Podcasts about caregivers

Donna Butts joins host Ron Aaron and co-host Carol Zernial to talk about grandfamilies and kinship caregivers on this edition of Caregiver SOS.

Joann returns with her daughter, Erika, to provide her perspective on why she does not want her grandfather to attend her graduation ceremony. The discussion focuses on Erika's feelings, personal concerns, and the family dynamics influencing her decision. Call 1-800-DR-LAURA / 1-800-375-2872 or make an appointment at DrLaura.com Follow me on social media: Facebook.com/DrLaura Instagram.com/DrLauraProgram YouTube.com/DrLaura Join My Family!! Receive my Weekly Newsletter + 20% off my Marriage 101 course & 25% off Merch! Sign up now, it's FREE! Each week you'll get new articles, featured emails from listeners, special event invitations, early access to my Dr. Laura Designs Store benefiting Children of Fallen Patriots, and MORE! Sign up at DrLaura.com Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Portable Neuromodulation Stimulator (PoNS) is a type of electrical stimulation that can theoretically increase rewiring in the brain (neuroplasticity).  Small trials suggest that it can improve walking in MS but thus far there are no data in people living with ALS.  Here we further discuss the mechanism, studies in other conditions, and potential risks.

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In the late 1980s, a child exposed to fallout from the Chernobyl disaster lay in a hospital bed while doctors told his family there were no clear answers and no reliable path forward. Decades later, that same child, Yan Leyfman, walks into exam rooms as a hematology oncology fellow, expected to deliver clarity inside a system that still runs on delay, uncertainty, and institutional self preservation.This episode traces the throughline from early life shaped by radiation exposure and hospice level uncertainty to a career inside academic medicine, translational research, and oncology media. Yan built his identity around survival and usefulness, moving from patient to physician while carrying the memory of what it feels like to sit on the other side of the table. He helped launch MedNews Week during the COVID crisis to push back on misinformation and expand access to medical knowledge, stepping into a public role while still in training.The conversation stays grounded in the friction between personal narrative and system reality. Clinical training demands efficiency, hierarchy, and emotional distance. Cancer care demands time, clarity, and human connection. Those forces collide in real patient encounters where prior authorization delays, insurance barriers, and fragmented care pathways shape outcomes as much as any treatment protocol.Yan speaks openly about mentorship, belonging, and the drive to make meaning out of survival. The discussion pushes further into what the healthcare system actually rewards, what it quietly strips away, and how quickly empathy can erode under institutional pressure. The episode also examines the role of medical media, where education, industry influence, and narrative control often blur together.This is a conversation about identity under construction, about what happens when someone who remembers powerlessness steps into a role that carries authority, and about whether that memory can survive long enough to change anything.RELATED LINKSYan Leyfman on LinkedInYan Leyfman on InstagramSurviving ChernobylFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

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In this episode, Candice sits down with Wes Michael, founder of Rare Patient Voice, an organization dedicated to amplifying the voices of patients and caregivers through healthcare research. Wes shares how his background in market research led him to create a platform that connects people living with rare and non-rare conditions to surveys, interviews, and clinical research opportunities that help shape the future of healthcare.    In this episode, they discuss: How Wes transformed an idea into Rare Patient Voice and grew it into a global organization Why patient and caregiver perspectives are essential to healthcare research The role patient feedback plays in improving treatments and quality of life Common misconceptions about participating in research studies and clinical trials How patients and caregivers can get involved and be compensated for sharing their experiences The importance of raising awareness about rare diseases and chronic health conditions Wes's vision for a future where research leads to better outcomes and cures for more diseases   Every story matters. When patients and caregivers share their experiences, they help create possibilities for better treatments, stronger support systems, and a healthier future for everyone!   About Wes: Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opinions by taking part in all types of research studies. Rare Patient Voice has now recruited for thousands of studies and rewarded patients and family caregivers with over $15 million for their participation. Many have been recruited in person by Wes and his team at patient events and through a robust referral program with patient advocacy and support groups. Rare Patient Voice now covers over 1,500 rare and non-rare diseases and conditions and has expanded from the United States to Canada, the United Kingdom, France, Germany, Italy, Spain, Australia, and New Zealand. Before launching Rare Patient Voice, Wes worked for healthcare market research firm Kantar Health. He previously was a brand manager and market research manager at McCormick (the spice company) and General Mills (working on Wheaties, Total, and Kix cereals). He has a BA from the University of Pennsylvania (with a year at Edinburgh University) and an MBA from the University of Chicago. Wes lives outside Baltimore, Maryland, with his wife, Cathy, children Julia and Cliff, grandson Taylor, and dog Stanley. https://rarepatientvoice.comhttps://www.linkedin.com/in/wesmichael/https://www.instagram.com/rarepatientvoicehttps://www.facebook.com/rarepatientvoice ----- Connect with Candice Snyder! Website: https://www.podpage.com/passion-purpose-and-possibilities-1/ Facebook: https://www.facebook.com/candicebsnyder?_rdr Passion, Purpose, and Possibilities Community Group: https://www.facebook.com/groups/passionpurposeandpossibilitiescommunity/ Instagram: https://www.instagram.com/passionpurposepossibilities/ LinkedIn: https://www.linkedin.com/in/candicesnyder/ Shop For A Cause With Gifts That Give Back to Nonprofits: https://thekindnesscause.com/ Go to FusionaryFormulas.com and use code PASSION at checkout for 15% off your first order.  Fall In Love With Artists And Experience Joy And Calm: https://www.youtube.com/@movenartrelaxation

If you could save your loved one from their serious illness, you would do that. Of course you would.You love them and you want the best for them, whether they're battling cancer, Alzheimer's disease, ALS, age-related decline, or another advanced illness. You want to be the best caregiver you can be, and I'll bet you're exhausted.Yet you may be spending your precious energy trying to fix the unfixable, rather than focusing on being wholeheartedly present with your loved one.This episode of The Integrative Palliative Podcast tackles how to show up as the best caregiver you can be and how to figure out what is yours to take on and what is not.I'm glad you're here.Dr. Deliawww.doctordelia.comCoping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself is available here: www.copingcourageously.com  Please review this podcast wherever you listen and forward your favorite episode to a friend! And be sure to subscribe!Sign up to stay connected and learn about upcoming programs:https://trainings.integrativepalliative.com/IPI-stay-in-touchI'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

How untreated strep throat sent Ron into a coma the first time — in 2015What vasopressors are, why they saved his life, and why they cost What do you do when the love of your life is fighting for his life — and four kids are at home counting on you to hold everything together?Victoria Rosas is a former Dallas attorney, mom of four in a beautifully blended family, and one of the most quietly extraordinary women we've ever sat across from at the Moms Club.In 2022, her husband Ron — a former professional tennis player who competed for Notre Dame, played the pro tour, and coached their kids on the court — woke up feeling off. Within 24 hours, he was intubated. Within days, the medication saving his life was slowly taking something else: blood flow to all four of his limbs.Victoria was told multiple times he wasn't going to survive.He did. But what came next — nine surgeries, 70 hours in the operating room, nine weeks in Ohio, and coming home to a kindergartner and three kids on the verge of launching — is a story about what strength actually looks like when it has no other choice.

Episode Notes In episode 429 of Disability After Dark, host Andrew sits down with Arleth Lugo Ruiz (she/her) to discuss the realities of living with schizoaffective disorder, navigating the systemic flaws of disability benefits, and the gatekeeping present in modern academia. Arleth shares her journey of reclaiming the word "schizo," the unseen side effects of vital psychiatric medications, and the harsh "marriage penalty" enforced by the Ontario Disability Support Program (ODSP) + so much more. Enjoy! Episode Sponsors  Buy the new novella Descent here Are you looking for attendant care when you need it at your convenience? Check out your team, on tap www.whimble.ca Get 15% off your next purchase of sex toys, books and DVDs by using Coupon code AFTERDARK at checkout when you shop at trans owned and operated sex shop Come As You Are www.comeasyouare.com Order Notes From a Queer Cripple and hire him to speak on it by e-mailing andrew@andrewgurza.com US: https://us.jkp.com/products/notes-from-a-queer-cripple Canada: https://www.ubcpress.ca/notes-from-a-queer-cripple Support the show with a donation: https://patreon.com/disabilityafterdark This podcast is powered by Pinecast.

Francisco nos comparte una nueva crónica desde su rancho en México, en esta ocasión sobre los nuevos patrones de lluvia en México.

Photo by Sergiu Vălenaș on Unsplash Wars and other life circumstances can result in children being orphaned and neglected. Around the world, including in our own community, grandparents are becoming caregivers for their grandchildren, but often with little support. Someone who has been studying this issue is Dr. Schola Matovu, a gerontological nurse scientist, Assistant Professor and Director of Global Learning and Engagement at the University of Utah College of Nursing, where she also serves as the Principal Investigator for the Matovu Research Lab. She is a Fellow in the Betty Irene Moore Fellowship for Nurse Leaders and Innovators. HealthCetera host Diana J. Mason, PhD, RN, talked with Dr. Matovu about her work on grandparents as caregivers for their grandchildren. This interview first aired on HealthCetera in the Catskills on WIOX Radio on April 29, 2026. The post Grandparents Becoming Caregivers appeared first on HealthCetera.

