Podcasts about linksif

This episode is about VAD, or voluntary assisted dying, and the realities of legalising VAD for doctors, patients and our broader communities. Host Tash Miles speaks with television and podcast presenter and founder of Go Gentle Australia, Andrew Denton, oncologist Dr Cameron McLaren and regional Victorian GP Dr Nola Maxfield.Victoria was the first Australian state to pass VAD laws, coming into effect in 2019. Our guests reflect on what this has meant for patient safety and choice in dying, what challenges have arisen and what the future could hold.LinksIf you have found themes of this episode upsetting, please contact Lifeline on 13 11 14. DRS4DRS offer an independent, safe, supportive and confidential service for medical practitioners drs4drs.com.au.· Healthcare Professions for Assisted Dying Choice· Go Gentle Australia· Our first conversation about VAD with Dr Charlie Corke and Dr Scott Blackwell on the law and patient choice

SummaryGreg and Eric are back for Season 4! This episode begins with a big announcement about what Greg and Eric have been up to (0:01:17), followed by some Good News (0:06:11) and Feats of Strength (0:19:49). After that, Eric discusses some new research that appears to vindicate plant-based proteins (0:28:48), and Greg discusses new research about how BMI, fat mass, and fat-free mass relate to mortality risk (0:49:03). They close out the show with some practical tips from a Coach’s Corner segment (1:15:33), a few miscellaneous Q&As (1:20:12), and some cooking info to wrap up the episode (2:13:58).LinksIf you’d like to receive Research Roundup emails, please sign up for our email list. To join in on the SBS conversation, check out our  Facebook group and subredditFinally, next time you stock up on supplements from BulkSupplements.com, be sure to use the promo code “SBSPOD” (all caps) to get 5% off your entire order.Time StampsWe’ve been building a diet app! (0:01:17). Good news  (0:06:11). Feats of Strength (0:19:49). Research Review (0:28:48). Plant proteins revisited:https://pubmed.ncbi.nlm.nih.gov/26224750/. https://pubmed.ncbi.nlm.nih.gov/33670701/. https://pubmed.ncbi.nlm.nih.gov/33172506/. https://pubmed.ncbi.nlm.nih.gov/33599941/. Relation of body fat mass and fat-free mass to total mortality (0:49:03):https://academic.oup.com/ajcn/article/113/3/639/6092216How your Myers-Briggs score dictates your intermittent fasting protocol (1:03:16). Very brief p-ratio update (1:13:46). https://www.strongerbyscience.com/p-ratios/. https://www.strongerbyscience.com/p-ratios-rebuttal/. https://www.strongerbyscience.com/p-ratios-rebuttal-2/. https://www.youtube.com/watch?v=QACnWACSZrs. Coach’s Corner (1:15:33). Q&A (1:20:12). Do mouthguards impact performance? (1:20:58). https://onlinelibrary.wiley.com/doi/10.1111/idj.12406. https://pubmed.ncbi.nlm.nih.gov/16888465/. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6323169/. https://pubmed.ncbi.nlm.nih.gov/19583574/. https://pubmed.ncbi.nlm.nih.gov/22290521/. https://pubmed.ncbi.nlm.nih.gov/25187241/. What are the connections between flexibility and hypertrophy or strength training? (1:24:44). Is ATP supplementation effective for performance enhancement? (1:36:34). Is phosphatidic acid supplementation effective? (1:40:40). https://www.researchgate.net/publication/340968601_Emerging_Nutritional_Supplements_for_Strength_and_Hypertrophy_An_Update_of_the_Current_LiteratureAre sugar-sweetened beverages inherently bad for health? (1:49:26). https://academic.oup.com/ajcn/advance-article-abstract/doi/10.1093/ajcn/nqz271/5651310?redirectedFrom=fulltexthttps://pubmed.ncbi.nlm.nih.gov/31116420/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199877/Does neck strength influence concussion risk? (1:56:33). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6222152/Should volume, intensity, and/or frequency of training be titrated based on whether one is cutting or bulking? (2:04:51). To Play Us Out: Olive oil blondies of Sohla El-Waylly (2:13:58): https://www.youtube.com/watch?v=oQk9JmtJ2FcCheck Greg’s Instagram for macro-friendly meal prep recipes: https://www.instagram.com/gregnuckols/

Fireside chats are a collection of conversational, off-topic episodes hosted by Greg Nuckols. In Fireside Chat #10, Greg sits down with Eric Trexler to discuss imposter syndrome, sports, life after COVID, and a bunch of other miscellaneous topics.LinksIf you’d like to receive Research Roundup emails, please sign up for our email list. To join in on the SBS conversation, check out our new Facebook group and subreddit. Finally, next time you stock up on supplements from BulkSupplements.com, be sure to use the promo code “SBSPOD” (all caps) to get 5% off your entire order.Time StampsFeelings on Ohio State’s shot at next year’s college football championship (0:02:57). Post-COVID activities (0:10:03). Zombie survival gear (0:13:27). What led to Eric’s previous statement: “If you can’t go down to the courthouse and get married today because you are already married, then that is too married to call yourself single” (0:15:57). Update on The Netherlands Situation (0:17:32). Imposter syndrome (0:19:48). Food rationing strategies on a deserted island (0:27:47). If you could design the perfect human to excel at your chosen sport, what would that human look like and be like? (0:30:08). Favorite fitness influencers by sense of humor/personality (0:46:03). Post-COVID travel (0:52:35). Food and cooking stuff (0:58:13). 

On today’s episode we are seizing the yay with boss babe, lawyer turned funtrepreneur Sarah Davidson!Born in South Korea, at 6 months old, Sarah was adopted by a beautiful Australian family. She started off her career as a lawyer at a top tier firm and after an incredible sliding doors moment, quit corporate life to start her entrepreneurial journey. Sarah is the co-founder of Matcha Maiden and Matcha Mylkbar. Outside of her (matcha) grind, she also runs the incredibly successful podcast Seize the Yay which has amassed millions of independent downloads with guests such as Miranda Kerr and Gary Vaynerchuk.She has also published a book - Seize the Yay and is regularly a guest speaker at events hosted by Vogue, Lululemon and League of extraordinary women just to name a few. We’ve only scratched the surface of her incredible legacy of work but omg we're so excited to share with you our convo with the bubbly and effervescent Sarah Davidson today.E P I S O D E O U T L I N E------------------------------------------Who is Sarah, an introductionGrowing up as an adopted South Korean AustralianCultural identity crisis and internalised racismFrom lawyer to 'funtrepreneur'Sliding doors momentsBirth of her startups Matcha Maiden and Matcha MylkbarHow she maintains such a positive outlook on lifeSeizing the YAY!T I M E S T A M P S--------------------------------00:39 Intro to who Sarah Davidson is01:40 Discussion beginsYou can follow Sarah on Instagram and check out her ventures and projects below: @spoonful_of_sarahspoonfulofsarah.com/linksIf you'd like to continue the conversation, please message us. We’d love to hear from you, feel free to slide into our dms on instagram: @unapologeticallyazn or send us an email: unapologeticallyasianpodcast@gmail.comAlso, thanks to Scoopy Milk Bar for sponsoring this episode. For the month of March, 2021, you can use our code UA10 during checkout for 10% off their menu! Check out their website and Instagram @scoopymilkbar for their sweet desserts!Much love, ♥︎ Thuy and Tiana (UA ✌︎)✨Music✨Joakim KarudSay GoodnightSoundcloudSpotifyLakey InspiredChill DayYouTube

I'm Philip Holden and this is Ideas in Writing - the podcast where we talk to people about words and books and the how, why, when and where of writing. The guests bring along a word and so do I...it's all downhill from there on...In this episode I talk to the award-winning writer David Quantick whose TV credits include The Day Today, So Graham Norton, Harry Hill's TV Burp and Veep for which he won an Emmy. he's also written and presented shows on radio and TV and has now written several novels and books about the craft of writing.Given that I was speaking to a comedy writer, there is a spectacularly badly judged and poorly delivered joke at about the 1 hour mark..from me. If you are of a sensitive disposition etc etc...The word David brought along was wednesday not in itself an interesting definition, but it leads on to the curious word 'hebdomad'. My word, absurdism isn't there, but absurd and surrealism are both so you can explore these words at the fun Visuwords dictionary just by clicking them. Take a look at the links below to order David's books or some of the other titles we mentioned.Ideas in Writing is produced with the support of Mr Books Bookshop in Tonbridge - the home of inspiring, imaginative and intelligent books, gifts and conversation. They're on Twitter too @mrbooks_ton. But most importantly of all, eventually you will be able visit them (in the lovely market town of Tonbridge in Kent) for a browse any Wednesday to Saturday 10am to 5pm...eventually...Don't forget to subscribe for new episodes coming up.CREDITS & linksIf you're interested, you can check out the words we contributed by clicking these links through to the Visuwords dictionary. Wednesday may not seem very interesting, but it leads on to the word ‘hebdomad’. Check it out.Absurdism isn’t in the dictionary though absurd is so you’ll just have to make do (or you could look up surrealism I guess), You can click on the links here to order any of David’s books (though some are due to be reprinted to keep checking)Night Train is his latest and David has thoughtfully provided a link to his Night Train playlist on Spotify!David's other recent novels are here - All My Colours and The Mule. For help and inspiration in your writing try David's How to be a Writer or How to Write Everything. David talked about NF Simpson as a forerunner of the Goons and Monty Python. Ian Greaves has edited a recent compilation of some of his work entitled Most of What Follows is a Complete Waste of Time. David was also reading the Elizabeth Jane Howard Cazalet Chronicles. There are five books in the series so you can read them in order...The Light Years Marking Time Confusion Casting Off All Change Jonathan Meades Peter Knows what Dick Likes isn’t currently in print (though I’m sure we could track down a copy) but his Pedro and Ricky Come Again : Selected Writing 1988-2020 is published in March so you can order it now.George Saunders Booker winning author of Lincoln in the Bardo had A Swim in a Pond in the Rain published in January. And there are lots of memoirs, poetry and collections of writing by Clive James. David recommended Cultural Amnesia : Notes in the Margin of My Time which can also be ordered just by clicking on the link.All the books you order through these links help support Mr Books and this podcast and, if you can't find exactly what you're looking for, just visit the Mr Books webiste at www.mrbooks.co.uk and we'll do our best to track it down for you.Ideas in Writing is recorded and produced by Philip Holden using Zencastr and Acast.comThe Ideas in Writing theme "Farting Around" is by Kevin MacLeod Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/The "Light Easy March" sting is by ...dog http://www.besonic.com/dog See acast.com/privacy for privacy and opt-out information.

SummaryThis is the final episode of season 3, and it features a couple of really in-depth research reviews. After some Good News and Feats of Strength, Eric takes a deep dive into a commonly-held belief in the evidence-based fitness world, and discusses whether or not getting lean will enhance your ability to gain muscle by improving your insulin sensitivity and increasing your p-ratio. After that, Greg has an excellent review covering the topic of ischemic preconditioning, followed by a Q&A segment in which Greg and Eric answer a couple of common questions with some very practical applications.Content warning: In Greg’s research review, he discusses research that was carried out in dogs. If you love dogs as much as Greg and Eric do, this might be upsetting, and you might want to skip that part of the show. If so, please skip the discussion that occurs between 1:07:16 and 1:09:56.LinksIf you’d like to receive Research Roundup emails, please sign up for our email list. To join in on the SBS conversation, check out our new Facebook group and subreddit.Finally, next time you stock up on supplements from BulkSupplements.com, be sure to use the promo code “SBSPOD” (all caps) to get 5% off your entire order. TIME STAMPSIntro/Announcements (0:01:00). Good news (0:04:17). Feats of Strength (0:12:44). Research Review: P-Ratios and Hypertrophy (0:20:02). Relevant studies: https://pubmed.ncbi.nlm.nih.gov/10865771/https://pubmed.ncbi.nlm.nih.gov/17367567/https://pubmed.ncbi.nlm.nih.gov/31263701/https://pubmed.ncbi.nlm.nih.gov/29559726/ Research Review: Ischemic Preconditioning (1:04:22). Relevant studies:https://pubmed.ncbi.nlm.nih.gov/33312313/https://pubmed.ncbi.nlm.nih.gov/17446439/https://pubmed.ncbi.nlm.nih.gov/2060105/https://pubmed.ncbi.nlm.nih.gov/31333890/  Content warning begins: discussion of invasive research carried out in dogs (1:07:16). Content warning ends: discussion of dog research is complete (1:09:56). Q&A (1:28:02). Can you gain muscle while eating at maintenance calories if you’re getting adequate protein and have body fat to spare? (1:28:28). Do you think that new lifters might be better off by initially avoiding an “evidence-based” approach to training and nutrition? (1:29:54). What are some recipes for high-volume, low-calorie foods for limiting hunger when you’re trying to get shredded? (1:44:49). To Play Us Out: SMART goals and cooking flavor pastes (1:50:45). 

SummaryToday’s episode features some Good News and Feats of Strength, followed by a huge Research Roundup to get you all caught up on recent happenings in the world of exercise science and sports nutrition. Topics covered include optimal protein intake, essential amino acids, meal timing, lactate, relationships between sleep and hunger, and muscle memory. Greg also discusses a recent study suggesting that adding strength phases to your training may promote greater hypertrophy. This study has made the rounds on social media and been widely discussed in the evidence-based fitness world, but there are some important details to consider before drawing conclusions on the topic. Finally, to play them out, Eric and Greg discuss some major food controversies that have shaken Eric to his core.LinksIf you’d like to receive Research Roundup emails, please sign up for our email list. To join in on the SBS conversation, check out our new Facebook group and subreddit.Finally, next time you stock up on supplements from BulkSupplements.com, be sure to use the promo code “SBSPOD” (all caps) to get 5% off your entire order.Time StampsIntro/Announcements (0:01:00). Good news: COVID vaccines, open science (0:04:12). Feats of Strength (0:17:16). Research Roundup (0:24:33). Optimal Protein Intake (0:25:15). Article discussed: Dose–response relationship between protein intake and muscle mass increase: a systematic review and meta-analysis of randomized controlled trials. Essential Amino Acids (0:35:39). Article discussed: Essential Amino Acids and Protein Synthesis: Insights into Maximizing the Muscle and Whole-Body Response to FeedingMeal Timing (0:42:55). Articles discussed: Late eating is associated with cardiometabolic risk traits, obesogenic behaviors, and impaired weight loss. Higher eating frequency is associated with lower adiposity and robust circadian rhythms: a cross-sectional study. Impact of Meal Frequency on Anthropometric Outcomes: A Systematic Review and Network Meta-Analysis of Randomized Controlled Trials. Danny Lennon’s article on chrononutrition. Preceding a Hypertrophy Phase with a Strength Phase (0:52:22). Article discussed: Is stronger better? Influence of a strength phase followed by a hypertrophy phase on muscular adaptations in resistance-trained men. Sleep and Hunger (1:13:45). Article discussed: Caloric and Macronutrient Intake and Meal Timing Responses to Repeated Sleep Restriction Exposures Separated by Varying Intervening Recovery Nights in Healthy Adults. Lactate (1:22:23). Articles discussed: The emerging role of lactate as a mediator of exercise-induced appetite suppression.Resistance to exercise-induced weight loss: compensatory behavioral adaptations. Potential involvement of lactate and interleukin-6 in the appetite-regulatory hormonal response to an acute exercise bout. Lactate as a Signaling Molecule That Regulates Exercise-Induced Adaptations. Muscle Memory (1:40:07). Article discussed: Muscle memory: myonuclear accretion, maintenance, morphology, and miRNA levels with training and detraining in adult mice. To Play Us Out: Major food conspiracies (1:49:15). 

