Podcasts about Krabbe

Granat gefällig? In der heutigen Episode von Teetied & Rosinenbrot dreht sich alles um eine kleine, aber feine Delikatesse aus dem Wattenmeer: die Nordseegarnele – bei uns liebevoll „Granat“ oder schlicht „Krabbe“ genannt. Wir klären, warum Krabben gar keine echten Krabben sind, wie sie leben, was sie fressen (Spoiler: fast alles!) und wie sie vom Kutter aufs Schwarzbrot kommen. Die ganze Wahrheit über Nordseekrabben Ihr erfahrt, warum Krabben an Bord schon gekocht werden, wieso die meisten Garnelen ihre Schale in Marokko verlieren – und wie ihr selbst zum Krabbenpul-Profi werdet. Dazu gibt's Tipps für das perfekte Krabbenbrot (mit oder ohne Spiegelei) und ein Mayonnaise-Rezept, das schneller geht als Ebbe und Flut wechseln. Eine Folge voller Küstenwissen, Küchenduft und Krabbenglück – reinhören lohnt sich! +++ Alle Hintergrundinfos und Bilder zur Episode: https://freilenzen.dornum.de/nordsee-podcast/nordseekrabbe/ P.S. Erlebe die besondere Atmosphäre des Krabbenfangs im Kutterhafen in Dornumersiel und hol dir die typischen Krabbenrezepte https://www.dornum.de/mein-dornum/essen-trinken/ostfriesische-rezepte/nordseekrabben https://www.dornum.de/erlebnisse/details/kutterhafen-dornumersiel

Last Breath | Hochspannung im Tiefwasser Hört nicht auf Sebastian, die Krabbe aus "Arielle". Das rote Krustentier singt zwar davon, wie schön es „Unter dem Meer“ ist, aber das Survival-Drama "Last Breath" macht klar, dass es dort unten düster, kalt und lebensgefährlich ist. Eine Erkenntnis, die für die Tiefseetaucher Dave (Simu Liu) und Chris (Finn Cole) nichts Neues ist, und dennoch machen sie ihren Job. Doch als es zu einem Unfall kommt, beweist einer der beiden außerordentliche Nehmerqualitäten, während Woody Harrelson in der Taucherglocke sitzt und mitfiebert. Britt-Marie, Kathi und Stu verraten euch in diesem Podcast, ob sie ebenfalls mitgefiebert haben oder ob der Film nach einer wahren Geschichte, der am 8. Mai in die Kinos kommt, doch nur so aufregend ist wie Planschen im aufblasbaren Schwimmbecken. Viel Spaß mit der neuen Folge vom Tele-Stammtisch! Trailer Werdet Teil unserer Community und besucht unseren Discord-Server! Dort oder auch auf Instagram könnt ihr mit uns über Filme, Serien und vieles mehr sprechen. Wir liefern euch launige und knackige Filmkritiken, Analysen und Talks über Kino- und Streamingfilme und -serien - immer aktuell, informativ und mit der nötigen Prise Humor. Website | Youtube | PayPal | BuyMeACoffee Großer Dank und Gruß für das Einsprechen unseres Intros geht raus an Engelbert von Nordhausen - besser bekannt als die deutsche Synchronstimme Samuel L. Jackson! Thank you very much to BASTIAN HAMMER for the orchestral part of the intro! I used the following sounds of freesound.org: 16mm Film Reel by bone666138 wilhelm_scream.wav by Syna-Max backspin.wav by il112 Crowd in a bar (LCR).wav by Leandros.Ntounis Short Crowd Cheer 2.flac by qubodup License (Copyright): Attribution 4.0 International (CC BY 4.0)

We krijgen nog weleens kritiek naar ons hoofd gegooid. Veel mensen vinden dat onprettig, pijnlijk of onterecht. Maar aan wie ligt dat? Aan jou of aan degene die de kritiek uit? Misschien wel een beetje van beide. En hoe ga je nu wel goed met kritiek om? Psychologen Thijs Launspach en Lennard Toma bespreken deze en andere vragen over kritiek. Aangezien ze zelf weleens kritiek krijgen, delen ze daar genoeg anekdotes van en hoe ze ermee zijn omgegaan. Bronnen en ander lees- en luister- en kijkvoer:- Simon Sinek over hoe je dealt met kritiek:https://www.youtube.com/watch?v=q-xeFtXih7s - En ook een leuke van een boeddhist:https://www.youtube.com/watch?v=iIlL79mspH8 - Check ook de cursussen en trainingen die je kunt volgen van Thijs op The School of Life:https://www.theschooloflife.com/amsterdam/ - Een stukje van een therapeut over de straffende superego:https://www.youtube.com/watch?v=7vaoxkS4TVk - De feedback procedure die Lennard heeft opgesteld en bij verschillende bedrijven heeft geïmplementeerd: de Collega Meting: https://www.lennardtoma.nl/post/alternatief-voor-functioneringsgesprekken-collega-meting-een-praktisch-format Nerd-literatuur: - Krabbe, E. C., & van Laar, J. A. (2011). The ways of criticism. Argumentation, 25(2), 199-227. - Baron, R. A. (1990). Countering the effects of destructive criticism: The relative efficacy of four interventions. Journal of Applied Psychology, 75(3), 235.- Deb, D., Dey, R., Balas, V. E., Deb, D., Dey, R., & Balas, V. E. (2019). Contributions, Arguments, and Dealing with Criticisms. Engineering Research Methodology: A Practical Insight for Researchers, 67-77.- Hornsey, M. J. (2005). Why being right is not enough: Predicting defensiveness in the face of group criticism. European review of social psychology, 16(1), 301-334.

Hey Leute, heute erlebt die komplette Krosse Krabbe ein kleines Makeover!Was passiert wenn man einen Teenager die alleinige Befehlsgewalt über ein Restaurant gibt? Richtig es wird pures Chaos.Wie sieht dieses Chaos aber aus und was genau hat Rassismus damit zu tun?Das und noch viel weniger erfahrt ihr in dieser Folge von SpongeCast!

