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In this episode of Masters of Moments, host Jake Wurzak sits down with Micah Lacher, founder of Anchor Investments, for a deeply personal and wide-ranging conversation about real estate, entrepreneurship, and the power of second chances. From growing up in a struggling household in North Memphis to building a respected investment and development firm in Nashville, Micah's story is both gritty and inspiring. They begin with Micah's early exposure to real estate, sparked by a life-changing move that took his family from an unsafe neighborhood to one of the best public school districts in Memphis—secured through an unlikely deal involving two Delta Airlines plane tickets. That experience set the tone for a life shaped by faith, hustle, and resilience. Throughout the episode, Micah shares how he transitioned from a brokerage role at Cushman & Wakefield into real estate development, thanks to the mentorship of Bob Tull, a former Walmart developer. He recounts launching Anchor in the depths of the 2009 financial crisis, raising capital deal-by-deal to purchase distressed assets when few others had the conviction to buy. They also discuss: - The high-stakes risk of personal guarantees during the Great Financial Crisis - How Micah structured deals, underwrote for worst-case scenarios, and still found upside - The transition from broker to principal and the influence of early mentors - Raising children without entitlement while building wealth - Using his business as a platform for purpose and service to the community Micah's outlook is rooted in gratitude and long-term thinking, with a focus on character, consistency, and building something that matters. This episode is a must-listen for anyone navigating the intersection of values, leadership, and real estate. Links: Micah on LinkedIn - https://www.linkedin.com/in/micah-lacher-1366151/ Anchor Investments - https://www.anchorinv.com/ Connect & Invest with Jake: Follow Jake on X: https://x.com/JWurzak 1 on 1 coaching with Jake: https://www.jakewurzak.com/coaching Learn How to Invest with DoveHill: https://bit.ly/3yg8Pwo Topics: (00:00:00) - Intro (00:01:14) - Micah's upbringing (00:08:03) - Early career (00:13:19) - Mentors, marriage, and breaking phone addiction (00:19:17) - The fear of raising entitled children (00:22:16) - Learning the brokerage game (00:30:14) - Transitioning from broker to principal (00:39:24) - Developing “Walmart shadows” and experiencing the GFC (00:45:06) - Raising capital in 2009 (00:51:51) - Thoughts on RTO (00:53:42) - How do you think about your business today, given how you started? (00:57:30) - Using the business to effect change (01:10:37) - Establishing a competitive edge (01:13:08) - Developing hotels in Nashville - and giving away the profits (01:23:11) - The Nashville market (01:27:34) - What's your favorite hotel?
Lauscht man den Nachrichten, werden auf der ganzen Welt Kapitalverbrechen verübt. Das Blut scheint nur so zu spritzen. Deswegen greife ich ganz gerne zu etwas weniger grausigen Krimis, also den sogenannten Cosy Krimis. Die drei vorgestellten Krimis lassen auf jeden Fall auch mal Zeit für Lacher. Hört mal rein! Die Rezensionen findet ihr auf meinem Blog: https://fraugoetheliest.wordpress.com
Sie hören den Mitschnitt der ersten Folge der Gesprächsreihe "Fern Sehen" mit Danuta Schmidt vom 27.03.2025Alte Röhrenbildschirme, die auf den Bürgersteigen liegen wie Weihnachtsbäume im Januar, bieten einen längst vertrauten Anblick. Wo war Familie mehr Familie als abends vor dem Fernseher? Wie einsam ist das Fernsehen geworden, denn anfangs saß man noch zusammen um den Flimmerkasten, was heute nur noch beim Fußball gelingt. Auf welchen Gegenstand richten wir in Zukunft die Einrichtung unserer Wohnzimmer aus? Warum verzichten immer mehr Menschen auf die Mattscheibe? Warum sucht sich die Jugend andere Medien und Kanäle? Literaturpreisträger Jochen Schmidt konsumiert in großem Stil Fernsehen und schreibt witzige und kluge Kolumnen, die es nun gesammelt im Buch "Zu Hause an den Bildschirmen" gibt. Der Berliner ist eine Garantie für genaues Wahrnehmen, die tiefe Liebe zum Detail, kritisches Hinterfragen und verschmitzte Antworten... Jochen Schmidt gehörte von 1999 bis 2015 zur „Chaussee der Enthusiasten“, einer Berliner Lesebühne, die immer donnerstags im Friedrichshain in der Kneipe „Tagung“ tagte. Dort sammelte er erste Erfahrung, wie seine Texte beim Publikum ankamen. Nämlich hervorragend, wenn man die Lacher zählte. Von der Chaussee nun vor die Mattscheibe: 2024 erschien sein 23. Buch „Zu Hause an den Bildschirmen“. Kurz darauf erhielt der Berliner den Literaturpreis der Stahlstiftung Eisenhüttenstadt. Danuta Schmidt lebt und arbeitet seit 25 Jahren in Berlin als Journalistin, Autorin und Moderatorin. In ihrer eigenen Reihe SonntagsLese, die sie 15 Jahre initiierte, traf sie interessante Menschen, von berühmt bis berüchtigt. Ihre Themen sind u.a. die Architektur der Ostmoderne, Umweltsensibilisierung, historische Literatur und Gegenwartsliteratur, die Suche nach der eigenen Identität, nach Heimat, innerer Ruhe, Schöpferkraft. Die gebürtige Thüringerin baute dabei ein unabhängiges und kreatives Gesprächs- und Diskussionsforum auf, das heute selten geworden ist.Weitere Termine der Reihe "Fern Sehen":20.05.2025 mit Urte Blankenstein (Frau Puppendoktor Pille)10.07.2025 mit Uwe Madel18.09.2025 mit Barbara und Winfried Junge (Kinder von Golzow)13.11.2025 mit Ilja Richter
Heute bin ich im Gespräch mit 2 wunderbaren und tollen Unternehmerinnen ( Nancy Nielsen ist Wandschutz-Expertin und aktiv beim VDU und Stephie Schmidmeister E-Mail-Marketing-Strategin) aber vor allem mit 2 frisch gebackenen PODCASTERINNEN. Und das Thema Podcast steht dann auch zentral. Viele viele Fragen: Wie kam die Idee zum Business BlaBla Podcast? Wie geht das so zu zweit? Welche Themen besprecht ihr? Was ist Euer Ziel mit dem Podcast? Habt ihr Podcast Vorbilder? Wer übernimmt welchen Job in Eurem coolen Projekt? Wer ist die Zielgruppe? Wie er sich wirtschaftlich rechnet…. Zudem haben wir auch sehr viel zu lachen im Podcast und wird es spannend und weise, als beide ihren Impuls an das jüngere ICH aussprechen… Ich spreche zudem meinen DANK aus, da die beiden beigetragen haben, als Sponsoren bei meinem UPGRADE YOURSELF WORKSHOP für die jungen Frauen am 22. März und einen Teil des Lunchs im NENI bezahlt haben. Mega cool das ihr auch das Female Empowerment lebt. Hier noch Infos zu ihrem Podcast: Du suchst einen Podcast, der dich mitnimmt – in den echten Unternehmerinnen-Alltag, mit all seinen Höhen und Tiefen? Dann bist du bei Business Bla Bla genau richtig! Nancy Nielsen und Stephie Schmidmeister, quatschen über alles, was sie im Business bewegt: von kreativen Ideen und echten Learnings bis zu den kleinen und großen Herausforderungen, die ihnen manchmal den Atem rauben. Nancy und Stephie sind seit über zehn Jahren Unternehmerinnen und Business-Freundinnen. Dennoch sind sie sich nicht immer einer Meinung – und genau das macht diesen Podcast so spannend! Es gibt's keinen Corporate-Schnickschnack, keine fancy Start-up-Floskeln und garantiert keine Märchen davon, wie du vom Strand aus mit deinem Handy die Million machst. Stattdessen bekommst du echte Einblicke, praktische Tipps und immer wieder einen Lacher, wenn plötzlich alles anders läuft als geplant. Also hör rein, schnapp dir dein Lieblingsgetränk und sei dabei – jeden Montag, überall, wo es Podcasts gibt! Ladies, danke für den mega Podcast. Hat richtig viel Spaß gemacht…!!!! Herzliche Grüße, Anouk
Wer bin ich und wenn ja, wie viele Persönlichkeitstests braucht es dafür?Schnallt euch an – es wird persönlich. Diese Folge fühlt sich an wie eine Mischung aus Klassenfahrt, innerer Klausurphase und wildem Selbst-Coaching. Sie tauchen ab in die Welt der Persönlichkeitstests. Mit ehrlichen Fragen, wilden Aha-Momenten und ein bisschen Selbstironie. Laura erzählt von einem kleinen Beauty-Desaster, das überraschend viel über Selbstbild, Fremdwahrnehmung und den Wunsch nach Struktur offenbart. Lea berichtet von ihrer ersten echten Begegnung mit Persönlichkeitstests – und warum die Ergebnisse mehr ausgelöst haben als nur ein zustimmendes Nicken. Sie sprechen darüber, wie es ist, gleichzeitig null konsistent und extrem ehrgeizig & erfolgreich zu sein. Warum sie gerne jemand wären, der Pläne macht. Und warum „Dinge zu Ende bringen“ nicht immer das ist, was sie erfüllt, sondern manchmal einfach nur anstrengt. Was tun sie eigentlich, um stolz auf uns zu sein? Und wie schafft man es, diesen Stolz wirklich zu fühlen, nicht nur abzuhaken? Sie fragen sich: Wie fühlt es sich an, wenn man sich selbst versteht – nicht, um sich zu optimieren, sondern um sich wirklich zu begegnen? „Trying ist leichter, wenn du weißt, wer da eigentlich versucht." Denn wer sich selbst kennt, kann nicht nur besser mit anderen arbeiten, sondern auch besser mit sich selbst umgehen. Sie nehmen euch mit auf eine Reise durch MBTI, Big Five und kreative Tests, die uns nicht in Boxen stecken, sondern zeigen, welche Box sie selbst gebaut haben. Ganz nebenbei sprechen sie über Kreativität: Hat wirklich jede*r welche (ja!)? Und was, wenn man gar nicht so diszipliniert ist wie die anderen Gründer*innen auf LinkedIn? Kann man trotzdem erfolgreich sein? Lea und Laura erzählen, wie sie arbeiten – manchmal gegensätzlich, aber immer irgendwie komplementär. Wie sie mit unseren Persönlichkeitstypen nicht kämpfen, sondern sie als Kompass nutzen. Und warum es manchmal schon reicht, sich ehrlich zu fragen: Was macht mir Freude? Und was gibt mir Energie? Diese Folge ist kein Psychotest. Aber vielleicht eine kleine Einladung zur Selbsterkenntnis – mit ein paar Lacher und ehrlichen Momenten inklusive.**Was du aus der Folge mitnehmen kannst:**- Warum Persönlichkeitstests nicht dein Schicksal bestimmen, aber dir gute Spiegel sein können - Wie du Muster in dir erkennst – und durchbrichst - Was dein Archetyp mit deinem Arbeitsstil zu tun hat - Warum kreative Menschen oft keine „Finishers“ sind – und wie man trotzdem stolz sein kann - Wie Persönlichkeitstests auch in Beziehungen, Teams und Freundschaften helfen - Warum inneres Wachstum bei deinen Triggern beginnt - Und warum du mehr bist als ein Ergebnis auf einer SkalaErwähnte Tools & Bücher: „kreativ – Die Kunst, nicht perfekt zu sein“ von Rick Rubin16 Personalities Test (MBTI) Big 5 Test von BlossomUp
157 Episoden des Couch-Gespräche Podcasts sind seit 2020 online gegangen. zahllose Herzhüpfer-Begegnungen, tiefgreifende Inspirationen, Schmunzler und Lacher. Kurz: Menschengeschichten direkt vom Herzen. Die Abstände zwischen den Episoden wurden länger. Meine Jahresworte 2025 sind Hingabe und Tatkraft. In purer Hingabe habe ich den Podcast gestartet, weil es den inneren Ruf gab. In purer Hingabe ist heute "Time to Say Goodbye", weil der innere Ruf nicht mehr zu vernehmen ist. Höre in dieser Folge "wieso, weshalb, warum"... Und DANKE DANKE DANKE für deine innere Gastfreundschaft und deine Zeit. Du weißt ja, wann immer du Begleitung beim Sichten, Klären und Perspektivenweiten suchst, du findest mich über meine Webseite www.petra-olenyi.de Herzenswarm Petra
Folge 248 ist da – und sie hat es in sich! Wir nehmen euch mit aufs Ultra Music Festival und sprechen ehrlich über das, was darüber denken: einige Sets waren einfach langweilig. Wenig Überraschung, viel Schema F – oder gab es doch noch Highlights? Außerdem schauen wir auf ein echtes Urgestein der digitalen Musikgeschichte: Napster ist zurück – oder will es zumindest sein. Nach dem Verkauf will die Marke mit einem neuen Konzept durchstarten. Klingt spannend? Finden wir auch – zumindest, wenn es am Ende auch wirklich funktioniert. Außerdem haben wir wieder unsere legendären „6 Tracks der Woche“ für euch am Start – fein selektiert, frisch im Ohr, direkt auf die Playlist. Und ja, auch diese Folge ist wieder gespickt mit schlechten Gags, unnötigen Side-Facts und jeder Menge Meinung. Kurz gesagt: Musik, Nostalgie, Festival-Realness und ein paar Lacher gratis obendrauf. Kopfhörer rein, Play drücken, los geht's! Hier geht´s zur Playlist: https://shorturl.at/twE38 Abonnieren: https://bio.to/Featuring Und natürlich die 5 Sterne Bewertung nicht vergessen! Danke. Equipment RØDECaster Pro https://amzn.to/2v5D9cc Rode Procaster Quality Dynamic Mikrofon https://amzn.to/2Uh2ABN Kopfhörer Ralf: Technics RP DJ 1200 EK https://amzn.to/2X9oqZV Kopfhörer von Timm: Sennheiser HD 25 https://amzn.to/2v4Blk0a
Schafft man es mit 30 Teilen perfekt gekleidet zu sein? Kaum zu glauben, aber unser Mode-Podcast Lost On Planet Fashion feiert seinen ersten Geburtstag! Ein Jahr voller inspirierender Fashion-Talks, spannender Designer-Geschichten und tiefgehender Diskussionen über Stil, Trends und Modekultur. Wir sind unglaublich stolz und dankbar, dass Du uns auf dieser Reise begleitet hast! Natürlich feiern wir dieses Jubiläum gebührend – mit einer ganz besonderen Episode, die Dir nicht nur wertvolle Fashion-Insights liefert, sondern auch jede Menge Unterhaltung bietet. Thema dieser Episode: Capsule Wardrobe – Minimalismus mit maximalem Style! Was wäre, wenn Dein Kleiderschrank nur noch aus 30 bis 50 perfekt aufeinander abgestimmten Teilen bestehen würde? Kein Stress mehr beim morgendlichen Anziehen, keine Fehlkäufe, keine überquellenden Regale – stattdessen ein durchdachtes, nachhaltiges und vielseitiges Fashion-Konzept: die Capsule Wardrobe. Diese Methode wurde in den 70er-Jahren als Gegenbewegung zur wachsenden Konsumkultur entwickelt. Designerin Donna Karan bewies mit ihrer ikonischen "Seven Easy Pieces"-Kollektion, dass eine kleine, gut kuratierte Garderobe nicht langweilig sein muss – sondern das Beste aus Deinem Stil herausholen kann. Weniger Teile, mehr Kombinationsmöglichkeiten, mehr Kreativität! Nadine war so begeistert von diesem Thema, dass sie die Episode komplett übernommen hat – und das Ergebnis kann sich hören lassen! Freu Dich auf eine humorvolle, informative und inspirierende Reise in die Welt der Capsule Wardrobe. Wir sprechen über die Vor- und Nachteile, zeigen, wie Du Deine Garderobe gezielt aufbaust, und klären, ob dieser Modetrend wirklich für jeden geeignet ist. Außerdem grenzen wir den Begriff zu verwandten Themen, wie Quiet Luxury, Minimalismus und Normcore ab. Bonus: Die besten Outtakes aus 1 Jahr Lost On Planet Fashion! Zum Geburtstag gibt's noch ein kleines Extra: Unsere lustigsten Versprecher, spontanen Lacher und chaotischen Behind-the-Scenes-Momente aus einem Jahr Podcast-Geschichte. Denn Fashion darf Spaß machen – und das gilt auch für unseren Podcast! Hör jetzt rein und erfahre, wie Du Deinen Kleiderschrank revolutionierst! Alle besprochenen Looks und Inspirationen findest du auf unseren Social Media Kanälen @lostonplanetfashion.
Unfall oder nicht ist die Frage beim Tatort, eine große Portion Niedlichkeit gibt’s in der Dokumentation „Großbritanniens Eisbärbaby“ und viele Lacher sind garantiert in der neuen Comedy-Serie „Mid-Century Modern“. Hier entlang geht's zu den Links unserer Werbepartner: https://detektor.fm/werbepartner/was-laeuft-heute >> Artikel zum Nachlesen: https://detektor.fm/kultur/was-laeuft-heute-tatort-abstellgleis-grossbritanniens-eisbaerbaby-mid-century-modern
Unfall oder nicht ist die Frage beim Tatort, eine große Portion Niedlichkeit gibt’s in der Dokumentation „Großbritanniens Eisbärbaby“ und viele Lacher sind garantiert in der neuen Comedy-Serie „Mid-Century Modern“. Hier entlang geht's zu den Links unserer Werbepartner: https://detektor.fm/werbepartner/was-laeuft-heute >> Artikel zum Nachlesen: https://detektor.fm/kultur/was-laeuft-heute-tatort-abstellgleis-grossbritanniens-eisbaerbaby-mid-century-modern
Unfall oder nicht ist die Frage beim Tatort, eine große Portion Niedlichkeit gibt’s in der Dokumentation „Großbritanniens Eisbärbaby“ und viele Lacher sind garantiert in der neuen Comedy-Serie „Mid-Century Modern“. Hier entlang geht's zu den Links unserer Werbepartner: https://detektor.fm/werbepartner/was-laeuft-heute >> Artikel zum Nachlesen: https://detektor.fm/kultur/was-laeuft-heute-tatort-abstellgleis-grossbritanniens-eisbaerbaby-mid-century-modern
Faister ist da! Lange hat es gedauert, aber endlich sehen wir den hübschen jungen Mann in der Ecke! Eine Folge voller Lacher, Schmunzler und zufälligen Faktenchecks, denn Henke und Faister werfen gerne mit Halbwahrheiten um sich! Viel Spaß mit der Folge Freunde!
Schonmal eine Roboter-Fail-Compilation gesehen? Nein? Dann habt ihr echt ein paar gute Lacher verpasst! Denn Maschinen beizubringen, so zu laufen wie wir Menschen – das ist verdammt schwer. Worauf es dabei ankommt, wie gut Roboter schon laufen, hüpfen und balancieren und warum sie das überhaupt können sollen – darum geht es dieses Mal bei Doktopus!Material zu dieser FolgeEine Kompilation von Roboter Lauf-Fails: https://www.youtube.com/watch?v=g0TaYhjpOfoForschungsprojekt: Roboter “NABiRoS” mit gedrehten Beinen https://www.youtube.com/watch?v=Y5UoQsHJskwMehr über dieses Projekt: https://spectrum.ieee.org/nabiros-makes-us-wonder-why-we-all-dont-walk-sidewaysBirdBot: Forschungsprojekt des MPI für Intelligente Systeme in Kalifornien https://youtu.be/wwH40rYJt9g?si=jqKfek-DL2WyQ02jMehr über dieses Projekt: https://www.techtimes.com/articles/273986/20220407/robots-walk-two-legs-better-theyre-based-birds-humans-researchers.htm“Digit” von Agility Robotics: https://youtu.be/Xq_-OTQgzf0?si=TMV9zuEVDAxPx-7v“Atlas” von Boston Dynamics: https://www.youtube.com/watch?v=-e1_QhJ1EhQSocial Media und KontaktmöglichkeitenInstagram: http://instagram.com/doktopuspodcast/ Youtube: https://www.youtube.com/@doktopuspodcastE-Mail: doktopuspodcast@gmail.com Credits Recherche, Hosting & Produktion: Dora Dzvonyar & Dominic Anders Sound-Design & Post Production: Julian Dlugosch Ansager: Marcel Gust KI-Songs: Suno KI-Visuals: Bing Image Creator Intro-Musik: Oleggio Kyrylkoww from Pixabay Intermezzo-Transition: MAXOU-YT from Pixabay
In der neuesten Folge des Bestatter-Podcasts dürfen Martin & Christoph im ehrwürdigen Café Korb in Wien mit einer echten Legende des Austropop und der österreichischen Kabarett-Szene plaudern.Zu Gast war Joesi Prokopetz, der uns erklärte, warum der Tod immer den letzten Lacher hat, wie die legendären Hits „Es lebe der Zentralfriedhof!“ und „Da Hofa“ entstanden sind - und vieles mehr!#Bestattung #Podcast #PAXBestattung
Arme Armee Fips Asmussen hett vör bummeli föffti Johr mol 'n Witz över de Bunneswehr mokt: „Die Bundeswehr ist dafür da, den Feind an der Grenze so lang zu beschäftigen, bis richtiges Militär kommt.“ Un in Legennen, Märchen, Sagen un ook in Witze steekt je jümmers so'n lütt beten vun't wohre Leven bin, ne. Anners wurrn de Geschichen ni funktschoneern. Anners kunn man över de Witze ni lachen. So. Un nu weer de Tied, in de Fips Asmussen dormols den dorsten Witz vertellt hett, je recht figeliensch wat de Weltpolitik angung. Ick segg blots: De Kole Krieg. Dat heet, de Bunneswehr is dormols sotoseggen in „Bestform“ ween. Tominst hett dat so ween schullt, dat se dat ween weer. Tscha. Un hüüt, wo dat in de Weltpolitik noch keddeliger as dormols is, schrifft sick de Witze doröver ganz vun allent. De Wohrheit langt al, üm an Stammdisch 'n strammen Lacher intostrieken. Oder ook, üm sick verwunnert an Kopp to kleihn. Veellicht ook üm 'n beten Bammel to kriegen. As Guttenberg de Wehrplicht utsett hett, wurrn ook fuurts de Kreiswehrersatzämter oplöst. De wurrn ni ümwannelt in 'n annere Behörde oder so. De wurrn eenfach dichtmokt. Un de Daten, de man dor in't Schapp harr, de gifft dat ni mehr. Dormit sünd veele Reservisten – mennige snackt vun bet to 'n knappe Millioon – „nicht verfügbar“, as man so scheun seggt. De Bunneswehr weet reinwech ni, wonehm all ehr Soldoten afbleeven sünd. Hunnertduusende Akten verschwinn'd eenfach so? In Düütschland? Segg man mol op't Orndungsamt, wat du dien Gebuurtsorkunn verbummelt hest... Overs wenn 'n ehemoliged Amt ettliche Daten in de Tünn kloppt, dat geiht? Na jo, dat gifft je noch den Reservistenverband. Dat's 'n Vereen un privot organiseert. Un de hett tominst de aktuelln Daten vun 'n beten mehr as hunnertduusend Reservisten. Overs de Daten dörft de Vereen de Bunneswehr ni uthännigen. Vun wegen den Datenschutz. Mi dücht overs, hier is 'n annern Schutz wichtiger. Tscha, ick glööv Fips Asmussen harr hüüt veel mehr Bunneswehr-Witze vertelln kunnt, as vör föfti Johr… In düssen Sinn
Neue Woche, neuer Hustle – und wir haben wieder einiges zu erzählen!
Die Sportrechtebeobachter rätseln: schlägt Sky noch bei der DTM zu? Und wenn ja, wie sieht das dann aus?Außerdem dabei in der neuesten Episode unseres Branchen- und Sendungsupdates: Sporttotal-Insolvenz, KI-übersetzte Sportkommentierungen, eine ganze Reihe weiterer spannender News und vieles mehr.Außerdem natürlich ein Update der sportlichen TV-Quoten der vergangenen Tage und interessante Beobachtungen aus verschiedenen Übertragungen: vom Fußball bis hin zum Wintersport. Zum Schluss wie immer die Lacher der Woche - diesmal besonders umfangreich!00:00 Begrüßung und Top-Themen01:20 Neuigkeiten46:16 Quotenanalyse50:30 Bewertungen1:18:00 Lacher der WocheModeration: Luca Storms und David BückerLacher der Woche: Audioquellen: Magenta Sport / ZDF/ ARD / Sky Du möchtest deinen Podcast auch kostenlos hosten und damit Geld verdienen? Dann schaue auf www.kostenlos-hosten.de und informiere dich. Dort erhältst du alle Informationen zu unseren kostenlosen Podcast-Hosting-Angeboten. kostenlos-hosten.de ist ein Produkt der Podcastbude.Gern unterstützen wir dich bei deiner Podcast-Produktion.
Drübergehalten – Der Ostfußballpodcast – meinsportpodcast.de
Die Sportrechtebeobachter rätseln: schlägt Sky noch bei der DTM zu? Und wenn ja, wie sieht das dann aus?Außerdem dabei in der neuesten Episode unseres Branchen- und Sendungsupdates: Sporttotal-Insolvenz, KI-übersetzte Sportkommentierungen, eine ganze Reihe weiterer spannender News und vieles mehr.Außerdem natürlich ein Update der sportlichen TV-Quoten der vergangenen Tage und interessante Beobachtungen aus verschiedenen Übertragungen: vom Fußball bis hin zum Wintersport. Zum Schluss wie immer die Lacher der Woche - diesmal besonders umfangreich!00:00 Begrüßung und Top-Themen01:20 Neuigkeiten46:16 Quotenanalyse50:30 Bewertungen1:18:00 Lacher der WocheModeration: Luca Storms und David BückerLacher der Woche: Audioquellen: Magenta Sport / ZDF/ ARD / Sky Du möchtest deinen Podcast auch kostenlos hosten und damit Geld verdienen? Dann schaue auf www.kostenlos-hosten.de und informiere dich. Dort erhältst du alle Informationen zu unseren kostenlosen Podcast-Hosting-Angeboten. kostenlos-hosten.de ist ein Produkt der Podcastbude.Gern unterstützen wir dich bei deiner Podcast-Produktion.
Herzlich willkommen zu einer ganz besonderen Folge von Audionursing, dem Pflegewissen-Podcast aus dem Städtischen Klinikum Dresden! Heute ist alles ein bisschen anders – und nein, nicht nur, weil Lorenz im wohlverdienten Urlaub ist, sondern weil ich heute jemanden bei mir habe, der normalerweise hinter den Kulissen wirkt. Den Mann, der unsere Versprecher, Lacher und spontanen „Oh Gott, das darf man nicht senden“-Momente rausschneidet. Den Mann, der uns jede Woche erträgt, ohne dabei selbst eine Pflegeausbildung zu machen und der Mann, den ihr jede Woche vor der eigentliche Folge im Intro hört: Axel! Wir heißen in dieser Folge die neuen Azubis der Märzklasse 2025 willkommen und geben euch ein paar Basics mit auf den Weg für die ersten Wochen eurer Ausbildung!Schön, dass ihr da seid und viel Erfolg für die nächsten drei Jahre, in denen wir euch begleiten dürfen und euch fit machen für die Leistungskontrollen, Prüfungen und die praktische Arbeit auf Station! Eure Katja
In der neuen Folge von I Love Lamp wird es heiß, musikalisch und ein bisschen zwinkernd! Sebi und Wookie nehmen euch mit auf eine Reise durch die skurrile Welt der Nubbelverbrennung – warum man in Köln symbolisch Strohmänner abfackelt, um sich von den Sünden des Karnevals zu befreien. Danach geht's direkt zum ESC-Vorentscheid: Was hat der Song Baller von Abor & Tynna so besonders gemacht, dass er Deutschland in der Schweiz vertreten darf? Und schließlich: Ralf Schumachers legendäres Zwinkern – ein unterschätztes Kommunikationsmittel oder einfach nur pure Meme-Magie? Eine Folge voller Lacher, kurioser Einsichten und natürlich Lampenliebe!
Ref.: Peter Flache, Kabarettist, Schauspieler und Autor, Müglitztal in der sächsischen Schweiz Humor und Witz gehören nicht zu den Merkmalen, mit denen man Glaube und Kirche allgemein verbindet. Der Kabarettist Peter Flache findet das traurig - denn eigentlich sollten Christen doch einen direkten Draht zum Ursprung der Freude haben. In der Lebenshilfe plaudern wir mit dem beliebten Solokünstler aus Sachsen am Rosenmontag darüber, warum Christen allen Grund dazu haben, die besten Lacher zu sein.
