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In today's show Andy talks post-harvest data analysis with Beck's Hybrids agronomist Lee Koenigsfeld, Mark is joined by IFAA scholarship recipient Kesley Holdgrafer, and more from the last stop on our Beck's Hybrids harvest tour.
This is an AiArthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis. Join us as our co-hosts, Tiffany and Kelly, and guests, Dr. Kim and Jerik Leung, explore the important dynamic between patients and doctors in healthcare communication. Through insightful dialogue and shared experiences from both the patient and physician perspective, we uncover strategies to enhance mutual understanding, empowering patients to articulate their needs and doctors to listen attentively. Together, we champion the importance of empathy and effective communication in achieving accurate diagnoses and personalized treatment plans for those navigating AiArthritis diseases. Episode Highlights: Do patients and rheumatologists' goals and expectations during an office visit align? The significance of effective patient-doctor communication in managing AiArthritis diseases Strategies for patients to articulate their concerns and needs during office visits Techniques for doctors to actively listen and engage with patients to improve diagnostic accuracy Shared experiences and insights from both patients and doctors on navigating communication challenges How doctors can integrate social determinants of a patient's health in the clinical setting Related Episodes: RheumyRounds: PART ONE The Good, The Bad, and The Ugly - Improving Office Visit Communication: https://www.aiarthritis.org/talkshow-ep80 RheumyRounds: PART TWO The Good, The Bad, & The Ugly - Improving Office Visit Communication : https://www.aiarthritis.org/talkshow-ep81 Donate to Support the Show: https://www.aiarthritis.org/donate Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE Meet Our Host: Tiffany is the CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. Connect with Tiffany: Facebook: @tiffanyAiArthritis Twitter: @TiffWRobertson LinkedIn: @TiffanyWestrichRobertson Kelly Conway is a speech-language pathologist, author/blogger, and a patient advocate. She has been living with autoimmune arthritis since age 14 but wasn't formally diagnosed until age 32. That diagnosis has changed more than 5 times over the past 18 years. Through social media, she connected with fellow patients and cofounded the International Foundation for Autoimmune and Autoinflammatory arthritis. Kelly believes in the power of the patient voice and sharing our stories to raise awareness, education, and advocacy. Connect with Kelly: Blog: www.asmyjointsturn.com. Meet our Guests: Dr. Kim is an Assistant Professor of Medicine and of Pathology & Immunology at Washington University School of Medicine. He also founded and directs the Washington University Lupus Clinic. Dr. Kim's research group is focused on addressing the unmet needs of human systemic lupus erythematosus (SLE), including understanding and leveraging the biomarker potential of complement activation products, testing novel noninvasive imaging platforms such as photo acoustics to detect lupus nephritis, understanding the relationship between sleep quality and lupus activity, and restoring eroded social support in patients with SLE. Connect with Dr. Al Kim Instagram: @washulupusclinic Twitter : @AlHKim Jerik Leung doctoral student and Woodruff Fellow in the Behavioral, Social, and Health Education Sciences department at Emory University. His current research interests involve characterizing pathways linking structural social determinants of health with individual health outcomes in chronic disease. He is specifically interested in how structural factors shape how people living with chronic disease manage their conditions, interact with their health care providers, access care, and engage with their communities. Jerik is currently working with faculty advisor Dr. Cam Escoffery to evaluate the implementation of several epilepsy self-management programs. For his dissertation research, he intends to focus on issues relevant to people living with lupus. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!
Maria Alemu and Gregory Makabila talk about the Ifaa project's Failure Summit, and what it took to create a culture where failure spurred reflection, learning and action. Lessons from Saint Yared, a learning from failure roadmap, pre-mortem exercises, and the 5 Whys of Failure were all key tools that helped the team learn, adapt, and improve. Check out their reflections, what they would do differently, and the diverse range of tools that helped the team embrace failing forward. Ifaa is a USAID-funded RFSA project that CRS leads in Ethiopia.
This is an AiArthritis Voices 360 REWIND, where we are bringing back two short episodes that were recorded way back in 2019, because chances the topics are very important! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis. The first segment revisits an episode where Tiffany is joined by Dr. Apostolos Kontzias to explore the distinction between autoimmune and autoinflammatory diseases. In the second segment Tiffany discusses the importance of differentiating between arthritis types to improve the misunderstandings that are associated with arthritis and, in turn, will help expedite detection. Join us in this episode discussing AiArthritis's mission to improve awareness and understanding of these conditions. Episode Highlights: Innate vs adaptive immunity The difference between autoimmune and autoinflammatory diseases as well as the subcategories such as age and onset If patients do not have positive labs or biomarkers, it does not mean they do not have an autoimmune disease Listening to your patients is important because every patient is different. Importance of doctors and nurses understanding of the different types of arthritis diseases to increase early detection. Meet Our Host: Tiffany is the CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. Connect with Tiffany: Facebook: @tiffanyAiArthritis Twitter: @TiffWRobertson LinkedIn: @TiffanyWestrichRobertson Meet Our Guest: Dr. Apostolos Kontzias is the Vice Director, Center of Autoinflammatory Diseases at Stony Brook University, Renaissance School of Medicine. Dr. Kontzias is one of the national and international experts in the field of autoinflammatory diseases/periodic fever syndromes. His subspecialty interest includes seronegative spondyloarthritis and Sjögren's syndrome. Donate to Support the Show: https://www.aiarthritis.org/donate Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!
Gemeinsam mit Philipp Wolf reite ich quer durch die Lebensmittel- und Getränkewelt. Wir besprechen welche Themen uns diesen Monat geprägt haben und geben unsere Meinung dazu Preis. Es erwarten euch lange Episoden mit viel Content für lange Auto- oder Bahnfahrten. Diesen Monat erwarten euch folgende Themen: 00:01:35 Jahresrückblick Juli 22 - heute 00:17:30 Schaden Begriffe wie vegan/pflanzlich/vegetarisch dem Markt? Studie dazu. 00:21:47 IFAA will sich ab 2025 auf kultiviertes spezialisieren 00:27:30 EU plant De-Regulierung von Gentechnik 00:34:20 e-Food: Hat Click & collect eine Zukunft? 00:39:50 Sojabohnen mit Schweingeschmnack 00:41:44 Personalmangel in der Lebensmittelindustrie wird zur Wachstumsbremse 00:45:10 Rückverfolgbarkeit via Hefe (Transparenz in der Lieferkette) 00:49:20 Greenforce launched veganen Leberkäse aus eigenen Erbsen, Kritik an deren CO2 Werten 00:53:13 Umfrage zu Werbeverboten ungesunder Lebensmittel an Kinder 00:54:30 Tierhaltungskennzeichnung in Deutschland ändert sich 2024 00:57:42 Wild Food in den USA: Marktplatz wächst um 1000% 01:00:35 Kantine Zukunft goes München 01:03:27 Liquid Death will an die Börse 01:05:52 News zu kultiviertem Fleisch 01:09:40 Investments und Insolvenzen 01:22:02 schnelle News (Montana Black launched Energy Drink, Indische Regierung verhängt Export-Verbot für weißen Reis, veganz stellt gedruckte Milch vor)
Zrodenie nového života v maternici sme donedávna vnímali ako niečo prirodzené, ako niečo, čo funguje samo od seba. V súčasnosti sa však spoločnosť čoraz viac zaoberá problémami s plodnosťou a reprodukciou, na ktoré mnohé páry prichádzajú po dlhodobom neúspešnom snažení sa o dieťa. Počatie dieťaťa však zďaleka nie je také jednoduché, ako si mnohí predstavujeme. Cestu spermie a vajíčka k oplodneniu komplikuje mnoho faktorov a pri problémoch s plodnosťou sa situácia ešte komplikuje. O okolnostiach oplodnenia, faktoroch, ktoré vplývajú na celý proces, a o súčasných komplikáciách s reprodukciou sa porozprávame v podcaste Veda na dosahs prof. RNDr. Ivanom Vargom, PhD. et PhD., z Ústavu histológie a embryológie Lekárskej fakulty Univerzity Komenského v Bratislave. Prof. RNDr. Ivan Varga, PhD. et PhD., pôsobí v Ústave histológie a embryológie Lekárskej fakulty Univerzity Komenského (UK) v Bratislave. Zároveň je na fakulte prodekanom pre vedu, výskum, grantovú problematiku, doktorandské štúdium a zahraničné vzťahy Lekárskej fakulty UK v Bratislave. Venuje sa výskumu mikroskopickej anatómie a vývinu ženských pohlavných orgánov a imunitných orgánov človeka. V oblasti inovácie názvoslovia v histológii je koordinátorom celosvetovej expertnej skupiny v rámci Medzinárodnej federácie asociácií anatómov (IFAA). Za svoje úspechy v oblasti vedy získal Jesseniovu cenu Slovenskej lekárskej spoločnosti (2021), bol laureátom ceny ESET Science Award v kategórii Výnimočný vysokoškolský pedagóg (2020) a laureátom Ceny Jaroslava Jirsu Univerzity Karlovej v Prahe za najlepšiu učebnicu v lekárskych vedách za rok 2016. Aktuálne je zodpovedným riešiteľom vedeckého projektu APVV zameraného na vzťah medzi stavbou vajíčkovodov a neplodnosťou, ako aj projektu KEGA, vďaka ktorému zaviedol predmet klinická embryológia do výučby na Lekárskej fakulte UK v Bratislave. Je autorom približne 100 vedeckých publikácií indexovaných v zahraničných databázach, v rámci ktorých eviduje vyše tisíc citácií.
Seit jeher ist Christiane Reiter eine „unangepasste“ Trainerin. Anstatt Trends und Moden zu folgen, initiiert sie diese. Ihre große Leidenschaft ist Pilates! Für die IFAA konzipierte sie jetzt eine neue Pilates-Ausbildung, bei der die klassische Pilates-Lehre mit modernen Trainingsansätzen z.B. aus der Faszienforschung, der funktionellen Anatomie und aus dem Neurotraining kombiniert werden. Im Interview wollten wir von ihr wissen, wie das in der Praxis aussieht und wie Trainer für neue Kreativität und Inspiration in ihren Pilates- und Fitnesskursen sorgen können! Mehr Infos zur neuen IFAA Pilates Ausbildungen findest du über diesen Link: www.ifaa.de/pilates
Die Zeiten in denen eine klassische Fitnesstrainer B-Lizenz ausgereicht hat, sind vorbei! Die Kunden und Mitglieder in den Fitnesseinrichtungen werden immer unterschiedlicher und vielfältiger. Und auch deren Ziele! Um den verschiedenen Wünschen und Zielen deiner Kunden gerecht zu werden, braucht es immer mehr Fachwissen. Aber wohin soll ich mich weiterentwickeln? Was passt zu mir und meinen Fähigkeiten? Um dir einen kleinen Einblick in die vielfältigen Spezialisierungen zu geben, haben wir diesen Podcast für dich aufgenommen. Der sportliche Leiter der IFAA - Jörg Winkler - berichtet von den verschiedenen Möglichkeiten, die du bei der IFAA hast. Von Medical Fitness, über Outdoor Training, BGM (also dem Betrieblichen Gesundheitsmanagement), Athletic Fitness, Functional Fitness, dem Ernährungsbereich, den verschiedenen Testingverfahrens usw. und so fort. Nimm dir gerne die Zeit um mal über deinen Tellerrand hinauszuschauen und lass dich von den verschiedenen Möglichkeiten inspirieren. Du willst mehr über die Aus- und Fortbildungsmöglichkeiten bei der IFAA erfahren? Dann schau gerne jederzeit auf unserer Homepage vorbei. www.ifaa.de/ausbildungen
Today we're talking about Bloodsport (1988)! It was the first thing we recorded so Darcy obliquely references the taking of the US Capitol on 1/6/20 and Katie says "like" approximately nine thousand times. Discussion topics include: Are all secret worlds in martial arts movies connected? Sexy fight training montages with Punch Dad, One True Art as created by white American individualist dominance narratives, One True Can of Beer held by Ray the entire movie, Being the pink Power Ranger, Frank Dux's astrological chemistry with Chong Li, What is truth?
In dieser IFAA Podcastfolge erzählt uns Felizitas Lutsch, wie sie als Auszubildende gestartet ist und was alles dazu geführt hat, dass sie schlussendlich als festangestellte Produktmanagerin im IFAA Headquarter gelandet ist. Dabei schildert sie spannende Einblicke in die duale Ausbildung zur/m Fitnessfachmann/-frau (IFAA) und schwärmt noch heute von ihren Highlights, die sie erleben durfte. Mehr Infos zur dualen Ausbildung zum/r Fitnessfachmann/-frau (IFAA) bzw. zum/r Fitnesskaufmann/frau (IHK) – inklusive neuen Gesundheitsfächern (!) – erhältst hier: https://www.fitnessausbildung.de/ Viel Spaß beim Zuhören! *Anmerkung: Aufgrund der aktuellen Corona Situation wurde der nächste Klassenstart um einen Monat auf April 2021 verschoben.