  When does caregiving really end? In this powerful conversation, Peter Rosenberger welcomes Emmy Award-winning journalist and actress Malena Cunningham to discuss her extraordinary journey as a family caregiver. Click to order this book! After losing her sister, Malena became the primary caregiver for her aging mother. Then, while caring for her mother through kidney failure and dialysis, her husband suffered a devastating stroke. Suddenly, she found herself caring for two loved ones at the same time while trying to hold her own life together. Together, Peter and Malena explore: The emotional toll of caregiving How grief changes us Learning to let go when a loved one is ready to die The loneliness caregivers often carry Faith during crisis and uncertainty Life after caregiving ends Finding purpose after profound loss Malena shares the deeply personal story behind her book, When Love Lets Go: A Daughter's Faith Journey and Her Mother's Final Days, and reflects on what it means to move forward after losing both her mother and husband within months of each other. If you've ever cared for a loved one, faced difficult medical decisions, wrestled with grief, or wondered who you are after caregiving ends, this conversation offers wisdom, encouragement, and hope. Healthy caregivers make better caregivers. #Caregiving #FamilyCaregiver #Grief #Faith #EndOfLifeCare #CaregiverSupport #HopeForTheCaregiver #PeterRosenberger #MalenaCunningham #CaregiverBurnout #AgingParents #DementiaCare #ChronicIllness #ChristianPodcast #LossAndHope

This week Spider brings you music from Black Sabbath, Pantera, W.A.S.P., and so much more. Plus an extra helping of AC/DC. Classic Metal Shop t-shirts are available at Champion Sports in Downtown Northfield.

Lots of season wrap ups for spring sports. Northfield will be well represented in the the State tournaments this year. Grant Selchow recaps the week in sports with the Raider Scoreboard. Coach Jesse Schmidt of the Northfield Swim Club along with TYR Futures Championship qualifier, Jim Graham joins the program. This open class event is […]

David never expected his marriage to shift from partnership to full-time caregiving. As his wife's health problems grow, he's feeling emotionally exhausted, overwhelmed, and unsure how to balance love, responsibility, and his own needs.  Call 1-800-DR-LAURA / 1-800-375-2872 or make an appointment at DrLaura.com Follow me on social media: Facebook.com/DrLaura Instagram.com/DrLauraProgram YouTube.com/DrLaura Join My Family!! Receive my Weekly Newsletter + 20% off my Marriage 101 course & 25% off Merch! Sign up now, it's FREE! Each week you'll get new articles, featured emails from listeners, special event invitations, early access to my Dr. Laura Designs Store benefiting Children of Fallen Patriots, and MORE! Sign up at DrLaura.com Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, I sat down with Camille Joy, founder of the Moments of Joy Podcast and author of Moments of Joy: 90 Days of Encouragement, published by Penguin Random House. Camille is a trafficking survivor who escaped an abusive situation at 21, became a high school dropout turned executive chef, and fought her way into a six-figure salary by going directly to the CEO. When her youngest son Mason was diagnosed with autism, everything shifted again, and a raw, tear-filled video she recorded in her car after a difficult doctor visit went viral with over six million views in 2022.Today Camille runs two businesses: Moments of Joy, her for-profit media brand built on brand deals, speaking, and her book, and Awesomely Different, her nonprofit that provides swimming lesson grants for children with autism. She also shares how she and her filmmaker husband manage it all without a village, and what it really took to land Holly Robinson Peete as a podcast guest after five attempts over several years.Main TakeawaysYour test is your testimony: Camille's openness about trafficking, autism, and grief is what built her audience and her business.Tackle the shame first: Before you can turn your story into impact, you have to get comfortable sharing what you have been through.Serve before you ask: Camille landed Holly Robinson Peete as a guest by consistently showing up in her community, buying her book, attending her events, and reaching out five times before getting a yes.Caregiving and entrepreneurship can coexist: Camille and her husband run two businesses while raising Mason by communicating constantly, sharing schedules, and giving each other permission to pursue their goals.Highlights Include00:46 - Camille shares what life looked like before the Moments of Joy Podcast existed01:45 - Mason's birth story and three heart surgeries in 18 months02:42 - Receiving Mason's autism diagnosis and how it changed everything04:40 - Camille reveals she is a trafficking survivor and how she escaped at 2106:06 - How a stranger saying her name out loud was the sign she needed to go to culinary school09:14 - Fighting for the executive chef title at ConAir Corporation by CC'ing the CEO11:13 - Going to the CEO directly to demand her six-figure salary and getting it on the spot23:22 - The viral reel that changed everything: 6 to 7 million views after a tearful moment in the car27:06 - Launching Awesomely Different, her nonprofit that teaches children with autism to swim31:52 - Signing with Penguin Random House and the reality of first-round edits38:45 - How Camille and her husband manage two businesses and Mason's care without a traditional village46:01 - Why tackling shame is the first step to turning your test into a testimony52:03 - The strategy behind landing Holly Robinson Peete and why she reached out five times56:17 - Lightning round: resources, role models, daily non-negotiables, and parting adviceLinks Mentioned in This EpisodePodcorn (early podcast sponsorship platform): https://podcorn.comMoments of Joy Podcast: https://www.mojpodcast.com/ Watch & ListenSide Hustle Pro Podcast on Spotify: https://open.spotify.com/show/13qDj08lBR4ymzGhXIKy8tSide Hustle Pro Podcast on Apple Podcasts: https://podcasts.apple.com/us/podcast/side-hustle-pro/id1126021323Social MediaInstagram: @momentsofjoypodcastTikTok: @momentsofjoypodcast Hosted on Acast. See acast.com/privacy for more information.

Matthew Zachary is a brain cancer survivor, healthcare advocate, founder of Stupid Cancer and We the Patients, and host of Out of Patients. In April 2026, he returned to the stage at Merkin Hall near Lincoln Center for his first solo public piano concert in almost 22 years while launching his debut book, We the Patients: Understanding, Navigating, and Surviving America's Healthcare Nightmare.What unfolded became far larger than a concert.Over 2 hours, survivors, clinicians, advocates, nonprofit founders, journalists, pharmaceutical sponsors, and healthcare insiders gathered in one room to reflect on 30 years of survivorship, institutional failure, accidental advocacy, and the emotional afterlife of cancer. The evening moved through original piano performances, live chapter readings, and deeply personal conversations about infertility, disability, financial toxicity, insurance denials, grief, burnout, and what happens when patients spend decades navigating systems designed around transactions instead of continuity.Guests including Wendell Potter, Maimah Karmo, Craig Lustig, Shelly Fuld Nasso, Tamika Felder, and others reflected on how the modern cancer advocacy movement emerged largely because patients built parallel systems where healthcare infrastructure failed to meet human needs. The conversation explored how prior authorization, reimbursement incentives, administrative fragmentation, and institutional distrust continue shaping the patient experience across oncology and survivorship.The performance also marked a deeply personal milestone. After brain cancer compromised his left hand at age 21, Zachary spent 6 months rehabilitating both hands to return to public performance for the first time in over 2 decades. The result became part concert, part civic gathering, and part historical record of a generation of survivors who refused to disappear quietly.RELATED LINKSMZLIVE Official WebsiteMZLIVE YouTube VideoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

How do we make the experience of reality and what does it mean to remap during attachment repair? Enrollment Now Open!Meditation x Attachment™Level Two | Attachment HealingNext Cohort Begins June 3, 2026https://www.mettagroup.org/meditation-x-attachment-level-twoA 6-month meditation-based virtual group and 1.1 mentorship program designed to usher you into living a more meaningful life.

What happens when the healthcare professional becomes the parent sitting on the other side of the diagnosis? In this episode, Katie Taylor sits down with Melissa Apa—a clinical pharmacist, diabetes educator, and mom—to share her family's journey navigating both celiac disease and type 1 diabetes with her young son. Melissa opens up about the emotional overwhelm of receiving life-changing diagnoses, even with years of medical expertise behind her, and how her family learned to adapt, advocate, and find stability in the chaos. From replacing every pot and pan in her kitchen overnight to teaching her six-year-old how to manage his insulin pump, Melissa shares the realities of parenting a child with chronic illness while balancing work, marriage, caregiving, and the emotional toll of always being "on." Together, Katie and Melissa explore the invisible mental load medical parents carry, the importance of empowering kids to advocate for themselves, and why support systems matter just as much as medical education. This conversation is honest, practical, and deeply hopeful for any parent navigating a chronic diagnosis with their child. What You'll Hear in This Episode: The unexpected appointment that changed everything with a celiac diagnosis Why Melissa says her entire career prepared her to care for her son The emotional impact of becoming both a healthcare provider and a medical mom How type 1 diabetes and celiac disease are often connected The pressure parents feel around "good" and "bad" numbers in diabetes care Why medical parents need systems, routines, and "go bags" to survive daily life Teaching children to advocate for themselves in school and healthcare settings The realities of never fully stepping away from caregiving responsibilities How Melissa and her husband creatively protect their relationship and mental health Why diabetes management can become more manageable with support and practice Key Takeaways: Chronic illness management is emotional—not just medical Blood sugar numbers are data, not moral judgments Kids are capable of learning and advocating for themselves earlier than we think Systems and routines can reduce overwhelm for families Caregivers deserve support, too The beginning of a diagnosis journey is often the hardest part—but it won't always feel this overwhelming About Our Guest: Melissa Apa is a clinical pharmacist, diabetes educator, podcast host, and mom of two from Buffalo, New York. After diagnosing her son with type 1 diabetes and navigating celiac disease as a family, Melissa shifted her focus toward helping families manage chronic illness with more confidence, support, and sustainable systems. Through coaching, education, and advocacy, she helps parents move from survival mode to feeling empowered in everyday life. Resources & Links: Connect with Melissa on Instagram: @melissaapa_ Listen to her podcast: Insulin Inspired Learn more about Melissa's coaching and resources on her website Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources!   Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords: type 1 diabetes, celiac disease, parenting a child with diabetes, diabetes mom, medical parenting, chronic illness parenting, pediatric diabetes, celiac diagnosis, type 1 diabetes support, caregiver mental health, diabetes advocacy, medical mom podcast, child chronic illness support, parenting through diagnosis  

In this episode of Motherish, we're talking about what it's been like visiting Walt Disney World with our 6 and 7 year olds and how the experience has shifted from full-time caregiving to true co-adventuring. From seeing them take in the magic more deeply to watching their personalities shine through every ride and character interaction, this stage feels different in the best way. We're also sharing practical Disney tips, ways to save money, perks worth knowing about and the small moments that ended up becoming our favorite memories. A little heartfelt, a little helpful and full of Disney magic.