Kohlenstoffdioxid, Lila Teppich und die einzig wahre Meinung zu uralten Spielen!Na, ihr Weltraum-Nerds und Hobby-Klingonen! Diesmal beamen wir uns mit Warp-Geschwindigkeit in die pixelige Vergangenheit – genauer gesagt, in die Ära der "Star Trek"-Videospiele. Bereitet euch auf eine intergalaktische Reise vor, denn Jascha, seines Zeichens selbsternannter Obernerd und Hüter des einzig wahren Wissens über uralte Star Trek Spiele (die er zugegebenermaßen noch nie gespielt hat), entert die Brücke des Videogamecasts. Gemeinsam mit Tobi und Gordon, bewaffnet mit Nostalgie und jeder Menge Sarkasmus, wird die digitale Sternenflotte auf Herz und Nieren geprüft. Das erwartet euch in dieser Episode:Eine nostalgische Achterbahnfahrt durch die "Star Trek"-Spielgeschichte, von den Pixeln des Game Boys bis zu den glorreichen FMV-Sequenzen der PC-Ära. Taktische Diskussionen über die Sinnhaftigkeit von Transporterräumen (brauchen wir die überhaupt?) und die Funktionsweise von Schilden (explodierende Konsolen bei 63% Schildenergie – wie geht das?). Erleuchtende Erkenntnisse über die wahre Bestimmung des Transporters: CO2 raus, Sauerstoff rein! O'Brien, der heimliche Beatboxer der Enterprise, schiebt die Regler und sorgt für Frischluft. Lacher garantiert, wenn Worfs muskulöse Pixel-Schultern bewundert und die Fashion-Fails der Sternenflotten-Uniformen analysiert werden. Wer hat Picards Spandexanzug geschneidert? Und warum sieht Diana Troy aus wie ein zusammengeschusterter Pfeifenreiniger? Jede Menge Insider-Witze, Anekdoten von denkwürdigen Conventions und eine Prise gesunde Skepsis gegenüber grünen, dreiäugigen Aliens und anderen Kuriositäten des Star Trek Universums. Für wen ist diese Episode?Für alle Trekkies, Retro-Gamer und Liebhaber des gepflegten Sarkasmus! Ob ihr euch an die Spiele erinnert oder sie zum ersten Mal entdeckt – hier werdet ihr mit Sicherheit Neues erfahren und herzhaft lachen. Und natürlich für alle, die endlich wissen wollen, wie man die Schildmodulation per Edgesketch-Drehrädchen bedient. Die Spiele dieser Episode:Leider können wir euch keine definitive Liste mit Releasedaten und Links zu Steam oder GOG.com präsentieren. Manche dieser Schätze sind einfach zu obskur für die moderne Welt! Aber lasst euch nicht entmutigen – die Erinnerungen und Anekdoten sind umso wertvoller. Wir haben über diese Spiele gesprochen (in welcher Form auch immer...): Star Trek: 25th Anniversary Star Trek: Judgment Rites Star Trek: The Next Generation - Echoes from the Past Star Trek: The Next Generation - Future's Past Star Trek: The Next Generation - A Final Unity Star Trek: Deep Space Nine - Crossroads of Time Star Trek: Deep Space Nine - Harbinger Star Trek: Starfleet Academy - Starship Bridge Simulator Star Trek: Klingon Star Trek: Borg Trefft uns auf unserem Discord-Server: https://discord.gg/MUknMumXdR Schaut uns live zu auf Twitch: https://www.twitch.tv/videogamecast/ Viel Spaß beim Hören! Tobi & Gordon
On this episode we get to meet and listen to Sydney Elaine Butler. I definitely believe Sydney is unstoppable for many reasons. First, growing up she had a speech disability as she will describe to us. Also, however, along the way she was diagnosed with other disabilities including being on the autism spectrum. Like all of us who are different from the “norm” Sydney had her share of challenges from others. However, she learned to deal with them and move forward. In college she decided to get a degree in business and eventually she determined to enter the human resources field. After being out of college for only a bit over a year and during the time of the pandemic, Sydney formed her own company, Accessible Creates. She consults with companies and company leaders primarily about disabilities and she helps to create better retention and overall attitudinal environments for employees with disabilities. We discuss many of the issues faced in the workplace and beyond by people with disabilities. I believe you will find Sydney's views and attitudes quite refreshing and often innovative. I hope Sydney has offered some takeaways you can use in your own worlds. About the Guest: HR Professional | Founder, Speaker, and HR/DEIA Consultant at Accessible Creates | DEIB Facilitator | They/Them Pronouns It is Sydney's understanding that their professional purpose must be to ensure that everyone has the opportunity to be successful regardless of barriers in their way and that they must as a professional remove these barriers. Sydney conducts training and consulting for other companies on how to be more Accessible and Inclusive from a Human approach and how to recruit and retain more diverse individuals through the lens of Intersectionality/Human Resources as well as other areas of Diversity, Equity, and Inclusion in an authentic manner at the company they founded called Accessible Creates due to understanding the barriers that exist within the workplace for diverse individuals. Ways to connect with Sydney: https://linktr.ee/sydneyelainebutler Website: https://www.accessiblecreates.ca/ About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our podcast through our tip jar https://tips.pinecast.com/jar/unstoppable-mindset . Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts. Transcription Notes: Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. Michael Hingson ** 01:21 Well and a gracious hello to you, wherever you happen to be today, I am Michael Hingson, and you are listening to unstoppable mindset where inclusion, diversity and the unexpected mean, and it's deliberately called that, as I've explained a few times before, because most of the time when people talk about diversity, they never talk about disabilities. They talk about sexual orientation and gender and race and so on, but disabilities get left out. In fact, I talked to one person on this podcast who said, when I observed you don't mention disabilities. Oh, that social justice. It isn't the same. Heck, it's not anyway. Leaving that aside for the moment. Our guest today is someone I've been looking forward to chatting with for a while. In her name is Sydney. Elaine Butler, and Sydney is in Canada, and she has formed a company actually called accessible creates Cindy. Sydney is very familiar with disability. She has some and I'll leave that to her, to you know, to talk about, but she brings an empathy and understanding. I think that's extremely important, and that all of you will appreciate listening to. So let's get on with it. And Sydney, I want to welcome you to unstoppable mindset and really glad you're here. Sydney Elaine Butler ** 02:43 Thank you so much for having me. Michael, well, Speaker 1 ** 02:46 it's my pleasure, and we're really glad that you're able to finally get here. We've been working on this for a while, and we've had to postpone a few times. Sydney's had one thing or another going on, but that's okay. We, we, we are unstoppable, so we always find a way to succeed, right? Exactly. Well, why don't you tell us a little bit, maybe, about the early Sydney, growing up and some of those things. Yes, to start at Sydney Elaine Butler ** 03:11 the beginning, right? Oh, where do I start? Um, so growing up, I first knew I had a speech impediment, and so I couldn't say my R's properly, and sometimes I would speak too fast. Sometimes still do tell me to slow down if I need to, but I sometimes I wouldn't speak because I was too scared to say my R is wrong and to speak too quickly. And so I had to go to speech therapy from a young age, and didn't understand that it was really different. You know, I just realized that all my other classmates living class to go do this, but it was mindful, and it's what I knew. I also walked on my tippy toes a lot. So then I had to start going to physical therapy, and I was also playing soccer, and my parents told me a lot of different things to get me active and to get out there. And then we also the Girl Guides of Canada, which is like, equivalent to Girl Scouts in America. And so I enjoyed that, and that's when I started to really find, find my voice and find what I'd like to do, and start becoming more outgoing and starting to exploit when things Speaker 1 ** 04:27 Ah, okay, so was the speech impediment a manifestation of something else or what? Sydney Elaine Butler ** 04:36 Yeah, so my dad also had a speech impediment growing up. I think it was just, it wasn't, I think in hindsight, it was tied to my neurodivergency, but didn't really know what that meant at the time, and at the time, we've seen a separate and knew that, I think a lot of people think that the speech impediments, i. Or something you go out of and think about a lot of kids have speech impediments, and so sometimes now it still manifests as I stutter sometimes, because then my brain goes too fast and my mouth can't catch up. Yeah. And so just realizing that my brain thinks a little differently, and I think that had a part to Speaker 1 ** 05:17 play in well. So along the way, you discovered that you were also involved with other disabilities, I guess, Speaker 2 ** 05:25 yes, and so I think I also I kind of had depression when I was in high school. And so I think that led to me not knowing, you know, if I wanted to be alive or not, frankly. And so back to other disabilities and understanding that all these different things. So like, I felt like had to almost do the camouflage and blend in to like, for example, I say, would hang out with the nerds and be more nerdy, or hanging over the jocks and be more of a jock. And it didn't really have a sense of self. I think that played a role in that, in my mental health and being having other disabilities. Michael Hingson ** 06:08 How did your parents handle all of that? Speaker 2 ** 06:12 I think they just treated me as you know, their child, you know, and they, for example, they would want me to go on to teach therapy. Oh, I need physical therapy now, because I'm walking my tippy toes and my my calf were too tight. And so they just did the best they could, and tried, you know, a lot of people, I think they never tried Kindle that was different. They just okay, this is what city needs to do the best and he can. And so I am very thankful for them for that, because I never felt like I was different. I just knew I had needed to get different things to be successful, but I didn't really know the details and the depth of what was happening. Speaker 1 ** 06:55 When, when did you figure all of that out? Or when did doctors or whatever, finally come up with a diagnosis that made sense. Speaker 2 ** 07:05 Yeah, I think when my after, shortly after, I started college, and I was like, kind of, I'm still living at home, but really think that kind of becoming more independent, seeing that I could do some things I could do really well, and other things I was struggling with, and then going to the doctors, explaining the things I was experiencing, and really understanding that, oh, okay, this and that, you know, finding out what is happening with me and how to best help myself and help and being patient with myself. Because I think a lot of times you can get so frustrated because you don't know exactly what's wrong, but you know something's wrong. And so I think by getting that, helping doctors, and getting help, even just expressing my limitations, and also I was, at the same time myself, helping kids, teens and hours with disabilities, and I related to them so much. And so I think that's what prompted me to go to the doctors in the first place and be like, I relate more to this population. Why is this and why am I so good at my job working with these individuals, we were others that I felt like, I was like, don't and so just seeing that, oh, yeah, that makes more sense, that, you know, autistic and all these different things that make up who I am, Speaker 1 ** 08:22 right? So how long ago was it that you were in college? Speaker 2 ** 08:28 I was so I was in college. I started in 2015 okay? And I graduated in 2018 and then I went to university from 2018 to 2020 because my college actually offered, the university offered a duty completion program, and so that was really beneficial. So Speaker 1 ** 08:46 you were fairly recent in in the process, I've had some people on unstoppable mindset who were in their 30s before someone was able to accurately diagnose that they were different because they had autism, and I know that it is, for example, autism, and I know that for the longest time, people just didn't know how to to understand it or describe it. So at least in a sense, I guess although it still took a while for them to figure out with you still it was, it was better that it happened now than years ago when they weren't able to explain it or or even really understand it. Speaker 2 ** 09:32 Yeah, and I think this is misconception that I think previously in the years, like you said, it was more like either there was very specific criteria around what they thought autism was, but now we understand it's a spectrum and how it impacts, you know, people that you know, males versus females. And so I think it's like, oh, you know, the lack of empathy is seen associated with autism. But like you said at the beginning, I have lots of empathy. And I think have hyper empathy, you should have to use a thing in females that are autistic. Speaker 1 ** 10:07 Okay, so what did you get your college and university degrees in? Speaker 2 ** 10:13 Yeah, so I studied Business Administration, human resources. So my aunt actually, she was human resources on a cruise ship. And I thought at first, when I was applying for university and in college, I because at college first, because I thought I was actually going to be environmentalist, because I high level. I've always wanted to change the world. So I thought, you know, with climate change and global warming was like, I want to be an advocate and talk about, you know, what's it better do to help the planet? But I didn't have the math grades for that. That was one of my strong suits and so. But I also took business as an elective in school. Like, oh, this seems like an interesting elective. I'll take it, and actually did quite well in it. And I like people helping people. And I thought, you know human resources, even though we know they mostly help the employer, I can also help people in the workplace. And there's so many different diverse aspects of human resources. And so that's why I decided to study human resources in school. Michael Hingson ** 11:18 You just avoided the math part of business, huh? Speaker 2 ** 11:20 There is, there was still math in business. But it's funny because I actually took statistics during my college and that that math made a lot of sense to me, like my brain. I became a statistics tutor, actually, and it was so funny seeing the one eight, the 180 of how I did math in high school versus how? And now I'm doing math while also paying for COVID Now, Speaker 1 ** 11:46 well, at least you made it through, yes, which is, which is pretty cool. So when you, when you got out of college and university, what did you do? How soon? Well, let me just ask, What did you do? Start with that. So Speaker 2 ** 12:05 I graduated from university in 2020, December, and so that was quite a challenge, as you can imagine, because I was actually supposed to have an internship that summer, and then the world shut down. And I remember I had an interview on my mom's birthday, March 18, which is the day the world shut down. And then they sent me an email that Friday and said, if it wasn't for the pandemic, for what's the COVID variant of the COVID virus that's going around, you would be getting the shop. This is a tip, but unfortunately, now we're closing our doors because of the pandemic. Yeah? And that was very frustrating, because I was like, I could have had this traditional and it was HR. Was it HR position mixed with statistics, and I just mentioned my love of statistics. And so it was going to be perfect, right? But it didn't happen. And so then I had another interview the last week of before I graduated from my degree. And again, I said, if you just had a little bit more experience in human resources, you would have got the job. And so if I got that job back when I had the internship, I would have bought this job. And I was very frustrated and but I didn't let that stop me. I was like, Okay, what kind of HR jobs do I want to have? What impact do I want to leave on human resources? Because right now, the market is a mess. You know, a lot of people losing their jobs and don't have jobs and love companies are still closed from the pandemic, because we're still very much in the thick of it in December of 2020, and so I started attending human resource webinars, volunteering with other we actually have a local HR association here where you can get your designation from, and I was part of it, and they got a discount because I was a student not too long ago. And instead of volunteering with them, seeing how I consist, and then they actually had a big conference, and I met someone there that helped them. He had to take down 500 emails. He's like, Oh, can you take down 500 emails? Because we're not going to finish this webinar on time. Can you take down 500 emails? And I'm there, kind of with my new COVID Puppy in bed, because I didn't have my camera on, just taking down all the emails. He said, Oh, can you send it to me? And so I sent him the email. And so actually worked at the HR startup. He had a little bit because he messaged me. He's like, I'm impressed that you took down this email so fast. Do you want to come work at an HR startup with me? And at the time, new grad, wanted to get my feet wet. Want to see what happens. And so I joined there, um, but he was bootstrapping, and so he can only pay me peanuts, basically. And I was also, he's, like, he's, I encourage you to look for traditional work, but you can also get getting some experience here. I. And so I did that. And then also, then I actually applied for summer job, virtually and remotely, for a nonprofit organization called Skills for change. And I was like, I'm passionate about accessibility and disability inclusion and HR and human resources. And I was their HR clerk for eight weeks because the Canadian government actually paid for it. They have a Canada Summer Jobs Program, but they gained funding, and I made the recruitment process more accessible. I during Obama's session, I talked about disability pride month, because I was there during Disability Pride Month, and really that I posted that on LinkedIn and some research like, Hey, do you want to come speak about neurodiversity in the workplace? I saw your presentation that you posted on LinkedIn, and I was like, okay, so I did that. And I really liked doing presentations and so and then I realized I could do more by starting my own company. I applied for a traditional job still, but maybe I can get my foot in the door by starting my own company doing little trainings about HR, disability inclusion, neurodiversity. What does that look like? And, yeah, Speaker 1 ** 16:15 so when did you so that's how you started accessible creates. Speaker 2 ** 16:18 It was kind of informally starting accessible creates, you know, just like, it was kind of like planting the seed, I say. But then it was just like, I also, I was like, maybe I can make like, wellness bracelets as well. And like, they all these different things, and make fidget toys, and have all these different proponents. And then it kind of branched off to okay, I can do presentations. Oh, I think people also looking for consultants that have a unique skill set to look at policies and procedure, to look at job descriptions. And so it kind of took off into a world of itself, Speaker 1 ** 16:53 all right, well, and so you're, you're still doing it. Speaker 2 ** 16:59 Yes, it's going to be three years a month from today, actually. Wow, August 31 Michael Hingson ** 17:06 Wow. It'll be how long on August 31 17:09 two years, three years, which is cool. Speaker 1 ** 17:13 Well, so you're, you're obviously having some, some good success with it. Speaker 2 ** 17:20 I feel very lucky, but I'm also like, the amount of nos you get as a business owner or someone just trying to put your services out there, like, this is what I have to offer. And so I feel you're so lucky. You got all these opportunities on like, the amount of people that say no to me, or, you know, the things you don't see behind the scenes. And so just keeping at it and building my network and building my connections is so important. And so and finding people, I think sometimes, as business owners and entrepreneurs, we want to help everyone, but we can't help everyone, right? And so finding that niche, okay, who can I really support here in this area? Speaker 1 ** 17:59 So what are you finding? Are the areas or the kinds of places where you specialize? Speaker 2 ** 18:05 Yeah, I found like, because, again, I have that human resources background and so leveraging that. I think it's funny because when I first started it as, okay, my I'm going to do, I was kind of advertising as I have HR knowledge with like, also have this expertise of disability understanding, disability inclusion, accessibility in neurodiversity. And now it's kind of been like, now people like, Oh, you're the neuro diversity person that talks about neurodiversity there in Canada or talks about disability inclusion. I can also do human resource consulting. They're like, oh, we need an HR consultant, but we want to sprinkle in those other things. And so people that are looking for that niche is really cool and really impactful, and also looking at policies and procedures, I think is because it's a huge undertaking and to really and so finding the niche of clients that they know they need to modify the policies and procedures, but they just kind of overwhelmed, and don't know where to start. And so that's where I come in, yeah. Speaker 1 ** 19:08 And so you're able to help create policy or modify policy. And yes, what's, what's probably, would you say the biggest misconception that you have encountered when you're dealing with companies regarding the whole idea of disabilities, Speaker 2 ** 19:26 yeah, I think the biggest misconception is that it's only the entry level position that people with disabilities want jobs, especially because actually most people with disabilities that actually were more likely to get post secondary education and to continue getting educated. And so it's really interesting to see the bias that employers have against people with disabilities. And think, Oh, you get, you know, this funding from the government to help, you know, pay people with disabilities that can't work, but that's not enough money. They're like, Oh, that's enough money you can live on that you can. Live on that and really understanding that if someone wants to work, they should be able to work. And that accommodation is not you getting more to do your job, it's leveling the playing field to make sure you can do your job and be successful at your job, and everyone deserves that. And Speaker 1 ** 20:17 how are you able to change attitudes and perceptions about that? Speaker 2 ** 20:24 Yeah, I really kind of challenge like, Oh, what do you currently think of disability, you know, and really making them think internally and like, you don't have to say it out loud. You don't have to, you know, just getting them thinking, why do you have this misconception of disability? What does what disability representation Have you seen in media, right? And so what really challenging what they think of when they think of disability. And so I remember, I was actually talking about HR strategy and accessibility strategy and merging them together at a conference I spoke at last year. And I was like, Oh, I left my cane at home. You can't tell today. And there was such because they were kind of like they were paying attention. But they weren't, like, folio paying attention. You can tell them about folio paying attention. So I made that joke, and then everyone was kind of like, there was like, a little bit of Lacher in silence, and then they were completely interested. It's like, okay. They're like, Oh, yeah, wait. Why did I, you know, have this misconception of what a disability looks like? And so it's like, let's get get into it, Speaker 1 ** 21:31 and at least then you're able to open the discussion. You know, I've talked about it on unstoppable mindset a few times, but I have a different definition of disability than than most people. And I'll explain very briefly. People keep saying to me, well, disability, I say, disability doesn't mean a lack of ability. And they say, Well, of course it does, because disability starts with dis, and I say, Well, okay, but what about disciple, discern, discreet and so on. They all start with this, and they're not negative. No, disability isn't a lack of ability. And over the last year, a few things have happened that caused me to to come up with a different definition. And mainly it came about because I was at a hotel in Hollywood, California last year at three in the afternoon when we lost power in and around the hotel, and suddenly everybody started to scream, and they're running around trying to find or reaching for flashlights and smartphones and so on. And I realized disability is something that everyone has sighted. People have a disability, and their disability is their light dependent and and the reality is that we need to recognize that, in fact, everyone has a disability. Every single person with eyesight has the disability of being light dependent. Now, at the same time, you cover up your disability, because Thomas Edison invented the electric light bulb, and we have worked so hard to create light on demand that disabilities are covered up. Disability of light dependence is covered up. It is until it can't be, because suddenly the power goes out or whatever. But the reality is, everyone in this world has a disability. The thing is that disability is a characteristic that manifests itself differently for different people. It doesn't mean, though, that you don't have it. Of course, most sighted people won't necessarily buy into that, until suddenly they're stuck without light for a good period of time. It doesn't change the fact, though, that their disability gets covered up. Speaker 2 ** 23:50 That's that's a very good point. Michael, I think again, that what is the perception of what a disability actually is and how someone interacts with it, and then how it impacts how someone shows up in the world and how the world views them. And so I think really understanding that, again, it's a spectrum it impacts, and then this is so many different types of disabilities, and what does it actually mean to be disabled? Speaker 1 ** 24:19 Well, and that's and that's exactly it. That's why I use the definition that everyone has a disability. It's just that it manifests itself differently for different people. And we need to start to recognize that, and if we really intellectually recognize that, then we begin to change our thought about what a disability is and recognize that maybe it has nothing to do with how well people think or how well people can work. We just need to use and find alternatives when necessary. I mean, look at look. At most buildings, office buildings, they have lights so that people can see where to go, to walk down a corridor, or they have Windows people can look out, or sometimes open for heater or whatever. But typically, they don't necessarily open, but they have a lot of different kinds of things to accommodate light dependent people, computer monitors, but they won't necessarily buy a screen reader for a person who is blind, even though that screen reader might not even cost as much as a monitor. Today, you have coffee machines that are touch screen we provide so many accommodations for employees based solely on eyesight, for example, or right handedness, or any number of other kinds of things. And we we really need to learn as a society to move beyond that. But that's where the challenge is, of course, isn't it? Speaker 2 ** 25:58 Yes, I think it's a we're constantly making accommodations and making adjustments or making things easier for humans, you know. And how does accessibility play a role in that, and making sure that everyone has the ability to access what they need to access, and to do it the best way they can. Speaker 1 ** 26:19 So how would you in and, of course, I've, I've perhaps messed this up by coming up with the definition of disability that I did. How would you find accessibility? How would you define it? Today, Speaker 2 ** 26:34 I feel like disability is more like I feel like people think it's like the medical condition you have or the experience you have, but I really think it's like the barriers that people put in place, you know, and like the editorial barriers someone's values is towards someone that looks different or appears different, someone's barrier the barriers to accessing different tools and different resources and really understanding that in disability can be permanent, it can be temporary, it can be situational, kind of like you were getting at with that everyone has a disability and that it it can it looks different every day, and that there's No one size fits all right, have disability, and it's embedded ability as a spectrum. Michael Hingson ** 27:26 So then, how would you find accessibility? Speaker 2 ** 27:30 Yeah, so I think accessibility is synonymous for a lot of people, for people providing access, for people with disabilities, but I define accessibility as people have resources they need to do their day to day or to be successful girls that have a disability or not, Speaker 1 ** 27:52 Right? And it's all about education, isn't it? 27:58 Yes? Speaker 1 ** 28:02 So in the HR world, what could, what could HR do, and how can we deal with making human resources more accessible and inclusive for people with disabilities? Speaker 2 ** 28:19 I think right now, Human Resources HR is trained to really, oh, look, we recruit, we want to recruit more people with disabilities. We want to hire more people with disabilities, but understand that there's 25% only 25% of people that have disability actually disclose in the workplace that they have a disability, and disclose to human resources they have a disability. And meanwhile, there's probably a lot more than that in the organization and in the workplace. And so we're looking, okay, what are your retention strategies look like for developing people that have, you know, disabilities? What is, why is, you know, looking at management? Why is it? Oh, you're doing good this job, this promote you to management. Okay, not everyone wants to become a manager, or it isn't, you know, have the skills become a manager. Okay? What a you know? What other approaches you can use to develop an employee? How can you look at your culture to evaluate how people with disabilities are treated and how they feel? Is it is in finding out where those gaps are, or most people with disabilities having those issues with management, because management's not understanding how to better accommodate and support employees with disabilities. Is it the co workers making that experience as human resources themselves causing these issues, and really figuring out where the issues lie for that particular organization, and increasing learning how to better increase retention? Speaker 1 ** 29:41 So what do you? What do you do with accessible creates and so on, to really help in the education process and to helping with with truly having more of a higher retention for persons with disabilities? Yes. Speaker 2 ** 29:57 So I, for example. To audit the policies and procedures, see how they regards to accessibility. They have any language around accessibility, because a lot of organizations, you know, there's the ADA in America, and they have that in their policies and procedures. Meanwhile, the ADA is just the bare minimum and just coming to actually get a lawsuit. But what are the best practices you're actually implementing? Do you have an accommodation policy procedure so people know how that can be accommodated, and managers and resources know how to best accommodate that employee, you know, and then also providing provide coaching. So brand coaching, if you know, for example, for the narrative version to our disabled employee and they need a bit more assistance knowing how to better advocate for their rights and advocate for themselves in the workplace. So also working in conjunction doing a management training on okay, if your employee comes to you with this information, what, what do you do and how to address that, and how to make sure that someone feels safe enough to disclose or discuss disclose that they need support from you to better do their job, yeah? Speaker 1 ** 31:01 How do you deal with the employer, or even someone in HR, but somebody in authority at a company that says, Well, yeah, you raise good points and we'll implement them, but it takes time. We just can't jump into it. Speaker 2 ** 31:18 Yeah? I I say, you know, like good things take time, but really understanding that, I think a lot of times, sometimes they scared to make the wrong choice and make the wrong decision. But I think also, just like by not doing anything and not taking the time to do things, take time, we all know this, and being able to be transparent with your employees. Hey, we're implementing this thing. Because I think a lot of times management, or, you know, human resources, are doing these good initiatives, but they're not communicating that to the fellow employees what's being done. And so I think just being transparent and being able to be flexible and be open with, you know, the employees, and being honest, yeah, Speaker 1 ** 32:06 it is hard, because people really tend to think that we got to move slow. But the reality is, if you don't take the leap and start recognizing you're treating some people in a substandard way, and make the conscious effort to change it, then you won't. I mean, we have, we have seen so many shifts in the world. Smartphones came along, and everyone adopted them very quickly, because they saw the value of it. And I've dealt with people who are interested in making their internet websites more accessible, and some of them say, well, we got to do it, because if we don't, we'll get sued. And some people say, and rightly so, we've got to do it because it's the right thing to do. But when you then switch that to Well, what about hiring people with disabilities and so on, or what about changing attitudes within your organization? It's Well, that just takes more time, and I question whether it really should take more time, or should you really adopt a policy and then work to bring people up to it. Yeah, Speaker 2 ** 33:23 I think it's kind of a mix of both, you know, I think it's obviously, it's going to take time, but also, what are you putting in place to get it most efficiently and get it as quickly as possible, to make it as much people understand, to make to really break down those barriers and to get people having these discussions and having these conversations and just challenging what the norm was in the organization, and why do we have these preconceptions of what disability is in the workplace, and disability inclusion and things are going to take time, and that's okay, but Really understanding okay how are you saying yourself and your organization are for the best success to better support all people in the organization? And Speaker 1 ** 34:08 that's really the issue, isn't it? Because it's all about conversation. It's all about education. And the biggest problem I see in general in terms of dealing with people with disabilities within organizations or anywhere with the law, with whatever is that we just don't engage in the conversation, and probably some of that is fear. Oh my gosh. I don't want to become blind like them, and it could happen to me. I gotta avoid that, or or any other disability I might end up in a wheelchair. I don't want to do that. And so there's, there is a level of fear that enters into it, but also it is just having the conversation and starting to really make people more aware of you. What disabilities really are and what they're not, and doing more of a concerted effort to make that conversation happen, I think we'll do more to help educate and get people to move and realize maybe our attitudes and our ideas aren't what we thought they should be. Yeah, Speaker 2 ** 35:19 and it's like understanding, why is there that fear? You know, it's like because of what how media portrays it. It's because of stories you've heard, you know. And we all have our different struggles, you know, going back to your point about what you said, you know, we all have disability in some ways. We all have different struggles. We're all human beings. We all have good and bad days. And so what is the fear stem from? And, you know, people, a lot of people, are scared to say the wrong thing, but the worst thing you can say is nothing at all, right? And, you know, and so I think, like, well, I don't want to say the wrong thing about disability. I don't want to, you know, the cancel culture, or wherever they call, you know, these days, yeah. And so it's just like, the worst thing you can do is not say anything, because, you know, just negative your own growth and the organization's growth by not even wanting to make those mistakes. And you know the difference between intention and impact. You know, it's maybe so impact someone if you say the wrong thing, but be like, Hey, I'm learning. You know, even if you're a management or human resources, I'm learning every day. Can you know I'm going to make mistakes? And again, that transparency piece is so important, because we all know we're humans, we're going to make mistakes. And I think sometimes an organization, they really put managers and human resources on a pedestal that it shouldn't be the case because Ken, we're all human. At the end of the day, we're all, you know, here to do a job, and we're going to make mistakes, and that's okay. And so really coming off the pedestal be like, I'm learning. I want to do better how you know, and being vocal and being transparent about that is so crucial. Speaker 1 ** 36:56 I think you raise a really good point. And I think that that the issue is, as you said, saying nothing is the worst thing that you can do. But I also think whether some of us who have disabilities, in the traditional sense of the word, if I'm going to use that, some of us don't want to be teachers. We're tired of having to explain. But the reality is, we are the best teachers. We are other than are. We're the best information providers, and we really should understand and be patient, because if we know that really, people behave as they do because it's an educational issue and they haven't got the education, who's in a better position than we are to address that and and so I agree with what you're saying. One of the things that I hear all the time is, well, you're visually impaired, which I think is the worst thing that anyone can say about anyone who has any kind of eyesight issue. We're not visually impaired, visually we're not different. We're not visually different and impaired, we are not it's like Deaf people have learned if you say deaf or hearing impaired, they're they're liable to execute you on the spot. They recognize that it's deaf or hard of hearing and slowly, although not nearly fast enough, blind people are starting to learn visually impaired is the wrong thing to say, because it contributes to the lack of understanding. Because you say impaired and we're not blind, and low vision is a lot more relevant, and certainly not not negative. But if we aren't willing to help educate, then we're doing our own disservice to all Speaker 2 ** 38:47 of us. Yeah, I think to your point that you know, it's like, sometimes we're tired of explaining things and don't want to advocate, but we're the best teachers, and we're also giving that space to it's like, do you want to share? Do you want to talk about your experiences? Do you feel comfortable? Do you feel up to talking about it? Hey, I don't feel like talking about it right now. Little time, and that's really okay, or little time, oh, I'm willing to educate you today and explain my experiences to you. And so I think there's sometimes too much pressure that of people like, oh, I always say, I'm like, ask people questions. People want to answer your questions, but they don't have capacity. You don't have the energy to answer your questions. That's okay. But hey, another time and be okay with that. Yeah. And I think just giving as human beings, giving each other compassion and giving each other that grace so important to drive this work forward. Speaker 1 ** 39:46 