"Talking Competitive Archery Organizations and the National Field Archery Association with Chuck Cooley" Archery Pro Chuck Cooley sits with us and explains what the NFAA is, what they do, and why you should join. If you're interested in joining a professional archery association, you should listen to this episode! 1:00 Who is Chuck Cooley 4:30 what is the NFAA 7:00 A breakdown of the chapters of the NFAA, state vs national and how they run the events. And how both IFAA and USA Archery work in conjunction. 10:00 How the membership fees work and who grandparents your membership. 13:00 how to keep from getting overwhelmed and where to even start. 16:00 How the NFAA shoots are different from IBO (International Bowhunting Organization) shoots. 21:00 Chuck’s #1 piece of advice for someone interested in tournament shooting. 25:30 Thoughts on why women tend to not join these organizations (right or wrong). And how easy it is to forget the new guys are just new guys, and we were all new to archery once. As well as the state of the archery tournament scene with the pandemic turning everything upside down. 40:00 Links and information Links Chuck Cooley Facebook NFAA Facebook NFAA Twitter NFAA Instagram
Say the term Krebs cycle around anyone who's had a biology course and watch for signs of stress. In this episode, host Kevin Patton provides a way to make the citric acid cycle less scary by playing into the horror of it all. And we revisit the idea of a standard terminology of anatomy. 00:46 | Krebs Cycle Game 15:22 | Sponsored by AAA 16:07| Proof of Concept 25:07 | Sponsored by HAPI 25:54 | Riding the Krebs Cycle 35:25 | Sponsored by HAPS 36:01 | Anatomical Terms Info 42:33 | Staying Connected If you cannot see or activate the audio player click here. Apply for your credential (badge/certificate) for listening to this episode. Please take the anonymous survey: theAPprofessor.org/survey Questions & Feedback: 1-833-LION-DEN (1-833-546-6336) Follow The A&P Professor on Twitter, Facebook, Blogger, Nuzzel, Tumblr, or Instagram! We make up horrors to help us cope with the real ones. (Stephen King) Krebs Cycle Game 14.5 minutes In the first season of this podcast, Kevin talked about storytelling—especially playful storytelling—being a key tool for effective college teaching. Especially in A&P. In this first of three segments on part of the story he tells about the Krebs cycle, Kevin talks about leaning into the horror of the Krebs cycle and making a game of that. Storytelling is the Heart of Teaching A&P | Episode 12 Playful & Serious Is the Perfect Combo for A&P | Episode 13 Actin & Myosin—A Love Story | Episode 15 The Storytelling Special | Episode 48 Sigma's poster Metabolic Pathways my-ap.us/36OE9pn Image: my-ap.us/3lz1WOd Credit: Narayanese, WikiUserPedia, YassineMrabet, TotoBaggins Sponsored by AAA 1 minute A searchable transcript for this episode, as well as the captioned audiogram of this episode, are sponsored by the American Association for Anatomy (AAA) at anatomy.org. Searchable transcript Captioned audiogram Don't forget—HAPS members get a deep discount on AAA membership! Proof of Concept 9 minutes Kevin tells the tale about how he came upon proof that people really do react to the Krebs cycle as if it were a horrible monster. At least under certain conditions. And, okay, it's not peer-reviewed evidence. Sponsored by HAPI Online Graduate Program 1 minute The Master of Science in Human Anatomy & Physiology Instruction—the MS-HAPI—is a graduate program for A&P teachers, especially for those who already have a graduate/professional degree. A combination of science courses (enough to qualify you to teach at the college level) and courses in contemporary instructional practice, this program helps you be your best in both on-campus and remote teaching. Kevin Patton is a faculty member in this program. Check it out! nycc.edu/hapi Riding the Krebs Cycle 9.5 minutes The pyruvate is forced onto a sort of metabolic Ferris wheel, despite the fact that pyruvates are getting onto this carnival ride, but the cars are empty when the wheel comes back around! But coenzyme A grabs the acetyl and forces the pyruvate into the Krebs cycle. And yes, mayhem and gore ensue. Sponsored by HAPS 1 minute The Human Anatomy & Physiology Society (HAPS) is a sponsor of this podcast. You can help appreciate their support by clicking the link below and checking out the many resources and benefits found there. Watch for virtual town hall meetings and upcoming regional meetings! Anatomy & Physiology Society theAPprofessor.org/haps Variation in Anatomical Terms 6.5 minutes Tony Weinhaus and Sara Sulaiman recently gave a workshop about variability in anatomical terms and revealed the amazing free tool AnatomicalTerms.info (ATI). AnatomicalTerms.info (the resource discussed in this episode) https://www.anatomicalterms.info/ AnatoNomina (another online resource based on the Terminologia anatomica) my-ap.us/2GIBJOf Terminologia anatomica 2nd edition (updated edition; also has links to other current/updated terminology lists) (TA2) fipat.library.dal.ca/ta2/ UPDATE: TA2 has now been officially approved by IFAA. UPDATE: TA2 viewer (an easy way to navigate Terminologia Anatomica 2nd edition in an online viewer) New Terminologia Anatomica: Cranium and extracranial bones of head (article going through some of the updates in the new edition) my-ap.us/3nw9Utc Understanding Anatomical Latin (short booklet on basic principles of Latin as it's used in anatomical terminology) my-ap.us/3nBvgWc If the hyperlinks here are not active, go to TAPPradio.org to find the episode page. More details at the episode page. Transcript available in the transcript box. Listen to any episode on your Alexa device. Need help accessing resources locked behind a paywall? Check out this advice from Episode 32 to get what you need! https://youtu.be/JU_l76JGwVw?t=440 Take The A&P Professor experience to the next level! The A&P Professor community Tools & Resources Amazon Text Expander Rev.com Snagit & Camtasia Krisp Free Noise-Cancelling App The A&P Professor Logo Items Sponsors Transcript and captions for this episode are supported by the American Association for Anatomy. anatomy.org The Human Anatomy & Physiology Society aprovides marketing support for this podcast. theAPprofessor.org/haps Distribution of this episode is supported by NYCC's online graduate program in Human Anatomy & Physiology Instruction (HAPI) nycc.edu/hapi Clicking on sponsor links helps let them know you appreciate their support of this podcast! Follow The A&P Professor on Twitter, Facebook, Blogger, Nuzzel, Tumblr, or Instagram! The A&P Professor® and Lion Den® are registered trademarks of Lion Den Inc. (Kevin Patton) As an Amazon Associate I earn from qualifying purchases. I may be compensated for links to sponsors and certain other links.
Twórca centrum rehabilitacji Fizjo4Life, które od ponad 6 lat stale rozwija budując zespół wysokiej klasy specjalistów z dziedziny fizjoterapii. Jest absolwentem Wydziału Rehabilitacji Akademii Wychowania Fizycznego w Warszawie specjalizującym się w rehabilitacji sportowej i urazowej. W codziennej pracy fascynują go trudne i skomplikowane przypadki - odważnie podejmuje się wszelkich wyzwań, jakie stawiają przed nim pacjenci. Michał specjalizuje się w terapii manualnej tkanek miękkich. Stale rozwija swoją wiedzę w zakresie rehabilitacji urazowej, ze szczególnym naciskiem na urazy sportowe. Pozwala mu to na holistyczne podejście do pacjenta i jego dolegliwości. Michał pomaga także pacjentom cierpiącym z powodu przemęczenia w pracy biurowej oraz bólu kręgosłupa i głowy spowodowanego siedzącym trybem życia.W pracy skupia się nie tylko na pomocy pacjentom. Czas poświęca również na szkolenie fizjoterapeutów dzieląc się z nimi swoją wiedzą i bogatym doświadczeniem. Jest wykładowcą FIWE, PEI, PSTM, IFAA, międzynarodowym Master Trenerem Blackroll. Pomysłodawca i współtwórca programu edukacyjnego Blackroll Education, w tym sztandarowego szkolenia Blackroll Trainer. Swoją wiedzą dzieli się także z czytelnikami portali treningbiegacza.pl oraz czasnabieganie.pl.Michał jest praktykiem. Posiada nie tylko wiedzę teoretyczną, ale przede wszystkim bogate doświadczenie w pracy ze sportowcami. Współpracował z zawodnikami takich drużyn jak Matizol Lider Pruszków (koszykówka kobiet na poziomie ekstraklasy), AZS Politechnika Warszawska (I liga koszykówki mężczyzn), Polonia Warszawa (koszykówka mężczyzn na poziomie ekstraklasy) oraz Polonia 2011 Warszawa U-20, z którą zdobył Mistrzostwo Polski.
Ashley Iverson lost her husband Cory a Fire Apparatus Engineer while he was battling the Thomas Fire in Ventura California in 2017. In the midst of her family's incredible loss, Ashley founded the Cory Iverson Foundation for Active Awareness (IFAA) to change the narrative surrounding mental health in the fire service. Too often our first responders are told that "if they are not strong enough mentally to take it, they don't belong ". IFAA aims to change the narrative within agencies in order to provide better mental support and resilience to our community.Ashley shares her journey through grief and how IFAA is impacting Mental Health in the Fire Service.
Najlepszy absolwent pierwszej edycji Blackroll Therapy. Specjalizuje się w treningu postrehabilitacyjnym, prewencji urazów i korekcji wad postawy. Certyfikowany trener personalny IFAA oraz międzynarodowy trener Blackroll. Dawniej zawodowy piłkarz na poziomie I i II ligi polskiej. Grał na pozycji bramkarza. Z Dawidem poprowadziliśmy szczerą do bólu wymianę myśli odnośnie szkoleń dla trenerów i terapeutów ruchowych. Które poleca i czemu sam zdecydował się na nasze BLACKROLL Therapy?Rozmawialiśmy też na temat tego, czy z dzisiejszą wiedzą miałby szansę na ekstraklasę? Z jakiego miasta ma najlepsze wspomnienia i który etap sportowej kariery najwięcej dla niego znaczy? Jaka historia kryje się za jego studiami?Skąd zrodził się pomysł na połączeniu sportu i dziennikarstwa oraz czym dla niego jest pisanie? Co wg Dawida jest kluczem w terapii ruchowej i treningach? I czy siła w treningach w ogóle jest potrzebna?
This week join your patient co-hosts Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis and Deb Majcher Constien, AiArthritis volunteer and patient advocate, as they discuss the importance of AiArthritis leaders attending conferences. At EULAR (European League Against Rheumatism) Congress in 2019, Tiffany and Deb attended a session on the existing efforts to advance e-health so we could reach more rheumatic patients and, in turn, improve their health.They are joined by Aurelie Najm, rheumatology researcher with EULAR and OMERACT (Outcome Measures in Rheumatology). Aurelie was a panelist at the EULAR e-health session and previously made another guest appearance on AiArthritis Voices 360 to discuss obtaining patient consent for participation in clinical research. Check out Episode 9 “Changing The World With Your Knee” for more information on Aurelie’s clinical research and how you can get involved in that project.In this episode, Tiffany, Deb, and Aurelie will discuss the ongoing efforts of EULAR and AiArthritis to involve the patient voice in the development of new e-health apps and the variety of ways these apps could be utilized by both patients and clinicians to improve treatment outcomes. Aurelie will also explain the value of e-health apps in light of the COVID-19 pandemic. Stay tuned to the end of the episode for information on how you can help researchers develop the next generation of e-health apps to benefit the AiArthritis community. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast. Find us on twitter, instagram, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org) to have your seat at the table. Show Notes: Episode 29 ”Conferences and E-Health” 00:52 - Tiffany welcome listeners and co-host, Deb Constein3:30 - AiArthritis is transitioning away from the old IFAA acronym to make it more clear what the mission of the organization is to outsiders as we move into more spaces in the medical community4:44 - Today’s episode is about attending conferences like ACR (American College of Rheumatology) or EULAR (European League Against Rheumatism)5:27 - Deb was diagnosed with RA 37 years ago and is a registered dietitian so research and conferences are a passion for her5:50 - Deb explains what she and Tiffany do at conferences 7:44 - Deb gives an overview of some of the things she has learned from conferences like a session on e-health 12:42 - Tiffany and Deb are joined by Aurelie to discuss her panel presentation from EULAR on e-health 13:18 - Aurelie says that researchers realized there were a plethora of health apps, but none of them provided adequate information on how they could actually help patients or clinicians 14:13 - Researchers discovered that rheumatology lacked the quantity and quality of health apps compared to cardiology or endocrinology and that patient voices were not included in the development process for e-health apps15:28 - Half of panel respondents who had used e-health apps reported that they were not very useful 16:00 - EULAR issued recommendations on how e-health apps should be developed to include patients in the development process and to secure patient data18:42 - Aurelie discusses the stark differences between how researchers were envisioning using e-health apps before COVID-19 and how they are trying to use them now22:43 - Aurelie explains some of the recommendations from EULAR for developing e-health apps25:25 - Aurelie breaks down the two main barriers to developing and implementing useful e-health apps29:43 - Deb shares responses she received from listeners about which e-health apps they use and like30:29 - Arthritis Power is one app that many respondents enjoyed using31:25 - Catch My Pain is another app used for tracking symptoms that was recommended32:44 - Patients recommend apps when they have a direct benefit to their health35:43 - EULAR findings are consistent with the responses Deb and Tiffany collected about patient experiences with e-health apps37:00 - Aurelie expects the field of e-health to develop rapidly in response to COVID-19 needs39:33 - AiArthritis wants to hear from you about what existing e-health apps you like to use and what you would like see developed in a new app41:14 - Tiffany thanks Aurelie and Deb for participating in the conversation on e-health and conferences42:30 - AiArthritis lost all of its sponsors when the in-person AUTO Ball was cancelled due to COVID-19, so we are asking all of our listeners to please consider donating any amount to support the organization so that we can continue working for you
Welcome to AiArthritis Voices 360. This week the show is celebrating 40 brilliant episodes by revisiting some of our previous conversations with experts in the field of autoimmune and autoinflammatory rheumatic diseases. We have featured rheumatologists, clinical researchers, and medical anthropologists in addition to our many patient co-hosts with expertise of their own. If you are new to the show, this will give you an opportunity to catch up on what our experts had to say about their work. Tune in and then join us to add your voice to these ongoing conversations. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast. Find us on twitter, instagram, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org) to have your seat at the table. Show Notes: Episode 20 – “Highlighting the Experts” 00:52 - Tiffany welcomes listeners to the show01:02 - Today’s episode will be a highlight reel featuring four of the episodes that have previously aired on AiArthritis Voices 360 for those who may have missed them02:40 - Tiffany introduces Dr. Apostolos Kontzias from the Center of Autoinflammatory Diseases03:12 - Dr. Kontzias explains the distinction between autoimmune and autoinflammatory, which both stem from the immune system, just different sides (“innate” vs “acquired”)04:32 - Autoinflammatory patients usually lack laboratory markers for autoimmune disease - despite inflammatory symptoms - which can cause a diagnostic delay 04:55 - Both autoimmune patients and autoinflammatory patients can present with arthritis and other common features (fatigue, varying degrees of fevers)05:48 - Autoinflammatory syndromes are innate (of unknown cause, from the primal part of the immune system) and thus can present early in life, but some do not present until adulthood07:14 - Either type of immune response may be initially triggered by environmental factors, but also environmental factors can trigger disease activity07:44 - Viral infections can trigger autoinflammatory syndromes07:57 - Menstruation can trigger increases in symptoms for female patients for either type of disease08:27 - Some conditions “bridge” the two types and can have features of both adaptive and innate immunity. 09:46 - By definition, patients with autoinflammatory conditions have an immune system that does not recognize the patient’s own structural components of their cells10:49 - Fevers and rashes are often markers for autoinflammatory conditions. General markers for inflammation without laboratory results that support traditional autoimmune diagnoses are also predictive of autoinflammatory conditions13:09 - Tiffany thanks Dr. Kontzias for his time13:21 - Tiffany welcomes Kaleb Michaud from FORWARD Databank13:49 - Registries monitor patient journeys to benefit scientific understanding of rheumatic diseases14:51 - Kaleb explains his decision to become a medical researcher 16:07 - Tracking patient symptoms over time can lead to more accurate diagnosis and treatment because patients may not be aware of incremental progression 17:48 - Long questionnaires encourage patients to thoroughly interrogate their own health and reflect on how they are doing18:44 - One patient, Mary Felstiner, wrote a book titled Out of Joint about the experience of completing the questionnaires. 21:20 - People who participate in registry studies statistically live longer than patients who choose not to participate. 