CONNECT WITH CHARLENE On Instagram @mscharlenebyars ([https://www.instagram.com/mscharlenebyars] On YouTube @chosentraining ([https://www.youtube.com/@lovestorieswithcharlenebyars](https://www.youtube.com/@lovestorieswithcharlenebyars)) Work with me HERE ([https://charlenebyars.com/](https://charlenebyars.com/)) CONNECT WITH DR. RACHEL GREENBERG On Instagram @heydrrachel ([https://www.instagram.com/heydrrachel] Website ([https://theworkwithdrrachel.com](https://theworkwithdrrachel.com)) In this deeply healing episode, licensed clinical psychologist Dr. Rachel Greenberg joins Charlene Byars to unpack why so many women keep repeating painful relationship patterns — even when they know better. From anxious attachment and hyper-independence to nervous system conditioning and childhood trauma, Dr. Rachel explains how our early experiences shape the love we accept, the partners we choose, and why healthy relationships can sometimes feel “boring” after chaos. Together, Charlene and Dr. Rachel dive into the psychology behind toxic attraction, emotional healing, feminine energy, self-abandonment, and how women can finally feel safe, secure, and deeply loved in relationships. If you've ever wondered why you keep attracting emotionally unavailable partners, struggle to soften in relationships, or feel stuck in unhealthy dating cycles… this episode is for you. We cover in this episode: 0:00 — Intro & teaser clips 1:18 — Charlene introduces Dr. Rachel Greenberg 3:10 — How Dr. Rachel got into relationship psychology 5:12 — Losing her father & childhood trauma 8:04 — How family dysfunction shapes adult relationships 11:20 — Why most people never learn healthy relationship skills 15:10 — Grace for our parents & inherited trauma 18:42 — Why healing relationships isn't “easy” work 22:08 — Charlene's transformation journey after divorce 25:14 — How relationship patterns actually form 28:33 — Overgiving, people-pleasing & self-abandonment 31:07 — Why women repeat unhealthy relationship cycles 34:12 — Familiar chaos vs. healthy love 37:20 — Why healthy relationships can feel “boring” 40:55 — Hypervigilance, anxiety & nervous system addiction 44:18 — Learning how to feel safe in love 47:10 — How women can start healing relationship trauma 50:22 — “Get your team together” healing advice 53:40 — Meditation, nervous system work & emotional regulation 57:12 — Why women focus on fixing men instead of themselves 1:00:18 — Caregiver patterns & savior complex explained 1:03:10 — Why women stay in unhealthy relationships 1:06:05 — Radical honesty, boundaries & self-worth 1:09:00 — Final thoughts on love, healing & feminine energy If this episode resonated with you, don't forget to LIKE, SUBSCRIBE, and SHARE it with someone who needs this conversation. Cheers to great love. ❤️

In this episode of Aging Starts Now, attorney and certified elder law attorney Barbara McGinnis sits down with author Charles Wallace to discuss the realities of caregiving and the deeply personal journey that inspired his book, The Caregiver's Game.