Well, I think it is important to to find a mutually agreeable time. And maybe that's part of the discussion is I really would rather not talk about this now. Can we set up a time to talk about it and and. So working toward that, I think, is extremely important to be able to do, because we are going to be, by definition, the best educators in terms of disabilities. And you can also get different people with a disability who will say different things. There are still some people who like visually impaired, but that's what the professionals have ingrained at us, and it's a process to get that out of our psyche and recognize that it's low vision and blind and not visually impaired. I would prefer just blind. For anyone who has lost enough eyesight that they have to use alternatives to print to be able to function, I would prefer just to use blind. But the reality is that's probably a larger step than most people are willing to take today. So blind and low vision works for a while, but at some point, we're going to have to recognize there's nothing wrong with being blind or there's nothing wrong with being in a wheelchair, or there's nothing wrong with being deaf or being a person somewhere on the autism spectrum, there's nothing wrong with any of those. It's just that we're going to do things differently than you're used to? Yeah, Speaker 2 ** 41:22 I think language is so important too, because, like, the you know what the professionals say, what the all the research is saying, but it's a What does that person identify with? But you know what they identify and what is their experience like? And really talking to them, to, you know it's like. And I think a lot of times we we even when we're educated, this is my personal experience. This is how I want to identify with a person with a disability, or I identify as a disabled person, you know, we preface that, and so I always make this joke. I'm like, people like, oh, do I say he's visually impaired? Do I say, you know, he's low vision? Do I say he's blind? It's like, well, his name is Michael, so call him Michael, you know, yeah, Speaker 1 ** 42:04 and, and you can always ask, yeah, but his name is Michael, and that's really the issue. One of the discussions that I've been involved with of late is sort of related to the whole first person language. It's about descriptions. I notice in your bio you have a description, long, brown, curly hair, wearing a silver necklace and a red blouse. What do you think about the whole concept of providing or needing to provide, descriptions, especially if you're in a meeting with people who don't see Speaker 2 ** 42:42 Yeah, I think it's important. And I think and asking the person, do you want a description? I think, I think there you go. I think sometimes, by people want to just, it's politically acceptable, but really talking to the person, hey, do you need to pick up description to me, but what will make you most feel most comfortable? He was asking that to anyone. What can I do in this meeting to make you feel most comfortable? What do you require of me to get the best experience out of this? And so just asking the person, and Speaker 1 ** 43:14 that's really the key, isn't it. There's nothing wrong with asking personally. I don't need descriptions. Now, I've never been able to see with eyes, so it's never been an issue for me. But I do know that there are people who have become blind later in life who may want descriptions and and that's fine. The other side of it is, is it really going to add value say to a meeting? That is, does a description of a person really make you more comfortable? And I don't, you know, I don't know the answer to that for a lot of people. I do know, for me, it just takes time away from the meeting. But that's but that's me, and I understand that the one of the reasons I brought it up was that a couple of weeks ago, I was involved in the meeting, and after the meeting, one of the people wrote to everyone who was there and said, You know, I went online trying to find descriptive words for people with disabilities to provide those same descriptions for people with disabilities, but I can't find them, and most of us said, Why do you need them? Because the reality is, there are a lot of different disabilities. There's no one real answer, and I do agree that we shouldn't hide who we are, but we can take this descriptive symbolism and and beat it to death so often too. Does it really make sense to have descriptors of people with with a disability? Speaker 2 ** 44:58 Yeah, I think I. Yeah, it's like, what, who is the person you know getting and what does that look like? And so I think understanding that, I feel like there's so many things and so much information coming out about disability right now, how to be most inclusive, that sometimes we forget the nuance of just the human experience, yeah, and Speaker 1 ** 45:23 yeah, well, and that's what we essentially told the person who asked the question, that it's not and a number of people did. It's not really relevant to do it for disabilities as such. But I think your point is, is also well taken. You can always ask, and if somebody wants a description, then give them a description and and then move on. But it is, it is something that I I've been in meetings, and I've heard way too often you'll have 10 or 12 people in the meeting, and they're asked without finding out whether people want it when you first speak, give a description of yourself. By the time you're done with that, you've wasted another 10 or 12 minutes of the meeting, which is only an hour long anyway. And what have you really gained from that? And and again, I understand that there are some people who might like that, because they used to see but I but I think that we can take it to an extreme, which doesn't help. Yeah, I think Speaker 2 ** 46:31 really understanding, what are the needs? What are the what's the reason behind the meeting? What are the needs of the meeting? Who's attending the meeting? Do they know? Do they do the people need it? They not need it. And again, providing even, like, for example, closed captions. But like, I think closed captions are so important in the thing like, oh, it's for people only, people that are hard of hearing and but it's like, for example, sometimes it's like, oh, it's better for me to process information if I see it written, instead of just hearing it or hearing it and seeing it. And so it's a cool what is it adding to the meeting instead of, you know, yeah, what's the value Speaker 1 ** 47:13 and things like closed captioning? I absolutely can understand. And I think that meetings should have closed captions. And I don't care what the meeting is, we should get into that habit. And the other, the other thing I would would say is that, again, descriptions are a different situation, because what does it really add to the meeting and but again, some people may really want it. So it's a it's a question to ask and then go from there. But I would say closed captions. Another one is one of my favorites. Somebody created this terminology, no Braille, no meeting. That is to say, especially when a blind person, for example, is involved. But I would say in general, it would be better to do this, and that is, if you're going to have a meeting, don't bring handouts to the meeting, disseminate them in advance. Because if you have a meeting and you're giving people handouts and you're talking, they've got to split their time between listening to you and reading the handout. And I don't care what handout it is, you could take a few minutes early enough to disseminate handouts so that people can all be prepared. But especially that works for people like me who aren't going to read those handouts, because you're going to create them from a copy or anyway, or you're going to print them in a multiple way, but probably don't have access to a Braille embosser or some way to get them to me. And so the reality is that documentation should be provided in advance, and I think again, it's a habit that we should all get into, then we don't have to worry about it when somebody comes along who really needs to have those, those services. Speaker 2 ** 49:03 Yeah, I completely agree. I remember, I think I started doing that a couple years ago. It was like, why I even myself? You know, I like to be okay with the agenda. I like to know the agenda, know what we're going to talk about. And so I have Knowing that ahead of time is so important. And you we all have such busy lives, so even if you don't have a like you said, traditional disability is going to help you better prepare for that meeting and feel more at ease going into that meeting and going into this conversation. And it helps everyone at the end of the day. Speaker 1 ** 49:34 Sure, it does. Were you ever treated poorly or have any real challenges because of the fact that you have a disability? Speaker 2 ** 49:44 Yeah, I think, like I mentioned the beginning, my, my speech impediment, my, I think people would make fun of my the way I would speak and so, and I just like, I don't talk like that. You can, you know. And. That made me feel very uneasy. And then also, going back to, you know, dealing with depression in high school, people didn't understand, really, what it was to have depression, and so like, Oh, it's just all in your head. Or, like, and then I would kind of do some kind of reckless thing because I didn't like I said I didn't care if I lived or died. And so they were like, oh, and kind of make fun of me and or use it to their advantage to put me in other situations that weren't not the best for me. And so this also led to complex PTSD, and so just understanding that when sometimes people don't fully understand something that more likely to make fun of you, and not because, again, the impact work is intent, right? So sometimes they just kids being silly and not knowing really what they're doing, but sometimes in demolition attack of using someone's disability against them, right? Speaker 1 ** 51:06 As as you may know, I worked in the World Trade Center and escaped after, well, on September 11, after the buildings were hit, and people, even to this day, say to me, Well, you didn't know what happened, did you? And I said, No, not at the time. Well, of course, you didn't, because you couldn't see it. They revert to that type, even though, in reality, the building where it was struck was 18 floors above us on the other side of the building. And so one of the things that I say to people is, well, the last time I checked Superman and X ray vision are fiction, and the fact of the matter is, on my side of the building, no one knew what happened when we were going down the stairs. Not one single person anywhere around us knew what happened, because they were all on the other side of the building from where the plane was hit, and typically many floors below where the plane was hit. So of course, nobody saw it, but, but they want to revert to type when it comes to dealing with, say, a person who's blind. Well, of course, you couldn't see it, so you wouldn't know. And that is just unfortunate, because, again, I think it contributes or comes from the lack of education. Yeah, Speaker 2 ** 52:21 I think a lot of the whenever someone says something, sometimes it just like becomes for that misunderstanding, the missing, that the lack of education. That's why education is so important. In disability, you're talking about anything because, and sometimes I feel like people almost like the fear or the unknown fill in those gaps, and it can cause huge problems. Yeah, Speaker 1 ** 52:48 what is one thing that you wished people knew? Well, it's really two questions, one about disabilities and the other is about accessibility. Speaker 2 ** 53:00 I think I wish for people knew about disabilities, is that I think the ability that it's a spectrum and that impacts people differently, and can impact impact the individual themselves differently every day again. You know, for example, if I didn't get enough sleep, it could contribute to other environments, factors that make my conditions act up, and for accessibility, I think that, yes, accessibility is an ominous with, you know, people with disabilities and giving resources people with disabilities, but accessibility allows us all to have the resources And the tools we need to be successful, and that it's kind of the bare minimum of what you should be doing. Yeah. Speaker 1 ** 53:50 And I think for me, if there were one thing I wish people knew about disabilities, is it's okay to ask. It's okay to want to know more. And I always will. If people ask me a question, I will, I will answer. One of the things that I encounter often is I'll be anywhere from an airport to a hotel to a store, and a child wants to come up and pet my guide dog. And the parents will say, Oh, don't go pet that dog. That dog might bite you don't know anything about that dog, as opposed to saying it's a guide dog and the dog is working. Now, some people do say that, but a lot of people don't. For me, my policy is if I hear a child asking, especially when parents respond in the negative way, I will always stop take the harness off. Say no, it does okay. They can visit with the dog, and then it gives me the chance to to say when the harness is on, the dog is working. It's got a job to do, because the dog make sure that I walk safely. But the dog. Dog isn't going to bite you, and I don't want you to be afraid of dogs just because, but you should always ask. It's okay to ask and do that. I think that's that's really important, but oftentimes parents continue to create a fear level that we don't need to have. So if a child wants to interact with my dog, I will always stop. If an adult wants to. If I have time, I will stop, and if I don't, I will not stop. And I'll say, here's why I'm in. I'm in a hurry. I've got to get here. I really don't have time. I wish I did, but I will, whenever I can, I will stop and let people interact. I'll take the harness off because the dog needs to relax too, and the dog knows when the harness comes off, they can visit, and they know that they're supposed to focus. But even so, when somebody pets pets, a dog, even in harness, they're going to look, because the dog really likes the attention. So it's a matter of of dealing with it. But by the same token, the bottom line is that I think, again, it's all about education. So I don't mind letting people pet the dog, but only when the harness is off. When I've had a couple of times that people would ask, and I say, not right this moment. And then they go right ahead and pet the dog. And I know that they pet the dog because the dog is looking and I can feel the leash move. And when that happens, I will give the dog not a hard one, but a leash correction, saying, leave it. And the people will say, Oh, don't yell at the dog. I was the one that was petting the dog and said, No, you don't understand. You got the dog in trouble. The dog knows better. I'll deal with the dog, then I'll deal with you. But, but, you know, it's, it's an educational process, but with kids, I'll always stop. I think it's important that children learn what guide dogs are and that that they are friendly. The only thing I would say is, I hope they're not holding an ice cream cone at the time, because they'll lose the ice cream cone. What would you tell your teenage self if you could go back right now and do that? Speaker 2 ** 57:01 I would tell my teenage self that be authentically you, because, like I said, I felt like I was a chameleon in high school. And so by being more me, embracing my differences, embracing who I am, embracing all these different things that make up who Cindy is, and really living into that, and also giving myself with a bit more grace and compassion, because I guess I could do some things and things I couldn't do, and now understanding okay, there's some things I can do and Some things I can't do, and that's okay, and that I'm worthy, and that I think, yeah, I think that's it Speaker 1 ** 57:49 okay. I think that's fair. Well, if people would like to reach out to you, maybe take advantage of your your services and so on, and interact. How do they do that? Speaker 2 ** 58:01 You You can send me this. I have a form or a website that you can fill out, and my website is and my website is accessible, creates.ca Speaker 1 ** 58:10 so accessible creates.ca so they can go there, and they can reach out and so on and and take it from there. Yes. And they can write you and ask you all sorts of questions, Sydney Elaine Butler ** 58:23 if they choose, if they choose. Speaker 1 ** 58:25 Well, Sydney, I want to thank you for being here. This has been a lot of fun and educational, and I've learned a lot, and I really appreciate your time. I'm glad we finally were able to make this happen, and I hope all of you out there come away with a little bit of a different view of disabilities and all of us who typically experience that then, then you had before. Love to hear your thoughts. Love to get an idea of what you think. Please feel free to reach out to me. You can reach me at Michael h i@accessibe.com that's m, I C H, A, E, L, H, I at accessibe, A, C, C, E, S, S, I b, e.com, or you can go to our podcast page, w, w, w, dot Michael hingson.com/podcast, and Michael Hinkson is spelled M, I C H, A, E, L, H, I N, G, s, O n.com/podcast, wherever you're listening or watching on YouTube, please give us a five star rating. We value your ratings, and would really appreciate you taking the time to rate and comment. We love your comments. We love getting your feedback, and so would definitely appreciate you doing that. If you know of anyone who ought to be a guest on our show, our podcast and Sydney, including you, if you know anyone who ought to be a guest, please let us know. Reach out, introduce us. We're always looking for people who want to become guests on unstoppable mindset. And so with that again, Sydney, I want to thank you for being here. This has been a. A lot of fun. Any last words that you want to say? Speaker 2 ** 1:00:03 Yes again. Thank you so much, Michael for having me on your podcast, and I look forward to seeing how I hope. I look forward to keeping in touch and seeing other conversations Michael Hingson ** 1:00:20 You have been listening to the Unstoppable Mindset podcast. Thanks for dropping by. I hope that you'll join us again next week, and in future weeks for upcoming episodes. To subscribe to our podcast and to learn about upcoming episodes, please visit www dot Michael hingson.com slash podcast. Michael Hingson is spelled m i c h a e l h i n g s o n. While you're on the site., please use the form there to recommend people who we ought to interview in upcoming editions of the show. And also, we ask you and urge you to invite your friends to join us in the future. If you know of any one or any organization needing a speaker for an event, please email me at speaker at Michael hingson.com. I appreciate it very much. To learn more about the concept of blinded by fear, please visit www dot Michael hingson.com forward slash blinded by fear and while you're there, feel free to pick up a copy of my free eBook entitled blinded by fear. The unstoppable mindset podcast is provided by access cast an initiative of accessiBe and is sponsored by accessiBe. Please visit www.accessibe.com . AccessiBe is spelled a c c e s s i b e. There you can learn all about how you can make your website inclusive for all persons with disabilities and how you can help make the internet fully inclusive by 2025. Thanks again for Listening. Please come back and visit us again next week.
In der heutigen Folge erklärt Patrick warum das Tonexperiment nicht funktionierte aber was nun die nächsten Schritte sind.Außerdem sprechen wir über die Eierlegende Wollmilchsau S1R II von Panasonic und überlegen wer Gen Z ist und ob sie wirklich mehr auf physische Produkte steht.Das und das obligatorische Chaos in der heutigen Folge von NAH.Viel Spass wünschen …… eure hübschen und massiven Freunde am Mikrofon:Patrick Harazim und Dennis Weissmantel
Sie gehören zur Solothurner Fasnacht wie Konfetti und Guggenmusik - die Schnitzelbänke. Beim Höflisingen am Schmutzigen Donnerstag sorgten sie für viele Lacher. Weiter in dieser Sendung: · Mit dem Einzug in den Neubau hat das alte Gebäude des Kantonsspitals Baden ausgedient. Das Gebäude soll, wie vom Verwaltungsrat vorgesehen, abgerissen werden. Dieser Meinung ist der Aargauer Regierungsrat. Eine Umnutzung kommt für ihn nicht in Frage. · Im vergangenen Jahr haben die Polizeieinsätze bei Aargauer Fussballspielen rund 750'000 Franken gekostet. Diese Zahl veröffentlicht der Regierungsrat als Antwort auf eine Anfrage aus dem Grossen Rat. Diese Kosten trägt der Kanton nicht alleine. Der FC Aarau sowie der FC Baden tragen je einen Viertel der von ihren Fans verursachten Kosten.
Drübergehalten – Der Ostfußballpodcast – meinsportpodcast.de
Da war mal wieder eine Menge los im deutschen Sport-TV-Business! In der neuen Folge besprechen wir alle News von Super Bowl über Wintersport bis hin zum DAZN-Zoff in Frankreich und vieles mehr. Reinstarten tun wir allerdings mit zahlreichen Vertragsverlängerungen von On-Air-Personalien. (Ja, Wolff hat schon am 31.01. verlängert :) Nach den News gibt es dann wie gewohnt den Blick auf die TV-Quoten der letzten Wochen. Am Ende wird bei den Beobachtungen wieder fleißig diskutiert - und der Lacher der Woche darf natürlich auch nicht fehlen.Timestamps:00:00 Begrüßung und Themen01:20 Wolff zu RTL, bleibt bei Sky, Buschi verlängert06:30 Sky Sport streicht Stellen, Lea ...Du möchtest deinen Podcast auch kostenlos hosten und damit Geld verdienen? Dann schaue auf www.kostenlos-hosten.de und informiere dich. Dort erhältst du alle Informationen zu unseren kostenlosen Podcast-Hosting-Angeboten. kostenlos-hosten.de ist ein Produkt der Podcastbude.Gern unterstützen wir dich bei deiner Podcast-Produktion.
Da war mal wieder eine Menge los im deutschen Sport-TV-Business! In der neuen Folge besprechen wir alle News von Super Bowl über Wintersport bis hin zum DAZN-Zoff in Frankreich und vieles mehr. Reinstarten tun wir allerdings mit zahlreichen Vertragsverlängerungen von On-Air-Personalien. (Ja, Wolff hat schon am 31.01. verlängert :) Nach den News gibt es dann wie gewohnt den Blick auf die TV-Quoten der letzten Wochen. Am Ende wird bei den Beobachtungen wieder fleißig diskutiert - und der Lacher der Woche darf natürlich auch nicht fehlen.Timestamps:00:00 Begrüßung und Themen01:20 Wolff zu RTL, bleibt bei Sky, Buschi verlängert06:30 Sky Sport streicht Stellen, Lea ...Du möchtest deinen Podcast auch kostenlos hosten und damit Geld verdienen? Dann schaue auf www.kostenlos-hosten.de und informiere dich. Dort erhältst du alle Informationen zu unseren kostenlosen Podcast-Hosting-Angeboten. kostenlos-hosten.de ist ein Produkt der Podcastbude.Gern unterstützen wir dich bei deiner Podcast-Produktion.
Tatsächlich ist es soweit: Das Kapitel «Nebelspalterinnen» mit Maria-Rahel geht zu Ende. Das Duo Cano & Lothe tritt in dieser Folge zum letzten Mal gemeinsam vors Mikrofon. Auf Ende Februar verlässt die Bernerin den Nebelspalter – und verabschiedet sich damit auch aus dem Podcast «Nebelspalterinnen». Mit einem lachenden und einem weinenden Auge blicken die beiden Moderatorinnen auf 100 Folgen voller Diskussionen, Lacher und so manche Pannen zurück. Wie entstand das Projekt? Was bleibt in Erinnerung? Und die grosse Frage: Wie geht es weiter mit «Nebelspalterinnen»? Und natürlich: Wohin verschlägt es Maria-Rahel beruflich? Ein Gespräch über Abschiede, Neuanfänge und die Freundschaft hinter den Kulissen – mit einer grossen Portion Dankbarkeit an alle, die die diesen Podcast möglich gemacht haben. Soviel sei schon verraten: Weder Maria-Rahel noch der Podcast «Nebelspalterinnen» verschwinden von der Bildfläche.
Kim und Timo sprechen über die Gegensätze im ADHS-Alltag.Zwischen Verplantheit, Perfektionismus, spontanen Ideen und festen Routinen.Sie teilen persönliche Anekdoten über Objektpermanenz, emotionale Dysregulation, Exekutivstörung und den berüchtigten Side-Quests.Neben ehrlichen Einblicken gab's mal wieder technische Pannen - der Computer hat wohl selbst ADHS.Eine chaotisch witzige Folge voller Lacher, Katzen mit Kleidung und vielleicht sogar dem ein oder anderen Tipp/Lifehack für Euch.
Bülach geriet in die Schlagzeilen - wegen der sogenannten Polizieiaffäre. Auch in der Verwaltung gab es Unruhe. Der Stadtschreiber und seine Stellvertreterin gehen Knall auf Fall. Eine parlamentarische Untersuchungskommission soll nun Antworten auf offene Fragen dazu finden. Weitere Themen: Das Unternehmen Energie 360° und die Stadt Bülach planen einen Energieverbund. Grippe hat Kitas und Schulen im Kanton Zürich im Griff.
This episode I want you to meet Acen Kevin from Northern Uganda. Acen is unstoppable and remarkable in many ways. She grew up an orphan in Uganda and experienced many hardships and challenges working to seek an education. She discovered the power of community and persevered with the help and support of others. She secured a degree in Accounting and Finance and works in that field part time. In 2021, Acen founded Itinga Charity Education Foundation, (ICEF) to sponsor and help children with disabilities and other disadvantaged children to get some of the breaks she received when seeking an education. She will tell us some of the stories of students who began with little or no hope and whose families also had no faith that their children could ever be successful. However, with the help of ICEF many children already have experienced life-changing attitudes and are getting the education they deserve. Wait until you hear the story about the blind magistrate who received assistance from ICEF and who now is well respected and has not lost a case. It is always so rewarding to be able to talk with someone like Acen Kevin who just doesn't talk a good line, but who also proves daily that she lives and walks the walk she wishes for others to do. About the Guest: Acen Kevin is the Founder and Executive Director of Itinga Charity Education Foundation (ICEF), a non-profit NGO based in Uganda. With a strong commitment to advancing the education of disadvantaged children and youth in Northern Uganda, Acen has established ICEF to provide scholarships, grants, and essential educational resources to schools and children in need. A dedicated disability inclusion advocate, Acen's work with ICEF focuses on empowering blind children through education. By championing inclusive education, Her non profit NGO is working in Partnership with Imara-Uganda Education Fund UK to fund the construction of an inclusive secondary school in Northern Uganda that is already providing inclusive education to both abled and disabled students, fostering a supportive and accessible learning environment for all. In addition to her impactful work in the non-profit sector, Acen Kevin is also a finance and accounting professional, holding a degree in Accounting and Finance from Metropolitan International University (MIU). Her diverse skill set includes proficiency in computerized accounting tools such as QuickBooks and Excel, as well as experience in financial reporting, budgeting, and internal controls. Outside of her role at ICEF, Acen is a talented filmmaker and actress in Uganda, using her creative talents to raise awareness and advocate for social change. She is a line producer of CLUBFOOT movie that is creating awareness and remedies to clubfoot. Disability through clubfoot can only be avoided at early childhood. Acen also featured on the Wave movie and TV series Senkyu boss among others. Acen Kevin is a selfless philanthropist who continues to make a positive impact in her community and beyond. Ways to connect with Nick: REACH OUT TO ITINGA CHARITY EDUCATION FOUNDATION (ICEF) ON THE WEBSITE https://icef-itinga.org LINKEDIN https://www.linkedin.com/in/acen-kevin-daniela-336386281?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app FACEBOOK https://www.facebook.com/Itinga.org WHATSAPP +256 705 100 34 For inquiries or collaboration opportunities, please contact Acen Kevin (Daniela) at: Telephone: +256 772 003 460. Email: kevin.abtmail@gmail.com, kevin@icef-itinga.org About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our podcast through our tip jar https://tips.pinecast.com/jar/unstoppable-mindset . Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts. Transcription Notes: Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. Michael Hingson ** 01:21 Hi and welcome to unstoppable mindset. We're glad you're back with us again, and today we get to meet with Acen Kevin Danila. And it's actually Acen Kevin, and Danila is her middle name. She is the founder of ICEF, a charity in northern Uganda that helps children, disadvantaged children specifically. And I'm fascinated to hear about that and to learn more about what the charity does and and so on. But we're going to start by welcoming Acen to the podcast and learn a little bit about her. So Acen, I want to welcome you to unstoppable mindset. Thank you for taking the time. Acen Kevin ** 02:05 Thank you so much, Michael. Thank you so much. And thanks for giving me the opportunity being the unstoppable mindset podcast. It's a great pleasure. Michael Hingson ** 02:20 Well, why don't we start by you telling us a little bit about you growing up and kind of the early Acen, if you will. Okay? Acen Kevin ** 02:31 My story growing up has not been easy in terms of education. I struggled so much through education being unopened, I really did not have anybody to support me through education, but like the sales goes that people are stronger when you're together. So I had really so many people who supported me through education. I was sponsored by five different individuals, people, including an organization in Mara Uganda education. So you can imagine that it has really been a struggle, and that is one of the reason why I decided to give back to the community to see that children who were in the situation that I was, or even was, children that are traveling through education, they can get education. So life has not been really so easy as far as education is concerned. For me, Michael Hingson ** 03:47 one of the things that you do with the foundation, and we'll get to the foundation, but you do a lot of work with children with disabilities. Did you or do you have a disability? Acen Kevin ** 03:57 No, no, I don't have any disability at all. Okay, yeah, Michael Hingson ** 04:04 but that's just one of the areas that you decided that you wanted to work with. So did you? You went to you went to school, and you said education was hard, I assume, because just the normal pressures of being an orphan and and just having to do all the things that you had to do growing up, right? Yes, so Acen Kevin ** 04:24 I really decided to support disability inclusions, support inclusive education, to sponsor children and youth who are blind and those with low vision, not because I have any disability, but because in my community, I see two sides. I see those ones who are empowered, and those one who I educated, and they have the skills they do better. Lacher than the somebody who is blind and is not empowered. Normally, they turn into begging on streets, and they say, they say to start to look at them like a burden in the society. So I, through my charity, and it is what we are doing now, we want to empower them so that they can reach their full potentials, they can be able to earn a living through the skills they get through education. And I am inspired by the blind people who are educated and they are empowered. One of them is the majesty grade one judge who is also from my community is a lawyer. Sorry, it is that is the inspiration I am inspired by people like you. So I want really many people with the disability to get because chance education, yeah, thank you. Michael Hingson ** 06:05 So did you? Did you go to college? Yes, Acen Kevin ** 06:10 yes, I have a degree in accounting and finance. Well, Michael Hingson ** 06:14 that's a little bit different from starting a charity or a foundation, it would seem, but you you got your degree in finance and accounting. Did you do anything directly with that? Did you have any earlier jobs in accounting and finance, or did you decide immediately that you wanted to start the foundation, Acen Kevin ** 06:37 um, with my career in a degree in accounting and finance. I do practice that as well. Even in the NGO, it really helped me to do good accounting taxation. So I still use the same skill to run the strategy, and I practice that before. Yes, accounting and finance. So it has really helped, helped me, yes. So Michael Hingson ** 07:07 tell us a little bit about if you would the foundation, the name of it, and where the name came from, and how you started it. Yes. Acen Kevin ** 07:18 Eating a charity. Education Foundation is a non profit organization that advanced education of disadvantaged children in northern Uganda through provision of scholarships, materials, school supplies and facilities for education. The word eating is the local law language, which means you lift me. So it symbolizes lifting up children out of poverty through education. So eating means you lift me. Michael Hingson ** 07:53 Atinga means you lift me. Okay, I understand that, which is a very clever name and very accurate. Acen Kevin ** 08:04 We focus mainly on disability inclusion and empowering the blind and youth to reach their full potentials. Michael Hingson ** 08:11 When did you start the foundation? Acen Kevin ** 08:15 The foundations, uh, started in 2021 Michael Hingson ** 08:19 so it's fairly new. So it's been, sorry I say it's fairly new. It's been around three years. Yes, Acen Kevin ** 08:26 yes, for three years, yes, but we're already making great impact. Michael Hingson ** 08:32 Well, tell me a little bit about that. Tell me if you could about maybe some of the the people you've helped some of their stories, a little bit, if you would, Acen Kevin ** 08:43 the children that we are supporting, Michael Hingson ** 08:45 yeah, a little bit about them, kind of what successes you have. Acen Kevin ** 08:51 Okay, so, as I said earlier on, that the organization sponsor children through Award Scholarship for education. So the children that we are having and our scholarship programs are children that are really needy, and they are coming from very poor background, so we provide them with full scholarship, and they we educate them right from primary level, secondary level, up to university, then terza institution and vocational depending on the capability of the child. But those children, they are these families that stand out. They they all have different, different stories. Like, for example, we have two families that has many children. They have many children with who are blind. There's one family that have seven children, and of the seven. Children. Four were born completely blind. So in 2019 we started sponsoring one of them. Then this year, we got a sponsor who offered to sponsor a child and is sponsoring one. So so far in that family, we are helping two children, and they it is hard. Life is hard for them, as they are facing farmers and having to take care of the poor, totally blind children and then the rest the seven children all in the family. We also have similar family. There's a family we are supporting now, one girl who is studying in the new school that we have the inclusive schools, and Mary Goretti is the akulo. Akulo comes from a family of nine. There are nine children, but out of the nine, four were born blind, and she she did not really get a chance to study in an inclusive school during our primary. So one of our brother, the elder brother, who is also blind, dropped out of school already, and even her, she had already dropped out of school when our organization was told about her, so we had to pick her, and now she's studying well and learning braille, and she's already in senior one this year. We have met different children with different who are from very poor background. We have one boy that we have been sponsoring. He's already now in senior two. We started sponsoring him right from primary five. He comes from a child headed family. The first time I went to that family was in 2020, 2021, when we started the charity, I shed tears because we could see the grave of the Mother, the Father. And there are these three young boys. They have to take care of themselves. They have to farm to eat. So it's really, it's really very difficult for them, and it makes my I feel happy now to see that the boy we talk is doing well and he studies so he can bless the family in future so many of those children who have the potentials. So in our charity, we are not always sponsoring, the children who are blind, others with low vision. We sponsor all categories of children. However, we have inclusion. So we include everybody. We have those ones who are learn that we are sponsoring. We have those one with without any physical challenge that we are also sponsoring. Michael Hingson ** 13:05 Now, when you say you're sponsoring, you you actually have to contribute to or pay for their education. There isn't public funding available for that. Or how does the process work? When Acen Kevin ** 13:16 we say we are sponsoring, normally, we we don't really have, like, funding grade available. So we keep on donations that come the general donation. And then we also have sponsor child program where we have an individual people, ah, saying that I want to sponsor a child, and we have them sponsoring each children and our charity. So what is the audience not available? We keep on fund raising. We keep on looking for donation for that. And beside the scholarship program, we also provide materials for education, materials like the Braille machines, the Braille papers to inclusive schools for the blind, and we also provide textbooks to other schools that are not inclusive school. So we provide all those materials which are needed for education, Michael Hingson ** 14:20 and that's because the traditional schools really don't have the resources to get those materials themselves. Acen Kevin ** 14:26 Yes, yes. Michael Hingson ** 14:30 So itinga does that. It provides those materials and gives the support to essentially make for more of an equal education for children with disabilities and others who need your support. Acen Kevin ** 14:48 Yes, yes, we we do that. We do that. We make sure. Because, like, say, for one example, in Laos, up region. Where our office is located, you find that there's only one two schools which are giving inclusive education to the blind, and those schools you may go there, they have only two brains that are being shared by teachers and children. So we try to support such schools. Then still in Uganda, you will be surprised if you come here that we still have children that study under the tree, that write down on the on the floor. They write down without men, without books. So we also give school supplies when everybody children facili also give like this, provide this, provide computer so that is under materials for education. Michael Hingson ** 15:54 So I don't know whether this is an easy question to answer. So what does it cost to sponsor a child, maybe for a year in school? Acen Kevin ** 16:05 What it cost to sponsor a child for a year in school? Um, now it depends, but normally when the we are to Award Scholarship, we normally start from primary school. So that's you. You really say it's a hard question, because it varies. First of all, it depends on the school where the child is going, because every school has different fee structures. And then it also depends on the on the level, level of education of that child, if the child is in secondary school, like in Saint Mary's already right now, those who are sponsoring the child there, I it cost, ah, around that is six, 606 188,000 to sponsor a Child per town, so in a year, it's about two two millions Uganda shilling. And that can be how much in Acen Kevin ** 17:08 ah, that can be around 600 pounds sports a child in a secondary school. So the lower level pays also lower the higher levels pays. So space. Michael Hingson ** 17:23 Do you get a lot of resistance from the schools when you talk about, say, bringing a child with a disability into the school? Do they do they welcome? Or is there more resistance because they feel that that kind of a child is not going to be able to get the same level of education or be able to learn as well, or is it pretty welcoming? Acen Kevin ** 17:49 It's not welcoming, not also the welcoming to children with disability, that is the path, and that is why I'm calling this other school, that inclusive school. So they are few schools that do that. So if you take a child when I was still volunteering with the Mara Uganda education plan as an