From October 24, 1997: Oprah revisits five lessons she learned over the years about to how help families around the world learn to be happier. Some audience members say, “I love you” for the first time and Oprah shares ways to show love without having to say, “I love you.” She also reveals some of her favorite tips from family-focused books, 7 Habits of Highly Effective Families, by Steven Covey, and Simple Abundance, by Sarah Ban Breathnach. Plus, Oprah talks with former Buffalo Bills quarterback Jim Kelly and his wife, Jill, about the lessons they've learned from their son Hunter, who at the time was dying from Krabbe's disease. After being given only three years to live, Hunter passed away in 2005 at the age of eight.

I dag skal vi høre hvilke sanser Kristine anser som de viktigste når du er på tiurjakt, og finnes det fullgode hjelpemidler for å bedre sansene dine?Robert har vært på post i jervebua og vi har deltatt på klubbmesterskapet for fuglehundklubben - det mest prestisjefylte arrangementet i året!Vi har også oppdaget at kroppen fylles opp av mikroplast fra redskaper du bruker hver dag på kjøkkenet. Da må ting og tang byttes ut og Roberts store spørsmål er hvilken skjærfjøl man skal velge...Og hva har en krabbe og en kointepellar å gjøre med dagens episode?Vi går igjennom utstyrsboden vår og presenterer hver uke en omtale av utstyret vi besitter. Er det bra eller må bør det byttes? Du finner filmene på vår patreonside.Har du ønsker om hvilket type utstyr vi skal snakke om er det bare å sende oss en melding :) Støtt podcasten vår og få eksklusivt innhold og rabatter i nettbutikken med Patreon Hosted on Acast. See acast.com/privacy for more information.

Wo stehen wir mit der Energiewende? ; Schwangerschaftspause bei Menschen? ; Straßenverkehr - So kann er sicherer werden ; Woher kommt der Judenhass? ; Geht Krabbenfischerei auch ökologisch? ; Vitamin D hilft - Oder ist das nur ein Mythos? ; Wirkstoff aus Gift des Höhlenkrebs ; Moderation: Sebastian Sonntag. Von WDR 5.

FC Midtjylland fejrer sine første 25 år i 2024. Klubben blev født som en fusion mellem to ærkefjender og stod overfor stærke, etablerede konkurrenter i en ubarmhjertig fodboldbranche. De fleste levnede ikke klubben mange chancer. Chancen var faktisk så lille, at konkurrenterne ikke engang gad besvære sig med at kvæle projektet i opstarten. Det fortryder de måske i dag, for nu er FC Midtjylland en regulær storklub i Danmark. I denne udsendelse fra Sort Snak kan du møde Dan Sørensen og Hans Krabbe, som netop har udgivet bogen Ulvetider om Midtjyllands historie. Hør dem fortælle om de særlige personligheder der, trods store personlige ofre, drev klubben fremad i jagten på at etablere sig. Vi skal beklage lydproblemerne i den sidste del af udsendelsen.:(

Man nehme 2 Mäuse, einen Hammer, eine Krabbe, einen riesen Zahn und den Paten. Und man erhalten: Eine neue Folge Sortier Survival Champions: Paldea! Viel Spaß beim Hören! Du möchtest die Premium-Inhalte jeder Episode hören? Werde Teil unserer Wuffels Elite und höre die Episode 2 Tage vor allen anderen! Zum Abo❤️ ⁠⁠⁠⁠⁠https://podcasters.spotify.com/pod/show/wuffelswillswissen/subscribe⁠⁠⁠⁠⁠ 

During this year's Hunter's Hope Family Symposium we had two amazing conversations with some of the siblings of children affected by Krabbe Disease and other Leukodystrophies. Last week we introduced you to 6 of our siblings and this week we are introducing you to 6 more! Two (Michael and Elijah) of which have Krabbe disease and received life saving transplants! Their lives are a miracle and testimony to what God can do! This was another episode that felt like a family reunion!We talk about life, faith, and so much more, including...What they've learned through their sibling and what they would ask God for if they knew He would grant their request. We hope you are blessed and encouraged! Michael, Marissa, Elijah, Brooklynn, Bryce, and Kayden... Thank you so much for sharing your heart with us! We love you and we are so thankful to call you family!Song: Lofi Chill Hip Hop Beat - SpringVibes (youngfrenchy808)Shop HH x MH Collection here.Learn more about our Podcast, Episode Guests and Hunter's Hope here.

Die schönsten Märchen aus Japan zum Einschlafen, Träumen und Entspannen. Eine #Hörbuch Compilation (Zusammenstellung) für Kinder und Erwachsene.

The federal government added a new disease to its recommended list for newborn screening. But, it could be years before Wisconsin tests for the deadly disorder. In this episode of Open Record, FOX6 Investigator Bryan Polcyn explains why your baby's life could depend on where it's born. It's part of Bryan's continuing investigation into the rare Krabbe disease and newborn testing for it. Learn more about your ad choices. Visit megaphone.fm/adchoices