In this episode of Marrow Masters, Peggy Burkhard talks with caregiver Ashlee Cramer about what caregiving really looks like during cancer, bone marrow transplant, and survivorship. Ashlee shares the story of her son Michael, who was diagnosed in 2020 with hepatosplenic T-cell lymphoma. Their family had already lived through cancer once before, when Ashlee's husband Patrice was diagnosed with large B-cell lymphoma in 2014 and later died at home in hospice, surrounded by his family. Ashlee explains that caregiving is often misunderstood. Caregivers are not saints who always feel strong, positive, or ready. Many are scared, exhausted, grieving, and trying to manage jobs, children, finances, appointments, medications, and the emotional weight of watching someone they love suffer. She says caregivers often feel pressure to do everything alone, but that pressure can lead to burnout and isolation. The conversation focuses on the reality that caregiving is not always temporary or predictable. For Michael, treatment moved quickly from diagnosis to hospitalization to transplant. He received a stem cell transplant from an anonymous donor, went into remission, and then developed serious complications, including engraftment syndrome, acute graft versus host disease (GVHD) , and chronic GVHD. Ashlee says Michael is a miracle, and while GVHD remains part of his life, the key word is living. Ashlee also talks about mental health for caregivers. She names anxiety, depression, post-traumatic stress disorder (PTSD), burnout, and loneliness as common experiences. She points out that many cancer centers offer support for patients, but caregivers often have to search for help on their own. Support groups, virtual programs, and caregiver resources can make a major difference because connection helps people feel less alone. A central message of the episode is that caregivers need care too. Ashlee encourages caregivers to take small pockets of peace when they cannot take a full day away. A shower, a breathwork practice, a walk outside, a cup of coffee, or a short hug from another caregiver can help. She also reminds caregivers to accept help. A meal train, a friend waiting in the hospital lobby, or someone offering a few minutes of support can ease the load. The episode ends with hope. Ashlee talks about post-traumatic growth, or PTG, and the idea that people do not have to bounce back to who they were before trauma. They can bounce forward. Michael and Ashlee continue to advocate, share their story through their podcast Michael and Mom Talk Cancer, and remind other caregivers that they are not alone. Thanks to this season's sponsors, Incyte and Sanofi. (00:00 Intro (04:05) Misconceptions about caregiving and why caregivers are not saints (05:30) Why caregivers should not be expected to do everything alone (07:00) The pressure to “stay strong” and how it can isolate caregivers (09:49) The reality of caregiving and how much it affects mental health (12:03) Work, family, sacrifice, and the myth of balance (16:40) Caregiver anxiety, depression, PTSD, burnout, and the need for support (20:40) Finding small “pockets of peace” when a full break is impossible (23:10) What Ashlee wishes she knew earlier about speaking up and asking questions (24:59) Why accepting help matters and how a meal train supported her family (34:09) Post-traumatic growth and the idea of bouncing forward instead of bouncing back National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode of Marrow Masters, we speak with Stephanie Chuang, founder and chief storyteller of The Patient Story. Stephanie shares how her life changed at 31, just two months before her wedding, when she was diagnosed with lymphoma. At the time, she was working as a TV news reporter in San Francisco and had been explaining away symptoms like fatigue, bloating, and a strange cough. A same day doctor's visit led to blood work, an x-ray, an emergency CT scan, and then the call that confirmed lymphoma. Stephanie talks about the shock of diagnosis and the fear that followed. She also shares how much it mattered to have people around her who understood how to navigate the health care system. A family friend who was a doctor helped her get into care quickly, showed her what steps to take, and became a human compass during a frightening time. That experience stayed with her. It helped shape the reason she later created The Patient Story, so others would not have to feel so alone after diagnosis. The conversation then moves into survivorship and the emotional whiplash that can happen when treatment ends. Stephanie explains that hearing “no evidence of disease” was a huge relief, but it did not mean life went back to normal. She felt grateful, but she also felt lost. Her identity as a journalist, fiancé, daughter, sister, and busy person had been shaken. She could not simply return to the same pace or the same version of herself. Stephanie also talks about scanxiety and the surveillance cycle. She describes how difficult it can be to move from frequent monitoring to longer gaps between appointments. Graduating from three month checks to six month checks can feel like progress, but it can also feel scary. She explains that giving herself permission to feel anxious, without adding shame, helped her cope. We also talk about the phrase “the new normal” and the late effects that can follow intense treatment. Stephanie shares that survivorship requires more support than many people realize, especially when patients move from oncology care back to primary care. She emphasizes the importance of meeting people where they are, validating their fears, and helping them feel less alone. The episode closes with Stephanie's message to newly diagnosed patients: you are not alone, your questions matter, and you deserve to speak up in the doctor's office. The Patient Story exists to share honest, hopeful stories that help people find connection, information, and courage. Links: The Patient Story: https://thepatientstory.com/ Bag It Cancer: https://bagitcancer.org/ Escape to THRIVE: https://escape4advocates.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Intro (01:34) Stephanie begins her cancer story (06:01) Navigating the medical system with help from a doctor friend (07:16) Hospital testing, biopsy, and the idea behind The Patient Story (08:35) Moving into survivorship (10:14) Identity, work, and life after cancer (13:03) Scanxiety and the surveillance cycle (16:31) Survivor guilt and transitioning back to primary care (17:47) Identity loss after leaving a news career (23:21) The phrase “the new normal” (26:36) Meeting people where they are in survivorship (28:16) The power of patient storytelling (28:41) Caregivers, care partners, and family support (30:20) Advice for newly diagnosed patients National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Today, Peggy talks with Daniel Gaylor, LCSW, OSW-C, ACHP-SW, and a social work supervisor at Moffitt Cancer Center, about what happens after patients and caregivers get through the intense treatment period and begin asking, “Now what?” Daniel explains that recovery does not mean life snaps back to normal. Survivorship brings fear, relief, hope, uncertainty, and exhaustion all at once. Those reactions are normal, and they deserve to be named. Daniel explains why post-traumatic stress disorder (PTSD) can show up after transplant. A transplant is not a routine treatment. It can involve long hospital stays, isolation, major physical side effects, and real fears about survival. When patients return for follow up visits, they may be brought back emotionally to those difficult hospital days. This can make survivorship feel complicated, even when the transplant was successful. Another key theme is slowly letting go. Patients may feel afraid to go out, socialize, eat in a restaurant, drive, or return to activities they once enjoyed. Daniel encourages survivors to start small and to be fair to the situation. It is easy to imagine the worst case. But it also helps to keep yourself honest - say out loud what could happen if things go well. The episode also addresses the “strain of worry.” Daniel describes signs of anxiety and depression, including sleep problems, racing thoughts, trouble concentrating, irritability, sadness, appetite changes, and not wanting to do things that usually bring joy. He reminds listeners that difficult days do not mean failure. Survivors should be able to say, “Today is not my best day,” and ask for help. Peggy and Daniel also talk about toxic positivity. While loved ones often mean well, phrases like “you're lucky to be alive” can minimize a survivor's fear or pain. Daniel encourages honest communication. Patients can thank loved ones for their support while also explaining what would help more. Social connection is another major part of healing. Daniel urges survivors and caregivers to increase connection and reduce isolation. A quick text, a short call, a support group, or a shared conversation can make a real difference. Peggy highlights programs where survivors can meet others who understand graft versus host disease (GVHD) and transplant recovery. Daniel closes with the idea of building a “tool belt.” Each person needs practical coping tools, whether that is a friend, music, journaling, counseling, mindfulness, a book, or a favorite place to reset. Caregivers need their own tool belts too. Transplant affects the whole support system, and survivorship works best when people communicate, ask for help, and remember they are not meant to do this alone. Links: Elephants and Tea: https://elephantsandtea.org/ BMT InfoNet: https://bmtinfonet.org/ Blood Cancer United: https://bloodcancerunited.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Intro (01:01) Normalizing emotional reactions during recovery (04:22) PTSD after transplant and why it matters (08:59) Slowly letting go after transplant (13:12) Facing the worst case and choosing to move forward (13:53) The strain of worry and mental health red flags (19:31) Toxic positivity and the power of validation (20:26) How to talk with loved ones who are trying to help (22:39) Social health, connection, and friendship (26:43) Support groups, GVHD, and feeling understood (28:07) Building a survivorship "tool belt" (33:08) Why transplant never fully “stops” (36:39) A patient story about resilience and asking for help National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, we talk with Christy Donovan, DNP, RN, a Blood Cancer Coordinator at the the Blood and Marrow Transplant/ Leukemia Program at Northside Hospital Cancer Institute, about what survivorship really looks like after a stem cell transplant. The central message is that survivorship is not a finish line. It is a transition into a new normal. Many patients expect life to return to the way it was before diagnosis or transplant, but recovery usually feels slower, messier, and more emotional than that. Fatigue, side effects, fear, and frustration can last for months, and that does not mean something is wrong. It means recovery is still happening. We also focus on how important it is to set realistic expectations. Christy explains that early struggles do not define long term outcomes. A setback in the first weeks or months after transplant does not mean a patient will not go on to live a full and meaningful life. Recovery takes patience. Small wins matter. Walking to the mailbox, cooking a meal, or getting through a day with a little more energy can be major milestones. Over time, those moments add up. Another major theme is emotional recovery. We talk about the fear of recurrence and the challenge of learning what is normal after treatment versus what should be reported to a doctor. That education helps people feel more confident and less trapped by fear. We also touch on how easy it is to forget that some aches and pains may simply come with getting older, not always with cancer. That perspective can be grounding. Other survivors can be a valuable information resource, too. Support comes up again and again throughout the conversation. Caregivers remain important in survivorship, but their role changes. Friends, peer support, support groups, podcasts, and survivorship communities all help patients feel less isolated. Christy emphasizes the value of honesty and vulnerability, especially in telling people what kind of support is needed on a given day. Some days call for celebration. Some days call for rest. We also talk about the tension between wanting to get back to life and needing to stay safe. Many survivors ask when they can return to work, travel, attend church, or see family. That desire is a good sign. It shows hope. At the same time, it takes guidance from the healthcare team to know when and how to widen that protective bubble. The episode ends on a hopeful note. Christy shares that she does not think of one survivor story. She thinks of many faces. She describes the joy of seeing patients return months later looking stronger, brighter, and more like themselves. That image captures the heart of the episode. Survivorship is hard, but it is also full of possibility, growth, connection, and life after transplant. More: Northside Hospital Cancer Institute Blood & Marrow Transplant Program — https://www.northside.com/services/cancer-institute/cancer-treatment-options/blood-marrow-transplant-program Northside Hospital Cancer Institute Blood Cancer Program — https://www.northside.com/services/cancer-institute/cancer-programs/blood-cancer-program National Bone Marrow Transplant Link (nbmtLINK) — https://www.nbmtlink.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Introduction (00:40) Meet Christy Donovan (01:42) Survivorship as a transition (03:00) The role of caregivers and support after transplant (03:38) Early struggles vs long term outcomes (05:41) Emotional impact and fear of recurrence (07:02) Learning what is normal and what is not (07:55) Support groups, healing arts, and community (08:44) Being honest with friends about what you need (09:34) Managing energy and celebrating small wins (11:02) Patience, hope, and finding your people (13:15) Common questions in early survivorship (14:27) Expanding the protective bubble (15:20) The many faces of survivorship (17:03) Final encouragement and close National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In December 1996, a 37 year old pharmaceutical executive sat in a Borders bookstore reading medical textbooks on the floor, trying to understand a disease she had never heard of. Multiple myeloma carried a three year prognosis. Her daughter was 18 months old. Her father had just died of cancer. Within weeks, she pushed her doctors to say the quiet part clearly. This would likely end her life before her child entered kindergarten.Kathy Giusti refused to accept passive survival. She built a plan while the system offered fragments. She interviewed oncologists and fertility specialists at the same time. She pursued IVF to have a second child while preparing for treatment. She stayed employed to keep insurance coverage. Every decision carried financial, medical, and emotional risk.That same urgency exposed a deeper failure. Cancer research moved slowly. Academic centers guarded data. Clinical trials lacked coordination. Patients entered a system that demanded compliance without providing clarity. Giusti responded by building the Multiple Myeloma Research Foundation, not as a support group, but as an operating engine to accelerate drug development, fund research, and force collaboration across institutions.This episode tracks the tension between individual agency and systemic failure. Giusti describes how patients navigate diagnosis, insurance barriers, and fragmented care in real time. She explains how data, genomics, and clinical trials reshape cancer treatment while still leaving patients responsible for decisions they are not trained to make. She addresses disparities in access, the limits of early detection, and the reality that progress in oncology often depends on speed, funding, and alignment of incentives.The conversation moves between lived experience and structural critique. It names the cost of delay, the burden placed on patients to act as their own advocate, and the tradeoffs required to push a system forward that still protects itself first.⸻RELATED LINKSKathy GiustiMultiple Myeloma Research FoundationFatal to FearlessAmerican Society of Hematology⸻FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Caregiving can feel like you're carrying a whole life on your back, then smiling through it so nobody worries. Today's episode highlights behind the scenes moments at our 2nd day at the 2026 Alter Dementia Summit--fast, powerful conversations that tell the truth about dementia caregiving and Alzheimer's awareness, especially the parts families don't always say out loud. We spoke down with Dr. Fayron Epps to talk about her book, From Faith To Action, and what it really takes to move from belief to daily practice when you're supporting someone with dementia. She shares how writing became therapy, why her community's response surprised her, and how honest storytelling can permit other caregivers to finally speak up. Then we get practical with a simple “brain health recipe” you can start right away: monitoring your health, cognitive exercise, physical exercise, and eating right. We also dig into youth caregivers, because too many young people are quietly doing caregiver work with zero training and zero emotional support. We talk about how dementia behaviors can affect a child, why adults must explain what's happening, and how faith communities can be part of real dementia education. Finally, we tackle clinical trials and medical mistrust in the Black community, plus where to look for studies, and we close with a crucial brain health pillar that gets neglected: sleep, and why 7 to 9 hours is not laziness, it's prevention. If this resonates, subscribe, share this with a caregiver you love, and leave a review so more families can find these tools and feel less alone.EP/Host: J Smiles ComedyProducer: Mia Hall Videographer/Editor: Annelise UdoyeSupport the show"Alzheimer's is heavy but we ain't gotta be!"IG: https://www.instagram.com/parentingupFB: https://www.facebook.com/parentingupYT: https://www.youtube.com/@parentingupTEXT  'PODCAST"  to  +1 404 737 1449  - to give J topic ideas, feedback, say hi!Be sure to leave us a review! 

Why does cancer caregiving make it so hard to remember simple things, stay focused, or feel fully present in everyday life? In this episode, Charlotte continues the Mental Load of Cancer Caregiving series by naming what cognitive overload feels like in real time: forgetting why you walked into a room, rereading the same paragraph, losing track of conversations, and feeling like your brain is not cooperating in ordinary moments. She explains why this is not a personal failure but the cost of running a caregiving system in the background of daily life, and offers a small practice to help interrupt the spiral when the fog hits.