administrator, before even a teenage charity, we had this one girl that had multiple disability and we took her to a school that was an inclusive so the girl was really performing poorly. Sometimes would even get 05 out of 100 because if she's seated outside under the tree, no one would bother if the bell rings, the rest are running to class. No one will care. But for the inclusive school, they have a system where a student, student, like a student, can help the fellow students. Somebody knows that, okay, he cannot see so I can help him if he's moving in a new environment. You cannot maybe climb here. It is not very accessible. Someone can help you push your wheelchair. So it is really hard. It's not really welcoming. If they allow you to study there, then sometime a child go there just to pass and they get a lot of, I don't know, people that discriminate, like, what are you studying for? You can't be anything you know people can discourage and you find that says children are not really happy, but when they are in a inclusive school, they are happy, and they really fit to the environment. They feel important, and they are able to study in that friendly environment and become very, very powerful people in the society. Michael Hingson ** 19:55 Okay, I understand what, what made you. Decide to focus so much attention on disadvantaged children or children with disabilities, that had to be a a pretty challenging decision to make, knowing what you would have to face to make it, make it real. So what Acen Kevin ** 20:17 made me to do that, or what made us to say that the charity should focus in disability inclusions and empowering, especially children who are who are blind and low vision, is because in my society, in my my my community, as I said earlier on, you would see the different in those one who managed to get education and those one who did not. It really hit me hard always when I moved in my town on the street of Kampala and I find somebody who is blind is begging on the street. No, somebody who is having a disability is begging. No. And for them, I feel like the person with disability should even be empowered more than somebody without disability, because if I don't have the disability, I can be able to at least do other things, and you know, but I you really need education, like the blind need education, because right now they are, they Are those assistive technology that help help them to do other things that they it would be hard to do so if you're not educated, it can really be very hard. So I believe that every child has deserved the right to really have education, irrespective of whether your ability, everybody should have education. Michael Hingson ** 22:10 What kind of successes have you experienced so far, you said that you've sponsored children of all ages. So have you had any who were old enough that they've now finished school and gotten jobs or anything like that? Or do you have any examples of children who you have been able to sponsor, who've been able to show that they can learn like anyone else and become more accepted in their in their schools. Acen Kevin ** 22:43 Yes, we have those children that already making us feel happy for what we are doing, because we really see how the charity is making an impact, is bringing changes to the life of children eating our charity, Education Foundation, is working in partnership with the Mara Uganda education plan. So a Mara Uganda education plan has been in Uganda, uh, working in Uganda for the last 10 years, since 211 and when we started the partnership in 2021, they entrusted the children that were already their scholarship to our charity. So those ones that were entrusted to us, they already we have those one that already completed their studies. We have been those ones who are already right now. They are teachers, they are midwife. We have been the one who already completed their diploma in clinical medicine, TiVo engineering we are having those one who have completed already like then we have the students after already doing their degree in education like they want to become teachers. So ready. The charity is changing life. And you see that the children who are from a very poor school in the village, because when we take you to sponsor education, we bring you to a school that provide quality education. So there's life change. Children that we took from primary, they already in secondary school, and they're performing extremely well. And with the children with disability for the last three years that we have worked, we have seen changes in them, like there's one girl joy. Joy is completely blind. When she first joined, she was not very confident, but now she's the one who represent all the blind children and low vision and our charity. She has been representing even other NGO outside. She has traveled outside the country to advocate people, people who are who are blind. So it's really very impressive to see our children, even when they are still standing. You see already the life change. You see a child that came when did not even know English at all, even the interview for scholarship we might have done in the local language, but now they speak English, so there's really a life change. And then with children with disability, one big thing that I also see even their families, their families that already they are they were not having support. They were not having love for such children. Some had already been locked then in the house like the people don't know that there's a child with disability in that family, but the moment we get that child and start sponsoring it, change the attitude of parents toward them. They start to say, okay, because they see how now the child is doing well, is being taken care of, so they also start now to support the love increase have seen. So the mindsets of parents are also changing to see them there. And normally we have programs that parents with children with disability meet together. So you find that they start to they start to see, okay, you are seeing you. Somebody who is blind is already a teacher in the school, is a social worker, is a lawyer. So it also gave them, because if somebody has been in the parents who has been deep in rural village, first of all, you started when some, some people even ask us, now, you want to sponsor this one? Don't you think, why don't you take my child? This one, who can see, hm, I've ever been asked that one, I think two parents did that. There's one who said, You take this one and they leave this one, but after they see how these children are catching up, you know? So it's motivating not only to the to the parents and also even the children. The children get to their mind, get to change. They get to know that they are value in the community. Yes, they can become anything they want, if they study, if they are empowered, so they really strive. But I'm so happy to see how this is making a big impact. Michael Hingson ** 28:06 Well, I can, I can hear it in your voice. I mean, you're, you're clearly very happy and very proud of of the work that you're doing, and absolutely and you're obviously changing attitudes, which is important because we all face that, we face these attitudes, that we're less than other people, and it's so hard to get people to understand that, in fact, we're just as capable as anyone else. Acen Kevin ** 28:35 Yes, yes, that much I've experienced it. That's very true. Very, very true. Michael Hingson ** 28:46 So tell me a little bit more about the whole idea of inclusive secondary school project in northern Uganda, and what that is, and how you're involved with that. Acen Kevin ** 29:02 Oh, yes, the inclusive secondary school in my in the there, there used to be no secondary school which is inclusive. There was no inclusive secondary school in the region, in the whole of Lao sub region in northern Uganda, where our office is created, there were no inclusive secondary school. There were only two inclusive primary school, and in those schools, children were dropping out of school every year, because when you complete your primary then you have nowhere to go. Reason being, the few inclusive schools that we have in Uganda, whole school for the blind, the inclusive school that provide the school that provide inclusive education to the blind, they are far, very, very far from us. And. You don't expect a parents who who is traveling and does not even have a smartphone to coordinate, to even get just admission to go to such school, live a long transport to go to a school which is verified another district in another sub region. Maybe take a child Kampala so shall parents would just giving give it up. And you find that every year these children are dropping out of school, ah, they start going back in the village. And we couldn't imagine it, because for me it's terrible if I imagine somebody who is lying and has no support, no love, no education, no skills to earn a living, I think life can really be very tough for them. So in last year, 2023, eating a charity, Education Foundation and a Mara Uganda education plan took action. We had to say, No, the charity, our charity, is very, very small, but for the love we have for the children, for the heart we have for charity who are like, what can we do? Should we get already exhibit school and we provide them with Braille equipment to support the student? What can we do? Will we manage to build but we started it with faith last year, and so far, we have finished page one of the construction project, which are eight classroom, eight classrooms, administrative offices and the reception. So right now, as I talk, I'm so happy to announce that the school pioneers already with senior one class, and the construction is still going on, but already senior one class is already starting. So next year we shall be having senior this one in senior two, while we had with senior one, then it will continue in senior four, the pioneers will be the first to see the final unit exams. So the school is called Saint Mary's Goretti Secondary School meta. It provide inclusive education to the blind, to those students with low vision. We have a student with celebral palsy. We having students who are learning we are having so it is providing inclusive education to both able and student with disability. And it is amazing. I don't know if you have seen my recent post on LinkedIn, we made a video clip showing how the students are studying together the inclusive classroom. It's amazing. They are studying together in one classroom, and everything is moving fine because they have special needs teachers around, and even those who are not specially teachers, they are learning now to to handle the students. So I'm really so so happy about this school and the initiative already the school, the school is providing not only education, even jobs, teachers who had completed school, they especially teachers, they were able to get jobs in the school The community around now that the construction is also ongoing, and we believe that this is a legacy. We believe that this school will continue for for many years, will be there for many years, to provide inclusive education to the children. I'm happy that the community has embraced it. The community is so happy about the school, Saint Mary's Gore to second with school. I'm being invited in local FM radio stations in northern Uganda many times to talk about the school, so that those those parents who have children with the disability who are not yet aware that already there's an inclusive second school they can to create awareness about the school. I'm happy that even those one who are working with government, they're already advocating they will be having some. Port. And just last town, Uganda Bible Society, they donated to the school the Braille the Braille Bible. We having other po that are donating to us, like the Braille machines. So school has started, and we are really so, so happy about that, and I would like to thank also our partner, Uganda education plan for allowing to support though we call upon everyone who would like to support us so that we can finish we complete the facilities of the school support may not only did the construction, but also equipment. We need those assistive devices. First of all, we have a few brails, and next year, we are expecting other lots of students. So it's impressive, and I'm so joyous every time I just two days ago, a parent who has a child with cerebral palsy, was giving me, telling me how she really struggled to look for schools. She even wanted to leave her job so that she can at least create something, a room to train the so that they see how to train those one their children with disability, because she looked for school, inclusive school, everywhere, she was even trying to call Education Board to ask, Where can I find the inclusive school? So in Uganda, the challenge we are having the secondary school which are inclusive are very, very few. It is more of primary when the child is still young. Yes, you can manage with your child with cerebral palsy, you can manage, but when the child now reach all ordinary level and advanced level, it is hard to find such a school. So this school is really a dream come true for me, for my community. Yes, have Michael Hingson ** 37:10 any of the students, the older students in the school, gone on to get jobs? Sorry, have you had any any of the students who have been in in the inclusion environment or who have attended classes, have they graduated and gone on and gotten jobs yet? Or have you had that level of success? Acen Kevin ** 37:35 Okay, yes, yes, I've had the level of success before. That is one of the motivation for like, for example, this where we have constructed this inclusive school, Saint Mary's, goreti. It's actually at next to the primaries to today, inclusive primary school, all net adults that has been providing inclusive education to to the blind for many years. So many students, many people who studied from net adults and go to opportunity, especially those one who are being sponsored by NGO or hard parents that could afford to take them far to study in an inclusive school, maybe in like in Kampala in iganga, they made it. They made it. And one of the all beings of that school, the old boy of Netta girls primary school made it. He studied law, yeah, he studied law from bucharebe, and he's, he's completely blind, but he was appointed as a grade one chief magistrate, so it's the court judge. Wow, very good. And he has never lost the case. In fact, when he was appointed, even up to now, he has inspired so many people, so many journalists interviewed him, and he can do, he is doing his work, which is really a great inspiration to all the those one who are applying and to all of us who are supporting disability inclusions and inclusive education. Uh huh. So we have. I've seen so many. I've seen those one who managed to become teachers. I've seen the those ones who are social workers, very many, and I'm the another example. If you Michael, I've seen your biography. Yes. So thank you. You all inspire us. Well Michael Hingson ** 39:55 have so you talked about the the young man who became. A magistrate. How about girls? Have any girls gone on to get jobs yet? Acen Kevin ** 40:06 Correct? Any Michael Hingson ** 40:07 girls or women gone on to get jobs after going to the schools? Yes, Acen Kevin ** 40:13 yes. I've seen many girls who become like they are doing managerial questions with NGOs, they are working. That's why I'm saying others are social workers. I've seen others who are teachers, and they are completely they're completely blind, and those one who are advocating, they're working with the organization for for disability to advocate for the rest get education, Michael Hingson ** 40:46 but you do work with children other than children who are blind. It's not just blind children you work with. Yes, uh huh. Okay. Well, tell me, what has all of this taught you? I mean, this was a major I call it an adventure, but it was a major step to start this foundation and to do the work that you're doing. What have you learned from it? Acen Kevin ** 41:12 What I've learned from it? Think I've learned that. I've learnt that everybody, like every child, can really do something like what I've learnt is I've seen, if I've seen how education can empower somebody to become great, because I've seen the children becoming sure having talent like recently, we have been we are performing in Paralympic blind football. So you can see the talent that children with disability have. Some of them are debaters or the two poems I've seen them watch. I've seen them play keyboard, play keyboard, become musicians. So it's really inspiring. I've learned a lot. I've learned that what I've learned working with children with disability, doing the work that we are doing with the charity. So I've learned that if we together, if we empowered and embraced accessibility, disability inclusions and inclusive education, we will create equitable society. And I've also learned that children or people with disability can do anything as long as they are empowered. So we would like to empower them to reach their full potential, Michael Hingson ** 43:13 certainly a pretty important lesson to learn, and I'm glad you have and that you're able to pass that on to to other people? What would you give? What kind of advice would you give to young people who are looking to starting to think about making a difference in their own community? What kind of advice would you want to give them, and when they don't know where to start and so on. Acen Kevin ** 43:45 Yes, I would advise them to first collaborate with like minded people, like minded people, and then they should also know charity, it really has a lot to do with the heart. So they should try to discover, is it really what they want? Because if you have a mind for business, and then you come with the charity, it may not work well for you. So do you have the heart to give back to the community, so I would advise that they should volunteer with maybe other angel PRI and learnt what happens with the charitable organization. How then if they can also do charity work? So there you keep learning. I, for one, I did not just wake up and start a with eating a charity. I also volunteer with the organization, and in my heart, I really wanted to. I. Really wanted to give back to the community. I wanted to at least sponsor one or two children, and I was praying that God, if you can give me a good job with good salary so that I can do that. But it so happened that I got the favor and the way out to operate, to to have the charity funded, which now it's now making me to more than I could imagine. I wouldn't have been able to sponsor many children that we are we are sponsoring now through the charity without just alone as an individual. So it really has got something to do with the heart. What is your heart? You have the you really, is it what you want to do? Because if you have a business mind, don't try it. So yes, those are the advice I can give to those who want to start the charity. It Michael Hingson ** 45:59 is good to explore, which is something that you did. You volunteered. You, you thought about it before you really jumped in and started your own foundation. But you also clearly do work in business, because you have an accounting and finance degree. So do you actually have a full time accounting and finance job as well as doing the foundation, Acen Kevin ** 46:24 no, both are part time accounting and finance doing part time. Then also in the organization, it is I get time to so that I can get time to work, and also my skills in accounting and finance. It has helped me to to run the charity, because we are able to comply to have the annual audited report done, to not have issues with taxations because of the skills. Uh, huh, Michael Hingson ** 47:00 yes. Well, you, you have, you have been traveling on a pretty interesting and exciting journey. Can you maybe give me some stories, a personal story for you about what you've done and and about this journey that you're on and and how it's changed your life. Acen Kevin ** 47:21 So my my personal journey, and how my, the life has changed. Um, it's about education, really. I think my mind is stuck to education, because, as I said, as I said it earlier on, I struggle so much through education, having being sponsored by many people because I was coming to my father died when I was young, And I could not manage really go through with education. I have personally dropped out of school at one time, so I understand how it feels for somebody to drop out of school. I've been out of school, so that's really my personal journey, and right now, having achieved what I wanted to achieve, like to have my degree, it's really great. It has changed my life, and I want every, every one that we support, that are struggling, the children, to also experience this life change. And I'm happy for those who already experiencing the life change. Michael Hingson ** 48:55 Yes, which is great. What are your plans going forward? What do you see is coming next? Acen Kevin ** 49:04 My plan going forward, I would really want to continue advocating on disability inclusions for accessibility, to make sure that everyone is treated equal, irrespective or regardless of your abilities. So I I see myself, or I see eating a child education foundation, together with the marriage Uganda Education Fund and other partners that will come on board. We see ourselves pushing higher and higher i i come from a community where very many people are illiterate. They want to see that many people have education. They are, they are. Able to, you know, to earn a living by themselves, to support others. So yes, and we also hope to complete the construction of Saint Mary's Goretti, so that we have also this, the inclusive school going that can help the children from all level to a level, senior one to senior six. Well, Michael Hingson ** 50:31 let me ask you this, if I might um, what? What would you like? What would you like the people who are listening to our podcast today. What would you like them to learn? And what kind of message do you want them to take away from this? Acen Kevin ** 50:48 Yes, to those who are watching us, to those who are listening to the podcast right now. I I would like them to to know that every child, irregardless of their ability, they have the potential to learn. When they are empowered, they can learn so I call upon all of them. I call upon everybody who is listening to to us right now that they should contact eating a church Education Foundation, or a marriage a Mara Uganda education plan. How there's our website on the bio below, you can support us by through donation, we call upon other organization to partner with us, because together, we can achieve together we can create a critical society. Together we can support disability inclusions. Let's support disability inclusion. Let's support the children. So yes, that is what I would like them to do to help us and the child. We also have a child program. Michael Hingson ** 52:15 Well, if people want to reach out, how do they do that? When Acen Kevin ** 52:20 people want to reach out to us, they can reach out on our website, www.icef-itinga.org It is down in in our bio. Then you can also reach out to us through LinkedIn. You can find us on Facebook. You can find us on Tiktok. You just have to type on Instagram. Also you just type eating charity, Education Foundation. Then you can reach out to us. You will be able to find our office address there. You will be able to find our telephone contacts, yes, feel free to visit us. Feel free to support. I call upon your support for our charity mission together, let us support disability inclusions so Michael Hingson ** 53:15 people can email you. I know it's in your biography they can reach you. At, Kevin, k, e, v, I N, at, I C, E, F, dash, I T, I N, G, A, dot, O, R, G, and so I hope people will reach out to you, and Acen Kevin ** 53:37 I look forward to that right Michael Hingson ** 53:39 now. I hope that they will support and I hope that they will also take the message back to their communities, because clearly you are setting a very positive example that people should follow. And I and I'm glad that we did have the opportunity to finally get together and do this today. Um, it's been a while in coming. You're 10 hours ahead of us, so that makes it kind of fun to be able to schedule a time. But we did make it work, didn't we? Acen Kevin ** 54:10 Yes, yes, we did. Thank you so much for the opportunity, for giving me this great opportunity to speak to the whole world about what we are doing at English and Education Foundation to tell them that, yes, we are supporting children who are blind, the dose with low vision, yes, and we are having the construction of an inclusive school going on. Lira, Michael Hingson ** 54:39 well, I appreciate you saying that and that you took the time to come on and and be with us today, and I want to thank all of you for listening and watching us on YouTube or wherever you're seeing our podcast or hearing our podcast, mostly hearing, I'd love to hear from you if you have ideas for guests and attend you as well, if you know anyone. Else who ought to be a guest on unstoppable mindset. Please let us know I am easily reachable at Michael M, I C, H, A, E, L, H i at accessibe, A, C, C, E, S, S, I, B, e.com, you can also go to our podcast page, which is w, w, w, dot Michael hingson.com/podcast, and Michael Hinkson is m, I C, H, A, E, L, H, I N, G, S O n.com/podcast, so we appreciate your listening and whoever you are, wherever you may be, please give us a five star rating on the podcast. What we do here is try to show people who are unstoppable and and we want everyone to realize that they can be more unstoppable than they think they can. And I think that Acen, Kevin is definitely showing that, and I hope that you'll all take that very much to heart. So give us a five star rating. We appreciate it. And again Acen, one last time, I'd like to thank you for being here with us and taking your time this afternoon. Acen Kevin ** 56:03 You're welcome. Thank you so much. It's a pleasure. It's been a pleasure being the podcast. **Michael Hingson ** 56:13 You have been listening to the Unstoppable Mindset podcast. Thanks for dropping by. I hope that you'll join us again next week, and in future weeks for upcoming episodes. To subscribe to our podcast and to learn about upcoming episodes, please visit www dot Michael hingson.com slash podcast. Michael Hingson is spelled m i c h a e l h i n g s o n. While you're on the site., please use the form there to recommend people who we ought to interview in upcoming editions of the show. And also, we ask you and urge you to invite your friends to join us in the future. If you know of any one or any organization needing a speaker for an event, please email me at speaker at Michael hingson.com. I appreciate it very much. To learn more about the concept of blinded by fear, please visit www dot Michael hingson.com forward slash blinded by fear and while you're there, feel free to pick up a copy of my free eBook entitled blinded by fear. The unstoppable mindset podcast is provided by access cast an initiative of accessiBe and is sponsored by accessiBe. Please visit www.accessibe.com . AccessiBe is spelled a c c e s s i b e. There you can learn all about how you can make your website inclusive for all persons with disabilities and how you can help make the internet fully inclusive by 2025. Thanks again for Listening. Please come back and visit us again next week.
Nach der Winterpause sind Saltatio Mortis endlich wieder da – und starten direkt mit einer epischen neuen Folge! Moderator Jean hat sich keine Geringeren als Alea, Falk und Elsi ins Boot geholt, um mit euch gemeinsam einen Blick auf das Jahr 2025 zu werfen. Was Euch erwartet? Jede Menge Insights, Lacher und Überraschungen:
Dr. Lacher sits down with Well Within Reach to discuss Cervical Health Awareness Month by exploring cervical health as well as cervical cancer and its relation to HPV.
What, you may ask, is TSC. When I first met our guest, Kari Luther Rosbeck, I had the same question. TSC stands for tuberous sclerosis complex. As soon as Kari defined the term for me it struck a nerve close to home for me. My great nephew actually has tuberous sclerosis complex and was first diagnosed with this rare disease when he was but a child. My conversation with Kari was far reaching and quite educational for me as I suspect it will be for you. TSC affects some fifty-thousands persons in this country and about 1 million around the world. The TSC alliance, founded in 1974, has worked to promote support, research and the dissemination of information about this rare disease. Kari has been the CEO for many years. She began with the organization in 2001. While her main interest growing up was in being an actress as she says, “living in New York City means that you work while developing an acting career”. In Kari's case, she found another interest which was fundraising and being involved in the nonprofit world. My conversation with Kari is quite enjoyable and, as I said, quite educational. I am sure you will find much invaluable information in this episode. At the end of our time together Kari will tell us all how we can become involved and help the TCS Alliance. I hope you will find ways to support this effort as what the organization does goes far beyond what you might think. About the Guest: Kari Luther Rosbeck, President and CEO, TSC Alliance Kari has made it her life mission to use her 35 years of nonprofit and volunteer management experience to help create a future where everyone with TSC has what they need to live their fullest lives. She has served as President and CEO since November 2007 and previously held progressive leadership positions with the organization since 2001. Kari is responsible for the overall management and administration of the organization including strategic planning, implementation of organizational strategies and evaluation of results to ensure the TSC Alliance meets its mission. During her tenure, the TSC Alliance established a comprehensive research platform fostering collaboration with industry and academia to move treatments for TSC forward in a more expedited way. Because of her leadership, the organization has taken an active role in educating the TSC community about clinical trials to diminish the time for recruitment, including pivotal trials that have led to three FDA-approved drugs specifically for TSC. In 2019, the organization launched a Research Business Plan with the goal to change the course of TSC for those living with it today and for generations to come paired with an aggressive fundraising campaign leading to more than $16 million raised. Since joining the TSC Alliance, the organization has grown from a $2.1 million annual operating budget to $10 million in 2022 and is heralded with top ratings by watchdog organizations. Kari graduated with a BA degree in Theatre from the State University of New York at Albany and upon graduation founded a theatre company with fellow graduates in New York, NY. After the loss of her first child, Noell, to sudden infant death, she dedicated her career to helping other families. Kari is the proud mother of Trent, Bradey, Wynter and Rhys and grateful to her husband Chris for his unending support. When not working, she enjoys traveling, playing golf and being an avid Minnesota Vikings fan. Read Kari's Profile in Success. Ways to connect with Kari: Facebook: https://www.facebook.com/tscalliance; @krosbeck Instagram: https://www.instagram.com/tscalliance; @karirosbeck LinkedIn: https://www.linkedin.com/company/697362/admin/; @kari-luther-rosbeck-ba24805/ X: https://twitter.com/tscalliance; @KariRosbeck Threads: https://www.threads.net/@tscalliance Website: www.tscalliance.org About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our podcast through our tip jar https://tips.pinecast.com/jar/unstoppable-mindset . Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts. Transcription Notes: Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. . Well, welcome once again to another episode of unstoppable mindset where inclusion, diversity and the unexpected meet, and I bet we get to do a bunch of all of that today. Our guest is Kari Luther rosbeck, and Kari and I met through Sheldon Lewis from accessibe. Sheldon is great at finding folks for us to get to chat with. And when I started learning about Kari, one of the things that I kept reading was a term TSC, and I didn't know what TSC was. So when Kari and I first met, I asked her about TSC, and she said it stands for tubular sclerosis complex, which immediately struck a nerve with me, because I have a great nephew who has tubular sclerosis. And as it turns out, his parents have actually and had actually attended an event where Kari was and then just this past March or April or whenever, and you can correct me, Kari, but they went to another event, and my other niece and nephew, Tracy and Charlie, attended, as I just told, Kari, I'm very jealous they didn't let me come along, but that's okay. I stayed home and slept. But anyway, Kari, I want to welcome you to unstoppable mindset. It's really great that you're here, and I want to thank you for taking the time to be with us. It Kari Luther Rosbeck ** 02:42 is such an honor. Michael and I love talking with your family, and it was so wonderful to have them with us at comedy for a cure this year. Well, it Michael Hingson ** 02:53 it was really fun to hear about the event from them, and I'm glad that that they all enjoyed it. And of course, Nick is is a person who deserves all the attention and help all of us can give. He's had tubular sclerosis, been diagnosed with it for quite a while, and is actually, I think, beating some odds, because some people said, Oh, he's not going to last very long, and he's continuing to do well. And just don't ever get him into a conversation about sports and the Dodgers, because he's a Dodger fan, okay, 03:24 as he should be. By the conversation. Michael Hingson ** 03:28 Well, he is a Dodger fan as he should be. I just want to point that out, yes, yes, for those of us here. Well, Nick, Nick probably Kari Luther Rosbeck ** 03:36 was, well, when Nick was diagnosed, we had a very different prognosis for TSC back then. Michael Hingson ** 03:45 Well, yeah, I know, and it's like everything with medicine, we're making a lot of advances. We're learning a lot, and of course, we're paying a lot of attention to these different kinds of issues. I mean, even blindness, we're paying a lot of attention to blindness, and we're slowly getting people it's a very slow process, but we're slowly getting people to recognize blindness isn't the problem. It's our attitudes about blindness that are the problems. And I think that's true with most things, and I think that if people really thought about Nick and and felt, well, he can't do much because of they would recognize he can do a whole lot more than they think he can, 100% which is really important. Well, let's start a little bit about you. And why don't you tell us about the early Kari growing up and all that and how we got where we are, well, thank Kari Luther Rosbeck ** 04:43 you for the opportunity to do that. My middle name is Lacher. That's also my maiden name. My dad and mom were in education, primarily. My dad also dabbled in some politics. We moved around. Quite a bit when I was a child, I think before seventh grade, or before I was 18, we knew 13 times so that really, you know, you become adaptable because you have to be and inclusive, because you have to be because you're in all of these new environments. From the time I was six years old, I wanted to be an actress. I wrote my own plays, I organized a neighborhood, I think, when I was seven, and we performed a play I wrote. And that's what my degree is in, in theater. And Michael, as you probably know, when I was 27 I had my first child, Noel, who unfortunately passed away from sudden infant death, and it completely changed the rest of my life. From that point forward, I really wanted to do something that impacted families, so they never had to experience the type of grief that I went through at a very somewhat young age. And then from from that point, I took all of the skills that I'd been using in the work life, not theater, because I lived in New York, and you have to work to live, so you could do theater before my then husband and I moved to Minneapolis, but I had always done fundraising. I had always done administration, so I just kind of naturally took in all of those skills, community and grassroots building. I went to work for the American Refugee Committee in Minneapolis, and then from there, worked at international service agencies, which is a workplace giving umbrella organization representing all of the premier international organizations. And my job there, as a regional director was to go into workplaces and give two or three minute presentations and convince people to give to international causes. My favorite was I was pregnant. I had a pregnancy kit, what they would give people in developing the developing world, where you would have a razor blade, a string, a plastic sheet, and that's how they delivered babies. And that was a really effective presentation, as you can imagine. I got to the TSC Alliance because my boss at international service agencies became the CEO of the TSC Alliance in early 2000s and he brought me over to start our volunteer outreach program, build our grassroots movement, and from there, I definitely got involved in fundraising. The admin side was interim CEO, and then CEO, Michael Hingson ** 07:55 well, gee, so so many questions. Why did you guys move so many times? Kari Luther Rosbeck ** 08:01 Well, my dad got his PhD and became dean of students at Arkadelphia State University, or Henderson State University in Arkadelphia, rather. And he did great, but he loved politics, and he had the opportunity to become the executive director of the Republican Party of Arkansas when it wasn't cool to be a Republican in Arkansas, and that really was his passion. And from there, he became a he led a congressional campaign for a candidate in Littleton, Colorado, and when that candidate didn't win, he realized that he really needed to have a more stable life for his family. So we moved to Knoxville, Illinois, and he became a vice president at a community college, and from that point forward, that was his his career. We moved to upstate New York. I'm leaving out a few moves just to make it simple. We moved to upstate New York my freshman year in college, where he became a President of Community College there, and then ultimately, he ended back in his hometown, in Mattoon, Charleston, Illinois, where he led the local community college until he retired, and the Student Union at Lakeland College is actually named after my Michael Hingson ** 09:30 father. Wow. So is he still with us today? He is not. Kari Luther Rosbeck ** 09:34 He passed away from idiopathic pulmonary fibrosis in 2017 Michael Hingson ** 09:38 Well, that's no fun. How about your mom? She is, she Kari Luther Rosbeck ** 09:43 still lives in that soon. Yep, she is the matriarch of our family. That's for sure. Michael Hingson ** 09:50 A lot of moves. Needless to say, I wonder what your father would say about politics today, it started to be different in 2016 and. 2017 but I wonder what he would think about politics in general. Today, I Kari Luther Rosbeck ** 10:04 am not sure. I have wondered that question a lot. The one thing my dad was always great at, though, was the ability to see balanced viewpoints, and it's something I always loved and respected about my father, and Michael Hingson ** 10:19 I think that's important. I think people really need to do more of that. And we just, we're not, we're not seeing that, which is really scary. We're not seeing it on so many levels, not just politics. But, you know, we don't get into politics much on unstoppable mindset, because, as I love to tell people, if we do that, I'm an equal opportunity abuser anyway, and and I, and I'm with Mark Twain. Congress is that grand old benevolent asylum for the helpless. So you know? Kari Luther Rosbeck ** 10:48 Well, I will say this. My dad taught me how to be an advocate from a very young age. Yeah, what it means to not be afraid to use your voice. That's the best thing we can get out of politics, that using your voice for the greater good is one of the most important things that you can do. The Michael Hingson ** 11:10 thing that I think people are forgetting today is they love to use their voice, but they don't love to use their ears. Yes, which is another thing, but I I hear what you're saying. I joined the National Federation