Fluent Fiction - Danish: Harmony in Nyhavn: A Musical Adventure to Find Krabbe Find the full episode transcript, vocabulary words, and more:fluentfiction.org/harmony-in-nyhavn-a-musical-adventure-to-find-krabbe Story Transcript:Da: Freja løb gennem Nyhavn, hendes hår svajede i den friske efterårsvind.En: Freja ran through Nyhavn, her hair swaying in the fresh autumn wind.Da: Det var en smuk dag i København med solens blik over kanalen, men Freja var ikke her for festivalens charme.En: It was a beautiful day in Copenhagen with the sun glancing over the canal, but Freja was not here for the charm of the festival.Da: Hun ledte efter Krabbe, hendes kære krabbe, der var stukket af fra hende.En: She was looking for Krabbe, her dear crab, who had escaped from her.Da: Musikken spillede højt over højtalerne, og folk grinede og dansede på de brostensbelagte gader.En: Music blared over the speakers, and people laughed and danced on the cobblestone streets.Da: Krabbe havde på mystisk vis fundet vej ombord på en af de pyntede både langs kanalen.En: Krabbe had mysteriously found his way onto one of the decorated boats along the canal.Da: Det var Astrids båd, en farverig labyrint af kunstværker og skulpturer.En: It was Astrid's boat, a colorful labyrinth of artworks and sculptures.Da: "Hvordan kom han derop?"En: "How did he get up there?"Da: tænkte Freja panisk og vendte sig mod Mikkel, hendes bedste ven, der altid havde et grin gemt i ærmet.En: Freja thought anxiously and turned to Mikkel, her best friend, who always had a laugh up his sleeve.Da: "Måske kan vi bruge musikken," foreslog Mikkel og blinkede til Freja.En: "Maybe we can use the music," Mikkel suggested, winking at Freja.Da: Han tog sin guitar frem fra sin rygsæk, et næsten permanent tilbehør i disse festlige tider.En: He took out his guitar from his backpack, an almost permanent accessory in these festive times.Da: "Krabbe er jo glad for musik.En: "Krabbe loves music.Da: Lad os spille hans yndlingsmelodi."En: Let's play his favorite tune."Da: De gik tættere på Astrids båd, hvor Astrid selv stod iført en malerplettet jakke.En: They moved closer to Astrid's boat, where Astrid herself stood wearing a paint-splattered jacket.Da: "Hjælper I en ven i nød?"En: "Helping a friend in need?"Da: drillede hun med et venligt smil, da hun så deres alvorlige udtryk.En: she teased with a friendly smile when she saw their serious expressions.Da: "Vi leder efter min krabbe," forklarede Freja ivrigt.En: "We're looking for my crab," Freja explained eagerly.Da: "Han elsker musik, og vi håber at lokke ham frem."En: "He loves music, and we're hoping to lure him out."Da: Astrid grinede varmt.En: Astrid laughed warmly.Da: "Så lad os sætte scenen for hans store optræden!"En: "Then let's set the stage for his grand performance!"Da: Hun ønskede dem velkommen ombord.En: She welcomed them onboard.Da: Mikkel begyndte at spille en blid melodi, der flød sammen med de andre lyde fra festivalen.En: Mikkel began to play a gentle melody that mingled with the other sounds of the festival.Da: Lidt efter lidt samlede en lille gruppe sig, nysgerrige over, hvad der foregik.En: Little by little, a small crowd gathered, curious about what was happening.Da: Freja lyttede opmærksomt.En: Freja listened intently.Da: Pludselig, til alles store overraskelse, dukkede Krabbe op.En: Suddenly, to everyone's great surprise, Krabbe appeared.Da: Han møvede sig vej ud af en af de farverige installationer, vinkende sine kløer i takt med musikken.En: He maneuvered his way out of one of the colorful installations, waving his claws in time with the music.Da: En bølge af latter og klapsalver strømmede gennem folkemængden.En: A wave of laughter and applause flowed from the crowd.Da: Freja sprang frem og samlede Krabbe op, lettet over at have ham i sine arme igen.En: Freja rushed forward and scooped Krabbe up, relieved to have him in her arms again.Da: "Tak!En: "Thank you!Da: Tak!"En: Thank you!"Da: udbrød hun til Mikkel og Astrid, der begge lo af glæde.En: she exclaimed to Mikkel and Astrid, who both laughed with joy.Da: "Det er ikke enhver dag, man redder en krabbe med musik," grinede Astrid.En: "It's not every day you rescue a crab with music," Astrid chuckled.Da: "Bliv her.En: "Stay.Da: Festen er stadig ung."En: The party is still young."Da: Sammen med Mikkel og Krabbe slappede Freja af og nød resten af aftenen.En: Together with Mikkel and Krabbe, Freja relaxed and enjoyed the rest of the evening.Da: Hun vidste, at livet var som denne festival - fuld af overraskelser.En: She knew that life was like this festival—full of surprises.Da: Nogle gange skulle man lade kaoset råde og bare have det sjovt.En: Sometimes you had to let chaos reign and just have fun.Da: Fiasko var blevet til en uforglemmelig aften, hvor venskaber blev styrket, og glæden ved musik og fællesskab blev fejret.En: A mishap had turned into an unforgettable evening, where friendships were strengthened, and the joy of music and community was celebrated.Da: I det bløde lys fra bådene og med musikken svævende i luften, nød Freja, Mikkel og Astrid efterårsfesten.En: In the soft light from the boats and with the music floating in the air, Freja, Mikkel, and Astrid enjoyed the autumn festival.Da: Krabbe hvilede stille i Frejas hænder, hendes lille, musikelskende ven, og Freja havde lært en uvurderlig lektion – nogen gange måtte man bare give slip og se, hvor livets strøm førte en hen.En: Krabbe rested quietly in Freja's hands, her little, music-loving friend, and Freja had learned an invaluable lesson—sometimes you just have to let go and see where life's current takes you. Vocabulary Words:swaying: svajedeglancing: blikcharm: charmeescaped: stukket afblared: spillede højtcobblestone: brostensbelagtemysteriously: på mystisk visdecorated: pyntedelabyrinth: labyrintsculptures: skulptureranxiously: paniskmelody: melodimingled: flød sammenintently: opmærksomtmaneuvered: møvedeinstallations: installationerwaving: vinkendeapplause: klapsalverscooped: samlederelieved: lettetexclaimed: udbrødunforgettable: uforglemmeligstrengthened: styrketsoft: blødefloating: svævendecurrent: strømgrand: storeperformance: optrædenwelcomed: ønskede velkommenlure: lokke

Zieht die Taucherbrillen auf und packt die Badehose ein, denn der 42 Podcast taucht heute nicht nur unter Wasser. Timon beichtet, erst jetzt einen absolut schwammtastischen Klassiker nachgeholt zu haben und beschäftigt sich mit einem Familienfluch, der Zac Efron das Leben schwer macht. Marcel stellt mal wieder, mit einer außergewöhnlichen (?) Filmperle unsere Mägen auf die Probe und unterstützt den lieben Marco aka Nerdkultur bei seinem Bestrafungsfilm, dem Tommy Wiseau alle Ehre macht! Auf der iMDb-Topliste erstrahlt allerdings heute zum ersten Mal eine absolute Ikone der Filmgeschichte und verzaubert unsere beiden Filmfreunde mit ihrer magischen Ausstrahlung.Werbung | Gönnt euch eine leckere Drinks mit unserem Partner HOLY: https://weareholy.com/filmpodcastSchickt uns euer Feedback: https://www.instagram.com/42podcast/- - -

On this week's edition of The Spark Weekly:   WITF's Director of Journalism Scott Blanchard, and LNP's Managing Editor of Content Stephanie Zeigler, spoke with The Spark's Asia Tabb about their commitment to staying accurate when covering breaking news. Zeigler also spoke with Asia about language around reporting breaking news and why that matters and building trust with the community when reporting.  Lesa Brackbill is a wife, mother, advocate, and author raising awareness about Krabbe Disease.Support WITF: https://www.witf.org/support/give-now/See omnystudio.com/listener for privacy information.

