Podcasts about riley hospital

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Best podcasts about riley hospital

Latest podcast episodes about riley hospital

BCEN & Friends
The little things that sneak up on you (Erin Montgomery S6E11)

BCEN & Friends

Play Episode Listen Later May 27, 2025 55:11


In this podcast episode we want to introduce you to our BCEN friend, Erin Montgomery. Currently serving as a transport RN for Riley Hospital for Children's pediatric/neonatal specialty team in Indianapolis, Erin is passionate about improving pediatric emergency care through education and outreach. She played a key role in establishing the Pediatric Community Outreach Mobile Education (PCOME) program, bringing high-fidelity simulation training to community hospitals across Indiana. As the program manager for the national ImPACTS collaborative, Erin continues to enhance pediatric acute care through innovative simulation-based education. Erin's nursing background and roles within transport fueled a passion to advocate and educate for advancing pediatric emergency care. From leading mobile simulation training across Indiana to managing the national ImPACTS collaborative, Erin is shaping the future of pediatric acute care. This episode is called, "The little things that sneak up on you." Erin can be contacted directly via email at white20@iu.edu and through the Simbox website (https://www.emergencysimbox.com/) and the ImPACTS  website (https://www.impactscollaborative.com/). BCEN & Friends Podcast is presented by the Board of Certification for Emergency Nursing. We invite you to visit us online at bcen.org for additional information about emergency nursing certification, education, and much more. Episode introduction created using elevenlabs.io

The IBJ Podcast
Whatever happened to downtown's elevated People Mover?

The IBJ Podcast

Play Episode Listen Later May 19, 2025 21:56


You may have become so used to them that you no longer notice, but snaking through downtown Indianapolis' northwest quadrant are the remains of a revolutionary public transit system that transported riders on elevated tracks 30-feet high. It was called the People Mover, developed for $44 million by Clarian Health Partners, the hospital system now known as Indiana University Health. From its launch in 2003 to 2019, it recorded roughly 6 million rider trips on a 1.4-mile track running between Methodist Hospital, University Hospital and Riley Hospital for Children.  The People Mover had the cooperation of city officials, who allowed the track to use public right of way along Senate Avenue, West 11th Street and University Boulevard. And the People Mover was filled with promise, as some predicted it could be expanded to a larger public transit system that would include Indianapolis International Airport. But tram came to screeching halt in 2019, when IU Health said it would begin offering shuttle buses instead and expected to save about $40 million over 10 years. That also was about the time IU Health began planning a massive facility consolidation and modernization project downtown. IBJ reporter Daniel Lee has a personal connection to the People Mover and recently began looking into what remains of the twin-track system and whether IU Health has any plans to resurrect it. In this week's edition of the IBJ Podcast, Lee also gauges support for a proposal that would transform the infrastructure into an elevated trail celebrating the heritage of Black communities on downtown's northwest side.

The Ride with JMV Podcast
Best Of JMV 4-3-25

The Ride with JMV Podcast

Play Episode Listen Later Apr 3, 2025 65:58


00:00 - 13:56 - JMV and betting analyst Brent Holverson talk to Jason Logan of Covers.com about this weekend’s Final Four! Jason, Brent and JMV preview the matchups, what the numbers are saying, and what bets they would take! 13:57 - 34:22 - Jeremiah Johnson from Pacers TV joins the show to discuss the Pacers win over the Hornets last night! JJ and JMV also look ahead to another winnable game against the Jazz, as well as some much stiffer competition coming up as the season gets into the final stretch. They also preview the playoffs. 34:23 - 49:24 - Former Indiana Mr. Basketball Billy Shepherd joins the show to help promote an upcoming event to benefit Riley Hospital! 49:25 - 1:05:58 - Mike Chappell of FOX59 and CBS4 joins the show! Mike and JMV discuss the open competition between Anthony Richardson and Daniel Jones, and if Mike takes the Colts at their word that it will truly be “open”.Support the show: https://1075thefan.com/the-ride-with-jmv/See omnystudio.com/listener for privacy information.

The Ride with JMV Podcast
Full Show: Live At Coaches Tavern, Pacers Beat The Hornets + More!

The Ride with JMV Podcast

Play Episode Listen Later Apr 3, 2025 140:43


00:00 – 28:11 – JMV begins the show by discussing the Pacers and their win over the Hornets, as well as the storms that blew through central Indiana last night. 28:12 – 45:22 – JMV and betting analyst Brent Holverson talk to Jason Logan of Covers.com about this weekend’s Final Four! Jason, Brent and JMV preview the matchups, what the numbers are saying, and what bets they would take! 45:23 – 49:50 – JMV wraps up the 1st hour of the show! 49:51 – 1:15:11 – Jeremiah Johnson from Pacers TV joins the show to discuss the Pacers win over the Hornets last night! JJ and JMV also look ahead to another winnable game against the Jazz, as well as some much stiffer competition coming up as the season gets into the final stretch. They also preview the playoffs. 1:15:12 – 1:33:09 – Former Indiana Mr. Basketball Billy Shepherd joins the show to help promote an upcoming event to benefit Riley Hospital! 1:33:10 – 1:36:17 – JMV and Brent wrap up the 2nd hour of the show! 1:36:18 – 1:56:51 – Mike Chappell of FOX59 and CBS4 joins the show! Mike and JMV discuss the open competition between Anthony Richardson and Daniel Jones, and if Mike takes the Colts at their word that it will truly be “open”. 1:56:52 – 2:13:43 – Country artist Clayton Anderson stops by to talk with JMV about his upcoming shows! 2:13:44 – 2:20:42 – JMV, Brent and Jake Query from Query & Company wrap up the show! Support the show: https://1075thefan.com/the-ride-with-jmv/See omnystudio.com/listener for privacy information.

Suffer the Little Children
Episode 184: Kinsleigh Welty

Suffer the Little Children

Play Episode Listen Later Nov 3, 2024 82:51


When Indianapolis police responded to a 911 call for an unresponsive child on April 9, 2024, they couldn't have guessed the horrific circumstances of the victim's life and death. 5-year-old Kinsleigh Welty, who weighed only 21 pounds, was clearly malnourished. She had a bruise on her face and fecal matter on her body and matted into her hair, which was crawling with lice. Kinsleigh was pronounced dead at Riley Hospital for Children the same day.This is the story of yet another child failed by Indiana's child welfare system. It's also the story of yet another case of reunification gone wrong and a child who thrived in the care of others, only to die at the hands of a biological parent.Also in this episode, you'll hear from Kinsleigh's great-aunt, Carrie Hogan, who, along with many others, demands change from Indiana's Department of Child Services. This is the gut-wrenching story of Kinsleigh Welty.Photos related to today's episode can be viewed on Facebook: https://www.facebook.com/sufferthelittlechildrenpod You can also follow the podcast on:Instagram: https://www.instagram.com/sufferthelittlechildrenpodTwitter: https://www.twitter.com/STLCpodTikTok: https://www.tiktok.com/@STLCpodMy Linktree is available here: https://linktr.ee/stlcpod Visit the podcast's web page at https://www.sufferthelittlechildrenpod.com. By supporting me on Patreon, you'll also access rewards, including a shout-out by name on the podcast and exclusive rewards. Visit www.patreon.com/STLCpod. You can also support the podcast on www.Ko-Fi.com/STLCpod. Join my Supporters' Club: https://www.spreaker.com/podcast/suffer-the-little-children--4232884/support This podcast is researched, written, hosted, edited, and produced by Laine.Music for this episode is licensed from https://audiojungle.net. Subscribe to Suffer the Little Children:Apple Podcasts: https://podcasts.apple.com/us/podcast/suffer-the-little-children/id1499010711Google Podcasts: https://playmusic.app.goo.gl/?ibi=com.google.PlayMusic&isi=691797987&ius=googleplaymusic&apn=com.google.android.music&link=https://play.google.com/music/m/I5mx3lacxpdkhssmk2n22csf32u?t%3DSuffer_the_Little_Children%26pcampaignid%3DMKT-na-all-co-pr-mu-pod-16Spreaker: https://www.spreaker.com/show/suffer-the-little-children Pandora: https://www.pandora.com/podcast/suffer-the-little-children/PC:61848?part=PC:61848&corr=podcast_organic_external_site&TID=Brand:POC:PC61848:podcast_organic_external_siteSpotify: https://open.spotify.com/show/0w98Tpd3710BZ0u036T1KEiHeartRadio: https://iheart.com/podcast/77891101/ ...or on your favorite podcast listening platform.

WIKY Morning Show To Go
Tre's Journey at Riley Hospital for Children

WIKY Morning Show To Go

Play Episode Listen Later Oct 28, 2024 3:25


Autumn Cartwell stopped by to tell us about her son Tre's Riley Child Life Give Back starting November 1 at the IGA stores on North Park and Morgan! Click to find out how you can help!See omnystudio.com/listener for privacy information.

Pediheart: Pediatric Cardiology Today
Pediheart Podcast #309: A Conversation With Surgical Living Legend, Dr. John Brown

Pediheart: Pediatric Cardiology Today

Play Episode Listen Later Aug 30, 2024 55:52


This week we speak with Dr. John Brown who is the Harris B. Schumacker Professor Emeritus of Surgery at the University of Indiana. A congenital heart surgeon for over 45 years, Dr. Brown has performed more than 15,000 pediatric heart operations at Riley Hospital for Children and another 5000 heart operations in adults at IU and Methodist Hospitals. He performed the first pediatric heart transplant in Indiana and developed the first clinical use of the bovine jugular vein and valve for a pulmonary valve replacment in children. He also performed the only known twin to twin newborn heart transplant in the world. He has done and seen it all and has a unique perspective. How did he achieve so much and still have a succesful 56 year marriage to his wife Carol Ann? What is Dr. Brown most proud of in a career that is as prolific as his? What advice would he have have for the next generation? Prepare to be inspired by this master surgeon and friend and colleague of many in our field. 

The Research Evangelist
Meet Stacey Bledsoe, helping to influence and ensure that all patients have access to clinical research and life changing medications that will ultimately improve their lives.

The Research Evangelist

Play Episode Listen Later Apr 16, 2024 39:13


On today's episode, meet Stacey Bledsoe. Stacey Bledsoe RN, MSN has over 19 years experience in the pharmaceutical industry across multiple disciplines including Research & Development, Global Health Outcomes, Medical and Six Sigma. Stacey is currently Head of Global Clinical Trial Diversity and Inclusion at Gilead Sciences. Previously Stacey has served as Senior Director for Diversity in Clinical Trials at Eli Lilly. She also held a Registered Nurse role on the Level III Newborn Intensive Care Unit at Riley Hospital for Children. Stacey earned her Bachelor and Master of Science in Nursing from Indiana University. Stacey's goal is to help influence and ensure that all patients have access to clinical research and life changing medications that will ultimately improve their lives.

iCritical Care: All Audio
SCCM Pod-505 PCCM: Elevating PICU Outcomes in Bronchiolitis

iCritical Care: All Audio

Play Episode Listen Later Mar 25, 2024 14:30


Host Kyle B. Enfield, MD, FSHEA, FCCM is joined by Danielle K. Maue, MD, to discuss improving outcomes for bronchiolitis patients through a high-flow nasal cannula protocol, as discussed in the Pediatric Critical Care Medicine article, "Improving Outcomes for Bronchiolitis Patients After Implementing a High-Flow Nasal Cannula Holiday and Standardizing Discharge Criteria in a PICU." (Maue DK, et al. Pedtr Crit Care Med. 2023 Mar;24:233-244). Together, they explore groundbreaking initiatives that significantly improved outcomes for bronchiolitis patients using a high-flow nasal cannula protocol, the key interventions, and their impact. Dr. Maue is an Assistant Professor of Clinical Pediatrics for Riley Hospital for Children at Indiana University in Indianapolis, Indiana.

Autism Rocks and Rolls
259:Giving Back To Dave White

Autism Rocks and Rolls

Play Episode Listen Later Mar 14, 2024 57:15


I'm here with Dave White, a past podcast sponsor and owner of Great White Smokes, a food truck and caterer business. Mr. White grew up in Solsberry, Indiana, where he was born. He has worked as a cook in the housing hall kitchens at Indiana University and Abell's Nursery. He describes himself as "a country kid with no internet and at best a cordless phone." He loved being outside with his friends, playing in the creek, and spending time in the woods as long as his parents let him.  He began working after graduating from horticultural technology school and continued to work there for the following fifteen years. Throughout the winter, he kept working in kitchens and as a bartender in nightclubs and golf courses. Due to delivery problems, including Down syndrome, his son spent the first 35 days of his child's life in Riley Hospital in 2013. But it didn't stop him from winning the title of best food truck in Indiana in 2021. Please welcome the unselfish one Dave White. https://www.gwsbbq.com/

Going Terribly
Ep. 163: Four Newly Cannibalistic Hippies in a Communal Beef

Going Terribly

Play Episode Listen Later Nov 14, 2023 80:44


It's time for our annual 24-hour Extra Life fundraiser, and you know what that means... Alice, Doug, Josh, Gennie (and assorted comrades) stay up for an entire day playing video games to support Riley Hospital for Children in Indianapolis. Yeah, we do this every year, it's pretty self-explanatory. Donate and/or join us... https://unfinisheddynamos.com/ Other discussion topics may include: - Animals that should really wear pants - The Great Refrigerator Space Debates of 2023 - FMK: Video Game Edition - A lot of simulators for stupid things - Who will have to poop their pants this weekend? --- Send in a voice message: https://podcasters.spotify.com/pod/show/goingterribly/message

WIKY Morning Show To Go
WIKY Morning Show

WIKY Morning Show To Go

Play Episode Listen Later Oct 5, 2023 0:12


Emily Reidford of the Easter Seals dropped by with all of the info to attend a remarkable documentary on Riley Hospital for Children! Click for the details!See omnystudio.com/listener for privacy information.

Summits Podcast
Epi 60: Dr. Jenny Belsky aids pediatric cancer patients

Summits Podcast

Play Episode Listen Later Sep 7, 2023 28:52


In episode 60 of the Summits Podcast, Vince Todd, Jr. is joined by Dr. Jenny Belsky of Riley Hospital for Children. Tune in as Dr. Belsky shares her research on decreasing the detrimental side effects children and teens experience while receiving cancer therapy, now funded by the Heroes Foundation Team JOEY fund. For more on Dr. Belsky's research, visit https://www.heroesfoundation.org/pediatric-cancer-researcher-will-use-30k-from-team-joey-to-make-patient-journeys-less-painful/. Subscribe to the audio version of the Summits Podcast https://summitspodcast.fireside.fm Find out more about the Heroes Foundation https://www.heroesfoundation.org Find out more about The Brookfield Group https://thebrookfieldgroup.com Discover Platform 24 co-working https://www.platform24.co What's your cancer story? Hosted by cancer survivor and philanthropist Vince Todd, Jr., Chairman and Co-Founder of the Heroes Foundation, and Heroes Foundation Board Member Daniel Abdallah, the Summits Podcast is a place for people to share their stories. Everyone has a cancer story. From battling a deadly disease to caring for a loved one, when we rise up and face life's greatest challenges, we see with a new vision, feel with a greater passion, and think with a deeper perspective. Along the way, paths cross, journeys intersect, and missions converge. For Vince Todd, it was his own cancer diagnosis that led him and his wife, Cindy, to launch the Heroes Foundation to provide meaningful support to cancer patients, education to promote cancer prevention, and resources to advance research for a cure. What started with friends and family grew into a community. The Summits Podcast is an extension of that community. Our stories are what bring us together. Artists, athletes, doctors, business people - we're all family members, community leaders, and activists. Everyone has a story. Anyone can inspire. No one battles alone. Join the conversation. Let's climb the summit together.

Extra News On Demand
News at Noon Thursday August 10, 2023

Extra News On Demand

Play Episode Listen Later Aug 10, 2023 6:43


The TriState's well-deserved reputation for generosity and philanthropy has an outlet today as the Radiothon for Riley Hospital goes on til 6 pm... Despite being told many South Heights Elementary students in Henderson got rides to school by H.A.R.T buses... Escalade Sports and Evansville Garage Doors are donating pickleball paddles, nets, and packs of pickleball to all 14 houses of the Evansville Fire Department...  See omnystudio.com/listener for privacy information.

Healthcare Triage Podcast
Type 1 Diabetes: Recent Wins and Ongoing Challenges on the Road to a Cure

Healthcare Triage Podcast

Play Episode Listen Later May 24, 2023 33:56


In this episode, Dr. Aaron Carroll talks with Dr. Emily Sims, associate professor of pediatrics at IU School of Medicine, and Dr. Linda DiMeglio, professor of pediatrics at IU School of Medicine and chief of pediatric endocrinology at Riley Hospital for Children. They discuss type 1 diabetes and recent research discoveries that have helped improve treatment of the chronic autoimmune disease, including the first FDA-approved drug to delay onset of type 1 diabetes. Transcript: https://bit.ly/422rpVa This Healthcare Triage podcast episode is co-sponsored by Indiana University School of Medicine, whose mission is to advance health in the state of Indiana and beyond by promoting innovation and excellence in education, research, and patient care, and the Indiana Clinical and Translational Sciences Institute, a three way partnership among Indiana University, Purdue University and the University of Notre Dame, striving to make Indiana a healthier state by empowering research through pilot funding, research education and training. More information on the Indiana CTSI can be found by visiting IndianaCTSI.org.  