of the Blind, which is the largest blindest consumer organization in the country, and I joined in 1972 when I was a senior in college, and learn from experts about being an advocate. And I think it's really important that we have advocacy. And the value of really good advocates is that they are able to look at all sides of an issue and really make intelligent decisions and also recognize when it's time to maybe change as things evolve in terms of views. And we just don't see any of that today. People say I'm an advocate. Yeah, well, without thinking about it, and without really looking at the options, and without looking at stands, it's just amazing how people, as I said, use their voices, but not their ears today. I agree. Yeah, it's, it's, it's a tough world, and it's, it's a challenge. I read an article about a year ago in the New York Times all about how we're losing the art of real conversation, which is why this podcast is so much fun, because we do get to converse. Kari Luther Rosbeck ** 12:36 That's right, I I'm so excited to be with you today. Michael Hingson ** 12:40 Well, so you got into nonprofit, in a sense, pretty early, and you've certainly been involved at reasonable levels for now, 23 years after September 11, I worked at Guide Dogs for the Blind for six and a half years, as well as being a public speaker. But loved working in the nonprofit sector, although I had a lot of fun with some of the nonprofit people, because what I would constantly advocate, if you will, is that development in the nonprofit world is really just no different than sales. Instead of selling and making a profit, in a sense, you're selling to secure donations, but it's still sales. And people would say, Oh no, it's totally different, because nonprofit is just totally different than what you do if you're working with a company and selling for a company. And I'm going, I'm not sure it's that different. Kari Luther Rosbeck ** 13:40 Well, what I think is that you're selling hope and right? It's all about relationships. But unlike widgets, we have a lot of different programs that have created such progress, hope and support for the tuberous sclerosis complex community. And I really enjoy talking about what those programs help make possible for people like your great nephew, Nick well Michael Hingson ** 14:12 and and it's important to do that. I The only thing I would say on selling widgets, as opposed to hope, is if you talk to Steve Jobs or Bill Gates, they would say that widgets very well could also be a mechanism to to move toward hope and dreams. And so again, I think it's just, it's it's all using the same techniques, but different things. I tell people now that as a keynote speaker, I think it's a whole lot more fun to sell life and hope and dreams than it is to sell computer hardware. Kari Luther Rosbeck ** 14:54 But you're right about computer hardware, and for instance, wearables that are. Really making a difference in some of the breakthroughs that we see today. So under percent correct. Michael Hingson ** 15:05 Well, tell us a little bit about the whole tubular sclerosis complex Alliance, the TSC Alliance, and you got started in it. And what was it like, if you will, back in the day, and it's not a great term, I'm telling you, I I'd love to to have fun with that, but what it used to be like, and what it is now, and what's happening, sure. Kari Luther Rosbeck ** 15:27 So when I started June 18, 2001 nearly 23 years ago, the organization had about seven employees. Today, we have 23 we in those days, we knew what the genes were in TSC, and soon after I came to work, we discovered how the TSC genes impact the underlying genetic pathway. That was awesome, because that led to some key clinical trials and ultimately an approved drug. What I say about the early days is we were we did a beautiful job of holding people's hands, offering them support, but there were no medications that really directly impacted TSC that were FDA approved, Michael Hingson ** 16:21 maybe it would help if we actually define what TSC is. Yes, of Kari Luther Rosbeck ** 16:25 course, let's start with that. Tuberous sclerosis complex is a rare genetic disorder that causes tumors to grow throughout the body, the brain, heart, kidney, liver, lungs. It is the leading genetic cause of epilepsy and one of the leading causes of autism. Epilepsy impacts about 85% of people with TSC autism, about 50% one in 6000 life first will have TSC. TSC impacts about 50,000 Americans and a million people worldwide, and it's variable. No two people are exactly the same, not even identical twins. So people can have mild cognitive impact. They might have moderate or severe. People can have mild cognitive impact, but at some point in their life, perhaps needing a lung transplant. TSC is progressive. So for women of childbearing age, lymph angiolio, myomatosis, or Lam can impact the lungs. We can see kidney growth of tumors in the kidneys that can impact quality of life. So it's variable, and some of our adults live independently. Others require more complex care. It's usually diagnosed in childhood and in infancy, either in utero, where you can see two or more heart tumors in a regular ultrasound. Sometimes you're diagnosed after birth, when a baby begins having seizures. Some people aren't diagnosed till they're teenagers with the appearance of angiofibromas or skin tumors on their face. And occasionally, people are diagnosed when they're adults. They have kids of their own, their children are diagnosed with TSC, and then they are subsequently diagnosed with TSC. So it runs the gamut. Michael Hingson ** 18:31 So it is something that very much is or can be genetic. It is genetic. Kari Luther Rosbeck ** 18:38 Yes, it's caused by mutations in one of two genes, TSC one or TSC two, on the ninth or 16th chromosome that controls cell growth and proliferation, which is why you see the appearance of non malignant tumors. And that is what impacts all the organ systems. Yeah, Michael Hingson ** 19:00 and it is not a fun thing, needless to say, to be around or to have, and it's not something that we have control over. Nick, I know does live with his parents. I don't know whether Nick will ever be able to live independently. He does have seizures and sometimes, and it's not predictable, although he's doing a little bit better job of controlling them with medication, but he'll probably always live with someone. But what a wonderful person to have around. Yes, Kari Luther Rosbeck ** 19:35 he is definitely enjoyable. And that's, I mean, that's the thing about TSC. We have we have independent adults. We have kids, we have semi dependent adults. We have dependent adults. The one thing about our community and our organization is this is a home for everybody. Michael Hingson ** 19:58 So when did the. See Alliance actually first begin Kari Luther Rosbeck ** 20:01 1974 so it started with four moms around a kitchen table in Southern California, and two of those four moms are still in touch with the TSC Alliance. I talked to two of our Founding Moms quite frequently. They are very inspirational. They had this tremendous foresight to think about what the community needed or what they would need in the future. So our organization, the TSC Alliance, we actually have a new vision statement as of this year. So our vision statement is the TSC Alliance wants to create a future where everyone affected by TSC can live their fullest lives, and our mission statement is to improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support. What so some of the ways that that we do this, as you know, is to fund and drive research, to empower and support our community, to raise awareness of TSC, because we want to provide the tools and resources and support for those living with TSC, both individuals and caregivers. We want to make sure that as an organization, we are pushing research forward by a research platform that we've helped create through the years, and we want to make sure that people are diagnosed early and receive appropriate care. So it's really important to us to raise awareness in the general public, but also among the professional community. Michael Hingson ** 21:52 So this is the 50th anniversary of the TSC Alliance. Yes, it is. And I would dare say, based on what you're talking about, there's a lot to celebrate. Kari Luther Rosbeck ** 22:04 We have so much to celebrate. Michael, there's been so many accomplishments over the years, from the creation of our professional advisory board early on that provided guidance to the organization to today, we have three FDA approved drugs specifically to treat TSC as an organization in 2006 we started the very first natural history database anywhere in the world that still exists today, with over 2700 participants, and that allows us to really understand how TSC progresses through a lifetime, and then we, as an organization, in partnership with a group of our TSC clinics, helped with the first preventative clinical trial for epilepsy in the United States, and that was really to look at Babies with TSC to treat them before the first seizure, to see if we can prevent or delay epilepsy. Michael Hingson ** 23:07 So So tell me a little bit about the the three different drugs that are available. What? What do they do? Without getting too technical, how do they work, and so on, because, obviously, the tumors are there. And so what do the drugs do to address all of that Kari Luther Rosbeck ** 23:24 great question, the first approved drug for TSC everolimus is an mTOR inhibitor, mammalian target of rapamycin. So if you remember I talked about the two TSC genes working as a complex to control the genetic underlying genetic pathway. Well, that underlying genetic pathway is mTOR, and there happened to be a class of drugs that was developed to help with organ transplant and anti rejection. Ever roll. This is a synthetic of rapamycin that was found on rap a rap the islands, rap immune island. So what that particular drug has been approved for, and how it works in TSC is to shrink certain types of brain tumors to shrink tumors in the kidneys, and it's also used as adaptive therapy for seizures associated with TSD. So what we know is it is extremely effective, but if you go off the medication, the tumors will grow back. So it's not a cure, but it's moving in the right direction, right second drug that was approved is the first FDA cannabinoid drug, Epidiolex, and that treats seizures associated with TSC. The third approved drug is a topical rapamy. So it treats those skin tumors on the face. I Michael Hingson ** 25:04 don't know. It's really interesting. Medical science comes up with all these terms that are tongue twisters. How do they do that? You're 100% correct. Oh, it's a fun world. What's on the horizon, what kinds of things are coming that will kind of either enhance what they do or other sorts of medications? Yeah, Kari Luther Rosbeck ** 25:28 thanks for asking that. So I think for us, in 2019 we put together a really aggressive research, research business plan, and our goal with this was to ultimately the vision change the course of TSC, and so we have a research platform that really helps accelerate drug development. So we fund research grants or young investigators to keep them interested in the field and to generate new ideas. We have a pre clinical consortium where we work with a contract research organization. We've licensed different mouse models that can try drugs for both epilepsy and tumor growth and behaviors, and so that is really built a pipeline of new potential therapies for TSC we also have this clinical research consortium that we work with. We have 74 TSC clinics across the country, of which 17 are centers of excellence, and we're working with our TSC clinics and centers of excellence to when drugs come out of the pre clinical or when companies come to us and they want to institute clinical trials, we will work with them to be in touch with our clinics, to educate our community about what clinical trials are out there, so they know what questions to ask or how to appropriately weigh risk benefit, so that's a really important part of our platform. We also, I mentioned earlier, a natural history database to help us understand how TSC progresses through a lifetime, but also a bio sample repository, so we'll understand why TSC is so different person to person. So with all of those tools working together, what we want to do is ultimately determine how to predict an individual's risk for the many manifestations of TSC so if we knew who was at risk, say, for epilepsy, and we could intervene to delay or prevent epilepsy. Could we do the same with kidney tumors? So that's what I mean about predicting and prevention. We would like to develop biomarkers to help accelerate outcome measures and clinical trials. We would love to have an intervention early on. Remember, I said that we helped start the first preventative clinical trial for epilepsy. You need an intervention to get on the newborn screening panel. If we could be on the newborn screening panel and identify babies early, that is the greatest way to change the course of the disease. Of course, we obviously want to test more compounds in our pre clinical consortium to make sure that we are building that pipeline for new and better drugs in the future, and we definitely want to develop patient reported outcomes. So how does this disease impact quality of life for individuals and families living with it, so that we'll know in the future, if there are different potential treatments, does it impact or improve their quality of life? And the FDA looks at patient reported outcomes quite seriously, so we want to build that for future clinical trials and clinical studies. Finally, one of the biggest unmet needs in TSC is what we call TSC associated neuropsychiatric disorders, or taint This is an umbrella term for brain dysfunction that includes everything from sleep problems to depression, anxiety, aggressive behavior, executive functioning, how people learn. So it is definitely an umbrella term, and almost everybody is impacted by tanned in some way that are living with TSC. So we want to better understand who might be at risk for which parts of tan so that we can intervene and improve quality of life. Michael Hingson ** 29:55 Something that comes to mind we hear people talking. Think a fair amount today about gene therapy and how all of that might work to cure various diseases and so on. Is there room for that in Tse, since especially it's caused by two specific genes? Kari Luther Rosbeck ** 30:14 Great question. We actually are working with some gene therapy companies in our pre clinical consortium looking to see if we can intervene that way. Michael Hingson ** 30:26 It's a few years off, yeah, I can imagine, but it would be an interest if, if it truly can be done, since you're clearly able to tell that there are specific genes that are that are causing this. It's an interesting concept, given the state of science today, to think about whether that could lead to, even if it's not immediate, but later, cures for TSC and other such things, and Kari Luther Rosbeck ** 30:57 we might start with organ specific gene therapy. For instance, if we had gene therapy early on in the brain, again, thinking about preventing seizures from ever developing, if we were able to implement gene therapy in the kidneys so or lungs so women never develop lamb, that would be a huge breakthrough. Yeah. So thinking about how that might work and how that could impact our community is tremendous, Michael Hingson ** 31:28 I would think so. And I would think if they are able to do some work in that regard, it would be very revolutionary. And obviously, the more we learn about gene therapy overall, the more it will help with what medical science can do for TSC as well. That's right. So what does the Alliance do for families and individuals? What kinds of specific things do you all do? Kari Luther Rosbeck ** 31:57 Yeah, we have 32:00 developed 14 Kari Luther Rosbeck ** 32:01 community regions across the country where we work with our volunteers. So they'll in their regions, host community educational meetings, walks, where they bring the community together, which is hugely important offer peer to peer support. So that is on a regional level. On our team, we have support navigators, so people that are available to take calls, emails, texts to really help when people either receive a new diagnosis, will spend a lot of time making sure they get to the right clinics, resources, support systems, or when a new manifestation arises, or if people are having some access to medication or access to care issues, we have a TSC navigator so that is a proactive online tool that people can log into and that will really take them through the journey in a way they want to gain information. So it's really written in in small bites, so that if people want more information, they can dive deeper. That's hugely important for individuals impacted. We have regular webinars, regional conferences, and every four years we hold a World Conference. Well, we will bring in experts from all over the world to cover the many manifestations of TSC so people are informed to make the best decisions for them and their families. They'll also talk about new clinical trials or new research on the horizon, or they're talk about social service tools that are really important for living or guardianship or financial planning, so those things that aren't just medical, but really impact people's lives. Michael Hingson ** 33:57 So today, what, what do you think? Or how would you describe, sort of the social attitude toward TSC and people with TSC, or is it, is it more manifested in Well, this guy has seizures and so on, so TSC doesn't directly tend to be the thing that society views. Kari Luther Rosbeck ** 34:22 That's a great question. And because TSC is so variable, I'm going to say to you, it's different person to person. One of the things we did a few years ago was create these little business cards that described what TSC was. So if somebody's out at a restaurant, they might hand it to their waiter or waitress to say, We want you to know that our for instance, our child has TSC and so you understand what you might see as you wait on us. For example, I still think that for those that are more severely in. Acted. I talked about tanned and some folks with more severe behaviors. You know, our society, it's attitude, right? You talked about that in your presentation of diversity to inclusion, we need to be much more understanding when a family is trying to handle a seizure or or behaviors and not pass judgment on that family, let the family handle that situation. So I would just say it's individual to individual, but one of the most amazing experiences, as is at our world conferences, where everybody can just be. And everybody understands that TSC is variable. And you might have a child over here with a seizure dog. You might have an adult group in one corner talking and dancing, but everybody comes together, yeah, Michael Hingson ** 35:58 yeah. And that's really important to do, and that's you raise a really good point. Obviously, dogs are learning to be better at seizure detection. And I was going to ask about that, because I assume that that certainly can play into helping people who have seizures, who have TSC. Kari Luther Rosbeck ** 36:18 That is absolutely correct earlier. You asked about what it was like early on, we didn't have a lot of seizure dogs at our early conferences. That's something that really has been happening after, say, 2010 we've definitely seen a lot more seizure dogs be trained and really be helpful to families. Michael Hingson ** 36:39 Yeah, well, and we have come so far in terms of training dogs to be able to detect seizures and detect so many things. One of my favorite stories, and it's not a seizure detection as such, but one of my favorite stories, is about a Portuguese water dog who was a show dog, but he or she, rather, was also trained to do cancer detection. And the owner, who was very competitive in doing show dog type things, as well as had started a company or a facility to deal with cancer detection, took his dog to the show, to a dog show. And every time the dog got near this one judge, it just laid down. It would not perform, it would not work. And so needless to say, this national champion didn't do very well at that show. And the guy couldn't figure out why. And he got home, and he suddenly realized, oh my gosh, I had taught the dog to lay down whenever it detected cancer, because you don't want to do something dramatic, right? And so he called the woman who was the judge, and he said, Do you have cancer? And she says, No, I don't have anything like that. Then he said, Well, you might go check that out, because and he told her, this was like a Monday when he called her, and Friday she called him back, and she said, I took your advice. And it turns out I have early stage breast cancer. We caught it in time, and it's all because of your dog. Kari Luther Rosbeck ** 38:04 Oh my gosh, Michael, what an amazing story Michael Hingson ** 38:10 it is. You know, we we really underestimate our dogs. I know that the first diabetic dog was a dog who who kind of learned it on his own. His person had occasional insulin reactions, and the dog became agitated. And finally, the guy realized, oh my gosh, this dog knows what I'm going to have an insulin reaction. And that led to dogs for diabetics, which is another, of course, sort of same thing that the dogs really can learn to do so many things today. Kari Luther Rosbeck ** 38:44 Yes, yes, they can. Michael Hingson ** 38:48 So there's always room for dogs. So we talked, I think, in sort of terms, about your the the whole research platform that you all have developed tell us more about the research platform and what it is and where it's going. Kari Luther Rosbeck ** 39:06 Well, I definitely talked about all of the tools within our research platform. I think we're certainly taking a deeper dive into all of the tools that that we've developed, when we think about, for instance, our bio sample repository, one of the things we're doing right now is whole genome sequencing. Why? Because we're hoping with whole genome sequencing, we'll understand if there are modifier genes. Are there other things at work that makes some people more severe than other others, and then ultimately, what we'd love to learn is what medications might work best on each individual or personalized medicine, so often in TSC with seizure medications, people end up on a cocktail. We would rather avoid that, right? Wouldn't it be nice to get the medication right the first time? That's really what we are hoping for with our clinical research consortium. Right now, we're doing a couple of quality improvement studies, so one of them is around suit up or sudden, unexpected death from epilepsy, and really understanding the conversations that happen between a physician and a patient or a caregiver, and why aren't those conversations happening in TSC or when are they happening? Because we want to create change so that parents know the risks, or individuals understand the risks, and can they change their behavior to mitigate some of those risks? The other thing that we are doing is we started a reproductive perinatal Health Initiative. This came out of our 2002 world conference because we heard from a bunch of adults that this was a gap for TSC. So TSC is variable. We have some independent adults that may want to start a family someday, but we have no no consensus guide guidance, to guide them in making those decisions. So we put together a group of experts in maternal fetal health, pulmonary nephrology, imaging genetics, to come together to first talk about what are risk stratifications, both for women that are may experiences complications in pregnancy. What are those? What's a risk stratification for each individual? Also, how do we handle perinatal health? How do we care for fetuses of women with TSC, or fetuses where they have been diagnosed with TSC, and what are those recommendations and steps? So that's a real focus for us at our organization, really filling the gaps where those exist. So that's a couple of the things that that I would mention. Michael Hingson ** 42:16 An interesting question that comes to mind, do you see prejudices or misconceptions that cause difficulties within medical science. And I ask that because I know from a blindness standpoint, so often, when a person goes into an ophthalmologist because they're having eye problems, they go in and the doctor will say, eventually after diagnosis, well, you have retinitis pigmentosa, you're going to go blind. There's nothing I can do, and literally, just walk out of the room without ever dealing with the fact that this person can still be a very normal person. Do you see any of that kind of stuff in the world of TSC so Kari Luther Rosbeck ** 42:56 early on, less today, but we still hear about it when people are handed the diagnosis of TSC, they it could be very cold. Physicians would say, your child will never walk, they'll never talk, they'll never live a normal life. That's horrible, like you're taking away that hope. And that may not be the case for each individual with TSC, I think some of our families, when their infants begin to have a devastating type of seizure called infantile spasms that can look just like a head nod, sometimes they are misconstrued for indigestion or startle reflex, and They try to get care for their baby, they're told that they're just being paranoid and crazy. It's nothing, but the it's up to the parents right to continue to advocate, because they know something is not right and that that is the right course of action. And then for adults, I think sometimes our adults living with TSC really struggle with adequate care. We've done a really good job of pediatric care specifically for TSC, but as a country, we could do a lot more for those with developmental disabilities, including TSC and providing adequate transition from adult care, these are the places that I see prejudice or roadblocks put up for our families. Michael Hingson ** 44:33 How do you teach or what do you do to teach parents and adults, especially about being stronger advocates. Kari Luther Rosbeck ** 44:43 Well, first of all, we tell them to trust their instincts and trust their voice and to not give up if you're hitting a roadblock. One place call us. Maybe there are other other clinical care that we can provide for you. Yeah. If you're having an issue at work, it's really important that you get the right support to advocate for yourself, but to never, ever give up, ever give up. Michael Hingson ** 45:11 Yeah, that's really, of course, the important part, because ultimately, and I think it's true for most all of us, we know ourselves better than anyone else. And as parents, we know our children better than anyone else, and certainly should never give up and work very hard to be strong advocates to support what their needs are and support them to grow and advance. Kari Luther Rosbeck ** 45:36 That's exactly correct, Michael Hingson ** 45:41 and it needs to happen a whole lot more, because all too often, I can imagine hearing people say, well, it's nothing, it's just your it's your imagination. Well, no, it's not, you know, but we see way too much of that kind of thing happening in the world. So it's great that that you're able to do so much. What about in the in the professional world, or in just dealing with people and their lives? What? What kind of things are you able to do to, let's say, help support somebody who wants to go out and get a job? Kari Luther Rosbeck ** 46:21 Sure? We point them to local resources that might be an expert in that. We also have navigation guides that might help them, that are a supplemental resource to our TSC navigator. We have adult topic calls and adult open forums so that they might also get guidance and advice from their peers that have walked that journey. So those are some of the resources that we will help people who want to get a job Michael Hingson ** 46:55 do Centers for Independent Living help. Kari Luther Rosbeck ** 47:00 Are you familiar with those? No, I'm not familiar. Sorry, I'm not familiar. So the Michael Hingson ** 47:04 CIL system is a system of independent living centers. It really started, I don't know, but I think in Berkeley, it's centers that teach and advocate for the whole concept of being able to live independently, and deals a lot with physical disabilities, and I'm not sure how much the developmental disability world interacts in the CIL it may be a lot more of a physical thing than anything else. Kari Luther Rosbeck ** 47:32 Well, always great to have new resources that we can share with our community. It's worth Michael Hingson ** 47:38 exploring Absolutely, because it could very well lead to something that would be helpful, not sure, but it's always worth exploring. The arc is Kari Luther Rosbeck ** 47:47 another organization I was gonna ask about that frequently. Yes, we've, we've had a partnership with the arc in the past. Many of our community regions obviously work with local arc chapters. It is a partnership that we truly value, and they have a ton of resources that are available for individuals, seeking jobs, seeking Independent Living, seeking so or housing for families. So we don't need to replicate what somebody is already doing. Well, we will partner with that organization, Michael Hingson ** 48:25 and that makes sense. There's no sense in replicating. It's all about collaborating, which makes a lot more sense to do. Anyway, Kari Luther Rosbeck ** 48:33 exactly we agree. Michael Hingson ** 48:36 Well, so what are so, what are your your sort of long term goals from here? Oh, Kari Luther Rosbeck ** 48:45 long term goals from here? Well, we want to continue to improve quality of life for everyone. We want to make sure that there is adequate transition between childhood and adult in terms of medical care, independent living, or housing or schooling, or whatever that transition may employ, we really want to make sure that we continue the pipeline of new treatments. We want to drive towards a cure. We want to support and empower every family living with TSC. One of the things that we've really been able to do because of advocacy, is to grow the TSC research program at the Department of Defense. So this is a congressionally directed medical research program. There's been an appropriation for TSC since fiscal year, 2002 and cumulatively, 221 million has been appropriated for TSC research. We want to continue to grow that. But on a state level, we've also had some success in growing state funding for. TST clinics in particular states, and for TSC research at those institutes. So over 5.7 5 million have been advocated, have been appropriated from the states of Maryland and Missouri and Michigan and Alabama. So very excited about continuing to grow that that program, as I mentioned, I think getting on the newborn screening panel would be a game changer for TSC, complete game changer. And we want to continue to grow our advocates and grow those that are available as leaders in their communities to offer support to others. Michael Hingson ** 50:39 So the funding comes through the Department of Defense. Why is that? Kari Luther Rosbeck ** 50:44 It is a program that is high risk, high reward. You have to have some military relevance. So so for TSC, obviously, our connection to epilepsy and our mass models that are used for developing epilepsy medications, those mass models can also be used to look at traumatic brain injury. So that's a connection. It's high risk, high reward. So understanding the underlying biology of TSC and finding that genetic pathway that I mentioned was one of the hallmark achievements early on of this program. So it's, it's, it is so amazing. The early gene therapy work for TSC started at the TSC research program at the Department of Defense. Michael Hingson ** 51:33 And I gather you're probably getting a lot of really good support from DOD. So Kari Luther Rosbeck ** 51:38 it doesn't come to the TSC Alliance, we advocate to make that funding available to researchers around the country. So we think of that as part of our mission for driving research. But we don't see a dime of that. Those dollars, they all go through Fort Detrick and through the Department of the Army, right? The other cool thing, though, Michael is we nominate consumer reviewers, so people that help advocate for these funds also sometimes get a seat at the table to say what research would be meaningful for their lives as a consumer. And that is a really cool, unique thing that happens. Michael Hingson ** 52:21 Yeah, well, and I was asking about support, I was thinking more of their they're perfectly willing and pleased to be a part of this, and are really open to helping and really contributing to the research, because I would think it would help all the way around 100% Kari Luther Rosbeck ** 52:40 and the one thing is the TSC Alliance, the DOD and NIH. We all work together so that we're not duplicative. But we have, there was a research strategic plan that was developed out of a workshop at NIH that we all follow as kind of our guiding principle. We all do different things, and we all complement each other. So out of that NIH plan, for instance, a bio sample repository and preclinical consortium was recommended, and recommended that the TSC alliance is the patient advocacy group, be the one that started that and continues to make sure that those resources continue. That's just an example. Obviously, DOD does high risk, high reward. And NIH, you know, the prevent trial that I mentioned, the first preventative trial for epilepsy in United States, was funded by the National Institute of Neurological Disorders and Stroke. We helped educate the community so that people would want to participate. Michael Hingson ** 53:46 Well, it's, I think, important and relevant to ask, how can people get involved? What can the rest of us all do? Kari Luther Rosbeck ** 53:54 Oh my gosh, I'm so glad you asked. Well, please go to TSC alliance.org, learn more about the organization. Become a volunteer. Help us. Help us with our walks, help us with our conferences. You can certainly get involved. If you're an individual with TSC and you want to get connected through social media, you can go to Facebook, Instagram, LinkedIn, YouTube, even Tiktok at the SC Alliance, we have very active discussion groups Michael that offer peer to peer support. 24/7 especially on Facebook, it is a private group, and those group of individuals and families have been so supportive for anyone walking this journey, you can call us at 1-800-225-6872, if you need support, you can ask for a support navigator. If you're interested in helping us with fundraising or making a donation, you can ask for our development department. If you want to volunteer, ask for. Community programs, we want all takers, and we're always also happy to talk with any organization, any nonprofit, that's wanting to pull together their programs, seek advice or work as a partner, Michael Hingson ** 55:15 and what's the phone number? Again? 1-800-225-6872, Michael Hingson ** 55:24 and the website is TSC Kari Luther Rosbeck ** 55:26 alliance.org, Michael Hingson ** 55:29 cool. Well, I've asked lots of questions. Have I left anything out? Any other things that you think we ought to cover? I Kari Luther Rosbeck ** 55:37 think you did a great job. I would just say if anybody wants to join us at our 50th Anniversary Gala, we'd love to have you. TSD alliance.org, backslash 50 Gala. We will be celebrating october 25 at ciprianis in New York City, and we'd love to have you with us. Ooh, that sounds like it'd be fun. I know you gotta get your family to bring you this time. Well, yeah, Michael Hingson ** 56:07 if they're going to come, they should, should take me. I'm trying to think, I don't know whether I'll be anywhere near there at the time, but my schedule changes all the time, so it's sort of like everything else you never know. But I will keep that in mind, because it would be fun to come and get to meet you in person. I would love that. Well, I want to thank you for being here with us. This has been, needless to say, very educational and very enjoyable. And of course, as you know, I have the personal stake of a great nephew, but just being able to talk about it, to hear the progress that's being made as, I think, really crucial and really important to be able to let people be aware of and I hope that people who do hear this will get involved, will at least learn more about it. Have you written any books or anything? I have Kari Luther Rosbeck ** 56:57 not written any books. Oh, we got to get you to work. That's right, you're an inspiration. Michael Hingson ** 57:04 Well, something to work on. You should? You should write a book about it all. That'd be a new project. It's not that you don't have enough to do, though. That's Kari Luther Rosbeck ** 57:13 right. Michael, I'm too busy taking care of our community right now, but when I retire, that might be something I think about. Well, there Michael Hingson ** 57:21 you go. Well, I want to thank you again for being here. This has been, I will say, enjoyable, but it's been most educational. I've learned a lot, and I appreciate your time, and I hope that, as I said, everyone else has as well. So I want to thank you for being here, and anytime in the future you want to come back and talk some more about what's going on and tell us about other new, revolutionary changes and so on. You are always welcome. Kari Luther Rosbeck ** 57:46 Thank you. Michael, I'd love to come back. Well, thank Michael Hingson ** 57:50 you again, and let's do it anytime you'd like, Okay, you got it. **Michael Hingson ** 58:01 You have been listening to the Unstoppable Mindset podcast. Thanks for dropping by. I hope that you'll join us again next week, and in future weeks for upcoming episodes. To subscribe to our podcast and to learn about upcoming episodes, please visit www dot Michael hingson.com slash podcast. Michael Hingson is spelled m i c h a e l h i n g s o n. While you're on the site., please use the form there to recommend people who we ought to interview in upcoming editions of the show. And also, we ask you and urge you to invite your friends to join us in the future. If you know of any one or any organization needing a speaker for an event, please email me at speaker at Michael hingson.com. I appreciate it very much. To learn more about the concept of blinded by fear, please visit www dot Michael hingson.com forward slash blinded by fear and while you're there, feel free to pick up a copy of my free eBook entitled blinded by fear. The unstoppable mindset podcast is provided by access cast an initiative of accessiBe and is sponsored by accessiBe. Please visit www.accessibe.com . AccessiBe is spelled a c c e s s i b e. There you can learn all about how you can make your website inclusive for all persons with disabilities and how you can help make the internet fully inclusive by 2025. Thanks again for Listening. Please come back and visit us again next week.
In der neuen Folge von HSV Meiner Frau nehmen wir unsere Saison-Predictions unter die Lupe – und müssen feststellen, dass wir manchmal sicher auftreten, obwohl wir völlig danebenliegen. Vor allem Kai musste ordentlich einstecken, und auch seine neuen Vorhersagen für die Rückrunde sorgen für den ein oder anderen Lacher. Wir blicken außerdem auf den 1. FC Köln und das erste Heimspiel der Rückrunde. Pia hat die "Player to Watch" im Gepäck und liefert spannende Insights zu den Schlüsselspielern. Zum Abschluss gibt es noch eine Hiobsbotschaft: Gute Besserung, Noah – wir denken an dich! Hört rein und startet mit uns in die Rückrunde – nur bei HSV Meiner Frau!
In der neuen Folge von HSV Meiner Frau nehmen wir unsere Saison-Predictions unter die Lupe und müssen feststellen, dass wir manchmal sicher auftreten, obwohl wir völlig danebenliegen. Vor allem Kai musste ordentlich einstecken, und auch seine neuen Vorhersagen für die Rückrunde sorgen für den ein oder anderen Lacher. Wir blicken außerdem auf den 1. FC Köln und das erste Heimspiel der Rückrunde. Pia hat die "Player to Watch" im Gepäck und liefert spannende Insights zu den Schlüsselspielern. Zum Abschluss gibt es noch eine Hiobsbotschaft: Gute Besserung, Noah wir denken an dich! Hört rein und ...Du möchtest deinen Podcast auch kostenlos hosten und damit Geld verdienen? Dann schaue auf www.kostenlos-hosten.de und informiere dich. Dort erhältst du alle Informationen zu unseren kostenlosen Podcast-Hosting-Angeboten. kostenlos-hosten.de ist ein Produkt der Podcastbude.Gern unterstützen wir dich bei deiner Podcast-Produktion.
