilk and infant formulas.Understand the proven and potential health impacts of a number of these components.Discuss possible modifying influences of these components on the infant microbiome.Produced by: Jason SilvermanSupport the showAs always, the discussion, views, and recommendations in this podcast are the sole responsibility of the hosts and guests and are subject to change over time with advances in the field.Follow us on Twitter, Facebook and Instagram for all the latest news and upcoming episodes!

Hoda Kotb and Jenna Bush Hager catch up with Selma Blair and talk about her new book “Mean Baby” as she inspires others who are living with MS. Also, the story of three friends who for decades have been working together at “Riley Children's Hospital” and now their daughters are working alongside them too. Plus, Hoda Kotb and Jenna Bush Hager dive in into the real stories behind three of the most accomplished women in entertainment. And, fiber scientist and director at “The Good Housekeeping Institute” shares some of the best bedding.

Some people spend their whole lives wondering if they ever made a difference in the world. Brian Calvert does not have that problem.  On this episode of the Houndsman XP Podcast Chris is joined by Brian Calvert and his better known and world famous Bluetick Dixie the Praying Dog. After a series of tragedies in his life Brian developed a plan to make a positive impact on the world. His plan included getting a Bluetick puppy, Dixie, to use as a multi purpose hound. He had plans to track some deer and do some local therapy work for veterans and Riley Children's Hospital. What happened next far exceeded those expectations. Dixie has been involved in multiple Honor Flights, flying U.S. Military veterans all over the US. She has recovered hundreds of deer for deer hunters and a few days later walked Hollywood Boulevard filming movies. She makes regular appearances at Children's Hospitals where she drives a scaled model of her Jeep, bringing smiles and comfort to parents and their children. Dixie and Brian appeared on the Amazon Prime Reality TV Challenge show called The Pack and quickly became a fan favorite. Brian and Dixie travelled around the world competing with other dog teams in multiple challenges. Dixie is no ordinary dog and Brian has found a higher calling for his Bluetick companion.  Listeners will get a behind the scenes look at;  what it is like to be involved in Hollywood production   what it is like to spend every minute of every day for 54 days straight with a hound How Dixie is making a positive impact for houndsmen to the non hunting public How dixie is honoring America's heroes with Honor Flights, military funerals and service as a therapy dog Stay tuned folks, this one has it all, joy, humor, and tears. Dixie the Praying Dog is on the Houndsman XP Podcast. Check out the Sportsmen's Empire Podcast Network for more relevant outdoor content! www.houndsmanxp.com #thisisfairchase SPONSORS: Cajun Lights Havoc Hunting Supply Go Wild Old South Dog Boxes Joy Dog Food Briar Creek Kennel dogsRtreed Freedom Hunters Rough Cut Company Learn more about your ad choices. Visit megaphone.fm/adchoices

Some people spend their whole lives wondering if they ever made a difference in the world. Brian Calvert does not have that problem. On this episode of the Houndsman XP Podcast Chris is joined by Brian Calvert and his better known and world famous Bluetick Dixie the Praying Dog. After a series of tragedies in his life Brian developed a plan to make a positive impact on the world.  His plan included getting a Bluetick puppy, Dixie, to use as a multi purpose hound. He had plans to track some deer and do some local therapy work for veterans and Riley Children's Hospital.  What happened next far exceeded those expectations.Dixie has been involved in multiple Honor Flights, flying U.S. Military veterans all over the US. She has recovered hundreds of deer for deer hunters and a few days later walked Hollywood Boulevard filming movies. She makes regular appearances at Children's Hospitals where she drives a scaled model of her Jeep, bringing smiles and comfort to parents and their children.Dixie and Brian appeared on the Amazon Prime Reality TV Challenge show called The Pack and quickly became a fan favorite. Brian and Dixie travelled around the world competing with other dog teams in multiple challenges.Dixie is no ordinary dog and Brian has found a higher calling for his Bluetick companion. Listeners will get a behind the scenes look at; what it is like to be involved in Hollywood production  what it is like to spend every minute of every day for 54 days straight with a houndHow Dixie is making a positive impact for houndsmen to the non hunting publicHow dixie is honoring America's heroes with Honor Flights, military funerals and service as a therapy dogStay tuned folks, this one has it all, joy, humor, and tears. Dixie the Praying Dog is on the Houndsman XP Podcast.Check out the Sportsmen's Empire Podcast Network for more relevant outdoor content!www.houndsmanxp.com#thisisfairchaseSPONSORS:Cajun LightsHavoc Hunting SupplyGo WildOld South Dog BoxesJoy Dog FoodBriar Creek KenneldogsRtreedFreedom HuntersRough Cut Company

Some people spend their whole lives wondering if they ever made a difference in the world. Brian Calvert does not have that problem. On this episode of the Houndsman XP Podcast Chris is joined by Brian Calvert and his better known and world famous Bluetick Dixie the Praying Dog. After a series of tragedies in his life Brian developed a plan to make a positive impact on the world.  His plan included getting a Bluetick puppy, Dixie, to use as a multi purpose hound. He had plans to track some deer and do some local therapy work for veterans and Riley Children's Hospital.  What happened next far exceeded those expectations.Dixie has been involved in multiple Honor Flights, flying U.S. Military veterans all over the US. She has recovered hundreds of deer for deer hunters and a few days later walked Hollywood Boulevard filming movies. She makes regular appearances at Children's Hospitals where she drives a scaled model of her Jeep, bringing smiles and comfort to parents and their children.Dixie and Brian appeared on the Amazon Prime Reality TV Challenge show called The Pack and quickly became a fan favorite. Brian and Dixie travelled around the world competing with other dog teams in multiple challenges.Dixie is no ordinary dog and Brian has found a higher calling for his Bluetick companion. Listeners will get a behind the scenes look at;what it is like to be involved in Hollywood productionwhat it is like to spend every minute of every day for 54 days straight with a houndHow Dixie is making a positive impact for houndsmen to the non hunting publicHow dixie is honoring America's heroes with Honor Flights, military funerals and service as a therapy dogStay tuned folks, this one has it all, joy, humor, and tears. Dixie the Praying Dog is on the Houndsman XP Podcast.Check out the Sportsmen's Empire Podcast Network for more relevant outdoor content!www.houndsmanxp.com#thisisfairchaseSPONSORS:Cajun LightsHavoc Hunting SupplyGo WildOld South Dog BoxesJoy Dog FoodBriar Creek KenneldogsRtreedFreedom HuntersRough Cut Company

Medical tyranny has been ubiquitous in some form or fashion across the world for nearly three years. It ebbs and flows in severity with 2022 ending on a relatively free note. But the next wave of Pandemic Panic Theater is already in motion and the powers-that-be are adding a new wrinkle to the mix for 2023.Shortages of common drugs ranging from child fever reducing medication to antibiotics are already hitting. It's going to get worse as we get deeper into winter. Some are predicting that by Spring of 2023 we will be in a full-scale pharmaceutical catastrophe as supply chains break down and shortages extend to other medications.This makes sense when we consider the machinations of the globalist elite cabal bent on ushering in The Great Reset. Establishing public-private partnerships that put the power in the hands of unelected corporate officials is one of the keys to their success. There's already an unofficial public-private partnership operating from the shadows in which the CDC and FDA trade talent back and forth with Big Pharma. Today's regulators are tomorrow's Pfizer VPs. Today's Moderna executive directors are on tomorrow's medical boards to determine the safety of new drugs. The relationship between Big Pharma and the government groups tasked with regulating them is downright lecherous.On today's episode of The JD Rucker Show, I listed the coming medical tyranny as one of ten machinations from the globalist elite cabal to expect in 2023. If all we had to deal with was a pharmaceutical shortage, we would be okay in the long run. But the powers-that-be appear to be planning another round of Pandemic Panic Theater. Lockdowns combined with a shortage could devastate the masses, prompting calls for government to do something. That's exactly what they want.Here's a breakdown of what we're already facing with children's medications. Keep in mind this is BEFORE winter and the challenges of diseases that always accompany the cold season. According to Mac Slavo at SHTF Plan...Pharmacies Begin Rationing Children's Cold Medicine Amid ShortagesWalgreens and CVS pharmacies have started to limit (ration) the amount of children's medicine that can be purchased amid an ongoing shortage. A Walgreens spokesperson told Nexstar that the decision to ration medication was due to “increased demand and various supplier challenges,” and that pediatric fever-reducing products are “seeing constraint across the country.”CVS spokesperson Mary Gattuso said the drugstore chain created the product limit to ensure “equitable access for all our customers.” There is currently a two-product limit on all children's pain relief products at all CVS Pharmacy locations and cvs.com, Gattuso confirmed. “We're committed to meeting our customers' needs and are working with our suppliers to ensure continued access to these items,” Gattuso said.Remember, there are enough COVID shots, ingredients to make them, syringes, and needles to inject every human on this globe four times or more. Yet there's a shortage of cold and flu medication.* There Are Magically Enough COVID Shots For Everyone, But Not Enough Other DrugsThe ruling class is blaming the shortage on the “tripledemic” and it being cold and flu season, even though this comes around every year.“There are more sick kids at this time of year than we have seen in the past couple years,” said Dr. Shannon Dillon, a pediatrician at Riley Children's Health in Indianapolis. Drugmaker Johnson & Johnson says it is not experiencing widespread shortages of Children's Tylenol, but the product may be “less readily available” at some stores. The company said it is running its production lines around the clock.These big pharma companies are making so many COVID shots they have to dispose of them because no one wants them anymore, but can't be bothered to create over-the-counter medicines that help alleviate symptoms when someone gets sick. And yet, the masters continue to tell the slaves it's a demand issue, not a supply issue.Former Food and Drug Administration Commissioner Scott Gottlieb told CBS “Face the Nation” host Margaret Brennan on Sunday that shortages of children's cold medicine, as well as an ongoing shortage of antibiotic drugs, are the result of unanticipated levels of demand, not a problem with the supply chain.Gottlieb also added that the pharmaceutical industry's “sophisticated supply chain” should catch up soon. Sure. Because they care so much about people, right?* Flu Vaccines Don't Work For The Same Reason COVID Injections Don't Work* America Waiting to Explode: “If Supply Lines Go Down… Millions of FDA-Approved Drug Addicts Go Psycho”Stock Up NowWhile there are still drugs available on the shelves and behind the counter, it behooves us all to stock up on the medications we may need. The good news is that most drugs have long shelf lives as long as they remain sealed, but the better news is that they can retain potency and remain safe long after their "expiration date."According to NowRx:So, how long does medication last after the expiration date? According to research, your medicine is likely still safe and effective years after its expiration date.In fact, one study found that 90% of more than 100 drugs, both prescription and over-the-counter, were perfectly good to use even 15 years after the expiration date.With the Chinese Communist Party controlling 90% of the ingredients used in American pharmaceuticals, it behooves us all to assume that massive shortages are coming. In the vein of hoping for the best but preparing for the worst, we encourage working with our sponsors for antibiotics delivered to your door to store just in case.One does not have to be a "conspiracy theorist" to see the major risks we're facing with pharmaceutical shortages that could lead to advanced medical tyranny. The prudent will be stocking up on any of the medicines and treatments they need today in case the pharmacies are shut down tomorrow.According to an article by Michael Snyder at The Economic Collapse Blog, the release of new diseases is already happening...Horrifying Pestilences Are Starting To Run Wild All Over The GlobeHow many millions have to die before people start to realize what is happening?  For years, I have been persistently warning that we would soon enter an era of great pestilences, and now it is here.  Sadly, what we have witnessed over the past few years is just the tip of the iceberg.  At this point we have been perfectly primed for future pandemics because vast numbers of people all over the planet are now running around with compromised immune systems.  That means that diseases will now be able to spread even more easily, and this is a trend that we have already started to see all throughout 2022.Strep A is the latest illness to run wild in the western world.  The number of children being admitted to the hospital with Strep A is way above normal in the U.S., and this appears to particularly be true in the western half of the country…A deadly wave of Strep A infections in children looks set to take off in the US — weeks after the UK was hit by a spate of deaths.At least two children have died in Colorado after suffering the normally-mild illness, and pediatric hospitals in five states — Arizona, Colorado, Texas, Washington and West Virginia — are reporting much higher levels of admissions than usual.At the country's largest pediatric hospital in Texas, doctors are already handling f

This week Fort Riley the Podcast covers the programs available to help students in transition when it comes to school and Child and Youth Services resources.

Dr. Elaine Cox, Chief Physician Executive at Riley Children's Health joins the podcast to talk about the Ryan White Care Act, mentoring the next generation of leaders, advocacy in leadership, and more.

Jenny Holbrook, LPN, IU Health Physicians Psychiatry and Behavioral Health, helps to create an animal kingdom theme at the Riley Children's Health Pediatric Center office.

Why Indianapolis, Indiana is the perfect destination for families this summer: Summer is right around the corner, and Indy has something for everyone to enjoy. Get your summer started by heading to the iconic Indianapolis Motor Speedway to watch the 106th running of the Indy 500. Taking a family trip? Head over to the world's largest children's museum and play your way through the Riley Children's Health Sports Legends Experience. White River State Park's 250 acres are filled with amazing attractions like the Indianapolis Zoo, Victory Field, and the Central Canal where you can experience a taste of Italy with a gondola ride down the canal. Newfields' stunning indoor and outdoor art displays are must-sees for nature lovers and art enthusiasts alike. Finally, have the Circle City be the soundtrack to your summer with some of the nation's biggest artists coming through our outdoor amphitheaters. We can't wait to see you in Indy.