Send Cathy a text:)Caregiving is already hard enough…But sometimes the hardest part isn't just what's happening around you—

On this special Memorial Day edition of Hope for the Caregiver, Peter Rosenberger reflects on sacrifice, remembrance, and the God who does not forget. Drawing from deeply personal memories of his father serving as a Navy chaplain during Vietnam-era casualty notifications, Peter explores the unseen burden carried by military chaplains who walked up to front doors carrying the worst news a family could receive. Why does Matthew's Gospel deliberately preserve the name of Uriah the Hittite in the genealogy of Christ? What does that reveal about honor, grief, and the faithfulness of God? And what can Memorial Day teach us about service, sacrifice, and the cost borne by military families across generations? This moving program also features excerpts from Peter's interview with retired Army Chaplain Lt. Col. Michael Frazier, who shares firsthand experiences conducting casualty notifications, military funerals, and ministering to grieving families in moments of profound loss. Featuring patriotic hymns, reflections on Scripture, the history of military chaplaincy, and a special closing performance of the National Anthem by Gracie Rosenberger. A powerful Memorial Day conversation about duty, grief, faith, patriotism, and the sacred work of remembering.

Send us Fan MailIn this exhilarating episode of Living the Dream with Curveball, we are joined by Dr. Rob Yonover, a multifaceted scientist, inventor, author, and adventurer whose life story is a testament to resilience and innovation. Dr. Yonover shares his remarkable journey, from caring for his wife for nearly two decades while raising children to inventing life-saving products for the military and even SpaceX.With a background that includes exploring erupting volcanoes and diving two miles deep in a submersible, Dr. Yonover's adventures have shaped his unique perspective on life and invention. He reflects on the challenges of balancing caregiving, family life, and entrepreneurship, emphasizing the importance of endurance and perspective in overcoming obstacles.Listeners will be captivated by Dr. Yonover's tales of his iconic invention, the Sea Rescue streamer, which has saved lives and gained recognition worldwide. He discusses the impact of his appearance on Shark Tank and how he navigated the journey of bringing an idea from concept to reality. Throughout the episode, Dr. Yonover offers insights into innovation, perseverance, and the importance of community support in both personal and professional realms.Join us for an inspiring conversation filled with adventure, motivation, and the reminder that with determination, anything is possible.What You'll Learn in This Episode:- The journey of inventing life-saving technology- Insights from Dr. Yonover's experiences as a caregiver- The balance of family, work, and personal passion- The significance of media exposure in promoting ideas- Dr. Yonover's upcoming projects and future aspirationsFor more information on Dr. Rob Yonover and his work, visit his profiles on social media platforms under his name.Support the show

When you're grieving or going through a major life change, practical decisions don't pause even when we need them to because we are overwhelmed. This panel facilitates a conversation exploring navigating healthcare decisions with our families, understanding health insurance options during transitions (e.g., between jobs) and preparing foundational documents like living wills or healthcare directives. ⚕️Yvonne Olusi‑Ogadi is a former nurse with 25 years of experience and a practicing attorney specializing in eldercare, estate planning, and healthcare directives bringing clinical insight, legal clarity, and deep compassion to families navigating life transitions.

Summary Mark Wilson shares his inspiring journey of leaving a successful corporate career to step into the role of caring for his mother living with Alzheimer's. Mark highlights leadership in caregiving, mistakes to avoid, and practical strategies for improving quality of life. This episode offers valuable insights for family caregivers seeking to lead with love, safety, and innovation. keywordsAlzheimer's care, caregiving leadership, caregiver mistakes, dementia support, family caregiving, care team management, Alzheimer's book, caregiving tips, caregiver resilience, patient safetykey topicsLeadership in caregivingMistakes in dementia careBuilding a care teamCreating a joyful environment for loved onestakeawaysListening to your gut can prevent mistakes.Caregiving is a leadership role, not just a task.Choosing the right caregivers is crucial for safety and happiness.Creating a fun, engaging environment improves quality of life.Advocating for better laws can help all families. sound bites"Listen to your gut, it knows best.""Make the journey joyful, not just bearable.""Love involves sacrifice, make it joyful."Chapters00:00 Introduction to Caregiving Journey03:23 Transitioning from Executive to Caregiver07:44 Building a Care Team11:08 Interviewing Caregivers: Key Considerations16:49 The Role of a Care Leader21:38 Learning from Mistakes in Caregiving23:05 Navigating Healthcare Decisions25:00 Navigating Grief and Medical Decisions30:19 Advocacy and Legal Challenges in Healthcare31:13 The Journey of Writing a Book35:39 Lessons from Caregiving and Leadership40:55 Hope and Positivity for Caregivers47:57 Podcast Intro Music Project (MASTER BOUNCE - OUTRO).mp3Book - Breakthrough Alzheimer's Care A Guide to Finding Courage, Longevity, and Joy on the JourneyInspired Caring is THE family support & education program that helps families feel calm and confident to make better decisions faster. Inspired Caring is offered as an annual membership tobusinesses to provide for the families they work with.Connect with Michele Magner:⁠Website⁠⁠E-mail⁠Instagram⁠⁠Facebook⁠⁠LinkedIn⁠⁠YouTubeCustom podcast music written and produced by Colin Roberts. He does custom songs for any occasion.

In this episode, Adam Torres interviews Lana Wilhelm, Founder of CarePower Connect. Lana shares her personal journey after her husband's stroke, discusses the importance of caregiver advocacy and support, and explains how her platform, books, and upcoming podcast are helping caregivers feel seen, heard, and empowered.  Lana Wilhelm was a registered nurse for over 40 years, dedicated to helping patients make the transition from hospital to home. When her spouse experienced a stroke in 2021, she began her mission to help others caring for stroke survivors through her organization: Stroke Caregiver Connection. Using her expertise as a healthcare worker and personal experiences, she developed insightful strategies for providing the best care possible, all of which are documented in her two guidebooks: “Stroke and the Spouse” and “Stroke and the Caregiver.” About Stroke Caregiver Connection “Navigating the Journey with Compassion and Resilience" This organization is a space dedicated to unsung heroes who provide care and support for loved ones. Whether you're a family caregiver, a professional caregiver, or someone just beginning this journey, this organization aims to be a source of information, inspiration, and a virtual support network for you.  Watch Full Episode on ⁠Youtube⁠. --- Follow Adam on Instagram at ⁠https://www.instagram.com/askadamtorres/⁠ for up to date information on book releases and tour schedule. Apply to be a guest on our podcast: ⁠https://missionmatters.lpages.co/podcastguest/⁠ Visit our website: ⁠https://missionmatters.com/⁠ About Lana WilhelmMore FREE content from Mission Matters here: ⁠https://linktr.ee/missionmattersmedia Learn more about your ad choices. Visit podcastchoices.com/adchoices

What happens when the person keeping you alive is also the person roasting your life choices the hardest? If you're new to the show, Brock is our brilliant, hilarious resident intern who navigates life with Cerebral Palsy. But this week, we're turning the spotlight on the real hero of his life. His long-term care worker (and for sure NOT his wife) Katherine, joins the fellas to talk about the chaotic, beautiful, and hilariously messy reality of being a Personal Support Worker (PSW). From catastrophic bladder blunders involving white pants and aggressive speed bumps, to asking the highly inappropriate boundary questions everyone else is too polite to touch, this episode is a raw look at what happens when your medical partner feels less like a sterile clinician and more like a cranky old spouse. But again… Not his spouse. Follow Sickboy: Instagram: https://www.instagram.com/sickboypodcastTiktok: https://www.tiktok.com/@sickboypodcastDiscord: https://discord.gg/expeUDN

Caregiving is often described as an act of love. Because it is.But what doesn't get talked about enough? The moments when it also feels overwhelming, exhausting… and yes, even resentful.In this episode, we're having the honest conversation most caregivers keep to themselves.Because you can love someone deeply and still feel frustrated, trapped, or completely drained by the responsibility of caring for them. And that doesn't make you a bad person!! It makes you human.Want to Join the Good Grief Society?https://www.nikkithedeathdoula.com/the-good-grief-society Support me on Patreon! ⁠https://www.patreon.com/nikkithedeathdoula⁠You can find me here: https://linktr.ee/nikkithedeathdoulaGet merch! https://good-grief-podcast.printify.me/