In der heutigen Folge quatschen Leni & Lizzi über ihre Vorsätze für das neue Jahr 2025
In der heutigen Folge des "Nizar & Shayan – Die Deutschen Podcast" diskutieren die beiden eine ernste Frage mit einem humorvollen Twist: Würdest du deinem Partner im Krankenhaus deine Niere spenden? Doch dabei bleibt es nicht – sie spinnen die verrücktesten Szenarien weiter. Was, wenn man die Niere spendet und der Partner sich danach trennt? Mit gewohnt witzigen und manchmal absurden Gedankenspielen nehmen Nizar und Shayan dieses moralische Dilemma aufs Korn. Eine Folge voller Lacher und Denkanstöße! Alle Kanäle | Die Deutschen https://linktr.ee/diedeutschen
Gail Sussman-Miller founded Inspired Choice in 2001. She took the title of Chief Obstacle Buster which describes her perfectly. Gail lived her entire life in Chicago Illinois until she and her husband moved to Sarasota Florida in 2019. While Gail grew up thinking she should be a teacher along the way she decided she did not wish to teach youngsters. She recognized that her talents were put to better use teaching and coaching adults. She makes it quite clear that she has fun and great joy working with adults. She will say that some people want to be coached and some who think coaching for them is not necessary. I would say that Gail urges people to approach the coaching experience with an open mind. She is, as you will hear, quite successful at her work. About the Guest: Gail Sussman-Miller, Chief Obstacle Buster at Inspired Choice, helps women leaders leverage, rather than squelch, feminine power and abilities they don't realize they possess, so they live their most authentic, joy-filled life. She is an expert at guiding women to deliberately choose their thoughts and beliefs to design desired experiences and results. Gail's techniques shape new perspectives that reduce stress, discomfort and procrastination which increases decisive action, inner peace and resilience amidst the uncertainty of life. The bottom line is increased freedom and more joy! Clients find Gail's perspective-shifting techniques, practical tactical action steps, and spiritually-inspired wisdom indispensable. Her rare gift, shared by 7% of leaders assessed, is she senses and sees things few people see, speaks that truth and offers actionable ways for participants to thrive and fulfill their soul's desires. The biggest demand and focus of Gail's coaching is strengthening the efficacy and collaboration in challenging conversations and relationships by combining truth, authenticity, and vulnerability. Professional background. Gail has been teaching executives and women at all levels to turn obstacles into opportunities since 2001 as a coach, facilitator, speaker, and trainer. She received her training as a professional coach at the Coaches Training Institute (CTI) in 2001. Gail is certified in the EQi-2.0 emotional intelligence assessment by MHS, a well-known publisher of psychological assessments. Prior to founding Inspired Choice, Gail delivered computer job training for visually-impaired adults and spent 13 years at Andersen Consulting (Accenture) in Marketing, Knowledge Management and Technology Coaching. After a lifetime in Chicago, Gail made Sarasota, Florida her home in 2019. www.inspiredchoice.com Ways to connect with Gail: Gail@inspiredchoice.com www.inspiredchoice.com http://www.linkedin.com/in/gailsussmanmillerr https://www.facebook.com/GailSussmanMiller/ About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our podcast through our tip jar https://tips.pinecast.com/jar/unstoppable-mindset . Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts. Transcription Notes: Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. Michael Hingson ** 01:21 Well, a pleasant hello to you. Wherever you happen to be today, you are listening to unstoppable mindset, and my name is Michael Hingson. You can call me Mike if you want. It's okay as well. I am the host of unstoppable mindset, and today we get to chat with Gail Sussman-Miller, who is are you ready? Here it comes, Chief obstacle. Buster, I love that, and she is the chief obstacle Buster at inspired choice, which is an organization that she founded. She has been a coach for, wow, 23 years. You started in 2001 I think you said, And so anyway, this will be a fun conversation. She's got lots to talk to us about, and we've been talking for the last few minutes about how to talk about some of the visual stuff to an audience that isn't necessarily going to see it. And that isn't because the people who aren't going to see it are blind. It's because they're not watching this, but listening to it on a podcast site, so you guys get to experience things the way some of the rest of us do. But anyway, Gail, welcome to unstoppable mindset. We're really glad you're here. Gail Sussman-Miller ** 02:32 Thanks, Michael. I'm honored to be here, and I've had fun getting to know you as we get ready for this. Yeah, Michael Hingson ** 02:39 well, and it's been good to get to know you and get a chance to really chat. Let's start, if we could by maybe you telling us sort of a little bit about the early Gale, growing up and some of that stuff, always a good way to start right. That could take an hour, but I'll leave it up to you. It reminds Gail Sussman-Miller ** 02:54 me of the movie, I think was called the jerk that Stephen Martin was in, and he starts out saying, I was born a poor, black child. Started with his anyway, so I grew Michael Hingson ** 03:10 up. I was born, I was born modest, some people have said, but it wore off. But anyway, you were born in Chicago, and I was born in Chicago. Gail Sussman-Miller ** 03:20 Yeah, I grew up on north side, so yes, I'm a Cubs fan. Michael Hingson ** 03:25 I was south side, and I still love the Cubs, Hopelessly Devoted Gail Sussman-Miller ** 03:29 and lived my entire life actually in the city limits. Sometimes people say they're from Chicago to give people a reference, and they really live in the suburbs. So I loved, I would say all Yes, actually, all my residences were within two miles of Lake Michigan, and I love being near water. So grew up. I'm the the eldest of two girls, and close to my cousins, really great, close family. And then I went to college at Northern Illinois University, got a degree in teaching elementary and special ed at a time when there was a surplus of teachers, and I wasn't sure I wanted to do it as a career. And then I learned later in life that I love teaching, but actually prefer teaching adults. So it's been an interesting evolution of I would say most of my jobs were just good enough. I was one of millions who believed you live for Fridays and work is something you do to make money because you have to. And it wasn't until I was in my 40s that I found my ideal dream. Work, which is coaching and speaking and teaching, and I came home to a profession that I thought was just for me. It was perfect. It was great. And in the last five years, almost five years, we've been in Sarasota, Florida, made some permanent move and happy ever since, so Michael Hingson ** 05:26 until you were in your 40s, were you teaching school or what were you doing? No, Gail Sussman-Miller ** 05:30 I never became a teacher. It just wasn't. I didn't enjoy my student teaching. I did enjoy trying to parole and contain and control 2025 kids. I love children, so that was why I thought, Well, it's interesting. When I went to college, I had no strong calling for a profession, so I enrolled in teaching as the Lacher of evils, if you will. It just was like, well, compared to being a scientist, computer engineer, or you name it, this, I like kids and I like teaching, I just didn't like the combination. Michael Hingson ** 06:15 So what did you do for jobs? Gail Sussman-Miller ** 06:20 Oh, we'll see if I can remember, there was a period of time where I worked for an educational publisher, because I thought, Okay, I have a teaching degree. Maybe this will be interesting. It was not. I spent some time even working as a temp because I was good at computers and word processing, as it was called in the day. Yes, and it's so funny, Michael, I actually need my resume in front of me to tell you things in sequence. But the funny thing was, each thing led to something else. I think of my life as walking through a doorway and then going down a hall with lots of doorways, and then I choose another doorway, and that leads to another hall with doorways, and that's how I wound up where I am. So at one point, I think it might have been after the education publisher. There were, there were literally, I'm I'm being this is proof how meaningless some of my jobs were. But I did spend four years in Chicago at the chicago lighthouse at the time, called Chicago Lighthouse for the Blind and Visually Impaired. I think they've changed their name now, and I taught transcription skills and typing to adults who then went on to get jobs and get placed. And that was the most gratifying thing I did, and that's where I realized I much prefer teaching adults Michael Hingson ** 08:01 you created a an interesting analogy, one that I subscribe to a lot. I think that each of us go through life making choices, and if you really sit down and think about it, you can trace your life back to and through the choices that you make. So you did a variety of things, and you discovered something with each choice and each thing that you went off and did, I can trace my life back because of the choices that I made. And I also studied teaching. I got a secondary teaching credential. And I actually thought of teaching, but then an opportunity to take a job in technology, actually working with Dr Ray Kurzweil and the National Federation of the Blind, with the development of the Kurzweil Reading Machine came along, and that led to working for Ray, and I was going to do human factors and continuing to do some of the work I did when we were all originally developing the first machine. But then after about eight months, I was confronted with a choice of either leaving the company or going into sales. And I decided, I love to tell people I lowered my standards from science and went into sales, which is not true, but I didn't lower my standards, as it turns out. But what I what I discovered, and I always liked teaching, I always liked explaining, and what I discovered was that the best salespeople are teachers. They're counselors. They really are involved in understanding what a customer's needs are, and then teaching that customer about how to get those results, hopefully with their products, I've had some situations where the product that we had wasn't the right solution, and of course, from. One standpoint that's an ethical issue to deal with. Do I say it's our product won't work, or do I still try to sell it? My belief has always been, you take the ethical choice and I are a few times where we specifically said our product won't work, but here's what will but whenever that occurred, we developed a level of trust that then led to other opportunities later on, but teaching people and really advising and counseling was something that I enjoyed, but I but I hear what you're saying about teaching adults. The question I would ask you is there are a lot of people who say that adults tend to be locked in and are much harder to teach than children. What do you think about Gail Sussman-Miller ** 10:44 that? Oh, wow. I don't think that's ever it's funny in a way. I don't think that's ever crossed my mind. Michael Hingson ** 10:54 It's like teaching language. You know, children learn language and additional languages. Gail Sussman-Miller ** 11:00 Yeah, I would agree there. What I mean by that is, and what I thought you were going to ask me, so maybe I'll answer it anyway, is what I liked more about working with adults, and I like being able to hold the adult accountable and responsible for their learning and for asking questions, for speaking up, all of that. It depends, I suppose, if the adult, if the person I'm working with, wants to be in the training slash coaching learning situation or not are very there was only one period of time as a contractor where I was matched with people without my meeting them or knowing them. Normally, my clients come to me and then I get to we see if we have a fit in both ways. So there were a few times where people were assigned to me and didn't necessarily want to have coaching. But what I'm a master at is helping people look at their perspectives and shift them for their greater good. So it almost always worked out that I could say or get to help them see this is going to benefit you, whether you ask for it or not. And let's figure out what it is you would most like to get out of it. Yeah? So enlisting, yeah, enlisting them, engaging them. And then I, I don't think it's ever been a challenge. In my opinion, Michael Hingson ** 12:36 my wife was a teacher for a number of years, and she liked teaching third graders more than older kids, because she said a lot of the older kids had already developed their attitudes, whether taught by their parents or whatever, and developed habits that weren't necessarily positive. And as a result, it was harder to work with them than it was to work with third graders, because third graders were at an age where she could get them to to think and to focus, and was able to get them to look at and hopefully learn the things that she was trying to Teach, whereas older kids she felt didn't do that nearly as well. So that was an interesting observation that she had. And eventually she she left teaching because, well, here's a story. She was going to do a Valentine's Day party for her class, and she made a deal with the students. The parents were going to bring goodies and they were going to come and all that in the park. That. And the party was supposed to start at two o'clock, and she made a deal with her students, and I don't know whether it was that morning or before, but she said, we'll start the party when you all get your work done. Okay? And everybody agreed. Well, at two o'clock, kids had been goofing off and so on, so the party didn't start. The parents had to wait outside, and it was like about 20 minutes late for the party to start. The kids finally finished the stuff they were supposed to do, and one parent pitched a real hissy fit and had her well, took her to the principal's office. The principal called her in and said, what's going on? The parents are not happy with what you did that day. And Karen brought the students in, who were the children of the parents, and the parents complained that she was too hard on the students and all that. And so Karen then said, Okay, kids, what was the arrangement that we had? And they all said we were supposed to get our work done before the party could start. Why didn't we start the party on time? We didn't get stuff done and that was it. You know, the principal told the parents, go away, go away. It is accountability. And Karen. Is really always great at accountability, and I love the concept of accountability, and when you're creating teams and so on, the most basic fundamental is all about being able to hold each other accountable. And you don't do it because it's a personal thing, or you have an ax to grind, it's because the whole team agrees that those are things that everyone can do. So I agree with you, accountability is important. That's great. Gail Sussman-Miller ** 15:29 I also think that if motivation is important, so your wife used the party as a motivator, and with adults, if they really want to change their results, then this is and I don't, I don't dictate how to do it as much as help them figure out how they're going to do it, Michael Hingson ** 15:52 absolutely, absolutely. So Gail Sussman-Miller ** 15:56 it's fun. It's fun. I have a blast, and some people are a term coaches use is coachable. Some people are more coachable than others. And usually I can kind of assess that early on. And sometimes it's we go as far as they're willing to go. They may also not be emotionally ready to go any further Michael Hingson ** 16:22 well. So in 2001 you discovered that you really wanted to teach adults more, and you started your organization. And so inspired, choice came to be. Tell us more about that and what it is and how it's evolved over the years. Gail Sussman-Miller ** 16:43 So I'm actually it's kind of funny. I was I got married in 2000 came back from my honeymoon to find out I'd been laid off. I spent 13 years at Anderson Consulting, which became Accenture, just as I was leaving, and I, I don't even remember, I think I had seven different jobs in 13 years. They there was a lot of shifting, and one or two I enjoyed the most because they had a lot of teaching. So I enrolled in a couple of programs. Chicagoans will recognize this name, maybe, you know it the Discovery Center was on Lincoln Avenue. We've hired that so I took a class that introduced coaching there. And I said, this is interesting. I'm actually still friends with a couple people that were in that classroom, and then I went to a two day conference held by the local Chicago chapter of the International Coach Federation. And then I was hooked, totally hooked. So after being laid off, I spent some time looking for a job, and then I asked my husband if it was okay with him if I decided to pursue this training and then career and coaching. And he said, Sure. So that's where it started, and in 1997 I'm rewinding just a little, I did a two and a half day women's personal growth weekend, and started to do the deepest personal growth work I'd done, I would say, in my life, I'd done therapy for years, but didn't find it as effective as this. Two and a half days really moved the needle. And one of the women who was staffing that weekend, I saw her at a local event for that organization, and I mentioned I was unhappy about a few things. She said, Well, I think I can help you. And I hired her. Lo and behold, she was a coach. I didn't even know it, and it was immensely helpful to me. That's how I really got familiar with coaching. And then the two day, two and a half day weekend, and then all of that. So that's when I realized it was like a career design just for me. No one else was perfect. It was my orientation. Was not telling people what to do, it was helping them empower themselves and realize their best way. So I started my business very slowly. I didn't know anything about being a business person. I had no clue I was the least bit entrepreneurial, and it evolved slowly, but in the beginning, I kind of like thinking of as a sandwich on the bottom layer. The first piece of bread was about seven years working with women who were in the. Own businesses, helping them realize and find their best marketing method. I just love thinking about marketing, and then that led me to develop a workshop of my own called How to love networking, which most people do not love. It used metaphors, taking what they love to do most in their life, like, let's say cooking or knitting or travel, and how to network the way they do that activity they love. That led to my being discovered by a senior executive organization helping people network. So they asked if I would lead their Chicago meetings, and I did for about seven and a half years. That shifted me and put me in front of senior executives who were looking for jobs, and I taught networking and help them present themselves well within the meeting. And many of them needed additional help, so I was hired into that kind of coaching. And my whole career, my whole business shifted from helping women on marketing to helping executives with their job search, which is, by the way, still marketing. Michael Hingson ** 21:22 It is, how? How do you teach networking? What? What is that? Gail Sussman-Miller ** 21:28 I'll answer that in a minute, but my brain needs to finish this one. Okay, okay, brain, go ahead. My brain will be busy working on it. After about seven years of teaching these executives, helping them in their job search and promoting themselves and networking, I came back to working with women, and that's what I've been doing, working with women leaders on how to be a more empowered, truthful, authentic and vulnerable leader. So that just had to bring you up to the present. So how do you teach networking? It was helping to debunk what networking is, and I like to define networking as simply connecting with like minded people for the greater good. It's all about connection. What do you have in common? How getting curious? I mean that one of the basic concerns people had was always walking into a room like a networking event, and maybe there's 10 people, there could be 40 people. How do I start a conversation? How do I describe myself? And people being very attached to the outcome, I have to meet someone who's going to be helpful to me. I worked with some people who wanted to literally walk in the room, grab the microphone and say, I'm a tech engineer. Can anyone hire me? Like, Oh my gosh, that is not going to get you there, no, but very, you know, end result oriented. So it had a lot to do with understanding human nature, how to have these conversations, how to describe themselves well and talk about the outcomes they deliver, and to be of service help others. First things you've heard before, but it was usually getting at what their obstacle was. What was their obstacle to the process, Michael Hingson ** 23:29 makes sense, and and it and it is always a challenge. If let's take your example. I'm a tech guy who will hire me, shows in so many ways, probably what that person isn't looking at and needs to look at, and certainly could use a lot of teaching and coaching. The question is, of course, would they be interested in doing it? And that's, that's, of course, what you address and what you deal with. Some people are coachable, and some people aren't, and some people will be once they discover what being coachable is all about. Gail Sussman-Miller ** 24:15 Yeah, then a case like that, sometimes it's people that kind of urge, like, you know, I don't want to make small talk. I always say, Well, then don't make small talk. Make big talk. Ask important questions. Don't talk about the weather or how good the weenies are wrapped in the in the dough and the hors d'oeuvres. But they are impatient, perhaps because they're desperate, because they're afraid. I always wind up on the emotional undertones of what is going on. How long have you been in job search? Have you been turned down a lot what's going on? How confident are you? How well can you talk about what you do? Well. How well do you do in relationships having nothing to do with job search? What you know, are you good listener? All those things. So it's, I would say it's interesting about job search that at some level, people might not be at their best depending on how comfortable they are with the process, because it is not linear, Michael Hingson ** 25:27 yeah, and even if you're turned down for a job, do you ask? Why? You know? Are you willing to learn? And again, some people are and some people aren't. Right, right when I talk, when I talk with people about being as when I talk with people about being a speaker and and even sometimes they say we're considering you. And then if they come back and they say we went a different direction, I will ask why. I'd love to learn a little bit more. I don't, I'm not quite that blunt. I'll say something like, I'd like to learn a little bit more about what the process was and what led you to the choice that you made. If you would please take the time to let me know. And again, it's, it's a it's a process. I haven't generally heard that. Oh, you're not a good speaker, or whatever. And I suppose some people might not want to say, but usually it's we had somebody who went a different wanted us to go a different direction, or, I mean, any number of things, or we changed our mind about the theme for the event, which has happened more than once any number of things. And so you you take every, every opportunity, and you learn what you can. Gail Sussman-Miller ** 26:50 That makes sense. Yeah, yeah. It eventually. What led me at some point, I think the pretty sure the people were under and their fear and working with that, I think that some point that may have been what helped me decide to move on and instead of and practice what I preach. Really am I coaching this target audience out of passion, and I was starting to lose my passion. And I said, you know, I've been feeling a hankering to go back to working with women, and as I did the work on myself, this is not a surprise, but I was doing a lot of work on myself. To stand in my power more to really tune into my feminine energy and to spirituality. And it was all guiding me to say, you're not following your heart and soul passion. And then that led me right back to where I started, and working with women. There you go on on deeper issues. So it's been wonderful, Michael Hingson ** 28:09 by the way. What kind of work does your husband do? Gail Sussman-Miller ** 28:14 Oh, well, it's really interesting. He might have lost track how many years, but he's about a 45 year stock trader, and started out on the Chicago Board of Trade floor. Then around the time I met him, he, as they call it, went upstairs, became an upstairs trader, electronic only, and now, for maybe the last eight years, nine years, he's teaching traders and investors how to read the cycles in the stock market chart analysis and some emotional issues for traders. Traders psychology. And he created a membership for people that want to get involved at a deeper level or a lighter level. And he does training videos. He does. He's actually got a live show that he does once a month, and it's all about education and analysis, some really technical but this gorgeous, beautiful charting that he that he invented, of looking at where the rhythms are. I could go on and on about this, but I think that's probably all your listeners want to hear, because it gets great, really technical. And for those who are a little geeky, if you have ever heard of the Fibonacci formula, even the market follows Fibonacci cycles. Well, Michael Hingson ** 29:52 the reason I asked the question was you said earlier, when you decided to start your business, you asked him, and he said, Yes, and that. Immediately made me wonder, what kind of a guy is he that he was willing to be open, and clearly, he's an intelligent person. He observes a lot, and so it makes perfect sense that that he would be the kind of person who would support and agree with decisions that you could make and do make, and the fact that the two of you communicated about it is, I think, the most telling thing. It's great when a couple shares and essentially really decides together. Gail Sussman-Miller ** 30:36 Well, I can't wait to tell him what calls over. He's uh, currently relaxing by the pool after his Friday, his Friday live show. But the interesting thing, or, or, and the three, the two and a half day training I told you that I did in 97 he did the men's version, which is a little more popular. It's called a little has more notoriety. It's called new Warrior, and he did that in like three months before I met him, and that changed his life. So, communication skills, self awareness, taking responsibility, all of that, that was what drew me to him and that, and we've been growing those skills ever since, no taking responsibility if you get triggered, and not blaming the other person. Yeah, understanding a lot of emotional intelligence, a ton of emotional intelligence. In fact, we both got certified in a tool published by MHS, and it's a emotional intelligence assessment. Michael Hingson ** 31:46 Well, you've been coaching for a while, needless to say, 23 years. What are the most common issues that women leaders ask for support on? Gail Sussman-Miller ** 32:01 There's usually one common thread, and it's about, how do I have this conversation? I need to tell this employee they're not doing well, but I don't want to hurt their feelings. I'm not getting along well. Things are not going smoothly with one of my direct reports. I don't know how to approach that. Or there I have some clients who are in a male dominated industry and a male dominated firm, and they may be the only woman in the room. How do I dan in my power express myself and communicate where very often, male and female communications can be different. So how to how to tell, have the conversations, how to tell the truth, what they think is the truth, without worrying about hurting people's feelings or having a lot of fear come up and how how to move through the discomfort. It might be speaking up more than they're used to. It might be saying no, it might be setting some limits and being honest with some risk. So it's almost all connected, but those are usually the general themes, Michael Hingson ** 33:29 yeah, and it's unfortunate that there have to be risks just to being able to speak up where as if it were just men in the room, probably the same issue wouldn't be there, but we're still way too patriarchal, I think, in a lot of ways, and that tends to be a problem. I love it when people are willing to speak up and be open. I think it's it's so important to do that. Gail Sussman-Miller ** 33:57 Well, I can tell you that while I was still coaching on job search, most of my clients were men, and they had plenty of fear about speaking up plenty it is really not so gender biased, especially networking or interviewing, or how am I going to answer that question, or all of this strategizing. Well, if they say this, then I'll say that. Or instead of what I have come to learn to not only do but to enjoy, is to just be be in the moment. Yeah? Like I often joke, I like being put on the spot. Yeah, I mean, you asked you, and I talked about some things we might talk about today, but I'm ready for you to ask me anything, and I think that's exciting. And if I don't know the answer, I'll say so, but, but I've learned to love honesty in that kind of Troy. And that's what I help my clients do, yeah, and I can think of, oh, sorry, let me just finish this one, thinking of this one client, he wanted to get promoted. He liked his company a lot. He was doing well, and he was going to go to this meeting where they're going to be all appears of his, and then the next level up of management, and he was making himself a little nuts preparing, like I said, if they go on this topic, I've got my notes, and if they go to this topic, I've got my notes. And I helped him to see how he could he didn't need he was over, preparing, spending a lot of time that he didn't need to. And this concept of showing up, show up, be present, answer the questions from what you know, and the words don't matter as much as the energy. It's about saying what you feel and what you believe and say that proudly. So he started doing that, and he couldn't believe the shift. And there's a there's a woman. Her name is nalima bat. I've heard her speak, and she has a meditation that helps get to the point of saying there's nothing to defend, there's nothing to promote, and there's nothing to fear. God practically just want to sigh at that, yeah, oh, that's so reassuring. And then you just show up because you're you've got the ability you know you you're ready. You're always ready. Michael Hingson ** 36:43 We just don't always think we are, because we overthink things. You know, the biggest problem with fear is we focus so much on the what ifs and that we create our own fear, rather than, as you just said, really living in the moment and and using the knowledge that you have, trusting your your gut or your brain, and, yeah, speaking up and doing the things that you know, really that you should do. And the reality is, you do know what you should do, but we are so focused so often on what if that we've lost a lot of those skills. They're there to be redeveloped. And I wrote a book that's going to be well, it'll be out in August of 2024 it's called Live like a guide dog, true stories from a blind man and his dogs about being brave, overcoming adversity and walking in faith. And the idea is to help people learn how to control fear. It isn't to be fearless, because fearless is a very powerful thing, but you don't need to let fear overwhelm you. You need to use it in a positive way. And one of the things that I learned and talk about in the book is that living in the moment is one of the most powerful things that we can do. That isn't to say you don't develop strategies and spend some time strategizing, but if you do it to the point where you drive yourself crazy and you don't really listen to yourself, that's a problem. Gail Sussman-Miller ** 38:21 You used a really important word there trust and we have this is a topic that I'm warning you. Michael could go pretty deep, so I'm going to try to stay at the top, because it can. It's so enmeshed, I have come to appreciate that as humans, we have to, let's call it two minds. We have our ego, fear driven mind that, from our cave days, is there to protect us. That's the the ancient reptilian part of our brain that's there to make sure that we have our fight, flight or freeze response if we see a big wooly mammoth today, our fears are very different, but we're not worried about a lion or a tiger around every corner, so we have this protective, fear driven way of thinking that you can also refer to as ego. That is the what if negative and I need to be careful. What if I don't get promoted? What if someone thinks this? What if a lot of women worry? What if I sound too outspoken? We've got all that worry side, and that's one mind. The other is love driven, and it is for many people. It is about faith. It is about beliefs that there is the. Our powers greater than us, and that it isn't what one side, the ego, human protective side, is very tied to body identification with the eyes, ears, nose and touch, all of that what we hear the other side is spirit identification, and and that there, there's magic in the world. There's mystery, yeah, and it is not 100% all up to you. People will feel your energy. There are, there's, whatever you want to call it for you, divine, the universe, spirit. There are other forces at work, and that that's where, if we can trust that it doesn't all rest on our shoulders, not all within our control, either, but we, one side is powerless. This side, to me, is where you have your power. I need to do my best, and I can show up. Michael Hingson ** 41:00 We don't always have control over what happens, but we always have control over how we deal with what happens, and that's the part that we have to make, the choice to address. And the example I always give with that is the World Trade Center. We had no control over it, and I no one's convinced me yet that we could have figured it out, but each and every one of us moves forward from the World Trade Center, and we have the choice to make of how we deal with what happened that day. We can hate love, we can use it as a way to move forward and help others and ourselves and so many different things that we have a choice to do. Well, Gail Sussman-Miller ** 41:45 I hope so here do, yeah, yeah, big time. Michael Hingson ** 41:50 And I think it's the important thing that we we need to do. Let me ask you this question. You have a tool that you use to help men and women improve their results. And do you want to talk about that some? Gail Sussman-Miller ** 42:04 Yeah, and it's all about what you were just talking about. It's all about perspective and it all and the power of our thoughts. So very typically, when I work with people, I'm sure you see this, and the people you talk to, people want to change their results. So they say, Well, if I want a better career, I want this, or I want that, I need to change my actions, my behavior. And usually that's where it stops. Is okay. Want a job, I'm going to go look for a job. I'm going to do this, do that, do these steps. I want to get promoted. I'm going to start showing up like this or that, and then it sometimes doesn't work, or they're too afraid, so they do some shortcuts, or they aren't showing up fully in their strength and their ability and their power. So what I help people realize is before you go take those changed actions to get new results, there's something that happens before the action, and that is, you look at choices options, you think about your options first, and then you choose one or two, and you do those actions before the choices, even before you look at a list of choices, there's an emotion or a feeling. If your job search is motivated by fear, then your options that you look at might be somewhat desperation driven, and then your behavior, and then the results you get. If we I'll stick with job search as the example. What triggered those emotions? Where do those come from? So even before the emotion, there's some kind of a belief, and before the belief we have thoughts, and I like to kind of put those in the same bucket, thoughts that we hold on to long enough become beliefs we can have fleeting thoughts, like I think I can fly, but then when we we look at what we believe. So there's often a trigger at the beginning of the whole process. I need a job. I've just been laid off, and the thought or belief is this is a tough market. No one's going to want to hire me. I didn't get enough to a high enough level, or my resume is not going to be impressive. That creates the emotion of fear. Fear leads to limited options, like, I'm not even ready to talk about my skills. I'll just go apply online. That's it. I'll send out like 50 resumes online. Online is never the best way to find a job, and it's usually. Maybe 20% of the best strategy. So we look online, and then the result is, that's our action. The result is, maybe we get called for one or two interviews. So now we're annoyed This isn't going well, that thought, that belief now starts a whole nother chain reaction. This isn't going well. I'm never going to find a job more anger and frustration and fear, and we make new choices, take more action, and the results may not change. So what you can do with this is interrupt the whole flow and choose a different thought, a different belief. And one possibility for this kind of a person would be, I've had a reasonably good career. I have a lot of skills, maybe if I ask for some help, I can present myself in a different way, or I'm really focusing too much on the negative, and a new belief might be if I tell my story in a more positive way, and if I can calm myself down, I know I'm hireable. I know I can do well, and that would bring a new emotion of some positivity, some maybe even a little spark of joy, some contentment. I don't know if we could go all the way to happy and we look at making different choices. Who can I ask? Who do I think describes themselves really well? Who has a lot of confidence? Maybe a good friend of mine can help me, and we look at a bunch of choices. I've heard that networking is more important than looking online, but I don't, I don't think I can network well. Who do I know that networks well, and then we take different action, like maybe talking to one of those friends, or working with a job search office or a coach, and we get different results, and that then feeds the formula again. Then we're like, okay, that worked. I'm on the right track. I got more interviews. I'm hireable, and it keeps circulating and circulating. Michael Hingson ** 47:28 Yeah, and the example you just gave, the reality is, all too often we talk ourselves into a bad situation or a not positive situation, because we do the what ifs and we don't look at options. And I think it's so important to think about the more positive things. And the reality is, Gandhi put it very well when he said interdependence is an ought to and ought to be as much the ideal of man as a self sufficiency. And the point is, is so true that we're all part of the same world. We're all part of the same process, and the more we work together, and the Learn More we learn to work together, the better it will be. Yes, Gail Sussman-Miller ** 48:17 and interestingly, maybe building on your What if concept, there's, there's a, there's a game I sometimes play with people, if you can picture like the chair you're sitting in is, is center center point. What if negative moves to your left every time you answer? Well, what if I don't get a job? Well, what if I go hungry? What if I'm broke? What if, and you keep moving left, left, left, further, or you can come back to center and move to the right, well, what if I get some help, and that leads to a job? And what if this, and what if this going positive, and you just notice where, where are you in the center? And the minute you go, what if, positive two or three steps, but you have a negative thought, it takes you back to the center. So it's just a way of paying attention. Am I? Am I going up with my What if, or in this case, to to the right, or am I going? What if negative they can go either way, Michael Hingson ** 49:26 well. And the issue is, you take two or three steps to the right or movements to the right, and then a negative thought comes along again. You have the choice and the control of how you deal with that negative thought of that as a negative thought, I'm not going to let that control my life. It might be good point. Glad you brought that up negative mind, but that's not going to help me progress, and that. That's the part that I think a lot of people don't learn how to deal with very well. We're way too negative oriented in our world. It seems, sometimes seems to me, Gail Sussman-Miller ** 50:12 Well, it's interesting, because that's the human protective ego side bringing up the fear based thought, like, Ooh, wait a minute, you're feeling a little too cocky so you could get hurt. Let me throw a monkey wrench in here. Well, what if? And then here comes the negative thought. And we really those thoughts are so powerful, they influence not just our emotions and choices and action and results, but they they influence what what we believe, and we actually vibrate that to other people. I'm sure you know our listeners and and you have walked into a room and said something with with other people, and you just feel something in the air someone's like, did you just walk in after an argument two people had or something doesn't feel right. We really do vibe off each other. And using continuing to use the job search metaphor, depending on how you come in the room to meet someone that wants to have a conversation with you, you set the tone you really we have that power. It's takes a lot of practice, though, to catch like you said, Oh, thanks, negative mind, because it is worth thinking. It is trying to protect you, and especially your very young child. All our coping mechanisms, we taught, we were taught them or developed them, and it's gotten us this far, but it may not be serving you anymore, or Michael Hingson ** 51:54 you you haven't learned how to put a barrier or a stop to those things, and that's the the part that's missing. Can you give us an example? Tell us a story about someone who you've helped with, with the whole process and what happened? Gail Sussman-Miller ** 52:12 Well, this is kind of fun, and this has happened a couple times. To tell you about I'm trying to decide which story to tell you, because I'm also thinking about protecting confidentiality. So maybe this is a little easier one. So I have a client who, right now is actually a month from today, is her 65th birthday, and she's thinking was came to me thinking about retiring. She She and I worked together, I don't know, maybe 10 years ago, and she came back, and she was in a lot of either or thinking, so I'd like to make a decision, and may 12, be retired, but I still really love what I do. She's a musician, and I know she would enjoy my telling her story, and I still get a lot of pleasure out of it, but I don't want to work so many hours. She's used to kind of just saying yes to every gig that comes along, sure I'll play for you. Sure, sure. So part of our work was about what is your desired outcome? What do you really want? Do you want to stop working and cook and visit with people and go on trips? No, I really still like working, but I don't really trust myself to not work all the time. So we wound up shifting using a similar thought formula. Her current belief was it's either work or play. That was it. So that led to feeling overwhelmed and afraid, and that led to her making choices to postpone it, which is really a choice. She didn't take action. And the result is, well, I'm getting even closer to that 65th birthday, and I have no decision. And we shifted to the concept of what about work and play, that there were way to set ways to set limits. We came up with some criteria, all based on joy. Which gigs bring you the most joy? Oh, well, that's easy. I get to play this instrument, not that one within 25 miles of my home, for people that I really like, Okay, now we have, like, a thought filter, a choice filter for choice filter, right, right. It has to meet this criteria, this one and this one. Oh, but then I'll hurt the feelings of people I say no to we worked on that. Well. Now. I just talked to her yesterday, she said no to like, two or three gigs. Said yes to six. She's working fewer hours, and now she's exploring, what do I want to do with my time off? She's never taken much time off, and now it's just plugging in some time for my husband, some time for learning new recipes, some time for practicing my instrument, and now she trusts herself to only say yes to the gigs that bring joy. And Michael Hingson ** 55:32 why did she say no? Why did she say no to some Gail Sussman-Miller ** 55:38 they they were on holidays, which she's used to sacrificing holidays. And she said, Nope, I want Easter with my husband and my family. I'm saying no, Michael Hingson ** 55:50 that's my point. Yeah, and yeah. And it was limits. It Gail Sussman-Miller ** 55:54 was setting limits. Maybe she'd worked with them before and they didn't pay on time, or it was out of her driving limit, or something about it, there's no one else in the room with her making the decision. Something about it didn't feel right, like it's just trusting instinct, but there were some clear cut yeses and clear cut nos instead of I need to please everyone, so I have to say, yes, yeah, Michael Hingson ** 56:26 which is so cool. 56:28 Yes, it's so fun. Well, what's Michael Hingson ** 56:30 the best way that people can explore working with you? Gail Sussman-Miller ** 56:33 Well, I think that when we share this video and the audit the recording, that folks will have my email but let me give it to you now. Yes, please. My email address is Gail, G, A, I, L, at, inspired choice.com, that's I n, s, p, i, R, E, D, C, H, O, i, c, e.com, you can also call me good old telephone, 773-477-4012, still have my Chicago area code. There you go. And my website, if you want to learn more, is www, dot inspired, choice.com, Michael Hingson ** 57:20 and through the website, and I would assume that through the website, they also can contact you. There's contact information on the site and so on. 57:28 Cool. Michael Hingson ** 57:31 Well, this, I think, has been a lot of fun to do, and I think it's so important that people learn that they can discover better how to make choices, and that you're out there to help. And I still love chief obstacle. Buster, I think that's such a great title. Gail Sussman-Miller ** 57:52 And Michael, I just want to add that I'm happy to always set up a zoom and meet with people and explore the possibilities and see it has to be a good fit on both sides and like, am I even someone who is coachable, or is this something that would even work for me? So that's always the first step. Michael Hingson ** 58:16 Exploration is always a good thing. Yeah. Well, I want to thank you for being here, and I want to thank you all for listening and watching us today. I hope that this has been informative and useful and helpful, and that you will take advantage of the services and skills that Gail has to offer and that you'll reach out to her. I want to thank you for listening, and as always, really appreciate all that you're doing with unstoppable mindset and attending our different episodes. I'd love to hear from you. You can reach me by email at Michael H i, at accessibe, A, C, C, E, S, S, I, B, e.com, or go to our podcast page, www dot Michael hingson.com/podcast, Michael hingson is m, I C, H, A, E, L, H, I N, G, s, o, n.com/podcast, wherever you're listening, please give us a five star rating. Really would love to get that. It really is one of the wonderful things. When people give us a rating, we hope it'll be five star. But whatever you rate us, please review and we'd love to hear your thoughts and your comments. If you know of anyone else who ought to be a guest on unstoppable mindset, please encourage them to reach out, or you reach out and introduce us. Love it. Gail, you as well. If you know anyone else who ought to be a guest, please let us know. Thank you today. Michael, well, I want to thank you again, and we really appreciate you being here. Thanks very much for all of your time. Thanks. **Michael Hingson ** 59:54 You have been listening to the Unstoppable Mindset podcast. Thanks for dropping by. I hope that you'll join us again next week, and in future weeks for upcoming episodes. To subscribe to our podcast and to learn about upcoming episodes, please visit www dot Michael hingson.com slash podcast. Michael Hingson is spelled m i c h a e l h i n g s o n. While you're on the site., please use the form there to recommend people who we ought to interview in upcoming editions of the show. And also, we ask you and urge you to invite your friends to join us in the future. If you know of any one or any organization needing a speaker for an event, please email me at speaker at Michael hingson.com. I appreciate it very much. To learn more about the concept of blinded by fear, please visit www dot Michael hingson.com forward slash blinded by fear and while you're there, feel free to pick up a copy of my free eBook entitled blinded by fear. The unstoppable mindset podcast is provided by access cast an initiative of accessiBe and is sponsored by accessiBe. Please visit www.accessibe.com . AccessiBe is spelled a c c e s s i b e. There you can learn all about how you can make your website inclusive for all persons with disabilities and how you can help make the internet fully inclusive by 2025. Thanks again for Listening. Please come back and visit us again next week.