“I have had an identity of being different from such an early age that it's never even occurred to me to try to fit in with those around me.” That’s how Adriane Armstrong, CEO of the nonprofit social enterprise Juma Ventures, explains why she chose a career in the nonprofit sector while her classmates were pursuing for-profit, high tech startups. For many, going against the grain isn’t easy. In this interview, Adriane tells her story including the early experiences that motivated her to want to help others and the strategic, deliberate steps she took to build a career where she could do exactly this. It’s an inspiring story filled with practical advice that anyone can use, especially those considering working in the nonprofit sector. Our long-time listeners know that every year around the holidays, we like to feature the career journey of someone making a difference in the lives of others. This year, we’re thrilled to have Adriane as our guest and to highlight the work of Juma Ventures. Juma operates businesses with the purpose of employing young people. Its mission is to break the cycle of poverty by paving the way to work, education, and financial capability for youth across America.Meet the GuestAdriane Gamble Armstrong has dedicated her career to the nonprofit sector, working on issues ranging from education and community development to public health and environmental justice. Common threads in her work have been the pursuit of social justice and serving underserved communities. Adriane found Juma as a volunteer in 2005, joined staff as Managing Director of Programs in 2011, and became CEO in 2017. Prior to her appointment to CEO, Adriane served for three years as COO, and oversaw the programs & partnerships, evaluation, finance, information technology, human resources and operations functions of the agency. Through Adriane’s efforts in team building, partnership development and strategic execution, Juma has grown from a $3M organization in three cities, to the current footprint of six markets serving more than 1,000 youth per year with a budget of $7M.Adriane serves on the board of the Hidden Genius Project, and sits on the Council of Nonprofit Leaders for Charity Navigator. She previously served on the board of Huckleberry Youth Programs, and is an alumna of the American Express Leadership Academy. Prior to joining Juma, Adriane managed a housing and social services program for youth aging out of foster care with Local Initiatives Support Corporation. Adriane holds an MBA with an emphasis in nonprofit management from the Stanford Graduate School of Business, as well as an M.A. in social psychology and a B.A. in comparative studies in race and ethnicity from Stanford University. She resides in Oakland with her husband and two sons.LinksIf you’re interested in getting involved or donating to Juma Ventures, visit Juma.org.

Boy are we in over our heads on this one! Join Justin and Jesse as they wade through the listener-picked topic of Self-Governance. From Gary Demar to Abraham Kuyper, the men pull out as much as they can for you in 40 minutes, so put on your listening ears and be edified! (That's our prayer at least...)RESOURCES & LINKSIf you're looking for a tome, Gary Demar's book is one for you. Here's God and Government.If you want something more digestible, here's Gary Demar on the topic in a conversation with the Fallkirk Center for Faith and Liberty.An extremely brief treatment on the background of Kuyper by Doug Wilson and Toby Sumpter.Scripture referenced: Genesis 2:15-17; Judges 17:6; 1 Sam 8:10-18; Titus 3:3

You may have heard the saying “feedback is a gift”. In this episode, we dive deep into what feedback is (and isn’t), how to ask for it if you’re not getting any, and some of our tips and tricks about how to send, receive, and ultimately grow from feedback. Seeking feedback and seeking validation are not the same thing. If you build the relationship, feedback will come. Feedback is ultimately about listening. View the full show notes and extras on our website: www.morethanayoungprofessional.com/Resources & LinksIf you’re trying to figure out how to find a mentor, try this book: Find an Old Gorilla by Bert Thornton, former President & COO of Waffle House, Inc.How to run effective daily scrum meetings guide The E-Myth Revisited: Why Most Small Businesses Don't Work and What to Do About It by Michael Gerber“Leaders who don’t listen to others will eventually be surrounded by people who have nothing to say.” - Andy StanleyKeep this conversation going with us @morethanayp on Instagram, Facebook, and Twitter.You can find your hosts:Justin Oswald: @JustinOswald_ (twitter & instagram)Ruthie Christie: @RuthieChristie (twitter)Meg Rich: @MeganinFL (instagram)

I often talk about suicide like it's a statistic—the fact that it was the leading cause of death for teenage boys in Canada in 2018, for example; that rates of suicide attempts among trans youth are as high as 78%; that 70% of mental heatlh problems begin in childhood or adolescence.  Suicide is more than numbers. It's a difficult and ongoing thing that I face in my conversations with young people, and it's personal. I wanted to write something for World Suicide Prevention Day, but it was hard. This whole thing is hard.In the end, that's what made me decide to record this. It's messy. It has broken edges and a slam poem that I wrote in a single night five years ago. But it's my effort at saying something worth saying.If you are in crisis, Kids Help Phone is accessible and anonymous 24/7 at 1-800-668-6868, text CONNECT to 686868 or live chat at kidshelpphone.ca. 911 for emergencies.LINKSIf you thought this piece was worthwhile, support it on Patreon .Email breakingtheboycode@gmail.com to get in touch. Connect with @boypodcast on all mainstream social media. Follow the publication on Medium for more writing and the blog on Tumblr for more masculinity research and occasional podcast-related updates.Supported by Next Gen Men .

I’d first like to take a moment to thank everyone who responded to my last podcast episode. I honestly though it may well be time to turn to something new and give this up. I was very pleasantly surprised to see the response. Thus I am still here and will be coming to you weekly once again. I’d truly appreciate it if you can go to www.patreon.com/comealongfortheridepodcast and become a supporter like these amazing peopleSigne of HorsesRachel Beddingfield from Connection TrainingLouise EhrichLiz EhrichLauren ArcayJessica VoellerFiona WagstaffElisa MansfieldEiddwen SkellonBelinda DawsBelinda AnnePeter PappThis weeks episode was recorded in October 2019 and was a part of Anna Blake’s Australian Tour where I hosted Anna here in South East Qld. This was the evening of day 1 of the clinic. I love doing solo interviews but I really love a live audience where everyone can be involved and great questions are asked, which is what happened here. So being October 2019 this was way before covid so groups of as many people as you like were allowed, it’s hard to remember that kind of time but it happened! I really loved the group that came along to this clinic. It was a place of such great conversation and learning and I’m so glad to be able to share this podcast with you today.If you’d like to learn more about Anna Blake you may want to listen to the first interview I did with her back in episode 22 of the podcast.To connect with Anna you can follow any of these linksIf you'd like to buy Anna's books then you can go to book depository here.To read Anna's blog, organise a session with her or see where her next workshop is you can go to her blog website.She also has an author website here.To connect with Petep Papp from peter and the Herd you can do so here.FacebookInstagram

Interviews with people of interest (including celebrities) and celebrity profiles.This is episode 8 in my series - “Inside the Minds of Musicians – How They are Coping With the Quarantine. In this episode I talk with singer/songwriter, the multi-talented, Corday!Jennifer Corday is an award-winning singer/songwriter/guitarist who's shared stages with Melissa Etheridge, Sarah McLaughlin, Joan Jett, Pat Benatar, Cyndi Lauper, Berlin, and many more. Ranging from acoustic indie to rock, her music and videos have been awarded by LA Weekly, GLAMA Awards, LA Music Awards and she's been a Battle of the Band Finalist for KISS FM and STAR Radio. You may have seen her as an actress on the national Ride With Pride Uber commercial, in award-winning lesbian films, or heard her music in MTV documentaries and numerous movies. As a side project, Corday created the Melissa Etheridge Experience, where she stars as Melissa, performing at large concert venues and casinos across the nation seeking top-notch tribute acts.Ahead, Corday talks about the creative and fun ways she is keeping busy while engaging her fans during this time. She discusses her upcoming album and the title track single, Anchor, and much more.You can follow Entertainment Source Interviews on Facebook and TwitterPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listening Check out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Interviews with people of interest (including celebrities) and celebrity profiles.This is episode 7 in my series - “Inside the Minds of Musicians – How They are Coping With the Quarantine.In this episode I talk with singer/songwriter, Maida (from Germany)Maida is an international recording artist, singer and songwriter from Germany. She is a new upcoming sensation in the American scene and her unique vocal styling has been compared to such headliner as Melissa Etheridge for which Maida performs a tribute to in her live performances.Maida’s high energy on stage has the mesmerizing ability to capture the audience’s attention leaving her fans wanting more. You can follow Entertainment Source Interviews on Facebook and TwitterPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com /jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Interviews with people of interest (including celebrities) and celebrity profiles.This is episode 6 in my series - “Inside the Minds of Musicians – How They are Coping With the Quarantine.In this episode I talk with singer/songwriter, Laura Glyda.Laura grew up heavily influenced by her musical family. They would sing together on road trips and burst into song at the dinner table if someone happened to mention a line from a popular song. She began writing songs at around 5 or 6 years old and hasn’t slowed down.Laura was a guest artist on the 2018 & 2019 Melissa Etheridge cruises. You can follow Entertainment Source Interviews on FacebookPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

This is episode 5 in my series - “Inside the Minds of Musicians – How They are Coping With the Quarantine.In this episode, I talk with singer/songwriter, Brittany Baldwin. Brittany has been compared to Ann Wilson of Heart and Adele. Her powerful voice draws you in and captivates your senses making you want more… more… more!If you enjoy this podcast please subscribe, rate and review on APPLE PODCAST (ITUNES) and where you listen to podcasts.You can follow Entertainment Source Interviews on Facebook and TwitterPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com /jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Interview with Comedian, Vickie ShawVickie's feel-good comedy mixed with her sweet southern style and sharp wit give audiences a memorable experience.If you enjoy this podcast please subscribe, rate and review on APPLE PODCAST (ITUNES) and where you listen to podcasts.You can follow Entertainment Source Interviews on FacebookPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

In this episode I am joined by Victoria "Vix" Maxwell also known as The New Age Hipster. Vix shares her expansion and growth as a successful, spiritual entrepreneur and you'll hear the surprise turn our conversation takes about flow and abundance. As always in these Sacred Conversations we share a honestly as possible all of the ups and downs, highs and lows so that you might get a glimpse of the work and journeys that's brought us to where we're at. I hope you may recognise yourself and know that you too are on your path. You too, can bring to life that which you heart is calling you to. Join The Conversation:https://mariasaraphina.com/newagehipster LINKSIf you enjoyed this video, share it, then subscribe to the channel and If you are ready for deep powerful change I invite you to join my Sacred Community of Radiant Beings here to uplift and awaken the world through wholeheartedness at https://www.mariasaraphina.com I HANG OUT HERE Instagram: https://www.instagram.com/xomariasaraphina My YouTube channel: https://www.youtube.com/channel/mariasaraphina

Interviews with people of interest (including celebrities) and celebrity profiles.This is the 3rd in a series of episodes I am putting together. “Inside the Minds of Musicians – How They are Coping With the Quarantine.In this episode, I talk with Regina Sayles. Each artist has chosen one of their original songs that will be included in the interview.If you enjoy this podcast please subscribe, rate and review on APPLE PODCAST (ITUNES) and where you listen to podcasts.You can follow Entertainment Source Interviews on FacebookPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Interviews with people of interest (including celebrities) and celebrity profiles.On this episode of Entertainment Source Interviews, I talk with Comedian, Poppy Champlin about her career, what she is doing during the Quarantine and her “COVID Comedy”If you enjoy this podcast please subscribe, rate and review on APPLE PODCAST (ITUNES) and where you listen to podcasts.You can follow Entertainment Source Interviews on FacebookPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Interviews with people of interest (including celebrities) and celebrity profiles.This is the second in a series of episodes I am putting together. “Inside the Minds of Musicians – How They are Coping With the Quarantine.In this episode, I talk with Melissa Crispo & Lisa Noe. Each artist has chosen one of their original songs that will be included in the interview.If you enjoy this podcast please subscribe, rate and review on APPLE PODCAST (ITUNES) and where you listen to podcasts.You can follow Entertainment Source Interviews on FacebookPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Interviews with people of interest (including celebrities) and celebrity profiles.This is the first in a series of episodes I am putting together. “Inside the Minds of Musicians – How They are Coping With the Quarantine.In this episode, I talk with “Stormstress” and “Melody Kiser of HeyDreamer.” Each artist has chosen one of their original songs that will be included in the interview.If you enjoy this podcast please subscribe, rate and review on APPLE PODCAST (ITUNES) and where you listen to podcasts.You can follow Entertainment Source Interviews on FacebookPlease visit my website at Entertainment-source.com to see more on the artists including their social media linksIf you would like to make a donation to our tip jar you can do so here: https://tips.pinecast.com/jar/entertainment-source-interviewThanks for listeningCheck out my other podcasts It’s Just A GhostSupport Entertainment Source Interviews by donating to their Tip Jar: https://tips.pinecast.com/jar/entertainment-source-interviewFind out more at https://entertainment-source-interview.pinecast.coThis podcast is powered by Pinecast.

Before New Year, my mum sent me an op ed by Bridie Jabour, opinion editor of the Guardian Australia, called 'The Millennials at 31: Welcome to the Age of Misery'. It is about the distinct loss of ambition, wondering whether we should be defined by our jobs, our houses, whether we should have children and thinking for too long that we're special.The article saw a massive reaction and I knew I had to interview Bridie about it. We talked about everything from the fact that it's even harder to get on the property ladder in Sydney than London, why we are trying to stop reading books for the sake of it and realising that you can be loyal to your work, but your work isn't loyal to you.Hayley Millhouse, from our sponsor OpenMoney, also dives in with a few practical tips on how to deal with financial uncertainty.LINKSIf you're into this topic, I also really enjoyed these articles from other publications:'How Millennials Became the Burnout Generation' in BuzzFeed, 'Workism is Making Americans Miserable' in the Atlantic, and 'Why Do Corporations Speak The Way They Do?' in VultureBridie's debut novel is called My Not So Functional Family. Inspired by Bridie's article, I wrote a newsletter topic on my malaise -- https://mailchi.mp/92c7fcaf239b/thinking-youre-specialContactTweet us @honest_account_ / @bkjabourInstagram: @an_honest_account Email: contact@anhonestaccount.co.uk

In this episode I am joined by Helen Elizabeth Evans, Hand and Fingerprint Analyst Extraordinaire. Helen share openly and honestly about her journey as a successful spiritual entrepreneur. The ups, the downs, the breakthroughs and revelations. Seeing only the results of all of someones work it's easy to think that it was smooth sailing. As you'll hear in this, and everyone of these guest episodes, we all go through dark nights of our soul, rude awakenings, expansion and growth. Join The Conversation: http://www.mariasaraphina.com/2020/02/the-spiritual-business-show-podcast-w-maria-saraphina-guest-helen-elizabeth-evans-hand-fingerprint-analyst/ LINKSIf you enjoyed this video, share it, then subscribe to the channel and If you are ready for deep powerful change I invite you to join my Sacred Community of Radiant Beings here to uplift and awaken the world through wholeheartedness at https://www.mariasaraphina.com I HANG OUT HERE Instagram: https://www.instagram.com/xomariasaraphina My YouTube channel: https://www.youtube.com/channel/mariasaraphina

January 29, 2017 saw the worst mass murder in a house of worship in Canadian history: the Québec City mosque shooting in which six Muslim worshippers were killed and 19 injured.Rehan was ten. “I remember when it happened,” he said on the podcast. “That night, I actually started crying because I was like, ‘What if that ever happened to me?'”Islamophobia is on the rise in Canada. It's perhaps most visible in the forms of explicit violence such as the massacre in Québec City, but it also manifests in schoolyard jokes and whitewashed media. Girls having their hjiabs torn off; refugees being told to leave. A kid like Rehan who can describe racism as easily as his evening prayers.Violence doesn't end just because you cross a border. And just because we can point to a historical event and say that it was an example of Islamophobia doesn't mean that it's not still happening now. It is still happening. We need to talk about it.Continue reading on MediumFurther ReadingFatmeh mentioned the Centre for Race and Culture and recommended their publication Race and Respect as a resource for teachers seeking to teach students about active citizenship and inclusive communities.SourcesJasmin Zine, Islamophobia and hate crimes continue to rise in Canada →Joanna Schroeder, Racists Are Recruiting. Watch Your White Sons. →LinksIf you thought this episode was worthwhile, support it on Patreon.Email breakingtheboycode@gmail.com to get in touch. Connect with @boypodcast on all mainstream social media. Follow the publication on Medium for more writing and the blog on Tumblr for more masculinity research and occasional podcast-related updates.Supported by Next Gen Men.