At 19, Shlomit woke up unable to speak. The right side of her body went numb. An emergency room sent her home and called it stress. That moment did not end in a diagnosis that changed policy or triggered reform. It sent her into a decade long pursuit of understanding how the brain fails language and how the healthcare system fails patients who cannot advocate for themselves.Shlomit trained as a speech language pathologist and spent years inside acute care hospitals and ICUs, performing endoscopies and treating patients with brain injury, stroke, and dysphagia. She watched medical teams rotate in and out, deliver dense updates, and leave families nodding without comprehension. She stayed behind and translated. Every day, patients told her she was the only one who explained what was happening. That gap is not an accident. Hospital systems optimize for throughput, not understanding. Patients move through beds based on cost, not readiness. Discharge planning becomes a financial decision wrapped in clinical language. A stay under 48 hours can shift the insurance burden dramatically, leaving patients exposed to higher out of pocket costs. Shlomit left the system and built Patient Path NYC, a private patient advocacy service. She now spends 15 to 20 hours a week per client reading charts, coordinating care teams, and translating medical decisions into plain language. Her work sits in the uncomfortable space between healthcare policy and lived experience. Families pay out of pocket to understand their own care. Hospitals benefit from the clarity she provides while maintaining the same structural incentives that created the confusion.This conversation tracks the human cost of fragmented care, the economics behind discharge decisions, and the quiet reality that patients who cannot communicate clearly often lose control of their own outcomes.RELATED LINKSShlomit LibertyShlomit Liberty on LinkedInPatient Path NYCBoard Certified Patient AdvocateFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Most med spas focus heavily on the procedure itself, but patient experience is shaped just as much by what happens before and after treatment. In this episode, I sit down with Lars Hegelson, founder of Easy Aftercare, to discuss how poor aftercare communication creates operational strain, financial risk, and preventable patient issues—and why practices that modernize patient education are creating a measurable advantage.  We unpack how accessible, personalized aftercare systems can reduce cancellations, improve compliance, strengthen patient trust, and support the long-term value of the business.  The Operational Risks Hidden Inside Weak Aftercare Systems  One of the biggest operational gaps in healthcare is assuming patients will remember important instructions after receiving a procedure, especially when they're overwhelmed, anxious, or distracted. When aftercare systems are inconsistent, practices end up dealing with preventable complications, repetitive staff communication, after-hours calls, and patients searching online for answers instead of returning to their provider. That creates unnecessary risk for both the patient and the practice.  As patient expectations continue evolving, generic paper handouts and one-time verbal explanations simply aren't enough anymore.  What Better Aftercare Systems Improve Inside the Business  Operational improvement comes from delivering information more effectively—not necessarily more information.  • Timed text-based communication reduces information overload • Video and audio instructions improve retention and accessibility • Caregivers can receive the same aftercare guidance as patients • ADA-compliant and multilingual education improves patient trust • Compliance tracking creates documentation that supports legal protection • Better procedure preparation can reduce cancellations and reschedules  The practices solving these communication problems are creating smoother operations without adding unnecessary complexity for their teams.  Why Communication Has a Direct Financial Impact  Patient education is often treated like a support function, but financially, it affects much more than patient satisfaction. Every preventable cancellation, unnecessary complication, after-hours issue, or malpractice concern creates operational and financial pressure inside the business. Practices that proactively guide patients through preparation, recovery, and follow-up care tend to operate more efficiently while reducing avoidable risk.   There's also an enterprise value component here. Businesses with stronger systems, lower operational friction, and more consistent patient experiences are easier to scale and easier to trust.  As Your Practice Expands, Communication Systems Matter More  Scalable patient education matters.  As med spas grow, consistency becomes harder to maintain. More providers, more locations, and more patients create more opportunities for communication breakdowns if systems aren't standardized. Clear aftercare workflows, accessible instructions, and proactive communication systems help maintain the patient experience as volume increases. The practices that scale best u build systems that consistently support patients before, during, and after treatment.  Follow Shannon & Keep What You Earn:   Shannon Weinstein is the founder of a fractional CFO firm specializing in helping 7-figure aesthetics and wellness practices scale with clarity, cash flow, and confidence.  Shannon is committed to helping med spa owners understand, fix, and maximize their business's enterprise value, offering actionable advice and resources, including a popular free video series specifically for aesthetics practice owners.   Fractional CFO Services and Executive Financial Review: https://www.keepwhatyouearn.com/  Connect with Shannon: https://www.linkedin.com/in/shannonweinstein  Watch full episodes: https://www.youtube.com/@KeepWhatYouEarn  Listen on your favorite podcast app: https://pod.link/1580071347  Instagram: https://www.instagram.com/shannonkweinstein/  The information shared is for educational purposes only and is not individualized financial advice. Aesthetics practice owners should consult a qualified professional before implementing financial strategies discussed here.  About Lars Hegelson: Lars Helgeson is the founder of Easy Aftercare, a healthcare communication platform focused on improving patient education, accessibility, and post-procedure support for medical practices and med spas. He is also a longtime entrepreneur and CRM innovator, best known as the founder of GreenRope, a complete CRM and marketing automation platform used by businesses in more than 40 countries. Drawing from decades of experience in technology, automation, and customer communication, Lars is passionate about using practical systems to improve both patient outcomes and operational efficiency.  Connect with Lars and Easy Aftercare:   Website: https://www.larshelgeson.com/  Easy Aftercare: https://www.easyaftercare.com/ 

What does meaningful caregiver coaching look like in infant feeding therapy?Guest: Madi Metcalf, MS, CCC-SLPEarn 0.10 ASHA CEUs for this episode with Speech Therapy PDWatch on YoutubeIn this episode of First Bite, Michelle Dawson, MS, CCC-SLP, CLC, BCS-S, FNAP, welcomes back Madi Metcalf, MS, CCC-SLP, to explore infant feeding through a Pediatric Feeding Disorder (PFD) lens. Together, they discuss how medical factors can impact feeding even in the youngest patients, and the importance of early, caregiver-centered support. The conversation also highlights building caregiver confidence, creating realistic feeding goals, and supporting families through postpartum challenges. This conversation is rooted in hope, trust, and helping caregivers feel seen, supported, and confident throughout the feeding journey.About the Guest(s): Madi Metcalf, MS, CCC-SLP, is an Arkansas-based speech-language pathologist with advanced training in pediatric feeding and swallowing disorders and the owner of Function First Speech and Feeding Therapy, where she provides home, community, and clinic-based services. She is passionate about interdisciplinary care and caregiver collaboration to support safe, functional feeding.Show Notes:Contact Madi: @functionfirstslp on Instagram or on LinkedInAttend the 2026 PEDIATRIC FEEDING SYMPOSIUM Beyond the Bite: Supporting the Whole Family in Pediatric Feeding DisordersMadi's Related CoursesEffective Parent Coaching CourseFamily Guided Routines Based InterventionHelping Your Child with Extreme Picky Eating BookBritt Pados Related CourseRoutines-based Interview ChecklistBridging NICU to Home CourseFeeding Matters

In this deeply personal solo episode, Dr. Meyers reflects on what she has learned from being a caregiver to aging parents and the emotional complexity that comes with caregiving, grief and role reversal.She explores the realities of caring for parents experiencing cognitive decline, including the guilt, frustration, resentment and sadness that many adult children quietly carry. The episode also examines how unresolved family dynamics and childhood experiences can resurface during caregiving, shaping the way we respond to aging parents.A thoughtful conversation about caregiver stress, dementia, empathy, family relationships and finding compassion for both ourselves and our parents during one of life's most difficult transitions.

What happens when caregiving turns your brain into a full-time tracking system? In this episode, Charlotte opens a new series on The Mental Load of Cancer Caregiving by naming the invisible cognitive labor so many caregivers carry every day: appointment dates, medication schedules, symptom changes, insurance problems, questions for the doctor, and the constant background hum of trying not to let anything fall through the cracks. She explores why this kind of overload can make you feel scattered, foggy, and unable to be fully present, and why it is not a personal failure but the cost of running a complex system inside your mind for too long. This episode also offers a simple first step to create relief: getting information out of your head and into a place your brain no longer has to actively hold.

