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Die Themen in den Wissensnachrichten: +++ Schimpansen trommeln im Rhythmus +++ Long Covid und CFS/ME haben hohe gesellschaftliche Kosten +++ KI baut Lego +++**********Weiterführende Quellen zu dieser Folge:Chimpanzee drumming shows rhythmicity and subspecies variation/ Current Biology, 09.05.2025Long Covid und ME/CFS kosten die Gesellschaft jährlich 60 Milliarden Euro/ Spiegel Online, 10.05.2025Tracing the evolutionary history of the CCR5delta32 deletion via ancient and modern genomes/ Cell, 05.05.2025Ungleiche Teilhabemöglichkeiten für Kinder und Jugendliche in Deutschland/ Berlin-Institut für Bevölkerung und Entwicklung, 12.05.2025A cryptic role for reciprocal helping in a cooperatively breeding bird/ Nature, 07.05.2025Alle Quellen findet ihr hier.**********Ihr könnt uns auch auf diesen Kanälen folgen: TikTok und Instagram .
V tomto hlubokém a strhujícím díle se vracíme zpět k biologickým kořenům vitality a klíčovému prvku našeho zdraví: energie. A pokud mluvíme o energii, musíme jít až k jejím generátorům – mitochondriím.Spolu s Vojtou a Kryštofem se ponoříš do fascinujícího příběhu o tom, jak mitochondrie nejsou jen „elektrárny buněk“, ale i hlídači našeho zdraví, strážci regenerace, regulátoři smrti a života – a v neposlední řadě i původní bakterie, která kdysi přežila pohlcení a započala jednu z nejstarších symbióz života.
VIVOBAREFOOT are the proud sponsors of today's episode. Use CODE: PJL20 for 20% off your first order. Reconnect with Earth by wearing REAL shoes. In this thrilling episode of The Wellness Way, Philly is joined by two world-renowned health experts, Dr Sarah Myhill and Dr Jenny Goodman, to discuss the upcoming Health Hub event, presented by the College of Naturopathic Medicine (CNM) in collaboration with The Wellness Way. This is a rare opportunity to hear from two of the most respected voices in holistic medicine, who will be speaking and sharing advice at The Health Hub. • Dr Sarah Myhill is a leading authority in chronic fatigue syndrome (CFS/ME) and mitochondrial health, with decades of experience helping patients reclaim their energy and vitality. She has authored several ground-breaking books, including The Paleo Ketogenic Diet and Diagnosis and Treatment of CFS/ME. • Dr Jenny Goodman is an expert in nutritional and environmental medicine and the author of the acclaimed book Staying Alive in Toxic Times. Her work focuses on how the right nutrients can transform health and how to protect ourselves from modern-day environmental threats. Meeting these trailblazers in person at The Health Hub is a once-in-a-lifetime opportunity to gain direct insights into their decades of wisdom and practical advice. The Health Hub promises to be a transformative event, featuring expert talks, hands-on advice, and a vibrant community committed to natural health. Don't miss this chance to learn from the best and take the next step in your healing journey! Whether you're looking to optimise your health, learn about natural therapies, or just want to feel amazing, this is the event for you. Tickets start at just £20, but they're limited, so don't wait. Head over to my webpage to grab yours now! Let's transform our health together. See you there! Connect with Philly: • Website: phillyjlay.com • Socials: @phillyjlay Connect with College of Naturopathic Medicine: • Website: naturopathy-uk.com Disclaimer: This podcast is for educational purposes only. Always seek professional advice for any health or legal concerns.
VIVOBAREFOOT are the proud sponsors of today's episode. Use CODE: PJL20 for 20% off your first order. Reconnect with Earth by wearing REAL shoes. In this thrilling episode of The Wellness Way, Philly is joined by two world-renowned health experts, Dr Sarah Myhill and Dr Jenny Goodman, to discuss the upcoming Health Hub event, presented by the College of Naturopathic Medicine (CNM) in collaboration with The Wellness Way. This is a rare opportunity to hear from two of the most respected voices in holistic medicine, who will be speaking and sharing advice at The Health Hub. • Dr Sarah Myhill is a leading authority in chronic fatigue syndrome (CFS/ME) and mitochondrial health, with decades of experience helping patients reclaim their energy and vitality. She has authored several ground-breaking books, including The Paleo Ketogenic Diet and Diagnosis and Treatment of CFS/ME. • Dr Jenny Goodman is an expert in nutritional and environmental medicine and the author of the acclaimed book Staying Alive in Toxic Times. Her work focuses on how the right nutrients can transform health and how to protect ourselves from modern-day environmental threats. Meeting these trailblazers in person at The Health Hub is a once-in-a-lifetime opportunity to gain direct insights into their decades of wisdom and practical advice. The Health Hub promises to be a transformative event, featuring expert talks, hands-on advice, and a vibrant community committed to natural health. Don't miss this chance to learn from the best and take the next step in your healing journey! Whether you're looking to optimise your health, learn about natural therapies, or just want to feel amazing, this is the event for you. Tickets start at just £20, but they're limited, so don't wait. Head over to my webpage to grab yours now! Let's transform our health together. See you there! Connect with Philly: • Website: phillyjlay.com • Socials: @phillyjlay Connect with College of Naturopathic Medicine: • Website: naturopathy-uk.com Disclaimer: This podcast is for educational purposes only. Always seek professional advice for any health or legal concerns.
Looking at a new concept in medicine - that of decentralisation - taking back control and making surprising but simple changes to your lifestyle to enhance health.Find Dr Boon Lim's talk for the Awakening Heart Collective herehttps://www.youtube.com/watch?v=rksXwEf6ZWU&feature=youtu.be00:00 Intro to decentralised medicine - taking back control of your health. Especially important in chronic conditions like CFS/ME which are not dealt with well by conventional medicine.03:07 Integrative medicine - Dr Boon Lim as an example - a cardiologist who uses HRV as well as more conventional methods, to measure your autonomic (nervous system) health- the importance of breath to regulate.06:40 Sunlight as a nutrient - not just foods supply this. Better than supplementation as it helps boost mitochondrial function without the limitation of poor digestion. Autonomic regulation (vagal toning, etc) is much more likely to benefit those with low energy/immunity.08:36 We need daylight every day through the skin and eyes. Huge difference in irradiance between indoors and outdoors so exercise outdoors. Important for eye health and inflammatory brain disease like Parkinson's and Alzheimer's.11:15 Sound like binaural beats - helps brain coherence (resonance) and change your brain state away from beta (fight and flight) to alpha (rest and digest/flow state). Input vs. output. Dysautonomia common in long covid.13:31 EMDR - Eye movement densitisation and reprocessing helps us reprocess childhood trauma as over that then stops triggering your autonomic nervous system unconsciously.14:43 Taking back control - some innovative clinicians are working within the centralised system enables you to work as a team.16:50 My history from centralised to decentralised. (Imperial College to solo practitioner). Promotes personalised medicine. Future talks for the Awakening Heart Collection. *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
* $100 OFF discount down below * Yoga therapist Fiona joins me to talk stress response, cell danger, chronic fatigue, machine culture, ME, long Covid, how to recover when exhausted, shame around rest, yoga for fatigue, hormesis vs soothing, what works for recovery and self compassion. A useful one for anyone who's ever been frazzled! Find out more about Fiona here: https://www.fionaagombar.co.uk/ YouTube channel with free resources and classes https://www.youtube.com/channel/UCZ_0eOA8GhFNaW9a9TKTYhQ Supportive Facebook community for those with ME/CFS and Long Covid who are interested in yoga: https://www.facebook.com/groups/560314231255748 --------------------------------------------------------------------------------- Fiona Agombar is an author and yoga therapist in the Viniyoga Tradition. She is accredited as an advanced teacher with the British Wheel of Yoga (BWY). Fiona is passionate about changing attitudes to those with fatigue conditions and describes herself as a Rest Activist. She specialises in teaching yoga for CFS/ME, Burnout, stress and long-Covid and has set up teaching modules on stress and fatigue for Yoga Campus together with CPD training for the BWY. Fiona was a key speaker for Global Yoga Therapy Day in August 2020 and a speaker at the Wellness After Covid Symposium in May 2021. In March 2021 she contributed to the British Council of Yoga Therapy on guidelines for teaching those with long-Covid. She runs successful training for teachers on Burnout, CFS and Long-Covid with Sarah Ryan through Yoga Teachers Forum. She is the author of Beat Fatigue with Yoga (Cherry Red Books) and Yoga Therapy for Stress, Burnout and Chronic Fatigue Syndrome (Singing Dragon). Fiona has written a book on Long Covid and fatigue with Nadyne McKie Breathe, Rest Recover which was just published in November 2024 by Singing Dragon. She runs weekly Zoom classes for those with burnout and fatigue, payable by donation. -------------------------------------------------------------------------------- Get $100 OFF our CEC course - use the code CEC100PODCAST on https://embodimentunlimited.com/cec/ Get a free copy of Mark's latest eBook for coaches (12 tools) at this link: https://embodimentunlimited.com/coachingpodcast Join Mark for in-person workshops – https://embodimentunlimited.com/events-calendar/?utm_source=TEP&utm_medium=Description&utm_campaign=Events Join free coaching demos sessions with Mark – https://embodimentunlimited.com/free-coaching-with-mark/?utm_source=TEP&utm_medium=Description&utm_campaign=Demo Find Mark Walsh on Instagram https://www.instagram.com/warkmalsh/
Find my book The Highly Sensitive Handbook here https://mybook.to/HSHandbook00:00 Intro to Neurodiversity and High Sensitivity - my book The Highly Sensitive Handbook looked at this02:00 Neurodiversity is common but misunderstood - higher sensitivity and ADHD - differences03:48 ADHD Attention Deficit hyperactivity Disorder - common symptoms or traits: of disorganisation, emotional dysregulation, dopamine functioning - executive functioning deficits08:38 Troubled multi-tasking, distractibility, difficulty awaiting your turn (makes you REALLY anxious), difficulty staying still, sex differences: women and girls mask much more than boys and men, higher rate of anxiety of depression, low self-esteem,14:00 Contentious issues of childhood trauma in the development of neurodiversity, creates a predisposition to chronic depression - unresolved issues from childhood15.58: How to deal with these issues - diagnosis is helpful in some cases, but not universally accepted. Acceptance is more helpful to living a whole and sustaining life. Healing the past.17:37 Physical changes you can make, sleep (quality of light), diet and exercise (moving more in the outdoors). Avoiding addictive tendencies. 19:56 Getting relationships that nurture you. Poor boundaries will exhaust you if you don't limit. Supportive communities help to counter isolation. Nature connectedness.You might like to join my monthly sensitive/CFS/ME recovery community for support and discussion.Book here.https://www.alchemytherapies.co.uk/booking-calendar/online-community-membershipFirst Weds in the month (usually) - check online for details of next session) *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
Anne Stine ble syk som 14-åring etter kyssesyken, og da hun var 16 år, fikk hun diagnosen CFS/ME. Anne Stine har i senere tid forstått at hun har opplevd en del traumer i barndommen, noe som gir en 3-8 ganger økt risiko for ME/CFS. Kyssesyken ble bare dråpen i hennes stressede nervesystem. Hun ble så dårlig at hun måtte slutte på skolen og ble helt sengeliggende. Etter flere år med sykdom begynte hun i mitt kurs i fjor, og siden da har hun gjort en utrolig reise mot et friskere liv.Nå kan du høre Anne Stine dele sin historie, og få innsikt i hvordan hun har bygget seg opp igjen. Hun forteller om de viktigste verktøyene og metodene hun har brukt for å komme seg tilbake til livet – steg for steg, med en imponerende fart. Dette er en inspirerende historie om styrke, håp og veien mot bedring.Hør Anne Stines erfaringer og hva som virkelig har gjort en forskjell på hennes vei mot bedre helse og livskvalitet.Følg meg gjerne påDoktor Laila Five (@doktorfive) • Instagram-bilder og -videoerBalansert av Doktorfive – Nevroplastisk behandlinglailafive (@doktorfive) | TikTokmail: post@doktorfive.noDisclamer: innholdet i podcasten er ment som generell helseopplysning og erstatter ikke medisinske råd eller behandling. Har du spørsmål om din medisinske tilstand må du kontakte egen lege. Selv om mange alvorlige symptomer som deles i denne podcasten er nevroplastiske, så bør annen fysisk sykdom alltid utelukkes av lege, før legen din kan vurdere om tilstanden er nevroplastisk Hosted on Acast. See acast.com/privacy for more information.
In this episode, GP Professor Lesley Kavi (chairperson of the charity PoTS UK) talks to Dawn Liz Powell about diagnosing and managing postural tachycardia syndrome (PoTS) in primary care. Professor Kavi explains that PoTS refers to an abnormal response to an upright posture — defined as a persistent increase in heart rate of more than 30 beats per minute (40 beats per minute in children) upon standing. While the exact aetiology of PoTS is not known, it can occur after a virus (such as COVID) and is strongly associated with joint hypermobility syndrome. The condition can cause a range of symptoms, including (but not limited to) fatigue, dizziness, syncope, and brain fog. This can make diagnosis difficult, with Professor Kavi noting that many people with PoTS attend several medical appointments without getting a clear diagnosis or are categorised as having ‘medically unexplained symptoms'. You can access the website version of this podcast on MIMS Learning to make notes for your appraisal. MIMS Learning offers hundreds of hours of CPD for healthcare professionals, along with a handy CPD organiser.Please note:This podcast is intended for healthcare professionals. If you are a person with PoTS, or suspect you have PoTS, the information in this episode should not be seen as a replacement for medical advice from a trained professional. Please consult with your doctor before making any changes to your lifestyle and/or to any medications you may be taking. This podcast is presented by medical editors and discusses educational content written or presented by doctors, nurses and other healthcare professionals on the MIMS Learning website and at live events.In this interview, Professor Kavi refers to ‘CFS/ME'. However, the term is now ‘ME/CFS'. MIMS Learning modules Diagnosis and management of functional seizuresGuidance update: latest NICE guidelines on neurological conditionsGuidance update: NICE guidance on myalgic encephalomyelitis/chronic fatigue syndromeRegister for a free healthcare professional account https://www.mimslearning.co.uk/registerPoTS UK Managing PoTS Hosted on Acast. See acast.com/privacy for more information.
00:00 How Jenny started working with clients with CFS/ME03:00 How the patterns became so clear led to explore solutions and begin teaching05:06 High sensitivity and trauma combine with emotional responsibility 06:40 Jenny's approach interwoven with who she is and holding others in safety - no 'off the peg' solution. But did teach the compassion and acceptance of reparenting the inner child to others.09:46 This is an art not a science - the clinical nature needs to go - ignores the witnessing, held in safety even in most healing models11:14 Working while present allows for a creative solution that is client led - my model was Virginia Satir who really connected with the bodymind of her clients13:46 The use of spirituality in working - knowing your purpose and where you belong - = a spiritual purpose grounded in presence - listening with the heart to what is NOT said15:50 Looking for wholeness in connection with others and self is a refinement process 18:35 Intuitive /second sense of what is being presented - the real self vs. the false self20:00 CFS/ME is a holding place/stasis of protection against vulnerability. Letting go of fear is the first step to healing.22:16 What's going on in the world that leads you away from an inner knowing. A useful distraction to keep you hooked into world events and an authoritarian narrative24:13 Social media drives a lot of the disconnection. Gender wars. Polarisation. Outsourced our power to others. Being yourself allows for diversity.26:10 Being with uncertainty is the biggest negotiation we make on this journey. A dance of flexibility.27:50 Whose side are you on? Counter to finding your own answers within. Communitarian mass media culture defines anyone who disagrees as rightwing/woke30:49 You can still disagree and still be loved when you are self-directed and tuned into a collective consciousness that is willing to explore uncertainty and nuance. The dance of wholeness32:46 women's voices in this space - needs fierce female leaders with heart - the elders/ crones/ wise women who shine a light on what's wrong and show by example.34:35 you have agency - inspiring others to know this. Wild unleasing - true feminine energy/power36:50 Final thoughts. Let go and let it unfold.Find Jenny on openmindtherapy.co.uk and me on alchemytherapies.co.uk *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
Dr. Melanie Hoppers never planned to become an expert on chronic fatigue syndrome (CFS). She learned about it briefly in medical school, but her professors largely brushed off the complaints of CFS patients. It wasn't until her own daughter got sick that Dr. Hoppers began to research CFS, becoming desperate to find anything that might help. That's when she discovered the work of Lucinda Bateman and the Bateman Horne Center, a clinical care and research institution specializing in CFS (also known as myalgic encephalomyelitis or ME) that focuses on educating not just patients, but healthcare providers about this complex illness. Dr. Hoppers learned so much about how to manage CFS and it's common comorbidities like mast cell activation syndrome (MCAS) that she soon decided to join forces with the Bateman Horne Center to fight back against these complex chronic diseases. In this episode of the Major Pain podcast, Dr. Hoppers discusses her journey from CFS caregiver to practitioner. She shares the personal history of her daughter's illness that brought CFS to her attention, and discusses how learning to combat this disease has changed the course of her professional life. We also discuss the disease itself, and some of the techniques the Bateman Horne Center is utilizing to manage it. She tells us that many people with CFS/ME also have to deal with MCAS, while sharing the basics of bringing mast cells under control. She also discusses the importance of pacing for those suffering from post-exertional malaise (PEM), her thoughts on low-dose naltrexone (LDN) and an overview of the important work being done at the Bateman Horne Center. Learn more about CFS/ME, MCAS and more at the Bateman Horne Center website: https://batemanhornecenter.org/ Sign up for their upcoming webinar: Severe ME/CFS: Care, Rights and Research PlayWatch the episode on YouTube, or listen on your favorite podcast platform.
Themes: CIRS, Mold Illness, Brain Retraining Show: Have you dealt with water damage in your house or symptoms related to mold illness? Today's guest, Katie Nickerson, shares her mold journey and healing tools using the structure of brain retraining. Katie is a brain retraining coach, helping clients access their innate healing wisdom to rewire their brains and thrive. Integrating neuroscience, nervous system regulation, somatic tools, and parts work. After years of mystery illness and multiple diagnoses, including CIRS, CFS/ME, MCAS, chronic pain, and more, Katie's health declined despite rigorous healing protocols. Listen to this episode to hear how her turnaround came with brain retraining, which gave her the tools to rewire her brain and make a full recovery from chronic illness! Show Notes: - Feeling stuck with CIRS symptoms and discovering brain retraining as a way to heal - Brain retraining isn't just a modality; it's a process to improve the immune system to set up your body to heal - Katie's symptoms going unresolved after years of trying the Shoemaker protocol - The HLA-DR gene and how it affected Katie's approach to treatment - Talking to a stranger at the doctor's office led Katie to brain retraining - Katie's trip to Florida and how it changed her belief system on how to heal - Healing is not linear Resources: -Katie's Instagram: @abodehealingco -Katie's Free Guide - Retraining Your Brain Around Mold -Schedule a Free Discovery Call for 1-1 Coaching -Healing From Mold Sensitivity Course -Lindsay's Instagram: @myvitalside or TikTok: @myvitalside -Visit Lindsay's Website -Click here for Lindsay's FREE Brain Retraining Guide -Cait's Instagram: @caitmurphy.co and visit Cait's Website -Click here for Cait's FREE Masterclass
'I didn't believe that I'd stalked my partner.' In episode 101, we speak with debut author Khin Myint about the multiple strands of biography he explores in his memoir Fragile Creatures. One of these is the sudden and extreme betrayal he faced from his ex-partner, who accused him of stalking her. We also discuss the ambiguous illness his sister Theda lived with for years, at times diagnosed as depression, CFS/ME and chronic Lyme disease, and how she chose to end her life after thirteen years of symptoms and divisiveness. We also consider whether our societal silence around suicide is potentially contribuiting to its rise. Khin also describes how he came to understand masculinity as a shadow, a pressure that follows men and ultimately shapes them. He asks, 'What is this pressure that socialises boys to adhere to some of these toxic expectations of maleness?' Fragile Creatures is a must-read memoir, and this conversation is only the tip of more than one culturally urgent conversation. Plus in What Are You Reading, we chat about a surprising number of speculative fiction titles. Khin Myint is an author based in Perth. His writing has appeared in The Sydney Morning Herald, Liminal and The West Australian, and more. He was selected as one of ten participants in the Wheeler Centre's Next Chapter scheme in 2021. His debut memoir is Fragile Creatures. Books & authors (and one podcast) discussed in this episode: The Tipping Point by Dinuka McKenzie (from ep 51); 'What do trigger warnings actually do?' from Search Engine; Detachable Penis by Sam Elkin; Quiet by Susan Cain; The Good Sister by Sally Hepworth; Assassin's Apprentice by Robin Hobb; Hyperion by Dan Simmons; Orson Scott Card Get your copy of Fragile Creatures from your local bookshop or library. Supporting libraries and neighbourhood bookshops supports authors. Upcoming events: Ashley is part of the Northern Beaches Readers Festival, 27-28 September Ashley is teaching Online: Creative Nonfiction for Writing NSW, a six-week online course starting 30 September Ashley is in conversation with Heather Taylor Johnson in celebration of her latest novel, Little Bit, on Thursday 3 October, 6.30pm Ashley is teaching Crafting Memoir for the New England Writers Centre online, Saturday 12 October, 2-3.30pm James is teaching Writing Setting and Landscape for Writing NSW, Saturday 26 October, 10am-4pm Learn more about Ashley's bestselling psychological thriller Dark Mode and get your copy from your local bookshop or your library. Learn more about James' award-winning novel Denizen and get your copy from your local bookshop or your library. Get in touch! ashleykalagianblunt.com jamesmckenziewatson.com Instagram: @akalagianblunt + @jamesmcwatson
https://www.laurienadel.com/about.htmlFrom Journalist to Therapist: Her BackstoryToday we call those events “breaking news.” During her twenty years working as a writer-producer for CBS News, Reuters Television and ABC News, she came to realize that people whose lives were destroyed by violence would need long-term support. As a result of her experience covering the military dictatorship in Chile for Newsweek, Laurie worked with several human rights organizations upon her return to the States. She started the human rights committee of the Overseas Press Club and co-founded the Committee to Protect Journalists. (NY Times and World Policy Journal.)In 1987, after burning out working the Iran-Contra hearings on the heels of a long Writers Guild of America strike, Laurie came down with chronic fatigue syndrome (CFS/ME) and was bedridden for nearly three years. As there is no conventional treatment for this virus, she began studying the work of Dr. Herbert Benson who introduced meditation to the medical community. She began a lifelong meditation practice and eventually went back to graduate school for doctorates in cognitive psychology and clinical hypnotherapy. In 2000, she completed post-doctoral clinical training in mind-body medicine with Dr. Benson at Harvard Medical School's Institute of Mind-Body Medicine.Her need to find new ways to help people struggling with mental health issues led her to travel to South America in the 1990s to study with indigenous healers and shamans in the jungles, mountains, and cities of South America. Dr. Laurie integrates their teachings of connecting with nature into all of her sessions and workshops. A Reiki Master for the past two decades, she is expanding her Reiki practice to help animals and their human companions, (animalreikiplanet.com)A psychotherapist in Manhattan during the week, Laurie spent most weekends filing cover stories for The New York Times. Her “On the Water” features covered the local marine environment and extreme water sports. Her column “Long Island at Worship” reported on communities of faith in the suburbs. An expert in stress, health and trauma, Laurie has done more than 100 TV interviews including CBS News, CNN and the BBC. Her work has been featured in The Wall Street Journal , Business Insider, People magazine and The New York Times. She was a guest on Oprah, talking about her revolutionary four-time best-seller Sixth Sense: Unlocking Your Ultimate Mind Power which launched the psychic revolution. Still in print after 33 years, Sixth Sense broke the story of the Pentagon's secret psychic espionage program.