ASCO eLearning Weekly Podcasts
Oncology, Etc: - Cancer Care Partnership With Kenya

ASCO eLearning Weekly Podcasts

Play Episode Listen Later Apr 4, 2023 30:46


The availability and quality of cancer care varies in different parts of the globe. Some locations find it difficult to have proper equipment, access to medications or even trained staff on hand. In this ASCO Education podcast we look how a group of doctors are sharing their skills and experience to set up training programs to help improve outcomes for patients with cancer in Kenya. Our guests will explore the creation of a pediatric oncology fellowship program in Kenya (11:48), how a young doctor found herself interested in improving global health (14:30), and discuss lessons learned that are applicable to health care in the United States (21:07).  Speaker Disclosures Dr. David Johnson: Consulting or Advisory Role – Merck, Pfizer, Aileron Therapeutics, Boston University Dr. Patrick Loehrer: Research Funding – Novartis, Lilly Foundation, Taiho Pharmaceutical Dr. Terry Vik: Research Funding Takeda, Bristol Myers Squibb Foundation Dr. Jennifer Morgan: None Resources: Podcast: Oncology, Etc. - Dr. Miriam Mutebi on Improving Cancer Care in Africa Podcast: Oncology, Etc. – Global Cancer Policy Leader Dr. Richard Sullivan (Part 1) Podcast: Oncology, Etc. – Global Cancer Policy Leader Dr. Richard Sullivan Part 2 If you liked this episode, please follow the show. To explore other educational content, including courses, visit education.asco.org. Contact us at education@asco.org. TRANSCRIPT Disclosures for this podcast are listed in the podcast page. Dave Johnson: Welcome, everyone, to a special edition of Oncology, Etc., an oncology educational podcast designed to introduce our listeners to interesting people and topics in and outside the world of Oncology. Today's guest is my co-host, Dr. Pat Loehrer, who is the Joseph and Jackie Cusick Professor of Oncology and Distinguished Professor of Medicine at Indiana University, where he serves as the Director of Global Health and Health Equity. Pat is the Director Emeritus of the Indiana University Simon Comprehensive Cancer Center. Pat has many different accomplishments, and I could spend the next hour listing all of those, but I just want to point out, as many of you know, he is the founder of what formerly was known as the Hoosier Oncology Group, one of the prototypes of community-academic partnerships which have been hugely successful over the years.  He's also the founding director of the Academic Model for Providing Access to Healthcare Oncology Program, which has grown rather dramatically over the last 17 years. This includes the establishment of fellowship programs in GYN oncology, pediatric oncology, and medical oncology through the Moi University School of Medicine in Kenya. Through its partnership with the Moi Teaching and Referral Hospital, over 8000 cancer patients a year are seen, and over 120,000 women from western Kenya have been screened for breast and cervical cancer in the past five years. Pat is also the co-PI of the U-54 grant that focuses on longitudinal HPV screening of women in East Africa. He currently serves as a Senior Consultant of the NCI Cancer for Global Health.  So, Pat, welcome. We have with us today two special guests as well that I will ask Pat to introduce to you. Pat Loehrer: Dave, thanks for the very kind introduction. I'm so pleased today to have my colleagues who are working diligently with us in Kenya. The first is Terry Vik, who is Professor of Pediatrics here at Indiana University and at Riley Hospital. He's been the Director of the Fellowship Program and the Pediatric Hematology-Oncology Program and Director of the Childhood Cancer Survivor Program. He got his medical degree at Johns Hopkins and did his residency at UCLA and his fellowship at Dana-Farber. And he's been, for the last 10 to 15 years, been one of my co-partners in terms of developing our work in Kenya, focusing on the pediatric population, where he helps spearhead the first pediatric oncology fellowship in the country.  And then joining us also is Dr. Jennifer Morgan. Jenny is a new faculty member with us at Indiana University as an Assistant Professor. She, I think, has 16 state championship medals for track and field in high school. I've never met an athlete like that in the past. She ended up going to Northwestern Medical School. She spent time in Rwanda with Partners in Health, and through that, eventually got interested in oncology, where she completed her fellowship at University of North Carolina and has spent a lot of her time in Malawi doing breast cancer research. I don't know of anyone who has spent as much time at such a young age in global oncology.  Dave Johnson: So Pat, obviously, you and I have talked a lot over the years about your work in Kenya, but our listeners may not know about Eldoret. Maybe you can tell us a little bit about the history of the relationship between your institution and that in Kenya. Pat Loehrer: It's really a remarkable story. About 30 some odd years ago, Joe Mamlin and Bob Einterz, and Charlie Kelly decided they wanted to do a partnership in Global Health. And they looked around the world and looked at Nepal and looked at Mexico, and they fell upon Eldoret, which was in Western Kenya. They had the birth of a brand new medical school there, and this partnership developed. In the midst of this came the HIV/AIDS pandemic. And these gentlemen worked with their colleagues in Kenya to develop one of the most impressive programs in the world focused on population health and dealing with the AIDS pandemic. They called it the Academic Model for Prevention and Treatment of HIV/AIDS or AMPATH, and their success has been modeled in many other places. They have many different institutions from North America and Europe that have gone there to serve Western Kenya, which has a catchment area of about 25 million people.  About 15 to 20 years ago, I visited AMPATH, and what they had done with HIV/AIDS was extraordinary. But what we were seeing there in cancer was heartbreaking. It reminded us, Dave, as you remember back in the ‘60s and ‘70s with people coming in with advanced cancers of the head and neck and breast cancers that were untreated. And in addition, we saw these young kids with Burkitt's Lymphomas with huge masses out of their jaws. And seeing that and knowing what was possible, what we saw in the States and what seemed to be impossible in Kenya, spurred me on, as well as a number of other people, to get involved. And so, we have built up this program over the last 15 and 20 years, and I think it's one of the most successful models of global oncology that's in existence.  Dave Johnson: That's awesome. Terry, tell us a little bit about your involvement with the program at Moi University.  Terry Vik: Sure. So, I took an unusual path to get to Eldoret because I started off in work in signal transduction and protein kinases, then morphed into phase I studies of kinase inhibitors that was happening in the early 2000s. But by the end of the decade, Pat was beginning to establish oncology programs in Kenya. And because half the population is children and there were lots of childhood cancers, and many of them can be curable, he mildly twisted my arm to go with him to set up pediatric oncology in Kenya. And through his help and Matt Strother, who is a faculty member on the ground, establishing that, I first went in 2010 just to see how things were running and to see all the things that Pat had recognized as far as things that needed to be done to make Eldoret a center for cancer care.   And so, the last 13 years now, I've been working, going anywhere from one to four times a year to Kenya, mainly helping the Kenyans to develop their medical care system. Not so much seeing patients or taking care of patients, other than talking about best practices and how we do things in the US that can be readily translated to what's going on in Kenya. And so, we've been able to establish a database, keep track of our patients in pediatric oncology, recognize that lots of kids are not coming into care, not being diagnosed. There's a huge gap between numbers who you would expect to have childhood cancer versus the numbers actually coming to the hospital. As the only pediatric treatment center for a catchment area of 25 million, half of whom are under the age of 20, we should be seeing a lot of kids with cancer, but we are probably only seeing 10% of what we would expect.  So, myself, many of my colleagues from Indiana University, as well as colleagues from the Netherlands Princess Maxima Hospital for Pediatric Cancer, we've been partnering for these past 13 years to train Kenyans to recognize cancer, to have treatment protocols that are adapted for the capabilities in Kenya, and now finally starting to show real progress in survival for childhood cancer in Kenya, both in leukemias, lymphomas, and solid tumors, with a fair number of publications in Wilms tumor and Burkitt lymphoma and acute lymphoblastic leukemia. So, it's been really heartening, I think.  I tell people that the reason I go to Kenya studying signal transduction and protein kinase inhibitors in pediatric cancer, I can maybe save a couple of kids over a career by that kind of work. But going to Kenya to show people how to find and treat kids with leukemia, I'm literally seeing the impact of hundreds of kids who are alive today that wouldn't be alive otherwise. So, that's really been the success of pediatric oncology there. Dave Johnson: Is the spectrum of childhood cancer in Kenya reflective of what we see in the States, or are there some differences? Pat Loehrer: It really is surprisingly similar. I think the only thing that– Well, two things that are more common in Kenya because of the so-called ‘malaria belt' and the association with Burkitt Lymphoma, there's a fair number of kids with Burkitt's Lymphoma there. Although, as mosquito control and malaria control has improved, actually, the numbers of cases of Burkitt's have been dropping, and a lot of cancers were sort of hidden, not recognized as leukemia or not recognized as other lymphomas. Just because if Burkitt's is endemic, then every swelling is Burkitt's. And I think that's been shown by looking at pathology retrospectively to say a lot of what they thought was Burkitt's was maybe not necessarily Burkitt's. And then nasopharyngeal carcinoma with Epstein-Barr virus prevalence also is a little bit more common than I'm used to seeing, but otherwise, the spectrum of cancers are pretty similar. So, it's heartening to know that we've been treating childhood cancers with simple medicines, generic medicines, for 50 years in the US. And so I like to tell people, I just want to get us up to the ‘90s, maybe the 2000s in Kenya, and that will really improve the survival quite a bit. Dave Johnson: You mentioned that there were adjustments that you were making in the therapies. Could you give us some examples of what you're talking about? Terry Vik: The biggest adjustments are that the ability to give blood product support, transfusions of platelets is somewhat limited. So, for instance, our ability to treat acute myeloid leukemia, which is heavily dependent on intensive myelosuppressive chemotherapy, we're not so good at that yet because we don't have the support for blood products. Similarly, the recognition and treatment of infections in patients is somewhat limited. Yet, just the cost of doing blood cultures, getting results, we actually have the antibiotics to treat them, but figuring out that there actually is an infection, and we're just beginning to look at resistance patterns in bacteria in Kenya because I think that's an indiscriminate use of antibiotics. In Kenya, there are a lot of resistant organisms that are being identified, and so figuring out how best to manage those are the two biggest things. But now, in Eldoret, we have two linear accelerators that can give contemporary radiation therapy to kids who need it. We have pediatric surgeons who can resect large abdominal tumors. We have orthopedic surgeons and neurosurgeons to assist. All those things are in place in the last three to five years. So, really, the ability to support patients through intensive chemotherapy is still one of the last things that we're working diligently on improving. Dave Johnson: So one thing that I've read that you've done is you're involved heavily in the creation of a pediatric oncology fellowship program. If I read it correctly, it's a faculty of one; is that correct? Terry Vik: Well, now that two have just graduated, it's a faculty of three, plus some guest lecturers. So I feel quite good about that.  Dave Johnson: So tell us about that. That must have been quite the challenge. I mean, that's remarkable. Terry Vik: That goes back to one of my longtime colleagues in Kenya, Festus Njuguna, who is Kenyan. He did his medical school training at Moi University and then did pediatric residency there. They call it a registrar program there. And then he was, since 2009, 2010, he's been the primary pediatric oncologist. Although he always felt he did not have the formal training. He'd spent time in the US and in Amsterdam to get some added training for caring for kids. But it was his vision to create this fellowship program. So Jodi Skiles, one of my colleagues who had spent some time in Kenya and myself and he worked on creating the fellowship document that needs to go through the university to get approved. That finally got approved in 2019. And so the first two fellows…I was on a Fulbright Scholar Award to start that fellowship program for a year right in the middle of the pandemic, but we were able to get it started, and I was able to continue to go back and forth to Kenya quite a bit in the last two years to get through all of the training that was laid out in our curriculum. And two fellows, Festus and another long-standing colleague of mine, Gilbert Olbara, both completed the fellowship and then sat for their final exams at the end of last year and graduated in December. So it really was heartwarming for me to see these guys want to build up the workforce capacity from within Kenya, and being able to support them to do that was a good thing. Pat Loehrer: Parenthetically, Dave, we had the first Gynecology Oncology program in the country, too, led by Barry Rosen from Princess Margaret, and they have 14 graduates, and two of them now are department chairs in Kenya. Jenny's spearheading a medical oncology curriculum now so that we have that opened up this year for the first time. Dave Johnson: It's uncommon to find a junior faculty as accomplished as Jenny. Jenny, tell us a little about your background and how you got interested in global health, and your previous work before moving to IU.  Jennifer Morgan: I was an anthropology major at undergrad at Michigan, and I think I really always liked studying other cultures, understanding different points of view. And so I think part of that spirit when you study anthropology, it really sticks with you, and you become a pretty good observer of people and situations, I think, or the goal is that you become good at it. I think my interest in medicine and science, combined with that desire to learn about different cultures really fueled a lot of my interests, even from undergrad and medical school. I really felt strongly that access to health is a human right, and I wanted to work for Partners in Health when I graduated from residency. I had heard a lot about that organization and really believed in the mission around it.   And so I went to work in Butaro in Rwanda, and I really didn't have any plans to do cancer care, but then I just kind of got thrown into cancer care, and I really loved it. It was a task-shifting model that really where you use internists to deliver oncology care under the supervision of oncologists from North America. So, most of them were from Dana-Farber or a variety of different universities. And so it made me feel like this high-resource field of Oncology was feasible, even when resources and health systems are strained. Because I think a lot of people who are interested in Oncology but also kind of this field of global health or working in underserved settings really struggle to find the way that the two fit sometimes because it can feel impossible with the hyper-expensive drugs, the small PFS benefits that drive the field sometimes. And so I think, Butaro for me, and Partners in Health, and DFCI, that whole group of people and the team there, I think, really showed me that it's feasible, it's possible, and that you can cure people of cancer even in small rural settings. And so that drove me to go to fellowship, to work with Satish Gopal and UNC. And because of COVID, my time in Malawi was a bit limited, but I still went and did mainly projects focused on breast cancer care and implementation science, and they just really have a really nice group of people. And I worked with Tamiwe Tomoka, Shakinah Elmore, Matthew Painschab, really just some great people there, and I learned a lot.  And so, when I was looking for a job after fellowship, I really wanted to focus on building health systems. And to me, that was really congruent with the mission of AMPATH, which is the tripartite mission of advancing education and research and clinical care. And I knew from Pat that the fellowship program would be starting off, and I think to me, having been in Rwanda and Malawi and realizing how essential building an oncology workforce is, being a part of helping build a fellowship as part of an academic partnership was really exciting. And then also doing very necessary clinical outcomes research and trying to do trials and trying to bring access to care in many systems that are very resource constrained. So that's kind of how I ended up here.  Pat Loehrer: That's awesome. So tell us a little bit about your breast cancer work. What exactly are you doing at the moment? Jennifer Morgan: In Malawi, during my fellowship, we looked at the outcomes of women with breast cancer and really looking at late-stage presentations and the fact that in Malawi, we were only equipped with surgery, chemotherapy, and hormone therapy, but not radiation. You see a lot of stage four disease, but you also see a lot of stage three disease that you actually have trouble curing because it's so locally advanced, really bulky disease. And so that first study showed us the challenge of trying to cure patients– They may not have metastatic disease, but it can be really hard to locally even treat the disease, especially without radiation. And so that's kind of what we learned.   And then, using an implementation science framework, we were looking at what are the barriers to accessing care. And I think it was really interesting some of the things that we found. In Malawi, that has a high HIV rate, is that the stigma around cancer can be far more powerful than the stigma around HIV. And so, we are seeing a lot of women who are ostracized by their communities when they were diagnosed with cancer. And really, they had been on, many HIV-positive women, on ARVs for a long time living in their communities with no problem, and so HIV had kind of been destigmatized, but we're seeing the stigma of cancer and the idea that kids are as a death sentence was a really prominent theme that we saw in Malawi.  So some of these themes, not all of them, but some of them are very similar in Kenya, and so what I'm helping work on now is there's been this huge effort with AMPATH called the Breast and Cervical Cancer Screening Program, where around 180,000 women have been screened for breast cancer in a decentralized setting which is so important - so in counties and in communities. We're looking at who showed up to this screening and why did women only get breast cancer screening and why did some of them only get cervical, and why did some get what was intended - both. Because I think many people on the continent and then other LMICs are trying to do breast and cervical cancer co-screening to really reduce the mortality of both of those cancers. And the question is, I think: is mammography a viable screening mechanism in this setting or not? That's a real question in Kenya right now. And so we're going to be looking to do some studies around mammography use and training as well.  Dave Johnson: So, I have a question for all three of you. What lessons have you learned in your work in Kenya or Malawi that you've brought back to the States to improve care in the United States? Pat Loehrer: One is that the cost of care is ever present there. And so one of the things that we need to think about here is how can we deliver care more cheaply and more efficiently. It goes against the drug trials that are going on by industry where they want to use therapy for as long as they can and for greater times. And there are a lot of common things like access to care is a big issue there, and it's a big issue in our country. So we have used in IU some community healthcare workers in rural parts of our state as well as in the urban centers so that they can go to people's houses to deliver care.  Terry was involved with a wonderful project. It was a supplement from the NCI, which looked at barriers to care and abandonment of therapy. And just by giving patients and their families a small stipend that would cover for their travel and their food, the abandonment rate went down substantially, and they were able to improve the cure rate of Burkitt's Lymphoma. It's probably about 60% now. And so those are issues that I think we see here in our state, where people can't come to IU because of the cost of parking, that's $20 a visit. The lesson there is that we really need to get down to the patients and to their families and find out what their obstacles are.  Terry Vik: My favorite example, since I deal with kids and parents, is how striking parents are the same worldwide. They all want the best for their child. They all want anything that can be done to potentially cure them, treatment, they do anything they could. And I think the hardest thing, as Pat said, is the financial burden of that care. And the other thing that I bring back to my fellows in the US is that you don't have to do Q4-hour or Q6-hour labs to follow somebody when they start their therapy. Once a day, every 3 days, works quite well also. And just the realization that things can be done with a lot less stress in the US if you only decide to do it. Dave Johnson: Jenny, any thoughts from you on that? Jennifer Morgan: I think for me, decentralized cancer care is so important. Even being back on the oncology wards in Indiana in December, I saw a couple of really advanced patients who were really unfortunate, and they had tried to go through the system of referrals and getting to cancer care. And unfortunately, I think there are disparities in the US health system, just like in Kenya, and maybe on different scales. But cancer care that's accessible is so important, and accessible versus available, I think we a lot of time talk about therapies that may be available, but they're not accessible to patients. And that's really what we see in Kenya, what we see in rural Indiana. There are a number of grants that talk about reciprocal innovation because some of these things that we do in Kenya to minimize burden on the system are things that can be done in rural Indiana as well. And so, partnership on these issues of trying to improve decentralized care is important everywhere.  Pat Loehrer: And again, from the perspective as a medical oncologist, we see patients with late-stage diseases. We could eradicate the number one cause of cancer in Sub-Saharan Africa, cervical cancer, from the face of the earth just by doing prevention. We don't do enough in our country about prevention. The other dimension I guess I wanted to bring up as far as multidisciplinary care - when we think about that in our country, it's radiation therapy, surgery, medical oncology, but one of the lessons learned there is that the fourth pillar is policy. It's really about cancer policy and working with the government, Ministry of Health to affect better insurance cover and better care and to work with a different discipline in terms of primary care, much more strongly than we do in our country.  Dave Johnson: Are you encountering similar levels of vaccine hesitancy in Kenya as you might see in the States, or is that something that's less of an issue? Pat Loehrer: I'll let Terry and Jenny answer that. Terry Vik: I think there is some degree of vaccine hesitancy, and not so much that it's fear of the vaccine, but it's fear of the people pushing the vaccine. If it's coming from the government or if it's coming from outside drug companies or outside physician recommendations, it's less likely to be taken up. And if it's coming from within their own community or if it's their chiefs and their community leaders they respected, then I think there is less vaccine hesitancy certainly in a lot of things we do in pediatrics. So I think there is hesitancy, but it's coming from a different source than what we see in the US.   Jennifer Morgan: I would agree, and I think also COVID has changed the game on vaccine perceptions everywhere, and I don't think Kenya is spared from that either. So it may take a few years to see really what's going on with that.   Pat Loehrer: Jenny and I were at this conference, it's a Cancer Summit in Nairobi a couple of weeks ago, and we saw this little documentary there. And this notion of misinformation, as we've seen in our country, is also common over there. They were interviewing a number of men and women from Northern Kenya about prostate cancer, which is a very serious problem in Kenya. The notion was that even doing PSA screening caused infertility, and so the men and women didn't want their husbands to get screened for prostate cancer because they would become less fertile by doing that. So, again, there are lessons that we– as Jenny mentioned from the top about anthropology, I think we're all connected, we all have different ways of viewing communications in health, but I do think that we can learn from each other substantially. Dave Johnson: I mean, it's remarkable work. How is it funded?  Pat Loehrer: Well, I've been fortunate to be able to work with some friends who are philanthropists. We've had strong support as we've told our story with various different foundations. And we've been very grateful to Pfizer, who are very helpful to us in the early stages of this - Lilly Foundation, Takeda, Celgene. And I think as we basically share our vision of what we're trying to accomplish, we've been very humbled by the support that we have gotten for us. The U54 helps support some of the research. We have D43 we're doing through Brown University. So we plan to increase our research funding as best as we can. But this is active generosity by some wonderful people. We have a $5.5 million cancer and chronic care building in which a large sum of it came from Indiana University and the Department of Radiation Oncology. Dr. Peter Johnstone helped lead that. There was a Lilly heir that gave us quite a bit of money. An Indian Kenyan named Chandaria also donated money. So it's a matter of presenting the vision and then looking for people that want to invest in this vision.  Well, I just want to say, from my perspective, I am more of a cheerleader than on the field. But Terry, I know you spent a tremendous amount of time on the ground in Kenya, and Jenny, you're living there. I just wanted to say publicly that you guys are my heroes. Dave Johnson: Yeah. I think all of our listeners will be impressed by what they heard today, and we very much appreciate you both taking time to chat with us.  So at this point, I want to thank our listeners of Oncology, Etc., an ASCO Educational Podcast. This is where we'll talk about oncology medicine and beyond. So if you have an idea for a topic or a guest you'd like us to interview, please email us at education@asco.org. To stay up to date with the latest episodes and explore other educational content, please visit education.asco.org.  Pat, before we go, I have an important question to ask you. Pat Loehrer: I can't wait. Dave Johnson: Do you know how snails travel by ship?  Pat Loehrer: As cargo! Dave Johnson: Awesome. You got it. All right. Well, Terry and Jenny, thank you so much for taking time to chat with us. It's been great. I'm very impressed with the work you guys are doing. Really appreciate your efforts. Terry Vik: Great. Thank you. Jennifer Morgan: Thank you. The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions.   Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement.  