Lesa Brackbill is a wife, mother, advocate, and author raising awareness about Krabbe Disease. Her daughter Victoria was born in July 2014 and began exhibiting symptoms of Krabbe Disease in January 2015. “She was perfectly healthy, so we thought. And it wasn't until she was five months old that everything changed. She became a completely different baby. It was it was kind of like a light bulb or a light switch had been flipped. She had stopped smiling, talking, laughing, playing, you name it. And we were like, first time parents. Is this, okay? Like, I don't think so. So, we began to pursue answers, but we never, ever would have dreamed that we would receive a diagnosis like Krabbe disease, which is fatal. And so, on February 13th, we were told that our six-month-old daughter was dying.” Lesa soon found there was no cure for Krabbe, and treatment could've began at birth. However, Victoria was not screened for Krabbe when she was born. “When I think back to diagnosis Day, I think about how when we were pleading with the neurologist for something that we could do because we were like, it's 2015, what do you mean? Our daughter's dying and there's nothing you can do. And she said, if they had caught it at birth, they could have treated it.”   Victora passed away on March 27, 2016. In her honor, Lesa has devoted her time to advocating for newborn screening of Krabbe, and raising awareness of Krabbe Disease. She's even strengthened the Newborn Screening Program through Act 133 that was signed into law in Pennsylvania in 2020.  Support WITF: https://www.witf.org/support/give-now/See omnystudio.com/listener for privacy information.

It's literally cherry on the cake to speak to a company said to be the only in the world so far that produces wine from – not grapes, but cherries!  Our guest for today is Frederiksdal, a Danish firm that specialises in beverages like juices and wines made from Danish Stevns Cherry.  These are not the sweet cherries we eat during summer time, but those that taste sour with high sugar and acid content.  Such cherries are called Grapes of the North. They are not eaten directly but are said to be perfect for making items like sauces, juices, jams or even wines.  Back to Frederiksdal, the firm is named after the Frederiksdal Estate in Southern Denmark which grows these cherries.  It traces back to 1756 and has been owned by the Krabbe family for three generations, who used to sell the cherries to juice manufacturers.  But as life would have it, cherry prices tumbled in 2006, prompting its third generation owner to make the cherries farmed into wine and juices on its own instead.  The story takes itself forward from there, as the firm grows to become one of the biggest wineries in Nordic cities, shipping its products to all parts of the world. So how has Frederiksdal's value proposition changed over the years and how has that transformation process reaped benefits for the firm? Meanwhile, the company had said in a media report that its key export markets now include Singapore, China, the US and Japan. But what is driving export demand right now and what will continue to be its key drivers of growth? On Under the Radar, The Evening Runway's finance presenter Chua Tian Tian posed these questions to Harald Krabbe, Founder, Frederiksdal.See omnystudio.com/listener for privacy information.

how bringing up a family and combining with a full time job has brought about challenges and how these difficulties were overcome and the sacrifices that were made to get by! Geraldine and Marianne in conversation with Ann Giblin, Mary Coffey and after a brief musical interlude talk to Laura Krabbe about how moving from Holland to Ireland before the economic crash in 2008 has turned into 16 years living in Tuamgraney in rural east Clare. Laura opened the trading post in 2018 and recently moved to the old Hassets pub and is expanding the products and services provided. https://www.facebook.com/eastclaretradingpost  Saturday Chronicle 6th April  2024 as broadcast live from the Trading Post in Tuamgraney as part of Tuamgraney Harp Festival 2024 Hosted by Geraldine Colleran and Marianne Purcell Saturday Chronicle is kindly sponsored by James M Nash and Co and Derg Kitchen Design   http://dergkitchendesign.ie Outside broadcast in Association with Michael Long Construction  

17. Kapitel - Ein unterseeischer WaldStaunend über die Meeresfauna und Flora, die oft verwirrend ineinander überging und Verwechslungen von Tier und Pflanze provozierte, legten sie die Gruppe ein Stündchen zum Schlafen auf den Meeresgrund. Kaum erwacht sieht sich Pierre Arronax einer hässlichen grossen Krabbe, einer Meerespinne, gegenüber, die aber sogleich vom Matrosen erlegt wird. Das Ende des Waldes erreichend macht die Partie kehrt und sich auf den Weg zurück zur Nautilus. Auf dem Weg erlegt Kapitän Nemo noch einen Seeotter und einen Albatros als Jagdbeute. Gerade als die Luft langsam knapp und die Nautilus schon in Sicht, muss sich die Gruppe aber noch vor einem Schwarm von Haien in Acht nehmen. Vorgelesen von Rainer Schuppe; aufgenommen und bearbeitet im Coworking Space Rayaworx, Santanyí, Mallorca.

Wolfgang Wee Uncut presenter: Mat & Ernæring med Birger Svihus. Birger Svihus er professor i ernæring ved Fakultet for biovitenskap, Norges miljø- og biovitenskapelige universitet. 0:00 Østers 3:00 Kamskjell 6:00 Næringsstoffer 8:00 Reker 12:00 Kolesterol 12:17 Er kolesterol farlig? 15:40 Hummer, kreps og krabbe 17:49 Kongekrabbe 20:22 Blåskjell 22:10 Tang og tare 22:28 Sjøgress 26:00 Karragenan og alginat

Den hvælvede tumor med sine tentakler ud i kroppen ligner et krebsdyr, og kræften fik deraf sit navn for op mod 3000 år siden - cancer. Siden da - og endda længe før - har mennesket forsøgt at få bugt med den indbyggede fejl i skaberværket. Primitiv kirurgi, inhumane medicinske forsøg og religiøse gisninger har omgærdet kroppens angreb på sig selv. En historie, som arkæolog og museumsinspektør på Nationalmuseet, Jeanette Varberg, har taget på sig at skildre, mens hun selv gennemgår den grusomme behandling for brystkræft. I dag fortæller hun om, hvad historiens kvinder har åbenbaret for hende. Vært: Anna Ingrisch. Program publiceret i DR Lyd d. 8/3.