In this episode, dance/movement therapist Breanna Davis joins us for a conversation about self-care. We explore the role creativity can play in that when we use it to meet our need for well-being and not only for our work. We discuss the importance of re-connecting with our bodies, re-discovering joy in movement, and then put that in practice by coming together to pose, move, and dance virtually. Breanna Davis, MS, R-DMT, LMHCA is a Registered Dance/movement Therapist from Indianapolis, Indiana and has a Master's in Dance/Movement Therapy and is in the process of achieving her Mental Health Counselor License. Through The Andrea Rizzo Foundation, Breanna brought Dance/movement Therapy back to Riley Children's Hospital where she provides therapy services to kids, teens, and caregivers during their hospital stay. Breanna works to help connect others to movement as a way of emotional expression, pain management, coping, and encouraging positive self-esteem and body image. Breanna continues to work as a dance teacher and choreographer. She also is the Director of Mental Health at Dance Education Equity Association, an organization on the quest to make dance spaces for all. You can learn more about Breanna and her work by following her on Instagram @foreverrbrej. A full transcript of the episode is available here: https://share.descript.com/view/5LpPgMnlR1E And be sure to check out us video of us dancing together on YouTube here: https://youtu.be/rdcA-JSZsMk Resources mentioned: The Body is Not an Apology by Sonya Renee Taylor. You can get a copy of the book and workbook, as well as learn more about the movement for radical self-love by visiting https://thebodyisnotanapology.com/ --- Support this podcast: https://anchor.fm/black-creative-healing/support

The very first full episode of Voices of Indy features T.A. Parker. Originally from El Salvador, T.A. Parker is a physician with Riley Children's Hospital by trade and an Americana musician in his free time. Influenced by Tom Petty, Rage Against the Machine and the protest songs of his native El Salvador, T.A. found his voice early playing in bars. Only recently has he been able to return to his love of making music. T.A. is wrapping up his debut EP, coming out in early summer, and is also working in his first Spanish language album as well. Check out T.A. Parker's music in the link below and give him a follow on his socials. T.A. is also featured on the Voices of Indy Spotify playlists, volumes 1 and 2. Streaming Spotify - https://open.spotify.com/artist/4zYbAY7gQISkPSiu1K6hny?si=-mrbp3hPQO-PmyjJBn7yew Apple Music - https://music.apple.com/us/artist/t-a-parker/1546024740 Voices of Indy Vol. 1 Voices of Indy Vol. 2 Socials Instagram Facebook Twitter YouTube Sunday Song - https://youtu.be/9JEMU322BSE Endless - https://youtu.be/rFfcyOL2JEQ Two for Tuesdays - Voices of Indy Edition featuring T.A. Parker

With the holidays upon us—and only a small percentage of kids vaccinated against COVID-19—host Mason King has been wondering what's safe when it comes to family gatherings, parties and public events So he called Dr. James Wood, a pediatric infectious disease specialist at Riley Children's Health, to talk about vaccinations for children, how latest strains of coronavirus are affecting younger kids and whether it's safe for grandkids to gather with their grandparents at the holidays. (Hint: You're safest if the kids are vaccinated and the adults are boosted.) Plus, King asks Dr. Woods to share what he's done about vaccinations with his own young kids and how they're treating family outings. The IBJ Podcast is brought to you by Taft.      

Providing respectful relationships with our infants today, will help them grow into caring adults that will build and sustain healthy, hopeful communities in the future. This episode provides listeners with simple, impactful relationship-building strategies to employ with infants. These strategies facilitate healthy infant development, and provide a foundation for building healthy relationships with all humans! To learn more about the Resources for Infant Educarers (RIE) approach please visit: https://rie.org; to learn more about the importance of healthy adult-infant relationships on infant brain development please visit: https://developingchild.harvard.edu/resources/three-early-childhood-development-principles-improve-child-family-outcomes/#responsive-relationships To learn more about the Indiana Grassroots Maternal Child Health Initiative, funded by Riley Children's Foundation, please visit: https://fsph.iupui.edu/research-centers/centers/cheer/grassroots/index.html The Community Solutions Podcast is a product of the Dept. of Social and Behavioral Sciences at the Indiana University Fairbanks School of Public Health. To learn more about the department, its education, research and outreach programs, please visit: https://fsph.iupui.edu/about/departments/social-behavioral-sci/index.html.

After several unsuccessful attempts to get urgently needed blood work done on their 5-month old son, a family from Carmel found compassion, caring and a desired outcome with Riley Children's Health.

Here we go with Season 2! We are so incredibly lucky to be talking with Adam Hill....Adam is a father, husband, doctor, and a fierce advocate for mental health and a more compassionate world. He's the director of palliative care at Riley Children's Hospital in Indianapolis. While he helps families in the most tender and difficult circumstances, he is continuing on his own journey of recovery. Adam is amazingly open about his battles with anxiety, depression and alcoholism, as well as the times in his life when he had an active suicide plan. He was an accomplished high school and college athlete, and he made his way through medical school – all while crumbling under the weight of struggles. Adam shares his heart with us and how he found his way to his calling as a pediatric palliative care doctor. He is on his own journey with health and peace, while he helps his patients and their families with the same. I stumbled on a tweet of his several years ago and loved his compassion and the way he advocated for himself and the ways that we can take care of each other. I'm so glad he said yes when I asked him to be here on Making Our Way. What a gift to spend this time with him. Follow Adam on Twitter - @Adamhill1212 Find his book on Amazon - Long Walk Out of the Woods Follow Team Joseph on Twitter @TeamJosephInfo, Facebook:@teamjosephinfo, Instagram: team_joseph or visit us at www.teamjoseph.org Please subscribe, share and review us wherever you listen to podcasts!

Casey Crouse is an account manager at GadellNet. He's also on the Board of the Riley Children's Foundation, the founder of the New Shoe Day Foundation, an advocate for mental health—and an ultra-marathon runner. What a resume of experience!  In this episode, Nick and Casey mix things up by discussing six key takeaways they learned from running ultra marathons that apply to business and life.  Key Takeaways: Stress can be a good thing when applied appropriately Community can be the greatest cheerleader and motivator If you expect adversity, you'll never be surprised Things to Listen For: [01:41] Who is Casey? [03:28] The origin of the New Shoe Day Foundation [06:17] When stress can be a good thing [10:35] If you want to go far, do it together [14:44] Systems versus goals [22:40] Expect adversity [27:11] Focusing on the why  After You Listen: Connect with Casey: https://www.linkedin.com/in/casey-crouse-3572b023/ Connect with Nick: https://www.linkedin.com/in/smarrelli/ Learn more about GadellNet Consulting Services: https://gadellnet.com/

So, you finally get to take your new baby home -- now what? Newborns do not come with instructions and first time parents may face a lot of uncertainty in those first few days. Dr. Pat Clements, medical director of well newborn care for Riley Children's Health, offers some advice for families about what to monitor once you leave the hospital. He offers tips on how to ensure your newborn is safe and when to call the pediatrician. Plus, he provides some advice on how to handle COVID-19 concerns.

Today's Best of Features: (00:00-17:04) – Darius Butler, former Colts cornerback and 9 year NFL Vet and co-host of The Man To Man Pod, stops by to share his thoughts on the Colts through their first preseason game. Darius also talks on the quarterback competition between Jacob Eason and Sam Ehlinger. Plus, Darius talks on how invaluable preseason reps can be, particularly for those fighting for a roster spot. (17:05-23:21) – Colts rookie wide out Mike Strachan joins the show to discuss how his breakout training camp has been so far and what it was like to play in his first Preseason game. Mike also takes us through his remarkable journey to the NFL and how he's making the most of the opportunities at hand.               (23:22-35:58) – Pete Bercich of the Vikings Radio Networks takes us through the frustrations of head coach Mike Zimmer following their first Preseason game and what he's seen from to this point in practices. Pete also talks on the vaccination discussion among the Minnesota Vikings and what that conversation has been like amid the locker room. Plus, Pete talks on the biggest issues and strengths on Minnesota's roster.         (35:59-42:02) – A few weeks ago, Dan told you about a young girl named Londyn Hoffman who has been fighting for her life at Riley Children's Hospital. Her mother, Jenna Hoffman, joins the program to share her daughter's story and how you can help Londyn and kids dealing with childhood cancer across the country.         See omnystudio.com/listener for privacy information.

McKinzie welcomes certified registered nurse, Gabriella Marambaa to the show! She works at both Riley Children's Health and Renova Aesthetics Spa. The ladies dish on opening a new med spa, cutting edge technology and how you can look great and feel even better!!!See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

(00:00-21:58) – The show opens on a Thursday with Dan sharing his thoughts on the documentary on the Malice at the Palace brawl involving the Indiana Pacers, the Detroit Pistons and the fans in Detroit. Dan also talks on why he feels its nuts to think that team could have won a NBA Championship. Later, Dan questions how you could put a team like that together.      (21:59-31:29) – Dan plays a clip from Deforest Buckner about him having to deal with sitting out. Plus, Dan looks at the quarterback situation with the Colts and the prep for the Vikings. (31:30-38:41) – Some callers share more thoughts with Dan on the Malice at the Palace documentary as we close out the first hour of the show.             (38:42-1:01:20) – Darius Butler, former Colts cornerback and 9 year NFL Vet and co-host of The Man To Man Pod, stops by to share his thoughts on the Colts through their first preseason game. Darius also talks on the quarterback competition between Jacob Eason and Sam Ehlinger. Plus, Darius talks on how invaluable preseason reps can be, particularly for those fighting for a roster spot. (1:01:21-1:14:19) – Colts rookie wide out Mike Strachan joins the show to discuss how his breakout training camp has been so far and what it was like to play in his first Preseason game. Mike also takes us through his remarkable journey to the NFL and how he's making the most of the opportunities at hand.               (1:14:20-1:19:22) – Hour number two ends with Dan talking about the Covid-19 pandemic and engaging with some of the YouTube chat. (1:19:23-1:42:14) – Pete Bercich of the Vikings Radio Networks takes us through the frustrations of head coach Mike Zimmer following their first Preseason game and what he's seen from to this point in practices. Pete also talks on the vaccination discussion among the Minnesota Vikings and what that conversation has been like amid the locker room. Plus, Pete talks on the biggest issues and strengths on Minnesota's roster.         (1:42:15-1:54:12) – A few weeks ago, Dan told you about a young girl named Londyn Hoffman who has been fighting for her life at Riley Children's Hospital. Her mother, Jenna Hoffman, joins the program to share her daughter's story and how you can help Londyn and kids dealing with childhood cancer across the country.         (1:54:13-1:59:38) – Thursday's show concludes with Dan sharing the results from today's Indiana Grand Racing and Casino Race of the Day. Plus, Dan asks show producer Jimmy Cook for today's edition of The JCook Plays of the Day. Also, Dan debates whether or not he will bet on Colts-Vikings Preseason GM 2. See omnystudio.com/listener for privacy information.

What does care with a midwife look like? Can you only use a midwife if you plan to have an unmedicated delivery? Darla Berry, one of our Riley Children's Health midwives, debunks some myths and explains what midwifery is really all about.

(00:00-23:29) – The final show of the week starts with Dan sharing the coolest thing he saw yesterday, the City League Basketball Final here in Indianapolis. Dan also shares the dumbest thing that he saw yesterday involving a story on the Colts young quarterbacks. Plus, Dan looks at why phony leadership is easily identified and never works. Dan also asks the audience to help a young girl battling cancer at Riley Children's Hospital.   (23:30-34:34) – The talented Jason Hammer of WIBC's Hammer and Nigel joins the show to share his best bets for the sports weekend, including guidance on the NFL preseason. Plus, Dan asks Hammer if he should bet against their beloved Cubs the rest of the season and if he would make a profit. (34:35-40:38) – To close hour number one Dan asks Jason Hammer if the Pacers and Colts have put forth an interesting team in their offseason. Dan and Jason later continue to express their frustrations with the direction of the Chicago Cubs.         (40:39-1:00:47) – Our pal the great Uwe Blab stops by to weigh in on an discussion Dan had with a somebody who enter his house the other day. Uwe also shares whether he could ever envision a time that he would have transferred to Purdue. Uwe also tells us about his current methodology for making the perfect Margarita.   (1:00:48-1:11:49) – The lovely Leigh Ross-Dakich stops by to share some stories a crazy story from her day around the city.          (1:11:50-1:19:37) – Dan takes a deep look at the Colts quarterback competition and what he will be keeping an eye on in the Colts first preseason game this weekend. (1:19:38-1:41:49) – The Fan's own Kevin Bowen, and new host of The Fan Morning Show, stops by to share what he learned from the Colts joint practices with the Carolina Panthers. KB also talks on the injuries to a number of different positions heading into the team's first preseason game against the Panthers this weekend. Plus, Kevin shares his thoughts on the quarterback competition between Jacob Eason and Sam Ehlinger.  (1:41:50-1:54:57) – Dan talks on how the only thing that matters in this quarterback competition between Jacob Eason and Sam Ehlinger is what Coach Reich sees through this preseason.                 (1:54:58-2:00:20) – The week ends with Dan asking show producer Jimmy Cook for today's edition of The JCook Plays of the Day. Plus, some chatter on last night's Field of Dreams game in Iowa. Later, Dan again asks listeners to help a 5 year old girl who is fighting for her life over at Riley Children's Hospital. See omnystudio.com/listener for privacy information.