The Nordy Pod
Ep 29. Dr. Jeff Sperring, CEO of Seattle Children's Hospital

The Nordy Pod

Play Episode Listen Later Feb 27, 2023 53:19


In this episode we've got a bit of a theme going on, centered around an amazing organization that's had an enormous impact on so many lives, including mine, and that's the Seattle Children's Hospital. Later in the show we're going to talk about a benefit show that my wife and I created called SMooCH, which stands for Seattle Musicians for Children's Hospital, and to help tell that story I've brought in my good friend and return guest to The Nordy Pod, CEO of SubPop, Megan Jasper. But before that, I want to introduce you to another good friend of mine, an incredibly accomplished and remarkably compassionate individual, CEO of the Seattle Children's Hospital, Dr. Jeff Sperring. Now, I've wanted to have Dr. Sperring on the show for quite a while now, and not just because he's a fantastic CEO, but because Seattle Children's Hospital has had a particularly significant impact on my life. But comparable to my respect for the hospital itself is my esteem for the man who strives to maintain its reputation as one of the best children's hospitals in the country. For Dr. Sperring, becoming a physician was a dream that he chased down since the fifth grade. Raised in a family that displayed and encouraged service, he developed a strong desire to do good in the world. To pay for medical school, Dr. Sperring joined the Navy and, after training, served as one of only three pediatricians caring for roughly 4,000 Navy and Marine children on an army base in California. He then transitioned to Riley Hospital for Children in Indianapolis, where his superiors recognized his aptitude for leadership and recruited him into hospital administration, first as their Chief Medical Officer and then as their CEO. Dr. Sperring began zeroing in on potential dream jobs and took a swing at an open position as the CEO at Seattle Children's Hospital. It's apparent that Dr. Sperring deserves each new opportunity he's been given as he talks about the incredible sense of purpose that accompanies his job. I'm super grateful to have had the chance to get to know him, and I'm certainly glad people like him exist in this world. Thanks for tuning in to episode 29. We hope you enjoy it! Did you know that YOU can be on The Nordy Pod? This show isn't just a one-way conversation. We want to hear about what Nordstrom looks like through your eyes. Share your Nordstrom experience, good or bad, by giving us a call and leaving a voicemail at: 206.594.0526, or send an email to nordypodcast@nordstrom.com to be a part of the conversation!

Blocked and Reported
Episode 138: Jon Stewart And John Oliver Are Wrong About The Evidence For Puberty Blockers And Hormones

Blocked and Reported

Play Episode Listen Later Nov 5, 2022 110:12


You know those IDIOT REPUBLICANS who think that SCIENCE hasn't TOTALLY PROVEN that puberty blockers and hormones are AWESOME????? And TOTALLY REVERSIBLE????? Well two MOUTH-BREATHING IDIOTS who probably also HATE CRT and PUPPIES are so BIGOTED they don't even ACCEPT the MEDICAL CONSENSUS.(Show notes a bit longer and more in-depth than usual this week to help everyone follow along, double-check stuff, etc.)Show notes/Links:Carole hooven DESTROYS jon stewartThe state lawshttps://www.kff.org/other/issue-brief/youth-access-to-gender-affirming-care-the-federal-and-state-policy-landscape/Jesse on the state laws in 2020The vote went down after the episode was recorded, but Florida has now banned yuth gender medicine, with exceptions for those already receiving it and future research projectshttps://www.nytimes.com/2022/11/04/health/florida-gender-care-minors-medical-board.htmlThe full episode of Stewart's show: https://tv.apple.com/us/episode/the-war-over-gender/umc.cmc.1jj39s607lehulo4k0iscsarp“I don't send someone to a therapist when I'm going to start them on insulin.”https://www.theatlantic.com/magazine/archive/2018/07/when-a-child-says-shes-trans/561749/“Historically, mental health professionals have been charged with ensuring ‘readiness' [she puts that in scare quotes] for phenotypic transition, along with establishing a therapeutic relationship that will help young people navigate this very same transition. These 2 tasks are at odds with each other because establishing a therapeutic relationship entails honesty and a sense of safety that can be compromised if young people believe that what they need and deserve (potentially blockers, hormones, or surgery) can be denied them according to the information they provide to the therapist.” This excerpt strongly suggests she doesn't believe in the traditional gatekeeping role a mental-health clinician might play in a situation like this, helping to determine if a young person will benefit from transitioning.https://jamanetwork.com/journals/jamapediatrics/article-abstract/2504256Kids — sorry, sorry — “adolescents” — getting double mastectomies at 13 or 14https://pubmed.ncbi.nlm.nih.gov/29507933/“Suicide Attempts among Transgender and Gender Non-Conforming Adults: Findings of the Naitonal Transgender Discrimination Survey.”https://williamsinstitute.law.ucla.edu/wp-content/uploads/Trans-GNC-Suicide-Attempts-Jan-2014.pdfn.b.: “Without such probes, we were unable to determine the extent to which the 41 percent of NTDS participants who reported ever attempting suicide may overestimate the actual prevalence of attempts in the sample.” And:Finally, it should be emphasized that the NTDS, like all similar surveys, captured information about suicide attempts, not completed suicide. Lacking any information about completed suicide among transgender people (due primarily to decedents not being identified by gender identity or transgender status), it may be tempting to consider suicide attempt data to be the best available proxy measure of suicide death. Data from the U.S. population at large, however, show clear demographic differences between suicide attempters and those who die by suicide. While almost 80 percent of all suicide deaths occur among males, about 75 percent of suicide attempts are made by females. Adolescents, who overall have a relatively low suicide rate of about 7 per 100,000 people, account for a substantial proportion of suicide attempts, making perhaps 100 or more attempts for every suicide death. 13 suicides per 100,000 in a GIDS samplehttps://link.springer.com/article/10.1007/s10508-022-02287-7Insanely high rate of 2.8% in a Belgian clinical samplehttps://biblio.ugent.be/publication/8706800/file/8707586.pdfT H E G U I D E L I N E SStewart: So these, the guidelines that you wrote, because you were responsible with the endocrine board for writing guidelines of care for endocrinology.Safer: The Endocrine Society, yesStewart: The endocrine society.Yes.Stewart: And that was based on, uh, research papers, data, the things that you saw. Intervening with gender affirming care which may be just being respectful or, as they get older some of these other things. You've seen that have a reduction in depression, a reduction in suicide — that's what you've studied.Safer: Absolutely.Nothing about mental health improvement, lotta assessment-talk, “low evidence” at best https://academic.oup.com/jcem/article/102/11/3869/4157558?login=false#99603239The Ibuprofen System For Evidence Assessmenthttps://www.ncbi.nlm.nih.gov/books/NBK470778/table/app2.t2/Erica Anderson and Laura Edwards-Leeper take their concerns to the Washington Posthttps://www.washingtonpost.com/outlook/2021/11/24/trans-kids-therapy-psychologist/Jesse's interview with Anderson on BARPodRutledge: We don't have enough data, we don't have enough to show that these drugs are effective and that these children are better off. And that we should encourage…Stewart: You don't have enough, or it's not enough for you? I've got some bad news for ya. Parents with children who have gender dysphoria, have lost children, to suicide, and depression. Rutledge : They absolutely have.Stewart: —because it's acute. And so these mainstream medical organizations have developed guidelines through peer reviewed data, and studies. And through those guidelines, they've improved mental health outcomes.Rutledge's read on the evidence is perfectly reasonableHere's Sweden's National Board of Health and Welfare:For adolescents with gender incongruence, the [National Board of Health and Welfare] deems that the risks of puberty suppressing treatment with GnRH-analogues and gender-affirming hormonal treatment currently outweigh the possible benefits, and that the treatments should be offered only in exceptional cases. … To minimize the risk that a young person with gender incongruence later will regret a gender-affirming treatment, the NBHW deems that the criteria for offering GnRH-analogue and gender-affirming hormones should link more closely to those used in the Dutch protocol, where the duration of gender incongruence over time is emphasized.https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/kunskapsstod/2022-3-7799.pdfAnd here's Finlands' Council for Choices in Health Care, via an unofficial translationIn light of available evidence, gender reassignment of minors is an experimental practice. Based on studies examining gender identity in minors, hormonal interventions may be considered before reaching adulthood in those with firmly established transgender identities, but it must be done with a great deal of caution, and no irreversible treatment should be initiated. Information about the potential harms of hormone therapies is accumulating slowly and is not systematically reported. It is critical to obtain information on the benefits and risks of these treatments in rigorous research settings.https://segm.org/sites/default/files/Finnish_Guidelines_2020_Minors_Unofficial%20Translation.pdfNHS headed same wayhttps://www.engage.england.nhs.uk/specialised-commissioning/gender-dysphoria-services/user_uploads/b1937-ii-specialist-service-for-children-and-young-people-with-gender-dysphoria-1.pdfDutch stuffhttps://www.tandfonline.com/doi/full/10.1080/0092623X.2022.2121238https://www.tandfonline.com/doi/full/10.1080/0092623X.2022.2046221Depression and suicidality linked to blockers, perhaps rarelyhttps://www.accessdata.fda.gov/drugsatfda_docs/label/2016/019732s042,020517s038lbl.pdfThttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3693622/“Testosterone Therapy is Associated With Depression, Suicidality, and Intentional Self-Harm: Analysis of a National Federated Database”https://www.sciencedirect.com/science/article/abs/pii/S1743609522012449#:~:text=Testosterone%20use%20was%20independently%20associated,testosterone%20deficient%20sub%2Dgroup%20analysisThe book to read on Thttps://www.amazon.com/Story-Testosterone-Hormone-Dominates-Divides/dp/1250236061The desistane literature is by no means “debunked,” and if you actually read the studies, no, the clinicians who wrote them did not confuse a bunch of merely gender nonconforming kids for genuinely gender dysphoric onesThese studies aren't perfect and come from different contexts, but they consistently tell the same storyhttp://www.sexologytoday.org/2016/01/do-trans-kids-stay-trans-when-they-grow_99.htmlThat story probably doesn't apply to kids who socially transition at a young age https://www.nytimes.com/2022/05/04/health/transgender-children-identity.htmlhttps://publications.aap.org/pediatrics/article/150/2/e2021056082/186992/Gender-Identity-5-Years-After-Social-Transition?autologincheck=redirected%3fnfToken%3d00000000-0000-0000-0000-000000000000Even at the bigger clinics that do take a multidisciplinary approach, and where kids could theoretically get comprehensive, holistic care, that isn't always happeninghttps://www.reuters.com/investigates/special-report/usa-transyouth-care/In interviews with Reuters, doctors and other staff at 18 gender clinics across the country described their processes for evaluating patients. None described anything like the months-long assessments de Vries and her colleagues adopted in their research. At most of the clinics, a team of professionals – typically a social worker, a psychologist and a doctor specializing in adolescent medicine or endocrinology – initially meets with the parents and child for two hours or more to get to know the family, their medical history and their goals for treatment. They also discuss the benefits and risks of treatment options. Seven of the clinics said that if they don't see any red flags and the child and parents are in agreement, they are comfortable prescribing puberty blockers or hormones based on the first visit, depending on the age of the child. “For those kids, there's not a value of stretching it out for six months to do assessments,” said Dr Eric Meininger, senior physician for the gender health program at Riley Hospital for Children in Indianapolis. “They've done their research, and they truly understand the risk.”2020 Finnish studyhttps://pubmed.ncbi.nlm.nih.gov/31762394/Those who did well in terms of psychiatric symptoms and functioning before cross-sex hormones mainly did well during real-life. Those who had psychiatric treatment needs or problems in school, peer relationships and managing everyday matters outside of home continued to have problems during real-life. … Medical gender reassignment is not enough to improve functioning and relieve psychiatric comorbidities among adolescents with gender dysphoria. Appropriate interventions are warranted for psychiatric comorbidities and problems in adolescent development.Jack Turban misinterpreting it:https://archive.ph/wip/x6LGWGIDS study comparing a group of kids with serious mental health problems who were delayed access to youth gender medicine to a group of kids who were able to start sooner because their mental health was solid enoughhttps://pubmed.ncbi.nlm.nih.gov/26556015/Severely distorted UW study also found no improvement among kids who went on youth gender medicineYet another study out of GIDS, on kids from 12 to 15 years old who went on blockers, found no mental-health improvements, full-stophttps://journals.plos.org/plosone/article?id=10.1371/journal.pone.0243894Littman defends Littman's research methodshttps://link.springer.com/article/10.1007/s10508-020-01631-zThat dumb chartWe also have chartshttps://www.newscientist.com/article/mg21929361-000-multiple-personalities-takedown-of-a-diagnosis/http://www.fmsfonline.org/?ginterest=RecoveredMemoriesInTheCourts“Another significant issue raised with us is one of diagnostic overshadowing – many of the children and young people presenting have complex needs, but once they are identified as having gender-related distress, other important healthcare issues that would normally be managed by local services can sometimes be overlooked.”https://cass.independent-review.uk/wp-content/uploads/2022/03/Cass-Review-Interim-Report-Final-Web-Accessible.pdfNHS changes course on the safety/reversibility of blockers in 2020https://www.transgendertrend.com/nhs-no-longer-puberty-blockers-reversible/[Michael Hobbes got mad at me for posting this because he doesn't like Transgender Trend, but holy hell is that stupid: They are simply summing up and putting into writing a change to the NHS website, and they're citing a BBC report on the same subject. -Jesse]OLD LANGUAGE: The effects of treatment with GnRH analogues are considered to be fully reversible, so treatment can usually be stopped at any time after a discussion between you, your child and your [multidisciplinary team]NEW LANGUAGE: Little is known about the long-term side effects of hormone or puberty blockers in children with gender dysphoria. Although the Gender Identity Development Service (GIDS) advises this is a physically reversible treatment if stopped, it is not known what the psychological effects may be. It's also not known whether hormone blockers affect the development of the teenage brain or children's bones. Side effects may also include hot flushes, fatigue and mood alterations.Serious Lupron side effectshttps://www.statnews.com/2017/02/02/lupron-puberty-children-health-problems/For years, Sharissa Derricott, 30, had no idea why her body seemed to be failing. At 21, a surgeon replaced her deteriorated jaw joint. She's been diagnosed with degenerative disc disease and fibromyalgia, a chronic pain condition. Her teeth are shedding enamel and cracking. None of it made sense to her until she discovered a community of women online who describe similar symptoms and have one thing in common: All had taken a drug called Lupron. Thousands of parents chose to inject their daughters with the drug, which was approved to shut down puberty in young girls but also is commonly used off-label to help short kids grow taller. The drug's pediatric version comes with few warnings about long-term side effects. It is also used in adults to fight prostate cancer or relieve uterine pain and the Food and Drug Administration has warnings on the drug's adult labels about a variety of side effects. More than 10,000 adverse event reports filed with the FDA reflect the experiences of women who've taken Lupron. The reports describe everything from brittle bones to faulty joints. In interviews and in online forums, women who took the drug as young girls or initiated a daughter's treatment described harsh side effects that have been well-documented in adults.Caroline Jemsbyhttps://www.journalismfund.eu/journalists/carolina-jemsbyGULDSPADENhttps://archive.ph/wip/GFuryClip in questionhttps://drive.google.com/file/d/1bL4WWMCs46dCKweZzz0gBj1AqE62k3oj/view?usp=sharingFull unlocked interview with JesseGLAAD is glad journalists are falling in linehttps://www.glaad.org/blog/jon-stewart-sets-record-straight-gender-affirming-carehttps://www.glaad.org/blog/john-oliver-explains-why-gender-affirming-care-is-so-importantBut sometimes nothttps://www.glaad.org/gap/jesse-singalJesse's response to the original version of his page (he hasn't yet responded to the new one, which went up after this, because life is short): The TikTok Doc yeets some teetshttps://www.nytimes.com/2022/09/26/health/top-surgery-transgender-teenagers.htmlWhoops:Dr. Gallagher of Miami said that she follows up with patients for up to a year. “I can say this honestly: I don't know of a single case of regret,” Dr. Gallagher said in May, adding that regret was much more common with cosmetic procedures. But one of her former top surgery patients, Grace Lidinsky-Smith, has been vocal about her detransition on social media and in news reports. “I slowly came to terms with the fact that it had been a mistake born out of a mental health crisis,” Ms. Lidinsky-Smith, 28, said in an interview.So basically, these clinicians are claiming top surgery has incredibly low regret rates, but they're simply not bothering to keep in touch with their patients. And one year is not very long for followup on this — if you give a kid top surgery at 15 or 16, one of the questions is whether, as their peers sexually develop and start families, they'll at some point wish they had breasts. It's a totally natural, important question, and you can't answer it if your patients are disappearing into the void just one year after you perform surgery on them.Age guidelineshttps://www.cdc.gov/hiv/policies/law/states/minors.htmlOliver: So the benefits of providing care are immense and the risks of withholding it are dire. A survey of around 28,000 trans people found that of those who wanted hormone therapy and didn't receive it 58% reported suicidal thoughts in a given year, which is why the three major professional associations of Child and Adolescent doctors, psychologists and psychiatrists have endorsed gender affirming care and condemned efforts to deny it. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0261039This study is ridiculous and doesn't even show any correlation between access to hormones and improvement on the more serious suicide measures anywayOliver: You may have seen or heard from a small subset of people who D transitioned but it is worth noting such cases are rare and highly individualized. Studies show an average of just 2% of people who transition expressed regret. And the vast majority of those who have opted to detransition did so not because of changes in their gender identity but due to external factors such as stigma and lack of social support. Supposedly 1% - 2% regret ratehttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8099405/Lost to follow datahttps://docs.google.com/spreadsheets/d/1Yog0cUgVufxoTY64q-ll1wr7XcBhuqKD/edit?usp=sharing&ouid=102378063559486309340&rtpof=true&sd=trueOliver is relying not on a study of detransitioners, but on individuals who currently identify as transhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8213007/Littman study of detransitionershttps://pubmed.ncbi.nlm.nih.gov/34665380/Reasons for detransitioning were varied and included: experiencing discrimination (23.0%); becoming more comfortable identifying as their natal sex (60.0%); having concerns about potential medical complications from transitioning (49.0%); and coming to the view that their gender dysphoria was caused by something specific such as trauma, abuse, or a mental health condition (38.0%). Homophobia or difficulty accepting themselves as lesbian, gay, or bisexual was expressed by 23.0% as a reason for transition and subsequent detransition. The majority (55.0%) felt that they did not receive an adequate evaluation from a doctor or mental health professional before starting transition and only 24.0% of respondents informed their clinicians that they had detransitioned.  This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit www.blockedandreported.org/subscribe