22:15 - Tiffany is joined by patient co-host Deb Constein and Dr. Aurélie Najm, a rheumatologist and clinical researcher currently serving as the co-chair for the European League Against Rheumatism’s Synovitis Study Group22:49 – Aurélie introduces herself22:57 - She is researching providing tailored treatments to patients with rheumatoid arthritis 23:27 - Aurélie is the co-chair of the EULAR Synovitis Study Group, which is studying synovial tissue to determine the best treatment for each patient24:07 - Tiffany and Deb are patient research partners for OMERACT25:37 - Patterns of inflammation within the synovial tissue can predict the future evolution of disease for that patient and which anti-rheumatic drugs may be more effective for that patient26:45 - AiArthritis is interested in this research because we support anything that reduces delays in getting patients access to the right treatment28:00 - Deb discusses her experience with joint biopsy procedures30:38 - The two methods available for obtaining synovial samples from joint spaces are arthroscopic or ultrasound guided biopsy32:13 - Explaining the purpose of any procedure to the patient, especially when procedures are for clinical research and not necessity, is critically important.33:40 - Volunteering for procedures to support clinical research is “an investment in the future.”34:35 - IFAA seeks to help researchers develop the right protocols to recruit patient participants 34:54 - Visit aiarthritis.org/podcast to learn how you can help 35:14 - Tiffany introduces special guests Dr. Alfred Kim and Jerik Leung, who have done research on patient needs and communication barriers 35:56 - Tiffany explains the goals of the Rheumy Rounds Series36:54 - Jerik’s research showed that patient goals did not always align with the physician’s goals, especially relating to medications and side effects38:44 - Dr. Kim says the primary goal of rheumatologists is to determine what is actually going on with the patient. Are additional testing or imaging studies necessary? Are the notes from the previous doctor or patient provided information enough?39:35 - Practicing Rheumatology is somewhat similar to practicing psychiatry in that there are usually not clear cut answers divined from test results. The physician has to review as much information as possible to arrive at a correct diagnosis.40:34 - Rheumatologists must also prepare to have a difficult conversation with patients if the diagnosis doesn’t align with what they have been told previously or what they believe or don’t believe they have41:11 - Sometimes patients arrive at a new doctor with incorrect information in their chart because a previous doctor had to use a certain diagnosis - even if it wasn’t the correct one - so the patient could get access to a needed medication42:30 - For many physicians, the emotional aspects of the disease aren’t actionable from a clinical perspective. 43:14 - Patients may be on the defensive at the outset of appointments due to previous negative interactions with rheumatologists44:06 - Learning to advocate for yourself is necessary for patients living with chronic illnesses46:06 - Mutual trust is critical between the patient and physician46:59 - Occupational therapy support may increase patient compliance with their treatment plan and help them and their caregivers achieve a better quality of life47:40 - Physicians may not address complaints from patients that they are not equipped to handle, but they should be able to refer the patient to someone who can help them49:01 - Most common reasons people “fire” their doctor: they feel unheard or treatments are not meeting their expectations50:27 - Both doctors and patients could potentially benefit from training on how to interact positively and productively with each other 52:56 - Tiffany invites listeners to join our new Facebook group @IFAiArthritis to get involved
Welcome to AiArthritis Voices 360. This episode join your hosts Kelly Conway and Charis Hill to discuss COVID-19 and the potential impact on the AiArthritis Community. This is the third episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. They will discuss raising awareness for the risks experienced by disabled and chronically ill people during the pandemic and what you can do to join the movement. They also dive into being discriminating about the reliability of sources when reading about COVID-19 and prioritizing your mental and emotional wellness during social isolation. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast. Find us on twitter, instagram, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org) to have your seat at the table. Show Notes: Episode 21 – “High Risk COVID-19” 00:52 - Kelly welcomes listeners02:23 - Kelly lives with Rheumatoid Arthritis02:37 - Today’s topic is the high risk community of AiArthritis patients living during a COVID-19 outbreak02:45 - Kelly welcomes patient co-host, Charis, who lives with Ankylosing Spondylitis 03:19 - In the beginning of the outbreak, the messaging focused mostly on the fact that children were not at risk and the elderly and people with compromised immune systems were in the most danger05:50 - Charis drafted language in a social media post that was adopted by their local mayor to communicate to the public that individuals at increased risk from COVID-19 needed others to practice socially responsible behaviors to help thwart the spread of the virus06:50 - Charis has been spreading the message that it is everyone’s job to stay home so that everyone doesn’t get sick instead of the idea that immunocompromised people should self-isolate if they want to be safe07:44 - All people need to stay home as much as possible to prevent asymptomatic carriers from spreading the virus to vulnerable members of our society without knowing it08:51 - Charis explains the origin of #HighRiskCOVID1912:34 - It’s important to put a face to the category of “high risk people” so that the public understands who all they are protecting when they are practicing social distancing14:57 - Before her workplace closed, Kelly was approached by multiple people concerned about whether she was at risk, but she didn’t know the answer16:12 - CreakyJoints is a great resource for reliable information and support during the COVID-19 pandemic16:36 - If you are concerned about conflicting information, you should consult with your personal physician who is familiar with your condition about the best way to proceed16:58 - The Spondylitis Association has also issued a resource document for Spondyloarthritis patients about COVID-1917:11 - Check sources on any articles you find online because there is a lot of misinformation floating around the internet17:26 - Patients living with chronic illness and disabilities may be more prepared than the general population to avoid infection during a pandemic18:16 - We know what to do to protect ourselves, but we are also relying on the community to keep us safe because this virus is so dangerous for disabled and chronically ill people18:28 - Charis and Kelly share the end of life plans they have made in case they contract a fatal case of COVID-19. These plans allow them to live without anxiety, NOT because they are being pessimists 20:40 - It’s important that everyone be patient and kind with people who are still working - especially healthcare professionals21:22 - If you are healthy and have been stockpiling medical supplies, please consider sharing them with people who need them now 26:05 - Everyone knows someone who works in the healthcare, service, or food industry putting themselves at risk, and the least we can all do is to avoid unnecessary trips out27:04 - You can be a superhero right now by doing nothing and staying at home27:46 - People probably need to take breaks from COVID-19 news to preserve their mental health30:43 - People need to prioritize social connections (while social distancing) to preserve their emotional wellness32:05 - People who deny the seriousness of this virus may be clinging to that belief to manage their own anxiety33:08 - Schools and employers have been claiming for years that remote work or remote learning is not possible, but now it is suddenly possible when able-bodied people need it 33:58 - Follow #Accessibilityforableds to see how frustrated disabled people are that the accommodations they’ve been told were impossible are now available to everyone34:18 - Disabled people hope that these distance policies will remain possible after the virus 36:42 - This is the first time in a long time that teachers have had the freedom to educate their students without having materials forced on them by publishers, politicians, and administrators. Kelly hopes that will be a catalyst for change in public schools after the virus38:40 - There is no one look for being high risk or vulnerable39:29 - Many of the symptoms that people with AiArthritis diseases live with every day are documented COVID-19 symptoms, and that can cause anxiety for people who are trying to decide if they are flaring or sick40:12 - Get in touch with your doctor if you think you need to be seen because any trip to urgent care or the ER is likely to expose you to the virus44:04 - We probably won’t know much conclusively about the virus for several years because researchers will need to repeat experiments multiple times and have research peer reviewed before it will be accepted as fact45:29 - Kelly thanks Charis for taking the time to do this episode despite being ill45:54 - The COVID-19 special episodes are currently airing during the regular AiArthritis Voices 360 dates and times, but they will soon branch out into their own series so that patients wishing to take a break from COVID-19 news can listen to our regular show46:35 - For more information on COVID-19, you can join IFAA’s COVID-19 group on Facebook by connecting to our page @IFAiArthritis47:09 - We will also have many COVID-19 resources available @ aiarthritis.org/COVID1947:19 - If you would like to take a seat at the table, visit us on the web at aiarthritis.org/podcast, on social medias @IfAiArthritis on all platforms, or email us @ podcast@aiarthritis.org
Welcome to AiArthritis Voices 360. In this episode, join patient co-hosts Tiffany Westrich-Robertson and Matt Iseman - host of American Ninja Warrior and person living with Rheumatoid Arthritis. They are joined by Dr. Alfred Kim, Rheumatologist at Washington University and Founder and Director of their Lupus Clinic. This is the second episode in a breakout series on COVID-19 and what you can do to protect yourself during the pandemic. Should you continue taking immunosuppressive therapies? Are you going to be able to refill your hydroxychloroquine prescription? What should you do if you begin experiencing symptoms? When do you need to go to the ER? Dr. Kim offers his expert opinion on these and more vital questions. * Dr. Kim is also a partner in our break out Rheumy Rounds series, where patients and rheumatology professionals unite, as equals, "at the table" to discuss current issues and develop solutions together. You can join the discussions on the COVID-19 & AiArthritis Facebook Group at https://www.facebook.com/groups/IFAiArthritisCovid19/. Show Notes: Episode 20 – “COVID-19 & AiArthritis: Special Series Episode 2”00:52 - Tiffany welcomes listeners and co-host, Matt Iseman, host of American Ninja Warrior01:37 - Tiffany and Matt welcome special guest, Dr. Alfred Kim, a rheumatologist with Washington University03:08 - Dr. Kim is fielding many questions from patients and other physicians about COVID-1905:05 - Viral infections tend to wreak more havoc on patients who are immunosuppressed (either by disease or medications)05:34 - Anecdotal evidence suggests there is a subset of patients with COVID-19 who have too much inflammation and may be helped by immunosuppressive therapies05:48 - Other patients may be harmed by these same medications06:55 - At this time there are no recommendations regarding discontinuing immunosuppressive therapies during the COVID-19 outbreak07:44 - Dr. Kim has been recommending continuity of immunosuppressive therapies to his patients while we await more data07:54 - Taking higher doses of prednisone is the worst thing you can do for your immune system and could increase morbidity and mortality08:30 - Dr. Kim recommends not using any prednisone (or the lowest dose possible if it is absolutely necessary) 09:03 - Patients who have a lower baseline immune fitness may have an easier time with COVID-19 than a patient who has a higher baseline immune fitness10:20 - Dr. Kim doesn’t want to discourage patients from pursuing vitamins or homeopathic prophylactics because he has no data to suggest they are harmful, and if nothing else, the placebo effect from them could be helpful 11:16 - There is some preliminary data to suggest that there may be some harm from NSAIDs and some benefit from anti-malarials (including Plaquenil) 12:40 - The data suggesting Plaquenil was beneficial is problematic because it excluded all patients who were unable to complete the course of medication for any reason - including those who became more sick or died14:18 - Dr. Kim is very uncomfortable with the government suggestion that patients with COVID-19 should be treated with Plaquenil because the data to support that conclusion is not sufficient 16:13 - Dr. Kim recommends patients follow the general guidelines available to the public, but he also tells his patients to follow him on Twitter @alhkim so that they can have ready access to new information as it comes out20:20 - As soon as the President of the US announced that Plaquenil could be used to treat COVID-19, patients would had already been taking Hydroxychloroquine immediately became afraid that they would not be able to access their medications21:26 - None of the US distributors of hydroxychloroquine have any remaining stock, so the pills available at local pharmacies are all that there is22:00 - The hope is that more manufacturers will begin producing hydroxychloroquine 22:36 - The VA system has restricted the use of hydroxychloroquine to COVID-19 patients ONLY, so AiArthritis patients who were taking it can no longer get it through the VA 22:44 - Hydroxychloroquine has a very long half-life and takes 30-40 days for your serum blood level to reduce by half and will take 6 months for it to be completely gone 23:08 - AiArthritis patients would probably be OK for a month or two in the event of a shortage, but after that they would really need access restored or a different medication if possible24:04 - Patients may want to consider refilling all available medications in case of a hard quarantine 25:50 - Telemedicine appointments (to avoid in person visits) are more difficult for the physician because they cannot examine the patient and require the patient to be able to communicate problems and concerns verbally and accurately30:00 - An increase in the accessibility of Telehealth appointments may allow patients to access clinics or hospitals or specialists they want to see regardless of their physical location 33:37 - Dr. Kim describes the American situation with testing for COVID-19 as frustrating and too late34:18 - Dr. Kim estimates that the number of cases in the US is underreported by 5-10 times as a result of the lack of access to testing35:04 - A private company is offering at-home COVID-19 testing for patients who qualify and can pay $130 for it37:54 - Dr. Kim recommends self-quarantining if you have any symptoms of illness if you have no access to testing38:10 - Immunosuppressed patients may shed more viral particles than patients in the general population, so AiArthritis patients may be more likely to spread the virus to others if they contract it and do not self-quarantine38:22 - One study found that aerosolized COVID-19 may be able to last several days in the air after being expelled by a sick individual and up to 3 days on non-porous surfaces43:12 - Allergies often have itchiness associated with them, so itching is pro43:28 - A common cold is over quickly43:39 - Flu and other respiratory viruses are difficult to distinguish from COVID-1944:29 - Influenza tends to cause body aches44:38 - A primary symptom of COVID-19 appears to be diarrhea, not necessarily fever47:34 - Patients should seek medical care if they have respiratory distress when at rest or a fever that is unresponsive to medicine 51:14 - To avoid misinformation, follow Dr. Kim, the CDC, and other reputable sources for scientific information on social media51:25 - Some stand-up comedians are hosting shows from their living rooms on social media, which may be a nice relief from social isolation51:50 - Try to connect with other people over text, Facetime, Zoom, or social media so that you are isolated physically, but not emotionally52:49 - Outlets for recreation and connection will be key for mental health during social isolation53:02 - Prioritize outdoor activity as much as possible for wellness and to minimize joint pain and stiffness55:50 - We hope after society returns to “normal” that people will understand that immunocompromised people are not only elderly59:00 - You can find Matt Iseman on Twitter and Instagram @MattIseman59:25 - For more information on COVID-19, you can join IFAA’s COVID-19 group on Facebook by connecting to our page @IFAiArthritis1:00:03 - If you would like to take a seat at the table, visit us on the web at aiarthritis.org/podcast, on social medias @IfAiArthritis on all platforms, or email us @ podcast@aiarthritis.org
Die Not zur Tugend machen! Ganz unter diesem Motto starten wir unsere IFAA Podcast Reihe und freuen uns schon jetzt auf viele spannende Folgen mit interessanten Gesprächspartnern. Aufgrund des Coronavirus bangen nun viele Fitnesstrainer und Freiberufler um ihre Existenz. Zum Einstieg ist Marco Adebar zu Gast, der uns kurz aufzeigt welche Wege und Möglichkeiten die Selbstständigen und Freiberufler haben, in welche Richtung sich dieser Podcast bewegt und welches Ziel die IFAA hinter dieser Reihe verfolgt.