There is a difference between feeling ashamed and living inside shame. One is a passing signal. The other is the background atmosphere of an entire nervous system. In this episode, Jennifer Wallace and Elisabeth Kristof go deep on toxic shame as the next distinguishing characteristic of complex trauma in their CPT series. This is one of the most personal episodes they have recorded. Both hosts share what shame actually sounded like at its loudest in their lives, the specific words, the body states, the loops that ran for years before they had any way to interrupt them. And they are honest about where they still meet it today. Toxic shame in complex trauma is not just a feeling that shows up after a mistake. It is an identity state. It shifts from "I did something wrong" to "I am wrong." It shapes posture, vocal tone, breath, gaze, and the way the body interprets every social interaction as potential exposure or rejection. And because it developed in relationship, specifically in environments where expressing needs or emotions led to punishment, abandonment, or humiliation, it becomes deeply tied to every relational experience that follows. Elisabeth and Jennifer trace the full arc of how shame develops, from the child who cannot afford to see their caregiver as unsafe and so turns the blame inward, to the adult who moves through professional and personal relationships with a chronic bracing for exposure. They cover the neurobiology in depth: what the insula, default mode network, and vagus nerve have to do with chronic shame states, why shame can both amplify and numb internal sensation at the same time, and how shame formation, the physiological pairing of emotional shame states with immune and inflammatory responses, helps explain the health outcomes seen in adverse childhood experience research. The conversation also covers the double bind of shame in complex trauma, the trap of needing connection while also bracing for what connection has always brought. How shame drives substance use and disordered eating as regulation strategies. How systemic and cultural forces layer onto developmental shame in ways that make the pattern larger than any individual. And what post-traumatic growth actually looks like here: not confidence, not the absence of shame, but a little more space between the wave and the response, a little longer staying present in the body before the collapse happens, and gradually, relationships where being imperfect does not mean being abandoned. In This Episode, You Will Learn: Why toxic shame in complex trauma shifts from an emotion into an identity state How shame develops as a survival strategy when caregivers are unsafe and self-blame becomes the only available adaptation Why shame is not just cognitive but embodied, showing up in posture, vocal tone, breath, gaze, and gesture What shame formation is and how chronic shame states are linked to inflammation, immune dysregulation, and the health outcomes in ACE research How the insula, default mode network, and vagus nerve are involved in chronic shame patterning Why shame can simultaneously amplify and numb internal sensation and what that means for healing The double bind of shame: needing connection while bracing against it How systemic and cultural shaming layers onto developmental shame and why the nervous system cannot fully distinguish between them How shame drives substance use and disordered eating as regulation strategies and why the shame-use cycle is so hard to interrupt What post-traumatic growth looks like in relation to shame: not the absence of it, but increased range, flexibility, and capacity to stay present with it How accountability, relational repair, and allowing others to have their own experience gradually shifts the shame pattern   Chapters 0:00 - The Difference Between Feeling Ashamed and Living Inside Shame  0:33 - Welcome: Toxic Shame Through the Lens of Complex PTSD  1:54 - What Shame Actually Is: A Whole Body Physiological Response  2:14 - When Shame Becomes an Identity State  3:01 - Shame in the Body: Posture, Voice, Breath, and Withdrawal  3:34 - Systemic and Cultural Shame: When the Group Itself Is Dysregulated  5:55 - Shame as the Emotion That Represses All Other Emotions  7:15 - How Shame Develops in Complex Trauma: The Child Who Cannot Blame the Caregiver  8:48 - Everything Is My Fault as a State of Being  9:43 - Jennifer and Elisabeth Share What Shame Sounded Like at Its Loudest  11:28 - How Shame Physically Inhibits Expression  12:09 - The Double Bind: Needing Connection While Bracing Against It  14:00 - The Neurobiology: Insula, Freeze, Dissociation, and No Safe Discharge  17:31 - Large Scale Neural Patterning: DMN Loops, Reward Signaling, and Oxytocin  18:36 - What Shame Looks Like Now for Jennifer and Elisabeth  23:51 - Shame Formation: Inflammation, the Vagus Nerve, and ACE Research  26:43 - The Shame and Substance Use Cycle  30:28 - How Both Hosts Used Substances to Regulate Shame  34:15 - Systemic Shame and the Brain's Drive for Belonging  36:10 - What Post-Traumatic Growth Actually Looks Like With Shame  38:51 - Relational Healing: Repair, Accountability, and Letting Someone Love You Imperfectly  41:14 - Allowing Another Person to Have Their Experience Without Collapsing   Resources and Links NSI Foundations Bundle for coaches and practitioners: neurosomaticintelligence.com/foundations Two week Rewire Trial of guided neuro somatic training: rewiretrial.com Learn more about Elisabeth's work at brainbased.com Learn more about Jennifer's work at her YouTube channel: Sacred Synapse https://www.youtube.com/@sacredsynapse-23 Trauma Rewired podcast  is intended to educate and inform but does not constitute medical, psychological or other professional advice or services. Always consult a qualified medical professional about your specific circumstances before making any decisions based on what you hear.  We share our experiences, explore trauma, physical reactions, mental health and disease. If you become distressed by our content, please stop listening and seek professional support when needed. Do not continue to listen if the conversations are having a negative impact on your health and well-being.  If you or someone you know is struggling with their mental health, or in mental health crisis and you are in the United States you can 988 Suicide and Crisis Lifeline.  If someone's life is in danger, immediately call 911.  We do our best to stay current in research, but older episodes are always available.  We don't warrant or guarantee that this podcast contains complete, accurate or up-to-date information. It's very important to talk to a medical professional about your individual needs, as we aren't responsible for any actions you take based on the information you hear in this podcast. We  invite guests onto the podcast. Please note that we don't verify the accuracy of their statements. Our organization does not endorse third-party content and the views of our guests do not necessarily represent the views of our organization. We talk about general neuro-science and nervous system health, but you are unique. These are conversations for a wide audience. They are general recommendations and you are always advised to seek personal care for your unique outputs, trauma and needs.  We are not doctors or licensed medical professionals. We are certified neuro-somatic practitioners and nervous system health/embodiment coaches. We are not your doctor or medical professional and do not know you and your unique nervous system. This podcast is not a replacement for working with a professional. The BrainBased.com site and Rewiretrail.com is a membership site for general nervous system health, somatic processing and stress processing. It is not a substitute for medical care or the appropriate solution for anyone in mental health crisis.  Any examples mentioned in this podcast are for illustration purposes only. If they are based on real events, names have been changed to protect the identities of those involved.  We've done our best to ensure our podcast respects the intellectual property rights of others, however if you have an issue with our content, please let us know by emailing us at traumarewired@gmail.com  All rights in our content are reserved  

In this episode of SLP Coffee Talk, Hallie chats with Daj Mitchell—school-based SLP, online educator, and Illinois State University graduate—about getting everyone on board with AAC. With over six years of experience serving pediatric and adult clients across settings, Daj breaks down her buy-in stair step framework and explains why many SLPs accidentally skip to the last step. She shares practical strategies for coaching parents and staff, building real collaboration, and improving carryover beyond the therapy room. They also explore Daj's work in AI, AAC, and neurodiversity-affirming care, along with how she supports fellow clinicians through education and social media. This one's for any SLP who's ever handed a family a home program and never heard about it again.Bullet Points to Discuss: What the AAC buy-in stair step framework actually looks likeHow adult learning theory applies to parent and stakeholder coachingWhy video modeling works better than handouts for skeptical caregiversHow to use Google Forms, scheduled emails, and templates to manage AAC collaboration without eating your lunchWhat an AAC profile spreadsheet is and why Daj swears by itHow to extend the same coaching framework to teachers, paras, and adminHere's what we learned: Buy-in has three parts. Acceptance, willingness to support, and active participation are not the same thing—and most caregivers are only at step one.Don't skip ahead. Handing over a home program before a caregiver is ready guarantees the device stays on the refrigerator.Adults need a reason. Connect AAC to something that already matters in their life and they'll move faster.Start with one win. Find the routine they actually care about and build from there.Set it and forget it. Once your emails and forms are built, your collaboration system basically runs itself.​​​​​​​​​​​​​​​​Learn more about Daj Mitchell: Instagram: https://www.instagram.com/yourslpdaj/ Learn more about Hallie Sherman and SLP Elevate:  

In this episode, JoDee and Susan talk to author Glenna Hecht about an issue that impacts more employees than many leaders realize: caregiving. Topics include: The statistics on caregivers in the workplace Caregiver-friendly policies The hidden impact of caregiving in the workplace and why many employers don't see it How caregiving changes an employee's focus, identity, and relationship with work What managers can do when an employee's performance suddenly shifts Practical ways employers can support employees balancing work and caregiving In this episode's listener question, we're asked how to help aging workers who don't want to leave but aren't keeping up with younger coworkers retire with dignity. In the news, nearly two thirds of workers say they do not feel financially secure in their current role. Full show notes and links are available here: https://getjoypowered.com/show-notes-episode-247-supporting-caregivers-at-work/ A transcript of the episode can be found here: https://getjoypowered.com/transcript-episode-247-supporting-caregivers-at-work/ To get 0.75 hour of SHRM recertification credit, fill out the evaluation here: https://getjoypowered.com/shrm/ (the SHRM credit code for this episode will expire on May 18, 2027) Become a member to get early and ad-free access to episodes, video, and more perks! Learn more at patreon.com/joypowered Connect with us: @JoyPowered on Instagram: https://instagram.com/joypowered @JoyPowered on Facebook: https://facebook.com/joypowered @JoyPowered on LinkedIn: https://linkedin.com/company/joypowered Sign up for our email newsletter: https://getjoypowered.com/newsletter/ 

All Home Care Matters and our host, Lance A. Slatton were honored to welcome Ilihia Gionson as guest to the show.   About Ilihia Gionson, 2021 Dole Caregiver Fellow, Hawaii:   In Hawaiʻi, caring for the elderly is part of the native culture. So when it was time for Ilihia to care for his father Anthony, he naturally stepped into the caregiver role.   Anthony was born in Hawaiʻi in 1947 and served in Vietnam in 1966 when he was 19. His time in Vietnam, with a climate and people who reminded him of home, was one of a series of transformational moments for him. Hawaiʻi had only recently become an American state, and he returned home to a mother close to the end of her life. In the decades following his return, he worked very hard for his family, including being a caregiver to his wife with a genetic kidney disorder and another son with an intellectual disability. Ilihia believes his tireless work ethic was his father's coping mechanism for dealing with the invisible wounds of war. It was not until after Ilihia's mother and brother passed away that Anthony transformed from the caregiver to the care recipient. Ilihia learned about his father's post-traumatic stress disorder (PTSD) when his father started going to grief counseling sessions and began unpacking his invisible wounds resulting from his service.   Anthony lives with Ilihia, his partner and their daughter, who all help care for him. As his father's primary caregiver, Ilihia manages his appointments and medications, performs household chores, and listens to his father when he needs to talk. Anthony's PTSD and anxiety make it difficult for him to participate in group activities, so Ilihia works hard to get his father out of the house, including getting him to the proper medical care and therapy.   Ilihia is the Chief Public Affairs Officer of the W. M. Keck Observatory. As a fellow, he hopes to help other veterans and caregivers in Hawaiʻi and the Pacific who struggle with access to VA resources. He also hopes that by sharing his story, he will help other caregivers self-identify and seek out support.   About the Elizabeth Dole Foundation:   The Elizabeth Dole Foundation is the preeminent organization empowering, supporting, and honoring our nation's 14.3 million military and veteran caregivers—the spouses, parents, family members, and friends who care for America's wounded, ill, or injured service members and veterans. Established by Senator Elizabeth Dole in 2012, the Foundation works to empower military and veteran caregivers, their families, and their communities through programs, partnerships, and advocacy that drive innovative, impactful, and sustainable solutions.   About the 11th Annual National Convening:   Registration is now open for the Elizabeth Dole Foundation's 11th Annual National Convening – and you won't want to miss it!   Join us on May 19, 2026, in Washington, D.C., at the iconic Ronald Reagan Building and International Trade Center, where leaders, advocates, and caregivers from across the country will come together for a powerful day of connection, conversation, and action. If you are unable to join us in-person, you can register for virtual attendance using the same link.   Last year, Convening attendees helped us begin to develop the National Blueprint for Action—a practical, solutions-driven roadmap designed to strengthen support for the 14.3 million military and veteran caregivers nationwide. Now, as we officially launch that Blueprint, we commit to act—bringing together caregivers, business and industry leaders, and policymakers to advance a nationwide Culture of Caregiving. Inspired by thought-provoking plenary speakers, you will participate in interactive working sessions and breakout discussions to learn how you can make a difference.   In-person attendees will also experience our dynamic Innovation Expo, featuring more than 30 organizations across military and veteran services, healthcare, and beyond. There, explore valuable resources, spark meaningful connections, enjoy a complimentary headshot, and take a moment for yourself at our chair massage station.