News 8 Daily
Roommate suspect in killing of Purdue University student in campus dorm

News 8 Daily

Play Episode Listen Later Oct 5, 2022 9:54


Your day ahead forecast, Purdue confirms student homicide, gas prices rising, new visitor restrictions at Riley Hospital begin tonight, sports and more See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Academy Exchange: HIV Today & Tomorrow
A New Day for HIV Treatment

The Academy Exchange: HIV Today & Tomorrow

Play Episode Play 39 sec Highlight Listen Later Sep 6, 2022 43:01 Transcription Available


Academy Executive Director, Bruce Packett, is joined by clinical HIV Pharmacist™ Dr. Brooke Stevens to discuss new and novel antiretroviral therapies including single pill regimens and long-acting injectables. These new regimens allow antiretroviral therapy to be administered less frequently, making it potentially easier for patients to remain adherent.They discuss who might be good candidates to consider switching to novel formulations and modalities, as well as trends in which patients are interested in switching.  But there are some barriers to uptake of these novel treatments, including prior authorization requirements and challenges with rolling out new therapies. About Dr. Stevens:Dr. Brooke Stevens is the specialty pharmacy clinical manager at Indiana University Health in Indianapolis, Indiana and a clinical pharmacist at LifeCare Clinic at Methodist Hospital as well as the Ryan White Center for Pediatric Infectious Disease and Global Health at Riley Hospital for Children at Indiana University Health.******** Questions about this topic? E-mail podcast@aahivm.org to get connected with Bruce or any of our guests. Are you a medical provider and want to join the conversation? Make your voice heard in the Academy Communities and connect with other HIV clinicians! To learn more about the Academy, visit www.aahivm.org

Extra News On Demand
News at Noon for Tuesday July 26 2022

Extra News On Demand

Play Episode Listen Later Jul 26, 2022 8:12


A 3 year old girl rescued from an Evansville house fire on Friday dies at Riley Hospital in Indianapolis... The rainy weather forces the cancellation of the rodeo scheduled tonight at the Vanderburgh County Fair... A Dubois County man is in trouble for leaving the scene of an accident, and resisting law enforcement...See omnystudio.com/listener for privacy information.

Maternity Matters
Physical and occupational therapy for maternity patients at Riley Hospital for Children

Maternity Matters

Play Episode Listen Later Jul 25, 2022 20:38


Physical and occupational therapy is available to pregnant patients in the Riley Maternity Tower. From high-risk pregnancy mothers who are hospitalized for weeks to the patients recovering from a c-section, these therapies can make a big difference in their recovery experience. Lauren Broniarczyk, physical therapist, and Kelly Salter, occupational therapist, discuss the ways they interact with these patients each day.

Behind the 8
Cody Adams chronicles the heroic efforts of the cancer crusaders at Riley Hospital for Children

Behind the 8

Play Episode Listen Later May 13, 2022 11:35


WISH-TV 8 Reporter Cody Adams was working in Terre Haute before he joined WISH-TV. The young reporter was just getting his career and family underway when his baby daughter, Madelyn, was diagnosed with juvenile myelomonocytic leukemia, a rare form of blood cancer. What followed was a prolonged battle against the insidious disease at Riley Hospital for Children at Indiana University Health. Maddy's treatment culminated with a life-saving bone marrow transplant. During their daughter's treatment, Cody and his wife, Nicole, befriended other families and patients locked in the same terrifying battle. Happily, Madelyn is now cancer-free. When Cody landed a job at WISH-TV, he wanted to share the stories of those parents, their parents, and the doctors waging war on pediatric cancer. In this podcast, Cody shares his admiration for the courageous cancer warriors at Riley Hospital for Children.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Down Syndrome Center of Western Pennsylvania Podcast
#130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull)

Down Syndrome Center of Western Pennsylvania Podcast

Play Episode Listen Later Apr 19, 2022 33:42


Dr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the latest guideline update released earlier this week!  Dr. Bull is  the Morris Green Professor of Pediatrics at Indiana University School of Medicine, Department of Pediatrics, in the Division of Developmental Pediatrics.  She is the Director of the Down Syndrome Program at Riley Hospital for Children. The medical guidelines can be found here: https://publications.aap.org/pediatrics/article/doi/10.1542/peds.2022-057010/186778/Health-Supervision-for-Children-and-Adolescents.   If there are topics that you would like us to cover on the podcast, please reach out to me at DownSyndromeCenter@chp.edu.   If you would like to partner with us in the work that we are doing at the Down Syndrome Center, including this podcast, please go to https://givetochildrens.org/downsyndromecenter.  

Airway Circle Radio
10. Ep. 2 of Dear Momma with Dr. Tammy Button - Pregnancy and Oral Health Education

Airway Circle Radio

Play Episode Listen Later Apr 5, 2022 34:15


Pregnancy and Oral Health Education: https://southshoreskippingstones.org About our Host: Dr Catherine Murphy is an orthodontist transforming her career while serving as a holistic health advocate. She's a presenter and the author of “Dear Momma…”, a picture book and virtual hug for moms enduring unexpected hurdles with breastfeeding. Follow Dr. Murphy on Instagram: https://www.instagram.com/drcatherinemurphy Dear Momma – This is the podcast for moms seeking community, connection and compassion while on their health journey. Join for laughs, hacks and health information. About our Guest: Dr. Tammy Gierke Button, DDS, MSD Founder, Executive Director, and President, Southshore Skipping Stones Dr. Tammy Gierke Button earned her DDS from Indiana University School of Dentistry and her MSD in Pediatric Dentistry from Riley Hospital for Children in Indianapolis. A clinical pediatric dentist for more than 15 years, Dr. Button is known for cultivating community partnerships. She served as the first Director of Community-Based Dental Education at Indiana University School of Dentistry. She regularly presents lectures on pregnancy and infant oral health to pediatric dentistry residents at Riley and collaborates with other oral health and healthcare professionals to develop CME, CE and webinar trainings. Dr. Button currently serves as the secretary of the Northwest Indiana Dental Society, as a member of the HealthLinc Compliance and Performance Improvement Committee, and on both the Infant Oral Health and Drinks Destroy Teeth Subcommittees of the Indiana Dental Association. Dr. Button is also a member of the National Coalition of Dentists for Health Equity. When she's not in her dental office, you may find Dr. Button at the beach open water swimming, skipping stones and building sandcastles with her husband and daughter.

Inside INdiana Business
Inside INdiana Business Television Podcast: Weekend of 4/1/22

Inside INdiana Business

Play Episode Listen Later Apr 5, 2022 37:40


 We check in with Governor Holcomb during his overseas trip; Indy lands another major sporting event; an abandoned coal mine gets a spirited new life; defense manufacturing takes center stage in northeast Indiana; Purdue scientists want to get you through traffic more safely; Riley Hospital for Children hopes a big donation will make a big difference; PNC Bank is getting a new regional president; we spotlight a unique approach to buying out companies; and we look at what's coming up in the IBJ this week.

Andy In The Morning - Majic 95.1
Kat Was In A Wreck & Andy's Son To Go To Riley Hospital

Andy In The Morning - Majic 95.1

Play Episode Listen Later Feb 28, 2022 22:33


Kat Was In A Wreck & Andy's Son To Go To Riley Hospital

La Voz Latina en Indiana
Preocupa a trabajadores de salud incremento de hospitalizaciones por COVID-19

La Voz Latina en Indiana

Play Episode Listen Later Dec 10, 2021 12:18


Dr. John Christenson es el director médico de infecciones y prevención de Riley Hospital for Children. Completó sus estudios médicos en la Universidad de Puerto Rico y una beca en enfermedades infecciosas pediátricas en el Centro de Ciencias de la Salud de la Universidad de Oklahoma. Christenson habló con nosotras sobre el aumento de casos de COVID-19 en el centro de Indiana.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Inside INdiana Business
Inside INdiana Business Television Podcast: Weekend of 11/19/21

Inside INdiana Business

Play Episode Listen Later Nov 23, 2021 36:53


The Indy Airport gears up for holiday travel; Fishers wants to be a life sciences leader; an Indiana turkey farm prepares for Thanksgiving; we spotlight one of the world's largest gourmet popcorn stores; Riley Hospital for Children opens a new maternity tower; Daleville students get hands-on with growing food; we talk to the head of UIndy athletics and join the IBJ to talk about the biggest business stories of the week.

Air Methods Prehospital EDucation Podcast
Air Methods Prehospital EDucation Podcast Ep. 10

Air Methods Prehospital EDucation Podcast

Play Episode Listen Later Nov 17, 2021 51:24


Air Methods Prehospital EDucation Podcast  Severely burned patients are a clinical challenge from many angles. In this month's episode, we examine and discuss how the patient care challenge is compounded in this transport by the remoteness of the request and the limited local resources. We are joined by flight paramedic, Orlando Marquez EMT-P burn nurse Kelly Marquez RN and Dr. Brett Hartman DO who directs the adult and pediatric burn units at Riley Hospital for Children Speedway Burn Unit and Richard M. Fairbanks Burn Center. Click here to download today! As always thanks for listening and fly safe! Hawnwan Moy MD FACEP FAEMS John Wilmas MD FACEP FAEMS Joseph Hill RN BSN CMTE CFRN  

The Lavender Room Design Podcast
"Hope Happens Here' with Ana Pinto-Alexander, EDAC, FIIDA, RID, Principal and Group Director for Healthcare Interiors at HKS Architects

The Lavender Room Design Podcast

Play Episode Play 30 sec Highlight Listen Later Nov 15, 2021 54:15


Ana Pinto Alexander had been enjoying a long, multiple-award-winning career in design before she became pregnant with Kiara. Her doctor told her that her baby daughter had a large cyst on her right lung.  Ana spent the next several months at Riley Hospital for Children in Indianapolis, Indiana where she became the parent of a sick baby. How did this deeply challenging time in Ana's life awaken something deep within her soul -- something that would change her life forever?  What does it mean to be a compassionate and empathetic designer in the field of healthcare? How does this deeply spiritual human, who carries crystals in her pockets and designs with sacred geometry, care for patients, their families, doctors and staff through the design of the built environment?  You are in for a real treat today, my friends. I am delighted to introduce my special guest, Ana Pinto Alexander, Principal and Group Director for Healthcare Interiors at HKS Architects in Dallas, Texas. Ana's work of transforming some of the largest hospitals in the world into safe, healing and nourishing spaces for patients, their families, and the large community of people who work there is impressive.To learn more about Ana Pinto-Alexander and HKS Architects, visit https://www.hksinc.com/Follow Ana on Linkedin: https://www.linkedin.com/in/ana-pinto-alexander-edac-fiida-rid-33129311/

The IBJ Podcast
Baby-delivering biz shifting with Riley's $142M maternity tower

The IBJ Podcast

Play Episode Listen Later Oct 4, 2021 22:39


Riley Hospital for Children is preparing to unveil its $142 million maternity center—five floors of renovated space that will house labor and delivery rooms, intensive-care-unit rooms, emergency and triage rooms, operating rooms, and infant-resuscitation rooms. It's a new direction for Riley, which has traditionally served sick children and babies who need special care. But Indiana University Health is now moving its well-baby maternity services from Methodist Hospital to Riley, giving moms and their babies one place to receive all the care they need. IBJ health reporter John Russell toured the facility and talked with host Mason King about what he saw and how the tower fits into the increasingly competitive business of maternity care. You can read more about the maternity tower in John's story here.

EM Pulse Podcast™
Women in PEM

EM Pulse Podcast™

Play Episode Listen Later Sep 30, 2021 12:03


Let's talk about gender equality in PEM.  Our guests are two PEM physicians who are creating innovative solutions to workforce inequality.   Host: Dr. Julia Magaña, Associate Professor of Pediatric Emergency Medicine at UC Davis Health Guests:   Dr. Lindsey Barrick, Assistant Professor at Cincinnati Children's Hospital Medical Center, Vice-Chair of the Women in PEM AAP Subcommittee Dr. Mariju Baluyot, Pediatric Emergency Medicine Faculty, Riley Hospital for Children Simulation Fellow at Indiana University, Women in PEM Social Media Director, Co-leader for the Diversity, Equity and Inclusion Dissemination Outreach Group Resources: Women in PEM on Twitter: https://twitter.com/WomeninPEM Women in PEM: https://linktr.ee/WomeninPEM

Maternity Matters
Milk Lab at Riley Hospital for Children

Maternity Matters

Play Episode Listen Later Sep 12, 2021 11:28


The Milk Lab at Riley Hospital for Children handles all the milk for babies who are in the NICU or other units. The lab is equipped to safely handle breastmilk and formula. The staff is also trained to create precise formulas that provide nutrition to the youngest patients, who often have complex medical conditions. Soon, a second milk lab will open in the Riley Maternity Tower.

Maternity Matters
LifeLine respiratory therapist shares what it's like to care for sickest babies

Maternity Matters

Play Episode Listen Later Jul 25, 2021 16:25


This week, we hear from a LifeLine team member who is part of the crew that transports the sickest babies to Riley Hospital for Children. Cathy Overley is a respiratory therapist with more than 25 years of experience. She opened up about her passion for this role and how the transport team is able to act as an intensive care unit for these babies until they arrive at Riley.

Doctors Changing Medicine
Bringing Health To Patients Utilizing YouTube, A Blog And Online Courses with Dr. Nerissa Bauer

Doctors Changing Medicine

Play Episode Listen Later Jun 30, 2021 28:49


Has the pandemic negatively impacted your medical practice? While this may be the case with most physicians, the pandemic has been a "blessing" in disguise for Dr. Nerissa Bauer. It gave her a chance to change gears from Riley Hospital to opening her own business, Let's Talk Kids Heath, that helps kids and parents navigate ADHD.In today's episode, Dr. Bauer speaks about her complete shift to online consultations,  her virtual class series, and the importance of transitioning what you can in your business to grow your business online. Dr. Bauer is on a mission to help children and parents learn and communicate more effectively even with the challenges of ADHD.Tune in to learn more about:Why Dr. Bauer does what she does.Why burnout is not an option for Dr. Bauer, and how she's learned to find fulfillment in serving ADHD patients.Some of the major challenges Dr. Bauer has had to deal with in her journey.Dr. Bauer's advice on dealing with imposter syndrome, and what has worked for her.The kind of experiences and wins Dr. Bauer has created for her patients and their families. How owning a successful YouTube channel has changed the trajectory of Dr. Bauer's business, her career, and her sense of fulfillment.... and so much more!Episode sponsor: If you're ready to build a business that lets you live life and practice medicine on your own terms, check out the EntreMD Business School!Featured in the show:Dr. Bauer's website: https://www.letstalkkidshealth.org/Facebook group: Let's Talk Kids HealthYouTube channel: Nerissa Bauer, MDMore from Doctors Changing Medicine:Join the Doctors Changing Medicine Community HEREYouTube Channel

Autism Rocks and Rolls
142:Identical Yet Opposites By BJ Yoho

Autism Rocks and Rolls

Play Episode Listen Later Jun 12, 2021 56:28


We have a special guest today! My very best friend in the whole world, Mr. BJ Yoho. BJ is from Bloomfield, Indiana and we have gone to school together since pre-school. He is truly like a brother to me and a part of my family. BJ, like me, has had some trials and tribulations in his life, but has overcome so much. BJ was born with special bifida and has been in a wheelchair for most of his life. Let me tell you, this has not stopped him. He is a celebrity in our community. One of the most amazing things BJ has done is bring joy to the patients at Riley Hospital in Indianapolis, Indiana. He has turned over the reins to another young lady, but for years, BJ and his mother, Blaine Yoho, collected thousands of toys and personally delivered them to Riley Hospital for the children staying there around Christmas time. Our community even has a BJ Yoho Day!