Welcome to AiArthritis Voices 360. This episode join your host, Tiffany, as she and co-host Danielle Dass welcome Joe Coe from Creaky Joints / Global Health Living Foundation to discuss COVID-19 and the potential impact on the AiArthritis Community. This is the first episode in a breakout series of AiArthritis Voices 360 episodes on COVID-19 and what you can do to protect yourself during the pandemic. Are you among the people considered to be at an elevated risk during this pandemic? How can social distancing help you and your community? What other topics will the series cover in the coming episodes? Tune in the find out! AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast. Find us on twitter, instagram, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org) to have your seat at the table. Show Notes: Episode 19 – “COVID-19” 00:52 - Tiffany welcomes listeners and co-host, Danielle 02:13 - Danielle is a former teacher of AP Human Geography and has taught Population Studies, a topic which includes pandemics and epidemics03:10 – Danielle is diagnosed with Rheumatoid Arthritis and Axial Spondyloarthritis, as well as an autoimmune liver disease.03:20 - People who are immunosuppressed fall into the “high risk” category for COVID-1903:44 - Tiffany and Danielle are joined by special guest, Joe Coe from Creaky Joints / Global Healthy Living Foundation 05:00 - Creaky Joints has been working to gather COVID-19 information and amplify the voices of the marginalized members of the chronic and invisible illness community06:56 - No medical advice will be given in this episode. 07:02 - This is the first episode in a larger series on the COVID-19 pandemic07:19 - The next episode will feature physicians and will address many common medical questions surrounding the virus08:38 - Creaky Joints noticed early on that organizations were defining the at-risk populations in very broad strokes, which created a lot of confusion about who was actually at risk09:36 - Creaky Joints has published a webpage called “Coronavirus Questions for Immunocompromised Patients and the Best Answers We Have Right Now.” This page is updated regularly and can be viewed at: creakyjoints.org/coronavirus10:51 - Creaky Joints was told by several rheumatologists that patients should check with their doctor, but the impact of uncontrolled inflammation could be very detrimental so patients should not assume that discontinuing treatments is a good idea 12:44 - None of the research about coronavirus has been peer-reviewed, and all studies are very early12:56 - Especially since scientists are studying some DMARDs as potential treatments for COVID-19, patients MUST speak with their doctor before making any decision about discontinuing their medications.13:26 - There is a lot of misinformation being circulated on the internet, so our community needs reliable sources for information14:20 - People may not interpret scientific studies correctly so word of mouth may not be very reliable 16:44 - A lot of the information being circulated is targeted for the general public and may not be the right advice for immunocompromised people20:05 - AiArthritis patients who had teen or adult onset are very familiar with the concept of a “new normal,” and all of us understand social distancing already20:40 - Some healthy people who compare COVID-19 to influenza don’t seem to understand that vulnerable members of the community are at risk from serious illness during any disease outbreak22:03 - Negating an experience based on another bad experience undermines the work that all of us should be doing to listen to the voices of people impacted by epidemic diseases 22:19 - Responses to epidemics and pandemics should be centered on the voices of the people most impacted by them23:40 - A pandemic is a disease that has spread across multiple countries and impacts a large percentage of the population24:20 - Epidemics spread through contagion diffusion, which means everyone who contracts the disease is physically located in the same geographic area as all the rest of the patients with the disease24:50 - Network diffusion is when the disease spreads along a network of individuals like when a disease spreads through a network of airports28:07 - “Flattening of the curve” refers to slowing the spread of the virus30:33 - Slowing the spread of the disease will prevent hospitals from being overburdened 30:49 - Social distancing protects individuals, but it also saves lives by protecting hospitals’ ability to respond to patients with the serious version of the virus31:43 - Idris Elba tested positive for coronavirus despite having no symptoms 32:36 - Tiffany has been experiencing concerning symptoms, but she wasn’t able to be tested for COVID-19 due to testing shortages34:25 - Nobody will know the mortality rate for COVID-19 until it has run its course35:30 - COVID-19 is significantly more deadly than the seasonal flu36:00 - Creaky Joints interviewed a woman in Texas who had exposure to people with COVID-19 but wasn’t able to be tested for the disease38:00 - The situation with COVID-19 indicates that our society really needs to reevaluate our priorities and put an emphasis on public health and the value of medically fragile lives39:30 - Our society needs to believe in science and trust journalists to combat the widespread dissemination of misinformation41:14 - Autoimmune patients may experience severe morbidity or a loss of efficacy of treatments as the result of serious viral infection 42:12 - Patient advocates have been using #highriskCOVID19 on social media to raise awareness of people living with invisible diseases who are at elevated risk45:05 - It has always been the policy of Global Healthy Living Foundation to practice social distancing whenever an individual is sick to reduce the spread of infections46:20 - Society is currently having to grapple with the impacts of social isolation in a way that the chronic disease community already has47:06 - Social distancing is an opportunity to build bridges with people who don’t understand the social isolation that can be a part of AiArthritis diseases 48:03 - Services that help support social distancing may be overwhelmed right now and unavailable to patients who normally depend on them, and creative solutions may be helpful50:33 - Deep breathing exercises, movement, hydration, and avoiding smoking can help make your lungs be in the best shape possible in case you contract the disease51:30 - Making mental health a priority and seeking needed support is also very important52:30 - Everyone should be respectful of other people’s fears53:25 - Creaky Joints has a webpage for coronavirus information (creakyjoints.org/coronavirus), or patients can receive social support from their Facebook page (@creakyjoints), instagram (@creaky_joints), or twitter (@CreakyJoints)55:30 - IFAA is creating a group for COVID-19 information on Facebook (check the IFAA FB page @IFAiArthritis to access it) and launching AiArthritisVoices.org where patients can participate in an anonymous forum56:22 - IFAA will make the AiArthritisVoices 360 platform available to all non-profits or rheumatologists who want to disseminate important information about COVID-1957:28 - IFAA and CreakyJoints have teamed up with a number of non-profits and rheumatologists to support rheum-covid.org to create a registry for research into rheumatology and COVID-1958:33 - Tiffany thanks Joe for participating in today’s episode59:22 - If you would like to take a seat at the table, visit us on the web at aiarthritis.org/podcast, on social medias @IfAiArthritis on all platforms, or email us @ podcast@aiarthritis.org
Welcome to AiArthritis Voices 360. This episode join your host, Tiffany, as she and co-host Simon Stones discuss the prevalence and logistics of living with multiple conditions. Most health systems have moved away from a model where General Practitioners are managing all aspects of patient care to a model that places more emphasis on specialists and a depth of expertise in a specific disease. The downside to this is it has created a system where patients must be their own Care Coordinators, yet most have no experience or understanding of how to do this. What can be done to change the system? What can you do in the meantime to ensure that your health is not slipping through the cracks? Tune in to this week’s episode to find out. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast. Find us on twitter, instagram, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org) to have your seat at the table. Show Notes: Episode 18 – “Living with Multiple Conditions” 00:52 - Tiffany welcomes listeners and co-host, Simon Stones01:58 - Today’s topic is living with multiple conditions02:20 – Tiffany’s primary diagnosis is Non-Radiographic Axial Spondyloarthritis, but she also has comorbidities such as Bechet’s Disease and possibly Sjogren’s Syndrome 03:25 - If you have been sick for a while without an explanation, a diagnosis can be a relief 04:27 - Simon was diagnosed with Juvenile Idiopathic Arthritis at age 3 and has no memory of his life before Arthritis07:06 - At 10, Simon was diagnosed with Slipped Capital Femoral Epiphyses 08:30 - Sometimes secondary conditions can be masked by the symptoms of the primary diagnosis, even when under the care of specialists09:23 - Patients assume that their specialists will catch new problems, but there is a high risk of new symptoms being dismissed as part of the existing diagnosis09:45 - Every patient is an expert in their own body and must advocate if they know their symptoms are something to be explored13:20 - In his teenage years, Simon’s diagnosis was modified to include Psoriatic Arthritis or Undifferentiated Axial Spondyloarthritis 14:50 - In the UK, no biologic therapies are approved for adults with JIA, so patients must have a new diagnosis so they can have access to medication15:32 - Managing multiple complex diagnoses in a complex medical system can be very complicated16:51 - Around 12 years old, Simon developed symptoms of Crohn’s Disease, but the symptoms and markers were attributed to his JlA diagnosis19:03 - Doctors may be reluctant to order tests that are unpleasant for pediatric patients. Parents may need to advocate strongly for their children if they believe something is wrong.26:02 - Medicine should be evidence-based and not vary wildly from one doctor to the next27:10 - A comorbidity is the presence of two related diseases (like Rheumatoid Arthritis and Cardiovascular Disease or Psoriatic Arthritis and Psoriasis) where one is the index disease*27:33 - Multimorbidity is the presence of multiple diseases without the presence of a specific index disease and requires more holistic treatment29:23: Some people will combine terminology of related diseases (ex: Lupus and Rheumatoid Arthritis = Rupus)29:40 - Multiple Autoimmune Syndrome (MAS) is a term many doctors and patients use to refer to the presence of 3 or more autoimmune diseases 30:56 - Simon read a study that asserted that 25% of the general population of rheumatology patients has 2 or more diseases, but Simon’s experience would suggest it may be much higher than that 33:13 - Gathering more data would be helpful34:52 - The actual rarity of having only one autoimmune disease impacts clinical trials because patients with comorbidities and multimorbidities are all excluded from clinical trials38:17 - When you have multiple diagnoses and multiple specialists, you may need to become your own coordinator of care39:04 - Pediatric specialists seem to be better about coordinating with each other, but adult specialists often rely on the patient to report what they have been told by their other specialists41:10 - If you are not advocating for yourself and managing your own care, you run the risk of important warning signs being missed41:55 - General practitioners used to be very involved in managing patient care across multiple specialities, but that is no longer happening42:43 - Healthcare systems now really could benefit from moving to a coordinated care model46:02 - Obtaining health records can be very difficult because patient data is the property of the hospital or doctor’s office instead of the patient49:40 - Patient advocates should unite to tackle the problem of inconsistent patient data and data ownership54:27 - The system needs to change, and it can result from grassroots efforts 55:00 - Decision-making processes about reforming the healthcare systems must include patient voices55:17 - Patients often have the best solutions to healthcare systemic problems because we know exactly what we need to make things work better and reduce waste56:13 - Tiffany thanks Simon for co-hosting today’s episode56:52 - If you have an opinion on this topic, IFAA wants to hear from you! 57:08 - If you would like to take a seat at the table, visit us on social medias @IfAiArthritis on all platforms or email us @ podcast@aiarthritis.org *An index disease is a primary or core disease with a significant impact on the development of a comorbidity
Em homenagem ao Dia Internacional da Mulher, comemorado em 8 de março, no segundo episódio da série " Um dia de", acompanhamos a rotina da produtora rural, Renata Salatini. Renata nos contou sobre os desafios de ser mulher, esposa, mãe e administradora de uma propriedade rural no norte do Brasil. Lembrando você que deseja estagiar em fazendas nos EUA, o Papo Agro tem o parceiro certo para você.Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. Welcome to this week’s episode of AiArthritis Voices 360: At The Table. Today we are talking about World AUTOimmune & AUTOinflammatory Arthritis Day (#AiArthritisDay) which occurs annually on May 20th. This annual event was established by IFAA as our first initiative as a nonprofit, aimed to raise global awareness about AiArthritis diseases - and, in particular, to differentiate our type of arthritis from others. This year, IFAA will be jumpstarting the activities by hosting the AUTO Ball on Saturday, May 2nd from 6-10PM in St. Louis, MO. In addition to raising organizational funds and introducing IFAA to the local community, the event doubles as the official launch party to begin the countdown to our big awareness day! The AUTO Ball won't be your typical "gala" - nope! In addition to auto-themed food and auto "flair" attire, awareness activities will be streamed to social media where an online watch party will take place. AUTO Ball attendees and online participants can also enjoy the Race for Education and Awareness with LIVE broadcasting all night long, via this AiArthritis Voices 360 podcast!For more information about World AiArthritis Day, check out https://www.aiarthritis.org/aiarthritisday. To learn more about the AUTO Ball, including how you can attend, visit https://www.aiarthritis.org/autoball. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can always have a seat "at the table"!
Em homenagem ao Dia Internacional da Mulher, comemorado em 8 de março, no segundo episódio da série " Um dia de", acompanhamos a rotina da produtora rural, Renata Salatini. Renata nos contou sobre os desafios de ser mulher, esposa, mãe e administradora de uma propriedade rural no norte do Brasil. Lembrando você que deseja estagiar em fazendas nos EUA, o Papo Agro tem o parceiro certo para você.Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast@agroresenha@benditoagro @bugbitespodcast@cpvpodcast@esalqast@noticias_do_front@papoagropodcast@thomer.durman See omnystudio.com/listener for privacy information.
Em homenagem ao Dia Internacional da Mulher, comemorado em 8 de março, no segundo episódio da série " Um dia de", acompanhamos a rotina da produtora rural, Renata Salatini. Renata nos contou sobre os desafios de ser mulher, esposa, mãe e administradora de uma propriedade rural no norte do Brasil. Lembrando você que deseja estagiar em fazendas nos EUA, o Papo Agro tem o parceiro certo para você.Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast@agroresenha@benditoagro @bugbitespodcast@cpvpodcast@esalqast@noticias_do_front@papoagropodcast@thomer.durman See omnystudio.com/listener for privacy information.
Welcome to AiArthritis Voices 360. This episode join your host, Tiffany Westrich-Robertson, as she and co-host Danielle Dass discuss discrimination against disabled people in the workplace. They dig into workplace accommodations, what to do if you are a victim of discrimination at work, and the connection between ableism and poor treatment of disabled employees. They also touch on how both delayed diagnosis and shifting identities can contribute to challenges in finding a work environment right for you. If you are a victim of workplace discrimination, a working person living with chronic illness, or a supervisor of other employees, this is an important episode for you! AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Find us on the web at www.aiarthritis.org/podcast. Join our online private forum to have your seat at the table. Show Notes: Episode 17 – “Discrimination In The Workplace” 00:52 - Tiffany welcomes listeners and co-host, Danielle Dass 02:09 - Today’s topic is discrimination in the workplace02:20 – Danielle is a patient living with RA, Primary Biliary Cholangitis (an autoimmune liver disease), and Axial Spondyloarthritis02:51 – Tiffany has Non-Radiographic Axial Spondyloarthritis 03:28 - Danielle’s workplace discrimination story11:49 - Danielle was told that working was not in her best interest by her supervisors12:20 - Treatment by supervisors made Danielle feel worthless and depressed12:45 - Danielle never had a poor performance evaluation at work, but her supervisors still wanted her to resign13:47 - Danielle went on disability leave 10 days after receiving the rheumatoid arthritis diagnosis14:02 - She had medical documentation for all of her symptoms and illness even before receiving an AiArthritis diagnosis14:39 - Danielle was surprised that the people discriminating against her had been her friends and were “nice” people15:10 - Supervisors can have so much internalized ableism that they may not realize their beliefs are flawed or prejudicial 16:30 - Tiffany’s employers tried to accommodate her needs, but her needs kept escalating19:00 - Tiffany changed careers and started IFAA so she could have a flexible work environment 19:38 - Accepting that you cannot work anymore even with accommodations can be very emotionally difficult for patients 21:28 - As employers transition to more flexible workplaces, employees living with chronic illness may find it possible to work longer 21:53 - Delay of diagnosis may prevent some patients from transitioning to more flexible careers before they become too sick to make career changes22:33 - Workplace hostility and discrimination make it even more difficult to adjust to the identity changes that come when people are diagnosed with AiArthritis diseases24:24 - Because your profession is so entwined with your identity, workplace discrimination can be extremely emotionally damaging 26:05 - Tiffany and Danielle asked people to send in stories about their own workplace discrimination and received quite a few responses over a period of only a few days28:20 - Several patients reported hostile working conditions. Supervisors may hope that an employee will leave voluntarily if the workplace becomes very hostile30:10 - The idea that accommodating a disabled employee is “unfair” to others is a pervasive theme in the stories received from other patients31:00 - Supervisors or co-workers see symptoms of invisible illness and interpret it as laziness or incompetence due to internalized ableism 32:52 - A workplace accommodation is any change in the working environment that allows a person with limitations in their abilities to complete their essential duties 33:50 - Most people don’t have much experience with workplace accommodations and so are not sure how to accommodate specific challenges 34:22 - Employees must be able to perform their essential job duties 35:43 - Many people have difficulty separating the essential job duty from the way it is traditionally accomplished and so may incorrectly assume disabled people cannot perform those duties36:18 - Internalized ableism is a fear of becoming or being disabled. See Episode 14 for more information about internalized ableism.37:37 - Because people confused the objective and the method for accomplishing the objective, employers will list functions as “essential duties” that actually are not essential and can be accommodated. This needs to be addressed to make more jobs accessible to disabled people.39:01 - If employers are listing essential duties incorrectly, they can discriminate against disabled employees without repercussion39:40 - Often HR specialists who work in compliance roles have little to no experience or training in disability issues or patient advocacy42:27 - EULAR was instrumental in getting social responsibility laws passed in Europe to prohibit workplace discrimination against patients with rheumatic disease specifically43:01 - Accommodations requested by employees must be “reasonable” 43:44 - ARC Canada provided information on Canadian Law which said that accommodations are unreasonable if they endanger other people or compromise the organization’s financial viability44:33 - According to the ADA in the US, reasonable accommodations are those which do not impose an “undue hardship” on the employer, which is commonly considered to be any significant difficulty or expense 45:07 - Whether an accommodation imposes an undue hardship is largely left up to employers to decide with very little oversight47:33 - People are afraid to file complaints over accommodations because they fear retaliation 49:00 - Most victims of workplace discrimination cannot pursue lawsuits against their employer because they lack the financial resources to retain legal representation50:40 - The average age of onset of AiArthritis diseases is 20-40, which is right in the prime of a person’s career usually52:00 - Patients would benefit from resources that provide guidance about specific accommodations or legal aid 52:37 - Anyone experiencing discrimination or who is even concerned about potential discrimination should document everything that might be relevant to their story53:50 - A physical record of documentation enables victims to have specific conversations with people who may be able to help them 54:49 - Highlighting victim’s stories to appeal to the public about the current state of discrimination in the workplace of disabled people is one of the most important things we can do as a community to change the state of things55:29 - Victims may remain silent about their discrimination out of a sense of embarrassment 56:33 - If you are a victim of discrimination, you are not alone 57:10 - If you are a victim, the best thing you can do for yourself is to talk to someone about your experience58:04 - People with disabilities are valuable and our ability to contribute to society should not be stunted by prejudice58:37 - Disabled people who are given an opportunity to work with their talents can do amazing things58:44 - If you have been the victim of workplace discrimination, please share your story with us on social media @IfAiArthritis on all platforms or via email to podcast@aiarthritis.org
Direto ao ponto, essa é a segunda parte do nosso papo sobre a história deste sistema de produção importantíssimo para o desenvolvimento da agricultura no mundo, pelas palavras do jornalista @wilhansantin, autor da biografia de Herbert Bartz, pioneiro do PD no Brasil, desta vez com um recadinho do nosso homenageado para todos os nossos ouvintes! E para você que quer vir aos EUA, estagiar em fazendas americanas, visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e arrume as malas. Rede Agrocast - @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman
Direto ao ponto, essa é a segunda parte do nosso papo sobre a história deste sistema de produção importantíssimo para o desenvolvimento da agricultura no mundo, pelas palavras do jornalista @wilhansantin, autor da biografia de Herbert Bartz, pioneiro do PD no Brasil, desta vez com um recadinho do nosso homenageado para todos os nossos ouvintes! E para você que quer vir aos EUA, estagiar em fazendas americanas, visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e arrume as malas. Rede Agrocast - @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Direto ao ponto, essa é a segunda parte do nosso papo sobre a história deste sistema de produção importantíssimo para o desenvolvimento da agricultura no mundo, pelas palavras do jornalista @wilhansantin, autor da biografia de Herbert Bartz, pioneiro do PD no Brasil, desta vez com um recadinho do nosso homenageado para todos os nossos ouvintes! E para você que quer vir aos EUA, estagiar em fazendas americanas, visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e arrume as malas. Rede Agrocast - @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Nossa temporada 2020 está recheada de novidades. Temos mais uma série nova no ar! Essa chamamos de "Outras Culturas", onde mensalmente teremos um episódio sobre culturas que não são tão corriqueiras pelo público em geral, mas que têm sua parcela de contribuição nos aspectos econômicos e sociais do nosso país. E para estrear essa série, nós escolhemos não só uma, mas duas culturas: Apicultura e Meliponicultura. Isso mesmo, A-PI-CUL-TU-RA e ME-LI-PO-NI-CUL-TU-RA. Aprendeu? O José Netto está até agora tentando pronunciar esses dois nomes. Hahaha... Pra ajudar ele na pronúncia nós trouxemos uma especialista no assunto, Joyce Teixeira, que nos deu uma aula sobre essas culturas e nos mostrou que elas vão muito além do que apenas produzir mel. Quer saber mais? Vem com a gente se deliciar nessa doçura de papo. E lembrando você que sonha em estagiar em fazendas americanas, o Papo Agro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais!