With the debate about gay rights in the national media last year, homophobia became the mainstay of school hallways in Mumbai. Ash faced this every day with the unplaceable ache of being a closeted gay Hindu boy. “Even though they're not talking to me,” he said on the podcast, “I feel what they say.” So each day he sidestepped one-sided debates that drove homophobic language through his skin, and gradually his helplessness translated to anger.“It was enraging to not be able to stand up for myself. That's one of the things that got to me the most. Because it would be odd for a straight kid to stand up for gay rights. If you take even a slightly pro-gay stance people are definitely going to start questioning you. I can't risk that. But I can't just stand and watch them spew homophobia. So what the hell do I do?”Indian society upholds what Sikata Banerjee calls masculine Hinduism in Mumbai and what Aakriti Kohli calls Sikh martial masculinity in Punjab. Meanwhile Ash is caught on the frontlines, the victim of both the unrelenting pressure and cruel manifestation of a masculine narrative long defined by invulnerability and the domination of others.The irony is that we can follow this thread from modern India to the perceived crisis of masculinity in the British Empire and the consequent rise of muscular Christianity in 19th-century North America. We are inherently part of the construction of boyhood masculinity as it has been for a hundred years.Which means we are part of its redefinition.Continue reading on MediumFurther ReadingI'm going to be sharing more about Love and how to support him through his refugee claim process soon. In the meantime, reach out on social media if you're interested in learning how to support him.SourcesSikata Banerjee, Make me a man!: Masculinity, Hinduism, and nationalism in India →Sikata Banerjee, The Quest for Manhood: Masculine Hinduism and Nation in Bengal →Sanjay Srivastava, The making of toxic Hindu masculinity →Aakriti Kohli, Militarization of Sikh Masculinity →Rohini Nilekani, Boys can't be boys. Here's how to fix India's toxic masculinity problem →Amanda Keddie, Little Boys: tomorrow's macho lads →LinksIf you thought this episode was worthwhile, support it on Patreon.Email breakingtheboycode@gmail.com to get in touch. Connect with @boypodcast on all mainstream social media. Follow the publication on Medium for more writing and the blog on Tumblr for more masculinity research and occasional podcast-related updates.Audio excerpt from University of Victoria. Supported by Next Gen Men.

No matter what sort of challenge a caregiver may be facing -- financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is made more difficult by that accompanying feeling of isolation that so many caregivers experience. My guest is Heidi Telschow, manager of Fairview Health Services' Caregiver Assurance program, a unique program designed to seamlessly connect caregivers to the resources they need.      We're also talking about the eye-popping increase in the prevalence of MS in the United States, now reaching nearly one million adults. We'll tell you about a study that shows how the early use of more intensive MS disease-modifying therapy may provide better outcomes for people living with MS, you'll hear about an Innovation Challenge that could reward your inner entrepreneur with $25,000 in cash, and we'll tell you why the FDA has been asked to fast-track a cannabis-based treatment for spasticity in progressive MS.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ STUDY: MS Prevalence In the United States Nears 1 Million  2:18 STUDY: Long-Term Benefit Seen in Early Use of More Intensive   Disease-Modifying Therapy  5:42 Lyfebulb-Celgene Innovation Challenge in MS  9:04 FDA Requested to Fast-Track Cannabis-Based Treatment for Spasticity in Progressive MS  10:43 My Interview with Heidi Telschow from Caregiver Assurance  12:36 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email:  jonstrum@RealTalkMS.comPhone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with Multiple Sclerosis Validation of an Algorithm for Identifying MS Cases in Administrative Health Claims Datasets The Prevalence of Multiple Sclerosis in the United States: A Population-Based Estimate Using Health Claims Data RealTalk MS Episode 74: Induction vs Escalation Therapy with Dr. Aaron Boster Clinical Outcomes of Escalation vs Early Intensive Disease-Modifying Therapy in Patients With Multiple Sclerosis Application for Lyfebulb-Celgene Innovation Challenge in MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 79 Hosted By: Jon Strum Guest: Heidi Telschow Tags: MS, MultipleSclerosis, MSResearch, TwiceAsMany, Lyfebulb, Caregiving, RealTalkMS

Over the past year, we've seen our access to affordable, quality healthcare come under unprecedented attack. We've seen a federal judge declare the Affordable Care Act to be unconstitutional. And we continue to see our access to affordable prescription medications -- the medications that have been shown to delay the progression of MS and extend the quality of life for everyone living with MS -- that access remains threatened by the constant skyrocketing cost of those medications. That's why advocating on behalf of our own interests is so important to the MS community.     My guest this week is Bari Talente, the Executive Vice-President of Advocacy for the National Multiple Sclerosis Society. We're talking about the National MS Society's upcoming Public Policy Conference, the legislative issues that affect people living with MS in the United States, and the importance of MS advocacy.   We have a lot to talk about! Are you ready for RealTalk MS?!   ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review National Multiple Sclerosis Society: Advocate For Change ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 78 Hosted By: Jon Strum Guest: Bari Talente Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, RealTalkMS

George Pepper was diagnosed with multiple sclerosis in 2009, at the age of 22. He initially found it difficult to connect with others his own age who were living with MS, so George set up a website where people living with MS could meet and share their experiences. That website evolved into an online community called shift.ms, and today, more than 18,000 people participate in the shift.ms community. My guests today are the founder of shift.ms, George Pepper, and Aoife Kirwan, a member of the shift.ms community.      We're also talking about a new report that reminds us that there's a lot of fake health news online, how Medicare rules are costing people living with MS more money, a global response to talking about sex and MS, and a study that will introduce you to the Caregiver Strain Index, a reliable tool in measuring MS caregiver burden.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ A solution to Loneliness & MS   :23 Study Results Warn Against "Fake Online Health News"  2:48 Medicare Policies Cost People With MS More Money  8:50 MS International Federation Talks About Sex & MS  12:57 Caregiver Strain Index Is A Valid Measurement of Caregiver Burden  14:33 My Interview with George Pepper & Aoife Kirwan  18:24 Join The RealTalk MS Conversation  30:25 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review The Most Popular Health Articles of 2018: A Scientific Credibility Review Trends in Coverage for Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D Sex Life & MS Measuring Burden in Caregivers of People with Multiple Sclerosis: Psychometric Properties of the CSI Questionnaire Shift.ms ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 77 Hosted By: Jon Strum Guest: George Pepper & Aoife Kirwan Tags: MS, MultipleSclerosis, MSResearch, Caregiving, ShiftMS, MSIntFederation, RealTalkMS

One of the best ways to maintain physical function, manage the effect of some MS symptoms, and even offset depression is exercise. My guest is Dr. Deborah Backus, the director of Multiple Sclerosis Research at the Shepherd Center in Atlanta. We're discussing the importance of early rehabilitation, the difference that exercise can make for people living with MS, and STEP FOR MS -- an important clinical trial that may turn out to be a game-changer for MS rehabilitation.   We're also talking about what people living with MS need to know about polypharmacy, a new transportation pilot project that's designed to make life easier for people living with MS, why an MS caregiver also needs to be an advocate, what happens when an MS caregiver ignores self-care, and a new clinical trial that will look at non-pharmacological approaches to managing MS chronic pain. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Join the RealTalk MS Conversation   :22 Polypharmacy & Relapsing-Remitting MS  2:39 MS FOCUS's Transportation Pilot Project  6:21 What It Means For an MS Caregiver To Be An Advocate  8:06 What Happens When an MS Caregiver Ignores Self-Care  12:16 Clinical Trial to Study Non-Pharmacological Approaches to Managing Chronic MS Pain Is Recruiting  14:53 My Interview with Dr. Deborah Backus  18:04 Download the RealTalk MS App  33:05 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Polypharmacy in Outpatients With Relapsing-Remitting Multiple Sclerosis: A Single-Center Study Investigators Recruiting People With MS Nationwide To Test Approaches to Managing Chronic Pain: Email: msadapt@uw.edu Phone: (855) 320-8230 STEP FOR MS Study STEP FOR MS Eligibility & Study Sites Shepherd Center   ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 76 Hosted By: Jon Strum Guest: Dr. Deborah Backus Tags: MS, MultipleSclerosis, MSResearch, Caregiving, StepForMS, ShepherdCenter, RealTalkMS

One of the fundamental questions on the minds of just about everyone living with MS is How did I get it? What causes MS?  It's a question that's still awaiting a definitive answer. But as we wait for that answer, science is uncovering more and more information about MS risk factors -- the things that can make living with MS better or worse.   My guest is Dr. Farren Briggs, an epidemiologist who's focused on the etiology, or the cause of multiple sclerosis, and the risk factors that actually impact the course of the disease for an individual. We're also talking about the Progressive MS Alliance's commitment to including the voice of people living with MS in MS research. We'll tell you about a study that looked at predicting physical disability and cognitive dysfunction in people living with MS. You'll hear about a study that evaluated the facts that are available on the Internet about diet and MS, how online relaxation therapy can improve anxiety and depression, new guidelines from the U.K. for pregnancy and MS, and how shared decision-making can lead to greater adherence to MS disease-modifying therapy. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Progressive MS Alliance & Patient Engagement in MS Research   :23 Predicting Physical Disability & Cognitive Dysfunction in MS  2:16 Diet & MS: A Study of Facts vs Beliefs  3:52 Online Relaxation Training Shown To Be Effective in Reducing Anxiety & Depression Among People Living with Long-Term Neurological Conditions  9:57 Guidelines for Pregnancy & MS in the U.K.  11:58 Shared Decision-Making Leads to Greater Adherence to MS Disease-Modifying Therapy  13:40 My Interview with Dr. Farren Briggs  17:34 Add Your Voice To Our Conversation  28:15 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review STUDY: Predicting Clinical Progression in Multiple Sclerosis After 6 and 12 Years STUDY: Diet and Multiple Sclerosis: Scoping Review of Web-Based Recommendations STUDY: The Effects of Relaxation Training On Depression and Anxiety In People Living with Long-Term Neurological Conditions UK Consensus on Pregnancy in Multiple Sclerosis: Association of British Neurologists Guidelines STUDY: Impact of Shared Decision-Making on Disease-Modifying Drug Adherence in Multiple Sclerosis ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 75 Hosted By: Jon Strum Guest: Dr. Farren Briggs Tags: MS, MultipleSclerosis, MSResearch, CWRU, MSDiet

We know about the importance of disease-modifying therapy (DMT) in managing MS and slowing its progression. But you may not know that there are two very different schools of thought when it comes to how and why your neurologist may recommend one DMT over another. My guest is Dr. Aaron Boster, the System Medical Chief for Neuroimmunology at OhioHealth, and we're talking about an important conversation that you should be having with your neurologist. We're also talking about the newly published clinical trial results that demonstrate that stem cell therapy may be more effective than DMT in managing disease progression among people living with relapsing-remitting MS. We'll tell you about a study that shows how mindfulness can be valuable in improving the well-being for people living with MS, we'll tell you about this year's winner of the National MS Society's Barancik Prize for Innovation in MS Research, and if you're living with secondary progressive MS, we'll tell you about a survey that you should really participate in. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Stem Cell Therapy More Effective Than DMT in Managing Progression in Relapsing-Remitting MS   1:27 Mindfulness Improves Well-Being for People Living with MS  4:21 Stress, Depression & Fatigue Impact Caregiver Health Status  6:19 National MS Society Announces Barancik Prize for Innovation in MS Research  7:22 An Important Survey for People with Secondary Progressive MS  9:27 My Interview with Dr. Aaron Boster  11:58 ___________ SHARE YOUR FEEDBACK, QUESTIONS, AND IDEAS I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android STUDY: Effect of Nonmyeloablative Hematopoietic Stem Cell Transplantation vs Continued Disease-Modifying Therapy on Disease Progression in Patients with Relapsing-Remitting Multiple Sclerosis STUDY: Longitudinal Associations Between Mindfulness and Well-Being in People with Multiple Sclerosis STUDY: Quality of Life and Emotional Strain in Caregivers of Patients with Multiple Sclerosis MS Coalition/ICER Survey About Secondary-Progressive MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 74 Hosted By: Jon Strum Guest: Dr. Aaron Boster Tags: MS, MultipleSclerosis, MSResearch, OhioHealthMS, HSCT, Mindfulness, Caregiver, Caregiving, MSSociety, ICER, RealTalkMS

Recent research suggests that loneliness is one more invisible symptom of MS. But social outreach and interaction have never been more accessible.  My guest is Mary Pettigrew, an MS Warrior and social media phenom. In 2014, Mary launched MSPals, a Twitter group that has evolved into a community of more than 5,000 followers. We're talking with Mary about the benefits of connecting online and the importance of finding your creative outlet. We're also talking about new research on the severity and impact of MS fatigue, along with a new smartphone app designed to improve MS fatigue. We'll tell you about a new way of treating spasticity, and we'll give you the details about a new study that's looking at TeleRehab. We'll even tell you how to sign up for the study! We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Severity & Impact of MS Fatigue   2:06 MS TeleCoach App Designed to Improve MS Fatigue  4:31 A New Treatment to Manage Spasticity  6:45 The STEP MS TeleRehab Study  8:17 You Can Participate in the STEP For MS TeleRehab Study  10:23 My Interview with Mary Pettigrew, Founder of MSPals  11:58 ___________ SHARE YOUR FEEDBACK, QUESTIONS, AND IDEAS Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Prevalence of Fatigue and Its Association with Clinical Features in Progressive and Non-Progressive Forms of Multiple Sclerosis Improving Fatigue in Multiple Sclerosis by Smartphone-Supported Energy Management: The MS TeleCoach Feasibility Study Supervised vs Telerehab Exercise program for People With Multiple Sclerosis: Eligibility & Study Sites iConquer MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 73 Hosted By: Jon Strum Guest: Mary Pettigrew Tags: MS, MultipleSclerosis, MSResearch, STEPMS, MSPals, RealTalkMS