Explore with me the multi-dimensional nature of complex chronic exhaustive conditions and how you can heal. See also Raelan Agle's fabulous channel @RaelanAgle and The @crappychildhoodfairy00:00 intro and importance of the mind in Recovery - which can and does happen!02:12 CFS/ME is not a diagnosis but a description - there are no biomarkers for the condition is 'medically unexplained and it doesn't lead to an answer or plan for recovery.04:13 Mindset means what you believe consciously and unconsciously - its not about positive thinking... getting out of denial and 'pushing through', keeping it hidden06:00 The loads can be multiple on top of the previous stresses (including epigenetics and the unconscious emotional trauma) combines to form your total allostatic load in the terrain of the bodyso the treatment path is very unclear09:20 recovery starts with accepting you have a problem and something needs to change - the mindset shift. All complex chronic conditions have a mindbody component10:50 what are the maps to recovery? nutritional supplementation which can be difficult to handle when depleted, physical/structural like Perrin technique, very intense and long.14:35 Rewiring the nervous system like Dan Kneuffer's Re-wire, Chrysalis Effect, Gupta, Lightning Process, Reorigin programs. All work on the autonomic nervous system dysregulation.16:20 Modern medicine is left hemisphere oriented and cannot look at all the various factors in such a multifactorial disease. Explore the various alternatives and get into recovery mindset.17:50 The map for each individual are different but reaching out for help from people who have been through this so they understand the mind and body factors and how to shift the pattern19:49 Personality factors, past experiences that were not metabolised, all live on in you that manifest in you - complex trauma. ACEs22:14 It's never one thing even though the trigger will be obvious. Alex Howard's metaphor of an overloaded cargo ship which runs aground. Always multi-dimensional and uncertain.*Watch a video**HEAL YOUR SPIRIT TO HEAL CFS/ME https://youtu.be/hXGaOjrV6PAWHATS THE MATTER WITH MEDICINE - IAIN MCGILCHRIST https://youtu.be/CdE1QphYKoUHOW TO HEAL BIRTH TRAUMA WITH EMDR https://youtu.be/JmtarRiGsgYEMOTIONAL RESILIENCE https://youtu.be/E5TYi9dEBEUWHY ANXIETY IS NOT A MIND ISSUE https://youtu.be/Ty-J2pu37tAHOW CHILDHOOD EMOTIONS STILL AFFECT YOU: https://youtu.be/8LzR8yhR8u8 *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
Claire Sehinson, is an educator, researcher with a functional medicine and nutritional therapy clinical practice. She brings to her work her passion and lived experience of being multiply neurodivergent and diagnosed with Autism, dyslexia and ADHD as an adult, whilst navigating her own recovery from ME/CFS and dealing with many mental health issues throughout her lifetime. Claire has over a decade of specialist clinical experience working with complex illness, trauma, CFS, Fibromyalgia and chronic infections. Claire is the Head of Research at the Optimum Health Clinic (an integrative body-mind clinic) where she researches and trains practitioners on cutting-edge protocols to support complexly ill clients. She created the IHCAN award winning Therapeutic Nutrition course- a 6 month post-graduate practitioner training program supporting patients with CFS/ME and complex illness. Claire continues to advocate for marginalized groups to raise awareness and share knowledge of intersectionality in healthcare. Her research focus is the overlap of Neurodivergence, hypermobility spectrum disorders and chronic complex illness. Today we cover: Her personal story with Neurodiversity and WHY it was important to her to pursue this career? Some of the myths about what people think ADHD is and what it actually is The unique challenges faced by those with ADHD The relationship between ADHD and eating disorders, and how the symptoms of each condition may exacerbate the other? We talk about interoception and how this affects individuals with ADHD when it comes to feeding and eating The sensory processing and differences that ADHD people experience? What are some helpful tips for practitioners working with diet & nutrition plans in ADHD? How do ADHD symptoms intersect with substance use disorders? What are some common coping mechanisms or self-medicating behaviors that individuals with ADHD may adopt, leading to potential addiction issues? How does impulsivity, a hallmark trait of ADHD, contribute to addictive behaviors or disordered eating patterns, and what strategies can be employed to mitigate these impulses? Just forwarding my contact details: Instagram handle: https://www.instagram.com/nutritionforneurodiversity/ The-Creative-Well is my functional medicine practice https://www.the-creative-well.com/services/#anchor-3 Claire's Blog: https://neurodivergentinsights.com/blog?author=65bb37c2c08d0b7ec949620c Claire's training program in CFS/ME (for practitioners!) https://www.therapeuticnutrition.com/ The content of our show is educational only. It does not supplement or supersede your healthcareprovider's professional relationship and direction. Always seek the advice of your physician or other qualified mental health providers with any questions you may have regarding a medical condition, substance use disorder, or mental health concern.
My commentary on the insight and understanding of healing ME/CFS as a spiritual disconnect that nevertheless has physical consequences. I draw on an interview between Jenny Lynn and Raelan Agle as well as my own experience as a therapist for over 15 years. See that herehttps://www.youtube.com/watch?v=KyFQKb0qS7000:00 Intro00:56 CFS/ME is a disconnect from the soul/spirit of the person suffering from it.02:20 Your biography becomes your biology - why the body attacks itself - an alternative view04:32 Feelings of unworthiness are embedded so that you have to strive/prove it somehow - and when you are not able to continue producing because of illness this creates a lot of fear that you will stay this way forever - spiritually adrift06:45 Medicine is spiritually adrift too - a disconnect from you as a person, treats the symptoms only. Lost the art of medicine. a spiritual dislocation in the doctor/patient relationship08:45 Most disease is a dys-regulation of the neuro -hormonal/immune system - a metaphorical reflection of the subconscious mind's dysfunctional beliefs10:47 The mind and body are one and they read eachother. Integrative medicine brings this in and approaches this as a stress response gone awry. Helps to heal by motivating the body to heal from the bottom up rather than symptom checking.13:00 Self-worth/esteem is built from the ground up - with a supportive therapist to engage your creative spirit rather than simply symptom suppressing.14:40 Being not doing. Building creativity using metaphor/stories to get a dialogue between head and heart engages self-love and forgiveness of the self.17:58 Finding a way out is about engaging new responses from the adult self - is NOT selfish19:50 Healing in NOT about fixing the problem but about your own journey back to the authentic selfNo 'one size fits all'.21:20 We often have to hit rock bottom to truly heal - we seldom change unless we have to. Transform the relationship with yourself.22:24 Healing is a process not a destination - need to assimilate (digest) it for yourself at a deep level. Takes courage and support.*Watch a video**WHATS THE MATTER WITH MEDICINE - IAIN MCGILCHRIST https://youtu.be/CdE1QphYKoUHOW TO HEAL BIRTH TRAUMA WITH EMDR https://youtu.be/JmtarRiGsgYQUANTUM HARMONIC RESONANCE IN THE BODY https://youtu.be/DMKLkIw6PXIEMOTIONAL RESILIENCE https://youtu.be/E5TYi9dEBEUWHY ANXIETY IS NOT A MIND ISSUE https://youtu.be/Ty-J2pu37tAHOW CHILDHOOD EMOTIONS STILL AFFECT YOU: https://youtu.be/8LzR8yhR8u8 *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
My reaction to the death of TV presenter and doctor Michael Mosley was one of deep sorrow and shock despite not knowing him personally. I was stunned by the unnecessary loss but also realising I was reacting to an event that happened to me 40 years ago!! Find out how here.00:00 Nature of Trauma - shock trauma of loss e.g. the tragic death of Michael Mosely, one of the few TV doctors talking the language of integrative medicine - someone I greatly admired.02:31 Very triggered by his death due to my own history with shock trauma - losing my Dad while I was away. Trigger = an internal traumatic re-enactment of previous experience.05:31 You can't process trauma with willpower as it's generated in your survival brain. Causes many symptoms in body including pain, fatigue, gut issues and inflammation.07:40 Trauma exists in most childhoods, as attachment trauma = emotional wounding, particularly for emotionally sensitive people (HSPs).09:00 Usually shows up as long-term chronic conditions such as CFS/ME, Auto-immune Disease like Ehlers Danlos and Rheumatoid Arthritis. Will not respond to trying to 'fix it' (cognitive approach), particularly left hemisphere attention (grasping, linear, reductive)11.40 Requires unconscious processing via body connection and unprocessed emotions stored there.. In the immediate aftermath need to take control (cognitively) but later on will need a different form of healing allowing you to heal at a deeper level.15:50 Healing in safe physical connection with another allows you to feel the feelings without judgement or competition (no shame).17:42 Social media is a shaming environment because it lacks heart to heart connection. AI particularly illustrates this as it shuts down our emotional centres promoting disconnection. 19:50 Recovery requires rewiring brain neurobiologically using somatic psychotherapy (talking therapy doesn't work so well with trauma as it is perceived in the body).21:00 Finding a neuro-biologically safe state enables brain integration and mind and body connection. Get help, reach out to reverse chronic disease. Everything is possible...*Watch a video**AI IS ARTIFICIAL INTIMACY - https://youtu.be/Ii4ylPl9vJ8WHATS THE MATTER WITH MEDICINE - IAIN MCGILCHRIST https://youtu.be/CdE1QphYKoUHOW TO HEAL BIRTH TRAUMA WITH EMDR https://youtu.be/JmtarRiGsgYEMOTIONAL RESILIENCE https://youtu.be/E5TYi9dEBEUWHY ANXIETY IS NOT A MIND ISSUE https://youtu.be/Ty-J2pu37tAHOW CHILDHOOD EMOTIONS STILL AFFECT YOU: https://youtu.be/8LzR8yhR8u8 *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
UNDERSTANDING CHRONIC DISEASE WITH JOSHUA LEISK COMMANDING THE NARRATIVE EPISODE 15 Steven Tripp and Paul Vallejo are joined by researcher Joshua Leisk, who is a former chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) sufferer and IT professional with a keen interest in bioinformatics. Joshua began researching CFS/ME out of curiosity, focusing on liver and brain interactions. Through analysing health data from diet coaching clients, he identified common patterns in urea cycle abnormalities and adrenal cortex dysregulation. Joshua's research suggests that latent viral infections like EBV significantly contribute to CFS/ME. He found that personalized diet and supplement interventions improved his clients' symptoms, including his own, as he has been symptom-free for 25 years. Of course, the information conveyed on this episode is not intended as medical advice. To contact or follow Joshua Leisk, visit: https://bornfree.life To enter the NREN Reckless Renewables National Photography Competition, visit: https://www.nren.com.au/new-nuclear SHOW YOUR SUPPORT for Commanding the Narrative at ‘Buy Me A Coffee' – your support is much appreciated! https://www.buymeacoffee.com/commandingthenarrative TO GET YOUR ‘Commanding the Narrative' merchandise, head to: https://xcandidates.tshirts.net.au Hosted by: • Steven Tripp https://www.facebook.com/RealStevenTripp https://twitter.com/RealStevenTripp https://spectator.com.au/author/steven-tripp Follow us on: Spotify: https://open.spotify.com/show/4GIXhHBogM1McL5EPGP3DT Rumble: https://rumble.com/user/ExCandidates Facebook: https://www.facebook.com/XCandidates Instagram: https://www.instagram.com/theXCandidates Twitter: https://twitter.com/theXCandidates YouTube: https://www.youtube.com/@XCandidates Gab: https://gab.com/XCandidates Gettr: https://gettr.com/user/XCandidates Truth Social: https://truthsocial.com/@ExCandidates Apple Podcasts: https://podcasts.apple.com/us/podcast/the-ex-candidates/id1631685864 Please share and spread the word! #AusPol #nswpol #interview #podcast #politics #commentary #narrative #minorparties #libertarian #onenation #uap #liberal #nationals #labor #greens #steventripp #australia #paulvallejo #covid #injections #jabinjuries #joshualeisk #cfs #me #latent #virus
A new 'Magic Bullet' that few people know about (including your doctor!) ... The importance of Methylene Blue and how it might transform human health particularly in areas of low oxygen delivery (fatigue states, depression and neurological damage).Check out the original recording with Dr Gonalez-Lima on https://deeprootsathome.com/methylene-blue-memory-mood-parkinsons-adhd/ (see the original on rumble linked from there).See more info on dosing on that websiteSee his latest summary paper on MB + photobiomodulation with neuro-inflammation here https://pubmed.ncbi.nlm.nih.gov/36203812/ He can also be found on various podcasts here https://www.ihmc.us/stemtalk/episode-107/00:00 Oldest known drug used for emergency room cyanide poisoning02:20 Electron Transport Chain in Mitochondria - how it produces cellular energy - a series of reduction/oxidation (redox) reactions where electrons are released - reduction is loss of hydrogen ions (protons) and gain of electrons05:20 What gets in the way? Cyanide poisoning and some virus infections like HIV or covid, causing low oxygen delivery and assimilation07:50 Long history of use as an anti-viral against Ebola/HIV and anti malarial.08:25 MB structure - electrons held in a ring structure as a chromophore (like coloured foods). 10:20 Absorbs in IR range - molecule structure is auto-oxidant as well as electron cycling12:00 Hormesis and biphasic response operates in CFS/ME - at low doses it is advantageous at higher doses can be damaging14:00 Neurological benefits in healthy people at lower doses - slow aging, dementia, Parkinson's, as well as a powerful antidepressant , etc15:14 MB is off patent so not supported by Big pharma unlike anti-depressant drugs which are less and less effective - 'treatment resistant depression'17:30 High permeability as it passes the blood brain barrier and can optimise cellular respiration with well people. So enhances metabolic production enabling better healing, memory, aging i,e is a nootropic as well as a drug for acute medicine.21:00 Also upregulates (increases) gene expression of protein (enzyme) production longer term thus increasing capacity for oxygen metabolism22:00 CFS/ME is a form of metabolic 'poisoning' driven by emotional stress and toxicity23:20 Cure for bladder infections - becomes pro-oxidant in oxidative stress especially important with the elderly26:40 Brain function and neurological issues must be coupled to haemodynamic response between oxygen and nitrous oxide in Complex 4 (cytochrome oxidase) facilitated by MB29:00 Enhancing mental function including extinguishing trauma memories and MB in memory reconsolidation30:20 Topical application using photobiomodulation of skin tumours with MB and IR light32:30 Disclaimer. Always contact your medical provider as there are some contraindications. However be aware most doctors are unaware of MB except in emergency situations. Please refer to Dr Gonzalez-Lima's papers to educate your doctor in low grad applications.33:50 Sources - please do your own research to find *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP*CONTACT ME: https://www.alchemytherapies.co.uk/Alchemy Therapies & Emotional MasterclassOTHER USEFUL RESOURCESGroup Healing Program: http://myemotionalaudit.comAuthor/Book site: https//patriciaworby.comPodcast: https://www.alchemytherapies.co.uk/po...121 and group therapy and training for stress related conditions like anxiety, fatigue and pain: https://alchemytherapies.co.ukSee in particular: Thrive! - an introductory mindbody connection program and The Emotional Audit for more intensive training.COMING SOON:Intensive Training Program: https://emotionalmasterclass.com
In this episode Alex speaks with Ashok Gupta, founder of https://www.guptaprogram.com/. We discuss Ashok's health journey from suffering with CFS/ME to creating a online self-healing program used ny people around thr world. We also discuss the science behind the program and the key theory/principles behind it. Our team at Healthpath help people take charge of their gut health. Visit our website to learn more: https://healthpath.com Order a SIBO test: https://healthpath.com/products/sibo-hydrogen-breath-test-uk/ Order a gut microbiome test: https://healthpath.com/products/microbiome-gut-bacteria-test-uk/ Work with a healthpath practitioner: https://healthpath.com/practitioners/ Visit our blog: https://healthpath.com/blog/ Follow us on Instagram here: https://www.instagram.com/ourhealthpath/ Follow Alex on Instagram here: https://www.instagram.com/alexandermanos/ Sign up to our new newsletter: https://healthpath.com/newsletter/
We have another episode of listener questions today. First, we respond to feedback from a listener with Chronic Fatigue Syndrome (also known as ME) who queried how we spoke about the condition in our previous episode touching on Long Covid. What exactly do we mean when we talk about some illnesses being ‘psychosomatic' and how has the scientific method itself started to break down in our efforts to get more insight into what CFS/ME really is? Then, we move on to a question from a listener who works at a university and is curious to know what will happen to academic and teaching assessments in an era when ChatGPT can answer written tasks for students. Will we have to move to in-person, oral examination entirely? Can large language model AI software really come up with genuinely new content, or is it simply a skilful rehash of human creativity? Don't forget, you can send in your own questions for us to consider by emailing molad@premier.org.uk or tweeting Tim at twitter.com/tswyatt. - Subscribe to the Matters of Life and Death podcast: https://pod.link/1509923173 - If you want to go deeper into some of the topics we discuss, visit John's website: http://www.johnwyatt.com - For more resources to help you explore faith and the big questions, visit: http://www.premierunbelievable.com
Lauren Windas is a renowned registered Nutritionist, Naturopath, Author of "Chronic Fatigue Syndrome: Your Route to Recovery" and co-founder of ARDERE.com, a holistic wellbeing company, specialising in supporting those with CFS/ME and long COVID. In this episode we cover: NHS guidelines and why we need to learn about bio-individuality.The controversy about low carb/ketogenic diets and their effect on blood sugar controlHow stress and stress hormones affect cfsHow to navigate food sensitivities and intolerances and their effect on the microbiomeHow to prepare healthy meals when low on energy How to manage post exertional malaise. I mean these are ALL such key areas for people struggling with post viral syndromes and I was so grateful to get such specific and specialised nutritional advice. To connect with Lauren - Instagram - @laurenwindasnutritionistWebsite - https://www.ardere.com/Book - https://www.ardere.com/product/book-chronic-fatigue-syndrome-your-route-to-recovery/
Foredrags- og kursholder om menneskelig bærekraft. Tidligere landslagsspiller i basketball og ledelseskonsulent. Nå jobber Bjørne som foredrag-, kursholder og personlig trener. Gjennom mental trening jobbet han seg tilbake fra et mørkt rom og rullestol hvor han lå i over ett år, etter å ha fått diagnosen CFS/ME. Bli med på en spennende samtale om stress og veien ut av stresset. Bjørne finner du på https://www.bjornebjornson.com/
Lauren Windas is a registered Nutritionist & Naturopath, and co-founder of ARDERE, a private nutrition clinic and holistic wellbeing company, which comprises of non-toxic natural self-care products. Lauren works individually with her clients to assess their nutrition and long-term health goals, and centres upon the belief that health is built upon a multitude of pillars, those being your diet, exercise, mindset, sleep, stress levels, as well as your lifestyle as a whole. Lauren's specialisms include chronic fatigue syndrome, gut health, weight management and disordered eating (she is also trained in NLP and as a Master Practitioner in Eating Disorders and Obesity with the National Centre for Eating Disorders).Lauren journeyed into the world of wellbeing and nutrition because of her own health problems at university: “I suffered with chronic fatigue syndrome and IBS and, after being unable to find help through orthodox medicine, I ventured down the alternative route. This is where I changed my diet, lifestyle, switched over to non-toxic products, and managed to regain back my health. Seeing the transformational effects of lifestyle medicine is what ultimately led to my work in this field, and my passion for helping others.” Lauren's first book Chronic Fatigue Syndrome - Your Route to Recovery is out on 4 May 2023. You can purchase it here.Highlights from today's episode include:Lauren's journey overcoming CFS and IBS through nutrition and alternative therapies. What is CFS/ME (myalgic encephalomyelitis)?Natural therapies, nutrients and diet for CFS.How pacing can help with CFS, so you can determine your exercise limits. How personality traits can affect CFS.Lauren's new book Chronic Fatigue Syndrome and how it can help you overcome symptoms of fatigue. You can find out more about Lauren's nutritional therapy practice and wellness business Ardere, here.And if you are struggling with fatigue, why not join my program, The Energy Enhancer. A 6 weeks programme, proving you with easy to follow diet and lifestyle practices to overcome fatigue. You can join here. Tune in today and be sure to share any of your thoughts about the show on my Instagram page: @theautoimmunitynutritionistYou can also download a free copy of The Autoimmunity Recovery Plan here.Book your free discovery call with me here.Thanks for listening! You can join The Autoimmunity Community on Facebook or find me on Instagram @theautoimmunitynutritionist.