Mapping Out Motherhood
Will Mother's Day be mine?

Mapping Out Motherhood

Play Episode Listen Later Apr 30, 2021 19:35


Receiving a cancer diagnosis is hard, but also learning treatment could effect fertility later in life is like a one-two punch. Hear the story of a Riley Hospital for Children nurse who supports young cancer patients after surviving leukemia herself and how it has all impacted her journey to motherhood.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

News 8 Daily
Thousands more IPS students must soon walk to school

News 8 Daily

Play Episode Listen Later Apr 30, 2021 19:23


Your day-ahead and weekend forecast, more on IPS decision to change bussing policy, Colts pick defensive player in 1st night of draft and does Aaron Rodgers want out of Green Bay? Rudy Giuliani breaks his silence on raid, Riley Hospital for Children is bringing back prom, business headlines and more

Killer Catchers
Killer Catchers Ep. 7 - Keegan Wolf

Killer Catchers

Play Episode Listen Later Mar 16, 2021 53:22


June 24, 2017, 7-month-old Keegan Wolf was airlifted to Riley Hospital in Indianapolis. Sadly Keegan passed away on June 27 due to his injuries. In this episode you will hear Tim, and members of his team relive working this case. Along with words from Keegans mother.

Handle with Care:  Empathy at Work
E. coli, Cancer, and Cascading Grief: an interview with Jill Harding

Handle with Care: Empathy at Work

Play Episode Listen Later Mar 3, 2021 43:47


Jill Harding Whenever I share those stories, people like you look so, so optimistic and you're so bubbly on life with what you've been through. And I said because at the end of the day, my kiddos fortunate, they have taught me a lot about life in ways that I don't know if we didn't go through those experiences, one, I could have taught them as a parent. And secondly, I learned a lot by their endurance, resilience and what they all went through.   INTRO   Sometimes in life, one disruptive life event falls fast on the heels of another.  This can be hard in your personal life…but it can feel especially devastating when the pain affects your children.  And that is what we are going to be talking about today.  My guest is Jill Harding.  She is many things, which I will tell you more about in a second, but she has parented two children through some really hard stuff.  Her oldest child, Grant, was diagnosed with leukemia and her middle child, Berkley, had a life-threatening bout of E.coli.  You will get a behind the scenes look at the challenges and even joy along the journey and learn how to be a better manager, coworker, or friend to people living through similar situations.  Jill lives with her husband and three children in small-town Indiana, in Morgantown.  She has known her husband since the mid-90s and they always said that they would never live in Morgantown or own minivan or live in a log cabin.  But things change.      Jill Harding We live in a little town which we love and adore Morgantown. But I laugh when people ask that question because my husband and I have known each other since the late 90s and we always said no log cabin, no minivan and no Morgantown. And guess what?   Jill Harding We have a minivan and we live in Morgantown and we pass a log cabin to get to our house every day just on the irony of those early and that we don't even think of at our place like it's perfect.   Liesel Mertes All of the cup holders, the door is right, minivan, they're great.   Jill Harding And I love it. You go out and you're grabbing food on the go and they ask you if you need a cup holder. I'm like, Are you kidding me? I got a million in here.   Jill is a marketer, a high school basketball coach, an entrepreneur, and a small business owner.  She is raising three children with her husband.  And when it snows, Jill and her family love to ski and would do it all day, every day if she had the chance.    Liesel Mertes When you and I realize at this stage of life, it can be a precious commodity, especially with COVID. But when you have time to yourself, do you have any hobbies or like ways that you really like to fill your discretionary time?   Jill Harding And we do and I actually my husband and I, we like to just chill out and we have a pretty heavily wooded area that we live in. So we just like to take hikes. And and I like to do them by myself or my husband or even the kiddos. But I really feel like that just rejuvenates all of us.   Jill is also an avid reader; she loves books on leadership and entrepreneurship, but she also makes time for other genres.    Jill Harding And then I also my son is a huge, huge, avid reader, breaking school records, even with his reading accounts while he was in elementary. So he and I kind of share books, too, with his love for reading. In The Land of Stories is a new book series that we started getting into. So reading is another obsession of ours.   Liesel Mertes Ada, my eldest, loves Land of Stories and I know what that is like. It's its own kind of distinct pleasure.   Liesel Mertes I also love to read but a track with one's children. And so Ada and I are just reading together right now.   Liesel Mertes Oh, it's it's a keeper of the Lost Cities, which is a fantasy sort of romp into the land of elves, ogres, et cetera, et cetera, that it's like they're big like 350 page books and there's like eight in the series.   Liesel Mertes So I was reading far too much heavy non-fiction and I took a divergence over the last month and a half. And now just reading elves now at see that.   Jill Harding But I fact that you can talk about it like my sons always like where are you at in the book? And, you know, I asked him the same thing and it's cool to kind of chit chat back and forth on where we're at and live that dream happy together for sure.   Liesel Mertes Well, and I also resonate with I, I feel like I say often that our family is everybody's at their best when we're like outside in the woods.   Liesel Mertes Sometimes it can be a battle to get there with fussing, but it's always so I don't have any gloves or, you know, what have you. What an amazing. But once we get out there, it's so amazing.   Jill Harding We're fortunate to we have a little creek that runs in the bottom of our woods. And just to sit there, I mean, obviously right now it's kind of cold and frozen, but it's still cool just to watch it because, you know, natural beauty for sure.   Liesel Mertes There's something about the just the movement of water and what it brings also, which is its own goodness.   Liesel Mertes Well, you know, children and life with children. That's some of what brings us to this conversation. And I know that you have familiarity with the good people and staff at Riley Hospital, much like I do within my own story.   Liesel Mertes What brought you to Riley when you were pregnant with your second child?   Jill Harding So basically our journey with our son, Grant, he I was telling you before he actually was diagnosed with leukemia at the age of two and a half, and originally our pediatrician was, you know, just running bloodwork, doing this on the other.   Jill Harding And at one point, I guess that that motherly instinct just kicked in and like, no, this isn't good enough. I feel like I know my son. Yes, Grant was our first child, but I feel like I know that this son well enough to know something's just not right.   Jill Harding So I push back to the pediatrician probably more aggressively than they were expecting and just said we get a fine results today because I can't see my son in suffering any longer and they won't ask him,   Liesel Mertes What were you in, what sorts of symptoms was he manifesting?   Jill Harding Yeah, so it was shortly after Christmas and he would not even he got a train table. And if anyone's been around toddlers, two year old toddlers, once they start walking, they don't stop. They run in the raster and they're crazier than ever. And he got to a point where he got a train table for Christmas and he wouldn't even stand up to play at the train table at a little over two. And I was like, someone just doesn't make sense.   Grant continued to languish.  He got strep throat.  There were misdiagnoses by the team of pediatricians.  No meaningful answers.  Which was when the doctors send Grant to Riley Children’s Hospital in the state capitol, Indianapolis.  This was mid-January in 2013.  Grant was put on the 7th floor for infectious disease.    Jill Harding They said we're going to not let you guys leave until we figure out what it is. And we were OK with that because as you mentioned, I was pregnant with our second child.   Jill Harding So we're like, OK, we're going to figure this out because. Obviously, our son means the world to us, and so we stayed there for a couple of days. This was the twenty second, twenty fifth they finally figured out what was going on. And we were so fortunate at the time because the chief of basically the leukemia society are basically our doctor.   Jill Harding He was actually the one that was there doing rounds that day that was diagnosed, which is really mind blowing if you think about it, because Dr. Thallon was actually there and he's the chief and he was one doing rounds.   Jill Harding And he's the one that came in such a compassionate, humble doctor. I mean, more so than I think I've ever been around in my entire life. But he just came in, let us have our moments. He did a spinal tap right in the room with us just to confirm that we were dealing with leukemia, because then once you determine it's leukemia, there's various different types of leukemia that you can have.   Jill Harding And in this case, Grant had what they call HLL, which is if you're going to have the leukemia at two and a half, it was best that he had the HLL as opposed to the AML. So we were fortunate there in that regards. You see a silver lining. It was hard at the time, of course, but once we found that out, then we basically, you know, had a moment. They moved us to the fifth floor and treatment started.   Jill Harding And it was, again, pretty amazing that we had the chief there within the hospital setting that new leukemia very well and was able to walk us through the steps and such a truly compassionate individual. And he had grandchildren himself. So he had kids, my and David's age, which was nice because he knew how to talk to us and help cope with the situation.   Liesel Mertes Well, and as I hear you say in those parts of the story, I feel like it's helpful just to to color around the edges, because there are a couple of things that are going on, right. Like you're seven months pregnant. Also, you guys are not from Indianapolis, but you're in Indianapolis, you know, doing tests at Riley. Are you guys staying at the Ronald McDonald House? Are you in a nearby hotel? Because there's this painful thing that happens with your young child that they're suddenly in the hospital and you're having to recalibrate life to be able to be present. What was that stress like for you guys?   Jill Harding Yeah, that's actually a great question, because we are so fortunate to have family and friends that just basically helped us, people that just came out the woodworks really just to really help be a support system. We actually have a daycare and we our youngest still goes to that daycare today that we have a daycare where they just were showered us with love and ways to support us, to help us with our other just home and just things at home that we need to help with.   Jill Harding And my parents and David's parents both live close by to so grandparents, two sets of grandparents living close by. But thankfully, it's about a forty five minute drive for us. We basically, again, being very pregnant, it was uncomfortable, I'll forget that.   Jill Harding But it still was worth every moment to stay there with great Dave and I. Basically, I was considered basically I was a freelancer at the time and so I had my own business. So flexibility and that I mean, if I had a computer, I could pretty much do my work anywhere.   Jill Harding So that was nice. And then David worked for Indiana Farm Bureau insurance and they were extremely flexible with him working remote. So Dave and I kind of know how to work remote before our even what we're going to do current day is we were able to basically just be there.   Jill Harding We had our computers and thankfully I was still pregnant with our middle child. So it was just Dave and myself and Grant. So we basically just lived in that hospital. They kept us just in the actual in his floor on the fifth floor.   Jill Harding We didn't have to access the Ronald McDonald House other than like sometimes we would go just to get a break from the hospital room itself, take turns and so forth, and utilize the services that they do provide, like meals and so forth that they do provide through that service. And we also have since then paid it back a little, too, just because we know the importance of families who are driving in much more than what we are.   Liesel Mertes Yeah, I remember as as we have gotten care at Riley, just even sitting close by to a Check-In desk and, you know, like, where are you coming from today?   Liesel Mertes And people being like Louisville, all of which is a regional hub of people coming from all over.   Jill Harding Yeah. And we were actually I mean. Forty five minutes. It was it's not a big deal to us, honestly, because we were so fortunate that we had in the care and we would drive farther if we had to. But we're used to driving a half hour really pretty much anywhere. So ready for that we do so.   Liesel Mertes And it was so treatment begins for leukemia. How long was he in the hospital? And then when you coming back for continued treatment beyond that initial hospitalization time?   Jill Harding Yeah. So leukemia is one of those. The cure rate is high. Last I knew when we were looking at the numbers, it's ninety four percent. But the same token, it's a pretty long process.   Grant was placed into a trial program where he would come in for chemotherapy treatments over a course of three years.    Jill Harding So Grant was diagnosed at the age of two and a half. So January of 2013, he was diagnosed. So basically from that January 2013, he basically had three and a half years that we were in and out of Riley during that course of time, and we still actually go to Riley.   Jill Harding We're coming up on so through to have your process pretty aggressive. Aggressive in regards to the chemotherapy. I don't know if you've ever been around anyone that's had it, but to see a young child,   Jill Harding we would laugh because we can laugh about it now because I was very pregnant, right, with my Berkely, my middle child, and I was always hungry.   Jill Harding And then Grant had to be on steroids for 30 days. So he was always really hungry. So we're eating at ungodly hours like 2:00 a.m. He wants chili all of a sudden. But the challenging thing would be on chemotherapy. It kills the good and bad cells. So his body, basically his ANC, which is your ability to fight off infection, was oftentimes next to zero or zero. And so he couldn't need stuff that was leftovers from the night before that we put in refrigerator.   Jill Harding He couldn't eat stuff out in restaurants because it is speck of germ that he could potentially good could cause him to get really sick and can't afford to get sick because his body would have a hard time hearing being sick on top of what he was going through. So I would be out and I tell that story because it makes me laugh now so I could think I was pregnant. I said I would be making chili like two a.m. in the morning and I had to make it from scratch because he could eat with food.   Liesel Mertes Was it was that was that your reality for the duration of the three and a half years of needing to have a certain level of hyper vigilance?   Jill Harding Yes, it definitely was. And I think that we got told and I kudos to our support system and my husband, too, that they were really surprised, the social worker that we dealt with and then obviously his nurses and doctors, that we weren't more hospitalized with Grant, that he was had the fewest hospitalizations with what he was going through because of just our diligence and just awareness when someone we had so many people that wanted to bring us groceries, for instance, and when they would bring us groceries, David and I would be wiping them down with bleach wipes before we even brought it up in the house.   Jill Harding I mean, we were. To a degree, we got such a pretty Cold War, you did, we did, and we always laughed, too, because it was cold, right? It was about this time of year when we were in the thick of it and we laughed because we have we have a big picture window in our dining room. And so we would have all the blinds open and people would come visit Grant through the actual and talk back and forth with walkie talkies to the glass on one side outside.   Jill Harding We'd be on the inside and they so speak to some people would bring over toys and they would bring double the toys again. We'd walk them down with bleach, Grant play with the ones inside and they would be playing the same ones outside. So it was kind of cool. Just some of those things, like you said, we we did just out of we had to get super creative because obviously this is a child. We don't want to take away his childhood.   Jill Harding We have good memories. But this is challenging to go through for him and for us to see him go through it. And I think the beginning to his once we had Berkeley, it was nice because obviously, you know, given the new baby from getting sick was a little easier, too, because she was always in the house with us doing the routine we have with grandma.   Liesel Mertes So you really think as a child, as a baby baby, anyway, I not just the just the innovative kindness of people, you know, coming over with with double the toys and playing, you know, some time has passed as you go back and think about that time I'm struck that you're doing so many things like you're a business person, you are mothering an infant, you're managing the elevated health risks of a child with leukemia.   Liesel Mertes What were some of the what did like a dark day look like for you? What did your feelings of overwhelm like? When would they come up with they catch you off guard?   Jill Harding Yeah, because, again, Grant was our first child, right, so we didn't know, we still don't know where does parenting right. You just kind of learn as you go along. This is the knack of being a parent. But I think the moment when it was challenging the most is, you know, having Berkeley, having a brand new baby, baby infant, trying to nurse her and do all the right things that, you know, the pressures of just raising a child and then making sure that I give her the attention needed, even though she's she still has needs and attention that she needs.   Jill Harding Right. From a mother and father, but not letting that distract from even our care from Grant. I feel like sometimes it was kind of that emotional head game that we played because we know Grant needs extra special attention. We had to make sure we got medicines a certain time. We had doctors appointments on a regular basis, balancing those elements that we know him well, but yet not neglecting or not giving the attention that Berkely needed as a young baby.   Jill Harding I think those things then obviously sleep deprived from it all.   MUSICAL TRANSITION Back to Jill’s story in a moment, because there is still so much more ahead.  But I want to take a moment to thank our sponsor, Handle with Care Consulting.  We know that this year is full of all kinds of stress, and it is hard to know if you are giving your people what they need to survive, stabilize, and thrive in this constantly changing environment.  In all of the confusion, empathy is the skill that your leaders and your team need to build a thriving culture.  And Handle with Care Consulting can help.  With keynotes, workshops, and executive coaching options, we give you the tools to put empathy to work.   MUSICAL TRANSITION   Liesel Mertes I know within my own story, there's our daughter Mercy died and then it was.   Liesel Mertes Maybe three years later for where we got the news that our son, Moses, had a really profound heart condition, that he was going to need lots of open heart surgeries, all that to say going through one hard thing with your children is not a guarantee that you won't go through other hard things later on down the path. I know that that has congruence with your own story. What happened with E. coli and your family?   Jill Harding When you hit the nail on the head, it's hard and I'm sorry you had to go through that, too, but I know in the end it all happens in places that much stronger when you come out on the other side, whatever that result may be. But so Berkely birthdays is our we call our spitfire. She's always been she's a lot like personality wise. And I tell her sorry a the time like me. So but this same time I think I know it helped her just that.   Jill Harding That sassiness, that determination, that that drive she has even at a young age, so I remember vividly because my husband actually went back to nursing school through everything we've been through with Grandma. And he actually became a nurse roughly three years ago. Just everything that we've been through with our son every time he go to hospital because we were there a lot, as you probably could imagine. My husband is just like, I need to be here. I need to be helping people.   Jill Harding And so my husband, kudos to him getting a nursing degree while having three kids at the time. And now he works at the medical ICU in downtown Indy at University Hospital. Kudos to you as well. To partner.   Jill Harding Oh, yeah. I was the bad guy, so supercooled to see him do that, but with that hope man. So he was working at the hospital. It was crazy because it was Sunday and I was not any Sunday. It was the Indy 500. The biggest tackler in the world was happening on this Sunday in May.   Jill Harding And I, I just tell these details because you got to kind of laugh about it, because if you don't laugh about it, then you cry about it and you don't.   Jill Harding But my son, I was so I was home with three kids by myself, right, and Berkley was five when all this happened and my son comes running into I think I was in the kitchen and he said, Mom, I was like, yes, he's like Berkley just pooped.   Jill Harding I'm like, OK, good for like, did you wash your hands? Right. And he's like, no, you don't understand. I'm like, what are you trying to tell me? Then he goes, There's blood in.   Jill Harding And I think I'm like, no, there's probably not blood in his pocket or something. Right. So I'd let it just go. And I just played it off like that because I was like, you know, Grea does not know that there's blood in there because it would have been the same.   Jill Harding He would have been a, Berkeley's by just being kids. Right. Right.   Jill Harding So I just kind of blew it off and she pooped again. And it's like, Mom, no, I'm not kidding. She's got poop in her blood, our blood in her poop. I'm like, are you sure? So me as a mom, like, OK, I'm going to humor them and go look. And I did. And I was just like, well, Grant, thanks for telling me. And this is the eight a little boy telling me this.   Jill Harding Right. And I was like, thank you, buddy, for telling me. He's like, what does it mean? I'm like, I don't know. So I'm basically trying to get a hold of my husband again. I told you, he is a nurse. So very tough to get a hold of him, especially in a medical ICU.   Jill is finally able to get a hold of David, who is working his shift.  Thankfully, a coworker offers to cover his shift so he can rush to Riley to meet Jill.  Jill’s brother came over to be with Grant.  And they arrive, back at Riley, which is familiar but surreal.   Jill Harding We actually went to the E.R. and they immediately didn't mess around. They did bloodwork, urine samples, stool samples, everything you can imagine to run tests on her little body. And they they couldn't figure out what was going on. So lo and behold, they it was so deja vu. They put us on the seventh floor infectious disease floor again.   Jill Harding And still, we have no idea what's going on other than we know there's blood in her stool   Liesel Mertes And are you finding yourself, like, completely emotionally flooded right now, like, oh, I did like some some people kind of like detach almost from the situation. Some people are right in it. Like what's going on for you as a mom?   Jill Harding As a mom, I was Dave and I were like we were so distraught because we have a good friend who's an E.R. doc. And as a dissertation, she actually did a full report. And like leukemia and how leukemia, is it hereditary? If you have multiple children, siblings, would they get it? And so we're like just went through this and there's no way. So we're thinking maybe it's leukemia again because of what we were experiencing. Right.   Jill Harding Similar types of experiences. So, I mean, we were just like almost so surreal that I was it wasn't really even overwhelming. It was just like. OK, we got this we've been here before, we got this we're going to be OK. What a good place. Let's just keep asking the right questions. David the nurse now so he knows more questions to ask. At the time I was back at Cook Medical, so I was in the medical device realm.   Jill Harding So I knew there's products to help from a device perspective. So we just need more questions to ask in this scenario than what we did before, because we obviously have been through life a little bit different than what we were expecting.   Jill Harding So anyways, fast forward, we talk to the doctors. They finally said we don't know what's going on. Too much test. They kept us another night like they did with grea type thing. And they finally figured out, OK, she's dealing with E. coli.   Jill Harding So E. coli, there is a 50 percent chance at her age and being female that she can get something called at us, which is hemolytic uremic syndrome. And in layman's terms, that basically means her renals can go into renal failure. Renals are what feed your kidneys, basically. It started making sense because her urine output started going down, so she had no urine for at least 24 hours at this point and she was drinking.   Jill Harding So we know she's got the fluids coming in, but the fluids aren't going out. And her stomach was getting real distended where it just stuck out, you know, just looked at her. She's a really petite, small little lady. So we knew something just wasn't right. And then they finally figured out that,   Jill Harding OK, she's got E. coli. The strain of E. coli she has could potentially cause her to have HUS. So they monitor, monitor and unfortunately, unfortunately, see how you will. They put us on the fifth floor again.   Jill Harding So we're like, wait a second. The floor is leukemia. We know that floor all too well. We've lived for so many days and hours and they're like, well, we put you on that floor because that's also our transplant floor and it's also our floor that we do dialysis if we need to do dialysis.   Jill Harding And then at this point, two more challenges, because we have two children back home. We have an older and a younger siblings of Berkeley at home. I mean, I know they're in good care, but still I mean, they're scared because I don't know what's going on. They got a lot of questions. And if my brother does, too, because he wants to be able to give them answers when they become available.   So there's well, and I'm free.   Liesel Mertes But that sense of like the limited resources of yourself as a parent to like you physically can't be in two places at once. Yeah, definitely.   Jill Harding And I know, Grant, I mean, obviously, with what he's been through, his heart is pure gold. And, you know, he's cutting my warrior of the three kids. And so he just wanted to be there with us. And it's hard to understand that we got to be here. We'll be there when we can together. Just give us some time.   Berkley is retaining fluid, getting puffier and puffier so the doctors decide to start hemodialysis.    Jill Harding But hemodialysis is basically where they take out. And it's phenomenally crazy to me. If you just think about what I'm about to tell you, the machine is huge. It's about the size of it, like a refrigerator. Basically, the machines are big and they take 10 percent of your blood out and cycle it, filter it through this machine.   Liesel Mertes Wow.   Jill Harding And so they filter it through the machine. So 10 percent of your blood at any given moment in time is in this machine being filtered and then cycled back into your system. So while the things that we learned along the way, she had to have ended up having six different hemodialysis treatments and it just I mean, it was exhausting for her to go through that and.   Liesel Mertes I just want to ask you about, like I can imagine that scene, you're like these are these are not easy procedures.   Liesel Mertes You know, they're involving needles, they're involving discomfort. They're involving multiple checks by nurses. Was there a sense of, like, overwhelm or powerlessness, like just as you're watching your child go through unnecessary pain?   Jill Harding Well, I will say it probably helps in our scenario, David, one being a nurse and then me having a background in medical devices because we knew that these there's great products that the companies that we worked for offered. And then obviously David knew more what was going on than I did.   Jill Harding So he was able to kind of walk me through it. But there's still something we hit the nail on the head to be said about seeing your own child. Right. It's not to dismiss it if it's someone else lying there or if it's even me right there. But to see your own physical child and someone feeling helpless in regards to pain, I will say with Berkely in particular and Grant to adjust their personalities are really different.   Jill Harding Berkley was pretty much she would tell the nurses what to do and she was not messing around. She even during her painful moments, she has grit. We called her tough as nails because she just has this, I don't know, something embedded in her personality that she's a fighter.   Jill Harding She uses a lot of humor to get her through tough times right now at the nurses, she would ask them for things that she knew she can have, like Skittles. But just to keep them on their toes, they'd be like, wait a sec.   Jill Harding You can't have that.   Liesel Mertes A sense of agency. Yep.   Jill Harding And again, she's a little petite, five year old little girl. She's real small. I think she weighed maybe thirty eight pounds at the most during all this. And so she would be on they would weigh her before and after each treatment. And sometimes she lost five, six pounds and hemodialysis treatment because of the fluid that her body was keeping.   Jill Harding Well but during all this she actually got C. diff too. I'm not sure you're familiar with this, but yeah. See that during it all.   Liesel Mertes As you think about those times in the hospital for those who are listening who have not had to be with a child long term in the hospital. What are some things that you wish people knew about what that reality is like?   Jill Harding Hmmm, that's a really tough question. I think that. It gives you a lot of humility, I mean, regards to humble, because David and I have always been very independent individuals, we don't really ask for help.   Jill Harding We just kind of just make it happen because we're strong willed individuals and we'll just find a way.   Jill Harding But I think I know from our experience personally that it's OK. People want to genuinely help others. I mean, that's just human nature. And I think once we put our pride aside and our guard down, it helped us as parents to really do what we needed to do.   Jill Harding And it took away from the challenges of us not being 100 percent present for at the time, Grant. And then that time later, Berkeley.   Jill Harding So I think with those scenarios and in and of itself, it's just. Be compassionate. Ask for help, but if someone doesn't immediately want your help, it's OK because they've got to do it in their own way, right. Because everything is unique to that family, that circumstance, that situation.   Liesel Mertes Yeah, I talked in my trainings that it's not about you as the person who is offering help, like almost never. Is it about, like, judgment on your relationship.   Liesel Mertes It's just even stuff like is messy and so often help. And if the person says, yes, be willing to follow through and if they say no, they don't take it personally yet.   Jill Harding And exactly, because I think what we're going through right now in our world. Right. I mean, like in our situation, we never been through that. And many of our friends have never been to that. Right. So you just got to go with what your instincts. And we rely heavily on our faith because we are people of faith. But at the same token, you know, we never been through that. So, you know, maybe grace to those folks and like you said, get to meet them where they're at because at the same time, we didn't know what we needed or didn't need.   Right.   Liesel Mertes Yeah, that's another thing I say that that the let me know how I can help. Question isn't as helpful as you would think.   Liesel Mertes It would be like finding clean underwear.   Liesel Mertes But I don't know what were some of the best ways that people helped your family?   Jill Harding I think it's just the, um. Just to know that we had the support, right, just a phone call, just even if it's just listen to me cry or David cry or just listen to us in silence, if you will. I think just knowing we had people behind the scenes, I also know that I have since he's passed on. So it hurts my heart to even say this.   Jill Harding But my best buddy and Andrea, we've been best buddies since third grade. Her father wanted to help so bad he's retired. So he had the abilities and means to help them. At the same token, like he would bring us groceries, like unexpectedly. And he kept on like what we liked at Kroger and he would just randomly draw stuff off because he knew he'd done it before. So he kept he was so sweet. He kept a list of our favorite bars or snacks or what have you.   Jill Harding And we just make sure he kept us knocked up that and it's just simple because it wasn't anything like, you know, they put him out too much. It was just kind. Bars are David's favorite potato chips, what have you. Just simple things. But it's still so just like what people are thinking about us.   Jill Harding So just randomly dropping those off our   Liesel Mertes And what beautiful intention also, like, you take time and ask what you liked. And then he wanted to remember it and he didn't have to. It sounds like hassle. You do this, you just realize like these are staples they're always going to enjoy receiving. I'm just going to bring them. I love that.   Jill Harding I was really cool. And and I think that.   Jill Harding Just the the window time we call it window time, where I would actually sit on his window and look out and play with folks, I think just being mindful, even though people have to be guarded in those scenarios that we were in and have to be more inside in their own space and not exposed to other germs outside of their home, just putting that like being creative, I think how we communicated and still played, but yet did it through a different means.   Liesel Mertes Well, I'm thinking about I mean, there's support of you, right, as the parent. There's also the support of your child who has had their world turned upside down. And I imagine it felt meaningful to receive support.   Jill Harding Well and the cool thing about the window, time was allowed to play, like with his his papi. We call David's dad Papi, with his papi outside the window while Grant was inside the window, but allowed David to kick our feet up for a minute and let that Grant was entertained and happy. And we did that for a little while, too, when she came home because she was still her ability to fight off. Infection was still pretty low at some point, too.   Jill Harding So we did the same thing with her as well. But I think just showing folks that you're you've got that support system, whether you tap into it. Again, like you said, you get to meet those individuals where they're at and let them. Like you said, I don't know what I need right now, I just need right. I just need like I don't have one iota of extra creative energy right now.   Liesel Mertes OK, so on the other side, was there anything you don't have to name names, but was there anything that you were on the receiving end of that you would say this is this is just not helpful? Don't do these things.   Jill Harding I think so, yes. The constant like. What's around I'm looking for the constant sharing of, like, knickknack little things like that, either we can only have so much in the hospital and I say this because people just don't know, like birthday was on the transplant floor.   Jill Harding So she couldn't have anything in life. So people would try to send her flowers. Well, she never got to enjoy those because she wasn't able to have those in her room because the thing was soil on it, for instance, anything like breathing, she can I could plants. You can actually have those in her room. So. Yeah, and people didn't know that.   Jill Harding But I think I almost wonder if sometimes that that's the staff at the hospital too.   Jill Harding But I think it's just maybe doing a little bit of homework before you do that kind gesture, because I hated that for the individuals that sent her stuff like that because. You know, that they spent now. Now, great, we said make sure it gets to a nurse's station or it gets to someplace where someone can enjoy it but still going to enjoy it.   Jill Harding And then she saw it from the window and she's like, oh, good. Then we had to talk her off a cliff for a little bit because she thought that she could have was in her room. Right. And I think just if someone says, I don't know what I need right now, don't cry, because they will come and you'll know, but don't force it. Let it be.   Liesel Mertes Yeah, that's a great point.   Liesel Mertes Jill, is there anything that you would like to add that I didn't ask you in our time together?   Jill Harding Um, yeah, I think so.   Jill Harding I think just when we go throughout our days, just know regardless big or small or whatever it is, we all have a story and we just got to be mindful we're all human. Right. And there's no like rulebook on how to be the best human ever. Technically speaking. Right.   Jill Harding So just have compassion for other people and just be realistic in that everyone's got a story. Everyone's weathering something, whether it's big or small, and just realize that, you know, words do hurt more than people realize.   Jill Harding And I think also, too, like back to my kiddos specifically both Grant and Berkeley, they've been Tindley because she's been through all this with us as well. With regards to Berkeley, just let those moments happen. Do the best you can to weather through those moments that make sure you come out on the other end as strong as you can by what you've learned through that moment. And what I mean by that is like   Jill Harding Grant and Berkeley both, like I think that they have learned some things and their characters have been shaped in ways that I feel like would have been really tough for David and I to have instilled in them if they didn't go through the experiences they went through.   Jill Harding Right now, both of them have scars from their great how to put a catheter in Berkeley, had some catheters in her jugular area. So they both have scars. And I tell them all the time and they tell me now to because I've told them so many times. But those are like, that's part of you and that's OK. That's what makes you grant unique. That's what makes you unique. Like everybody else as well. We all have something that's unique to us, kind of like a snowflake in that regard dry.   Jill Harding We're all unique in our own way and don't be ashamed of that. In fact, be proud of that, because those scars have shown that you're still here with us today.   MUSICAL TRANSITION   Here are three key takeaways from my conversation with Jill… There are many restrictions for an individual living with cancer.Hearing all of the challenges with just eating (the concerns about leftovers, the need to clean food etc) gave me a deeper appreciation of how tenuous life and infection can be.  With that in mind, learning a little more before giving gifts (like flowers) is important. Consider what creative engagement with a child who is immuno-compromised (or battling COVID) looks like.I loved the story of play dates through a window with walkie talkies (plus there was the added benefit of giving parents a chance to rest). Remember that “Tell me how I can help” oftentimes is an unhelpful question to people who are already living through something hard.Many times, people don’t know in the moment what they need and they might feel tentative following up with a request afterwards.  Instead, know what you can offer (perhaps a grocery drop-off, a Door Dash certificate, or doing some yard work) and extend a specific offer of help.   OUTRO