Some people living with MS may find that their attention span is shorter than it used to be, or that it takes them longer to process information. Learning directions can be hard, and decision-making may become more difficult. These are all examples of impaired cognition, or cognitive dysfunction.  Cognitive dysfunction can impact people living with relapsing-remitting MS, and it impacts almost everyone living with progressive MS.   My guest is Dr. Nancy Chiaravalloti, the Director of Neuropsychology and Neuroscience Laboratory and Traumatic Brain Injury Research at Kessler Foundation, and we're discussing Dr. Chiaravalloti's breakthrough work in improving cognitive function for people living with MS, and using MRI to actually see those improvements in the brain.       We'll also tell you about some interesting research that revealed what people living with MS consider to be their most important MS treatment goals, you'll hear about a new discovery that explains why the connection between the gut and MS might be really important, we'll talk some more about the importance of an MS Caregiver Protocol, and we'll tell you how you can participate in a new MS research study.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ The Things We'll Be Talking About in 2019   :24 Some Surprising Patient Preferences When it Comes to Assessing MS Treatment  3:17 Gut Immune Cells Cut Inflammation in MS  7:58 The Importance of an MS Caregiver Protocol  10:22 You Can Participate in an Upcoming MS Research Study  12:37 My Interview with Dr. Nancy Chiaravalloti  14:55 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Evaluation of a Novel Preference Assessment Tool for Patients with Multiple Sclerosis Recirculating Intestinal IgA-Producing Cells Regulate Neuroinflammation via IL-10 Feasibility of Web-based CBT-I Intervention in Individuals with Multiple Sclerosis Kessler Foundation Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 72 Hosted By: Jon Strum Guest: Dr. Nancy Chiaravalloti Tags: MS, MultipleSclerosis, MSResearch, KesslerFdn, RealTalkMS

It's our final episode of the year, and we're taking a look back at what you decided were the most important RealTalk MS podcast episodes of the past year. These are the episodes that received the highest number of listener downloads.       We're also polishing our crystal ball, taking a look ahead to 2019, and talking about some of the research that we can expect to be hearing about. We'll even share some of the specific topics that we'll be discussing on the podcast in the coming year.   Thanks to you, 2018 has been an amazing year for RealTalk MS. Are you ready for 2019?! ___________   LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android RealTalk MS Past Episode Archives Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 71 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, RealTalkMS, MSResearch

The holiday season seems to carry with it the message of hope, and of finding the best side of who we are. So one of the gifts that I'm going to unwrap with you is a replay of a conversation that I had earlier this year, with 2 people who epitomize hope, humanity, and love. To me, that's what the holiday is all about, and that's what Dan and Jennifer Digmann are all about.    Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005.   We'll get Dan and Jennifer's thoughts about what life is like when both partners in a marriage have been diagnosed with multiple sclerosis.      We'll also tell you about the research team that may have identified a biomarker for MS (and why that's a very good thing!). We'll share the results of the Phase III clinical trial data analysis that demonstrates that treatment with Ampyra improves walking ability for people living with MS, we'll tell you about the FDA approval of a Phase II clinical trial for a novel stem cell therapy, and you'll hear about the clinical trial that's about to begin for a new cannabinoid-enriched tablet that can help manage MS pain and spasticity.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Possible Biomarker for MS Identified   1:51 STUDY: Treatment With Ampyra Improves Walking Ability  5:27 FDA Approves Phase 2 Clinical Trial for NurOwn Stem Cell Therapy  7:57 Clinical Trial Planned for Cannabinoid-Enriched Tablet  9:35   My Interview with Dan & Jennifer Digmann  11:02 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Possible Biomarker for Multiple Sclerosis Identified Assessment of Clinically Meaningful Improvements in Self-Reported Walking Ability in Particpants with Multiple Sclerosis: Results from the Randomized, Double-Blind, Phase III ENHANCE Trial of Prolonged-Release Fampridine OWC Pharmaceutical Research Corp. Reports the Successful Production of Cannabinoid-Enriched Sublingual Disintegrating Tablet Dan and Jennifer Digmann Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 70 Hosted By: Jon Strum Guest: Dan & Jennifer Digmann Tags: MS, MultipleSclerosis, RealTalkMS, Ampyra, Cannabis, MSResearch, DanandJenniferDigmann

The logistics involved in traveling can be cumbersome, and that's twice as true if you're living with MS. Mobility issues and other special requirements can make travel challenging. But whether you're out exploring the world or just checking into a local hotel for a pampered staycation, travel can add so much to your quality of life. My guest on the podcast is Tarita Davenock. It's been 20 years since Tarita's MS diagnosis. And today, Tarita is the CEO of Travel For All, a travel agency that embraces the philosophy that travel should be inclusive, and not exclusive.       Last week, a federal judge declared the Affordable Care Act to be unconstitutional, and we're talking about what that means for people living with MS. We'll share some newly published results of a stem cell therapy clinical trial, we'll tell you about a study that demonstrates how exercise improves myelin repair in the mouse model of MS, and we'll tell you about CanProCo, a large MS research project just getting underway in Canada.    Jon and RealTalk MS were featured in last week's Causepods podcast. We'll tell you what that's all about, and how Causepods has created a way for you to support the National MS Society.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ The Affordable Care Act Was Ruled Unconstitutional -- What This Means for People Living with MS   2:11 RealTalk MS Is Featured on the CausePods Podcast  6:33 Encouraging Results From Stem Cell Therapy Study, But Questions Still Need To Be Answered  8:18 Ocrevus Approved for Treating Relapsing-Remitting MS in Scotland  10:53 Exercise Promotes Myelin Repair in Mouse Model of MS  12:07 The Canadian Proactive Cohort Study for People Living with MS Will Study 1,000 Canadians Living with MS   14:02 My Interview with Travel For All CEO, Tarita Davenock  16:37 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android National Patient Groups Denounce District Court Ruling Overturning Health Care Law Jon Strum & RealTalk MS on the Causepods Podcast GoFundMe Page Benefiting The National MS Society Prospective Phase II Clinical Trial of Autologous Hematopoietic Stem Cell Transplant for Treatment Refractory Multiple Sclerosis Multimodal Enhancement of Remyelination by Exercise with a Pivotal Role for Oligodendroglial PGC1a Travel For All Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 69 Hosted By: Jon Strum Guest: Tarita Davenock Tags: MS, MultipleSclerosis, MS, RealTalkMS, TravelForAll, ACA, ProtectOurCare, MSActivist, HSCT, Ocrevus, CanProCo, MSSocietyCanada, Causepods

Artificial intelligence is about to change the entire healthcare landscape. And that might very well include how MS is diagnosed, treated, and managed. It's even beginning to impact the way some MS research is being conducted. My guest is the founder and CEO of iQuity, Dr. Chase Spurlock. iQuity is using its expertise in machine learning to improve patient care, drive the creation of new therapies, and reduce the costs associated with managing chronic illness, including multiple sclerosis.      We're also talking about the important but sometimes overlooked difference between MS facts and MS beliefs. We'll tell you about the safety alert that the FDA has issued for Lemtrada, and new survey research from the MS Society in the UK that shows the majority of people living with MS are living with feelings of loneliness and isolation.   You'll hear about new study data that shows the gender differences in MS have some age-related fine points that are worth noting, and we'll tell you about a Phase 3 clinical trial that's looking at the effectiveness of high-dose biotin in slowing or stopping MS progression for people living with progressive MS.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ The Difference Between MS Facts & MS Beliefs   0:22 How AI is About to Disrupt Healthcare 4:21 FDA Issues a Safety Alert for Lemtrada  7:40 MS Society in the UK Survey Research Shows 3 in 5 People Living with MS are Living with Loneliness  9:51 Gender Differences in MS Vary with Age & MS Subtype  13:40 MedDay Phase 3 Clinical Trial for Progressive MS Fully Enrolled  15:55 My Interview with iQuity CEO, Dr. Chase Spurlock  17:50  ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android FDA Warns About Rare But Serious Risks of Stroke & Blood Vessel Wall Tears with Multiple Sclerosis Drug Lemtrada Age-Dependent Variation of Female Preponderance Across Different Phenotypes of Multiple Sclerosis: A Retrospective Cross-Sectional Study iQuity   Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 68 Hosted By: Jon Strum Guest: Dr. Chase Spurlock Tags: MS, MultipleSclerosis, MS, RealTalkMS, mssocietyUK, AI, Lemtrada, MedDay, Biotin, iQuity

Research is the engine that drives us toward better understanding MS, better treating MS, and one day, curing MS. My guest on the podcast is Dr. Larry Sherman, who plays a vital role on the front lines of MS research. We're talking with Dr. Sherman about some of his most significant research and his unique research lab.      We're also talking about two important victories for MS Activists. We'll tell you about the EMA approval of Gilenya for treating pediatric MS, the FDA approval of a generic for Aubagio, new technology that will enable people with MS to pilot their wheelchairs by flexing a couple of facial muscles, and the rehab technique that can benefit Olympic athletes and people living with MS.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ MS Activists Have Something to Celebrate   0:22 National Neurological Conditions Surveillance System Will Study Data for MS 4:48 European Medicines Agency Approves Gilenya for Pediatric MS  6:41 FDA Approves Generic for Aubagio  8:21 New Technology Lets You Pilot a Wheelchair By Flexing Facial Muscles  9:32 Motor Imagery with Verbal Cues & Music May Lead to Improved Walking, Fatigue & Quality of Life for People Living with MS  11:31 My Interview with Dr. Larry Sherman  15:34  ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android National MS Society: Get Involved & Advocate For Change Limbitless Solutions Project Xavier STUDY: Effects and Mechanisms of Differently Cued and Non-Cued Motor Imagery in People with Multiple Sclerosis: A Randomised Controlled Trial Oregon National Primate Research Center Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 67 Hosted By: Jon Strum Guest: Dr. Larry Sherman Tags: MS, MultipleSclerosis, MSsociety, ACA, MSActivist, Gilenya, Aubagio, Limbitless3D, RealTalkMS

We're into the final few days of National Family Caregivers Month, and my guest on the podcast is Scott Williams, Vice President, Head of Global Patient Advocacy and Strategic Partnerships at EMD Serono. We're talking with Scott about EMD Serono's commitment to MS caregivers.      We're also talking about creating a caregiver protocol that becomes part of the conversation in the neurologist's office as soon as someone is newly diagnosed with MS. We'll tell you about the FDA's new warning about stopping Gilenya. We'll share news about two different clinical trials that are exploring two different cell therapies for treating progressive MS. And we'll share some amazing statistics that demonstrate the reach and effectiveness of the National MS Society's MS Navigator program, a remarkable one-on-one MS support program.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Can We Talk About Establishing a Caregiver Protocol?  1:04 FDA Warns About Severe MS Worsening After Stopping Gilenya  4:54 Phase 2 Clinical Trial Planned for NurOwn Cell Therapy for Treating Progressive MS  6:30 ATA190 Cell Therapy Shows Promising Phase 1 Clinical Trial Results for Treating Progressive MS  7:43 MS Society's MS Navigator Program Demonstrates Reach & Effectiveness  10:36 Scott Williams, Vice-President, Head of Global Patient Advocacy and Strategic Partnerships Discusses EMD Serono's Commitment to MS Caregivers  14:08  ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android FDA Warns About Severe Worsening of Multiple Sclerosis After Stopping the Medicine Gilenya BrainStorm Cell Therapeutics Announces Submission of IND for NurOwn in Progressive Multiple Sclerosis Epstein-Barr Virus-Specific T Cell Therapy for Progressive Multiple Sclerosis Ask An MS Navigator RealTalk MS Episode 19: MS Navigators -- A Seriously Remarkable Service That You Need to Know About DOCUMENTARY: Seeing MS From the Inside Out Embracing Carers Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 66 Hosted By: Jon Strum Guest: Scott Williams Tags: MS, MultipleSclerosis, MSsociety,  Gilenya, ProgressiveMS, MSInsideOut, EmbracingCarers, Caregiving, RealTalkMS

I've received some great questions from some of my listeners. And this week, Cherie Binns, an Internationally Certified MS Nurse and the co-chair of the iConquerMS Research committee, is joining me to answer listener questions. She's even going to share some of her tips for living well with MS!      We'll also explain why the Americans with Disabilities Act applies to sports arenas, but not to your doctor's office. We'll tell you about an outdoor adventure organization for young adults with cancer that's just expanded it's no-cost programs to include young adults living with MS. The National MS Society has awarded pilot funding to 20 high-risk novel research projects. We'll tell you about what some of these projects are hoping to achieve. And this week, we'll tell you about the people and organizations that we're especially thankful for.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ The ADA Extends to Sports Arenas, But Not Your Doctor's Office  2:37 First Descents Extends Its Outdoor Adventure Program to Young Adults Living with MS  7:19 National MS Society Has Awarded Pilot Funding for 20 High-Risk Novel Research Projects  8:38 Have a Question? Send it In!  13:32 Internationally Certified MS Nurse Cherie Binns Answers Your Questions & Shares Some Tips for Living Well with MS   14:24  ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android First Descents National MS Society Announces 20 Novel Research Projects   Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 65 Hosted By: Jon Strum Guest: Cherie Binns Tags: MS, MultipleSclerosis, MSActivist, iConquerMS, MSsociety,  RealTalkMS

Patient-centered research is based on an understanding that patients themselves have unique perspectives that can help to mold, change, and improve the work of finding answers to clinical questions. My guest on the podcast is Laura Kolaczkowski, the co-Principal Investigator for iConquerMS. We're talking about the impact this people-powered research network is having on MS research, and how the first ever patient-driven MS drug development project came about.      We'll also help you wade through the information and misinformation that surrounds whether people with MS should get a flu shot this season. We'll tell you about a study that demonstrates how ballet exercise can help improve balance and motor control for people living with MS, why a new and more powerful MRI scanner is good news for the MS community, a new smartphone-based study that you can be a part of, and a newly-released video manifesto that you have to see!   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ MS & Flu Shots  5:14 Study: Ballet Exercise Improves Balance & Motor Control in People Living with MS  8:05 Genentech Launches Floodlight Open  11:22 FDA Approves More Powerful MRI for Clinical Use  13:33 National MS Society Releases We Believe, a Video Manifesto  15:41 My Interview with Laura Kolaczkowski   17:06  ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android STUDY: Targeted Ballet Program Mitigates Ataxia and Improves Balance in Females with Mild-to-Moderate Multiple Sclerosis Floodlight Open VIDEO: We Believe iConquerMS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 64 Hosted By: Jon Strum Guest: Laura Kolaczkowski Tags: MS, MultipleSclerosis, MSActivist, iConquerMS, MSsociety,  RealTalkMS

Stress wound its way into Michael's life throughout his preteen years, growing in size until it overwhelmed him in his first year of high school. “It took over my life,” he told me. “I'd come home and do four hours of homework. This took a toll on my social life, and my physical health. I began to develop an eating disorder, which I still have to battle to this day. I lost a lot of weight. I became more of an unhappy person. I wasn't fun to be around. I didn't enjoy being around other people. I just felt like my life was a mess.”“It was painful, to see my life almost crumbling. Because of schoolwork, or my friends, or just something that was stressing me out so much I couldn't be who I wanted to be. It was really just—it's painful to think about now, it was painful to go through then. I'm still going through it.”Things came to a head when Michael broke his leg and missed several weeks of school. He did his best to keep up with schoolwork in his absence, but the pressure he felt when he returned to school started building up. “I felt like I wasn't strong, like I was a failure,” he told me, “and because of that I lost a lot of self-esteem.” His mind felt scattered and unable to focus. More and more work accumulated.Michael came home from school one day and went straight to his room. He didn't leave all evening. He didn't sleep all night. Emotions flowed out of him as he yelled at himself, cried, and realized he'd been holding back his feelings for years.“After that,” he said, “I knew I had to change something.”Continue reading on MediumFurther ReadingAs well as being a middle school counsellor, Phyllis Fagell is a writer and columnist in The Washington Post. Check out her blog and follow her on Facebook or Twitter.You can support Damion Cooper's program for boys and young men in Baltimore on the Project Pneuma website. If you want to learn more about the statistics I cited in the episode, visit The Baltimore Sun's Baltimore Homicides webpage.SourcesWilliam Pollack, Real Boys: Rescuing Our Sons from the Myths of Boyhood →Niobe Way and Jessica Cressen, ‘It Might Be Nice to Be a Girl…Then You Wouldn't Have to Be Emotionless:' Boys' Resistance to Norms of Masculinity During Adolescence →Andrew Reiner, Boy Talk: Breaking Masculine Stereotypes →Wide Angle Youth Productions, Project Pneuma →Luke Broadwater, From anger to forgiveness: How one man's shooting led to a new program for Baltimore boys →LinksIf you thought this episode was worthwhile, support it on Patreon.Email breakingtheboycode@gmail.com to get in touch. Connect with @boypodcast on all mainstream social media. Follow the publication on Medium for more writing and the blog on Tumblr for more masculinity research and occasional podcast-related updates.Audio excerpts from VOA News and WBAL Radio. Supported by Next Gen Men.