Nossa temporada 2020 está recheada de novidades. Temos mais uma série nova no ar! Essa chamamos de "Outras Culturas", onde mensalmente teremos um episódio sobre culturas que não são tão corriqueiras pelo público em geral, mas que têm sua parcela de contribuição nos aspectos econômicos e sociais do nosso país. E para estrear essa série, nós escolhemos não só uma, mas duas culturas: Apicultura e Meliponicultura. Isso mesmo, A-PI-CUL-TU-RA e ME-LI-PO-NI-CUL-TU-RA. Aprendeu? O José Netto está até agora tentando pronunciar esses dois nomes. Hahaha... Pra ajudar ele na pronúncia nós trouxemos uma especialista no assunto, Joyce Teixeira, que nos deu uma aula sobre essas culturas e nos mostrou que elas vão muito além do que apenas produzir mel. Quer saber mais? Vem com a gente se deliciar nessa doçura de papo. E lembrando você que sonha em estagiar em fazendas americanas, o Papo Agro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Nossa temporada 2020 está recheada de novidades. Temos mais uma série nova no ar! Essa chamamos de "Outras Culturas", onde mensalmente teremos um episódio sobre culturas que não são tão corriqueiras pelo público em geral, mas que têm sua parcela de contribuição nos aspectos econômicos e sociais do nosso país. E para estrear essa série, nós escolhemos não só uma, mas duas culturas: Apicultura e Meliponicultura. Isso mesmo, A-PI-CUL-TU-RA e ME-LI-PO-NI-CUL-TU-RA. Aprendeu? O José Netto está até agora tentando pronunciar esses dois nomes. Hahaha... Pra ajudar ele na pronúncia nós trouxemos uma especialista no assunto, Joyce Teixeira, que nos deu uma aula sobre essas culturas e nos mostrou que elas vão muito além do que apenas produzir mel. Quer saber mais? Vem com a gente se deliciar nessa doçura de papo. E lembrando você que sonha em estagiar em fazendas americanas, o Papo Agro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Primeiro episódio dos nossos papos sobre sistema de plantio direto na palha revisitamos um pedaço da história de um dos pioneiros do plantio direto no Brasil o senhor Herbert Bartz. Para nos ajudar nessa viagem no tempo contamos com a presença do jornalista e autor da bibliografia do Bartz: “O Brasil possível” @wilhansantin. Aproveite essa volta ao passado e aprenda mais sobre a origem do sistema de plantio direto na palha. Lembrando que se você quer vir aos EUA, estagiar em fazendas americanas, o PapoAgro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais!
Primeiro episódio dos nossos papos sobre sistema de plantio direto na palha revisitamos um pedaço da história de um dos pioneiros do plantio direto no Brasil o senhor Herbert Bartz. Para nos ajudar nessa viagem no tempo contamos com a presença do jornalista e autor da bibliografia do Bartz: “O Brasil possível” @wilhansantin. Aproveite essa volta ao passado e aprenda mais sobre a origem do sistema de plantio direto na palha. Lembrando que se você quer vir aos EUA, estagiar em fazendas americanas, o PapoAgro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Primeiro episódio dos nossos papos sobre sistema de plantio direto na palha revisitamos um pedaço da história de um dos pioneiros do plantio direto no Brasil o senhor Herbert Bartz. Para nos ajudar nessa viagem no tempo contamos com a presença do jornalista e autor da bibliografia do Bartz: “O Brasil possível” @wilhansantin. Aproveite essa volta ao passado e aprenda mais sobre a origem do sistema de plantio direto na palha. Lembrando que se você quer vir aos EUA, estagiar em fazendas americanas, o PapoAgro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @agroresenha @benditoagro @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Welcome to AiArthritis Voices 360. This episode join your patient co-hosts Tiffany and Kelly, along with roundtable guests rheumatologist, Dr. Alfred Kim, and graduate researcher Jerik Leung, as they conclude the first conversation in our exciting breakout series called Rheumy Rounds! Today’s topic is improving communication between doctors and patients. Jerik and Dr. Kim explain some of the limitations doctors need to overcome in order to be more effective communicators. If you missed the beginning of this important conversation, check out last Sunday’s episode for Part I of Rheumy Rounds and a short break out "at the table" episode this past Wednesday focusing on Jerik's research on a patients' need for social support. After you listen to this episode make sure to join the conversation by submitting your comments. We will assess all input and then pull up seats at the roundtable again to begin creating solutions TOGETHER! Submit your comments HERE. Show Notes: Episode 14 ”Rheumy Rounds™ Pilot Episode Episode 14: Office Visit Communication Obstacles (Part 2)”00:52 - Tiffany welcomes listeners to the show 01:46 - Listeners may experience Rheumy Rounds episodes out of order 01:59 - Rheumy Rounds started because patients identified a need to better communicate with their rheumatologists02:32 - Guests this episode include Dr. Alfred Kim and Jerik Leung, who have done research on patient needs and communication barriers 04:18 - Dr. Kim gets most of his information about patient and public perception of diseases from his patients who have been googling their diagnoses 05:45 - Up to 80% of human assumptions are wrong, and most of us base our decisions and behaviors on these assumptions06:46 - Dr. Kim says google may be misleading for patients and frustrating for their doctors 07:25 - For many physicians, the emotional aspects of the disease aren’t actionable from a clinical perspective. 08:00 - Patients may be on the defensive at the outset of appointments due to previous negative interactions with rheumatologists09:00 - Learning to advocate for yourself is necessary for patients living with chronic illnesses11:10 - IFAA conducted a study in 2013 that found that at least 30% of AiArthritis patients experience brain fog within 12 months of symptom onset regardless of diagnosis11:54 - Very difficult for physicians who have no personal experience with chronic or severe illness to be empathetic with patients because they simply do not understand12:53 - It’s important for physicians to ask patients to clarify their symptoms if they do not have any personal experience with them14:18 - Some doctors aren’t comfortable being in a space where they are no longer acting as the expert, so they won’t ask questions to clarify the patient perspective vs the clinical perspective15:29 - May be easier for physicians to ask questions of patient advocates as opposed to their own patients within an appointment17:24 - Patients who can describe their own symptoms very specifically and very accurately (without hyperbole) make the most effective communicator with their physician18:20 - Patients must know their own body and their own symptoms (like where specifically is the pain within a certain joint or what precise motions are more painful than others)20:12 - Photos, symptom journals, or lists of topics you want to discuss should be sent to yourphysician a week before your appointment so they can prepare for the appointment and usethe time most efficiently22:30 - A proposal to put NYC physicians on Yelp was widely opposed by physicians who did not want patients reviewing them publicly22:59 - Dr. Kim wanted his Lupus Clinic to be on Yelp because he wants to know what patients are telling each other about their experience23:29 - HealthGrades is a website that allows patients to review their US-based doctors26:03 - Mutual trust is critical between the patient and physician26:53 - Occupational therapy support may increase patient compliance with their treatment plan and help them and their caregivers achieve a better quality of life28:05 - Physicians may not address complaints from patients that they are not equipped to handle, but they should be able to refer the patient to someone who can help them28:59 - Most common reasons people “fire” their doctor: they feel unheard or treatments are notmeeting their expectations30:33 - Both doctors and patients could potentially benefit from training on how to interact positively and productively with each other 32:15 - Rheumatologists, visit us at AiArthritis.org/rheumyrounds to get involved with the show 32:37 - Patients, please visit us at AiArthritis.org/podcast to contribute your thoughts or sign up to be a co-host
Uma série completamente nova para esta temporada do Papo Agro. Acompanharemos a rotina em um dia de trabalho de diversos profissionais do Agro. Para este episódio de estreia tivemos a satisfação de conhecer Um pouco do gestor de planejamento e novos projetos de empresa do Agro, do podcaster e do pai da Olívia, Paulo Ozaki, do @agroresenha! Curioso para saber como é um dia deste profissional? Só vem então! @Depois de ouvir esse papo aproveite e visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais sobre as oportunidades de estágio em fazendas americanas.
Uma série completamente nova para esta temporada do Papo Agro. Acompanharemos a rotina em um dia de trabalho de diversos profissionais do Agro. Para este episódio de estreia tivemos a satisfação de conhecer Um pouco do gestor de planejamento e novos projetos de empresa do Agro, do podcaster e do pai da Olívia, Paulo Ozaki, do @agroresenha! Curioso para saber como é um dia deste profissional? Só vem então! Depois de ouvir esse papo aproveite e visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais sobre as oportunidades de estágio em fazendas americanas. See omnystudio.com/listener for privacy information.
Uma série completamente nova para esta temporada do Papo Agro. Acompanharemos a rotina em um dia de trabalho de diversos profissionais do Agro. Para este episódio de estreia tivemos a satisfação de conhecer Um pouco do gestor de planejamento e novos projetos de empresa do Agro, do podcaster e do pai da Olívia, Paulo Ozaki, do @agroresenha! Curioso para saber como é um dia deste profissional? Só vem então! Depois de ouvir esse papo aproveite e visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais sobre as oportunidades de estágio em fazendas americanas. See omnystudio.com/listener for privacy information.
Neste episódio Paulo Ozaki @agroresenha), nosso Host convidado, entrevista à equipe do Papo Agro na comemoração do primeiro ano de vida do nosso podcast. Papo muito bom com muitas reflexões sobre como se produz um podcast focado no Agro. Para você que está interessado em estágio nas fazendas americanas, temos o parceiro ideal! Visite o site da IFAA em www.ifaa-usa.org/pt-br/ e saiba mais.
Neste episódio Paulo Ozaki @agroresenha), nosso Host convidado, entrevista à equipe do Papo Agro na comemoração do primeiro ano de vida do nosso podcast. Papo muito bom com muitas reflexões sobre como se produz um podcast focado no Agro. Para você que está interessado em estágio nas fazendas americanas, temos o parceiro ideal! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais. See omnystudio.com/listener for privacy information.
Neste episódio Paulo Ozaki @agroresenha, nosso Host convidado, entrevista à equipe do Papo Agro na comemoração do primeiro ano de vida do nosso podcast. Papo muito bom com muitas reflexões sobre como se produz um podcast focado no Agro. Para você que está interessado em estágio nas fazendas americanas, temos o parceiro ideal! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais. See omnystudio.com/listener for privacy information.
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. This week, the International Foundation for AiArthritis is tackling the subject of biologic therapy*, specifically why they sometimes stop working. There are some ideas proposed by existing research for the sudden loss of efficacy, but there really doesn’t seem to be much out there. IFAA is on a mission to get to the bottom of this issue. Do you know of any existing research on the life of a biologic*, specifically why they stop working? Email us at podcast@aiarthritisvoices360.org with the subject line “Life of Biologics” to share any resources you have found. Also, patients - in order to best understand why this happens, we need to collect stories from those who have been successful on one biologic for a significant period of time (4+ years). We also need to hear from those who were successful for 4+ years and then the treatment lost efficacy. If this is YOU, please fill out this brief survey: https://conta.cc/30MmHwH *this could include treatments that are similar to biologics, such as biosimilars, jak inhibitors, apremilast AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes!
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. We invite you to join your host Tiffany as she talks about precision vs. personalized medicine. IFAA is working on a project called Preparing Patients for Precision Medicine to help educate patients on the terminology surrounding precision medicine. That’s difficult to do when the medical community hasn’t even reached consensus on what the difference between "personalized" and "precision" is, as many still use it interchangeably. But, in reality, the importance to differentiate is necessary to advance research and future legislative efforts. Today we invite you to join Tiffany as she talks about precision medicine vs personalized medicine. Then we hope you will join the conversation about the difference between these two approaches as we attempt to urge the AiArthritis Community towards a common understanding as we embark on our journey towards developing 'precise' therapeutics. Please join the conversation by adding your comments on this podcast page OR by visiting the official show page on our website at www.aiarthritis.org/podcast-miniep9 AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes!