The Messy Mom Podcast
How to Spot Signs of Anxiety & Depression in Your Child- With Dr. Hillary Blake.

The Messy Mom Podcast

Play Episode Listen Later Feb 8, 2021 24:22


Cari and Bailey sit with Dr. Hillary Blake, a child and adolescent psychologist at Riley Hospital for Children in Indianapolis to discuss how to spot signs of anxiety and depression in your child. Dr. Blake works with a variety of diagnoses, but specializes in children in adolescents with medical problems and psychiatric diagnoses. She is also the Associate Clinical Director of the Consultation Liaison service at Riley Hospital and recently started a Conversion Clinic also seeing patients in the ADHD and Disruptive Behavior Disorder clinic. * This information is meant for educational and informational purposes only. You should not use this information to diagnose or treat any health problems without consulting your personal medical practitioner. Always seek the advice of your own medical practitioner about your specific health concerns and needs.

Musical Health
# 24 Chat with a Chaplain

Musical Health

Play Episode Listen Later Jan 25, 2021 52:17


Join me in this episode as we explore all things spiritual, chaplaincy and of course music! Featuring special guest Maggie La Rocque, M.Div Maggie is a staff chaplain at Riley Hospital for Children at Indiana University Health. --- Support this podcast: https://anchor.fm/caitlin-krater/support

All IN D.O.
Jenny Belsky, D.O., M.S.

All IN D.O.

Play Episode Listen Later Jan 12, 2021 12:56


Dr. Jenny Belsky is a Hematologist-Oncologist and Assistant Professor of Pediatrics and Lead of the Pediatric Lymphoma Team at Riley Hospital for Children. Her research is currently focused on supportive care clinical trials, with particular attention to chemotherapy induced side effects including neurotoxicity, constipation, and nausea/vomiting. She shares about her personal experience using OMT in Hem/Onco. Follow the All IN DO podcast on Twitter @indianaosteo

The Indirect Vision Podcast
#34 Dr. Carly Boudreaux - Pediatric Residency: An Insider's View

The Indirect Vision Podcast

Play Episode Listen Later Oct 21, 2020 33:45


Dr. Carly Boudreaux graduated from Midwestern University Arizona in 2019 and is in a pediatric dentistry residency at Riley Hospital for Children through Indiana University. She is interested in patient / parent education, SDF, and pulp therapies and in her spare time enjoys cooking, tending to her balcony garden, and walking around downtown.