Caregiving carries a lot of challenges. And for some people, it can feel overwhelming. So, what are the things that make being a caregiver for someone living with a chronic illness like MS so challenging?   We're kicking off National Family Caregivers Month with my guest, Dr. Amy Sullivan, Director of Behavioral Medicine, Research and Training at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, and we're talking about how to best navigate some of the challenges that go along with being a caregiver for someone living with MS.      We're also talking about today's election in the U.S., and what it means for people living MS, the unresolved status of Ocrevus as a treatment for primary progressive MS in the UK, and the fast-tracking of Mavenclad in the UK. We'll tell you about the bus driver who stood up for a man with MS, an insurance company that will fly people to Mexico and pay a cash bonus to buy their MS prescription medication there, and we'll share results from the Embracing Carers International Survey.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ It's Election Day in the U.S. (and what that means to people living with MS!)  :22 The Bus Driver Who Stood Up for a Man with MS  2:49 An Insurer Will Fly People with MS to Mexico to Buy Their Prescription Drugs  4:00 Ocrevus On Hold for People with Primary Progressive MS in the UK  5:49 Mavenclad Fast-Tracked in the UK  7:59 Embracing Carers Campaign & Can Do MS Announce a New Collaboration   9:42  Embracing Carers International Survey Results  10:52 Interview with Dr. Amy Sullivan  12:55 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android RealTalk MS Congressional Report Card CanDo-MS Embracing Carers Program Recommendations for Cognitive Screening and Management in Multiple Sclerosis Care Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 63 Hosted By: Jon Strum Guest: Dr. Amy Sullivan Tags: MS, MultipleSclerosis, MSActivist, DrAmyBSullivan, ClevelandClinic, Caregiving, Caregiver, Ocrevus, Mavenclad, EMDSerono, EmbracingCarers, CanDoMS, RealTalkMS

Cognitive dysfunction can profoundly affect people living with MS, yet it's frequently overlooked and left untreated. That's why the National MS Society convened a working group of world-class experts to explore how cognitive dysfunction was being assessed and to develop a set of guidelines designed to improve the process of cognitive screening and management in MS care.      My guest is Dr. John DeLuca, the Senior Vice-President of Research & Training at the Kessler Foundation, and the co-author of the just-published report that details this important set of new guidelines.   We're also making an exciting announcement with the Accelerated Cure Project for MS about the RealTalk MS podcast. We're talking about how you can prepare for next week's midterm election in the U.S., we'll tell you how the Federal Trade Commission went after 2 crooked stem cell clinics that claimed they were curing MS, we'll give you a heads-up about MS stem cells that really are heading for outer space, and you'll hear about an investment that the National MS Society made in some exciting cutting-edge commercial biotech research.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Some Exciting News About RealTalk MS  2:16 How You Can Prepare to Vote in the U.S. Next Week  4:10 2 Phony Stem Cell Clinics Caught Defrauding Patients  10:09 MS Stem Cells Are Headed for Outer Space  14:22 National MS Society Invests in Cutting-Edge Commercial BioTech Research  16:20  Interview with Dr. John DeLuca  17:58 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android iConquerMS RealTalk MS Congressional Report Card FTC Complaint Against Dr. Bryn Jarald Henderson's Stem Cell Clinics Recommendations for Cognitive Screening and Management in Multiple Sclerosis Care Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 62 Hosted By: Jon Strum Guest: Dr. John DeLuca Tags: MS, MultipleSclerosis, MSActivist, Election2018, iConquerMS, KesslerFdn, RealTalkMS

We're 2 weeks away from an event that's going to have an impact on every person in the United States who's living with MS...or any other chronic illness. Because in 2 weeks time - on November 6th - an election's taking place, and healthcare is on the ballot. Maybe not directly...maybe not explicitly...but make no mistake, the choices that voters in America make on election day are going to have a huge affect on our access to healthcare, the cost of healthcare, and the protection that exists today for people living with pre-existing conditions.     That's why I'm launching the MS Congressional Report Card. It's an easy way for you to see whether your elected representatives in Congress have supported you and others affected by MS. Every member of Congress has received a letter grade based upon what they did -- or didn't do -- to support people affected by MS. You'll be able to see exactly how well your Representatives and Senators have supported the issues that directly affect you. And then, with that knowledge in hand, you'll be ready to cast your vote on November 6th.    We're also talking with my special guest, MS Activist Karen Jackson, about access issues when it comes to casting your vote. We'll tell you about a documentary film that features a new way of interpreting the many sides of living with MS, a possible predictor of brain atrophy in Progressive MS, a new framework for examining how exercise impacts neuroplasticity, and more!   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Introducing the RealTalk MS Congressional Report Card  1:50 A New Documentary -- "Seeing MS from the Inside Out"  5:29 Neurofilament Light Chain Level as a Predictor of Brain Atrophy in Progressive MS  8:38 Conceptual Framework Proposed to Examine Role of Exercise in MS  11:00   Interview with MS Activist Karen Jackson  13:15 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android RealTalk MS Congressional Report Card Video: "Seeing MS from the Inside Out" Neurofilament Light Levels in the Blood of Patients with Secondary Progressive MS are Higher than in Primary Progressive MS and May Predict Brain Atrophy In Both MS Subtypes Integrative CNS Plasticity with Exercise in MS: The PRIMERS (Processing, Integration of Multisensory Exercise-Related Stimuli) Conceptual Framework   Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 61 Hosted By: Jon Strum Guest: Karen Jackson Tags: MS, MultipleSclerosis, MSActivist, MSInsideOut, KesslerFdn, RealTalkMS

I'm back from Berlin, Germany, where I attended the 34th annual ECTRIMS Congress, and the single biggest challenge that I faced during the 3-day conference was trying to decide which sessions I wanted to attend. With 80 live presentations, more than 1,000 poster presentations, and any number of meetings and even casual conversations that seem to pop up everywhere, it's challenging trying to take it all in.  Although ECTRIMS has ended, there's still a bit more to report from the conference, so please consider this podcast episode as the ECTRIMS wrap-up. We're talking about the effectiveness of a cannabidiol spray on MS spasticity. We'll tell you how environmental factors can impact MS, and we'll explain the two different environments you should be paying attention to. And you'll hear about the study that identified how neurofilament light chain levels can be used in clinical practice to identify which people living with relapsing remitting MS might be at greater risk of increased disease activity and progression. And we'll wrap up our ECTRIMS 2018 episode by re-visiting my conversation with Bruce Bebo, Executive Vice-President of Research at the National MS Society. Bruce will share his perspective on some of the presentations that caught his attention during the conference, and we'll talk about the $12 million dollar research investment that the National MS Society has just announced. We have a lot to talk about. Are you ready for RealTalk MS? ___________ The Efficacy of Cannabidiol Spray on MS Spasticity  1:50 The Impact of Environmental Factors on MS  3:35 Neurofilament light chain may identify people with RRMS who are at greater risk of disease progression  5:36 Interview with Bruce Bebo, Executive Vice-President of Research at the National MS Society  9:27 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Video: "Seeing MS from the Inside Out" ECTRIMS 2018 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 60 Hosted By: Jon Strum Guest: Bruce Bebo, Ph.D. Tags: MS, MultipleSclerosis, ECTRIMS2018, MSInsideOut, RealTalkMS

It's the 3rd and final day at ECTRIMS in Berlin! Today, we're taking you to a special documentary screening that we've been keeping under wraps! (You can watch the trailer as part of the "Bonus" content in the RealTalk MS app!) We're talking about the amazing changes in almost every aspect of how we look at MS that have all taken place within just 25 years. We'll walk you through a couple of the scientific sessions that really stood out earlier today. And we'll tell you how you can find scientific victory in the midst of what some people might consider a setback. ECTRIMS 2018 feels as though it's been a non-stop 3-day marathon, and this episode of RealTalk MS will take you to the finish line. We have a lot to talk about! ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Video: "Seeing MS from the Inside Out" ECTRIMS 2018 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 59 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, ECTRIMS2018, Shiftms, MSInsideOut, RealTalkMS

It's Day 2 at ECTRIMS in Berlin! Today, we're talking about the Shift.ms booth in the Exhibition Hall, where you can take part in a virtual reality demonstration of what it might be like to accomplish even the simplest tasks if you're living with MS. And if you've downloaded the RealTalk MS app from the Apple App Store for iOS or the Google Play Store for Android, I hope you enjoy the bonus video of the virtual reality demonstration that I shot on the Exhibition Hall floor.   I wanted to get an expert's opinion about which ECTRIMS presentations were especially noteworthy, so I turned to Bruce Bebo, the Executive Vice President of Research at the National MS Society. Don't miss my exclusive conversation with Bruce in today's podcast episode.   Be sure to download the special ECTRIMS episode of RealTalk MS tomorrow! We have a lot to talk about!! ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android View "Hidden" by Shift.ms ECTRIMS 2018 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 58 Hosted By: Jon Strum Guest: Bruce Bebo, Ph.D. Tags: MS, MultipleSclerosis, ECTRIMS2018, MSSociety, Shiftms, RealTalkMS

Greetings from Day 1 at ECTRIMS in Berlin! Today, we're talking about pharmaceutical company Novartis seeking approval from the U.S. Food & Drug Administration and the European Medicines Agency for siponimod, a once-daily oral medication that significantly reduces disability progression for people living with secondary progressive MS.   This is important news, as 80% of the people living with relapsing remitting MS are eventually diagnosed with secondary progressive MS. And currently, there is no approved disease modifying therapy for secondary progressive MS. The FDA has fast-tracked the approval process, and siponimod could gain the necessary regulatory approval in the U.S. by March, 2019, and in Europe by the end of 2019.   The day at ECTRIMS started with a "Welcome" session. Imagine a room that has seating for thousands of people, a stage that must have been 30 yards wide, and not one -- not two -- but SIX jumbo screens set up so that everyone in the room could see. And even with that enormous capacity, there were people standing in the aisles to be a part of the initial session.    The "Welcome" session featured a short address by the Chair of the ECTRIMS 2018 conference, Professor Reinhard Hohfeld. After the session ended, Professor Hohfeld and I snuck out to the hallway for a quick conversation. You'll hear my exclusive conversation with ECTRIMS Chair Professor Reinhard Hohfeld in today's podcast episode.   Be sure to download the special ECTRIMS episodes of RealTalk MS tomorrow and Friday, as well! We have a lot to talk about!! ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Novartis files for FDA & EMA Approval of Siponimod ECTRIMS 2018 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 57 Hosted By: Jon Strum Guest: Professor Reinhard Hohfeld Tags: MS, MultipleSclerosis, ECTRIMS2018, Siponimod, RealTalkMS

This week, the European Committee for Treatment and Research in Multiple Sclerosis is hosting the ECTRIMS 2018 Congress in Berlin, Germany. It's the largest MS conference in the world. And you can look forward to special episodes of RealTalk MS direct from ECTRIMS, on Wednesday, Thursday, and Friday, October 10th, 11th, and 12th!   You'll get the news, hear the interviews, and you'll be the first to  get the research updates and announcements as they're being made at the largest MS conference in the world. And if you have the RealTalk MS app (available free at the Apple App Store and the Google Play Store), you'll have access to exclusive bonus content from ECTRIMS that will only be available in the app. (HINT: The ECTRIMS  bonus content starts with this episode!) #ECTRIMS2018 gets underway tomorrow. Today, we're talking about the first-of-its-kind patient-focused drug development collaboration between the Accelerated Cure Project for MS and EMD Serono. We'll tell you about the $12 million dollar commitment that the National MS Society just made to support 40 different MS research projects. We'll let you know where to download the new assistive technology app that Google just released that enables you to operate your Android phone (and all the apps!) completely hands-free. And we'll tell you how and why you want to let your Senator know to vote YES on Senate Joint Resolution 63. We have a lot to talk about! Are you ready for RealTalk MS? ___________ RealTalk MS Will Be in Berlin All Week for ECTRIMS 2018  :18 Download the RealTalk MS App & Access Exclusive Bonus Content from ECTRIMS  2:33 Accelerated Cure Project & EMD Serono Announce First-of-its-kind Drug Development Collaboration  3:23 MS Society Commits $12 Million to Fund 40 MS Research Projects  5:53 Study: Which MS Symptoms Are Most Common & Which Are Most Treated?  7:14 Google Releases Google Voice Access  8:34 Take Action: Why You Want to Tell Your Senator to Vote YES on Senate Joint Resolution 63  10:39 Special RealTalk MS Episodes from ECTRIMS This Week  15:29 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ECTRIMS 2018 iConquer MS MS Society Commits $12 Million to Fund 40 MS Research Projects Symptomatology and Symptomatic Treatment in Multiple Sclerosis: Results from a Nationwide MS Registry Download Google Voice Access Senate Joint Resolution 63 U.S. Capitol Switchboard -- (202) 224-3121   Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 56 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, MSSociety, ECTRIMS2018, MSActivist, RealTalkMS