Alison from the US shares her Low Dose Naltrexone (LDN) and CFS/ME amazing story
In this episode, we hear from Fiona Agombar. Fiona is a yoga therapist, author and Rest Activist. She specialises in teaching live online yoga for all fatigue conditions. This includes CFS/ME, exhaustion, burnout from stress and Long-Covid. Fiona is the author of the popular book and DVD Beat Fatigue with Yoga, and Endless Energy. Her new book (with contributing editor Leah Barnett) Yoga Therapy for Stress, Burnout and Chronic Fatigue Syndrome is aimed at yoga teachers, but anyone who has severe fatigue or stress will find this book has invaluable suggestions for healing fatigue.Support the showPlease rate and review this show! It really does help support it. Please share it widely with those you know struggle with complex fatigue conditions or who have an interest in such conditions.To find out more about Anna's 1-1 coaching and her powerful online group programme (The Healing Transformation Blueprint), visit www.hypnocatalyst.com "‘Anna's Healing Transformation BluePrint program is amazing! In the same way that it is impossible to capture spiritual truths with words, it is impossible to convey the depth and richness of Anna's program with words. I feel that I am truly transforming in every way — physically, mentally, emotionally and spiritually. ... I am so thankful that I made the decision to do the program which I feel has been, and will continue to be, life-changing". M.R"In brief, this course is fantastic!...Each time I start a new module or listen to a new exercise I am just blown away by it ... so yes ... the programme is not like anything I have encountered before and really is indescribable ... and is totally fantastic!!" B.H "This is the best healing program there is for chronic conditions".E.M
Há pessoas que, mesmo depois de "negativadas" após se infectar com o coronavírus, continuam tendo um ou mais sintomas da doença.O que a ciência tem a dizer sobre a pós-COVID ou COVID longa? Por que isso importa?Confira a parte 2 deste episódio duplo, no papo entre o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.Convidada Especial: Dra. Suzana Erico TanniPossui graduação em Medicina pela UNESP, com doutorado em Fisiopatologia em Clínica Médica e Livre Docencia em Pneumologia pela mesma instituição. Atualmente docente da UNESP, na área de Pneumologia, presidente da Sociedade Paulista de Pneumologia e Tisiologia, Coordenadora da Comissão de Epidemiologia e Pesquisa Clínica da Sociedade Brasileira de Pneumologia e Tisiologia, com responsabilidade na construção de guidelines nacionais de conteúdo respiratório.> OUÇA (49min 55s)*Naruhodo! é o podcast pra quem tem fome de aprender. Ciência, senso comum, curiosidades, desafios e muito mais. Com o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.Edição: Reginaldo Cursino.http://naruhodo.b9.com.br*PARCERIA: ALURAAprofunde-se de vez: garantimos conhecimento com profundidade e diversidade, para se tornar um profissional em T - incluindo programação, front-end, data science, devops, ux & design, mobile, inovação & gestão.Navegue sua carreira: são mais de 1300 cursos e novos lançamentos toda semana, além de atualizações e melhorias constantes.Conteúdo imersivo: faça parte de uma comunidade de apaixonados por tudo que é digital. Mergulhe na comunidade Alura.Aproveite o desconto para ouvintes Naruhodo no link:https://bit.ly/naruhodo_alura*REFERÊNCIASDiário de um Extubado - Episódioshttps://podcasts.apple.com/us/podcast/diário-de-um-extubado/id1528224825A multinational Delphi consensus to end the COVID-19 public health threathttps://www.nature.com/articles/s41586-022-05398-2Acute and postacute sequelae associated with SARS-CoV-2 reinfectionhttps://www.nature.com/articles/s41591-022-02051-3#MOESM1Long COVID or Post-COVID Conditionshttps://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.htmlVaccine hesitancy in the era of COVID-19https://www.sciencedirect.com/science/article/pii/S0033350621000834?casa_token=yFG73GWZPtcAAAAA:zbTt9INuQaw9TEDv7gmYkruwwXhIjCLoW8BAO0ZhwUjV5WaC9sRiT7SjTdSKxNsTT3_pf6oPF7AGlobal Prevalence and Potential Influencing Factors of COVID-19 Vaccination Hesitancy: A Meta-Analysishttps://www.mdpi.com/2076-393X/10/8/1356Partisanship and the Politics of COVID Vaccine Hesitancyhttps://www.journals.uchicago.edu/doi/abs/10.1086/719918Vaccine hesitancy in the era of COVID-19: could lessons from the past help in divining the future?https://www.tandfonline.com/doi/full/10.1080/21645515.2021.1893062How and why patients made Long Covidhttps://www.sciencedirect.com/science/article/pii/S0277953620306456Addressing the post-acute sequelae of SARS-CoV-2 infection: a multidisciplinary model of carehttps://www.thelancet.com/journals/lanres/article/PIIS2213-2600(21)00385-4/fulltextMore than 50 long-term effects of COVID-19: a systematic review and meta-analysishttps://www.nature.com/articles/s41598-021-95565-8One Year after Mild COVID-19: The Majority of Patients Maintain Specific Immunity, But One in Four Still Suffer from Long-Term Symptomshttps://www.mdpi.com/2077-0383/10/15/3305Progress and Problems in Understanding and Managing Primary Epstein-Barr Virus Infectionshttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3021204/Post-Ebola Syndrome among Ebola Virus Disease Survivors in Montserrado County, Liberia 2016https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6046154/Mast cell activation symptoms are prevalent in Long-COVIDhttps://www.sciencedirect.com/science/article/pii/S1201971221007517Antihistamines for Postacute Sequelae of SARS-CoV-2 Infectionhttps://www.sciencedirect.com/science/article/pii/S155541552100547XChronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccinehttps://www.sciencedirect.com/science/article/pii/S0264410X15014334Chronic widespread musculoskeletal pain, fatigue, depression and disordered sleep in chronic post-SARS syndrome; a case-controlled studyhttps://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-11-37Will COVID-19 Lead to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?https://www.frontiersin.org/articles/10.3389/fmed.2020.606824/fullChronic fatigue syndrome and long covid: moving beyond the controversyhttps://www.bmj.com/content/373/bmj.n1559.shortProposed subtypes of post-COVID-19 syndrome (or long-COVID) and their respective potential therapieshttps://onlinelibrary.wiley.com/doi/full/10.1002/rmv.2315Long COVID: post-acute sequelae of COVID-19 with a cardiovascular focushttps://academic.oup.com/eurheartj/article/43/11/1157/6529562Cardiac function in relation to functional status and fatigue in patients with post-COVID syndromehttps://www.nature.com/articles/s41598-022-24038-3Long COVID and rheumatology: Clinical, diagnostic, and therapeutic implicationshttps://www.sciencedirect.com/science/article/pii/S1521694222000535?casa_token=NomtNqGMCbYAAAAA:5c1zCxPY72P3Hnz2-UI-TNZ-zPJjYd95_5M11CExdsHnLLfJrREAfSZVHxY2yoVTiYdxrDjMWKgNaruhodo #314 - COVID 2021: de onde viemos e para onde vamos? - Parte 1 de 2https://www.youtube.com/watch?v=oLDbaKxnMHINaruhodo #315 - COVID 2021: de onde viemos e para onde vamos? - Parte 2 de 2https://www.youtube.com/watch?v=VkqwcNWzN7k&t=1sNaruhodo #291 - Porque preferimos certas marcas a outras?https://www.b9.com.br/shows/naruhodo/naruhodo-291-por-que-preferimos-certas-marcas-a-outras/Naruhodo #265 - Como funcionam os testes de vacinas?https://www.b9.com.br/shows/naruhodo/naruhodo-265-como-funcionam-os-testes-de-vacinas/Naruhodo #238 - O distanciamento social afeta nossa saúde mental? - Parte 1 de 2https://www.b9.com.br/shows/naruhodo/naruhodo-238-o-distancionamento-social-impacta-a-nossa-saude-mental-parte-1-de-2/Naruhodo #239 - O distancionamento social impacta a nossa saúde mental? - Parte 2 de 2https://www.b9.com.br/shows/naruhodo/naruhodo-239-o-distancionamento-social-impacta-a-nossa-saude-mental-parte-2-de-2/Naruhodo #226 - Como lidar com epidemias?https://www.b9.com.br/shows/naruhodo/naruhodo-226-como-lidar-com-epidemias/Naruhodo #247 - O que é telemedicina e por que ela é importante?https://www.b9.com.br/shows/naruhodo/naruhodo-247-o-que-e-telemedicina-e-por-que-ela-e-importante/Naruhodo #146 - Porque precisamos falar sobre vacinas?https://www.b9.com.br/shows/naruhodo/naruhodo-146-por-que-precisamos-falar-sobre-vacinas/Naruhodo #321 - Debates virtuais são perda de tempo?https://www.youtube.com/watch?v=lL0uTqpBwjE&t=1sNaruhodo #357 - Existe possibilidade de consenso na polarização?https://www.youtube.com/watch?v=KhyKRnhjnbw&t=1s*APOIE O NARUHODO PELA PLATAFORMA ORELO!Um aviso importantíssimo: o podcast Naruhodo agora está no Orelo: https://bit.ly/naruhodo-no-oreloE é por meio dessa plataforma de apoio aos criadores de conteúdo que você ajuda o Naruhodo a se manter no ar.Você escolhe um valor de contribuição mensal e tem acesso a conteúdos exclusivos, conteúdos antecipados e vantagens especiais.Além disso, você pode ter acesso ao nosso grupo fechado no Telegram, e conversar comigo, com o Altay e com outros apoiadores.E não é só isso: toda vez que você ouvir ou fizer download de um episódio pelo Orelo, vai também estar pingando uns trocadinhos para o nosso projeto.Então, baixe agora mesmo o app Orelo no endereço Orelo.CC ou na sua loja de aplicativos e ajude a fortalecer o conhecimento científico.https://bit.ly/naruhodo-no-orelo
Há pessoas que, mesmo depois de "negativadas" após se infectar com o coronavírus, continuam tendo um ou mais sintomas da doença.O que a ciência tem a dizer sobre a pós-COVID ou COVID longa? Por que isso importa?Confira a parte 1 deste episódio duplo, no papo entre o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.> OUÇA (52min 08s)*Naruhodo! é o podcast pra quem tem fome de aprender. Ciência, senso comum, curiosidades, desafios e muito mais. Com o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.Edição: Reginaldo Cursino.http://naruhodo.b9.com.br*PARCERIA: ALURAAprofunde-se de vez: garantimos conhecimento com profundidade e diversidade, para se tornar um profissional em T - incluindo programação, front-end, data science, devops, ux & design, mobile, inovação & gestão.Navegue sua carreira: são mais de 1300 cursos e novos lançamentos toda semana, além de atualizações e melhorias constantes.Conteúdo imersivo: faça parte de uma comunidade de apaixonados por tudo que é digital. Mergulhe na comunidade Alura.Aproveite o desconto para ouvintes Naruhodo no link:https://bit.ly/naruhodo_alura*REFERÊNCIASDiário de um Extubado - Episódioshttps://podcasts.apple.com/us/podcast/diário-de-um-extubado/id1528224825A multinational Delphi consensus to end the COVID-19 public health threathttps://www.nature.com/articles/s41586-022-05398-2Acute and postacute sequelae associated with SARS-CoV-2 reinfectionhttps://www.nature.com/articles/s41591-022-02051-3#MOESM1Long COVID or Post-COVID Conditionshttps://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.htmlVaccine hesitancy in the era of COVID-19https://www.sciencedirect.com/science/article/pii/S0033350621000834?casa_token=yFG73GWZPtcAAAAA:zbTt9INuQaw9TEDv7gmYkruwwXhIjCLoW8BAO0ZhwUjV5WaC9sRiT7SjTdSKxNsTT3_pf6oPF7AGlobal Prevalence and Potential Influencing Factors of COVID-19 Vaccination Hesitancy: A Meta-Analysishttps://www.mdpi.com/2076-393X/10/8/1356Partisanship and the Politics of COVID Vaccine Hesitancyhttps://www.journals.uchicago.edu/doi/abs/10.1086/719918Vaccine hesitancy in the era of COVID-19: could lessons from the past help in divining the future?https://www.tandfonline.com/doi/full/10.1080/21645515.2021.1893062How and why patients made Long Covidhttps://www.sciencedirect.com/science/article/pii/S0277953620306456Addressing the post-acute sequelae of SARS-CoV-2 infection: a multidisciplinary model of carehttps://www.thelancet.com/journals/lanres/article/PIIS2213-2600(21)00385-4/fulltextMore than 50 long-term effects of COVID-19: a systematic review and meta-analysishttps://www.nature.com/articles/s41598-021-95565-8One Year after Mild COVID-19: The Majority of Patients Maintain Specific Immunity, But One in Four Still Suffer from Long-Term Symptomshttps://www.mdpi.com/2077-0383/10/15/3305Progress and Problems in Understanding and Managing Primary Epstein-Barr Virus Infectionshttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3021204/Post-Ebola Syndrome among Ebola Virus Disease Survivors in Montserrado County, Liberia 2016https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6046154/Mast cell activation symptoms are prevalent in Long-COVIDhttps://www.sciencedirect.com/science/article/pii/S1201971221007517Antihistamines for Postacute Sequelae of SARS-CoV-2 Infectionhttps://www.sciencedirect.com/science/article/pii/S155541552100547XChronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccinehttps://www.sciencedirect.com/science/article/pii/S0264410X15014334Chronic widespread musculoskeletal pain, fatigue, depression and disordered sleep in chronic post-SARS syndrome; a case-controlled studyhttps://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-11-37Will COVID-19 Lead to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?https://www.frontiersin.org/articles/10.3389/fmed.2020.606824/fullChronic fatigue syndrome and long covid: moving beyond the controversyhttps://www.bmj.com/content/373/bmj.n1559.shortProposed subtypes of post-COVID-19 syndrome (or long-COVID) and their respective potential therapieshttps://onlinelibrary.wiley.com/doi/full/10.1002/rmv.2315Long COVID: post-acute sequelae of COVID-19 with a cardiovascular focushttps://academic.oup.com/eurheartj/article/43/11/1157/6529562Cardiac function in relation to functional status and fatigue in patients with post-COVID syndromehttps://www.nature.com/articles/s41598-022-24038-3Long COVID and rheumatology: Clinical, diagnostic, and therapeutic implicationshttps://www.sciencedirect.com/science/article/pii/S1521694222000535?casa_token=NomtNqGMCbYAAAAA:5c1zCxPY72P3Hnz2-UI-TNZ-zPJjYd95_5M11CExdsHnLLfJrREAfSZVHxY2yoVTiYdxrDjMWKgNaruhodo #314 - COVID 2021: de onde viemos e para onde vamos? - Parte 1 de 2https://www.youtube.com/watch?v=oLDbaKxnMHINaruhodo #315 - COVID 2021: de onde viemos e para onde vamos? - Parte 2 de 2https://www.youtube.com/watch?v=VkqwcNWzN7k&t=1sNaruhodo #291 - Porque preferimos certas marcas a outras?https://www.b9.com.br/shows/naruhodo/naruhodo-291-por-que-preferimos-certas-marcas-a-outras/Naruhodo #265 - Como funcionam os testes de vacinas?https://www.b9.com.br/shows/naruhodo/naruhodo-265-como-funcionam-os-testes-de-vacinas/Naruhodo #238 - O distanciamento social afeta nossa saúde mental? - Parte 1 de 2https://www.b9.com.br/shows/naruhodo/naruhodo-238-o-distancionamento-social-impacta-a-nossa-saude-mental-parte-1-de-2/Naruhodo #239 - O distancionamento social impacta a nossa saúde mental? - Parte 2 de 2https://www.b9.com.br/shows/naruhodo/naruhodo-239-o-distancionamento-social-impacta-a-nossa-saude-mental-parte-2-de-2/Naruhodo #226 - Como lidar com epidemias?https://www.b9.com.br/shows/naruhodo/naruhodo-226-como-lidar-com-epidemias/Naruhodo #247 - O que é telemedicina e por que ela é importante?https://www.b9.com.br/shows/naruhodo/naruhodo-247-o-que-e-telemedicina-e-por-que-ela-e-importante/Naruhodo #146 - Porque precisamos falar sobre vacinas?https://www.b9.com.br/shows/naruhodo/naruhodo-146-por-que-precisamos-falar-sobre-vacinas/Naruhodo #321 - Debates virtuais são perda de tempo?https://www.youtube.com/watch?v=lL0uTqpBwjE&t=1sNaruhodo #357 - Existe possibilidade de consenso na polarização?https://www.youtube.com/watch?v=KhyKRnhjnbw&t=1s*APOIE O NARUHODO PELA PLATAFORMA ORELO!Um aviso importantíssimo: o podcast Naruhodo agora está no Orelo: https://bit.ly/naruhodo-no-oreloE é por meio dessa plataforma de apoio aos criadores de conteúdo que você ajuda o Naruhodo a se manter no ar.Você escolhe um valor de contribuição mensal e tem acesso a conteúdos exclusivos, conteúdos antecipados e vantagens especiais.Além disso, você pode ter acesso ao nosso grupo fechado no Telegram, e conversar comigo, com o Altay e com outros apoiadores.E não é só isso: toda vez que você ouvir ou fizer download de um episódio pelo Orelo, vai também estar pingando uns trocadinhos para o nosso projeto.Então, baixe agora mesmo o app Orelo no endereço Orelo.CC ou na sua loja de aplicativos e ajude a fortalecer o conhecimento científico.https://bit.ly/naruhodo-no-orelo
La Sindrome da Stanchezza Cronica, più propriamente chiamata Encefalomielite Mialgica (anche definita dall'acronimo "CFS/ME") è una patologia neuroimmune cronica caratterizzata dalla presenza di una stanchezza profonda ed inspiegabile.Viene spesso definita, nelle sua forme più gravi ed invalidanti, come una malattia seria, che colpisce molti sistemi dell'organismo, riducendo o addirittura impedendo le normali attività delle persone.Questi pazienti affetti da sindrome da fatica cronica giungono spesso all'osservazione dello psichiatra per il sospetto di depressione, ansia, panico, somatizzazioni o disturbi della personalità quando, in realtà, questa diagnosi non ha nulla a che vedere con le classiche psicopatologie.I sintomi dell'encefalomielite mialgica sono complessi, multiformi e difficili da interpretare per cui fare diagnosi di "CFS/ME" non è sempre facile....Allo stesso modo anche la terapia della stanchezza cronica non è facilmente impostabile anche perchè, in larga parte, si basa su interventi di lifestyle medicine e di lifestyle psychiatry.#stanchezza #encefalomieliteIl Dr. Valerio Rosso, su questo canale YouTube, si dedica a produrre delle brevi lezioni di psichiatria rivolte ai pazienti, agli operatori della salute mentale, ai famigliari dei pazienti, agli studenti di medicina, agli specializzandi in psichiatria e a chiunque sia interessato alla salute mentale, alla psichiatria ed alle neuroscienze.ISCRIVETEVI AL MIO CANALE ► https://bit.ly/2zGIJorVi interessano la Psichiatria e le Neuroscienze? Bene, allora iscrivetevi a questo podcast, al mio canale YouTube e seguitemi sul web tramite il mio blog https://www.valeriorosso.comScoprite tutti i miei libri: https://bit.ly/2JdjocYScoprite la mia Musica: https://bit.ly/2JMqNjZVisitate anche il mio blog: https://www.valeriorosso.comAvete mai sentito parlare del progetto psiq? Andate subito ad informarvi su https://psiq.it ed iscrivetevi alla newsletter.
Universal open days are exhausting for everyone but even more so as someone with CFS/ME. That's why today I wanted to share my experience of an open day with hoe I coped and what it was like. I've only been to one uni open day so this is all my experience at that uni however, once I've gone to more I'll be able to do a more rounded experience update for you! Hope you enjoy today's episode and are doing alright. --- Send in a voice message: https://podcasters.spotify.com/pod/show/thetiredsociety/message
Speaking with the astute Dr Sarah Myhill whose experience as a British medical doctor led her to what works in chronic illness: naturopathic medicine. And no vaccines to poison us. Getting to the root of the problem. Her belief in the power of naturopathic medicine led her to deregister from the UK's General Medical Council and register with the Association of Naturopathic Practitioners.Medical Director of UK Medical Freedom AlliancePatron of ANP (Association of Naturopathic Practitioners) Clinical Director of the College of Naturopathic Medicine https://www.drmyhill.co.uk/ - over 20 million hits to date. BIO: Dr Myhill qualified from the Middlesex Hospital Medical School, London, Honours viva, 1981. She worked for 20 years as an NHS GP before moving to Independent Medical Practice with a special interest in CFS/ME. She practices Ecological Medicine – diagnosing mechanisms if disease which have obvious implications for management. She has been an active member of the BSEM since 1986 Hon Meetings Secretary (1993–1998) including 5 day International Conference “Sustainable Medicine” at Christ Church College Oxford, Hon Secretary 1999 -2007. Lectures regularly to doctors and health professionals who are interested in Ecological Medicine. Author of award winning books: “Chronic Fatigue Syndrome - it's mitochondria not hypochondria” BMA Prize Highly Commended 2014. Second edition 2017 (5 reprints)“Sustainable Medicine” (Beryl Bainbridge Prize 2016).“Diabetes” (Beryl Bainbridge Prize 2017)“The PK Cookbook” 2017, now updated to “Paleo-ketogenic - the why and the how – just what this doctor ordered”“The Infection Game” 2018, updated 2018“Ecological Medicine – the antidote to Big Pharm and fast food” 202) https://drmyhill.co.uk/wiki/My_book_Ecological_Medicine_-_The_Antidote_to_Big_Pharma_and_Fast_Foods“The Energy Equation – From the Naked Ape to the Knackered Ape” “Green Mother – Families Fit for the Future” In the pipeline “The Underactive Thyroid – do it yourself because your doctor won't” She has made media appearances in Newsnight (silicone implants), Dispatches (BSE and organophosphate poisoning), Woman's hour (silicone breast implants, allergies), Esther Rantzen show (Chronic Fatigue Syndrome), Watchdog Healthcheck (silicone implants) as well as many Welsh TV programmes and local radio in UK and abroad.Lecturer to What Doctors Don't Tell You, BANT (British Association of Nutritional Therapists), BSEM, ANP (Association of Naturopathic Practitioners) and othersCo-author of three papers on CFS and mitochondrial function:· http://www.ijcem.com/files/IJCEM812001.pdf · www.ijcem.com/files/IJCEM1204005.pdf · http://www.ijcem.com/files/IJCEM1207003.pdf Everyone should know Dr Myhill, one of the good ones, one of the best.Counting down to weeks away to the publication of Transforming Trauma, a drugless and creative path to healing PTS and ACE. I am again seeing patients and planning groups and retreats. Please email drheatherh@icloud.com for more info. Website: drheatherherington.com Support the show
I denne episoden kan du lære mer om det å leve med ME og kronisk utmattelsessyndrom. Vi fokuserer på rehabilitering og har besøk av sykepleier Silje Mæhle Haugland og ergoterapeut Bjørg Rene som jobber ved ME/CFS-poliklinikken ved Rehabiliteringsklinikken på Nordås i Bergen. Vi snakker om hva ME er, hvilke symptomer man kan oppleve, hvordan det kan være å leve med en usynlig diagnose og på hvilken måte de jobber med pasienter som har CFS/ME. See acast.com/privacy for privacy and opt-out information.