In 2020, developmental biologist Dr. Crystal Rogers drove the country roads outside Davis, California crying between grant rejections, wondering whether she was about to lose her lab, her career, and the scientific future she had spent years building. She had already done what academia tells young scientists to do. She earned the credentials. She landed a faculty position at UC Davis. She built a lab. Then the real test began.On this episode of Standard Deviation, Dr. Oliver Bogler examines the unspoken rules that determine which scientists survive academic research and which quietly disappear from it. The conversation follows Crystal Rogers and cancer biologist Dr. Michelle Mendoza as they collide with the “Hidden Curriculum” of biomedical science: the unwritten rhetoric, institutional signaling, and grant writing strategies that often decide who receives funding, tenure, and long term stability.Michelle Mendoza entered a tenure track position at the Huntsman Cancer Institute while raising 3 children, navigating a divorce, and trying to secure major NIH funding during COVID. What looked like objective scientific review turned out to depend heavily on persuasion, presentation, and insider fluency. Established researchers could promise massive research agendas based on reputation alone. Junior investigators faced a completely different standard.Oliver traces how the Life Science Editors Foundation and its JEDI program intervened by pairing scientists with former editors from journals including Cell and Nature. The work had little to do with commas or grammar. Editors challenged logic, structure, and scientific framing before grant reviewers could destroy an application in public.Both researchers eventually secured career defining grants. One realized she would keep her job and not have to move her family. The other celebrated by ordering a personalized “DEV BIO” license plate and driving through Davis blasting nineties hip hop and Beyoncé.The episode exposes how biomedical research funding rewards institutional fluency as much as scientific talent, and how hidden systems inside academic medicine continue shaping who gets to stay in science long enough to make discoveries.RELATED LINKSDr. Crystal Rogers LinkedInDr. Crystal Rogers Faculty PageDr. Crystal Rogers LabDr. Michelle Mendoza LinkedInDr. Michelle Mendoza Faculty PageHuntsman Cancer Institute Mendoza LabLife Science Editors FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Ari sits down with adult performer Ophelia Faye for a wide-ranging conversation that earns its "unlicensed therapy" label. Ophelia breaks down the difference between a performer and a "star," why she got into the industry in the first place, and how independent platforms have shifted the power dynamic for creators post-#MeToo.From there it gets personal: the studies that quietly push purity culture, the case for fantasy and stress relief, her long-game career strategy, and what a supportive agent actually does. Then Ari opens the listener mailbag — partners with questionable hobbies, the multivitamin smuggling operation that saved a relationship, and the harder one: how to set boundaries when family expects you to become a full-time caregiver.Follow Ophelia on Instagram and her other platforms none of this is real therapy. Probably.

The quickest way to kill a dream is to achieve it. That's how Mark Manson opened our conversation, and it hit me harder than I expected. We get into altitude sickness, the arrival fallacy, and why the one variable that predicts how long you live is the one I almost never hear talked about in the wellness world. CLICK HERE TO BECOME GARY'S VIP!: ⁠https://bit.ly/4ai0Xwg⁠ Get all Mark Manson's books here: ⁠https://bit.ly/42sbr9q⁠   Listen to Mark Manson on all your favorite platforms! YouTube: ⁠https://bit.ly/4dBTDin⁠  Spotify: ⁠https://bit.ly/4tuGdJN⁠   Apple Podcasts: ⁠https://bit.ly/3PxcJgs⁠   Connect with Mark Manson Website: ⁠https://bit.ly/48ThxTZ⁠    YouTube: ⁠https://bit.ly/4dBTDin⁠   Instagram: ⁠https://bit.ly/4dkm5UK⁠   Facebook: ⁠https://bit.ly/4eFY8to⁠   TikTok: ⁠https://bit.ly/4ttiE46⁠   X: ⁠https://bit.ly/4dkmmHg⁠   LinkedIn: ⁠https://bit.ly/48TdZkw⁠   Thank you to our partners A-GAME: “ULTIMATE15” FOR 15% OFF: ⁠http://bit.ly/4kek1ij⁠   AION: “ULTIMATE10” FOR 10% OFF: ⁠https://bit.ly/4h6KHAD⁠  AIRES: "ULTIMATE20 " FOR 20% OFF: ⁠https://bit.ly/4a3Duze⁠  BAJA GOLD: "ULTIMATE10" FOR 10% OFF: ⁠https://bit.ly/3WSBqUa⁠  BODYHEALTH: “ULTIMATE20” FOR 20% OFF: ⁠http://bit.ly/4e5IjsV⁠  COLD LIFE: THE ULTIMATE HUMAN PLUNGE: ⁠https://bit.ly/4eULUKp⁠  CYMBIOTIKA: "ULTIMATE10" FOR 10% OFF: ⁠https://bit.ly/4tjyluP⁠  GENETIC METHYLATION TEST (UK ONLY): ⁠https://bit.ly/48QJJrk⁠  GENETIC TEST (USA ONLY): ⁠⁠https://bit.ly/3Yg1Uk9⁠  GOPUFF: GET YOUR FAVORITE SNACK!: ⁠https://bit.ly/4obIFDC⁠  H2TAB: “ULTIMATE10” FOR 10% OFF: ⁠https://bit.ly/4hMNdgg⁠  HEALF: 10% OFF YOUR ORDER: ⁠https://bit.ly/41HJg6S⁠  PEPTUAL: “TUH10” FOR 10% OFF: ⁠https://bit.ly/4mKxgcn⁠  SNOOZE: LET'S GET TO SLEEP!: ⁠https://bit.ly/4pt1T6V⁠  WHOOP: JOIN & GET 1 FREE MONTH!: ⁠https://bit.ly/3VQ0nzW⁠  Watch  the “Ultimate Human Podcast” every Tuesday & Thursday at 9AM EST: YouTube: ⁠https://bit.ly/3RPQYX8⁠ Podcasts: ⁠https://bit.ly/3RQftU0⁠ Connect with Gary Brecka Instagram: ⁠https://bit.ly/3RPpnFs⁠ TikTok: ⁠https://bit.ly/4coJ8fo⁠ X: ⁠https://bit.ly/3Opc8tf⁠ Facebook: ⁠https://bit.ly/464VA1H⁠ LinkedIn: ⁠https://bit.ly/4hH7Ri2⁠ Website: ⁠https://bit.ly/4eLDbdU⁠ Merch: ⁠https://bit.ly/4aBpOM1⁠ Newsletter: ⁠https://bit.ly/47ejrws⁠ Ask Gary: ⁠https://bit.ly/3PEAJuG⁠ Timestamps 00:00 - Introduction 01:03 - Mark Manson on the show 02:25 - Outsider years and meeting his wife in Sao Paulo 04:35 - The arrival fallacy and altitude sickness 07:40 - Why nobody wants to hear a successful person complain 09:38 - Gary's bankruptcy, divorce, and the day he took radical responsibility 13:18 - Fault versus responsibility (the part most people get wrong) 15:41 - Cymbiotika NAD ad read 16:45 - Tony Robbins, the five-second pause, and self-awareness 18:40 - What ego actually is (Freud's framework) 21:53 - Accurate ego versus delusional ego 22:33 - Marriage, ecosystems, and signing up for everything 24:25 - How to start the journey of introspection 26:51 - Try on beliefs like jeans 29:01 - The dad-bod study and the 80/90% gender split 31:20 - Why people refuse to accept other perspectives 34:05 - Harvard longevity, blue zones, and the relationship variable 38:31 - Why biohackers skip the relationship hack 39:52 - Relationship quality as a set of teachable skills 47:50 - Anxiety as a crisis of hope 54:16 - Cold Life filtered showerhead ad read 55:01 - Young entrepreneurs and the belief problem 58:39 - Why Gary built the Ultimate Human platform with no expectations 01:01:37 - Caregiver syndrome and autoimmune disease in women 01:07:18 - Finding versus cultivating purpose 01:14:18 - The genetic baseline of happiness 01:19:02 - John Gottman on recurring fights and what every happy couple has 01:21:53 - Where to find Mark 01:22:20 - What does it mean to you to be an Ultimate Human? Disclaimer: This podcast is for informational purposes only and does not provide medical advice. It is not intended for diagnosing or treating any health condition. Always consult a licensed healthcare professional before making health or wellness decisions. Learn more about your ad choices. Visit megaphone.fm/adchoices