June 19th marks World Sickle Cell Awareness Day! In this episode, we talk with child psychologist Dr Julia Lamotte about working with children with sickle cell disease and their families.  _____________________________________________________Do something good today!Dr Lamotte recently launched the Sickle Cell Story Club at Riley Children's Hospital in Indianapolis where she works. This program aims to give EVERY child with sickle cell disease seen at Riley at least one book per year. These are books with diverse and relatable characters reflective of the local community of people living with sickle cell disease. The books are selected with a focus on promoting emotional intelligence/awareness, self-esteem, and coping skills in these children.Your support can help ensure that this program is sustainable! Buy a book from their Amazon Wish List or make a donation. For more information, visit: www.storytimeclinic.com/dosomethinggood  Additional Resources: Sickle Cell Disease: https://www.sc101.org/ Child Mental Health: https://infoaboutkids.org/ Pain coping (for parents): https://itdoesnthavetohurt.ca/resources/  

Riley Children's Health is changing the way mothers and babies are treated in Indiana. The new Riley Maternity and Newborn Health Tower will open this fall. For the first time, women will be delivering babies at Riley. Dr. Carrie Rouse, a maternal fetal medicine physician, chats about this new care model and what it will mean for families.

In this week's episode of The Able Voice Podcast we are joined by six incredible music therapists to talk all about using woodwind and Brass instruments throughout the therapeutic process. We talk about safe and effective use of single line instruments within co-therapy settings, sessions with one therapist, and online sessions. Thank you to our panelists: Jessica Nielsen primarily works with clients experiencing mental health struggles and uses a client-centred, music-centred approach in working with clients. She uses various flutes, her voice, the piano, guitar, drums and acoustic and electroacoustic composition to help her clients express themselves through music. Amelia Ballak's primary instrument is the tuba. She works with a variety of clients, including TBI, developmental delays, mental health, and geriatric care. Amelia is a certified music therapist and registered psychotherapist. Katelyn Beebe's professional interests include extraverbal communication in therapy, improvisational music therapy, and empowerment of clients to participate actively in directing their therapeutic journeys. Jody Speck works with older adults in long term care, adults with special needs and children with autism. Jody is passionate about using music to foster meaningful and authentic connection. Katelyn Wheaton is a dedicated self-learner, and an active flautist who enjoys utilizing her flute in her music therapy practice. Katelyn has experience working with all ages with various needs (including developmental delays, cerebral palsy and Autism), and individuals with dementia. Tori Zimmerman has practical experience working with Autism Spectrum Disorders, Alzheimer's and Dementia patients, teenagers admitted to an inpatient behavioral health unit and mothers in the NICU at Riley Children's Hospital, and individuals with other intellectual and developmental disabilities. Let us know your thoughts and takeaways! Don't forget to subscribe to Able Voice Podcast and connect with us on social media (@mtahayley & @mta.kimberly) to join the conversation. AVP Theme Music by: Christopher Mouchette. Follow him on instagram (@cmouchette_) and Soundcloud (Chris Mouchette - https://soundcloud.com/chris-mouchette/able-voice-podcast-music). Episode edited by: Sebastian Vaillancourt (vaillancourtsebastian@gmail.com) You can support the podcast through a gifted donation here Episode Links: “Inner Circle: The People of Classical Music (listen here) Porcelain Doll Album: Learn more or Purchase Album

Thousands of Hoosier adults are receiving COVID vaccines every day in Indiana. But none of the shots are available to kids younger than 16.  So what does that mean for family gatherings? For cookouts and other outdoor activities? And what about youth sports? Host Mason King poses those questions and many more to Dr. James Wood, a pediatrician at Riley Children’s Health and an expert in pediatric infectious diseases. Dr. Wood offers practical advice for traveling, entertaining and other activities when parents are vaccinated and kids aren't.  