Are You Settling For Good Enough Instead of True Healing?Aired Friday, May 6, 2022 at 4:00 PM PST / 7:00 PM ESTToday, we welcome Dr. Jenny Tufenkian to chat about why we can sometimes hit a ‘ceiling' in our healing. A Chronic Fatigue Syndrome (CFS) thriver herself, Dr. Jenny dug deep into the literature and uncovered five root causes of CFS. Using her 20-plus years of research and experience, she developed an effective road map for lasting change in her patients with CFS and other complex chronic medical conditions. In this episode, she shares tips on how to break through those ‘ceilings' in your healing and• How to begin to uncover your root cause(s)of complex medical conditions,• Why some symptoms of long cov*d are similar to CFS/ME,• Why true healing is more than the physical body,• How we can sabotage our well-being with self-care for surviving instead of self-care for thriving, plus much more.#ChronicFatigueSyndrome #CFS #DrJennyTufenkian #Healing #SharonSayler #AutoImmuneHourMore about Dr. Jenny TufenkianDr. Jenny Tufenkian is a Naturopathic Physician and Functional Medicine Educator. She teaches patients, students, and physicians the latest information on understanding complex chronic diseases, including CFS/ME and long cov*d. Many of her patients are now flourishing after giving up all hope — even after having seen many well-regarded physicians and practitioners. She's currently on a mission to bring her personal experience and clinical wisdom to the broader medical community and those suffering from CFS/ME and other complex chronic medical conditions.Learn more at https://www.drjennytufenkian.com/This show is not intended to diagnose, prevent, or treat autoimmune or other diseases and illnesses. The information presented within cannot substitute for the advice of your physician or other trained healthcare professionals. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour are for educational purposes only.Visit the Autoimmune Hour show page https://omtimes.com/iom/shows/autoimmune-hour/Connect with Sharon Sayler at http://lifeinterruptedradio.com/Subscribe to our Newsletter https://omtimes.com/subscribe-omtimes-magazine/Connect with OMTimes on Facebook https://www.facebook.com/Omtimes.Magazine/ and OMTimes Radio https://www.facebook.com/ConsciousRadiowebtv.OMTimes/Twitter: https://twitter.com/OmTimes/Instagram: https://www.instagram.com/omtimes/Linkedin: https://www.linkedin.com/company/2798417/Pinterest: https://www.pinterest.com/omtimes/
Today, we welcome Dr. Jenny Tufenkian to chat about why we can sometimes hit a 'ceiling' in our healing. A Chronic Fatigue Syndrome (CFS) thriver herself, Dr. Jenny dug deep into the literature and uncovered five root causes of CFS. Using her 20-plus years of research and experience, she developed an effective road map for lasting change in her patients with CFS and other complex chronic medical conditions. In this episode, she shares tips on how to break through those 'ceilings' in your healing and• How to begin to uncover your root cause(s)of complex medical conditions,• Why some symptoms of long cov*d are similar to CFS/ME,• Why true healing is more than the physical body,• How we can sabotage our well-being with self-care for surviving instead of self-care for thriving, plus much more....More about Dr. Jenny TufenkianDr. Jenny Tufenkian is a Naturopathic Physician and Functional Medicine Educator. She teaches patients, students, and physicians the latest information on understanding complex chronic diseases, including CFS/ME and long cov*d. Many of her patients are now flourishing after giving up all hope — even after having seen many well-regarded physicians and practitioners. She's currently on a mission to bring her personal experience and clinical wisdom to the broader medical community and those suffering from CFS/ME and other complex chronic medical conditions. Learn more at www.drjennytufenkian.comPlease share this link to our chat with family and friends: https://UnderstandingAutoimmune.com/DrJenny_2022This show is not intended to diagnose, prevent, or treat autoimmune or other diseases and illnesses. The information presented within cannot substitute for the advice of your physician or other trained healthcare professionals. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour are for educational purposes only.
Robyn and Stephanie are joined by Kris and talk about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS, sometimes CFS/ME). Kris shares her journey from athlete to diagnosis and we talk about Church responses to chronic illness, Long Covid, and theology. Kris Rudin is a former software engineer and avid bicycle racer whose life changed completely at age 47 when she developed a “mystery illness”. Thirteen years after becoming ill, she was diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). Despite being treated by experts in the field, her condition continued to deteriorate, and she is now mostly confined to her bed. She lives with her husband of 30 years, who is her primary caregiver. She loves books, opera, Star Trek, and all things sci-fi/fantasy. Her animal alter ego used to be Tigger, but now it's a sloth! Full Transcript Links: Bishop Steven Charleston Richard Rohr Christianity without the Insanity (Facebook Group) (no link) Glorious Ruin: How Suffering Sets You Free by Tullian Tchividjian Resources: #MEAction's 'What is ME?" page Understanding ME/CFS and Long COVID as Post-Viral Conditions
Why You Should Listen: In this episode, you will learn about Thiamine Deficiency Disease. About My Guest: My guest for this episode is Dr. Chandler Marrs. Chandler Marrs, MS, MA, PhD is an independent health researcher and writer. She is the co-author of the book "Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition" and the author of over 200 articles on various topics, from women's health and hormones, medication reactions, to mitochondrial function and dysfunction. She is the founder and editor of the online health journal "Hormones Matter" which boasts a rich archive of over 1400 articles including in-depth research analysis and patient case stories. She is also the founder and administrator of a patient research group on Facebook called "Understanding Mitochondrial Nutrients". In her spare time, she is a competitive powerlifter and works to support strength sports for older women through her website and Facebook group "Old Ladies Lift". Key Takeaways: What is thiamine and its fundamental roles in the body? How common is thiamine deficiency? What is the ideal way to test for thiamine deficiency? Does thiamine influence gene expression? What role does thiamine play in medication and vaccine reactions? What is the connection between thiamine deficiency and dysautonomia? Might thiamine play a role in SIBO? Can thiamine be helpful for those in a Cell Danger Response state? Which environmental stressors may deplete the body of thiamine? Does thiamine impact the limbic system? How does thiamine lead to hypoxia and resulting sympathetic dominance? Does thiamine play a role in glucose regulation? Does thiamine repletion have the potential to lead to a worsening of symptoms? What is the connection between elevated levels of lactic acid and thiamine deficiency? Might toxic mold exposure interfere with the absorption of thiamine? Has thiamine repletion been a helpful strategy in CFS/ME patients? Does thiamine play a role in methylation? Could glyphosate lead to large-scale thiamine deficiency? Might thiamine be helpful in autism, PANS/PANDAS, or neurodegenerative conditions such as Alzheimer's or Parkinson's? What form of thiamine is most health-supporting? Connect With My Guest: http://HormonesMatter.com Related Resources: Book - Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition Article - Hiding in Plain Sight: Modern Thiamine Deficiency Interview Date: March 29, 2022 Transcript: To review a transcript of this show, visit https://BetterHealthGuy.com/Episode163. Additional Information: To learn more, visit https://BetterHealthGuy.com. Disclaimer: The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority.
Flere land har begynt å kontrolltelle antall dødsfall relatert til pandemien, og ikke overraskende viser det seg blant annet i India at tallet er høyere enn først estimert. Det foreligger dessuten flere data om hvor godt vaksinene beskytter mot omikronvarianten. Vaksinasjonsraten på det afrikanske kontinentet er fortsatt svært lav, og det er knyttet bekymring til at viruset skal få utvikle seg ubemerket, særlig i områder der mange lever med hiv og aids. Pfizer tilbyr å sende millioner av doser til Afrika for endelig produksjon og distribusjon der, mens flere afrikanske land ønsker heller teknologioverføring slik at de kan bli selvforsynt. En ny artikkel i NEJM tar for seg hvordan rasistiske myter fortsatt lever videre i medisinen i dag. En norsk forfattergruppe er i The Lancet kritiske til de nye retningslinjene for behandling av CFS/ME. Hør om dette og mer i Are Breans gjennomgang av siste nytt fra andre medisinske tidsskrifter.Tilbakemeldinger kan sendes til stetoskopet@tidsskriftet.no. Stetoskopet produseres av Caroline Ulvin Johansson, Are Brean og Julie Didriksen ved Tidsskrift for Den norske legeforening. Ansvarlig redaktør er Are Brean. Jingle og lydteknikk: Håkon Braaten / Moderne media Coverillustrasjon: Stephen Lee Artikler nevnt:Myocarditis Cases Reported After mRNA-Based COVID-19 Vaccination in the US From December 2020 to August 2021COVID mortality in India: National survey data and health facility deathsHIV and covid-19 in South AfricaGive Africa what Africa really wantsCovid-19: WHO efforts to bring vaccine manufacturing to Africa are undermined by the drug industry, documents showNeutralization of SARS-CoV-2 Omicron by BNT162b2 mRNA vaccine–elicited human seraClinical Outcomes Among Patients With 1-Year Survival Following Intensive Care Unit Treatment for COVID-19Racial Biology and Medical MisconceptionsNew NICE guideline on chronic fatigue syndrome: more ideology than science?
Chronic fatigue syndrome or sometimes what is known as myalgic encephalomyelitis (CFS/ME) can be a huge struggle for many of us, without a lot of gold standard treatment options. I've reviewed some of the evidence and review what goes on in our bodies with CFS/ME and what medications, supplements, and therapies have some benefit! Hope you enjoy! Shownotes HERE --------------------------------------------------------------- Our Manifestation 4-Step Hypnosis Recordings is Still Available on Our Website for a Limited Time You can sign up here! ------------------------------------------------------------------ We hope you enjoy the episode and if you do, please SUBSCRIBE, RATE, and REVIEW So you can help us increase our reach to help more women awaken their best selves, have more energy, and live the life they dreamed of while healing and recovering from any pain and health issues! ----------------------------------------------------------------- Be on the lookout for the foundational coaching masterclasses this coming new year! And for those of you ready to heal from a chronic condition, we will have your advanced master coaching program coming soon for PCOS, Endometriosis, Pelvic Pain, Hormone Regulation, Autoimmune Disease, Chronic Fatigue, Fibromyalgia, and More! We will be launching one of these come 2022, so be on the lookout or email us at hello@healthispowher.com to get on the list! ------------------------------------------------------------------ DISCLAIMER Anna Esparham, M.D.is a medical doctor, but she is not your doctor, and she is not offering medical advice on this podcast. If you are in need of professional advice or medical care, you must seek out the services of your own doctor or health care professional. The opinions of podcast guests are not necessarily those of Dr. Esparham, MD and Health Is PowHer, LLC and do not represent her or the company. This podcast provides information only, and does not provide any financial, legal, medical or psychological services or advice. None of the content on this podcast prevents, cures or treats any mental or medical condition. You are responsible for your own physical, mental and emotional well-being, decisions, choices, actions and results. Health Is PowHer, LLC disclaims any liability for your reliance on any opinions or advice contained in this podcast.
Fatigue is complex, and there is many levels to it. You've got the initial state of being tired and worn out, then you have overwhelm and burnout, and then you have an illness state of fatigue like CFS/ME, and what many people are now seeing with Long Covid. Alex Howard suffered with CFS for many years and has now made it his life long mission to help others with fatigue, largely in a clinical setting. In this show we explore the intersection of body : mind : spirit and how it all plays a role in fatigue. Recovery is long, slow, and multi-faceted, and it was an honour for me to interview Alex on this wildly complex topic. Whatever state of tired or fatigued you are in, this show will help you see the body in new way. Check out Alex at: https://www.alexhoward.com I recommend his book 'Decode Your Fatigue' which I've personally read cover to cover.
Habits & Health episode 48 with Emily Bland, a Clinical Exercise Physiologist treating patients with OI, POTS, CFS/ME, persistent pain, Fibromyalgia and hEDS. She specialises in education and energy management for patients with these health conditions, in order to help them stabilise and manage their symptoms. She specialised in this area because of her passion for helping people and also because she lives with POTS, CFS/ME and Endometriosis. We discuss awareness some of these conditions, on things people suffering can get relief, sources to find out more and many other areas. Links: Website: exphysem.uk (coming soon) instagram.com/dog.autonomia/ linkedin.com/in/exphysem/ Resources mentioned by Emily: https://www.potsuk.org/ https://meassociation.org.uk/ Article on spoons mentioned by Emily I'm a “Spoonie.” Here's What I Wish More People Knew About Chronic Illness https://www.healthline.com/health/spoon-theory-chronic-illness-explained-like-never-before#1 Recommended book: Explain Pain David Butler, G. Lorimer Moseley - https://amzn.to/3GjMqjZ Mark Manson: “The subtle art of not giving a F$&k: A Counterintuitive Approach to Living a Good Life” - https://amzn.to/3FjWfwW Favourite quotes: “Chronic illness isn't about missing out, it's about living life a little differently” “Doing nothing often leads to the very best of something” Winnie The Pooh Don't forget, there is a transcript of every episode at tonywinyard.com Habits & Health links: Website - tonywinyard.com Facebook Page - facebook.com/TonyWinyard.HabitsAndHealth Facebook Group - facebook.com/groups/habitshealth Twitter - @TonyWinyard Instagram - @tony.winyard LinkedIn - uk.linkedin.com/in/tonywinyard YouTube How to leave a podcast review - tonywinyard.com/how-to-leave-a-podcast-review/ Details of online workshops to create habits for health - tonywinyard.com/training/ Are you in control of your habits or are they in control of you? Take my quiz to find out - tonywinyard.com/quiz Take part in Tony's free 5-day-programme - tonywinyard.com/tinyhabits Full shownotes including transcription available at: https://tonywinyard.com/emily-bland/
From The Heart, a podcast about Yoga, Mindfulness, Healing and Wellbeing
In this episode with Fiona Agombar we talk about yoga therapy for fatigue conditions, including CFS/ME, burnout, stress and long-Covid, which Fiona specialises in. Fiona Agombar is an author, Rest Activist and yoga therapist in the Krishnamacharya Tradition. She originally trained with the Yoga for Health Foundation in 2001 then qualified as a KHYF teacher in 2011 and is accredited as an advanced teacher with the British Wheel of Yoga (BWY). She has studied under Bill Feeney, Gill Lloyd, Sarah Ryan, TKV Desikachar and also the Zen teacher Adyashanti. Fiona was a Trustee of Action for ME (major UK charity) for eight years. She was one of the key speakers for Global Yoga Therapy Day in August 2020 on exhaustion, overwhelm and burnout and a speaker at the Wellness After Covid Symposium in May 2021 and in March 2021 she contributed to the advisory meeting for the British Council of Yoga Therapy on guidelines for teaching those with long-Covid. She runs a successful introductory course for teachers on Burnout, CFS and Long-Covid with Sarah Ryan through Yoga Teachers Forum. She also runs weekly classes online for those with fatigue and has referrals for long-Covid from a major teaching hospital in the UK. Fiona will be teaching the Long Covid module with Nadyne McKie for the Minded Institute's Yoga Therapy training in 2022. Fiona and Nadyne have also been commissioned to write a book on Long Covid for Singing Dragon books and are part of a steering committee being set up by Westminster University to investigate the benefits of Yoga for Long Covid. Fiona is the author of the book and DVD Beat Fatigue with Yoga (Cherry Red Books) and Yoga Therapy for Stress, Burnout and Chronic Fatigue Syndrome (Singing Dragon). Fiona has Lyme disease which she manages with yoga. She is passionate about campaigning to change attitudes to those with fatigue conditions and describes herself as a Feminine Rest Activist. Connect with Fiona as follows: Facebook group: Gentle Yoga for Fatigue with Fiona: https://www.facebook.com/groups/560314231255748 She run classes for fatigue twice a week on Zoom payable by donation. Follow Fiona on Facebook here: https://www.facebook.com/groups/184334606994243 Visit her website and enjoy free downloads here: www.fionaagombar.co.uk Find Fiona on instagram and YouTube as well. Enjoy 20% off her book by using the code Energy20 on the Singing Dragon website. Further reading recommendation following this episode: Lost Connections by Johann Hari www.waterstones.com/book/lost-connections/johann-hari/9781408878729 *** From The Heart is a podcast about Yoga, Mindfulness, healing and wellbeing from Dawn Lister and Daniel Groom, founders of Anahata Yoga Centre, Leigh-on-Sea, Essex, UK. Conversations in this light hearted, kind and honest podcast series brings together people who have found ways to practise self-care in their lives, by sharing their knowledge, experiences and insights. Anahata is a heart centred and nurturing Wellbeing Studio in Leigh on Sea, Essex. Specialising in Yoga, Pilates, Yoga Therapy and mindful meditation. They offer expert tuition in small groups run by qualified and specialist professionals, who are experts in their field. Many of their teachers offer skills which support members of the public affected by long term health conditions, which may affect them physically, mentally and or emotionally. Catch up on previous episodes via the Anahata website at www.anahatayogacentre.com/podcast Follow From The Heart on Instagram at @from_the_heart_podcast.