Going Terribly
Ep. 5: Three Safe Words in a Bed of Nails Sandwich

Going Terribly

Play Episode Listen Later Oct 20, 2020 79:14


The dastardly duo contemplate getting matching tattoos after a series of unfortunate events: Doug regrets investing in artisanal beads; Alice pines after an unattainable hurdy-gurdist in Winnipeg; they welcome Josh Weiland to the poo’dcast but somehow don’t make any 3-way jokes. There’s also legit information about the Extra Life gaming fundraiser to benefit Riley Hospital for Children. How about a tattoo commemorating 25 hours of non-stop gaming together. They’ll definitely...not want to remember that. Other discussion topics may include: - Pumpkin Addiction: The Unspoken Pandemic - A thorough examination of Deep V's - Places to find beef, including perceptive listeners - The apparently difficult art of sandwich making - Anne and Lisa: A Tale of Two Franks

Love Code
Love Code - A Physician's Story of Addiction, Depression, Hope and Recovery with Dr. Adam Hill

Love Code

Play Episode Listen Later Oct 5, 2020 55:15


A Physician's Story of Addiction, Depression, Hope and Recovery with Dr. Adam Hill   Dr. Adam B. Hill is a palliative care physician at Riley Hospital for Children. Dr. Hill is a proud Hoosier, a Butler Bulldog and an IUSM graduate. He completed his pediatric residency training at St. Louis University, a fellowship in pediatric hematology/oncology at Duke University and a palliative medicine fellowship at IUSM. His work in palliative care is focused on allowing patients to live the best quality of life possible, in the midst of chronic, life-limiting and/or life threatening medical conditions. In addition to palliative care, Dr. Hill is passionate about physician wellness/self-care, physician education, and international medical work. His international work has allowed him to work in Belize, Mexico, Kenya, Tanzania and Australia over the past several years. In addition, as part of his work in palliative care, he serves as the medical director for a week long summer camp for children affected by childhood cancer.  Dr. Hill is passionate about physician wellness and self-care in the context of changing the culture of medicine surrounding mental health conditions and addiction. In 2017, Dr. Hill published a groundbreaking New England Journal of Medicine articled titled “Breaking the Stigma: A Physician’s Perspective on Self- Care and Recovery”. In this article and his lectures, Dr. Hill shares his own story of personal recovery from depression and substance use. As a result, Dr. Hill has become a national recognized lecturer on the topic, including an upcoming book publication with Central Recovery Press entitled “Long Walk Out of the Woods: Lessons from a Physician’s Addiction Recovery”.   www.adambhillMD.com   

Vital Discussions
Episode 12 - Dr. Adam Hill

Vital Discussions

Play Episode Listen Later Aug 25, 2020 30:08


Dr. Adam Hill is a palliative care physician at Riley Hospital for Children in Indianapolis, Indiana. He can be found on Twitter @adamhill1212. I highly recommend his book "Long Walk Out of the Woods."

The IBJ Podcast
The latest wisdom on kids and COVID-19 from a Riley Hospital specialist

The IBJ Podcast

Play Episode Listen Later Aug 24, 2020 32:56


Six months into the pandemic, parents are still struggling with what COVID-19 means for the kids. Should they be in school? Can they go on play dates? Can they hug grandma? Of course, in many cases, there are no black and white answers to those questions. But host Mason King gets some educated opinions from Dr. James Wood, a pediatrician at Riley Children's Health and an expert in pediatric infectious diseases. Plus, Wood explains multi system inflammatory syndrome (which he describes as "extremely rare") and theorizes why children may not be as affected by COVID-19 as adults. The IBJ Podcast is brought to you by the law firm Krieg DeVault.  

Raise the Line
"It Was the Fifth Colleague I'd Lost to Suicide" - Dr. Adam B. Hill, Riley Hospital for Children

Raise the Line

Play Episode Listen Later Aug 18, 2020 18:07


It was when he lost yet another colleague to suicide in his young career that Dr. Adam Hill decided he had to speak up. Hill - who was then successfully in recovery from an alcohol addiction - had come close to suicide himself, but due to the shame imposed by the medical profession on providers who struggle with mental health and substance abuse issues, he had not yet shared his story. His subsequent book "Long Walk Out of the Woods" details his journey, and he now takes every opportunity to share his lessons of recovery and hope. A free webinar on September 17 sponsored by Coverys and Med-IQ will feature Dr. Hill offering examples of how people can be proactive about their own mental health and also challenge the status quo to open doors for other people. As he tells host Rishi Desai int this heartfelt conversation, the medical community needs to stop the shaming and "carve out spaces for compassion, empathy and understanding." (See webinar registration information in the transcript below.)

PsychU Community Podcast
Meeting The Treatment Team Transitioning From Primary Care To Psychiatry

PsychU Community Podcast

Play Episode Listen Later Aug 17, 2020 24:20


When primary care providers recommend mental health treatment, patients can feel apprehensive and flustered. Health care providers are asked questions such as, “What is the difference between a psychologist and a psychiatrist?” Marla Moses and Dr. Sloan Manning discuss their approaches for when it is time to transition from primary care to psychiatry. Marla Moses, FNP, PMHNP owns a private practice, IN Moses Mental Health in Indianapolis, Indiana, which is focused on mental health across the lifespan. She has previously practiced at Riley Hospital for Children and Lafayette-Arnett Indiana University Hospital. Sloan Manning, MD serves as the Medical Director at Novant Health Urgent Care & Occupational Medicine in Greensboro/Winston-Salem, North Carolina. He also serves as an Adjunct Associate Professor at the University of North Carolina School of Medicine and as the Co-Director of the Mood Disorder Clinic at Moses Cone’s Family Medicine Residency Program, in Greensboro, North Carolina. His areas of clinical interest include integrated mental health systems and physician education in primary care psychiatry. Roland Larkin, PhD, NP, is a Medical Science Liaison for Otsuka Pharmaceutical Development & Commercialization, Inc. Dr. Larkin received his PhD from Columbia University. Speakers are paid consultants of Otsuka Pharmaceutical Development & Commercialization, Inc. Roland Larkin, PhD, NP is a paid employee of Otsuka Pharmaceutical Development & Commercialization, Inc. MRC2.CORP.X.04262 / MRC2.CORP.X.04263

Musical Health
#16 From Then to Now: Building a Pediatric Music Therapy Program and Celebrating 20 years of Growth

Musical Health

Play Episode Listen Later Aug 14, 2020 50:03


Ann Hannan, MT-BC, is a board certified music therapist and developed the first music therapy clinical program at Riley Hospital for Children at IU Health beginning in 2000. She has been the director of the Riley Cheer Guild and Music Therapy Programs since February 2016. With over 20 years of pediatric music therapy clinical expertise, Ann specialized in neonatal and infant intervention. She has presented at local, state, regional, and national conferences on topics such as infant development and bonding, family-centered care practices, professional collaboration, clinical service triage methods, music therapy program development, music therapy advocacy, medical ethics, and professional self-care. Ann supervises the pediatric music therapy clinicians at Riley Hospital for Children in Indianapolis, Indiana and serves on various hospital-based committees with a special focus on enhancing the hospital experience for patients, their families, and the staff who care for them. She completed her medical ethics fellowship in 2015 with the Fairbanks Center for Medical Ethics. Ann currently serves as an at-large member on the state board for the Spina Bifida Association of Indiana and as a national advisory board member for the Ukulele Kids Club organization. Follow this link for more information on the Riley Cheer Guild and Riley Music Therapy : https://rileycheerguild.org/ --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/caitlin-krater/support

On The Down Lola
Diversity & Inclusion: Black Lives Matter

On The Down Lola

Play Episode Listen Later Jul 26, 2020 77:26


This is a big topic, and as such it makes for a longer episode. We apologize for the delay in getting it out to you and hope that you will find a lot of discussion worthy information. On The Down Lola was so excited to welcome into the studio John Mcfly, Cornelius Hocker, and Joe Lewis to break down the Black Lives Matter movement and what exactly we are fighting for. John Mcfly Is not only the partner of Lola’s good Judy Thom Foolery, he is also a brilliant, funny, and wonderful friend. He is currently finishing his studies at Ball State University in social work and psychology. He serves with the U.S. armed forces and currently works as a Mental Health Technician for Riley Hospital. John has built his life around caring for others and is a vocal advocate for the rights of people of color and the LGBTQQIP2SAA communities. He is also a big fan of Lola’s. Cornelius Hocker Is an Indianapolis based journalist who met Lola while working on a story about a favorite Indy hotspot. He is a strong advocate for black queer and trans individuals. His travels in his work as a journalist give him a well rounded perspective on many topics. Try not to be surprised if he shows up on the podcast again. Joe Lewis (Jo MaMa) is a Chicago, IL based Drag entertainer and activist. Joe was the creator of the Drag March for Change that happened in Chicago on June 14, 2020. Other than being Lola’s MCM, Joe has worked hard to connect and network with the Chicago queens of color to spread the word of inequality, and inequity of both the black queer community and the black trans community. Terms To Know Black Lives Matter – initially as a social media response to events such as George Zimmerman’s acquittal in the shooting death of Trayvon Martin. Growth – Quickly left the internet and became a “real world” movement. Intersectionality – Kimberlé Williams Crenshaw in 1989 To describe that as humans, we are each more than one thing. For example: a black man experiences oppression for being black, but a gay black trans woman experiences a multi-layered oppression stemming from her gayness, her blackness, and her femininity. Identity politics is a political process that brings people together based on a shared aspect of their identity. History of Black Oppression (Outside of Law Enforcement) Center for American Progress Wealth Gap In 2007, immediately before the Great Recession, wealth among people of color was 14% that of whites. Currently African Americans on average own a disproportionate, 1/10 of the wealth of white Americans. Poverty has many natural consequences (Other than being poor). People of color are more likely to experience negative income shocks but are less likely to have access to emergency savings. As a consequence, they are more likely to fall behind on their bills and go into debt during times of emergency The wealth gap persists regardless of households’ education, marital status, age, or income. For instance, the median wealth for black households with a college degree equaled about 70 percent of the median wealth for white households without a college degree. Black households have more costly debt. In 2016, blacks with debt typically owed $35,560—less than 40 percent of the $93,000 in debt owed by whites. However, because blacks owed larger amounts of high-interest debt—such as installment credit and student and car loans—the debt they typically owed was more expensive.   Education (Brookings Institute) Americans often forget that as late as the 1960s most African-American, Latino, and Native American students were educated in wholly segregated schools funded at rates many times lower than those serving whites and were excluded from many higher education institutions entirely. The end of legal segregation followed by efforts to equalize spending since 1970 has made a substantial difference for student achievement. On every major national test, including the National Assessment of Educational Progress, the gap in minority and white students’ test scores narrowed substantially between 1970 and 1990, especially for elementary school students. Jonathan Kozol s 1991 Savage Inequalities described the striking differences between public schools serving students of color in urban settings and their suburban counterparts, which typically spend twice as much per student for populations with many fewer special needs. Contrast MacKenzie High School in Detroit, where word processing courses are taught without word processors because the school cannot afford them, or East St. Louis Senior High School, whose biology lab has no laboratory tables or usable dissecting kits, with nearby suburban schools where children enjoy a computer hookup to Dow Jones to study stock transactions and science laboratories that rival those in some industries. Or contrast Paterson, New Jersey, which could not afford the qualified teachers needed to offer foreign language courses to most high school students, with Princeton, where foreign languages begin in elementary school. Even within urban school districts, schools with high concentrations of low-income and minority students receive fewer instructional resources than others. Housing the federal government established several programs in the 20th century that were designed to promote homeownership and provide a pathway to the middle class.37 However, these programs largely benefited white households while excluding Black families. In 1933 and 1934, in the midst of the Great Depression, President Franklin Delano Roosevelt signed the Homeowners’ Loan Act and the National Housing Act into law to prevent foreclosures and make rental housing and homeownership more affordable. To carry out these missions, the newly minted Homeowners Loan Corporation (HOLC) created maps to assess the risk of mortgage refinancing and set new standards for federal underwriting. The Federal Housing Administration (FHA) used these maps to determine the areas in which it would guarantee mortgages. But HOLC maps assessed risk in part based on a neighborhood’s racial composition, designating predominantly nonwhite neighborhoods as hazardous, and coloring these areas red. This process, known as redlining, denied people of color—especially Black people—access to mortgage refinancing and federal underwriting opportunities while perpetuating the notion that residents of color were financially risky and a threat to local property values. As a result, just 2 percent of the $120 billion in FHA loans distributed between 1934 and 1962 were given to nonwhite families Today, approximately 3 in 4 neighborhoods—74 percent—that the HOLC deemed “hazardous” in the 1930s remain low to moderate income, and more than 60 percent are predominantly nonwhite In 1944, President Roosevelt signed into law the Servicemen’s Readjustment Act—commonly referred to as the GI Bill—which provided a range of benefits, such as guaranteed mortgages, to veterans of World War II. However, according to historian Ira Katznelson, “the law was deliberately designed to accommodate Jim Crow.” For instance, the GI Bill allowed local banks to discriminate against Black veterans and deny them home loans even though the federal government would guarantee their mortgages. Employment Both the Economic Policy Institute (EPI) and the Federal Reserve Bank of San Francisco reports suggest that the unobserved or unexplained factors that play a role in the black-white income and employment gap include: employment discrimination, weak enforcement of anti-discrimination laws, or racial differences in unobserved skill levels as opposed to measurable factors such as educational attainment or work experience. It is likely that disparities in employment may actually be underestimated because they do not account for the large number of blacks who have been negatively impacted by a criminal justice system that has aggressively and persistently targeted communities of color Police Brutality of People of Color US National Library of Medicine/National Institute of Health US White (non-Hispanic) Population (60.4%) Fatal interaction with LE (52%) US Black Population (13.4%) Fatal interaction with LE (32%) with a fatality rate 2.8 times higher among blacks than whites. Most victims were reported to be armed (83%) black victims were more likely to be unarmed (14.8%) than white (9.4%) Hispanic (5.8%) Four case subtypes were examined based on themes that emerged in incident narratives: 22% of cases were mental health related 18% were suspected “suicide by cop” incidents, with white victims more likely than black or Hispanic victims to die in these circumstances 14% involved intimate partner violence 6% were unintentional deaths due to LE action. Another 53% of cases were unclassified and did not fall into a coded subtype.   White (Non-Hispanic) Black Hispanic/Latinx Native American Asian Population 328.2 million (2019) 186,482,305 41,371,902 56,500,433 4,013,692 18,215,987 LE Death (etimated 7,663 total: 2013-2019 3,378 1,944 1335 112 118 Population information estimates from US Census Bureau LE related fatalities info from https://mappingpoliceviolence.org/  Resources FBI: Use of force database – https://www.fbi.gov/services/cjis/ucr/use-of-force Proceedings of the National Academy of Science of the USA – https://www.pnas.org/content/116/34/16793 US National Library of Medicine National Institute of Health – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6080222/ United States Census Bureau – https://www.census.gov/quickfacts/fact/table/US/PST045219 https://mappingpoliceviolence.org/ Center for American Progress – https://www.americanprogress.org/issues/race/reports/2018/02/21/447051/systematic-inequality/ https://www.americanprogress.org/issues/race/reports/2019/08/07/472617/systemic-inequality-displacement-exclusion-segregation/ Brookings Institute – https://www.brookings.edu/articles/unequal-opportunity-race-and-education/ Sharing is caring

Healthcare Triage Podcast
COVID-19 and Immune Symptoms in Kids

Healthcare Triage Podcast

Play Episode Listen Later Jun 4, 2020 28:37


Aaron Carroll talks with Dr. Jim Wood about his research as a physician scientist at Indiana University School of Medicine and pediatric infectious disease doctor at Riley Hospital for Children. You'll learn more about COVID-19 and some of the immune syndromes we've seen in children who seem to have had COVID-19. We'll also hear about lessons learned so far through the pandemic, as well as what we may be able to expect for the next few weeks, months and even years, as treatments and vaccines for COVID-19 are developed and optimized. The Healthcare Triage podcast is sponsored by Indiana University School of Medicine whose mission is to advance health in the state of Indiana and beyond by promoting innovation and excellence in education, research and patient care. IU School of Medicine is leading Indiana University's first grand challenge, the Precision Health Initiative, with bold goals to cure multiple myeloma, triple negative breast cancer and childhood sarcoma and prevent type 2 diabetes and Alzheimer’s disease.    

The Illuminate Podcast
Episode 38: Dr. Adam B. Hill – Mental Health; and Honest and Hopeful Conversation

The Illuminate Podcast

Play Episode Listen Later May 13, 2020


Today's guest is Dr. Adam B. Hill! “Dr. Adam B. Hill is a human being, a husband, a blessed father of two young children, an avid Butler University Bulldog, a native Indiana son, and a pediatric palliative care physician at Indiana University's Riley Hospital for Children in Indianapolis, IN. Dr. Hill openly shares his own ... more »

IU Health Physicians Stories
Running for Riley

IU Health Physicians Stories

Play Episode Listen Later Apr 22, 2020 3:34


After their son’s lifesaving emergency surgery, a family from northwest Indiana finds a way to step up to support Riley Hospital for Children at IU Health,

Peds in a Pod: A Pediatric Board Review
E16S4: Pediatric Trauma

Peds in a Pod: A Pediatric Board Review

Play Episode Listen Later Apr 16, 2020 23:02


Join David as he discusses the basics of pediatric trauma with Dr. Landman, pediatric trauma surgeon at Riley Hospital for Children.

AMIA: Why Informatics? Podcasts
Women in AMIA: Episode 11- Burnout and Technology

AMIA: Why Informatics? Podcasts

Play Episode Listen Later Mar 27, 2020 37:16


Host: Wendy Marie Ingram, PhD, is a Psychiatric Epidemiology Postdoctoral Fellow at Johns Hopkins School of Public Health. Guest Interview: Dr. Emily Webber, MD, FAAP, FAMIA, is the chief medical information officer at Riley Children’s Health and Associate CMIO for Indiana University (IU) Health. She is a pediatric hospitalist at Riley Hospital for Children and also is focused on the optimization of health IT, applications to improve quality care and patient safety and promoting the health of Indiana children and communities.