This week join Tiffany and Deb as they welcome Dr. Aurélie Najm to the podcast. Dr. Najm is a rheumatologist and clinical researcher and currently serving as the co-chair for the European League Against Rheumatism’s Synovitis Study Group and part of the OMERACT (Outcome Measurements in Rheumatology) Synovial Tissue in Randomized Clinical Trials working group - which Tiffany and Deb also participate in. She explains how her teams are working to collect and analyze synovial tissue samples from Rheumatoid Arthritis (RA) patients to develop more precise approaches to treating the disease. Deb and Dr. Najm will also discuss the decision to take part in tissue biopsies from the patient’s and researcher’s perspectives, especially when that decision is not based on necessity, but rather to advance science. Would you undergo a knee biopsy to collect tissue so that the future of medicine can be more precise, and in turn, help doctors connect patients to the right treatments at the right time?IFAA is trying to help the researchers who do this type of work better understand what patients living with AiArthritis diseases may perceive as benefits and barriers to tissue donation. It's necessary to advance science, but it's also asking a patient to undergo a procedure that will cause some level of discomfort. But we need as many voices as possible to develop realistic recommendations. We need YOU! Please pull up a chair and join the conversation. If you are diagnosed with an AiArthritis disease, would you participate? What would your concerns be? What information would you need to make an informed decision? Learn how you can contribute to the conversation at www.aiarthritis.org/podcast-ep9 AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast, where you can take a seat “at the table” by joining post-episode conversations, nominate future co-hosts, join the official podcast Club and more! Show Notes: Episode 9 – “Changing the world with your knee tissue - investing in our future” 00:51 – Tiffany welcomes listeners to a touring episode recorded at the American College of Rheumatology Annual Meeting featuring rheumatologist and clinical researcher, Dr. Aurélie Najm02:10 - Tiffany is joined by patient co-host Deb Constein02:44 – Aurélie introduces herself02:57 - She is researching providing tailored treatments to patients with rheumatoid arthritis 03:22 - Aurélie is the co-chair of the EULAR Synovitis Study Group, which is studying synovial tissue to determine the best treatment for each patient05:10 - Cellular dysfunction in the synovial membrane causes synovitis (or inflammation of the synovial lining in joints)07:30 - Patterns of inflammation within the synovial tissue can predict the future evolution of disease for that patient and which anti-rheumatic drugs may be more effective for that patient10:56 - Deb discusses her experience with joint biopsy procedures13:34 - The two methods available for obtaining synovial samples from joint spaces are arthroscopic or ultrasound guided biopsy15:58 - Arthroscopic biopsy may be more precise due to the ability to visualize the inflammation when choosing a sample site17:31 - Please consider providing input on what questions you have about synovial biopsies or participating in clinical research by visiting our website19:41 - What would be the barriers and benefits to you as a patient participating in clinical research?20:44 - Explaining the purpose of any procedure to the patient, especially when procedures are for clinical research and not necessity, is critically important.22:11 - Volunteering for procedures to support clinical research is “an investment in the future.”23:00 - Tiffany invites everyone to visit www.aiarthritis.org/podcast to access resources and provide your thoughts on this topic23:34 - Tiffany thanks Aurélie for her time24:56 - Researchers need patients to participate in clinical trials to benefit the entire AiArthritis community25:10 - IFAA seeks to help researchers develop the right protocols to recruit patient participants 26:03 - Visit aiarthritis.org/podcast to learn how you can help
Welcome to AiArthritis Voices 360. This week, join your host, Tiffany, as she and co-host Suz Schrandt talk about the variety of opportunities that exist for patients who want to become active in medical research, education, and advocacy. Regardless of your background, there are opportunities for you to get involved and help shape the future of medicine and science regarding autoimmune and autoinflammatory arthritis. Your voice matters, and you can make a difference. Pull up a chair to find out how to get started and where your journey could take you. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast, where you can take a seat “at the table” by joining post-episode conversations, nominate future co-hosts, join the official podcast Club and more! Show Notes: Episode 8 – “Where Can Patients Use Their Voice? Everywhere!” 00:53 – Tiffany welcomes listeners and co-host, Suz Schrandt01:12 – Suz is the Senior Patient Engagement Advisor for the Society to Improve Diagnosis in Medicine (SIDM) and Founder of a patient engagement initiative, ExPPect01:31 – Suz explains the mission of ExPPect04:39 – Suz explains how she got involved with patient engagement07:47 - Tiffany explains how she started working with PCORI (Patient-Centered Outcomes Research Institute) 09:55 - Patient research partners are equal members of research teams10:22 - There are many opportunities to get involved in patient-centered research11:00 - Patients can become ambassadors for PCORI 13:00 - European Patients Academy on Therapeutic Innovation, the European Patients Forum, and the Innovative Medicines Initiative are all European resources for getting involved as a patient researcher14:00 - International Society for Pharmacoeconomics and Outcomes Research (ISPOR) hosts patient representative round-tables all over the globe15:56 - The US Food and Drug Administration (FDA) also has opportunities for patient involvement in the development and approval process for new medications17:06 - Patients can partner directly with pharmaceutical companies to conduct research19:03 - Most of these opportunities include some preliminary training to equip patients with the skills they need to fully participate 20:56 - The US does not have a singular Health Technology Assessment body like many other countries.21:37 - Patients in countries that have an HTA body can serve as co-reviewers to help determine which therapies will be funded24:08 - Instead, the US has the Institute for Clinical and Economic Review (ICER) which has some opportunities for patient participation25:03 - Patients can be Advocates for the American College of Rheumatology 25:37 - Patients can provide input when medical specialty organizations are developing their clinical practice guidelines 27:05 - Patients can serve as Medical Educators by joining local hospital patient and family advisory councils 29:51 - Patient Focused Medicines Development (PFMD) has a repository of people, projects, and best practice guidelines for patient engagement called SYNaPsE 31:13 - Tiffany thanks Suz for coming onto the show to talk about patient engagement opportunities31:26 - Tiffany thanks listeners and invites everyone to visit www.aiarthritis.org/podcast to access resources and provide your thoughts on this topic32:00 - IFAA is recruiting patients to join AiArthritisVoices.org to get involved
Esse foi um ano especial. Fechamos nossa primeira temporada com 44 episódios, muitas horas de conteúdo e muito aprendizado nesta mídia apaixonante. Neste último papo da temporada nós apresentamos nosso plano para o próximo ano e terminamos com um compilado de nossos erros de gravação de 2019! Vamos rir? E só lembrando: quer vir aos EUA, estagiar em fazendas Americanas? Visite o site da IFAA e saiba como nosso parceiro pode facilitar sua vida nesta missão! See omnystudio.com/listener for privacy information.
Esse foi um ano especial. Fechamos nossa primeira temporada com 44 episódios, muitas horas de conteúdo e muito aprendizado nesta mídia apaixonante. Neste último papo da temporada nós apresentamos nosso plano para o próximo ano e terminamos com um compilado de nossos erros de gravação de 2019! Vamos rir? E só lembrando: quer vir aos EUA, estagiar em fazendas Americanas? Visite o site da IFAA e saiba como nosso parceiro pode facilitar sua vida nesta missão! See omnystudio.com/listener for privacy information.
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. We invite you to join your host Tiffany as she talks about New Year's Resolutions. Are you planning to be the healthiest version of yourself in 2020? The odds of keeping New Year's Resolutions are low - for all people - because of commitment issues. We understand...those living with AiArthritis diseases often will not commit to activities that could be affected by flares. This includes activities related to eating healthy and exercising. So we are planning to start an education and support style group to encourage communication between those diagnosed and their families and friends, as well as for those diagnosed to support one another by sharing tips and success stories. Would you like to join a group of fellow AiArthritis patients who want to choose better diet and exercise habits in the new year (personalized therapy/full body therapy)? Sign up the button to learn more, tell us what you want to work on in 2020, and sign up to be part of a group that shares and supports personalized therapy in the new year! *IFAA advocates in favor of both personalized therapy (which can include medications and/or non-pharmacologic options) and precision medicine. These two, while incorrectly used at times interchangeably, are different. Personalized medicine/personalized therapy is a regimen based on personal preferences and often includes a whole body approach to health improvements. Precision medicine is science-based, where medical treatments are developed based on targeting specific markers in a persons' blood.
Welcome to AiArthritis Voices 360. This week, join your host, Tiffany, as she gives the 2019 Year End Report on IFAA’s work to benefit the AiArthritis Community. You will have a front row seat as she explains the important work IFAA has been doing since its inception and the organization’s goals for 2020. IFAA needs your support to continue these projects. Learn how you can help make a difference in medical research, patient advocacy, pharmaceutical development, spreading awareness, public and physician education, and improving the quality of life of patients living with AiArthritis diseases. Learn more about this episode and all the projects mentioned in this show at https://www.aiarthritis.org/podcast-ep7!AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast, where you can take a seat “at the table” by joining post-episode conversations, nominate future co-hosts, join the official podcast Club and more! 00:56 – Tiffany welcome listeners01:55 – IFAA was founded to prevent people from experiencing Tiffany’s struggle to obtain a diagnosis03:10 – AiArthritis diseases that are not found early can result in permanent changes to a person’s life04:15 – Please consider gifting to IFAA so that we can continue our mission04:35 - IFAA is driven by the idea that patient experiences are key to finding solutions that impact education, advocacy, and research on AiArthritis diseases 07:00 - IFAA facilitated conversations among patients that helped to create a list of early symptoms of AiArthritis Diseases to help physicians and patients recognize symptoms as early in the disease progression as possible8:00 - IFAA listens to all patient opinions and uses that input to create solutions10:00 - In 2015, IFAA launched an investigation of the ethics of step therapy14:05 - IFAA realized that insurance companies were basing decision on research gathered from clinical trials which excluded a majority of patients because their disease progression did not fit the standard18:16 - IFAA established World AiArthritis Day to educate people about Autoimmune and Autoinflammatory Arthritis 18:45 - IFAA promotes understanding of the early symptoms of AiArthritis so that patients and physicians will seek input from rheumatologists sooner 20:04 - IFAA used this information to create early detection models and provided them to primary care physicians to assist in early identification of patients with AiArthritis symptom onset. We need your support to continue this work21:00 - IFAA is actively seeking individuals who have symptoms but no diagnosis so that researchers can collect early symptom information that is not based on recall after the fact. This work is unprecedented and is based on needs identified by medical researchers.22:37 - This work is funded by donations, not grants23:00 - IFAA has spent a year developing AiArthritis Voices, an online forum for promoting education, advocacy, and research of AiArthritis Diseases24:08 - AiArthritis Voices 360 Podcast was the result of an Innovation Award Grant 24:43 - This podcast was founded to give people around the world a voice in the important discussions about AiArthritis Diseases, even if they are not able to participate in online forums or medical conferences 25:55 - IFAA cannot continue our work with the online forum or the podcast without support from donors26:20 - In 2019, IFAA started working on the Patient Reported Stills Disease Brochure Project to identify patient reported early symptoms of Stills Disease 28:35 - IFAA hopes to expand this project to create patient reported brochures for the other AiArthritis diseases28:47 - IFAA attended 2 rheumatology conferences in 2019: American College of Rheumatology (ACR) and the European League Against Rheumatism (EULAR) to collect information and disseminate it our members.29:10 - IFAA needs donor funding to collect information at conferences and share it via the podcast and the online forum30:00 - IFAA partnered with the Rheumatology Nurses Society on our precision medicine project as a result of meeting them at the ACR conference in 2018; attendance is important!32:28 - In 2020, IFAA will develop an educational component to teach patients the difference between precision medicine and personalized medicine34:15 - In 2020, IFAA will continue to develop the AiArthritis Voices online forum and seek to train patients to act as focus group moderators to decrease the cost of medical research36:08 In 2020, IFAA will continue to focus on educating the public about biosimilar treatment options37:38 - IFAA will continue working to protect access to treatment for patients with employer-provided health insurance in the US41:00 - IFAA will be hosting our first Gala, The Auto Ball, on Friday, May 15th at the National Museum for Transportation in St Louis, MO, which will also serve as the official launch party countdown to World AUTOimmune & AUTOinflammatory Arthritis Day, May 20th. Let us know if you want to get involved!44:24 - IFAA needs your support to continue the important work we are doing to benefit the AiArthritis Community44:43 - One time gifts can be made at www.aiarthritis.org/donate45:00 - Vocal Impact Partners can make a monthly gift beginning at $10 per month, Sign up at www.aiarthritis.org/VIP46:15 - Tiffany thanks listeners for their support of the podcast and IFAA
Olha só esse feat! O podcast Agrodepende nos visitou para papearmos sobre a vida do vendedor do agro. Falamos sobre a fama de “veneneiro”, das decisões profissionais que norteiam essa profissão e também das vantagens de se trabalhar nesta área. Então não perca tempo. Ouça o nosso papo e conheça nossas impressões sobre este nicho aquecido do mercado de trabalho no agro! E para você que ainda não conhece o seu melhor parceiro na hora de fazer intercâmbio em fazendas americanas essa é du chance. Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e faça suas malas! See omnystudio.com/listener for privacy information.
Olha só esse feat! O podcast Agrodepende nos visitou para papearmos sobre a vida do vendedor do agro. Falamos sobre a fama de “veneneiro”, das decisões profissionais que norteiam essa profissão e também das vantagens de se trabalhar nesta área. Então não perca tempo. Ouça o nosso papo e conheça nossas impressões sobre este nicho aquecido do mercado de trabalho no agro! E para você que ainda não conhece o seu melhor parceiro na hora de fazer intercâmbio em fazendas americanas essa é du chance. Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e faça suas malas! See omnystudio.com/listener for privacy information.
Dando inicio aos papos da serie de tecnologias no agro conversamos sobre o uso de drones e outras tecnologias na pesquisa AGRO. Para ajudar a compreensão do papel da formação profissional neste cenário tivemos como convidado deste episodio o Estudante de engenharia agronômica Andre Petrossino, que foi estagiário do Netto na Universidade de Columbia nos últimos 6 meses. Papo bom sobre compreensão e uso de agrotecnologias que só nos deixa ansiosos para os outros que ainda estão por vir sobre este tema. Lembrando que se você quer vir aos EUA, estagiar em fazendas americanas, o PapoAgro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman
Dando início aos papos da serie de tecnologias no agro conversamos sobre o uso de drones e outras tecnologias na pesquisa AGRO. Para ajudar a compreensão do papel da formação profissional neste cenário tivemos como convidado deste episodio o estudante de engenharia agronômica Andre Petrossino, que foi estagiário do Netto na Universidade de Columbia nos últimos 6 meses. Papo bom sobre compreensão e uso de agrotecnologias que só nos deixa ansiosos para os outros que ainda estão por vir sobre este tema. Lembrando que se você quer vir aos EUA, estagiar em fazendas americanas, o PapoAgro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Dando início aos papos da serie de tecnologias no agro conversamos sobre o uso de drones e outras tecnologias na pesquisa AGRO. Para ajudar a compreensão do papel da formação profissional neste cenário tivemos como convidado deste episodio o estudante de engenharia agronômica Andre Petrossino, que foi estagiário do Netto na Universidade de Columbia nos últimos 6 meses. Papo bom sobre compreensão e uso de agrotecnologias que só nos deixa ansiosos para os outros que ainda estão por vir sobre este tema. Lembrando que se você quer vir aos EUA, estagiar em fazendas americanas, o PapoAgro te oferece o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. We invite you to join your host Tiffany as she talks about trying to differentiate between flu and flare. Are you coming down with a virus? Or is your AiArthritis flaring? We want to start a conversation about how you manage your flares. How do you juggle work, family, and life when you feel terrible and look fine? Tiffany also invites listeners to visit www.aiarthritis.org/talk to get involved in IFAA’s annual Talk To Impact AiArthritis. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes!
Welcome to AiArthritis Voices 360. This episode, your hosts Tiffany and Kaleb Michaud from FORWARD Databank, as they tune in from the American College of Rheumatology (ACR) meeting to discuss the importance of navigating your own health journey as a patient by having a voice in activities such as databanks and registries. FORWARD, and the associated projects mentioned, will not only help patients become more active in managing their own healthcare, the patient contributions will also benefit the advancement of science and the understanding of rheumatology. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast, where you can take a seat “at the table” by joining post-episode conversations, nominate future co-hosts, join the official podcast Club and more!Show Notes: Episode 5 – “Patient Registries with Kaleb Michaud” 00:52 – Tiffany welcomes listeners1:20 – Co-host Kaleb Michaud introduces himself as an associate professor at the University of Nebraska Medial School and co-director of Forward, The National Databank for Rheumatic Diseases and as a patient with Juvenile Rheumatoid Arthritis03:17 - Kaleb presented at the American Conference for Rheumatology about International Registries for Rheumatology04:10 - Forward is a patient-driven registry based on detailed survey responses collected from patient participants08:53 - The Forward wants you to participate, whether you are doing really well or really poorly or anything in between09:43 - Registries monitor patient journeys to benefit scientific understanding of rheumatic diseases10:41 - Kaleb explains his decision to become a medical researcher 11:57 - Tracking patient symptoms over time can lead to more accurate diagnosis and treatment because patients may not be aware of incremental progression 13:38 - Long questionnaires encourage patients to thoroughly interrogate their own health and reflect on how they are doing14:34 - One patient, Mary Felstiner, wrote a book titled Out of Joint about the experience of completing the questionnaires. 17:10 - People who participate in registry studies statistically live longer than patients who choose not to participate. 18:04 - IFAA is creating our own databank, A Community Team (ACT). We are currently working on the second phase of the project, dubbed ACT II. For more information visit www.aiarthritis.org/ACTII19:05 - Tiffany invites listeners to check out www.aiarthritis.org/aiarthritis-voices, the sister site of the Voices 360 Podcast, where you can contribute your ideas for ACT II as well as all of our episodes! 20:12 - IFAA and FORWARD are also using the new AiArthritisVoices.org platform - and associated databank - to focus on patients who are diagnosed with Undifferentiated Disease, or struggling to get a diagnosis, so they can track onset symptoms in real time21:00 - Tiffany invites listeners to connect anyone who is struggling to be diagnosed with the site21:10 - Kaleb points out that all the patient responses to questionnaires are read by members of the team, and all information is used22:30 - Kaleb invites people to visit www.forwarddatabank.org/ to get involved with Forward22:45 - Listeners can email Kaleb directly with questions at kaleb@ndb.org22:53 - Tiffany thanks listeners and Kaleb for joining her for this episode23:02 - IFAA wants to hear from you if you have been very involved in managing your own healthcare23:10 - If you have feedback about the registry experience, we would love to hear from you as well23:30 - Visit www.aiarthritis.org/podcast to get involved
Neste Agrodrops apresentamos rapidamente alguns pensamentos sobre o futuro das tecnologias do agro para introduzir uma nova série de episódios que irão mergulhar neste tema que deve estar entre os principais focos de agricultores e profissionais do agro que desejam alcançar a altos rendimentos. E para você que deseja vir aos EUA estagiar em fazendas americanas, te oferecemos o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman
Neste Agrodrops apresentamos rapidamente alguns pensamentos sobre o futuro das tecnologias do agro para introduzir uma nova série de episódios que irão mergulhar neste tema que deve estar entre os principais focos de agricultores e profissionais do agro que desejam alcançar a altos rendimentos. E para você que deseja vir aos EUA estagiar em fazendas americanas, te oferecemos o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Neste Agrodrops apresentamos rapidamente alguns pensamentos sobre o futuro das tecnologias do agro para introduzir uma nova série de episódios que irão mergulhar neste tema que deve estar entre os principais focos de agricultores e profissionais do agro que desejam alcançar a altos rendimentos. E para você que deseja vir aos EUA estagiar em fazendas americanas, te oferecemos o parceiro certo! Visite o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba mais! Rede Agrocast - @redeagrocast @bugbitespodcast @cpvpodcast @esalqast @noticias_do_front @papoagropodcast @thomer.durman See omnystudio.com/listener for privacy information.