A lot of people visit the RealTalk MS website to listen to each podcast episode. I wanted to make that easier to do, so last week I released the RealTalk MS app for iOS or Android smartphones and tablets.   The app will always have the latest episode of RealTalk MS cued up and ready for you to listen to, and it also lets me share all kinds of bonus content with you. Head to the Apple App Store to download the iOS version of the app, or the Google Play Store to download the Android version of the app. It's the best way to stay connected to the podcast!   And speaking of staying connected to the podcast, next week, the European Committee for Treatment and Research in Multiple Sclerosis is hosting the ECTRIMS 2018 Congress in Berlin, Germany. It's the largest MS conference in the world. I'll be there, and you can look forward to special episodes of RealTalk MS, next Wednesday, Thursday, and Friday, October 10th, 11th, and 12th!   You'll get the news, hear the interviews, and you'll be the first to  get the research updates and announcements as they're being made at the largest MS conference in the world. And if you have the RealTalk MS app, you might even find some exclusive content from ECTRIMS that will only be available in the app. So next week, connect with the RealTalk MS podcast, and I'll do my best to connect you to ECTRIMS 2018. My guest on this week's podcast is Victoria Reese, the founder of the We Are Illmatic campaign. Earlier this year, I had an opportunity to talk with Victoria about the concept of inclusion in the MS community, and how the We Are Illmatic campaign is out to change the face of MS. We're also talking about a research review that reminds us how very bad smoking is for people living with MS, and the results of a 10-year study in the UK about the cost-effectiveness and clinical effectiveness of 4 MS disease modifying therapies. We'll give you the details behind the congressional funding for the National Neurological Conditions Surveillance System in the U.S. And if you're African-American and living with MS, we'll tell you about how you can participate in an MS genetics study being conducted by  UCSF. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Download the RealTalk MS App!  1:26 RealTalk MS Will Be in Berlin for ECTRIMS 2018  2:27 MS Society UK Publishes Research Review on Smoking & MS  4:10 10-Year Study in UK Shows MS DMT Effective for RRMS  6:25 U.S. Congress Funds National Neurological Surveillance System  9:18 UCSF Recruiting African-Americans for MS Genetic Study  13:09 Interview with Victoria Reese  16:56 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Link Between Smoking & MS Clearer Than Ever Helpline@mssociety.org.uk (For questions about smoking & MS) Assessing the Long-Term Effectiveness of Interferon-beta and Glatiramer Acetate in Multiple Sclerosis: Final 10-Year Results from the UK Multiple Sclerosis Risk-Sharing Scheme Patient Groups Applaud Spending Bill That Funds Important Neuro Data System UCSF African-American MS Genetic Study Intake Survey msdb@ucsf.edu (For questions about UCSF African-American MS Genetic Study) We Are Illmatic     Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 55 Hosted By: Jon Strum Guests: Victoria Reese Tags: MS, MultipleSclerosis, weareillmatic, ECTRIMS2018, MSSocietyUK, MSActivist, UCSF, RealTalkMS

The RealTalk MS podcast is celebrating its one-year anniversary this week! And to kick off our 2nd year, I'm launching the RealTalk MS app!  You can download the iOS version of the app from the Apple App Store, and you can download the Android version from the Google Play Store. The app is free, and it's the very best (and easiest!) way for you to connect to the podcast. And the RealTalk MS app will allow me to share free bonus content with you. So in the weeks and months ahead, I'll be sharing video content, written content...the app give us more ways to connect over meaningful content that I think you'll want to know about. My guest on this week's podcast is Dr. Aaron Boster, the system Medical Chief for Neuroimmunology at OhioHealth, and we're going to be talking about a really exciting wellness initiative that OhioHealth is undertaking for people living with MS and other neurological conditions. We'll also be discussing how and why OhioHealth finds itself leading the rest of the world when it comes to innovative treatment initiatives for people living with MS. We're also talking about the Phase 3 clinical trial that's getting underway to study the effect of simvastatin on people with secondary progressive MS, a 4-year research study on a new method for treating cognitive dysfunction in people with progressive MS, and we'll look at the surprising results of a survey about quality of life and well-being among people living with MS. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Announcing the RealTalk MS App!  1:21 Elizabeth Jameson's NY Times Op-Ed  3:49 Simvastatin Phase 3 Clinical Trial Underway in the UK  4:33 Grant Awarded to Research Cognitive Dysfunction in MS  6:22 Well-Being Differs with Age in MS  9:12 Interview with Dr. Aaron Boster  11:28 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android OhioHealth To Open Neuroscience Wellness Center Dr. Aaron Boster YouTube Channel Losing Touch, Finding Intimacy (Elizabeth Jameson NY Times Op-Ed) Register for MS-STAT2 (Simvastatin) Phase 3 Clinical Trial in the UK The Kessler Foundation Subjective Well-Being Differs With Age in Multiple Sclerosis: A Brief Report Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 54 Hosted By: Jon Strum Guests: Dr. Aaron Boster Tags: MS, MultipleSclerosis, OhioHealth, OhioHealthMS, KesslerFoundation, RealTalkMS

I spent this past weekend attending the iConquer MS Leadership Summit in Boston. iConquer MS is a people-powered research network created by the Accelerated Cure Project for MS. Instead of just asking people with MS to provide data, iConquer MS is driven by people living with MS, and it represents a new paradigm of building collaborative partnerships to solve big healthcare questions. This past spring, I had an in-depth conversation with Dr. Robert McBurney, CEO of the Accelerated Cure Project for MS, and David Gwynne, who heads up their Alliances & Collaborations. We'll revisit that conversation, and I'll also give you my thoughts on the remarkable iConquer MS Leadership Summit. We're also talking about the shocking decision in the UK to withhold Ocrevus as a treatment for Primary Progressive MS, the MS In America 2017 survey results, and I'll tell you about a couple of excellent webinars that you should be sure to check out. We have a lot to talk about! Are you ready for RealTalk MS? ___________ NICE Rejects Ocrevus for PPMS in the UK  1:06 MS In America Survey Results Provide Surprising Insights  4:20 Upcoming Webinars from Can-Do MS  7:40 iConquer MS Leadership Summit  9:49 Interview with Dr. Robert McBurney & David Gwynne  13:09 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Petition to Make Ocrevus Available for People with PPMS in the UK Relapse Prevalence, Symptoms, and Health Care Engagement: Patient Insights from the Multiple Sclerosis in America 2017 Survey Can-Do MS Webinar Series iConquer MS Accelerated Cure Project for MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 53 Hosted By: Jon Strum Guests: Dr. Robert McBurney & David Gwynne Tags: MS, MultipleSclerosis, Ocrevus, iConquerMS, CanDoMS,  RealTalkMS  

My guest on the podcast is Mitch Sturgeon. Mitch is an award-winning blogger, and with the publication of his book, Enjoying the Ride: Two Generations of Tragedy and Triumph, Mitch is a published author, as well. In 2001, Mitch was diagnosed with Primary Progressive MS. He was 35 years old at the time, and that was the same age that Mitch's mother was when she took a fall that left her a quadriplegic.   Mitch's book is more than just a reflection of his MS journey. It's a story about a family with all of the quirks, idiosyncrasies, strengths, and faults that any family might have...and how they lived through and even prospered, in the face of tragic circumstances.   We're also talking about what it means to transition from caregiver to advocate. We'll talk about the concept of cognitive reserve and its relationship to MS disability and depression. And we'll share the latest statistical evidence that makes the case for identifying a reliable biomarker for MS disease progression. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Transitioning from Caregiver to Advocate  1:11 Cognitive Reserve, Disability & MS Depression  10:21 Neurofilament Light Chain As a Reliable Biomarker for MS Disease Activity  13:09   Interview with Mitch Sturgeon  16:17 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com   Cognitive Reserve Attenuates the Effect of Disability on Depression in Multiple Sclerosis Neurofilament Light Chain as a Biological Marker for Multiple Sclerosis: A Meta-Analysis Study Enjoying the Ride: Two Generations of Tragedy and Triumph (Book) Enjoying the Ride (Blog) Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 52 Hosted By: Jon Strum Guest: Mitch Sturgeon Tags: MS, MultipleSclerosis, MSResearch, Caregiving, CognitiveReserve, NeruofilamentLight, Enjoying_Ride, RealTalkMS

MS Research Australia has published a report titled, Health Economic Impact of Multiple Sclerosis in Australia 2017. The report provides a detailed snapshot of the economics behind MS, looking at employment, quality of life issues, and even calculating the cost per person living with MS in Australia. The report concludes with some powerful recommendations for future steps.   My guest is Dr. Lisa Melton, Head of Research at MS Research Australia, and we're talking about what this report is telling us, what it's recommending, and how we transition those recommendations into actionable steps.   We're also talking about some good news for people living with progressive MS -- the extremely positive outcome of the Phase 2 clinical trial for Ibudilast. We'll tell you about a couple of upcoming educational webinars about Ocrevus and primary progressive MS, and Ocrevus and relapsing remitting MS. We'll update you on the latest news about Phase 2 clinical trials for cannabis-based medications to treat MS, you'll get a heads-up about a very sneaky (and very dangerous) piece of legislation that is potentially devastating to people living with MS in the U.S., and we'll tell you how you can catch an online video of last week's Progress in MS Research: Live Update 2018 presentation in Australia. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Ibudilast Clinical Trial Shows Unprecedented Slowing in Brain Atrophy in Progressive MS  1:11 Upcoming Ocrevus Educational Webinars  3:17 MMJ Intl Asks FDA to Approve Cannabis-MS Study  4:22 Pre-Existing Conditions Bill is Healthcare Wolf in Sheep's Clothing  5:34 Progress in MS Research Lie Update 2018  11:33 Interview with Dr. Lisa Melton 12:30 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Phase 2 Trial of Ibudilast in Progressive Multiple Sclerosis Upcoming Ocrevus webinars Legal Brief Filed in U.S. District Court by the National MS Society, American Cancer Society, the American Diabetes Association, the American Heart Association, and the American Lung Association Ensuring Coverage for Patients with Pre-Existing Conditions Act Video: Progress in MS Research Live Update 2018 Report: Health Economic Impact of Multiple Sclerosis in Australia 2017 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 51 Hosted By: Jon Strum Guest: Dr. Lisa Melton Tags: MS, MultipleSclerosis, MSResearch, MSResearchAustralia, Ibudilast, ClevelandClinic, CleClinicNews, Ocrevus, Cannabis, MMJInternational, PreExistingConditions, Prexxatstake, RealTalkMS

Part of the unpredictability of multiple sclerosis is that it can attack in so many different ways. MS can impact your physical well-being, your emotional well-being, your functional abilities and your quality of life. And if your response to MS is to be seen by a single healthcare professional, some of those many aspects of MS can end up being overlooked and, sometimes, even unrecognized. And so they go untreated.   That's why the best approach to treating MS is a team approach. My guest is Dr. Jacqueline Nicholas, a clinical neuroimmunologist specializing in MS at OhioHealth in Columbus, OH. OhioHealth operates an MS Comprehensive Care Center that uses this interdisciplinary team approach to provide personalized treatment that's based upon each patient's specific needs. We're also talking about the discovery of MCMS -- a new MS subtype. We'll tell you about an online resource that offers a comprehensive listing for every kind of support service in key cities throughout the U.S. We're looking at a report just issued by the nonpartisan Government Accountability Office that examines the ways that the U.S. Department of Health & Human Services has been gaming the Affordable Care Act -- and why that's going to cost you more money next year. And we're talking about a study that measures the impact of MS-related swallowing difficulties on quality of life. We have a lot to talk about! Are you ready for RealTalk MS? ___________ New MS Subtype Discovered. Meet MCMS  2:25 GAO Report: HHS Should Enhance Its Management of Open Enrollment Performance  6:25 Study: The Impact of Swallowing Problems (Dysphagia) on Adults Living with MS  13:07 Interview with Dr. Jacqueline Nicholas  17:29 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com National MS Society Listing of MS Comprehensive Care Centers GatherMS Cortical Neuronal Densities and Cerebral White Matter Demyelination in Multiple Sclerosis: A Retrospective Study Health Insurance Exchanges: HHS Should Enhance Its Management of Open Enrollment Performance The Frequency of Dysphagia and Its Impact on Adults with MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 50 Hosted By: Jon Strum Guest: Dr. Jacqueline Nicholas Tags: MS, MultipleSclerosis, MSResearch, DrJNicholas, OhioHealthMS, ClevelandClinic, DefendPreex, Sydney_Uni, RealTalkMS

  Shawn Feliciano was diagnosed with MS in 2009, and in 2012, she decided to challenge herself while raising awareness about MS by going on a Big Hike --  hiking 817 miles, from Utah to Arizona.   Shawn's Big Hike may have been the perfect metaphor for living with the challenges of MS, and we're talking about having the resilience to take on a challenge, no matter what your personal Big Hike might be. We're also talking about a new study that demonstrates why it's in your best interest to stay on MS Disease Modifying Therapy if you've been diagnosed with relapsing remitting MS. Another study suggests that a diet high in vegetables and fish may reduce the risk of MS. And a third study may provide a path for better mitigating MS depression. We even take a look at two very different short films about MS that, taken together, give us a full, 360-degree depiction of what it's like to live with MS. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Study: RRMS Patients on Long-Term DMT Treatment Less Likely to Progrers to SPMS  1:08 Study: Diet High in Vegetables & Fish Reduces Risk of MS  5:20 Study: Treating Perceived Stress & Poor Sleep May Mitigate MS Depression  7:17 2 Short Films Take Different Paths to Illustrate the Challenges of Living With MS...And They're Both Right  10:30 Interview with Shawn Feliciano  14:13 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com   Onset of Secondary Progressive MS Is Not Influenced by Current Relapsing Multiple Sclerosis Therapies The International Progressive MS Alliance A Healthy Dietary Pattern Associates with a Lower Risk of a First Clinical Diagnosis of CNS Demylenation Perceived Cognitive Deficits & Depressive Symptoms In Patients with MS: Perceived Stress & Sleep Quality as Mediators Short Film: Breakthrough MS Short Film: Hidden Share Your Feedback About RealTalk MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 49 Hosted By: Jon Strum Guest: Shawn Feliciano Tags: MS, MultipleSclerosis, MSResearch, MSSociety, BigHike, ShawnFeliciano, Hidden, MSDiet, RealTalkMS

Elizabeth Jameson is an artist who specializes in creating a bridge between art and neuroscience. Since being diagnosed with MS, Elizabeth has transformed her brain MRI scans into remarkable and provocative images that challenge how we view the brain, disability, and illness.    In addition to creating her amazing artwork, Elizabeth is an ePatient Scholar and advisor to Stanford Medicine X, and she's written extensively about patient-centered healthcare, design, and the arts.   This week, we're standing at the intersection of art and science with my special guest, Elizabeth Jameson, talking about being an ePatient, embracing our imperfect bodies, and the importance of developing a creative narrative about living with MS. We're also talking about a new theory on the cause of MS, how artificial intelligence may change medical imaging to better detect MS, and how one doctor used a bogus MS treatment to cheat his MS patients and their insurance companies out of thousands of dollars. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Researchers Offer a New Theory on the Cause OF MS  :50 Australian Government Invests in AI Imaging Technique to Better Detect MS  5:54 A Doctor's Bogus MS Treatment Scams MS Patients and Their Insurance Companies  7:45 Market Research Company Recruiting People with Primary Progressive MS to Complete Paid Online Survey  14:19 Interview with Elizabeth Jameson  15:13 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Hypothesis: Multiple Sclerosis Is Caused By Three-Hits, Strictly In Order, In Genetically Susceptible Persons Australian Government Invests in Artificial Intelligence for Medical Imaging California Medical Board Legal Complaint Against Dr. Michael Arlata Jameson Fine Art VIDEO: Elizabeth Jameson at TedxStanford: Learning to Embrace Our Imperfect Bodies Mind On Fire (Elizabeth Jameson's Blog) Share Your Feedback About RealTalk MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 48 Hosted By: Jon Strum Guest: Elizabeth Jameson Tags: MS, MultipleSclerosis, MSResearch, AI, ElizabethJameson, RealTalkMS