Jill Harding Whenever I share those stories, people like you look so, so optimistic and you're so bubbly on life with what you've been through. And I said because at the end of the day, my kiddos fortunate, they have taught me a lot about life in ways that I don't know if we didn't go through those experiences, one, I could have taught them as a parent. And secondly, I learned a lot by their endurance, resilience and what they all went through.   INTRO   Sometimes in life, one disruptive life event falls fast on the heels of another.  This can be hard in your personal life…but it can feel especially devastating when the pain affects your children.  And that is what we are going to be talking about today.  My guest is Jill Harding.  She is many things, which I will tell you more about in a second, but she has parented two children through some really hard stuff.  Her oldest child, Grant, was diagnosed with leukemia and her middle child, Berkley, had a life-threatening bout of E.coli.  You will get a behind the scenes look at the challenges and even joy along the journey and learn how to be a better manager, coworker, or friend to people living through similar situations.  Jill lives with her husband and three children in small-town Indiana, in Morgantown.  She has known her husband since the mid-90s and they always said that they would never live in Morgantown or own minivan or live in a log cabin.  But things change.      Jill Harding We live in a little town which we love and adore Morgantown. But I laugh when people ask that question because my husband and I have known each other since the late 90s and we always said no log cabin, no minivan and no Morgantown. And guess what?   Jill Harding We have a minivan and we live in Morgantown and we pass a log cabin to get to our house every day just on the irony of those early and that we don't even think of at our place like it's perfect.   Liesel Mertes All of the cup holders, the door is right, minivan, they're great.   Jill Harding And I love it. You go out and you're grabbing food on the go and they ask you if you need a cup holder. I'm like, Are you kidding me? I got a million in here.   Jill is a marketer, a high school basketball coach, an entrepreneur, and a small business owner.  She is raising three children with her husband.  And when it snows, Jill and her family love to ski and would do it all day, every day if she had the chance.    Liesel Mertes When you and I realize at this stage of life, it can be a precious commodity, especially with COVID. But when you have time to yourself, do you have any hobbies or like ways that you really like to fill your discretionary time?   Jill Harding And we do and I actually my husband and I, we like to just chill out and we have a pretty heavily wooded area that we live in. So we just like to take hikes. And and I like to do them by myself or my husband or even the kiddos. But I really feel like that just rejuvenates all of us.   Jill is also an avid reader; she loves books on leadership and entrepreneurship, but she also makes time for other genres.    Jill Harding And then I also my son is a huge, huge, avid reader, breaking school records, even with his reading accounts while he was in elementary. So he and I kind of share books, too, with his love for reading. In The Land of Stories is a new book series that we started getting into. So reading is another obsession of ours.   Liesel Mertes Ada, my eldest, loves Land of Stories and I know what that is like. It's its own kind of distinct pleasure.   Liesel Mertes I also love to read but a track with one's children. And so Ada and I are just reading together right now.   Liesel Mertes Oh, it's it's a keeper of the Lost Cities, which is a fantasy sort of romp into the land of elves, ogres, et cetera, et cetera, that it's like they're big like 350 page books and there's like eight in the series.   Liesel Mertes So I was reading far too much heavy non-fiction and I took a divergence over the last month and a half. And now just reading elves now at see that.   Jill Harding But I fact that you can talk about it like my sons always like where are you at in the book? And, you know, I asked him the same thing and it's cool to kind of chit chat back and forth on where we're at and live that dream happy together for sure.   Liesel Mertes Well, and I also resonate with I, I feel like I say often that our family is everybody's at their best when we're like outside in the woods.   Liesel Mertes Sometimes it can be a battle to get there with fussing, but it's always so I don't have any gloves or, you know, what have you. What an amazing. But once we get out there, it's so amazing.   Jill Harding We're fortunate to we have a little creek that runs in the bottom of our woods. And just to sit there, I mean, obviously right now it's kind of cold and frozen, but it's still cool just to watch it because, you know, natural beauty for sure.   Liesel Mertes There's something about the just the movement of water and what it brings also, which is its own goodness.   Liesel Mertes Well, you know, children and life with children. That's some of what brings us to this conversation. And I know that you have familiarity with the good people and staff at Riley Hospital, much like I do within my own story.   Liesel Mertes What brought you to Riley when you were pregnant with your second child?   Jill Harding So basically our journey with our son, Grant, he I was telling you before he actually was diagnosed with leukemia at the age of two and a half, and originally our pediatrician was, you know, just running bloodwork, doing this on the other.   Jill Harding And at one point, I guess that that motherly instinct just kicked in and like, no, this isn't good enough. I feel like I know my son. Yes, Grant was our first child, but I feel like I know that this son well enough to know something's just not right.   Jill Harding So I push back to the pediatrician probably more aggressively than they were expecting and just said we get a fine results today because I can't see my son in suffering any longer and they won't ask him,   Liesel Mertes What were you in, what sorts of symptoms was he manifesting?   Jill Harding Yeah, so it was shortly after Christmas and he would not even he got a train table. And if anyone's been around toddlers, two year old toddlers, once they start walking, they don't stop. They run in the raster and they're crazier than ever. And he got to a point where he got a train table for Christmas and he wouldn't even stand up to play at the train table at a little over two. And I was like, someone just doesn't make sense.   Grant continued to languish.  He got strep throat.  There were misdiagnoses by the team of pediatricians.  No meaningful answers.  Which was when the doctors send Grant to Riley Children’s Hospital in the state capitol, Indianapolis.  This was mid-January in 2013.  Grant was put on the 7th floor for infectious disease.    Jill Harding They said we're going to not let you guys leave until we figure out what it is. And we were OK with that because as you mentioned, I was pregnant with our second child.   Jill Harding So we're like, OK, we're going to figure this out because. Obviously, our son means the world to us, and so we stayed there for a couple of days. This was the twenty second, twenty fifth they finally figured out what was going on. And we were so fortunate at the time because the chief of basically the leukemia society are basically our doctor.   Jill Harding He was actually the one that was there doing rounds that day that was diagnosed, which is really mind blowing if you think about it, because Dr. Thallon was actually there and he's the chief and he was one doing rounds.   Jill Harding And he's the one that came in such a compassionate, humble doctor. I mean, more so than I think I've ever been around in my entire life. But he just came in, let us have our moments. He did a spinal tap right in the room with us just to confirm that we were dealing with leukemia, because then once you determine it's leukemia, there's various different types of leukemia that you can have.   Jill Harding And in this case, Grant had what they call HLL, which is if you're going to have the leukemia at two and a half, it was best that he had the HLL as opposed to the AML. So we were fortunate there in that regards. You see a silver lining. It was hard at the time, of course, but once we found that out, then we basically, you know, had a moment. They moved us to the fifth floor and treatment started.   Jill Harding And it was, again, pretty amazing that we had the chief there within the hospital setting that new leukemia very well and was able to walk us through the steps and such a truly compassionate individual. And he had grandchildren himself. So he had kids, my and David's age, which was nice because he knew how to talk to us and help cope with the situation.   Liesel Mertes Well, and as I hear you say in those parts of the story, I feel like it's helpful just to to color around the edges, because there are a couple of things that are going on, right. Like you're seven months pregnant. Also, you guys are not from Indianapolis, but you're in Indianapolis, you know, doing tests at Riley. Are you guys staying at the Ronald McDonald House? Are you in a nearby hotel? Because there's this painful thing that happens with your young child that they're suddenly in the hospital and you're having to recalibrate life to be able to be present. What was that stress like for you guys?   Jill Harding Yeah, that's actually a great question, because we are so fortunate to have family and friends that just basically helped us, people that just came out the woodworks really just to really help be a support system. We actually have a daycare and we our youngest still goes to that daycare today that we have a daycare where they just were showered us with love and ways to support us, to help us with our other just home and just things at home that we need to help with.   Jill Harding And my parents and David's parents both live close by to so grandparents, two sets of grandparents living close by. But thankfully, it's about a forty five minute drive for us. We basically, again, being very pregnant, it was uncomfortable, I'll forget that.   Jill Harding But it still was worth every moment to stay there with great Dave and I. Basically, I was considered basically I was a freelancer at the time and so I had my own business. So flexibility and that I mean, if I had a computer, I could pretty much do my work anywhere.   Jill Harding So that was nice. And then David worked for Indiana Farm Bureau insurance and they were extremely flexible with him working remote. So Dave and I kind of know how to work remote before our even what we're going to do current day is we were able to basically just be there.   Jill Harding We had our computers and thankfully I was still pregnant with our middle child. So it was just Dave and myself and Grant. So we basically just lived in that hospital. They kept us just in the actual in his floor on the fifth floor.   Jill Harding We didn't have to access the Ronald McDonald House other than like sometimes we would go just to get a break from the hospital room itself, take turns and so forth, and utilize the services that they do provide, like meals and so forth that they do provide through that service. And we also have since then paid it back a little, too, just because we know the importance of families who are driving in much more than what we are.   Liesel Mertes Yeah, I remember as as we have gotten care at Riley, just even sitting close by to a Check-In desk and, you know, like, where are you coming from today?   Liesel Mertes And people being like Louisville, all of which is a regional hub of people coming from all over.   Jill Harding Yeah. And we were actually I mean. Forty five minutes. It was it's not a big deal to us, honestly, because we were so fortunate that we had in the care and we would drive farther if we had to. But we're used to driving a half hour really pretty much anywhere. So ready for that we do so.   Liesel Mertes And it was so treatment begins for leukemia. How long was he in the hospital? And then when you coming back for continued treatment beyond that initial hospitalization time?   Jill Harding Yeah. So leukemia is one of those. The cure rate is high. Last I knew when we were looking at the numbers, it's ninety four percent. But the same token, it's a pretty long process.   Grant was placed into a trial program where he would come in for chemotherapy treatments over a course of three years.    Jill Harding So Grant was diagnosed at the age of two and a half. So January of 2013, he was diagnosed. So basically from that January 2013, he basically had three and a half years that we were in and out of Riley during that course of time, and we still actually go to Riley.   Jill Harding We're coming up on so through to have your process pretty aggressive. Aggressive in regards to the chemotherapy. I don't know if you've ever been around anyone that's had it, but to see a young child,   Jill Harding we would laugh because we can laugh about it now because I was very pregnant, right, with my Berkely, my middle child, and I was always hungry.   Jill Harding And then Grant had to be on steroids for 30 days. So he was always really hungry. So we're eating at ungodly hours like 2:00 a.m. He wants chili all of a sudden. But the challenging thing would be on chemotherapy. It kills the good and bad cells. So his body, basically his ANC, which is your ability to fight off infection, was oftentimes next to zero or zero. And so he couldn't need stuff that was leftovers from the night before that we put in refrigerator.   Jill Harding He couldn't eat stuff out in restaurants because it is speck of germ that he could potentially good could cause him to get really sick and can't afford to get sick because his body would have a hard time hearing being sick on top of what he was going through. So I would be out and I tell that story because it makes me laugh now so I could think I was pregnant. I said I would be making chili like two a.m. in the morning and I had to make it from scratch because he could eat with food.   Liesel Mertes Was it was that was that your reality for the duration of the three and a half years of needing to have a certain level of hyper vigilance?   Jill Harding Yes, it definitely was. And I think that we got told and I kudos to our support system and my husband, too, that they were really surprised, the social worker that we dealt with and then obviously his nurses and doctors, that we weren't more hospitalized with Grant, that he was had the fewest hospitalizations with what he was going through because of just our diligence and just awareness when someone we had so many people that wanted to bring us groceries, for instance, and when they would bring us groceries, David and I would be wiping them down with bleach wipes before we even brought it up in the house.   Jill Harding I mean, we were. To a degree, we got such a pretty Cold War, you did, we did, and we always laughed, too, because it was cold, right? It was about this time of year when we were in the thick of it and we laughed because we have we have a big picture window in our dining room. And so we would have all the blinds open and people would come visit Grant through the actual and talk back and forth with walkie talkies to the glass on one side outside.   Jill Harding We'd be on the inside and they so speak to some people would bring over toys and they would bring double the toys again. We'd walk them down with bleach, Grant play with the ones inside and they would be playing the same ones outside. So it was kind of cool. Just some of those things, like you said, we we did just out of we had to get super creative because obviously this is a child. We don't want to take away his childhood.   Jill Harding We have good memories. But this is challenging to go through for him and for us to see him go through it. And I think the beginning to his once we had Berkeley, it was nice because obviously, you know, given the new baby from getting sick was a little easier, too, because she was always in the house with us doing the routine we have with grandma.   Liesel Mertes So you really think as a child, as a baby baby, anyway, I not just the just the innovative kindness of people, you know, coming over with with double the toys and playing, you know, some time has passed as you go back and think about that time I'm struck that you're doing so many things like you're a business person, you are mothering an infant, you're managing the elevated health risks of a child with leukemia.   Liesel Mertes What were some of the what did like a dark day look like for you? What did your feelings of overwhelm like? When would they come up with they catch you off guard?   Jill Harding Yeah, because, again, Grant was our first child, right, so we didn't know, we still don't know where does parenting right. You just kind of learn as you go along. This is the knack of being a parent. But I think the moment when it was challenging the most is, you know, having Berkeley, having a brand new baby, baby infant, trying to nurse her and do all the right things that, you know, the pressures of just raising a child and then making sure that I give her the attention needed, even though she's she still has needs and attention that she needs.   Jill Harding Right. From a mother and father, but not letting that distract from even our care from Grant. I feel like sometimes it was kind of that emotional head game that we played because we know Grant needs extra special attention. We had to make sure we got medicines a certain time. We had doctors appointments on a regular basis, balancing those elements that we know him well, but yet not neglecting or not giving the attention that Berkely needed as a young baby.   Jill Harding I think those things then obviously sleep deprived from it all.   MUSICAL TRANSITION Back to Jill’s story in a moment, because there is still so much more ahead.  But I want to take a moment to thank our sponsor, Handle with Care Consulting.  We know that this year is full of all kinds of stress, and it is hard to know if you are giving your people what they need to survive, stabilize, and thrive in this constantly changing environment.  In all of the confusion, empathy is the skill that your leaders and your team need to build a thriving culture.  And Handle with Care Consulting can help.  With keynotes, workshops, and executive coaching options, we give you the tools to put empathy to work.   MUSICAL TRANSITION   Liesel Mertes I know within my own story, there's our daughter Mercy died and then it was.   Liesel Mertes Maybe three years later for where we got the news that our son, Moses, had a really profound heart condition, that he was going to need lots of open heart surgeries, all that to say going through one hard thing with your children is not a guarantee that you won't go through other hard things later on down the path. I know that that has congruence with your own story. What happened with E. coli and your family?   Jill Harding When you hit the nail on the head, it's hard and I'm sorry you had to go through that, too, but I know in the end it all happens in places that much stronger when you come out on the other side, whatever that result may be. But so Berkely birthdays is our we call our spitfire. She's always been she's a lot like personality wise. And I tell her sorry a the time like me. So but this same time I think I know it helped her just that.   Jill Harding That sassiness, that determination, that that drive she has even at a young age, so I remember vividly because my husband actually went back to nursing school through everything we've been through with Grandma. And he actually became a nurse roughly three years ago. Just everything that we've been through with our son every time he go to hospital because we were there a lot, as you probably could imagine. My husband is just like, I need to be here. I need to be helping people.   Jill Harding And so my husband, kudos to him getting a nursing degree while having three kids at the time. And now he works at the medical ICU in downtown Indy at University Hospital. Kudos to you as well. To partner.   Jill Harding Oh, yeah. I was the bad guy, so supercooled to see him do that, but with that hope man. So he was working at the hospital. It was crazy because it was Sunday and I was not any Sunday. It was the Indy 500. The biggest tackler in the world was happening on this Sunday in May.   Jill Harding And I, I just tell these details because you got to kind of laugh about it, because if you don't laugh about it, then you cry about it and you don't.   Jill Harding But my son, I was so I was home with three kids by myself, right, and Berkley was five when all this happened and my son comes running into I think I was in the kitchen and he said, Mom, I was like, yes, he's like Berkley just pooped.   Jill Harding I'm like, OK, good for like, did you wash your hands? Right. And he's like, no, you don't understand. I'm like, what are you trying to tell me? Then he goes, There's blood in.   Jill Harding And I think I'm like, no, there's probably not blood in his pocket or something. Right. So I'd let it just go. And I just played it off like that because I was like, you know, Grea does not know that there's blood in there because it would have been the same.   Jill Harding He would have been a, Berkeley's by just being kids. Right. Right.   Jill Harding So I just kind of blew it off and she pooped again. And it's like, Mom, no, I'm not kidding. She's got poop in her blood, our blood in her poop. I'm like, are you sure? So me as a mom, like, OK, I'm going to humor them and go look. And I did. And I was just like, well, Grant, thanks for telling me. And this is the eight a little boy telling me this.   Jill Harding Right. And I was like, thank you, buddy, for telling me. He's like, what does it mean? I'm like, I don't know. So I'm basically trying to get a hold of my husband again. I told you, he is a nurse. So very tough to get a hold of him, especially in a medical ICU.   Jill is finally able to get a hold of David, who is working his shift.  Thankfully, a coworker offers to cover his shift so he can rush to Riley to meet Jill.  Jill’s brother came over to be with Grant.  And they arrive, back at Riley, which is familiar but surreal.   Jill Harding We actually went to the E.R. and they immediately didn't mess around. They did bloodwork, urine samples, stool samples, everything you can imagine to run tests on her little body. And they they couldn't figure out what was going on. So lo and behold, they it was so deja vu. They put us on the seventh floor infectious disease floor again.   Jill Harding And still, we have no idea what's going on other than we know there's blood in her stool   Liesel Mertes And are you finding yourself, like, completely emotionally flooded right now, like, oh, I did like some some people kind of like detach almost from the situation. Some people are right in it. Like what's going on for you as a mom?   Jill Harding As a mom, I was Dave and I were like we were so distraught because we have a good friend who's an E.R. doc. And as a dissertation, she actually did a full report. And like leukemia and how leukemia, is it hereditary? If you have multiple children, siblings, would they get it? And so we're like just went through this and there's no way. So we're thinking maybe it's leukemia again because of what we were experiencing. Right.   Jill Harding Similar types of experiences. So, I mean, we were just like almost so surreal that I was it wasn't really even overwhelming. It was just like. OK, we got this we've been here before, we got this we're going to be OK. What a good place. Let's just keep asking the right questions. David the nurse now so he knows more questions to ask. At the time I was back at Cook Medical, so I was in the medical device realm.   Jill Harding So I knew there's products to help from a device perspective. So we just need more questions to ask in this scenario than what we did before, because we obviously have been through life a little bit different than what we were expecting.   Jill Harding So anyways, fast forward, we talk to the doctors. They finally said we don't know what's going on. Too much test. They kept us another night like they did with grea type thing. And they finally figured out, OK, she's dealing with E. coli.   Jill Harding So E. coli, there is a 50 percent chance at her age and being female that she can get something called at us, which is hemolytic uremic syndrome. And in layman's terms, that basically means her renals can go into renal failure. Renals are what feed your kidneys, basically. It started making sense because her urine output started going down, so she had no urine for at least 24 hours at this point and she was drinking.   Jill Harding So we know she's got the fluids coming in, but the fluids aren't going out. And her stomach was getting real distended where it just stuck out, you know, just looked at her. She's a really petite, small little lady. So we knew something just wasn't right. And then they finally figured out that,   Jill Harding OK, she's got E. coli. The strain of E. coli she has could potentially cause her to have HUS. So they monitor, monitor and unfortunately, unfortunately, see how you will. They put us on the fifth floor again.   Jill Harding So we're like, wait a second. The floor is leukemia. We know that floor all too well. We've lived for so many days and hours and they're like, well, we put you on that floor because that's also our transplant floor and it's also our floor that we do dialysis if we need to do dialysis.   Jill Harding And then at this point, two more challenges, because we have two children back home. We have an older and a younger siblings of Berkeley at home. I mean, I know they're in good care, but still I mean, they're scared because I don't know what's going on. They got a lot of questions. And if my brother does, too, because he wants to be able to give them answers when they become available.   So there's well, and I'm free.   Liesel Mertes But that sense of like the limited resources of yourself as a parent to like you physically can't be in two places at once. Yeah, definitely.   Jill Harding And I know, Grant, I mean, obviously, with what he's been through, his heart is pure gold. And, you know, he's cutting my warrior of the three kids. And so he just wanted to be there with us. And it's hard to understand that we got to be here. We'll be there when we can together. Just give us some time.   Berkley is retaining fluid, getting puffier and puffier so the doctors decide to start hemodialysis.    Jill Harding But hemodialysis is basically where they take out. And it's phenomenally crazy to me. If you just think about what I'm about to tell you, the machine is huge. It's about the size of it, like a refrigerator. Basically, the machines are big and they take 10 percent of your blood out and cycle it, filter it through this machine.   Liesel Mertes Wow.   Jill Harding And so they filter it through the machine. So 10 percent of your blood at any given moment in time is in this machine being filtered and then cycled back into your system. So while the things that we learned along the way, she had to have ended up having six different hemodialysis treatments and it just I mean, it was exhausting for her to go through that and.   Liesel Mertes I just want to ask you about, like I can imagine that scene, you're like these are these are not easy procedures.   Liesel Mertes You know, they're involving needles, they're involving discomfort. They're involving multiple checks by nurses. Was there a sense of, like, overwhelm or powerlessness, like just as you're watching your child go through unnecessary pain?   Jill Harding Well, I will say it probably helps in our scenario, David, one being a nurse and then me having a background in medical devices because we knew that these there's great products that the companies that we worked for offered. And then obviously David knew more what was going on than I did.   Jill Harding So he was able to kind of walk me through it. But there's still something we hit the nail on the head to be said about seeing your own child. Right. It's not to dismiss it if it's someone else lying there or if it's even me right there. But to see your own physical child and someone feeling helpless in regards to pain, I will say with Berkely in particular and Grant to adjust their personalities are really different.   Jill Harding Berkley was pretty much she would tell the nurses what to do and she was not messing around. She even during her painful moments, she has grit. We called her tough as nails because she just has this, I don't know, something embedded in her personality that she's a fighter.   Jill Harding She uses a lot of humor to get her through tough times right now at the nurses, she would ask them for things that she knew she can have, like Skittles. But just to keep them on their toes, they'd be like, wait a sec.   Jill Harding You can't have that.   Liesel Mertes A sense of agency. Yep.   Jill Harding And again, she's a little petite, five year old little girl. She's real small. I think she weighed maybe thirty eight pounds at the most during all this. And so she would be on they would weigh her before and after each treatment. And sometimes she lost five, six pounds and hemodialysis treatment because of the fluid that her body was keeping.   Jill Harding Well but during all this she actually got C. diff too. I'm not sure you're familiar with this, but yeah. See that during it all.   Liesel Mertes As you think about those times in the hospital for those who are listening who have not had to be with a child long term in the hospital. What are some things that you wish people knew about what that reality is like?   Jill Harding Hmmm, that's a really tough question. I think that. It gives you a lot of humility, I mean, regards to humble, because David and I have always been very independent individuals, we don't really ask for help.   Jill Harding We just kind of just make it happen because we're strong willed individuals and we'll just find a way.   Jill Harding But I think I know from our experience personally that it's OK. People want to genuinely help others. I mean, that's just human nature. And I think once we put our pride aside and our guard down, it helped us as parents to really do what we needed to do.   Jill Harding And it took away from the challenges of us not being 100 percent present for at the time, Grant. And then that time later, Berkeley.   Jill Harding So I think with those scenarios and in and of itself, it's just. Be compassionate. Ask for help, but if someone doesn't immediately want your help, it's OK because they've got to do it in their own way, right. Because everything is unique to that family, that circumstance, that situation.   Liesel Mertes Yeah, I talked in my trainings that it's not about you as the person who is offering help, like almost never. Is it about, like, judgment on your relationship.   Liesel Mertes It's just even stuff like is messy and so often help. And if the person says, yes, be willing to follow through and if they say no, they don't take it personally yet.   Jill Harding And exactly, because I think what we're going through right now in our world. Right. I mean, like in our situation, we never been through that. And many of our friends have never been to that. Right. So you just got to go with what your instincts. And we rely heavily on our faith because we are people of faith. But at the same token, you know, we never been through that. So, you know, maybe grace to those folks and like you said, get to meet them where they're at because at the same time, we didn't know what we needed or didn't need.   Right.   Liesel Mertes Yeah, that's another thing I say that that the let me know how I can help. Question isn't as helpful as you would think.   Liesel Mertes It would be like finding clean underwear.   Liesel Mertes But I don't know what were some of the best ways that people helped your family?   Jill Harding I think it's just the, um. Just to know that we had the support, right, just a phone call, just even if it's just listen to me cry or David cry or just listen to us in silence, if you will. I think just knowing we had people behind the scenes, I also know that I have since he's passed on. So it hurts my heart to even say this.   Jill Harding But my best buddy and Andrea, we've been best buddies since third grade. Her father wanted to help so bad he's retired. So he had the abilities and means to help them. At the same token, like he would bring us groceries, like unexpectedly. And he kept on like what we liked at Kroger and he would just randomly draw stuff off because he knew he'd done it before. So he kept he was so sweet. He kept a list of our favorite bars or snacks or what have you.   Jill Harding And we just make sure he kept us knocked up that and it's just simple because it wasn't anything like, you know, they put him out too much. It was just kind. Bars are David's favorite potato chips, what have you. Just simple things. But it's still so just like what people are thinking about us.   Jill Harding So just randomly dropping those off our   Liesel Mertes And what beautiful intention also, like, you take time and ask what you liked. And then he wanted to remember it and he didn't have to. It sounds like hassle. You do this, you just realize like these are staples they're always going to enjoy receiving. I'm just going to bring them. I love that.   Jill Harding I was really cool. And and I think that.   Jill Harding Just the the window time we call it window time, where I would actually sit on his window and look out and play with folks, I think just being mindful, even though people have to be guarded in those scenarios that we were in and have to be more inside in their own space and not exposed to other germs outside of their home, just putting that like being creative, I think how we communicated and still played, but yet did it through a different means.   Liesel Mertes Well, I'm thinking about I mean, there's support of you, right, as the parent. There's also the support of your child who has had their world turned upside down. And I imagine it felt meaningful to receive support.   Jill Harding Well and the cool thing about the window, time was allowed to play, like with his his papi. We call David's dad Papi, with his papi outside the window while Grant was inside the window, but allowed David to kick our feet up for a minute and let that Grant was entertained and happy. And we did that for a little while, too, when she came home because she was still her ability to fight off. Infection was still pretty low at some point, too.   Jill Harding So we did the same thing with her as well. But I think just showing folks that you're you've got that support system, whether you tap into it. Again, like you said, you get to meet those individuals where they're at and let them. Like you said, I don't know what I need right now, I just need right. I just need like I don't have one iota of extra creative energy right now.   Liesel Mertes OK, so on the other side, was there anything you don't have to name names, but was there anything that you were on the receiving end of that you would say this is this is just not helpful? Don't do these things.   Jill Harding I think so, yes. The constant like. What's around I'm looking for the constant sharing of, like, knickknack little things like that, either we can only have so much in the hospital and I say this because people just don't know, like birthday was on the transplant floor.   Jill Harding So she couldn't have anything in life. So people would try to send her flowers. Well, she never got to enjoy those because she wasn't able to have those in her room because the thing was soil on it, for instance, anything like breathing, she can I could plants. You can actually have those in her room. So. Yeah, and people didn't know that.   Jill Harding But I think I almost wonder if sometimes that that's the staff at the hospital too.   Jill Harding But I think it's just maybe doing a little bit of homework before you do that kind gesture, because I hated that for the individuals that sent her stuff like that because. You know, that they spent now. Now, great, we said make sure it gets to a nurse's station or it gets to someplace where someone can enjoy it but still going to enjoy it.   Jill Harding And then she saw it from the window and she's like, oh, good. Then we had to talk her off a cliff for a little bit because she thought that she could have was in her room. Right. And I think just if someone says, I don't know what I need right now, don't cry, because they will come and you'll know, but don't force it. Let it be.   Liesel Mertes Yeah, that's a great point.   Liesel Mertes Jill, is there anything that you would like to add that I didn't ask you in our time together?   Jill Harding Um, yeah, I think so.   Jill Harding I think just when we go throughout our days, just know regardless big or small or whatever it is, we all have a story and we just got to be mindful we're all human. Right. And there's no like rulebook on how to be the best human ever. Technically speaking. Right.   Jill Harding So just have compassion for other people and just be realistic in that everyone's got a story. Everyone's weathering something, whether it's big or small, and just realize that, you know, words do hurt more than people realize.   Jill Harding And I think also, too, like back to my kiddos specifically both Grant and Berkeley, they've been Tindley because she's been through all this with us as well. With regards to Berkeley, just let those moments happen. Do the best you can to weather through those moments that make sure you come out on the other end as strong as you can by what you've learned through that moment. And what I mean by that is like   Jill Harding Grant and Berkeley both, like I think that they have learned some things and their characters have been shaped in ways that I feel like would have been really tough for David and I to have instilled in them if they didn't go through the experiences they went through.   Jill Harding Right now, both of them have scars from their great how to put a catheter in Berkeley, had some catheters in her jugular area. So they both have scars. And I tell them all the time and they tell me now to because I've told them so many times. But those are like, that's part of you and that's OK. That's what makes you grant unique. That's what makes you unique. Like everybody else as well. We all have something that's unique to us, kind of like a snowflake in that regard dry.   Jill Harding We're all unique in our own way and don't be ashamed of that. In fact, be proud of that, because those scars have shown that you're still here with us today.   MUSICAL TRANSITION   Here are three key takeaways from my conversation with Jill… There are many restrictions for an individual living with cancer.Hearing all of the challenges with just eating (the concerns about leftovers, the need to clean food etc) gave me a deeper appreciation of how tenuous life and infection can be.  With that in mind, learning a little more before giving gifts (like flowers) is important. Consider what creative engagement with a child who is immuno-compromised (or battling COVID) looks like.I loved the story of play dates through a window with walkie talkies (plus there was the added benefit of giving parents a chance to rest). Remember that “Tell me how I can help” oftentimes is an unhelpful question to people who are already living through something hard.Many times, people don’t know in the moment what they need and they might feel tentative following up with a request afterwards.  Instead, know what you can offer (perhaps a grocery drop-off, a Door Dash certificate, or doing some yard work) and extend a specific offer of help.   OUTRO