Welcome to AiArthritis Voices 360. This episode, your hosts Tiffany and Kelly are joined by special furry co-host Georgia Grace as they dive into the topic of animals and pet ownership. Learn about the difference between service, emotional support, and therapy animals and how owning a pet can benefit people living with chronic illness. They also discuss tips for selecting and caring for pets in spite of mobility challenges and weakened immune systems. Finally, learn about the experience of owning a pet with a chronic illness and how it can enrich your life. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast, where you can take a seat “at the table” by joining post-episode conversations, nominate future co-hosts, join the official podcast Club and more!Show Notes: Episode 4 – “Animals” 00:52 – Tiffany welcomes listeners1:00 – Tiffany introduces Georgia Grace of “Making Lemonade with Georgia Grace” and owner, Kelly Conway, co-founder of IFAA.01:45 - Georgia Grace is a 10 year old Cavalier King Charles Spaniel who has 10 chronic illnesses and was initially given a life expectancy of only 3 years02:47 - Georgia’s story06:49 - Georgia is a certified therapy dog08:17 - 3 types of animals that are prominent in the AiArthritis community: emotional support animals, service animals, and therapy animals09:45 - Tiffany adopted a rescue named Jack to help her combat depression and a sense of isolation10:35 - Members of the AiArthritis community often depend on service, therapy, or emotional support animals to improve their quality of life11:01 - Service animals are individually trained to perform tasks for their handler (ex: pulling wheelchairs, guiding the visually impaired, alerting high blood sugar or impending seizure)11:33 - Emotional Support animals are usually dogs or cats, but not always12:00 - Some people are abusing the accommodations for emotional support animals, which has a negative impact on people who genuinely need them13:22 - Emotional support animals are specific to psychiatric disabilities and “other mental impairments” - which can include depression or anxiety14:12 - Therapy animals must pass the Canine Good Citizen Test to be licensed, and only dogs with a very specific disposition will be able to pass the exam even after receiving intense training16:56 - Therapy dogs must not beg for food, bark, climb or jump on people, react to loud noises, walk reliably on a leash, etc. 18:24 - Never approach a service animal or attempt to touch them or allow your children to do so18:32 - People are able to pet therapy dogs as that is a big part of their function18:41 - Only pet an emotional support animal if the owner allows it19:51 - One of the benefits of pet ownership for people with chronic illness is that it can force the owner to exercise, which is good for patients even though the motivation can be very challenging when someone is in pain or not feeling well21:00 - Not all breeds are a good choice for people with chronic illness. Researching breeds can inform choices based on exercise requirements, grooming requirements, space needs, etc. 22:20 - Having any pet can decrease blood pressure, according to the CDC22:38 - Owning pets can encourage patients with chronic illness to socialize, which can also help with feelings of isolation22:48 - If someone travels a lot, they should consider more independent pets like cats versus a dog that will require continuous care24:18 - Having a weakened immune system can be an issue for pet owners due to zoonotic diseases, which are infections spread to humans by animals.27:24 - People with weakened immune systems should wash hands after petting animals or handling their food.27:37 - Scratches from animals can turn into cellulitis when you have a weakened immune system. 28:53 - Kelly discusses the experience of owning a chronically ill dog.31:57 - Kelly was surprised at how many owners of chronically ill pets also have a chronic illness.34:00 - Kelly shares tips for living well with pets even if you are battling a chronic illness.39:50 - Tiffany and Kelly ask listeners to contribute their best tips to living more comfortably with a pet when you and/or the pet have a chronic illness.41:06 - IFAA will publish safety tips about living with pets and weakened immune systems.41:27 - IFAA will publish information about traveling internationally with service or emotional support animals.41:49 - Tiffany asks listeners to log onto our website and let us know who you would like to have on the podcast in the future.42:06 - This episode serves as the official launch for IFAA’s Annual Talk to Impact AiArthritis. Learn more at www.aiarthritis.org/talk42:52 - Kelly will be giving away a “pawtographed” copy of Making Lemonade With Georgia Grace and a Living Well With Chronic Illness photo calendar to one lucky winner. Donate to the Talk to Impact AiArthritis to enter the contest.44:00 - Talk to Impact is an annual charity fundraiser to generate end of year funds for IFAA so we can continue all of the work that we do. 45:20 - Tiffany thanks listeners and furry guests and invites everyone to check out www.aiarthritis.org/podcast
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. We invite you to join your host Tiffany as she tackles the sensitive topic of explaining the experience of AiArthritis to other people in your life. IFAA would like to hear from you! How do you explain your disease to others? Visit us online to take your seat at the table. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes!
Welcome to AiArthritis Voices 360.This episode join your host, Tiffany, and special guest Dr. Apostolos Kontzias from the Center of Autoinflammatory Diseases, as they discuss the distinction between these two sides of the immune system, and the diseases that stem from them. Inconclusive laboratory results, a shortage of experts in the field, and poor understanding of these conditions can cause diagnostic delays, leading to poor outcomes. This confusion also causes patients with adult onset diseases become a forgotten subgroup within the AiArthritis community.AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast, where you can take a seat “at the table” by joining post-episode conversations, nominate future co-hosts, join the official podcast Club and more!You can also CONTINUE the conversation by visiting THIS LINK, where you can share your comments, questions, and recommendations for autoimmune and autoinflammatory educational materials. Show Notes: Episode 3 – “Autoimmune vs Autoinflammatory” 00:52 – Tiffany welcomes listeners01:49 – This episode will explain autoimmune vs autoinflammatory arthritis02:41 - “Auto” in both terms means immune mediated 03:13 - This will be an ongoing discussion beyond today’s episode04:29 - Tiffany welcomes special guest, Dr. Apostolos Kontzias05:24 - Dr. Kontzias’ credentials07:40 - Dr. Kontzias explains the distinction between autoimmune and autoinflammatory, which both stem from the immune system, just different sides (“innate” vs “acquired”)09:00 - Autoinflammatory patients usually lack laboratory markers for autoimmune disease - despite inflammatory symptoms - which can cause a diagnostic delay 09:23 - Both autoimmune patients and autoinflammatory patients can present with arthritis and other common features (fatigue, varying degrees of fevers)10:16 - Autoinflammatory syndromes are innate (of unknown cause, from the primal part of the immune system) and thus can present early in life, but some do not present until adulthood11:42 - Either type of immune response may be initially triggered by environmental factors, but also environmental factors can trigger disease activity12:12 - Viral infections can trigger autoinflammatory syndromes12:25 - Menstruation can trigger increases in symptoms for female patients for either type of disease12:55 - Some conditions “bridge” the two types and can have features of both adaptive and innate immunity. 14:14 - By definition, patients with autoinflammatory conditions have an immune system that does not recognize the patient’s own structural components of their cells15:17 - Fevers and rashes are often markers for autoinflammatory conditions. General markers for inflammation without laboratory results that support traditional autoimmune diagnoses are also predictive of autoinflammatory conditions17:37 - Tiffany thanks Dr. Kontzias for his time18:37 - IFAA working on designing informational brochure about Stills Disease based on patient input19:28 - Patients report that there are differences between pediatric and adult Stills Disease even though scientifically they are the same 20:34 - Adults have extreme difficulty receiving accurate diagnosis for Stills Disease because the medical community only considers it as a plausible diagnosis for children21:02 - IFAA wants to shine a light on those with adult onset autoinflammatory conditions because they are often a forgotten subgroup within our community22:36 - Tiffany points out that there are so many patients who are told they do not have a problem because they do not have the positive lab results or biomarkers, including autoimmune (not specific to autoinflammatory, requires further discussion)23:22 - Dr. Kontzias and IFAA want all medical professionals to listen to patients24:13 - What else do you need to understand to help with your journey? Submit responses at www.aiarthritis.org/podcast24:19 - If you are a medical professional, we want to hear your ideas on how we can help people understand these diseases better and lead to earlier detection or better disease management. Submit responses at www.aiarthritis.org/podcast25:09 - Tiffany thanks listeners for tuning in to learn more about the difference between autoimmune and autoinflammatory diseases.
Welcome to this week’s episode of AiArthritis Voices 360: At The Table. We invite you to join your host Tiffany as she discusses the need to differentiate arthritis types to address misunderstandings that lead to relationship conflicts and early diagnosis, which can result in compromised quality of life and elevated costs to our healthcare systems. If you have ever felt like nobody understood your disease, or you want to help IFAA create educational materials for the public and practitioners to help stop the information, then this episode is for you. Let’s start a conversation about educating patients, families, the medical community, and the public about the type of arthritis associated with having an autoimmune or autoinflammatory disease. Visit us online to take your seat at the table and submit YOUR comments: www.aiarthritis.org/podcast AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes! You can also nominate patient co-hosts, submit topic suggestions, join our VIP giving group or the FREE podcast Club.
Welcome to AiArthritis Voices 360. This episode join your host, Tiffany, as she and co-host Deb Constien discuss the challenges faced by patients who experience atypical disease presentations, especially the need to advance our understanding of this phenomenon because the typical is not so typical. This concept is vital for early detection and improving outcomes. They also explore the ways that a lack of commonality among disease presentation and progression impact advancements in treatment options. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Find us on the web at www.aiarthritis.org/podcast to learn more about this show, to meet our Co-Hosts, nominate additional Co-Hosts, support the podcast and more. Also, whether you are a patient, doctor, researcher or other stakeholder affected by this topic, please submit your input, which will be added to the future discussions. Show Notes: Episode 2 – “Typical vs Atypical” 01:04 – Welcome Co-Host Deb 01:24 – Typical is not so typical02:39 – What does atypical mean?03:06 – Why IFAA focuses on atypical presentation of disease04:20 - Only 30-40% of patients respond to “typical” treatment protocols for their diagnosis05:43 - Deb’s Story13:39 - Atypical presentation can affect treatment options which impacts longterm prognosis15:25 - Deb’s disease progression has slowed significantly and she is able to repair some of the previous damage 18:19 - Shortage of available rheumatologists makes atypical diagnoses even more challenging due to extended wait times21:58 - Senior patients may have trouble getting a diagnosis because arthritis is automatically attributed to age 23:30 - Unavailability of MRIs can be another barrier to accurate and timely diagnosis 25:31 - Lack of insurance or lack of coverage with some insurance plans can limit patient access to treatment options 26:38 - Participating in clinical trials can give patients access to otherwise prohibitively expensive treatment options, but only if they fit the typical model for the diagnosis32:24 - Invitation to visit AiArthritis.org/podcast and share your story with IFAA 33:15 - How should IFAA define typical and atypical? Visit the website to participate in the discussion. 34:25 - Tiffany thanks listeners for tuning in
Welcome to the first MINI-episode of AiArthritis Voices 360: "At The Table". These short shows focus on issues that we feel require immediate feedback, which is then applied directly to our projects or resources that go back to the community. This episode, join your host Tiffany and IFAA volunteer and person diagnosed with Rheumatoid Arthritis, Deb. Deb is preparing for reconstructive surgery on her left foot and will have to face 10-12 weeks of recovery with absolutely no weight-bearing on the surgical foot. She does not feel hopping is an option, nor are crutches or a cane - because she has fused hands and wrists from being diagnosed 30 years ago (pre-modern practiced therapies). Whether it’s surviving a flare or recovering from procedures, many of you have lived through these challenges and have good advice for others. We invite you to share your voice and expertise with our community. Listen to the episode then take your seat at the table by joining the conversation on our Facebook, Twitter, and Instagram pages and by submitting your comments HERE. We will use this information to help others, like Deb, by developing tips and resources. YOUR INPUT can be part of these materials! AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes!
Neste papo discutimos vantagens, desvantagens, preconceitos e tudo mais sobre aqueles profissionais que trabalham 100% focados no Agro mas sem necessariamente sujar as botas. Amanda Reis, uma bióloga focada no Agro foi nossa convidada e dividiu conosco as doçuras e lamúrias de ser um profissional do Agro que não costuma ver quando o clima muda lá fora. Não custa lembrar, se você ainda não falou com a IFAA e tem planos de estagiar em fazendas americanas, é hora de visitar o site http://www.ifaa-usa.org/pt-br/ e fazer as malas!
Neste papo discutimos vantagens, desvantagens, preconceitos e tudo mais sobre aqueles profissionais que trabalham 100% focados no Agro mas sem necessariamente sujar as botas. Amanda Reis, uma bióloga focada no Agro foi nossa convidada e dividiu conosco as doçuras e lamúrias de ser um profissional do Agro que não costuma ver quando o clima muda lá fora. Não custa lembrar, se você ainda não falou com a IFAA e tem planos de estagiar em fazendas americanas, é hora de visitar o site http://www.ifaa-usa.org/pt-br/ e fazer as malas! See omnystudio.com/listener for privacy information.
Neste papo discutimos vantagens, desvantagens, preconceitos e tudo mais sobre aqueles profissionais que trabalham 100% focados no Agro mas sem necessariamente sujar as botas. Amanda Reis, uma bióloga focada no Agro foi nossa convidada e dividiu conosco as doçuras e lamúrias de ser um profissional do Agro que não costuma ver quando o clima muda lá fora. Não custa lembrar, se você ainda não falou com a IFAA e tem planos de estagiar em fazendas americanas, é hora de visitar o site http://www.ifaa-usa.org/pt-br/ e fazer as malas! See omnystudio.com/listener for privacy information.
Episode Description Welcome to the first episode of AiArthritis Voice 360. This episode, join your host, Tiffany, as she introduces her mission at the International Foundation for Autoimmune and Autoinflammatory Arthritis, which is all about championing the voices of patients to solve the problems most affecting those diagnosed with AiArthritis diseases. This week she is joined by Kelly Conway, IFAA co-founder, to talk about their experience of being Mystery Patients and to share their diagnosis story. The route to diagnosis and treatment is often long and complicated.Listen to the episode then take your seat at the table by joining the conversation on our Facebook, Twitter, and Instagram pages and by submitting YOUR story HERE. Submissions will be used to develop further conversations and community resources. AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). Find us on the web at www.aiarthritis.org/podcast where you can join many conversations on former and future episodes! Show Notes: Episode 1 – “Mystery Patient” 00:55 – Meet show host, Tiffany 01:10 – Tiffany's Diagnosis01:45 – AiAVoices 360 Podcast Mission Statement02:21 – Welcome Co-host Kelly03:10 – History of Founding of International Foundation for Autoimmune & Autoinflammatory Arthritis (IFAA)03:34 – Tiffany's Mystery Patient Story08:25 – How did Tiffany and Kelly Meet?09:25 – IFAA begins as a Movement11:52 – How a Movement Became a Foundation13:20 – Kelly's Mystery Patient Story26:55 – IFAA is a growing/evolving organization30:00 – Plans for the Podcast moving forward (Weekly episode, breakouts, etc)30:55 – Mystery Patients (no correlation between lab values and symptoms) and "must be stress" assumption 32:45 – How will the podcast serve as a resource for patients 33:44 – Invitation to submit questions and comments by visiting aiarthritis.org/podcast, especially Your Diagnosis Story36:11 – Tiffany thanks listeners for tuning in 36:40 – Invitation to be co-host or guest on show by visiting aiarthritis.org/podcast37:14 – Invitation to follow IFAA on social media37:23 – Invitation to follow Kelly's blog "As My Joints Turn" at https://asmyjointsturn.com/or on FB and Twitter 38:00 – Invitation to join other patients on AiArthritis Voices, a private forum for patients only run by IFAA. (aiarthritisvoices.org) LAUNCHING SOON!39:15 – Future plans: taking the podcast on the road! 40:20 – Invitation to support the podcast (details on aiarthritis.org/podcast and aiarthritis.org/VIP)40:47 – Closing
Vocês perguntaram e a gente trouxe o chefe pra responder!!! Um papo com dois convidados internacionais pra mostrar pra vocês que ir estagiar em fazendas nos EUA pode ser um divisor de águas na sua vida pessoal e profissional! E maissss... tem sorteio de brinde entre os ouvintes que fizeram perguntas. Quem será que ganhou?