Feeling exhausted, having difficulty breathing, experiencing brain fog, and having trouble sleeping are just some of the symptoms of Chronic Fatigue and Fibromyalgia. But did you know they're also symptoms of Chronic Inflammatory Response Syndrome? I'm joined by Dr. Aaron Hartman, the leading expert in CIRS and Long COVID-19, to talk about these lung diseases, how we can diagnose them, and finally health from them so we can live fuller, happier, healthier lives again. Steps to Treating Someone with CIRS Make a diagnosis Use a binder to get the toxins out of the system Nutritional analysis Increase fiber in the diet About Dr. Aaron Hartman Dr. Aaron Hartman's journey with functional medicine started when he and his wife adopted their first daughter from foster care. She has cerebral palsy and countless dietary issues. They went from specialist to specialist and, even as a physician, he felt let down and confused. His daughter's health struggles forced him to confront an uncomfortable realization: Our current healthcare system doesn't have all the answers. His wife, however, refused to give up hope. She ultimately pointed him to functional medicine. His daughter and other two kids began to thrive. After years in family practice, he felt called to make a dramatic shift. Dr. Hartman currently holds the following positions: Principal Investigator and Medical Director of Virginia Research Center, President Family Practice Associates, Assistant Clinical Professor of Family Medicine at the VCU School of Medicine, and founder of Richmond Functional Medicine. His fields of clinical expertise include CIRS, Post Lyme Syndrome, CFS/ME, and Long COVID. Dr. Hartman now helps patients identify leverage points in key areas of their lifestyle and health that harness their body's remarkable power to heal and begin living the vibrant life they deserve. In This Episode What Chronic Inflammatory Response Syndrome is [6:45] The most common symptoms of CIRS [8:30] What other diseases fall under CIRS [10:00] Getting a CIRS diagnosis, ordering labs, and treatment options [13:45] What you need to know about Spore Trap Testing [31:00] Where to look to find mold in your home [32:45] Why Vitamin D levels matter when dealing with Long COVID-19 [38:30] The effect of EMFs on CIRS [43:00] How Long COVID-19 can highlight chronic conditions in patients [45:00] The relation between sleep apnea and Long COVID-19 [47:00] Links & Resources Use Code GRAY15 for $300 Off Air Doctor Use Code IMMUNESUPPORT for 10% Off Immune Support Get Your Free Gift: Building Resistance eBook Find Dr. Aaron Hartman Online Follow Dr. Aaron Hartman on Instagram | Facebook | YouTube Find Your Longevity Blueprint Online Follow Your Longevity Blueprint on Instagram | Facebook | Twitter | YouTube | LinkedIn Get your copy of the Your Longevity Blueprint book and claim your bonuses here Find Dr. Stephanie Gray and Your Longevity Blueprint online Follow Dr. Stephanie Gray on Facebook | Instagram | Youtube | Twitter | LinkedIn Integrative Health and Hormone Clinic Podcast Production by the team at Counterweight Creative Related Episodes Episode 26: Mysterious Mast Cell Activation Syndrome With Dr. Beth O'hara Episode 73: Aesthetics And Peptides 101 Part 1 With Alexis Yoo Episode 48: Peptides, Nootropics, And Pain Reduction With Dr. Neil Paulvin
Alan Cash got curious about why our energy pathways fail us. Armed with an MS in physics, he's found himself innovating commercial production methods for oxaloacetate, a metabolite in the citric acid cycle that sits squarely within our mitochondria and are fundamental in producing the ATP that fuel every energy-requiring process in the body. In this episode, we review the nitty gritty details of energy production from the perspective of how oxaloacetate (brand names Benagene and Jubilance) can impact us from the systemic perspective. We don't typically discuss one commercial product on our show, but we have many patients using oxaloacetate and wanted to give a much more complete picture than we can in a clinic visit. Taking oxaloacetate has been shown to decrease NF-kB activation, reduce fasting glucose by ~25% (research from the late 1960's), increase NAD to NADH ratios, increase AMPK, decrease emotional symptoms of PMS (as the product Jubilance) and favorably shift cellular redox. Preliminary data from Mr Cash's current research is showing reduction in fatigue for CFS/ME patients. Remarkably, oral oxaloacetate seems to be able to cross the blood brain barrier (it's a very small molecule!) and can decrease brain glutamate levels. Most remarkably, taking exogenous oxaloacetate can mimic caloric restriction and has increased the lifespan of laboratory animals. It's been used in doses ranging from 100 to 6000mg daily (like for glioblastoma) and has been well-tolerated even at high doses. It's important to know that the commercial products Benagene and Jubilance contain the same ingredients: 100mg of oxaloacetate stabilized by 150mg of vitamin C. To answer another common question, there's no mechanism to turn oxaloacetate into the undesirable 'oxalate' compound in the human body. This tiny molecule really can pack a molecular and anti-inflammatory punch- listen in to find out more! Resources: https://benagene.com/ https://jubilance.com/ Oxaloacetate to reduce emotional symptoms in PMS: placebo-controlled, cross-over clinical trial with 48 women (2020): https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7073356/ Safety and target engagement profile of two oxaloacetate doses (500mg & 1000mg twice daily) in 15 Alzheimer's patients (2021) showed the higher dose increased frontal & frontoparietal brain glucose & glutathione per FDG PET scanning despite no changes in serum levels or cognitive scoring. https://pubmed.ncbi.nlm.nih.gov/32715609/ Oxaloacetate activates brain mitochondrial biogenesis, enhances the insulin pathway, reduces inflammation & stimulates neurogenesis (2014) in mice injected with 1-2g/kg once daily dosing x 1-2 weeks. https://pubmed.ncbi.nlm.nih.gov/25027327/ Oxaloacetate supplementation increases lifespan in Caenorhabditis elegans (roundworms) by 25% median & 13% maximal lifespan through an AMPK/FOXO-dependent pathway (2009). https://onlinelibrary.wiley.com/doi/10.1111/j.1474-9726.2009.00527.x Oxaloacetate: A novel neuroprotective for acute ischemic stroke (2012) via modulation of the glutamate pathway which would also be applicable for other types of brain injury, like TBI (traumatic brain injury). https://pubmed.ncbi.nlm.nih.gov/22085530/ Neuroprotective effect of oxaloacetate in a focal brain ischemic model in the rat (2015) through pathways of glutamate scavenging. https://pubmed.ncbi.nlm.nih.gov/24807461/ Neuroprotective effects of oxaloacetate in closed head injury in rats is mediated by its blood glutatmate scavenging activity (2009). https://pubmed.ncbi.nlm.nih.gov/19543002/ Effect of alpha-ketoglutarate & oxaloacetate on brain mito DNA damage & seizures (2003). https://pubmed.ncbi.nlm.nih.gov/12749815/ Oxaloacetate acid supplementation as a mimic of caloric restriction: https://benthamopen.com/contents/pdf/TOLSJ/TOLSJ-3-22.pdf
On today's episode, I am joined by Jennifer Mann. Jen is an amazing Mind-Body Practitioner. She comes from a very interesting background. She grew up in many different countries and speaks 5 languages fluently. She used to be a professional ballet dancer and performer and after a career-ending injury she turned to working with people as a Yoga teacher, Pilates instructor and movement practitioner. She then combined Eastern and Western bodywork techniques to help people move better and feel better. Her curiosity around the holistic human experience brought her to become increasingly passionate about human physiology and to go back to school in her late 20's to study first Life Sciences then Physiotherapy. After a few years of persistent symptomatic patterns, she was finally diagnosed with chronic fatigue syndrome which would fully transform her life. She is now dedicated to being a trauma informed mind-body practitioner committed to the holistic perspective of health and well-being. The experience of recovering from chronic fatigue and learning to heal her past trauma sparked a mission within to share hope, self-empowerment, self-acceptance and healing with the greater collective. Our conversation covers her journey with being bed-bound with Chronic Fatigue Syndrome, the tools she used to recover, such as the Lightning Process training, nervous system regulation & Somatic Experiencing. Jen went from being so scared about her symptoms & illness to research, learn & regulate her nervous system, to use brain retraining tools such as the Lightning Process to address her thought patterns and bottom up approaches such as Somatic Experiences to address traumas stored in the body. An integrative & holistic healing that includes top down & bottom up approaches is what supported Jen to NOT only recover from CFS/ME, POTS and chronic dysregulation, but to create a full transformation. Jen is so passionate about supporting others in their journey of recovery from CFS/ ME, long-covid, POTS and other chronic health challenges and that is why her and Karden Rabin are putting together the first Chronic Fatigue Syndrome trauma-informed recovery program that will include both top-down AND bottom-up therapy modalities. If you resonate with this, please get in touch with them. You can find Jen here: https://www.instagram.com/jcamylee/ If you'd like to share your takeaways from this conversation with me, I'd love to hear from you via email on teo@teodorapile.com or through my website: https://teodorapile.com If you enjoyed this podcast episode, I'd love for you to leave a 5* review or share it with a friend that would also benefit from this conversation. Thank you for being here and connecting the human dots. With heart, Teo
About Dr. Jenny Tufenkian: Dr Jenny Tufenkian is a Naturopathic Physician and Functional Medicine Educator who teaches patients, students and physicians to increase understanding of complex chronic disease. As she educates, she empowers, no matter to what audience she instills new perspectives, awareness and ultimately hope. She sees the potential for a 'positive domino effect' of her work. By guiding others to increase their energy they, in turn, have the vitality to live their purpose, to shine their light fully- and benefit all who cross their path. Dr Tufenkian has been treating chronic illness for two decades. A CFS sufferer herself she had no choice but to dig deep into the literature and uncover the root causes of CFS. Through her research and experience, she developed an effective road map for lasting change in her patients. Seeing them flourish after they had given up all hope. Many of these patients had seen many wonderful physicians but they did not know how to assess all the potential root causes of ME/CFS. Thus she realized she needed to create share her clinical wisdom with the wider medical community. Jenny Tufenkian ND is a licensed Naturopathic Physician who got her training and residency at National University of Natural Medicine (formerly NCNM). She went on to be a sought after adjunct clinical faculty member and ran her own successful private practice in Portland, Oregon. Dr. Jenny Tufenkian holds a BA in Political Sociology from the Evergreen State College. She loves to teach. She and has created on-line and in-person tools for practitioners and individuals who desire to live with more vitality. She is also a mom of two, happily married and loves her time outdoors and in the kitchen. What We Discuss In This Episode Jenny specializes in treating Chronic Fatigue Syndrome (CFS) - a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness. CFS is also known as Myalgic Encephalomyelitis (ME). Many people with conditions like CFS/ME will tell you it goes well beyond burnout and exhaustion. Dr. Jenny has personal experience of struggling with this condition and shares her own journey. We talk about how western medicine views and treats this type of illness versus how the functional medicine and naturopathic doctors view and treat this illness. Since this is a very complex condition, Dr. Jenny shares the ONE Thing she feels our listeners can do to boost their energy no matter if they are really exhausted or feeling well. We discuss how and when we eat can impact our energy and what we can do – especially for those who are exhausted? Dr. Jenny also discusses some of the best ways for people to find the answers they need when they are struggling with chronic fatigue. Free Resources from Dr. Jenny Tufenkian LINK to QUIZ Why are you So Tired? Find your root cause! https://quiz.drjennytufenkian.com/sf/96d715b6 LINK to MASTERCLASS free training: https://event.webinarjam.com/register/1/pg43lhx Connect with Dr. Jenny Tufenkian: Website: drjennytufenkian.com FB/LinkedIn/ IG: @drjennytufenkian YouTube : Natural Healing with Dr Jenny ND Connect with Lynne: If you are looking for a community of like-minded women on a journey - just like you are - to improved health and wellness, overall balance, and increased confidence, check out Lynne's private community in The Energized & Healthy Women's Club. It's a supportive and collaborative community where the women in this group share tips and solutions for a healthy and holistic lifestyle. (Discussions include things like weight management, eliminating belly bloat, wrangling sugar gremlins, and overcoming fatigue, recipes, strategies, and much more so women can feel energized, healthy, confident, and joyful each day. Website: https://holistic-healthandwellness.com Facebook: https://www.facebook.com/holistichealthandwellnessllc The Energized Healthy Women's Club: https://www.facebook.com/groups/energized.healthy.women Instagram: https://www.instagram.com/lynnewadsworth Free Resource: Hot flashes? Low Energy? Difficulty with weight management? If MID-LIFE & MENOPAUSE are taking their toll then I've got a solution for you! I've taken all my very best strategies and solutions to help you feel energized, vibrant, lighter & healthy, and compiled them into this FREE resource! Thrive in midlife and beyond - download my guide here: https://holistic-healthandwellness.com/thrive-through-menopause/ Did You Enjoy The Podcast? If you enjoyed this episode please let us know! 5-star reviews for the Living Life Naturally podcast on Apple Podcasts, Spotify, Pandora, or Stitcher are greatly appreciated. This helps us reach more women struggling to live through midlife and beyond. Thank you. Together, we make a difference!
About Dr. Jenny Tufenkian: Dr Jenny Tufenkian is a Naturopathic Physician and Functional Medicine Educator who teaches patients, students and physicians to increase understanding of complex chronic disease. As she educates, she empowers, no matter to what audience she instills new perspectives, awareness and ultimately hope. She sees the potential for a 'positive domino effect' of her work. By guiding others to increase their energy they, in turn, have the vitality to live their purpose, to shine their light fully- and benefit all who cross their path. Dr Tufenkian has been treating chronic illness for two decades. A CFS sufferer herself she had no choice but to dig deep into the literature and uncover the root causes of CFS. Through her research and experience, she developed an effective road map for lasting change in her patients. Seeing them flourish after they had given up all hope. Many of these patients had seen many wonderful physicians but they did not know how to assess all the potential root causes of ME/CFS. Thus she realized she needed to create share her clinical wisdom with the wider medical community. Jenny Tufenkian ND is a licensed Naturopathic Physician who got her training and residency at National University of Natural Medicine (formerly NCNM). She went on to be a sought after adjunct clinical faculty member and ran her own successful private practice in Portland, Oregon. Dr. Jenny Tufenkian holds a BA in Political Sociology from the Evergreen State College. She loves to teach. She and has created on-line and in-person tools for practitioners and individuals who desire to live with more vitality. She is also a mom of two, happily married and loves her time outdoors and in the kitchen. What We Discuss In This Episode Jenny specializes in treating Chronic Fatigue Syndrome (CFS) - a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness. CFS is also known as Myalgic Encephalomyelitis (ME). Many people with conditions like CFS/ME will tell you it goes well beyond burnout and exhaustion. Dr. Jenny has personal experience of struggling with this condition and shares her own journey. We talk about how western medicine views and treats this type of illness versus how the functional medicine and naturopathic doctors view and treat this illness. Since this is a very complex condition, Dr. Jenny shares the ONE Thing she feels our listeners can do to boost their energy no matter if they are really exhausted or feeling well. We discuss how and when we eat can impact our energy and what we can do – especially for those who are exhausted? Dr. Jenny also discusses some of the best ways for people to find the answers they need when they are struggling with chronic fatigue. Free Resources from Dr. Jenny Tufenkian LINK to QUIZ Why are you So Tired? Find your root cause! https://quiz.drjennytufenkian.com/sf/96d715b6 LINK to MASTERCLASS free training: https://event.webinarjam.com/register/1/pg43lhx Connect with Dr. Jenny Tufenkian: Website: drjennytufenkian.com FB/LinkedIn/ IG: @drjennytufenkian YouTube : Natural Healing with Dr Jenny ND Connect with Lynne: If you are looking for a community of like-minded women on a journey - just like you are - to improved health and wellness, overall balance, and increased confidence, check out Lynne's private community in The Energized & Healthy Women's Club. It's a supportive and collaborative community where the women in this group share tips and solutions for a healthy and holistic lifestyle. (Discussions include things like weight management, eliminating belly bloat, wrangling sugar gremlins, and overcoming fatigue, recipes, strategies, and much more so women can feel energized, healthy, confident, and joyful each day. Website: https://holistic-healthandwellness.com Facebook: https://www.facebook.com/holistichealthandwellnessllc The Energized Healthy Women's Club: https://www.facebook.com/groups/energized.healthy.women Instagram: https://www.instagram.com/lynnewadsworth Free Resource: Hot flashes? Low Energy? Difficulty with weight management? If MID-LIFE & MENOPAUSE are taking their toll then I've got a solution for you! I've taken all my very best strategies and solutions to help you feel energized, vibrant, lighter & healthy, and compiled them into this FREE resource! Thrive in midlife and beyond - download my guide here: https://holistic-healthandwellness.com/thrive-through-menopause/ Did You Enjoy The Podcast? If you enjoyed this episode please let us know! 5-star reviews for the Living Life Naturally podcast on Apple Podcasts, Spotify, Pandora, or Stitcher are greatly appreciated. This helps us reach more women struggling to live through midlife and beyond. Thank you. Together, we make a difference!
Registered nutritional therapist Kirsty Cullen discusses the personal connection that inspired her to specialise in chronic fatigue syndrome (CFS)/ME. She discusses research that may have led to some of the stigma around CFS, as well as potential triggers of the condition, and the similarities and differences between CFS and long Covid. She also talks about The Optimum Health Clinic's integrative approach to managing CFS, and evidence surrounding current medical recommendations such as Graded Exercise Therapy and Cognitive Behavioural Therapy.Click here for more information & show notes.
CFS? What's that? Chronic Fatigue Syndrome or ME is a debilertating illness that causes immense fatigue along with a lot of other symptoms and diverse experiences. Which is why Ive enlisted the help so some friends to share their experiences with CFS/ME. All answering the same questions Iman, Anna and Paola detail the impact CFS/ME has on them. (Pssst! There will be a part two;) //Chronic illness can be hard: Australian suicide hotline 13 11 14
The ABMP Podcast | Speaking With the Massage & Bodywork Profession
Chronic fatigue syndrome (CFS), called myalgic encephalomyelopathy (ME) in other countries, is one of my least favorite topics. It is just so slippery, and we understand very little about how it comes about, how to treat it, and how massage therapy might help. We are likely to see more cases of CFS/ME soon, as this symptomatic profile is common in people with long COVID. What is chronic fatigue? And how can massage therapy be helpful? Join me for an exploration of this complex and frustrating topic to get to some possible solutions for a client who lives in pain. Sponsors: Anatomy Trains: www.anatomytrains.com Books of Discovery: www.booksofdiscovery.com Host Bio: Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com. Recent Articles by Ruth: “Pharmacology Basics for Massage Therapists,” Massage & Bodywork magazine, July/August 2021, page 32, “Critical Thinking,” Massage & Bodywork magazine, May/June 2021, page 54, Check out ABMP's Pocket Pathology: www.abmp.com/abmp-pocket-pathology-app Resources: Alraek, T. et al. “Complementary and Alternative Medicine for Patients with Chronic Fatigue Syndrome: A Systematic Review,” BMC Complementary and Alternative Medicine 11 (2011): 87. Foundation for Mitochondrial Medicine. “Chronic Fatigue Syndrome.” May 24, 2018. Jacobson, Eric. “Structural Integration, an Alternative Method of Manual Therapy and Sensorimotor Education,” Journal of Alternative and Complementary Medicine 17, no 10 (2011): 891–99. doi: Jones, James. F. et al. “Complementary and Alternative Medical Therapy Utilization by People with Chronic Fatiguing Illnesses in the United States,” BMC Complementary and Alternative Medicine 7 (2007): 12. doi: MECFS_KeyFacts.pdf. Accessed July 2021. NINDS. “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Standards.” Accessed July 2021. Wang, Ji-hong et al. “Effects of the Intelligent-Turtle Massage on the Physical Symptoms and Immune Functions in Patients with Chronic Fatigue Syndrome,” Journal of Traditional Chinese Medicine 29, no. 1 (2009): 24–8. doi: Anatomy Trains is a global leader in online anatomy education and also provides in-classroom certification programs for structural integration in the US, Canada, Australia, Europe, Japan, and China, as well as fresh-tissue cadaver dissection labs and weekend courses. The work of Anatomy Trains originated with founder Tom Myers, who mapped the human body into 13 myofascial meridians in his original book, currently in its fourth edition and translated into 12 languages. The principles of Anatomy Trains are used by osteopaths, physical therapists, bodyworkers, massage therapists, personal trainers, yoga, Pilates, Gyrotonics, and other body-minded manual therapists and movement professionals. Anatomy Trains inspires these practitioners to work with holistic anatomy in treating system-wide patterns to provide improved client outcomes in terms of structure and function. Website: anatomytrains.com Email: info@anatomytrains.com Facebook: facebook.com/AnatomyTrains Instagram: instagram.com/anatomytrainsofficial YouTube: www.youtube.com/channel/UC2g6TOEFrX4b-CigknssKHA
In this 20 minute conversation with Naturopath and Nutritional Therapist Cath Finegan, we talk about the suffering caused by Longhaul Covid. We cover the statistics, symptoms, similarities to CFS/ME and the need for a multi-faceted interconnected approach to recovery. Many longterm illnesses have gut imbalance a their core. A shortage of niacin (Vitamin B3 - niacin or nicotinamide) is crucial for energy production and many people are low on this and other nutrients like Magnesium which feeds into the Krebs cycle (the energy production cycle of the body). When you supplement this, you are able to remedy the depletion which allows the body to self-heal.But it is crucial to also address the emotional stresses that have contributed massively to the tipping over into illness. Much of the stress is unconscious: toxic stress as an unconscious conflict in the life. This tends to make people push themselves beyond their body's ability to maintain their nervous system in balance and is something they haven't addressed or resolved. Emotions are more than a feeling - they also communicate messages to the body of safety or threat.Future focus has to be making a holistic (naturopathic) approach available to those with post-viral fatigue syndromes. This seeks to remove the blocks to healing rather than just suppress symptoms. A collaborative team approach also is vital as it works so much better - isolation is such a big component. Getting them out of the autonomic nervous system 'fight and flight' and into a state of flow or social engagement. Replacing nutrients (the raw materials for energy production), getting the gut working properly, dealing with toxic stress (from previous traumatic experience) allows us to replace fear with hope (you're not going mad!). Modern trauma healing allows you to tackle past emotional experience without re-traumatising people. And then the body's immune system can begin to restore and anxiety begins to diminish.Both Cath and I are Chrysalis Effect Practitioners who are trained in CFS/ME and now Post-viral fatigue recovery. If you wish to contact Cath please email on cath@naturopath.me.uk.
— “Authentic yoga is just listening to the heart and acting from that truth.” Valeria Teles interviews Fiona Agombar — the author of “Yoga Therapy for Stress, Burnout and Chronic Fatigue Syndrome.” Fiona Agombar is a yoga therapist and teacher in the Krishnamacharya Tradition. She originally trained with the Yoga for Health Foundation in 2001 then qualified as a KHYF teacher in 2011 and is accredited as an advanced teacher with the British Wheel of Yoga (BWY). She has studied under Bill Feeney, Gill Lloyd, Sarah Ryan, TKV Desikachar, his son Dr Kausthub Desikachar and also the Zen teacher Adyashanti. She specializes in teaching yoga for fatigue conditions, including CFS/ME, burnout, stress and long-Covid. Fiona was a Trustee of Action for ME (major UK charity) for eight years. She has set up teaching modules on stress and fatigue for Yoga Campus, which she ran for several years together with CPD days for the BWY, before she took five years out to nurse her husband who was terminally ill. She was one of the key speakers for Global Yoga Therapy Day in August 2020 on exhaustion, overwhelm and burnout. In March 2021 she contributed to an advisory meeting for the British Council of Yoga Therapy on guidelines for teaching those with long-Covid. She has recently delivered a successful introductory course for teachers on Burnout, CFS and Long-Covid with Sarah Ryan. She currently runs classes online for those with fatigue and has referrals for long-Covid from a major teaching hospital in the UK. Fiona is the author of the book and DVD Beat Fatigue with Yoga (Cherry Red Books) and her most recent book which was recently published, sold out after three months. She regularly contributes to UK journals Spectrum and OM. Fiona has Lyme disease which she manages with yoga. She is passionate about campaigning to change attitudes to those with fatigue conditions and describes herself as a Feminine Rest Activist. To learn more about Fiona Agombar and her work please visit: https://www.fionaagombar.co.uk/ — This podcast is a quest for well-being, a quest for a meaningful life through the exploration of fundamental truths, enlightening ideas, insights on physical, mental, and spiritual health. The inspiration is Love. The aspiration is to awaken new ways of thinking that can lead us to a new way of being, being well.
Why You Should Listen: In this episode, you will learn about fluoroquinolone toxicity or "floxing". About My Guests: My guests for this episode are Dr. Mark Ghalili and Jason Sousa. Mark Ghalili, DO is a Regenerative Medicine Specialist at Regenerative Medicine LA. He pursued his undergraduate studies at the University of California Irvine and then went on to obtain his medical degree at Western University of Health Sciences. As a regenerative medicine specialist, Dr. Ghalili’s passion lies in teaching his patients about chronic disease, prevention, and finding the underlying reasons for an illness. Unfortunately, a monumental event in his own personal life changed his path forever. In late 2016, Dr. Ghalili experienced a severe and common adverse reaction to a widely prescribed antibiotic called Cipro. On his second day of antibiotic treatment, he found himself grasping for life in excruciating pain. This was only the beginning of an onslaught of symptoms that changed his life forever. Dr. Ghalili soon suffered from complete muscle wasting, burning neuropathy, seizures, brain fog, vertigo, blurry vision, and tendon tears in his legs. His life became confined to a wheelchair, crippled and unable to walk. Dr. Ghalili’s only hope was implementing alternative and regenerative therapies, as the traditional medical doctors had no answer for him, nor did they even believe him. Dr. Ghalili went from being confined in a wheelchair, unable to treat patients, living in excruciating pain, to gaining the gift of running again, something he will never take for granted. Dr. Ghalili was persistent to gain his normal life back so he could help millions around the world. Jason Sousa is a patient advocate and editor of FloxieHope.com. His own health took a sharp decline six months after using a fluoroquinolone antibiotic in 2013. Today, Jason works tirelessly to help others that have been "floxed" to improve the quality of their lives and put an end to their suffering by sharing knowledge and stories of hope. Key Takeaways: - What medications may lead to "floxing"? - How common is damage from fluoroquinolone antibiotics? - What are the symptoms associated with fluoroquinolone toxicity? - How long does it take to be "floxed"? - How might these medications contribute to CFS/ME? - Are there conditions or genetic predispositions that increase the potential for a bad outcome? - What is the mechanism of action? - Can any labs show that these medications have led to damage? - What is the role of fluoride in "floxing"? - Do other medications contain fluoride and have similar potential adverse outcomes? - Is the damage limited to the tendons? - What is the role of magnesium and iron in fluoroquinolone toxicity? - How do these drugs impact collagen and structural integrity? - Is there a connection between fluoroquinolones and Ehlers-Danlos Syndrome? - Can fluoroquinolones trigger Mast Cell Activation Syndrome? - How can side effects be minimized? - Can supporting the mitochondria lead to improvement? - Is there a place for detoxification of fluoride? - What is the role of leaky gut and supporting the microbiome? - Can supplemental collagen be helpful? - How can macrophages be shifted to the anti-inflammatory M2 type? - Is there a place for IVIG, ozone, Prolozone, HBOT, PEMF, or red light therapy? - What is the prognosis for patients? Connect With My Guests: http://RegenerativeMedicineLA.com http://FloxieHope.com Interview Date: May 25, 2021 Transcript: To review a transcript of this show, visit http://BetterHealthGuy.com/Episode146 Additional Information: To learn more, visit http://BetterHealthGuy.com. Disclaimer: The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority.