A segment of the boy's 24 hour live stream #4theKids, a charity stream in benefit of Riley Children's Hospital via Extra Life. Enjoy! Support the Show: https://patreon.com/hardserious Interact with Us: podcast@hardlyserious.co Instagram: https://instagram.com/hardly.serious Watch Live on Twitch: http://twitch.tv/HardlySeriousCast

Dr. Brandon Brown from the Indiana University School of Medicine and the Fetal Center at Riley Children’s Hospital gives an inside look at what it’s like to be a radiologist, including why he chose the field, the most rewarding and most difficult aspects of his work, the biggest misconceptions, and how his faith guides his life as a physician.

Feature Interview (9:48) – Dr. Brandon Brown from the Indiana University School of Medicine and the Fetal Center at Riley Children’s Hospital gives an inside look at what it’s like to be a radiologist, including why he chose the field, the most rewarding and most difficult aspects of his work, the biggest misconceptions, and how his faith guides his life as a physician. Medical Trivia (Answer at 48:28) – In 1895, German physicist Wilhelm Roentgen discovered X-rays and took the first X-ray or who else - his wife and her hands to which she exclaimed, “I have seen my death!” By 1900, Thomas Edison’s assistant, a glass-blower named Clarence Dally, was experimenting with X-rays and improving the resolution of them. However, Clarence ending up dying in 1904 from high doses of X-rays, thought initially to be harmless, that led to him progressively losing hair on his hands, developing ulcers on his hands, and then the amputation of both hands, then both forearms, and then both arms - and finally the loss of his life after metastases to his chest. What disease did the X-rays cause on Clarence? ------ www.redeemerradio.com www.cathmed.org Follow us on Facebook: @DoctorDoctorShow Submit your question(s): Text (Holy Cross College text line) – 260-436-9598 E-mail – Doctor@RedeemerRadio.com Subscribe to the Podcast: iTunes | Google Play | SoundCloud | RSS

In this conversation, Dr. Hassink is joined by Tamara Hannon, MD, FAAP who is a professor at the Indiana University School of Medicine and a practicing Endocrinologist at Riley Children's Hospital. Dr. Hannon is also a member of the Committee on Nutrition. In this discussion they talk about the updated nutrition food labels and how pediatricians can talk about these new changes with families to help inform healthier food choices.

Dr. Z and Dr. C talk to a rising star in sickle cell disease, Dr. Seethal Jacob, and her work at Riley Children’s Hospital.     Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Last week, I told you about the early life and brutal death of five-year-old Lauren Michele McConniel. When Lauren was admitted to Riley Children’s Hospital in Indianapolis on March 3, 2010, she weighed a scant 28 pounds and had absolutely no fat reserves. She was covered in injuries, had a deadly level of salt in her blood, and had been displaying increasingly disturbing behavior while living in Indiana with her father, stepmother, and three adult members of her family, behavior that many believe was caused by sexual abuse at the hands of her step-grandfather. All the while, Amber’s mother, who lived in Tennessee, had been exhausting every method possible to find her, but by the time someone told her where her daughter was, it was too late. Lauren died in the hospital on March 9, 2010. Three months later, the first of five adults would be arrested in connection with Lauren’s death. This is the conclusion of the story of Lauren McConniel. Photos related to today's episode can be viewed on Facebook and Instagram.You can also follow the podcast on YouTube, Twitter, Tumblr, and Pinterest.  Visit the podcast's web page at sufferthelittlechildrenpod.com.  Please help make the show my full-time gig to keep the weekly episodes coming! By supporting me, you'll also access rewards, including a shout-out by name on the podcast and exclusive gifts!  This podcast is written, hosted, edited, and produced by Laine.  Lauren’s story was originally featured on Suffer the Little Children Blog. Music for this episode is from AudioJungle.net.  Subscribe to Suffer the Little Children on Apple Podcasts, Google Podcasts, Stitcher, Spotify, YouTube, or your favorite podcast listening platform.

Meet Donna Fischer, Community Fundraising Events Manager for Riley Children's Foundation as she shares the Extra Life fundraising platform.

Six months into the pandemic, parents are still struggling with what COVID-19 means for the kids. Should they be in school? Can they go on play dates? Can they hug grandma? Of course, in many cases, there are no black and white answers to those questions. But host Mason King gets some educated opinions from Dr. James Wood, a pediatrician at Riley Children's Health and an expert in pediatric infectious diseases. Plus, Wood explains multi system inflammatory syndrome (which he describes as "extremely rare") and theorizes why children may not be as affected by COVID-19 as adults. The IBJ Podcast is brought to you by the law firm Krieg DeVault.  

This week the gang got together for a special event! We took part in the Extra Life Tabletop Appreciation Weekend to raise money for Riley Children's hospital in Indianapolis, Indiana. Find out more here: https://www.extra-life.org/index.cfm?fuseaction=donordrive.participant&participantID=414673 MalletEditor - Ariadne Pantasis (Lasombra) MPI - Gregory Empeei (Tremere) Sadomi - Xanthra (Malkavian) STaiRBNDR - Iggy Wright (Toreador) RaabTDK - Damien Reed (Ventrue) _xGonex_ - Phalen O'Shea ( Ravnos) MarkBWriting - Storyteller C Chicago will never be the same after these Vampires run amok as the newest Vampires on the block. Welcome to Vampire: The Masquerade 20th Edition. Games Recorded LIVE on Mondays on Twitch at Twitch.Tv/MPICreates 7pm CST

We close our 16-part Remembering John Andretti feature with his friend, radio host Dave 'The King' Wilson, who shares stories of their charitable efforts that have raised millions of dollars for Riley Children's Hospital in Indianapolis. Subscribe: https://marshallpruettpodcast.com/subscribe Join our Facebook Group: https://www.facebook.com/MarshallPruettPodcast

Host: Wendy Marie Ingram, PhD, is a Psychiatric Epidemiology Postdoctoral Fellow at Johns Hopkins School of Public Health. Guest Interview: Dr. Emily Webber, MD, FAAP, FAMIA, is the chief medical information officer at Riley Children’s Health and Associate CMIO for Indiana University (IU) Health. She is a pediatric hospitalist at Riley Hospital for Children and also is focused on the optimization of health IT, applications to improve quality care and patient safety and promoting the health of Indiana children and communities.