Estávamos ali, finalizando um papo sobre resistência a defensivos, e aí não resistimos e começamos a falar sobre tecnologia de aplicação... e assim, do nada, nasceu esse episódio informativo e divertido sobre uma das principais ferramentas do manejo fitossanitário. Vamos falar sobre pulverização agrícola? Quer mais informação sobre como estagiar em fazendas dos Estados Unidos? Visite http://ifaa-usa.org/pt-br/ e saiba como a IFAA pode ser a ponte que faltava entre você e essa experiência. See omnystudio.com/listener for privacy information.
Estávamos ali, finalizando um papo sobre resistência a defensivos, e aí não resistimos e começamos a falar sobre tecnologia de aplicação... e assim, do nada, nasceu esse episódio informativo e divertido sobre uma das principais ferramentas do manejo fitossanitário. Vamos falar sobre pulverização agrícola? Quer mais informação sobre como estagiar em fazendas dos Estados Unidos? Visite http://ifaa-usa.org/pt-br/ e saiba como a IFAA pode ser a ponte que faltava entre você e essa experiência. See omnystudio.com/listener for privacy information.
Sem condição para escrever uma descrição para este episódio especial da semana das crianças. Só amor por estas criaturinhas lindas que toparam conversar conosco sobre o Agro. Manu, de 7 anos e Icaro de 11 nos dividiram conosco suas visões sobre o que é o Agro. Vocês vão se surpreender com esse papo e se divertir muito com estes dois. Sem mais, corra lá e ouça esses pequenos. Se você não der pelo menos uma risada bom sujeito não é! Para mais informações sobre a IFAA e sobre como ir estagiar em fazendas nos EUA visite http://www.ifaa-usa.org/pt-br/
Sem condição para escrever uma descrição para este episódio especial da semana das crianças. Só amor por estas criaturinhas lindas que toparam conversar conosco sobre o Agro. Manu, de 7 anos e Icaro de 11 nos dividiram conosco suas visões sobre o que é o Agro. Vocês vão se surpreender com esse papo e se divertir muito com estes dois. Sem mais, corra lá e ouça esses pequenos. Se você não der pelo menos uma risada bom sujeito não é! Para mais informações sobre a IFAA e sobre como ir estagiar em fazendas nos EUA visite http://www.ifaa-usa.org/pt-br/ See omnystudio.com/listener for privacy information.
Sem condição para escrever uma descrição para este episódio especial da semana das crianças. Só amor por estas criaturinhas lindas que toparam conversar conosco sobre o Agro. Manu, de 7 anos e Icaro de 11 nos dividiram conosco suas visões sobre o que é o Agro. Vocês vão se surpreender com esse papo e se divertir muito com estes dois. Sem mais, corra lá e ouça esses pequenos. Se você não der pelo menos uma risada bom sujeito não é! Para mais informações sobre a IFAA e sobre como ir estagiar em fazendas nos EUA visite http://www.ifaa-usa.org/pt-br/ See omnystudio.com/listener for privacy information.
Eiii! Conta pra gente o quanto você sabe sobre aviação agrícola. Qual o papel do agrônomo e o tamanho da frota brasileira destinada a operações agrícolas? Acha que sabe mais que o Netto e menos que a Kezia? Corre aqui que nosso Agrodrops que, mesmo curtinho, tá trazendo muita informação legal e introduzindo um papo que vai ser muito mais completo sobre o tema!!! E apertem os cintos que o Agrodrop sobre Aviação Agrícola já decolou e tá no ar! Aproveite o tema e agende seu estágio em fazendas nos EUA visitando o site da IFAA em http://ifaa-usa.org/pt-br/.
Papo final da série Resistência, falamos sobre inseticidas. Como lidar com este problema e principalmente, como associar essa preocupação com todas as outras que já abordamos até aqui? Neste papo temos a presença de Anderson da Silva, professor de entomologia da UFRA Paragominas e coordenador do GIMIP, grupo de estudos voltados ao ensino, pesquisa e extensão em Manejo Integrado de Pragas, em condições amazônicas de produção. Falamos sobre os conceitos de MIP e como lidar com os problemas de resistência dos insetos a inseticidas. Também tivemos a participação do convidado vip e frequente, além de invasor de instagram e candidato a membro Vitor Anunciato (ufa... acabei ahahaahaha). Enfim, ouça o papo que tá mais legal que a legenda! Mas antes de ir... fala sério! Você quer vir pros EUA estagiar em fazendas americanas e não visitou o site da IFAA? Mais uma chance, visite http://ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode facilitar sua vida na hora de realizar seus planos! Para conhecer mais sobre o IRAC, comitê de ação a resistência a inseticidas visite https://www.irac-br.org/ See omnystudio.com/listener for privacy information.
Eiii! Conta pra gente o quanto você sabe sobre aviação agrícola. Qual o papel do agrônomo e o tamanho da frota brasileira destinada a operações agrícolas? Acha que sabe mais que o Netto e menos que a Kezia? Corre aqui que nosso Agrodrops que, mesmo curtinho, tá trazendo muita informação legal e introduzindo um papo que vai ser muito mais completo sobre o tema!!! E apertem os cintos que o Agrodrop sobre Aviação Agrícola já decolou e tá no ar! Aproveite o tema e agende seu estágio em fazendas nos EUA visitando o site da IFAA em http://ifaa-usa.org/pt-br/. See omnystudio.com/listener for privacy information.
Eiii! Conta pra gente o quanto você sabe sobre aviação agrícola. Qual o papel do agrônomo e o tamanho da frota brasileira destinada a operações agrícolas? Acha que sabe mais que o Netto e menos que a Kezia? Corre aqui que nosso Agrodrops que, mesmo curtinho, tá trazendo muita informação legal e introduzindo um papo que vai ser muito mais completo sobre o tema!!! E apertem os cintos que o Agrodrop sobre Aviação Agrícola já decolou e tá no ar! Aproveite o tema e agende seu estágio em fazendas nos EUA visitando o site da IFAA em http://ifaa-usa.org/pt-br/. See omnystudio.com/listener for privacy information.
A terra do Tio Sam nunca esteve tão próxima da sua realidade! O papo de hoje é mais um da série Intercâmbio, que traz um convidado com muito jeito pra esse negócio de podcast: Murilo Bortolotti! O Murilo, que assim como a Lorenna foi aos EUA pela IFAA, se uniu á nossa host para compartilhar suas experiências dentro e fora das fazendas dos EUA. Com um ano inteiro de imersão na cultura dos americanos trabalhando em fazendas no Wisconsin, Missouri and Minnesota, eles dividem conosco toda a bagagem e informação que faltava pra você dar esse passo na sua carreira! Corre pra ouvir e se inspirar a conhecer os EUA de um jeito agro! Gostou do papo? visite já o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode te ajudar a viver essa mesma experiência! See omnystudio.com/listener for privacy information.
A terra do Tio Sam nunca esteve tão próxima da sua realidade! O papo de hoje é mais um da série Intercâmbio, que traz um convidado com muito jeito pra esse negócio de podcast: Murilo Bortolotti! O Murilo, que assim como a Lorenna foi aos EUA pela IFAA, se uniu á nossa host para compartilhar suas experiências dentro e fora das fazendas dos EUA. Com um ano inteiro de imersão na cultura dos americanos trabalhando em fazendas no Wisconsin, Missouri and Minnesota, eles dividem conosco toda a bagagem e informação que faltava pra você dar esse passo na sua carreira! Corre pra ouvir e se inspirar a conhecer os EUA de um jeito agro! Gostou do papo? visite já o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode te ajudar a viver essa mesma experiência! See omnystudio.com/listener for privacy information.
A terra do Tio Sam nunca esteve tão próxima da sua realidade! O papo de hoje é mais um da série Intercâmbio, que traz um convidado com muito jeito pra esse negócio de podcast: Murilo Bortolotti! O Murilo, que assim como a Lorenna foi aos EUA pela IFAA, se uniu á nossa host para compartilhar suas experiências dentro e fora das fazendas dos EUA. Com um ano inteiro de imersão na cultura dos americanos trabalhando em fazendas no Wisconsin, Missouri and Minnesota, eles dividem conosco toda a bagagem e informação que faltava pra você dar esse passo na sua carreira! Corre pra ouvir e se inspirar a conhecer os EUA de um jeito agro! Gostou do papo? visite já o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode te ajudar a viver essa mesma experiência! O Papo Agro é a reunião de diferentes olhares, visões e experiencias sobre essa pujante, complexa e, porque não dizer, encantadora indústria chamada agronegó-cio! Venha conosco, compartilhar ideias, discutir conceitos, explorar assuntos conhecidos ou não, sempre de uma forma descontraída e divertida, em áudio, vídeo, textos e todas as outras mídias que nos conectem ao nosso mundo: O Agro! Início: 2019 Periodicidade: semanal Novos episódios: às quartas Host: José Netto, Lorenna Meireles e Kezia Gonçalves Site: www.papoagro.com.br
Dando sequência ao nosso agrodrops da semana anterior vamos aprofundar nosso papo sobre resistências à defensivos agrícolas falando sobre Fungicidas. Quais os principais grupos químicos que já apresentam fungos resistentes? Porque isso ocorre? o que podemos fazer para evitar e conviver com este problema? Quer saber nossos pensamentos sobre estas questões? Então corre lá na sua plataforma de áudio predileta e ouça mais esse Papo Agro cheio de informação para você. E se você ainda não marcou sua passagem para ir aos EUA estagiar em uma fazenda norte-americana tá perdendo tempo, visite já o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode facilitar sua vida. See omnystudio.com/listener for privacy information.
Dando sequência ao nosso agrodrops da semana anterior vamos aprofundar nosso papo sobre resistências à defensivos agrícolas falando sobre Fungicidas. Quais os principais grupos químicos que já apresentam fungos resistentes? Porque isso ocorre? o que podemos fazer para evitar e conviver com este problema? Quer saber nossos pensamentos sobre estas questões? Então corre lá na sua plataforma de áudio predileta e ouça mais esse Papo Agro cheio de informação para você. E se você ainda não marcou sua passagem para ir aos EUA estagiar em uma fazenda norte-americana tá perdendo tempo, visite já o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode facilitar sua vida. See omnystudio.com/listener for privacy information.
Dando sequência ao nosso agrodrops da semana anterior vamos aprofundar nosso papo sobre resistências à defensivos agrícolas falando sobre Fungicidas. Quais os principais grupos químicos que já apresentam fungos resistentes? Porque isso ocorre? o que podemos fazer para evitar e conviver com este problema? Quer saber nossos pensamentos sobre estas questões? Então corre lá na sua plataforma de áudio predileta e ouça mais esse Papo Agro cheio de informação para você. E se você ainda não marcou sua passagem para ir aos EUA estagiar em uma fazenda norte-americana tá perdendo tempo, visite já o site da IFAA em http://www.ifaa-usa.org/pt-br/ e saiba como nosso parceiro pode facilitar sua vida. O Papo Agro é a reunião de diferentes olhares, visões e experiencias sobre essa pujante, complexa e, porque não dizer, encantadora indústria chamada agronegó-cio! Venha conosco, compartilhar ideias, discutir conceitos, explorar assuntos conhecidos ou não, sempre de uma forma descontraída e divertida, em áudio, vídeo, textos e todas as outras mídias que nos conectem ao nosso mundo: O Agro! Início: 2019 Periodicidade: semanal Novos episódios: às quartas Host: José Netto, Lorenna Meireles e Kezia Gonçalves Site: www.papoagro.com.br
Este Agrodrops traz a tona uma discussão sobre um importante insumo da agricultura mundial. Os defensivos. É um papo introdutório que apresenta alguns conceitos importantes sobre este tema e abre uma serie de papos técnicos onde abordaremos as resistências às principais classes de defensivos agrícolas. Então corre lá e ouça este papo curtinho e muito informativo. E para você que sonha em fazer um estágio em uma fazenda americana e ainda não visitou o site da IFAA fica aqui mais uma chance. Clique em http://www.ifaa-usa.org/pt-br/ e realize seu sonho! See omnystudio.com/listener for privacy information.
Este Agrodrops traz a tona uma discussão sobre um importante insumo da agricultura mundial. Os defensivos. É um papo introdutório que apresenta alguns conceitos importantes sobre este tema e abre uma serie de papos técnicos onde abordaremos as resistências às principais classes de defensivos agrícolas. Então corre lá e ouça este papo curtinho e muito informativo. E para você que sonha em fazer um estágio em uma fazenda americana e ainda não visitou o site da IFAA fica aqui mais uma chance. Clique em http://www.ifaa-usa.org/pt-br/ e realize seu sonho! See omnystudio.com/listener for privacy information.
In this episode, they discuss why we are seeing record-high auction figures, the increase in mortgages being written and changes around introducer fees. This week they discuss: - Release of IFAA figures - Consumer Access to Mortgages report - Best interests duty and what it involves
Tem curiosidade em saber como é a experiência de morar fora do Brasil para estudar? Esse papo é pra você! Desta vez recebemos a nossa já veterana de papos Ana Vidoti e nosso também amigo Cleiton Silva que, juntos com Lorenna, nos contaram como o intercambio na Argentina, Inglaterra e Estados Unidos, mudou suas vidas. Este papo marca o início de nossa parceria com a IFAA, a empresa que pode facilitar sua vida na hora de realizar o sonho de ir para os EUA e estagiar em fazendas de produtores americanos! Então ouça o nosso papo e depois visite http://www.ifaa-usa.org/ e prepare as malas rumo a esta incrível e imersiva oportunidade que pode transformar o seu futuro! See omnystudio.com/listener for privacy information.
Tem curiosidade em saber como é a experiência de morar fora do Brasil para estudar? Esse papo é pra você! Desta vez recebemos a nossa já veterana de papos Ana Vidoti e nosso também amigo Cleiton Silva que, juntos com Lorenna, nos contaram como o intercambio na Argentina, Inglaterra e Estados Unidos, mudou suas vidas. Este papo marca o início de nossa parceria com a IFAA, a empresa que pode facilitar sua vida na hora de realizar o sonho de ir para os EUA e estagiar em fazendas de produtores americanos! Então ouça o nosso papo e depois visite http://www.ifaa-usa.org/ e prepare as malas rumo a esta incrível e imersiva oportunidade que pode transformar o seu futuro! See omnystudio.com/listener for privacy information.
In this episode:Hosts: Denis Loubet, Jamie Boone, Kevin Stein, Matt Dillahunty[News] Indigenous tribes threatened by christian missionaries[News] 7-year-old dies while being punished for not memorizing bible verses[News] Kim Davis must pay her own legal bills; Gov. says she failed to execute her duties as county clerk in refusing to issue marriage licenses for legally valid applications from same-sex couples.[Mail] Relates story about David Wood, a psychopath, who learned morals from the bible/christian moral code because fear of eternal damnation.[News] 286 catholic priests who have abused children named by catholic leaders in Texas[SHIT] Anti-Muslim activists with IFAA attacked 2 Muslim women during prayer call, accusing CAIR of being terrorist-linked organization because sharia law in America. And greatness.
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