Love Code
Love Code - A Physician's Story of Addiction, Depression, Hope and Recovery with Dr. Adam Hill

Love Code

Play Episode Listen Later Feb 29, 2020 54:15


A Physician's Story of Addiction, Depression, Hope and Recovery with Dr. Adam Hill   Dr. Adam B. Hill is a palliative care physician at Riley Hospital for Children. Dr. Hill is a proud Hoosier, a Butler Bulldog and an IUSM graduate. He completed his pediatric residency training at St. Louis University, a fellowship in pediatric hematology/oncology at Duke University and a palliative medicine fellowship at IUSM. His work in palliative care is focused on allowing patients to live the best quality of life possible, in the midst of chronic, life-limiting and/or life threatening medical conditions. In addition to palliative care, Dr. Hill is passionate about physician wellness/self-care, physician education, and international medical work. His international work has allowed him to work in Belize, Mexico, Kenya, Tanzania and Australia over the past several years. In addition, as part of his work in palliative care, he serves as the medical director for a week long summer camp for children affected by childhood cancer.  Dr. Hill is passionate about physician wellness and self-care in the context of changing the culture of medicine surrounding mental health conditions and addiction. In 2017, Dr. Hill published a groundbreaking New England Journal of Medicine articled titled “Breaking the Stigma: A Physician’s Perspective on Self- Care and Recovery”. In this article and his lectures, Dr. Hill shares his own story of personal recovery from depression and substance use. As a result, Dr. Hill has become a national recognized lecturer on the topic, including an upcoming book publication with Central Recovery Press entitled “Long Walk Out of the Woods: Lessons from a Physician’s Addiction Recovery”.   www.adambhillMD.com     

Back To Back
Cody Zeller's Kicks for Kids, Ben Simmons Injury + 76ers Woes, Bradley Beal Future + Wall's Return

Back To Back

Play Episode Listen Later Feb 25, 2020 68:21


The Baketball Buds: Charlotte Hornets big-man Cody Zeller drops in to talk about his project with Riley Hospital for Children wearing sneakers designed by pediatric patients. A great cause. Also D-Wade's retirement ceremony. Then Rich Hoffman on Ben Simmons' back injury and the 76ers' fading hopes. Finally Fred Katz on red-hot Bradley Beal, whether he stays in DC and the likelihood John Wall returns this season. https://twitter.com/RileyKids/status/1232120488090095616?s=20

IU Health Physicians Stories
Riley Anesthesia fitness challenge

IU Health Physicians Stories

Play Episode Listen Later Nov 11, 2019 2:27


A fitness center has been installed at the offices of Riley Anesthesia at Riley Hospital for Children at IU Health. It is part of the IU Department of Anesthesia’s program to reduce burnout and improve spiritual and physical well-being among its caregivers. A fitness challenge is helping participants feel happier and healthier.

Mobility Athletes Radio
The Road to Mastery as a Pro Athlete

Mobility Athletes Radio

Play Episode Listen Later Oct 9, 2019 59:48


This week on Mobility Athletes Radio, I had the pleasure of speaking with Rachel Janitz. Rachel is a professional dancer in the NFL for the Indianapolis Colts. Her dancing career started at an early age but after a few years of missing performing while in college, Rachel auditioned for Colts Cheer and now is in her third season with the team. On top of being a professional athlete, Rachel began her clinical career in the pediatrics operating room at Riley Hospital. Today, she is a Medical Device Sales Representative for Stryker Spine where she serves as a clinical expert in the surgery setting to orthopedic and neurosurgeons as they perform complex spinal solutions. Rachel discusses the level of fitness, the dance skills, communication abilities, and more that it takes to have a role within the NFL. Just like many professional athletes, Rachel’s experience is not without challenge and injury. Early in her second season, an accident during a 13+ mile Spartan Race left her with a severely dislocated ankle, ruptured syndesmotic joint, broken fibula, talus, and ruptured tendons and ligaments. Through the adversity of injury and a year-long recovery, Rachel found a bigger picture and still had a winning season even on the sidelines at Lucas Oil Stadium. Tune in whether you are professional cheer/dance hopeful or simply an athlete in any sport. Rachel’s advice on mindset and recovery can improve any goal or fitness avenue. Did you enjoy this episode? Take a screenshot to post in your IG stories and tag us! @mobilityathletes Join our Free Facebook Group here! Connect with Nicole: Mobility Physical Therapy Website Instagram Facebook Connect with Rachel: Instagram Twitter Indianapolis Colts Cheerleaders Cheerleader of the Week Support NubAbility Athletics: https://nubability.org https://donatenow.networkforgood.org/NubAbilityAthletics?code=WEBSITE%20Button

Lifting The Fog
The Brains Behind the Tumors

Lifting The Fog

Play Episode Listen Later Oct 8, 2019 69:32


Director of the Riley Hospital for Children Neuro Oncology program and namer of pod casts, Dr. Scott Coven dives deep with what it means to be a neuro oncologist and talks all things Brian tumors. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

IU Health Physicians Stories
Reducing burnout in the Electronic Medical Record (EMR)

IU Health Physicians Stories

Play Episode Listen Later Aug 7, 2019 1:15


Emily Webber, MD, pediatric hospitalist and chief medical information officer at Riley Hospital for Children at IU Health, is part of IU Health’s Informatics Leadership Team and discusses what the team is doing to reduce burnout in the EMR.

The Get Healthy 360 Podcast
Episode 55 - Adam B. Hill, MD - Caregiver Mental Health, Addiction, and Recovery

The Get Healthy 360 Podcast

Play Episode Listen Later May 2, 2019 43:43


When doctors struggle with mental health, stress, and suicidal thoughts, who they turn to? Adam Hill, MD, shares his deeply personal story of mental health challenges, addiction, and recovery. Dr. Hill reminds us that we are human, and we all need help from time to time. Dr. Adam B. Hill is the division chief of pediatric palliative care at Riley Hospital for Children. Dr. Hill is graduate of Butler University for his undergraduate work and Indiana University School of Medicine (IUSOM). He completed his pediatric residency training at St. Louis University, a fellowship in pediatric hematology/oncology at Duke University and a palliative medicine fellowship at Indiana University. His work in palliative care is focused on allowing patients to live the best quality of life possible, in the midst of chronic, life-limiting and/or life threatening medical conditions. In addition, he works with colleagues on debriefing clinical work to decrease caregiver distress by finding meaning and purpose in the work and is the founder/director of Compassion Rounds at Riley Hospital for Children, a town hall humanities based forum to process human emotions in healthcare. Dr. Hill has a passion for international medical work, with opportunities to work in Kenya, Belize, Mexico and Tanzania over the past decade. Dr. Hill also serves as the medical director for Camp Little Red door, a week long, full immersion summer camp for children/siblings living with cancer. Finally, Dr. Hill is passionate about physician wellness and self-care in the context of changing the culture of medicine surrounding mental health conditions and addiction. In 2017, Dr. Hill published a groundbreaking New England Journal of Medicine articled titled “Breaking the Stigma: A Physician's Perspective on Self- Care and Recovery”. In this article and his lectures, Dr. Hill shares his own story of personal recovery from depression and substance use. As a result, Dr. Hill has become a national recognized lecturer on the topic, including an upcoming book publication with Central Recovery Press entitled “Long Walk Out of the Woods: Lessons from a Physician's Addiction Recovery”, to be published in February 2020. For more information, consider following Dr. Hill at the links below: Twitter handle: @AdamHill1212 Website: www.adambhillmd.com

Indiana Education Insight
EP: 26 Mrs. Susan Miles, Officer of the Riley Hospital Kids Caring and Sharing Program

Indiana Education Insight

Play Episode Listen Later May 22, 2018 22:24


Today's guest is, Mrs. Susan Miles, officer of the Riley Hospital Kids caring and sharing program.She has made several presentations, as well as well as numerous public speaking engagements, so she has been instrumental in shaping the conversations about Indiana public schools. And have the ability to look at education from various lens which is very important. Of course she has been a tremendous asset to public education in Indiana, lets find out how she views the issues in Indiana Public Schools.

No Limits
Art Therapy Programs

No Limits

Play Episode Listen Later May 1, 2018 54:02


This episode of No Limits explores a number of art therapy programs in the central Indiana area and the impact of having these types of programs in different health care settings. Joining the show as guests: Nanette George, Activity Therapist, Eskenazi Health Midtown Community Mental Health, Cassie Dobbs, one of the two art therapists at Riley Hospital for Children at IU Health and Amy Granger, graduate research assistant in Herron's Art Therapy program.

An Indianapolis Business Podcast: Off the Circle
Episode 15: How and Why To Create a Culture of Good In Your Business

An Indianapolis Business Podcast: Off the Circle

Play Episode Listen Later Nov 20, 2017 64:49


What began as a movement at TCC, with 3,000 employees and 800 wireless retail locations across the United States, to do good by including employees and customers has grown into its own company to teach others to build their own Culture of Good. Four years and millions of donated items, volunteer hours and dollars later, TCC employees are bringing their souls to work every single day. They make an impact beyond the four walls of their stores. They do more than serve their customers. They want to serve the communities in which TCC conducts business. Under Ryan’s guidance through TCC’s Culture of Good, which enables others to do good in their communities for the value of the investment rather than the return on investment, TCC donated $1 million to Riley Hospital for Children; provided 250,000 backpacks full of school supplies to children; gave away supply packs to 5,000 teachers; and contributed $100,000 in grants to organizations focused on improving the environment. Now Ryan wants to help other organizations engage the hearts of their employees and customers to be passionate about making the changes they wish to see in the world. Ryan created Culture of Good, Inc. to inspire other businesses to create truly altruistic programs that make the world a better place. Tune in to today's interview with Ryan and found out how your business can impact your employees and their communities in remarkable ways. Special Guest: Ryan McCarty.

Pacers Podcast
Ep. 43: Glenn Robinson III on Brody Stephens

Pacers Podcast

Play Episode Listen Later Dec 20, 2016 8:37


Brody Stephens, diagnosed in 2010 with acute myeloid leukemia, is a fighter. The New Palestine native is just eight years old but he’s had to battle like no kid should ever have. While at Riley Hospital for Children at IU Health, Brody was visited by Andrew Luck and Jack Doyle of the Colts, Steph Curry and coach...

Evansville Podcast
DeAndre Wilson

Evansville Podcast

Play Episode Listen Later Dec 5, 2016 26:30


Student, Dreamer, and Doer: DeAndre Wilson talks with me about attending Ivy Tech, Evansville's food truck culture, stopping Evansville's brain drain, Evansville being an untapped goldmine, hospitality, kitchen prep tips, traveling with a purpose, what Evansville is missing, hidden gems, Kanye West concerts, millennials getting a bad rap, marketing for the masses, and how we can help. http://evansvillepodcast.com/deandre-wilson/ Sponsored by: Saint Peter's Highland UCC will be hosting its fifth annual 24 Hour Extra Life Board Gaming Marathon as a benefit for Riley Hospital for Children across the weekend of October 21st through October 23rd.  Details can be found on St Peter's board game marathon's Extra Life page at http://www.extra-life.org/team/stpetersgamenight

Lean Blog Interviews
Bernita Biekmann on Lean Design for Hospitals

Lean Blog Interviews

Play Episode Listen Later Oct 12, 2016 39:36


Joining me for Episode #265 of the podcast is Bernita Beikmann, AIA, EDAC, LSSBB, a Principal and Director of Lean Strategy at HKS, an international architecture firm. Bernita is originally from Kansas and has a Bachelor of Architecture from Kansas State University and a Certificate in Regional and Community Planning. She moved to Dallas in 1996 and has been employed by HKS, Inc in Dallas since that time. We first crossed paths when we had the opportunity to work together on a project for Riley Hospital for Children in Indianapolis to work with staff and leaders on designing parts of a new patient tower. You can read a bit about that work here. I hope you enjoy our conversation.

Evansville Podcast
Silent Movie Night - Robert Nicholls

Evansville Podcast

Play Episode Listen Later Oct 3, 2016 33:03


First Presbyterian's Director of Music Robert Nicholls joins me to discuss the upcoming event where he will provide live pipe organ accompaniment to classic silent films: The Golem on Friday (Oct 14) and Nosferatu on Saturday (Oct 15). Admission is free but donations will be collected to support the Choir School of First Presbyterian Church. First Presbyterian is located at 609 SE 2nd St, Evansville, Indiana 47713.  The Golem Nosferatu First Presbyterian Church Take 10% Off mattresses, sheets, towels & more at eLuxurySupply.com! Code EVANSVILLEPODCAST10. Valid Sitewide. Limited time offer. Shop now! Saint Peter's Highland UCC will be hosting its fifth annual 24 Hour Extra Life Board Gaming Marathon as a benefit for Riley Hospital for Children across the weekend of October 21st through October 23rd. Sponsored players and guests will be playing over sixty board games donated by board game publishers and the community for at least twenty-four total hours to raise money for Indiana's only Children's Miracle Network Hospital. This year's board game marathon will feature a silent auction with items ranging from board games to crafts to tickets to gift cards and hotel stays. It will also have the fourth annual World Series of Clabber. If you think you're good at Clabber, come prove it and play Evansville's Game for Indiana's Kids. And that's not all, we have a Boom Boom Balloon Tournament, a Wits and Wagers game show dinner, and much much more. Donate to Riley or join the team as a sponsored player or just stop by over the weekend and play some games to help heal sick and injured kids. Details can be found on St Peter's board game marathon's Extra Life page at http://www.extra-life.org/team/stpetersgamenight

Guitars & Granola Bars
Episode 31 // Lauren Servos

Guitars & Granola Bars

Play Episode Listen Later Aug 20, 2015 45:33


In this episode, I'm chatting with Lauren Servos. Lauren talks about her experiences working in many different capacities at the same hospital, shares her beautiful natural birth story, and how she overcame the emotional challenges of working with medically compromised children after returning from maternity leave. Lauren has been a board-certified music therapist since 2009, and currently works at Riley Hospital for Children in Indianapolis, where she has been working in various capacities since she completed her internship. Lauren opened her private practice, Joyful Melodies, in the spring of 2015. She is the wife of her high school sweetheart, Nathan, and the mother of their 15 month old daughter, Mary Mae. For show notes from this episode, visit www.guitarsandgranolabars.com.

Evansville Podcast
Jim Jones - Board Games

Evansville Podcast

Play Episode Listen Later Sep 15, 2014 45:15


Jim Jones has an upcoming 24 hour board game marathonon on Oct 24-26 2014. Across those three days, their team members and their Extra Life supporters will play an EPIC 24 (and more) hours of board games to raise money for, Riley Hospital for Children, Indiana's Children’s Miracle Network Hospital. He also runs the @EvansvilleHour twitter account which hosts a weekly twitter conversation about Evansville on Thursdays.    Show notes available at http://www.evansvillepodcast.com/jim-jones/ ‎

No Limits
No Limits - Childhood Obesity in Indiana - September 2, 2014

No Limits

Play Episode Listen Later Sep 2, 2014 54:00


Indiana ranks 8th nationally in percentage of overweight children. Our guests are: Jump IN for Healthy Kids CEO Ron Gifford; Jeff Sperring president & CEO of Riley Hospital for Children at Indiana University Health; and Dave Miner, the chair of the Indy Hunger Network.

No Limits
No Limits - Early Childhood Development - November 26, 2013

No Limits

Play Episode Listen Later Nov 27, 2013 53:50


Discussion of early childhood development with the President/CEO of Day Nursery Association Dr. Ted Maple and Dr. Thomas Lock from Riley Hospital for Children at IU Health.

Kids Healthcast
Episode 26: Child Safety, Parenting Tips for Toddlers, Bumbo Baby Seat Safety, Head Injuries, and Medical Trivia

Kids Healthcast

Play Episode Listen Later Jun 24, 2012 20:39


Fantastic episode this month with Dr. Kristen Dauss and Dr. Justin Fuller with a safety theme. We start with the hot topic of Bumbo seats then discuss pediatric head injuries: how to prevent them and what to do about them.  Cara Fast, MSW, joins us from the Riley Hospital for Children , discussing the many low cost products and services they have to help familes be safe at home and on the go. Dr. Dauss then shares her top five tips for parents of toddlers, and we finish with the answer to last month's medical trivia question: "What familiar piece of doctor's equipment was invented by French Physician René Laennec?" Topic -- Time at which Segment Begins Health News - Bumbo Seats -- 1:32Riley Safety Store -- 4:19Top Five Parenting Tips for Toddlers -- 7:52Head Injuries in Children -- 11:30Medical Trivia -- 17:56 Links mentioned in the show: : 1-800-222-1222 Listen Now: Kids Healthcast Episode 26 //

No Limits
No Limits - Cancer Care and Research - April 19, 2012

No Limits

Play Episode Listen Later Apr 19, 2012 52:08


A discussion of the latest in cancer care and research with Dr. Robert Goulet with Community Health Network, Dr. Terry Vik of Riley Hospital for Children, and Dr. Eric Rubenstein with Franciscan St. Francis Health Care.

Kids Healthcast
Episode 13: Cold Medicines, Advice on Feeding Infants, Getting a Child to Take Bad Tasting Medicine, Vaccines 101, and Medical Trivia

Kids Healthcast

Play Episode Listen Later Apr 26, 2011 19:05


This month's podcast is hosted by Dr. Jacob Zucker and Dr. Lauren Jones, and begins with a discussion of cold medicines, and whether they should be used in children or not.  Dr. Jones discusses common feeding questions with infants, and Dr. Zucker adds our parenting tip: getting a child to take bad tasting medicine.  We are excited to also have Riley Hospital for Children Infectious Disease Specialist Dr. John Christenson on the program this month, discussing vaccines; and we have the answer to last month's medical trivia question: What was the first vaccine? Topic -- Time at which Segment Begins Health News - Are Cold Medicines Appropriate for Children? -- 1:14Practical Advice on Feeding Infants -- 2:13Parenting Tip: Bad Tasting Medicines, Constipation  --  6:44Vaccines 101 with Infectious Disease Expert Dr. John Christenson -- 8:10Medical Trivia: What Was the First Vaccine? -- 15:01 Links Mentioned in the Show: ? Listen Now: Kids Healthcast Episode 12 //

Kids Healthcast
Episode 12: Childhood Obesity, Healthy Diet and Exercise for Kids, Obesity in the News, Preventing Childhood Obesity, and Medical Trivia

Kids Healthcast

Play Episode Listen Later Mar 21, 2011 32:13


Doctors Brian Leland, Hilary White, Anne Marie Bianculli and Tobe Mofunanya together bring us our special anniversary podcast - a themed episode covering childhood obesity.  In Health News, we cover a Healthy School Lunch program that encourages students to make healthy choices.  Parenting tips focuses on ways to prevent and combat childhood obesity.  We also review the effects of childhood obesity and we end with the answer to our medical trivia question - What illness did JFK suffer from during his presidency?     Topic -- Time at which Segment Begins Health News - Healthy Choices Lunch Program -- 1:46The Effects of Childhood Obesity -- 3:53Parenting Tip: Preventing Childhood Obesity --  10:30Nutrition and Exercise -- 14:17Medical Trivia: What illness did JFK suffer from during his presidency? -- 22:15   Links mentioned in the show: - Michelle Obama's campaign to fight childhood obesity. - Indianapolis based weight management for kids - Riley Hospital for Children's weight management for kids Listen Now: Kids Healthcast Episode 12 //