On this episode of The Handoff, Dan speaks to two seasoned travel nurses who are using the flexibility that traveling provides to amass a diverse set of clinical experiences and explore their personal passions. Jeri Ford and Alex Herlocker share advice for nurse and healthcare leaders about incorporating flexible workers into their units, why they value peer to peer feedback and the importance of a solid orientation. Jeri shares with Dan how travel nursing has allowed her to pursue her dream of entrepreneurship and Alex talks about his adventures traveling the country with his family as a full time nomad who lives completely off the grid.   Jeri Ford is an experienced pediatric nurse who started her career at Riley Children's Hospital on the Transplant and Neurosurgery floor, and has spent the last several years traveling to hospitals around the country from Honolulu to Dallas and everywhere in between. She recently launched a company called Baby Whisperers, which pairs new parents with individuals with a medical background who can help with breastfeeding, sleeping routines and overall newborn care. You can find her on Instagram @jerilynn_89.  Alex Herlocker is an ICU nurse who started his career on the neuro intermediate care unit at the Medical University of South Carolina. In 2015, he transitioned to a role as a travel nurse and has been criss-crossing the country in an airstream with his family,  including wife, three children and two dogs. They document their travels on their blog Wee Little Nomads and on Instagram @WeeLittleNomads. The transcript for this episode can be found here. 

On this episode of The Handoff, Dan speaks to two seasoned travel nurses who are using the flexibility that traveling provides to amass a diverse set of clinical experiences and explore their personal passions. Jeri Ford and Alex Herlocker share advice for nurse and healthcare leaders about incorporating flexible workers into their units, why they value peer to peer feedback and the importance of a solid orientation. Jeri shares with Dan how travel nursing has allowed her to pursue her dream of entrepreneurship and Alex talks about his adventures traveling the country with his family as a full time nomad who lives completely off the grid.   Jeri Ford is an experienced pediatric nurse who started her career at Riley Children's Hospital on the Transplant and Neurosurgery floor, and has spent the last several years traveling to hospitals around the country from Honolulu to Dallas and everywhere in between. She recently launched a company called Baby Whisperers, which pairs new parents with individuals with a medical background who can help with breastfeeding, sleeping routines and overall newborn care. You can find her on Instagram @jerilynn_89.  Alex Herlocker is an ICU nurse who started his career on the neuro intermediate care unit at the Medical University of South Carolina. In 2015, he transitioned to a role as a travel nurse and has been criss-crossing the country in an airstream with his family,  including wife, three children and two dogs. They document their travels on their blog Wee Little Nomads and on Instagram @WeeLittleNomads. The transcript for this episode can be found here. 

John Andretti's visit to The Week In IndyCar show in January of 2018, not long after his colon cancer diagnosis was revealed, was my favorite episode back then and remains so today. After listening to the listener-driven interview after his loss on January 30, 2020, I wanted to take another shot at editing the episode to fix some technical glitches and to trim the show down to the best parts where John spoke on his amazing, multi-faceted career. Please enjoy the warmth, talent, and humility that endeared Andretti to so many, starting with: Update on his physical condition (starts at 6m19s) Leading colon cancer awareness initiative (9m15s) Toughest Indy 500 competitor and birthday story (11m44s) Vehicle he always wanted to race but couldn't (15m56s) How his father Aldo would have fared as an Indy 500 driver (18m07s) Favorite race car liveries he's represented (20m31s) 1990 Porsche IndyCar program and 1991 Jim Hall Lola-Chevy IndyCar effort (25m08s) Dealing with cancer and future goals (38m50s) #CheckIt4Andretti (46m29s) Favorite Jim Hall stories (52m36s) Favorite street car (59m43s) Thoughts on Richard Petty (1h02m14s) Driving for legendary team owners (1h06m53s) Memories of following cousin Michael and Rick Mears during their 1991 Indy 500 duel (1h12m01s) Trying his hand racing in the NHRA (1h14m26s) Riley Children's Hospital (1h23m48s) Driving styles (1h35m00s) Racing at the 1988 Bathurst 1000 (1h45m56s) Subscribe: https://marshallpruettpodcast.com/subscribe Join our Facebook Group: https://www.facebook.com/MarshallPruettPodcast

Jeremiah Morrell and Dakota Davis are your hosts! Audrey Davis sits in as a co-host and Chris Guffey is the producer! https://bosshog.fireside.fm/163 We talk with Chris Lamb, who leads the New Castle Career center and learn about his journey from the US Army into teaching and ultimately leading a program with nearly 600 students from 8 school corporations. Program options range from building trades, dentistry, culinary arts, to engineering and even barbering! 18 programs offered in our community to high school students that can reduce the number of college classes needed for a degree, or to get them directly into the work force. Finally - Jeremiah Morrell reflects on the passing of John Andretti and the great work he did raising funds for Riley Children's hospital at New Castle Motorsports part, and for St Judes Children's hospital. Over 5 million dollars for kids between the two efforts. Great episode - download, like, subscribe, and SHARE today. Our program is community supported on Patreon. Do your part by chipping into the cause by donating monthly at any level at www.patreon.com/bosshogofliberty and receive even more BONUS coverage and content. Support The Boss Hog of Liberty Learn more about your ad choices. Visit megaphone.fm/adchoices

Disruptive life events linger; they cast a long shadow. Years afterwards, you can still be surprised by sadness or fear. Magnus knows about living with pain and uncertainty; his sister died when he was just one year old and his younger brother has needed multiple heart surgeries. Magnus shares about how pain can bring us closer to people, what kids really want from their parents, and how a note or a song can be a powerful gift to those experiencing sadness.   – Magnus Mertes He was born at Methodist but he had heart troubles so they had to quickly get him over to Riley because Methodist never had the equipment. So he was taken into Riley Children's Hospital, I remember when I heard about it I felt a little shaky inside and I thought, am I going to lose another sibling?   INTRO   Today, we finish our three-week miniseries on childhood disruption.  Over the last two episodes, we have considered how disruption particularly affects children.  By extension, we are also talking about the adults that care for them. If a parent goes through disruption, whether that is a divorce or a move or a death, they are also interpreting and explaining and shepherding their child.  I know, from my own story, how important and exhausting this role can be.    I hope that these reflections help in three potential ways.   They help you better companion the children in your life that have experienced or are right now experiencing disruption.If you don’t remember, childhood can be hard.  There are scraped knees and neighborhood bullies.  Someone is always deciding when you go to bed and what you have to eat for dinner.  Now, factor in a divorce or a cancer diagnosis.  It can all feel pretty overwhelming, for both kids and adults.   These episodes help you show more empathy to friends and coworkers that are parenting children through seasons of disruption.These adults are not only managing their own sadness and exhaustion, they have little people that are looking to them for direction and guidance…and that is a really particular burden to carry.     Maybe these reflections help you to encounter your own childhood disruptions through a different light, to reflect on the ways that you were met or missed and how that empathy (or lack of empathy) might still be affecting you now.   Magnus Mertes is my guest today.  Magnus was only seventeen months old when his younger sister, Mercy Joan, was born. Mercy had a birth defect called an encephalocele, the base of her skull did not close and she only lived for eight days.  Magnus held Mercy, stroked her face, and ate bananas at her funeral.  A few years later, a younger brother, Moses, was born. Moses has had to undergo multiple open heart surgeries over the last five years.  Magnus talks about what it has been like to live under this shadow of death in today’s episode.    Magnus loves to laugh.  He is a good friend, creative, sporty, he loves to draw and tells a great story.        - Liesel Mertes So tell me a little bit about yourself.   - Magnus Mertes So I'm Magnus and I have had a little sister pass away, great Uncle pass away. Yeah I've had some kind of hard things throughout my life.   - Liesel Mertes Yeah you have. And we're going to talk about some of that today. But how about you tell me a little bit just about you as a 9 year old. What are the things that you really like?   - Magnus Mertes Well my favorite sports are football and soccer and my favorite book series is Lord Of The Rings and I really like playing outside and being with family.   - Liesel Mertes Yeah. You do. What grade are you in this year?   - Magnus Mertes I'm in fourth grade, Miss Wilson's class.   - Liesel Mertes And tell us about what's coming up this week that's really exciting for you.   - Magnus Mertes This week is my very first track meet and it is also my birthday.   - Liesel Mertes You mentioned you've had a couple of hard things happen. Tell me about your little sister, Mercy.   - Magnus Mertes So when my sister was born, and she was three and I was 1, my mom got pregnant and I felt so excited like, I was going to have a little sister. But then, when the diagnosis came in that she would have some troubles, I just felt really down because I didn't want her to die. And when she was born, I felt so happy and I thought, oh she's going to live through this. She is. And I only got a short time with her, only eight days, and then she passed away in my mother's arms at my grandma's house yeah.   - Liesel Mertes Do you remember much about how you were feeling at that stage or how you feel as you remember it now?   - Magnus Mertes I feel right now, You feel sad because I really would have liked her to have been here, no offense my little sister Jemima, but I felt like I would have liked to have another sister in the house   - Liesel Mertes Yeah I know that it affected some of how you've thought about death. Could you tell us a little bit more about that?   - Magnus Mertes Yeah I was kind of affected the, I feel like when we die when I feel like you go up to heaven and there's just this blooming city of gold. And when I was little I used to imagine that I would meet Abraham Lincoln there yeah.   - Magnus Mertes I also really. Why. The thought of how we're going to be made again made me feel really good inside and made me feel cozy.   - Liesel Mertes Yeah. What. Tell me a little bit about Moses and what has happened with him and how that has made you feel.   - Magnus Mertes Well, Moses. I always wanted a little brother, one I could play with. And when I saw him for the first time, I just, went over and just couldn't keep my eyes off him and I thought my head, This is my little brother now. But he was born at Methodist but he had heart troubles so they had to quickly get him over to Riley because Methodist never had the equipment. So he was taken into Riley Children's Hospital remember when I heard about it I felt a little shaky inside and I thought, am I going to lose another sibling?   - Magnus Mertes But I felt really great when his doctor, Ben Ross, felt really great that they were able to do they're able to take out one of his organs and replace it with a cow organ. And now we kind of joke around like he's the only person in family whose 1 percent cow.   - Liesel Mertes This is an ongoing joke in the family.  And, in the interest of accuracy, Moses’ doctor is actually the immensely talented Dr. John Brown at Riley Children’s Hospital.  He pioneered this procedure called a bovine tricuspid valve. Basically, a particular valve is harvested from the neck of a cow and is now keeping Moses alive.  Hence, he is “part cow”.   - Liesel Mertes We do joke about that. Are there things that have scared you or made you worried about getting sick or dying? What has that been like?   - Magnus Mertes So, one time I got a concussion and I felt like really, really, really scared because sometimes, concussions can be fatal. They can damage your brain in all sorts of ways and there's this famous boxer who died of concussion. And I was so scared at that time.   - Magnus Mertes Other times. On Memorial Day 2018, there's a huge log that was on the White River that just toppled over and like it was stuck there and I decided since it was making all these rapids and we were getting blown away by them in front of the log. I decided to go up around the back and float down and have a little bump fall and get pushed away. But what happened was when I got there right next to the log about a meter away I got sucked under by an undertow and I was just sucking, sucking, sucked and my life jacket that neared on a branch. Those like factor for about three seconds and my mind was, I was thinking, OK I'm going to drown, I'm going to drown, a minute I'm good I'm going to drown. But then what happened, it was like a miracle because that part snagged ripped off, that was pushed the way that my life jacket cause you know how they are, they pop you right up. Once I got out of the undertow about, 14 seconds later, I popped back up and I felt so relieved. But then I heard I saw of it. My older sister Ada and her friend, Scout's, face. They were like so worried and I went over and I said, What's wrong? They said Moses followed you. He got sucked under. And then I thought, Oh no no no no. This almost happened to him, he almost just died when he was a little boy. He almost died. I don't want him to die; I don't want my little brother to die. And he was under for about thirty two seconds after that and I felt so, so scared they drowned. Then finally, the same thing happened to him. It snared and then he popped right back up and I felt so, so overwhelmed with joy and happiness and relief that he didn't drown. And I just felt like God did the miracle for us yeah.   - Liesel Mertes That's a scary story. I'm so glad you guys were OK.   This story captures my attention for two reasons.  First, it horrifies me because I and three other grown-ups were standing right next to the river, eating oranges and chatting, and we didn’t have any idea what was happening.  That is how fast these childhood traumas can happen.  In Magnus’ story, I also hear the immediacy of his fear and anxiety…and the reality that disruptive life events don’t fit into neat, discreet boxes.  The river, the surgery, the threat of death, they all cascade into each other.       - Liesel Mertes Do you find that, like do you talk about Mercy much with your friends or with teachers at school?   - Magnus Mertes Like, with my best friends who, like Sebastian Falconi. Yeah, I'd tell them about it.   - Magnus Mertes Because I feel like I've gotten a good friendship with them and that they tell me about stuff. Like my friend, his parents got a divorce yes. So he it felt really, really hard on him. And I comforted him through that. And then later I told him that Mercy died and he, he just said, like, wow, you've been through the same stuff as I've been through this. Yeah. And that helped our relationship and now we're best buds.   - Liesel Mertes Yeah. What are things, when you tell people, what are things that are really helpful that they say to you or help you with?   - Magnus Mertes Last year, when I got my concussion, what happened was, when I was in my bed in a dark room, my mom opened the door and said I got a visitor. And it turned out to be one of my friends, Forrest, who was actually there when I passed out and he came there. He wrote an encouraging note to me and I kept that hidden in my bed. And every day I would read it and I would think, I can get through this.   - Liesel Mertes Are there other things that grownups do or that are helpful to you when you're feeling sad or scared about Mercy or about Moses or about anything?   - Magnus Mertes So when I was afraid of death, my mom would play a song that I really liked called High Noon by Andrew Peterson and it just helped me feel really good, I feel really good and think that God knows what's going to happen to me and he's taking care of me and he loves me.   - Liesel Mertes You tell me a little bit more about that being afraid of death. What was that like?   - Magnus Mertes So, being afraid of death. I can get, like, a shiver down my spine that I would have to like leave my family and my siblings my Nana and Pa. And in fact, my great grandma and June, she was put in the hospital at age 92 for pneumonia and I felt scared, really really scared, and luckily she recovered and she's in a nursing home now. She recovered but she's really weak.   - Liesel Mertes Yeah. Is there anything that you feel like grown ups don't understand about kids when they're sad?   - Magnus Mertes I feel like kids. They get like depressed and it really like breaks them up and they say like, nothing's wrong, but like, I don't think parents understand that when they say it like that, that now they just kind of like leave them alone. But what they mostly need is to engage and be comforted   - Liesel Mertes Sure. If there's somebody listening who is going through some of the hard things that you've gone through. Do any words of wisdom or encouragement that you'd give them?   - Magnus Mertes I would say that you guys can do this that you guys, and if you're going through a rough time, I'm sorry that you're going through them but just know that God is going to help you and he's going to give you the best thing that he can do possible.   MUSICAL TRANSITION   Here are three take-aways that I have after my conversation with Magnus   Magnus reflected that sometimes, kids say that nothing is wrong when bad things happen. Parents, in response, will just leave them alone.  In Magnus’ words, “what they mostly need is to engage and be comforted.”  This is a good reminder, for both kids and adults, that people crave the support of relationship and community when disruption comes.  Don’t overlook the pain and the process of young children. Magnus was only seventeen months old when Mercy died.  And he was in preschool when Moses was born.  In the midst of our overwhelming pain, it would have been all too easy to overlook Magnus, to think that he was too young to process what was going on…to just hope that he would be fine. Yet, these experiences have profoundly shaped him. Music can be a great form of comfort for adults and children. There have been times where the fears were so big and words found their limits.  During those times, we found that it was really helpful to have a playlist of meaningful songs that he could listen to that helped to ground and reassure him.    OUTRO    