Ab17 - der tägliche Podcast mit Kathrin und Tommy Wosch. Montag bis Freitag. Morgens und AbendsWOSCH WORLDTOUR: https://www.eventim.de/artist/ab17-podcast/?affiliate=GMTKlick hier für Rabatte und Partner Aktionen: https://bio.to/Ab17shownotesDas Steady Weihnachtspaket: hier zum Paket klickenInstagram: https://www.instagram.com/ab17podcastWhatsapp Channel: https://www.whatsapp.com/channel/0029VaBSCV98kyyQceNs4A1IIn dieser besonderen Weihnachtsfolge feiern Kathrin und Tommy Wosch die festliche Zeit direkt aus Fuerteventura. Sie teilen ihre Eindrücke von einem sonnigen und doch gemütlichen Weihnachtsfest in ihrem Apartment, weit entfernt von der Heimat, und lassen die Hörer:innen an ihren Ritualen und Gedanken teilhaben. Die Folge ist ein bunter Mix aus persönlichen Geschichten, musikalischen Highlights und literarischen Erinnerungen, die perfekt zur Weihnachtsstimmung passen.Während sie von spanischen Dörfern, Sonnenschein und kleinen Alltagsanekdoten erzählen, lassen Kathrin und Tommy das Jahr Revue passieren. Sie sprechen über die Herausforderungen und Freuden, die ihre Podcast-Selbstständigkeit mit sich brachte, und bedanken sich bei ihrer Community für die Unterstützung. Humorvolle Einblicke, wie die Poolgymnastik mit einem weihnachtsverrückten Animateur oder der Duft von Papas selbstgekochten Nudeln, sorgen für viele Lacher. Gleichzeitig laden literarische Klassiker, wie Geschichten von Heinrich Böll und Erich Kästner, sowie persönliche Reflexionen zu einem nachdenklichen und warmen Fest ein.Besonders bewegend wird es, als Tommy über den Wert von Zufriedenheit spricht und die Hörer:innen ermutigt, Frieden mit sich selbst und anderen zu schließen – ein Gedanke, der die Essenz von Weihnachten einfängt. Musikalisch untermalt wird die Folge von Weihnachtsklassikern und persönlichen Lieblingssongs der beiden, die jede Stimmungslage von besinnlich bis ausgelassen abdecken. Eine herzerwärmende Episode, die das Weihnachtsfest zelebriert und gleichzeitig Raum für Besinnung schafft.Inhalt00:00:00 Begrüßung und Weihnachtsstimmung00:01:10 Kathrin und Tommy feiern auf Fuerteventura00:02:54 Alltagsanekdoten: Frühstück und Papas Nudeln00:03:36 Musik-Highlights: Lieblingssongs und Geschichten00:08:50 Heinrich Bölls Weihnachtsgeschichte00:17:00 Erich Kästners Familien-Weihnacht00:22:20 Erinnerungen an die Weihnachtsgans Auguste00:26:09 Poolgymnastik mit Andrew00:30:35 Weihnachtsgeschichte aus dem Lukas-Evangelium00:34:00 Gedanken zur Zufriedenheit und AbschiedViel Freude mit der Folge und frohe Weihnachten!
In der neuesten Folge des "Nizar & Shayan - Die Deutschen Podcast" tauchen die Hosts tief in die Welt der Politik ein – auf ihre gewohnt humorvolle und unkonventionelle Art! Von der Frage, wer eigentlich der Boss in Deutschland ist, über das Bündnis von Sarah Wagenknecht, bis hin zu wilden Ideen wie Nizars eigener Parteigründung: Hier wird kein politisches Thema ausgelassen. Außerdem diskutieren die beiden über die Wahlen in den USA, die kuriose Karriere von Ronald Reagan und ob Helge Schneider Bundespräsident werden könnte. Eine Folge voller Lacher, Gedankenexperimente und überraschender Einblicke! Alle Kanäle | Die Deutschen https://linktr.ee/diedeutschen
La Libye du maréchal Haftar sort-elle renforcée après la chute du régime Assad en Syrie ? C'est la question qui se pose, au vu du risque pour les Russes de perdre leurs bases militaires en Syrie. Y aura-t-il bientôt une base navale russe à Tobrouk ? Le grand spécialiste de la Libye Wolfram Lacher est chercheur à l'Institut allemand des affaires internationales et de sécurité. RFI lui a d'abord demandé si, après la perte de leur allié syrien, les Russes n'allaient pas se tourner encore plus vers le maréchal Haftar. RFI : Wolfram Lacher, si les Russes perdent leur point d'appui en Syrie, est-ce qu'ils ne vont pas se tourner encore davantage vers la Libye du maréchal Haftar ? Wolfram Lacher : Ils vont sans doute l'essayer, mais est-ce qu'ils vont le pouvoir ? Est-ce que Haftar permettra aux Russes de renforcer leur présence en Libye ? C'est une question, parce qu'on voit à travers les années dernières que Haftar a toujours cherché à jongler entre plusieurs partenaires étrangers et à ne jamais se rendre dépendant exclusivement d'un État.Dans le territoire libyen contrôlé par le maréchal Haftar, les Russes auraient des facilités sur quatre bases aériennes : al-Qadeer, al-Joufra, Ghardabiya et Brak ak-Shati. Mais est-ce que les avions gros porteurs russes peuvent atteindre la Libye sans faire escale sur la route pour faire le plein ? Cela dépend sans doute des espaces aériens qu'ils peuvent traverser. Or, on a constaté cette dernière année qu'ils peuvent traverser l'espace aérien turc, par exemple. Mais c'est très possible, si la Russie perdait la base aérienne en Syrie, que ça compliquerait la logistique, le ravitaillement pour la présence russe en Libye et plus au sud en Afrique.Du côté des navires de combat, si les Russes perdent leur base navale de Tartous en Syrie, est-ce qu'ils pourront replier leurs bateaux dans un port libyen ? Alors les Russes cherchent depuis plusieurs années déjà à établir une base navale à l'est de la Libye. Pour l'instant, Haftar et ses fils n'ont jamais accédé à cette requête parce qu'ils savent que cela pourrait rompre leurs relations avec les puissances occidentales. Or, la situation actuelle où et la Russie et les États-Unis et d'autres pays de la région - donc les Émirats arabes unis, les Égyptiens, tout le monde - essayent de maintenir des bonnes relations avec Haftar, c'est une situation très confortable pour Haftar et donc je pense que, pour Haftar, il n'y aurait aucune nécessité de maintenant offrir le territoire libyen aux Russes et de se rendre dépendant de manière exclusive du soutien russe et de couper ses relations avec les pays occidentaux.Apparemment, le maréchal Haftar et Vladimir Poutine s'entendent bien. Ils se sont vus à Moscou en septembre dernier. Mais est-ce que le maréchal libyen est un allié aussi fiable que l'était le dictateur syrien Bachar el-Assad ? Il n'est peut-être pas fiable dans le sens où il suit les directives qu'on essaierait de lui donner, mais Haftar a besoin de cette présence militaire russe parce que la fonction de protection contre d'éventuelles attaques, d'éventuelles offensives de la part des forces en Tripolitaine, cette fonction de protection qu'a la présence militaire russe, c'est difficile de voir une autre puissance étrangère la remplacer pour Haftar. Donc, c'est pour ça que la relation entre Haftar et la Russie est une relation qui est bénéfique mutuellement. Les deux ont besoin de maintenir cette relation.Depuis six mois, le maréchal Haftar, qui est âgé de 81 ans, prépare sa succession. Il met en avant l'un de ses fils, Saddam. En juin dernier, quand Saddam Haftar est allé à Ndjamena, le président tchadien lui a demandé de mettre sous cloche les rebelles tchadiens du Fact, dont la dernière offensive en 2021 avait coûté la vie à Idriss Déby. Est-ce que vous pensez que le clan Haftar a donné suite à la requête du régime tchadien ? Oui, effectivement. Depuis environ deux ans, il y a une coopération assez étroite. Il y a eu des arrestations de chefs rebelles, y compris au sein du Fact, qui ont été livrés au régime tchadien. Et à ma connaissance, le Fact n'a plus de présence en tant que force, en territoire libyen, en ce moment.Et le Fact aujourd'hui n'est plus en mesure de lancer une nouvelle offensive comme en avril 2021 ?Aujourd'hui, je crois qu'il n'y a pas de forces rebelles tchadiennes en territoire libyen qui soient en mesure de lancer une offensive semblable. Par contre, il faudra voir si, avec le fait que la France retire ses forces du Tchad, ce n'est pas un facteur qui pourrait conduire à une nouvelle mobilisation de rebelles tchadiens qui pourraient donc organiser de nouveaux groupes, que ce soit au Darfour ou ailleurs dans les pays avoisinants du Tchad.
Wir sprechen über alles, was man für die perfekte Weihnachtszeit braucht! Von den besten Party-Tipps über lustige Anekdoten zu Weihnachtsfeiern bis hin zu unserer neuen Sambal Hollandaise Sauce – hier ist für jeden etwas dabei. Ach ja, und Geheimratsecken kommen auch zur Sprache … warum? Das müsst ihr selbst herausfinden. Eine Folge voller Lacher, Inspiration und leckerer Ideen – hört rein!
Ab17 - der tägliche Podcast mit Kathrin und Tommy Wosch. Montag bis Freitag. Morgens und AbendsKlick hier für Rabatte und Partner Aktionen: https://bio.to/Ab17shownotesDas Steady Weihnachtspaket: hier zum Paket klickenInstagram: https://www.instagram.com/ab17podcastWhatsapp Channel: https://www.whatsapp.com/channel/0029VaBSCV98kyyQceNs4A1IAnfragen wegen Kooperationen oder Werbung gerne an: kontakt@diewoschs.deIn dieser Episode von „Ab 17“ erleben Kathrin und Tommy Wosch eine humorvolle, satirische Reise durch Alltagsthemen und gesellschaftliche Reflexionen. Die Hosts beginnen mit einem scharfsinnigen Blick auf die Absurditäten moderner Konsumgesellschaften, illustriert durch skurrile Geschichten aus Möbelhäusern. Dabei bringen sie gekonnt ihre persönliche Note ein, indem sie über missglückte Kaufversuche und das Verlangen nach perfekten Weihnachtsgeschenken berichten. Humorvolle Anekdoten, wie die einer Relaxliege in Anthrazit, die zu einem Sinnbild von Wünschen und Wirklichkeit wird, sorgen für Lacher und laden zum Nachdenken ein.Doch die Folge bleibt nicht nur leicht und lustig. Kathrin und Tommy diskutieren über die Dynamik von Siezen und Duzen, reflektieren über zwischenmenschliche Nähe und gesellschaftliche Distanz und greifen aktuelle politische Themen auf. Mit einer Prise Ironie und ihrem unnachahmlichen Stil nehmen sie sich selbst und die Welt um sie herum unter die Lupe und bieten dabei jede Menge Unterhaltungswert. Abgerundet wird die Episode mit persönlichen Gedanken und einer Vorschau auf kommende Projekte, die Vorfreude auf die nächsten Episoden wecken.Inhalt00:00:00 Begrüßung und die Debatte über Duzen00:06:30 Reflexion über Gesellschaft und Konsum00:12:00 Weihnachtsgeschenke und skurrile Einkaufsstorys00:18:30 Persönliche Anekdoten zu Familienerlebnissen00:24:00 Humorvolle Gedanken zur Arbeitswelt00:30:30 Diskussion über Nähe und Distanz im Alltag00:36:00 Reflexion über gesellschaftliche Normen00:42:30 Gedanken zu politischem Engagement und Werten00:48:00 Kathrins Geschichte über Kita-Erlebnisse00:54:30 Abschied und Vorschau auf kommende Projekte Hosted on Acast. See acast.com/privacy for more information.
What's going on with horses' big teeth? Equine veterinarian Dr. Erica Lacher and her husband, Justin B. Long, are back for more horse talk! What kind of hay is best for a horse's diet, and how much do they need? (Spoiler: Around 24 pounds every day!) They talk about investing in high quality food, as “it definitely pays to not go cheap.” Plus, they emphasize how tight-knit the horse community is, and recommend joining a group to get tips on everyday horse care. Stay for our Ask the Expert segment, where you'll find out why it may be handy to have diapers and wire cutters on hand! Care Experts is a weekly podcast by CareCredit where we sit down with doctors and experts who give information, tips and insight into healthcare treatments and procedures. Check in every Wednesday for new episodes at carecredit.com/careexperts or subscribe on your favorite podcast app. CareCredit is a health, wellness and personal care credit card that has helped millions of people with promotional financing options and is accepted at hundreds of thousands of provider and retail locations nationwide. Learn more at carecredit.com.
If you've ever had dreams of getting a horse, this one's for you! We're speaking with equine veterinarian Dr. Erica Lacher and her husband, Justin B. Long, from Newberry, FL. They talk about how horses are not just their job, but a lifestyle. These majestic creatures are actually quite delicate, needing tons of understanding about how they perceive the world. Listen in for Dr. Lacher's recommendations for how a first-time horse owner might start learning about these animals before making a commitment to caring for them. You'll also learn the importance behind the saying, “You can lead a horse to water, but you can't make it drink!” Check back tomorrow for part two! Care Experts is a weekly podcast by CareCredit where we sit down with doctors and experts who give information, tips and insight into healthcare treatments and procedures. Check in every Wednesday for new episodes at carecredit.com/careexperts or subscribe on your favorite podcast app. CareCredit is a health, wellness and personal care credit card that has helped millions of people with promotional financing options and is accepted at hundreds of thousands of provider and retail locations nationwide. Learn more at carecredit.com.
Ab17 - der tägliche Podcast mit Kathrin und Tommy Wosch. Montag bis Freitag. Morgens und AbendsKlick hier für Rabatte und Partner Aktionen: https://bio.to/Ab17shownotesDas Steady Weihnachtspaket: hier zum Paket klickenInstagram: https://www.instagram.com/ab17podcastWhatsapp Channel: https://www.whatsapp.com/channel/0029VaBSCV98kyyQceNs4A1IAnfragen wegen Kooperationen oder Werbung gerne an: kontakt@diewoschs.deIn dieser Episode von „Ab 17“ starten Kathrin und Tommy Wosch mit einem augenzwinkernden Blick auf absurde Alltagssituationen und gesellschaftliche Eigenheiten. Im Zentrum steht eine Diskussion über Gauner und deren absurde Einfälle – von schiefgelaufenen Tankstellenrauben bis hin zu kuriosen Erpressungsversuchen in der Welt des Sports. Besonders der Fall rund um die Schumacher-Familie bietet Stoff für spitze Kommentare und Reflexionen über die Naivität mancher Täter. Mit gewohnt bissigem Humor beleuchten die Woschs, wie leichtsinnig Menschen glauben, sich mit dreisten Plänen durchsetzen zu können.Doch es bleibt nicht bei Gauner-Geschichten: Die Hosts diskutieren auch über Geschlechterrollen, gesellschaftliche Erwartungen und die Symbolik von Luxus in der männlichen Selbstwahrnehmung. Persönliche Anekdoten, wie die Erfahrungen auf Weihnachtsmärkten oder ein skurriler Vorfall mit der Polizei, lockern die Episode auf und sorgen für reichlich Lacher. Mit ihrer Mischung aus Humor, Tiefgang und spitzer Gesellschaftskritik liefern Kathrin und Tommy wieder eine perfekte Mischung aus Unterhaltung und Reflexion – ideal, um den Tag ausklingen zu lassen.Inhalt:00:00:00 Begrüßung und Gauner-Geschichten aus dem Alltag00:03:15 Absurde Tankstellenraube und naive Täter00:06:30 Diskussion über Männer und Luxusgüter00:09:50 Die Erpressung der Schumacher-Familie00:13:15 Reflexion über gesellschaftliche Erwartungen00:16:30 Weihnachtsmärkte und skurrile Begegnungen00:19:45 Humorvolle Anekdoten über die Polizei00:23:00 Diskussion über Geschlechterrollen und Symbole00:26:30 Abschied und Vorschau auf die Abendshow00:30:00 Dank an die Hörer und Weihnachtspläne Hosted on Acast. See acast.com/privacy for more information.
In this episode, host Paul Nixon interviews two young German United Methodists, Samuel Lacher and Moritz Mosebach. Samuel and Moritz reflect on shifts happening in German Methodism that are leading to more success in engaging young adults. The key is a re-emphasis on encounter – an idea as old as the Gospels and prominent in evangelism theory across the ages.
Simon Sansome was born, raised and continues to live in England. He had what he considers a normal childhood except for the fact that he did have and has today dyslexia. As he describes it, reading even to day some forty-two years after he came on the scene, is extremely difficult for him. He does, however, write well. He will tell us about his growing up, going to a British college, then joining the workforce and eventually going to a university. Yes, college as he will tell us is different from university. In 2014 he was struck with a slipped disc. Unfortunately, the chiropractor who then attempted to fix the problem only made matters much worse and Simon became paralyzed from the waist down. Simon determined to move forward and went back to the university where he graduated in 2018 with a degree in journalism. Along the way Simon created a Facebook page and a community called “Snowball Community”. As the community evolved Simon and later others began posting information about accessible places first in England and then elsewhere as well. Today Snowball has received countless awards for all it is doing to promote accessibility and Simon tells us that they expect to have over a Million viewers on a regular basis. Snowball Community will soon be providing opportunities for restaurants, shops and other places to obtain in-person accessibility assessments and the ratings from those assessments will be available to promote the businesses that are evaluated. Simon by any standard is unstoppable and inspiring. I trust that you will agree. About the Guest: Simon sustained a life changing injury when he was 32 which left him disabled from the waist down. It forced him to take early retirement and he decided to go to DMU to study Journalism and pursue his passion for writing. In 2016, while at DMU, Simon set up a Facebook Snowball Community with the idea of raising awareness of, and improving, disabled access. His award-winning campaign has had a global impact and the page now reaches more than 20 million people a month. Simon is also an award winning film/documentary producer after his life story was brought by Amazon Prime and his film ‘Access All Areas' won 16 international film awards including best film. Simon is also founder of Snowball Community a global disability app where you can leave reviews on how accessible a place is. Which is available on Android and Apple devices. The app has had 40,000 reviews in 12 months making it the biggest disability app in the world helping thousands of people daily. Simon has won a number of major awards he is widely considered to be one of the most influential disabled people in the UK. He was named in the top ten of the most influential people in the UK 2023 and this yeas won the Digital and Tech award at the Disability Power 100 and won the prestigious Santander X national award and will represent the UK at the Santander Global awards 2024. Ways to connect with Simon: https://www.facebook.com/FreezeSnowball https://twitter.com/FreezemySnowbal https://www.instagram.com/freezesnowball?igsh=MTl5ZHMxb3FvdzV1dA%3D%3D&utm_source=qr https://www.tiktok.com/@snowball.community?_t=8jKD9oRZmPw&_r=1 About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our podcast through our tip jar https://tips.pinecast.com/jar/unstoppable-mindset . Leave us an Apple Podcasts review Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts. Transcription Notes: Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. Michael Hingson ** 01:20 Well, hi there. This is your host, Mike Hingson, and you are listening to unstoppable mindset where inclusion, diversity and the unexpected meet. I love to say that every so often, but here we are once again, and now we are talking with Simon Sansome, who is over in England. So it is about 736 in the evening there, and it's 1136 where I am. So Simon, welcome to unstoppable mindset. Simon is a he's going to talk about snowball and I don't want to give that away. He also is a person with a disability. So again, welcome to unstoppable mindset. Thank you very much. It's Simon Sansome ** 02:01 a pleasure to be here. Michael Hingson ** 02:02 Now I am curious about something that just popped into my head. Do you all have daylight savings time over there that takes effect at some point? Yes, we Simon Sansome ** 02:10 do. Yes. Michael Hingson ** 02:12 When will that start? Simon Sansome ** 02:13 No idea whatsoever. It just pops up on my iPhone and changes itself 02:17 these days. Yeah. Yeah. I Simon Sansome ** 02:22 mean, best thing from working at home doesn't really affect me. Yeah, well, it's not like I lose an hour or gain an hour because I just stay in bed or get up, you know, get it when, when I need to. So, yeah, Michael Hingson ** 02:33 now I'm just really curious. I'm gonna look at my calendar. I think, 02:39 I think it's April. Michael Hingson ** 02:40 Is it all the way to April? Yeah, with Okay, over there, it's April. Well, here Daylight Savings Time begins. Oops, I'm sorry. Daylight Saving Time begins next Sunday. So you can tell we're recording this in advance of when it's going to actually go up everyone but daylight savings time here in the US, begins on March 10 so time Time flies. However, when you're having fun, I guess Simon Sansome ** 03:13 there is a rumor over here that Daylight Savings Time was actually created by Benjamin Franklin so we could play golf in Scotland. Is that what it was, apparently so, but obviously we've got nothing to verify that, but that's the rumor. Well, Michael Hingson ** 03:26 yeah, but it didn't get implemented all that soon. But you know, on the other hand, um, Benjamin Franklin is also one of the main characters in the new James Potter series, the outgrowth of the Harry Potter books. Oh, I didn't know that, because he is the Chancellor of Alma alaran, which is the American or US School of magic. So he's been around a while. This guy, Franklin, he's done a lot of stuff. But anyway, nevertheless, welcome to unstoppable mindset, and we're really glad that you're here. Why don't you start by telling us kind of about the early Simon growing up and some of those things. Yeah, Simon Sansome ** 04:06 of course, I grew up in a village called burst in Leicestershire, that for most people, nobody knows where Leicestershire is. Everyone thinks of Nottingham when they think of Les share because it's the cloak, because of Robin Hood. So Nottingham Sherwood Forest is about 40 miles north of Lacher. However, we have become more famous over the recent years. We won the premiership in 2016 in Leicester City, which went was was a fantastic thing for the city. And then Richard the Third interesting fact, it was found under my car parking space. Dickie three. I was working for social services at the time, and Dickie three under my car parking space. So that was fun, I know, but no grew up in a normal house, Mum, three sisters, went to school, was dyslexic, wasn't diagnosed. I did terribly at school, great at cricket, loved the sport, played a bit of rugby and. And, yeah, just, I suppose really, you know, I worked. I worked all the like, Saturday jobs, and worked in a fruit and veg shop from the age of 14 to 16, getting up at four, four o'clock in the morning, going to work for a few hours, then going to school, falling asleep at school before Yeah, and then going to close the shop up at night. And I did that for one pound 25 an hour, which was, you know, child slave labor, yeah? So really, your average childhood, nothing really exciting going on there. Michael Hingson ** 05:33 So did you ever go to Sherwood Forest? Simon Sansome ** 05:35 Many times it's a nice walk. Yeah, is it we go on a regular basis due to the fact that it's you can hire a they're called trampers over here. It's a big mobility scooter, and so you can go around Sherwood Forest in the mobility scooter. So we'll get there quite a lot, because it's a nice outing. What Michael Hingson ** 05:52 kind of trees? Simon Sansome ** 05:55 Big oak, okay, big ones, yeah, willows, oaks and lots more. You know, it's a forest. Michael Hingson ** 06:02 How big is? How big is the forest? Simon Sansome ** 06:04 Absolutely no idea whatsoever. It's big. It's a forest. Yeah, you know, it's a good few miles across, a few, good few miles wide. You're going to get lost in it, if you if there wasn't a path, yeah, yeah. Well, Michael Hingson ** 06:19 and it's nice that after all these years and all the reputation that it has, and Robin Hood hiding in it and living there, and all that, that it really does still stand and people honor it, which is cool. Yeah, Simon Sansome ** 06:31 I the best thing about Robin Hood, Prince of Thieves, if you've seen it, he arrives in Dover on by sea, and then by night, he's walked to Nottingham, which is about 250 miles, he's fast, Michael Hingson ** 06:47 and when you got to go after the sheriff, you know, you, you've got a mission, you got to do it, Simon Sansome ** 06:51 yeah? So fat place Walker, him and him and Morgan Freeman, Michael Hingson ** 06:57 well, my favorite movie is actually a slightly different one. It's called Robin in the seven hoods. Have you ever seen it is, Simon Sansome ** 07:04 is that the, I don't know if, no, I'm thinking of Robin Hood, many types. Yeah, Michael Hingson ** 07:09 Robin and the seven hoods, stars, well, the Rat Pack, basically. Okay, and so Bing, Crosby is no Frank Sinatra is Robbo. It takes place on the in Chicago during the gang times. So Frank Sinatra is Robbo. Dean Martin is John, or Little John. Bing Crosby was Friar, tuck and other people. Peter Falk was Guy Gisborne. Okay, you know, so they had all the characters. It was, it was really a cute movie. I've always loved to watch that movie. It's a lot of fun. So, and needless to say, it was a comedy and, and at the end, most everybody ends up behind, you know, in concrete. It in behind a wall, except for Friar Tuck who gets the girl? Fair enough. I think Robbo doesn't get walled up either, but it's a fun movie. But anyway, no Sherwood Forest. It's all on the south side of Chicago, okay. But anyway, so did you go to college? I Simon Sansome ** 08:16 went to college and dropped out and then moved when? Because I just didn't get along college. Well, the thing is, because I had undiagnosed, I was undiagnosed dyslexic, yeah, in the like, you know, 80s and 90s, it wasn't really recognized as a thing, no. So I really couldn't really write until I was 1516, so I didn't go to what you would I went to a college. But the college isn't what colleges in America, or secondary rather than higher education. So we go, we go primary school, high school, college, university, okay? And so I went to, I went to Leicester college to did, what did I do there? It was film, I think, yeah, for about a year, dropped out and then got a job in Scotland, and moved Scotland just on a whim and became a training manager in a hotel. And the idea was, is I wasn't going to be rich, I but I thought, if I could be a waiter, if I can be a barman, if I can be the head of the departments in a hotel in the catering industry, then I've got a job for life. Yeah. So I've got a backup plan. So because once you've worked in a bar, in a restaurant, or you've been a chambermaid, which I've done, or kitchen shoe chef, or whatever, you know, you can pretty much walk into any job anywhere, and just, you know, you're always going to have a job if you need to, you can find things. Yeah, yes, absolutely. And that was the plan, because I didn't have an education behind Michael Hingson ** 09:39 me. And then, and I'm amazed at the number of people, and I shouldn't be, because I understand the history who happened to have dyslexia or who were on, what we would say now is on the autism spectrum, who were never diagnosed. I've talked to a number of people here on on stop. Mindset who talked about the fact that they were autistic and didn't even know it until they were in their 30s or even 40s, and it was very freeing to figure it out, because they knew they were different, but they didn't understand what what was really going on with them, and then in the last 15 or 20 years, they finally got enough of a diagnosis, a lot of information. So they, oftentimes, they figured it out even before the medical profession did. Simon Sansome ** 10:37 Yeah, same thing that happened with me. It was late diagnosis, yeah. So, so after Scotland, I moved back down to moving with my sister to help her out, because she had a child, and she was struggling. She was single mother. And so I got a job working at British Gas in Leicester, which is in the call center, and I got and after a painstaking working a nine to five job in a call center, thought, I don't want to do this for the rest of my life. Yeah. So I returned to education. And I returned to Loughborough College, which is up the road, and my then teacher, my sociology teacher, after handing in my first assignment as a mature student, she went, right, you're dyslexic, have an assessment. And that's when it really Yeah, and that's when it changed. That's when everything changed for me. Michael Hingson ** 11:28 So what changed and why did it? Well, I can understand why, after the diagnosis, Simon Sansome ** 11:33 I got the support I needed, that I didn't that I didn't realize myself, that I needed so kind of support, extra reading lessons, extra tuition, how to read and write, how to spell, very patient teachers, and a lot more encouragement as well from the college, which then helped me go on to university as well. So yeah, so Michael Hingson ** 11:57 your your teachers helped you teach your brain to connect and be able to eventually really recognize, yes, so Simon Sansome ** 12:07 I learned very visually. I can't really read. Can't really read very well. However, I'm an excellent writer, which is ironic. And I was writing everything and everything because I enjoyed writing so much. But I couldn't read software. I couldn't read out loud. And if I would read, sit there and reading your book, I would have, I call them brain farts, but their memory lapses or something, where you can read a whole page, or three or four pages of a book, and you can read it absolutely fine, but I've got no idea what's happened in those three pages, the information just doesn't Michael Hingson ** 12:42 stay there. Yeah, the disconnect is still pretty strong. Yes, very much. So, Simon Sansome ** 12:47 so I learn visually. So I was, I mean, back in the day, I was a huge film fan, and that explains the reason why. Yeah, Michael Hingson ** 12:53 but, but you could write so you could, you could communicate. And whether, whether you, I assume, probably more often than not you, you wrote via a keyboard. Yep, Simon Sansome ** 13:05 very much. So I also used the dragon talk back in the day, yeah, Michael Hingson ** 13:09 but you don't. How did you do with like, writing with a pen or a pencil? No, I Yeah, no, I can do that quite well. You can do that quite well as well. Yeah, yeah. Simon Sansome ** 13:18 I kept my journal as well. I kept a diary, yeah, just because it helped me to write. So Michael Hingson ** 13:24 do you still use Dragon? No, Simon Sansome ** 13:27 no, God, no. It's atrocious. I don't I haven't used it for about 15 years, so I don't know where it is now. Oh Michael Hingson ** 13:34 gosh, it it is incredibly much better than it used to be when it was dragon. Dictate. Now it's Dragon Naturally Speaking, I use it a lot, and when I discover it has mispronounced, I can read or not mispronounce, but misrecognized or misinterpreted, I can correct it, and it doesn't take much in the way of corrections. But Dragon is so much better than it used to be. Yes, I use Dragon Professional and and I do type a lot and compose a lot, but I also find when I'm doing something that takes a while to do because it's long, it's much better to use Dragon to do it. Simon Sansome ** 14:18 Yes, No, I never really got along with Dragon. I used it, but a big fan of it. But however, the dictation on my Mac and my phone is absolutely perfect for me. We'll come to it shortly. But I'm a journalist as well now, and so I can write a story within 10 minutes, 500 or 1000 words within a few minutes. It's great, and Michael Hingson ** 14:40 you would find that that Dragon has that same level of accuracy, because I think a lot of the algorithms went from Dragon to other technologies, or the other way around. But Dragon is really great today. 14:55 Yeah, Michael Hingson ** 14:56 so, you know, I can't, I can't complain a lot about Dragon. And it really does help a great deal. It's a whole lot cheaper than it used to be, but that's another story. You know, of course, the original Kurzweil Reading Machine for the blind that read print out loud by being able to look at a page and recognize the characters. The original Ray Kurzweil machine was $50,000 and now you get free OCR on an iPhone or an Android device or or very inexpensive anyway, and optical character recognition is a common place kind of thing anyway. So yes, lot different than it used to be. The world does progress and move forward. It certainly does so you did eventually go to university. What did you do there? Simon Sansome ** 15:41 Yeah, so the first time I went to university. So I went twice, I did criminology. Oh, wow. Because I was enjoying writing so much, I thought I'd like to be a crime writer. What a waste of the time. If you want to learn about crime, you don't go and do you don't go and do criminology at university. So because it was so boring and so dull, I dropped out after the second year again. I mean, I was doing okay. I was getting about 50s, you know, so, two, two ish at university, but I really wasn't enjoying it, and I wasn't putting any effort into it. And so, yeah, I dropped out and looked for a job and went to work for the council. So Michael Hingson ** 16:27 the council being so, Simon Sansome ** 16:29 I worked for the local authority. Left City Council. Okay, yeah, the city council. Okay, great, okay, yes. So I, Michael Hingson ** 16:36 I that was different. It was, Simon Sansome ** 16:39 it was, it was very interesting, because I wasn't enjoying university, that was the thing, and so Michael Hingson ** 16:46 and so you decided to leave criminology at the university and go look at the criminals of the council, right? Simon Sansome ** 16:51 Pretty much. Yeah, I started off in housing. I worked as a housing assistant for a couple of years, working up there, and then, after a number of years getting a bit of experience under about doing some volunteering for youth services, um, I moved on to social services. And I was there till I left the council. And that was, that was an education. I did that for about eight years. And so, yeah, that and nothing prepares you for working for social services, going to see people intimate house you know, into their homes, their immediate environments, how people live, the poverty, the destruction, the drugs, the deaths you know, every you know, everyone's everyday life that you take for granted. And it certainly was an eye opening experience and a very worthwhile life education, Michael Hingson ** 17:43 yeah, at the same Yeah, it is a great education at the same time, when you do it and you care, you are also hopefully able to help people and make a difference, even if it's with one life that Simon Sansome ** 17:56 was the intention. So our specializing in adult mental health and physical disabilities by the time I left, and what you see every day is you try and get some positives from it, because you are saving lives and you're trying to make people safe, and that's your job. And at the end of the day, you get people who just don't care and just want to die and kill themselves. And yeah, it's people dying on you every day, especially if you come to the hospitals, that's interesting. I didn't I got transferred to one of the hospitals here in Leicestershire and but even before I had a case or went to see went to see a patient, to get them discharged from hospital, I had like, nine deaths on my table, wow. And so I got transferred back, just in case I thought I was killing people, even I hadn't seen anyone. Michael Hingson ** 18:46 So did, do you think you ever really did make a positive difference to any of those people who were really losing hope, or who had lost hope? Were you? Were you able to help? Simon Sansome ** 18:55 I mean, the thing is, is because you're the first point of call, so I was on effectively, emergency call outs. So you go and make sure that person is safe, you make sure they've got food, make sure they're okay, and then you pass it on to a long term team. So mine was the emergency intermediary department, like working with the police, ambulance service, firemen and so on and so forth. We would do joint visits. And so I really never got to see the long term effects. I was there to put the plan in place and then let a longer term, longer team, manage that person and the cash plan, or whatever was needed. So well, Michael Hingson ** 19:31 it's a it is a process, no doubt. So when did, when did you leave the council? What year was that Simon Sansome ** 19:39 that was? When was that that was 2015 Michael Hingson ** 19:42 Oh, okay, well, yeah. And then what did you go do? Because at some point after that, your life changed. Simon Sansome ** 19:48 My life changed. So it actually changed while I was working for the council. Um, so I became disabled in 2014 um. So I we're not 100% sure how the injury happened. I'll explain. So I was doing Ruby training at Victoria Park during that week, and I we also had a ton of bark delivered to our driveway because our driveway needed doing. And so I have this I slipped a disc, and I don't know if it's from the or it's from playing with me that I don't know, or rugby training anyway, not from cricket, not from Cricket. No, I have played cricket for a while, since then I played it as Michael Hingson ** 20:30 a lad. Cricket is very slow. Oh, cricket's amazing Simon Sansome ** 20:34 you. It's more technical than baseball. Yeah, Michael Hingson ** 20:37 I know. I understand. I When I visited New Zealand and listened to some cricket on the radio, and it was really hard to follow because it it generally does move pretty slow, so I know it's very technical, and I never really caught on to the rules. I did figure out rugby a lot more than than I was able to figure out rugby Simon Sansome ** 20:58 is 80 minutes. I mean, cricket lasts for five days. It's beautiful. Yeah, I Michael Hingson ** 21:02 understand, but you have to take the time to really learn the rules. And I didn't have enough time to really listen to the radio, I guess Simon Sansome ** 21:11 that's right. Anyway, yeah, so I had a slip disc. I've had a slip disc before, and normally I would take some ibuprofen, do my exercises, try and pop it back in. On this occasion, me and Kate, my new wife, we were going away on a honeymoon to Mexico, and so I went to see a chiropractor in the local area. And it was doing well, you know, I was getting better. I was exercising. What I was walking further. It was had I took a few weeks off work because it was really very uncomfortable, and couldn't really visit people in their homes when I'm really uncomfortable. However, on the fifth or sixth visit, this newly trained chiropractor decided