In this 38 min conversation with naturopathic nutritionist Janie Perry we discuss the predispositions of disease and how to overcome and heal them.Janie learn from her own experience of IBS and post viral fatigue that symptoms of chronic disease often start slowly in childhood and early adulthood, becoming more and more debilitating until a tipping point is reached whereby the body cannot repair anymore. conventional medicine then says treat the symptoms but this inevitably leads to more and more as the common drugs like antibiotics and steroids often create more gut dysbiosis (inbalance).Natural medicine has a different approach.We talk about:The root and branch model of human healththe importance of terrain ('soil'' of the gut)toxic load and how to mitigatethe links between CFS/ME and long covidhow trauma or adverse childhood events predispose you to these conditionsJanie can be contacted at https://happybean.co.uk and myself at https://alchemytherapies.co.uk, https://patriciaworby.com and my podcast rebelhealthradio.com
Put on your seatbelt because Dr Boles is taking you for a genetics ride you might need to listen to twice! We start at the beginning, talking about Mendel's pea plants, what is DNA, RNA and how does inheritance work. Then, we peel the onion another layer and review mitochondria, which have their own genetic lineage, including how, when and why our inheritances overlap. THEN, we further peel the onion to get into the poly-genetic origins of functional disease. Boom. It's a fascinating discussion that delineates structural vs functional disease and how most of what we struggle with in the modern world is functional disease. AND THEN, we do a deep dive into the genetics that underlie functional diseases like autism, chronic fatigue (CFS/ME), anxiety, depression, OCD, dysautonomia, abdominal migraines and cyclic vomiting syndrome. Dr Boles' adept descriptions make this reasonably understandable as he winds his way through mitochondrial treatments (vitamins, minerals, nutrients and medication options) as well as a clear teaching about channelopathies and why this might be your subtle but persistent problem. He finishes up talking about the company he founded, Neuro Needs, to offer mitochondrial cocktails, after struggling to give children and adults with congenital and acquired mitochondropathies all of the nutrients they needed over the years. Tune in to understand some of the more subtle but impactful aspects of our genotype vs phenotypical presentation in our daily life. Resources: To have a consult with Dr Boles: https://neurabilities.com/our-team/ For his Neuro Needs mitochondrial support products: https://www.neuroneeds.com/
In this 31 min conversation with fellow Coach and author Rebecca Williams Dinsdale we find out how despite having suffered CFS/ME for 20 years, and cared for her mother who had early onset dementia, she managed to find a way through gratitude for the 'joyous1/6th' i.e. the small parts of her life that were good. With help from the Chrysalis Effect and some emotional healing, she eventually got well enough to work as a Christian celebrant specialising in funerals. This brought her into contact with people at their most vulnerable, and yet managing to show love and compassion for those she worked with, she inspired so many with her speeches that she became determined to distil what she knew about love and healing into her Lifejoy book and programme.Since lockdown forced funerals to stop, this has now blossomed into an online community of 300+ people of all walks of life, those with a faith and those without, who want to transform their lives via the Lifejoy movement. Here they celebrate gratitude, resilience and worthiness in all its various manifestations and connect with eachother in meaningful and positive ways. These are the elements that enable her healing and she talks honestly about how it is too easy to be glib about life experiences which have been difficult but which nevertheless we can recover from.Rebecca can be contacted on https://drrebecca.org.uk where you can order her book, sign up for coaching or join her facebook group. Also available on amazon https://amzn.to/3vfxZs3Catch me on alchemytherpies.co.uk, patriciaworby.com and rebelhealthradio.com
Episode 7 of Real talk with @chronicfilm and @butyoudontlooksickofficial In this episode I talk with the director(Milly) and writer (Charlotte) of the film Chronic. Chronic is a short film that follows the story of a young couple, Sadie and Rob, who move in together but Sadie’s chronic illness complicates their plans and begins to govern their relationship. We discuss the vulnerability that comes with sharing your story and what the inspiration was for this short film. We discuss how crucial it is to have members of the chronic illness community involved with films when it’s about having a disability and some of the shortcomings that other films have while not including the chronic illness perspective. About our guests: Charlotte is the writer of the short film Chronic. Charlotte has a handful of conditions that she wasn’t diagnosed with until after 6 1/2 years of being undiagnosed. She knows the struggles of having an invisible condition without a name all too well. Milly is the director of the film Chronic and has had CFS/ME since childhood. You can follow both of them @chronicfilm About The Host: Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com --- Support this podcast: https://anchor.fm/melody-olander/support
The Wendy Love Edge Show with Topher Kogen does not dispense medical advice, and all of your health choices are your own. #thewendyloveedgeshow #endcannabisprohibition Guests: Chandra Batra masscann.org "My name is Chandra Batra, I'm from Cambridge MA, USA and I am a Black, female and Queer medical cannabis patient and disabilit rights advocate. I am a long term survivor of fibromyalgia, asthma , autism and CFS/ME. I was born disabled and have spent my life fighting for myself and other disabled individuals. I find inspiration in helping marginalized people find a voice , medical choice and a place in cannabis." Kerry Cannon freelancegloor.com Kerry Cannon is a writer for Cannabis Activism now.com and host of the KC Kush show on wjae420.com. She has been a grassroots activist since 2013, shortly after becoming a medical Cannabis patient. Kerry had led the effort to stop, then to try to overturn the ban on dispensaries in Apple Valley California, was the San Bernardino County Coordinator for The California Cannabis Hemp Initiative 2014, and helped in the successful effort to legalize the growing & production of Cannabis in Adelanto California. After moving to Washington state, Kerry began advocating for the release of Washington state federal plant prisoner Lance Gloor. Miggy420 @cannabisactivismnews Miggy420 a.k.a Miguel has been blogging about cannabis since 2010, he is presently on his 4th media platform. Activist turned media whore, Miggy wants to change the world and keep the lights on at the same time. He helps admin one of the largest Marijuana Facebook pages with his podcast partner in crime Thomas Howard. Together they make Cannabis Legalization News or Cannabis Legalization Network on Roku. By using their powers for good, Miggy thinks this makes for ranking SEO and networking, what message are you trying to get Nicole Lonergan @corkcann Christopher Elijah Evans @amberlytaylor 11 year old activist, musician, poet and performer for change. Activism Videos- Lauren Pray Cannabis 101 MA Steve Bloom Celebstoner.com NY Seth Cunnigan CA Walk a Mile with Seth #walkingthroughthepain`` Karen Reeves Centex Community Outreach TX Nique Pichette Nique-IT MA Musical Guest: Daniel Yates https://www.nwarocks.com/artist-releases/huntsvilles-daniel-yates-releases-new-single Miss Teddi #FIMM https://www.facebook.com/learnfromTeddi Cannabis Expert MD https://cannabisexpertmd.com Sponsored by: 131 Inclusion Gallery Karas Healthcare NWA Natural Living Purely Natural CBD Uptown Kitchen and Taphouse Lit Premium Smoking Supplies Highlands Residential Mortgage Opalstack Mary Will Nourish Join us on Patreon: https://patreon.com/thewendyloveedgeshow --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/thewendyloveedgeshow/support
One of the side effects of the Covid-19 pandemic has been an increase in people suffering the effects of the virus long after their initial infection. The "long-haulers", as they've come to be known, can experience severe tiredness, breathlessness, chest and muscle pain for months after catching Covid-19. These symptoms will be familiar to many suffering from Chronic Fatigue Syndrome-Myalgic Encephalomyelitis. It's an often misunderstood disease, yet globally, two to four people in every thousand will experience it. Kathryn talks to Dr Rosamund Vallings, who has spent her life diagnosing and managing patients suffering from CFS-ME and has just released a second edition to her book Chronic Fatigue Syndrome, ME: Symptoms, Diagnosis, Management.
One of the side effects of the Covid-19 pandemic has been an increase in people suffering the effects of the virus long after their initial infection. The "long-haulers", as they've come to be known, can experience severe tiredness, breathlessness, chest and muscle pain for months after catching Covid-19. These symptoms will be familiar to many suffering from Chronic Fatigue Syndrome-Myalgic Encephalomyelitis. It's an often misunderstood disease, yet globally, two to four people in every thousand will experience it. Kathryn talks to Dr Rosamund Vallings, who has spent her life diagnosing and managing patients suffering from CFS-ME and has just released a second edition to her book Chronic Fatigue Syndrome, ME: Symptoms, Diagnosis, Management.
In this short podcast (25.27) I talk about my journey to healing, why I wrote my book The Scar that won't Heal, and what hidden trauma is and how it relates to chronic fatigue related conditions.Events that occur with out support in childhood cause #chronicstress is the means by which the brain (specifically the limbic brain and brainstem) is hyper-sensitised the threat and the body begins to breakdown faster than it heals. This hypersensitivity leads to symptoms of allergies, auto-immune, gut issues and finally whole system breakdown. The body reads the mind via procedural memory and so if threat is unresolved it will programme the body towards illness or dis-ease like #CFS/ME.In order to heal we have to re-programme these procedural memories via the body. Using various somatic techniques like #EmotionalFreedomTechnique (tapping) and EMDR to help people resolve these issues as over and thus no longer triggering the body.I discuss #hiddentrauma' of family secrets, longterm chronic illness, shame or being different/wrong/bad in some way, being unsupported or love that is conditional on you being a certain way. Please see my website rebelhealthradio.com for more podcasts and my therapy site alchemytherapies.co.uk for my free download 'Hidden trauma' and short snippet from The Scar that won't Heal. The full book is available on amazon and as an audiobook on Audible.
Dr Myhill qualified from the Middlesex Hospital Medical School, London, Honours viva, 1981. She worked for 20 years as an NHS GP before moving to Independent Medical Practice with a special interest in CFS/ME. She practices Ecological Medicine – diagnosing mechanisms if disease which have obvious implications for management. She has been an active member of the BSEM since 1986 Hon Meetings Secretary (1993–1998) including 5 day International Conference “Sustainable Medicine” at Christ Church College Oxford, Hon Secretary 1999 -2007. Co-author with Dr John McLaren Howard Acumen and Prof Norman Booth Mansfield College Oxford: Chronic Fatigue Syndrome and mitochondrial dysfunction: Ref Int J Clin Exp Med (2009) 2, 1-16, http://www.ijcem.com/files/IJCEM812001.pdf Mitochondrial dysfunction and the pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). www.ijcem.com/files/IJCEM1204005.pdf Targeting mitochondrial dysfunction in the treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a clinical audit. http://www.ijcem.com/files/IJCEM1207003.pdf Author of award winning books vis: “Chronic Fatigue Syndrome - it’s mitochondria not hypochondria” BMA Prize Highly Commended 2014. Second edition 2017 (5 reprints) “Sustainable Medicine” (Beryl Bainbridge Prize 2016). “Diabetes” (Beryl Bainbridge Prize 2017) “The PK Cookbook” 2017 “The Infection Game” 2018, updated 2018 “Ecological Medicine – the antidote to Big Pharm and fast food” 202ohttps://drmyhill.co.uk/wiki/My_book_Ecological_Medicine_-_The_Antidote_to_Big_Pharma_and_Fast_Foods Due out shortly “The Energy Equation” In the pipeline “Green Mother” She has made media appearances in Newsnight (silicone implants), Dispatches (BSE and organophosphate poisoning), Woman’s hour (silicone breast implants, allergies), Esther Rantzen show (Chronic Fatigue Syndrome), Watchdog Healthcheck (silicone implants) as well as many Welsh TV programmes and local radio in UK and abroad. Lecturer to What Doctors Don’t Tell You, BANT (British Association of Nutritional Therapists), BSEM, ANP (Association of Naturopathic Practitioners) and others 1994 Diploma in Clinical Nutrition Patron of ANP (Association of Naturopathic Practitioners) ____________ We Discuss: The differences between Chronic Fatigue Syndrome, ME & Fibromyalgia Normal fatigue vs. Chronic fatigue Conventional tests & treatments for fatigue What are mitochondria and what are the influencing factors Dr Myhill’s thoughts on graded exercise & post-exertional malaise Gut health & key nutrients for mitochondrial function including chronic infections and how do they affect mitochondria Dr Myhill’s thoughts on the ketogenic diet to support mitochondrial function Mentioned: Dr Sarah Myhill’s co-authored published papers on Chronic Fatigue Syndrome & Mitochondrial Dysfunction http://www.ijcem.com/files/IJCEM812001.pdf http://www.ijcem.com/files/IJCEM1204005.pdf http://www.ijcem.com/files/IJCEM1207003.pdf Books authored by Dr Myhill https://www.salesatdrmyhill.co.uk/dr-myhills-books-10-c.asp Additional resources and information can be found on Dr Myhill’s wesbite https://www.drmyhill.co.uk ———— MY LINKS: Try my favourite ORGANO KING coffee - https://vivanaturalhealth.myorganogold.com/gb-en/ Grab my favourite BluBlox glasses - https://bit.ly/2UXkNqT ______ Got a podcast question? Send you emails to hormonesinharmony@gmail.com Enjoyed this episode? Leave me a rating and review so that I can share this podcast with more women Want more from me? You can find me online... Website www.vivanaturalhealth.co.uk Instagram www.instagram.com/vivanaturalhealth Facebook www.facebook.com/vivanaturalhealth Email enquiries@vivanaturalhealth.co.uk Tune in now on iTunes, Spotify, my website or watch on Youtube (Viva Natural Health) If you are enjoying the podcast, please leave me a rating and review, as this helps me to reach more women and continue to interview awesome guests! Make sure you hit subscribe so that you never miss an episode!
Dr. Raymond Perrin joins the show to discuss the connection between poor lymph drainage and chronic fatigue syndrome, ME, fibromyalgia, and other neurological inflammatory issues. He also explains his the best ways to help improve lymph drainage, and his incredible Perrin Technique. On today’s podcast, you will learn: The causes of poor brain lymph drainage. Massage techniques to aid brain lymph drainage. Explanation of how the brain and lymphatic drainage system becomes clogged with toxins. Why the brain is vulnerable to toxins, and the compounding issue of “leaky brain”. The link between poor brain lymph drainage, and long Covid symptoms. The Perrin Technique and how it can be used to help reverse and prevent chronic fatigue naturally. Dr Raymond Perrin Bio: Dr Perrin is a Registered Osteopath, Neuroscientist and Specialist in Chronic Fatigue Syndrome CFS/ME. He is Honorary Clinical Research Fellow at The Faculty of Biology, Medicine and Health at The University of Manchester. Dr Perrin qualified in 1984 from the British School of Osteopathy in London. He has extensive experience treating top sportsmen and women including Olympic athletes. In 1991 he was appointed official osteopath to the World Student Games, Sheffield. Dr Perrins research since 1989 into CFS/ME has expanded our knowledge of the disease and how to diagnose and treat it. In July 2005 he was awarded a doctorate by the university of Salford, UK for his thesis on the involvement of cerebrospinal fluid and lymphatic drainage in CFS/ME. Since 2007 he has also held the academic post of Honorary Senior lecturer at the Allied Health Professions Research Unit , University of Central Lancashire, in Preston, UK. He was appointed member of the scientific committee for the 2nd 3rd and 4th World Congress on Neurobiology and Psychopharmacology affiliated with the European Association of Psychiatrists Annual Conference, Greece. In 2015 he joined the international faculty of the German School of Osteopathy, Hamburg; and teaches osteopathic theory and practice to students in colleges all over Europe. He has lectured internationally and in the UK to CFS/ME patient groups and the medical profession on the manual diagnosis and treatment of CFS/ME. He has published papers in major medical journals including the BMJ and is the author of the bestselling book The Perrin Technique: How to beat CFS/ME published by Hammersmith Press, London in 2007. Dr Perrin is a vice-patron of The University College of Osteopathy and in 2015 was the recipient of the inaugural Research and Practice Award from the Institute of Osteopathy. He is a founder member of the newly formed International Osteopathic Research Group and still continues to run clinics in Manchester and London specialising in the treatment of CFS/ME and Fibromyalgia. You can learn more about Dr. Perrin and his incredible work at Make sure to check out Dr. Perrin's best-selling book, and keep an eye out for his upcoming book, "The Perrin Technique, Second Edition"
In this discussion with wellbeing coach and mysfascial therapist Carol Greenwood we discuss the elements of what true healing means and how she came to that understanding through her own suffering of trauma and #CFS/ME. Although a true healing journey is never fully over, she has regained her health and now offers support and therapies to those recovering from such long-term chronic conditions via her own practice and that of the Greenwood Holistic Health Group, which we are delighted to be forming together with a multidisciplinary team of people which we believe is the best way to help people with chronic complex conditions such as #chronic fatigue and #long-covid.Sit back and enjoy this joyful and spirited discussion with myself and Carol as we muse on what makes true health and healing.And do contact me at Alchemy Therapies for more information on the subjects in this talk.
Author and writer Maija Haavisto caught my attention with her article titled ‘Medical Trauma: Gaslighting and Continuous Stress Eating Away at Your Self Worth’. In her writing, Maija accurately captures the consequences of harmful medical experiences I witness in my counseling clients. As I’ve said elsewhere, medical error and trauma are the unacknowledged pandemics within our health care systems. Maija grew up in Finland, a healthy child until she got the flu as a teenager and never recovered. Kicked out of an abusive home at 16 as she struggled with sickness, Maija relied on her writing prowess and carved out a successful career as a journalist and medical writer who has authored 17 books in Finnish. Along the way, Maija’s health has fluctuated, she eventually got a diagnosis of MEcfs, moved to the Netherlands partly for healthcare reasons in 2010, but she has never been totally healthy again. Of course, having undiagnosed and unrecognized symptoms, and then getting a diagnosis of a medically marginalized disease, means Maija had to have numerous encounters with the health care system. Encounters that more often than not, would be stressful and trauma inducing. But Maija has taken her lived experience with the chronic disease MEcfs, and her more recent experience with Long Covid (aka post Covid syndrome), and her encounters with the health care system, and uses those elements to inform her writing. Maija makes the point that medical trauma is different from post traumatic stress. As Maija writes in her article, “Another aspect that makes medical trauma particularly pernicious is the way we may be forced to face our abuser and pretend nothing has happened. Even if we manage to cut them off, their pointed comments may stick in our medical files.” And that’s exactly what distinguishes PTSD from continuous medical trauma. If you have a complex chronic illness, especially one that is medically marginalized, you probably cannot divorce yourself completely from the health care system to try to protect yourself from further abuse and trauma. You are forced to continue to engage with your traumatizer, both the physician and the health care system -- and that makes medical trauma continuous, and some would say, chronic trauma. Connect with Maija Haavisto Twitter: @DiamonDie Maija’s Medium article: https://maija-haavisto.medium.com/medical-trauma-6fa90c6ecab0 Website http://www.fiikus.net Maya’s CFS/ME book http://www.brokenmarionettebook.com YouTube - hypnosis and meditation audios https://www.youtube.com/user/diamondie Be a podcast patron Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions. Premium Patrons get access to video versions of podcasts for $5 / month. Be my Guest I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer. If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com Need a Counsellor? Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error. If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments. **For my health and life balance, I limit my number of counseling clients.** Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com Scott Simpson: Counsellor + Patient Advocate + (former) Triathlete I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard. I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships. Thanks to research and access to medications, HIV is not a problem in my life. I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life. Counseling / Research I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here. Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions. Patient Advocacy I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network. I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada. Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system. My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Join Gem for this jam packed episode, there's opening the 7 days of the advent calender (very exciting) the new news about CFS/ME guidelines and Gem talks Allodynia. Have you heard of it? (There may be a bit of crafting too) with thanks to MEactionuk a huge, huge thank you to my patreons justmebringmrsb and Debbie. Twitter:@gemsquirky Instagram:@gemsquirky music: free-stock-music.com --- Send in a voice message: https://anchor.fm/quirky-gems-podcast/message
Podkast mandaaaag!! om#ME “Den usynlige sykdommen” m/ Hege Holen og Ruth-Anne Tomtum Kleve (Tangen Helseklinikk)I denne episoden tar vi opp hvordan det er å få diagnosen ME. Hvordan håndterer man å få symptomene? Hvordan stilles diagnosen, og hvordan snakkes det faglig rundt metoder for tilfriskning?Hege Holen beskriver seg selv som å ha vært en person som satt veldig sjelden stille. Hør hvordan Hege’s prosess har vært, og hvilke konkrete ting hun gjorde som har hatt effekt for henne.Psykolog og sosionom Ruth-Anne Tomtum Kleve deler av faglig innsikt rundt tilfriskningsprosessen, rundt mestringsstrategier og viktigheten av å jobbe tverrfaglig. Hva vil det si å bruke betegnelsen CFS/ME? Hva er det viktig å få frem faglig om CFS/ME når det gjelder symptomer og tilfriskning? Ruth-Anne går nærmere inn på dette.Da er det bare å trykke play og lære mer!