ONCE UPON A GENE - EPISODE 214 A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari Anne Rugari is an advocating powerhouse, an author of two children's books, a mom, and two of her children have passed away from Krabbe disease. She joins us to share her personal story and also share her knowledge about tissue and organ donation. EPISODE HIGHLIGHTS Can you share how you became part of the rare disease world? In 1986, my second child Nick received a diagnosis of Krabbe disease, or globoid cell leukodystrophy, a terminal disease that took him just after his first birthday. I also had a three year old son who was unaffected and we decided we probably wouldn't have another child with a rare disease if we wanted more children. In 1999, my daughter Gina was born and tested for Krabbe disease, confident the odds were with us. Unfortunately, she tested positive. As a result of an umbilical cord blood transplant she had at three weeks old, she did remarkably well and lived to fifteen years old.  What were your considerations when deciding to donate Gina's brain for research? It's an emotional, practical and religious decision. There are so many factors that play into the decision. For me personally, I wanted to make sure I was making a sound decision morally and spiritually. I felt we weren't going to learn more about the disease unless there were human tissues and samples to study. It was a decision I felt strongly about to help others. There's a source of comfort knowing that the tissues donated are being used to move research forward.  Why is it important to consider and arrange tissue donation in advance? It's emotional and you don't want to be making those decisions at a time when you've lost them. There's also some coordination that needs to be planned, ensuring there's a pathologist available at the hospital for the retrieval. Planning in advance allows you time to coordinate the details, like if passing takes place at home instead of the hospital, and notifying the funeral home so they can coordinate with the pathologist. Getting the logistics organized in advance makes the transition when someone passes away easier. Discuss plans in advance with your care team so they can help with arrangements and support you.  LINKS AND RESOURCES MENTIONED ONCE UPON A GENE - EPISODE 213 - Finding Strength In Every Step https://effieparks.com/podcast/episode-213-finding-strength-in-every-step ONCE UPON A GENE - EPISODE 198 - Advocating with Heart - Striking the Balance Between Medical Insights and Personal Narratives - A Tribute to Valerie Marie with RING14 Co-Founder Yssa Dean DeWoody https://effieparks.com/podcast/episode-198-advocating-with-heart Courageous Parents Network  https://courageousparentsnetwork.org/ Anne Rugari Website https://www.annerugari.com/ Just Like Me!: A Book About A Girl with a Rare Disease https://www.amazon.com/Just-Like-Me-about-Disease/dp/0982218710 Just Like Me Too! https://www.amazon.com/Just-Like-Too-Anne-Rugari/dp/1970063378 CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/

Award winning photographer Reuben Krabbe joined us to discuss travelling to places like the arctic in his pursuit of unbelievable photos, how to make creativity meaningful, living in a van, Protect Our Winters, and his world famous trilogy of photos - Eclipse, Nebula, Aurora.

Hansa Vinterlys står på menyen i dag, men også en Rhum Agricole fra Madagaskar som viser seg å være mildt sagt skummelt god. Blackout juice much?I årets julekalender har vi litt av samme tema som i fjor. Med andre skal vi drikke øl, cider, og andre godsaker, men det blir også innslag av snacks i enkelte episoder. Kan røpe at noe av det vi skal spise ikke blir mottatt veldig godt. Episodene blir lengere enn i fjor, og vi skal faktisk drikke mer (vet ikke om det er en kjempe ide). Hosted on Acast. See acast.com/privacy for more information.

Wow, schon Folge 15!Heute berichten wir euch von der Gamescom, sprechen über den Lorcana 10 Jahres-Plan und bewerten endlich die Karten weiter. Hier die Liste der besprochene Karten: Magische Goldene Blume 169/204Simba - Rechtmäßiger Thronfolger 190/204Durchwühlen 199/204Herr Smee - Loyaler Erster Maat 15/204Pumbaa - Freundliches Warzenschwein 17/204Du hast mich vergessen 31/204Dr. Facilier - Bemerkenswerter Gentlemen 39/204Die Königin - Boshaft und eitel 56/204Ursula - Machtgierig 59/204, Einfrieren 63/204Dschinni - Entfesselte Energie 76/204Tamatoa - Glanzlose kleine Krabbe 92/204Nehmt von den Reichen 97/204Nasseweis - Stets hilfsbereit 93/204Dr. Faciliers Kartern 101/204Maui - Held von allen 114/204Vaiana - Vom Ozean auserwählt 117/204Te Ka - Brandgefährlich 126/204Te Ka - Herzlos 192/204Peter Pan - Furchtlose Kämpfer 119/204Tui - Respektierter Anführer 143/204-----------Tintenvorrat ist der deutschsprachige Fan-Podcast rund um das Sammelkartenspiel (TCG) Disney Lorcana von Ravensburger. Egal ob Sammler, Casual oder Competitive, hier bist du richtig! Bei Fragen oder Anregungen schreib uns unter tintenvorrat@gmail.com.Martins Content: https://linktr.ee/whippet_playsRafaels Content: https://linktr.ee/lorcanagermanyLorcanaDACH Discord: https://discord.gg/CSKffcHTrqLorcanaDACH Instagram: https://www.instagram.com/lorcanadachDisclaimer:Tintenvorrat ist ein inoffizieller Fan-Podcast für Disney Lorcana und steht in keinem Zusammenhang mit Ravensburger und Disney.Tintenvorrat Podcast uses trademarks and/or copyrights associated with Disney Lorcana TCG, used under Ravensburger's Community Code Policy (https://cdn.ravensburger.com/lorcana/community-code-en). We are expressly prohibited from charging you to use or access this content. The Tintenvorrat Podcast is not published, endorsed, or specifically approved by Disney or Ravensburger. For more information about Disney Lorcana TCG, visit https://www.disneylorcana.com/en-US/.”