You've heard the statistic before -- 50% of the people living with MS will be diagnosed with depression. And research has shown us that some of the most troubling MS symptoms, including fatigue, cognition, and even physical disability, are all made worse by depression. Unfortunately, among people living with MS, depression is often overlooked, undiagnosed, and left to only get worse. So imagine an app that will tell you when you're heading toward depression before you even feel it. That's not science fiction -- it's science. My guest is Peta Slocombe the Senior V.P. of Corporate Health at mental health technology company, Medibio. We're talking about how Medibio's game-changing technology can improve the quality of life for people living with MS. We're also talking about iConquer MS -- a wide-ranging MS research community that's patient-focused, patient-managed, and patient-driven. Find out how you can be a part of iConquer MS and take an active role in unraveling the riddle of MS.  We'll tell you about about how and why your health insurance premium is going to increase, and how you can test-drive a smartphone app that will better personalize your MS treatment. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Which Symptoms Matter Most to People Living with MS  1:43 You Can Participate in Patient-Centered MS Research with iConquer MS  3:29 Why New "Short Term" Insurance Rules Will Increase Your Health Insurance Premium  5:48 Test Drive an MS Smartphone App That Will Lead to Better Personalized MS Treatment  10:49 Interview with Peta Slocombe  12:07 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com The Disease Burden of Multiple Sclerosis from the Individual and Population Perspective: Which Symptoms Matter Most? iConquer MS myMS App Medibio Share Your Feedback About RealTalk MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 47 Hosted By: Jon Strum Guest: Peta Slocombe Tags: MS, MultipleSclerosis, MSResearch, Medibio, Depression, RealTalkMS  

We take advantage of digital tools every day to make our lives easier. But when it comes to managing our health, there's still a long way to go. That's why the MS Society in the UK commissioned a report titled "Improving Care for People with MS: The Potential of Data & Technology". That report has just been published, and we're discussing some of the observations and recommendations contained in this remarkable report with my special guest, Michelle Mitchell, CEO of the MS Society in the UK.     We're also talking about a new artificial intelligence-based data analysis platform that can diagnose MS sooner than traditional diagnostic methods, with 90% accuracy. We'll tell you about a new poll that shows that the overwhelming majority of American voters support protecting the rights of people with pre-existing medical conditions, in spite of the Justice Department's efforts to remove those protections. We're taking a look at new research that could change the game when it comes to myelin repair. And we'll tell you about two different MS research studies that are recruiting participants to complete a 15-minute online survey.   We have a lot to talk about. Are you ready for RealTalk MS? ___________ AI-Enabled Data Analysis Platform Can Diagnose MS  1:37 Latest Poll Shows Overwhelming Voter Support For Protecting Patients With Pre-Existing Medical Conditions in the U.S.  3:40 Groundbreaking Research Highlights Different Paths to Myelin Repair  7:24 2 Research Studies Recruiting Participants for Online Surveys  12:07 Interview with Michelle Mitchell  13:49 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com iQuity Friend of the Court Brief Filed in U.S. District Court by the National MS Society, American Cancer Society, the American Diabetes Association, the American Heart Association, and the American Lung Association University of Melbourne Research Devising New Way to Repair Myelin CWRU Research Demonstrates Blocking Cholesterol Enzyme Stimulates Myelin Repair Study Opportunity: Coping Styles in MS & Other Autoimmune Diseases Study Opportunity: Treatment Options For Walking Difficulties in MS Improving Care for People with MS: The Potential of Data & Technology MS Society of Great Britain   Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 46 Hosted By: Jon Strum Guest: Michelle Mitchell Tags: MS, MultipleSclerosis, MSResearch, iQuity, ProtectOurCare, mssocietyuk, nuffieldtrust, mscare, RealTalkMS

The caregiver's journey doesn't always get paid the proper amount of attention until a family caregiver finds themselves feeling isolated, overwhelmed, drained, and depressed. But it doesn't have to come to that. My guest is Dr. Kate Lorig, lead author of Building Better Caregivers: A Family Caregiver's Guide to Reducing Stress and Staying Healthy. And we're talking about how to go about building better caregivers.     We're also talking about a new MRI technique that may enable doctors to identify MS patients who are at high risk of disease progression and disability, whether Tysabri can improve MS sexual dysfunction, a new film about how an "invisible disease" can impact everyday daily living, and a clinical trial that's looking at whether two popular "MS diets" can improve MS fatigue.   We have a lot to talk about. Are you ready for RealTalk MS? ___________ MRI Technique Associates Iron in Brain with MS Disability  1:44 Tysabri May Be Effective in Treating MS Sexual Dysfunction  4:11 "Hidden" Shows How an Invisible Disease Can Impact Everyday Life  6:05 Clinical Trial to Look at Effectiveness of Diet in Improving MS Fatigue Is Recruiting Participants  8:08 Interview with Dr. Kate Lorig  10:24 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Brain Iron at Quantitative MRI Is Associated with Disability in Multiple Sclerosis Patient Perceived Changes in Sexual Dysfunction after Initiation of Natalizumab for Multiple Sclerosis Watch "Hidden" on YouTube shift.ms Clinical Trial to Test Dietary Approaches to Treating Fatigue in MS Email Address for University of Iowa Diet & MS Fatigue Study is MSDietStudy@healthcare.uiowa.edu Building Better Caregivers: A Family Caregiver's to Reducing Stress & Staying Healthy Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 45 Hosted By: Jon Strum Guest: Dr. Kate Lorig Tags: MS, MultipleSclerosis, MSResearch, tysabri, Hidden, shiftms, terrywahls, wahlsdiet, swankdiet, caregiving, UIowabiomed, RealTalkMS

My guest this week is Dr. Rhonda Voskuhl, Director of the Multiple Sclerosis Program at the David Geffen School of Medicine at UCLA and the Jack H. Skirball professor of Multiple Sclerosis Research. Dr. Voskuhl is responsible for first identifying that understanding the gender differences in the disease is an important part of understanding MS. This is one of my favorite interviews, and it's packed with great information. We're also talking about the potential of data and technology to improve care for people living with MS, how MS and depression can lead to high rates of Alexithymia among people living with MS, how recognizing non-traditional MS symptoms can lead to getting an MS diagnosis years earlier, and an opportunity for African-Americans with MS to participate in a UCSF study. We have a lot to talk about! Are you ready for RealTalk MS? ____________ MS + Depression or Anxiety = High Rates of Alexithymia  2:04 MS Society U.K. Commissions Report on the Potential of Data and Technology to Improve Care for People Living with MS  4:13 U.K.'s National Health Service Announces New App  9:18 Recognizing Non-Traditional Symptoms Can Lead to MS Diagnosis Years Earlier  11:34 UCSF Recruiting African-Americans with MS for Study  14:24 Interview with Dr. Rhonda Voskuhl  17:01 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com   International Progressive MS Alliance High Levels of Alexithymia in Patients with Multiple Sclerosis Improving Care for People with MS: The Potential of Data & Technology New NHS App Will Make It Quciker & Easier to Access Health Services Five Years Before MS Onset: Phenotyping the Prodrome Email Address for UCSF Study is msdb@ucsf.edu Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 44 Hosted By: Jon Strum Guest: Dr. Rhonda Voskuhl Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, mssocietyuk, UCLANeurology, UCSFMedicine, RealTalkMS

Using cannabis to treat MS symptoms has become a hot topic. And thanks to social media, a lot of opinions about cannabis and MS are posted as if they're facts...and that's not always the case. So, we're talking about cannabis and MS in this episode of RealTalk MS. We'll try to demystify it a bit and we'll give you an idea of what some of the research is telling us. We'll talk about which MS symptoms cannabis might be good for...and which ones it might not be good for.     We're also talking about the latest reason that your health insurance premium is likely to rise in 2019 in the U.S., we'll walk you through "Clinical Trials 101" and explain what each phase of a clinical trial is really all about, and we'll give you the latest update on Ocrevus being rejected as a treatment for PPMS in the U.K. We have a lot to talk about! Are you ready for RealTalk MS? ____________ U.S. Suspends Payments to Health Insurers  1:47 Everything You Always Wanted To Know About Clinical Trials  8:25 Clinical Trial to Track Urinary Symptoms in MS Is Recruiting Participants  15:05 NICE Rejects Ocrevus for PPMS  16:47 Cannabis & MS  19:04 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com U.S. Suspends Payments to Health Insurers Become an MS Activist National MS Society Brochure on Participating in a Clinical Trial ClinicalTrials.gov Sample Urinary Symptoms & MS Clinical Trial Survey Cannabis Use in People with Parkinson's Disease and Multiple Sclerosis: A Web-Based Investigation National MS Society Research Paper on Cannabis & MS AAN Guidelines for Medical Marijuana Real World Experience of Medical Marijuana in Symptomatic Management of Multiple Sclerosis and Transverse Myelitis Cannabidiol to Improve Mobility in People with MS Knowledge and Attitudes of Australian General Practitioners Towards Medicinal Cannabis: A Cross-Sectional Survey Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 43 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, MSResearch, Ocrevus, ACA, ProtectOurCare, MSActivist, CannabisandMS, Cannabis, RealTalkMS

When you google the phrase "stem cell therapy for MS", it can feel like you fell into a black hole of conflicting information, misinformation, and dodgy information that can be full of promises designed to speak directly to someone who is anxiously and sometimes desperately looking for a miracle cure for a debilitating condition. And there's also plenty of good, credible information available online. But how do you go about separating the wheat from the chaff? We're going to try to jump start that process for you in this podcast episode, as we look at the current state of stem cell therapy & MS. We're also discussing the latest news about Ocrevus, medical cannabis for MS, a clinical trial that's recruiting 900 people recently diagnosed with relapsing-remitting MS, a couple of new apps to help you manage MS, and a webinar about maintaining your independence with progressive MS. We have a lot to talk about! Are you ready for RealTalk MS? ____________ U.K. Approves Ocrevus for RRMS  2:12 MMJ Bioscience Seeks FDA Approval for Cannabis Phase II Clinical Trial  3:48 Biogen Adds MS & Cognition Resource Center to MyMSTeam  5:20 Biogen Releases Aby, an App for People Living with MS  6:30 Nationwide Clinical Trial Recruiting People Newly Diagnosed with MS  9:10 Roche & EAN Produces "Maintaining Independence in Progressive MS" Webinar  11:08 Stem Cell Therapy & MS  12:38 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com MyMSTeam TREAT-MS Clinical Trial MS Society Brochure on Participating in a Clinical Trial Maintaining Independence in Progressive MS Webinar MS Society: Stem Cells in MS ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 42 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, MSResearch, Ocrevus, MyMSTeam, Biogen, Aby, HopkinsMedicine, ProgressiveMS, HSCT, RealTalkMS  

We talk a lot about MS research.  And when we do, we talk about the "investigators"...the experts...the scientists in the laboratories who are expanding our collective knowledge about MS. But who are these folks? How do you become an "investigator"? And why does someone decide that they want to make MS research their professional focus? My guest on the podcast is Dr. Elisabeth Mari, Director of Biomedical Research for the National MS Society. Dr. Mari takes us behind the scenes and walks us through the process of how someone becomes  an MS research fellow. Then, we'll talk with 3 MS research fellows that I met up with at the American Academy of Neurology Annual Meeting. You'll hear about the projects that they're working on, and we'll talk about what initially attracted them to focus on MS research.   We're also talking about a new study that strengthens the link between Epstein-Barr Virus and MS, a biomarker that may indicate MS progression, a new Xbox adaptive controller for gamers with disabilities, and an opportunity for Hispanics and Latinos diagnosed with MS to participate in a clinical study.   We have a lot to talk about! Are you ready for RealTalk MS? ____________ Study Strengthens Link Between Epstein-Barr Virus & MS  3:29 Neurofilament Light Chain May Predict RRMS Progression  4:56 Microsoft Creates Xbox Adaptive Controller for Gamers with Disabilities  7:40 Perception of Fall Risk Can Be As Important as Physical Limitations to People Living with MS  9:14 USC is Recruiting Latinos/Hispanics with MS for Clinical Trial  12:16 Interview with National MS Society's Director of Biomedical Research, Dr. Elisabeth Mari  14:53 Meet 3 MS Research Fellows  25:52 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com New Study Shows Connection Between Epstein-Barr Virus and MS Progression Levels of Neurofilament Light Chain May Predict MS Progression (Abstract is on Page 24) Pre-Order the Microsoft Xbox Adaptive Controller The Relationship Between Physiological and Perceived Fall Risk in People Living with MS Hispanics and Latinos with MS Are Being Recruited for a Clinical Trial Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 40 Guest: Dr. Elisabeth Mari Hosted By: Jon Strum Tags: MS, MultipleSclerosis, MSResearch, mssociety, EpsteinBarrEBV, Xbox, RealTalkMS

MS Activist Marques Jones is running for public office in his home state of Virginia. Marques and I sat down to discuss how his role as an MS Activist led to his candidacy, and how his MS diagnosis has continued to inform his business life and his political life.      We're also talking about the existential threat that now exists for people with pre-existing medical conditions in the U.S., how the MSAA can provide financial assistance for your MRI exam, how Ocrevus may delay the need for a wheelchair for 7 years, and the first clinical trial that's been designed to recognize the needs of severely disabled MS patients.   We have a lot to talk about! Are you ready for RealTalk MS? ____________ The Trump Administration Has Asked a Federal Judge to Eliminate ACA Protections for People Living With Pre-Existing Conditions  1:30 The Multiple Sclerosis Association of America Expands MRI Access Fund  9:32 Ocrevus May Delay the Need for a Wheelchair for 7 Years  10:47 Genentech Announces 1st Clinical Trial to Recognize Needs of Severely Disabled MS Patients  12:05   Interview with MS Activist and Virginia State Senate Candidate Marques Jones  14:53 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Legal Brief Filed in U.S. District Court by the National MS Society, American Cancer Society, the American Diabetes Association, the American Heart Association, and the American Lung Association Sign Up to Be an MS Activist MSAA MRI Access Fund Details & Application Ocrevus May Delay Need for a Wheelchair by 7 Years First Clinical Trial to Recognize the Needs of Severely Disabled MS Patients Marques Jones For Virginia Senate Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 40 Guest: Marques Jones Hosted By: Jon Strum Tags: MS, MultipleSclerosis, ProtectPatientsNow, MSActivist, MSAA, Ocrevus, NewPath, RealTalkMS

At the Consortium of Multiple Sclerosis Centers Annual Meeting, I learned about the Pediatric MS Alliance from Jill Blackburn. I met Dr. Miriam Franco and learned about the app that she's developed and you'll want to download. And I sat down with Dr. Rosalind Kalb and MS Activist Marques Jones to learn about MS Path 2 Care - a new set of educational modules designed to empower people living with MS to be active participants in their own care & treatment.  We're also talking about a study that demonstrates that treatment with Ocrevus may improve cognitive ability in MS patients who are at risk of disease progression. We'll discuss research that suggests that MS patients who are living with depression and fatigue are less likely to adhere to their disease-modifying therapy as prescribed by their neurologist. And I'll tell you how they lowered the cost of MS prescription medications in the U.K. We have a lot to talk about! Are you ready for RealTalk MS? ____________ Study Indicates that Ocrevus Improves Cognitiion  2:21 Study Indicates that Depression & Fatigue May Affect MS Patient Adherence to Disease-Modifying Therapy  3:32 The U.K. Lowers the Cost of MS Prescription Drugs  7:59 Interview with Jill Blackburn, of the Pediatric MS Alliance  11:26 Interview with Dr. Miriam Franco about the Imagerywork app  18:35 Interview with Dr. Rosalind Kalb & Marques Jones about MS Path 2 Care  22:46 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Pediatric MS Alliance Download Imagerywork for iPhone Download Imagerywork for Android MS Path 2 Care ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 38 Guests: Dr. Rosalind Kalb, Marques Jones, Dr. Miriam Franco, Jill Blackburn Hosted By: Jon Strum Tags: MS, MultipleSclerosis, CMSC18RocksNashville, PediatricMS, MSActivist, MSWarrior, Ocrevus, Imagerywork, MSPath2Care, RealTalkMS  