Are you trying to keep up with the general medicine literature but you are saturated with Covid Coughs, Swabs, Oxygenation, Isolation, Ventilation, and the Mortality of the Nation? Your ears are in the right place as we bring you last months most relevant (and sometimes less relevant) general medicine articles.---------------------------------------------------------- In this month's episode......why we shouldn't leave all the cycling to work to the anaesthetists...Association of injury-related hospital admissions with commuting by bicycle in the UK: a prospective population-based study. BMJ.https://doi.org/10.1136/bmj.m336...ACEI/ARBs shine through some difficult COVID related PR...Qiao, Yao et al. “Association Between Renin-Angiotensin System Blockade Discontinuation and All-Cause Mortality Among Persons With Low Estimated Glomerular Filtration Rate.” JAMA internal medicine, e200193. 9 Mar. 2020, doi:10.1001/jamainternmed.2020.0193...a new treatment regimen injects some life into HIV care...Orkin, Chloe et al. “Long-Acting Cabotegravir and Rilpivirine after Oral Induction for HIV-1 Infection.” The New England journal of medicine vol. 382,12 (2020): 1124-1135. doi:10.1056/NEJMoa1909512....the ISCHAEMIA trial, morbidly expensive but no extra mortality...Maron, David J et al. “Initial Invasive or Conservative Strategy for Stable Coronary Disease.” The New England journal of medicine vol. 382,15 (2020): 1395-1407. doi:10.1056/NEJMoa1915922...brush up on treatment options for CFS/ME...Kim, Do-Young et al. “Systematic review of randomized controlled trials for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME).” Journal of translational medicine vol. 18,1 7. 6 Jan. 2020, doi:10.1186/s12967-019-02196-9...a few pearls to help with your ICU redeployment...Lee, Robert Y et al. “Association of Physician Orders for Life-Sustaining Treatment With ICU Admission Among Patients Hospitalized Near the End of Life.” JAMA, vol. 323,10 950–960. 16 Feb. 2020, doi:10.1001/jama.2019.22523Lamontagne, François et al. “Effect of Reduced Exposure to Vasopressors on 90-Day Mortality in Older Critically Ill Patients With Vasodilatory Hypotension: A Randomized Clinical Trial.” JAMA, vol. 323,10 938–949. 12 Feb. 2020, doi:10.1001/jama.2020.0930...and finally, the great medical conundrum of our time...Ukai, Tomohiko et al. “Habitual tub bathing and risks of incident coronary heart disease and stroke.” Heart (British Cardiac Society), heartjnl-2019-315752. 24 Mar. 2020, doi:10.1136/heartjnl-2019-315752---------------------------------------------------------- Get in touch! @JournalSpotting or journalspotting@gmail.comWe'd love to hear from you: what you thought of the show, what you would like to hear, and if you have any articles that you would like us to share with the general medicine world! A wise man at your ARCP once said: "It didn't happen unless you've filled in a feedback form". (But seriously, we'd love to hear what you think!)
Welcome to episode 100 woohoo! In this episode Gem talks to content creator Tracey Bailey AKA Mrs B, they talk about Tracy's past employment in the RAF, blogging about babies and kids, CFS/Me, migraine,menopause, fibromyalgia and what a content creator is! So make yourself a cuppa, pull up a seat and prepare for laughs (there was no wine or alcohol involved we promise!) (If you hear any pauses please keep listening Gem got excited andaccidently paused the recording twice. - blame fatigue brain) Enjoy!
Diese Folge des Podcasts Hexenwerk liegt uns besonders am Herzen. Diese Folge widmen wir Martiin, der, wie Anne auch, unter CFS/ME leidet. Er soll nach einer Gutachterempfehlung gezwungen werden eine Therapie zu machen, die seinen eh schon sehr schlechten Zustandt deutlich verschlimmern wird. Das Ganze wird damit begründet, dass er einen hohen Krankheitsgewinn hat und sich deshalb einer Behandlung verweigert. Es ist erschreckend wie wenig Ärzte, aber auch die Kranken- und Rentenkassen, über diese Krankheit wissen. Dabei leiden in Deutschland ca. 250.000 Menschen darunter. Weltweit sind es über 20 Millionen Vergessene, die wir nicht mehr zu sehen bekommen, weil sie nicht mehr in der Lage sind ihre Wohnung zu verlassen.Menschlichkeit ist kein Hexenwerk! Folge direkt herunterladen
Diese Doppel-Folge des Podcasts Hexenwerk liegt uns besonders am Herzen. Wir widmen sie Martiin, der, wie Anne auch, unter CFS/ME leidet. Er soll nach einer Gutachterempfehlung gezwungen werden eine Therapie zu machen, die seinen eh schon sehr schlechten Zustandt deutlich verschlimmern wird. Das Ganze wird damit begründet, dass er einen hohen Krankheitsgewinn hat und sich deshalb einer Behandlung verweigert. Es ist erschreckend wie wenig Ärzte, aber auch die Kranken- und Rentenkassen, über diese Krankheit wissen. Dabei leiden in Deutschland ca. 250.000 Menschen darunter. Weltweit sind es über 20 Millionen Vergessene, die wir nicht mehr zu sehen bekommen, weil sie nicht mehr in der Lage sind ihre Wohnung zu verlassen.Menschlichkeit ist kein Hexenwerk! Folge direkt herunterladen
Many people don’t link their experience of pain with their immune system and therefore digestive function. Conditions like Chronic Fatigue are often perceived to be life-long ways of being that sufferers just have to live with. Sometimes we can experience symptoms of neuroinflammation (like brain fog, difficulty concentrating, feeling overwhelmed in crowds or with loud music, fatigue and poor endurance in mental activities) and shrug them off as a normal part of life. In this episode Anna shares lessons from her own healing adventure and practical things to look out for and address to create a better sense of wellness lifelong. NHS Symptoms for CFS/ME: https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/symptoms/ Find Anna:http://annamarsh.co.uk/ Instagram: https://www.instagram.com/anna_marsh_nutrition/ Facebook: https://www.facebook.com/annamarshnutrition/ Find Ché: https://www.chedyer.com/ Instagram: https://www.instagram.com/indieyogalife/ Facebook: https://www.facebook.com/chedyeryoga/
Do you have energy for your day when you get out of bed? Increasing numbers of people are far more tired than they should be. Sadly many of them go on to develop a chronic fatigue disorder like CFS/ME and fibromyalgia. These conditions seriously impact our quality of life and can suck the joy out of living.Alex Howard had a seven year journey with ME. Taking his recovery into his own hands he learned, explored and tried almost everything. He translated all that he had learned into a book and founded the Optimal Health Clinic to address treating fatigue disorders holistically with an integrative approach. Alex shares his wisdom on the current theories and his personal and professional experience on the causes of fatigue disorders. We discuss the relevance of adrenal fatigue in the context of being a symptom rather than a cause. Alex also shares the myriad of factors that determine treatment options. He emphasis is on understanding that the most recent or most likely candidate for the illness is almost always just the last link in a chain of factors. Each of these factors has to be addressed to achieve success in healing.Alex emphasises the importance of understanding that this is a journey. The road can be challenging and arduous at times, but there is much that can be achieved with the right treatment and support, emotionally, physically and psychologically. Most importantly, Alex urges people to never be afraid to ask for help.For more go to The Optimum Health ClinicAlex's free 14 day Meditation Course, vlog, podcast and more at AlexHoward.tvBecome a London Heal Insider for EXCLUSIVE access to Extended Show Notes. Subscribe free of charge at Londonheal.com
Olivia Spring talks CFS/ME, lyme disease, the role of mental health in chronic illness, and navigating school while sick. Plus, she shares her vision for the forthcoming SICK Magazine. Transcript Hi, I’m Brianne Benness and this is No End In Sight, a podcast about life with chronic illness. Before we start, I have a very … Episode 40 – OliviaRead More » The post Episode 40 – Olivia appeared first on No End In Sight.
We all get tired of the whole dating game at times, but for people with Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME), it's a whole different level of exhaustion. CFS/ME can leave a person with a whole bunch of symptoms — physical exhaustion, mental exhaustion and muscle fatigue being just a few. Cat O Dowd, a sex therapist who lives with chronic fatigue syndrome, joins Nat to talk about navigating dating, relationships and sex around CFS/ME.
Quick note: Our Skype call was internet cursed but I PROMISE you this is worth it! Sara’s perspective on life will blow you away. Speaking of head over toSara’s Blog: Invisible Me DiaryWhat is your disorder? My main disability is Chronic Fatigue Syndrome/ ME. My dad is also disabled with CFS/ ME and Fibromyalgia. I have other health problems but the main and most urgent disorders which haveaffected me most are Systemic Candida, Interstitial cystitis, and Chronic Migraines/vision pain.At what age did your disorder become a daily issue? When I was 16 years old and finishing my junior year of high school I suffered froma series of migraine headaches which led to CFS/ ME. My family decided to move toFlorida to be near our giant family since my dad became disabled. I was starting tohave the same fatigue issues as my dad so my parents found a high school thatwould take me part time so that I could graduate. Not only was I entering my senioryear at a new school in a new state, I was also very sick. We found as CFS doctornearby who started me on antiviral s and antibiotics.- At first I noticed a differencebut it was quickly followed by a her x reaction which made me have flu likesymptoms. Eventually the medicine gave me systemic candida, which I first noticedas thrush. The infection spread throughout my entire body, even down to my nails.Every time I ate I became extremely sick and could feel my stomach stretching fromthe bloating. I was living meal to meal on an extremely strict diet. This made itimpossible to make friends as I couldn't' t eat anywhere but my own house. This wasthe toughest time of my life when not only was my health a daily issue, but anhourly issue.Who were you before your illness became debilitating? Before my illness I was a normal high school student. I was a fast pitch softballpitcher being scouted by colleges, I was first chair saxophone in the school band,on the honor roll, and had lots of friends including a boyfriend. I lost each ofthese things when I got sick, all of the things that I thought defined me. Withthe move to Florida I also lost my home and the dynamics of my parents. Mymom went back to work and my dad Went ̄from---being my softball coach tocouch bound.What would you do if you were not dealing with your invisible illness? If I were not sick I would have already graduated from college, have a job, and be independent. Because of my illness I was not able to go away tocollege which later became a blessing because I have been living at home and going to architecture school nearby. It has always been a dream of mine to be an architect and I love going to school. It is difficult though because each year my friends graduate as I am left behind. What is typically an 4 year degree will take my 8 years to graduate.If my health were to improve I would love to be more involved with promoting awareness for invisible illnesses but it is all I can handle to keep my blog going.What would you like people to know about your daily life? Although my family faces sever health problems each day, my daily life is hilarious. Living with multiple people who are sick and not all there makes my family a sit com. I live with my mom, dad, and sister and my extended family is made up of 24 people who live within ten minutes of me. Here are some examples:*My sister is a Michael Kohrs sales rep, alcohol marketer, business student, and professional dancer. It is a normal week for her to have her car breakdown where she was mistaken as a homeless person, pour alcohol samples poolside at the Waldorf, do her homework with a foot mouse and voice activated software due to severe fibro, and dance with Cher's personal male look alike. *My dad has been learning sign language due to severe throat pain. My grandma has been learning it with us but she accidentally flicks us off a lot. Mydad is also writing a book with his eyes closed. Because mornings are best for him dinner is usually ready by 10am.*My grandma is our Uber. She takes me to school and doctors appointments. *Our house is a revolving door for family as they are always helping and supporting us. My aunt will often drop by with dinner, my cousins bring their dogs over, and my uncles will stop by to visit with my dad.*I have converted the office into my personal architecture studio. ofmy pain I cannot use a computer and therefore drawby hand. I have a typewriter to write my blog and school assignments. I've gotten so good at drawing combined with my typewriter that my classmates think my work is done on the computer.My daily life may be funny but it is also consumed by my health. I can only achieve so much in a day, have to take lots of breaks, and spend a lot of days at doctor appointments. When I got sick, every aspect of my life became public to my family and doctors. When I got Interstitial Cystitis, a bladder problem which either made me have to pee urgently and constantly or not be able to go to the bathroom at all, it was normal for my day to start with my dad asking about my pee. It became so painful and difficult to make it through class or a car ride that my family sent me to New York to see a world renown doctor for I C. Imagine seeing New York for the first time with a bathroom locater app and two disabled people. My dad looked so lost that people would come up to us on the street to help us. I wouldn't' t have wanted to experience NYC any other way though. My daily life was changed when this doctor gave me medicine that helped my pain and urgency and also recommended a pelvic floor physical therapist. At this point I spent my days in a urogynechologist office, getting bladder lavages, and doing physical therapy. What would make living and moving in the world easier for you? Awareness and Accessibility. Living with such serious health problems which controleverything I do, having a voice on my blog has been completely liberating. Just the few people in my life who now understand a part of what I go through has made my life easier. If invisible illnesses were taken as seriously as cancer it would allow for me to not have to prove that I am sick. I went to a football game for UCF where I was denied access to a handicap parking garage by a police officer although I have a handicap placard. After that I was denied access to the handicap shuttle because I ' l am not handicap. Having people not believe me therefor making accessibility inaccessible has been a huge part of the battle.Do you have any life hacks? We have SO MANY life hacks, most of which invented by my dad. One that standsout is ' 'neck thing in a pant leg. " My dad cannot hold his head up and cannot joinus for meals, church, ect. if the seat he is in does not have a neck support. Oneday I found him walking around the house with a slab of wood sticking out of hisshirt. It evolved into a 4 inch wide piece of wood from our garage with Velcro onit to attach padded neck and lumbar supports. It looked like a hot mess so my dadwent to his room, cut off one of his black pant legs, and my mom sewed the pantinto a carrying case. Now he doesn't leave home without "Neck thing in a pant leg.' t Another favorite is the foot mouse, which he made for my sister because she getsextreme back pain from fine motor activities.RIP my sandle, which he cut a hole in to place the mouse. Currently the mostimportant life hack for me has been my rose colored glasses from amazon whichprotect my eyes from glare and fluorescent light. Without them I couldn't make itthrough class at school without getting a migraine due to extreme lightsensitivity.What kind of support do you get from family or friends? I have lost many friends over the years but the friends that I do have now areamazing. Most of them have no problem if I have to cancel plans. They usually come to my house and even drive me around places. I also have friends who also suffer from ME/ CFS. Although I have been lucky to have my dad who understands all ofmy struggles, it wasn't' t until I met another girl my age with the same challenges that I realized that what I needed wasn't' t a cure, it was for someone to understand. My family has been amazing, as I wrote earlier.Have you ever had someone not believe you have an invisible illness because of your appearance and if so are there any examples? I learned that people do not believe invisible illnesses from my dad. I have seen how he has faced so much before I even got sick. He grew up in a different time (1970's- 80's) when invisible illnesses were unheard of. In his 20's he went through years of being bed bound. Doctors told him he was crazy, it was all in his head, he was a hypochondriac, laughed at him, and told him that this was his bodies way of taking a break from being so ambitious and smart. He eventually learned that his problems were food related and was able to lead a normal life for many years. But because of this he has always kept his health a secret and I wasn't' t even allowed to post pictures of him on facebook because he was so paranoid. By the time I got sick I figured that was the way to live with this illness. I didn't necessarily encounter people who straight up didn't' t believe me because I never gave them the chance to know what was wrong. How has your invisible illness affected your relationships? I was engaged a year and a half ago to my absolute best friend. We had an amazing god named Sonny and our own Little apartment. When we first met I was not as disabled as I am now. There became a point in our relationship where he was my caretaker and I was hardly able to take 2 classes. I was happy though because I hadhim and Sonny and a beautiful wedding dress. When he left me I thought it was my fault because I am sick. His mom texted me and told me that it wasn't fair to him that I was sick. A few months later Sonny passed away unexpectedly. Sonny was everything to me His death was devastating on top of everything. I have sense built up my self worth, started blogging, and went back to school. I now know that him leaving had nothing to do with my illness but with him. I deserve everything a normal person does, including love and a family. A part of me is still hopeful that I'll get tohave that again. But it is hard dating when I am so disabled. I have been labeled hard to get," because I cannot text/snapchat constantly due to severe eye pain, which I was honest about from the beginning. Of all the things I have been through I really just want to have my best friend back. Is there anything you are afraid to tell people in your life? Because of my illness I am very close with my family and friends. Over time I have let go of everyone who doesn't put my health and well being first. I have gotten to the point where I just say things as they are. I call this person "savage Sarah," because before my illness I was very reserved and put other people first where I now have to put myself first.Does the fact that your disease is invisible change how healthcare professionals treat you? Heck to the yes! I often have to see multiple of the same kind of doctor before I find one that takes me seriously. For example, I have been to 3 neurologists, a pain institute, and 2 eye doctors, and a neuro ophthalmologist for the same symptom; migraine eye pain. I t ve become a pro at doctor hunting and have even had to go out of state just to find a doctor. My favorite responce for my migraines was that it sounds like I t m not trying to help myself, despite cutting out classes, not driving, wearing special glasses, going to multiple specialists, trying food, yoga, and physical therapy along with botox, epidurals, MRI s, and even injecting myself with meds. Then the next doctor I went to told me that I already tried everything and that I would just have to live with it. I never know what I am going to get when I meet a new doctor. If wehave learned one thing it's to not give up even when it seems like there is no hope. Someone out there has to know something about what I am going through.What is your best coping mechanism? Blogging has given me control over everything I'm going through. Jesus and dogs.What are you most concerned about and the most hopeful for the future? Biggest concern- that I won't get to be an architect. That the extraordinary measures my family have taken for me to be get aneducation won't be worth it.Most Hopeful- To become an architect and have a family I guess I am most fearful that I won' t get what I hopeable tosomeday . for.Is there anything you don't want to talk about during the interview? Because my dad thinks the drones are out to get him(joke but actually paranoid) I would like to not advertise my Last name but instead use Sarah Nicole (my middle name) .Is there anything you want to talk about during the interview? like an organization you want to promote or something specific you deal with. I would like to mention my blog InvisibleMEdiary.What is the hardest/best lesson your condition has taught you? Others will try and tell you your worth, but only you can define your self worth. The past 8 years have been a rollercoaster of losing myself to learning to love myself. This illness has changed my way of seeing the world and I have grown to love the insight I have into suffering and what is truly important in life.What is the best purchase under $100 that helped your life? My Emily Dickinson Book of Poems. See acast.com/privacy for privacy and opt-out information.
Join us for another joyous installment with the incomparable Sascha Alexander. Remember that time she thought she had toxic mold, in addition to interstitial cystitis, candida, and Hashimoto’s disease? Well, guess what? That toxic mold ain’t so moldy…it’s Lyme! Lauren sits down with Sascha to find out how she was ultimately diagnosed, and how she’s increasing her detox protocol to rid her body of one of the most insidious of invisible diseases: the tick-born illness, Lyme. Listen in as Sascha shares… - that the detox protocols she had begun 5 years ago to treat toxic mold have actually given her a leg up on Lyme treatment, as some of these protocols overlap (infrared saunas, antibacterials/antimicrobials, coffee enemas) - that she is now working with the same doctor Lauren works with for her thyroid: Dr. Lisa Hunt at Holtorf Medical Group - that the more updated protocol for treating Lyme is to boost one’s immune system, rather than to deplete it entirely with long-term IV antibiotics - that Sascha’s current treatment regimen includes ozone therapy, peptide therapy, and FMT (fecal microbiota transplantation) - how Lyme works: it survives by destroying the inter- and extra-cellular nervous systems - that Lyme and syphilis are both spirochetes, and can look similar under a microscope - the different tests used to diagnose Lyme - the gold standard for Lyme testing in the US: iGeneX, which is even more accurate and detailed than the Western blot test - that Lyme thickens blood cells with biofilms (almost like an exoskeleton around the cells), and the biofilms need to be dissolved before treating the infection; this thickening of the blood is similar to HIV infection, as well - Lyme is known as the “great imposter” because its symptoms can mimic, and it is often misdiagnosed as, one of the following: rheumatoid arthritis, lupus, MS, ALS, Parkinson’s, fibromyalgia, and CFS/ME - her recommendation that anyone with symptoms related to RA, lupus, MS, ALS, Parkinson’s, fibromyalgia, or CFS/ME also seeks out the assistance of an LLD, or Lyme Literate Doctor, to be thoroughly tested and rule out Lyme as a root cause - that band 58 of her Lyme testing was the definitive indicator of her infection - the relief and vindication that came with her definitive Lyme diagnosis - that Lyme may be one of the worst diseases of all time, BUT it’s curable - that Lyme causes autoimmune diseases – which may include her Hashimoto’s disease diagnosis - that her current protocol is being undertaken in steps. First, she has to kill the Lyme in her system; next, she has to repair the damage the Lyme has done to her immune system - that her doctor recommended stem cell treatment, but it’s very expensive and she finds her current regimen is working well - what a fecal transplant (FMT) is, how donors are selected, and how it works – including all the dirty details! - that C. diff (Clostridium difficile) is the only infection for which FMTs are currently FDA-approved; so FMTs are difficult to get a hold of otherwise, unless you find a doctor willing to help - what distinguishes Bartonella and Babesia co-infections in Lyme - how ozone therapy works: using O3, it kills pathogens in your blood on contact - the healing process of Lyme: patients tend to get worse before they get better, and the die-off period during which they feel worse (generally flu-like symptoms, because the die-off releases toxins in the body) is called a “Herxhiemer reaction”, or Herx - the process of being more “seen” by others since she got her Lyme diagnosis – because her network understands this diagnosis more than they did the previous ones - how she has allowed her illness experience to change her for the better: she has learned self-compassion, and to ask for support with acceptance and grace
Why You Should Listen: In this episode, you will learn about Postural orthostatic tachycardia syndrome (POTS) and the vagus nerve; as well as potential triggers and solutions. About My Guest: My guest for this episode is Dr. Diana Driscoll. Diana Driscoll, OD is an optometrist who became passionate about helping those with complex health conditions as a result of her own health challenges with POTS, Ehlers-Danlos Syndrome, and ME/CFS. Today, she is recovered, as are her two children, and is the Clinical Director of POTS Care in Colleyville, TX. She is president of Genetic Disease Investigators, LLC. Her husband Richard is also a doctor and together they have worked to find answers to POTS using unique ocular testing. They are intimately familiar with POTS, chronic fatigue, brain fog, immune system decline, gastroparesis, temperature dysregulation, interstitial cystitis, and more. She offers hope for those dealing with POTS, Dysautonomia, Ehlers-Danlos Syndrome, MCAS, Chronic Fatigue, chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. She is the author of the book "The Driscoll Theory - The Cause of POTS in Ehlers-Danlos Syndrome and How to Reverse the Process". From her personal and family journey and her work with patients, she has created a line of supplements, including the patented ParaSym Plus, to meet the specific needs of those dealing with these complex, chronic illnesses. Key Takeaways: - What is POTS? What are its symptoms? - What is idiopathic POTS and some of its potential triggers? - How are POTS, CFS/ME, Fibromyalgia, and Lyme related? - What is the connection between MCAS and POTS? - Do antihistamines help those with POTS? - What is the role of the vague nerve? - What can damage the vagus nerve? - What is the connection between the vagus nerve, gastroparesis, and SIBO? - What role does acetylcholine play in vagus nerve dysfunction? - What is the role of the ileocecal valve in gastroparesis? - How might Mestinon help in POTS? - Why is tonification of the parasympathetic nervous system important? - What is ParaSym Plus? How might it be helpful in POTS and related conditions? - Can POTS be cured or does it need to be managed indefinitely? Connect With My Guest: http://prettyill.com http://potscare.com http://vagusnervesupport.com Related Resources: Parasym Plus Interview Date: April 11, 2019 Disclosure: BetterHealthGuy.com is an affiliate of VagusNerveSupport.com. Additional Information: To learn more, visit http://BetterHealthGuy.com. Disclaimer: The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority.