she was going to have a go at putting the disc back in for my honeymoon, and she crushed levels three, four and five of my spine while doing that, and that hurt. I screamed. I didn't know what she did. I thought she slipped. I thought she she could. She warned me it was going to hurt, yeah, and it did. It really did okay. And I after I couldn't get my shoes on, so she was on. So she helped me get my shoes on, and effectively, she just threw me out after I screamed. I think she knew something that had gone wrong. I didn't know at the time. I just thought she put my disc back in because I was in so much pain. I collapsed outside where Kate was waiting for me in the car. And I went home and said, Look, I'm just going to go to bed. I'll sleep it off. And the following morning, I woke up, I thought I had a stroke because I had no sensation from the waist down. Yeah, Michael Hingson ** 22:50 yeah. My wife was a t3 para, so it was basically from the bottom of the breast down. But I understand exactly what you're saying, Simon Sansome ** 22:59 yeah. So it was a very unusual situation. I didn't know what to do. Kate had gone to work that morning. We lived in a cul de sac, a dead end road for you and me. Michael Hingson ** 23:10 Nope, no cul de sacs. Very well, that's okay, Simon Sansome ** 23:14 okay, that's fine. I wasn't too sure on the terminology for the American audience. Michael Hingson ** 23:18 It's it's a term over here, too cool, Simon Sansome ** 23:21 excellent. And so I was shouting for assistance. There's nobody there. I didn't have my phone on me. Phone was downstairs, and so I threw myself out of bed, did an army crawl, threw myself down the stairs, but naked, and I don't really remember a lot after that. I don't mean apparently my mom came round. Apparently, the ambulance came round. But I you know, but I don't remember a lot what happened. I really don't. What I know is, when I was taken to hospital, I had an MRI. Don't remember the MRI at all. Obviously, I'm under painkillers at this time, and there's a lot going on, and I'm in shock because I'm paralyzed from the waist down. And yeah, they they did an MRI. The emergency doctor said it was cordial. Quite a syndrome. Cordiaquinas syndrome is fully recoverable if you get an operation within 2448 hours. However, for whatever reason, and we still don't know the answer to this, the consultant overall, the A and E doctor, and said, It's not cordial Corona syndrome, and they put me on the ward for three months not knowing what to do with me, because they didn't know what was wrong with me. And by the time the by that time, the damage had been doing. Needed to do it within a 48 hour window to stop any permanent damage. But no, they left me there, and I was unfortunately left there to rot for three months. The damage had been done, and then I was paralyzed from the waist down for forever. I still, you know, I'm a wheelchair, full time wheelchair user. Now I. Yeah, Michael Hingson ** 25:00 yeah. By then it was irreversible and there was nothing you could do. Yeah, Simon Sansome ** 25:04 very much. So, Michael Hingson ** 25:06 so as a paraplegics, can you? Can you now? Well, I've summoned that. You then went through some sort of physical therapy and strengthening and so on. Yeah, Simon Sansome ** 25:17 absolutely. So I went through physio for a while. I mean, some of it has come back. Some of it did come back for a while. They said you probably going to get better for a while, but then it's going to deteriorate again. So the point where the first, after a year, I could walk, you know, 200 meters, maybe, with a walking stick and a frame. So I was getting out, you know, I could walk slightly. I could, you know, so that wasn't too bad, okay, however, then I got a drop foot, so that went so I couldn't really walk anywhere, because I got no balance. And then the other Association went to my legs, so I got to a point where I could walk slightly, a little, and then it started disappearing over the years. It's been 10 years now. So now I've while I've got about, in my right leg, I'd say about, ooh, 10% sensation. But my drop foot, there's nothing at all. Can't feel it, so you can drop it off, I wouldn't notice. And in my left leg, I've probably got about 10% usage. So I can move my legs, I just can't feel anything, and then my bowels and bladder have gone as well. So I've got a self catchpherized and stuff as well. Michael Hingson ** 26:25 Yeah, which? Which my wife always had to do. She was born with scar tissue on her spinal cord, so she's always been that way. We always been apparent. So obviously huge difference in your lifestyle going forward. And how did you cope with all that? What did you do? What did you decide to do? Because you strike me as a person who isn't going to let a lot row of grass grow under your feet, as it were. Well, I Simon Sansome ** 26:55 mean, we didn't know. Wow, this is the thing. We were stuck because I couldn't work, okay? And work made me take ill health retirement. They didn't want me back at work. Even though I didn't want to do that, I was forced to take ill health retirement at 32 we me and Kate. This is where me and Kate were very sensible. Is because Kate was earning a good wage, I was earning a good wage, and we brought the house. That was in case any of any of us lost our jobs, we could still afford the mortgage and the bills. Okay, wouldn't leave us with a lot of money, but we could just, we wouldn't lose the house, right? So if we, if we brought a huge because we had a nice three bed, semi detached, it was a really nice house, but it we could have Afford a House shovel the size, but if we did that, we'd be really stretching ourselves. So because we were sensible. That gave me the option to go and we needed to cover the mortgage effectively, because the bills were the bills and the mortgage were effectively case wage, and so we didn't have really any money to live on. You know, we're talking about 2030, pound a week after all, the bills will come out and the mortgage. So I decided that I was going to return to university to retrain, um, after pretty much the day afterwards. Uh, let's let city council told me how to take ill health retirement, and I applied to university to check do a journalism because I enjoyed Michael Hingson ** 28:14 writing. Did the health retirement then give you some income, Simon Sansome ** 28:18 very little. It was 134 pound a month. And it still is about, I think it's going to be up to inflation, like 150 pound a month. I get it after life, not much. Yeah, absolutely. Because, you know, I was 32 there's no money in the park for the ill health retirement, yeah. But what would happen is, is it would give us time to sort things out, and the student loan would cover any food bills, or, you know, anything we needed for that for three years. So it gives us a little leeway. So it gives us a little bit of an income. It takes the pressure off Kate and so I returned to university to train as a journalist, and that's again where everything starts to change again. So, Michael Hingson ** 29:04 but you could write, so there you go, yeah, Simon Sansome ** 29:07 um, couldn't spell. It still can't spell, but I could tell a story, yeah, so I can get it checked by Kate or my mom or whoever. So, yeah, it's, it was interesting. So yeah, I got accepted. And I was twice the age of everyone else there, which was a little bit embarrassing, but I didn't really care. I was more mates with I'm still in contact with them. Actually, I'm still, and this is like 2000 what, 15 until 18 I graduated. Yeah, I'm still in contact on Facebook and stuff with all my lecturers, not the people I went to university with, because, yeah, but all lecturers I'm still in contact with. Michael Hingson ** 29:46 So, you know, I want to come back and continue the story, but now I'm a little bit curious. Given the way things work over here, a lot of times, somebody clearly made them a. Stake in terms of dealing with your diagnosis and so on. Did you ever think about any kind of litigation or going after them legally and looking for funds that way, or anything like that? Simon Sansome ** 30:11 We had to. Never sued anyone in my life. Never wanted to. Yeah, but we're getting to the point where I you know, wheelchairs are expensive. Equipment's getting expensive. Mobility scooters are expensive. We need an adapted vehicle, brooches, medication. We need carers. We need, you know, personal help with personal care, adding confidence power, which was really expensive, and so we didn't realize at the time how expensive having a disability was. So we got to the point where we had to take legal action. And we saw a lawyer, we got recommended one, and after five years, they settled. They didn't go, he didn't go to court. And so that was put in a trust for my protection. Yeah, yeah, because I am going to deteriorate later in life, and the cost of that is going to be extortionate, so that is well protected. So yeah, Michael Hingson ** 31:16 yeah, it's unfortunate you have to do that sometimes my involvement in litigation was that I was thrown off of an airplane because of my guide dog, and we, we sued, we eventually settled years ago. Was back in the early 1980s it's an education to go through the process, and it did go to court. There was eventually a settlement. But it was even really hard to get a good jury, because some of the original people who were potential jurors worked for airlines, or new people who worked for airlines, and so they said they'd be prejudiced, and it didn't matter that a blind person with a guide dog was ejected from an airplane simply because of the dog. Yeah, of course, today that that couldn't happen, well, it could happen, but it would. It can. He Simon Sansome ** 32:10 still does. It does. It Michael Hingson ** 32:11 does and but the laws are, are more substantive, but even so, it lawsuits are, are really not an easy thing at all, and there's a lot of emotion that goes into it, and there's a lot that one has to decide they want to put up with. And you don't really know a lot about that until you're in the middle of it, unless somebody really sits you down and describes this is what's going to happen. I had a little bit of that, but I know how difficult it is to do people have told me I should sue the hospital that put me in an incubator when I was born prematurely, simply because that could cause blindness. And other people have actually sued successfully 20 and 30 years after they were born, they litigated, and I just felt, look, medical science had already started to be told that a pure oxygen environment could lead to what at that time was called retrolateral fibroplasia, which is now retinopathy or prematurity. But I think 2030, and 40 years later, suing doesn't accomplish anything and and so my parents and I talked about it a lot, and we all agreed that that doesn't make any sense to do, and we didn't, and I have no regrets about that, but your situation is significantly different than that. Yeah, Simon Sansome ** 33:44 we had to move house. We had to double our mortgage. We couldn't stay in the house we were in at the time. And yeah, it was, it was a painful experience. So yeah, we needed, we needed an adaptive property at the end of the day, and we simply couldn't afford one. So you found Michael Hingson ** 34:03 one, or did you build one? Or so Simon Sansome ** 34:07 we couldn't find one. We actually brought one off plan, but we had to double our mortgage to do it. Yeah, that was interesting. So that wasn't pleasant, pleasurable at all, but we managed it. So Michael Hingson ** 34:20 we had instances where we built a house from scratch. First one was a manufactured home, and then we we moved to New Jersey in 1996 and we built a house there because we couldn't find a house that we could relatively easily modify. And if you modify a home, the cost is so expensive because you've got to redo doors, you've got to redo counters, you've got to redo a lot of things. That's assuming you can find one that doesn't have too many stairs for a person in a chair, and that you can can ramp those but. If you build a home, there's really no additional cost other than the cost that we had in New Jersey, because it was in an area where they only had two story homes, so we did have to put an elevator in. So that was an additional cost, but that was the only additional cost, because, as you're pointing out, everything else was on plan and you you design it in, there's no additional cost for building lower counters if you're doing it from the outset. So we did that. But then when we moved to we moved back to California, we couldn't find a place to build, and so then we did have to modify a home and it and the problem is that you can't really put it in the mortgage, and it's a little different today than it was when we moved back out here in 2002 but we couldn't put it in the mortgage, so it was $150,000 that we had to find. And eventually it it worked out as you, as you pointed out with like with you. Then we moved here to Southern California. We built this home, and I am, I'm very glad that we did. It's, it's a great house. Simon Sansome ** 36:05 Yeah, we've got a lovely home now. It's fully adapted. It's great, you know, it's large. I can get around quite easily. So it's a it's very nice, Michael Hingson ** 36:14 all one floor, Simon Sansome ** 36:17 all one floor. Yeah, it's extremely long. Michael Hingson ** 36:19 There you go. Well, so you went back to university and and clearly that was a major commitment and dedication on your part to decide to do that, but you didn't. What was the university like? How accessible was the university? Simon Sansome ** 36:36 Oh, it wasn't accessible at all for me. So I had a manual hospital, manual wheelchair. At the time, I couldn't push myself around because of my spinal damage and the spinal damage that I've got. I can't really push myself well in a manual wheelchair, right? And we didn't have any money for a scooter, so the first year, I was really struggling because we didn't know what services we didn't know what services we could access. We didn't know what was available. I'm newly disabled. I'm new to this world, even my work for social services, and until you're sitting in the chair, what you know about the world is absolutely nothing. And so it wasn't until I came across Disability Services at the University who helped me apply for a grant with the snow interest in the UK, and they provided me with an electric scooter. Well, that was brilliant. I mean, oh my god, yeah, it's like I found freedom. Because obviously, you know, so my university is called, my university is called Democrat University. And although it's not on a hill by any means whatsoever. There is a slope going all the way down to the main campus. And it's quite, it's quite a long road, but the slope is very subtle school it helps, yeah, but if you're pushing yourself in a manual wheelchair up that slope, by the time you get to the main road, you're absolutely exhausted. You just can't push yourself anymore. Yeah, and it's about, it's about a quarter mile along the whole campus. And so, yeah, I was pushing myself backwards with my foot on the floor up the hill to get the classes and stuff. And I just said, This is ridiculous. This can't carry on. And so I spoke to Disability Services, and they helped me out. So, Michael Hingson ** 38:16 so what did you do once you So you went to the university, you you did that, and you were committed to making it happen and and there, there had to be times that they would have been tempting to give up, but you didn't. No, Simon Sansome ** 38:30 I wasn't really tempted to get up. I mean, I have side effects from my corticoana syndrome. I have, like, seizures in the legs, which can happen anytime, and that causes that knocked me out for a few days. Yeah, so I did get a few medical exemptions here or there, but, you know, the the lecturers were more than happy knowing that I was capable of doing the work, yeah, which is cool. Yes, very much so. But I did have to have a couple of exemptions here or there, but nothing major. But while I was at university, that's when I set up the Facebook page, which is now known as snowball community, and that's what brings us to it. So, right, yeah, Michael Hingson ** 39:05 so tell us all about snowball and yeah, and everybody should know that I teased at the very beginning. I said, Well, now isn't it time that we should remember that snowball was the name of the pig in Animal Farm. And Simon's not read Animal Farm, so I Simon Sansome ** 39:24 got red Animal Farm can't read, sorry. Michael Hingson ** 39:27 Well, go listen to it. Then, you know, it's not that long on the book. It's not that long. Simon Sansome ** 39:33 No. So when, when, after a year of recovery, when I was going to university, so I went. So we were going out for a meal. It was the first meal me and my wife went out following the injury, okay? And there's a really nice place in Leicester, Spanish tapas, and it was the first time out in the wheelchair for a meal, and we couldn't get in. Okay? We called up and the wheelchair wouldn't go through the door. There was a step. At the front. And they're like, can you step over? That went, No, not really. But what happened was, as well, they put a table in front of the disabled entrance as well. Oh, that was good. Yeah, they had a ramp that went into the road, so that was interesting. And then the disabled toilet was upstairs, and so it was an emitted, a mitigated disaster. It really was atrocious. And this, and we didn't know this, we know I've never paid attention to say what access, you know, it just something we'd never, you know, I've never really been in a wheelchair before, so why? Why would I, yeah, yeah, and only if Michael Hingson ** 40:42 you took an interest, but most people wouldn't think of that, yeah, yeah, exactly understandable. So Simon Sansome ** 40:48 yeah, we just thought, you know, what else can we not get into? And it turns out quite a lot. And so a couple of days later, I decided to set up a Facebook page. It was called Ability access. Back then. It's now, of course, now being rebranded snowball community. And you know, all it was, it wasn't anything special. It was a very simple Facebook page, and it was to raise awareness of disabled access in the Leicester area. That's all I wanted to do. I didn't want awards. I didn't want recognition. I didn't want any of that. But however, within like, I think it kind of triggered something in people. It's not mold. It snowballed. Yeah, exactly. And I'm not too sure why or how, but I started putting a post of pictures of things, of places I couldn't get into, and videos, and, you know, me being angry, and so on and so forth. And, you know, within a like, within a month, I had 1000 followers. You know, they went to 2005 1000. And just kept on growing and growing and growing. Then we got nominated for many the page got nominated for awards. He started winning awards. And that's when I, at the time, I decided I was going to create something, if I could, called snowball community, which was an app. I had the idea of a disability app, but I'll come to that in a second. And yeah, it just, it just would not stop growing at the moment, I think it's about 110,000 followers on social media, and in 2019 it became the most read disability page in the world because people sharing videos, people sharing stories. You know, we were reaching an audience of over 30 million people a month. At one point, it just got absolutely crazy. And I just mean, I couldn't carry on doing that. I mean that took a lot of time, that took a lot of effort. And we just said, Look, we can do something with this. We can use the audience we've got. We've got an audience who follows it on a regular basis, who comments on a regular basis. And I said to Kate, we could do something really special here. And so I just Yeah. Once I graduated in 2018 I graduated from university with, again, a two one with honors in journalism, and I was working as a freelance journalist as well, which is great. It's because I could work whenever I like, but really, ability access would now snowball, just started to take over my life on the social media pages. And I said, Look, we could design an app here and create an accessibility app, and it took years of design to try and get it right. It really did. We took, we took, we did consultations, but also we couldn't afford it at the time either. We had to raise money for it as well. That's quite hard. And so, no, it's at the moment. Snowball was launched last year, and we are looking to get 100 that it's won national awards. It's one we came back from Barcelona last week. Okay? It won funding at a global award ceremony. And it's really snowballing. It's, we're expecting 100,000 reviews on the app this year. Michael Hingson ** 44:04 So do you? So have you created an actual nonprofit organization out of it, like snowball.org or anything like that? Simon Sansome ** 44:15 No, I really wanted to. I wanted it to be a charity organization. Yeah. And the reason I wanted it to be a charity organization, because I had assistance from a charity organization in the UK while at university, however, um, here in the UK, there are very strict rules and regulations on what you can spend the money on if you're a charity. And I wanted to set up a fund to help students who have disabilities at university, so I can do that. But also, I wanted to give 10% of the profits to local businesses who can't afford to do their own adaptations. We're talking small businesses, coffee shops, you know, local cafes, bakers and butchers and so on and so forth, fruit and veg shops who simply haven't got the 1015 grand what's required to make their stores excess. Possible. So I still, I'm still ever have every intention of doing that, but I couldn't do that as a charity organization. The rules and regulations wouldn't allow me to spend the money where I wanted to and where I thought thought, see if it where it's needed to do so for the communities across the UK. So I actually set it up as a limited company with the intention of probably 10% of the profit aside for local businesses to apply for grants when we start making money. Michael Hingson ** 45:30 Yeah, well, but that is, I would still say that is exciting. You're, you're, you're channeling all of that, and hopefully you'll be able to do some major things to to help raise a lot of awareness. So what other kinds of things do you do to help raise awareness about disabilities and so on? Simon Sansome ** 45:50 Yeah, so we're launching a number of profiles, at the moment, a number of things. So what we're doing is, I'm sure you have it in America as well with you, probably for your restaurants and pubs and everything you have, something similar to a food safety hygiene certificate. Yes, I'm not too sure what you call it. Over there, we have a certain similar thing here. It's a rating from one to five, okay? And we're launching something called the snowball membership scheme, and we're taking our 70 staff over the next few months to cover the whole of the UK. And what we're going to be doing is we're launching a scheme where businesses, whether it's Frankie and Benny subway McDonald's, can sign up to the system where we will go out and basically view a disability consultation for 250 quid and give you a full breakdown of what you can improve on your business, but also gives you an access rating that you can promote on social media and say, Look, come to our business. We are disabled friendly, yeah. But what that does is that creates a huge opportunity for businesses and the snowball app, because we are creating the biggest disability app in the world, and it tells you where you can it tells you where you can access, where you can go, okay, where you can eat, where you can shop, but also, more importantly, where you can spend your own money. And I was doing some research earlier today, before this interview. And according to one, I think the valuable 500 is the disabled community in America has $8 trillion of disposable income right to spend on things like restaurants and cinema tickets and so on and so forth, to cafes and, you know, clubs and shops and whatever, per year. So $8 trillion is going unspent because the disabled community in America, which is 60,000,060 1 million, I believe, don't know where to spend their money. Michael Hingson ** 47:48 Well, when you think about the fact that it's the largest minority worldwide, you hear anything from 20 to 25% of all persons have some sort of disability. The The only, the biggest challenge that I see is the problem is that the disabilities aren't uniform. That is, it isn't the same. The needs that that you have, to a degree, are different than the needs that I have. The bottom line, however, is that even if you deal with it in that term that everyone has different kinds of disabilities. The fact of the matter is, it's still awareness. And while you need physical access to get into a restaurant, I need access to be able to to know what's on the menu and know what it's going to cost. And you don't have as much of a need for that, as I do, because you can lift a menu and read it in theory, but the fact is that we all have different challenges, and as I've said a couple of times on this podcast, we need to really redefine disability. First of all, disability doesn't mean a lack of ability at all. This isn't really the issue, because we do have terms like disciple, discrete, you know, they're not all negatives and and so disability is is really something different than what people have made it into. Disability is a characteristic that everyone has, and it manifests itself differently. I love to say that that the reality is, for most people, your disability is that you're light dependent, because most people don't do well in the dark, and they and Thomas Edison fixed it by inventing the light bulb, but it still is a disability, even if it's covered up, because most of the time you have light disability is a characteristic that everybody manifests. It's just that we do it in different ways. Simon Sansome ** 49:44 No, I completely agree. I'm hoping that the system that I've created will address that. So, because what we've done as well is not, it's not just the question of, oh, we're going out there and is disabled friendly, is wheelchair accessible? We're doing. Know, full disability consultation on the business. So, do they have Braille menus? Do they have a change in place facility? You know, is there a lift? Is there Braille on the lift, that kind of thing, and so. And we're also introducing something called the stimulation rating as well. And this is touch, touch, taste, sight, see and spell. And this is to give you an indication of what those things are at that place for people with visual impairments, for mental health issues and learning disabilities. Because, for example, if you go to the British Library, very quiet, you know it's going to be quiet. Okay. If you go to the Natural History Museum in London, well, some days it's really nice and peaceful on other days, because you've got 10 school 10 coaches of school children, absolutely chaotic. Okay, so it does vary considerably. And the whole idea is, is, while it's not a perfect rating system, because, like you said, there are so many different types of disability, not every disability is the same. Yours is different to mine. We're trying to incorporate a holistic approach to making sure that people feel comfortable going there, because they can relate to something that's on the assessment, and they can see what's there, so they get the full report, and therefore they can have an individual, independent, independent, independent decision on whether that place is suitable for them. So it's not a perfect system where it can be changed quite easily through feedback. It can be improved through feedback. It's like a moving model at the moment. It's like 16 pages long the assessment. But hopefully it will with the feedback we're getting and how it will grow. It will hopefully evolve into something absolutely fantastic for everyone to be inclusive everywhere. Michael Hingson ** 51:42 Well, and that's a cool thing, clearly, to do. One of the things that I know well is that you and I were introduced by Sheldon Lewis at accessibe. Sheldon is in the nonprofit part of accessibe in helping to find places that need Internet access and who are nonprofits, especially in the disability world, and helps provide accessibe for that. And I don't know whether you all are doing much yet with accessibe, but clearly it's a great place to get involvement in the whole issue of internet website access is is a horrible thing. I mean, we have so many websites being created every minute, and the reality is that none of the major internet website building companies, including Microsoft and Google, do nothing to insist that for website is being built, it has to be accessible right from the outset. So, you know, accessibe is a great, inexpensive way to help with all that, and I'm assuming that Sheldon and you are working on that somewhat. Simon Sansome ** 52:54 Yes, we are. We've had a discussion, and unfortunately, accessibe isn't available on apps at the moment, but that is something they're working on, and you introduce it soon. So I'm, I think once it's available on the apps, I will after, course, Michael Hingson ** 53:07 but it is, however, the reality is that restaurants and other places do create websites, and people go to websites, and so that's, that's right now, the place where accessibe can make a significant difference. Simon Sansome ** 53:22 Absolutely, I completely agree they should have it on there. Yeah. So Michael Hingson ** 53:26 that is, that is a that is certainly one place where, you know, we can help. And certainly every restaurant should have an accessible website and and if they're going to have menus on the website, then there are certainly guidelines on ways to make those accessible, and that is part of what needs to be done. Simon Sansome ** 53:46 Yes, and I completely agree with you. I support it, of course, Michael Hingson ** 53:50 yeah. And you're right, apps, apps today, that's a different process. It's a different animal, but it will come, and that'll be something that that we'll be able to see. But in the short term, Simon Sansome ** 54:02 yeah, I've told Sheldon, straight away, we'll get it on there straight away, as soon as soon as they've done the development for the apps, for access to be Michael Hingson ** 54:09 Yeah, but right now, well, okay, but right now for your app, it could be accessible. You just build it that way, but it's not the app. But every restaurant should have an accessible website, and that really ought to be part of what you look at when you're going to a restaurant, to explore what and how accessible they are. Having accessible and inclusive websites is certainly something that is very straightforward to do today. Yes, Simon Sansome ** 54:38 it is, but businesses are lazy Michael Hingson ** 54:42 well, but you know, they also that they are, but they also think that it's more expensive than it needs to be, and that's part of the whole issue. I mean, if you go to a restaurant and it's not accessible because you can't get into it, so they're still lazy. They didn't make it. Accessible right from the outset, and either they're going to where they're not, and it's a lot No no, no offense in any way intended, but it's a lot less expensive to make a website accessible than it is to modify an entrance so that you can get in with a wheelchair when there are steps or a very narrow door. Yeah. So it is yeah, laziness goes always Yeah. And Simon Sansome ** 55:23 hopefully, if they do have initiatives that hopefully snowball, can help me out with that, with the credit that we want to provide to small businesses, yeah, Michael Hingson ** 55:30 yeah. And I understand that most businesses are pretty small and don't necessarily have a lot of money to spend, but with websites, that's where accessibe can make a big difference right from the outset? Yeah, absolutely, which is pretty cool. Yes. So what's, what's next as you go forward with snowball What are, what's the future going to hold? Simon Sansome ** 55:52 Oh, my God, right. So, I mean, we're having a huge expansion, as I said, we're taking on about 70 staff to cover the whole of the UK. We're actually looking to franchise it as well across North America and Europe. We've also asked to be consultants for a number of governments as well. So it's going from strength to strength to strength. Every week, we keep on getting inquiries. We've got customers signed up already for the assessments, for the membership schemes. Loads in London. London's really taking off quite nicely. So it's where we're going at the moment is, I don't know, but in a couple of years time, I think we're going to be a major player in the app world for accessibility, because we already are the most that we are the biggest disability app in the world at the moment. Mm, hmm. By a long, long way, by, you know, 10s of 1000s of reviews. So nobody's really going to catch up with snowball, but we still need people to use it on a regular basis. That's the thing, because all the information we get is usually generated. Okay, in the UK, we're doing really well. In America, we need a bit more help. Yeah, but, you know, I was having a I was doing another podcast a couple of weeks ago in America, and there's a chap who wants to give us 10,000 locations of petrol stations across America where they went, because he doesn't know where to post it. All this information on accessible fueling stations across America, where they'll come out and help you to fill yes and you to fill your yes and stuff, and do help to pay for it. And he's just got no idea where to post it. So parallel, we think he's going to get we will win early stages of talks, and he wants to give us that information to help people to travel across America, and so they know where they can go and get their car filled up with assistance. So it's just we need people like that to leave reviews, to add places to use it on a regular basis, even if you go, even if you spot a car, you know, disabled car parking bay, you can have that. If you find an accessible toilet, add the accessible toilet. If you find an accessible restaurant, add the restaurant. Even if you find an inaccessible restaurant, add the inaccessible restaurant, because it will stop people going there and being disappointed. So all that information is extremely relevant to help people to be live a more independent life. So we need as many people across the world, including America, to download to to add reviews like you would on TripAdvisor. Is TripAdvisor for the disabled community. We just need more reviews and more people to use on a regular basis, and it will grow considerably. And therefore, once that's grown, we can start helping people more with like booking cinema tickets, booking airline travel holidays, and expand it that way as well. Because once businesses know that you're booking it through snowball, then they know you need extra assistance. So Sheldon, Michael Hingson ** 58:43 has Sheldon talked to you about access find? Uh, no, okay, access is again, right now, it's website oriented, but access find is a database that accessibe created of accessible websites, and any website can say, you know, we have, we have made our website accessible, and it's checked, but then, when it is, then they are included in access, find. And it might be interesting to explore that, both in terms of websites, but finding ways to expand it. So we can, we can explore that and talk about that one. So what? What motivates you? I mean, you're doing a lot. Why? Simon Sansome ** 59:28 It's the frustration of not being able to so, I mean, yes, remember, I for 32 years, I was fully independent. I could go anywhere in the world. I wanted to Okay, and it's the frustration that the world is not I'm not going to say it's not welcoming, because it's not that's not quite right. I'm going to say uneducated. And the ignorance of that everyone can access everything after having an injury like mine is very small mindedness, and I get. Frustrated that, because I travel a lot for work. I travel all over the world, and when we turn up to places, you know, we haven't got the right room, we can't access the hotel, we can't access the restaurant. It's got to the point where we don't choose where we want to go the place chooses us, yeah, and I don't, I don't think that's fair, no. And so I just want an equal opportunity world. That's what I don't like being turned away from places where we want to go for a family meal. I don't like being turned away from the cinema because the disabled seats so close to the screen. You know, it's, you know, it's just It frustrates me. And that's what, you know. I think that's what keeps up, keeping me going, but also as well, is when I was in hospital, because I got told I would never sit up again. I got told I was going to be on my back for life. Okay? And I'm very fortunate where I am. I mean, I know that sounds really stupid, because I'm paralyzed from the waist down, but I am very fortunate where I am, and I see, especially from a social services point of view, there are so many more people worse off than I am okay, and I just want to help them as much as I can. I want to give them choice. I want to give them a bit of independence. I want them to have that freedom of not being restricted to, you know, five, five places to go and eat, or, you know, the only place you can go to the cinema. I want you to the only tourist attraction you can visit. I want them to be fully inclusive. I want them to have a good life, you know. And I think snowball can help a lot of people do that. Michael Hingson ** 1:01:40 Well, that's cool. So if people want to learn more about Snowball or access the app and so on, how do they do that? And how do they reach out to you? Yeah, Simon Sansome ** 1:01:50 I'm on LinkedIn. Simon Samson, just send me a message. That's not a problem at all. Spell, if you would please. Yeah, S A N for November, s o m for mother, E for Echo, Michael Hingson ** 1:02:03 and first name Simon, s, i, m, o n, Simon Sansome ** 1:02:05 that's correct. You can also, you can also email us at support at snowball dot community,
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