Hosts: Eric Puster, Jennifer Lee, Keith Morse Producers: Jennifer Lee Guest Interview: Emily Webber, MD, CMIO of Riley Children’s Hospital Topics: Communication with patients using technology, information blocking, sharing data with patients

 In a moment, everything can change. A traumatic brain injury dramatically altered life for Baher Malek, a software designer, and his family. Bess Malek-Maiorano speaks about the exhaustion of providing long-term care, the shock of injury, and the challenge of embracing long-term disability. Listeners gain perspective and actionable tips on how to help those coping with reality of extended care for someone that is not going to get better. We want to help people that are going through hard times, but it can be hard to know what to do or what to say.  Hi, I’m Liesel Mertes and this is the Handle with Care podcast, where we talk about empathy at work.  On each episode, I welcome a guest that has lived through a disruptive life event. We cover topics from death to divorce to that scary diagnosis and, in each story, we give you actionable tips on what you can do to show empathy and give support as a manager, a coworker, or a friend.   Today I talk with Bess Malek-Maiorano about the traumatic brain injury that her husband, Baher, suffered more than five years ago.  His resulting memory loss, disability, and sudden dependence changed everything for the Malek family, which ushers us into questions of how to come alongside an individual and his or her caregivers in the face of long-term illness.    I first met Bess when my daughter, Ada, was in kindergarten.  Bess was a part of the parent’s council at the school, she led the evening meeting with a baby on her hip.  After the meeting, Bess found time, to listen and empathize with my story of loss.  She had had a daughter die too and took time to listen and cry with me.    That was before everything changed for the Malek family.  Over the next year, I followed her story with deep sadness.  Her life was forever altered, the family cast into a system of complicated medical care.    Bess is a gifted writer, and I followed her story through the blog that she faithfully kept.  Some excerpts from her writing will feature in this episode.  Her story is shocking, tragic, and ongoing.  But first, a little background on Bess and Baher.    [00:09:48.550] - Bess Malek So, Baher is originally native Egyptian. And we met in a philosophy class. I met him shortly out of pharmacy school and we were soulmates. He is an engineer. He loved the life of the mind. He was a reader, a studier, he loved theology and so, ironically, to have his mind taken from him is something that still shocks me to this day.   [00:10:21.510] - Bess Malek He was a wonderful, warm father with the best laugh and he was well respected as the software engineer and project manager and we had a very joyful partnership.   The inflection point in Bess and Baher’s story happened more than five years ago.  This was the season of life when I met Bess, where she was leading school activities.    [00:10:52.260] - Bess Malek So we had had a lot of parenting responsibilities, through the gift of four children. And so, I was mostly taking care of them. We had also had a foster child that fall, which was a privilege   In addition to leading the PTO, taking in foster children, and caring for her four biological children, Bess was also working as a pharmacist, part-time, at Riley Children’s hospital.  She had worked there for more than twenty years, ever since she graduated.  In the spring of 2014, Baher began to develop some flu-like symptoms.  He stayed home from church over Easter and even went to the ER as his symptoms worsened, but they said he would be alright and sent him home.  But Baher was not alright.    Ominous, brooding music under portions of the following section [00:07:16.400] - Bess Malek That morning, as I was getting ready to run errands, I heard some noises from our room and I went up there and I ended up finding him unresponsive in a state, of, he was awake but couldn't respond. He was unable to speak and I was aware that his breathing was very fast and he was covered in sweat and I called 9 1 1 and our life has never been the same.   Baher was rushed to the hospital.  The doctors were unable to find any source of infection and yet Baher was in a state of constant epileptic seizures.    [00:08:10.940] - Bess Malek It remains unknown what was the primary cause. His symptoms were similar to a viral encephalitis or autoimmune and stuff like which are difficult to diagnose.   Baher was placed in a coma, Bess sat by his side, praying, for weeks.    [00:09:00.860] - Bess Malek And about, seven weeks after that, after many, many neurologists and just a lot of intense scrutiny and some different procedures that they did, he amazingly started to wake up.   Yet, all was not well with Baher.   [00:11:57.180] - Bess Malek So, no one had survived this type of lengthy status epilipticus, which is why he was then, and where you have constant seizures, basically a forest fire in your brain for weeks, and so it was uncertain if he would have verbal skills. What the nature of his brain damage would be at the end. If he would be on a vent if he would have feeding tubes. Miraculously, he came off the vent and he was able to breathe on his own. His verbal skills were completely intact, his vocabulary was intact ,and yet his temporal lobes for completely burned up, which meant nothing to me at the time,   [00:12:47.480] - Bess Malek but it meant, now that I know that all of the memories that he had, all the experiences were locked away. And the irony that a data engineer was unable to get into the data of his entire life was a surreal experience that I had no idea how to navigate and no one could give me any expectation.   Music under some of the following section [00:13:21.310] - Bess Malek I think what's unique about brain injury is that there is no protocol that they can pull. There is no real resources. Everything is unique and I was launched into this world of rehab and recovery, variance supported and with a man who was a shell of himself and unable to participate in his own recovery or care because he couldn't even understand that he had been ill. For instance, when he came home after being in various rehab hospitals and getting very dire prognosis, which was heartbreaking,   Baher would wake up in the morning and ask for his car keys, convinced that he was still going to work.  He would get confused, disoriented, agitated, and Bess would have to explain, again, what had happened, that he could no longer drive, that he would never return to work.  Daily, Baher had to reacquaint himself with the tragedy that was now his life. All this, in the midst of battles over insurance providers and care and coping with sporadic seizures that would throw Baher to the ground.  And here, I think it would be valuable to give you the real-time reactions of Bess from her blog, Bess wrote the following:    PUT MUSIC THROUGHOUT, UNDER THIS MEMORY SECTION “Baher only said a few words today.  He started having some seizures this morning and was post-ictal the rest of the day.  Feverish. Flushed.  His temperature is increasing.  Six seizures today.  Hopefully, just a side infection unrelated to the incision sites.  Probably just inflammation from having his major nerve tampered with.  But I am really, really sad tonight.  Lonely. Tired of asking a nurse to come. Tired of the powerlessness in waiting. And asking.  Tired of the power that others have to give or withhold.”   She continues, and you can hear the weight of memory in her words:    PUT MUSIC THROUGHOUT, UNDER THIS MEMORY SECTION Maybe I just miss Baher’s little black car pulling in, with his backpack swung happily over his shoulder, to hug the kids, telling them, ‘My day just got better.’ Pick up soccer games on rough black top the skinned knees. Summer planning.  Child rearing goals.  Lively discussions.  Bill paying that is on time.  Routine. I miss it…all of it.  I can’t stop crying tonight.  I could not make it through vocab words or bed time stories. But I had to.  There is no one else to do it.”    Every day was hard.   [00:17:24.060] - Bess Malek It was very difficult for me to know what I would need.   And Bess was struggling under a mountain of paperwork   [00:18:01.760] - Bess Malek I struggled to get a hold of human resources and kind of be led well in finding insurance numbers or.   [00:18:18.280] - Liesel Mertes There is such a bureaucracy, right, to follow ups on claims.   [00:18:22.570] - Bess Malek Its enormous.   [00:18:24.280] - Liesel Mertes  Did you feel like you were having to pursue that yourself, in a way that was taxiing in the midst of an already totalization situation?   [00:18:35.360] - Bess Malek I think what happens to people in trauma that there is a great fatigue and a weariness of all, and especially with the documentation and the paperwork, that is overwhelming all of our society. More so than ever. You can't even wrap your head around what you should do what you should be doing. I had insurance battles to fight for care that the insurance companies didn't want to give to someone without a very positive prognosis. I had to figure out how much money we would need, how much I needed to work.   The family needed money, so Bess went back to work part-time just three months after Baher’s illness. And on today’s episode, I want to focus on that return to the workplace.  How were Bess, Baher and the family supported?  How were they missed in this complicated situation?  Baher worked, at the time of his injury, for Liberty Mutual.    [00:15:22 - Bess Malek In hindsight, I very much appreciated the visits that we received from people in his work. There were very sweet times where his coworkers or his team would come to the hospital or find ways to be involved with our family. There was one Christmas that, has, one of his co-workers heard that our son loved to decorate with Christmas lights in honor of his dad and what they used to do. And he donated a very large Christmas snowman to our yard. His workplace was very good at writing notes. They wrote actually a book of the ways that he had been a good team leader for them and the things they appreciated about him that I still have in his room. Now in the nursing home, that he can read and feel appreciated and loved. Some of his co-workers are very faithful in their visits. Even this week, some Liberty Mutual employees came to see him and that's just precious to me that he would be honored.    Those who showed up were precious in their gestures, but Bess also remembers those that were absent   MUSIC SOMEWHERE UNDER THIS SECTION [00:42:55] - Bess Malek I think the people who showed up at some point was really important. And their absences, the absence of people that I thought would be there was an additional loss and grief that was acutely painful and you see the vacant places that you thought would be filled and and God brings other people, but you really remember that and wish that they had just acknowledged and been present for something.   Bess was also interacting with her workplace, Riley Children’s Hospital. For Bess, Baher’s illness was not the first disruptive life event to send ripples through her workplace.    [00:20:15.200] - Bess Malek We had lost a baby to Trisomy 13 and I had worked in the NICU throughout the time that I was pregnant and my workplace wasn't sure how to support me through a pregnancy that also resulted in a loss. When another supervisor lost a baby a year or two later, they actually came back and apologized to me. And said they they hadn't handled it right, that they hadn't been sensitive enough. And that was really humble and gracious, that my management, who happened to be women. But they realized that there was more that could have been done.   Bess’ workplace had grown in their capacity to give support, and there were ways in which she was really supported well:   [00:22:49.030] - Bess Malek Some of the really precious things that they did, was they adopted our family that first Christmas and they recognized that we would be spending it in the hospital. Baher was constantly hospitalized and bouncing around from facility to facility. We were spending it at the very organization where I worked as well and they filled our back porch with presents and my kids got to discover that. They had carefully selected gifts that would be meaningful to all of us. And that was a rich gift that my kids still reference and very thoughtful.   [00:23:37.990] - Bess Malek I think anything you can do for the children involved in a loss is precious to the parents.   Musical transition [00:35:05] - Bess Malek It's been really hard because of the ambiguous nature of my loss and that has made it uniquely difficult for my kids because they lost two parents at the same time. I was gone all the time and so there is a lot of anxiety. Counselling has been very helpful to us as a family. I think pointing people to good family grief counselling is vital for your children and yourself to be able to have language to process things.     I resonate, in my own way, with this observation of Bess.  Because it is hard to parent your children when you yourself are under so much stress.  Here is another excerpt from her blog:    MUSIC THROUGHOUT THIS WHOLE MEMORY I am patience-less, and it is the small things – children who aren’t listening, whining voices, car doors that stick, taking a wrong turn, peas that roll from the edge of the table from an ungrateful fork.  I cringe at my own limited self and my worn nerves.”  Or this:“I can’t stop crying tonight.  I could not make it through vocab words, or bedtime stories.  But I had to.  There is no one else to do it.”    Musical interlude   Coworkers also cared for Bess with little gifts   Obviously. I had a couple of co-workers that would leave things in my locker throughout and they did that so faithfully. They would leave a little gift card. Money was tight and you weren't sure what you were going to have long term and what you were going to lose. And so it was just always a bright encouragement to find chocolate or just small things that meant people were thinking of you in deeper ways.   In addition to gifts, Bess reflected on how structural, organizational support can be so very important.   [00:35:56.320] - Bess Malek I also was thinking of how beneficial it could be if you had a point person at your work who could coordinate with maybe other supports around your family. Like, if you had a one person who knew me well at work who could then coordinate with either church community or neighborhood or family so that you're not, you know, doing, you know ,you're not replicating care or you're not letting holes be there. Could be a really powerful and efficient way to care for people better. And it doesn't have to be really formal through the department. It could just be that maybe management makes sure or co-workers make sure that somebody is kind of the point person and can communicate things that as they evolve.   Musical interlude   [00:33:25.000] - Bess Malek I had a friend who took the time, and this is where I think people could really help in a practical way. This was in regards to counseling but it could apply to any paperwork that needed to get done. She took the time to print it all out, to sit down with me and help me fill out what she could. That handholding is the only way I could do another piece of paperwork. And I think when employers just kind of give you a link, that they could do a little more if you're actually in crisis just to help you see forward when it's difficult.   It was also immensely important to have people that saw and acknowledged her struggle   [00:24:51.210] - Bess Malek and I can't stress enough the importance of just recognizing that somebody is carrying deep pain. I think people get afraid that they're gonna make you sad that they're going to trigger something. And the fact is the triggers are there all the time regardless, but just people being sensitive.   Musical interlude   [00:26:02.710] - Bess Malek I think just people saying you know, how. How are your kids doing with this? How is your husband doing? How. Are. You. Today?   And in the midst of this stress, the workplace environment of healthcare had its own complications.  Bess was in a caring profession, where, despite her own daily challenges, she had to continue to administer comfort to her patients.    [00:21:07.110] - Bess Malek And I think, especially in a medical setting it's easy to be insensitive because your work involves people's tragedy and you, and yet, you have to function there every day and in a professional environment as well. It's easy for people to forget what you're dealing with through your personal medical side.   Musical transition   26:05 I had to field. So. Many crises. At work. With my kids. With Baher's care. I would get, even calls from hospital security that Baher, who is often very unstable and confused. And that was. Very hard to. Turn. Around on one side. And take a call that broke your heart. And then turn back to administer care to other sick people was that times something I wasn't sure I should even be continuing to do.   There were also ways that Bess was mishandled.  Part of this was, perhaps, related to a managerial change. The manager that had known Bess through her infant loss and through Baher’s illness was no longer at Riley.   [00:27:21.280] - Bess Malek I think that's my management changed and I actually had a new manager there was actually a gap in management for a time where the manager that I was very close to that I had walked right through several years, she was gone, and I at that time really struggled with knowing who was able to even be aware. And there's a lot that managers have to balance and there's fairness and there is, you know, they have a lot of demands and there was a rocky time for our management but I think just check-ins would be helpful. And if there is new management, maybe feeling like they want to know a little bit more of your underlying story if it's unique, would be really helpful.   Musical transition   Music under some of the stress points in this (following) passage [00:29:35] - Bess Malek I felt an enormous pressure to perform on every level. There were times I would go from work to the other hospital in a snowstorm, you know, with baby sitters at home till late at night. I really struggled when I felt like people were quick to jump on a 10 minute late gap in my performance or little things that, you know, you forget a badge. I remember one time I forgot my badge and I couldn't scan in and I felt like one particular co-worker who was more of a grudging spirit really made that a big deal. And I just dissolved. I just, it was just one more area that I felt like I couldn't make it work. I couldn't be enough or, and it was such a small thing. And so I think having grace for the tiny things, that really people can cover over is something that is so helpful. Or saying it's not a big deal or take a few minutes and go have some time you know in just 10 minutes to yourself to go get a drink and compose yourself.   Musical interlude   [00:37:00 - Liesel Mertes Are there any words or reflections that you would offer to someone going through a similarly long term experience with disability or with a family member and care or in addition to that, words that you would offer to yourself four years ago or three years ago?   [00:37:36.290] - Bess Malek Its a very emotional question I actually spoke to a friend today who was at the hospital with her child who's been hospitalized for many months and I think what I was able to say is, you know, just enjoy, enjoy the light that you have in that day and I, I struggled to know whether, you don't know whether to lower your expectations or to have more hope. And I think, I had to just ask God to be my my provider and my resource. I couldn't pull it together. I couldn't demand more from anyone. I had to just rely on the foundation of faith that I had, on and just be willing to learn through loss and, and continue to gather together the beauty that you, what's available to you and to just grieve.   [00:39:02.230] - Bess Malek I think that taking time off is something that I wish I would have done more intentionally, maybe after some of the adrenaline. I even thought about taking time off this past fall to process a little more. And, I wasn't ever very well invited to do that. Nor did I know if it would be helpful, necessarily. But I think. If people helped open doors.   [00:39:36.780] - Bess Malek Just continue to help open doors for people in crisis, whatever that looks like if it's paperwork. If it's a meal, rides for your children are very important. Just finding little ways to link practical help. And I think patience, patience with the process and with yourself is just a very important resource   Musical transition   Bess and Baher’s story is still unspooling.  Baher continues to have substantial medical needs, his family continues to need all manner of physical, emotional, and social support.  And, at the close of this conversation, I’d like to offer three action points for those that support individuals with disabilities and long-term care needs.   In the words of Bess, just continue to open doors for people in crisis.  Perhaps the is helping with paperwork, volunteering to drive to after-school practices, delivering meals, or giving gifts.  As an employer, be aware of the pressure to perform that you are placing on employees that are in times of stress.As you can offer grace, do so! Ask yourself, do I need to make a big deal of this forgotten badge?  Can I allow this person to take ten minutes to compose themselves?  Each gesture of kindness extends humanity and conveys value to your employee Long term disability extends over years. How can you, as a supporting organization or individual, continue to check-in over time, offering support, asking how the person is doing? Can you offer a point person to coordinate care?  You will have to plan for this and build it into your calendar because, in the tyranny of the moment. it will be easy to lose sight of being supportive for the long haul.  Many people have short attention spans and your capacity to be there and be with a person over time speaks volumes.    Outro