It was the debate that every person suffering with CFS/ME prays takes place in the U.K government and it did! Join Gem as she talks about her take on the debate and what she thought about it from the mind of an individual living with CFS. Thequirkygem.wordpress.com Twitter: @Gemsquirky Insta: @Gemsquirky --- Send in a voice message: https://anchor.fm/quirky-gems-podcast/message
This month, I read two of the better books I've read lately on functional medicine, chronic fatigue and health concepts that it seems not many people are talking about these days. In other words, I folded over a lot of pages in these books! Both were written by the same author: . Doctor Sarah Myhill is a British doctor running her own specialist M.E. clinic in Knighton Wales, United Kingdom. is an extensive resource of articles and information based on her treatment of patients, and runs to 920 webpages with over 6 million individual visits. Dr. Myhill's view is that the disease is characterised by a cellular metabolic mitochondrial dysfunction and has published several studies. Dr. Myhill has treated in excess of 10,000 CFS/ME sufferers over her 30 year career. The first book, "", is based on the premise that twenty-first century Western medicine—driven by vested interests—is failing to address the root causes of disease. Symptom-suppressing medication and “polypharmacy” have resulted in an escalation of disease and a system of so-called “health care,” which more closely resembles “disease care.” In this book, author Dr. Sarah Myhill aims to empower people to heal themselves by addressing the underlying causes of their illness. She presents a logical progression from identifying symptoms, to understanding the underlying mechanisms, to relevant interventions and tests and tools with which to tackle the root causes. She writes: “It’s all about asking the question ‘why?’” Sustainable Medicine covers a wide range of symptoms including inflammation (infection, allergy, autoimmunity), fatigue, pain, toxic symptoms, deficiency symptoms, and hormonal symptoms. And Dr. Myhill includes a toolbox of treatments for specific illnesses and ailments, as well as a general approach to avoiding and treating all disease. Finally, she offers a series of case histories to show how people have successfully taken control of their health and healed even in the face of the most discouraging symptoms—all without the harmful interventions of 21st century Western medicine. The second book, " " is just as good. In this book, details the practical application of her successful and comprehensive treatment approach for CFS/ME. Key chapters include: -The clinical picture of CFS: CFS symptoms list, medical tests for chronic fatigue -Mitochondria and chronic fatigue syndrome: energy powerhouse, mitochondrial failure, implications for major organs, vital tests -Treating mitochondrial failure -Foundations for recovery - the Dr Myhill CFS protocol with tips for CFS help: rest and pacing, vitamins and minerals, Vegepa for CFS, sleep, diet, allergies, digestion, detoxification & antioxidants -Related health issues: avoiding viral infections, hormonal disturbances in CFS, the contraceptive pill and HRT, oxygen supply, psychological aspects of CFS, the right exercise -Toxic and viral causes of CFS: chemical poisoning, chronic infections, pain -Practical CFS help: where to start (rest, nutritional supplements, Vegepa for ME, sleep, stone age diet, treating mitochondrial dysfunction, correcting hormones, detoxing, avoiding infections) During our discussion, you'll discover: -Dr. Myhill's overall philosophy of medicine...6:45 -How Dr. Myhill tests mitochondrial function, and why she feels it's so important...15:30 -What is myalgic encephalitis and how is it any different from chronic fatigue syndrome...21:10 -Why Dr. Myhill uses a fat biopsy to test for detoxification...23:30 -Dr. Myhill's infatuation with Vitamin C and how she uses it to treat chronic fatigue...26:30 -Why Dr. Myhill administers a lot of intravenous magnesium to her patients...33:00 -The fascinating link between the fermenting gut and chronic fatigue...40:15 -What allergic muscles are, and how they are linked to fibromyalgia...51:00 -At the very end of the book, Dr. Myhill has a recipe for live cultures, and why she's not a fan of probiotics...52:00 -Dr. Myhill's recipe for linseed-Paleo-ketogenic bread...54:00 -Why Dr. Myhill focuses on the acid-alkali balance...56:00 -And much more! Sponsors of this Episode: -. Use discount code "greenfield" to get 20% off your order. I highly recommend their Gold juice! - Get a 10% discount off your order using discount code "benflex10". - Boost your NAD levels with True Niagen. -. It's a smarter way to hire and get hired. Get started for free using my ! Resources from this episode: -Book: -Book: - - - How to make a PK bread loaf in five minutes Materials needed: Weighing scales, measuring jug, Nutribullet (or similar effective grinding machine - do not attempt to do this with a pestle and mortar – I know – I have tried and failed) Cup in which to weigh the linseed Mixing bowl Wooden spoon A 500 grams (or one pound in weight) loaf baking tin One teaspoon of sunshine salt (or sea salt) Dollop of coconut oil or lard Cooking oven that gets to at least 220 degrees Paper towels Wire rack for cooling Recipe: Take 250gms whole linseed. You could purchase in 250gm packs and that saves weighing it! Use dark or golden linseed grains - the golden grains produce a brown loaf, the dark a black one. Do not use commercially ground linseed – the grinding is not fine enough, also it will have absorbed some water already and this stops it sticking together in the recipe. If you purchase linseed in bulk then you must weigh it really accurately in order to get the proportion of water spot on! No raising agent is required. Pour half the linseed into the NutriBullet together with one rounded teaspoon of sunshine salt. Grind into a fine flour. Use the flat blade to get the finest flour. Grind until the machine starts to groan and sweat with the effort! You need a really fine flour to make a good loaf. This takes about 30 seconds. The finer you can grind the flour the better it sticks together and the better the loaf. I do this in 2 batches or the blades “hollow out” the mix so that half does not circulate and grind fully. Pour the ground flour into a mixing bowl. Repeat the above with the second half of seeds and add to mixing bowl. Whilst this is grinding, measure the water you need. Add in exactly 270ml water (not a typo – 270 it is!). Chuck it all in at once, do not dribble it in. Stir it with a wooden spoon. Keep stirring. It will thicken over the course of 30 seconds. Keep stirring until it becomes sticky and holds together in a lump. The amount of water is critical! When it comes to cooking I am a natural chucker in of ingredients and hope for the best. But in this case – you must measure! Initially, this will look as if you have added far too much water! Keep stirring. Use your fingers to scoop up a dollop of coconut oil or lard. Use this to grease the baking tin. Your hands will be covered in fat which means you can pick up your sticky dough without it sticking to your hands. Use your hands to shape the dough until it has a smooth surface. Drop it into the greased baking tin. Spend about 30 seconds doing this. Do not be tempted to knead or fold the loaf or you introduce layers of fat which stop it sticking to itself. This helps prevents the loaf cracking as it rises and cooks (although I have to say it does not matter two hoots if it does. It just looks more professional if it does not!) Let it rest for a few minutes, so it fully absorbs all the water and becomes an integral whole. Rub any excess fat into your skin where it will be absorbed. There is no need to wash your hands after – the basis for most hand creams is coconut oil or lard. (Yes, lard! It amuses me that rendered animal fat is a major export from our local knacker man to the cosmetic industry). Put loaf into the hot oven at least 220° for 60 minutes. Set a timer or you will forget! I always do! I do not think the temperature is too critical - but it must be hot enough to turn the water in the loaf into steam because this is what rises it. I cook on a wood fired stove and the oven temp is tricky to be precise with. That does not seem to matter so long as it is hot! Indeed, I like the flavour of a slightly scorched crust. Wipe out the mixing bowl with a paper towel. This cleaning method is quick and easy. The slightly greasy surface which remains will be ideal for the next loaf. The point here is that fat cannot be fermented by bacteria or yeast and does not need washing off mixing and cooking utensils. My frying pan has not been washed for over 60 years. I know this because my mother never washed it either. When the timer goes off, take It lasts a week kept like this. Freezes well too. When the timer goes off, take loaf out of oven, tip out and allow to cool on a wire rack. Once cool keep in a plastic bag in the fridge. It lasts a week kept like this. Freezes well too. Best used sliced thinly with narrow bladed serrated knife. Do you have questions, thoughts or feedback for Dr. Sarah Myhill or me? Leave your comments at http://bengreenfieldfitness.com/myhill and one of us will reply!
Amidst a thunderstorm at 4AM in Chiang Mai, Dave discusses – with excessive frankness and emotion – various medical conundrums (Fibromyalgia and CFS-ME) and details the physical feelings of “crash mode” as well as the mental strain in dealing with self de-identification and inter-personal relationships, confusion in seeking help, and various alternative treatments. No sympathy or … Continue reading Thunderstorms in the Crash Years – Postcard #75 →
Click to See Francis' Blog QuestionsWhat is your disorder? *CFS (and PCOS) Please read Frances' blog post about CFS at her blog Fancy Like That and follow all of her social media I spent close to stalker-like hours on her Pinterest page.At what age did your disorder become a daily issue? *24Who were you before your illness became debilitating? *I was a quote-unquote 'normal' twenty-something with a lot of plansWhat would you do if you were not dealing with your invisible illness? *I would probably be working hard on my career and I would spend most of my spare time painting and be decorating our new house (instead of directing my partner to do it from the sofa...)What would you like people to know about your daily life? *Although it may seem like fun and games to be permanently having a sick day, it gets boring fast... especially when you don't always even have the brain capacity to do things like binge-watch great TV shows and read books that have been on your to-read pile forever. I'm currently working on a programme with my CFS clinic to raise my energy levels and while that is working it also means I have to take 15-minute breaks every half hour, no matter what, and I think that can be difficult for people to understand too.What would make living and moving in the world easier for you? *More energy! Ha. But seriously... since diving (slash being dunked) into the world of invisible illnesses I think the biggest thing that would make a difference for me is just more understanding - by doctors and the general public - of invisible illnesses and of how to talk to the people dealing with them.Do you have any life hacks? *Join a Facebook group! I wasn't sold on going to the support group my doctor found because of the travel and general energy usage it would involve, but I've felt a lot less alone since finding so many places online where I can talk to other people who have the same issues as me and actually understand what I mean when I say I'm having a bad day etc. I'm also really into bullet journaling at the moment - it's a great creative outlet for me (although it doesn't have to be decorative to work!) and I find it so helpful to have everything laid out in ways that make sense to me.What kind of support do you get from family or friends? *I'm incredibly lucky to have a bunch of amazingly supporting friends and family and my boyfriend, who I live with. The best kind of support is when people say that they've read up on your illness or ask questions that show they're really trying to understand. Having said that, I also really value the friends I have who don't bring it up at all unless I do - sometimes you need to be taken out of the chronic illness bubble and gossip about so-and-so's latest Instagram post or whatever and forget about everything for a while.Have you ever had someone not believe you have an invisible illness because of your appearance? *Not yet... and touch wood never. I've had people say to me that I look 'better' or 'well', but in context, they generally mean in comparison to when they last saw me (usually this only happens when I bother to put makeup on and/or do something with my hair other than my now-signature pineapple bun)Has this been a positive or negative experience? *It doesn't make me feel great, but I know that they mean well - I just need to work out a way to tell them that I'd rather not hear it without being rude!How has your invisible illness affected your relationships? *I've definitely had to change the way that I think about certain relationships. I'm usually someone who takes on the 'Organiser' role in friendship groups, and I've had to tell myself to step back from that because I know that logistics and things are going to drain my energy. And in my relationship with my boyfriend, I have to work hard not to feel like we've gone from equal partners to carer and patient sometimes, especially on my worse days when he not only has to go to work while I stay home, but also comes home and does all of the cooking and cleaning, plus looks after all of our pets. And when he goes away - on holiday with his friends, or for work - if it's for more than a couple of days I have to have my parents come to stay with me or go to them because it's too much to try and keep myself and the house going on my own for too long. I think for me the key is talking about that kind of stuff with the people involved and reminding myself constantly that they're doing it because they love me and not because they think I'm incapable. With my boyfriend, we've recently started having set-aside 'date nights' in the week, which is something I always thought was a bit cheesy before, but now it's good for us as a time to really spend time as a couple.Is there anything you are afraid to tell even the people closest to you? *Sometimes I'll try to hide how bad I'm feeling - emotionally and/or physically - but I'm trying to avoid doing that... it always comes out anyway, and it's not good for me to bottle things up!Does the fact that your disease is invisible change how healthcare professionals treat you? *Yes and no. I'm in a weird place where CFS/ME is sort of 'in vogue' at the moment - there have been a few features about it on the news and radio recently in the UK, so my doctors are keen for me to understand that they understand. However, I do find it difficult sometimes to go to appointments alone, especially when my brain fog is particularly active, and I've had difficulty in the pat conveying that to doctors.What is your best coping mechanism? *Humour, usually of the gallows variety, and listening to podcasts - usually about true crime.What are you the most fearful of and hopeful for in the future? *I'm hopeful that I'll find a way to manage my symptoms and that I can turn this whole period of my life into something positive and productive. I'm fearful of having a relapse into worse symptoms, and of my loved ones getting bored of my limitations.What is your favorite swear word?Fuck (ideally followed by 'you', 'it', or 'off')Is there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.I'd love you to push my blog if possible!! I'm planning a series of CFS-related posts alongside my usual blatherWhat is the hardest and/or best lesson your condition has taught you?It's made me very aware of my privileges when it comes to healthcare and having a support network, and spending so much time stuck in my own head has also made me get to know myself a lot better, too!What is the best purchase under $100 that helped your lifeMy Netflix subscription, a decent firm pillow, and bed socksA List Of Our Favorite Shows To StreamCrazy Ex-GirlfriendEscape To The CountryDr. WhoLark Rise To CandlefordFixer UpperJonathon CreekOther ReccomendationsGlowforgeFacebook Support GroupsInstagramPinterestFlareDown Join The Spoonies & Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! See acast.com/privacy for privacy and opt-out information.
Methylation Support @The Center for Bio-Individualized Medicine
Thinking about LDN (low dose naltrexone)? Want to know more? This podcast is for you! On Monday, April 18, 2016 Dr. Jess Armine has the great pleasure, once again, to interview the creator of the LDN Research Trust, Linda Elsegood! Diagnosed with Relapsing/Remitting MS in August 2000 at the age of 44, Linda was told that she had Secondary Progressive and there was nothing anyone could do to help. She decided to take matters into her own hands, and started LDN in December 2003. LDN helped her with fatigue, restless legs, bladder, bowel, burning legs, leg strength, tingling in feet, sleeping and 'fog in the head'. She now has a better quality of life and hope for the future. As a result of her amazing improvement, this indefatigueable and loving individual created the LDN Research Trust which disseminates information about LDN throughout the world and empowers people to speak with their doctors about LDN and empowers healthcare providers with information about this vital substance. She takes no money whatsoever. (www.ldnresearchtrust.org) In this prerecorded interview (she is in UK), Linda will update us on all the research concerning low-dose naltrexone (LDN) including the benefit of LDN in cases of autoimmune diseases, posttraumatic stress disorder, Crohn's disease, MS, autism, autism spectrum disorders, chronic fatigue, CFS/ME and cancer. She will introduce the new book about LDN that is presently available on Amazon worldwide (search for "The LDN Book"). Join us and learn from this facinating and dynamic woman! See you then! Dr. Jess.
A second lecture on the people coping with the disease and the stigma of Chronic Fatigue Syndrome: http://www.gresham.ac.uk/lectures-and-events/standing-up-for-fatigueThis second lecture on ME/CFS complements the lecture of 5 May 2015, providing an overview of new and exciting research developments into the complex, long-term chronic illness. The lecture will give insight into our understanding of fatigue and the implications for one of the many symptoms experienced by people with CFS/ME.The transcript and downloadable versions of the lecture are available from the Gresham College website: http://www.gresham.ac.uk/lectures-and-events/standing-up-for-fatigueGresham College has been giving free public lectures since 1597. This tradition continues today with all of our five or so public lectures a week being made available for free download from our website. There are currently over 1,800 lectures free to access or download from the website.Website: http://www.gresham.ac.ukTwitter: http://twitter.com/GreshamCollegeFacebook: https://www.facebook.com/greshamcollege
Hosts: Vincent Racaniello, Dickson Despommier, Alan Dove, Rich Condit, and Kathy Spindler The TWiV team reviews identification of immune biomarkers in CFS/ME patients, and how a cell nuclease controls the innate immune response to vaccinia virus infection. Links for this episode Immune signatures in ME/CFS (Science Adv) 11:15 Systemic exertion intolerance disease (Lancet) 19:50 Cell nuclease controls anti-viral responses (Cell Host Micr) 25:10 Poxvirus decapping enzymes prevent innate responses (Cell Host Micr) 1:15:40 Caps off to poxviruses (Cell Host Micr) Drummer Mohr (YouTube) 1:24:05 Bornavirus in squirrel breeders (ProMedMail) 1:28:45 Principles of Microbial Diversity 5:30 Journal of Microbiology & Biology Education 1:24:25 Cross-stitch by Anne Marie 1:34:40 Letters read on TWiV 329 1:25:00 Timestamps by Jennifer. Thank you! Weekly Science Picks 1:35:10 Alan - NASA Solar Dynamics Observatory videoRich - Mutagenic chain reaction (Video: Genome editing with CRISPR)Kathy - Science Ambassadors ProgramDickson - Street ArtVincent - End Polio Now Listener Pick of the Week Ross - Three PhD Comics on Nature vs Science (one, two, three)Ricardo - Demographic Party Trick Send your virology questions and comments (email or mp3 file) to twiv@twiv.tv
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Have you been diagnosed with MCS, CFS/ME, Mold/Biotoxin Illness, POTS, OI, GWI, Fibromyalgia, Neuroimmune and autoimmune diseases? Does your pulse race when you change position? Do you have funny feelings that no one can explain? Do You Have a "Hidden Illness" and Now Things Are WORSE? What do they all have in common?....DYSAUTONOMIA!! On Monday, May 12th at 8PM Eastern, Dr Armine explains this condition. Like much of what we have talked about over the months....Dysautonomia comes in many shapes and forms...like a thief in the night to steal you life! Its uses name like POTS, OI, MCS, etc. What is needed and necessary to defeat this thief? A simple attitude.....as was stated in the movie, "Network". Repeat After Me: I'm Mad As Hell and I'm Not Gonna Take it Anymore!!!!! I am not going to listen to the naysayers! I am not going to believe in physicians who are taught by Big Pharma NOT to heal me. Even friends who just think I am making it up! Be Mad as Hell and become EMPOWERED with proper information! Yes, I AM angry because there are so many suffering who could be helped but for lack accurate information. Sooooo....In Honor of International Awareness Day (Lyme disease and MCS, CFS/ME, GWI, Mold/Biotoxin Illness, Fibro, Neuroimmune and Autoimmune diseases...Let's Get Mad As Hell!
On this ANZAC day in Australia I sit and reflect on the sacrifices so many people have made in the name of war. I salute the veterans throughout the world, especially those close to my heart. But it also makes me reflective of the silent war people with CFS and pain fight daily. My own… The post CFS / ME & Pain: The Silent War on an Internal Battlefield appeared first on The Get Up And Go Guru.
Oh, the irony!! For over 20 years I have battled the invisible nature of CFS and wished that there was some visible sign of how sick I really was at times. But now, after shaving my head for the Leukaemia Foundation's World's Greatest Shave three weeks ago, suddenly people ARE looking at me as if… The post But You Don’t Look Sick … Oh, Now You Do!! The Ironies of CFS / ME appeared first on The Get Up And Go Guru.
One of the things that can be most disempowering for people living with Chronic Fatigue Syndrome and other chronic illnesses is the lack of an income – or a significant reduction in income – due their health condition. I certainly know it has been for me. Not only does our potential to earn an income… The post Passive Income & CFS / ME – Can You Have Both? appeared first on The Get Up And Go Guru.
I am not a victim of CFS. In the early days I was, but for some time now I have relinquished my victim status. I refuse to be a victim of anything in life, especially an illness. I feel very passionately about refusing to be a victim of my life circumstances. It might appear to… The post Refuse To Be A Victim of CFS / ME appeared first on The Get Up And Go Guru.
I'm sure you all have days like I've had today. Those days when it all just seems too hard. The pain, the fatigue, the digestive and bowel problems (yep, those bits nobody wants to hear about!). It all just seems never-ending at times, and sometimes even makes you want to give up completely. Luckily today… The post When It All Seems Too Hard – The Tough Days of CFS / ME & Electrosensitivity Pain appeared first on The Get Up And Go Guru.