Ist es eine Fledermaus? Ist es eine Krabbe? Nein es ist Destoroyah! Daniel und Nerd Steffen diskutieren in dieser Episode Godzillas fulminantes Finale der Heisei-Ära. Aber wäre Film wirklich ein gelungener Abschluss gewesen, hätte man danach tatsächlich aufgehört, Godzilla-Filme zu drehen? Weitere Podcasts und Infos unter: linktr.ee/nerdnerdnerd Unterstützt uns finanziell, in dem ihr in unseren Moneypool einzahlt: https://www.paypal.com/paypalme/KatiF?locale.x=de_DE Feedback geht so: Mastodon: koenigderpodcasts@podcasts.social Twitter: @PodcastKoenig E-Mail: nerdnerdnerd.podcast@gmail.com "Evil March" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Wir laufen uns eine Krabbe, tapezieren mit Wildbienen und gucken uns satt. Und dann müssen wir doch dringend auch mal über die Deutsche Bahn reden. Alles in Folge 95!

In den Chromosomen sind alle Erbinformationen gespeichert. Mehrere Tausend Gene stecken in ihren Zellkernen. Das ist bei allen Lebewesen so. Der Mensch hat insgesamt nur 46 Chromosomen - eine Krabbe bringt es auf 254. Was macht den Menschen eigentlich zum Menschen? Autorin: Veronika Bräse

Anne Rugari is the founder of the Partners for Krabbe Research and a consultant for the NDRD Brain and Tissue Bank, a biorepository of sorts that harvests brains and tissues of neurodegenerative or neurodevelopmental brains for research. She started the foundation in 2012 after her two children were diagnosed with Krabbe disease and her daughter was the fourth newborn to receive treatment for the disease. To date, 18 patients have donated to the Brain and Tissue Bank, and three peer-reviewed manuscripts have been published to help translate research into treatment. Additionally, Anne is a prominent advocate for Krabbe research, more information on which can be found on Krabbes.org.

On February 9th, Jill Kelly shared Hunter's story before the Federal Newborn Screening Advisory Committee.Along with other families, doctors, and foundations, Hunter's Hope has been trying to get Krabbe disease on the Federal Newborn Screening Panel for almost two decades so that every child born in the United States is screened at birth and diagnosed in time to receive life saving treatment.The decision made by this committee is a matter of life and death.If Hunter was screened at birth for Krabbe disease he might still be here today.But he was not screened at birth and therefore he was never able to get life saving treatment.Jill shares the shocking results of the committee's decision and how it affects every child born in the United States.If you would like more information regarding Newborn Screening and how you can help us, please visit the Hunter's Hope website here.Shop HH x MH Collection here.Learn more about our Podcast, Episode Guests and Hunter's Hope here.

$5 Q-BANK: https://www.patreon.com/highyieldfamilymedicine Intro 0:30, Galactosemia 1:36, Hereditary fructose intolerance 3:37, Essential fructosuria 4:21, Glycogen storage diseases 4:43, Period Acid Schiff and Diastase test (PAS-D) 5:57, Von Gierke disease 5:13, Pompe disease 6:33, Cori disease 7:41, Andersen disease 8:16, McArdle disease 8:56, Phenylketonuria 11:05, Alkaptonuria 12:56, Maple syrup urine disease 14:14, Homocystinuria 15:56, Urea cycle disorders 17:35, Fatty acid metabolism disorders 19:09, Lysosomal storage diseases 20:25, Tay-Sachs disease 20:53, Niemann-Pick disease 22:02, Gaucher disease 22:39, Metachromatic leukodystrophy 23:34, Krabbe disease 24:36, Hurler disease and Hunter disease 25:36 Fabry disease 26:28, Lesch-Nyhan syndrome 27:26, Adenosine deaminase deficiency 28:15, Practice questions 28:42

Im Reigen der seltenen und seltsamen Unterwasser-Abenteuer geht es um eine kleine Krabbe. Wer hätte geahnt, dass die Kleine so groß herauskommt?! Aus der OHRENBÄR-Hörgeschichte: In den Tiefen des Meeres (Folge 3 von 6) von Klaus Goldinger. Es liest: Jens Wawrczeck.

Irgendwo im Atlantik zwischen Amerika und Europa haben sie sich getroffen: der Steinbeißer und der Sägefisch. Damit beginnt ein Reigen seltener, seltsamer Unterwasser-Abenteuer. Der Steinbeißer sucht nach dem härtesten Stein, eine kleine Krabbe kommt groß heraus, ein Aal brüstet sich mit seinen Reisen. Er ahnt nicht, dass der Seestern von viel weiter herkommt ... Alle 6 Folgen der OHRENBÄR-Hörgeschichte: In den Tiefen des Meeres von Klaus Goldinger. Es liest: Jens Wawrczeck.

Zu Beginn der Aufnahme war Ryan Santoso der Kicker der Jacksonville Jaguars, am Ende der Aufnahme war er es nicht mehr. Dazu Game Winning Field Goals in der ELF und das Ende des Punter-Duells in Buffalo (und Miami).

Lesa Brackbill joins the podcast today to share about the painful journey she walked in losing her daughter Tori and how God has brought so much redemption from that pain and turned it into a story of hope and advocacy.Lesa Brackbill is a California native and Azusa Pacific University alumna who made central Pennsylvania her home thirteen years ago. She met her husband, Brennan, not long after moving, and they now call Hershey home. They have 3 children: Tori (Heaven), and identical twin boys Isaiah and Caleb. Lesa enjoys writing, photography, traveling, being a tour guide, and advocacy for Newborn screening for Krabbe.  You can find her book, Even So, Joy: Our Journey through Heartbreak, Hope, and Triumph here.