What must pediatricians know to identify infants at risk for NAS, to treat them and to prepare moms to care for them at home? Dr. Emily Scott of Riley Children’s Health explains. Completion of all 8 Opioid Epidemic Podcast Series is Accredited for 2.0 AMA PRA Category 1 Credits™  For details: Https://ismanet.org/podcast  

Feature Interview (10:55) – Dr. Brandon Brown, from the Indiana University School of Medicine and a founding member of Fetal Center at Riley Children’s Health, discusses the amazing advances in treating the youngest patients – babies who haven’t even yet been born. Also in this episode: News (1:00) – Penicillin allergies are not nearly as common as people think (https://doi.org/10.1136/bmj.j3402) Preventive Medicine Tip (8:40) – Latest guidelines for diet and exercise Medical Trivia (Answer at 36:45) – What is the first (and only) human disease eradicated from the world through medical efforts? Linacre for the Laity (39:15) – Dr. Donna Harrison talks about the ethical challenges of treating ectopic pregnancies and how new treatment technologies can help doctors and patients approach the problem (“Treatment of an Ectopic Pregnancy: An Ethical Reanalysis,” Linacre Quarterly, Vol. 85, August 2018) http://journals.sagepub.com/home/lqr ------ www.redeemerradio.com www.cathmed.org Follow us on Facebook: @DoctorDoctorShow Submit your question(s): Text (Holy Cross College text line) - 260-436-9598 Online - www.RedeemerRadio.com/Doctor E-mail - Doctor@RedeemerRadio.com Subscribe to the Podcast: iTunes | Google Play | SoundCloud | RSS

Dr. Paul Winchester is the Medical Director of the NICU at Franciscan St. Francis Health and a Professor of Clinical Pediatrics at Riley Children’s Hospital in Indianapolis, Indiana. He also conducts research on the epidemiology of birth defects, including the effects of prenatal exposure to pesticides.  On this episode, Dr. Winchester talks about how his background in farming informs his work today and shares a number of sobering findings from research in his field, such as the fact that women who conceive during peak pesticide months are more likely to have a child with birth defects, a preterm pregnancy, or both; not to mention that the effects of pesticide exposure are not limited to those directly exposed, but can be seen and felt generations later.

Marlee Davenport was born missing 9 of 12 ribs on her right side, causing severe scoliosis and her right lung to be abnormally small. At 10 days old, she had her first of 22 surgeries, and she’ll need continued care throughout her life. Marlee has kept a positive attitude despite the medical challenges she has faced. Her advice to other facing challenges is to “Just keep smiling”. Marlee loves horseback riding, gymnastics and soccer.   Listen to this episode and learn: How Marlee deals with the health challenges she was born with Why Marlee loves Riley Children’s Hospital Marlee’s special message for her favorite singer, Taylor Swift How Marlee is able to relate to the movie “Wonder”  and why being different is beautiful

An interactive discussion between Dr. Ponsky and Dr. Rescorla about the management of ovarian tumors in pediatric patients. Dr. Frederick Rescorla is surgeon-in-chief at Riley Children's Hospital, Anna Olivia Healey Professor of Pediatric Surgery at Indiana University School of Medicine, and COG germ cell committee member. Timestops: 00:00:00 Introduction 02:17:12 Case 1: Ovarian cystic mass with solid components 04:09:16 Overview of ovarian tumors 05:18:22 Workup of Case 1 08:02:10 Operative technique 11:06:21 Exploring retroperitoneal lymph nodes 12:40:13 Ovarian Salvage 14:20:07 Case 2: Large ovarian cystic mass in adolescent 16:59:00 Operative technique 18:23:23 Case 3: Solid ovarian mass in adolescent 20:27:09 Preoperative workup 21:10:02 Surgical approach 23:41:06 Chemotherapy 24:01:05 Cryopreservation 24:31:14 Case 4: Ovarian torsion 26:31:15 Role of oophoropexy 28:42:13 Follow up after torsion without a mass 29:11:22 Outcomes 31:57:20 Conclusion Intro track is adapted from "I dunno" by grapes, featuring J Lang, Morusque. Artist URL: ccmixter.org/files/grapes/16626 License: creativecommons.org/licenses/by/3.0/

IndyCar veteran and cancer survivor John Andretti joins Marshall Pruett for the Week In IndyCar podcast in one of the most inspirational episodes to date. The two cover the news of Danica Patrick's struggles to find an Indy 500 seat, the appointment of Leena Gade as James Hinchcliffe's engineer, the passing of Dan Gurney, and then the two dive into John's thoughts on driving for Jim Hall, Richard Petty, his days as an NHRA Top Fuel driver, driving the 1990 Porsche Indy car, his charity efforts with the Riley Children's Hospital, his lone appearance at the Bathurst 1000, and other great topics provided by fans and listeners.  Visit https://www.facebook.com/MarshallPruettPodcast for our full podcast archives. Subscribe: Apple (https://tinyurl.com/yaafkvch)  Android (https://tinyurl.com/yconvyl3)  Google (https://tinyurl.com/y8qtcuax)  Spotify (https://tinyurl.com/yby3lzr2)

What will the 2018 legislative session bring? A popular food delivery service is growing; Ivy Tech launches its new strategic plan; Riley Children's Health has a big project on the horizon; a look at some education challenges in the new year; an Indianapolis logistics company is adding jobs; and our panel of INsiders takes on the week's top stories.

Welcome to " The Indy SportCar Podcast " Hosts @MissyLinkz & @LLNKZ and Special Guest Co-Host @Eric_Filgueiras talk about the the 24 hour Kart Race Eric is participating in to raise money for the Riley Children's Foundation on February 18/19. To donate email Eric at eric@ericracing.com to learn more. We talk some @F1 to see what is going on this week in the F1 world.  We discuss all the @IndyCar news which seemed to be plentiful this week. Along with catching up in the #MRTI world. Follow all the shows' social media outlets at www.TheIndySportsCarPodcast.com Stream or Download the show at Stitcher Radio, the Podbean App, iTunes and at www.RedDragonsRadio.com Enjoy!! 

Keera took a scary turn this morning. SheÂ’s gone through 2 emergency surgeries in the last 2 days. WeÂ’re in the PICU unit at Riley ChildrenÂ’s Hospital in Indianapolis. May God shine some light on her. We need it.