I've invited a very special guest to talk about the subject that I've received -- by far -- the most requests to discuss on the podcast, and that's sexual function and MS.   We're also talking about the International Progressive MS Alliance's future strategies, World MS Day, and we're giving away an Amazon Echo Dot!   We have a lot to talk about! Are you ready for RealTalk MS? ____________ MS Conference Update  :51 International Progressive MS Alliance Announces Future Strategies  4:06 World MS Day  6:10 Win an Amazon Echo Dot  7:56 Interview with Stuart Nixon, MBE  11:06 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com The International Progressive MS Alliance World MS Day The RealTalk MS Podcast Alexa Skill Enter to Win an Amazon Echo Dot ___________ Entering our Amazon Echo Dot Contest is Easy! 1. Visit www.realtalkms.com/contest 2. Click on the "View in iTunes" button on the left 3. If prompted to launch iTunes, click the "Launch Application" button 4. Click the "Subscribe" button 5. Click on "Ratings and Reviews" 6. Click the "Write a Review" button 7. Write a simple, honest review about the RealTalk MS podcast 8. Give us a rating from 1 to 5 stars (with 5 stars being the best) 9. Click "SUBMIT" 10. Send an email to contest@realtalkms.com. Include your email address and whatever name you left your review under THAT'S IT! Winner will be announced on the June 26th podcast. ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 37 Guest: Stuart Nixon, MBE Hosted By: Jon Strum Tags: MS, MultipleSclerosis, bringinguscloser, Alexa, AllianceCongress2018, RealTalkMS

Today -- and every day this week -- the RealTalk MS podcast is coming to you live from the Sheraton Centre Toronto Hotel in Toronto, Canada, where, tomorrow, the International Progressive MS Alliance kicks off its 3rd Scientific Congress. The theme of the event is Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management, and on today's podcast episode, we're previewing some of what the attendees will be seeing and hearing.      We're also talking about several MS rehabilitation research studies that examine mindfulness meditation and well-being, virtual reality as an effective tool for gait & balance rehabilitation, and how a history of depression might stop people with MS from doing physical exercise. We'll also tell you how you can use social media to share your ideas about next-generation mobility devices.   We have a lot to talk about. And we're talking about it live from the International Progressive MS Alliance Scientific Congress on MS Rehabilitation & Symptom Management, at the Sheraton Centre Hotel in Toronto, Canada.   ____________ FDA Files Suit Against 2 Stem Cell Clinics  1:03 Mindfulness Meditation Creates Short-Term Well Being for People Living with MS  3:32 Virtual Reality as Effective as Traditional Rehabilitation for Gait & Balance in MS  5:03 Depression as a Barrier to Physical Exercise for People Living with MS  6:55 #MyMobilityUnlimited Is the Hashtag that Lets You Help Design the Future of Mobility Devices  9:34 International Progressive MS Alliance Scientific Congress: Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management  11:24 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Mindfulness Meditation Improves Short-Term Well Being in MS Virtual Reality Effective in Treating Gait & Balance Impairment in MS Lower Aerobic Endurance Linked to History of Depression in MS #MyMobilityUnlimited Seeks Ideas From Wheelchair Users The International Progressive MS Alliance The RealTalk MS Podcast Alexa Skill Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 33 Hosted By: Jon Strum Tags: MS, MultipleSclerosis, Mindfulness, Depression, MyMobilityUnlimited, MSRehabilitation,  Rehabilitation, AllianceCongress2018, RealTalkMS

Living your best life while you're living with MS means learning how to manage and overcome the physical and psychological limitations that MS tries to impose. This week's guest, Dr. Kathleen Zackowski, Senior Director of Patient Management, Care, and Rehabilitation Research for the National MS Society, takes us on a deep dive into MS rehabilitation & symptom management.       We're also talking about the FDA approval of Gilenya for treating Pediatric MS, President Donald Trump's announced "blueprint to lower (prescription) drug prices," and next week's International Progressive MS Alliance Scientific Congress on Rehabilitation & Symptom Management.   And...we're announcing some very special podcast episodes coming your way next week!!   We have a lot to talk about! Are you ready for RealTalk MS? ____________ The RealTalk MS Podcast & Alexa  1:35 FDA Approves Gilenya For Pediatric MS  3:13 President Trump Announces His Prescription Drug Strategy  4:30 MS Rehabilitation & Symptom Management  6:37 International Progressive MS Alliance Scientific Congress  9:35 Special Upcoming Podcast Episodes  10:32 Interview with Dr. Kathleen Zackowski  11:21 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com The RealTalk MS Podcast Alexa Skill FDA Approves Gilenya for Pediatric MS The International Progressive MS Alliance Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 32 Guest: Dr. Kathleen Zackowski Hosted By: Jon Strum Tags: MS, multipleSclerosis, Alexa, Gilenya, MSRehabilitation,  Rehabilitation, AllianceCongress2018, RealTalkMS

In 2004, the average wholesale price of available MS disease-modifying therapies was $16,000. In 2013, the average price was $61,000; last year, the average price was more than $83,000. That's why my guest this week is David Mitchell, founder and president of Patients for Affordable Drugs.     We're also talking about the RealTalk MS Podcast Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS! (And if you don't yet have an Alexa-enabled device, this might be one more reason to get one!)   A new study concludes that Autologous Haematopoietic Stem Cell Therapy is safe and effective in treating 'aggressive' MS. Another pilot study demonstrates that aspirin can help prevent the onset of overheating and exhaustion following exercise. And your future appointments with your neurologist just may take place from the comfort of your own home.   We have a lot to talk about! Are you ready for RealTalk MS? ____________ Our Alexa Announcement  :27 Study Shows Autologous Hematopoietic Stem Cell Therapy Safe & Effective In Treating "Aggressive" MS  4:40 Overheating When You Exercise? Study Recommends Taking 2 Aspirin  8:06 How About Having Your Next Appointment With Your Neurologist At Home?  10:15 Interview with David Mitchell  13:00 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com The RealTalk MS Podcast Alexa Skill STUDY: Autologous Haematopoietic Stem Cell Transplantation in Treatment Naive Patients with 'Aggressive' Multiple Sclerosis STUDY: A Randomized Controlled Pilot Trial of Aspirin to Improve Exercise Performance in Persons with Multiple Sclerosis SURVEY: Telemedicine Reduces Barriers to Care for Patients with Multiple Sclerosis and Neruoinflammation Patients For Affordable Drugs Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 31 Guest: David Mitchell Hosted By: Jon Strum Tags: MS, multiple sclerosis, Alexa, David Mitchell, Patients for Affordable Drugs, aHSTC, Stem Cells, Telemedicine, RealTalk MS    

We have a lot to talk about in this podcast episode! First, a big announcement...the RealTalk MS Podcast has its own Amazon Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS! (And if you don't yet have an Alexa-enabled device, this might be one more reason to get one!)     My guest on the podcast is Dr. Matthew Miles, the CEO of MS Research Australia, the largest non-profit organization dedicated to funding, coordinating, and advocating for MS research in Australia. We're talking with Matthew about some of the amazing research collaborations that MS Research Australia is driving in Australia and around the world.  (NOTE: During our conversation, Dr. Miles references the MS Research Australia website as "www.msra.org". The correct website is www.msra.org.au. Sorry for the confusion!)   We're also talking about the results of MS research studies that were announced at the just concluded American Academy of Neurology Annual Meeting. These are studies that you need to know about! ____________ The Alexa Announcement  2:22 Introducing Matthew Miles & MS Research Australia  5:48 Study Shows MS Progresses Faster in African-Americans  6:46 Gilenya Shown To Be Effective in Delaying MS Progression & Disease Activity in Pediatric MS  8:00 MS Disease-Modifying Drugs May Lose Effectiveness As You Age 9:46 Interview with Dr. Matthew Miles 11:20 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com The RealTalk MS Podcast Alexa Skill STUDY: MS Progresses Faster in African-Americans STUDY: Gilenya Effective in Delaying MS Progression & Disease Activity in Pediatric MS Patients MS Disease-Modifying Therapies May Be Less Effective As You Age MS Research Australia Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 30 Guest: Dr. Matthew Miles Hosted By: Jon Strum Tags: MS, multiple sclerosis, Alexa, Matthew Miles, MS Research Australia, AAN, Gilenya    

The American Academy of Neurology (AAN) is holding its Annual Meeting this week in Los Angeles. And with more than 10,000 neurologists all in one place, we're talking about a LOT of news coming out of that conference.   Just some of the topics we're talking about on this week's podcast: The AAN announced new guidelines for treating MS. A new study will convince you to begin MS disease-modifying therapy sooner, rather than later. The National MS Society has announced $14.2 million dollars in funding for 45 new research projects aimed at slowing, stopping, and ending MS. Genentech announced some good news for MS patients taking Ocrevus. Biogen announced the results of several MS research studies. Computer-based cognitive training can improve memory for people living with MS. My guest on the podcast is 3-time Stanley Cup winner and and star of the National Hockey League's Chicago Blackhawks, Bryan Bickell. Bryan retired from hockey last year, after being diagnosed with MS. We'll talk with Bryan about what it was like to get that diagnosis, what it was like to score that very memorable final goal of his career, and what lies ahead for him. (NOTE: During our conversation, Bryan references a website, "My Fighting Hockey Story". The correct website is MyFightingStory.com. Sorry for the confusion!) ____________ AAN Announces New Treatment Guidelines For MS  2:02 Study Indicates Importance of Starting MS Treatment ASAP  4:01 National MS Society Investing $14.2 Million in New Research  6:54 Genentech Has Good News For MS Patients Taking Ocrevus  8:25 Biogen Study Correlates MS Cognitive Decline to Socioeconomic Demographics  10:35 Computer-Based Cognitive Training Improves Memory for People Living with MS  12:49 The MSUnderstood Cafe Gives People A Taste of MS  13:49 Interview with hockey star Bryan Bickell  16:03 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com American Academy of Neurology Annual Meeting   AAN Announces New Treatment Guidelines for MS   Early Versus Later Treatment Start in Multiple Sclerosis - A Register Based Cohort Study   Register for Interim Analysis of the Ocrelizumab Biomarker Outcome Evaluation Study in Multiple Sclerosis Research Study   Benchmarks of Cognitive Performance in a Large, Representative Patient Population   Cognitive Training and Neuropsychological Performance of Patients with Multiple Sclerosis   The MSUnderstood Cafe   Bryan Bickell's Career Final Shot is a Shootout Goal   Bryan Bickell's Story ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 29 Guest: Bryan Bickell Hosted By: Jon Strum Tags: MS, multiple sclerosis, AAN, AANAM, MS Treatment Guidelines, Genentech, Biogen, Ocrevus, NMSS, National MS Society, Roche, MSUnderstood Cafe, Bryan Bickell, RealTalkMS

When I think of resilience, I think of Eli. On the outside, he's as cut and as worn as you can imagine, but at his core is a dogged spirit that has withstood countless attacks on his gender, body and identity. He faces transphobia with bitter resolve. He's like a war survivor who's repeatedly been sent back to the front lines.One of Eli's front lines has always been school, in particular physical education classes and spaces defined by youth culture, where he either has to fight to have his gender identity recognized or he has to be on guard against homophobia- or transphobia-based violence. He tries hard to protect himself, but sometimes he doesn't make it.His story is all too familiar. Nearly all LGBTQ youth have faced discrimination based on their gender or sexual orientation. Sometimes it's outright physical violence. Sometimes it's more implicit.Continue reading on MediumFurther ReadingLori Duron writes a blog called Raising My Rainbow. You can also follow her and her son on Facebook, Twitter and Instagram.Alissa and Victoria were representatives of SOGI 1 2 3, an initiative based in western Canada. The website has LGBTQ-focused resources for both parents and educators. If you're looking for more resources I recommend Gender Spectrum's Gender Inclusive Schools Toolkit, Human Rights Campaign's Schools In Transition and Welcoming Schools programs, as well as GLSEN and The Trevor Project.SourcesUBC News, Gay-straight alliances in schools reduce suicide risk for all students →CJ Pascoe, Homophobia in Boys' Friendships →CJ Pascoe, Dude, You're a Fag →Stephen Frosh, Young Masculinities →Debbie Epstein, Boyz' Own Stories: Masculinities and sexualities in schools →LinksIf you thought this episode was worthwhile, support it on Patreon.Email breakingtheboycode@gmail.com to get in touch. Connect with @boypodcast on all mainstream social media. Follow the publication on Medium for more writing and the blog on Tumblr for more masculinity research and occasional podcast-related updates.Supported by Next Gen Men.

When we think about MS, we tend to think about it as an adult disease. But the National MS Society reminds us that between 8,000 and 10,000 children up to 18 years old are living with MS in the United States. And studies suggest that between 2 and 5% of everyone living with MS has a history of experiencing the onset of at least one MS symptom before the age of 18.     My guest on the podcast is Dr. Emmanuelle Waubant, one of the true pioneers and experts in the field of pediatric MS. We're talking  with Dr. Waubant about some of the challenges involved in diagnosing pediatric MS, which disease-modifying therapies can be used to treat pediatric MS (since the FDA hasn't specifically approved any drug to treat pediatric MS) and how kids living with MS deal with all of the challenges that life throws at them. ____________ Healthcare Spending Doubles For People Living With MS  3:38 Vocal Biomarker Detects MS By the Sound of Your Voice  6:44 Researchers Will Study Quality of MS Care in the U.S.  8:11 2018 Dystel Prize for MS Research To Be Awarded  9:33 Interview with Dr. Emmanuelle Waubant 11:24 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Healthcare Spending Doubles for People Living With MS Sonde Health Patents Vocal Biomarker Technology Study Looks At Quality of MS Care Dystel Prize For MS Research Awarded to Dr. Frederik Barkhof ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 28 Guest: Dr. Emmanuelle Waubant Hosted By: Jon Strum Tags: MS, multiple sclerosis, pediatric MS, MS patient costs, Sonde Health, vocal biomarker, Dartmouth Medical Center, MS Care, Dystel Prize, Dr. Frederik Barkhof    

As technology advances at an ever increasing rate, it's speeding up the pace of scientific discovery. In this week's podcast, we're looking at new tech tools -- smartphone apps, desktop programs, and mobile technology -- that will change the way you manage MS fatigue, anxiety, foot drop, MS rehab, and more.  And you'll meet this week's guest, Jayce Riley, an MS Road Warrior who is preparing to ride his bike 3,785 miles across the United States to honor his late mother, and raise money for MS research. ____________ MS State Action Day in California  :20 Online Therapy Manages MS Fatigue  3:17 FDA Approves Mobile App For LG 300 Go Rehab System  7:31 Register To Test-Drive MyMS, a New Smartphone App  9:13 Generational Differences In Healthcare  10:35 There's a New Online Resource For People With MS  12:57   Interview with Jayce Riley  16:19 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Elevida Online Therapy Clinical Trial Results FDA Approves Mobile App for LG 300 Go System Generational Trends in Healthcare MyMS Smartphone App Study Registration National MS Society MS Path 2 Care ___________ For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 27 Guests: Jayce Riley Hosted By: Jon Strum Tags: MS, multiple sclerosis, Elevida, MS fatigue, LG300 Go, My Bioness, MyMS, MS Path 2 Care, MS podcast, RealTalk MS

Learn this week about how earthquakes are caused and why they're like having sex. Also, find out which Bond villain wanted to make his place the best.LinksIf you would like to help victims and survivors recover from recent earthquakes, click here.