Episode 216: Danish artist in Spain, Caroline Krabbe chats with me about her first solo exhibition, Catarsis at the Museo De Nerja. In the exhibit, she uses both her paintings and ceramics to achieve and express catarsis, a greek word, the root of our catharsis, which is to purge and purify emotions to bring about […] The post Danish artist in Spain, Caroline Krabbe chats with me about her Catarsis exhibit appeared first on Let's Talk Art With Brooke.

Colin of Roost Goggles joins us on the podcast this week! WE PROMISE THIS IS NOT AN AD! Colin came recommended from Pierre (The Motofam) and he was a blast to talk to about all things moto, amateur racing, and more. We also learned a lot about how goggles are made and the R&D that goes into them!

NSGC Podcast Subcommittee members Ryan Kuehl, Liann Jimmons, and Jessica Dronen discuss the implications for healthcare systems and the role of genetic counselors in an evolving newborn screening landscape with Dr. Debra Lynn Day-Salvatore, MD, PhD, FAAP, FACMG; Amy Gaviiglio, MS, CGC; and Laiken Peterson, MS, LCGC. This episode discusses the Journal of Genetic Counseling (JoGC) article "A qualitative assessment of parental experiences with false-positive newborn screening for Krabbe disease" and is part of the JoGC CEU program.

23 Oscar-Nominationen und einen weltweiten Hit mit dem Song «We Don't Talk About Bruno» aus dem Animationsfilm «Encanto». Disney beherrscht das Zusammenspiel von Kunst und Kommerz meisterhaft. Disneyfilme ohne Musik? Unvorstellbar. «Kulturplatz» zeigt anhand der grossen Disney-Klassiker, welchen immensen Stellenwert die Filmmusik hat. Man denke an Balu, den Bären, der es 1967 im Dschungelbuch mal mit Gemütlichkeit probiert, oder die kleine rote Krabbe, die 1989 zusammen mit der Meerjungfrau Arielle die Welt unter dem Meer besingt. Unvergesslich auch der Löwe Simba, der 1994 mit den Tieren der Savanne zum «Hakuna Matata» einstimmt. Was macht die Magie dieser Lieder aus? «Kulturplatz» sucht nach dem gewinnbringenden Strickmuster der Disneymusik. Gleichzeitig sind Disney-Animationsfilme immer auch ein Spiegel der Gesellschaft. Zart, zerbrechlich, ein bezauberndes Lächeln — und hoffentlich bald mit einem Prinzen verheiratet. So werden in den Disney-Filmen die Prinzessinnen dargestellt. Doch was früher beliebt war, ist heute nicht mehr ganz so angesagt. Die Frauenrollen in den Disney-Filmen befinden sich im Wandel, und im Gespräch mit der Kulturwissenschaftlerin Natalie Borsy geht «Kulturplatz» der Frage nach, wie sich Heldenfiguren und Bösewichte im Lauf der Zeit den sich verändernden Geschlechterrollen anpassten.

Entrepreneurship is an important part of a thriving economy, and entrepreneurship education is intended to make sure that those who have the potential to succeed in this way have the resources and knowledge to do so. But the opportunity for innovation, being one's own boss, and making money are not the only reasons that people become entrepreneurs. Some do so to fulfil a kind of fantasy, or simply to look good. And there is an entire educational sub-industry offering to help them to indulge this fantasy, for a price. In Towards an "Un"trepreneurial Economy: the Entrepreneurship Industry and the Veblenian Entrepreneur, authors Hartmann, Spicer, and Krabbe try to explain a strange trend in recent years: while entrepreneurial activity has gone up, success rates for entrepreneurial ventures have gone down. After considering several possible explanations, they ultimately conclude that a major reason for "excess entry" into what one might call "high-class" entrepreneurship (e.g. founding a tech start-up) is due to a sub-class of entrepreneurs who are not driven to pursue real opportunities in the market, but are simply trying to adopt the identity of an entrepreneur because of its high social status. Dubbed "Veblenian entrepreneurs" (or sometimes "wantrepreneurs") after Thorstein Veblen, the sociologist who coined the term conspicuous consumption at the end of the 19th century, these are individuals who are drawn in by a huge industry designed to sell people a dream and a lifestyle which can take them away from everyday mundanity and make them seem successful to their peers. Consumers of the entrepreneurship industry's products (such as courses, conferences, publications, and consultancy) have been shown to engage in more entrepreneurial activity, while actually having lower success rates. This idea is somewhat analogous to the notion of human capital vs. signalling in education economics - in other words, what is the value of education? Does it make you a better and more productive person, or does it just make you look good to employers? (What is the value of entrepreneurship? Does it contribute to the economy, or does it just make you look good on social media?) It also has implications for entrepreneurship educators. Should we really be encouraging entrepreneurship for everybody who is interested, or should we be discouraging those who are least likely to succeed, so that they can make better choices? Enjoy the episode. *** RELATED EPISODES 115. Bullshit Jobs by David Graeber 103. What Video Games Have to Teach Us about Learning and Literacy by James Paul Gee 23. So Good They Can't Ignore You by Cal Newport

In this episode, we welcome Stacy L. Pike-Langenfeld to the Newborn Screening SPOTlight. For many years, Stacy and her family have championed newborn screening research in profound ways through their foundation, called The Legacy of Angels Foundation. Stacy is currently the Executive Director of the foundation which was established in 2008 by Stacy's parents, Paul and the late-Sue Rosenau. The Foundation helps to advance research by bringing world experts together to discover innovations in screening, diagnosis, treatment, and life-long care. Stacy is also the President and co-founder of KrabbeConnect, which is focused on engaging the patient-care model between patients, patient advocacy groups, clinicians, researchers, industry, and government. Stacy will share her story on how her family story intertwined with rare disease research and newborn screening.  She will also highlight annual meetings and discuss ways that you can help advance NBS research. Be inspired by their mission to increase awareness and access to rare disease research.     Podcast Interview Questions with Stacy Pike-Langenfeld:   1. You are the Executive Director of The Legacy of Angels Foundation.  Can you tell our audience how The Legacy of Angels Foundation came to be?     2. Your entire family has played important roles in founding and operating The Legacy of Angels Foundation for many years. Your mother's efforts are especially well known in the newborn screening and rare disease communities. How does her memory guide your efforts today?    3. How have your efforts changed over the years?    4. Your team is growing! Do you have advice for patients, parents, families, and advocates who would like to start similar efforts related to conditions that have impacted their families?    5. Stacy, you are also the President and Co-Founder of KrabbeConnect. What is KrabbeConnect? Could you share with our listeners how these two organizations, The Legacy of Angels Foundation and KrabbeConnect work together?   6. TLOAF filed for Krabbe disease to be added to the MN NBS panel in Dec 2021 and a vote will likely occur in June of 2022. Newborn screening for Krabbe is also under review on a national level. Could you tell us a little bit about how submitting to a state advisory panel differs from a submission to the federal advisory board, which recommends screening for all states, territories and the District of Columbia?   7. Do you have advice for other groups interested in submitting their conditions for review? Any tips on the best approach – state or national?   8. The work of The Legacy of Angels Foundation has always informed the work of the Newborn Screening Translational Research Network or NBSTRN. Are there activities and efforts that you'd like to see NBSTRN facilitate as you work towards new goals?   9. Krabbe Translational Research Network is hosting its annual meeting on March 16-18, 2022? Could you share the agenda with our listeners? If our listeners are listening to this podcast after the meeting, is there a way for them to learn more?    10. What does NBS research mean to you?   Learn more about The Legacy of Angels Foundation (TLOAF) at https://www.tloaf.org   Become a member of the Newborn Screening Translational Research Network (NBSTRN) to help advance newborn screening research. Visit NBSTRN at www.nbstrn.org   

Episode 2 of 6 - Why do we need Entrepreneurs? The global food system faces serious problems – environmental, social and commercial. This six-part podcast series seeks to unravel these complex interrelationships asking how we can better align the interests of the environment, farmers, entrepreneurs and investors, allowing new Agtech solutions to address these critical challenges. Episode 2 explores the role entrepreneurs play in achieving technological progress. We ask what entrepreneurs can contribute that existing companies and governments might not, and investigate the networks and resources - the entrepreneurial ecosystem - that helps facilitate entrepreneurs' success. The Silicon Valley template of entrepreneurship and its influence is explored, including cautionary tales about how hype surrounding entrepreneurship and technological developments can lead to undesirable consequences. Finally, we discuss the role of business accelerators and share some pioneering examples of food and agriculture focused support for start-ups. Featured in this Episode • Rasmus Hartmann, Copenhagen Business School • Juliet Ansell, Zespri International • Adrian Percy, North Carolina State University • Sarah Nolet, AgThentic & Tenacious Ventures • Peter Herz, Food System 6 and 1st Course Capital • Pete Nelson, AgLaunch Further Reading The following resources are those I found helpful or were recommended by my interviewees Books (available at https://www.betterworldbooks.com): • 10% Entrepreneur by Patrick McInnes • The Third Plate by Dan Barber Online Resources: • Towards an Untrepreneurial Economy? The Entrepreneurship Industry and the Rise of the Veblenian Entrepreneur by Hartmann, Spice and Krabbe. https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3479042 • Entrepreneurial Strategy by Joshua Ganz and Scott Stern https://www.entrepreneurial-strategy.net/about • AgFunder AgriFood Tech Investment report 2021: https://agfunder.com/research/2021-AgFunder-agrifoodtech-investment-report/ • How Silicon Valley Set Agtech back by a decade https://blog.agthentic.com/how-silicon-valley-set-agtech-back-a-decade-b9d46e0acf0d • Technological change and economics: https://carlotaperez.org

During a semester in Washington DC 18 years ago, Katie, Allie, and Lesa were pranking their neighbors and studying Political Science and had no idea the journey that God would take them on. Check out Episode 7 for Lesa's whole story, because this episode celebrates the amazing Body of Christ that served Lesa and her family during the devastating Krabbe diagnosis of their daughter Tori, and particularly Allie's ability to ship breastmilk across the country for Tori when Lesa's milk supply could not come in. This episode includes a wonderful encouragement to hold the grief and joy of our lives together, something that is so hard to do in our lives. --- Send in a voice message: https://anchor.fm/anne-rothhaas/message

Lesa shares the story of her daughter Tori, who was diagnosed with Krabbe - a rare disease that attacks the white matter of the brain - when she was 5 months old. Through endless appointments, Lesa and her family decided to make a bucket list for Tori and celebrate their daughter's life. In the midst of terrible sadness, they chose joy, they chose love. After entrusting Tori back to God when she was almost 20 months old, Lesa became an advocate and lobbyist for newborn screening for rare diseases like Krabbe, because if Tori had been screened for Krabbe when she was a newborn there could have been medical interventions that helped manage her symptoms. If you are curious about her work or want to hear more of her story, check out these links: Lesa's book about Tori's life, titled "Even So, Joy: Our Journey Heartbreak, Hope, and Triumph: https://www.barnesandnoble.com/w/even-so-joy-lesa-brackbill/1127913296 Lesa's Blog: https://thebrackbills.com/ Many articles about Tori's Story and the Brackbill Family after Tori's death: https://local21news.com/news/local/family-completing-bucket-list-for-19-month-old-with-krabbe-leukodystrophy https://people.com/human-interest/brennan-brackbill-skin-twin-sons-death-toddler/ --- Send in a voice message: https://anchor.fm/anne-rothhaas/message

Tim Miller, PhD, CEO, President, and Co-Founder of Forge Biologics, discusses the phase 1/2 RESKUE study which will evaluate FBX-101 for the treatment of Krabbe disease. This clinical trial is currently recruiting.

Tim Miller, PhD, CEO, President, and Co-Founder of Forge Biologics, gives an overview of Krabbe disease.

Next in our series of Shenmue Dojo Intervews we sit down with IGN Japan journalist and Shenmue fanatic Esra Krabbe! We go through Esra's early days in gaming, discuss how Shenmue LITERALLY inspired his entire life and career path & hopes for Shenmue 4 and the series going forward. Follow Esra here: @RineD1987 @IGNJapan

Reuben Krabbe is an action sports photographer that seems to enjoy choosing projects that pushes himself out of his comfort zone. Those projects are figuratively, and quite literally, astronomical.